MYSTERY ALLERGIC REACTION! (3.11.17)
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- Опубліковано 11 бер 2017
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When you guys sing together - it is just magical.
So incredibly peaceful and beautiful!
Mary you & Peter have a gift for explaining CF & how things are. I have been an RN for over 30 years & knew very little about it & I feel you have given me so much information about the disease. You both are such a blessing to others & also your Ollie is so cute, love watching him. My sister has a dog named Rose who looks just like Ollie. Rose also has quite the personality.
i know you probably get this all the time but, thanks for making me and others happy! your vlogs make a great addition to my everyday life! xoxo
Mary, hearing you sing brings tears to my eyes. You have a beautiful heart of worship.
Just getting caught up on all the vlogs. I was in the hospital right before the meet up and got behind on the videos. (I had some massive mystery pain that I thought was kidney stones again but it wasn't and they couldn't figure it out. Specialist is working on it.). Still glad I pushed myself to go down and see you. Thank you again for everything that you share with us and teach us. I appreciate your authenticity as well as your positive attitudes! 🙂🙂
I love Peter on guitars singing with Mary! I used to love stringing my guitar and tuning it. 😍 Mary you are such an amazing lady and Peter is such a great husband. Ollie is so devoted to you. I just love you guys.
I'm new to your channel and just love the courage you have through tough health circumstances.
Sounds like plans are in place for your GJ tube Mary, my prayers are with you for a smooth and easy recovery. And Peter, my prayers are with you too, as you get over this rash you have. My love and hugs are with the 3 of you, see you tomorrow!
Im nearing the end of a 2 week hospital stay, during which I had my portacath fitted. I am so grateful to you for doing a couple o videos about ports, because that is how I stumbled across your channel, and have been binge watching you ever since! So much of what Mary says and experiences rings true with me as while I have a different condition, my life is also never ending coughing, struggling for breath, medication, nausea, and so on. I just want to say a huge thank you for your openness and honesty in your vlogs. and wish you all the best for upcoming surgery and the future, I will be watching daily for more news. God bless you both. xxx
Peter, I worked for a dermatologist and we saw several patients who had been on vacations and came home with a rash. If it was around the edge of a swim suit and at about the waterline in a hot tub, the Dr. would call it Hot Tub Dermatitis.
Wishing you the best outcome with your procedure this week. Hope Peter is feeling better.
I have a chronic illness that's not as serious as CF but I am often exhausted or in pain, and I have the opposite problem my meds are causing me to gain weight. Watching you really motivates me to work with my illness and pushing myself further. Keep being you Mary and Peter. Do what you think you can't do.
I'm sending prayers for the surgery that's coming up! I hope Peter gets better soon:)
it's always happening something in your lives. today it was Peter's allergic reaction. you guys are amazing! keep strong and keep fighting💕
It sounds like this move is really a great move for you - a shortcut to a lot of issues you've been dealing with. We are praying for you!
Can I just say...Peter is really good on guitar! He should play on-camera more often
Love you guys and will be praying for peace and coverage for your surgery
Mary and Peter, you two have beautiful singing voices!
Hi guys, I've watching your vlogs for quite short time, but being an older sister of a disabled girl I can imagine what difficulties has also your life together. But, as Good Lord is present constantly in our lives, we can live with Him in good and in not so good times. I love those little bits of happiness that you bring with your vlogs, and evenings here (I'm in Europe) with those videos are just like a new tradition for me. I hope that your treatment will be successful this time, Mary, and as I'm PT, I hope that everything together will work perfectly.
Stay strong, I'm sending positive energy to you, to Peter and to Ollie :)
Thanks for bringing a smile to my face everyday you guys!
What a beautiful duet.
Ily guys soooooooo much you're so inspiring💗💗💗💗💗💗💗💗💗
Beautiful guitar playing Peter!!! :)
Hey Mary👋🏻. Just wanted to say that since my partner had his feeding tube he has managed to gain weight xx being able to give his meds through the tube is also very helpful. He has MS and can't protect his airway when he swallows so this is a safer way for him to get meds and nutrition. Mark didn't have sedation-they just numbed his skin. I wish you all the best and sending prayers🙏🏻 xx 😘
We over-fished haddock to near extinction a short time back and although the species has begun to bounce back the amount of fish allowed to be taken is now restricted. There are a number of similar tasting fish that were introduced and sold as haddock in its place that we still use: pollock for one and another fish I can't recall off the top of my head. It might be worth calling the store to ask which fish was used in the chowder. Also, get the full list of ingredients while you're at it. Could be something else.
He also may be allergic to fish.I hope Peter feels better soon. You both are awesome.
Oh my God I can't believe that I'm that early! Love you guys
Best of luck with your procedure Mary. Peter I hope you will be okay, I'm worried about your allergy, once it stays as just a rash it's not to bad.
Love hearing you guys sing :)
Hope Peter is better. And Mary, glad to hear about the feeding tube. You seemed to get stronger when you had the g-j tube despite the pain.
Hope that Peters reaction is better in the AM ! God Bless y'all
Been praying for you Peter. Hope all is well. Often good to take Clarantyne or another antihistamine when these allergies occur. Loved it when you sang together - can see the love of Jesus in your faces. 🙏❤️
I am so happy for you that you An amazing trip to Florida. love your vlogs
I will also be put under on Thursday for some procedures. Rooting for you Mary!
I'll be thinking of and praying for you guys next week!!! I know it's a lot to process and all surgery is scary but I totally agree with you why this will be a very good option for you. question - will you still be able to eat normal food with the permanent tube or will you be forced to only use the tube for nourishment? I've seen a couple of videos of people with tubes and they can only be fed through the tube and no normal eating. I really know very little about feeding tubes so that's why I wanted to ask.
Praying for both of you. 💜
Prayed for you guys at the GJ update portion of the video. Will continue to pray for this whole thing.
I AM FINALLY EARLY HELLO 😂 I love your videos you guys make me smile every time I see your videos btw if anyone sees this I hope you are having a great day and if you aren't then I hope everything gets better 😊
When you started singing I freaked out, I ❤️❤️❤️❤️ that song and your singing!!
Oh no. Peter be careful. Allergies can develop any time. If you had an allergic reaction to Mahi Mahi before, you might be developing an overall seafood allergy.
If possible, I would try to get an allergy test. When I was little I started with an allergy to bananas, and as I age I become allergic to more and more. Now it's avocados, squash (save for pumpkin), melons, mango, etc. So be careful!
I hope all is well. Lots of love!
I'm so glad I watched this video. I got more of an understanding of what Mary is going through.
I had an NJ tube some weeks ago, placement was horrible, it kept curling up in my stomach.. so much respect for you!
I hope the permanent tube works for you!
I also have a hard decision to make to get a bowel surgery or not (would be the 7th) you are such an inspiration to me!
I don't know how you stay so positive! ❤Mary and Peter feel better soon!
Narda H 😘❤❤
Love watching y'all worship together. It makes my heart happy 😊
Lovely guitar playing, have you ever thought of playing some of your own music for the vlog? I think it would be really nice if one day the opening theme song was something you played on the guitar
when I saw the thumbnail I laughed and said "Peters nakey" 😂😂
Idk if it was just me,but I got emotional when Peter & Mary were singing praises to God,I am so happy that you are finally able to get a GJ tube!! I will continue to pray for you & Peter through this week!!
I'm so surprised I know the songs you guys were singing! Some of my favorites!
Mary, it's so true - feeding tubes can be a great help. Once it's placed, it can help with nutrition and hydration, which are such a great help. I have used mine for some medications at times, so that's really true - it can be used that way! When I've been in the hospital, it is generally my only source of nutrition, and sometimes here at home. It would be good to have it in place before your transplant, if there is a time when you might not be able to eat. Then you could still be getting fuel and water, which your body will need as you recover. As for Peter, I hope he is feeling better, and his allergic reaction resolved quickly! I hope he got enough rest so that he could still have a good morning at church today. Blessings and peace to you both.
Mary I'm praying that Thursday everything goes well during the surgery to place the feeding tube. Love you God Bless you.
After Peter said, "it looks like I'm naked" I'll be honest...I was hoping for a, "Peter!" But no lol
What's the tattoo on Peter's back, I noticed it when he was in the pool.
I bet Peter is allergic to the cold & snow!! LOL !! I prescribe another trip to sunny FL as soon as Mary is over her GJ surgery !! :)
Peter, I hope you feel better soon!!!!
what vertical band cd u guys like the most ??? i would like to get 1 thank u
I really enjoy watching all your vlogs
hope both feel better soon. hugs
I live in CT and tomorrow (3/14) we are suppose to get a Noreaster. I think we are suppose to get at least 18 inches. How much are you suppose to get?
Mary, my son had one! He had his surgery at JHH many years ago and it served its purpose and hes had it removed which was tough! I don't think I heard you mention how its getting placed (my son had a Mick-Y/ pig-tail tube) but I just want to say... watch that skin while you heal! That was the toughest and logest recovery!
I just started having the same type of welts pop up on my hands, feet, back and sides... but no where else... its weird and i havent eaten anything unusual
A friend just got back from Fla. and he also was covered in a rash like Peter's. The Dr. told him it was from a public hot tub or swimming pool. He was put on an antibiotic. His rash appeared after he returned also.
Would it be an for the spleen to be removed?
Hi Mary and Peter!!! I was wondering how you came across getting oli? did you get him trained after you got him or did you buy him trained? I need a service dog as well, and I don't know how to come about getting one
Kelly Beast they have a service dog q&a video which they link to in the description that might have what you want to know
Ceres the cerys thank you!!
Kelly Beast you can also train your own service dog if your health allows it. sometimes this is beneficial and financial a better way to go. got my pit/lab mix from a rescue, mico chip, he was already neutered, good health, shots, 4 months old as well as provide him with a forever home. he is still in training to accommodate my medical needs as they changes considerably in the last 16 months. this helps in my needs, wishing you good luck =) hope this provides you with another option.
Rae Holt I have a pup that I want to train, the only problem is that he doesn't have his shots yet and he has to get fixed (this will all happen within the next 5 weeks) and he is now randomly aggressive. I hope it's just that he has a bit of a sicky belly or something. he is a rot/shepherd mix, I personally don't think any one type of dog is mean and a killer so I don't think it's that, but I'm worried he may be a bad apple, he's only 2 months old. any tips??
Oli?
Do you use acrylic paint when you do your paintings? and maybe Peter came in contact idk Sometimes acrylic paint gives me a rash..
Mary what hospital are you going to for the GJ placement since it's not going to be at children's?
I love sitting here listening to you play and sing :)
Mary, is there anything doctors can do for a low platelet count?
You will be just fine Mary. God is watching over you and taking care of you, Peter, and Ollie Boy.
Dear Mary ... I'm sure you'll be fine !! Thank you so much for explaining .... Just wondering .. once you have your tube placed ... can you / are you also still allowed to eat my mouth .., or can you then only use the NJ ?? Nice to see that you're settled back into your lifes ... ( Goes quicker then you think eh ? ) I am SO thrilled that you were both able to take this trip of a lifetime to Florida !! No one can ever take that away from you guys ! And Mary .. I ALSO thought that the guitar sounded clearer after putting on the new strings .... ?? Love to all ... Herma XXX Also happy to see Olli back in his usual surroundings ... !!! X PS : Maybe some anti histamines are in order for Peter .. ? Helps against most allergies !!
Mary your voice is awesome sounds really good for a cystic fibrosis patient! ❤️😍👌👍
hi there im new to your channel, i think your videos are so lovely and your both absolutely amazing, my boyfriends little brother he has a gj feeding tube, i think thats what they call them, he had so much reflux with it however, they found a solution babys acid reflux formula mixed with his food formula ( hes 18 years old) i hope that helps as i know its a common side effect sometimes.. lots of love and well wishes! xx
I had a pretty serious allergic reaction a few years ago and ended up hospitalized for a couple days. My blood work indicated it was likely brought on by a viral or bacterial infection.
I know this was from yesterday and I hope it's gone but I'm praying for healing of your mystery reaction, Peter. As well as God's hands over Mary, her Surgeon, all medical staff for this upcoming procedure for the feeding tube placement.
Do you think Peter's reaction could be from the new guitar strings? People sometimes develop allergies to the nickel strings. You should google it and check the type the he used to restring. Its a long shot, but you never know.
That was my first thought, as it seemed a little late to be getting a reaction from something he ate in Florida
Fish is sometimes high in nickel also, which could have been the reason for the mahi mahi reaction.
That's an interesting theory!
hives are awful. hopefully they go away soon. mine took about a month, steriod shot and OTC meds.
OH, what is the book title on the side table? Praying like Paul?
I was meant to have a gastroscopy today but my blood pressure was too low for sedation and without sedation I freaked out so much I couldn't have it done. 😥 I've now probably got to have it under general anesthetic. I'm do bummed at myself for freaking out but I have panic disorder so can't control it. 😣
Good luck with your placement Mary! I hope you find the feeding tube useful.
I'm hoping for the best for your GJ placement, Mary.
Hope all is well. Yes anything that could possible be in a factory with whatever you are allergic to I avoid it I learned the hard way unfortunately. Hope you are well soon Peter and Mary you already know you are in our prayers especially for a G/N Tube all will be amazing. Have a blessed weekend what is left.. Hugs,coupon gal
Is there a reason they cannot remove your spleen if it so large? Just wondering
LOVE that song so much!!
hopefully this next step will help, Im watching in order so I will see how this worked
The links to vlogs of 1 year and 2 years ago are off. The same links are duplicated in tomorrow's vlog. (I noticed because I watched 2 in a row, and the thumbnails are the same)
I love you guys!!!
The guitar duet was amazing
Could the welts be from the pool you were in your last day?
Get well soon,Peter! Could you have an allergy to shellfish?? Happy Purim everyone xxxx
feel better
Have you tried meditation Mary? I sense you are worried! There's a lot coming up! You are in my prayers! Stay positive!!!😻
Mary could you do "I'll Fly Away" I feel like your voice would rock it
Would it be extremely painful if you go into a hard coughing spell before the incision is healed?
debra donley probably, yeah
My illness is no where near as bad as yours but it's still a daily struggle! I have Celaic Disease as well as terrible asthma, anemia and I'm also hypoglycemia.. my right lung isn't fully developed due to it collapsing when I was a very tiny baby so my asthma has done nothing but get worse but we've finally found inhalers that work! I have very thin blood and not a lot of it causing me to get light headed very often and just not feel to great! My blood sugar drops so I have to be very careful of that making sure I'm eating and I've recently been diagnosed with CD which means I can't eat gluten anymore. It's a challenge but I'm learning to deal with it. It's still so new to me and I'm still trying to figure out what I can and can't eat. Trying to find snacks to keep my blood sugar stable but making sure it doesn't have gluten! It's rough some days but I'm staying strong! I go see my GI dr in a couple months to make sure the gluten free diet is working and finding out what other autoimmune Disease my body is developing.
Hope Peter is doing ok, I think he may be allergic to Boston's snow j/k, - And It's so ok that today vlog was a normal day, not everyday can't be exciting with dolphins, alligators, snakes and animals ! :)~
ugh...Feel better Peter!!! xo
2:20 whats the name of that song?
Peter, I bet you have the "Disney Rash," Google it, it's legit! I get it when I go, I am not sure if it is Florida water or what, but I feel ya pain!
Yeah, but Disney Rash only affects your lower extremities. I know firsthand, I live fairly close to Disneyland and get the rash sometimes. It NEVER goes on your back, just your legs.
debra donley You're right. I live in Florida and every now and again I get that rash all over my legs. My husband gets it too, he has it right now actually.
+debra donley is correct. The nicknamed "Disney rash" comes from the strong florida sunlight reflecting back up off the pavement which unsuspecting tourists walk miles upon miles on with minimal leg coverings. It only affects the lower legs and will not cause the rash to appear under any areas covered by clothing.
Lived here since '75 and never heard of it. Interesting.
Aw poor Peter,u r the man
The reaction could be to shellfish or traces of shellfish in the chowder. Or have you used a new laundry detergent or fabric softener? My first ever allergy was to my Mum changing laundry detergent when I was about 8 years old. I would highly recommend you get allergy tested once per year. You can be allergy free for years, then suddenly develop allergies completely out of the blue. And you can get more & more allergies as time goes by or just have that one. They're so unpredictable. And make sure you never run out of allergy medication in the house like the Benadryl. If your throat ever starts itching from allergies, go straight to the nearest ER immediately! It may also be worth you considering regular allergy meds if you get another reaction to anything. The best one is Loratidine (UK generic name); it's non-drowsy, but very effective. I've been on permanent allergy meds for about 10 years now & thankfully I've got emergency meds to stop a flare up becoming full blown. I haven't had a full blown flare up for at least two years.
I will be praying for you on Thursday you day Friday ours here in. Australia. God bless
hope you feel better peter
hope peter is feeling better n you figure out what caused his reaction xx
go have peter tested for allergies if he hasn't done so already and maybe its claims because sometimes one can be allergic to shellfish i used to be allergic to shellfish before xoliar treatment that helped me to outgrow it. It could also be to the weather from florida maybe that caused it who knows. I hope this helps and thinking of you Mary and Peter in hopes all is well