OMG!! A knowledgeable AND compassionate pain control doctor??? Seriously WOW. SO Awesome!!! I can't even begin to imagine what that must have been like. My hope and optimism are both up for you!!!
Talon Sage Yes, neurologists (usually do pain management...and dual cert in psychiatry) are pretty well known for often being horrible to chronic illness patients and being psychologizing...aka telling people w/ physical illness that they are crazy, causing their own illness, have false illness beliefs etc. Or totally think a valid illness recognized by the WHO is bogus. I personally had a horrible experience and was run down about seeking help for physical conditions I have...that according to him are depression or a personality disorder? Idk! He's the crazy one. I have ME/CFS, POTS (tilt table test confirmed at a hosp), EDS-3, carpel tunnel syndrome, etc etc. I don't want to be sick and it's horrible when you're trying to gain functionality and you get burned. I was not near as educated on my conditions as I am now. I was diagnosed as a teen w/ ME but never educated on relapse etc.
I'm so glad to know that your pain management appointment went well! Success stories seriously encourages me to go for my pain management appointments cause I'm sort of traumatised from my previous appointments
Good for you for finding a pain doc that will help you AND that doesn't disregard your pain. I've had chronic pain since I was 14 (I'm 57 now) not a day goes by without pain. I wouldn't know what's it's like NOT to be in pain. I commend you for taking an active role in your health. And your knowledge of your illnesses astound me. You are an inspiration to all.
princess, excuse me for saying, the things you count so special are what we do everyday. I apologize you've caused me to take a deeper look. I'm sure there's a reason for everything? even if I don't know? your journey has made me a different person. thank you so much!!!
I wish you much success with the pain management, J. I have RA in my neck and it's a painful thing. The way Harlow knows to apply pressure and heat to an area of your body that way is nothing less than miraculous. they are angels.
She is very sweet! I actually had to train her on that though. When we first started, she was not so graceful and kept jabbing her bone elbows into me :P
Hello Jaquie! I don't have any chronic illnesses, so I don't know exactly what that's like, but I just wanted to say how your videos have inspired me to enjoy all the little things in life, like going on "adventures" instead of thinking of things as a chore. I love your optimistic personality and I hope your pain management works out wonderfully, because I know you deserve it!
Ok before I say anything, PLEASE bare with me I'm typing this whilst on a high amount of ketamine. I've just had my 8th bowel surgery today and I just wanted to tell you how much you've inspired me to get up everyday when things have been tough :) I have lots of complex issues with my bowels, causing a lot of problems with my physicians. I'm under the NHS so replacing these people is pretty difficult but you've inspired me to stand up to them :) As a result I'm now lying in hospital recovering from a surgery to (fingers crossed) get my life back on track! Thank you so much for inspiring me! -ps I take Zofran everyday too, it's the best anti sickness :)
You're videos make me so happy, I look forward to them every day! I love you all so much. I'm so happy that you had a good experience at the new doctor, and I hope you have a good day today
My Dad is an anesthetist doctor, who specializes in pain management. He has a ketamine clinic. Most of his patients have had many benefits! Of course it depends on the amount of ketamine you are getting. One patient wasn't able to walk long distances, and now the patient goes on 5km jogs nearly daily :)
Wow, that is incredible! We are starting with just enough to put me under for the procedure. I really hope it helps me! Slightly worried since I see so many people talking of crazy side effects like hallucinations, but I am very ready to give it a try!
Chronically Jaquie During the treatment some have experienced hallucinations, but after the treatment they're totally okay. Hopefully you will get good benefits! Especially if you eventually get a larger dose.
I used to just not go to drs to figure out what was wrong because they always worried about my blood pressure and not the other things that were hurting or causing problems. But since I have moved to a new state I started going back to doctors and finally started getting answers and I am so thankful.
Oh my gosh I was so excited when Judd days you're finished your food 😂 Also I'm so glad your appointment went well and I wish you continued positive treatment and relief ❤
I saw a new pain Dr today and she was amazing!! My previous one was not helping me at all and refused to prescribe med that I knew had worked in the past. I suffered a long time because of them just not caring. But, the pain Dr I saw today listened and validated my severe fibromyalgia and myofascial pain. I cried because i finally found the help I've needed for so long!
I hope everything goes well, I had high dose ketamine infusion for 5 consecutive days, it is approved for CRPS only as far as I know. I have EDS as well and at Cleveland clinic they focused on my CRPS, for my EDS I only had trigger point injections and PT which is the main modality of therapy. I'm glad you like this doctor! I hope you get some relief, stay strong Xx
Jaquie, I have chronic pain from several different conditions, & when you said the doctor talked about other people thinking chronic pain sufferers were fine because they outwardly look fine but have so much pain inside, I began to weep, because that's exactly how I feel...how I wish I could find a doctor like him in Texas...I truly hope the Ketamine helps your pain. I love watching your videos; Harlow is adorable & so is Judd; he has the cutest dimples! Thanks for your positive outlook; I live alone & really struggle with that aspect of my chronic pain.
FBIMOUS377 IKR. I love it. Jacquie hit the nail on the head in one of her near/past vlogs talkin about that very thing. I do miss him & Hippo when they're not shown in the vid.
I hope these options work out for you! Sounds like you've got a great medical team behind you. It's awesome when you find a doctor you can trust and love...
Girl, I had ketamine infusions for over a year every single month. My insurance company paid for them no problem. I had BCBS. I know every insurance company is different, but hopefully you will get approved for it. Make sure you predose with antinausea meds. I know you can't take phenerghan but you should ask your doctor to give you something to relax you or make you sleepy before he gives you the infusion. I had horrible hallucinations, each and every time. And the only way I could deal with the infusions is to try to sleep through them. If you have any more questions about ketamine, feel free to ask
Christy In The Carolina's When i worked for veterinarians,ketamine was often given to cats for surgery.When tbey came out it looked to me like tbe were hallicinating
I had horrendous reaction to ketamine. I was hallucinating and terrified of everything. I was in hospital at the time having it by infusion. They stopped it and had to give me injection to reverse it which knocked me out for the day. I still had symptoms for about a week. Never again! I'm on fentanyl patches now and OxyContin tablets. X
Christie Betts yes, Ketamine is a very common drug used in the vet world. But we didn't use straight Ketamine on our cats or dogs. Cats get Telazol, Ketamine and Xylazine. Dogs get Ketamine and Valium. It really helps with the side effects of the Ketamine 😉
It's nice to see someone who has empathy. I had energy yesterday and I new I was going to pay for it today and I am. But that what comes with chronic illness.
I'm so glad you found a doctor that you can trust and will help you. I've been going to a pain clinic for about 8 years now. The reason I go is that I've had rheumatoid arthritis since I was 11 years old. That means I've been in moderate to excruciating pain for 45 years now(24 hours a day, 7 days a week, etc etc etc...you get the idea). I always see the PA at my clinic and he is absolutely wonderful, but when I first started going to this clinic I had to see the doctor, who owns the clinic, one time. He was such a jerk. He said "well I've heard rheumatoid arthritis really isn't that bad". I was so shocked that he had the nerve to say that to me that I just stared at him....speechless. 8 years later, that comment of his still hurts. But, I am grateful that I'm able to be treated there(and it only takes me 8 minutes to get there).
Jacque. Pain Management has been so helpful to me but it did take trying it more than once before finding a good pain management team. Like you quality of life is really important to me and I am now cared for by a team of pm specialists at a university teaching hospital. I too have GP, GERD, and other digestive issues that has made it difficult to tolerate narcotics. It has been trial and error but I'm glad I chose to try again. I only wish you the best.
My pain management doctor is pretty good. I know without the medications and periodic shots I'd be one grouchy painful person. Glad this one works for you.
I try not to watch your videos too early in my day (australian here!) because i have poor memory in the mornings due to meds. But the title is exciting as I too am pursuing my next step in pain management and the word ketamine has been tossed around sometimes!! I am so grateful for you sharing your story. I shall return later with coffee so I can watch....
I was just diagnosed with pots on 8/25/2017 and I have GP as well I'm getting my service dog Kso soon because of your videos I knew before my diagnosis that I already had POTS
Love Judd at the end of the vlogs. 😂 I'm always amazed and confused by people I know with EDS and how much crazy pain-related stuff you deal with all the time and yet you all act like these things are no big deal! So I'm glad there are some doctors who get it and are validating and eager to help.
I love dogs so much, and am so happy you found a reliable doctor to manage your pain! When I came home today, my puppies just laid and rested right on top and next to me, but I'm going through my dad and stepmom's divorce so I'm gonna have to give them up too 😢 I love the optimism in your vids and how you trust in God and it's really encouraging to me, that you can have joy even through chronic illness. 😄
My mom gets those injections for her fibromyalgia, and they work wonders for her! (I believe she gets them in he neck and all the way down her spine, if I'm remembering correctly) They get rid of most of her pain and they also get rid of her migraines related to the neck pain (Instead of getting daily migraines, I only notice her getting them once a month). I hope they work well for you too!
When it comes to a great PM doc, any distance is worth it. They truly make that much of a difference. When it comes to Ketamine therapy, it will remain in the experimental phase. That's because the patent expired decades ago. My PM wants me to pursue the slow drip therapy, but it's just too cost prohibitive. It's so sad that something that might help me, is out of reach right now.
I'm 17 and I have chronic pain and struggle just to get out of bed in the morning and I think you're just amazing and so strong I don't know how you do it.
Congrats on another great Dr. He sounds super. I also like what he told you about having pain is not ok. I wish you luck with the treatments. I'm on a cocktail of meds, and get dry needling for my EDS which gets me down to about a level 5 pain on a daily basis which is great.
I've been doing ketamine infusions for a little over a year for my chronic pain (CRPS/RSD) and it has been a miracle treatment for me because opioids don't work on me. I hope you can get some relief!
Four infusions a month of about 1200mg Ketamine. I hypermetabolize most drugs so they give me more than what they give most people. I go from having 9/10 (full body)pain to a 2/10 after infusions! I'm blessed that insurance pays for it.
Hello, you said that being in the car for a long time makes your pain worse. Maybe getting one of those heating pad seat covers for the car would help since that's what you use when you get home. Glad the pain management appointment went well. Take care and God bless.
Chronically Jaquie they just plug in the cigarette lighter and i love mine. I spend too muvh time in the car and its not a good position for my back. I love mine especially in the winter in the uk
So glad your appt went so well. I truly hope it works well for you. Living with the level of pain that we have all the time can make it very hard to communicate to Drs how bad it is because they usually have no real reference. So happy this one gets it. Harlow is an angel as always. I loved that look she gave you about putting that chew away. Lol! So adorable! And Judd, you are right. These are the thongs we do for those we love and I thank God she has you. You really are a good man.
I have EDS and your videos are such a comfort and inspiration. In addition to EDS..I was recently diagnosed with anklosing spondylitis (they found it due to the exorbitant pain and fatigue after multiple blood tests). It's a form of spinal arthritis that's autoimmune induced. You may want to get checked for it (as neck problems are one of the initial symptoms). I was tested for h1b27. I've started a new medication that I hope will lessen the attacking of my immune system against my spine.☺️ *Gentle hugs!*
You are so sweet! I blow dry my bangs (if I can even call them that, lol) because that is all I can handle, takes 2 mins. Then sleep with it wet, and flat iron out and kinks. Takes about fie minutes :) I am so thankful it is easy to manage.
I can completely understand the neck pain. I'm on muscle relaxers and naproxen, both of which is a last resort. I do heat and ice therapy which do help some. Once a month I do trigger point therapy with Novocain to help with most of the pain. I've tried PT and that does nothin. I have Degenerative disc disease in c5-c6. Im going to be starting my Orencia for my RA which should also help with the inflammation in my neck as well. Good luck with the new update and hopefully all will work out.
Hi Jaquie. I'm currently working on training my dad's dog to become an alert dog for his diabetes. She won't be a full time service dog due to his work situation and some sociability issues she has but we want her to be able to alert whenever his sugar drops. Do you have any advice for new trainers?
I do not have a lot of experience with sugar detection training, but I recommend following Luke and Jedi on FB. They are a great team! As for OT in general, I give advice in my Service Dog 101 video :)
Hi Emmy. I actually JUST watched an outstanding vdeo on the Frey family's UA-cam about how her dog was trained with cotton balls and saliva to pick up and detect low blood sugar! I think their UA-cam is the Frey Life and then scroll for the video with the dog behavioral therapist and "all about oliver", her dog. I hope that helps; it really fascinated me.
Emmy Lee Also worth looking into The Dale Tribe. They are service training their dog Phoenix to detect their youngest daughter Aspen's blood sugar as she has type 1 diabetes x
I am prescribed to narcotics like morphine(helps with pain but makes me very tired)and lorazepam(helps with my anxiety). I have a chronic disease called Duchenne Muscular Dystrophy and suffer from pain in lots of areas like lower back,rib pain,and shoulder pain but I wish there was a different way to manage the pain because I hate taking narcotics and try not to but sometimes it isn't an option. Being in a wheelchair all day is not as easy as it looks. I may not have that much in common with you but I am glad I found you because I feel like I have a connection with you in someway which makes me confident enough to talk a little bit about myself.
You have to teach Harlow how to dust with the Swiffer. That would be a cute video. Wow what a look you got when you asked her to clean up. Glad that your appointment went will. It's great to have a doctor that listens and understands you. Sending prayers.
I suffer chronic pain myself, going on 20 plus years. It does take it's toll, I actually hate having to leave my house, I just want to rest. I feel for you.
I'm so happy to hear you have found a good one! I've been going to pain management for years for spondylolisthesis and scoliosis associated pain and have CPS. If there is anything I can help answer I am more than willing to try. I really am interested in seeing how the ketamine works on you, and it makes me want to ask for it the next time I go in for my shots. Stay strong sister in pain! I'm sending love and prayers your way!
Toradol (Ketorolac) can increase risk of heart attacks or strokes in some patients. Watch the dose and keep the daily below 40mg per injection. Short-term, it also has some nasty G.I. side effects, like bleeding and ulcers. It will be interesting to hear how you feel after an injection. Ketamine also has a favorable side effect profile compared to benzos or other DAs. Good luck!
Sometimes i feel bad I am getting enjoyment out of watching a vlog about someone with chronic pain and etc..but it is very fascinating and helps me learn some things since my wife has EDS as well.Harlow had such a sad face when she had to pick up her toys,lol
Jackie, my daughter is having the same issue but she has RSD/CRPS (reflex sympathetic dystrophy/complex regional pain syndrome). She called again today from school crying. She is fine on the outside but in so much pain with her ankle and leg. It turns purple at times and gets real cold. The kids at school and even teachers have resorted to making fun of her and telling her shes faking her disease. I have about had it. She is 16 years old. I also have chronic pain.
SO TRUE. Why can I not smell a flower and be pain free? I would love that. Thankfully massage therapy does help a bit so I am going to start that again.
Chronically Jaquie :) I totally get that feeling, Hopefully this brings you longer periods of relief! you have such a yearning to live and enjoy that wants us as a community to see you do and see things and not have to constantly have time limits. We all want that but seeing the improvements from IVG and the new button atleast i want to see if their are more "fixes" to come! Simple things made easier....unlike my rambly brain!😂
Hi Jacquie i'm from Panama I love your videos I also suffered of Dysautonomia and CRPS. I take a lot of meds but they doesnt kill the pain to 0 but they helped me to stand day by day. When Im in a lot of pain I have to used Ketamine inpatien for 7 day in ICU that was in Philadelphia the first time because here no so many doctors do it. It was fantastic. Then we find a doctor here in Panama who is now my pain manegement doctor. I have had many infussions here in Panama. Now the problem is that ketamine is not coming to Panama and I need to buyed it in USA :(. Im a medical doctor doing my internship that is so hard because i have to do long shifts of 24 and 32 hours without sleep but I loved it💕 Because of my chronic illnesess I had to graduated when it was possible and do my work on my own rithm. If I had to stayed in bed that they well thats my chronic life like you said we have to keep moving forward😊💕. Sorry for the long message😶
If you can stand it from a sensory perspective, I find Salonpas stickers quite useful, especially for my neck and shoulder pain. I also use a topical rub that I can only get in the UK; it's called Radian B, and it combines ibuprofen and capsaicin. For some reason, that combo really works for me. I can send you some if you want to try it and if your docs approve! I also use lavender spray on my heating pads and wheat bags--I think the relaxation helps relieve the pain indirectly.
toradol yes@ helps me alot message therapy and water help what about instant pain i feel so bad that you go through pain im so sorry i cant i have to take my meds for pain i get high blood pressure when my pain gets too high no marijauna is bad my opinion
Not so much anymore as she is matured, but during training it is something to be mindful of. Find a balance between off time and work, but she LOVES to work. However, I am not very active in public due to my health so we are home a lot and she gets a lot of off time to be a happy dog.
I'm glad you touched on the MM legalities! I don't think people realize how restrictive it is in Florida. People recommend it to me all the time and while it's something I'd be willing to try, I don't qualify as I don't have one of the very few conditions they have on the approval list. People just read the headline of "Florida approves medical marijuana!" And not the asterisk of *for people with a few conditions. It sucks, but I'm sure it will be legal federally someday soon.
It really is frustrating! Hopefully soon they'll sort it out, it was recently legalized after all. I would think with all the examples though they would get it together. Ah well, Florida loves being a mess I suppose lol.
I don't know if specific positions could end up injuring you, but one of the surprising side effects of total pain relief for me was that I accidentally put myself into positions that re-injure my back. So if you have great success with your pain management (I hope you do, it sounds promising :) ), definitely keep that in mind. Because when the medications wear off- ooh unpleasant surprise. ;)
I am possibly getting Ketamine as well. My chronic pain journey has been treacherous, and very long. It's kind of my last option, but some of my doctors are hesitant to try, because of the way my pain is, and the amount of the things that has been unsuccessful. (which has been everything)
My doctor said it is safe, but hard to get insurance coverage. I mean, everything has risks and generally you do not want to use sedation unless you need to, but since I need it anyways and I am a good candidate we will use it. I am hoping you find a good solution!
Amen Sister to Chronic Pain. It drains any good energy one may have replacing it with weakness, more joint, tissue & muscle pain, in my case, I have Fibro, Peripheral Neuropathy in hands/arms/back/legs/feet. They are always falling asleep, tingling/burning/stinging, deep bone pain, and the list goes on. It's too long to list them all. The pain that accompanies all these various invisible illness' is also too long to list. My list of invisible illness is too long to list but I will say again, Fibromyalgia is my worse monster. Isn't it amazing how we're able to hide our disabilities, our pain & depression, behind smiles so fake they look real? I've suffered chronic pain my entire life. As far back as I can remember. One learns to hide it because others simply don't understand or seriously don't want to be brought down by it. Luv this vid +ChronicallyJaquie. You touched on a lot of positive & negatives of chronic pain. Subjects that ppl with chronic pain never think about but are always on the minds of non pain sufferers.
I tried ketamine infusions for my severe fibromyalgia pain (and depression) and I was super bummed that it didn't work (especially since I flew out of state because it's cheapest in denver). Luckily my parent's insurance covered most of the cost. I hope it works for you, wishing you the best of luck
It's very interesting to hear that your using Ketamine. I have been following studies about its use to permanently treat depression. It's supposed to be given in six doses of very low dosage but it's also experimental. So not covered by a dr. And it's about 600$ per dosage. Your supposed to not have to take anti depressants after and your depression is cured. I'm waiting a little to hear more about the experiments and than decide if it's worth the cost.
I have heard it helps with depression too! I think modern medicine is incorporating it more and more due to promising results. Some insurance companies are even covering it now!
Chronically Jaquie Really will u take note of if u notice a change in your mood ? It would be neat to see what your experience is since your already getting the treatment. Anyway I'm sooo happy to hear you have hope now in achieving a less painful life. Always sending good thoughts and your inspirational.
Have the doctor add bupivicaine to the toradol. It doesn't have to be a lot but it's long lasting and helps heaps! I'm praying for you every day. I wish I could sit down and chat with you in person. Hugs!
I've been thinking about seeing someone again for my chronic pains, I've just been pushing it off to the side for so long after my two heart attacks. Because for I had them I was seeing someone for it, but that was like a year ago now. Doctors think I have nerve damage or muscle damage in my spine that's causing all of my chronic pains in my body.
I was pushing it off as well because I was preoccupied trying to handle the other aspects of my health. But I realized that a good quality of life entails maintaining all aspects, including my pain! (:
Chronically Jaquie I've been preoccupied with other health care as well, since I have CHD and other chronic illnesses. But I've also been scared to look further into my pain, since I've been told if it is nerve damage I would need surgery, and I haven't had surgery since I was three. So that topic worries me a tiny bit.
Team Julie against Ovarian Cancer I do use it. My regular doctor signed for my card when she saw how much it helped with my severe peripheral neuropathy, anxiety, etc. I can actually sleep now. It's amazing!
I use it for my severe fibromyalgia pain and I find that it works better than narcotics. The only issue is that I hate feeling high, but I need thc for pain relief (but cbd works for most people, it just doesn't for me for some reason). It helps dull the pain and I would be having an even harder time without it. I use it in tinctures and occasionally vape it, so it doesn't have any negative health effects for me.
I really enjoy your videos. I don't know whether this is a too personal question but how do you deal with intimacy and self love, acceptance and confidence? I suffer from an endocrine disorder and this past year has been horrific in regards to me losing my confidence and I've gained weight and my life just isn't the same as it was before my surgeries. I'm 33 and feel like I'm 63. Do you have any advice? Tfs xox
I do not talk about intimacy as that is between my husband and I, but as for self worth I see it this way: Chronic illness can impact our physical appearance. But I am still me, 100%. Sure, when I dropped to a dangerously low weight and looked like I could break I did not like the way I looked. I needed to adjust to the tube coming out of my stomach. But there is so much to beauty beyond our looks. I find beauty in the way I treat others, in how I reach others with my story, in how I hold my husband and how I am brave enough to face all the challenge and still be me at the end of it all. My body is incredible for going through all this and STILL being here, and that resilience is what I find beautiful, tubes, ports, scars and all.
What's your opinion on medical cannabis, such as cbd oil drops. Personally it's made a huge difference in my chronic pain but I know it may not be the proper option for you but if you haven't I'd recommend checking it out!
OMG!! A knowledgeable AND compassionate pain control doctor???
Seriously WOW. SO Awesome!!! I can't even begin to imagine what that must have been like.
My hope and optimism are both up for you!!!
Yes it was such a relief!
Talon Sage Yes, neurologists (usually do pain management...and dual cert in psychiatry) are pretty well known for often being horrible to chronic illness patients and being psychologizing...aka telling people w/ physical illness that they are crazy, causing their own illness, have false illness beliefs etc. Or totally think a valid illness recognized by the WHO is bogus. I personally had a horrible experience and was run down about seeking help for physical conditions I have...that according to him are depression or a personality disorder? Idk! He's the crazy one. I have ME/CFS, POTS (tilt table test confirmed at a hosp), EDS-3, carpel tunnel syndrome, etc etc. I don't want to be sick and it's horrible when you're trying to gain functionality and you get burned. I was not near as educated on my conditions as I am now. I was diagnosed as a teen w/ ME but never educated on relapse etc.
I love the look that Harlow gave you when you told her to clean up.
"but mooooom"
Kye Teshirogi totally the "but I don't wanna mom"
That was so funny that look
When Harlow put her head on your shoulder, my heart melted
IKR! So #adorablehippo #DayOfGiving #GMADayOfGiving #HurricaneHarvey #DonateRedCross3169461372
I'm so glad to know that your pain management appointment went well! Success stories seriously encourages me to go for my pain management appointments cause I'm sort of traumatised from my previous appointments
Good for you for finding a pain doc that will help you AND that doesn't disregard your pain. I've had chronic pain since I was 14 (I'm 57 now) not a day goes by without pain. I wouldn't know what's it's like NOT to be in pain. I commend you for taking an active role in your health. And your knowledge of your illnesses astound me. You are an inspiration to all.
Harlow looks so cute with the swifter in her mouth
princess, excuse me for saying, the things you count so special are what we do everyday. I apologize you've caused me to take a deeper look. I'm sure there's a reason for everything? even if I don't know? your journey has made me a different person. thank you so much!!!
That is one positive thing about being chronically ill, it has made me infinitely more grateful and mindful of small victories
I wish you much success with the pain management, J. I have RA in my neck and it's a painful thing. The way Harlow knows to apply pressure and heat to an area of your body that way is nothing less than miraculous. they are angels.
She is very sweet! I actually had to train her on that though. When we first started, she was not so graceful and kept jabbing her bone elbows into me :P
Love you Jaquie! You are so inspirational and knowledgable. Plus Harlow is so smart and ADORABLE!
Hello Jaquie! I don't have any chronic illnesses, so I don't know exactly what that's like, but I just wanted to say how your videos have inspired me to enjoy all the little things in life, like going on "adventures" instead of thinking of things as a chore. I love your optimistic personality and I hope your pain management works out wonderfully, because I know you deserve it!
So glad that your appointment went well i hope that the treatment you get at the end of the month works to its fullest capacity for you x
Ok before I say anything, PLEASE bare with me I'm typing this whilst on a high amount of ketamine. I've just had my 8th bowel surgery today and I just wanted to tell you how much you've inspired me to get up everyday when things have been tough :) I have lots of complex issues with my bowels, causing a lot of problems with my physicians. I'm under the NHS so replacing these people is pretty difficult but you've inspired me to stand up to them :) As a result I'm now lying in hospital recovering from a surgery to (fingers crossed) get my life back on track! Thank you so much for inspiring me! -ps I take Zofran everyday too, it's the best anti sickness :)
Bonnie Mae Patton that's amazing! I truly hope the surgery works and congratulations for advocating for yourself!
Chronically Jaquie Thank you! I'm feeling a lot better already 😆
You're videos make me so happy, I look forward to them every day! I love you all so much. I'm so happy that you had a good experience at the new doctor, and I hope you have a good day today
I love the positivity in the comments section :)
Her channel always has the nicest people. Just another thing that makes the vlogs so amazing haha!
My Dad is an anesthetist doctor, who specializes in pain management. He has a ketamine clinic. Most of his patients have had many benefits! Of course it depends on the amount of ketamine you are getting. One patient wasn't able to walk long distances, and now the patient goes on 5km jogs nearly daily :)
Wow, that is incredible! We are starting with just enough to put me under for the procedure. I really hope it helps me! Slightly worried since I see so many people talking of crazy side effects like hallucinations, but I am very ready to give it a try!
Chronically Jaquie During the treatment some have experienced hallucinations, but after the treatment they're totally okay. Hopefully you will get good benefits! Especially if you eventually get a larger dose.
I'm glad you found a good pain management doctor.
I love when Harlow put her head on your shoulder in the car, the cutest! ❤🐾
Love you so much I look forward to your videos every single day they make me happy:)))
Jaquie I love ur videos and how u spread awareness about chronic illness's
That doctor sounds lovely and super understanding and I'm so glad it went well!
I used to just not go to drs to figure out what was wrong because they always worried about my blood pressure and not the other things that were hurting or causing problems. But since I have moved to a new state I started going back to doctors and finally started getting answers and I am so thankful.
Oh my gosh I was so excited when Judd days you're finished your food 😂 Also I'm so glad your appointment went well and I wish you continued positive treatment and relief ❤
You're giving me positivity and motivation to get better Wellness back in my fight against Chronic illness and Pain
I saw a new pain Dr today and she was amazing!! My previous one was not helping me at all and refused to prescribe med that I knew had worked in the past. I suffered a long time because of them just not caring. But, the pain Dr I saw today listened and validated my severe fibromyalgia and myofascial pain. I cried because i finally found the help I've needed for so long!
I hope everything goes well, I had high dose ketamine infusion for 5 consecutive days, it is approved for CRPS only as far as I know. I have EDS as well and at Cleveland clinic they focused on my CRPS, for my EDS I only had trigger point injections and PT which is the main modality of therapy. I'm glad you like this doctor! I hope you get some relief, stay strong Xx
I am so glad you found a great doctor to help you feel less of the pain
I've been looking into Ketamine myself, so I can't wait to hear about your experience!
I will be sharing! And I just made a Pain Management Playlist (:
I loved how Harlow looked at you when you said clean up. Like do I have to?!?!
Jaquie,
I have chronic pain from several different conditions, & when you said the doctor talked about other people thinking chronic pain sufferers were fine because they outwardly look fine but have so much pain inside, I began to weep, because that's exactly how I feel...how I wish I could find a doctor like him in Texas...I truly hope the Ketamine helps your pain.
I love watching your videos; Harlow is adorable & so is Judd; he has the cutest dimples! Thanks for your positive outlook; I live alone & really struggle with that aspect of my chronic pain.
Haha Judd really enjoys taking over the vlog at the end 😂
Jaquie did you notice Harlow's Ranch video has over 1million views?!
FBIMOUS377 👆🏻👆🏻👆🏻👆🏻👆🏻
FBIMOUS377 I missed that when he was gone!
FBIMOUS377 IKR. I love it. Jacquie hit the nail on the head in one of her near/past vlogs talkin about that very thing. I do miss him & Hippo when they're not shown in the vid.
I'm so glad the appt. went well. Love Harlow's expression when you said "clean up"!!!
I hope these options work out for you! Sounds like you've got a great medical team behind you. It's awesome when you find a doctor you can trust and love...
Girl, I had ketamine infusions for over a year every single month. My insurance company paid for them no problem. I had BCBS. I know every insurance company is different, but hopefully you will get approved for it. Make sure you predose with antinausea meds. I know you can't take phenerghan but you should ask your doctor to give you something to relax you or make you sleepy before he gives you the infusion. I had horrible hallucinations, each and every time. And the only way I could deal with the infusions is to try to sleep through them. If you have any more questions about ketamine, feel free to ask
Same here so much so I couldn't continue getting the infusions because of how horrible the experience was and the insane hallucinations
Christy In The Carolina's When i worked for veterinarians,ketamine was often given to cats for surgery.When tbey came out it looked to me like tbe were hallicinating
I had horrendous reaction to ketamine. I was hallucinating and terrified of everything. I was in hospital at the time having it by infusion. They stopped it and had to give me injection to reverse it which knocked me out for the day. I still had symptoms for about a week. Never again! I'm on fentanyl patches now and OxyContin tablets. X
Christy In The Carolina's that sounds petrifying!
Christie Betts yes, Ketamine is a very common drug used in the vet world. But we didn't use straight Ketamine on our cats or dogs. Cats get Telazol, Ketamine and Xylazine. Dogs get Ketamine and Valium. It really helps with the side effects of the Ketamine 😉
It's nice to see someone who has empathy. I had energy yesterday and I new I was going to pay for it today and I am. But that what comes with chronic illness.
The way you talk about your pain doctor makes me want to strive to be the best doctor that I can be! - a family medicine intern in WV
Your comment literally makes me SO happy, it is amazing to know we have passionate doctors out there!
I'm so glad you found a doctor that you can trust and will help you. I've been going to a pain clinic for about 8 years now. The reason I go is that I've had rheumatoid arthritis since I was 11 years old. That means I've been in moderate to excruciating pain for 45 years now(24 hours a day, 7 days a week, etc etc etc...you get the idea). I always see the PA at my clinic and he is absolutely wonderful, but when I first started going to this clinic I had to see the doctor, who owns the clinic, one time. He was such a jerk. He said "well I've heard rheumatoid arthritis really isn't that bad". I was so shocked that he had the nerve to say that to me that I just stared at him....speechless. 8 years later, that comment of his still hurts. But, I am grateful that I'm able to be treated there(and it only takes me 8 minutes to get there).
To think, a dog administering physical therapy! I'm not sure what that says about physical therapists, but it says something amazing about Harlow.
Jacquie you look good in that mask and without it. I could never pull it off! Have a nice day! :)
Haha thank you!
If you're confident, I'm confident! The pain relief sounds so exciting and interesting! I really hope and pray it works well for you!! 💖
Jacque. Pain Management has been so helpful to me but it did take trying it more than once before finding a good pain management team. Like you quality of life is really important to me and I am now cared for by a team of pm specialists at a university teaching hospital. I too have GP, GERD, and other digestive issues that has made it difficult to tolerate narcotics. It has been trial and error but I'm glad I chose to try again. I only wish you the best.
Sometimes trying again after a bad experience is the hardest part! But I am so thankful I did. I am happy you did as well! (:
My pain management doctor is pretty good. I know without the medications and periodic shots I'd be one grouchy painful person. Glad this one works for you.
I hope your doing well and very healthy good bless you, Judd, and Harlow!
I love u guys so much and your such an inspiration to me even though I don't have any sickness
I try not to watch your videos too early in my day (australian here!) because i have poor memory in the mornings due to meds. But the title is exciting as I too am pursuing my next step in pain management and the word ketamine has been tossed around sometimes!! I am so grateful for you sharing your story. I shall return later with coffee so I can watch....
We use Ketamine almost every day in the doctor's office I work at and I love love love it for patients. Good for you Jaquie! Keep on truckin.
Harlow is really a furry child! The look she gave you "but mummmmmm, I don't wanna pack up my toys"
Hope you're feeling better today Jaquie! God Bless you and you're sweet family!
Keep you in my prayers. 26 yrs of dealing and being an military wife I understand. Hugs. Keep ya in my prayers
You guys look like you had a fun and exciting and productive day yesterday.
I was just diagnosed with pots on 8/25/2017 and I have GP as well I'm getting my service dog Kso soon because of your videos I knew before my diagnosis that I already had POTS
Jessica Fletcher what is POTS?
Mary Draws
Postural Orthostatic Tachycardia Syndrome
Love Judd at the end of the vlogs. 😂 I'm always amazed and confused by people I know with EDS and how much crazy pain-related stuff you deal with all the time and yet you all act like these things are no big deal! So I'm glad there are some doctors who get it and are validating and eager to help.
judd I am so glad Jaquie has you by her side ....you guys make me laugh at the end of every vidio!!😁
I love dogs so much, and am so happy you found a reliable doctor to manage your pain! When I came home today, my puppies just laid and rested right on top and next to me, but I'm going through my dad and stepmom's divorce so I'm gonna have to give them up too 😢
I love the optimism in your vids and how you trust in God and it's really encouraging to me, that you can have joy even through chronic illness. 😄
Sorry you are going through a hard time, stay strong!
My mom gets those injections for her fibromyalgia, and they work wonders for her! (I believe she gets them in he neck and all the way down her spine, if I'm remembering correctly) They get rid of most of her pain and they also get rid of her migraines related to the neck pain (Instead of getting daily migraines, I only notice her getting them once a month). I hope they work well for you too!
That you so much! I seriously love hearing success stories like this and I am thrilled they help your mom so much!
When it comes to a great PM doc, any distance is worth it. They truly make that much of a difference. When it comes to Ketamine therapy, it will remain in the experimental phase. That's because the patent expired decades ago. My PM wants me to pursue the slow drip therapy, but it's just too cost prohibitive. It's so sad that something that might help me, is out of reach right now.
I'm 17 and I have chronic pain and struggle just to get out of bed in the morning and I think you're just amazing and so strong I don't know how you do it.
You're so smart and informed.... This is how i strive to be in my battle.
Congrats on another great Dr. He sounds super. I also like what he told you about having pain is not ok. I wish you luck with the treatments. I'm on a cocktail of meds, and get dry needling for my EDS which gets me down to about a level 5 pain on a daily basis which is great.
Hey, I hope your day gets better and much love from Arkansas ♡♡ Always happy to see your vlogs
I've been doing ketamine infusions for a little over a year for my chronic pain (CRPS/RSD) and it has been a miracle treatment for me because opioids don't work on me. I hope you can get some relief!
Megan Naylor I also have CRPS!
That is so nice to hear! How often do you need to get them?
Four infusions a month of about 1200mg Ketamine. I hypermetabolize most drugs so they give me more than what they give most people. I go from having 9/10 (full body)pain to a 2/10 after infusions! I'm blessed that insurance pays for it.
Chronically Jaquie I use a ketamine compound cream but my mom gets infusions every couple months.
Thanks y'all! I appreciate it! I am interested to see how long the injections and Ketamine lasts for me. Hopefully they both last a while!
Hello, you said that being in the car for a long time makes your pain worse. Maybe getting one of those heating pad seat covers for the car would help since that's what you use when you get home. Glad the pain management appointment went well. Take care and God bless.
I did not know they had those! I would love a heating pad in the car. Thank you!
Chronically Jaquie they just plug in the cigarette lighter and i love mine. I spend too muvh time in the car and its not a good position for my back. I love mine especially in the winter in the uk
So glad your appt went so well. I truly hope it works well for you. Living with the level of pain that we have all the time can make it very hard to communicate to Drs how bad it is because they usually have no real reference. So happy this one gets it.
Harlow is an angel as always. I loved that look she gave you about putting that chew away. Lol! So adorable! And Judd, you are right. These are the thongs we do for those we love and I thank God she has you. You really are a good man.
I have EDS and your videos are such a comfort and inspiration. In addition to EDS..I was recently diagnosed with anklosing spondylitis (they found it due to the exorbitant pain and fatigue after multiple blood tests). It's a form of spinal arthritis that's autoimmune induced. You may want to get checked for it (as neck problems are one of the initial symptoms). I was tested for h1b27. I've started a new medication that I hope will lessen the attacking of my immune system against my spine.☺️ *Gentle hugs!*
I don't have chronic illnesses but I do really enjoy these videos, they've really opened my eyes to different ways of life ❤❤
Hey Jaquie, is your hair naturally so beautiful or do you style it? x
You are so sweet! I blow dry my bangs (if I can even call them that, lol) because that is all I can handle, takes 2 mins. Then sleep with it wet, and flat iron out and kinks. Takes about fie minutes :) I am so thankful it is easy to manage.
Thank you Jacquie, you explained it so well😊
I can completely understand the neck pain. I'm on muscle relaxers and naproxen, both of which is a last resort. I do heat and ice therapy which do help some. Once a month I do trigger point therapy with Novocain to help with most of the pain. I've tried PT and that does nothin. I have Degenerative disc disease in c5-c6. Im going to be starting my Orencia for my RA which should also help with the inflammation in my neck as well. Good luck with the new update and hopefully all will work out.
Hi Jaquie. I'm currently working on training my dad's dog to become an alert dog for his diabetes. She won't be a full time service dog due to his work situation and some sociability issues she has but we want her to be able to alert whenever his sugar drops. Do you have any advice for new trainers?
I do not have a lot of experience with sugar detection training, but I recommend following Luke and Jedi on FB. They are a great team! As for OT in general, I give advice in my Service Dog 101 video :)
Hi Emmy. I actually JUST watched an outstanding vdeo on the Frey family's UA-cam about how her dog was trained with cotton balls and saliva to pick up and detect low blood sugar! I think their UA-cam is the Frey Life and then scroll for the video with the dog behavioral therapist and "all about oliver", her dog. I hope that helps; it really fascinated me.
Emmy Lee Also worth looking into The Dale Tribe. They are service training their dog Phoenix to detect their youngest daughter Aspen's blood sugar as she has type 1 diabetes x
I am prescribed to narcotics like morphine(helps with pain but makes me very tired)and lorazepam(helps with my anxiety).
I have a chronic disease called Duchenne Muscular Dystrophy and suffer from pain in lots of areas like lower back,rib pain,and shoulder pain but I wish there was a different way to manage the pain because I hate taking narcotics and try not to but sometimes it isn't an option.
Being in a wheelchair all day is not as easy as it looks.
I may not have that much in common with you but I am glad I found you because I feel like I have a connection with you in someway which makes me confident enough to talk a little bit about myself.
You have to teach Harlow how to dust with the Swiffer. That would be a cute video. Wow what a look you got when you asked her to clean up. Glad that your appointment went will. It's great to have a doctor that listens and understands you. Sending prayers.
I suffer chronic pain myself, going on 20 plus years. It does take it's toll, I actually hate having to leave my house, I just want to rest. I feel for you.
I'm so happy to hear you have found a good one! I've been going to pain management for years for spondylolisthesis and scoliosis associated pain and have CPS. If there is anything I can help answer I am more than willing to try. I really am interested in seeing how the ketamine works on you, and it makes me want to ask for it the next time I go in for my shots. Stay strong sister in pain! I'm sending love and prayers your way!
Toradol (Ketorolac) can increase risk of heart attacks or strokes in some patients. Watch the dose and keep the daily below 40mg per injection. Short-term, it also has some nasty G.I. side effects, like bleeding and ulcers. It will be interesting to hear how you feel after an injection. Ketamine also has a favorable side effect profile compared to benzos or other DAs. Good luck!
I wish my hearing was more like yours. My SPD is so sensitive. I had to mute the restaurant scene because it was so loud for me. :/
It effects everyone differently just like every chronic illness. Mine is not too terrible and OT has helped.
Sometimes i feel bad I am getting enjoyment out of watching a vlog about someone with chronic pain and etc..but it is very fascinating and helps me learn some things since my wife has EDS as well.Harlow had such a sad face when she had to pick up her toys,lol
I do not think it is a bad thing, to be interested in learning more! My goal is to help educate others (:
So glad the appt. went well. So many times I've left pain mgmt. frustrated since there's not anything left to try.
Oh my gosh I just love your dog so much! She is so smart and adorable!! My daughter and I want a golden retriever so badly!! 🐶❤️
Jackie, my daughter is having the same issue but she has RSD/CRPS (reflex sympathetic dystrophy/complex regional pain syndrome). She called again today from school crying. She is fine on the outside but in so much pain with her ankle and leg. It turns purple at times and gets real cold. The kids at school and even teachers have resorted to making fun of her and telling her shes faking her disease. I have about had it. She is 16 years old. I also have chronic pain.
TRICARE DOES COVER KETAMINE! Infusions, creams, pills, etc! Tricare is truly amazing!
Oh wow, good to know! Thank you so much!
I was gonna ask if you can take THC oil but never mind
So glad it went well and things look optimistic! It sucks that some of our bodies only respond to pills and chemicals. 😕
SO TRUE. Why can I not smell a flower and be pain free? I would love that. Thankfully massage therapy does help a bit so I am going to start that again.
Chronically Jaquie :) I totally get that feeling, Hopefully this brings you longer periods of relief! you have such a yearning to live and enjoy that wants us as a community to see you do and see things and not have to constantly have time limits. We all want that but seeing the improvements from IVG and the new button atleast i want to see if their are more "fixes" to come! Simple things made easier....unlike my rambly brain!😂
Hi Jacquie i'm from Panama I love your videos I also suffered of Dysautonomia and CRPS. I take a lot of meds but they doesnt kill the pain to 0 but they helped me to stand day by day. When Im in a lot of pain I have to used Ketamine inpatien for 7 day in ICU that was in Philadelphia the first time because here no so many doctors do it. It was fantastic. Then we find a doctor here in Panama who is now my pain manegement doctor. I have had many infussions here in Panama. Now the problem is that ketamine is not coming to Panama and I need to buyed it in USA :(. Im a medical doctor doing my internship that is so hard because i have to do long shifts of 24 and 32 hours without sleep but I loved it💕 Because of my chronic illnesess I had to graduated when it was possible and do my work on my own rithm. If I had to stayed in bed that they well thats my chronic life like you said we have to keep moving forward😊💕. Sorry for the long message😶
If you can stand it from a sensory perspective, I find Salonpas stickers quite useful, especially for my neck and shoulder pain. I also use a topical rub that I can only get in the UK; it's called Radian B, and it combines ibuprofen and capsaicin. For some reason, that combo really works for me. I can send you some if you want to try it and if your docs approve! I also use lavender spray on my heating pads and wheat bags--I think the relaxation helps relieve the pain indirectly.
toradol yes@ helps me alot message therapy and water help what about instant pain i feel so bad that you go through pain im so sorry i cant i have to take my meds for pain i get high blood pressure when my pain gets too high no marijauna is bad my opinion
Do you ever worry Harlow will get burnt out? How do you help protect her from burnout?
Not so much anymore as she is matured, but during training it is something to be mindful of. Find a balance between off time and work, but she LOVES to work. However, I am not very active in public due to my health so we are home a lot and she gets a lot of off time to be a happy dog.
I'm glad you touched on the MM legalities! I don't think people realize how restrictive it is in Florida. People recommend it to me all the time and while it's something I'd be willing to try, I don't qualify as I don't have one of the very few conditions they have on the approval list. People just read the headline of "Florida approves medical marijuana!" And not the asterisk of *for people with a few conditions.
It sucks, but I'm sure it will be legal federally someday soon.
Some day! It is also not being dispensed well here AT ALL yet. Frustrating for people who really need it :/
It really is frustrating! Hopefully soon they'll sort it out, it was recently legalized after all. I would think with all the examples though they would get it together. Ah well, Florida loves being a mess I suppose lol.
miss-megative what conditions does it cover there?
I don't know if specific positions could end up injuring you, but one of the surprising side effects of total pain relief for me was that I accidentally put myself into positions that re-injure my back. So if you have great success with your pain management (I hope you do, it sounds promising :) ), definitely keep that in mind. Because when the medications wear off- ooh unpleasant surprise. ;)
I am possibly getting Ketamine as well. My chronic pain journey has been treacherous, and very long. It's kind of my last option, but some of my doctors are hesitant to try, because of the way my pain is, and the amount of the things that has been unsuccessful. (which has been everything)
My doctor said it is safe, but hard to get insurance coverage. I mean, everything has risks and generally you do not want to use sedation unless you need to, but since I need it anyways and I am a good candidate we will use it. I am hoping you find a good solution!
Amen Sister to Chronic Pain. It drains any good energy one may have replacing it with weakness, more joint, tissue & muscle pain, in my case, I have Fibro, Peripheral Neuropathy in hands/arms/back/legs/feet. They are always falling asleep, tingling/burning/stinging, deep bone pain, and the list goes on. It's too long to list them all. The pain that accompanies all these various invisible illness' is also too long to list. My list of invisible illness is too long to list but I will say again, Fibromyalgia is my worse monster. Isn't it amazing how we're able to hide our disabilities, our pain & depression, behind smiles so fake they look real? I've suffered chronic pain my entire life. As far back as I can remember. One learns to hide it because others simply don't understand or seriously don't want to be brought down by it. Luv this vid +ChronicallyJaquie. You touched on a lot of positive & negatives of chronic pain. Subjects that ppl with chronic pain never think about but are always on the minds of non pain sufferers.
Yay for good doctors. And praise God for the ones that love us and stand by us even we are at the worst moments of our lives.
Love to Harlow xx you make a beautiful family xx
I tried ketamine infusions for my severe fibromyalgia pain (and depression) and I was super bummed that it didn't work (especially since I flew out of state because it's cheapest in denver). Luckily my parent's insurance covered most of the cost. I hope it works for you, wishing you the best of luck
It's very interesting to hear that your using Ketamine. I have been following studies about its use to permanently treat depression. It's supposed to be given in six doses of very low dosage but it's also experimental. So not covered by a dr. And it's about 600$ per dosage. Your supposed to not have to take anti depressants after and your depression is cured. I'm waiting a little to hear more about the experiments and than decide if it's worth the cost.
I have heard it helps with depression too! I think modern medicine is incorporating it more and more due to promising results. Some insurance companies are even covering it now!
Chronically Jaquie Really will u take note of if u notice a change in your mood ? It would be neat to see what your experience is since your already getting the treatment. Anyway I'm sooo happy to hear you have hope now in achieving a less painful life. Always sending good thoughts and your inspirational.
Have the doctor add bupivicaine to the toradol. It doesn't have to be a lot but it's long lasting and helps heaps! I'm praying for you every day. I wish I could sit down and chat with you in person. Hugs!
I've been thinking about seeing someone again for my chronic pains, I've just been pushing it off to the side for so long after my two heart attacks. Because for I had them I was seeing someone for it, but that was like a year ago now. Doctors think I have nerve damage or muscle damage in my spine that's causing all of my chronic pains in my body.
I was pushing it off as well because I was preoccupied trying to handle the other aspects of my health. But I realized that a good quality of life entails maintaining all aspects, including my pain! (:
Chronically Jaquie I've been preoccupied with other health care as well, since I have CHD and other chronic illnesses. But I've also been scared to look further into my pain, since I've been told if it is nerve damage I would need surgery, and I haven't had surgery since I was three. So that topic worries me a tiny bit.
I was curious about your thoughts on cannabis as an option for you. Thanks for addressing it.
She mentions her thoughts on the topic towards the end of the video
gorilla glue I just did a video on my channel about this as well. If you use medical cannabis , please let me know how it works, and how it helps you.
Team Julie against Ovarian Cancer I do use it. My regular doctor signed for my card when she saw how much it helped with my severe peripheral neuropathy, anxiety, etc. I can actually sleep now. It's amazing!
I use it for my severe fibromyalgia pain and I find that it works better than narcotics. The only issue is that I hate feeling high, but I need thc for pain relief (but cbd works for most people, it just doesn't for me for some reason). It helps dull the pain and I would be having an even harder time without it. I use it in tinctures and occasionally vape it, so it doesn't have any negative health effects for me.
I read that as cannibalism.... lol...
So happy that you're able to eat more Jaquie!
I really enjoy your videos. I don't know whether this is a too personal question but how do you deal with intimacy and self love, acceptance and confidence? I suffer from an endocrine disorder and this past year has been horrific in regards to me losing my confidence and I've gained weight and my life just isn't the same as it was before my surgeries. I'm 33 and feel like I'm 63. Do you have any advice? Tfs xox
I do not talk about intimacy as that is between my husband and I, but as for self worth I see it this way: Chronic illness can impact our physical appearance. But I am still me, 100%. Sure, when I dropped to a dangerously low weight and looked like I could break I did not like the way I looked. I needed to adjust to the tube coming out of my stomach. But there is so much to beauty beyond our looks. I find beauty in the way I treat others, in how I reach others with my story, in how I hold my husband and how I am brave enough to face all the challenge and still be me at the end of it all. My body is incredible for going through all this and STILL being here, and that resilience is what I find beautiful, tubes, ports, scars and all.
Chronically Jaquie I have had anorexia in the past and that comment spoke to me so much. You are such a strong, beautiful warrior x
sincerely all our love Julie and Jim
8:42 ♥️♥️♥️ i really wish there was an easy way to tell people this
What's your opinion on medical cannabis, such as cbd oil drops. Personally it's made a huge difference in my chronic pain but I know it may not be the proper option for you but if you haven't I'd recommend checking it out!