Is it a herx? MCAS? Side effect?!
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- Опубліковано 22 лис 2021
- I give you some great tools so that you can figure out what might be happening in your body and better cope between doctor's appointments.
✩ WAYS TO SUPPORT MY HARD WORK
I believe that everyone should have access to affordable, high-quality healthcare and I also believe that people should be compensated for their hard work. If you appreciate my hard work, research, and advocacy, you can also support me in the following ways:
→ PayPal: username @bartonellababe or search Jake Picker
→ Venmo: username Jake-Picker
✩ No one needs to support me in this way and please do not gift me if you are not in a position to do so!
→ SHOP MY MERCH HERE: bartonella-babe.creator-sprin...
→ SHOP MY JEWELRY HERE: www.etsy.com/shop/bartonellababe
✩ Thank you for supporting my hard work and my channel! See more ways to support my channel below.
✩ 25% of all MERCH proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. Link to donate directly to the Bartonella Project:
securelb.imodules.com/s/1209/...
Let's connect!
✩Instagram: @bartonella_babe
✩Facebook: bartonellababe
✩Inquiries: jakethebartonellababe@gmail.com
Videos referenced:
• Bartonella Treatment: ...
High-quality, peer-reviewed journal articles on bartonellosis:
1. Giladi, M., Maman, E., Paran, D., Bickels, J., Comaneshter, D., Avidor, B., ... & Wientroub, S. (2005). Cat‐scratch disease-associated arthropathy. Arthritis & Rheumatism, 52(11), 3611-3617.
2. Maman, E., Bickels, J., Ephros, M., Paran, D., Comaneshter, D., Metzkor-Cotter, E., ... & Giladi, M. (2007). Musculoskeletal manifestations of cat scratch disease. Clinical infectious diseases, 45(12), 1535-1540.
3. Maggi, R. G., Mozayeni, B. R., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Correa, M., & Breitschwerdt, E. B. (2012). Bartonella spp. bacteremia and rheumatic symptoms in patients from Lyme disease-endemic region. Emerging infectious diseases, 18(5), 783.
4. Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
5. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
6. Kalogeropoulos, C., Koumpoulis, I., Mentis, A., Pappa, C., Zafeiropoulos, P., & Aspiotis, M. (2011). Bartonella and intraocular inflammation: a series of cases and review of literature. Clinical Ophthalmology (Auckland, NZ), 5, 817.
JOIN our bartonellosis support group on Facebook called BREAKING DOWN BARTONELLA:
/ 1104493829902071
Understanding Bartonella Webinar with Dr. Mozayeni and Dr. Breitschwerdt: • Understanding Bartonel...
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Best diagnostic testing:
www.galaxydx.com/
Mast Cell Activation Resources:
www.mastattack.org/
/ mcas
#bartonella #bartonellosis #bartonellababe #jakepicker
✩ WAYS TO SUPPORT MY HARD WORK
I believe that everyone should have access to affordable, high-quality healthcare and I also believe that people should be compensated for their hard work. If you appreciate my hard work, research, and advocacy, you can also support me in the following ways:
→ PayPal: username @bartonellababe or search Jake Picker
→ Venmo: username Jake-Picker
✩ No one needs to support me in this way and please do not gift me if you are not in a position to do so!
→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
→ SHOP MY JEWELRY HERE: www.etsy.com/shop/bartonellababe
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all MERCH proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. Link to donate directly to the Bartonella Project:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
Let's connect!
✩Instagram: @bartonella_babe
✩Facebook: facebook.com/bartonellababe
✩Inquiries: jakethebartonellababe@gmail.com
Yes, hello from Canada I am going to purchase some merch. I don't have ability to read and write at will not even a cell phone for me, that is why your videos are such a life line.
Thank you so much! I’m running a sale from now until the end of the year so make sure to use the code DECEMBER20 for 20% off when you order. Thanks for your support ❤️ sending good vibes north your way
Interesting that you mentioned the veterinary hospital! My friend has two horses and they get bitten by bigs constantly and the hay is sometimes moldy. She is very careful and puts a cover on them to keep the bugs away and gives them an equivalent to flea and tick medicine like we do for dogs. We can learn a lot!
It seems impossible to get a doctor to think outside the box, so rather than let myself be labeled as neurotic or attention seeking, I will figure this horrible condition out by myself and with the help of people like you. Thanks.
As always, great coverage of The Suck in its infinite subtleties.
oh baffledwaffle!!! You are one of my favorite commenters. I do play favorites!
@@BartonellaBabe Your content is so valuable to meeeeeeeeeee
You're so funny! Really enjoyed this video. Also love the ones with your mum! Thank you so much for all you do for our community. I hope 2022 brings you better health. 🙏 Best wishes from the UK. 🇬🇧
Aww thank you Caroline! I hope 2022 brings all of us chronic illness people great healing
Great info! Amazing what you have done to help others with their journey! Praying for continued progress for your own healing
Never would have happened had you not posted all the resources you did in the other Bartonella group that shall not be named 😉 thank you friend ❤️❤️
🤗🥰 it only takes a spark!
so glad to hear the ezole is helping jake, such a good point. was really frustrated at my doctor when they kept telling me my nerve pain from dsf was a herx when i knew it wasnt!
Yeah and that’s a dangerous one to be wrong about!! 🤦♀️
Soo helpful! I get so annoyed with the everything is a herx claim. This gives me more clarity thank you.
Thank you Bartonella Babe and mom. There are few heroes in my life you both are already among of them. Thank you for standing up against this disease. Many years many doctors, many thanks to you.
Awww thank you so much Sam. This warmed our cold, icy hearts. I'm glad my videos have helped you and I couldn't have done any of them without my mom. We are going to beat this thing!
Thanks for the great video! I swear I’ve sung that exact song many times.
It’s such a good song!! I freaking love belting it
awesome info, thank you!
Thanks for watching and commenting!
Love your videos bro lol i have sibo and Candida right now gonna start a protocol soon scared shit less
Wow.. Thank You for great info❣️ Take care👋🏼☺️🇸🇪
Thank you and you too!
Great vid and cool editing.
😎
I evidently found the kaleidoscope button
Thank you for sharing.
Very informative video. thanks!! I'm feeling pretty helpless right now because I'm on heavy therapy with rifampicin and minocycline for the bartonella. My immune system is becoming more and more sensitive and is totally overreacting. I react directly within minutes of taking it with neurological symptoms (burning, twitching and tingling, i have NO skin or typical allergy symptoms) and also sometimes after probiotics or some food. Do you know why the mast cells go so haywire from taking antibiotics? It must have something to do with the pathogens then, why does MCAS occur/worsen so much especially with antibiotics? i have the same if treat to aggressively with antibacterial herbs.. I sometimes doubt the diagnosis with Bartonella, maybe the whole thing is due to the immune system and the ABX only makes me sicker and not better
thanks 🙏
❤️❤️
Does the econazole require a prescription and is it a cream or pill?
hi there! It requires a prescription and to be made at a compounding pharmacy since it is not typically prescribed orally
How do you go about getting a Doctor for MCAS? My LLMD said my IgE is really high, which is associated with MCAS. I relate to a lot of the symptoms. Cycles of food intolerance..sometimes only eating the same 2-4 foods everyday or just eating ice burg lettuce for a few days. Then allergies like Post-nasal drip, throat swelling, eye itching. Also just really bad digestive issues. I started trying OTC medications by myself to see what could work. So far, Clariten (Loratidine) has helped the most calm down all the symptoms in general. Nexium has helped the acid reflux. Probiotics actually helped digestion and even some of other symptoms. But, its like I'm super reactive to my environment. Any sudden change in temperature, or fabric, or food, just sets off this chain reaction of symptoms. Its not like a usually allergic reaction and a lot of the symptoms overlap with Bartonella//Lyme, but the way it comes on is very similar to allergic reaction. I can't be on my feet for more then 10-15 minutes because I get nauseous and everything else gets triggered. I have a good feeling this can be MCAS. I am going to tell my Doctor that it could be a good idea to get the MCAS under control before introducing anti-microbials. But, do you recommend getting an MCAS doctor? IF so, how do you go about doing that? I'm on Clariten, Nexium, Probiotics...I guess an MCAS doctor could recommend some Mast Cell stabilizers as well. But, I really appreciate you outlining how MCAS can be an obstacle to anti-microbial treatment. Also how not every reaction is a herx that needs to be pushed through. I've had that issue in the past, trying to explain that the reaction could be something else and wanting to stop taking the meds just to gain some clarity.
Hi Tapanga! I would recommend seeing an MCAS literate allergist/immunologist if you have a more moderate to severe presentation and that way they can offer you medicines (like Xolair) that other doctors cannot. For most people, however, their BLMD/LLMD can guide the treatment of MCAS if they have been reading up on it. They should know that Dr. Afrin says you can go up to 4 Claritin a day if tolerated and if needed. To find an MCAS literate doctor, I would join a couple of MCAS Facebook groups and ask for a rec near you
@@BartonellaBabe 4 Clariten? Wow. Thats good to know that there are those groups. I just sent my doc everything I’m dealing with and the OTC’s I’m taking or thinking of taking. I also asked him if I should address MCAS and related symptoms before starting an antimicrobial treatment. Honestly, I think its a good idea, its at least a valid concern. I really want to find a nasal decongestant, because Claritin helps all my genera allergy symptoms , but theres still some post-nasal issues left that are stubborn. Has Claritin worked for you? Thank you :))
I take Benadryl 6 times a day because that’s what works best for me. If you join an MCAS group on Facebook, you can see how people mix and match their antihistamines (some use 1 Claritin and 2 Allegra in a day, just an example) to work best for them. Takes experimenting and of course always ask your doc as I’m not a practitioner of any kind 🙂
You might have mold illness everything you describe is so similar to mold illness it's shocking. Biofilms and candida happen after living in mold. So many things are similar I would look into it.
New subscriber here!
My 35 year old son was just diagnosed with two types of Bartonella and Babesia. He started taking antibiotics 2 weeks ago, one at a time. Now he looks like death warmed over and has a blank stare. I’m scared!
We thought he was just a troubled kid all his life, but knew he had changed after he had meningoencephalitis at age 7 and later, a couple of severe TBIs around age 22. Then, he was living in mold at his father’s house, who procrastinated about getting the mold fixed, until partially, now.
That lowered his immune system and the diseases manifested.
When he attempted suicide in 10/20, he came to live with me and I noticed he had the same neurological and psychological problems as I had It took me a year and a half of taking him to get labs, blood work, etc. from an MD, who is a certified mold specialist to determine this. She had said all along that it sounded like Babesia because of the head pressure. It’s living hell!
Hi again Kathryn. I replied to your other comment but I will say it again here just to make sure you see it. You should join our support group called Breaking Down Bartonella on Facebook where you can more easily get support from our community. Make sure to answer all the questions and agree to the group rules to be admitted 🙂
@@BartonellaBabe Thank you! I saw this one first! He can’t believe he has a brain infection, although I’ve been telling him this for a year and a half. I thought it was mold toxicity, and he has that too, but he never looked up Bartonella because he’s scared. I told him there are lots of other people that have this, and there is probably a Facebook group in which he could talk about this. He’s going through herx right now, so he’s taking clay and charcoal and some expensive antihistamine to relieve the symptoms. Thank God there is a doctor here who is only a specialist in mold toxicity and rare infections. I found her when I had mold toxicity. Thank you for replying. He gets mean to me because he wants to go home to his dad’s Petrie dish and die. He lashes out at me although I take care of him all day. It’s so hurtful. Is this normal?
I very much appreciate your answering my comment! Much love and light! 💕💫
Are you abusing your vulnerable son?
@@rhondasketchbook2406 I HOPE you’re being sarcastic!
I’m 4’ 9”, and sick as a dog!
Omg there’s no room for a monkey! Or even a teeny parrot🦜 You really cut loose when your sidekick’s recovering from her 🦷. She’ll be so put out you swallowed up all her airtime😂
Btw the nerve pain. I still haven’t worked out whether I am an MCAS or a sulphur person. The burning nerve pain…yikes. Happens every time I eat sulphur. Any ideas?
Hmmm I guess I would say you can be an MCAS person and a sulfur sensitive person and that they feed into each other. I get burning nerve pain during a sulfur reaction and I think this is mast cell mediated because mast cell drugs help this symptom
StillJake, I live with the suck as, it's the daily norm. But I am confused, I thought "Herxing" was that thing that some women do with their adipose laden, corpulent, callipygian cabooses (Caboosi? Singular?). Anyway, yet another cogent post about disgusting bodily issues, but spiffed up as it has a StillSingingJake soundtrack. Add jazz hands, slap Cujo in a bedazzled tutu and take that show on the road. Happy (Regular Sucky Food) Thanksgiving. :)
TR Savage I never know what to say to you because my response will never be as clever or interesting as your original comment and I more often than not need a dictionary to fully decipher your comment so I will say BRAVO and leave it at that!!!
Miss you Jake.