Ive been working on this for myself and have found a few things that are giving me massive relief. PM me if you're interested in learning about what ive been doing. (this is not a sales pitch in any way)
“But you don’t look sick” I’ve had fibro for years and it’s hard to do much as even hug my kids. It’s a very sad and lonely sickness. It is true sometimes we start to think omg could all this possibly be wrong wrong with me? But yup it can. Keep being positive. God knows I’m still trying to work on that 💜
One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination. Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same. PEMF technology is incredible, it’s Star Trek healing L😆L Albert Einstein said "Future Medicine will be the Medicine of Frequencies" This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature. Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else. No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
Hiya i have had fibromyalgia for 20 years old, I'm in my 30s now and it's getting worse. My family don't understand except my mum and she is amazing, I've had doctors say it's in my head and i have lost count on all the pain teams they have know clue about chronic pains. I have to say that's a major major blow for me because it's written down in my hospital notes that it's in my head and nobody believes it and even now I have to make doctors understand because most of them haven't a clue what it is. I have trouble reading, spelling and maths but I was crap at maths lol, I was a really good at spelling and writing when I was at school.Its so embarrassing now when I'm talking to a stranger and I can't remember words and names. I spend most of my time in bed and I know I should be up doing exercises and get up and go for walks or go shopping well I really do try but I'm so tired and my arms and legs get tired, I struggle to wash my hair because my arms are just to tired and if I push myself I suffer for it.Doctors can get blood out of me so I can't go on any medication for it because of this. The reason we can't get blood out of me is because I have Raynaud's disease. This disease means my hands and legs swell up and they are cold and very painful. Recently I got told I have costochondritis and that causes pain in my chest and back. I thought I was having a heart attack, it scared the shit of me.I do have a lot of health problems but this disease is a nightmare because I can hardly do anything these days. My little sister had a baby she is 3 in June and I've only go got to play with her for 15 min and then I'm wiped out and now she is having another baby in may 2017 and I will really struggle. I really want a baby but doctors say it will cause me so much pain they think it will be to much for me. I have no friends my sisters don't want to know me because I can't do anything I've got my mum and cousin and that's it. My mum is amazing I love her so much.I have thought about killing myself because the pains gets so bad. But I can't because of my mum. Hang in there every one I am here for everybody that has this disease. 😥😞
Emily Truman I'm so sorry for all you're going through. I just wanted to tell you that I understand. It's amazing that we suffer so much from daily, full-body pain & other terrible symptoms; and yet, the worst pain is that of having people judge, disbelieve, misunderstand, emotionally abuse & turn their backs on us. My mom used to tell me that you don't keep people in your life who kick you when you're down... But what if that is just about all of them? What if it's people you can't avoid, like a boss or coworkers (if you're still trying to drag yourself to a job?) What if they are your best friends? What if you're related to them or married to them? It's impossible to not be affected deeply by this (unnecessary) pain from being mistreated & misunderstood. It's impossible to not feel like screaming at people who judge & criticize, from the comfort of a life you can only WISH for, that you're SO jealous of! On top of this horrific physical pain, we have to suffer from the terrible emotional pain of having our lives ripped out from under us like a rug beneath our feet. The person I was meant to be still lingers in the back of my mind, longing to be set free... What if she knows that the cause of this illness was the cruelty of others that she silently endured for too many years? Trying to help people who ended up destroying her? I know how lonely & crushing it can be to watch your sisters go on & live their lives- mine is fulfilling dreams that I once had, as well. I love her, she is my sister (and she's not one on the people who are mean to me- but I definitely have those) Still, it's so hard to see her (or anyone) get to live the life I once had, which is becoming a distant memory, fading more & more each day...along with the woman, wife, mother, business woman, sister, daughter & friend I was meant to be... no one should have to live this way. I'm so sorry that you're suffering from it, too. All I can say is, "I know."
Emily..Fibro is a tough illness to have on a daily basis. You are stronger than you know and a fine courageous young lady. It takes a lot of strength to deal with this cruel and unrelenting disease. The only people who truly know what you are dealing with are those, like me, who know what it takes from us. 24 years now with me. You will go through all kinds of emotions. Why me? Anger, Resentment, Frustration, Loneliness, Depression, Fear, Loss. But one day you will wake up and decide to accept it, live with it, cope, in your own way, make peace with it. Do what you can, when you can. Pace yourself. Be proud of who you are Emily. People's opinions won't matter to you any more. You will have gifts from it. You will know compassion, tenderness with others who suffer illness and pain...just like you and that is a gift. Forgive others for their lack of understanding. They simply don't know. Be a teacher to others. Your mum sounds wonderful. Cherish her. Some people have no one to turn to and struggle alone. All the best sweetheart. Frangi, England. xx
consult a rheumatologist. He will prescribe you with pregabalin NT (nortryptaline) & Deflazacort for fibromyalgia and some other tablets like vitamin D, calcium, Evion LC. It will work for sure !!
Emily Truman -- I had a host of problems that even I had trouble believing were real (I kept getting angry at myself, and thinking I just needed to push forward harder). At 32, after a host of tests, I saw the specialist who told me I had fibromyalgia. "You're going to be in pain for the rest of your life," she said, "but there are things we can do, and you can do, to help manage it." There are things, she's right, but since I got too sick to work or afford health insurance, it's been a lot harder. My mom helps me financially, too, but it's hard to not be able to run errands easily, drive to see family, or regularly visit with friends. My dad truly thinks I use illness as an excuse not to make it to family holidays, and thinks I don't care about him and my stepfamily (who I love and miss being able to see -- my nieces are growing up and I'm lucky if I see them twice a year). One example I use to explain what this sickness does to me, for people who might be able to understand, is tell them, "I haven't been able to wash my own hair for two years now." (I've become very prone to muscle spasms, and normal exertion for many people can be such an overexertion for me that washing my hair myself usually means seized up muscles and pain for days -- too much to walk my dog or even easily use a computer.) There are a few (non-medical) things that help me. If they're not things you have in your life, or have enough of, maybe they might help you, too. 1. Doing what you've just done here. That is, finding other people online who also struggle with chronic illness and pain, and reaching out to them. In my experience, the community of people I've found on Twitter who have chronic pain (especially people who are disability rights activists), is very supportive -- I've actually made two close friends through that online community (some people close to me even drove me to visit those friends once -- they live in another state -- and spending time with them in person was like being with the best, kindest family I could imagine). Some of us may never meet, but we find ways to help each other. 2. Looking for therapy, or writings by mental health professionals, that addresses the very real loss and grief of having your life plans horribly altered by either permanent illness, a disabling event, or some other source of regular pain/fatigue/severe limitation. Your area may have counselors or centers that do work specifically with people who are experiencing grief or loss -- or more generalized therapists/centers who can work to help you on a sliding fee scale, at the pace you can afford. --If, like me, even a $30 session is a big expense, it can be helpful to find books, blogs, or articles that validate how much this type of illness affects our lives, cognitive abilities, and emotions. I find that validation helpful from fellow fibro patients, but hearing/reading people with advanced degrees saying that it's normal to struggle with deep, difficult emotions reminds me none of this is something I'm making up. I'm still going through the grieving process of losing so much mobility, so much energy, and (what feels huge to me right now) so many options. It's hard. It's sobbing, aching from sobbing (I've had a lot of problems with costochondritis, too), isolatingly hard. But neither of us is alone, and there are people who believe you and know what you're going through. 3. Finding something -- no matter how frivolous it seems -- that you really enjoy. Examples: Fantasy or romance novels/audiobooks; online or single-player video games; TV shows (from documentary series to cartoons) you can stream (I know people who don't live together who share a streaming service membership to make the costs manageable); UA-cam channels that make you laugh, teach you about subjects you like, or calm you down. Good distractions are emotional refuges you deserve to have. (If anyone wants to judge you for that, maybe they'd like to step up and bring you lunch, or pay one of your medical bills, or...well, you get the idea. The people who will really make time to love you aren't going to have time to judge you, and the rest should go get a hobby, themselves.) We have to be as kind and generous to ourselves as possible, because fibromyalgia isn't kind. Keep hanging in there; I can't make any promises about what life will be like further down the road, but I can say my mom's been living with her fibromyalgia diagnosis for almost 20 years now, and she's found ways to carve joy, empathy, and meaning out of a life that fairly quickly went (as a video-game enthusiast friend of mine described it) into permanent hard mode. I try to hold onto the hope that I'll find new ways to live with meaning as I keep going, and I'm holding onto hope that you find renewed strength and, eventually, new joys as well. (Apologies for the novel I wrote above; I've been up all night in unmanageable pain, much complicated by my being sick with a respiratory virus.)
Hi Jo. So sorry that you're suffering from this cruel disease. Thank you for sharing your story with us. I know it isn't easy to live with. It's cruel and nasty. I've had it for 24 years now and I know how bad it can get. You are doing a good thing by informing others about your struggle. The more we tell others, the more understanding the world will be. When my symptoms began, aged 39, not a lot was known about Fibro. It took me 11 years to be diagnosed in 2007. It's good to know that people are becoming better informed. I am 62 now and take each day as it comes. I manage it. It is all we can do. Good luck Jo, all the best, Frangi xx
I was just diagnosed this year in April 2021. Everyday its hard mentally and physically. Its very depressing but my mom helps me a lot to motivate me and making sure i take my medications. I really don't like to talk about it too much with people because i will start to feel like i am a burden to them or complaining too much. The symptoms are REAL😢
This also affects men. I started out after an accident hitting my head with occipital neuralgia and somewhere along the line somewhere around 15 years ago I develop fibromyalgia out of it( which is actually a pretty common way to get fibro) I too had to leave work and I too have no money. Praise God for my wife !stuck with me all these years. However, I want to encourage you not to give up. It's taken these 30 years but finally I have some relief. I still have pain everyday and suffer with fibro fog but finally being able to live with my wife rather be alive again with my wife after 30 years is amazing! A major difficulty for me is it from time to time I recount all the things that I've lost: abilities, and opportunities. However, I have to focus on the good things and praise God for them. I wish you the best and for all on this post who are suffering I wish the same thing.
Corpse husband has fibromyalgia and I think many people are getting introduced to what an agony this actually is like. To everyone suffering from this illness my heart is with you and who knows maybe in the future there will be a cure, stay strong, it’s unbelievable how much you overcome so far and keep fighting!
I'm 24 and I was diagnosed with Fibromyalgia 3 years ago. There are doctors that don't take me seriously and so I'm left to suffer. People tell me I don't look ill or I'm too young and its all in my mind :( it's very real to me and everyone else who has this condition. Thank you, so much for spreading awareness ❤️ 💜
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Same for me I didn't understand what happening with me ??? I am facing unknown disease I did many test but all my test are clear I am facing pain on my body , stomach, chest even burning sensation on my legs and hands . Doctor didn't understand my disease I think I want to die but this is not the solution . Only I understand what I am facing my own relative's says that busy yourself with others people but they didn't understand what I am facing due to reason of unknown disease I spend my time on bed . Many times I am facing havy Chest and stomach even I am facing that pain travel on my whole body . How many times I ignore this ??? My family and relatives says ignore the pain and keep busy on work . I think I will be die soon😔😔 not understand what should I do ??? I didn't want to die . I am the only single child of my mother. I want to live normal life like others but what should I do ?? I stop taking medicine only listen healing music therapy. People know about there disease but I didn't understand what happening with me .
As a fibro sufferer, I so relate to her story. When I first was diagnosed, I was having pain so bad that I was unable to get spontaneous hugs from my daughter, and trips to the grocery store were agonizing if the air conditioning within the store was up too high. That's why I decided to devote part of my YT channel to exploring fibro symptoms and possible treatment options. This condition is truly awful, and I wouldn't wish it on my worst enemy.
Thank you for sharing your story and bringing awareness. I've been suffering from severe fibro for over 3 years now. It's so hard to explain what our body is truly going through. Nobody truly knows unless they're living with it. So thank you for sharing.
Herbal remedies helped me, I have been suffering from Fibromyalgia for the past 5 years till I meet dr uwa. I never believed until i tried his herbal medication, his herbal medication cure me permanently, I'm free...
Hi Jo I'm so so sorry your suffering from fibromyalgia I have suffered for 6 years and I got diagnosed on January 2020 after 4 years trying to find out what was wrong with me. It's nice to meet other people who have it and understand the pain we are all going through with this disease. Although my friends know I have it they dont understand and doesn't know what it does to me. I dont show up to school for a week or more because I'm aching that badly. I think it started after having Scarlet fever for months it has horrible which is what I think caused it. I'm being strong though and trying to help get through it but as soon as I got discharged from the hospital appointments It started again. I hope your life gets better Jo -From a british 12 year old
I read all the comments here and just want to say to all of you that I love you. Yes, thats right, I love you. I understand you and I believe you and I love you. Im praying for everyone who posted a comment. God is also invisible by the way and He too is real. He wants us to keep our eyes on Him and He doesnt care if you got the dishes washed or not or if you laid in bed whining all day, He doesnt get uptight like people do. He just wants us to love each other. Much love to you all!
God bless you. I have had it for over 20 yrs along with lymes, babesia, sjogrens, RA. neck and back issues.etc I remember my daughter as an infant kicking off of my chest and it really hurt! I lived on Long Island, NY and started pain management. I could finally "live" instead of just existing. I was labeled a drug addict. My family could not understand how bad it all was. My whole back from the neck down either feels like it's on fire or hurts. I worked full time until 2011. I was let go and filed for disability. I am 60 now. I moved to Fl and they have cracked down so much that I weaned off meds and currently take nothing. I went the route of, physical therapy, massage therapy, accupuncture, facet injections, epidurals and cervical traction while in NY, nothing helped. I am so very sorry you are dealing with this. Very soft hugs and prayers for you.
I have fibromyalgia for more than twenty years for this young lady with a husband and young child take your time with yourself and my job was on my feet for 38hrs a week plus family life i was very very active like this lady plus thousands of suffers looking after a child with it is going to be very hard but just try pace yourself yes you are not alone i thought i was alone until it got more of an awareness when i was first diagnosed no one heard of it but i have mine with a lower back problem and i am chronically very ill with it i get so fedup but my faith in god is keeping me chin up lady you will be okay just hold on cry if you want i use to now i groan its so painful my trears dont come but take your time and listen to your body okay stay blessed
I have fibromyalgia too. It's gotten worse since I've been getting older now. The fatigue is awful and my lower back pain comes and goes. I take lyrica and curcumin with turmeric for pain. It helps alot.
I’m 65 & I was diagnosed when I was in my 30s. I worked in an acute care hospital working for 30 yrs & had to retire at 52 as I could no longer think correctly as a medical transcriptionist at that time. It was difficult with coworkers who treated me badly because I couldn’t take them telling me I wasn’t doing my job well. I went to college & received a certification for phlebotomy & then for transcription. Imagine your coworkers being angry over the fact that I received a certification so there’s nothing wrong with me. I could go on for hours as I believe we all can over this very uncomfortable painful at times condition but I want to say I understand what U are going thru. God Bless U & your family.
It can get better but it's still a daily challenge. I found that certain foods cause me joint pain and brain inflammation: dairy,wheat, buckwheat, gluten, brown rice and white rice. The reaction is almost instant. I also found that a full nights rest is absolutely crucial to functioning. Caffeine is anti-inflammatory, it calms the nerves and acts as a bronchodilator. The first thing that I saw the most improvement after taking was kefir. I also saw some improvement with Sinto Kimchi specifically with my sinuses and allergies. Liones Mane mushroom helps me with concentration. Ashwaganda relaxes an otherwise easily frustrated me. Getting some sun always makes me feel better. I weekly try to get in my diet cruciferous vegetables, Brazilian nut and wild Canadian blueberries. I was officially diagnosed 4.5 years ago but my issues started 6.5 years ago at the beginning of my 30s. I haven't worked in over four years and had to give up my social life. The biggest problems I still have is brain inflammation, inability at times to be able to focus, tendon pain, chest pain and fatigue, but none of it is as bad as it use to be, so there's clear improvement. *** The worst three symptoms I use to get are virtually non existent now. Those symptoms were narcolepsy type symptoms when rain was days away in the forecast, severe painful joint pain when rain was in the forecast, tin man full body aches and stiffness when rain was in the forecast or humidity was high, trouble breathing, extreme full-day fatigue and 8 hour severe brain fog spells. I pray for your healing. Most importantly prayer and faith has helped me. 💛
You are not alone. Please remember disability is not defeat. Continue fighting for a treatment that works for you. I also have fibro and some chronic injuries to my feet. Hang in there.
People think we exaggerate this condition if only ..I am just about able to touch my skin on my legs at time I get numb patches where I can't feel it and places where it hurts to even have trousers or anything close to me ,, I'm awake 20 mins after even a day where I have a restful sleep and the chronic fatigue engulfs my body thr list is endless head ache can't take noise as I can hear a pin drop then bouts of tinnitus muscles spasms shooting nerve pain in my spine that's so severe my legs give way ...and people think this condition is not real i get so fed up trying to explain it i don't even try now i truly feel for this lady who posted her story i understand her so much I think it's a very challenging chronic condition good luck and try and stay strong for your family
Thank you for making this video. I have been diagnosed with Fibromyalgia 4 months now although the more I learn about it, the more I realise that it must have started at least a year and a half ago. It started with fatigue and then anxiety turning into depression and finally when my cousin passed away from that brain tumour she had fought for 13 years, the pain started! It seems to me that those doctors who acknowledge the disease along with the pharmaceutical industry only treat the symptoms. At the end of the day, it is up to us to live with it and hopefully get to the root cause of why we are experiencing this hardship...i wish you all lots of courage (and to me too). It is important to know we are not alone.
Do not dought yourself. I have had FMS since I was 45 and I am now 72. It gets better and better as life goes on and life does go on. People differ in their opinions. Some will believe and some will not. I have found that in the end it is what you believe. Do not doueght yourself. Take heart. Do what you can and that will be enough.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I've never seen one person comment it gets better with age 4 yrs it's took me to find out what was going on all i got was it's menopause I went from going to my doctors 10 times a yr to 550 times a yr I'm still struggling to get my head around this condition and my opinion is I doubt it will ever get better but to be in pain at the age u should be enjoying Ur life sucks
@ I guess that I had some luck along the way. I was diagnosed within a few months. It was terrible and frightening at first. I had a Doctor take me as a patient after the Doctor that got me in to see the Rheumatologist left the Territory only to tell me that she would not try to treat my Fibromyalgia because nobody knew what caused it and nobody knew how to treat it. That was scary news. However, she did refer me to a pain Doctor and my employer had me go to a “pain management course”. I also had massages when ever I could arrange them. I found a few things that helped now and then with all these people. Antidepressants for sleep, anti anxiety meds to help with the anxiety of dealing with a chronic medical condition. I learned the odd thing from the message therapists (lay on a rolled up pillow each morning before you get up to straighten your spine). I went to a physiatrist once a week for 5 years. I did not get much from him except to sit in a comfortable chair and complain. I learned to do some simple strength and flexibility exercises. I learned to cook from scratch and eat nutritional food. The strange thing was that I eventually gave up trying to cure this thing and learned to live with it. I remained faithful to my exercises and diet, went to bed early and got up early. I managed to work 11 years after my diagnosis. I was really tired though and didn’t get much done for the first year of my retirement. However, I perked up and noticed something strange. My health regimen was really good for my appearance. Most in my age group got stooped over and looked old while I looked good. They also fell prey to such things as diabetes, heart disease and cancer. There isn’t a concrete answer. There is just work with whoever you can find to work with and live a healthy lifestyle. I am 77 years old now and live every day as it comes. I was lucky I guess and I wish you the same luck.
I really feel for you and for all of you young people with young children. I have had fibromyalgia for over 25 years, but luckily my children were all grown up when I was diagnosed, even though I think I had it for many, many years before. I can’t imagine having young children and trying to deal with this horrendous illness. It is a full time job just taking care of all the symptoms of fibromyalgia, without having to take care of another person and run a household. My husband never did understand what I was going through and didn’t give me much support unfortunately. He always said I looked ok. Like someone else said, it is a very lonely illness as most people don’t believe there is anything wrong with us. Hugs,and lots of support to all those living with this devastating illness. ❤️❤️🇨🇦❤️🇨🇦
I have been in pain for many years. I was diagnosed in 1992 with Fibromyalgia. I am now and still in horrid pain. But I no longer have to work because of my being retired. I feel your pain, my dear. I wish your lovely little family the best in life. The thing is we don't look like we are in pain and that is the sad thing. I live in Nova Scotia Canada, it is surprising that Doctors really don't know that much about it or to treat this. Soft hugs to you. Sometimes it seems I go into remission for a short period of time.
I've had fibromyalgia since 1997 but can remember back before then I had these pains through out high school. I'm 43 now and everything has gotten worse. The pain is unbearable some days. I don't know how long I'll be able to carry on working but I push myself as I need to look after my family. My memory has started to get worse and I notice it is very bad when stressed. Some days you wouldn't think I'm in pain at all but inside I'm like is it 5pm yet! Home time. I feel so sorry for my kids. I wish I could be more active and less grumpy but some days the pain really pisses me off.
consult a rheumatologist. He will prescribe you with pregabalin NT (nortryptaline) & Deflazacort for fibromyalgia and some other tablets like vitamin D, calcium, Evion LC. It will work for sure !!
@H K The microbiome research is fascinating. I was just watching a lecture/presentation by a father on his son, the other day. His son has severe chronic fatigue syndrome/ME. His sons Doctors found that he had makers/test done showing that his microbiome wasn't functioning properly. One of the first thing I did and saw noticeable improvement many years ago was drink kefir. It significantly reduced the duration of my brain fog. Eventually I gave it up because it is dairy.
I too was diagnosed in my early 20s but I remember having these pains in Jr High School. I remember the dizzy spells, sore ribs, deep aching chest pains, depression, anxiety attacks. Countless doctors visits and test and each time they'd say nothing was wrong with me and the more depressed I got. I'm 45 now and some doctors still say "oh you don't have that, who told you that?" Even though it's in my medical records some doctors still treat this condition like its something "in our heads".....I hope you're managing well these days and hanging in there. It's not easy and very disheartening for patients in a medical community of doctors who still today refuse to acknowledge this dreadful condition.
I used to be a nurse and at the age of 23 was told by a fellow nurse that I might have fibromyalgia because my ribs were hurting along with shooting pains. I have up nursing but my doctor would not acknowledge my illness. The pains are agonizing, even after four decades. When I turned 50 , the doctors said I had Multiple Sclerosis. However, now I have atrocious pains all over my body they are saying neuropathy ! I honestly stick with Fibromalgia because these pains accord to symptoms that others with this awful affliction have. Doctors in GB do not seen to recognize Fibromalgia and if a few di, you are thought of as a neurotic woman ! Do you have shooting pains, unable to sleep, feeling exhausted, depressed etc ? What medication are you in ? I refuse to take Gammas, Tramadol etc....why ? Because I know the awful side effects of these drugs. Kind regards from GB.
I have fibromyalgia fir 10 years. I can relate to 😣 her. Fibromyalgia us Real. Fibromyalgia is not in the mind. The pains are real, the brainfog is real, thd depression is real, the chronic fatigue is Real. I wish family n friends can get themselves educated about the condition then try n be more supportive instead of just judging all the time. BE STRONG 💪 ALL YOU FIBRO WARRIORS. YOU NOT ALONE.
I've had fibro for 17 years (diagnosed). It started when I was 20 years old. My condition deteriorated for about the first 12 years. I found it difficult to walk and most movements caused me real pain. I decided I was going to start exercising (even though I believed that it was probably not possible to last). I was very limited in what I could do but I kept pushing myself slightly beyond my comfort zone. I would do uncomfortable exercises but would only avoid exercises that caused significant pain. When I started I could do very little and it felt like my efforts were in vain and that I was damaging myself but I kept with it. My training grew to consist of gentle kung fu, light weights, and stretching. After about 6 months of training I found my condition improved by about 50%. I have now been working out for about 5 years and it is safe to say my condition has improved by about 80%. I am now 37 years old, can go for light 5K runs, I am enjoying regular kung fu classes (and hope to gain my black belt in a few more years), I can do about 30 pushups, I have a pretty good six pack, and my pain levels do not go beyond a feeling of stiffness (unless I overdo my training). Not too bad for an average 37 year old man. I cannot offer a prognosis for anyone with fibro but I just want to give you hope.
Ogma that sounds amazing, I give you serious props, I'm 19 and I've had Fibromyalgia for almost 9 years coming September. I've tried doing exercises and pushing myself a little, but I end up throwing up after the session because of too much adrenaline and pain coursing through my system. That's the funny thing about fibromyalgia, isn't it? Most people who have it have the identifying symptoms of fibro, but they way it affects each person is different. And like you, my pain just gets worse and worse every day, every week, every month, every year ... I've given up on relationships with everyone but my family who I live with and see everyday, I've constantly had to take time off of work and I don't know how much longer I can keep up with it. It's come down to the fact that I've found it to be too much effort to even get out of the house sometimes (even for doc. appointments).
@@catpersIt must be though being so young, just starting your life and dealing with such an illness. I do not have fybro myself but I have read a book called medical medium where he explains the cause behind the illness and how to treat it with dietary changes. I have read so many testimonies on instagram of people recovering from fybro following his advice's. Go get the book and start following medical medium on instagram, it might change your life. I just felt I had to share that. Good luck!
@@MsJannapanna thank you for the advice. I have also seen many similar testimonials, unfortunately, I myself haven't seen a difference but I will be sure to check that book out!
@@catpers consult a rheumatologist. He will prescribe you with pregabalin NT (nortryptaline) & Deflazacort for fibromyalgia and some other tablets like vitamin D, calcium, Evion LC. It will work for sure !!
I’ve just been diagnosed with fibromyalgia after many many years of unexplained pain and sheer exhaustion. I also got the feeling that everyone just thought I was a hypochondriac. To finally get a diagnosis was a relief but I still feel that little is known about it and I find it difficult to explain it to anyone
I’ve had it for so many years yes I believe you sweety I was in nurses I had to leave my manager never believed me . It’s so sad cos you can look so well but your screaming inside with pain I’ve put on so much weight but it’s not the food as I’m on a great diet for my fybromyalgia but can’t excersise So much I do light Pilates . And stretches I do get very sad 😞 for no reason I have 5 children it’s been so painful . My children are so helpful But my husband have never understood me . In the end we ended up divorcing so so sad in my heart 💓 Now I’m remarried and he does not understand my illness either it’s so sad 😞. I’m in so much pain I can barely walk but I do keep positive But then my chronic fatigue takes over . I’ve put on weight coz meds do that then I’m in menopause also That doesn’t help I don’t have a life anymore we’re I live there are no support groups Or no were to get a massage or go swimming . So I’m going to change my life and move back to bf Poor lady ... it’s sad wen you can be soirounded with so many people and still be alone .
Paradise Soon I hear you I’m in the same boat divorced because he didn’t understand. I didn’t remarry but I’m engaged. Kind of afraid to remarry. My fiancé also chronic pain from being an ex bmx racer but I honestly don’t know if that makes it better. It’s like the blind leading the blind. I have hood days and bad but in spite of this terrible debilitating illness I try to stay positive and have faith
I have had this illness for about 13 years and I have it really bad, and have been taking strong pain killing tablets from my doctor to help with the pain. I had to go and see him the other day and he informed me he was stopping my tablets as it was a government thing to clamp down on people taking strong pain killing tablets, i better say I have never been a person that likes taking tablets and I have cut my dosage down to half of the prescription says.
I am in the boat! I feel "lazy", worthless, and sick and I have a lot of guilt about it and I've been dealing with the fibro, I think, since I was a teenager. But I was diagnosed in 2007 and treatments have been ineffective for the most part. The Lyrica helps some with the pain but I'm at the max of that treatment. I cry when I hear stories of other people like me because this is a very lonely disorder!
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
People can't see it, therefore they think it isn't true. It's difficult to live with because I look fine on the outside but people don't understand the constant pain and fatigue. And the confusion I get. It's so frustrating especially when people think I'm faking it. I would love to feel normal again.
I live in Houston Texas and was denied disability, they said it’s in my head, how did a Dr diagnose me if I don’t have it, I’m with you on the money part so I work 3 days a week as a cashier in total pain, not easy but I have to😿💔😿
If only i could give up i would, there is no hope, no respite just getting through another day. i have had fibromyalgia fro many years it started when i was 15 and i broke a vertebrae in the middle of my back, after helping move a piano. No-one knew and no amount of crying about it at the Dr.s would get me an X-Ray, the fatigue was very strong at this point, then i started getting pain going through my kidneys and my back it was like being prodded by a lance, I had also developed diabetes 2 yrs. earlier. Then i got married at 18 and had 2 sons, the eldest bless him had autism, it was very hard trying to be the Mother my Mum was but i managed. The boys took a lot calcium from my bones and so more fractures developed, i now have 19 in my spine and i’m going for a shoulder X-Ray this morning. It feels as if the cartilage has worn away it almost comes out of its socket. But in the words of the song ‘i will survive’ thank you Jo for everything you said it’s very sad that we have to go through this agony each and every day Good luck to you and your family.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Thank you for sharing this video of awareness and for being a voice for those like myself who have trouble expressing how I feel I’ve been suffering from fibromyalgia for almost 13 years now along with depression Fibromyalgia has robbed me of so much My struggle it’s so hard What do you do when all you have to look forward to is pain 😢💔 Much hugs from Florida 🌺
Hope today is a good day for you fibro sister read your post today and no where your coming from every day is like ground hog day for me pain depression and lack of empathy from others and so it goes on I get more help and feel less alone reading messages of understanding on posts then I no I'm not in this battle alone God bless you today and every day and I wish you a pain free day xx...from. London
I got recently told I have fibromyalgia about 12 months ago the problem is I have osteoarthritis arthritis and rheumatoid arthritis and every time I saw my doctor oh it’s arthritis and was in a lost of pain and no one was listening to me. I saw a different doctor I told him that I can’t take the pain and he touched me and told me I have fibromyalgia. It was relief but then came sadness. The relief is It had a name for it but there is no cure for it. I try and go swimming when I can but with the pandemic it’s harder than ever at the minute . Thank you listening
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
It is a very dibilitating illness so so life destroying with so much constant pain and the fatigue can be very bad I only have to go and wash my face in the morning and clean my teeth some days to feel like ive climbed mount everest and literally cant take another step This illness has many factors to it Feeling like your burned and throbbing with pain constantly 1 good day and over doing it puts you back inbed for days trying to control the pain is hard as when attacks come on you dont get much forwarning ,then theres the dry eyes foggy brain and forgetfulness and much more neck pain back pain etc etc
I too have fibromyalgia and am yet to find the courage to make a video about it. My diagnosis was 7 years ago, but i still struggle coming to terms with the fact I am now faced with issues I never thought I would have until i was old, if ever. I have subbed.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Greetings from Western Australia Jo and hugs to you. Been there and done that would be nice to say but Im still 'doing that' 27 years down the track now. I find pain patches very beneficial although Pan Forte used to work well before I got Crohns. Without my patches I wouldnt be able to get out of my chair....repetative actions cause me most angst. Be careful of 'beating the drum' too much you have to look after yourself first and getting stressed over what you cant do for others wont help your cause. Try to get off your chair, it might be comfortable but the less you move the more you seize up. Pity your hubby cant claim carers pension (Im sorry he's also suffering pain, its no fun)... I use a walking stick now, sometimes for balance (easier to pick something off the floor, feed the dog etc if you have something to hang on to to stand again) but mostly just I can stretch up and iron out the kinks in the old bod.... heatpacks can help too, not much else has but changing positions does temp relief. I know its easy to say but you cant worry about what other people think, even family members dont believe you sometimes. Some doctors will gelp you and you need to find one who's 'on your side' and willing to work with you it makes all the difference. Dont be conned into expensive alternative natural therapies etc etc they do not work. It will only be someone who is mot a sufferer who will tell you otherwise. There is no cure either. You just have to know your own body and find out what works best for you. Dont be proud dear lady take any help that is offered. Luckily my hubby IS my carer so can stay home and do all the things I cant do like hanging out the washing, vacuuming, washing the dishes etc but I always at least try. Allodynia is also a problem with me, I cant ( and wont let) have my BP taken on my upper arms and if someone touches my shins I nearly go through the roof, but thats not as much skin as tissue sensitivity and only in those 2 places...weird! I could go on for ever, maybe FM sufferers should all get together and write the real truth about FMS...to all sufferers out there in this big wide scary world (as if we dont have anything else to contend with)...take a breath and look after yourselves...dont let ANYONE tell you you dont know what you are talking about when you say you are in pain!!!!! What a pity they dont test for FM first instead of last🥰🤗🦘🦘🦘🦘🦘
Thank you for sharing your experience with Fibromyalgia. Everything you've talked about sounds similar to my case. I'm 19 years old and I've had Fibromyalgia for almost 9 years coming this September. I've tried doing exercises and pushing myself a little, but I end up throwing up after each session because of too much adrenaline and pain coursing through my system. That's the funny thing about fibromyalgia, isn't it? Most people who have it have the identifying symptoms of fibro, but they way it affects each person is different. And like you, my pain just gets worse and worse every day, every week, every month, every year ... I've given up on relationships with everyone but my family who I live with and see everyday, I've constantly had to take time off of work and I don't know how much longer I can keep up with it. It's come down to the fact that I've found it to be too much effort to even get out of the house sometimes (even for doc. appointments) as well as find the motivation to get out of bed. Is it weird to say that about 3-4 years ago, when the pain wasn't as bad as it is now and that I'd been loving with it for 5 years by then, that I had gotten comfortable in my pain? That is was slightly easier to cope? But now I don't know anymore ... and I fear for the coming years as everything just gets worse.
@@SkyandQuill oh my gosh, yes. I remember the first time I tried running/speed walking, it was from the house to the car, and after 30 seconds my mom had to pull over so that I could throw-up.
I've had it for 20 years and it most definitely gets much much much worse!! I'm ready to die at this point. Why do I have to be forced to live in agony.....
I don’t know how I am going to be able to manage it is hard enough to get through the day . My husband is my full time career and he has to do a lot for me as I find it so hard i am wondering if anybody has had the same experience that I have had with my doctor,he was very uncaring when he told me. I feel these doctors do not understand what you are going through I feel like giving up as I don’t know how I am going to live like is.
When I eventually found out what I had it was a relief but I had to see my company doctor who didn't believe in fibromyalgia and said It was all in my head. I struggle on but some days it's really hard.
Hi, I have fibromyalgia too, the worst thing is my burning skin & unbelievable painful lumps under my skin and hypersensitive to so many things like modern lighting +100 other hellish symptoms.. What's your other symptoms? Advice ... Really watch what you are eating ....fresh food only no msg,gelatin, soy, dairy, processed foods etc. 💗
Its been 7 years i have this trouble, my hips and my shoulders are always in pain. I don't know what to do anymore. Exercise, relaxing, stretching.... everything hurts. I only don't feel pain when I'm asleep.
I've had it since I was a child, now in my late 60s. Yes, one of the worst things said to me, is you look really well. Also people jump in and tell me about their knee/hip replacement op. But this is totally different we can't have an op., I only wish we could. And it's a bit, well, I've had an op., so mine is "real". ☹ The fatigue is awful too. X
My friend Lillie who I loved so much killed herself because she had Fibromyalgia, among other things. I miss her so much! She was so beautiful and perfect and everything. I cant believe this f$cking disease ruined her life.
Be happy for her.... to me she's lucky cause she is finally at peace. Something I would give anything for. I'm sorry for your loss. She was probably a beautiful soul who was just suffering too much. Im ready to die why can't I choose death with dignity. Why is that only for terminal illness. The suffering is unbearable.
I was diagnosed with fibro at 25 and am now 60. It has been debilitating. It does seem to get worse as I get older. Stress makes the pain worse as well as the weather.
I have gone gluten free and this has helped me a lot. My flare ups don't last as long and I have less flare ups as long as I don't overdo other things. I also do these small exercises at a slow pass which has helped my hips.
To whom ever this may concern I have recently started taking L Glutamine and it has relieved my chronic pain by %95. I take up to 5 Grams a day but you can take more . I hope this helps someone.
I hope this helps you... I now take up to 10 Grams a day with even better results. Also, I’ve had good results with food grade hydrogen peroxide and Diatomaceous Earth but I don’t take all these things at once. Hope this helps .
I was diagnosed with Fibromyalgia about 5 years ago and i still haven't properly accepted it. Its so physically and mentally taxing. If it wasn't for the support of my wife i would be in a very dark place.
I’m a former nurse, I have fibromyalgia and chronic fatigue plus diabetes and it all started when I hurt my back stopping a patient falling, that was over 20 years ago now. I really, really miss being a nurse.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I am reading this and I have this diagnosis as well I'm nhs staff and my names jo too last week was told I have this like you I put my leg hip and back pain down to the job I had a meniscus tear injury and its been horrendous I am still off sick and start treatment for it soon
What i dont understand is she said she can't afford the medication but she sounds British in which case she wouldn't pay for medication and being on esa she wouldn't have to pay for prescriptions. I have fibromyalgia and its truly awful so I sympathise with her but I just dont know what she means by affording medications
You sound English but I am assuming you don't live in England? If you were in the UK you can get free prescriptions to cover any medicines, I have 11 prescriptions monthly and used to buy a yearly pass whilst I was still at work but since becoming too ill to work I now get all my medicine for free, I cannot imagine what it must feel like to have the extra burden and worry of affording your meds I know if I had to pay for mine I couldn't afford them all and would have to go without some of them. I hope your situation improves and thank you for being so open and sharing this with us.
@loulou forever I was thinking the same thing, I also have fibromyalgia along with other health problems and living in England I get my prescription free perhaps she doesn't live in the UK.
thankyou for posting it helps when others vocalize whats really going on, i do still work im 60 now but i struggle i do 30 hours a week and man i feel it some days i just cant get out of bed i keep waiting for my boss to say something.. it does help me to keep physical and some days i can accomplish stuff but oh some times for days its a struggle to even do my dishes. it really has helped me to hear of others who also get the but you look so well. thanks mary
I have RA and fibromyalgia and it’s horrible. The brain fog makes you sound like you’re on drugs. I’m always tired but can’t sleep. Winter time is the worst. People don’t usually believe you or act like you’re crazy. Mine started around the time my son was almost a year old. It’s hard to be a good mom when you’re in constant pain and completely exhausted. Its like new mom exhausted on steroids. It’s really hard not to be depressed when you have it.
I was diagnosed with fibromyalgia 18 years ago after I had my child and it seems like things have gotten worse and I can't get the right help from any doctor that I have seen.
I was diagnosed with Fibromyalgia about 16 years ago and I can't take the meds they prescribe because they cause seizures. I complain allot because I'm scared of the pain I feel but everyone just says it's all in my head. They can't "see it" so it's not there to them. What do I do? I hope you are getting better and God bless you, your family, and the people who suffer from fibromyalgia.
I was diagnosed in 1990 Ive dealt with pain for all these years I was in a car accident in November of 1989 then my son passed in February of 1990 My dr for my back thought I was crazy,sent me to a shrink I finally found a dr that was up in years and he diagnosed me Nothing can be done he said,but he also told me not to rely on drugs So ive spent all these years with mostly ibuprofen and some Tylenol Ive tried some pain killers but I couldn’t live life on those nasty things So I’m 63 years old now and pain is a way of life
I've had FM for over two decades. Right now I'm trying the guaifenesin protocol. It seems to help alil, esp w/ the constant daily headache/migraine. But it's not 100%. I think next I'm going to look into the whole "smart meter" & dirty electricity issues. I just don't know what else to do really. I've been on damn near every drug. Tried all the diets, even bought heppa filters for the house & a countertop water distiller, etc. The only prescriptions that help me are norco & flexeril
Hi there I also live with it for 3 years really bad had it before but was not every day with it so take care of your self it is very painful I stand behind you
I have fibromyalgia also. I'm always in a flare now. The pain, fatigue and fog is ridiculous. Nothing helps the pain. And most people including doctors have no idea and don't believe you or understand the disease.
Couldn't work by age 45 because of the fatigue and pain/lack of sleep. I've had a good pain reduction due to a "mostly" low carb diet. If I binge with sugar I am absolutely wrecked the next day. Not simply high carb but specifically sugar😫
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
It took 4 years for doctors to diagnose me i felt they didnt beleive the pain i was in then was duagnosed with IBS my full life changed severe fatigue in constant chronic pain insomnia stomach problems bowel problems i am a retired nurse i spend days in bed with flare ups 😢 my life is unbearable most of the time.The thing is you dont look sick its called the invisible disability lost faith due to peoples attitude now dictors have more knowledge of it alot better this illness brings on severe chronic pain some days i cant walk the severe fatigue is crippling insomnia is terrible night sweats itching skin panic attacks rule my days
I totally .get you.i went to the hospital.to a specialist with alloydnia.had knee pain from a young age.i really thought I was going nuts .with the alloyndia.because I didn't have bruises.but it went all the way through my body.and if anything touched me half hour later it's was like I was bruised my shoes felt like blocks on .my feet and my wrists.could not put any pressure.on them.at all.my amitriptyline.helped me with this pain .
I am shameless to blurt out there, that this is one of the most painful with a circle of an emotional journey I've ever experienced. "Cramping legs in the middle of the night, and not make to the bathroom, on time...
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
There don't seem to be enough being done to find a cure, I've had this change of life for 7yrs after a heart attack, it's unbelievable what I go thru, my life is on hold, and yes I'm depressed, I tried to work it off as a volunteer Community First Responder CFR and what really annoyed me the ambulance crews didn't believe fibro existed, east mids!!! PLEASE FIND A CURE FOR US. IVE TRIED EVERYTHING 😫
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I was diagnosed with MS in the spring of 2015 and in 2019 I had a cervical surgery. It seemed as though after that surgery my body and skin got super sensitive and the surgery helped me in one way and seemed to have set something else off in my nervous system
Wow I've been dealing with this for some time now I haven't been diagnosed but I'm pretty sure this is what it is I understand completely where you're coming from and people think maybe you're just saying it or whatever but it is no joke I co-parent so I get help with my kids but everything is still a struggle for me I do the best I can I just wish I had more support hope you're doing well take care
Oops I didnt realise this was a very old post as its only just popped up on UA-cam ...Jo would love find out how you've coped over the last 5 years or so, sorry I couldnt have helped you more at the time..hope you're well hugs from Western Australia 🤗🥰🦘🦘
Not Living we are surviveing, i was hurt on a nightshift as a nurse to, in 2021 april. Ive havent been back since, my body just crashed. I wish i wasnt here anymore
Fibro is crap. I have it. Luckily my sons are grown up but there is no way I could cope with kids and fibro. I can't cope with kiss screaming it goes right through me. My fibro started as back pain then it spread to my shoulders and neck. I can't handle stress because it causes a flare up. I am registered blind as well as ha ing fibro.
I have fibromyalgia and I am 64 year old male, females usually have this, but I have it! I have wide spread pain and all, can't really work at anything any more. It's terrible!!!! I know, I don't look sick!!!
I'm 38 and have had problems since 15. I've slowly gotten worse over the years to the point I think everyday how messed up do I have to be to get disability. There's no way a company would put up with all the extra time I would need just to take my daily nap from fatigue.
And what about insomnia, which if you don't get enough sleep you're in even more pain. I, unfortunately, had 2 major surgeries because I fell at work. Damn, it was on and popping, I had to leave my job because as I said I had surgeries that increased the pain 100 fold. Some days the pain medication (which I treat like gold) doesn't work and now my nerves are shot because I can't take additional meds. So I just languish in pain and pray. My daughter still rolls her eyes up in her head, when I complain about my pain. If she knew how that hurts, nobody really takes you seriously. And that makes you hurt more and doubt yourself which only makes you depressed. But, listen up; I found a supplement called C60 that helps with the fatigue. And CBD oil helps with the excessive pain, along with CBD topical rub. This is expensive but God answers my prayer and provides. God bless.
Hi Jo, my mother and I viewed your clip and found it very interesting and helpful Thankyou. Could you recommend a medication to help. Thank you, God Bless.
I too uffer from fibro, but I also have polymyalgia. double whammy. I found that cbd oil helps me. I can function "normal" now. give it a try. it has done wonders for me. I won't be without it. good luck.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I have extreme chronic back pain it’s agonising....I was diagnosed with fibromyalgia nearly 2 years ago..I feel nobody believes me I can just about get up and get myself dressed I’m constantly in pain..
She is not alone, I also have fibromyalgia. It is debilitating.
Ive been working on this for myself and have found a few things that are giving me massive relief. PM me if you're interested in learning about what ive been doing. (this is not a sales pitch in any way)
@@DanEsposito what is your treatment plan? Please write it here for everyone to see. Unless you really are trying to sell something.
Can you try prp
Michelle Smith me too 😊
Dan Esposito please share so we can all see.
“But you don’t look sick” I’ve had fibro for years and it’s hard to do much as even hug my kids. It’s a very sad and lonely sickness. It is true sometimes we start to think omg could all this possibly be wrong wrong with me? But yup it can. Keep being positive. God knows I’m still trying to work on that 💜
One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination.
Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same.
PEMF technology is incredible, it’s Star Trek healing L😆L
Albert Einstein said
"Future Medicine will be the Medicine of Frequencies"
This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature.
Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else.
No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
Hiya i have had fibromyalgia for 20 years old, I'm in my 30s now and it's getting worse. My family don't understand except my mum and she is amazing, I've had doctors say it's in my head and i have lost count on all the pain teams they have know clue about chronic pains. I have to say that's a major major blow for me because it's written down in my hospital notes that it's in my head and nobody believes it and even now I have to make doctors understand because most of them haven't a clue what it is. I have trouble reading, spelling and maths but I was crap at maths lol, I was a really good at spelling and writing when I was at school.Its so embarrassing now when I'm talking to a stranger and I can't remember words and names. I spend most of my time in bed and I know I should be up doing exercises and get up and go for walks or go shopping well I really do try but I'm so tired and my arms and legs get tired, I struggle to wash my hair because my arms are just to tired and if I push myself I suffer for it.Doctors can get blood out of me so I can't go on any medication for it because of this. The reason we can't get blood out of me is because I have Raynaud's disease. This disease means my hands and legs swell up and they are cold and very painful. Recently I got told I have costochondritis and that causes pain in my chest and back. I thought I was having a heart attack, it scared the shit of me.I do have a lot of health problems but this disease is a nightmare because I can hardly do anything these days. My little sister had a baby she is 3 in June and I've only go got to play with her for 15 min and then I'm wiped out and now she is having another baby in may 2017 and I will really struggle. I really want a baby but doctors say it will cause me so much pain they think it will be to much for me.
I have no friends my sisters don't want to know me because I can't do anything I've got my mum and cousin and that's it. My mum is amazing I love her so much.I have thought about killing myself because the pains gets so bad. But I can't because of my mum. Hang in there every one I am here for everybody that has this disease. 😥😞
Emily Truman I'm so sorry for all you're going through. I just wanted to tell you that I understand. It's amazing that we suffer so much from daily, full-body pain & other terrible symptoms; and yet, the worst pain is that of having people judge, disbelieve, misunderstand, emotionally abuse & turn their backs on us. My mom used to tell me that you don't keep people in your life who kick you when you're down... But what if that is just about all of them? What if it's people you can't avoid, like a boss or coworkers (if you're still trying to drag yourself to a job?) What if they are your best friends? What if you're related to them or married to them? It's impossible to not be affected deeply by this (unnecessary) pain from being mistreated & misunderstood. It's impossible to not feel like screaming at people who judge & criticize, from the comfort of a life you can only WISH for, that you're SO jealous of! On top of this horrific physical pain, we have to suffer from the terrible emotional pain of having our lives ripped out from under us like a rug beneath our feet. The person I was meant to be still lingers in the back of my mind, longing to be set free... What if she knows that the cause of this illness was the cruelty of others that she silently endured for too many years? Trying to help people who ended up destroying her? I know how lonely & crushing it can be to watch your sisters go on & live their lives- mine is fulfilling dreams that I once had, as well. I love her, she is my sister (and she's not one on the people who are mean to me- but I definitely have those) Still, it's so hard to see her (or anyone) get to live the life I once had, which is becoming a distant memory, fading more & more each day...along with the woman, wife, mother, business woman, sister, daughter & friend I was meant to be... no one should have to live this way. I'm so sorry that you're suffering from it, too. All I can say is, "I know."
Emily..Fibro is a tough illness to have on a daily basis. You are stronger than you know and a fine courageous young lady. It takes a lot of strength to deal with this cruel and unrelenting disease. The only people who truly know what you are dealing with are those, like me, who know what it takes from us. 24 years now with me. You will go through all kinds of emotions. Why me? Anger, Resentment, Frustration, Loneliness, Depression, Fear, Loss. But one day you will wake up and decide to accept it, live with it, cope, in your own way, make peace with it. Do what you can, when you can. Pace yourself. Be proud of who you are Emily. People's opinions won't matter to you any more. You will have gifts from it. You will know compassion, tenderness with others who suffer illness and pain...just like you and that is a gift. Forgive others for their lack of understanding. They simply don't know. Be a teacher to others. Your mum sounds wonderful. Cherish her. Some people have no one to turn to and struggle alone. All the best sweetheart. Frangi, England. xx
Read about TMS and DR John Sarno work. I definitly recommend
consult a rheumatologist. He will prescribe you with pregabalin NT (nortryptaline) & Deflazacort for fibromyalgia and some other tablets like vitamin D, calcium, Evion LC. It will work for sure !!
Emily Truman -- I had a host of problems that even I had trouble believing were real (I kept getting angry at myself, and thinking I just needed to push forward harder). At 32, after a host of tests, I saw the specialist who told me I had fibromyalgia. "You're going to be in pain for the rest of your life," she said, "but there are things we can do, and you can do, to help manage it."
There are things, she's right, but since I got too sick to work or afford health insurance, it's been a lot harder. My mom helps me financially, too, but it's hard to not be able to run errands easily, drive to see family, or regularly visit with friends. My dad truly thinks I use illness as an excuse not to make it to family holidays, and thinks I don't care about him and my stepfamily (who I love and miss being able to see -- my nieces are growing up and I'm lucky if I see them twice a year).
One example I use to explain what this sickness does to me, for people who might be able to understand, is tell them, "I haven't been able to wash my own hair for two years now." (I've become very prone to muscle spasms, and normal exertion for many people can be such an overexertion for me that washing my hair myself usually means seized up muscles and pain for days -- too much to walk my dog or even easily use a computer.)
There are a few (non-medical) things that help me. If they're not things you have in your life, or have enough of, maybe they might help you, too.
1. Doing what you've just done here. That is, finding other people online who also struggle with chronic illness and pain, and reaching out to them. In my experience, the community of people I've found on Twitter who have chronic pain (especially people who are disability rights activists), is very supportive -- I've actually made two close friends through that online community (some people close to me even drove me to visit those friends once -- they live in another state -- and spending time with them in person was like being with the best, kindest family I could imagine). Some of us may never meet, but we find ways to help each other.
2. Looking for therapy, or writings by mental health professionals, that addresses the very real loss and grief of having your life plans horribly altered by either permanent illness, a disabling event, or some other source of regular pain/fatigue/severe limitation. Your area may have counselors or centers that do work specifically with people who are experiencing grief or loss -- or more generalized therapists/centers who can work to help you on a sliding fee scale, at the pace you can afford. --If, like me, even a $30 session is a big expense, it can be helpful to find books, blogs, or articles that validate how much this type of illness affects our lives, cognitive abilities, and emotions. I find that validation helpful from fellow fibro patients, but hearing/reading people with advanced degrees saying that it's normal to struggle with deep, difficult emotions reminds me none of this is something I'm making up. I'm still going through the grieving process of losing so much mobility, so much energy, and (what feels huge to me right now) so many options. It's hard. It's sobbing, aching from sobbing (I've had a lot of problems with costochondritis, too), isolatingly hard.
But neither of us is alone, and there are people who believe you and know what you're going through.
3. Finding something -- no matter how frivolous it seems -- that you really enjoy. Examples: Fantasy or romance novels/audiobooks; online or single-player video games; TV shows (from documentary series to cartoons) you can stream (I know people who don't live together who share a streaming service membership to make the costs manageable); UA-cam channels that make you laugh, teach you about subjects you like, or calm you down. Good distractions are emotional refuges you deserve to have. (If anyone wants to judge you for that, maybe they'd like to step up and bring you lunch, or pay one of your medical bills, or...well, you get the idea. The people who will really make time to love you aren't going to have time to judge you, and the rest should go get a hobby, themselves.)
We have to be as kind and generous to ourselves as possible, because fibromyalgia isn't kind.
Keep hanging in there; I can't make any promises about what life will be like further down the road, but I can say my mom's been living with her fibromyalgia diagnosis for almost 20 years now, and she's found ways to carve joy, empathy, and meaning out of a life that fairly quickly went (as a video-game enthusiast friend of mine described it) into permanent hard mode.
I try to hold onto the hope that I'll find new ways to live with meaning as I keep going, and I'm holding onto hope that you find renewed strength and, eventually, new joys as well.
(Apologies for the novel I wrote above; I've been up all night in unmanageable pain, much complicated by my being sick with a respiratory virus.)
Hi Jo. So sorry that you're suffering from this cruel disease. Thank you for sharing your story with us. I know it isn't easy to live with. It's cruel and nasty. I've had it for 24 years now and I know how bad it can get. You are doing a good thing by informing others about your struggle. The more we tell others, the more understanding the world will be. When my symptoms began, aged 39, not a lot was known about Fibro. It took me 11 years to be diagnosed in 2007. It's good to know that people are becoming better informed. I am 62 now and take each day as it comes. I manage it. It is all we can do. Good luck Jo, all the best, Frangi xx
I was just diagnosed this year in April 2021. Everyday its hard mentally and physically. Its very depressing but my mom helps me a lot to motivate me and making sure i take my medications. I really don't like to talk about it too much with people because i will start to feel like i am a burden to them or complaining too much. The symptoms are REAL😢
This also affects men. I started out after an accident hitting my head with occipital neuralgia and somewhere along the line somewhere around 15 years ago I develop fibromyalgia out of it( which is actually a pretty common way to get fibro) I too had to leave work and I too have no money. Praise God for my wife !stuck with me all these years. However, I want to encourage you not to give up. It's taken these 30 years but finally I have some relief. I still have pain everyday and suffer with fibro fog but finally being able to live with my wife rather be alive again with my wife after 30 years is amazing! A major difficulty for me is it from time to time I recount all the things that I've lost: abilities, and opportunities. However, I have to focus on the good things and praise God for them. I wish you the best and for all on this post who are suffering I wish the same thing.
Corpse husband has fibromyalgia and I think many people are getting introduced to what an agony this actually is like. To everyone suffering from this illness my heart is with you and who knows maybe in the future there will be a cure, stay strong, it’s unbelievable how much you overcome so far and keep fighting!
?? Sorry corpse husband??? Is he dead?
I'm 24 and I was diagnosed with Fibromyalgia 3 years ago. There are doctors that don't take me seriously and so I'm left to suffer. People tell me I don't look ill or I'm too young and its all in my mind :( it's very real to me and everyone else who has this condition. Thank you, so much for spreading awareness ❤️ 💜
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Same for me I didn't understand what happening with me ??? I am facing unknown disease I did many test but all my test are clear I am facing pain on my body , stomach, chest even burning sensation on my legs and hands . Doctor didn't understand my disease I think I want to die but this is not the solution . Only I understand what I am facing my own relative's says that busy yourself with others people but they didn't understand what I am facing due to reason of unknown disease I spend my time on bed . Many times I am facing havy Chest and stomach even I am facing that pain travel on my whole body . How many times I ignore this ??? My family and relatives says ignore the pain and keep busy on work . I think I will be die soon😔😔 not understand what should I do ??? I didn't want to die . I am the only single child of my mother. I want to live normal life like others but what should I do ?? I stop taking medicine only listen healing music therapy. People know about there disease but I didn't understand what happening with me .
As a fibro sufferer, I so relate to her story. When I first was diagnosed, I was having pain so bad that I was unable to get spontaneous hugs from my daughter, and trips to the grocery store were agonizing if the air conditioning within the store was up too high. That's why I decided to devote part of my YT channel to exploring fibro symptoms and possible treatment options. This condition is truly awful, and I wouldn't wish it on my worst enemy.
I too suffer with fibromyalgia much pain mentally and physically
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Thank you for sharing your story and bringing awareness. I've been suffering from severe fibro for over 3 years now. It's so hard to explain what our body is truly going through. Nobody truly knows unless they're living with it. So thank you for sharing.
Herbal remedies helped me, I have been suffering from Fibromyalgia for the past 5 years till I meet dr uwa. I never believed until i tried his herbal medication, his herbal medication cure me permanently, I'm free...
Hi Jo I'm so so sorry your suffering from fibromyalgia I have suffered for 6 years and I got diagnosed on January 2020 after 4 years trying to find out what was wrong with me. It's nice to meet other people who have it and understand the pain we are all going through with this disease. Although my friends know I have it they dont understand and doesn't know what it does to me. I dont show up to school for a week or more because I'm aching that badly. I think it started after having Scarlet fever for months it has horrible which is what I think caused it. I'm being strong though and trying to help get through it but as soon as I got discharged from the hospital appointments It started again. I hope your life gets better Jo
-From a british 12 year old
Please tell me about your supliment I have fibromyalgia from 5 years
I read all the comments here and just want to say to all of you that I love you. Yes, thats right, I love you. I understand you and I believe you and I love you. Im praying for everyone who posted a comment. God is also invisible by the way and He too is real. He wants us to keep our eyes on Him and He doesnt care if you got the dishes washed or not or if you laid in bed whining all day, He doesnt get uptight like people do. He just wants us to love each other. Much love to you all!
Thank you.God.bless you
God bless you. I have had it for over 20 yrs along with lymes, babesia, sjogrens, RA. neck and back issues.etc I remember my daughter as an infant kicking off of my chest and it really hurt! I lived on Long Island, NY and started pain management. I could finally "live" instead of just existing. I was labeled a drug addict. My family could not understand how bad it all was. My whole back from the neck down either feels like it's on fire or hurts. I worked full time until 2011. I was let go and filed for disability. I am 60 now. I moved to Fl and they have cracked down so much that I weaned off meds and currently take nothing. I went the route of, physical therapy, massage therapy, accupuncture, facet injections, epidurals and cervical traction while in NY, nothing helped. I am so very sorry you are dealing with this. Very soft hugs and prayers for you.
I have fibromyalgia for more than twenty years for this young lady with a husband and young child take your time with yourself and my job was on my feet for 38hrs a week plus family life i was very very active like this lady plus thousands of suffers looking after a child with it is going to be very hard but just try pace yourself yes you are not alone i thought i was alone until it got more of an awareness when i was first diagnosed no one heard of it but i have mine with a lower back problem and i am chronically very ill with it i get so fedup but my faith in god is keeping me chin up lady you will be okay just hold on cry if you want i use to now i groan its so painful my trears dont come but take your time and listen to your body okay stay blessed
I have fibromyalgia too. It's gotten worse since I've been getting older now. The fatigue is awful and my lower back pain comes and goes. I take lyrica and curcumin with turmeric for pain. It helps alot.
I’m 65 & I was diagnosed when I was in my 30s. I worked in an acute care hospital working for 30 yrs & had to retire at 52 as I could no longer think correctly as a medical transcriptionist at that time. It was difficult with coworkers who treated me badly because I couldn’t take them telling me I wasn’t doing my job well. I went to college & received a certification for phlebotomy & then for transcription. Imagine your coworkers being angry over the fact that I received a certification so there’s nothing wrong with me. I could go on for hours as I believe we all can over this very uncomfortable painful at times condition but I want to say I understand what U are going thru. God Bless U & your family.
I have it 15 years now , it has changed my life , it's a nightmare.
It can get better but it's still a daily challenge. I found that certain foods cause me joint pain and brain inflammation: dairy,wheat, buckwheat, gluten, brown rice and white rice. The reaction is almost instant. I also found that a full nights rest is absolutely crucial to functioning. Caffeine is anti-inflammatory, it calms the nerves and acts as a bronchodilator. The first thing that I saw the most improvement after taking was kefir. I also saw some improvement with Sinto Kimchi specifically with my sinuses and allergies. Liones Mane mushroom helps me with concentration. Ashwaganda relaxes an otherwise easily frustrated me. Getting some sun always makes me feel better. I weekly try to get in my diet cruciferous vegetables, Brazilian nut and wild Canadian blueberries. I was officially diagnosed 4.5 years ago but my issues started 6.5 years ago at the beginning of my 30s. I haven't worked in over four years and had to give up my social life. The biggest problems I still have is brain inflammation, inability at times to be able to focus, tendon pain, chest pain and fatigue, but none of it is as bad as it use to be, so there's clear improvement.
*** The worst three symptoms I use to get are virtually non existent now. Those symptoms were narcolepsy type symptoms when rain was days away in the forecast, severe painful joint pain when rain was in the forecast, tin man full body aches and stiffness when rain was in the forecast or humidity was high, trouble breathing, extreme full-day fatigue and 8 hour severe brain fog spells. I pray for your healing. Most importantly prayer and faith has helped me. 💛
You are not alone. Please remember disability is not defeat. Continue fighting for a treatment that works for you. I also have fibro and some chronic injuries to my feet. Hang in there.
People think we exaggerate this condition if only ..I am just about able to touch my skin on my legs at time I get numb patches where I can't feel it and places where it hurts to even have trousers or anything close to me ,, I'm awake 20 mins after even a day where I have a restful sleep and the chronic fatigue engulfs my body thr list is endless head ache can't take noise as I can hear a pin drop then bouts of tinnitus muscles spasms shooting nerve pain in my spine that's so severe my legs give way ...and people think this condition is not real i get so fed up trying to explain it i don't even try now i truly feel for this lady who posted her story i understand her so much I think it's a very challenging chronic condition good luck and try and stay strong for your family
I get angry at some doctors who think you are not really in pain well they should have it for one day then they might realise.
Please read the book “What Your Doctor May Not Tell You About Fibromyalgie“ from Dr. Amand. It is important to understand fibromyalgie. It gives hope!
Thank you for making this video. I have been diagnosed with Fibromyalgia 4 months now although the more I learn about it, the more I realise that it must have started at least a year and a half ago. It started with fatigue and then anxiety turning into depression and finally when my cousin passed away from that brain tumour she had fought for 13 years, the pain started! It seems to me that those doctors who acknowledge the disease along with the pharmaceutical industry only treat the symptoms. At the end of the day, it is up to us to live with it and hopefully get to the root cause of why we are experiencing this hardship...i wish you all lots of courage (and to me too). It is important to know we are not alone.
hey i was wondering can stress cause FM
Do not dought yourself. I have had FMS since I was 45 and I am now 72. It gets better and better as life goes on and life does go on. People differ in their opinions. Some will believe and some will not. I have found that in the end it is what you believe. Do not doueght yourself. Take heart. Do what you can and that will be enough.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I've never seen one person comment it gets better with age 4 yrs it's took me to find out what was going on all i got was it's menopause I went from going to my doctors 10 times a yr to 550 times a yr I'm still struggling to get my head around this condition and my opinion is I doubt it will ever get better but to be in pain at the age u should be enjoying Ur life sucks
@ I guess that I had some luck along the way. I was diagnosed within a few months. It was terrible and frightening at first. I had a Doctor take me as a patient after the Doctor that got me in to see the Rheumatologist left the Territory only to tell me that she would not try to treat my Fibromyalgia because nobody knew what caused it and nobody knew how to treat it. That was scary news. However, she did refer me to a pain Doctor and my employer had me go to a “pain management course”. I also had massages when ever I could arrange them. I found a few things that helped now and then with all these people. Antidepressants for sleep, anti anxiety meds to help with the anxiety of dealing with a chronic medical condition. I learned the odd thing from the message therapists (lay on a rolled up pillow each morning before you get up to straighten your spine). I went to a physiatrist once a week for 5 years. I did not get much from him except to sit in a comfortable chair and complain. I learned to do some simple strength and flexibility exercises. I learned to cook from scratch and eat nutritional food. The strange thing was that I eventually gave up trying to cure this thing and learned to live with it. I remained faithful to my exercises and diet, went to bed early and got up early. I managed to work 11 years after my diagnosis. I was really tired though and didn’t get much done for the first year of my retirement. However, I perked up and noticed something strange. My health regimen was really good for my appearance. Most in my age group got stooped over and looked old while I looked good. They also fell prey to such things as diabetes, heart disease and cancer. There isn’t a concrete answer. There is just work with whoever you can find to work with and live a healthy lifestyle. I am 77 years old now and live every day as it comes. I was lucky I guess and I wish you the same luck.
I really feel for you and for all of you young people with young children. I have had fibromyalgia for over 25 years, but luckily my children were all grown up when I was diagnosed, even though I think I had it for many, many years before. I can’t imagine having young children and trying to deal with this horrendous illness. It is a full time job just taking care of all the symptoms of fibromyalgia, without having to take care of another person and run a household. My husband never did understand what I was going through and didn’t give me much support unfortunately. He always said I looked ok. Like someone else said, it is a very lonely illness as most people don’t believe there is anything wrong with us. Hugs,and lots of support to all those living with this devastating illness. ❤️❤️🇨🇦❤️🇨🇦
I have been in pain for many years. I was diagnosed in 1992 with Fibromyalgia. I am now and still in horrid pain. But I no longer have to work because of my being retired. I feel your pain, my dear. I wish your lovely little family the best in life. The thing is we don't look like we are in pain and that is the sad thing. I live in Nova Scotia Canada, it is surprising that Doctors really don't know that much about it or to treat this. Soft hugs to you. Sometimes it seems I go into remission for a short period of time.
I've had fibromyalgia since 1997 but can remember back before then I had these pains through out high school. I'm 43 now and everything has gotten worse. The pain is unbearable some days. I don't know how long I'll be able to carry on working but I push myself as I need to look after my family. My memory has started to get worse and I notice it is very bad when stressed. Some days you wouldn't think I'm in pain at all but inside I'm like is it 5pm yet! Home time. I feel so sorry for my kids. I wish I could be more active and less grumpy but some days the pain really pisses me off.
consult a rheumatologist. He will prescribe you with pregabalin NT (nortryptaline) & Deflazacort for fibromyalgia and some other tablets like vitamin D, calcium, Evion LC. It will work for sure !!
@H K The microbiome research is fascinating. I was just watching a lecture/presentation by a father on his son, the other day. His son has severe chronic fatigue syndrome/ME. His sons Doctors found that he had makers/test done showing that his microbiome
wasn't functioning properly. One of the first thing I did and saw noticeable improvement many years ago was drink kefir. It significantly reduced the duration of my brain fog. Eventually I gave it up because it is dairy.
I too was diagnosed in my early 20s but I remember having these pains in Jr High School. I remember the dizzy spells, sore ribs, deep aching chest pains, depression, anxiety attacks. Countless doctors visits and test and each time they'd say nothing was wrong with me and the more depressed I got. I'm 45 now and some doctors still say "oh you don't have that, who told you that?" Even though it's in my medical records some doctors still treat this condition like its something "in our heads".....I hope you're managing well these days and hanging in there. It's not easy and very disheartening for patients in a medical community of doctors who still today refuse to acknowledge this dreadful condition.
I used to be a nurse and at the age of 23 was told by a fellow nurse that I might have fibromyalgia because my ribs were hurting along with shooting pains. I have up nursing but my doctor would not acknowledge my illness.
The pains are agonizing, even after four decades. When I turned 50 , the doctors said I had Multiple Sclerosis. However, now I have atrocious pains all over my body they are saying neuropathy !
I honestly stick with Fibromalgia because these pains accord to symptoms that others with this awful affliction have.
Doctors in GB do not seen to recognize Fibromalgia and if a few di, you are thought of as a neurotic woman !
Do you have shooting pains, unable to sleep, feeling exhausted, depressed etc ?
What medication are you in ? I refuse to take Gammas, Tramadol etc....why ? Because I know the awful side effects of these drugs.
Kind regards from GB.
If it was nerve damage wouldn't it be seen on test
I have fibromyalgia fir 10 years. I can relate to 😣 her. Fibromyalgia us Real. Fibromyalgia is not in the mind. The pains are real, the brainfog is real, thd depression is real, the chronic fatigue is Real. I wish family n friends can get themselves educated about the condition then try n be more supportive instead of just judging all the time. BE STRONG 💪 ALL YOU FIBRO WARRIORS. YOU NOT ALONE.
I have similar story what hurts the most is when my own husband doesn’t believe me ...
I've had fibro for 17 years (diagnosed). It started when I was 20 years old. My condition deteriorated for about the first 12 years. I found it difficult to walk and most movements caused me real pain. I decided I was going to start exercising (even though I believed that it was probably not possible to last). I was very limited in what I could do but I kept pushing myself slightly beyond my comfort zone. I would do uncomfortable exercises but would only avoid exercises that caused significant pain. When I started I could do very little and it felt like my efforts were in vain and that I was damaging myself but I kept with it. My training grew to consist of gentle kung fu, light weights, and stretching. After about 6 months of training I found my condition improved by about 50%. I have now been working out for about 5 years and it is safe to say my condition has improved by about 80%. I am now 37 years old, can go for light 5K runs, I am enjoying regular kung fu classes (and hope to gain my black belt in a few more years), I can do about 30 pushups, I have a pretty good six pack, and my pain levels do not go beyond a feeling of stiffness (unless I overdo my training). Not too bad for an average 37 year old man. I cannot offer a prognosis for anyone with fibro but I just want to give you hope.
Ogma that sounds amazing, I give you serious props, I'm 19 and I've had Fibromyalgia for almost 9 years coming September. I've tried doing exercises and pushing myself a little, but I end up throwing up after the session because of too much adrenaline and pain coursing through my system. That's the funny thing about fibromyalgia, isn't it? Most people who have it have the identifying symptoms of fibro, but they way it affects each person is different. And like you, my pain just gets worse and worse every day, every week, every month, every year ... I've given up on relationships with everyone but my family who I live with and see everyday, I've constantly had to take time off of work and I don't know how much longer I can keep up with it. It's come down to the fact that I've found it to be too much effort to even get out of the house sometimes (even for doc. appointments).
@@catpersIt must be though being so young, just starting your life and dealing with such an illness. I do not have fybro myself but I have read a book called medical medium where he explains the cause behind the illness and how to treat it with dietary changes. I have read so many testimonies on instagram of people recovering from fybro following his advice's. Go get the book and start following medical medium on instagram, it might change your life. I just felt I had to share that. Good luck!
@@MsJannapanna thank you for the advice. I have also seen many similar testimonials, unfortunately, I myself haven't seen a difference but I will be sure to check that book out!
@Gerald Williamson yes, it does
@@catpers consult a rheumatologist. He will prescribe you with pregabalin NT (nortryptaline) & Deflazacort for fibromyalgia and some other tablets like vitamin D, calcium, Evion LC. It will work for sure !!
I’ve just been diagnosed with fibromyalgia after many many years of unexplained pain and sheer exhaustion. I also got the feeling that everyone just thought I was a hypochondriac. To finally get a diagnosis was a relief but I still feel that little is known about it and I find it difficult to explain it to anyone
I’ve had it for so many years yes I believe you sweety
I was in nurses I had to leave my manager never believed me .
It’s so sad cos you can look so well but your screaming inside with pain
I’ve put on so much weight but it’s not the food as I’m on a great diet for my fybromyalgia but can’t excersise
So much I do light Pilates .
And stretches
I do get very sad 😞 for no reason I have 5 children it’s been so painful . My children are so helpful
But my husband have never understood me .
In the end we ended up divorcing so so sad in my heart 💓
Now I’m remarried and he does not understand my illness either it’s so sad 😞.
I’m in so much pain I can barely walk but I do keep positive
But then my chronic fatigue takes over . I’ve put on weight coz meds do that then I’m in menopause also
That doesn’t help
I don’t have a life anymore we’re I live there are no support groups
Or no were to get a massage or go swimming . So I’m going to change my life and move back to bf
Poor lady ... it’s sad wen you can be soirounded with so many people and still be alone .
Paradise Soon I hear you I’m in the same boat divorced because he didn’t understand. I didn’t remarry but I’m engaged. Kind of afraid to remarry. My fiancé also chronic pain from being an ex bmx racer but I honestly don’t know if that makes it better. It’s like the blind leading the blind. I have hood days and bad but in spite of this terrible debilitating illness I try to stay positive and have faith
It is awful to live with but you keep moving to get through.❤😊
I have had this illness for about 13 years and I have it really bad, and have been taking strong pain killing tablets from my doctor to help with the pain. I had to go and see him the other day and he informed me he was stopping my tablets as it was a government thing to clamp down on people taking strong pain killing tablets, i better say I have never been a person that likes taking tablets and I have cut my dosage down to half of the prescription says.
I am in the boat! I feel "lazy", worthless, and sick and I have a lot of guilt about it and I've been dealing with the fibro, I think, since I was a teenager. But I was diagnosed in 2007 and treatments have been ineffective for the most part. The Lyrica helps some with the pain but I'm at the max of that treatment. I cry when I hear stories of other people like me because this is a very lonely disorder!
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
People can't see it, therefore they think it isn't true. It's difficult to live with because I look fine on the outside but people don't understand the constant pain and fatigue. And the confusion I get. It's so frustrating especially when people think I'm faking it. I would love to feel normal again.
I live in Houston Texas and was denied disability, they said it’s in my head, how did a Dr diagnose me if I don’t have it, I’m with you on the money part so I work 3 days a week as a cashier in total pain, not easy but I have to😿💔😿
Thinking of you,Karen.I think we are all warriors with this illness.❤🇬🇧🙋♀️
@@clairejohnson6522 ty🤗🥰
If only i could give up i would, there is no hope, no respite just getting through another day. i have had fibromyalgia fro many years it
started when i was 15 and i broke a vertebrae in the middle of my back, after helping move a piano. No-one knew and no amount of
crying about it at the Dr.s would get me an X-Ray, the fatigue was very strong at this point, then i started getting pain going through my
kidneys and my back it was like being prodded by a lance, I had also developed diabetes 2 yrs. earlier. Then i got married at 18 and had
2 sons, the eldest bless him had autism, it was very hard trying to be the Mother my Mum was but i managed. The boys took a lot calcium
from my bones and so more fractures developed, i now have 19 in my spine and i’m going for a shoulder X-Ray this morning. It feels as if
the cartilage has worn away it almost comes out of its socket. But in the words of the song ‘i will survive’ thank you Jo for everything you
said it’s very sad that we have to go through this agony each and every day Good luck to you and your family.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Fybromyalgia and autism ADHD heds are the cause
Thank you for sharing this video of awareness and for being a voice for those like myself who have trouble expressing how I feel
I’ve been suffering from fibromyalgia for almost 13 years now along with depression
Fibromyalgia has robbed me of so much
My struggle it’s so hard
What do you do when all you have to look forward to is pain 😢💔
Much hugs from Florida 🌺
Lisette Alvarez i have Fbm for 16 jaar now and it is terrible
Much hugs from Amsterdam ☺️🌺🥀
Stay strong! * hugs * from Texas!💜
Hope today is a good day for you fibro sister read your post today and no where your coming from every day is like ground hog day for me pain depression and lack of empathy from others and so it goes on I get more help and feel less alone reading messages of understanding on posts then I no I'm not in this battle alone God bless you today and every day and I wish you a pain free day xx...from. London
Accepting my losses due to fibromyalgia really has helped me!
I got recently told I have fibromyalgia about 12 months ago the problem is I have osteoarthritis arthritis and rheumatoid arthritis and every time I saw my doctor oh it’s arthritis and was in a lost of pain and no one was listening to me. I saw a different doctor I told him that I can’t take the pain and he touched me and told me I have fibromyalgia. It was relief but then came sadness. The relief is It had a name for it but there is no cure for it. I try and go swimming when I can but with the pandemic it’s harder than ever at the minute . Thank you listening
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
It is a very dibilitating illness so so life destroying with so much constant pain and the fatigue can be very bad
I only have to go and wash my face in the morning and clean my teeth some days to feel like ive climbed mount everest and literally cant take another step
This illness has many factors to it
Feeling like your burned and throbbing with pain constantly
1 good day and over doing it puts you back inbed for days trying to control the pain is hard as when attacks come on you dont get much forwarning ,then theres the dry eyes foggy brain and forgetfulness and much more neck pain back pain etc etc
I can relate and I'm praying for us All.
Excellent product
I too have fibromyalgia and am yet to find the courage to make a video about it. My diagnosis was 7 years ago, but i still struggle coming to terms with the fact I am now faced with issues I never thought I would have until i was old, if ever. I have subbed.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Greetings from Western Australia Jo and hugs to you. Been there and done that would be nice to say but Im still 'doing that' 27 years down the track now. I find pain patches very beneficial although Pan Forte used to work well before I got Crohns. Without my patches I wouldnt be able to get out of my chair....repetative actions cause me most angst. Be careful of 'beating the drum' too much you have to look after yourself first and getting stressed over what you cant do for others wont help your cause. Try to get off your chair, it might be comfortable but the less you move the more you seize up. Pity your hubby cant claim carers pension (Im sorry he's also suffering pain, its no fun)... I use a walking stick now, sometimes for balance (easier to pick something off the floor, feed the dog etc if you have something to hang on to to stand again) but mostly just I can stretch up and iron out the kinks in the old bod.... heatpacks can help too, not much else has but changing positions does temp relief. I know its easy to say but you cant worry about what other people think, even family members dont believe you sometimes. Some doctors will gelp you and you need to find one who's 'on your side' and willing to work with you it makes all the difference. Dont be conned into expensive alternative natural therapies etc etc they do not work. It will only be someone who is mot a sufferer who will tell you otherwise. There is no cure either. You just have to know your own body and find out what works best for you. Dont be proud dear lady take any help that is offered. Luckily my hubby IS my carer so can stay home and do all the things I cant do like hanging out the washing, vacuuming, washing the dishes etc but I always at least try. Allodynia is also a problem with me, I cant ( and wont let) have my BP taken on my upper arms and if someone touches my shins I nearly go through the roof, but thats not as much skin as tissue sensitivity and only in those 2 places...weird!
I could go on for ever, maybe FM sufferers should all get together and write the real truth about FMS...to all sufferers out there in this big wide scary world (as if we dont have anything else to contend with)...take a breath and look after yourselves...dont let ANYONE tell you you dont know what you are talking about when you say you are in pain!!!!! What a pity they dont test for FM first instead of last🥰🤗🦘🦘🦘🦘🦘
Thank you for sharing your experience with Fibromyalgia. Everything you've talked about sounds similar to my case. I'm 19 years old and I've had Fibromyalgia for almost 9 years coming this September. I've tried doing exercises and pushing myself a little, but I end up throwing up after each session because of too much adrenaline and pain coursing through my system. That's the funny thing about fibromyalgia, isn't it? Most people who have it have the identifying symptoms of fibro, but they way it affects each person is different. And like you, my pain just gets worse and worse every day, every week, every month, every year ... I've given up on relationships with everyone but my family who I live with and see everyday, I've constantly had to take time off of work and I don't know how much longer I can keep up with it. It's come down to the fact that I've found it to be too much effort to even get out of the house sometimes (even for doc. appointments) as well as find the motivation to get out of bed.
Is it weird to say that about 3-4 years ago, when the pain wasn't as bad as it is now and that I'd been loving with it for 5 years by then, that I had gotten comfortable in my pain? That is was slightly easier to cope? But now I don't know anymore ... and I fear for the coming years as everything just gets worse.
Arianna Joseph i have fibromyalgia too. The last time that I tried to exercise I got a severe headache and I vomited. Haven't exercised since.
@@SkyandQuill oh my gosh, yes. I remember the first time I tried running/speed walking, it was from the house to the car, and after 30 seconds my mom had to pull over so that I could throw-up.
I've had it for 20 years and it most definitely gets much much much worse!! I'm ready to die at this point. Why do I have to be forced to live in agony.....
@@oo6112 I'm so sorry for your pain, I know exactly how you feel. ❤❤❤
I don’t know how I am going to be able to manage it is hard enough to get through the day . My husband is my full time career and he has to do a lot for me as I find it so hard i am wondering if anybody has had the same experience that I have had with my doctor,he was very uncaring when he told me. I feel these doctors do not understand what you are going through I feel like giving up as I don’t know how I am going to live like is.
When I eventually found out what I had it was a relief but I had to see my company doctor who didn't believe in fibromyalgia and said It was all in my head. I struggle on but some days it's really hard.
Hi, I have fibromyalgia too, the worst thing is my burning skin & unbelievable painful lumps under my skin and hypersensitive to so many things like modern lighting +100 other hellish symptoms.. What's your other symptoms? Advice ... Really watch what you are eating ....fresh food only no msg,gelatin, soy, dairy, processed foods etc.
💗
Its been 7 years i have this trouble, my hips and my shoulders are always in pain. I don't know what to do anymore. Exercise, relaxing, stretching.... everything hurts. I only don't feel pain when I'm asleep.
I've had it since I was a child, now in my late 60s. Yes, one of the worst things said to me, is you look really well. Also people jump in and tell me about their knee/hip replacement op. But this is totally different we can't have an op., I only wish we could. And it's a bit, well, I've had an op., so mine is "real". ☹ The fatigue is awful too. X
My friend Lillie who I loved so much killed herself because she had Fibromyalgia, among other things. I miss her so much! She was so beautiful and perfect and everything. I cant believe this f$cking disease ruined her life.
Be happy for her.... to me she's lucky cause she is finally at peace. Something I would give anything for. I'm sorry for your loss. She was probably a beautiful soul who was just suffering too much. Im ready to die why can't I choose death with dignity. Why is that only for terminal illness. The suffering is unbearable.
I was diagnosed with fibro at 25 and am now 60. It has been debilitating. It does seem to get worse as I get older. Stress makes the pain worse as well as the weather.
I have gone gluten free and this has helped me a lot. My flare ups don't last as long and I have less flare ups as long as I don't overdo other things. I also do these small exercises at a slow pass which has helped my hips.
reach out to salami_healing_herbs. on instagram or via whatapp for a cure
To whom ever this may concern I have recently started taking L Glutamine and it has relieved my chronic pain by %95. I take up to 5 Grams a day but you can take more . I hope this helps someone.
Hi Toya! I randomly stumbled on this video. Thanks for the advice!! I will definitely look into it! Blessings xx.
I hope this helps you... I now take up to 10 Grams a day with even better results. Also, I’ve had good results with food grade hydrogen peroxide and Diatomaceous Earth but I don’t take all these things at once. Hope this helps .
@@xrp9889 Thanks for sharing your experience! I will start with the L glutamine. Have a nice day and take care xx.
deinisss 😊
I was diagnosed with Fibromyalgia about 5 years ago and i still haven't properly accepted it. Its so physically and mentally taxing. If it wasn't for the support of my wife i would be in a very dark place.
I’m a former nurse, I have fibromyalgia and chronic fatigue plus diabetes and it all started when I hurt my back stopping a patient falling, that was over 20 years ago now. I really, really miss being a nurse.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I am reading this and I have this diagnosis as well I'm nhs staff and my names jo too last week was told I have this like you I put my leg hip and back pain down to the job I had a meniscus tear injury and its been horrendous I am still off sick and start treatment for it soon
What i dont understand is she said she can't afford the medication but she sounds British in which case she wouldn't pay for medication and being on esa she wouldn't have to pay for prescriptions.
I have fibromyalgia and its truly awful so I sympathise with her but I just dont know what she means by affording medications
You sound English but I am assuming you don't live in England? If you were in the UK you can get free prescriptions to cover any medicines, I have 11 prescriptions monthly and used to buy a yearly pass whilst I was still at work but since becoming too ill to work I now get all my medicine for free, I cannot imagine what it must feel like to have the extra burden and worry of affording your meds I know if I had to pay for mine I couldn't afford them all and would have to go without some of them. I hope your situation improves and thank you for being so open and sharing this with us.
@loulou forever I was thinking the same thing, I also have fibromyalgia along with other health problems and living in England I get my prescription free perhaps she doesn't live in the UK.
Can you tell me please the names of your medication and how it helps you? Thanks in advance
In the uk if you work or are on no benefits you have to pay for any prescriptions.
thankyou for posting it helps when others vocalize whats really going on, i do still work im 60 now but i struggle i do 30 hours a week and man i feel it some days i just cant get out of bed i keep waiting for my boss to say something.. it does help me to keep physical and some days i can accomplish stuff but oh some times for days its a struggle to even do my dishes. it really has helped me to hear of others who also get the but you look so well. thanks mary
I have RA and fibromyalgia and it’s horrible. The brain fog makes you sound like you’re on drugs. I’m always tired but can’t sleep. Winter time is the worst. People don’t usually believe you or act like you’re crazy. Mine started around the time my son was almost a year old. It’s hard to be a good mom when you’re in constant pain and completely exhausted. Its like new mom exhausted on steroids. It’s really hard not to be depressed when you have it.
I was diagnosed with fibromyalgia 18 years ago after I had my child and it seems like things have gotten worse and I can't get the right help from any doctor that I have seen.
I was diagnosed with Fibromyalgia about 16 years ago and I can't take the meds they prescribe because they cause seizures. I complain allot because I'm scared of the pain I feel but everyone just says it's all in my head. They can't "see it" so it's not there to them. What do I do? I hope you are getting better and God bless you, your family, and the people who suffer from fibromyalgia.
Thank you for sharing. I have had it for 20 years. Why the he'll do people doubt we have all that wrong with us, it's infuriating.
😩 you are brave
I was diagnosed in 1990
Ive dealt with pain for all these years
I was in a car accident in November of 1989 then my son passed in February of 1990
My dr for my back thought I was crazy,sent me to a shrink
I finally found a dr that was up in years and he diagnosed me
Nothing can be done he said,but he also told me not to rely on drugs
So ive spent all these years with mostly ibuprofen and some Tylenol
Ive tried some pain killers but I couldn’t live life on those nasty things
So I’m 63 years old now and pain is a way of life
I've had FM for over two decades. Right now I'm trying the guaifenesin protocol. It seems to help alil, esp w/ the constant daily headache/migraine. But it's not 100%. I think next I'm going to look into the whole "smart meter" & dirty electricity issues. I just don't know what else to do really. I've been on damn near every drug. Tried all the diets, even bought heppa filters for the house & a countertop water distiller, etc. The only prescriptions that help me are norco & flexeril
Have you tryed ADHD meds
Thank you.
What are the natural herbs for fibromalgia?
Hi there I also live with it for 3 years really bad had it before but was not every day with it so take care of your self it is very painful I stand behind you
I have fibromyalgia also. I'm always in a flare now. The pain, fatigue and fog is ridiculous. Nothing helps the pain. And most people including doctors have no idea and don't believe you or understand the disease.
I fully understand how you feel ... people don't believe I have it and it hurts me alot
Just her a devoice, that have helped a lot of woman I Know ❤
Couldn't work by age 45 because of the fatigue and pain/lack of sleep. I've had a good pain reduction due to a "mostly" low carb diet. If I binge with sugar I am absolutely wrecked the next day. Not simply high carb but specifically sugar😫
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I’ve had FM for 8 years. I lost my income also. Not an easy journey. Meditation helps a lot
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@@nancywalker-keay8361 thanks Nancy, who is the Dr ?
@@saraswatimishwalker6864 yeah his name is Dr Joshua Ighalo
His a herbal doctor
It took 4 years for doctors to diagnose me i felt they didnt beleive the pain i was in then was duagnosed with IBS my full life changed severe fatigue in constant chronic pain insomnia stomach problems bowel problems i am a retired nurse i spend days in bed with flare ups 😢 my life is unbearable most of the time.The thing is you dont look sick its called the invisible disability lost faith due to peoples attitude now dictors have more knowledge of it alot better this illness brings on severe chronic pain some days i cant walk the severe fatigue is crippling insomnia is terrible night sweats itching skin panic attacks rule my days
I totally .get you.i went to the hospital.to a specialist with alloydnia.had knee pain from a young age.i really thought I was going nuts .with the alloyndia.because I didn't have bruises.but it went all the way through my body.and if anything touched me half hour later it's was like I was bruised my shoes felt like blocks on .my feet and my wrists.could not put any pressure.on them.at all.my amitriptyline.helped me with this pain .
I am shameless to blurt out there, that this is one of the most painful with a circle of an emotional journey I've ever experienced. "Cramping legs in the middle of the night, and not make to the bathroom, on time...
I’ve had it25 years plus and it’s ruined my total experience of life,dependent on pain killers
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I have been suffering with Fibro for 23 years now.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Oh my dear Lord this is terrible... I pray for a full recovery... in Jesus name... Amen
Wait list !
There don't seem to be enough being done to find a cure, I've had this change of life for 7yrs after a heart attack, it's unbelievable what I go thru, my life is on hold, and yes I'm depressed, I tried to work it off as a volunteer Community First Responder CFR and what really annoyed me the ambulance crews didn't believe fibro existed, east mids!!! PLEASE FIND A CURE FOR US. IVE TRIED EVERYTHING 😫
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@@nancywalker-keay8361 hi Nancy, I would be very interested in learning more about the doctor you mentioned, please reply. Ray xx
I was diagnosed with MS in the spring of 2015 and in 2019 I had a cervical surgery. It seemed as though after that surgery my body and skin got super sensitive and the surgery helped me in one way and seemed to have set something else off in my nervous system
Wow I've been dealing with this for some time now I haven't been diagnosed but I'm pretty sure this is what it is I understand completely where you're coming from and people think maybe you're just saying it or whatever but it is no joke I co-parent so I get help with my kids but everything is still a struggle for me I do the best I can I just wish I had more support hope you're doing well take care
Oops I didnt realise this was a very old post as its only just popped up on UA-cam ...Jo would love find out how you've coped over the last 5 years or so, sorry I couldnt have helped you more at the time..hope you're well hugs from Western Australia 🤗🥰🦘🦘
Not Living we are surviveing, i was hurt on a nightshift as a nurse to, in 2021 april. Ive havent been back since, my body just crashed. I wish i wasnt here anymore
Fibro is crap. I have it. Luckily my sons are grown up but there is no way I could cope with kids and fibro. I can't cope with kiss screaming it goes right through me. My fibro started as back pain then it spread to my shoulders and neck. I can't handle stress because it causes a flare up. I am registered blind as well as ha ing fibro.
It's real... I hope exercise and right food might bring some hope to this situation
I have fibromyalgia and I am 64 year old male, females usually have this, but I have it! I have wide spread pain and all, can't really work at anything any more. It's terrible!!!! I know, I don't look sick!!!
I'm 38 and have had problems since 15. I've slowly gotten worse over the years to the point I think everyday how messed up do I have to be to get disability. There's no way a company would put up with all the extra time I would need just to take my daily nap from fatigue.
I have that sunburn feeling among other symptoms
So many younger women even young men suffer. ... Praying soon a true treatment .
Cure is on the way.. I have read that a cure is in the making. ..
And what about insomnia, which if you don't get enough sleep you're in even more pain. I, unfortunately, had 2 major surgeries because I fell at work. Damn, it was on and popping, I had to leave my job because as I said I had surgeries that increased the pain 100 fold. Some days the pain medication (which I treat like gold) doesn't work and now my nerves are shot because I can't take additional meds. So I just languish in pain and pray. My daughter still rolls her eyes up in her head, when I complain about my pain. If she knew how that hurts, nobody really takes you seriously. And that makes you hurt more and doubt yourself which only makes you depressed.
But, listen up; I found a supplement called C60 that helps with the fatigue. And CBD oil helps with the excessive pain, along with CBD topical rub. This is expensive but God answers my prayer and provides. God bless.
Hi Jo,
my mother and I viewed your clip and found it very interesting and helpful Thankyou.
Could you recommend a medication to help. Thank you, God Bless.
I too uffer from fibro, but I also have polymyalgia. double whammy. I found that cbd oil helps me. I can function "normal" now. give it a try. it has done wonders for me. I won't be without it. good luck.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
I have extreme chronic back pain it’s agonising....I was diagnosed with fibromyalgia nearly 2 years ago..I feel nobody believes me I can just about get up and get myself dressed I’m constantly in pain..
you should reach out to salami_healing-herbs. on instagram or via whatapp for a quick treatment