What your doctor DOESN'T know about fibromyalgia pain is hurting you!
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- Опубліковано 31 тра 2024
- Effective fibromyalgia pain treatment options exist but your doctor probably doesn’t know about them. The standard medical understanding of fibromyalgia neglects the important roles of the immune system, sympathetic nervous system, and myofascial abnormalities in causing pain. Dr. Ginevra, a physician with fibromyalgia herself, discusses all the currently available pain treatments, including the research evidence supporting their use. This video is a MUST WATCH for anyone dealing with fibromyalgia!
As mentioned in the video, learn more at www.myofascial release.com, and find a therapist near you at www.mfrtherapists.com.
About me: I graduated from Tufts University School of Medicine and am board-certified in internal medicine. After developing fibromyalgia in medical school I was able to find integrative treatments that helped me feel much better. I share my complete treatment approach in my book The FibroManual amzn.to/3Uql7wg
In my videos I hope to inspire everyone dealing with #fibromyalgia to remember they are #fibrofierce!
Sign for my email newsletter for all things #drginevra and #fibro at www.drginevra.com/
I have Fibromyalgia. I have Hypothyroidism. I have osteoarthritis in all of my joints😮. I have a 25 year old severly broken right elbow repair and a Ten year old right repaired broken shoulder. I am in CONSTANT pain. Dr has me on Tramadol, Xanax and Ambien. I exist. I am always exhausted. I suffer from severe sound and light sensitivity and worse than any pain, because the pain is the LEAST of my issues, is my total exhaustion and anxiety. Also now that im 60, my brain seems to have taken a vacation. I suffered the loss of both of my parents in the previous 2 years and a move to a new state. I am most happy when all i have to do is cook and do laundry. My husband (rightly) expects that i should get a job. I don't have any part of me left over for this. I am not lazy, i just feel like i am dying all of the time. I wake up counting the hours to bed time. Thats all i wanted to say. No, one more thing. My whole hearted prayers to all fellow sufferers. Silent afflictions are so frustrating.
SO. Frustrating. Can relate to many of your thoughts. Thanks for taking time/energy to type out. 🫠🙏🏼. Fibro - Fierce. It’s hard to figure out what is worth fighting and when we should just freeze and regroup. Keep stretching what you can… when you can.
I HAVE the same conditions as you, all i can say is some days i feel that i cant cope with it, the meds arent helping anymore. Ive tried to get to see my doctor but they keep saying there is no appointments but other people have rang up and they get appointment but i cant get one.
Oh I know what you are talking about! I'm 68 and have had this since my twenties. Osteoarthritis, light and sound sensitivity and tiredness and like you I just long for the end of the day
I don't like to point this out, but there's the problem. Your husband doesn't really have a right to expect you to get a job, given your health condition.. and the fact that he or someone else has brainwashed you to think that, only highlights that they are almost certainly very narcissistic and causing you a lot of undue stress.
Is he working?
I have been ill since 1982 when I was 20, now I'm 61. I separated from a Narcissistic wife who was an evil women. I've wanted to take Mt life many times and I constantly think about it. My condition is very very severe. I send all of you my love and truly hope there will be a medical breakthrough but I know that is the only thing left I have of any hope for all of us who have so much suffering 24/7
A doctor with fibro who understands fibro? I'm in! I just headed over to Amazon and purchased your book! I've suffered with fibromyalgia/CP/CF and related conditions for nearly two and a half decades now. Thank you for the new tool that I'm hoping will help me talk to my doctor.
I started using cannabis three years ago for my fibromyalgia. It helped tremendously with my depression and helped me to deal with the pain, three months ago. I started on 100 mg of CBD and I immediately experienced pain, relief and reduction in my inflammation, this is in addition to 300 mg of gabapentin. I finally feel almost normal and I’ll take that for now ! This is a great informative video I can’t wait to share with my Rheumatologist
I was taking CBD oil for about two years. It was costing me around £30 per month so I could not sustain it. It did help me a lot with fibromyalgia and mental health issues. Although CBD oil is available on the NHS in the UK where I live. I don't know anyone who gets it and I'm wary of asking my GP. IKR? 😮
My dr had me stop using cannabis took me off tramadol and has me on duloxitine and Tylenol this isn’t helping and I’m being looked at like a crazy person trying not to be that but all day every day is becoming too much. Can’t believe this is real
I’m grateful for more in-depth exploration of Fibroymalgia. I’ve had it since childhood along with endometriosis. I’ve personally had a hellish time with medications, even the low dose Lyrica I recently tried again. It is not even an option while attending college, because it adds to fatigue like the worst thing. My hope is for people sensitive to meds to have some more relief.
the trifecta of Cancer pain; physical injury -> mental misery -> bone marrow failure and then the cesspool of pain and misery trifecta 3 and 1.
without sleep you have pain and you lose her mind.
Without grandma's home cooking you have pain and illusion mind and bone marrow failure results.
without peace of mind you lose your mind.
Without sunshine you lose your mind.
Without spinal unwinding of your muscles you lose your mind and you have bone marrow failure.
pain is normal life.
Pain fibers are embedded within muscle tissues.
Pain fibers are not with the bone proper joints are pretty much bullet resistant.
Bone fractures heal within a set amount of time.
Multiple trauma injuries also heal within a set amount of time the difference is that you have to help and assist muscle healing process. With megadoses of tender loving care.
Physical pain causes mental misery so Tender Loving Self-Care Help YOUR Body Cure Muscle Cell Cancer More Effective makes it go away.
Physical pain drives mental pain drives bone marrow failure and then accumulates in 7 stages of #Fibromyalgia, stage 0. Stage I-2-3-4-5, and End-Stage is deep-seated Neuro-Muscular metastatic malignant bone marrow failure all of your systems collapse all of your 78 organs collapse and you are living within the skin filled with putrid rotten poisonous muscles.
#Fibromyalgia trifecta 3 in 1 chronic pain Cancer Neuro-Muscular metastatic malignant bone marrow; mental health cancer pain of #Pregnancy 1-2-3; The cure for #Pregnancy is already built-in, working perfectly requires no self-care, a Child will be born.
There is only 3 ways to females help and assist delivering babies in order of necessity 1-2-3;
⦁ The 1 is One Midwife Grandmother TWO helping healing hands for simple delivery.
⦁ The 2 is Two Midwives Grandmothers FOUR helping healing hands for difficult delivery.
⦁ The 3 is Three Midwives Grandmothers SIX helping healing hands “the more the merrier” for complex situations aka C-sections.
The cure for #Pregnancy infectious diseases injury cancer and all diseases is already built-in requires optimization, self-care self-help self health care insurance heaping portions of grandmas helping healing hands home cooking herbal remedies megadoses of tender loving care, SWIFF, yoga fresh air running jumping playing in the sunshine peace of mind spinal unwinding inner peace to release muscles DIY Acupuncture because Acupuncture Needle Needling Works Precisely Perfect Effectively With Janet G. Travell’s My Recipe.
Can you try medical cannabis? It helps with my pain, depression, anxiety, appetite, and sleep all in one product.
Rebecca, I have it severe. I've suffered for 17 yrs and now I'm a different person. I quit all sugar, glucose, I eat under 50 carbs a day. I quit bounce sheets, but omg they are so toxic, rob energy, made from slaughterhouse scraps, poison, no more deodorants, baby oils, vegetable oil, processed foods, fried foods. Let your body sweat, listen to it. I learned I was plugging my body up with deodorants. Our lymph nodes drain every pm through the neck, armpits, breasts, and groin. That's where we sweat. No more tight bras . Massage these areas every single night before bed. Get 11 hours of sleep a night. Buy yourself a grounding mat. In summer, walk barefoot in dirt and grass. Watch [Earthing] on youtube and [The Grounded] youtube. I sleep on my grounding mat every day. It's plugged into the wall / plug and it's grounded to the house. You'll notice a huge change . The before and after ultrasounds are wow... The grounding mat or walking on the earth removes all inflammation inside of your body. It's the same response as though you've taken a blood thinner. I don't eat any chemicals, wear any chemicals, I am off 90% of all medicines. I feel wonderful, and I began to grow a spine. I removed all toxic people, stress, and anger from my life. Laugh ,and listen to your body. Have a support system. Intermittent fasting, about 18 hours a day, also works. D3 and K2, 5000 mg I take with 170 mcg of k2,[ magnesium Dr Carolyn Dean Remag Liquid Magnesium Chloride] Omega 3@6, B12 Methylcobalamin ,CoenzymeQ 10. ❤ Cannibis did nothing, I refused to feel numb on Prozac and after watching my body purge sugar and chemicals, I said enough! 65 neighbour's all got fibromyaglia severely after they decided to spray their lawns with insecticides and pesticides and landed on my vegetable garden. I was canning vegetables from my garden, and I popped a snap pea into my mouth and burned my tongue. I cut out all stress, I choose my battles wisely, I refuse to be controlled, dominated, and I lost people . NOW I know 100% it's the best decision that I've ever made because ,before I'd worry what people thought, not anymore. Once your stress is gone, you start sleeping, and your body starts eliminating crap from chemicals, and you've never felt better in your life.❤ *** Stop all foods that begin with CH for migraine sufferers . KFC, cheese, cheeses,chips,[Chinese food= MSG] , chocolate. No more migraines/ no more chemicals .
I was overweight because I didn't move a lot the first year, so I tried keto. Worked excellent for brain fog. Took 3 weeks for all cravings to go, but lost the 50 pounds. Intermittent fasting you feel better, I do 18 hrs a day. Routine,once your body knows no garbage is being consumed, everything changes ,sleep, stress,laughter, you feel good, you look better, the bounce sheets were robbing us all of our energy. If you ever stroll down the chemical aisle and eyes burn itch,imagine what's happening when we eat ,sleep, and breathe that garbage daily. Give it time. I do still take my pain meds, but only PRN when needed. I was diagnosed with CRPS, and it's 85% better with these. This is 17 years of trial and error and everything that's worked for me .❤❤❤ . Go on youtube check out[ Earthing], and [The Grounded ] . I bought a grounding mat off Amazon. Worth watching 100%.
I've had fibro since I was 13 so I totally understand! I'm looking into CBD oil with zero THC bc I also suffer from chronic fatigue (although my kids do no allow me to fall into that so I'm just perpetually exhausted 🥴) but I've heard really great things about HIGH DOSE cbd. I can't do THC anymore bc it aggravates my anxiety big time and also adds to the fatigue. U should look into it hun
I've had severe endometriosis my whole life basically and just diagnosed with fibromyalgia in last 2 years, I feel for you
i was diagnosed with chronic PTSD a few years back and have suffered a lot of anxiety and depression since the incident which triggered my PTSD. I noticed i ache all the time and walk like an old man. After doing simple chores like mowing lawns i am literally exhausted for the rest of the day and i ache all over. I was also diagnosed with ADHD and both my ADHD and PTSD has damaged my sleep health considerably where i struggle to sleep more than 2-3 hours without interruption. Never wake up feeling refreshed. I believe my constant aches, slow painful gait, low mood, poor sleep seem to give same causes and symptoms as fibromyalgia. I just avoid doctors like the plague due to bad past experiences and most of them are terrible, lazy, arrogant penny counters. I refer to most GP's as pharmaceutical middle men, sales reps for big pharma. I can't even get to see a psychiatrist for my ADHD due to the 18 month waiting list. If i was a horse i would have been humanely put down by now.
I sooo understand what you're going through
I have contact with a MD/ALTERNATIVE
CONTACT
AND CONSULT MY CREATOR DAILY.
It is written.."You have not,
Because you ask not."
"Seek ye first the Kingdom of God and His righteousness ans all these things shall be added unto you"
the trifecta of Cancer pain; physical injury -> mental misery -> bone marrow failure and then the cesspool of pain and misery trifecta 3 and 1.
without sleep you have pain and you lose her mind.
Without grandma's home cooking you have pain and illusion mind and bone marrow failure results.
without peace of mind you lose your mind.
Without sunshine you lose your mind.
Without spinal unwinding of your muscles you lose your mind and you have bone marrow failure.
pain is normal life.
Pain fibers are embedded within muscle tissues.
Pain fibers are not with the bone proper joints are pretty much bullet resistant.
Bone fractures heal within a set amount of time.
Multiple trauma injuries also heal within a set amount of time the difference is that you have to help and assist muscle healing process. With megadoses of tender loving care.
Physical pain causes mental misery so Tender Loving Self-Care Help YOUR Body Cure Muscle Cell Cancer More Effective makes it go away.
Physical pain drives mental pain drives bone marrow failure and then accumulates in 7 stages of #Fibromyalgia, stage 0. Stage I-2-3-4-5, and End-Stage is deep-seated Neuro-Muscular metastatic malignant bone marrow failure all of your systems collapse all of your 78 organs collapse and you are living within the skin filled with putrid rotten poisonous muscles.
#Fibromyalgia trifecta 3 in 1 chronic pain Cancer Neuro-Muscular metastatic malignant bone marrow; mental health cancer pain of #Pregnancy 1-2-3; The cure for #Pregnancy is already built-in, working perfectly requires no self-care, a Child will be born.
There is only 3 ways to females help and assist delivering babies in order of necessity 1-2-3;
⦁ The 1 is One Midwife Grandmother TWO helping healing hands for simple delivery.
⦁ The 2 is Two Midwives Grandmothers FOUR helping healing hands for difficult delivery.
⦁ The 3 is Three Midwives Grandmothers SIX helping healing hands “the more the merrier” for complex situations aka C-sections.
The cure for #Pregnancy infectious diseases injury cancer and all diseases is already built-in requires optimization, self-care self-help self health care insurance heaping portions of grandmas helping healing hands home cooking herbal remedies megadoses of tender loving care, SWIFF, yoga fresh air running jumping playing in the sunshine peace of mind spinal unwinding inner peace to release muscles DIY Acupuncture because Acupuncture Needle Needling Works Precisely Perfect Effectively With Janet G. Travell’s My Recipe.
I am with you always tell my husband of 40 years who does understand he knew the real me b4 this mess of past 30 yrs. Hate doctors, stay away never helped pushed drugs that caused more trouble. Always say if I was a horse they would put me down. Good luck hope next yr brings relief.
You described pretty much what I go through along CPTSD, DDD, Osteoporosis, neoropathy, etc. I get my results from lab reports mainly because they dont bother to even tell me. Wish we could find a good doctor like this doc! My trust in 99% of drs is 0!
I'm going to have to text you later. Pain is too severe. Fibromyalgia 38 years, half my life. 🙏
Did you ever get screened for anything else? The reason I ask is because I first thought I had cancer and they diagnosed me with fibro instead. Your experience would be greatly appreciated 🙏🏼
I was told I had fibromyalgia pain cognitive decline nerve pain , I went deaf tinnitus and my legs went stiff , I had chronic inflammation
In my blood , I asked about my b12 over 20 years ago told was normal serum level was 250 I have learnt that no matter the level with
Malabsorption issues you cannot digest b12 from your food
I needed b12 injection as you are deteriorating the b12 injection stoped the brain fog stoped the cognitive decline , my Cronin fatigue has improved I sleep better .
I have permanent damage to my legs due to nerve damage from lack off b12 you can have a normal b12 serum level as the b12 tests are flawed taking b12 supplements will flaw all blood test and will not help as you need b12 injections if you have malabsorption as you cannot access b12 from your liver store it’s the same as pernicious Anaemia .
The intrinsic factor test is also not a true diagnosis as a negative test cannot rule out PA the brain starts to shrink and the whole body is in pain .
The tests for a b12 deficiency are MMA - intrinsic factor test - active b12 - folate test
Most b12 deficiency are low b12 - low folate - low vitamin d . They say all blood are normal but they are borderline very low
There is a epidemic b12 deficiency and we are told your okay with very low b12 as 200 serum is a b12 deficiency
Also with a b12 deficiency you homocysteine level will rise this causes toxicity to the brain and Cronin inflammation
I had a cerebral stroke due to untreated b12 deficiency and told fibromyalgia for years , my high homocysteine is normal now with the b12 injection and the multi b folic acid and b6 heal the toxicity in the brain .
Most low b12 are a low vitamin d due to malabsorption issues , low folate , low iron in some . This area is not studied and 75 % recover from the B12 injections and cofactors .
Needing vitamin B can also show in vitamin D deficiency, because you need B to absorb D in your body.
I'm almost 2 years into my official diagnosis and your first slide is exactly where my treatment is. I still have pain enough to set off nausea frequently but, figured that this was just going to be my life from now on. The fatigue is so extreme that I haven't been able to work. I could say so much more but I'm crying tears of joy because your research is giving me hope.
This is exactly why I try so hard to put out good information! It breaks my heart that so many patients like yourself are stuck on that first page! Sending you a gentle hug.
@@DrGinevra I was smart and took notes for my last doctor's visit. He wants to read up on your research so I just bought your book. ALSO I found a myofascial massage place about five minutes away from me so I'm excited to book my first session. This winter is absolutely killing me!
I feel like gp needs to listen to the patient more and actually believe us. Im tired of being ignored and gaslighted and tild im not that bad
I've lived with fibromyalgia for most of my life and I have tried everything suggested by my specialist and alternative medicine. I've gone way past any of these treatments
Now I have to just live with it ALL the gentle physical therapy has sent me into flair
I am sorry you have not found any relief. Hopefully new research showing immune system involvement will lead to more treatments to try.
Me too.
Gupta progam
Thank you Doctor ❤️ you have the best video I have seen in years on fibromyalgia. I've been suffering with this condition for well over ten years. This is a debilitating disease and people with this need relief now. We have been wanting far too long for people to understand that this is real. Doctors really need to see this video to help their patients. I will follow your blog and get your book. Thank you again and blessings to you. 😊
Dr Ginevra, thank for your knowledge, education & concise explanation of FMS, I was DX 1990, I have struggled severely since physically & emotionally due to the complexity of this & lack of MD understanding or that the stigma MDs that it is not real... to include family & friends
I want to say sorry you have FMS, but also say thank you for having, your sent from GOD & truly have been an advocate & pioneer for all of us.......
I am RN, love A&P, biology etc your depth & education is so refreshing & helpful....
Just wish could pinpoint the catalyst that starts the all over body dysfxn
I do now that there is alot concern for parasites, virus, lyme disease, ? Morgellans etc that does not get sufficient study & seems to be poo hoo'd
Again TYVM🌻
FIBRO FIERCE…love that! It’s so much better than term FIGHTING FIBRO, I’m truly 14 years now truly FIERCE as I hate FIGHTING a battle hour by hour, FM came on strong severe, im still learning and trying to absorb info in my foggy mind, now 53yrs old now! sending you IMMENSE GRATITUDE from my BODY MIND SPIRIT - this beautiful gift of your PAGE speaks directly to me and for me!
I am glad the term Fibro Fierce resonates for you! And you definitely are Fierce!
I haven’t been diagnosed but I truly feel I have fibromyalgia. Most of the time I feel sore and hungover. My holistic doctor has me on a lot of supplements, immune ones specifically, and we’re hoping the inflammation she saw goes down. I just want to feel good and sleep like a normal human being. ❤
That’s how I felt when I wasn’t diagnosed yet I felt my body was already and pain just dr won’t believe me until I found the right one to believe
Avoiding all chemical preservastives/ chemical additives in food prevents muscle and connective tissue pain.
Adding at least 30gms of blue berries or cherries or other small red berries removes small joint pains.
It is important to find the trigger it may be different things for different people.
Keto diet or carnivore diets also help lots of people.
I’m going to show this to my doctor when I go back in Nov. I keep telling her low dose Klonopin/Clonazepam (1mg at bedtime as needed) helps me tremendously. Hopefully she’ll finally listen to me? I’ve been dealing with fibro issues since the age of 7/8 yrs old & I’m 60 now. I definitely need something that works & I know low dose benzos/anticonvulsants work really well for me. Most doctors don’t want to believe that fibro isn’t a cookie cutter illness & that patients aren’t either. If a doctor treats someone that’s had fibro only a few yrs, somehow they believe that all patients are to magically be treated the same??? It’s like everyone going to the hairstylist & every single person in the world getting a buzz cut. Yeah, that wouldn’t work for me either. 🤦♀️
Cookie cutter approach definitely doesn’t cut it !
@@DrGinevra certainly doesn’t & I can’t even count the number of physicians I’ve seen in my lifetime that have all tried to put me in the cookie cutter box. I’ve had one, yes ONE that actually helped me & knew exactly what to do. That’s how I know low dose benzo works for me, because he introduced them. I didn’t even know there was such a med prior. He changed my life. Unfortunately I lost him & no other doctor has cared to follow his same protocol. He was a D.O. He was great.
Try telling Iowa Drs about all this an all they do is treat you like a Drug addict. I don't know what's going on here in this State but it's Pathetic!!!!
@@giseleaponte4516 same in all states now it sounds like. People in pain are denied treatment & forced to suffer! Isn’t that against medical laws?
there are only 3 treatment options for all injuries #Fibromyalgia chronic pain mental health misery, infectious diseases bone marrow failure particularly eclampsia sudden-death pain of #Pregnancy. So 1-2-3. Tender loving care -> poisons -> butchery C-section mutilation.
#Fibromyalgia trifecta 3 and 1 Neuro-Muscular metastatic malignant bone marrow cancer cure is heaping portions grandma's home cooking, megadoses tender loving self-care + herbal remedies + low dose toxic deadly poisons, and never NEVER never surgery.
As a physiotherapist helping people with long-term pain, this information is gold. Thank you Dr. Ginevra for this great presentation. I will read your books. 🙏🏽😃
THANK YOU FOR SOME NEEDED ADDITIONAL INFORMATION FOR MEDICAL COMMUNITY ❤😊 IT IS SO NEEDED!
I don’t know if anyone else has discovered this but I did by mistake. A friend gave me some lidocaine XR (12hrs) dermal pain patches cause she thought it would help with my back pain. I was too shy to tell her that they prob wouldn’t work as my back pain is in the spinal joints and discs so deeper than the dermal patches would reach. So out of politeness I tried them and to my surprise they helped with my fibromyalgia pain… go figure?!?
Then I remembered reading a research paper that was looking at the role of the dorsal ganglia in fibro pain and came to the conclusion that it may be linked to some sort of disruption between the CNS and PNS (which if I understand correctly from your talk the dorsal ganglia is the connecting part of these two nervous systems).
And I’m not too sure how deep in the skin the topical lidocaine would reach (?) but I imagine they would be more closer to the top layer of skin (where the patch sits) since they are nerve cells. They took upto 2hrs to take full effect but after that lasted another 10hrs of blissful relief with pretty much full relief from my fibro pain for the first time in decades! Like I said I was completely stunned and surprised by this but if this is true about the dorsal ganglia then this would explain why it.
Disclaimer; I’m not recommending any treatments as I’m not a doctor or health profession just a person who has lived with fibro for over 2 decades and who is curious to know if anyone else has had an experience like this also?
Have you seen the study done on high doses of B1 treating Fibromyalgia? It was a preliminary study done some years ago, but in some groups I'm in people are trying it and having success with it. The theory is that people with Fibro may have a mild Thiamine deficiency (either from diet or issues with processing it). I don't feel safe taking really high doses without doctor supervision so I'm just starting B1-100, as the study did not test if lower doses could help over time. Thiamine affects the nervous system, as you know, so this makes sense. Over the years I have tried all the things to calm my nervous system (including most of the things you mention), counseling/therapy, and I even did a pain management program that teaches you how to calm your nervous system... nothing works for me. A deficiency, like B1 could explain why I can't turn things down, especially since with food sensitivities my diet is not very nutrious.
I tried myofascial release a few weeks ago. It helped my pain for about 3 days, which was great, but it is expensive!
Yes the expense is definitely a limiting factor. Sigh. One way to extend the benefit you get from each session ( so can do less often) is to add in daily self-myofascial release. Your therapist can usually give you instructions on that.
Also if MFR is done by a physical therapist it often can be reimbursed by insurance
Check out the book by Dr. Bruce Fife - Cures for RA and Fibromyalga. It's emphasis is on a clean diet. No sugar, processed food very little dairy.
Check out the book by Dr. Bruce Fife - Cures for RA and Fibromyalga. It's emphasis is on a clean diet. No sugar, processed food very little dairy.
Finally,😮 I found someone with real answers!! God bless you dr.
I take paroxetine, cbd, and magnesium but my life is hell. What should I try next? I've tried injections, tramadol and gabapentin and nothing seems to work😢😢😢😢😢😢
I am so sorry to hear you are struggling. I can’t give specific medical advice but would suggest you look into myofascial release, and read my book The FibroManual
Try metformin. Latest research suggests that some if not most fibromyalgia patients have insulin resistance. The blood glucose and A1c are normal, but those do not measure true insulin resistance. 500 mg of metformin and low carb diet does help
Thank you, this is so validating. LDN and myofascial release have been the biggest game changers for me as well, and combined with cbd, topical analgesics, magnesium supplementation, and a light exercise and stretching regimen my life has gotten so much better. You suggested a few new options for me to try as well. Thank you for validating what we go through and providing a comprehensive and thorough approach.
Glad it was helpful!
I’m appreciative that you explained about what I have
I am almost certain this is the book my PA told me about . It was awhile back. She told me about the author and it sounds just like you.😊 so thankful I found your channel!
I believe it is trauma in our lives which causes fibromyalgia and where there has been constant trauma like the loss of your husband or wife or child, on top of childhood fears or previous divorce, then it’s a breakdown of nerves and muscles with severe disabilities. So many women with fibro too. So sad. Life of endurance.
Thank you ❤️ for doing what you do!
I have Fibro and I love your book. Definitely avoid dietary glutamate from trial and error - in fact cannot handle any supplements with glutamine either. I recently got diagnosed with Hypermobile Ehlers Danlos after years of joint issues, bladder problems (I.C.) and gastrtis/GERD. I can feel wet or windy weather fronts coming! I wish doctors understood that Progestins make fibro worse. At 41, this is my main battle. Options for heavy cycles are limited and all of them make my fibro pain/fatigue worse.
@kd2533,
I feel your pain, literally!
I can also predict weather fronts, days in advance... Boy, does it ever hurt! 😢
I feel the weather fronts coming as well. Sometimes I think we could be meteorologists.
If you have heavy periods, please insist on an ultrasound. I was diagnosed with fibro recently.
Also, due to persistent anaemia requiring iron infusion, I finally got an ultrasound, and several uterine polyps were fond. I am having a procedure to remove them. I did tell my GP about execive bleeding a year ago, but I was not taken seriously.
Fibro is worse 10 days before periods and, of course, during periods. Hormones are defo playing a role in this nightmare. Take care❤
I feel for every single person dealing with this and remember what works for you may not for others! These ideas are just crap we can hope to try and work
I am a fybromiagia patient and I am tired of taking medication. It seems like nothing is working and I am constantly in pain from head to toes inside out. I've seen a lot of doctors and the last one put me on Duprex medication for 6 months. It doesn't work bcoz I don't sleep due to pain everywhere. I am also a High Blood Pressure patient and take medication for this treatment too. At night I am like "why me".... I suffer a lit and just don't know what to do....I am 56 years old and suffering from fybromiagia since 10+ years. Your advice will be much more appreciated for me....thank you very much for sharing this video and thank you very much for your explanation
Thanks Dr. Ginevra! Even if I can never afford MFR therapy, this helps explain a LOT!
Another informative and very supportive video. Thank you so much Dr Ginevra 🙏🌹
Thank you so much, you’re the best
Great presentation ❤
Great video. Thanks.
Glad you liked it!
Thank you so much for such an informative video. I especially appreciated that you shared the two most helpful treatments you would want on a desert island. That’s a good starting point for me. Sending love and good wishes 💚
Definitely validating! I'm 58 years old right now. I never had children due to endometriosis , Five laser laparoscopies leading to scar tissue upon scar tissue. Also, my sport was horses which doesn't act kindly to a immature skeletal system. In 2017 I had fusions of C 5-6 & C 6-7. But for decades before that I had muscle tension as hard as rocks in my upper back. One thing I don't hear people really talk about that I think is related is extremely stressful living situations, which results in PTSD. If you think about it that does overtax the sympathetic nervous system. And one thing that you mentioned about connective tissue somehow struck me about a comment a dentist once said to me when I was a young adult, "Boy, your connective tissue is stronger than I've ever seen". A little strange huh? But to put it in context he was having a lot of difficulty pulling one of my teeth, (maybe it was my wisdoms). Fibromyalgia really sucks when you have comorbidities such as early onset arthritis, OA, ect. Yup, I also have hypothyroidism. Right now I go to a pain clinic to manage my "PAIN". I take Tramadol and Belbuca. I do trigger point injections. I've had radio frequency ablation twice. Of course you know I'm not getting better. It's always one step forward three steps back without end. It is so hurtful when people look at me as if I'm just a hypochondriac. Thank you so much for your presentation. P.S. this comment was actually supposed to be posted to your " new studies in fibromyalgia" video. Another thing I was wondering about, I actually had sepsis to the point of leaving my body for a few seconds years ago. I wonder if that has any relation to all of this?
Any trauma seems to be able to trigger fibromyalgia in genetically susceptible folks, and a near death experience (like sepsis!) is certainly a trauma. Some people can't identify a specific trauma, but more a really prolonged high stress period. Very interesting comment from your dentist about strong connective tissue! If you have not tried it yet I highly recommend myofascial release therapy for fibromyalgia pain reduction.
@@DrGinevraI will watch more of your videos to learn about myofacial release therapy. Thank you!
Thank you for such an understanding and informative video. You explain things perfectly! Thank you!
Glad it was helpful!
Very informative! I have never been able to explain adequately to my spouse or sons exactly what I experience with fibromyalgia. However, this does a great job explaining. Now the question to be answered next, “What do we do about it!”
I am glad my videos help, and yes understanding the disease process of fibromyalgia is just the first step, then comes treatments!
I have been diagnosed for 33 years it’s been a very difficult and challenging journey. The hardest part was missing out on going to places at times with my children. Making plans and not being able to fulfill then. Life changing is an understatement I played A grade sport til I was 32. Was diagnosed that year. I had aversions to anti inflammatory and opioids so I had to find other ways to cope Magnesium and heat packs eventually panadol. For the last 4 years I have been taking Thc oil and that’s been life changing. I can garden so much more than before. I was diagnosed with Hashimoto at 19. Craft has been my savior,mentally. Changing my language helped also mentally. I no longer say I am a long term pain sufferer. I am either having a good or a bad day. ❤i treat food as medicine and am careful about what I consume. ❤
I am so glad you have found things that are helpful!!
I do have to add, always a work in progress, always learning. ❣️🙏
Thank you so much! This video is going to my family and a friend with fibromyalgia. I read your book 5 years ago and am an ANP with a PhD. It was so helpful, but getting a physician to do more than the basic treatment in the first slide has been a HUGE challenge. One thing I’ve found recently that helps me is Sound Therapy at 432 HZ. The research is mixed and there are issues with definitions and methodology, but my actual experience is that I feel better after an hour to an hour and a half. There are many channels offering this type of sound. My sleep is also improved. It also helps me meditate which I find useful . After seeing this video, I am going to add MRT and educate my physician about LD naltrexone . Thank you, again.
I am so glad my videos and book have been helpful! I think sound therapy is a really great technique to help the brain get into parasympathetic mode.
@@DrGinevra Thanks so much for a reply 💕
I believe Fibro could possibly stem from excess cortisol levels due to nearly constant Fight or Flight episodes. I personally can't remember a time in my life that I wasn't in pain. Having a father who seemed to enjoy teasing his overweight daughter, an emotionally distant mother, and a disastrous school and social life did wonders for my childhood stresses! I obviously had the physical signs of excess cortisol, so much that they put me in the hospital for a week when I was 12, testing me for Cushing's. Apparently negative but they never addressed or treated the excess cortisol coursing through my system. I was a tense, hurting, stressed out kid with too much cortisol. I'm 55 now (old profile pic) with more autoimmune disorders than I want or need and only getting worse. And I can only get Rxes for Tramadol (which I use only when absolutely needed), Klonopin, and also Baclofen for my MS (which my new Neuro suspects I DON'T have but was officially Dxed in 2005). The Hoshimoto's (treated with Synthroid) suspected RA & Sjrögren's (currently untreated except for OCT meds) are wreaking havoc as of late. I refuse to take immunosuppressive meds as they increased my MS exacerbatios five-fold. Optic Neuritis in each eye more than I can count. Stopped all MS meds in 2008 after severe reactions of Tysabri put me in a wheelchair temporarily then walking aids for 2 years and Rebif after that causing severe depression after only 3 3/4 doses. I'm at my wit's end. And I STILL HURT, despite the meds I take, albeit, it ain't much! Hard to find a Dr who knows his/her stuff...
Definitely fight or flight over activity is a key factor in development of fibromyalgia. It is really hard to get help especially with fibromyalgia plus the other medical issues you are dealing with. Sending you a gentle hug.
Thank you for the hope that something legit may come on the front soon. Before meloxicam i didn't think i could handle the pain anymore.
Thank you, this has helped me greatly, I read all I can on Fibromyalgia. Tai chi every day is helping , one short walk a day, and stretching every morning helps as well. I’ve learnt not to over do anything, to pace myself. With me and exercise, it was all or nothing, this got me into lots of trouble.😩 I have ordered your book. 😊
I can totally relate to the all or nothing part!
This is amazing! Thank you Dr! I am Fibromyalgia sufferer for more than 10 years now (started at age 33) with no other illness but Fibromyalgia. This disease has changed my life to the point that almost hopeless. The daily fatigue and pain had made me disabled and lost meaning to life. But because of my family, I continue to fight and search for treatments. You gave very good explanation on why glutamate or food with MSG or aspartame flares up my FM. I also now know why taking opioids everyday is no longer working. I’ve taken Ketamine infusion but like you said it was short lived. I look forward to finding that combination that you suggested and hopefully I can start finding meaning to life again. Thank you so much!!!
Im a 23 yr old eith debilitating CPTSD and fibro and i really appreciate your work. I was diagnosed last year.
I've been on duoloxetine and gabapentin and physical therapy for most of this time with some major gains compared to when I started
I hope my work can point you in the direction to find better pain relief. Sending you healing energy!
Thanks ^^
I have been in pain since I was a newborn. My mother couldn't even hold me to feed me because of pain so I do not believe it's all because of the fight or flight syndrome.
I am on tramadol - a pain medication, tizanadine - a muscle relaxant, and that's it. Nothing else works.
I take tramadol and cyclobenzaprine (Flexoril) for mine. I did end up working with Savella and gabapentin and it's helped some, but I still need to take the first two with it. Mine isn't fight-flight but working with stress and being so busy I got into a feedback loop and it just recked everything.
The fight or flight theory rings so true for me. I remember telling my friend that I was always in fight or flight mode before I actually had fibromyalgia. Maybe the fight or flight response was already activated in you while in uteri for you. You should ask your mother if she was very stressed while pregnant or if you had a difficult birth. Just a thought.
@@judymurray191 she actually was really stressed. She had just had a still birth and the doctor told my dad that she needed to be pregnant again within 3 months or she would go crazy. That was me, born 1 year and 10 days after my brother who was stillborn. Then I was only 4 lbs 3.5 ozs so she wasn't allowed to bond with me or hold me for over 10 days because they thought I was also going to die.
Dr. Ginevra, thank you for investigating this disease with such integrity and thus, helping us all! Do you happen to happen to have any doctor that you work with in California? I live in CA and it is rather hard to travel to you!
Thank you for your kind words! On my website www.drginevra.com I have some guidance on finding a doc near you.
Pain I've had in my spine and shoulders. I say feels like having giant bull clips sitting on your shoulder and spine. So that's the tension in my muscles. Good to know whats happening when it flares up. Thank you.
That's an excellent description of how it feels... I hope this new information might help you get more pain relief!
@drginevra Sadly I've not found any pain relief that will help me. Body doesn't like anything I've been given by the Doctors. Long covid 3.5 years. And Costochondritis on top.
@@victoriahouse9969have you tried CBD? It helps but you have to be on it for at least 2 weeks before it truly begins to our receptor sites have been depleted and need to build them up again. We have actual receptor sites in our bodies SPECIFIC for CBD. Godspeed
I'm so thankful for this video, Dr. Liptan Ginevra!
Yes, doctors really use cookie cutter approach.
I was given GABAPENTINE right away without testing (blood, etc).
Medicine is my last resort. I prefer natural, non-harmful way of healing.
Thank doc for being a great help to people like us who suffer greatly from so many symptoms fibro patients have to endure. I have had Fribro... for at least 44 years. Mine was chronic and in almost every connective tissue. Now I feel like I am healing. I do pray most of the time and take key minerals and vitamins. This suffering is so difficult I wish it on no one. However, I do believe in miracles no matter what anyone says. LOL and thanks again for your great help in being able to further understand what the body is going through.
Sending you healing thoughts!
Thank you for your in depth talk on this horrid disease. I now have CHF, adrenal cortisol insufficiency, osteoarthritis in most joints already had L3,2 and S1 fusion, C3,4 fusion. My pain is constant and I take daily opiods, but for me the fatigue is the worst. Most days I can barely keep my eyes open and on days like these I sleep for approx 7 hours during the day. I have a feeling this😂 is probably more to do with my recent adrenal gland diagnosos. Going to see endocrinologist next week. I am a nurse and have spent 35 years taking care of others, it is so hard for me to accept being on the other side!,😊
Hopefully getting adrenal issues addressed helps fatigue! 💜
@@DrGinevra Thank you so much for your response. That is what I am hoping for too.😊
Anyone tried the TMJ jaw injection for the jaw joint pain
I did Prolotherapy and it worked. No pain anymore and I can eat regular food again.
Im a gabapentin and duloxitine, amitriptyline plus lamotrigen does it do much good...just for the neurogenic cough that increases with stress
Awesome video. What is the difference between myofascial release and fasciatherapy? Because I do get the latter but now I'm not sure it's exactly what I should get.
So glad you enjoyed my video! The terminology can be a bit challenging in looking at fascia-directed therapies. Usually fasciatherapy refers to the DBM fasciatherapy method, which involves application of gentle pressure as client is guided on movement and perception of self. Myofascial release involves gentle stretching of tissue. I think any fascia-directed therapy can be helpful for fibromyalgia, but in my personal opinion myofascial release is the most helpful for pain reduction. I am going to do some videos about myofascial release soon!
Everything you just said is so true i have been fighting this since 2017 no one could figure out what is wrong with me and hypothyroidism
And then my gastrointestinal dr I keep telling her im having pain on my right side for years all she keep saying it your fibromyalgia well 2 yrs ago I told her something is wrong so then she order a liver scan lord behold now for being missed dx I have stage 3 liver disease if anything I learn in this every time a dr tells me its my fibromyalgia I tell them maybe but check and make sure im so glad I found your video I will be looking for more thank you for understanding
I am so glad you kept advocating for yourself to get the right diagnosis! I have seen all sorts of things dismissed by doctors as due to fibromyalgia, including tremors from Parkinson's, spinal tumors, multiple sclerosis. My hope is that as doctors understand more about fibromyalgia that this will happen less often.
Thank you for this video. I have inflammation and muscle tension. So many Fibro articles/videos says Fibro is neither of these. I believe my signals have been stuck on since I had a horrible reaction to a statin. I've found alot of relief with bispastic sleep. It keeps all the inflammation from setting in during a traditional sleep. My pain level and fatigue has dropped at least in half of what is was. I sleep till my alarm goes off in the mornings now. Its stil a weird feeling not having so much pain. I had a pain barrier of 6 to 8 to breakthrough every morning to be functional for over two years
Very interesting that you have found so much relief with biphasic sleep! Thank you for sharing !
Thank you for the video, very well explained. I feel like the most important treatment has not been included in the video which is a psychotherapy which involves retraining brains to create safety instead of constant perceived dangers messages in the brain which I think is the most important factor in treating fibromyalgia patients
What specific type of therapy are you referring to? If it can affect the deep "animal" parts of our brains that tend to be beyond conscious thought that would be huge. In my experience that animal part of the brain responds best to signals coming from our body- such as myofascial release, deep breathing, meditation etc.
I've not met any conventional dr who wants to do more research re fibromyalgia. They just gaslight.
Nhs in the uk treats people very differently than in other parts of the world like the usa, where here they dont seem to go into things as much. I take traditional meds for fibromyalgia and all of the other health issues I have. Right now im also gping through chronic reactions to certain things in the environment causing me ongoing ear, nose and throat issues. Ive recently found out about cirs on here and im looking into this as well. I love your channel. Also ive been getting more pain in my joints and was referred to rheumatology a couple of years ago. Due to backlog from Covid, my 3 appointments were spaced out over one year just to test for my symptoms. Another year later, I am going to a consultation for next steps as all tests were clear. 😮😮😮😮😮😮😮😮
The NHS don't cater for us people who have various chronic diseases. Thevr never give a damn about finding and treating the root causes. Your illness is just given a label 🏷 and thrown cocktails of medication 💊 to treat symptoms and that's it. No more investigate procedures to find root causes. Meds given and taken for years can cause more ha4m than good and also develop additional health issues. Also after taking meds gor a l9ng time you become immune to them and don't work so eventually you're just taking meds for the sake of it. So thanks to you Doctor for ypur research and helping fibro sufferers around the world 🌎 as well as for yourself of course, I am truly grateful for everything you do. Love joy and healing light to you and to everyone Namaste ❤️ 👼🙏🏼🙏🏾💐💐💐 from bonnie 🏴
I am glad you like my channel!!
Do you have any information regarding the vagus nerve & fibromyalgia with osteoarthritis?
I live in The Netherlands & the doctors here know nothing as far as fibromyalgia 🥵 only what you said about the basics & they don’t believe it is a real condition. I was diagnosed with osteoarthritis when I5 & fibromyalgia 21 years ago. I am now 59.
I would really like to thank you for this slide presentation. It has helped me to understand more and more what fibromyalgia really is.
I did not check the date this was released, but I am on a biologic that is a JAK inhibitor and it has changed my life living with FM.
I’ve been diagnosed with fibromyalgia for over 10 years, and I am unimpressed with the gabapentin and Lyrica type medication‘s. I find the side effects more disturbing than the relief. I have been on daily non- synthetic opioids (morphine) for a very long time and at a consistent amount for at least the last 8 years. I find that they work extremely well with low side effects , barring physical dependency.
I also have. Dilaudid for breakthrough pain. My challenge with that is that I need to take a higher and higher dose of it. I’m being very cautious right now of continuing with the same dose and not requesting a higher dose.
I do find Voltaren and Arnica help immensely when I can actually pin down the particular area of pain.
I have also noticed that since my diagnosis, my reflexes are hypersensitive . I need to warn Drs. That I might kick them. Lol
Thank you again. And I will be checking out more of your videos and presentation material.
I am so glad my information has been helpful!
Was a JAK inhibitor prescribed for another diagnosis?
@@Polly-wt4es my Fibromyalgia got an additional diagnosis of Rheumatoid Arthritis- I have a high C reactive protein and 1 titre away on my ANA in order to call it Lupus - as well as IBS and discoid Excema which is horrible.
I get the impression that Rheumatoid Arthritis is a bit of a "place holder" for general autoimmune problems that don’t fall into Lupus but react well to similar treatments. I do have quite a bit of Arthritis in general, mostly my lower spine but also around my hands where my bones had been abused as a child.
I bet that everyone of us has some trama in their youth.
I have been recovering from a breast reduction for the last 2 months and I stopped my JAK for only 10 days around the surgery. After my drain was removed, I spent 2 months with bandage changes every 2 day, then 3 a week, and down to 2 a week. Nurses who did the bandage changes were happy with the progress throughout and Dr is so happy with the healing that she’s setting me up for follow up Surgery because there is too much puffiness under my arm compared to the other side. All that WHILE taking the JAK inhibitor.
That blows my mind.
Great explanation ..I have had it 15 years..sick of it..i have done so many things and seen so many therapists…I have terrible tension..I use feldencrais , somatics, and melt method..meditation, my facia is sticky…fibrosis is what they used to call fibromyalgia…thanks doc..
Yes in many ways fibrositis, its name prior to fibromyalgia, might have been more accurate as it means inflammation of the connective tissue.
Dr G.
I’m 78 diagnosed about 10 years ago with Fibromyalgia. Help is limited even from GP who diagnosed me. Very frustrating. My doctor is more concerned with cholesterol levels. No help there except pills. I’m now in pre diabetic program hoping to help several issues. Difficult to keep positive and motivated. Thanks for the video. Will purchase your manual.
So frustrating when our doctors priorities are different than ours. That’s exactly why I wrote The FibroManual!!! Sending you healing thoughts
Am just learning about this but everything is what am going through am 28 i have 3 kids via csection and i does be super painful sometimes the pain moves all over my body 😢 sometimes it feels like my nerves also cos i can be relaxed and suddenly can feel the pain rushing through my body for no reason its annoying i feel as if i have no life sometimes i bearly wants to move for work or to go anywhere i try to keep exercise but if i move to much sometimes my body gets so soar 😢all my years I've been dealing with this trying to figure out for myself its great to know my problem now
Getting a diagnosis can definitely be a relief and help point us in direction of finding effective therapies. I encourage you to check out my book The FibroManual as a good starting point to learn more.
What a superb video. Thank you. Like some of the folk below, I'm nearly 20 years into my diagnosis now and still on slide one (I'm in the UK). It was once manageable. Now it definitely is not, and the pain is hitting unbearable levels each day. I think what has been most complicated (and demoralising) is trying to juggle comorbid conditions. A simple example: duloxetine was great for pain. Not so easy to manage with bipolar. And absolutely dreadful for severe RLS, to the point of stopping use. Some vitamin supplements: great in themselves, but trigger RLS flares and IBD/IBS symptoms. And now multiply that by goodness knows what for every other drug and supplement tried, tested, and failed. So in the end, though you know continuous opioid use is far from ideal, it's the only thing that doesn't add a whole bunch of additional problems into the mix, and for me personally the only drug I can take to control RLS that I don't react badly to in other ways, whether mental or physical. It's those combinations of conditions and complications, coupled with lack of knowledge, that is really keeping so many of us on slide one. But thank you for giving me some food for thought here with some other options I might be able to give a whirl! :)
Agree opiates only drugs without horrible side effects. 30 years in I only take opiate and tons of suppliments I started and did support groups at hospital for 23 years omn fibro and published a study on it. I had to quit. Age got me. Hope next yr brings you relief.
How can I get one of your manuals. I was diagnosed with Fibromyalgia back in 1992. I want to get off of the narcotics that I've been on if I can. I also have osteoporosis and osteoarthritis.
My first back surgery was in 1989 and the last of 5 surgeries was in 1992, I'm fused from L3 to sacral 1.
You are definitely Fibro Fierce dealing with it for all these years! You can get The FibroManual on Amazon.com
I thought I read in your book about supplementing with glutamine to heal the gut. Is this compatible with limiting dietary glutamate? Will taking glutamine increase glutamate? Sorry for the noob question. Thank you for sharing your hard-won knowledge!
Excellent question! The body can turn glutamine into glutamate. However most oral glutamine is actually absorbed into the intestinal cells and used there, and thus doesn’t enter the bloodstream. However some does, and some of that might be converted to glutamate. It’s a pretty small percentage, but if people are super sensitive to glutamate they may need to limit glutamine supplementation.
Just food for thought… I have sero negative RA, with severe fibro. I can’t take the classic fibro meds because of bipolar, with the result is really terrible mania. 😢 so I’m trying to figure out how to manage it still.
Question: you state that glutamate avoidance in the diet may be beneficial. What are your thoughts on being administered spravato since this works with the glutamate in the brain?
Spravato (esketamine) is a form of ketamine designed to be used intranasally. Ketamine works to block glutamate from binding to receptors (and can reduce pain in that manner). IV ketamine can be helpful for fibromyalgia pain (although in my experience it is hit-or-miss, works well for some folks, others not at all). The nasal form is not FDA approved for pain I am very curious to see how it would work for fibromyalgia pain.
First off, please let me thank you for your videos. Almost nobody is talking about this.
Question: what if any current information are you sharing with your patience about CBD?
Walk into any GOOD CBD store and they will love to teach you. They’re great educators. Not the gas station CBD but good stuff. My 91 yo mother in law uses it too
What are your thoughts about using muscle relaxants intermittently? I use Flexeril when I have a severe tension headache with pain in my eye to loosen up the tension in my shoulders, neck and jaw. I use a very low dose and I dont get super tired from using it. I agree with myofascial release including daily self MFR, calming the flight or fight response, and dry needling. I would add that PT may help with body mechanics and lessening bad compensation patterns and strengthening the core, but you need to find a therapist who knows something about your problems. I finally found some that are helping with a chronic pelvic condition which is where my fibro started.
I think muscle relaxants can be really useful for some fibromyalgia patients!
@drginevra I thank you for your information on fibromyalgia. I read your Figuring out Fibromyalgia book a long long time ago. You were the first doctor I ever encountered who seemed to really "get" fibro.
Hi Dr Lipton What do you think about cold laser therapy ?
Cold laser does seem to help for some patients, and there is some research to support its usage as well. pubmed.ncbi.nlm.nih.gov/31151332/
Dr where are you located?
I'm not sure what I have. The VA said I had arthritis and now they say it's not arthritis because my counts came back normal. I have pain from my neck to my shoulders on both sides. I also have pain on both my elbows but not in the joint but up and down the side where my arm bends. My wrist and hands both sides + my 1 hand is quite swollen. Pain on both my hips as well as the back side of my knees, in the same manner as my elbows. I'm also finding my skin feels tender now. I can't sleep, but mainly because of the pain. I don't seem to have brain fog or fatigue or anxiety, but I've been in pain for 3 months now. It came on as my lower back and hips and got progressively worse over the 3 months. I have no strength in my hands or lifting power with my arms. I do have blood tests out for Lyme disease & Rocky Mountain. I'm not sure about the results yet. The pain level is from 4/5 when I'm standing but sitting, laying down, stepping up to get into my truck, or sitting on or getting up off the throne the pain is between 8-10. Oh I got covid and had a fever and sick for 3 days and all my symptoms went away for the 3 days, Odd.
Hi Dr. Lipton, thanks so much for this detailed explanation of the pain pathway in fibromyalgia and the treatments that target each area. I was diagnosed with fibromyalgia earlier this year in June after going to several doctors and specialists, getting several lab tests done that all came out normal, since I became deathly ill in February. I became ill in February because I started taking steroids for my shoulder pain. But, I only took four days worth and my body devastatingly never returned to normal. I've been trying LDN now at a dose of 2.2mg for four weeks. I don't think it is helping. One pain doctor told me it takes 4-8 weeks to work. Is this true? Also, my original dose was 4.5mg but I cut it in half because it was making me nauseous, but I also wasn't taking it with food. Should I up my dose back to 4.5mg? Also, I looked at the Myofascial release website and the only provider near me is about an hour away and I can only drive locally at this time due to fibromyalgia pain and fibrofog. Where can I find other providers? I have been trying to search massage places but not much luck.
It does take LDN about 4-8 weeks to reach effectiveness, although some people note benefit earlier than that. If you can tolerate it, worth going up to full 4.5 mg dose to see if get benefit. But LDN doesn’t work for everyone, I usually ask my patients to give it a good 2 month trial at full treatment dose before giving up on it. Sending you healing energy!
@@DrGinevraI’m a retired RN and if it wasn’t for pain I’d have a great life. Because of my severe OA I’m on chronic opioid. I got excited hearing about LDN for FM, until I looked it up. Wow my IBS is so intense, taking Imodium many days. Plus with biliary dyskinesia I get nauseous frequently. Is it still worth a try if I get off opioids?
So much great information and eye popping too. So many things I deal with from tinnitus to muscle stiffness and never put it to that. Thank you 😊
I plan to order some PEA. Please tell me the amount you suggest for daily use. Thank you.
PEA is a bit complicated because the form used in the studies is not readily available in the US and what we do have available here is not well absorbed. I will be doing a video on PEA in the near future that explains more!
Have F.M. For 43 years with osteoarthritis in most of my spine and hips ( bilateral hip replacement) have been using lyrica for past 5 years and now have switched to CBD and cannabinoid therapy which is better still,but expensive,however will be safer on my kidneys in the long run. Any new medications for pain and especially fatigue and sleep would be welcome. Is your book available in Australia? Thankyou for your up to date and informative article.
The FibroManual is available on Amazon.com.au!
This is the link with eds or hsd
Most of the muscles on my legs are stiff and sore, my arms, shoulders, muscles above my hips, my back, sometimes my abdominal muscles hurt like period pain. I sometimes wake up at night or even day with pain like electricity all over me then next day I'm ok. Could it be it?
Dr, PLEASE answer my question! I am desperate for the truth..I go to my encrinologist tomorrow, and I cant trust him with the truth about my medication..hes the only one available in my area.
I am not diabetic, I am probley pre, but am hypoglycemic...recently he started me on Januvia, because I couldn't tolerate metforman. IS there ANY chance this medication could be causing more pain and migraines with my fibromyalgia that I've had for 30 plus years?? I also have severe arthritis. Which is worse. I start and stop it to test it, it seems to be worse when I take it??? My dr told me it has no side effects, which infuriates me, because we know every medication does..I am a nurse. I just want to cry..I just need some truth!!
I can feel the beat of my heart, feeling heart beat is also fibromyalgia's symptom ?
This is helpful thanks. I think I have this. It's basically staring at me in the face 😢 Is black seed oil or bee pollen helpful?
I'm confused about how they determined that opiate medications "sometimes" increase the number of pain receptors. You can only have one autopsy, so when they count the pain receptors, what are they comparing that number with?
Sorry for confusion. Chronic daily opioid use will always increase opioid receptors, but seems to become problematic more with high daily dosages.
Why see a doctor if we read the book and know more than the doc?
Do you know whether a stellate ganglion block would help with fibromyalgia?
They say it does with CFS so same thing
Thank You for explaining more about Fibro.
Can you please let us know what best type of Magnesium to use. As there’s many diff types of Magnesium’s.
Thank You.
I typically find magnesium glycinate to be the best tolerated and most useful form. You can find much more information on magnesium is in my book The FibroManual
Did you look into Agmatine Sulphate?
Hmm, I am not familiar with that.
Immune system modulators would be huge, what about one used for lupus I have been suffering with fibromyalgia probably 30 years . Hashimoto’s, celiac , osteoporosis, severe at 46 , complete diet changes to only whole unprocessed foods , with changes made with help of naturopathic doctor, with Magnesium lotion and liquid supplement . I Was able to get prescription for CBD from a Functional medical doctor when it was legalize I live Canada, first doses was like the lights were turned off ahhh a little peace in this head. It took the edge off the hopelessness of fibromyalgia and coping with a much smaller life now. Invisible chronic conditions are mentally and physically exhausting and demoralizing. I go to a osteopath every three weeks for mild adjustments from muscle spasms . And loosen joints pulled by out of place.I have about four useable hours in my day and have been learning acceptance of this all. Ten years of taking control of this by all of the above.
Bring information to my then doctor. Lyrica and two others prescribed in my 40’s didn’t work well and left me unable to continue teaching. Early retirement lost of full pension! I am close to 70 and feeling scared of all this pain and inflammation is shortening my ability to live much longer
Yet I am a warrior and tomorrow is another day to try again ! My clean diet , walking in nature , gentle yoga, osteopathic treatments , CBD oil and breathing properly are on my daily efforts. I am grateful that I may hear news of hope for immune therapy soon. What about lupus one my daughter takes even while I wait….?? Thank you Doctor Ginevra
I think we are going to see an explosion of research on immune system medications currently used for treating things like lupus to see if they help in fibromyalgia. Stay tuned!
How can I order a copy of your book?
www.amazon.com/FibroManual-Complete-Fibromyalgia-Treatment-Doctor/dp/110196720X/ref=mp_s_a_1_1?crid=24KOUQUP3JWKR&dib=eyJ2IjoiMSJ9.CVXh14-mn-vYMEqfNex330aXBjgWDV_1cITq2StiWczPChXjHMe_P3ifrZ4DvfxtmJg2Rwp-u0cOYcWVBOYz9tXEpQifYvP2G-bueQX--7Rp27c9w60jbl_GyhECb6KoqzizPVyi-76FBOKZP6eIhQ.sxm1ge8gH8AO5eYAQ-kXBTPVROmlA13wxGjlPh7uEEY&dib_tag=se&keywords=fibromanual&qid=1713970033&s=amazon-devices&sprefix=fibroman%2Caps%2C153&sr=1-1#immersive-view_1713970126360
Are elevated CRP & SEDrates possibly from brain being inflamed ?
Central nervous system inflammation is generally hard to find on regular blood tests like ESR and CRP. Most people with fibromyalgia don’t have elevated ESR and CRP, and it takes specialized blood tests or looking at the cerebrospinal fluid to really see the neuroinflammation.
Thank you for such an informative video. I've been diagnosed with fibromyalgia. I'm not sure about it because my areas of pain are a bit different. I'm going through dental implants, but I can't finish it because my mouth is swollen and painful. The other areas are my vagina, legs, and feet. I just ordered your manual to further educate myself.
Another consideration would be to see a neurologist to see if you might have small fiber neuropathy, and see a rheumatologist to be evaluated for other autoimmune problems that can cause vaginal and oral swelling and pain.
What state are you located in?
At the end, I could not understand the first of the two treatments that she said she had found to be most effective. The second one was mayofascial release (sp), but the first was a long term that she, apparently, expects us to be able to understand when it is said fast. So frustrating!
My apologies, the second was low dose naltrexone.
Hi, I need help for body pain while Iam sleeping and insomnia
I hear you. My pain has gotten worse, along with my insomnia. I have tried Lyrica and Cymbalta and had horrible reactions to them. They actually made my fatigue worse and couldn't think right. I have tried Tylenol P.M. and melatonin and still only sleeping between 3-4 hours a day, but wake up often.
What about chronic fatigue syndrome please?
Some people lump chronic fatigue syndrome and fibromyalgia, others feel they are two distinct entities. I am in the latter camp. CFS seems more similar to chronic post-viral disease, similar to Long COVID. It is not uncommon to have both CFS and fibromyalgia, but they do need to be treated differently in my experience. The folks doing the best work on CFS right now are the Bateman Horne Center in Utah.
Why do my blood tests show no inflammation like the ANA TEST AND WHATEVER OTHER BLOOD TESTS THE RHEUMATOLOGIST HAS YOU DO? But yet I feel hard tight hamstrings with muscle knots in the hamstrings feel like little balls hard little muscle knots. And my shoulders are all tense and hard and never get untight
The inflammation in fibromyalgia is low grade and a different type that is not seen on the typical inflammation tests, but can be seen in different tests usually done just in research setting. And what you are describing in your muscles I think everyone with fibro can probably relate to! Check out my video on myofascial release therapy for fibromyalgia, it can really help reduce the painful muscle tension . ua-cam.com/video/__sNBnGpmJ8/v-deo.htmlsi=EsBMZ77nMfDwTayc
Why can't you still be actively private practicing?! Would be delighted if you were My Doctor!! You get it-You are one in a gazillion! I am 65 and I know what I need and can't get a doctor to help me get the effective treatment that I deserve!
One of my life goals is to train other doctors so everyone can get the fibromyalgia care they deserve!
Im still struggling with the revelation that my pain wasnt supposed to be normal this whole time 😭
Is CFS related to Fibro, do they go together? I think I have both? Are they the same?
Great question. Doctors definitely don’t agree on this, some feel it’s the same thing, others ( like myself) feel they are separate conditions that have some overlapping symptoms. I have a section in my book The FibroManual that goes more in depth on the subject.
Could you maybe make a video about this. Xx
@@DrGinevra Thank you!
It is as the Dr says. ME/CFS and fibromyalgia are different conditions but they can overlap.