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What it's like to have Tourette's - and how music gives me back control | Esha Alwani
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- Опубліковано 25 сер 2024
- Esha Alwani began writing songs when she was six years old, shortly after being diagnosed with Tourette syndrome. And she noticed something amazing: whenever she played music, her involuntary tics suddenly went away. Listen along as Alwani explores the power of music and delights the audience with an ethereal performance of her piano ballad "I'm Not Loving You (My Mask)."
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This is the kind of TEDS talks that I really enjoy. It's nice to hear someone eloquently tell people about their affliction. Tourette's being like the hiccups and living with that your whole life would be quite a challenge. At least her tics sounds like a cute woodland animal, lol. Her voice is amazing too! Hope to hear more from her in the future.
That might be one of the best compliments I've ever received :) !! Thank you for your kindness !
I hope.
She has a beautiful voice! Such a great singer!
True !!! ☺
Thank you!!
"It was the music that composed me" lovely :)
It is the truth :) !
What I'm more impressed with is the overwhelming amount of positive comments. Stay classy UA-cam.
I wish this brave young woman all the best
Wish her good luck !
Thank you! All the best to you too :)
@@xiaonandong383 Thank you!!
Wow, she can speak better than I can! Amazing countenance! A great example of succeeding in the face of adversary.
Adam Steeber see a speech therapy
Is she from america
@@user-mt5wh4wz2m No, I'm actually from India and Aruba ! :)
@@EshaAlwani Aha but ur accent like a native speaker
I liked it
Why would she not be able to speak eloquently? Tourettes is a neurological disorder, not a speech impediment.
This is why I subscribe. TED is a window to things we should know.
Beautiful.
Go TED!!
Really interesting to watch. I noticed she tics a lot more when she talks about her condition.
When she talks about how music has freed her, her tic frequency is remarkably reduced.
I can imagine she has practiced a lot, as freeing her from her incessant distress would have been a considerable motivator.
Innercynic I have Tourette’s, and when describing it to people or being made aware of it is when I tic most. That and when I feel anxious.
I can't help be feel it's to some extent exaggerated. Like, there were some key moments where she seemed to purposefully to it for emphasis. These were in contrast to other moments when it seemed to occur spontaneously. It doesn't take away from her message, but is interesting nonetheless.
kick1ass20 I can’t speak to her Tourette’s, but I’m inclined to say that she didn’t ever do it for emphasis, because the condition by nature is completely out of her control.
Yes! I believe that for most people with Tourette's talking about and listening to stories and explanations of the diagnosis make us more conscious of our tics and therefore result in them surfacing more often.
@@kick1ass20 She was definitely not ticcing "for emphasis", that is kind of rude to say tbh. Believe me, when people with tourettes tic, it is never played up or done for emphasis.
It's a spectrum, ticks go from cute little dolphin noises like this wonderful lady does to full on body spasms.
well, I think those weren't the original ones, but rather the ones left. She does tell of more serious spams and other physical ticks earlier in her life, so...
It goes further to the low side on tourettes, a lot of people with anxiety have basic tics like quick flicks of the fingers or eyes.
We can also have multiple tics some worse and probably come out when we are more stressed.
yea, sometimes I can't even remember having tics for a few days bc they were so miner, and then I can have a hour long tic attack that makes me exhausted and many times when I have tic attacks my whole body starts feeling like when you lay on your arm for too long, because my breathing tics can go on for a very long time so its like im hyperventilating and holding my breath. when I was little I had massive motor tics, then it was almost nothing for a few years, then it started again but not as much, then I started on adhd meds and I got breathing/ vocal tics and a lot of it.
@@pepsi5404 did u say ur tics got worse with ADHD meds? I’m sorry I’m new to this and trying to help my son. Meds are not helping and he’s getting it so bad where it’s constant.
her voice is SO beautiful!!
Thank youuu!
Holy cow. What an amazing speaker and artist. She's so well spoken and so talented. And I bet the world doesn't often see that because people would judge her for her tics. I really hope her music goes somewhere, I genuinely loved it.
Thank you so much! I'm fortunate that my musical career has been landing me some pretty cool gigs like opening for Alicia Keys-- and none of this would have happened if it weren't for my Tourette Syndrome. Amazing isn't it? If you're interested you can follow my journey on my Facebook : @eshamusic or on my website: eshaofficial.com
Love her strength & determination & how she has found a calming respite in creating beautiful music!
Thank you !
I have the utmost respect for this girl.
That means so much. Thank you.
❤️
I'm very proud and inspired by the fact that she was willing and able to come up there and talk about this issue and how she found a way to live though it. I can see she's very strong and confident despite her obstacles. Great job!!
Thank you! There's a stigma behind neurological disorders that needs to be erased. I hope I can help do that .
Esha Alwani! I must remember your name! You speak with such eloquence despite your tics! You should definitely have a career as a singer! What a beautiful and talented young lady you are! 👏🏻👏🏻👏🏻👏🏻👏🏻
Thank you for your sweet comment!! I'm currently on a musical journey and have released two albums (one more is in the works and will be ready soon). You can visit my website www.eshaofficial.com to see my journey if you're interested!
Billie Eilish also has tourette's and has been able to deal with it via her music. It is interesting that the treatment recommended for stuttering helps with this as well. Good luck!
It's amazing isn't it !? Thank you :)
I wish I could do a Ted talk on how martial arts saved me. I have Tbi and PTSD and was diagnosed with REM sleep disorder after being in matrial arts my mind and twitching improved. I can now remember movies I watch and books I read. I redid my study for Rem sleep disorder and it was negitive for all episodes.
Nothing and I mean NOTHING is stopping you Michael. We all need to voice our concerns as well as those of us out here that yearn to listen. I will be waiting to hear your story Michael.
Why not contact TED and ask what you would need to do to work up a talk? I'd be surprised if they didn't have resources or references to help people develop their presentations. Your story sounds like it would have wide interest and might provide some people in need with guidance.
@@thegreatquidam888 I just emailed them thanks for the advice.
@@michaeldelgadillo6510 I wish you the best of luck, and hope I get to see your presentation. It might take some time: these talks work in part because they're polished and at least decently produced. Don't get discouraged as you discover what it takes to put that together. Like the martial arts you're no doubt always striving to master further, or any other discipline for that matter, there's more to a presentation and video and audio production than is apparent to the uninitiated. Like any experience, the learning process is as much about oneself as about the subject, and it might even give you new perspective on the martial arts you love.
Good Luck Michael! It's amazing how activities such as music and the martial arts can change lives! I'm so happy you found something to turn to :)
Music helps so many in so many ways. The medical industry is looking closely at music and how the brain lights up on a scan in a musical environment.
Amazing! and super interesting as well
Why would anyone give her a thumbs down?? And 48 ppl at that, what is wrong with ppl. This was an awesome Ted Talk, and wow her voice brought me to tears, so beautiful!! Thank you for sharing!!
Thank you!!!
ESHA music You are more than welcome, you’ve got a new subscriber now btw 🥰🥰🥰
@@LaNikiOfficial Thanks again! haha :) I hope you enjoy !
Thank God for such a mother who helped her little girl deal with her disorder and become so likable and strong.
this song is so touching. So many people don't understand. Tourette's and our tics. They even go as far as to think it's our. Actual behaivior. When it's not. My first girlfriend broke up with me because of my tics. I thought i could trust her Oh well It's a huge win for me and I'm the same way music calms my tics down almost instantly. I love music. It's worked better than any medication I've taken and like she said about the medications she took. I also lost my ability to use my legs and was wheelchair bound. I never took any medications after that. people with Tourette's already can't control their bodies so why take something or drink something that stops the tics but takes away another part I love my tics and 🎶 they make me who i am.
She’s on SoundCloud!
That's awesome what's her name on soundcloud
You will find someone who loves you despite your tics!! And you're totally right...though, our tics should not define us. We should just accept them as part of us just like the color of our hair or eyes. I'm glad you liked the song! It's called "I'm not loving you (my mask)" and is available on all streaming platforms if you're interested !
@@EshaAlwani thank you. And that relationship was years ago. I'm fine now and love everything about me including my tics. You have an amazing voice
Tourette’s sucks. I have it, but it’s controlled. Several different tics. Unfortunately, it’s been getting worse. The worst one is a head shake, because I feel like I am doing damage to my brain. I really wish we could find a cure for this.
Welll there's always music ;)! I have a head shake tic too and I know how frustrating it can get. I hope you find something to help you soon.
It's really frustrating, when tics totally gain control on body, both physically and mentally as well...This girl has an amazing voice and music skills that made me fall in love❤️...
And being on medicines is like making your mind numb and dumb.....Those medications make major changes in behavior and personality as well...
Tourette syndrome runs in my family, and I have sub-clinical symptoms myself. To Esha and to anyone else who may only be beginning to come to grips with this condition, please know this: it is entirely within your grasp to lead a happy, productive life, pursue a professional career, and have deep and meaningful interpersonal relationships. Tourette's does not have to define you unless you allow it to. Esha, you seem to be a strong, confident, intelligent, and capable young woman. I have no doubt that you will go far in this world.
"Tourette's does not have to define you unless you allow it to." This is so important. Thank you for your kind words. They mean a lot to me.
What a coincidence !!! I have tourette's syndrome with similar tics and also I am considered as the best singer in my college . The only differences between me and her is , I play guitar and I haven't composed any piece of music myself yet .
The Lone Wolf keep going!
@@laurabarth1719 😊😊😊
Do it boi, make the most of your talents.
@@ducksauce2696 Sure !
@@mahmood7093 So, does singing, humming, whistling stop your tics ?
Never stop singing, Esha. Never. So beautiful.
Thank youu!
As someone with Tourette's: this is the kind of representation we need!
Music affect me in different ways. Rock music and it's energy often make it impossible to control myself in the moment but after listening I have better conrol. Such music as you played calms me and help me control myself in the moment but it has no effect on me afterwards.
But no matter what, music is fun.
I've struggled with Tourette's since I was a kid, and music was often the only way out for me too. Glad to know there are others like me out there. Beautiful voice and amazing talent!
@Flame Do whistling and humming work ?
I can't really whistle, but yes, humming works
Honestly, I'm glad there are people like me out there too :) We're in it together! I'm glad you found your way out. Thank you for your kindness.
The little tics she did were freaking adorable
hahah thanks!!
It was a great speech. I didn’t know much about Tourette’s but now I know. I really enjoyed her singing. Thank you!!
Thanks ! I'm glad you enjoyed!
Thank you for sharing your inspiring story. Music truly is powerful. There was another talk, a long time ago, about the health benefits of singing in a choir. A recent Swiss study even concluded that playing hip hop to maturing cheese made them taste better in the end. People just keep finding more and more good things about music and more uses for it, too. Maybe it's just the nature of all matter, all those vibrating little particles getting all excited when they are exposed to the right kind of sound vibrations. :)
Her words flow together so perfectly! What an amazing and confident woman!
Thank you i really appreciated this videoci also have touretts and well everyone around me are always letting me know how i always have music playing from early morning to late night and this young lady pretty much vetified what i assumed in my soul is my love for music and how it makes my tics subside amazing
I have Tourette’s, similar to what she described when she was young. Most of the time it’s a head jerk or a shoulder spasm. At one point, my shoulder tics got so bad that I couldn’t lift a gallon of milk because my arm was so sore and weak (like after a hard upper body workout). Medication for me just made it worse. Music definitely helped me control/suppress a lot of it. I got really into metal music, and played drums/guitar in a few bands. For anybody who is struggling with Tourette’s syndrome, find something you enjoy that allows you to tune out, and engage in that routinely. It can do wonders.
@SKIZ Do whistling and humming work ?
Jerome Potts I cant think of whether I ever did that, and if it made a difference. It might for some people. Who knows
That's what I always say: Find what you love and let it save you!! I'm glad you found your magic :)
Got tourettes syndrome, don't leave the house, I should do something like this
An Irish person you absolutely should
Listen, if people are going to judge you or look at you weird, they are naive and for the most part not stupid but unwilling to educate. I hope you get my point. You do you and let nobody make you feel uncomfortable
you absolutely should.....
i don't know whether you would find this information helpful or not but there is a Bollywood movie named "Hichki (2018)" in which the teacher have tourette's syndrom..... at one point this movie help us understand this syndrom and people dealing with it, on the other it shows how you can turn your different-ability into your strength.... watch it in your spare time...
Swearing all the time? Could just be the fact you're Irish, Bro! ;) lol
I have touretts too and art help me an I don't tic when I draw, maybe you should try it, it might work
Her music is beautiful and her voice angelic!
I'm so glad you like it! Thank you :)
You are a beautiful spirit and you will never know how many people you have encouraged with your TED talk. You also have a lovely voice and talent. Thank you so much!
this is AMAZING! as someone who has Tourettes myself, I am truly inspired and this hits close to my heart. such a great song, too!
She is perfect exactly as she is! Her music is beautiful
Thank you sooo much!
I admire people who can speak so well. I have PPA and I am losing my ability to communicate and I can't speak verbally that well now.
Great education story... Beautiful song and amazing voice! Thank u so much for sharing this with us.
Greetings from Brazil!
Thank you so much for watching and for leaving a comment!
Her story was touching. She has a strong spirit and a fantastic voice!
Music is a remedy to a lot of things... What a nice story she told us. Keep fighting !
Thank you!!
this is amazing ❤️ you have a wonderful voice both in singing and in speech
this is why i love ted talks- they show me the most amazing people
Ok, who cried when she started singing ...
I laughed.
Me. idk it just instantly reminded me of someone close who passed away.
@@sharp14x wow ur heartless
@SharpOB
Lol
ashima p I am. I am also someone who can spell.
She can really sing! Beautiful voice. She has her calling. I was hoping for another song from her!
Thank you! I actually have two albums out! They're available on all streaming platforms (spotify, apple music, google play) if you're interested: 'Beautiful' and 'Dangerous' are the two names.
Thank you. That was beautiful-both the speaking and the singing.
Thank YOU for watching and taking the time to leave a comment
What a gorgeous voice, beautiful piano, beautiful soul. Thank you for sharing your story. Amazing. Blessings and peace to you always.
This was suuuuuper encouraging! Wow!
I'm so glad you thought so!
ESHA music keep being a bright shining light, the world needs people like you!
Sound, therefore, vibration makes me think that the brain accepts it and passes it on to the body. Playing together like an orchestra
Researching this example would not be a bad idea in my opinion.
Respect for this lady and her perseverance in wanting to solve her problems herself .... no matter what.
Go you girl think positive and your solution will come!
[sorry for the bad grammar]
wow her voice is really soothing! the effect of music incredibly stop her hiccups and tics, good job girl you find the way to stop that sudden movement! keep it up!👍🏼
I thought I was a heartless person, then I watched this. Thanks.
Thank YOU for watching and for taking the time to drop a comment
What a beautiful voice you have. So pleased to hear that music has helped you. You're an inspiration to us all.❤️
Thank you ! Means so much to me
Beautiful person, beautiful message
thank you for sharing that! everything about it was beautiful
Thank YOU for your kind words.
Glad to see some publicity to dispel the misunderstanding of what Tourette's is, and what it's like to have it. It's not all swearing, not even close. And she's cool, too!😊👍
Well thank you!! I'm glad I was able to do so :)
For those of us who don't know much about Tourette's, where do you think the involuntary swearing myth comes from? And does it not happen at all, or just in some cases?
@@juliavanderkris5156 Depending on the study that symptom, coprolalia, is present in only around 2-5% of people with Tourette's, so quite rare. But because it's 'obvious and funny' for people who don't have Tourette's/coprolalia, it's pretty much the ONLY symptom shown in any media whatsoever. That's where the stereotype comes from.
@@juliavanderkris5156 The involuntary swearing is not a myth but is actually a real tic that a percentage of people with Tourette actually have. Like all tics it's caused by a misfiring of neurons (chemical signals) to the body. This tic surfaces some cases but not all cases. It's definitely real though!
You are brave, helping others, and beautiful.
Thank you!
Amazing and touching
She gives me hope
I used to have severe Tourette’s until I tried CBIT. Now I can fully control my tics. I know it doesn’t work for everyone, but I really recommend trying it, if you’re struggling with really bad tics!
@JOLT therapy for Tourette's
JOLT CBIT stands for Comprehensive Behavioral Intervention for Tics! Basically, you train your brain to reroute the tics so they don’t happen anymore. It’s a really fantastic therapy that truly changed my life. I highly recommend it for people who need to get their tics under control.
JOLT the cool thing is that it’s the opposite of repressing the tics. (I used to get hour long tic attacks when I would repress tics during high school... not fun.) CBIT reroutes the tics in such a way that they not only stop that tic, but they also enable you to stop other tics as well just by what your brain starts to do on its own. It’s pretty incredible.
Thank you so much for sharing your story with us!
I have tic disorder and my mom found this watch called doppel and it made my tics calm down by 90%
Wow I was not expecting this. Amazing.
Thank you so much
Well, I'll say that she is an amazing girl, I've seen many motivation videos but in this one, motivation is implied in the context I mean it's a secret and a really interesting perspective about how to restart working on a cure or treatment for these kind of syndromes which are even today a mystery for science as far as I've heard.
Thank you!
I felt the tics made it more beautiful and made it look more postive . Your voice was really emotional sis🙌💜
Wow that's amazing!
that’s just beautiful
She is adorable.
Thanks Esha! :)
Amazing!
I was never diagnosed with Tourette’s but I have tics.
They’ve gotten less severe over time but I have the eye rolling, neck cranking and squeaking. Some days are better than others but they can get quite annoying
I sympathize ! I hope you find a way to overcome them ! Maybe even through music :p
Such great public speaking skills and beautiful singing!
Many thanks !!
Beautiful voice! Loved the talk.
Thank you!!
Wow. Very impressive.
Makes me want to hold on
What a wonderful voice!
That was amazing
Playing music, or listening to instrumental music is the only thing that's helped me.
Brave girl , bless her heart
Beautiful....Bless You
you too!
I can stop my hiccups every time...I just relax my diaphragm, take long slow breaths and concentrate on the next hiccup. When I start feeling the next hiccup coming, I focus on slow, steady, deep breathing and somehow tell my diaphragm "just ignore it...don't do it"... I deny it from happening. Once the first hiccup is denied, the spasms stop. +++
It is nice to see some attention shown to my disease aside from the comic relief it is used for in tv and movies. Most do not realize tourette's can be deadly to those who suffer worst. RA, siezures, and many other things await us who get to love to the ripe old age of 45 to 50. And those start in the single digit ages j i st to get worse over time. Marijuana and something to concentrate on are the best helpers for us. But she is right, there is no treatment let alone a cure.
W🤩W what a voice. Thank you for sharing your condition.
You are awesome.
Simply beautiful 💜
I also have tics.. its very hard to deal with but I saw one of the comments saying when she talked about it, it got worse, and when she talked about the music it helped, that’s the same with me, idk why though.
Brave young women ,very pretty young lady , so strong.,maybe she will get notice and get a music career,Mel Telist didn't studer when he sang ,best of luck to you.
Thanks !!
As someone with Tourette’s, I would say it’s more like an itch than it is like hiccups. Hiccups are completely involuntary, and although it seems like Tourette’s is also completely involuntary, it’s more like an insatiable itch that has to be scratched. And to a certain extent, it can be delayed or suppressed with some mental effort.
Courageous girl here
Beautiful voice too 👍
Thank you and Thank you!! means alot
What a great song ❤️✨
Thanks ! The song is called "I'm not loving you (my mask)" and is available on all streaming platforms if you're interested !
Wonderful young lady!
Beautiful in every sense of the word ❤️
Very great
Oh god she true alot she has a beautiful voices .🎼❤️🎤👍🏻
Thank you, Thank you, Thank you!! :)
Gosh, this speech and the song at the end...
Thank you
She is beautiful girl and amazing singer
Wow, who knew music could do that.. great song and singing.. great kid.
Bless you...
Really brilliant girl
thank you!
It appears that focusing on another activity overrides Tourettes's symptoms. While Esha was speaking, she had symptoms only between thoughts - her symptoms never interrupted her speech mid-word. Playing music while singing would, unlike speech, cause uninterrupted focus and thus no Tourette's symptoms.
100% right! While music has a scientific and long term effect on our brains and neurological symptoms, virtually any focus-based activity could have the power to temporarily relive a person of their tics!