My Life with Bartonella, MCAS, and SIBO: Update | Happy Stuff and Sad Stuff | Bartonella Babe
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- Опубліковано 28 бер 2021
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Videos/playlists referenced:
→ • Hydrogen Sulfide SIBO ...
→ • Treatment Of Interstit...
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✩Inquiries: jakethebartonellababe@gmail.com
JOIN our NEW bartonellosis support group on Facebook called BREAKING DOWN BARTONELLA:
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JOIN my NEW Exosomes Experiences group on Facebook for patients only so we can be open and honest there:
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Understanding Bartonella Webinar:
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Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Best diagnostic testing:
www.galaxydx.com/
High quality journal articles on bartonellosis:
1. Giladi, M., Maman, E., Paran, D., Bickels, J., Comaneshter, D., Avidor, B., ... & Wientroub, S. (2005). Cat‐scratch disease-associated arthropathy. Arthritis & Rheumatism, 52(11), 3611-3617.
2. Maman, E., Bickels, J., Ephros, M., Paran, D., Comaneshter, D., Metzkor-Cotter, E., ... & Giladi, M. (2007). Musculoskeletal manifestations of cat scratch disease. Clinical infectious diseases, 45(12), 1535-1540.
3. Maggi, R. G., Mozayeni, B. R., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Correa, M., & Breitschwerdt, E. B. (2012). Bartonella spp. bacteremia and rheumatic symptoms in patients from Lyme disease-endemic region. Emerging infectious diseases, 18(5), 783.
4. Breitschwerdt, E. B., Maggi, R. G., Mozayeni, B. R., Hegarty, B. C., Bradley, J. M., & Mascarelli, P. E. (2010). PCR amplification of Bartonella koehlerae from human blood and enrichment blood cultures. Parasites & vectors, 3(1), 76.
5. Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
6. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
7. Breitschwerdt, E. B., Maggi, R. G., Nicholson, W. L., Cherry, N. A., & Woods, C. W. (2008). Bartonella sp. bacteremia in patients with neurological and neurocognitive dysfunction. Journal of clinical microbiology, 46(9), 2856-2861.
8. Breitschwerdt, E. B., Mascarelli, P. E., Schweickert, L. A., Maggi, R. G., Hegarty, B. C., Bradley, J. M., & Woods, C. W. (2011). Hallucinations, sensory neuropathy, and peripheral visual deficits in a young woman infected with Bartonella koehlerae. Journal of clinical microbiology, 49(9), 3415-3417.
9. Kalogeropoulos, C., Koumpoulis, I., Mentis, A., Pappa, C., Zafeiropoulos, P., & Aspiotis, M. (2011). Bartonella and intraocular inflammation: a series of cases and review of literature. Clinical Ophthalmology (Auckland, NZ), 5, 817.
Blog Post on Bartonella and the Eyes from Galaxy Diagnostics
www.galaxydx.com/bartonella-a...
Mast Cell Activation Resources:
tmsforacure.org/
www.mastattack.org/
/ mcas
Mast Cell Activation Facebook Support Groups:
/ mastcell
/ 207077049364043
/ 688215441273764
#Bartonella #bartonellosis #MCAS #SIBO #hydrogensulfidesibo
→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
Oh Jake, I’m so relating to the crying, not being able to cry because one is too depressed or exhausted to cry. I had a lifetime of that until I found health strategies that worked for me. It’s so individual and complicated as everyone is so different.
Sing gorgeous. You’re such an encouraging person. I pray for you so often. Im believing God for your healing. You sharing your information is priceless. I took my first hyperbaric treatment today. Was like being in a submarine. “Under the sea”. Oxygen heals. Kaplan has some UA-cam on it. Anyway. Smile princess. You’re a winner
Thank you so much Denise and I hope HBOT gives you some much deserved relief. Your comment made me smile and I am smiling right now! ❤️
Wow I’m going through a lot of this. Sad and scary symptoms. Thank you for your channel. I feel so alone and your channel has helped me so much ❤
I’m so glad I’ve found your videos. I have so many of the same issues as you. Bartonella, MCAS, SIBO. Your experience with crying is eerily similar to mine. I have times where I wish I could cry, but I can’t. To me it feels like I’m too unwell to cry when that happens. Sorry you’re experiencing the same, but it’s nice to know I’m not alone. Thanks for making these videos to share your experiences.
yes I know the feeling of being too unwell to cry! It's terrible. It's like crisis mode. I'm sorry that you are experiencing this too but I am so glad to hear my videos made you feel less alone! ❤️
*HUGS* you are amazing. Thank you for all your videos and everything! It makes me feel less scared and alone 💗
❤️❤️ love to hear this!
brooooo the little mermaid still haunts me because I was part of a stage production of it in middle school so that singing was bad but it sure did stir up some memories
re: ptsd, only 25% of people who experience a traumatic event develop ptsd so you're definitely not wrong about that
and also your videos are the reason my mcas was caught before it became severe and I'm going to be tested for sibo soon. I never would have thought to look into mcas because I only ever associated with anaphylaxis and I just attributed my symptoms to my known allergies triggering systemic inflammation (sounds an awful lot like mcas lol).
thank you as always for making these videos and consider your ads kissed ❤️
Thank you for that PTSD stat. Imma keep that one in my back pocket. And bhahaha I was in some theater camp as a kid and dear god I can't type this without laughing okay so the acting coach made us do this play where we were all in the great depression (great engaging material for elementary school kids) and there was this big monster made out of broomsticks and trashcans and as people passed by the monster it would coerce the passersby to join and be a part of the monster. I'm pretty sure I became an arm and held a broom stick from behind the weird ass construction. If you're confused by all of that, don't worry, so am I. And haunted
Just wanted to share with you that 2 of my sons were taking Pepcid and Zyrtec then developed bad anxiety and depression. I hope that’s not the case for you but just wanted to let you know that can be a side effect of both meds.😞 Thank you for sharing your story. I’ve learned so much for you. It’s so difficult watching my son suffer from bartonella and I so hope there’s a light at the end of the tunnel for him and everyone that has it. ❤️
Sorry to hear about those side effects but that's definitely not happening to me. And there definitely is light! I didn't see it for a long time and there are times when I still don't but it is there ❤️ keep the hope for you and your son
I’m in the IC group you posted your video in and subscribed to your channel. Thank you for posting in the group! Sending positive thoughts and energy your way❤️
thank you so so much for your positive vibes and subscribing. I truly appreciate it
lol The Ham sandwich is actually a good analogy to explain how people can be toxic. Someone not getting better during a treatment should be interpreted as the complexity and severity of the illness and situation the person is dealing with. Not, the weakness of the person dealing with it. Meanwhile, the person dealing with it is probably being strong in a way that the people being judgmental don't understand. The experience of Bartonella itself is traumatic, then you have to deal with all this peripheral stuff. Its really a strength a lot of people don't understand.
Haha thank you for appreciating my ham sandwich metaphor, which now is making me hungry even though I still can’t eat anything on a ham sandwich lol
First, I’m so grateful for your channel. Second, cry all you need and want. Your honesty and transparency is refreshing. How do I feel? I think you said it all. Keep searching and researching - we are all learning from each other. Thank you for all the valuable information and your courage to keep going.
Thank you so so much! We are definitely all learning from each other and eventually we will figure out our puzzle pieces. We just have to keep trying ❤️
U are so strong babe love ya
Hang in there Jake! It saddens me to hear about your recent state. Through all this you manage to continue to make videos and share your knowledge with a lot of people - wow! It’s impressive and so is your makeup 😁
Thank you so much Lori! After I filmed this video, I continued to have setbacks but after two 12 hour research rampages I figured out what was wrong with me. I am not ready to share all of that yet but looking forward to sharing what I've learned when I'm ready. And thanks for the makeup compliment! It made my day 😃lol
You are helping so many people, I will start the sibo treatment soon, thanks for your video! Did you try betain hcl in periods of low stomach acid? I could not digest at all without these ( 1/3-1/2of a capsule) I had these mast cell reactions when drinking water too, about 2 years ago, the lower the acid the worse was the reaction. And concerning amino acids, do you tolerate Bcaa (which do not contain sulfur)?
Oh I'm excited for you to start treating SIBO! I hope you see some relief from it. And that makes sense that someone can have reactions if the food is just sitting in there undigested. A couple of my doctors have mentioned BCAA and that probably should have been what I tried instead of the IV amino acids but live and learn! Right now I'm sulfur deficient. That's a whole long story that I'm not ready to talk about yet but when I am, I will be making a video on what I've learned
So I was also drinking nothing but alkaline water for months and I was having this awful nausea,gas, bloat. I finally stopped and started taking zyrtec and pepcid daily for MCAS and the gut issues are better. But wouldn't pepcid do the same thing that alkaline water does?? Doesnt it get rid of stomach acid?
Good question! Yes Pepcid does decrease the release of stomach acid by blocking H2. However, most MCAS patients (not all) have an inappropriate release of stomach acid due to the histamine response. So the H2 brings MCAS patients back to "normal." Finding the right dose is key. Furthermore, H2 blockers help many MCAS patients with bloating, including me. I don't know the mechanism behind this but the point is that H2 blockers will do more to help an MCAS patient than just stomach acid as opposed to alkaline water
Can't waitttt to do the SIBO test. My doc sent my test to the wrong address, so I have to wait another week to get it. Ugh.
omg that's like the last thing you need!! One of my Bartonella buddies showed me this meme that says we all just have to take it one "are you freaking kidding me?!" at a time
Wait, so you can eat potatoes? I'm so jealous!
Lol yes potatoes are good but not when you can't have any butter or anything on them at all except for vegetable soup and get down to 86 pounds. Then potatoes aren't so good anymore! 🥴
or bovine colostrum , frozen from a cow, not powdered .
My daughter started to turn around by raw milk .
So glad that helped her! I've figured out what has been going wrong with me and I am not ready to share all of that yet but looking forward to sharing what I've learned when I'm ready. Thanks for thinking of me ❤️
Jake sorry yr having so many heartbreaking setbacks. Birds pooping on you is meant to be good luck. Not sure about ham sandwiches but maybe that bird was just a bad shot😀 trying to tell something. Your experiences seem like all different setbacks but they are all the same triggers to me...
For me - amino acid IV - inability to handle sulphur amino acids (and histadine) dx acid Oates test
Lactulose - contains sulfites (in Aust it’s written on the label but not in your country)
Water - contains sulphur. I can only drink one brand
Margaret Moss (uk researcher/dietician) says we are either sulphur or MCAS people. I chased mcas for four years and now finally see my issues are sulphur. It manifests the same. Burning nerve pain etc
If you have problems in that pathway there can also be problems with phenols/salicylate/amines/sulfites/sulphate because they all use that pathway and it becomes overwhelmed
The one, two three Reaction time is the bucket affect… How full or empty it is
I’m sensitive to a lot of drugs because they are salicylate or sulphur based.
There’s also a connection to mould detox which I can forward if you are interested but I’m too crashed to articulate that right now. Unfortunately I am back in mould temporarily and I am reacting to absolutely everything again after seeing some improvement and recovery.
I don't agree that you can only be a sulfur or an MCAS person. I definitely have MCAS and I definitely have sulfur intolerance. Treating SIBO has helped the MCAS and the sulfur intolerance and because I have treated the SIBO I have been able to handle more foods and supplements to help sulfur processing recently. Sorry to hear of your recent setback. I'm sure we all know how that feels but at least some recovery has happened before so you know it can happen again! ❤️🙂
You’re right you can have sulphur intolerance +mcas. Anything that causes inflammation can flare mast cells. Chemicals in foods can also trigger nerve endings which will flare mast cells too. Margaret explained to me it was about finding where the genetic weakness was...mast cells or transulfation pathway so we could fix it cuz Sibo is considered adaptive. Keep singing and I’ll keep listening❤️
@@susanyeates9724 Thanks Sue! I am going to keep kicking as long as I am alive and kicking ❤️
This made me so depressed to the point I became suicidal many times due to not getting the right help . I have this awful burning in my brain and stomach. This started a week after taking clindamycin and I didnt know I had lyme/bart, sino or mcas. Someone pls explain the internal burning feeling
I just love you ❤️❤️❤️❤️ Gretel 4ever
Awww when you comment I feel like someone famous is commenting! lol Holda the witch 5 everrrrr
I love you sweety
hang in there
you are so strong .
Thank you! We all are!!
I get the alkaline water thing. I went through that too. Now that I know about it it doesn’t make sense to drink only alkaline water. Just curious, does reverse osmosis remove heavy metals?
I think it does but I'm not an RO expert lol so Dr. Google would be the one to consult on that one though. I know it takes out minerals, which can be bad but that's not on the top of my list of things to deal with right now 🥴lol
Are u still on abx?
So u stopped abx? U went back to treat bart by abx or what?
"MerMade"...your singing voice is...um, uncommon, enigmatic, atypical, unique, distinct, a true "rarity", and don't let anyone ever tell you otherwise. And yes, I am textually "kiester canoodling"... "posterior snogging"... "gluteus maximus bussing"...engaging in "badunkadunk osculation congress". Alright, enough out of me, as I'm off for dinner. I like to start with an aperitif of extra strength Robitussin, blended with Pepto-Bismol, (shaken, not stirred) followed by a main course of potato's and chicken (dry, no seasoning...you know, histamine) followed by a dessert of flambéed Prednisone, with some Montelukast sprinkles, and finish that off with a healthy dose of Children's Benadryl (cuz its red dye free)...through a sippy straw. Sing it SIBO Sister!! :)
I think I learned 2 new slang words and one new vocab word from your one comment alone. The vocab word was not enigmatic (it was osculation) but TR Savage, you are definitely enigmatic and I mean that as a complement
@@BartonellaBabe Thank you for tolerating/appreciating my bizarre sense of humor and my jovial humorous efforts, most people, do not. But then again, far too many are pillocks, which explains my misanthropic hermitization. Anyway, off for a few rounds of self administered Atomic Wedgies...just for something to do. :)
FMT ?!
STOP SINGING!!!!!! pls
jk love the video especially when your mom chimes in haha
bahahah WHERE is my picture of you in my merch?!?!?!!?