I love how you said Judd noticed you looked uncomfortable in your sleep and gave you pain meds without even waking you up. He really loves you so much.
10:06 - "Wife of the Year award goes to Jacquie!" - makes dinner for her husband because he is working late, and even leaves instructions on the cookie sheet. Step 5 - Enjoy, with a little heart. 1:04 - "Husband of the Year award goes to Judd!" - Sees his wife is in pain, and gives her pain medication without waking her. It is nice to see all the little ways you think of each other. As much as Judd is a "caretaker" for you, you are still a "caretaker" for him. Love!
I saw you at the hospital when I was there for the week visiting my grandpa. I didn't go up to you because you looked tired and I didn't want to disturb you. I was so excited to see you and I was so happy that you were still well.
WOW Jaquie, you just reached 50,000 followers not too long ago and are now at 70,000! That is FANTASTIC!!! I am praying for you that you will be able to switch out your feeding tube on Friday. I am so glad to see that you are doing so much better!!
Thank you for inspiring me to stop complaining, and be more happy with my life, because many people like you who have chronic illness deal with much more and yet you are still so positive! Also, you know so much about your health, doctors, insurance, hospitals, medical conditions that you can be a physician yourself!
Early squad here, thank you for the vlog jaquie, I am a disabled veteran with chronic pain and injuries and I find your attitude and life inspirational
I love that you're not ashamed to use the tools at your disposal to help you. A lot of people seem to think that using any support that they don't absolutely have to is a sign of weakness or laziness. I think a lot of people with chronic physical and/or mental illness could learn a lot from you, me included. You show that you don't have to fight everything alone, and you don't have to be desperate to deserve help. Your dog, your walker, the motorised cart, are all things someone might argue you could "live" without, but what's the point of living if you spend your whole time exhausted and in pain trying to keep on top of everything. I think people forget that it's not just about surviving, quality of life is just as important, if not more so.
Jaquie, you are so amazing and inspirational! I am so glad that your channel is gaining and you are spreading the word about invisible illnesses (and service dogs, of course!). Harlow has inspired me to pursue a service dog for my own disabilities, and I think I am getting a golden puppy! Please pray for me with this training. It will be long and hard, but I am going to pursue it because you have done it despite your own pain! Keep moving forward, Jaquie.
I love how positive you are about all of this. My health has taken a hit recently, and I've been feeling so depressed about what I can and can't do. I'm going to start advocating harder for management of my symptoms and getting accessibility help. Never lose your positivity!
Hey Jaquie I just wanted to say that you motivated me to self advocate for accommodations at my workplace! It was rough at the start but they finally approved my accommodations!!!! I'm super excited and they said everything should start by tomorrow... I hope :). Thank you so much for continuing on your adventure and helping me and so many others!
I could see it in your eyes today, how much better you were feeling! That motorized scooter really boosted your ability to accomplish your goals today. I'm so happy you were able to have a day that wasn't as bad as it has been! Also praying for the day that all your meds can be taken through your feeding tube or port! Sending love to you all!
I got my port placed today. Thank you for educating me about it! I was able to bring it up to my doctor and she thought it was a great tool for me with my POTS and Gastroparesis. Also, we might have to do TPN and so it was a good idea. I had been doing IVs 3 times a week and it destroyed my veins. My GP is severe so I haven't been able to eat in weeks or keep much fluid down. I have dropped 40lbs since last week of may. So Thank you! Your vlogs has let me know some options out there and how to advocate for myself.
I understand the challenges of narcotics. I have a lot of Chronic Pain after going through treatment for a stage 4 cancer. I was placed on high dose long acting fentanyl and have been on it for over a decade. Because of the GI problems narcotics can cause,( I also have GP and GERD) I started seeing a Pain Management Specialist Specialist about a year ago and have been able to find other more effective stratigies to manage the pain. I now have a Spinal Cord Stimulator that blocks pain from occurring in the first place. They also have been able to manage my pain sufficiently enough that I have been able to reduce the amount of narcotics which helps my body better metabolize food and other meds. Jackie. I highly recommend consulting with a Pain Management Specialist. I honestly do believe they will be able to help you. I'm glad to see you are continuing to recoup from the hospital stay and I do hope you can get the jtube changed tomorrow. Take care.
Chronically Jaquie you could try out the pick up shopping that some stores have. You send them what you want and they will go grab it then when you show up you have everything you need already.
I'm pretty new here but have really enjoyed your videos so far. I started watching your videos because I am currently studying a degree in canine behaviour and training and wish to train dogs for people that have a chronic illness, disability or poor mental health. The bond between you and Harlow is so strong it's amazing to see. I also love that you are so positive about life even though you have had so many set backs. You and your family are amazing!
I admire your positivity through the many things you deal with. Keeping your mind clear is difficult (fog) when dealing with medical doctors & doing research so big kudos to managing it all! So glad your mom is there & was relieved to hear you have a nurse coming in weekly as well. 👍🏼
I'm so glad you're starting to feel better, Jaquie! I had some tests done on Monday and was diagnosed with Gastroparesis, Gastritis, an Esophageal ulcer, and the beginning stages of Diverticulitis. She also reconfirmed my diagnoses of IBS and GERD. I'm glad to finally have answers as to why I'm so nauseous all the time but also a little upset to add this to my very long list of other chronic illnesses. I know God's in control and with me through it all, I'm just having a hard time accepting things right now. Any prayers would be greatly appreciated.
I know that torn feeling: happy for answers but frustrated for more struggles. In my experience, answers are always more beneficial than harmful in the end. Praying and best of luck!
Jaquie,, I've been in pain management for about 8 years & it's been a wonderful experience for me. It's nice to go to one place that knows all about everything that is going on with me! I'm so glad you're doing better and btw, the leggings that you have on at the end of the video are the same ones I'm wearing today! We both have good taste in leggings!
That makes sense on the reason you don't take narcotics. I get prescribed them for my chronic pain, but don't take them often due to the side effects. Plus I don't like the fact of feeling a lack of control. Glad to see you're doing better!! 💜💜💜
Chronically Jaquie Hi Jaquie, I live with chronic pain from cervical and lumbar stenosis. I do not take narcotics either., they upset my stomach and I sleep all day. So I rely on 800mg Iburprofin. I still have pain but not as pronounced. Thank you for all you share with us. 👍🏻😊
First off, I'm not going through anything as difficult/painful as what you're going through. I'm not trying to compare my pain to yours in any way. Secondly, I want to say that this is the first time I'm going through something that requires treatment/physical therapy/multitudes of appointments, and your videos help me through it. Harlow makes me smile and you make me stronger. I love your outlook and dedication to getting/feeling better. It's something I need to see and you're providing it. Thank you for making these videos. You and your family are so beautiful!
Amazing attitude. I have chronic pain and understand about waking up and know if it's s good day or a rough day. Most chronic pain patients are like you. We try to put on a smile and not bring others down when we actually feel miserable. God bless you and your support group.
i watch you vlogs everyday. your why i started. you have helped me so so much on such a personal emotional level with all my chronic illness. and im so thankfull. im so much happier because of your advice and your insperation. thank you so much for vlogging your days :) i hope your gi appointment went well girl :)
Thank you so much for sharing your story and your positivity. It impacts my life in so many ways! Thank you so much for providing a positive environment I can escape to when my chronic anxiety keeps me locked away from everyone ♥️💜
it really opens my eyes on how lazy i am, like im perfectly healthy and i feel i take so much advantage from it. With you being how you are, and still taking care of your house and harlow and i cant even motivate myself to get up to clean my room. It really makes me what to change how i do everything and how i motivate myself
Mackenzie Robbins Good for you Mackenzie. Recognizing that you need to change something in your life is half the battle. I have several debilitating chronic health problems including chronic pain and fatigue. I truly wish I had a healthy body and could take care of my home in the way I want and need to. If it were only that simple for me. You have that ability.... please use it. The next time you clean your room, think of me. Maybe some positive energy will help both of us!! Cheers. Sas
I'm not even chronically ill, but I still really enjoy watching your videos! You're so inspiring! Despite all your illnesses you still have a positive attitude and keep fighting! I just love that! You're amazing! ❤️ Also is it just me or is Harlows backpack tilted on the left side? Sorry if not, just thought I saw it!
I've got chronic pain due to several illnesses and gastroperesis and I have a pump in me that runs a steady infusion of pain meds straight into my spinal fluid. This way the dose is one one hundredth what an oral dose would be so I don't get the bad side effects. Granted what works for me won't work for everyone but there are days I have breakthrough pain too. Glad to see your looking so much better today. Hugs!
Hi Jaquie! I have a question for you...what are your thoughts/opinions on the use of medical marijuana for chronic pain and other conditions? I know this can be a controversial topic, but I'm curious if you've ever considered it yourself and what your views are on alternative forms of pain management. I love watching your videos because your positivity is contagious and your "keep moving forward" attitude has inspired me to keep moving forward with my own health issues. Thanks for doing what you do! 😀
I'm with Judd on the leftover chicken...pretty much leftover anything actually, I have ARFID (avoidant/restrictive food intake disorder) and I'm autistic, and the texture changes are usually too much. Your reason for not taking narcotics makes sense to me. I wonder if that's why I don't react well to them, I have gastroparesis, too.
I understand what you are going through. I have MS which is a auto immune disorder that effects the central nervous system. I have exposed nerves all through my brain and spine which case me to have all kind of symtoms.
Absolutely; I have EDS (Type 3) and severe gastroparesis too. I started on opiate painklillers around 6 years ago, at which point I had a JEJ tube but could still eat and drink a very small amount; not long after that I lost the ability to digest completely. It may have happened anyway or it could be due to the opiates. I still take morphine and fentanyl because I cannot leave my bed without but it's definitely something to be aware of: Even in individuals without gastroparesis, opiate painkillers slow gastric emptying but a lot of medical professionals don't know this unfortunately
Chronically Jaquie Unfortunately in terms of gastroparesis knowledge and care, the UK are a long way behind the US; most doctors have never even heard of it which is why it took me, and many like me, almost 4 years to get a diagnosis and only then because I was a 70lb wreck. However, many charities are working tirelessly to raise awareness and fund research which will hopefully in the future provide better care and management options. Thank you so much for sharing your life in these videos, I really admire your motivation; it's a quality I wish I had more of. Have a lovely weekend
Ziggys Piggies That really is surprising! The pain management doctors here in the U.S. (well, of the ones I have seen....all two of them....lol) are aware of this and, luckily, they have a tool available to them for this particular complication. The medication (not that any of us actually want yet another Rx to add to our existing seemingly mountainous pile of medications but, still, please bear with me) is called Relistor (aka Methylnaltrexone) and, oh happy day, it's an injectible! I suck at explaining exactly how stuff works without going on and on, ad nauseam. So, to spare you, I borrowed this little snippet from MNT (Medical News Today), which coincidentally, is based out of the UK. If nothing else, it can't hurt to ask your doctor about it, right? Anyway, I hope this helps and good luck to you, sweetie! "Methylnaltrexone (available as Relistor(R)) helps restore bowel function in patients who have advanced illness and receive opioids for pain relief. Methylnaltrexone is delivered via subcutaneous injection and specifically targets opioid-induced constipation. When given alongside opioid therapy, it is designed to displace the opioid from binding to peripheral receptors in the gut, decreasing the opioid's constipating effects and inducing laxation. Methylnaltrexone is a peripherally acting mu-opioid receptor antagonist that decreases the constipating effects of opioid pain medications in the gastrointestinal tract without diminishing their ability to relieve pain."
Jennifer Jones You my dear, are an absolute legend! I cannot thank you enough for sharing this. I'm going to email my consultant right away. Thank you so much! X
Hi Jaquie. I wish I never started taking narcotics. I have a slow metabolism so now I struggle with constipation. When I take medicine for that I end up messing up my clothes and bedding. I'm glad you are feeling better. I'm praying that you are able to get your new feeding tube on Friday. God bless you and your family. (and that includes Harlow the most awesome dog on UA-cam!)🐶😊💟
ive "lucked out" with having my mmj and kratom do alot of the pain management i need. i still have to take dilaudid daily, but its much less since ive been on the kratom. really excited to see how kratom develops in the medical community the next few years since so many chronic patients are using it now. just yet...another suggestion from another zeeb
I don't take narcotics for my chronic pain because of my GP too. I do the same with heat and rest, but at the abilities expo I came across this e-stim unit with a built in tens unit. It's called HEALTH MATE FOREVER, I tried it while I was there and it worked great. They have a bunch of diff sizes/prices.. you should look into it! Sending love from Chicago
You really did so well, expecially since you've been in the hospital, plus cleaning !!! Harlow is such a good girl. Your mom is cute!! She's a star!! Hope your feeling better. Take it easy and rest gorgeous gurl!!!
I guess I'm lucky I can do narcotics for my pain management. Between the Crohns and fybro it would be unmanageable. It was sooo nice to see you and your mom going out and about.
I have Fibromialga. I can only use Tylenol. I am to sensitive to narcotics. And lots of other drugs. It really does not help my pain. Which is constant. But I feel better personally knowing I can not become addicted to medication. Which I know could happen to me. I love your videos and seeing Harllow really males me happy c:
I'm happy for you are you doing so well your such an inspiration even though I'm 50 your such a strong woman and smart soft hugs to you God bless you and family
Hi Jaquie, I love your videos, despite your chronic illness you have so much power, which is inspiring! (I hope that's appropriate to say) . At 10:11 : I don't really like the taste of leftover chicken either ;-) greetings to Judd
Hey Jacquie! Hope you're feeling as well as you can. I'm glad you explain about why you can't take narcotics and you don't put others down. I have to q 6 hrs for my chronic pain. I'm so glad you have alternative ways to work around your pain. I do hope you are able to see a specialist! Please be thinking about me... I am scheduled to see a Rheumatologist in Jan for possible autoimmune issues. 😔 I know it sucks having so many things wrong, but I love how you always explain your issues and are always so supportive of others. And thank you for sharing your life. That is a blessing for us, to know we aren't alone and to learn as well! 😊
I'm on norco 5 and have been for 5 years now . My pain mgmt and gi want me off it since I have gastroparisis and ibs and I've been in the er three times this week for extreme cramping and pain . I saw my gi yesterday and he told me to use marijuana to help with my pain and nausea and to use my connections to get what I can. I'm in Ohio so we have another year (sept 2018) til he can write a script for it
After around 7 months of horrible back pain(constantly levels 6-8) and being told nothing is wrong a new pain management doctor just thought to have me do a genetic test for ehlers-danlos syndrome since my joints pop a lot. I'm a bit nervous because I love hiking and I'm terrified of the risk of pain getting worse and not being able to do it.
If you’ve had back pain for a long time and nothing has worked, I highly recommend reading "Healing Back Pain" by Dr. John Sarno. It has saved thousands of people from chronic back pain. Your pain is real and there is hope.
Hi Jaquie, my name is Lauren, I'm glad you're feeling better but i have a question for you. I'm in my teens and I am having problems with my sleep I have thalassemia minor, Asthma, and juvenile arthritis i don't know if those play any part in my struggle to sleep. I took little quizzes from the London sleep center and got positives for narcolepsy, insomnia, and sleep apnea. I don't know what to do I told my parents but they just looked at each other and made a weird look. Glad you feeling better. Bye
Hi Jaquie :) My aunt has a walker and i push her home in it when she is too tired to walk, it is a bit difficult but it works. And it hasn't fallen over ones, so don't worry :)
I love you guys and Jacquie you are so inspirational and beautiful and I look up to you for being able to keep on moving forward and I thank you because you helped me see life in a whole different way and can you tell Judd and your mom I said hi and I love you guys forever and always
I have a g/j tube and had to have it switched out for a longer one and it was painful even with the existing stoma. Hopefully yours will go more smoothly, but I wanted to alert you to that possibility.
Omg I love those super soft leggings too lol. I just bought three pairs and they're just like lularow or however u spell it, except like one fifth of the price
I have Sphincter of Oddi Dysfunction, so Narcotics are out for me too, as they cause that duct to flare, causing horrendous pain. Praying for your recovery!
Narcotics make me nauseated 🤢 so I can't take them either. If I need something more than my max ibprophen then I take a stronger NSAID. I have had to use them a couple times for after surgery but after about 2 days I get so sick that I can't tolerate it anymore.
That makes 100% sense as to why you can't take narcotics for pain relief. For me, right now it's the only option I really have. I can't take NSAID's bc of my UC; it can cause worsening of symptoms that include bad internal bleeding, but the side effect of the narcotics that is bad for you is great for me! 👍 Just as you say, everyone is different. I don't have EDS, but I have RA and Inflammatory Peripheral Arthritis that goes with my UC. I wish I could take NSAID's; a lot of my pain stems from inflammation. When I was in hospital with aseptic viral meningitis, the only tool they had to bring my fever down was acetaminophen, which they monitored almost as much as the IV diludad I was on for pain. The fever was so horrible, I would have mugged someone for a Motrin, I swear.
Talon Sage I have gastroparisis and ibs and fibromyalgia myself plus 4 herniated discs. I've been on norco for 5 years now and it's just not helping as much . I saw my gi yesterday after three visits to the er in one week. He told me he wants me off the norco because it's slowing down everything but told me to use my connections to get marijuana to help with my pain and nausea . It's still another year (sept 2018) here in Ohio til medical is legalized so I just have to wait . I've been doing edibles for a few months (April) when I had my gallbladder taken out and it's helped a lot. A friend of mine on fb grows and sells it so I'll be using him more often . He made me a batch of brownies yesterday and they are hella soft and loaded with canna butter lol . Im not normally a brownie person but hey if it helps why not
Háłłïē B Dr Fantastic (my ob/gyn) wanted to know a few years ago why I wasn't on medical marijuana. (I'm in Michigan so it's possible but expensive.) I'm still not, but I had leftover cookies from a party once (my first time with edibles and I was stoned for a day and a half...which Dr Awesome found hilarious ( that's my GI)...because I had too many cookies at the party. Now, my being stoned consists of not being able to do more than one thing at a time. My first time, I discovered that I could either drive OR listen to my Harry Potter book on tape. I couldn't do both. (I should have just stayed the night at my aunts; it had been a bachelorette party for one of my cousins, but I didn't and learned in the process.) I discovered with the leftover cookies from the first time I had edibles, that they REALLY helped with my invisible migraine symptoms. I've not had a migraine medication work for me without making me sick or adversely affecting my blood pressure. And narcotics are TERRIBLE for migraines; they cause rebound headaches, and are worse for cluster headaches. I think sometime in the near future I'll make the switch to medical marijuana, but in the current political climate, it makes me leary, to say the least.
Hi Jaquie, hope you are feeling better, you are going through the same thing that I am now I've had stomach surgery in June I have severe GP and my stomach was completely paralyzed then I had another surgery to get a J tube I have to be on it 24/7 for now I'm having a lot of pain fromit since July they are talking about if they take it out and I still cannot keep food down they are going to have to start iv stuff and do TPN also. Ugh. But I found you're videos about 2 months ago and love watching them they are so helpful and it's not just me that is foing thru this. Hope u are feeling better and having a good day 🙂💚💚💚we are warriors
those leggings on that end cap you looked at are sooooo soft.half hour ago I just picked up 2 pares.i have A.S arthritis and chronic pain and soft leggings are so comphy
I love how you said Judd noticed you looked uncomfortable in your sleep and gave you pain meds without even waking you up. He really loves you so much.
10:06 - "Wife of the Year award goes to Jacquie!" - makes dinner for her husband because he is working late, and even leaves instructions on the cookie sheet.
Step 5 - Enjoy, with a little heart.
1:04 - "Husband of the Year award goes to Judd!" - Sees his wife is in pain, and gives her pain medication without waking her.
It is nice to see all the little ways you think of each other. As much as Judd is a "caretaker" for you, you are still a "caretaker" for him. Love!
Awe thank you for recognizing that! We both do all we can to help each other out
I saw you at the hospital when I was there for the week visiting my grandpa. I didn't go up to you because you looked tired and I didn't want to disturb you. I was so excited to see you and I was so happy that you were still well.
Awe thank you for recognizing I was not feeling well, I appreciate that and hope your grandpa is doing well
WOW Jaquie, you just reached 50,000 followers not too long ago and are now at 70,000! That is FANTASTIC!!! I am praying for you that you will be able to switch out your feeding tube on Friday. I am so glad to see that you are doing so much better!!
Thank you for inspiring me to stop complaining, and be more happy with my life, because many people like you who have chronic illness deal with much more and yet you are still so positive! Also, you know so much about your health, doctors, insurance, hospitals, medical conditions that you can be a physician yourself!
Early squad here, thank you for the vlog jaquie, I am a disabled veteran with chronic pain and injuries and I find your attitude and life inspirational
I love that you're not ashamed to use the tools at your disposal to help you. A lot of people seem to think that using any support that they don't absolutely have to is a sign of weakness or laziness. I think a lot of people with chronic physical and/or mental illness could learn a lot from you, me included. You show that you don't have to fight everything alone, and you don't have to be desperate to deserve help. Your dog, your walker, the motorised cart, are all things someone might argue you could "live" without, but what's the point of living if you spend your whole time exhausted and in pain trying to keep on top of everything. I think people forget that it's not just about surviving, quality of life is just as important, if not more so.
I totally agree! The goal is to improve quality of life, and these tools help me reach that goal. (:
Jaquie, you are so amazing and inspirational! I am so glad that your channel is gaining and you are spreading the word about invisible illnesses (and service dogs, of course!). Harlow has inspired me to pursue a service dog for my own disabilities, and I think I am getting a golden puppy! Please pray for me with this training. It will be long and hard, but I am going to pursue it because you have done it despite your own pain! Keep moving forward, Jaquie.
I use the same walker! Everytime you sit in it, I'm thinking, "Girl! Put your brakes on!!" I remember you saying your PT said the same thing.
Lol I need to work on that!
I love how positive you are about all of this. My health has taken a hit recently, and I've been feeling so depressed about what I can and can't do. I'm going to start advocating harder for management of my symptoms and getting accessibility help. Never lose your positivity!
Hey Jaquie I just wanted to say that you motivated me to self advocate for accommodations at my workplace! It was rough at the start but they finally approved my accommodations!!!! I'm super excited and they said everything should start by tomorrow... I hope :). Thank you so much for continuing on your adventure and helping me and so many others!
That is great! I am sure things will be much better for you, good job!
As soon as you hit the clothing section, I said out loud, "LEGGING TIME!" 😂
I could see it in your eyes today, how much better you were feeling! That motorized scooter really boosted your ability to accomplish your goals today. I'm so happy you were able to have a day that wasn't as bad as it has been! Also praying for the day that all your meds can be taken through your feeding tube or port! Sending love to you all!
I got my port placed today. Thank you for educating me about it! I was able to bring it up to my doctor and she thought it was a great tool for me with my POTS and Gastroparesis. Also, we might have to do TPN and so it was a good idea. I had been doing IVs 3 times a week and it destroyed my veins. My GP is severe so I haven't been able to eat in weeks or keep much fluid down. I have dropped 40lbs since last week of may. So Thank you! Your vlogs has let me know some options out there and how to advocate for myself.
I am glad you have this new tool!
I love how she says in one video I have enough leggings, no more. Next video goes straight for leggings 😂❤
grace.l.c 😂 little bit of "normal" ❤️
Salute Dem I have to say just from your comment alone you are admitting that she isn't normal but exceptional.
A chronic babe can never have too many leggings 😂😂💁🏼
Jesus people get rattled so easily. It was teasing joke. Take a chill pill. They even put a heart, so it was in an endearing tone.
I understand the challenges of narcotics. I have a lot of Chronic Pain after going through treatment for a stage 4 cancer. I was placed on high dose long acting fentanyl and have been on it for over a decade. Because of the GI problems narcotics can cause,( I also have GP and GERD) I started seeing a Pain Management Specialist Specialist about a year ago and have been able to find other more effective stratigies to manage the pain. I now have a Spinal Cord Stimulator that blocks pain from occurring in the first place. They also have been able to manage my pain sufficiently enough that I have been able to reduce the amount of narcotics which helps my body better metabolize food and other meds. Jackie. I highly recommend consulting with a Pain Management Specialist. I honestly do believe they will be able to help you. I'm glad to see you are continuing to recoup from the hospital stay and I do hope you can get the jtube changed tomorrow. Take care.
If you call ahead to Walmart and tell them that you need a motorized cart they normally will try and put one aside for you.
That is a good idea (:
Chronically Jaquie you could try out the pick up shopping that some stores have. You send them what you want and they will go grab it then when you show up you have everything you need already.
I'm pretty new here but have really enjoyed your videos so far. I started watching your videos because I am currently studying a degree in canine behaviour and training and wish to train dogs for people that have a chronic illness, disability or poor mental health. The bond between you and Harlow is so strong it's amazing to see. I also love that you are so positive about life even though you have had so many set backs. You and your family are amazing!
We are really happy to have you join us on our adventures!
I'm keeping you in my prayers Jaquie . Take care and stay strong.
I admire your positivity through the many things you deal with. Keeping your mind clear is difficult (fog) when dealing with medical doctors & doing research so big kudos to managing it all! So glad your mom is there & was relieved to hear you have a nurse coming in weekly as well. 👍🏼
When Harlow walks she shakes her butt its so CUTEEE
Watching you being so positive helps me be positive though my severe depression and anxiety
I'm so glad you're starting to feel better, Jaquie! I had some tests done on Monday and was diagnosed with Gastroparesis, Gastritis, an Esophageal ulcer, and the beginning stages of Diverticulitis. She also reconfirmed my diagnoses of IBS and GERD. I'm glad to finally have answers as to why I'm so nauseous all the time but also a little upset to add this to my very long list of other chronic illnesses. I know God's in control and with me through it all, I'm just having a hard time accepting things right now. Any prayers would be greatly appreciated.
I know that torn feeling: happy for answers but frustrated for more struggles. In my experience, answers are always more beneficial than harmful in the end. Praying and best of luck!
It's so cool that you are always so positive!
Hi Jackie (Jaquie's mom)! It's so nice to see you shopping together. That's a great idea to put the cooking instructions on the tray for Judd.
Thank you for your daily vlogs, Jaquie! I say a prayer for you and your family every night. Thanks for being you!
It sounds like you are really getting back on your feet! Glad to see you conquering all your tasks, and praying you can get your GJ button! 💖😁
Jaquie,, I've been in pain management for about 8 years & it's been a wonderful experience for me. It's nice to go to one place that knows all about everything that is going on with me! I'm so glad you're doing better and btw, the leggings that you have on at the end of the video are the same ones I'm wearing today! We both have good taste in leggings!
That makes sense on the reason you don't take narcotics. I get prescribed them for my chronic pain, but don't take them often due to the side effects. Plus I don't like the fact of feeling a lack of control. Glad to see you're doing better!! 💜💜💜
Thanks for saying it makes sense. I find people tell me I am either addicted (lol, don't even take them), or I love pain because I do not take them.
lol anytime :D
Chronically Jaquie Hi Jaquie, I live with chronic pain from cervical and lumbar stenosis. I do not take narcotics either., they upset my stomach and I sleep all day.
So I rely on 800mg Iburprofin. I still have pain but not as pronounced. Thank you for all you share with us. 👍🏻😊
First off, I'm not going through anything as difficult/painful as what you're going through. I'm not trying to compare my pain to yours in any way. Secondly, I want to say that this is the first time I'm going through something that requires treatment/physical therapy/multitudes of appointments, and your videos help me through it. Harlow makes me smile and you make me stronger. I love your outlook and dedication to getting/feeling better. It's something I need to see and you're providing it. Thank you for making these videos. You and your family are so beautiful!
Amazing attitude. I have chronic pain and understand about waking up and know if it's s good day or a rough day. Most chronic pain patients are like you. We try to put on a smile and not bring others down when we actually feel miserable. God bless you and your support group.
I'm so happy you're feeling better Jaquie . Good luck with your GI today...... Love and hugs.
i watch you vlogs everyday. your why i started. you have helped me so so much on such a personal emotional level with all my chronic illness. and im so thankfull. im so much happier because of your advice and your insperation. thank you so much for vlogging your days :) i hope your gi appointment went well girl :)
Your mom is so adorable! Glad you are doing better.
Harlow was so good with the motorized cart im sure she will do amazing with the new wheelchair that you are hopefully getting soon💞
Your videos and positivity make my bad days better. Thank you for doing these videos😇
I am so happy you were able to go out shopping with your mom Jacquie .. I enjoyed watching your day you are such a trooper great job xoxo
Thank you so much for sharing your story and your positivity. It impacts my life in so many ways! Thank you so much for providing a positive environment I can escape to when my chronic anxiety keeps me locked away from everyone ♥️💜
5:35 I love when Jaquie does this, too cute😍
Lol I did not know if I should include that bit, but I did :P
it really opens my eyes on how lazy i am, like im perfectly healthy and i feel i take so much advantage from it. With you being how you are, and still taking care of your house and harlow and i cant even motivate myself to get up to clean my room. It really makes me what to change how i do everything and how i motivate myself
Mackenzie Robbins Good for you Mackenzie. Recognizing that you need to change something in your life is half the battle. I have several debilitating chronic health problems including chronic pain and fatigue. I truly wish I had a healthy body and could take care of my home in the way I want and need to. If it were only that simple for me. You have that ability.... please use it. The next time you clean your room, think of me. Maybe some positive energy will help both of us!! Cheers. Sas
OH my gosh, thanks you so much for editing your subtitles, I can now watch your videos. Thanks you again, and have a nice day
I'm not even chronically ill, but I still really enjoy watching your videos! You're so inspiring! Despite all your illnesses you still have a positive attitude and keep fighting! I just love that! You're amazing! ❤️
Also is it just me or is Harlows backpack tilted on the left side? Sorry if not, just thought I saw it!
I've got chronic pain due to several illnesses and gastroperesis and I have a pump in me that runs a steady infusion of pain meds straight into my spinal fluid. This way the dose is one one hundredth what an oral dose would be so I don't get the bad side effects. Granted what works for me won't work for everyone but there are days I have breakthrough pain too. Glad to see your looking so much better today. Hugs!
armywife4life78 I have an intrathecal pump also, but mine had Baclofen (muscle relaxant) in it. It's my miracle!!! ❤️
+stacy klostermann mine has Sufentanil for pain and Bupivicaine for numbing nerves. It has changed my life!
Hi Jaquie! I have a question for you...what are your thoughts/opinions on the use of medical marijuana for chronic pain and other conditions? I know this can be a controversial topic, but I'm curious if you've ever considered it yourself and what your views are on alternative forms of pain management. I love watching your videos because your positivity is contagious and your "keep moving forward" attitude has inspired me to keep moving forward with my own health issues. Thanks for doing what you do! 😀
Maggie Powers It would probably aggravate her asthma. And she already has to do loads of breathing treatments xx
there are other ways of taking thc other than smoking
Louise Beech you don't have to smoke it you can eat it (:
True just thought it worked better smoking it x
its quicker acting but eating is still affective
I'm with Judd on the leftover chicken...pretty much leftover anything actually, I have ARFID (avoidant/restrictive food intake disorder) and I'm autistic, and the texture changes are usually too much.
Your reason for not taking narcotics makes sense to me. I wonder if that's why I don't react well to them, I have gastroparesis, too.
Her mom is so adorable
I understand what you are going through. I have MS which is a auto immune disorder that effects the central nervous system. I have exposed nerves all through my brain and spine which case me to have all kind of symtoms.
I love my pain management doctor. I hope yours will be just as awesome and they can find tools to help you.
so happy to see your feeling better 💕💕
We should design a legging pattern with drawings of Harlow!
JAQUIE'S NEW SINGLE: Leaving Walmart!!!
Oh my gosh my service dog and harlow have the same vest !
That is neat (:
Absolutely; I have EDS (Type 3) and severe gastroparesis too. I started on opiate painklillers around 6 years ago, at which point I had a JEJ tube but could still eat and drink a very small amount; not long after that I lost the ability to digest completely. It may have happened anyway or it could be due to the opiates. I still take morphine and fentanyl because I cannot leave my bed without but it's definitely something to be aware of: Even in individuals without gastroparesis, opiate painkillers slow gastric emptying but a lot of medical professionals don't know this unfortunately
Really? Surprising. Every doc has told me that is why I need to avoid them, it delays digestion. Hopefully more doctors become informed!
Chronically Jaquie Unfortunately in terms of gastroparesis knowledge and care, the UK are a long way behind the US; most doctors have never even heard of it which is why it took me, and many like me, almost 4 years to get a diagnosis and only then because I was a 70lb wreck. However, many charities are working tirelessly to raise awareness and fund research which will hopefully in the future provide better care and management options. Thank you so much for sharing your life in these videos, I really admire your motivation; it's a quality I wish I had more of. Have a lovely weekend
Ziggys Piggies That really is surprising! The pain management doctors here in the U.S. (well, of the ones I have seen....all two of them....lol) are aware of this and, luckily, they have a tool available to them for this particular complication. The medication (not that any of us actually want yet another Rx to add to our existing seemingly mountainous pile of medications but, still, please bear with me) is called Relistor (aka Methylnaltrexone) and, oh happy day, it's an injectible! I suck at explaining exactly how stuff works without going on and on, ad nauseam. So, to spare you, I borrowed this little snippet from MNT (Medical News Today), which coincidentally, is based out of the UK. If nothing else, it can't hurt to ask your doctor about it, right? Anyway, I hope this helps and good luck to you, sweetie!
"Methylnaltrexone (available as Relistor(R)) helps restore bowel function in patients who have advanced illness and receive opioids for pain relief. Methylnaltrexone is delivered via subcutaneous injection and specifically targets opioid-induced constipation. When given alongside opioid therapy, it is designed to displace the opioid from binding to peripheral receptors in the gut, decreasing the opioid's constipating effects and inducing laxation.
Methylnaltrexone is a peripherally acting mu-opioid receptor antagonist that decreases the constipating effects of opioid pain medications in the gastrointestinal tract without diminishing their ability to relieve pain."
Jennifer Jones You my dear, are an absolute legend! I cannot thank you enough for sharing this. I'm going to email my consultant right away. Thank you so much! X
Your mama is wonderful! I'm so glad she is there with you.
Hi Jaquie. I wish I never started taking narcotics. I have a slow metabolism so now I struggle with constipation. When I take medicine for that I end up messing up my clothes and bedding. I'm glad you are feeling better. I'm praying that you are able to get your new feeding tube on Friday. God bless you and your family. (and that includes Harlow the most awesome dog on UA-cam!)🐶😊💟
I used to live in Tampa Florida and my parents always said Publix was so great. that Publix was probably the same as the one my family went to
ive "lucked out" with having my mmj and kratom do alot of the pain management i need. i still have to take dilaudid daily, but its much less since ive been on the kratom. really excited to see how kratom develops in the medical community the next few years since so many chronic patients are using it now. just yet...another suggestion from another zeeb
I don't take narcotics for my chronic pain because of my GP too. I do the same with heat and rest, but at the abilities expo I came across this e-stim unit with a built in tens unit. It's called HEALTH MATE FOREVER, I tried it while I was there and it worked great. They have a bunch of diff sizes/prices.. you should look into it! Sending love from Chicago
You really did so well, expecially since you've been in the hospital, plus cleaning !!! Harlow is such a good girl. Your mom is cute!! She's a star!! Hope your feeling better. Take it easy and rest gorgeous gurl!!!
I guess I'm lucky I can do narcotics for my pain management. Between the Crohns and fybro it would be unmanageable.
It was sooo nice to see you and your mom going out and about.
I have Fibromialga. I can only use Tylenol. I am to sensitive to narcotics. And lots of other drugs. It really does not help my pain. Which is constant. But I feel better personally knowing I can not become addicted to medication. Which I know could happen to me. I love your videos and seeing Harllow really males me happy c:
I'm happy for you are you doing so well your such an inspiration even though I'm 50 your such a strong woman and smart soft hugs to you God bless you and family
Your mom made my day 😂😂 "I don't think you should get anymore leggings because you have enough" 😂 that's what my mom tells me everyday.
Seems like you had a pretty good day. Sending prayers!!
Congrats for 70k subs!!!!!!
Hi Jaquie, I love your videos, despite your chronic illness you have so much power, which is inspiring! (I hope that's appropriate to say) . At 10:11 : I don't really like the taste of leftover chicken either ;-) greetings to Judd
Totally appropriate and thank you!
Anyone else laugh at Harlow eye brow wiggle @6:35 cause I know I did!
Hey Jacquie! Hope you're feeling as well as you can. I'm glad you explain about why you can't take narcotics and you don't put others down. I have to q 6 hrs for my chronic pain. I'm so glad you have alternative ways to work around your pain. I do hope you are able to see a specialist! Please be thinking about me... I am scheduled to see a Rheumatologist in Jan for possible autoimmune issues. 😔 I know it sucks having so many things wrong, but I love how you always explain your issues and are always so supportive of others. And thank you for sharing your life. That is a blessing for us, to know we aren't alone and to learn as well! 😊
You inspire me so much. Thank you x
Good luck at your GI appointment today. I hope you get some good news.
Glad you're feeling better! Lots of love from Sweden! :)
I live in the 🇬🇧 uk and use the mobility scooter so that I can enjoy myself. I look at it as a tool to manage my illness xx
I'm on norco 5 and have been for 5 years now . My pain mgmt and gi want me off it since I have gastroparisis and ibs and I've been in the er three times this week for extreme cramping and pain . I saw my gi yesterday and he told me to use marijuana to help with my pain and nausea and to use my connections to get what I can. I'm in Ohio so we have another year (sept 2018) til he can write a script for it
After around 7 months of horrible back pain(constantly levels 6-8) and being told nothing is wrong a new pain management doctor just thought to have me do a genetic test for ehlers-danlos syndrome since my joints pop a lot. I'm a bit nervous because I love hiking and I'm terrified of the risk of pain getting worse and not being able to do it.
I hope you find answers! Just know for type 3 there is no genetic testing yet
If you’ve had back pain for a long time and nothing has worked, I highly recommend reading "Healing Back Pain" by Dr. John Sarno. It has saved thousands of people from chronic back pain. Your pain is real and there is hope.
You look so much healthier! I'm so happy that you're doing okay!
Sending love from Italy 💖💖
Btw harlow is so cute 😻
Hi Jaquie, my name is Lauren, I'm glad you're feeling better but i have a question for you. I'm in my teens and I am having problems with my sleep I have thalassemia minor, Asthma, and juvenile arthritis i don't know if those play any part in my struggle to sleep. I took little quizzes from the London sleep center and got positives for narcolepsy, insomnia, and sleep apnea. I don't know what to do I told my parents but they just looked at each other and made a weird look. Glad you feeling better. Bye
Watch my how to get answers video(:
Hi Jaquie :)
My aunt has a walker and i push her home in it when she is too tired to walk, it is a bit difficult but it works. And it hasn't fallen over ones, so don't worry :)
Mine has fallen using it that way lol!
I love you guys and Jacquie you are so inspirational and beautiful and I look up to you for being able to keep on moving forward and I thank you because you helped me see life in a whole different way and can you tell Judd and your mom I said hi and I love you guys forever and always
Can I just say that you are the strongest person I've ever heard of! You are beautiful and so kind bless you and your family!
I have a g/j tube and had to have it switched out for a longer one and it was painful even with the existing stoma. Hopefully yours will go more smoothly, but I wanted to alert you to that possibility.
5:00
when that person looked at the camera I instinctively looked away, what the heck
Glad you are feeling better!
Omg I love those super soft leggings too lol. I just bought three pairs and they're just like lularow or however u spell it, except like one fifth of the price
I have Sphincter of Oddi Dysfunction, so Narcotics are out for me too, as they cause that duct to flare, causing horrendous pain.
Praying for your recovery!
Narcotics make me nauseated 🤢 so I can't take them either. If I need something more than my max ibprophen then I take a stronger NSAID. I have had to use them a couple times for after surgery but after about 2 days I get so sick that I can't tolerate it anymore.
Love you! 😘 Just keep moving forward!
Congratulations on 200 Patreons!!
That makes 100% sense as to why you can't take narcotics for pain relief.
For me, right now it's the only option I really have. I can't take NSAID's bc of my UC; it can cause worsening of symptoms that include bad internal bleeding, but the side effect of the narcotics that is bad for you is great for me! 👍
Just as you say, everyone is different. I don't have EDS, but I have RA and Inflammatory Peripheral Arthritis that goes with my UC.
I wish I could take NSAID's; a lot of my pain stems from inflammation. When I was in hospital with aseptic viral meningitis, the only tool they had to bring my fever down was acetaminophen, which they monitored almost as much as the IV diludad I was on for pain.
The fever was so horrible, I would have mugged someone for a Motrin, I swear.
Exactly! We all need to do what works for us
Talon Sage hi friend! Lol we have been talking over on The Raw Life :)
Talon Sage I have gastroparisis and ibs and fibromyalgia myself plus 4 herniated discs. I've been on norco for 5 years now and it's just not helping as much . I saw my gi yesterday after three visits to the er in one week. He told me he wants me off the norco because it's slowing down everything but told me to use my connections to get marijuana to help with my pain and nausea . It's still another year (sept 2018) here in Ohio til medical is legalized so I just have to wait . I've been doing edibles for a few months (April) when I had my gallbladder taken out and it's helped a lot. A friend of mine on fb grows and sells it so I'll be using him more often . He made me a batch of brownies yesterday and they are hella soft and loaded with canna butter lol . Im not normally a brownie person but hey if it helps why not
Háłłïē B Dr Fantastic (my ob/gyn) wanted to know a few years ago why I wasn't on medical marijuana. (I'm in Michigan so it's possible but expensive.)
I'm still not, but I had leftover cookies from a party once (my first time with edibles and I was stoned for a day and a half...which Dr Awesome found hilarious ( that's my GI)...because I had too many cookies at the party.
Now, my being stoned consists of not being able to do more than one thing at a time. My first time, I discovered that I could either drive OR listen to my Harry Potter book on tape. I couldn't do both. (I should have just stayed the night at my aunts; it had been a bachelorette party for one of my cousins, but I didn't and learned in the process.)
I discovered with the leftover cookies from the first time I had edibles, that they REALLY helped with my invisible migraine symptoms. I've not had a migraine medication work for me without making me sick or adversely affecting my blood pressure. And narcotics are TERRIBLE for migraines; they cause rebound headaches, and are worse for cluster headaches.
I think sometime in the near future I'll make the switch to medical marijuana, but in the current political climate, it makes me leary, to say the least.
I know that probably that you for sure were asked this previously... Just curious, have you tried medical Marijuana for pain management??
I had a chest tube once and I can tell you the pain in my ribs was the worst. So I don't doubt that the kink is causing pain.
Hi Jaquie, hope you are feeling better, you are going through the same thing that I am now I've had stomach surgery in June I have severe GP and my stomach was completely paralyzed then I had another surgery to get a J tube I have to be on it 24/7 for now I'm having a lot of pain fromit since July they are talking about if they take it out and I still cannot keep food down they are going to have to start iv stuff and do TPN also. Ugh. But I found you're videos about 2 months ago and love watching them they are so helpful and it's not just me that is foing thru this. Hope u are feeling better and having a good day 🙂💚💚💚we are warriors
You are looking so much better! :) ((hugs)) and prayers for all of you! xo
I always get excited with you everytime you get a free cookie from Publix😂
hippo makes me so happy
hey! whenever I go to Florida I get the sprinkle cookies at publix lol
those leggings on that end cap you looked at are sooooo soft.half hour ago I just picked up 2 pares.i have A.S arthritis and chronic pain and soft leggings are so comphy
Fun fact: that Alessi salt and pepper are made where I used to live in Sicily!
You got me addicted to those leggings! Already bought 3 pairs!
I'm so glad my mom is an RN (registered nurse) and saves people's lives!
You and Judd are a very special couple! I am glad you two found each other and are married now.