NO VACATION FROM CYSTIC FIBROSIS (1.1.16)
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- Опубліковано 1 січ 2016
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not only is Mary strong and such a positive person, but Peter supports Mary every step of the way and does a lot for her! I bet this is hard for Peter to go through, watching Mary suffer some days, but their love and passion for eachother and staying positive is just amazing!
+Cara okay Yes, thank you for bringing up Peter's well being as well! He is so supportive and amazing... this is indeed hard for him too, but he is doing well. So thankful for his support and the support of you guys as well!
I let myself have a good rant/cry over my autoimmune disease every now and then. I always felt that a healthy release is necessary for me to remain positive 99% of the time. Some people might think it's me being pessimistic or "giving up", but I feel like I'm confronting the reality that chronic illness sucks, and it's not always going to be sunshine and rainbows.
I found your blog while watching videos about my own disease. I have stage 2 breast cancer. I know our battles are different, but you three inspire me. Oliver is SOOOOOO adorable! God Bless you all. Thanks for the vlogs
I just want to give all three of you a big hug ! Hope 2016 brings you health and happiness!!
Lol at Peter burping! "Peter!" "....excuse me..."
Mary so proud of you! Peter you too! I can't thank you enough for sharing your story with us!
Congrats on 15,000+ subscribers! So glad to see you had a better day, Mary.
so sweet. your love for eachother simply shines
I love watching you every day! I don't have CF but I have extremely severe asthma. I have spent a lot of time in the hospital and know how "fun" it is. You give me courage to keep fighting. Keep going and encouraging others !
Happy New year. I still think its so amazing that you have 15002 people and a puppy in your hospital room! Sending lots of hugs, prayers and well wishes!
So happy to see you feeling better.Have a good day😀
It is sooo nice seeing you look better today, you spirit is an inspiration even on days that you are not feeling well but today was so nice seeing you look happy and not in pain! Here's to no more headaches or fevers !
Great to see you looking so much brighter than yesterday and laughing of course. Congrats on the subs 👍🏻
I hope you feel better and better each day. The both of you make my heart smile. Thank you for the videos of your hospital stay. I look forward every day to watching you both and seeing the both of you enjoy each other. You both are traveling this road together and helping each other. That is so beautiful to watch. Take gentle care the both of you. 👍👍👍👍
In bed sick for the past couple of days missed my birthday on antibiotics but none of that even compares to what you have to go through and both of ye are still making the best of it your amazing!Peter's relaxing technique made me laugh today thanks guys!
I love watching your vlog everyday I look forward to a new video everyday. Mary you have such a positive view on life its inspired me to stay positive, I feel better everyday I watch your video, I have depression/anxiety and your positivism has help me so much. A few week ago I got a pneumonia and my asthma acted up again and not being able to breathe sucks, i"m better now but made me wonder how hard it must be for you everyday. Thank you for sharing a part of your life with us.
So great to see you feeling better, Mary! You just weren't yourself yesterday. I'm hoping you continue to feel as well as can be expected - at least well enough that you can laugh! Happy New Year!
I'm glad you are feeling a bit better.
Laugh at peter making silly faces behind Mary😅
I'm so glad you're feeling better than you were yesterday. Happy New Year to you guys!
I love your volgs so much!! Please keep doing them :)
These vlogs always lift me up! Much love to you guys! Happy New Year! :)
I'm so happy you're having a much better day, Mary!! Seeing this just made my day as I know things have been really, really rough for awhile. What a difference seeing you feeling way better, & Peter's expression spoke volumes!! He's such an awesome husband, and Ollie Boy is totally adorable!! I can't thank you guys enough for sharing your lives, love, faith, & encouragement. I battle a huge list of chronic illnesses, have undergone (and will continue to need) endless surgeries, and feel so incredibly blessed to have discovered your channel last spring. One of the best things to happen in 2015!! My apologies for not posting/writing to you guys sooner, but I am super shy & don't want to be a bother. Keep fighting, Mary. You've got this!! Love & Hugs- Brandy
+brandy bunker-cummings Hi Brandy! Thank you so much for saying hi and introducing yourself! i'm so happy to meet you! Thanks for being on this journey with us and for your encouragement! You hang in there with all you have to do to take care of yourself!
We haven't even started the vlog yet and the girls came over. Immediately Betsy goes, "That's MY Mary!" Hahahah. She loves you. Well we all do. Ok we have to watch.
+HiNoon Oh...my Betsy girl :)
hi...Mary good to see you smiling. When my depression hits hugging my Molly, Buddy or Lulu (fur babies) always seems to help. Love see you huggjng Olie. Keep smiling.
Yippiee Mary is feeling better!
Ollie is so adorable and Mary is so strong-Love Riana
+Riana Dunnivan Awe, thank you so much!
Your smile at the beginning and the song.... well, you made my entire world seem bright and happier today. Praising Jesus for the positive things.
Mary, though i hate to see you cry, i'm glad you did. It sounds like you had lots of emotions all bottled up inside.Sometimes crying make it all feel better. I have days where I just cry and i dont know why but i always feel better afterwards. Stay Strong xxx
Hope you can get out of the hospital soon Mary! Keep fighting, I'm praying for you guys
You guys are just tooooo cute!!!!!! Yep, we are one big happy family! :-) Ollie looks so comfy on your bed, he can hardly keep his eyes open. so cute!! and you guys are adorable in your "crib bed" , just too funny. I'm so happy you are feeing better Mary, my prayers are being answered. :-) Love and hugs to the 3 of you, see you tomorrow!
Mary- stay strong! I'm a fellow CFer
so glad you are feeling better. thanks for the vlog...tracy
I think that’s one of the hardest things of having a chronic illness/CF-you can’t ever go on vacation-from the symptoms/treatment/everything! My mum/family used to say if I could take it off you so you can have a break-I/we would-I know it’s a very sweet thought-but it doesn’t help me-it’s not reality, not possible or a positive place for my mind/thoughts to be-it’s unachievable-i like to focus on what I CAN do!-I think they have gotten the idea that I appreciate and am thankful of the thought (I often say thanks!), but for me, it’s good place to be, it makes me feel down, and so they don’t say it too often now. I’m thinking of you (even though I’m watching this in 2018!) and thinking of your courageous tenacity to live the best life you can with CF, when it’s impossible to escape it or run away when you desperately want to. You are amazing and incredible!! Sending lots of love and prayers your way!💜💜💜💜💜
Hey the Frey life ! I am 16 years old and I also have cf. I really enjoy your UA-cam videos! They keep me to stay positive throughout the day. Thank you for that. I just came out of the hospital Thursday (New Years eve) on iv antibiotics with my port. I watched your videos through my whole stay. Sorry your in hospital!
+Madison Wade Way to go taking care of your body the best that you can! keep up the good work! And now we can be IV buddies while we finish our IVs :) Hang in there!
Happy new year! Praying for you guys.
Love your Christmas blankets.
Hahaha "I think I will just take today off from having cf!" 😂 if only!!!!!! Praying for you Mary!!! Happy New year Frey life!!! Ollie is such a sweet service dog! :)
Now I'm really in disbelief! We have put the "sides up" and watched movies just like you! TOO CRAZY !! LYLMO XXXOOO
I love you guys so much!
Good job eating Mary!!
You're doing great, looking so much better too. Hope today is as good.
Those plastic mattresses are something else, right? Definitely promote sweating. Around my place, it was silent yesterday - even outside throughout the day I was struck by how quiet everything was. Definitely a nice change since I live in Chicago and it's normally loud. It's cold here and snow on the ground.
Keep up the hard work and take care of you.
I hope you feel better soon!
Mary you and Peter are such a perfect team but dam that C/F hope you can control it.
Peter is so sweet!👍❤😄
i love your videos and i hope you get out of the hospital soon love the 3 of you guys
So glad you are feeling better and sometimes a good cry does a body good! :)
Mary, I just had to laugh at the end of this video- I was laying in the exact same position while watching this video, so when I saw you laying the same way, it just cracked me up!
As person who suffers from a chronic illness, I was curious how you keep on top of medical bills. It is a constant stress for me and my husband. Love you Mary! you give me hope!
+K Hatch Iverson I am very thankful for insurance! Throughout our marriage we have learned we need to be frugal in most areas of life in order to save up for the medical costs- so that is what we continue to do. But yes, I now have a primary and secondary insurance, so it is very helpful.
+K Hatch Iverson Hang in there with all of the stress and with your health! I wish I could give some helpful advice :(
Mary, Peter, & Ollie, you inspire me! I have a chronic illness myself, but thankfully I have not ever needed to stay in the hospital for my condition and it's nothing like CF. I am praying for you all! Thank you so very much for sharing your life with us! You encourage me daily! :-) New subbie here. :-)
P.S. You guys encourage me to be grateful to God for the health that I DO have, and not wallow in the things I am unable to do. God bless you all!
+savedbygrace Hi there! Welcome to The Frey Life Family! So great to have you here to come on this crazy journey of life with us! I'm so glad we can all be here together and cheer each other on in whatever we are walking through! hang in there!
Now 267K subscribers! Such a happy corner of UA-cam!
Mary your so strong and posiitve love your channel
Ollie is so cute! New to your channel. Good job fighting Mary. God bless you! 👍🏻👌🏻❤
Found y'all last week or so while looking for "spoonie"/chronically ill vloggers. I don't have CF but I have Lupus and a bunch of other things. Glad I found y'all! Especially having Oliver. I'm getting my SD soon (hopefully!) so y'all are kind of everything I want to see in a vlog. Advice, SD stuff, laughing... it helps with being bedbound.
Anyway, I have a question, Mary. When Peter was napping you said you were watching vlogs and I'm curious... What channels do you usually like to watch?
love you guys and the vlogs: )
I'm glad your feeling better than yesterday. I hope those I.Vs help a bit. Give a cuddle to the lovely dog. I hope you don't have to stay too long and that the side effects lesson over time. Take care all three of you. God bless.
I totally understand how you feel, at times I'm just like ugh I want a vacation from my wheelchair but that can't happen haha. you inspire me so much ♡
Everythings fun with you guys, even hospital. Glad you had a better day and well done with your food. Can we see when Peter takes Ollie out sometime? It would be nice to see where he goes.
Happy new year!!!
Mary, I sleep like that too! I'll wake up in that position. Funny story, I've got paralysis in my left leg, and weakness in the other so I don't sleep walk but I do sleep sit. A few years ago I was in Missouri at a camp for kids/adults and I woke up sitting up and as I was tipping sideways off my bed onto the floor. I was fine, but it did take me awhile to get back into bed! (2am, and at home I have a hospital bed that I can lower to get up easier).
I'm happy u don't have a fever Mary. And I love Oliver he's adorable and I'm glad Peter is there to help u I love u guys and how are u feeling
positive vibes to you and your lovely family !! I love your vlogs. I am a nurse and it's amazing to see patients and their families full of love and joy (even on the harder days) :)
+hellokitty93ac Thanks for being a nurse and for taking care of people :) And Thanks for being a part of The Frey Life Family and being on this crazy journey of life with us!
It looks like you're feeling A LOT better :) Hopefully you won't be there too long.
Feel better mary
thumbs up for your incredible spirit and bravery. Kept checking today to see how it went. You inspire me. Take care Frey Family :)
You look so much better! I believe I have just fallen in love with all 3 of you💜💙🐾
+Molly Golding Awe :) i'm so glad we can all be a big happy family here!
you are so inspiring
I get bad headaches when my spasms are really bad like today . love your vids. There's no taking off from this foley catheter it's a 24/7 thing the spasms are never ending , the meds are never ending.
I found doubling up on the sheets and the pillowcases helps some with the plastic hospital mattresses and pillows.
I know what it's like to have a life long illness. No break! How long to you expect to be in the hospital?
Love the relaxation techniques! Ha. Good thing you didn't say goodbye earlier. Ok you have to spill, what video were you laughing so hard at??? Love the Sushi fortune too. Perfect for you guys. Ha. They should frame it for you.
So I found your vlog because I am getting a port (for my treatments for my MS) put in soon and stumbled on your accessing a port video. I have to say you guys are so sweet every video (even the sadder ones) give me at least one smile. Thank you!!! You guys are an inspiration! Can't wait for today's video!
+KrewelKind Hi! thanks so much for coming to be a part of the Frey Life Family! i hope your port placement goes well, and that you will soon enjoy the ease of a port!
+The Frey Life Thank you! Any tips for the placement? I know yours was a long time ago but any tips you recall would be appreciated! Have you ever had any issues with it?
Can you tell where mine is? I don't know if it's clear in the videos...its right under my skin...not deep in muscle or anything. I like my placement...other people like theirs deeper under fat or muscle. I personally wanted mine up higher on my chest so the nurses and such wouldn't have to be all up in my area if you know what I mean. Any more questions???
+The Frey Life Thank you so much for taking the time to reply to me! I am super nervous about getting it put in. Have you ever had any issues with it? Like infections or it not giving blood back?
Do you mind telling me a bit more about you? What you like to do in life, age range, male or female? I was a 15 year old girl when i got mine, and I was a MESS the day I got my port...I was scared, and it felt vulnerable...In the end, i cried, went to sleep, and woke up with my beautiful new port :) It probably took about 4 days or so for the soreness to go away...coughing and laughing hurt a bit, but not bad. I've never had an infection...i will say that i am a complete NUT when it comes to making sure my dressing stays sterile...etc.
And in the ten years I've had this port, it has failed to give blood maybe 3 times ;) not too bad!
all be going to the hospital soon for a clean out and ur so inspiring
I have only watched a few of your videos but I already love watching you guys. I also wish the hospital I work at had those options in the cafeteria. The one I work for is probably a lot smaller than the one your in though.
+Mariah Marks Hi There! Thanks for watching and becoming a part of The Frey Life Family!
Haha that's some interesting multitasking Peter
Happy new year
I dont have cf but i have ibs and your so brave your an inspiration to me when im in the hospital with stomach problems because you can be so happy and just brave in the hospital
You look pretty lady and I hope get well soon x
I swear I will learn to make fortune cookies! Laug?/! That is so NUTS. You have to be in our family somewhere. LYLMO XXXOOO
I sleep the exact same way! I suffer from a rare disease too. crps. basically my central/systematic nervous system is messed up and I'm in constant pain. I totally understand having a suppressed immune system. mine sucks too! sending a big hug that you feel better.
The countdown to release from the hospital begins ! Frey life family behind you !!! How long will you stay with a children's hospital until you go to adult hospital ?? Saw a sign at the mall today " live laugh and move every day !!" Thought of you mary !! Prayers and love .
Hey Mery how are u feeling omg i hope u get better soon
Hey . I can SEE That You are better i have laugh to day because somthing funny happend now m watching your vlog again .
You're looking amazing Mary! So glad to see your doing better! Happy New Year! I actually wanted to know if you guys had a P0 box to send mail to? :) no rush as I know you guys are having a busy time in the hospital! Praying for you! ❤️
+Jordyn Lauria Thanks for thinking of us and wanting to send us things. At this time we can't accept any mail, but when we are able, we will be sure to announce it :) Thanks again!
Thanks for letting me know! and of course ❤️ hope you start to feel better Mary! ☺️
Also congrats on 15,000 subscribers!! 🎉
hey mary and peter...glad your feeling better. i was just wondering since you are not allowed to leave your room without precautions and the nurses have isolation equipment on but peter seems to leave freely and come back and forth with no isolation gown or anything on. Does peter ever get sick and if he was he would have to leave the hospital right?? (or at least your room anyway)...thanks :)
Happy new year I'm am new hete but I am all ready loving you guys
Mary your hospital cooks stuff you like. I wish mine did!
I love see u feeling better and up smile again I hope u feel great again today. I call your dog a big teddy bear cause he so cute I just want to cuddle him up and kiss him.
I get told sometimes you just have to cry and let it all out (I’m uncomfortable with it personally-but I’m TOTALLY SUPPORTIVE of others needing to do it and being able to do it tho-go figure ; ) )-it’s something that I’m told I need to work on with having a chronic illness/disability and with things being horrible at times!
Glad your doing much better! I actually think hospital food is delicious lol
Yay peter😂👌
Woohoo for good days!
I sleep with my legs like that and I thought I was the only one! Hahahaha
+Lauren Lin Haha, that's funny! A few other people commented that they sleep like it too!
Hospital vlogs are my favorite. What was that funny youtube video called?
:D You sound and look great today, Mary - at least while you were filming.
Which antibiotic makes you feel prickly and itchy?? Because the same happens to me every time I get Vanco or Tobra
Oh my goodness!! I wake up ALL the time with my legs like that! Lol my hubby always thinks it's bizarre! :) not I know at least one other person does it too! :)
+gmakes3tabers me too ^_^
My husband sleeps the same way LOL
Haha I sleep like that sometimes too!
You 2 meatballs! I am so glad you're a little better. NO night sweats, ever, always dog, got it? Well, we are in CST and I didn't get to see the ball! First time in so many years I can't even try to remember! CRAZY. I really know about the food thing ,too. The idea of ordering sounds great until you have to do it! By the time you tell them everything, you could've done it yourself! lol Let's run away, I'll cook for you guys! I bake for others and get paid so I guess that makes me a pro.LOL I'd love to be able to bake for you! LYLMO XXXOOO
15,000 subscribers...hooray!
+Connie Tuccito YIPPEE!!!
The Frey Life 116,00 subscribers?! 😂