I’ve had fibromyalgia for nearly 20 yrs, I’ve been on benefits, unable to work so money is short, especially these days with rising cost of living. So while I get what you are saying about a floatation tank, I couldn’t afford the treatment regularly enough for it to make a difference, you are talking about someone who has loads of money and a privilege lifestyle , who could probably afford to buy a tank and use it enough for it to make a difference. Also if I didn’t take painkillers, I wouldn’t be able to function AT ALL! I know it’s going to shorten my life relying on them, but it’s a choice of quality of life, I wouldn’t be able to spend any time with my grandchildren, go to the shops or a walk, unless you’ve lived with this condition, you have no idea what it’s actually like. It’s a living nightmare, that’s my best description.
Just to be clear I’m not recommending a floatation tank. I don’t think this strategy alone will make a significant difference. The most important is finding a variety of strategies to manage pain (medication may be a part of that) and also engaging in your valued-activities like you mention. The point in this video is Gaga getting mental health support for her PTSD as one of the things that help her. I don’t recommend a floatation tank to any of my patients. I hope that clears things up a little. I appreciate your comment 😊
@@TheWellnessPuzzle I’m sure it does help, but she has the money to pay for all sorts of therapies, I had three yrs of seeing a psychologist, from childhood trauma and ptsd, it has helped me deal with some of the trauma, but it did not improve the fibromyalgia, I’ve tried meditation, acupuncture, cupping, gentle exercise, pacing, sleeping less, sleeping more, it does not improve my ability to sleep. I’ve tried massage, spa treatments, nothing works and eventually I cannot afford to carry on with a futile attempt to get well! I’m not kidding you, I did an eight week course to help me “reprogram my mind” off of feeling pain, as apparently it’s all in my head! 🤦🏼♀️ I gave it my all, I wanted to be well desperately, nothing! I’ve changed my diet, became vegan, became gluten free, it hasn’t help and not even the large amount of pain medication I am on only takes the edge off the pain. I know you were trying to help but unless, as the saying goes, you’ve walked a mile in my shoes, you have NO idea! But thank you anyway.
I talk about this in my more recent video about acceptance. Sounds like you’ve tried a lot of treatments and, like many of my patients have found, that lots don’t help. This is my point around the financial side. Even people who spend a lot of money don’t always get a good pain relief from them. This channel and the videos I make are all to help people with pain. Just trying to help where I can 😊
Hello, oh bless you, yes me too, I have been on pain relief for 20 years for fibromyalgia, also arthritis. Like you I cannot get through the day s or being with grandchildren, friends ect.sounds odd to some people but like you, I do understand its a lot more involved isn't it and I don't really like to talk about me having it but we do need to let people know at times,.haveing a soak in the bath or soaking feet in warm water and Epsom salt s is soothing but not a huge relief. I hope and pray there will one day be a better cure for this,but we will take our pain relief s won't we and enjoy things when e n we can. I do hate the effect it can have on us,I shall pray for you 🙏 and do take good care,,😊
@@hetty2974 thank you! I will pray for you too. I also have osteoarthritis, so cannot get into the bath but soaking my feet does help, it affects my hands and feet badly, my neck, shoulders and back. Well, everywhere to be honest but that’s preaching to the converted isn’t it! I’m thinking of you and I pray you have some relief from pain Hetty.
Lady Gaga got money, that is what is healing her. She can afford to pay for all these tests that need to be done, for example looking for heavy metals in your system, candite's, and other stuff and she can afford massage, acupuncture, etc. if she does not feel good, she get's people to buy her what ever she wants etc. She probably lives in a very healthy environment with trees and flowers etc . and quietness and she does not have to listen to screamy intitled kids living next door and she is not forced to move all the time when the landlord wants to do " fix up the place " so he can charge more money. She does not have to live in fear of being sick, living on the street etc. etc. etc. So now I will watch the video.
Well said!!! When you have money it makes all the difference. The fear comes from worrying about affording to do all these additional treatments example acupuncture etc. She can’t be compared to the “regular joe” Fibromyalgia is really difficult to live with and it is a judgement that comes from others without the condition. Lastly I heard Lady gaga users marijuana oil for fibromyalgia that can help manage this painful condition to a certain degree.
I was diagnosed with it over 35 years ago & have run the gamut of various different treatments. NONE have worked. The drugs are insufficient & addictive, but when you're in pain you don't care about the addiction aspect, if they help you have some semblance of a life. In my experience, the medical community still tries to categorize it as mental illness in some places, or they just flat refuse to give pain meds out of fear of losing their medical licensing, so the Government is an institution of ignorance & cruelty, in my opinion. This condition has destroyed my life & Doctors have added insult to injury by refusing to be the least bit compassionate enough to care.
After living with fibromyalgia for 23 years, this guy sounds like all we need to do is go get therapy. I think that if that was true, a lot of people with fibromyalgia would be cured. I know of no-one being cured after therapy. He minimizes the misery in which we live. I find this video repulsive.
I know the feeling. I have it for more than 10yrs. I can heal others instantly to the point that they would feel deeply relaxed or even floating and their pain reduce significantly, but can't seem to heal myself.
Yes, it's an added cruelty. Very exhausting. We would just like to be left alone rather than TRYING to explain the condition to people who could just go on UA-cam or do research on the internet, and not add insult to injury for those of us that suffer one of the worst chronic ailments imaginable. Stay strong 💪
I was prescribed tramadol for fibromyalgia about 10 years ago, it made a massive difference to my life, in a good way. It didn’t just stop the pain, it meant that I can go outside without wearing sunglasses. On bad days I would have to wear sunglasses indoors because I found the light too bright.
I under stand that, I can’t stand bright lights. I mostly use lamps on in the home. And never go out without sun glasses. Tramadol does help me, it takes the edge off, light exercise, stretching living in a warmer climate helps. Chronic pain is a horrible, to live with, I’m glad it’s now being talked about. Thank you for this video.
I’m a huge Gaga fan I’ve seen her shows several times. As a fan with F/M I wish Gaga a long healthy painless life. I’d love to see Gaga fund medicinal studies and to work with specialists in this country and others professionals in this field to help us find alternative medications and eventually a cure for this misunderstood disease. God speed to all of you with Fibromyalgia 🙏❤️
I have fibromyalgia and did a very good group therapy course. I am not traumatised as described in this video. I have an autoimmune problem and the group therapy course I went on helped me manage my symptoms by regulating my activity throughout the day. It means pacing yourself by redesigning your life so that you get regular short breaks. Move around and dont sit in one position for long hours. Taking steady regular exercise like walking. Inactivity is just as bad as heavy work.
Thanks for your comment and sharing your experience of the course 😊 it sounds very similar to the pain management programme we run and these strategies are helpful for long-term management. Thanks for sharing!
If we all had Gaga's money (and I certainly don't begrudge her for earning what she made) we could hire people to help us when we need help. Doctors' first go-to medication is antidepressants. Without going into all the reasons they justify using them, the fact remains very few doctors knew anything about FM until this last decade. What they fail to do is learn from their patients who have lived with it for decades. I trust you have other videos geared more toward the average (and in many FM cases below $$ average circumstances) FM sufferer, especially those who live alone. Singles with FM do far worse with the condition due to lack of any support or assistance. Thus, their diet is affected (meal preparation, etc.) and ultimately worsening their overall health. Good to know Gaga is at least making the effort to bring this condition to the public's attention.
Totally agree with everything you have said, thanks for the comment 😊 Please check out my other videos as well as these are aimed at the general population with fibromyalgia
I was diagnosed with fibromyalgia, cfs, and ME in 2005, I tried everything😢 my gp tried me on every bad drug going (opioids) 😩 he gave up on me, and refused any drugs that were deemed to expensive a better option than opioids 🙄 I had to get on with it on my own, but in 2014 I became worse again trying to find out why I felt so bad, my gp just kept saying I have fibromyalgia.. That's it!!! I struggled on still going to see my gp who was quite frankly sick of me, until I collapsed and we're taken to my surgery where I saw a completely different doctor who immediately told me I had an overactive thyroid (I did suspect this early on in one of my many appointments to the other gp, but he just brushed it off as.. Fibro) turned out I actually had graves disease thyrotoxicosis and lost my thyroid 😢 graves is an auto immune illness and I do feel my fibro diagnosis was the catalyst for the graves. I would swear even after full thyroidectomy I'm still suffering with a auto immune illness of some kind but gp will not have it 🤷♀️😠
Holy cats! Totally get doctors giving up on you. I was undiagnosed with Fibromyalgia for 13?years. I feel for you. It’s hard to find docs that r any good and have the interest in helping difficult to diagnose people. My friends with thyroid disease weren’t showing on regular tests but their GPs sent them to Specialist within year of trying. I’ve been in ur shoes & had to make suggestions to docs & find new ones if they’re not open to a dialogue of “what do u thonk about..” It gets disheartening & fosters an attitude of hopelessness.
This mentions epsom salts baths. I also want to recommend epsom mineral flakes. They will actually allow you to float on top of the water and it’s very relaxing. I just use it in my bathtub because I can’t afford to go to a spa or anything. Wishing you all a low pain day. 🙏🌺
Not forgetting she's got loads of money to spend on all this therapy etc. What about people like me, who can't afford to pay for all this treatment? Perhaps you need to do a self help video that doesn't involve spending lots of money.
i have literally tried everything under the sun and i still suffer with this god awful illness it hyjacks your life over night for 25 years i go to bed and think maybe tomorrow i will reappear just maybe🇬🇧
I wear wrist splints at night, to help with chronic pain in both hands, does give some relief. Pain is exhausting. It moves about the body, weeks of chronic pain in the shoulder/s just have to rest, sleep on back, can't on sides as unbearable pain. Then that starts to ease, and then periods of painful to walk, or migraines, exhausting,, feel so exhausted. Pain on right side, Heart races. Comes and goes, couldnt lay down, had to sleep upright on a chair for couple weeks. Brain fog, at times can't remember stuff, Eyes pain, facial burning, neck pain, now rosacea to deal with! Can't let my skin, eyes, be exposed to sunlight, feels like burning pain. Flares! So cover up. Even temperature changes is irritating at times. Sets of nerve pain. It's an ongoing maintenance of self care, to keep going. Ibs, thyroid, bpp vertigo, can't wear certain clothes anymore, I do find mindfulness at times helps, listening to Tara brack on UA-cam, Soothing Thai chi music Being in nature, listening to the birds, Having a pet, ( at times it's a challenge when not feeling great, but pets give comfort, and love, which is uplifting. I love to dance, but it hurts, so limited ! Loved walking, but now I over heat.or feet hurt. Can't carry shopping! I am grateful, I am learning to be kind, compassionate, being present, and starting to love myself. To see the blessings . And yes, had alot of childhood trama, abuse, grief, stresses in life, I was very hard on myself, worked 24/7 Sending love, wellbeing wishes to all 😇☘💕🪴
I am 35 and was just diagnosed with this disease and I have no idea how to manage it. My whole upper body hurts like someone is pulling apart my muscles. My head starts to hurt with a migraine, the neck back shoulders ribs stomach legs all hurt like I never felt this much pain to the point I am shaking in pain and crying in bed. I can’t even wear a shirt when I am home and I just want to die with this. It seems like no one is helping me they want you to do physical therapy I cant hardly move. I wish there was a way for this to go away. But seems like it’s 24/7 non stop. I can’t even sleep. Than I have to go to work and suffer there and feel embarrassed because of the pain I can’t grip things I drop things easily I can’t lift anything heavy. It’s a total living nightmare.
I am glad she shared her diagnosis with the world. I also want to say that few of these "tips" are affordable to the regular folk. I am a nurse and can barely afford Lyrica with insurance, let alone a deprivation tank. Don't even know where to find one. Again, those that have money get treatment in this country while the rest of us languish in pain and disease. Capitalism at its best. 😢
I know the feeling. I have it for more than 10yrs. I can heal others instantly to the point that they would feel deeply relaxed or even floating and their pain reduce significantly, but can't seem to heal myself.
LDN is what a friend of mine takes. A natural supplement. I struggle and I havent tried this yet. Opioids so help. Working out helps but if you dont have anything to help with pain after a workout, when you first start working out, then it makes is difficult to even start doing the light workouts and paying for it later. I had mine under control till lockdowns. I live in a small apartment and didnt have anywhere to workout. I like the elliptical. Now I try light workouts but the next few days kill me. I had help with opiods when I found out I had fibro and started working out. Now they treat people like drug addicts if you need help with pain! Its rediculous. I know I could get back in shape if I had some help with pain. Our medical system is a joke.
This guy is talking about a singer who has a fortune and able to afford any number of treatments. We need to hear from people who are living on benefits and could not afford these things. There is no cure, just learn to live with it. Xxxxx
I have to fill you all in on some thing that helped my wife’s case amazingly well. For several years, she had it and was getting worse. The prednisone and other pharmaceutical medication‘😢s really didn’t do much and the painkillers stopped working. During a really bad painful flare we heard about NAD treatment which supposedly gets in all the mitochondria of all cells in your body and adds things that they need. After about an hour of the NAD IV she went from extreme pain to almost none. This was amazing as it was crushing both of our lives. After the first treatment we had them come out For another IV treatment 10 days later.. We were able to order some NAD itself and combine it with the sterile water for shots 50-50. And we did our next treatment at home with a diabetic needle three weeks after the second IV treatment. and every couple weeks we inject a little bit in the sub or fatty tissue on Hips or underbelly. You can Google NAD and the treatments. On her first one, they added a Myers gel, which to say vitamin compound. Her second IV they did not need to add it.
Spending money on tanks is not in everybody’s reach, for me it’s the pain killers, or perhaps a visit to a swimming pool, which of course is a noisy place, sometimes for me the words are not enough to express the anguish of the condition ,I stand with the millions of people those who suffer from fibromyalgia, all I can say to them is look after yourself because you are your own nurse God bless.
If I had money I would know I to have a better quality of life with fibromyalgia for over 30 years, it’s very hard when you have to suffer and there’s much you can do because you broken all the time.
I've had it for 49 years. With 2 diabled adult sons, money would go a long way to help. I would love to try all her therapies, but it would have to be after cooking, cleaning, laundry, and crying! Also, walking a 1 year old sheltie dog they just had to have! Lol, not making fun of her, but money may not cure it, but it would make life easier!!!
I feel for her as I have fibro and PTSD as well. My doctor has prescribed Amitriptyline at bedtime. I like to call it "Am I Tripping". LOL I also have other mental health issues as well.
Had Fibrio for about 14 yrs. Found Low CBD excellent. Really helped me a lot. Cleared up brain fog and have wonderful sleep at night. Plus Tramaset the day pain is unbearable. From South Africa
Hi. also My Dear Friend Eric From Switzerland He Still Go Though Fibromyalgia Pain Now Still Very Sad I Feel Sorry For My Best Friend Eric 🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾
I'm so glad she shared this it brought awareness before this we were said to be depressed and crazy & referred to psychiatrist, actor Morgan Freeman was also diagnosed but declined to discuss his journey
14 years ago I was in a pain management program for 6 weeks. Guided meditation in a zero gravity chair was very helpful in reducing my fibromyalgia pain. Also another provider told me not to identify with my pathology. Almost everyone deals with some sort of chronic condition or pain.
Thanks for sharing Elizabeth 😊 I’m pleased to hear you benefitted from a pain management programme! I run them weekly and we see some really positive results with people. Yes, important that our conditions do not make up all of our identity 😊
She was misdiagnosed, she has something else....this doesnt surprise me, because she doesnt flare up after exerting herself....this was a bad thing for us...not a good thing. Im so irritated by this situation, I cant watch the rest....she needs to make this misdiagnosis public😮
It’s ok if your Ritchie and can afford to be able to go to and pay for a medical relief treatment but for some people they just can’t afford it any thing medically is so expensive. And medications like opioids do help relieve the pain for a while but we all know that there is nothing that will take our pain away forever. And it makes it extremely hard when governments take away our medical pain relief so we just have to suffer with this chronic pain. Anti depressants do help and so does codeine but to Be able to take codeine every day for the pain the government has taken that right of us and it’s so wrong to make us suffer like this. They are even going to take Panadol of the shelf because of all these horrible people out there who use these medications to make bad drug out of them and don’t forget those people that don’t ever suffer from any pain there the ones that are the problems for us that suffer every day and our quality of life is chronic pain.
Fybromyalgia is a nightmare to live with you look alright but your in so much pain and really tried. If you do too much you pay for it the next day. Its to do with a terrible trauma as a child
Here's what helps me with Fibro: 1.) *Daily Detox* Drinks with clean Water (I use Water Destillation) 7 drops of FULVIC IONIC MINERALS, fresh pressed lemon juice, ginger powder, Magnesium and Stevia (natural sweetner). 2.) *Anti-inflammatory supplements* like Mizell-Curcumin, Boswellia Extract 500mg (from NOW), GLYNAC-ET (from Nutri) ect. 3.) *Intermitten Fasting* and *Organic Anti-Inflammatory Foods* (Gluten and Lectin free). 4.) *Emotional and Spiritual Healing* of any kind: Mindfulness, Meditation, Forgiveness, Prayer, soft Yoga, Self-Love and being grateful❤
I would think that since humans evolved over millions of years with almost certainly a much higher incidence of trauma than what the great majority of humans experience today, that humans likely have great untapped potential to develop resilience in the face of traumatic events.
Yes I agree. But even though trauma may look different to how it did hundreds/thousands of years ago. The nervous/immune system response can still be similar
Perhaps these earlier humans did experience much higher trauma, but they also died so much younger from disease, accidents, childbirth complications, etc. If they made it to age 30, they were lucky especially women who had to endure the hardships of multiple, frequent pregnancies at a time that even doctors didn't know to wash their hands before delivering babies. Perhaps people didn't live long enough to really develop fibromyalgia. Modern medicine has allowed many people to live so long with the discovery of penicillin, the polio vaccine and other life saving drugs.
Massage is comforting and takes pain away for hours. Should be covered by insurance since they took away my pain killers for seniors! Now they want you to use marijuana. I'd rather use that because the drugs they give you a for pain are horrible. I'm allergic to many drugs. I also have autoimmune disease. I don't need therapy, I need painkillers. I'm 72 and too tired for exercising with all this pain. Young people have no idea what old people are going through. They Push for exercise all the time. And it does not work for everyone, especially senior citizens! MCT 25.1 CBD works for pain.
"team" of doctors, and medication ... well most of us have no doctor and meds are extremely hard to get and keep your prescriptions valid, again without a dr...
Fibromyalgia is a long-term condition so medication will not take away the pain. However, medication like duloxetine may help reduce pain levels. It can take up to 3 months for the medication to take effect. If it’s still not helpful after this, it’s worth booking a review with your Consultant/GP/Family Physician
It sounds like only people with previous trauma will get fibro. Surely, everyone, everywhere, has suffered some form of trauma. Every living person should have fibro.
Rand a mental health chrisis line and hang up after queueing for 10minutes.. "team of professionals eould be great, or ability to pay for things like acupuncture or therapy
A lot of patients present with these symptoms with normal levels of magnesium (after testing). Although vitamin deficiencies should always be considered as a differential
Vitamin D deficiency and take 50,000 units once a week. Helps with muscle pain. Ibuprofen if the pain gets real bad, but judicially as it can cause stomach upset. Epsom salt bath can help, too. Just keep.moving. cut down on sugar.
You are partly right. It is definitely an immune response which triggers causes the nervous system to react to pain signals in an intense way that is far beyond normal. It also causes reactions to light, heat, cold, exhaustion and poor sleep patterns as well as fibro fog confusion. Its all about inflammation and the nervous system. I do find certain foods make it worse.
@@brianthesnail3815 2 years ago i was diagnosed from Kaiser that I had Celiac disease, fibromyalgia and peripheral neuropathy. I took a good look around at all the people with this stuff And after a year I threw out all the meds, and simply quit everything in life that I love , everything till I only ate washed steamed rice and and bottled water that I reran through a Zero water filter and in 2weeks I noticed less crippling pain ! But still counting my steeps because I only had so many in a day and the higher your pain tolerance the more tired you get later, then I started using the Chinese bamboo toxin removal foot pads , Castor oil wraps for your liver, thyroid, hands and feet and after 5 weeks I had zero body pain, then I started adding back foods till I found what made me sick. Then it hit me I’m not sick I have an allergic reaction to the pistachios, I have been running around lately like I never had pain before. It’s been 2months now I have not gotten glyphosate in or on me. And now I strongly believe that all disease we have now on this planet, have a Chemical cause ! So all that time I spent in extreme pain listening to all the Doctors living a Crippling hell, all I had to do was not eat the glyphosate in the food supply anymore, lol go figure ! So partly right or wrong I’m good with zero pain, and not living in hell giving all my money to the doctors for nothing that helps Me ! Not them !
Fibromalgia is more likely a misdiagnosis for Myofascial pain syndrome. Myofascial pain syndrome is the MOST common manifestation of chronic pain. Diagnosis of myofascial pain syndrome is by systematic palpation of the soft tissue by an experienced examiner. It is treated with a treatment called dry needling. It takes many months even years to reverse years of persistent pain. Don't listen to fibromyalgia diagnosis. It is a very evil and trashcan diagnosis. It removes any difficulties or effort for doctors to treat you.
@@TheLuminousOne I believe that this lack of recognition of myofascial pain syndromes occurs mainly because primary care physicians, who treat about 60% of back pain patients, orthopedists, who treat another 25, and internists, who care for the rest, are completely unaware of their existence. Consequently, their patients are treated improperly for other conditions, with the result that they progress to a chronic pain state. Correctly diagnosed and treated, however, it has been found that patients are not only quickly relieved of their pain, but their function Is restored and they return to work sooner. The crux of the problem may best be illustrated by a quote from one of the authors whom Fitzcharles et al cite, Dan Buskila, who made the following statement in response to a question whether myofascial pain syndrome (MPS) was a differential diagnosis to FM in his clinical research on FM in individuals who had sustained cervical injuries. “I am a rheumatologist, and we rheumatologists do not know anything about myofascial pain syndrome.” www.ncbi.nlm.nih.gov/pmc/articles/PMC4532209/ Letter to the Editor Ellen Nergård Thompson, MB BS FRCPC
I’ve had fibromyalgia for nearly 20 yrs, I’ve been on benefits, unable to work so money is short, especially these days with rising cost of living. So while I get what you are saying about a floatation tank, I couldn’t afford the treatment regularly enough for it to make a difference, you are talking about someone who has loads of money and a privilege lifestyle , who could probably afford to buy a tank and use it enough for it to make a difference. Also if I didn’t take painkillers, I wouldn’t be able to function AT ALL! I know it’s going to shorten my life relying on them, but it’s a choice of quality of life, I wouldn’t be able to spend any time with my grandchildren, go to the shops or a walk, unless you’ve lived with this condition, you have no idea what it’s actually like. It’s a living nightmare, that’s my best description.
Just to be clear I’m not recommending a floatation tank. I don’t think this strategy alone will make a significant difference. The most important is finding a variety of strategies to manage pain (medication may be a part of that) and also engaging in your valued-activities like you mention. The point in this video is Gaga getting mental health support for her PTSD as one of the things that help her. I don’t recommend a floatation tank to any of my patients. I hope that clears things up a little. I appreciate your comment 😊
@@TheWellnessPuzzle I’m sure it does help, but she has the money to pay for all sorts of therapies, I had three yrs of seeing a psychologist, from childhood trauma and ptsd, it has helped me deal with some of the trauma, but it did not improve the fibromyalgia, I’ve tried meditation, acupuncture, cupping, gentle exercise, pacing, sleeping less, sleeping more, it does not improve my ability to sleep. I’ve tried massage, spa treatments, nothing works and eventually I cannot afford to carry on with a futile attempt to get well! I’m not kidding you, I did an eight week course to help me “reprogram my mind” off of feeling pain, as apparently it’s all in my head! 🤦🏼♀️ I gave it my all, I wanted to be well desperately, nothing! I’ve changed my diet, became vegan, became gluten free, it hasn’t help and not even the large amount of pain medication I am on only takes the edge off the pain. I know you were trying to help but unless, as the saying goes, you’ve walked a mile in my shoes, you have NO idea! But thank you anyway.
I talk about this in my more recent video about acceptance. Sounds like you’ve tried a lot of treatments and, like many of my patients have found, that lots don’t help. This is my point around the financial side. Even people who spend a lot of money don’t always get a good pain relief from them. This channel and the videos I make are all to help people with pain. Just trying to help where I can 😊
Hello, oh bless you, yes me too, I have been on pain relief for 20 years for fibromyalgia, also arthritis. Like you I cannot get through the day s or being with grandchildren, friends ect.sounds odd to some people but like you, I do understand its a lot more involved isn't it and I don't really like to talk about me having it but we do need to let people know at times,.haveing a soak in the bath or soaking feet in warm water and Epsom salt s is soothing but not a huge relief. I hope and pray there will one day be a better cure for this,but we will take our pain relief s won't we and enjoy things when e n we can. I do hate the effect it can have on us,I shall pray for you 🙏 and do take good care,,😊
@@hetty2974 thank you! I will pray for you too. I also have osteoarthritis, so cannot get into the bath but soaking my feet does help, it affects my hands and feet badly, my neck, shoulders and back. Well, everywhere to be honest but that’s preaching to the converted isn’t it! I’m thinking of you and I pray you have some relief from pain Hetty.
Lady Gaga got money, that is what is healing her. She can afford to pay for all these tests that need to be done, for example looking for heavy metals in your system, candite's, and other stuff and she can afford massage, acupuncture, etc. if she does not feel good, she get's people to buy her what ever she wants etc. She probably lives in a very healthy environment with trees and flowers etc . and quietness and she does not have to listen to screamy intitled kids living next door and she is not forced to move all the time when the landlord wants to do " fix up the place " so he can charge more money. She does not have to live in fear of being sick, living on the street etc. etc. etc. So now I will watch the video.
If you developed fibromyalgia after a car crash, how much would you sue for?
Agree
Well said!!! When you have money it makes all the difference. The fear comes from worrying about affording to do all these additional treatments example acupuncture etc.
She can’t be compared to the “regular joe”
Fibromyalgia is really difficult to live with and it is a judgement that comes from others without the condition.
Lastly I heard Lady gaga users marijuana oil for fibromyalgia that can help manage this painful condition to a certain degree.
Being rich and having a wealth of top treatments.
She has directly stated this. She also said that she has no idea how people could live with it without the drs and treatments she can afford
I was diagnosed with it over 35 years ago & have run the gamut of various different treatments. NONE have worked. The drugs are insufficient & addictive, but when you're in pain you don't care about the addiction aspect, if they help you have some semblance of a life. In my experience, the medical community still tries to categorize it as mental illness in some places, or they just flat refuse to give pain meds out of fear of losing their medical licensing, so the Government is an institution of ignorance & cruelty, in my opinion. This condition has destroyed my life & Doctors have added insult to injury by refusing to be the least bit compassionate enough to care.
Same.
Even denied access to EMERGENCY SERVICE!
After living with fibromyalgia for 23 years, this guy sounds like all we need to do is go get therapy. I think that if that was true, a lot of people with fibromyalgia would be cured. I know of no-one being cured after therapy. He minimizes the misery in which we live. I find this video repulsive.
Right he acts like poof we’re all better 😒
I know the feeling. I have it for more than 10yrs. I can heal others instantly to the point that they would feel deeply relaxed or even floating and their pain reduce significantly, but can't seem to heal myself.
I am in pain for more than 30 years, and nobody believes me that i'am suffering
All of us that have it believe you. I found that supplementing with magnesium and B1 have helped alot of symptoms to subdide.
Getting gaslighted, even without malice but lack of empathy and knowledge by people is another level of exhaustion and brainfu*k 🤕
Yes, it's an added cruelty. Very exhausting. We would just like to be left alone rather than TRYING to explain the condition to people who could just go on UA-cam or do research on the internet, and not add insult to injury for those of us that suffer one of the worst chronic ailments imaginable. Stay strong 💪
I was prescribed tramadol for fibromyalgia about 10 years ago, it made a massive difference to my life, in a good way. It didn’t just stop the pain, it meant that I can go outside without wearing sunglasses. On bad days I would have to wear sunglasses indoors because I found the light too bright.
I under stand that, I can’t stand bright lights. I mostly use lamps on in the home. And never go out without sun glasses. Tramadol does help me, it takes the edge off, light exercise, stretching living in a warmer climate helps. Chronic pain is a horrible, to live with, I’m glad it’s now being talked about. Thank you for this video.
@wendyhannan2454 you’re welcome 😊
I’m a huge Gaga fan I’ve seen her shows several times. As a fan with F/M I wish Gaga a long healthy painless life. I’d love to see Gaga fund medicinal studies and to work with specialists in this country and others professionals in this field to help us find alternative medications and eventually a cure for this misunderstood disease. God speed to all of you with Fibromyalgia 🙏❤️
I hope to see that as well 😊
I have fibromyalgia and did a very good group therapy course. I am not traumatised as described in this video. I have an autoimmune problem and the group therapy course I went on helped me manage my symptoms by regulating my activity throughout the day. It means pacing yourself by redesigning your life so that you get regular short breaks. Move around and dont sit in one position for long hours. Taking steady regular exercise like walking. Inactivity is just as bad as heavy work.
Thanks for your comment and sharing your experience of the course 😊 it sounds very similar to the pain management programme we run and these strategies are helpful for long-term management. Thanks for sharing!
If we all had Gaga's money (and I certainly don't begrudge her for earning what she made) we could hire people to help us when we need help.
Doctors' first go-to medication is antidepressants. Without going into all the reasons they justify using them, the fact remains very few doctors knew anything about FM until this last decade. What they fail to do is learn from their patients who have lived with it for decades.
I trust you have other videos geared more toward the average (and in many FM cases below $$ average circumstances) FM sufferer, especially those who live alone. Singles with FM do far worse with the condition due to lack of any support or assistance. Thus, their diet is affected (meal preparation, etc.) and ultimately worsening their overall health.
Good to know Gaga is at least making the effort to bring this condition to the public's attention.
Totally agree with everything you have said, thanks for the comment 😊 Please check out my other videos as well as these are aimed at the general population with fibromyalgia
I was diagnosed with fibromyalgia, cfs, and ME in 2005, I tried everything😢 my gp tried me on every bad drug going (opioids) 😩 he gave up on me, and refused any drugs that were deemed to expensive a better option than opioids 🙄
I had to get on with it on my own, but in 2014 I became worse again trying to find out why I felt so bad, my gp just kept saying I have fibromyalgia.. That's it!!! I struggled on still going to see my gp who was quite frankly sick of me, until I collapsed and we're taken to my surgery where I saw a completely different doctor who immediately told me I had an overactive thyroid (I did suspect this early on in one of my many appointments to the other gp, but he just brushed it off as.. Fibro) turned out I actually had graves disease thyrotoxicosis and lost my thyroid 😢 graves is an auto immune illness and I do feel my fibro diagnosis was the catalyst for the graves.
I would swear even after full thyroidectomy I'm still suffering with a auto immune illness of some kind but gp will not have it 🤷♀️😠
Holy cats! Totally get doctors giving up on you. I was undiagnosed with Fibromyalgia for 13?years. I feel for you. It’s hard to find docs that r any good and have the interest in helping difficult to diagnose people. My friends with thyroid disease weren’t showing on regular tests but their GPs sent them to Specialist within year of trying. I’ve been in ur shoes & had to make suggestions to docs & find new ones if they’re not open to a dialogue of “what do u thonk about..” It gets disheartening & fosters an attitude of hopelessness.
This mentions epsom salts baths. I also want to recommend epsom mineral flakes. They will actually allow you to float on top of the water and it’s very relaxing. I just use it in my bathtub because I can’t afford to go to a spa or anything. Wishing you all a low pain day. 🙏🌺
How to treat fibromyalgia: hire an entire team of doctors.
Cool.
Not forgetting she's got loads of money to spend on all this therapy etc. What about people like me, who can't afford to pay for all this treatment? Perhaps you need to do a self help video that doesn't involve spending lots of money.
Please check out my channel for videos like that!
i have literally tried everything under the sun and i still suffer with this god awful illness it hyjacks your life over night for 25 years i go to bed and think maybe tomorrow i will reappear just maybe🇬🇧
I figured it out myself without doctors
I wear wrist splints at night, to help with chronic pain in both hands, does give some relief.
Pain is exhausting.
It moves about the body, weeks of chronic pain in the shoulder/s just have to rest, sleep on back, can't on sides as unbearable pain.
Then that starts to ease, and then periods of painful to walk, or migraines, exhausting,, feel so exhausted.
Pain on right side,
Heart races. Comes and goes, couldnt lay down, had to sleep upright on a chair for couple weeks.
Brain fog, at times can't remember stuff,
Eyes pain, facial burning, neck pain, now rosacea to deal with!
Can't let my skin, eyes, be exposed to sunlight, feels like burning pain. Flares!
So cover up. Even temperature changes is irritating at times. Sets of nerve pain.
It's an ongoing maintenance of self care, to keep going. Ibs, thyroid, bpp vertigo, can't wear certain clothes anymore,
I do find mindfulness at times helps, listening to Tara brack on UA-cam,
Soothing Thai chi music
Being in nature, listening to the birds,
Having a pet, ( at times it's a challenge when not feeling great, but pets give comfort, and love, which is uplifting.
I love to dance, but it hurts, so limited !
Loved walking, but now I over heat.or feet hurt.
Can't carry shopping!
I am grateful, I am learning to be kind, compassionate, being present, and starting to love myself.
To see the blessings .
And yes, had alot of childhood trama, abuse, grief, stresses in life,
I was very hard on myself, worked 24/7
Sending love, wellbeing wishes to all 😇☘💕🪴
Thank you for sharing your experience 😊 I know it is not always easy to do so
I am 35 and was just diagnosed with this disease and I have no idea how to manage it. My whole upper body hurts like someone is pulling apart my muscles. My head starts to hurt with a migraine, the neck back shoulders ribs stomach legs all hurt like I never felt this much pain to the point I am shaking in pain and crying in bed. I can’t even wear a shirt when I am home and I just want to die with this. It seems like no one is helping me they want you to do physical therapy I cant hardly move. I wish there was a way for this to go away. But seems like it’s 24/7 non stop. I can’t even sleep. Than I have to go to work and suffer there and feel embarrassed because of the pain I can’t grip things I drop things easily I can’t lift anything heavy. It’s a total living nightmare.
The secret is all her money 🤑
Truth & reality.
Took the words right out of my mouth! I wish I can do that stuff!😢😢😢
I am glad she shared her diagnosis with the world. I also want to say that few of these "tips" are affordable to the regular folk. I am a nurse and can barely afford Lyrica with insurance, let alone a deprivation tank. Don't even know where to find one. Again, those that have money get treatment in this country while the rest of us languish in pain and disease. Capitalism at its best. 😢
Which ones are affordable to the regular world?
Stop. Laying in bed in horrendous pain is my only solution. Not floating in a hydro pool. The real person cant afford the cause or the cures.
All of the other strategies I talk about on my channel 😊
I have ME/CFS with torture pain from head to toe (whole body), cronic fatigue, vomiting, fever, and many more symptom
I know the feeling. I have it for more than 10yrs. I can heal others instantly to the point that they would feel deeply relaxed or even floating and their pain reduce significantly, but can't seem to heal myself.
Somehow throwing a "star" in our face who can afford everything and anything is a waste of you tube. I don't care what Lady Gag does.
LDN is what a friend of mine takes. A natural supplement. I struggle and I havent tried this yet. Opioids so help. Working out helps but if you dont have anything to help with pain after a workout, when you first start working out, then it makes is difficult to even start doing the light workouts and paying for it later. I had mine under control till lockdowns. I live in a small apartment and didnt have anywhere to workout. I like the elliptical. Now I try light workouts but the next few days kill me. I had help with opiods when I found out I had fibro and started working out. Now they treat people like drug addicts if you need help with pain! Its rediculous. I know I could get back in shape if I had some help with pain. Our medical system is a joke.
This guy is talking about a singer who has a fortune and able to afford any number of treatments. We need to hear from people who are living on benefits and could not afford these things. There is no cure, just learn to live with it. Xxxxx
You don't "learn" to live with it. You just live with it, no matter what.
I have to fill you all in on some thing that helped my wife’s case amazingly well.
For several years, she had it and was getting worse. The prednisone and other pharmaceutical medication‘😢s really didn’t do much and the painkillers stopped working. During a really bad painful flare we heard about NAD treatment which supposedly gets in all the mitochondria of all cells in your body and adds things that they need. After about an hour of the NAD IV she went from extreme pain to almost none. This was amazing as it was crushing both of our lives. After the first treatment we had them come out For another IV treatment 10 days later..
We were able to order some NAD itself and combine it with the sterile water for shots 50-50. And we did our next treatment at home with a diabetic needle three weeks after the second IV treatment. and every couple weeks we inject a little bit in the sub or fatty tissue on Hips or underbelly.
You can Google NAD and the treatments.
On her first one, they added a Myers gel, which to say vitamin compound. Her second IV they did not need to add it.
Spending money on tanks is not in everybody’s reach, for me it’s the pain killers, or perhaps a visit to a swimming pool, which of course is a noisy place, sometimes for me the words are not enough to express the anguish of the condition ,I stand with the millions of people those who suffer from fibromyalgia, all I can say to them is look after yourself because you are your own nurse God bless.
If I had money I would know I to have a better quality of life with fibromyalgia for over 30 years, it’s very hard when you have to suffer and there’s much you can do because you broken all the time.
I've had it for 49 years. With 2 diabled adult sons, money would go a long way to help. I would love to try all her therapies, but it would have to be after cooking, cleaning, laundry, and crying! Also, walking a 1 year old sheltie dog they just had to have! Lol, not making fun of her, but money may not cure it, but it would make life easier!!!
@@lindahughes5781 100%, it would help lots of us that have no money, take care Linda❤️
Best thing you can do is exercise, I worked out for 4 years and had less pain than ever.
I feel for her as I have fibro and PTSD as well. My doctor has prescribed Amitriptyline at bedtime. I like to call it "Am I Tripping". LOL I also have other mental health issues as well.
I'm sure being a multimillionaire helps. I appreciate her openness and love her music but most people with fibro do not have her resources.
It's suspected that I have this now...but what can we do in the state of the economy?
well it's good to hear that it even strikes celebs 😊 and she seems to manage it well 😔 sad she had such an horrendous thing happen to her when younger
Had Fibrio for about 14 yrs. Found Low CBD excellent. Really helped me a lot. Cleared up brain fog and have wonderful sleep at night. Plus Tramaset the day pain is
unbearable. From South Africa
Also related to adhd hypomobility Asperger's dr lenz
High doses of fat soluble vitamin B1 (Benfothiamine or TTFD) and Agmatine are showing great promise for Fibro.
I've started with Benfothiamine (and Omega 3) about 2 months ago. Too soon to tell I think, as I haven't noticed any change (yet?).
❤ Magnesium malate + fish oil make my fibromyalgi so much better.
Learn more sbout it here on UA-cam.
Hi. also My Dear Friend Eric From Switzerland He Still Go Though Fibromyalgia Pain Now Still Very Sad I Feel Sorry For My Best Friend Eric 🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾
I agree 100% that fibromyalgia is caused by trauma be it mental or physical or both. This video would be helpful is we all had money as Lady Gaga. 😔
I'm so glad she shared this it brought awareness before this we were said to be depressed and crazy & referred to psychiatrist, actor Morgan Freeman was also diagnosed but declined to discuss his journey
It’s important as a lot of people heard about fibromyalgia for the first time! Thanks for the comment
14 years ago I was in a pain management program for 6 weeks. Guided meditation in a zero gravity chair was very helpful in reducing my fibromyalgia pain. Also another provider told me not to identify with my pathology. Almost everyone deals with some sort of chronic condition or pain.
Thanks for sharing Elizabeth 😊 I’m pleased to hear you benefitted from a pain management programme! I run them weekly and we see some really positive results with people. Yes, important that our conditions do not make up all of our identity 😊
She was misdiagnosed, she has something else....this doesnt surprise me, because she doesnt flare up after exerting herself....this was a bad thing for us...not a good thing. Im so irritated by this situation, I cant watch the rest....she needs to make this misdiagnosis public😮
I’ve done almost everything for fibro. I’ve spent so much money. Nothing helps. I hated flotation therapy, massage, and acupuncture.
She gets massages every day all day
I’ve just had a ketamine infusion which made my fibromyalgia worse. Has anyone else tried this treatment
It’s ok if your Ritchie and can afford to be able to go to and pay for a medical relief treatment but for some people they just can’t afford it any thing medically is so expensive. And medications like opioids do help relieve the pain for a while but we all know that there is nothing that will take our pain away forever. And it makes it extremely hard when governments take away our medical pain relief so we just have to suffer with this chronic pain. Anti depressants do help and so does codeine but to Be able to take codeine every day for the pain the government has taken that right of us and it’s so wrong to make us suffer like this. They are even going to take Panadol of the shelf because of all these horrible people out there who use these medications to make bad drug out of them and don’t forget those people that don’t ever suffer from any pain there the ones that are the problems for us that suffer every day and our quality of life is chronic pain.
Fybromyalgia is a nightmare to live with you look alright but your in so much pain and really tried. If you do too much you pay for it the next day. Its to do with a terrible trauma as a child
Here's what helps me with Fibro:
1.) *Daily Detox* Drinks with clean Water (I use Water Destillation) 7 drops of FULVIC IONIC MINERALS, fresh pressed lemon juice, ginger powder, Magnesium and Stevia (natural sweetner).
2.) *Anti-inflammatory supplements* like Mizell-Curcumin, Boswellia Extract 500mg (from NOW), GLYNAC-ET (from Nutri) ect.
3.) *Intermitten Fasting* and *Organic Anti-Inflammatory Foods* (Gluten and Lectin free).
4.) *Emotional and Spiritual Healing* of any kind:
Mindfulness, Meditation, Forgiveness, Prayer, soft Yoga, Self-Love and being grateful❤
The previous trauma can be physical or mental
Yes trauma falls under different categories
Belbucca for pain has been helpful for me but it is a controlled substance.
I thought I’d heard of all the meds for fibromyalgia but this is a new one for me!
Really
I would think that since humans evolved over millions of years with almost certainly a much higher incidence of trauma than what the great majority of humans experience today, that humans likely have great untapped potential to develop resilience in the face of traumatic events.
Yes I agree. But even though trauma may look different to how it did hundreds/thousands of years ago. The nervous/immune system response can still be similar
Perhaps these earlier humans did experience much higher trauma, but they also died so much younger from disease, accidents, childbirth complications, etc. If they made it to age 30, they were lucky especially women who had to endure the hardships of multiple, frequent pregnancies at a time that even doctors didn't know to wash their hands before delivering babies. Perhaps people didn't live long enough to really develop fibromyalgia. Modern medicine has allowed many people to live so long with the discovery of penicillin, the polio vaccine and other life saving drugs.
And better nutrition too.
Maybe that's why she wears those gigantic heels. It distracts her from the other pains.
That’s a good one! 😂😂😂
Massage is comforting and takes pain away for hours. Should be covered by insurance since they took away my pain killers for seniors! Now they want you to use marijuana. I'd rather use that because the drugs they give you a for pain are horrible. I'm allergic to many drugs. I also have autoimmune disease. I don't need therapy, I need painkillers. I'm 72 and too tired for exercising with all this pain. Young people have no idea what old people are going through. They Push for exercise all the time. And it does not work for everyone, especially senior citizens! MCT 25.1 CBD works for pain.
"team" of doctors, and medication ... well most of us have no doctor and meds are extremely hard to get and keep your prescriptions valid, again without a dr...
Are you a Doctor?
No, I’m a Physiotherapist 😊
Tengo una terapia manual que quita tus dolores de fibromialgia vivo en colombia
Money cures everything,it’s a shame the poor have to suffer lifelong 😢
Clearly not as she still has fibromyalgia. It’s a long-term condition with no cure
Did he mention anything that we are not aware of 🤦♂️
If you developed fibromyalgia after a car crash, how much would you sue for ?
My consultant diagnosed me with fibromyalgia, i have been taking dulextine for two months but not getting better. What should i do ?
Fibromyalgia is a long-term condition so medication will not take away the pain. However, medication like duloxetine may help reduce pain levels. It can take up to 3 months for the medication to take effect. If it’s still not helpful after this, it’s worth booking a review with your Consultant/GP/Family Physician
@@TheWellnessPuzzle any test do I need to perform ?
@@TheWellnessPuzzle is Fibromyalgia treatable ? Is there any parmenant cure ?
No specific test for fibromyalgia but sometimes blood tests are used to exclude other causes
It’s a long-term condition so there’s no one specific cure. Usually a variety of approaches are needed for management
It sounds like only people with previous trauma will get fibro. Surely, everyone, everywhere, has suffered some form of trauma. Every living person should have fibro.
Everyone responds differently to trauma. Therefore having a history of trauma does not mean you will develop fibromyalgia. It is just a risk factor
Yes exactly
Rand a mental health chrisis line and hang up after queueing for 10minutes.. "team of professionals eould be great, or ability to pay for things like acupuncture or therapy
Omg youre drop dead gorgeous
6:54 6:54
How to get diagnosed?
Speak to your GP/family Physician
They can diagnose themselves or refer on to a specialist service to diagnose
@@TheWellnessPuzzle ty
Medical Medium information is free. Now you know.
How about if you're a poor and no enough money to rest and all that medical treatments 😢🥶
There's no amount of money in the world which will take the pains away.
It's pronounced fibro- MY- al-gia
Could it be these people are simply deficient in magnesium. Only hair test can detect deficiency.
A lot of patients present with these symptoms with normal levels of magnesium (after testing). Although vitamin deficiencies should always be considered as a differential
Vitamin D deficiency and take 50,000 units once a week. Helps with muscle pain. Ibuprofen if the pain gets real bad, but judicially as it can cause stomach upset. Epsom salt bath can help, too. Just keep.moving. cut down on sugar.
What's her trauma?
He said. She was raped when she was 19.
Hope on horizon w ketamine treatments but not covered by insurance at this point. Breaks up learned pathways of brain.
Do you have to do enough to get into a k hole ? A quarter gram is enough for a k hole.
How much is medicinal ?
Be rich?
Lots of money might help 😂
she does not have fibro period
It’s an allergic reaction
You are partly right. It is definitely an immune response which triggers causes the nervous system to react to pain signals in an intense way that is far beyond normal. It also causes reactions to light, heat, cold, exhaustion and poor sleep patterns as well as fibro fog confusion. Its all about inflammation and the nervous system. I do find certain foods make it worse.
@@brianthesnail3815 2 years ago i was diagnosed from Kaiser that I had Celiac disease, fibromyalgia and peripheral neuropathy. I took a good look around at all the people with this stuff And after a year I threw out all the meds, and simply quit everything in life that I love , everything till I only ate washed steamed rice and and bottled water that I reran through a Zero water filter and in 2weeks I noticed less crippling pain ! But still counting my steeps because I only had so many in a day and the higher your pain tolerance the more tired you get later, then I started using the Chinese bamboo toxin removal foot pads , Castor oil wraps for your liver, thyroid, hands and feet and after 5 weeks I had zero body pain, then I started adding back foods till I found what made me sick. Then it hit me I’m not sick I have an allergic reaction to the pistachios, I have been running around lately like I never had pain before. It’s been 2months now I have not gotten glyphosate in or on me. And now I strongly believe that all disease we have now on this planet, have a Chemical cause ! So all that time I spent in extreme pain listening to all the Doctors living a Crippling hell, all I had to do was not eat the glyphosate in the food supply anymore, lol go figure ! So partly right or wrong I’m good with zero pain, and not living in hell giving all my money to the doctors for nothing that helps Me ! Not them !
Fibromalgia is more likely a misdiagnosis for Myofascial pain syndrome.
Myofascial pain syndrome is the MOST common manifestation of chronic pain. Diagnosis of myofascial pain syndrome is by systematic palpation of the soft tissue by an experienced examiner. It is treated with a treatment called dry needling. It takes many months even years to reverse years of persistent pain.
Don't listen to fibromyalgia diagnosis. It is a very evil and trashcan diagnosis. It removes any difficulties or effort for doctors to treat you.
This is just not true. Please don’t spread the misinformation on my channel again
utter nonsense.
@@TheLuminousOne
I believe that this lack of recognition of myofascial pain syndromes occurs mainly because primary care physicians, who treat about 60% of back pain patients, orthopedists, who treat another 25, and internists, who care for the rest, are completely unaware of their existence. Consequently, their patients are treated improperly for other conditions, with the result that they progress to a chronic pain state. Correctly diagnosed and treated, however, it has been found that patients are not only quickly relieved of their pain, but their function Is restored and they return to work sooner.
The crux of the problem may best be illustrated by a quote from one of the authors whom Fitzcharles et al cite, Dan Buskila, who made the following statement in response to a question whether myofascial pain syndrome (MPS) was a differential diagnosis to FM in his clinical research on FM in individuals who had sustained cervical injuries.
“I am a rheumatologist, and we rheumatologists do not know anything about myofascial pain syndrome.”
www.ncbi.nlm.nih.gov/pmc/articles/PMC4532209/
Letter to the Editor
Ellen Nergård Thompson, MB BS FRCPC