I'm PISSED and SAD!

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  • Опубліковано 22 гру 2021
  • Living with bartonellosis is like living in constant survival mode.
    ✩ WAYS TO SUPPORT MY HARD WORK
    I believe that everyone should have access to affordable, high-quality healthcare and I also believe that people should be compensated for their hard work. If you appreciate my hard work, research, and advocacy, you can also support me in the following ways:
    → PayPal: username @bartonellababe or search Jake Picker
    → Venmo: username Jake-Picker
    ✩ No one needs to support me in this way and please do not gift me if you are not in a position to do so!
    → SHOP MY MERCH HERE: bartonella-babe.creator-sprin...
    → SHOP MY JEWELRY HERE: www.etsy.com/shop/bartonellababe
    ✩ Thank you for supporting my hard work and my channel! See more ways to support my channel below.
    ✩ 25% of all MERCH proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. Link to donate directly to the Bartonella Project:
    securelb.imodules.com/s/1209/...
    Let's connect!
    ✩Instagram: @bartonella_babe
    ✩Facebook: bartonellababe
    ✩Inquiries: jakethebartonellababe@gmail.com
    High-quality, peer-reviewed journal articles on bartonellosis:
    1. Giladi, M., Maman, E., Paran, D., Bickels, J., Comaneshter, D., Avidor, B., ... & Wientroub, S. (2005). Cat‐scratch disease-associated arthropathy. Arthritis & Rheumatism, 52(11), 3611-3617.
    2. Maman, E., Bickels, J., Ephros, M., Paran, D., Comaneshter, D., Metzkor-Cotter, E., ... & Giladi, M. (2007). Musculoskeletal manifestations of cat scratch disease. Clinical infectious diseases, 45(12), 1535-1540.
    3. Maggi, R. G., Mozayeni, B. R., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Correa, M., & Breitschwerdt, E. B. (2012). Bartonella spp. bacteremia and rheumatic symptoms in patients from Lyme disease-endemic region. Emerging infectious diseases, 18(5), 783.
    4. Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
    5. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
    6. Kalogeropoulos, C., Koumpoulis, I., Mentis, A., Pappa, C., Zafeiropoulos, P., & Aspiotis, M. (2011). Bartonella and intraocular inflammation: a series of cases and review of literature. Clinical Ophthalmology (Auckland, NZ), 5, 817.
    JOIN our bartonellosis support group on Facebook called BREAKING DOWN BARTONELLA:
    / 1104493829902071
    Understanding Bartonella Webinar with Dr. Mozayeni and Dr. Breitschwerdt: • Understanding Bartonel...
    Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
    tmgmd.com/907-ticks-fleas-mys...
    Best diagnostic testing:
    www.galaxydx.com/
    Mast Cell Activation Resources:
    www.mastattack.org/
    / mcas
    #bartonella #bartonellosis #bartonellababe #jakepicker

КОМЕНТАРІ • 250

  • @BartonellaBabe
    @BartonellaBabe  2 роки тому +7

    Make sure to comment what you would do on your fantasy day off from your illness! Keep the hope Bartonella buddies ❤️
    ✩ WAYS TO SUPPORT MY HARD WORK
    I believe that everyone should have access to affordable, high-quality healthcare and I also believe that people should be compensated for their hard work. If you appreciate my hard work, research, and advocacy, you can also support me in the following ways:
    → PayPal: username @bartonellababe or search Jake Picker
    → Venmo: username Jake-Picker
    ✩ No one needs to support me in this way and please do not gift me if you are not in a position to do so!
    → SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
    → SHOP MY JEWELRY HERE: www.etsy.com/shop/bartonellababe
    ✩ Thank you for supporting my hard work and my channel!
    ✩ 25% of all MERCH proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. Link to donate directly to the Bartonella Project:
    securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
    Let's connect!
    ✩Instagram: @bartonella_babe
    ✩Facebook: facebook.com/bartonellababe
    ✩Inquiries: jakethebartonellababe@gmail.com

  • @Joan11ify
    @Joan11ify 2 роки тому +27

    My "Vacation day" would include everyone (doctors included!) who has disbelieved and dismissed Bart/Babesia symptoms to GO THROUGH ONE DAY OF HAVING THIS AND EXPERIENCE THE SYMPTOMS, THE PAINS, THE RESTRICTIONS.

  • @areliz_ramos
    @areliz_ramos 2 роки тому +23

    girl u are gold, you are a light for other ill people .... please dont let others take the light from you.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +3

      Awwww thank you!! They can't take my light! It's branded, copyrighted, and patented. Happy holidays to you!! ❤️

    • @EbonyAE88
      @EbonyAE88 9 місяців тому

      @@BartonellaBabe just got diagnosed with super high levels of bartonella... help.

  • @meredithmarkiewicz7895
    @meredithmarkiewicz7895 5 місяців тому +7

    You deserve all the best Jake. Here's to endless vacation days for you. You are already missed.

    • @thewitchmd
      @thewitchmd 5 місяців тому +1

      Only found this funny, intelligent, big, beautiful light in our community today with the news of her passing. I so wish I had not missed out on years of Jake's entertaining, informative, and above-all, relatable videos, though I am glad to be watching them now. [Even through the tears!]
      Her pain is so tangible because it is also my pain, all of ours... sick or healed or the pain of our caretakers and allies.
      Incredibly difficult decision she made ... brave and heartbreaking. My heart hurts for her Mom for her tragic loss. And for all the years she spent caring for Jake, wishing she could take the pain and illness. struggling to accept the awful reality that she couldn't. Unimaginable pain for a parent to go through. Yet, Mom, YOU ARE AN AMAZING MOTHER AND WONDERFUL PERSON. May you find joy in all the beautiful memories of your angel of a daughter. May you find peace in knowing Jake is no longer suffering. May happiness and love and health and unwavering support carry you through the next part of your life's journey. And may your days be filled with little glimpses of Jake, in the ways she comes to visit you. The butterfly in your garden. The sun peeking through the clouds in glorious sun rays. A scent that just pops up out of nowhere. The dragonfly that finds its way into your house. A line in a book that reads just like Jake was speaking to you.
      And, Jake, I hope ALL of your vacation plans - your wildest dreams - unfolded, instaneously, the moment your light ✨️exploded ✨️ back into the universe and into the heavens.
      THANK YOU FOR BEING YOU. FOR SHARING/BRINGING YOUR LIGHT TO US ALL.
      Forever shining ✨️💖✨️😇✨️

  • @oilerguy5494
    @oilerguy5494 2 роки тому +19

    Seems like so many ppl with chronic illness go through this similar scenario with friends or family. You learn to know the real ppl who actually care.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Very true! And I feel grateful that this has been our only experience like this in 3 years and honestly I don't expect many more like it either. Some people have had it happen to them a lot. Happy holidays to you!

  • @TheEmotionalAlchemist
    @TheEmotionalAlchemist 2 роки тому +26

    People who don’t have debilitated health have no idea what it’s like to live in fog and be a slave to just making it to the end of the day... and half of these people are doctors 😆 Next lifetime they’ll come back to be treated by a doctor who can’t give them the answer and doesn’t actually care.
    If you hadn’t been sick you wouldn’t have made so many videos and helped as many people as you have 😉
    You’re a trouper and the end of the tunnel will appear 🙏🏽 Ignore those who can’t support you.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +2

      Aww this brought a tear to my eye. You're right. The silver lining is that being sick for this long has allowed me to make these videos and help people. And I agree that's what's happening to her in her next life! lol.

  • @arceliamoreno5381
    @arceliamoreno5381 2 роки тому +9

    Your mom did the right thing ending that friendship.
    Wish you both, you and your mom, happy holidays and all the happiness in the world

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Yes she did!! And thank you. Happy holidays to you too Arcelia ❤️

  • @keithgeraghty5247
    @keithgeraghty5247 2 роки тому +6

    your mother is amazing - it would be great if everyone suffering from this illness had a mom like yours to support them and giggle and make them laugh -- + if you go to that High School Reunion, yes you are brave, you might not see it or think it, but you are, and educating people on youtube and helping people is something to be very very proud of; go there with a head held high pleaseeeeeeeeeee!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Yes she is amazing!!! I had a blast at my high school reunion and I am so glad I went. Thank you for your comment 🙂

  • @smarcusification
    @smarcusification 2 роки тому +15

    I went through this too. There was someone in the family. I cut all ties with them. My heart was broken but I managed to get over the pain of losing a family member. I don't hate them , but I also don't accept that I will be hurt out of ignorance. We suffer enough, and you know what? that made me stronger and stronger in my research. And now I know that one day I will have the vacation of my dreams. My advice is to stay positive no matter how hard it is and to truly believe that one day you will be healed. Fight and know that you are not alone, I admire you and I loved you from the first video I saw. We are with you my beautiful darling. Gros bisous Jake! ( My dream is to see the Japanese gardens in April ) :)

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +5

      That's a great dream and I would love to see them too! If we just keep trying, I know that one day we will. And good for you for not accepting that. We have to stick up for ourselves and don't need any more shit than we already deal with

  • @avivapeltin
    @avivapeltin 2 роки тому +9

    Just started the video and omg are we twins?! My mom's friend since childhood emailed both of us the same exact thing basically. It was the most hurtful email I've ever received. They are now ex-friends, too.

    • @avivapeltin
      @avivapeltin 2 роки тому +3

      Here are some fun excerpts from the email: "Then I got the call. You said after seeing several doctors Aviva had been diagnosed with Limes Disease. At the beginning of the conversation you said only a small proportion of people had it for life. After and hour of talking you told me Aviva was never going to be able to leave home. So there it was at last.
      I noticed after that that Aviva changed. Being an invalid became her identity. Her picture on Facebook was of a very sad girl. Her voice on the phone even changed."
      Oooh here's a good one: "I feel sorry for your daughter because she's ruined. She may or may not have the disease, but it doesn't matter. She sees herself as an invalid. That's the identity you gave her." My jaw was on the floor when I received this email. Sorry you had a similar experience. Oy vey. (She's convinced that my mom wants me stuck at home. It's the most bizarre interpretation of this situation I've ever heard.)

  • @kjr8660
    @kjr8660 2 роки тому +5

    Hi, Jake. Merry Christmas! You're so lucky to have your mom so supportive and commited. My mom told me the other day: "The only thing you're worried about is the processes in your body" implying that I'm too obsessed with my chronic ilness. People that never been sick for a long time just can't get it, that if we don't get "obsessed" there're no chances to get our life back. Being obsessed with getting better becomes our life.
    I actually got Covid recently and my husband had it too. We already recovered, but it definitely pushed me back on my healing. At least my husband now says that he understands what it's like being sick (he hasn't been sick for years), even though the worst moments of covid weren't even as bad as MCAS flare ups can be, lol.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Merry Christmas and happy holidays to you too! I know I'm so lucky to have my mom and I never take her for granted!! Not for one single second. And exactly! I don't have a life and the only way I'm going to get it back is by becoming my own expert. I literally am bed and housebound. Sorry to hear COVID pushed you back on healing but very glad to hear both of you have recovered

  • @MegaMusicMuse
    @MegaMusicMuse 2 роки тому +7

    It’s hard to realize that most people can’t really understand other people’s suffering. That’s why it’s so lonely and isolating. She probably thought she was helping but doesn’t know. It’s her ignorance. It’s horrible.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +2

      It's very hard to understand another person's suffering unless you have been through something similar and even then it can still be hard. You're so right. It's her ignorance and no longer our problem!!

  • @user-wx1fr3ow4w
    @user-wx1fr3ow4w 4 місяці тому +1

    I am so sorry Jake had to go through this horrible disease. I have never known anyone who had it. I only read about it as I was looking up Lyme disease online, and now I discover, that many people suffer terribly from it. What a wonderful team Jake and her mom were. Couldn’t ask for a better mom to keep encouraging her. Jake, may your memory be a blessing. I am confident it will be.

  • @jessicaturner2596
    @jessicaturner2596 2 роки тому

    I just wanted to let say thank you so much for your videos! I have lyme and have dealt with so many closed minded people. The hardest thing is my neice was just diagnosed with bartonella and I watch her and it's like watching myself. Your videos are helping so much. I am going to share them with my family. Sometimes people listens to strangers better than those closer to them.
    You are brave!

  • @janicesutton9718
    @janicesutton9718 2 роки тому +1

    We Love you Jake!.......You do so much for the other Bart Babes...Thankyou...A Million Thankyou's I do hope you Feel Better.....We are all cryin" with ya......sorry people can be so cruel.....We look forward to more Bartonella Babe Videos

  • @lmurray6537
    @lmurray6537 2 роки тому +3

    I know how you feel 😭 the mental endurance it takes to withstand a chronic illness is exceptional... you are a warrior and your mumma knows it. I wish you wellness so hard ❤💜🧡💙💚

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Mental endurance is right! Thank you so much!!

  • @annabruzzese8610
    @annabruzzese8610 2 роки тому

    This video is very timely. Thank you.

  • @SonyBX57
    @SonyBX57 Рік тому

    I just found your channel…you and your mom are precious! I’m so, so sorry this happened to you. You are not alone…keep fighting girl! ❤️

  • @Skitguy1
    @Skitguy1 2 місяці тому +1

    Love and support ❤️im struggling with SIBO which is very related to your disease i feel the pain its been 2 yrs since diagnosis 4 months of treatment and my family is acting similar to your moms friends. Cruel, they compare me to their own struggles not appreciating the effort im making to stay alive and research my own disease without being a doctor.

  • @saisafetytrends
    @saisafetytrends 2 роки тому

    you have a great channel! it's a big deal having this illness and you are helping the world by sharing about it

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Thank you so much. Really appreciate that especially since I’ve been having a really rough time recently ❤️❤️

  • @SunnyPeacefulKingdom
    @SunnyPeacefulKingdom Рік тому

    Ooo Princess... I understand you so much as I have a severe disease also (severe asthma) that have messed all my body (gut etc...). I'm with you and ❤️ you, thank you so much for your help. We will find the solution!!

  • @angie2129
    @angie2129 2 роки тому +2

    Big huge hug to you and your mom. I’m sorry you were judged by someone close to you. Chronic illness is isolating enough as it is. On that note yay to you going to your reunion. I think you are brave too, and not just for that.
    My fantasy vacation day…I would literally be eating all the day long, hopping from one delicious restaurant to the other. There would definitely be beer and a cute boy involved too. :)

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      And a big hug to you right back!! ❤️❤️ I whole heartedly endorse your fantasy vacation day. Great minds think alike lol

  • @thelordsportion1273
    @thelordsportion1273 6 місяців тому +1

    I can relate, especially when you said "not only have I lost my body but now losing my brain." Paraphrasing. But its sooo very debilitating and frustrating when your body doesn't function normally and then your ability to focus and think like you use to goes. Very sorry for your suffering ❣️

  • @jw619
    @jw619 Рік тому +1

    My best friendship of 20 years ended last year from this exact scenario. I'm still trying to reconcile it. Your relationship with your mother is very moving. I pray for healing for all of us. I also have terrible pelvic and leg/feet pain and burning. I would sit and run:)

  • @bubsthirty5890
    @bubsthirty5890 2 роки тому +1

    I am so sorry. I have also experienced this. Unless people have gone through chronic illness, they will never understand. They don't understand that everyday is a fight because we never feel well and are always in pain. We have rely on ourself to be an advocate because we get written off if our illness can't be seen on labs. It's exhausting.
    Way to be awesome! You TRY everyday! You have a community that so appreciates everything you do! I agree with your mom, you are BRAVE!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      I feel like everyone who is chronically ill has experienced something like this! I do feel lucky that this has been our only experience like this in three years. And thank you! You're brave too. We all are because we have to be. #bartonellabrave Hope you're having a good holiday season

  • @lloydh464
    @lloydh464 2 роки тому

    Merry Christmas Jake
    Many many people just can't empathize with something they don't understand or can't experience themselves.
    Many people are ignorant!
    Your mom is golden! People wish for that type of loving, caring and compassion in a parent.
    You are very lucky.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      You're right I am very lucky to have her. I hope you're having a good holiday season Lloyd!

  • @ftaproductions7573
    @ftaproductions7573 Місяць тому

    Thank you for sharing so earnestly. I feel your pain. This resonated with me so deeply. I too have a loving & supportive mother. So fortunate for us huh!? May strength, courage & success dominate your Journey
    Much love FTA :)

  • @averyrajan6967
    @averyrajan6967 2 роки тому +1

    Jade, I’m so sorry this illness is taking your mind too. I can not imagine 😢 I hope you find relief and healing sometime very soon. If you ever need to talk through the brain fog I am here- that was my worst symptom when I was sick. ❤️‍🩹

    • @averyrajan6967
      @averyrajan6967 2 роки тому

      Jake ** 😆 luckily my brain fog is gone but the stupidity is still here

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      hahaha lol to the brain fog/stupidity joke. Thank you for your sweet comment ❤️

  • @lati5074
    @lati5074 2 роки тому

    You are so strong and have such a big heart❤️
    You help so many, that you make these videos is so admirable.
    You are so true and so honest.
    You have a very beautiful soul, your body unfortunately has got these bacteria that are created out of the dark.
    The kindest people are usually hardest hit by the dark.
    I share your trip due to similar situation.
    I'm touched by you.
    Your mother must also be an amazing person.
    Soon the light will come back and heal this. Then the new life begins together with all this experience.
    Hugs from kindness.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Thank you so much Lati. And my mom is such an amazing person. I'm sorry to hear you have been sick too. We all just have to keep trying and eventually something will click and work

  • @KayeMetzie
    @KayeMetzie 2 роки тому

    I'm sorry, Jake. I appreciate the superhuman effort you expend to overcome a monumental illness, and to synthesize and share what you learn in a way that is helpful and encouraging. Your mom is a blessing.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Monumental. I love that word to describe it. And my mom is my best friend and I am so lucky to have her. I hope you are having a good holiday season ❤️❤️

  • @anynamebutmyrealone
    @anynamebutmyrealone 21 день тому

    This breaks my heart so much now that this sweet young woman passed. People really are so cruel when something is too complex for them. What if people like this woman would have been empathetic. At least this heart ache would have been kept from her. It just motivates me so so much to be kind and open minded.

  • @jakobepopo
    @jakobepopo Рік тому

    Jake! I am so sorry… I will be praying 🙏🏻 for your healing. My own daughter is going through this right now. It’s very tough…. Many don’t understand.

  • @AlexB-zw4hf
    @AlexB-zw4hf 9 місяців тому

    I think you are one of the bravest, people!!!! You are so smart and focused. I wish you pure happiness. You'll get healthy!!! Keep at it! Try not to be distracted by this type of stuff. It's not worth it. Keep your eyes on the prize. You got this! ❤️

  • @ashensilverlake1889
    @ashensilverlake1889 2 роки тому +1

    Jake,
    Thank you to you, your Mom and that cute puppy so much for making this video. I’m so sorry you both had to go through that phone call and I’m sorry that your Mom’s friend was a “see you next Tuesday” in her actions of not understanding what is going on.
    I have had people who I really like in my life who I’ve had to cut out. I’ve literally ghosted over 50 people because they suck and they don’t get it. They think my Bartonella and feeling icky all the time is MY FAULT because I’m not trying hard enough. I’m ALWAYS trying so hard. When people think they have all the answers I don’t necessarily wish my sickness on them 🤔…for that long…lol but I wish they would trust me when I say I can’t do something (like your Mom said) because I’m an honest and hard working person!! I love that you guys can laugh even in the darkest times. Although I am not happy to see you upset I was so happy to see this video because I can relate so much! It helps me feel hope in knowing how to cope and not feel alone.
    My fantasy day would involve a fancy cafe like a French pastry 🥐 shop and wine 🍷 bar. I love that you said skiing because I almost forget what it’s like to feel well enough to do that even though I’m young ish. I’d maybe try cross country skiing or snowboarding and running a winter 5k and doing the penguin plunge. Also a sauna and rolling in snow or swimming in ice water. Maybe I’d try cooking some foreign food too 🤷‍♀️ I hope you get some relief soon. Your videos are a gift to me and anyone who cares enough to watch them.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Hahahaha "for that long" not going to lie but they should try it just for a week or a month and see if they have a change of heart. Ooh I love the idea of a fancy french pastry but you could never get me on a snowboard again. Only skis. Too much eating shit on a snowboard lol. And thank you so much for your comment and for watching ❤️❤️

  • @elizabethzurek9759
    @elizabethzurek9759 2 роки тому

    So sorry!! Keep up your good work.

  • @matthewmillaisgray
    @matthewmillaisgray 5 місяців тому

    Good day Bartonella Babe, Jake Picker & Mom! What an insightful well researched channel! Thank you for posting this candid journal and increasing the awareness. It is incredibly helpful. Best wishes to you both from the Cape of Good Hope peninsula South Africa

    • @KRAEMERP2010
      @KRAEMERP2010 3 місяці тому

      Sadly she is no longer among us..

    • @matthewmillaisgray
      @matthewmillaisgray 3 місяці тому

      @KRAEMERP2010 Greetings and respects, @KRAEMERP2010. I am deeply sorry to hear this devastatingly sad news. Thank you for sharing it with me. I find myself at a loss for words as the weight of grief and bewilderment settles in. The news of Jake Picker, also known as Bartonella Babe, no longer being with us is truly unfortunate. Jake was a dedicated individual who worked tirelessly to create educational and candid content about bartonellosis, mast cell activation syndrome (MCAS), and other related conditions. Her work was, and continues to be, highly appreciated, as it played a crucial role in raising awareness and educating the public about these dreadful diseases. Her contributions will be remembered with deep gratitude, and her legacy will undoubtedly continue to inspire many. My heart goes out to her mom, family, and friends during this incredibly difficult time.

    • @matthewmillaisgray
      @matthewmillaisgray 3 місяці тому

      @@KRAEMERP2010 @KRAEMERP2010 Greetings and respects, @KRAEMERP2010. I am deeply sorry to hear this devastatingly sad news. Thank you for sharing it with me. I find myself at a loss for words as the weight of grief and bewilderment settles in. The news of Jake Picker, also known as Bartonella Babe, no longer being with us is truly unfortunate. Jake was a dedicated individual who worked tirelessly to create educational and candid content about bartonellosis, mast cell activation syndrome (MCAS), and other related conditions. Her work was, and continues to be, highly appreciated, as it played a crucial role in raising awareness and educating the public about these dreadful diseases. Her contributions will be remembered with deep gratitude, and her legacy will undoubtedly continue to inspire many. My heart goes out to her mom, family, and friends during this incredibly difficult time.

    • @KRAEMERP2010
      @KRAEMERP2010 3 місяці тому +1

      @@matthewmillaisgray Well said! Yes truly sad🙏 If you are also fighting Lyme, I wish the best for you! Disease from hell!!

  • @mariannebotka6755
    @mariannebotka6755 2 роки тому

    I’m so sorry you and your mum went through this Jake… people suck. You are amazing. You have been such a huge support with all you do for people. You’re a rockstar xxx

  • @georgeclark1674
    @georgeclark1674 2 роки тому

    Dear Jake, first thank you for all of the videos', I was just diagnosed with Bartonella last week by TLAB and have been disabled by MCAS the past 3 years. I am totally impressed by your attitude in light of the health burdens you bear. When I get depressed about my health issues I think about your impressive example. I feel sorry for your mother's friend because she likely lives a life of emotional disconnection from her heart (a cost for her and all around her). You are a real person with real emotions and emotionally more mature then most people close to your age. Many people are afraid of getting on a emotional level, yet the more they avoid it, the bigger the wall is built. May the Lord bless you and grant you the faith and energy for the path that you walk. I will be praying for you.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Thank you so much George but behind closed doors my attitude is far from impressive. We are all human. I am so sorry to hear of the bartonellosis and MCAS. Hard to look on the bright side but I know that so many people don't get accurate diagnoses so at least we have that

  • @SidearaStClaire
    @SidearaStClaire 2 роки тому

    People have such a hard time understanding how much space in the brain discomfort and pain dominate until they experience it themselves, you're doing such an amazing job taking control over your illness and educating yourself and doing as much as you possibly can do, I'm so sorry that you guys experienced that :((( I love you I hope I get to see you at the reunion!!!!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      I'm so happy I got to see you at the reunion!! ❤️❤️❤️❤️❤️❤️❤️

  • @Boojerella
    @Boojerella 2 роки тому +1

    Oh Jake, this is the most touching, heart-felt video I’ve ever seen on UA-cam. Your strength and resilience oozes out of every pore. I think each and every one of your subscribers can relate on some level to the degree of hurt that you and your mom are feeling. I’m not sure there's a person with a prolonged chronic illness like we have, who hasn’t felt supremely judged by people who have no £#$& clue what it’s like. These are people who make the hair-trigger judgement that it’s all in our heads, without doing 30 seconds of research into what our conditions actually are. Or the fact that these are conditions that aren’t widely recognized by modern medicine. The inhuman degree of insensitivity is positively astounding. What Mama-Bear wouldn’t say “screw you” when someone says that about theirs daughter? She’s a heartless C U Next Tuesday and you and your mom are my heroes.
    My dream vacation day? I'm on a beach in Fiji, now pleasantly plump in my bathing suit. Spend the morning Snorkelling in the ocean, and I see a whale shark. Come to shore to dine on a wide variety of any food without a second thought or worrying about whether I’m binding Oxalates with my calcium. An hour of chit chat with Benedict Cumberbatch, then a long hike in nature on ache free joints with my husband. Dinner until I’m stuffed, then lying on a blanket, gazing up at the sky at a meteor shower.
    Wish we were able to wipe away each other's tears. It would be a full time job.
    💕 💕 💕

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Hahaha I'm glad strength and resilience is what is oozing out of my pores! Your vacation is wonderfully descriptive and perfect. I like how Benedict Cumberbatch came before your husband 😂😂

  • @imstillhere3753
    @imstillhere3753 2 роки тому

    I’m sorry that this is happening. ❤️
    You are such a brave sole. Please keep staying positive. ❤️

    • @imstillhere3753
      @imstillhere3753 2 роки тому

      I would do the aerial yoga and eat yummy cake and have some soda.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      That sounds like a good "vacation day" to me!! ❤️❤️

    • @imstillhere3753
      @imstillhere3753 2 роки тому

      @@BartonellaBabe it’s these simple things that would make my day. I can’t do any of them right now but in the future would rock. I would be happy with just the aerial yoga. People don’t get what we are going through. I don’t talk to my family because they think I’m crazy.

  • @Skiroy
    @Skiroy 2 роки тому

    I have dealt with this so much and learned to ignore anyone's advice but this is different with someone so close. But that is one person. You have thousands of people that love and appreciate you from what you are doing. You are a beacon of light and hope for the world and much much needed. I know its hard because you dont talk or know alot of the people you are touching on your channel but you really are.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Thank you so much for your very kind comment! 🙂

  • @deymode9209
    @deymode9209 2 роки тому +3

    Hey. I know what you are going through. I live in Poland. For about 4yrs Im strugguling with Lyme, babesia, myco, and the worst one bartonella. Bartonella ruined my mental health completely. From deep depression to big agression/fury or Shizophrenia like feeling, absurdal panic attacs. I spend over 1.5year laying in the bed unable to walk. No one from my family know what we were dealing with so they were very mean, how 24yrs old man have no energy to walk and have suicide thoughts. After tons of abx and other stuff I feel better now but still not very well. From what I went through I have deeply in my ass what people are thinking. My mind has completely changed and now Its like a rock. What matter is my parents and sister supporting me. Sending U power to keep fighting.
    We will conquer this bitch bartonella one day.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      I am so happy to hear that your sister and parents support you. That's so important and everybody else can go fuck themselves. You keep fighting too!

  • @suzyanderson8682
    @suzyanderson8682 2 роки тому

    You are extremely brave to go to reunion. I'm so sorry you are dealing with so many things. I'm 58, diagnosed 10 years ago with systemic mastocytosis. Chronic illness stinks. But you are just so young to deal with all of this, bless you, many prayers for healing 🙏

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +2

      I'm so glad I went to the reunion. I had a great time and everyone I spoke to was very understanding and very kind to me and had very nice things to say about my channel. I was expecting people to be kind but they were even kinder!!!

    • @suzyanderson8682
      @suzyanderson8682 2 роки тому

      @@BartonellaBabe that makes my heart happy 💗

  • @sandib3090
    @sandib3090 2 роки тому

    It’s so hard for people to understand what they do not live. My son has Bart and it is a lot.
    Your mom sounds like such an Angel. 💕

  • @ambulance_boy3834
    @ambulance_boy3834 2 роки тому +3

    People can be so stupid. I have cut off people like that. A lot of it comes from people meaning well but not understanding. It all comes down to compassion in the end. You don't need to fully understand it you just need to show sympathy which is sadly not that common anymore. I get what you are going through and I'm sorry you have to go through this. You are not alone. 💚

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Thank you! None of us are alone! Luckily, this has been our only experience really like this and everyone else has stayed by our side. I know that others cannot say that so I feel grateful

    • @ambulance_boy3834
      @ambulance_boy3834 2 роки тому +1

      @@BartonellaBabe I have had many bad experiences and have reacted exactly the same but after having it happen enough times you see what they say doesn't matter. If they don't care enough to try to understand and it's bothering you, you just cut them off. Let them be toxic to someone else XD.

  • @finngreenmusic518
    @finngreenmusic518 2 роки тому +3

    If people can’t listen and can’t understand how difficult it is to deal with all of the struggles and hardships that come with chronic illness, then you don’t need them in your life! F**k em! Hang in there, you are doing great and your channel is helping lots of people out :)
    (PS, my dream day off: breakfast of French toast and a cappuccino, a morning hike with friends, an afternoon swim followed by a couple hours making music in the studio and then closed out with a backyard BBQ/concert/jam with my friends where I can play guitar all night long!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +2

      yeah fuck them! and fuck Bartonella too! lol. Wow your fantasy vacation day was very detailed and sounds awesome and I want an invite

  • @bibonivine
    @bibonivine 2 роки тому

    Sending you love and blessings. I think you are hilarious and smart and hard working. I think its very brave that you are doing this. Sometimes when you describe what you are going through, it helps me make sense of my own experience. It lets me know that someone else on the planet is going through a similar experience and they are fighting and they are also helping others. I think you are a very strong and tough person and that someday we are all going to get better. You can do it champ! I can do it too! I have to try to believe that everyday. You are helping a lot of people and giving a voice to our suffering. Much love, respect and kudos. You are also very funny!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Thank you so much. I really appreciate this comment. I look forward to having my brain back so I can continue to make content

  • @adamhouse8465
    @adamhouse8465 2 роки тому +4

    Thats my dad.....basically tells me i need to have a positive attitude and everything is my fault because I'm negative and that ill never get better until I start "thinking positive", like its all in my head.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +2

      I'm so sorry to hear that. While of course the mind/brain is attached to the body (literally), having a good attitude doesn't cure these illnesses just like it wouldn't cure cancer or long COVID. I hope he changes his tune one day

    • @cheekyboy4467
      @cheekyboy4467 2 роки тому

      Sucks man especially when it's your parents it can get to you more than when the average chode from down the road says it, Stay strong in what you know man.

  • @marinasachse7136
    @marinasachse7136 2 роки тому

    Übersetzung wäre super ❤️❤️ wünsche dir trotz allem frohe Weihnachten 🎄

  • @samcollins8291
    @samcollins8291 2 роки тому

    My brain is bad, the The Encephalitis Society has a lot of information. Thanks for your help I have bought one of your t shirts to support you work. You have made a difference.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Aww thank you so much for ordering a t shirt!!! I really appreciate it. I will take a gander at the Encephalitis Society

  • @thomasbell6834
    @thomasbell6834 2 роки тому

    This broke my heart . Your mom is right-You are very courageous. Some people are incapable of empathy

  • @libertyqueenbee1473
    @libertyqueenbee1473 Рік тому

    Thank you for these videos. I wanted to ask if anyone has had experience taking A-Bart?

  • @gilliani.4328
    @gilliani.4328 2 роки тому

    SO sorry to hear this Jake. What a shitty situation. Bravo for you and for your mom!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Thank you!! And thank you for your other comment. You know which one 😉

  • @kaylabryson1932
    @kaylabryson1932 2 роки тому +1

    Vacation day … tempted to say sleep all day … I’m old and been sick/tired long time so…but NO! My day would be swimming in hot springs !! And eating and coffee and laughing with family, without any “pacing” my energy !! Just full on fun !

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      That sounds super fun and I highly endorse your vacation day and I hope you get that as soon as possible ❤️

    • @kaylabryson1932
      @kaylabryson1932 2 роки тому

      @@BartonellaBabe why thank you ! And back at ya!!

  • @mr.muffins1232
    @mr.muffins1232 2 роки тому

    I’m sorry you had to deal with that I just recently lost friends because they think I’m using my illness as an excuse to not leave my bed/chair

  • @Joan11ify
    @Joan11ify 2 роки тому

    I'm Mom to two girls ages 16 and 27, who have Bart and Babesia, and I have symptoms of the illnesses too, while still caring for them full time. I can relate to both you and to your dear Mom.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Awww thank you and I totally agree with everything you wrote. These people don't understand that in order to have wellness you have to focus on correcting the illness. I mean I can't believe I had to write such an inane sentence lol. I am so sorry to hear with what your fam is suffering with. Sending you strength!

  • @n961517
    @n961517 2 роки тому

    I am hearing that all the time. This is sad how less empathic and understanding people have

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Very sad. I'm sorry you're hearing that all the time ❤️

  • @Zero-Cool_
    @Zero-Cool_ 4 місяці тому +1

    RIP Bartonella Babe 😔 🙏

  • @deborahakey9308
    @deborahakey9308 7 місяців тому

    Don’t listen been thru this lost my friends family & Dr.’s Honey people think I’m crazy. I KNOW exactly. Can’t even remember if or when I take my meds. Such misery & suffering I GET IT TOTALLY 💯 I will pray for u. Sending much LOVE listen to your Mother ❤

  • @katharinamuller4907
    @katharinamuller4907 2 роки тому

    so feeling with you ❤️❤️ do you want to share what changed since taking antifungals? changes in sulfur intolerance? or too early to say?

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      I don't think the sulfur intolerance has gotten better but the brain fog and fatigue have. Even though that sounds like not a big improvement I will tell you why it is. The target dose for my econazole was 50 mg 2x a day. So 100 mg total a day. I started at LITERALLY 5 mg every other day and increased so slowly and now I am at 30 mg total a day and I had die off the entire way. So I am now at 12x the dose I started at. I will continue to go up on that, add more foods and nutrients, and then hopefully see more results with the sulfur intolerance, then treat the bartonellosis

    • @katharinamuller4907
      @katharinamuller4907 2 роки тому

      thany you so much for sharing, great progress seriously, I know how it can take a while ❤️🍀 sending love

  • @TheBestWeddingMusic
    @TheBestWeddingMusic 2 роки тому

    I am sorry you mom friends are not better friends. I have a problem. I took NAC and I can eat now only apples, cranberries and sour cherries. Do you know what other foods extreme sensitivity to sulfate/sulfur people can eat? How long does it takes for symptoms to lower down or for bacteria to decrease ? Thanks

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      I would look up a "low sulfur diet." Dr. Michael Ruscio and Dr. Heidi Turner have a list

  • @joannhellerman5993
    @joannhellerman5993 2 роки тому

    I cried with you today. :) In my book, you are a hero! I've learned so much from you and you make me smile. Hang in there, Sweetie! I found myself wanting to give your Mom's Unkind Friend, a piece of my mind, or a kick in the butt! And the Mom in me wanted to reach through my computer screen and give you a giant hug. I'm a Mom and Grandma (with a handful of chronic issues, including SIBO, Autoimmune issues, SIFO, hypothyroidism, and more.) I've been recently educating myself on Lyme. And what drew me to your You Tube Channel.
    Both of my two grown daughters, also have chronic issues. I find that the medical community, in my little world, are mostly unavailable time wise to answer my questions, do the tests, or willing to go the extra mile. I live in the land of HMO Doctors, who barely have 15 minutes to spend with you. I don't have deep pockets, so everything I have to buy, to try to get myself well, stings :(. The fight in me grows weary sometimes. Being sick for a long time, and having even your own Doctors unable to support you so you can find answers, can be so discouraging. Honestly, I don't thing they have the time to "be in the know". I, like you, have had to be my own advocate. I'm going to try to go to my first Naturopath this year so that I can get the medicine I need. I'm so excited. Silly, right? I have recently found some healing because I, like you, keep pressing on and have some fb communities where we are all learning together. I have a wonderful Nurse Practitioner at my GYN Office, who has been my lifeline, and helps me order blood work (that is allowed to ask for). I spend hours of researching, and trying stuff, just like you. I drive my hubby to boredom each time I'm enlightened :). Watching your You Tube Videos always inspire me to continue to keep trying different things. I'm cheering you on, as I cheer myself on :) ! I'm my own guinea pig! I'm sure you can relate. You should see my Supplement Boneyard. It is embarrassing! You kind of remind me of myself (I know I drive my Doctors cray cray.)
    We all need a cheerleader! Your Mom seems like a great one, and I can tell, is awesome sauce! You both rock!!! Thanks for your transparency, your hours of research, your sense of humor in the midst, and your tenacity. Your spunk gives those of us who live in a chronic illness world, the courage to fight. People don't understand chronic illness unless "one" has had "one's" own season. You are helping so many people! You go Girl! Thank you so much for sharing your journey. Said a little prayer for healing for you. Hope that you can have that "Vacation Day" soon...cheers to future, more than one, "Vacation Days". Hope your class reunion had (or will have) some wonderful memory making moments for you. Giant Hugs from internet land. joann

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      haha she definitely could use a kick in the butt from you! I am so sorry to hear of all of your struggles. And supplement boneyard!! I can totally relate to that. I could start my own black market supplement store. Thank you so much for your comment and keep up the good fight Joann

  • @ellat3568
    @ellat3568 2 роки тому

    One day all the things you are doing to recover WILL help you enough to get on the bartonella treatment. It's hard to believe it when things are this bad but it will happen and next thing you know you'll be eating and drinking whatever you want and you'll even be able to dance afterwards and do it all again the next day! You will. Thank you for these videos xx

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Aww thank you Ella. And you're right I will get back to Bartonella treatment. I'm climbing out of a hole and it's slow but I am going to get there

  • @HelensHoutBayHomes
    @HelensHoutBayHomes 2 роки тому +3

    It's heartbreaking I know. I have lost really close friends through y "complaining". I'm sure they think I originally for attention. You are so blessed to have your mom to support you. 💛 Take care.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Lol for "attention" what are we?!?!? Five years old!?!?! Good riddance! And thank you and I never, ever take my mom for granted

  • @SweetiePieTweety
    @SweetiePieTweety 2 роки тому

    I’m sorry this happened 💔 Every one of us who have these conditions and their loved ones experience this frustrating phenomena. They believe what they choose to believe and sadly you have to close the door . I’m so very thankful this was not your mom doing this . That’s me. Gaslighting narcissist denying your reality while refusing to actually do the research and accept the science. Invalidation destroys people and this “friend” is a destroyer . Be thankful her mask fully dropped so you can take this opportunity to walk away. They actually “get off” on making you feel emotional such as this, it feeds them, they then feel so powerful. Yes, “f” that Girl!!! I love your mom for validating you and providing the resources you have needed to get the care you need. Hugs Honey🥰 Her friend isn’t just “dumb” she is being mean. Trying not to die! Yes. It’s such a hard life . Every single minute is so hard. What beautiful words from your mom to “just trust her”. Devaluing your mom to know what is best for her own child. Don’t walk away from this person, RUN, slam the door shut, and write RIP over their name in a visual tombstone. Sadly, mine reads RIP Mom, Here lies Stupid🤷‍♀️

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      You're so right. She isn't just dumb and she is being mean. I knew she was being mean but until I read your comment I didn't realize how intentionally mean it was so thanks for that bit of insight. Sorry to hear about your own mom. That must be very hard

  • @jesswilliams8983
    @jesswilliams8983 Рік тому

    Do you have muscle twitches? For the last year and half I’m struggling with such scary symptoms

  • @jamesjustimbaste3579
    @jamesjustimbaste3579 4 місяці тому

    You are heaven sent Jake, please don't let other people tell you otherwise.

  • @lttl4316
    @lttl4316 2 роки тому

    I think i got this saying from you. You don't get it until you get it! So true! MANY are superficial and WILL NEVER GET IT!!! HAVE TO FEEL SORRY FOR THOSE TYPES!!! YOUR MOM IS GREAT, SO ARE YOU! KEEP DOING YOU AND PAY NO ATTENTION TO THOSES THAT SIDE TRACK YOU!!!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Yes! And I got that saying from the Lyme disease community but I think it applies to any chronic, debilitating illness. Thank you for your support ❤️❤️

  • @wolfmage
    @wolfmage 2 роки тому

    *hugs* 💕💕💕💕

  • @KPOZZ
    @KPOZZ 2 роки тому

    I love you Jake and I cried right along with you.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      ❤️❤️ it's just so hard. Let's keep our chins up and keep crying. Both are necessary

  • @AntiDoctor-cx2jd
    @AntiDoctor-cx2jd 5 місяців тому

    I sought an autism diagnosis and he told me I focus too much on my health too. I'm not sure what the alternative is, to not focus?

  • @LA-si5lx
    @LA-si5lx 2 роки тому

    I thank you so much i have the same Problems and no one unterstands me 🥺

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      I'm sorry. It can be very lonely sometimes but we definitely aren't alone. You should join our support group on Facebook if you haven't already ❤️

  • @sarahMuahahaha
    @sarahMuahahaha 5 місяців тому +1

    RIP... you'll be missed

  • @av9140
    @av9140 2 роки тому +1

    I have brain fog that is so bad causes disorienting like drunk feeling. Everything looks unfamiliar and I think it's yeast overgrowth from all these years of on a d off antibiotics use. I tried molybdenum 500 mcg from Douglas Labs and emptied the capsule out so there was literally 5 grains of moly in it a d it took the anxiety away. Next day I emptied the capsule almost all the way and took maybe 8 or 9 grains of moly and I felt so wired/anxiety and panic. My thighs felt hot and flushed and my neck suddenly felt tingly sensation. I felt so panicked and couldn't breath for a sec. Everything went into slow motion it seemed for a min or 2. My heart was pounding. I know molybdenum is the only thing used for removing amonnia/acetaldehyde from the brain/body from yeast(candida) overgrowth and toxic substances that caused brain fog. This was my last hope when it came to supplements and now I feel discouraged because everyone else gave good reviews and then this had to happen to me. The reason I emptied out most of the capsule was because I'm sensitive or have bad adverse reactions to most supplements. I learned to start extremely low even if people laugh and say it's ridiculous. Wanted to ask if you recalled what brand of molybdenum you used (I believe you said Douglas labs) and how many mcg you started at? Also did you experience anything like this while first starting molybdenum?? Are you still on antibiotics because that is what I believe caused most of the brain fog.Sorry for the lengthy post and questions. Do you know any other supplements that worked for you specifically? I refuse to go on antibiotics again and natural herbs seem to act more like a stimulant to me. Also useful to is if you take molybdenum you need to watch copper levels because kine were extremely low to begin with then moly removes copper from the body. Copper deficiency can cause anxiety, depression ,brain fog, anemic and iron deficiency and b12 deficiency , heart palpitations, cold hands and feet, nausea in case you didn't know hope this helps.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      There are actually other things to deal with ammonia if that's what you think is your problem. There is a fairly good article on it by Dr. Jockers here: drjockers.com/cbs-mutation-low-sulfur-diet/
      I use the mozyme forte kind. I had used another kind and I reacted to it and it didn't do anything. I started with 75 mcg with a meal.
      Staying extremely hydrated also helps me. Ammonia gets converted to urea, which is way less toxic of a substance

    • @av9140
      @av9140 Рік тому

      Sorry it took so long to reply. I also figured out having low copper cause immense brain fog. Yes copper, the mineral . I looked at my test results and realized how low it was when bk then it was a lot higher and no brain fog before. Please look into your copper levels. It wrecks havoc on brain fog. Copper is also used to keep our infections in check. Did u know that black mold can't grow in copper ? Go figure! I have a bad case of methane sibo I figured out myself. Worst brain fog ever plus recently through igenex was just diagnosed with lyme, barronella henselae, and rickettsia which is rocky mountain spotted fever. Only God knows how long I've had these nasty infections .

  • @questioningcat7949
    @questioningcat7949 2 роки тому

    My vacation dream is to ride A line at Whistler again, some day. I watch videos online to generate that super happy, exciting feeling, again. I am gonna watch some now. I am grateful for everything you do and share on ur Bart Journey. It has helped me and has meant more to me than you will ever know. You will get better. I will get better. Gratitude for ur strength and courage. Gratitude to those who love and support. 🙏

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      I love Whistler (for skiing). You're going to get back there again and you're going to let me know when you do! ❤️❤️

  • @sajhaeden8021
    @sajhaeden8021 2 місяці тому

    Illness in loved ones can cause loved ones to just want it to be over. I remember my ex saying "Just get well!" For decades starting at age 12, I got sick after a tick bite. In weeks all the symptoms of Bartonella and Lyme appeared including the rash and flu like illness. Everyone, including the doctor, thought I was nervous. He put me on tranquilizers at age twelve. It didn't help.

  • @pootuber
    @pootuber 5 місяців тому +1

    I was crying and then I was laughing and now I am crying again
    Why can't bartonella just ravage the evil people and not the fun ones, this girl suffered for so long, and I'm grateful she at least had the choice to call it quits when she did, but damnit anyway, she deserved to feel better than this, nobody should have to be that brave for that long, we had doctors doing tiktok dances for two years those oafs could have been studying something useful

  • @daniellenelson2433
    @daniellenelson2433 2 роки тому +1

    Hey Jake! Could we start some kind of advocacy group with all of us?? I'm so sick of this and when I tested positive through Stanford I thought I would get help...nope!! I'm disabled and had to quit my job bc I couldn't get treatment. Let's unite and make our voices heard!! I'm a medical advocate for people with mental illness, but now it is time for me to advocate for us!! My gastro doc just said "your gut is scratched up" and offered no solution. I mean....bartonella!! DUH!! I cand stand or walk and now I'm getting migraines with aura. Why will no one acknowledge my methane SIBO is caused by bartonella!! I'm so done.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Message me on Instagram or Facebook about this!

  • @jeroenputtemans979
    @jeroenputtemans979 2 роки тому

    Hi Nice to meet you! Got Bartonella aswell for 20 years untreated. Taking Marty Ross Llmd minocycline + rifampicine protocol and NAC for liver detox and pro biotic. I hope to be better shortly. I am new subscriber to your channel so as for now i tell you are very brave. Nobody believes in bartonella here aswell it's very disturbing.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Hi nice to meet you too! And thank you. We are all very brave each and every day

  • @susanfischer6155
    @susanfischer6155 2 роки тому

    As airier who has three young Adult children
    Of course your mom is enjoying you as her daughter
    You are Family !!!

  • @theWafer8
    @theWafer8 2 роки тому +1

    Yeah coz reading a novel and going out to meet friends will cure my acid reflux, fatigue and god knows what else I am suffering from. Just a quick question, have you tried the raw vegan diet or is it something you have to avoid with your type of illness?

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Bahaha yes if reading a novel and hanging out with friends fixed illnesses then nobody would ever be sick lol. She is dumb af. I can only eat 8 foods right now so I just have to stick to those but I am working on adding foods back in

  • @HF-id9wp
    @HF-id9wp 2 роки тому

    I'm sorry you are having to attend with this. Unless you have Lyme or a tick-borne infection you just don't understand. . I also have Lyme, babesia, and Bartonella. I also have the same issues with standing and walking. I hear you and appreciate all that you do!!! Big hugs. My fantasy... to go south with my daughter to walk on the beach with my ten-year-old collecting shells with no pain. The poor kid has had a sick mom her whole life and a dad (separated) with significant interpersonal skills and limited empathy. Thankfully, I have a supportive brother and a couple friends that have stuck it out with me. Hugs again

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      So glad to hear that you have a supportive brother and friends. That goes a long way. I hope your fantasy with your daughter comes sooner rather than later ❤️❤️

  • @ponomarevamary91
    @ponomarevamary91 2 роки тому

    Have you seen NB protocol? Curious what you think of it… Also biocidin and olivirex seems to work though quite expensive.. hope you feel better soon!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      The man who started the NB protocol has harassed me on multiple online platforms multiple times ongoing and that’s all I’m going to say about that man lol

    • @ponomarevamary91
      @ponomarevamary91 2 роки тому

      @@BartonellaBabe Sorry to hear you had this experience! :( My experience with him was that he seemed nice and helpful.. His idea in a nutshell is that ppl need to have a boost to the immune system though epigenetics to alleviate it. Found it interesting.. Seems to go hand in hand with other holistic protocols. Like heavy metal Melissa testing & detox with Toxin Pull or Medical Medium Heavy metal detox smoothies, food intolerances testing, immune boost and antivirals with herbs and supplements...

    • @ponomarevamary91
      @ponomarevamary91 2 роки тому

      Btw is Dr Rachel Fresco ( from of Biocidin ) interesting for you guys to collaborate / make a podcast together? Thanks for sharing your knowledge and experience! Pain will crumble one day and stronger you will come outside!!

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      If he wants people who are sick, which would include me, to holistically heal, he wouldn’t make several email accounts to send me multiple threatening messages after I asked him to stop emailing me. I asked him to stop emailing me because he commented calling me, and I quote, “obnoxious” and in an email called me a “psycho.” I have all the screenshots and emails for proof. It’s important to remember that just because you’ve had a good experience with someone, that doesn’t necessarily mean they are a good person

  • @sajhaeden8021
    @sajhaeden8021 11 місяців тому

    It took 45 years for me to be diagnosed with lyme, bartonella and babesia...longer to be treated. Bartonella is so hard to kill and the die off tries to kill me. I've beaten the lyme and babesia.

  • @yogabykate
    @yogabykate 2 роки тому

    Great fantasy ending to your video Jake! If I were healthy enough right now, I'd fly back to Croatia for vacation and swim in the crystal blue water, hang out with friends, maybe even have a few sips of local wine.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      Ooooh Croatia AND wine?!?! You go on with your bad self. I would love to go to Croatia one day

  • @chimeracleshappen
    @chimeracleshappen Рік тому

    🫂🫂🫂 My fantasy normal day I would drive home to Long Beach, scoop up my friends, and go dance to house music on the beach... then go eat at Roscoe's. That's it... that's all I want. I could happily keep pushing through this for another year if I just had that fantasy day. I've been fighting for my life since the end of October 2017.

  • @catashtrophe0
    @catashtrophe0 2 роки тому

    Hi Jake, this would be so hurtful, and betraying of your mums friend. I can empathise with you as my family is like this too, I’m not allow to say certain words like tired or unwell - it just goes to show their lack of empathy or effort to try and understand and It’s just hurtful. I’m so grateful for the time, effort and energy you’ve put into focusing on research and helping all of us even when you’re feeling super crap yourself. People are honestly so dumb, you shouldn’t need to explain yourself yet we end up doing it anyway lol. F them. Also i think we’re similar in the way that my high school reunion is soon (similar age?) and we’ve been sick for a similar amount of time. I understand the fear of judgement of how people view us being sick and how we view ourselves. Just know that I’m here if you ever need to chat from the other side of the world! Sorry for such a long message lol

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Hi Tash! I have been so overwhelmed with my illness (not in a good way) and so overwhelmed with all the comments and messages (in a good way) so sorry I haven't responded to your message yet. People were so kind to me at my HS reunion so I hope you get to go to yours (if you have one and you want to go of course). I can't believe you're not allowed to say tired or unwell in front of some of your family. Unbelievable!! That makes me so mad for you

  • @puppyteacow2748
    @puppyteacow2748 10 місяців тому

    you are so powerful

  • @heatherwright391
    @heatherwright391 2 роки тому +2

    I can hardly write this, I cry all the time now. You asked what we would do if given just one day back. I just want to go to the zoo with my family Vince and Tate, then me and Gabby, Jackelyn and Joey would all come to my house and eat pizza, yeah, pizza, something so simple that I will never be able to do again. And Joey died at the age of 33, while my illness progressed to the point of needing IV 24/7 in the hospital, so in my fantasy we would get him back too and I wouldn’t be so deteriorated that I fear I am not going to beat this. 😞

    • @cheekyboy4467
      @cheekyboy4467 2 роки тому +1

      Do you have someone or more than one person you can talk to about things to help ease the stress and worry with what you're dealing with?

    • @heatherwright391
      @heatherwright391 2 роки тому +1

      I have one sweet family member that tries his best to be there for me, but I seem to not be able to be helped. And enduring the death of a young family member while I struggle to stay alive is more than anyone should ever endure😞

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +2

      I'm so sorry to hear all that you're going through. Something as simple as pizza can mean so much to people with chronic illnesses. I of course don't know all that you're dealing with but I still am happy to hear that you are receiving treatment. I hope that you continue to do so and can climb out of this hole ❤️❤️❤️

    • @cheekyboy4467
      @cheekyboy4467 2 роки тому +2

      @@heatherwright391 @Heather Wright I know, Life can be pretty shitty like that, I've only had one family member pass so far so I'm fairly lucky in that aspect. With this chronic health crap it seems that way ie not being able to be helped, I sometimes worry that because it is one of those things that doesn't seem to get resolved that eventually I'll loose a person of support but it seems that the people I know are understanding of it to the degree that it's not something that just fixes overnight. I don't have anything super helpful to say to you, Just that having more than one person to talk to is always good and that there's this thing called 'Friendline' in Australia, It's a thing I volunteer for where I basically just have normal conversations with people who call up about anything, It's pretty chill and I wonder if a similar thing is in other countries as well, if there is it might give you another place to talk to someone about stuff, Regardless I hope something turns up for you and if you wanted someone else to talk to I'd be open to listening given it was at a time I'm free.

    • @heatherwright391
      @heatherwright391 2 роки тому +1

      Thank you, I live in the US and we don’t have anything like the Friendline you described. And thank you for offering to listen. The depression from chronic illness and pain is isolating😔

  • @MsJia33
    @MsJia33 2 роки тому

    💙

  • @stephiespicer
    @stephiespicer 2 роки тому

    Hugs

  • @kristenjohansson3084
    @kristenjohansson3084 2 роки тому

    ❤️

  • @pas_du_tout
    @pas_du_tout 10 місяців тому

    As someone with multiple chronic illnesses, I truly understand what you are going through. People can be so cruel. Fuck them. Honestly.

  • @johnbeegood2440
    @johnbeegood2440 9 місяців тому

    Try taking excess selenium, helps a lot with brain fog you should see almost immediate results. Cryptolepis, andrographis, skullcap, and turpentine finally helped me.

  • @user-qy2fl8og6x
    @user-qy2fl8og6x 4 місяці тому

    ❤❤❤

  • @Catweazle01
    @Catweazle01 2 роки тому

    💔

  • @timothyfranke2414
    @timothyfranke2414 2 роки тому

    You will prevail. Have you looked at any developmental or other traumas that can possibly resolved? It was really helpful in my journey. I am not fully healed but it was a spring board into progress. Sending Omnipotent Vibratory FORCE to you.

    • @gilliani.4328
      @gilliani.4328 2 роки тому

      Timothy Franke: Honestly I’d be surprised if Jake receives your question very well. It’s insulting. She’s SICK. I listened to people like you and spent thirty + years in therapy starting at age 14 because I was chronically ill. I still ended up in a wheelchair, severely sick, lost my speech and more.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому

      Thank you Timothy for your positivity and sending it my way. I'm glad to hear that looking into trauma helped you. Gillian commented below and is right that trauma does not play a role in my illness whatsoever and I am sensitive when people ask if trauma plays a role in my illness because it seems to imply that it does. That doesn't mean you were definitely implying that it does but I just wanted to be open and honest here. Hope you are having a good holiday season ❤️

    • @timothyfranke2414
      @timothyfranke2414 2 роки тому

      @@BartonellaBabe I would never want to insinuate that this is all in you head and nor would I suggest listening to some random guy on the web who follows your videos(me). I watch your videos because they are thoughtful and help me understand some areas I am unaware of(and you are pretty fun). With that said dont listen to me but look at the breadth of data, studies produced and mountains of peer reviewed literature on the subject, it unequivocally proves where the foundations of illness begin. Of course, no one should make generalizations on disease and chronic illness as it is super complex but the only reason I mention it is that we all have some trauma and some has impacted us more than others, the body keeps score. More importantly all the amazing men and woman I have met whom have shared there experience, strength and hope with em all revealed to me that the work they had done to untangling there old wiring was largely responsible for there full recovery and or progress made. Thats not to say stop doing the interventions that are presented to us but doing them in tandem. So I put this to the test myself, in disbelief, and was shown that it is immensely helpful. It potentiates all of the work we are doing on a day to day basis. I am certain a woman as thoughtful and aware as yourself somewhere down the line will have an opportunity to have these experiences reveal themeselves to you first hand and you will act on it. I believe fully you can and will heal. Many paths up the mountain but the trauma piece you may find to be an important one. If you are interested I can link you to studies and literature. Bless you and have the best Holiday you can. You rock!!!

  • @janet6909
    @janet6909 Рік тому

    I would go out with my partner and eat a fancy breakfast lunch and dinner with lots of desserts, get drunk and hug my friends and meet their babies :') Maybe one day. Rooting for you Jake

    • @BartonellaBabe
      @BartonellaBabe  Рік тому

      rooting for you too Janet! And that sounds like a lovely lovely day off

  • @dylanjordan31
    @dylanjordan31 2 роки тому

    I’ve lost so many people in the past few years. Try to remember that anyone that’s worth it will still be in your life. Your circle will continue to get smaller and smaller. That said, the ones still standing near you will make you realize how important those relationships are. You will get better. You just have to keep moving forward. Believe you are getting better:) Take time to breathe and relax. Set little goals and achieve them. I went from being on the toilet 18 hours a day to working a part time job. All through the pain and persistence. One thing that helped me was not constantly researching what was wrong all the time. Take time to enjoy a show or listen to music. Learn a language idk. Just get your mind off being sick every now and then. For me I have a crap ton of food sensitivities. So for me a fantasy would be to have a bacon burger with a butterscotch milkshake and then actually digest it hahahahah. The little things in life. I’ll pray for you. You will beat this. Keep your chin up and don’t stop smiling. Hard work and God make anything possible.

    • @BartonellaBabe
      @BartonellaBabe  2 роки тому +1

      I am so glad you were able to improve your health so dramatically. For me personally, however, researching is how I have saved my life over and over and I enjoy doing it for this channel. Bacon burger sounds amazing!! ❤️❤️

    • @dylanjordan31
      @dylanjordan31 2 роки тому

      @@BartonellaBabe well at the end you gotta do what’s right for you and your health and you know your body better than anyone. I pray for you a lot. You will get better.

    • @dylanjordan31
      @dylanjordan31 2 роки тому

      @@BartonellaBabe my friend goes “remember margaritas”, she has sibo too. I was like damn. How did I forget margaritas lol. Some day.