8 things you should NEVER do to autistic children | and what to do instead

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  • Опубліковано 29 лис 2024

КОМЕНТАРІ • 1,2 тис.

  • @SagaJohanna
    @SagaJohanna  10 місяців тому +39

    I get a lot of questions on how to deal with children who won't eat, doesn't speak etc. This is one of my favorite therapists on the topic. She has a autistic child and they are doing great. www.tiktok.com/@chelseaous (I know it's TikTok but you can watch it in your browser even if you don't have the app, and you don't need an account to watch it. Just click the X button in the corner)

    • @shyluna7107
      @shyluna7107 8 місяців тому +7

      Thanks for this my son is non verbal and it gets tough. I've learned to let him show me what to do and not get upset myself. That's extremely important.

    • @clownshoes3296
      @clownshoes3296 7 місяців тому +3

      My wife is autistic and has a bad liver causing yellowing in her face as a symptom of it.
      She takes purified bile salts and this fixes the issue.
      My son is also autistic and this is a great video.
      Keep up the good work.
      😊👍

    • @claireoswald1702
      @claireoswald1702 6 місяців тому

      @@shyluna7107my grandson is non verbal. I’m looking for all the help I can get. Please advise me where to look. I clicked the tic too video she posted, but she isn’t speaking of autism. Please advise. Amy advise is so appreciated.

    • @Nicole-dj3jf
      @Nicole-dj3jf 3 місяці тому

      Hi how about hitting and anger I try and talk soft 😢god help us both his 11 55 and 160 pounds this is low autism my son is high he runs away and hits hard none verbal 😢😢😢😢😢😢😢😢😢😢😢

    • @SagaJohanna
      @SagaJohanna  3 місяці тому

      @@Nicole-dj3jf Hi’ that sounds so hard! I would recommend figuring out where the anger is coming from - it’s always coming my from somewhere. The hitting too. What’s he trying to communicate?

  • @LearnwithMAXkidseducationalvid
    @LearnwithMAXkidseducationalvid 7 місяців тому +84

    I feed ashamed and guilty for not treating my son the way he should be treated..I pray I can do better after watching your video

    • @SagaJohanna
      @SagaJohanna  7 місяців тому +10

      I am sure you can ❤️ if you feel guilty I’m sure you know what you can do to change, and that’s a very brave thing to accept and do.

    • @alleycat616
      @alleycat616 6 місяців тому +7

      It is very hard having an autistic child, and no parent is perfect. All we can do is our best and keep trying tp get better each day.

    • @CindySoriano-w5w
      @CindySoriano-w5w 4 місяці тому +3

      Agree

    • @DogMommy.
      @DogMommy. 3 місяці тому +3

      I hope i can to. I feel like I have no patience for my 3 year old. Idk if my son has autism he will be having a appointment to find out if he is but i still watch these videos just in case he is. Hope not 😢 I been really stressed out.

    • @13billydakid
      @13billydakid Місяць тому +1

      I’m new to this and I grew up in an environment where as a kid who doesn’t pay bills our feelings wasn’t taken into account! All sternness and aggressiveness! We got tough love (more toughness than love) I don’t want to pass my trauma to my baby girl I’m trying to gain emotional intelligence for her but my patience is terrible

  • @nashfordtx
    @nashfordtx Рік тому +216

    As someone who works in special education, I so greatly appreciate this video. Sometimes I just don't understand what's going on with my students. This helps me to understand.

    • @SagaJohanna
      @SagaJohanna  Рік тому +8

      Oh thanks so much, that makes me so glad ❤️

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      I helped my son reduce aggression and improve in speech and social skill with the help of Dr Oyalo herbal supplement I got from UA-cam here. His herbs work perfectly

    • @ZoharBenJoel
      @ZoharBenJoel 6 місяців тому

      @@SagaJohanna I have ADHD or ADD or whatever makes you hyper one moment, and then nor the next. That’s why this comment so long. I’m going to go back to sleep for 2 days after this, if life keeps going as usual because I’m soododooooooooooooooooeho board. I hate twitter because once your famous your a target forever, but I can never ever get any friends on UA-cam or telegram or in person. For example, people on telegram recently after 10 years of isolation equivalent to Covid 19, who do respond to me, simply say “ok, interesting, what are you thinking.” They’re female prophetesses aged 20, (obviously their intellectual pimps). And the prostitutes who come to me, leave in 1 minute of text.
      Hi, I have autism too, and about 5 other disabilities. (Ask my doctor for a receipt if you like)
      I’d just like to say: The Jesuits might of jacobed/jewed (union JACKED) something down there during the 9th year. Your name isn’t feminine form of John (one of 5 Christ’s of the Tetragrammaton) for nothing.
      Here’s a why I think something might be up and you need to sue just like in some starwars clone wars type way, before these people simply palpatine you, (ever wonder why he have a dimple and long nose), and his eyes turn orange when he becomes upper floor on osamas grave business man.
      ua-cam.com/video/3fumBcKC6RE/v-deo.htmlsi=EjqaFRVCR4QsqLQC
      ua-cam.com/users/liveFuF8LONUuB4?si=Waq1Myk0jrA7C9bs
      ua-cam.com/video/ZCzydCo7DS8/v-deo.htmlsi=MxiGqwlaKCK3fxxQ
      (PS, the first Australian flag had 6 Jewish stars of David on them, then it was changed to 1, now none). I have a deep hatred for decedents or Philip during 1500, a usurping king of Spain, and all his funny eagle faced men, because they think they can keep removing their faces from damn official museum artefacts, to replace them with our faces, make some fable of Adam weisapt (man white face), then because of such fable, all normal white face leaders were wiped out. Now the red iris mystery of sin man runs the game, and he’s still got allot on his checklist. If you haven’t given up now, he will make you one day (just as he swore to compete with god until he gives up). I can’t believe racism is legal for the Henry Fords Forbs top 50 real rich (trillionaires) even Ford would fear at first sight (despite if surrounded with bodyguards) - like spiders gave birth to them and snakes: or some strange man in the forest mated with a Chinese (see riding by chamillionaire - I think I know where lizards come from based on that video).
      Bla bla bla bla bla. Just listen to me, extreme creativity is boss. My country Hong Kong imports all products, and so I am hated by even my family for being useless lol. And boss rule no. 1. Allow no power for the power hungry / usually accompanied by the spirit of being wicked people.
      PPS, I as a kid would always want to get spiders together and fight, I think it resembles our jewish god and his hatred for Edom that is possibly interstellar fighting in the heavens.
      Bal bla bla. I just think you needed to know this. Because no one cares about me or this. And I need some love, and this is my interest. Go and watch chamillionaire riding. The giant chin don’t match up with the face, cause the face usually would have an eagle beak.
      And no, I’m not Kanye’s agent. Kanye a distraction. He think vultures (Egyptian Edomites) are the mystery of iniquity and he’s 40 years old and consulted with top billionaires and he messed up. He turned Jesus’s movement into a billion men ask a billion men “follow me, for we will figure out the animal with the spirit of Satan” and it ends up being after wasting 50 years animals like pigeons, or pandas, or dogs, or cats. And then 1000 years later Christian’s ban panda behaviours, grey panda especially because they eat and don’t use toilets or keep their mouth closed, and the people like this inhale cigarettes, like in slave gangster China states working 6 days a week, because they got A- and not a A).

    • @v4v819
      @v4v819 5 місяців тому

      I think it's good you help teach special needs children. But if you happen to be teaching autistic kids in your class another thing you should have in mind is that you should never touch autistic kids it hurts! Thanks for your good work for society and have a good good one!

    • @mistylover7398
      @mistylover7398 4 місяці тому

      ​@@SagaJohanna can't believe it's a real condition or syndrome az a actual insanity of da 🧠. And it's said there's a difference between autism victim and metal retarded or illness but aren't they da same insanity? to really not Deny Dat something iz F Up'd in their 🧠??

  • @Chymistry
    @Chymistry Рік тому +258

    I realize now that I am the problem, not the child. Thank you for these tips. I'll be revisiting this video often.

    • @SagaJohanna
      @SagaJohanna  Рік тому +14

      Thank you so much, that really humbles me

    • @jackcroydon2772
      @jackcroydon2772 Рік тому +3

      Beautiful comment

    • @sostupid11
      @sostupid11 Рік тому +1

      Same.

    • @shyluna7107
      @shyluna7107 8 місяців тому +4

      Don't be so hard on yourself we're all learning together. Hugs and love stay strong. ❤️

    • @jakke1975
      @jakke1975 7 місяців тому +5

      Respect. I cannot explain what that means to your child. But as an autistic adult who's never known NT people to do an effort to understand, show compassion or offer support in times of distress (even from close family or wife), I struggle to find reasons to keep being alive. Nobody has any idea how dark it is in my head but I keep getting blamed and yelled at (I'm almost 50 now).
      It's so important to any neurodiverse person to know there is someone who can give comfort, acceptance and support. The levels of self-loathing in autistic people is usually sky high because they feel every day that they don't fit in this NT world. Living by itself quickly becomes such a hard task. So just by trying not to make it harder, you make an incredibly positive change in your child's life.
      I know it's not easy, I understand it's not easy living with people like me, but if you can't follow through, both you and your child will suffer from severe PTSD and that's only going to complicate things even more.

  • @mikenelon926
    @mikenelon926 Рік тому +36

    I'm a kindergarten teacher and your video has informed me and given me so many ideas to help my students. I cannot thank you enough.

    • @SagaJohanna
      @SagaJohanna  Рік тому +3

      Thank you! I'm really just very happy to have you here and for you to be so graciously receptive. Thank you 😃

  • @jpetti6182
    @jpetti6182 Рік тому +21

    I'm a grandmother and this helped me understand my granddaughter. Thanks for sharing. Best of luck to you.

  • @LashleyAnder
    @LashleyAnder 2 роки тому +211

    I appreciate your video so much. I also, as a mother of an autistic 7 year old, feel as though it’s much easier to make a list of things a parents should/shouldn’t do than to offer the alternatives. There is a learning curve to parenting a high need child and this could be discouraging to a parent who doesn’t have help or resources that I have had. My daughter has had a an occupational therapist since she was 11 months old. To say, “never yell” or “don’t have children if you aren’t going to be a great parent” is unfair. I agree with you that some parents should not have had children - but I’d also like to assume that most of us are doing the best we can. I know I am. And I have yelled, I have made mistakes, I have had very human moments….because I am human. Not superhuman.
    I plan to create a channel with content for the parents of sensory/autistic children because I think more understanding, information and support is needed for parents like me who are doing their best.

    • @SagaJohanna
      @SagaJohanna  2 роки тому +22

      I think your channel would be so appreciated! Please let me know the name of it once you do start it!
      I agree, I think it depends on culture and education. I think a lot of people who have autistic children end up being the best parents because the struggle means something has to change, and i find it very inspiring :)

    • @srldwg
      @srldwg Рік тому +16

      Yes, you are human too. I believe that the guidelines are helpful, but it is important for the parent who has limited help to be able to have self care. Not that this video actually said "don't take care of yourself" because as a parent of a special needs child you will need self care more than ever. Without that, it is even harder to meet the demands.
      I think this video can be taken with a grain of salt. (Yes, definitely agree with you on the statements that were more harshly worded.)
      If you know you are doing your best and are researching how to do even better (which I assume since you clicked on this video) than you deserve alot of credit.

    • @1Sarradd
      @1Sarradd Рік тому +12

      Yes and at least where I live in the U.S., a lot of children aren't taught how to go through their emotions. Most the adults don't even know how to handle their emotions. It's so hard...

    • @detgirl11
      @detgirl11 Рік тому +28

      I also have an autistic boy. And tbh there days that I just can't be loving understanding and unconditional. If I don't show my frustration or anger Im afraid I migjt implode. We are doing our best. Managing full time work. Home duties and high costs of raising our autistic kids... I say we are doing all we can.

    • @rl453
      @rl453 Рік тому +12

      It was particularly difficult for me, as an undiagnosed adult at that time with SPD, to raise children (as a single parent without safe family to help until I married my late husband) & have therapists, teachers, caseworkers put all of these expectations upon me yet NO supports. I was somehow just expected to magically do these things. “Support” to them meant that they told me what to do (often the wrong things for both me & my children).

  • @alisonbufarale3406
    @alisonbufarale3406 Рік тому +519

    As someone who has worked with Adults across the spectrum, I have a word of caution regarding “make life work for your child”. To a point I agree, especially when they are very young, however there has to be a balance as they grow up. Autistic children become autistic adults who won’t always be able to live with their parents. They will grow up and need or want to be part of society. If they have had everything conformed to them, they will not be able to function in the real world. While raising ANY child but especially ones on the spectrum, parents need to ask themselves “is this a behavior that will help them as an adult?”. If it is not, it should be worked on gradually until they are an adult. That way when they want a job, or a relationship, or heaven forbid their caretakers pass away, things will be so much easier for them. It is heartbreaking to work with autistic adults who want so desperately to do what their peers do, but can’t because they never learned that it’s okay to get outside of their comfort zone. 💔

    • @McFly007ish
      @McFly007ish Рік тому +61

      As a 50 year old father of a 9 year old autistic son , I totally agree with you. Thankyou for your comment. I don't want my son to feel like he's been thrown to the wolves when I'm no longer around to guide and protect him.

    • @LoraChunk
      @LoraChunk Рік тому +19

      Going through it now with my child the world is crucial. The kids are not excepted. I’m under a tremendous amount of stress

    • @Anonymous-od4nj
      @Anonymous-od4nj Рік тому +10

      I love and appreciate how you explained this, because I was thinking the same thing. I believe this person lives in another country, so maybe the culture is different there, so maybe society there treat and or help autistic people differently and better than here in the U.S. Not sure. Or maybe the creator here, wasn't able to explain what she was meaning when it came to this. I'm just trying to understand all the possibilities.

    • @silvergirl7810
      @silvergirl7810 Рік тому +20

      I just left a comment regarding my 19 year old son who I’m trying to get set up on the right track as I’m very ill and don’t have much time left- I’m so worried 😢

    • @RealRadNek
      @RealRadNek Рік тому +7

      A lot of wisdom in this post.

  • @BurgundyRoseStudios
    @BurgundyRoseStudios 7 місяців тому +21

    I agree with everything except one thing. I am autistic and have neurodivergent children and I am told I am a very good parent. I wanted kids. I didn't have them because I was expected to. It depends on the individual person. Autistic people can and should have kids if they WANT kids and are willing to put in the work also. I get that it shouldn't be an expectation. But it shouldn't be for anyone! We are a neurodivergent home and we make it work for everyone! I was really on board with every other thing you had to say and it was so refreshing to hear it all as they are the approaches that my husband and I take.

    • @v4v819
      @v4v819 5 місяців тому

      I agree with you that autistic people have the right to have children but they should have a caretaker or someone coming in to make sure they don't abuse the children also they should consider adopting for the obvious reasons but yes they deserve the right to have children and make a family if they can handle it and are willing to pay for it!

  • @aleshiamoore1261
    @aleshiamoore1261 Рік тому +30

    Thank you so much for making these videos. I have a child who is now 13, who was diagnosed with Autism at 5 years old, and I am just now figuring out that my approach is truly not working and that I have to adapt to him and not the other way around. I am so happy to see that based on this video, I am now on the right track. I have lots of work to do, and I pray that it is not too late to turn things around. My approach to parenting was aggressive because that is how I was brought up, but that approach has totally made my son aggressive, and it is getting worse. My lack of understanding this sooner is definitely to blame, I totally own it. I just want to say thank you, thank you, thank you. You are truly a godsend!!!!😊 ❤

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      I helped my son reduce aggression and improve in speech and social skill with the help of Dr Oyalo herbal supplement I got from UA-cam here. His herbs work perfectly

    • @bcat1766
      @bcat1766 8 місяців тому +1

      It's never too late ❤

  • @larrykoopa64dshacker64
    @larrykoopa64dshacker64 Рік тому +65

    You know what's crazy? I was diagnosed with autism since early childhood (before I started going to school) and it was something that everyone knew about me since the very beginning, and yet when I went out to the public world, when I started going to school as a little kid, people STILL did things and treated me in ways that traumatized me, and *I* was always the one who was bad no matter what anyone else did to me, they were right, I was wrong, and let me tell you, it screwed me up *bad* as a 22-year-old man.

    • @desertdarlene
      @desertdarlene 11 місяців тому +10

      I'm sorry this happened to you. I don't know why people treat autistic people so badly. I know a lot of people with autism and most of them don't do anything that's harmful to anyone. They stand out, for sure, but they're not hurting or bothering anyone. Most of them are good people with kind hearts. I don't understand the abuse they get just because they're a little different.

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      I helped my son reduce aggression and improve in speech and social skill with the help of Dr Oyalo herbal supplement I got from UA-cam here. His herbs work perfectly

    • @BucaneerBri
      @BucaneerBri 10 місяців тому +3

      Just knowing that it’s them & not you can be a victory of sorts, keep confident in knowing that & I think it may be able to keep you more positive? I hope so !

    • @deelitebetterpen3680
      @deelitebetterpen3680 2 місяці тому +1

      I am 45 and im a complete wreck. I totally understand. Like I have lost everything and it is always because I am bad, wrong, too much. But why am I so negative? Like really?

  • @kianteewhite9790
    @kianteewhite9790 Рік тому +66

    I truly appreciate your courage and love and sharing this. My daughter has recently been diagnosed with autism and I think it is a blessing to hear this from someone that can relate to her experience. You are helping so many with this video especially me and my family. Thank you so much

    • @SagaJohanna
      @SagaJohanna  Рік тому +2

      Wow, thank you so much for listening

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      I helped my son reduce aggression and improve in speech and social skill with the help of Dr Oyalo herbal supplement I got from UA-cam here. His herbs work perfectly

  • @yael4truth605
    @yael4truth605 Рік тому +29

    THANK YOU! As an Asperger's Mother of Autistic twin girls this was so refreshing to hear! I LOVE how you explained things that should be very obvious to neurotypicals, like how yelling at your autistic child can be traumatizing when most Autistics have anxiety issues including sensory overload. It is so important to learn how to tell WHY your child is "acting out", it is usually some form of overload! So, yelling only intensifies the experience and takes the child longer to get back in control. In other words, DON'T trigger or contribute to the anxiety of feeling out of control; that's NOT LOVING and will damage the trust relationship. My parents did this with me and my neurotypical husband does this with my girls. I have watched these preciously innocent children go from admiration and believing that their father would be their protector and hero to wanting to hide when he is around for fear of being scolded and yelled at and feeling SO misunderstood, which has led to mistrust and self-hatred.
    Also, THANK YOU for saying that school was your worst life experience; I wholeheartedly AGREE! My girls are homeschooled and I have fought firmly against everyone around me who wanted to institutionalize them. As you said, there are so many triggers there, NOT including the abusive treatment of peers! At home, we can customize the learning environment and minimize distractions ... AND eliminate the traumatizing peer experiences that certainly stay with you into adulthood! My girls love meeting new people which has helped when training them how to navigate shopping and appointments, they love reading and learning and are getting better and problem solving because they aren't locked down into a cookie cutter school system. We also have found some excellent UA-cam channels that demonstrate concepts they are learning and put them into everyday situations, especially in the sciences and math. So, I would highly recommend this approach because Autistic children are highly visual and learn from observation and experience. Remember to discuss the video and break down what they saw because they usually pick up on different things than neurotypicals. It will be a learning experience for both of you! :)
    I think this video can really help neurotypicals begin to understand the challenges of The Neurodiverse. I am always looking for videos that simply explain the challenges we face (both internal and external) and offer helpful tips and work-arounds! I'm glad I came accross your channel! 😃

    • @SagaJohanna
      @SagaJohanna  Рік тому +3

      Thank you so much!! What an incredible comment, and you sound like you’re on a fantastic journey with two girls. I love that you can see them and act intuitively and help them ❤️
      I think fathers need to get on board in many ways, not only with autistic children, but I feel that a lot of mothers struggle with the same relationship as you do with their kids/fathers! I hope this can change soon!
      ❤️

    • @hgray7462
      @hgray7462 Рік тому

      Can you suggest channels to help with math? I'm struggling teaching that to my aspie kids!

    • @shandre8142
      @shandre8142 Рік тому

      How will your daughter's adapt when they are out in the world with people that have gone through the cookie cutter schools..the world does not make special provisions for autism..
      Every person on the spectrum is different.
      This channel gives her opinions on her experiences. By grouping all autism under one umbrella and treating them all the same is just as harmful

    • @katharine2435
      @katharine2435 Рік тому +1

      My husband and his response (and his ridiculous family) to our son's ASD diagnosis sound very similar to yours. It took him 4 or 5 years to get on board. He still really doesn't get it or try to. He is hard on him and doesn't see the anxiety he causes our son. It's been a long journey. I'd never ever divorce because I'd never want to give up half of my time. He's much better off with me around to check my husband when he needs it.

    • @MrsRamos-yy8dk
      @MrsRamos-yy8dk Рік тому

      Thank you for sharing this, it has helped me a lot.

  • @aimeekova
    @aimeekova Рік тому +8

    As an autistic adult, raising autistic children. Thank you! I’m having a hard time , burn out , at the moment… and these videos help me be kinder to myself

    • @SagaJohanna
      @SagaJohanna  Рік тому +3

      Oh, burn out is so difficult ❤️❤️❤️ I can’t imagine how difficult it would be with kids. Thank you! You got it!!!

  • @Calibri57
    @Calibri57 Рік тому +25

    Thank you for sharing. Being autistic myself, I had a greater understanding of my autistic children. I homeschooled them both until they had the social skills to attend school. It was always their choice whether to attend school or homeschool. Respect and understanding…so important! Both graduated college and went on to careers that they love.

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      It's so cool to hear other autistic people's stories about how they had a bad upbringing and changed the whole game with their children!

    • @BenLWolf
      @BenLWolf Рік тому

      How can someone who, by definition, has horribly impaired social skills teach PROPER social skills to someone? That's like asking a blind person to teach another blind person how to paint.

  • @wilM26
    @wilM26 Рік тому +128

    Anger is a perfectly normal emotion, but society has 'programmed' us to see expressing anger as something shameful. Yes we need to find positive unharmful strategies for releasing our anger, but anger itself is not wrong or bad. I think this follows through for all people, not just autistic people. 💖

    • @SagaJohanna
      @SagaJohanna  Рік тому +11

      Yes I think most of these tips should be applied for all ❤️

    • @Just_A_Casual_Fan_Sorry
      @Just_A_Casual_Fan_Sorry Рік тому +1

      ​@HollySwedenStop

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      I helped my son reduce aggression and improve in speech and social skill with the help of Dr Oyalo herbal supplement I got from UA-cam here. His herbs work perfectly

    • @kellyclarke8754
      @kellyclarke8754 8 місяців тому +4

      Frustration in me appeared to my parents as anger. I was yelled at, slapped, beaten with a belt, a switch or a fist. I tried to let them know that I am angry at nobody but that I am frustrated with myself because I could not fix my hair, do a math problem, got picked last in a recess game, or could not run as fast as the other children. I was frustrated when people misunderstood what I was trying to say. If I said something wrong then I was made fun of. I took myself seriously so I was laughed at to learn to toughen up.

    • @amberallen4181
      @amberallen4181 5 місяців тому +2

      How do i teach my autistic child to express anger in a positive unharmful way?

  • @KALNAT14
    @KALNAT14 Рік тому +9

    Thanks so much for this video. I have a 4 year old nonverbal son who was having a really tough day today and instead of diving into my depressive state I turned to good old UA-cam and found this video. Your soothing voice helped him go to sleep. Thank youuu 🎉 so much info and I feel so empowered. I have my kids in homeschool and feel great now that I know it was a great choice.

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      Oh that is so kind of you to say, and so lovely to hear I could help

  • @brendamoore4463
    @brendamoore4463 4 місяці тому +3

    Thanks for sharing. My grandson will be three, we are awaiting an official assessment but it almost seems unnecessary as we can clearly see he is different. We are learning what we can so we can raise him correctly. We are very appreciative to you for sharing your story, and all the tips and advise you have for us. God Bless you honey. We are Canadian, and will probably never meet, but please believe that we won't forget you. We love you for being so generous, courageous and brave. Thank you for the love and passion you are putting out over the internet. We sure needed it. Thanks again sweetie. Lots of love from Canada. You have helped us and we are so grateful.
    We normal people with autistic kids, need people like you to understand our kids that can't communicate. You are a voice for my boy and a light in the darkness. Hope to see you in Heaven.

  • @Veronicawardwell
    @Veronicawardwell 7 місяців тому +4

    I am a retired teacher who taught children with special challenges. I like your advice and words of wisdom.

  • @divinecharity4083
    @divinecharity4083 Рік тому +3

    Am registered nurse who has been fighting the notion that my 4 kids are on the spectrum. Numerous assessments for my older girl is confirming my notion but i see how good my daughters are at masking their symptoms.
    This by far is the most touching video ever I've seen on autism care and I've watched many.
    Thank you for helping me reach this milestone of wanting to educate and help my kids from their perspective 🙏🏿

  • @Jud.912
    @Jud.912 Рік тому +11

    You are a remarkable young woman. Thank you for this video. You have addressed this subject in such a loving and caring way. Any child would be blessed to have you in their life. As a Grandmother, I too love children with all my heart. But sometimes we do need to humble ourselves when dealing with an autistic child and realize we don’t have all the answers. Your suggestions are valuable and appreciated.

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      Thank you for your kind words. Kindness makes a big difference and so does humility. Humility, in my circles appears to be a forgotten virtue and there seems to be something about the role of parenting which can make it even harder 🤔🙏😁

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      My child has improved full and acting up right with his social skill and improved from his speech delay since taking dr Oyalo herbal remedy. He has no major signs of autism like he was since I got the herbs

  • @nicholetyree2276
    @nicholetyree2276 7 місяців тому +10

    So as a neurotypical mom of a level 2 Autistic son who weighs 100lbs and is very strong and smashes his head through glass windows and puts his hands and fists through our walls, elopes, hits, kicks, and bites others I would like to know what you would recommend. I get it, I was traumatized by being restrained when I got stitches at 3 years old. It is traumatic for the parent, too. No one wants to tackle their child to the ground and wrap your arms and legs around them to protect them as well as others and property. He screams help me, it's terrible but I tell him I love him and when he has a calm body and safe hands and feet that I will let him go and I do. It's happened twice in a medical environment and once in school with the school Psychologist, when he was still in the Gen Ed classroom. He is now in an Autism program and there has a been a huge improvement in these behaviors. But sometimes you have to do what you have to do.

    • @BabyMango
      @BabyMango Місяць тому +1

      In my opinion.. her video is very one minded, and one sided. She is autistic yes. But I’m also autistic, with an autistic son. There is no “perfect world” where we are all perfect parents with perfect kids. We are vegan, and homeschool, but I don’t know any other autistic family who is able to homeschool. Thankfully we can afford it… but idk. Her video is kinda infuriating because she clearly does not have patience or understanding for adults. Also.. saying neurodiverse parents shouldn’t have kids is crazy. What a crazy crazy thing to say.
      I have also worked in the autism field for years and years. I believe in compassion over compliance. But I have had to put my body on top of a young girl who was trying to literally beat down a glass window with her feet trying to break it and kill herself. There was nothing else to do. It had to be done… and once she was restrained we took her to the sensory room to calm down and regulate. Of course we didn’t WANT this to happen. But I would restrain over allowing her to Jill herself or cut massive slits into her legs any day.

    • @kristy.fountain
      @kristy.fountain Місяць тому +1

      Hello mama. I feel you so much. That's all I have. I've spent a YEAR begging medical and behavioral providers to help us, but we get brushed off because my kiddo has a higher IQ, so he's able to mask well initially. We have the same experience pretty ferequencly. And we do the same thing as you, saying the same things. We are at our witt's end and don't know what to do. We're doing SO MUCH, but I don't know how to keep my son or ourselves safe (or expensive items we cannot afford to replace safe). Big hugs. That's all I have. I GET THIS. I'm sorry. It's more than a lot. It takes days for me to recover.

  • @drzeworyj
    @drzeworyj Рік тому +37

    6:46 as an autistic myself, I find it's a common misconception even among autistics that only the negative, sad, anxious things are related to autistic "symptoms". this is why I prefer to speak about traits - because we are just autistic when at our happiest. we are still different in our unique thinking patterns and the way we express ourselves and tap into the sources of joy in this life (autistic joy is amazing!)

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      I helped my son reduce aggression and improve in speech and social skill with the help of Dr Oyalo herbal supplement I got from UA-cam here. His herbs work perfectly

    • @chriscotton4207
      @chriscotton4207 4 місяці тому

      I found out that I'm an extremely high functioning autistic due to my son being autistic at just over a year old.
      I've always known that I see the world in a different light I just didn't understand it and now that I see all these people talking about it. I can fully see how I was able to become who I am today as successful as I am. And seemingly stable for the most part. I do have my episodes seldomly. But nobody would ever have guessed because I'm so personable, I even did sales/marketing and was a competitive athlete.
      It's crazy how much this condition can vary. It almost seems like they're blanketing too much. But the focus is all it seems to be.
      With that said I believe it truly is a gift, and my son gets treated the way that I wish that I was treated.
      Everything you've said has resonated with me perfectly. A majority of it, I kinda understood already.
      It's nice to hear it from somebody so I can process it when more thoroughly.
      My boy is the sweetest child and I've got him into patterns for everything that I need him to do.
      His routine is 100% stable and he is an angel who is highly affectionate. I fully understand there's going to be some difficulties. But he seems to not have many delays other than verbal.
      I guess the reason it was hard to diagnose in me is because I was able to speak so early and I never had to learn to read. It was just built in. I remember getting a book before elementary school and then reading it to my grandmother. And she asked how did I learn to read. And I said what do you mean. I didn't know it was a learning process. That's probably why I was undiagnosed for 38 years.
      Now that I understand the nuances. I understand that I am different. It really made everything easier.
      I think of it is brain 2.0. You need a bit more horsepower to run it. But it's not a defect.
      To me it seems like our brain is like camera lens. And there's two different lenses facing everything at all times. Sometimes the focus is off, and the person is stuck focusing on smaller details. That's all it is.

  • @MRrwmac
    @MRrwmac Рік тому +23

    I did enjoy your video. My 37 year old son still lives with my wife and I. We dearly love and have cared for him every day of his life. ALL of the things you said are true. It was very difficult to try and make those things happen within our house. Luckily my son has a 2 year older sister that did not have Autism and was the glue that held him together so many times when my wife and I couldn’t. Something you said really hit a nerve and made me emotional while listening to yor video, I was in the US military for 23 years and when I was home, I would sometimes yell at my son when he was growing up (I tried not to). It was obvious at 8 years old he treated me much different than his mother and sister. Even to this day he reminds me of it and its like a knife in my heart that I can’t repair. So for anyone reading this, please take what this lady says as the minimum we must do for our Autistic children. Otherwise, they and we will suffer for some of the ramifications. I know my son loves me, I just don’t get to experience it as I do from his big sister.

    • @debcoulombe9933
      @debcoulombe9933 4 місяці тому +3

      Caretakers have emotions too and being angry is a big part. It's not okay to yell at someone but be kind to yourself and acknowledge that you have paid a price to care for a special needs child. And also, it's very common for a special needs child to be much closer to their mom than their dad, no matter what mistakes have been made. And lastly, we are all mad at our parents for something they did when we were kids. All of us.

  • @xhesaid5468
    @xhesaid5468 Рік тому +4

    I’m watching so many videos on how to parent my son. He’s going to be seven this December and is now starting to not mind and I am guilty at finding myself in positions where I get so angry. At first I thought I was angry at him and I started to hate myself for it. I’ve come to find it’s just because I don’t know where to begin. This is the first video I am trying and I paused and am only 6 minutes in. It is giving me great starting points and I cannot thank you enough. ❤

  • @mukbangers_asmr8341
    @mukbangers_asmr8341 Рік тому +13

    Our 4 yr old was jst diagnosed with autism. Were worried but seeing this video gives us hope. Thank you

    • @saghimtesfamichael7353
      @saghimtesfamichael7353 Рік тому +1

      I believe you two will be fantastic parents. The fact that you are researching to learn is a great indicator. You are doing amazing so far.

  • @mayflower1224
    @mayflower1224 Рік тому +6

    Funny because what you said at the end is why I think autism helped me to be a better parent for my child who is also autistic and so is her father I am able to connect with my child on another level ! It no different than any other disorderd you may need some help now and again but with proper diet ,sleep, exersize , nature/spiritualityand environment someone on the spectrum no mater where the fall can accomplish what the work for. Made me a little sad that you think you wouldn't make a good parent this whole video shows you would be amazing you understand where the child is coming from you can relate and make things easier for the child like minimizing triggers. My daughter is 10 years old homeschooled threw a great program and she is thriving even with having anxiety in social situation she is very intelgent she can speed read books is interested in coding and is a fanomanal artist. She would not be that way if I didn't protection her and set her up to succeed seeing her signs and knowing right what to do for her when she needs it most. My family is so agenst homeschooling how will she socialize blah blah it's sad they can't see that even with being autistic myself that I have made all the right choices I can for her ! Like you said we are a locgic way of thinking when it comes to children that is exactly what they need. I hope you think about it because becoming a mother helped me grow so much ! There is nothing In this world that I've enjoyed in my life more than every second I spend with my daughter ! She has become my "special interest " but it the only I haven't gotten board with ... hope you all the best and thanks for this video it helped me allot to see I am on the right path and to never doubt what I can make happen ! We are a strong folk lol !!

  • @annayosie
    @annayosie Рік тому +3

    My nephew is autistic and he’s so sweet he does some very CRAZY things but he’s a sweetheart,I just wanna learn how to work with him more since I plan on trying to be around him as I get older

  • @aymanghaibeh8589
    @aymanghaibeh8589 7 місяців тому +7

    Thank you.
    I have a severely autistic child who does not (cannot) speak. I know he is extremely frustrated, even more than me, and I desperately want him to communicate with me.
    He stomps the floor and bites furniture all the time. I struggle to keep plastic and metal things out of his mouth. But he creates these things by biting them off of furniture and toys.
    Explaining things to him never seems to work. I've had to pull things out of his mouth many times and now he doesn't trust me. So He does it in secret. He's only 4.
    I'll try to treat him with more respect. I want him to trust me, but I also need to protect him to not eat anything dangerous. He hears me say "No" so many times a day.

    • @theriddlerUSA
      @theriddlerUSA 6 місяців тому +4

      My heart goes out to you. I wish I could give you a hug or a day off. I hope you are not alone.

    • @Ms.blu3
      @Ms.blu3 6 місяців тому +2

      Chewlry is what you're looking for.
      Chewable jewelry 💯
      He wants to stim by chewing, giving him something that is safe to chew will probably keep him from chewing things that are not supposed to go in your mouth.
      (Late realized autistic context - when I was in my teens, I would chew safety pins, never really thought about why...but eventually I realized that was VERY dangerous. When I was old enough, I got my tongue pierced, that was a safer alternative, solved whatever stimulatory need I was searching for and was more socially acceptable.
      I don't wear my tongue piercing often these days, but it was helpful when I needed it.)
      Also, the autistic community isn't very fond of the term "severely autistic"
      If you're interested "high support needs" an "non speaking" are more socially acceptable ❤

    • @v4v819
      @v4v819 5 місяців тому

      There is no severe autism that makes it sound like it's a disease... People autistic are just like everyone else but has different problems but can be solved over time! And people who are autistic are usually smarter than normies and just find other ways of expressing themselves like your autistic son has done based on your descriptions of his behavior articulation!

    • @KattReen
      @KattReen 2 місяці тому

      I think it's understandable to remove things he may hurt himself on from his mouth, or to prevent him from destroying furniture.
      It might be a sort of stim and/or self-soothing behavior, so just saying no to chewing may cause distress. Def agree with Ms.blu3, replace a no with a yes if possible. It's usually easier to work with people than against them, even when they're 4.

    • @PaperclipProphets
      @PaperclipProphets 2 місяці тому +1

      ⁠@@theriddlerUSAI felt the same way reading her comment and was blessed to see yours. I’d like to give you both a big hug! God bless this child with the able to communicate some way to their parent to provide some needed peace 🙏

  • @mycvzambia3965
    @mycvzambia3965 Рік тому +5

    Thank you so much for the video. Just learnt that Son has Autism, our hopes were shuttered, but after seeing this video from someone who relates, it's kindled our hope. Thanks a million and one!

    • @chriscotton4207
      @chriscotton4207 4 місяці тому

      Nobody should ever consider autism a defect. I'm literally a millionaire with a family living in San Francisco.
      It's a superpower. As long as you have the horsepower to keep up.

  • @paramshah6376
    @paramshah6376 11 місяців тому +2

    Recently got diagnosed with autism at 23, and things finally add up. All my uncommon behaviours and ways of doing things finally makes sense. This video is super comforting to me. Thank you for sharing your own experience. Appreciate it.❤️❤️

    • @SagaJohanna
      @SagaJohanna  11 місяців тому +1

      That's so great to hear!

  • @Lonepandaalone
    @Lonepandaalone Рік тому +14

    Oh my! So can relate to the "dinner is ready!" Once I got married, we made the rule, "no yelling across the house" because it was so irritating to me! We decided that it showed much more respect to take the extra few seconds to walk across the house and say that dinner is ready.

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      Oh that's amazing! That's the exact rule we have. I can't believe I didn't think of that before getting married! But it makes so mcuh moer sense.

    • @cherylyoke4872
      @cherylyoke4872 Рік тому +1

      I taught my children to walk closer and speak more quietly. That was so much better for all of us, especially for me since I have found out recently I am autistic.

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      My child has improved full and acting up right with his social skill and improved from his speech delay since taking dr Oyalo herbal remedy. He has no major signs of autism like he was since I got the herbs

  • @carolwong5949
    @carolwong5949 Рік тому +4

    Thank you so much for this video. My brother did not speak until he was 6 years old and I have always loved him. He is in a group home now and is 63 years. Now I understand why he leaves the room when they have the TV playing for hours. In fact, I cannot stand it either!

  • @МаринаКерн-й6г
    @МаринаКерн-й6г Рік тому +4

    Joanna, thank you so much for sharing. You are absolutely correct saying that parents of autistic children should be more humble, more educated. It's so important to listen to such a clear explanation of feelings and worries of the young adults with autism. Thank you for the chance to see a beautiful person with so much insights! Thank you!

  • @sf56789
    @sf56789 Рік тому +10

    my 5 y.o niece is autistic and non-verbal. I love her dearly and I want only the best for her

  • @1Sarradd
    @1Sarradd Рік тому +8

    The school I work for revolves around schedules and keeping a routine. A main issue is transitioning her from one activity to another... I want to do the best job that I can with her.

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      That's so good! I often struggle with transitioning as well, even as an adult. I need to be reminded that "soon we will finish this up and then in 10 minutes we will do this"

  • @saharmahdi541
    @saharmahdi541 3 місяці тому +1

    Now my daughter told me that my granddaughter is autism #3 ,,, and I saw your video I learned a lot from you 🙏

  • @TeaLaRee
    @TeaLaRee Рік тому +9

    I have an IEP next week and this is helpful in conveying what I need my son's staff to do for him and his environment. Ty, I've had to suspend my ego and stop seeing our relationship in a top down approach and working along with him. His Sp.ed teacher is very rigid and I'm not surprised he is hating school & throwing chairs!

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      Oh I'm sorry to hear that. I'm not surprised either, I hit my teachers, threw stuff and screamed a lot whilst I was in school. It was just not an easy environment for me. I hope you can find help with your child and help him succeed in school and at home

    • @TeaLaRee
      @TeaLaRee Рік тому +1

      @SagaJohanna thank you for your kinds words. ❤️ oh we WILL be getting this resolved with the school. I know his rights and coming prepared. I'm sorry it was hard for you too, I hope you feel more supported and happy now. Take care 🙂.

  • @BabyJuju_HijaDeNabgwana
    @BabyJuju_HijaDeNabgwana Рік тому

    THANK YOU. I'm an autistic adult with 3 autistic children. it is hard to find videos with that humble approach. i hate when ppl say I or my kids are manipulative.

  • @dianebeall8982
    @dianebeall8982 Рік тому +4

    I thank you for sharing this video, I have a teenager who is autistic and struggling to communicate his thoughts and it is frustrating. I have made this year to honor him and really help him with things that may be difficult for him. We are both learning as we are going through this process.

    • @SagaJohanna
      @SagaJohanna  Рік тому

      How amazing, and well done you! I struggled the absolute most as a teenager, and I think it's a very difficult time for all kids, but especially for autistic children.

  • @IceManGav1
    @IceManGav1 11 місяців тому +9

    Having autistic kids can be difficult. I plead with other parents of young ones to allow yourself to make mistakes, and continue to explain yourself to the kids and continue to grow and know your own limits as you both grows. I relate with the not yelling part , especially when theres a tantrum, its hard, and catch yourself when it happens and calm down , and explain and express yourself just the same way you want your kid to

    • @SagaJohanna
      @SagaJohanna  11 місяців тому +2

      I agree, apologizing as a parent is one of the most powerful things we can do!

    • @MeISvSash
      @MeISvSash 10 місяців тому

      It looks like this lady doesn’t have children, and then teach parents to be better… I’m sorry but parents are also human beings and have some emotional needs. No one is perfect, and do not expect someone to be perfect. Some parents are autistic too.

    • @mbbeautea6986
      @mbbeautea6986 10 місяців тому

      Amazing advice. I never yell at my son. He’s only three but I know how damaging it was when I was yelled at and how high my stress levels became as a result. So encouraging to know you have grown into a functioning adult who’s happily married. I just want people to accept my son and love him as much as I do

  • @hommyrodriguez3280
    @hommyrodriguez3280 Рік тому +6

    It's tough. Most of us are doing the best that we can. We are dealing with our own traumas. It is so important to seek help and break that cycle. This will help you be the best parent for your kids. With autism or without.

  • @melodiephoenix
    @melodiephoenix 2 роки тому +6

    What do you mean by holding down? When my children have serious “meltdowns “ I help them calm down with firm hugs. I think it helps them. I agree with everything you have said. I am constantly trying to adapt to each child’s way of seeing the world.

    • @SagaJohanna
      @SagaJohanna  2 роки тому +3

      Thank you :) a lot of autistic children struggle with physical touch, I would experiment not hugging them and see if that works as well. But for me physical touch can help if I feel safe!

    • @jeremyjackson7326
      @jeremyjackson7326 Рік тому +1

      Firm hugs (bear hugs) is a proprioceptive activity that can be beneficial for a child.

    • @KatieCottingham
      @KatieCottingham Рік тому +7

      ​@@jeremyjackson7326 It can also be overwhelming for some children, and adults. Not everyone responds the same and that's the big point.

    • @autismgoggles5356
      @autismgoggles5356 10 місяців тому +1

      ​@@jeremyjackson7326 it can also be traumatizing. Only children who seek deep pressure (hypo-reactive in proprioception) might like this. Others would feel terrorized, even if they eventually collapse in emotional exhaustion from resisting the hug.

  • @breannapiscitelli3941
    @breannapiscitelli3941 Рік тому +17

    I wish when I was a kid there were more people like you were around. I didn’t get diagnosed why was an adult and my parents wonder why I feel like they hurt me. They’ve never actually punched me or anything like that, but they will hold me down when I’m having a meltdown. It’s created a lot of other mental health issues for me. When people touch me, I tend to get very upset because it sends me back to when I was little. I don’t know if it’s like this for Nuro typical people, but it feels like things like that are incredibly traumatizing. I still have nightmares at my dad, screaming in my face and not being able to run away. It’s so bad that I grind my teeth at night and sometimes I catch myself doing it during the day. I don’t have a good relationship with my family and I really wish I did. But they will never understand me neurodivergent or not I would never hold my child down regardless. It’s incredibly traumatizing for a child to be put in a spot and screamed out where they can’t escape. I’m almost 30 and I still have night terrors from it.

    • @breannapiscitelli3941
      @breannapiscitelli3941 Рік тому +3

      Your video really spoke to me. I so agree. There are so many other ways to deal with our emotions that are healthy. I have a daughter who is one years old now. I’m not sure if she’s Neuro divergent yet. (I’m pretty sure she is because my mom constantly brings up how much she’s like my sisters who are normal. I was a very quiet child and head pretty clear signs.) but a lot of these ways work with regular children too. Nobody is born, knowing how to regulate their emotions. It’s definitely 10 times harder being on the spectrum. The biggest thing I found is if I get to an area where I can think and break my task down into small pieces it becomes doable for me. This works really well with children though too because I think all children kind of start with this brain. I know I’m very interested in learning new things but they have to be interesting to me. Or I have to make them interesting. That’s how I teach my daughter stuff though right now like she loves music so I’m trying to learn piano, her favorite songs on the piano and I’m going to teach her about music theory. We’ve already started, but we take it really slow. She still learning about beats and dynamics. There’s no rush though and I think that’s also some thing all kids need to hear. my biggest issue growing up was that I was never fast enough for anybody. I have an incredible memory, but it takes me a long time to actually catch on to things. I definitely think patience is key to being a parent with a Nuro divergent child. It’s actually really easy for me to deal with my child Emotional outbursts. They hurt my heart because I remember feeling so fed up and not being able to express it when I was at age 2. The biggest thing I do is I let her release the emotions I try to bring her back with breathing. When I have strong emotions, I also bring myself back with breathing. We cuddle I give her a big hug, and then we find something even more fun to do. Distractions also key, I know it works with me. Sometimes when I’m upset I just need to do some thing that will make me happy again. I wish I could take every child and help them with this. I’m not very good with people, but I love teaching.

    • @SagaJohanna
      @SagaJohanna  Рік тому +4

      I'm so sorry to hear about your upbringing. Mine was similar. I still experience trauma, flashbacks and terror from being held down so I know exactly how you feel. I also am very sensitive to touch and my husband is the only one I feel comfortable with. I rarely hug my friends, and basically never my family members. So I know your struggle.
      It does sound however, as though you've found really good ways to interact with your child!

    • @dessyred5785
      @dessyred5785 Рік тому

      I can understand that my mother used to yell at me all the time. As an autistic that created issues for me even today I have trust issues because of that.

  • @dba8211
    @dba8211 4 місяці тому

    This is so helpful to me, thank you. My 3 year old daughter is autistic with delayed speech, I'm feeling really positive about everything now.

  • @cherylmurdock2941
    @cherylmurdock2941 Рік тому +14

    This is so informative and helpful to me as a mother of an Autistic non verbal child. Their is no "one size fits all" approach to children/people and especially not Autistic children/people. Sharing your thoughts and experiences are most welcomed. Thank you for making this. Hugs to you.

    • @SagaJohanna
      @SagaJohanna  Рік тому +2

      Thank you. I appreciate you taking the time to write me. Hugs back to you 🤗 Hopefully with more awareness and communication and compassion we can makes this a kinder world for everyone to be in.

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      My child has improved full and acting up right with his social skill and improved from his speech delay since taking dr Oyalo herbal remedy. He has no major signs of autism like he was since I got the herbs

  • @angelawoods5129
    @angelawoods5129 9 місяців тому +1

    I know this video is a year old but it has been extremely emotionally helpful. My 4yo is autistic and I am self diagnosed neurodivergent. I have lived in survival mode most of my life and have always been viewed as different. Which has never set well with me however I never expressed it that way. It actually created a defense mechanism. Anywho, I just wanted to thank you for this video. It touches my heart and mind in more ways than I could ever express. ❤

  • @johndewey6358
    @johndewey6358 Рік тому +4

    Thank you for the education. I think unconditional love, compassion and respect are so important.

  • @maryannroman7592
    @maryannroman7592 11 місяців тому +2

    my grandson is autistic and this was the best information I heard thank you so much

  • @kayeewilliasm
    @kayeewilliasm Рік тому +3

    I know this video been over 9 months, but I want to thank you so much for better understanding I wish I have you in my corner every day, I will be watching all your other videos, my 6 years old daughter was diagnose with autism, dad is always holding her down when she is mad, I been telling him it not the right way to do it, we have to do better I love my daughter very much. She can’t speak yet but she’s very actives.. thanks again ❤️💝

    • @SagaJohanna
      @SagaJohanna  Рік тому

      Thank you so much! She sounds lovely, and often as mother's our natural intuition is the one we should trust and go for!

  • @frankiecoins7635
    @frankiecoins7635 Рік тому +2

    Ty so much . I'm a Widow Father My Daughter is 16 we lost here Mom 2 years ago. I Love My Daughter with all my Heart. Looking for ways to Better understand atisum and better help Her. Great point You made . She was only diagnosed at 14 . Started homeschooling as soon as I found out. I will keep watching your channel. Again Ty

    • @Jaxson_da
      @Jaxson_da Рік тому

      ​@lilylaura6955what herbs? Can I please have more information?

  • @sashal.n9454
    @sashal.n9454 Рік тому +9

    I absolutely love this. Great reminder...for myself as a mom! My daughter is definitely sensitive..has always bee. This way. She's 16mo, too young to know if shes nuerotypical...but I 💯 believe you are right and ALL parents need this!

    • @SagaJohanna
      @SagaJohanna  Рік тому +2

      ❤ Thank you so much. That makes me very happy.

  • @trinidadthang
    @trinidadthang 5 місяців тому

    Thank you for this video 🙂 I just became a parapro this year in 2024. I can't wait for school to start again!☺️ During the whole summer I've been doing more😮 research about working with autistic children. I take notes and go over them everyday. I truly believe this is the career that's meant for me. 💓 You can't put a price on seeing these children grow and learn ✨️

  • @moirarussell1950
    @moirarussell1950 Рік тому +10

    I was diagnosed very young and it really didn't help much. As a child "logic" got me in most of my bad situations. If an adult lied or gave an illogical reason for any rule or desired behaviour I would "explain" the mistake. I wasn't at all trying to be rude or bad or disrespectful. I think every single time I expected a happy revelation and resolution. I was beaten (which was adults solution in the 60's where I lived,)at first move towards "different" so no temper tantrum's or anger ever got far; before I was ( very physically) "arrested" or screamed at, or humiliated. I was surprised and hurt every single time. Every time was the time I thought it would "be okay" and I could figure it out and do it right. School was hideous. Needless to say I happily homeschooled my boys in a "safe" supportive,positive "out in nature" childhood of laughter and hugs. Every day, all day we said "I love you" and we still do.(They're in their 30's) and to them my autism is just as normal as can be. I apologize when I know I am annoying (but usually I notice I'm being annoying because they're grinning.) In my opinion I am perfectly normal, sure I still mask when I'm scared, but so do others. (In fact some people mask just to get my money or a promotion or look cool.) I like to be alone and I love all children and that's me. I like nice smells and soft touches and pretty things more than people. That's me too. I like you Saga 'cause you're wonderful! And that's you! Sweet and simple and complicated you.

    • @SagaJohanna
      @SagaJohanna  Рік тому

      Oh I'm so sorry to hear that! I'm so happy though that you could find happiness in your family

    • @KgwittheTEA
      @KgwittheTEA Рік тому +1

      Beautiful ! pray that I be the best mom to my little boy !

    • @lastchance6845
      @lastchance6845 Рік тому

      Love him for him xx

  • @erickberrocal7453
    @erickberrocal7453 Рік тому +1

    I had a difficult time raising my son. I see now the way I was taught was wrong. I never saw things from his point of view. Thank you

  • @mamake.zawadi
    @mamake.zawadi Рік тому +3

    A great video with great tips. However, for parents like myself in Africa, where there are are very little resources to navigate around the condition, we can only hope that one day we shall reach the right milestones. My four year old non verbal daughter the best i give her is love and less yelling, and she responds positively.

    • @SagaJohanna
      @SagaJohanna  Рік тому +2

      I'm sorry to hear that the situation is less ideal. I hope your country gets the support that it needs. I don't think anyone should have to suffer and especially, not because of something randomly assigned like which country we are born in. ♥️

  • @ineedcoffee3321
    @ineedcoffee3321 10 місяців тому +1

    I needed to see this video. My son is autistic, i myself have been through un imaginable trauma. I do notice PTSD rearing its head during certain specific interactions with my son. I Am still a work in progress. I am human and make mistakes, but this video has given me insight on how to approach things differently. He is such a gift snd such a beautiful person, i just want to be dble to help him as much as possible! Thank you for this much needed video!

    • @SagaJohanna
      @SagaJohanna  10 місяців тому

      Thank you. I can understand that, and awareness is always the first step. And I think just changing our approach is all that is needed. Since we are human and make mistakes

  • @aamirakarimah5359
    @aamirakarimah5359 Рік тому +8

    My daughter is 4, number 1 has me is tears. I never thought about how what i was doing may effect my relationship with my daughter later on, or even how she may feel right now when i go to hold her down. I’m so deeply ashamed of myself for even doing that, especially now knowing exactly how wrong it is. I’ll probably spend the rest of my life apologizing to my daughter for it💔💔💔💔

  • @lizbethlopez8619
    @lizbethlopez8619 2 місяці тому

    I am an RBt in a masters program for ABA. I really appreciate your video!
    I love how my company goes about this. They honor assent and by no means use any restriction. They will remove everyone else out of the room instead of the individual having a moment.
    I also think that as a future bcba, stimming or stereotypical behaviors should not be targeted to be put on extinction. Even though they don’t serve a social function, they definitely serve a personal function to self-regulate or soothe.
    And for those that think that ABA does not acknowledge mental events, it’s not true. This goes back to Skinner’s radical behaviorism and although ABA does not “focus” on internal behavior, we are still human and teach our kiddos how to tell us their emotions and what they or we (as providers) can do to help them during that time.
    It’s so true. We all require different help during hard moments. One of my kiddos likes when I ask him if he’s okay, but will not allow me to hug him and it’s the best way I can help him. Other kiddos love to do breathing exercises while others hate it and just triggers them more.
    I hope you can share more videos on how you believe professionals should help during the behaviors.

  • @paulkinzer7661
    @paulkinzer7661 Рік тому +7

    Wow. So many wise words. I recently retired, after working with kids for over forty years. Not as a school teacher, but in childcare for school children. I made lots of mistakes, but I learned and grew and got better, I think, as time went on.
    So much of what you say here is so spot on. Kids are changing every day, or even every hour, and they deserve the respect and love that comes from expecting and accepting them as they are, at any given moment, or whatever mood they're in, or whether you understand just why they are acting as they are. This isn't just because it is the fair and right thing to do -- though of course it is -- but because it's what works best for everyone in the long run. It builds trust. It builds understanding. It makes it much easier to 'reach' a child when they experience trauma or confusion, and helps in the sharing of joy and curiosity and growth. Neurodivergent children navigate the world differently, and need to be accepted for who they are. This is not easy for those of us who are neurotypical, since we cannot get inside the way their brains work. But if we can just accept that, and listen to folks like you, we can all do better.
    You are very wise. Thanks for sharing your loving, sensible thoughts with us.

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      Thank you so o much for your kind comment and wise words! I think making mistakes are part of it! But when our mistakes change how we act, it shows we are humble enough to learn ❤️

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      My child has improved full and acting up right with his social skill and improved from his speech delay since taking dr Oyalo herbal remedy. He has no major signs of autism like he was since I got the herbs

  • @gfasivdj6943
    @gfasivdj6943 Рік тому +2

    Dear Saga J, I start reading only since yesterday on Autism..What an amazing experience and God-given childhood you grew up. I have been reading reading over your various Topics and still reading it in the early hours of praying. I am from SA; a GranMa of 70 years young and simply adores what you mentioning above🎉Amen Amen..I have a great-grandson that has Autism. He is turning 5 in December and the most adorable loving kiddo since he was born. His MoM and my granson's kid, when she fell pregnant at the Age of 16. It has been a struggle with the baby afterwards when he starting to turn 1 years old. They thought he was just one of those kids, that would talk much later around maybe 2'ish; but that never happened UNTIL he had a fit. They took him to Hospital and doctors whatever did what they have to do and said he has Autism. A tablet called..starts with an **R..** for him to sleep at night; AS a matter of fact; his DaD had a mental breakdown and he went onto the same tablet(but of course for an Adult). It was still is a difficult period as you yourself experience NOT easy for young Parents. He still grew up until now into a very intelligent smart little boy. I in return, stopped working and 2 or 3 days a week I would spent my time with him..He loves singing of course I sing with him, I have to put my phone on first and he would utter and show ..his favourite **Baba Black Sheep** AND any birthday songs .he simply loves it much..He is also into cats, which I had until last August she died. I take him to our Gardens, he chasing squirrels and having a ball of a time lol. The only thing I also notices, that he would like go to my room, takes the key out of the door AND repeats it over and over and over; pure joy for him as we sometimes don't know what he does wit the keys, BUT wit his like speech words doesn't come out properly he would go to the corner or place in our home, where he has thrown the keys lol...The **Schooling-Part** I found very interesting very; AND going to focus the **home schooling** for now. Also I want to mention as we had to put a helmet on for sometimes he would just **fall OR his legs gives in**;..Evently the 1st Hospital where he attended put him over to **Red X Memorial Hospital** where I did Voluntary work for 6 years. It was hard getting him in there in Red X(childrens Hospital) but the very best indeed. They extracted 2/3 of his teeth firstly and from now on starts monitoring him over a 2/3 Months visiting the Hospital..Recently as of now...(2023-07-11); he was falling so badly and couldn't walk at all. They had to keep him in his pram for the last few days..The doctors actually puts him on some **New Medication**; AND as you mentiones **Medication**; I as a granMoM seriously worried. His granMoM phoned the Hospital and the doctor said that they can only bring him on: (2023-07-31); which is his next visit..Sooh we take it from there...I will continue reading your Articles and Facts Saga; AND will surely make use of the **Comment**-Section** Stay bless and much love from SA❤🎉❤

    • @kristinas490
      @kristinas490 11 місяців тому

      The legs giving in and having trouble walking until he can hardly walk at all, sounds like something that happened to me. I was eventually diagnosed with narcolepsy and cataplexy.

  • @l.w.4701
    @l.w.4701 Рік тому +7

    10:43 you mention treating children with respect. Great advice. We’ve got a big job ahead; getting society to treat adults with respect so they learn how to treat children with respect.

  • @patriciaowajibeetete5947
    @patriciaowajibeetete5947 Рік тому +1

    Thank you so much, although I feel is a lot of work, but I want him to grow up into a happy and fulfilled adult.

  • @l.pmoonstone5067
    @l.pmoonstone5067 2 роки тому +17

    Thank you so much for making this video!! I have watched it twice already and saved it to reference later on.
    I have so much to learn when caring for my autistic 4 yr old daughter. You answered so many of my questions in this video. I can’t thank you enough for making this.

    • @SagaJohanna
      @SagaJohanna  2 роки тому +3

      Oh wow. This is gonna make me cry. Best comment ever. Thank you so much! ❤️❤️❤️

    • @l.pmoonstone5067
      @l.pmoonstone5067 2 роки тому

      @@SagaJohanna 🥰❤️❤️

    • @PRMLA777
      @PRMLA777 Рік тому

      When u become her legal guardian and must do annual account report , your joy will be gone.

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      My child has improved full and acting up right with his social skill and improved from his speech delay since taking dr Oyalo herbal remedy. He has no major signs of autism like he was since I got the herbs

  • @ArisAzul
    @ArisAzul Рік тому

    I really like this video. Im an autistic adult trying to help my newly diagnosed 5 year old. This is a scary world and i really hope people become more tolerant and accepting of disabled people❤ ❤

  • @jamithunder
    @jamithunder Рік тому +38

    I tried not exposing my child to unhealthy foods until at least age 5. Unfortunately, well-meaning family, teachers, acquaintances, and social conventions kept getting in the way.

    • @SagaJohanna
      @SagaJohanna  Рік тому +6

      That is really hard. I don't know how I might cope with that.

    • @tahlghitter-kalsi7057
      @tahlghitter-kalsi7057 Рік тому +5

      Hi. I am a mother of a 7 yo autistic boy with social and language delays. I'm not sure it's realistic to say just don't introduce video games or candy. Is that then - no halloween? Kid's play video games. My autistic kid plays video games and we have taught him moderation. He knows how to set his timer and I think this teaches a certain kind of self discipline. Also his game time is contingent upon time spent reading and playing outside. @@SagaJohanna I am all for healthy eating. I always offer good whole foods and totally believe that food has a profound effect on everyone, and while I understand the intention is to influence your child in a positive way, we are not the only influences on them.

    • @angse7en558
      @angse7en558 Рік тому

      Same problem I'm going through! It's a struggle!!

    • @SL-gz3dy
      @SL-gz3dy Рік тому +1

      I don't think this tip is a good one though. You can't remove everything they can't handle. Does your child really strugle with unhealthy food outside the home?

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      I helped my son reduce aggression and improve in speech and social skill with the help of Dr Oyalo herbal supplement I got from UA-cam here. His herbs work perfectly

  • @LindaMcCrary-i5f
    @LindaMcCrary-i5f Рік тому +1

    Thank you so much for the tips! I actually home school my boys who have a diagnosis. They are 7 and 4 my 4 year old has never been in school yet. Love & compassion is so important!!!! This blessed me sis!!!

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      My child has improved full and acting up right with his social skill and improved from his speech delay since taking dr Oyalo herbal remedy. He has no major signs of autism like he was since I got the herbs

  • @helenah.phanna2792
    @helenah.phanna2792 Рік тому +6

    Such a great video. As a mom of an autistic 5 year old little girl I can absolutely relate. I always encourage her and make her feel like everything she does is simply amazing. I shower her with hugs and kisses and during her meltdowns I just hug her and hold her tight and it really works at calming her down. I do believe that as her primary caregiver I always have to work hard at keeping this bond and trust that we have with each other. I spent 4 years on gaining her trust and I wouldn't do anything to jeopardize this wonderful connection we have now. She has made such a huge progress in her verbal and non verbal skills, she has changed so much especially after I started understanding more and more how to approach her and her needs. She is such an independent and smart child. I adore her and would forever be her number one fan and her biggest support system until my last breath.

    • @SagaJohanna
      @SagaJohanna  Рік тому +3

      Oh wow, you’re making me emotional ❤️❤️❤️ that’s really the shift I think we need to care for autistic children. If we shift perspective and treat them with abundant love they will grow and develop very healthy mechanisms to live in this world !

    • @helenah.phanna2792
      @helenah.phanna2792 Рік тому +1

      ​​​@@SagaJohanna yes my dear. I hope everyone can accept children and people with autism and see how wonderful and amazing they can be. I still remember the first hug and the first real kiss she gave me. Trust me WE non autistic people have so much to learn from those who do have autism. Thank you for speaking your words with so much emotion and transparency. You are a wonderful young lady❤️

  • @tiniedivinogeminovlogusa8160

    Thank you for sharing your experienced. I have autistic son and he’s 18 year old now. He suffered Tourette. My husband and I always patience the situation and hoping one day he can recover by doing strict diet & fasting. It helps at least though not 90%. You’re right loving and compassion what autistic need.

  • @bluetulips7894
    @bluetulips7894 Рік тому +14

    I have a nephew who I think is on the spectrum. My sister and other family don't see it or won't accept it. So I just want to make him feel safe and accepted whenever I can. (And have fun!)
    I think I pick up on small shifts in mood and little behaviors that the rest of my family doesn't notice because I have ADHD. I was only diagnosed a few years ago (age 32!) But I've known for a long time. Looking back, a good word to describe myself as a child would be *oblivious*. And always feeling like life was a confusing game that I was 10 steps behind in. For the most part, my parents were loving and attentive, but a lot of the time I still experienced the feelings you described. Knowing I have (and had) ADHD with inattentive features makes things make sense now, and in some ways that makes me feel better. But at the same time, knowing NOW that I was and am actually pretty brilliant and wonderful in many ways, that just happen to not be what our society and culture values most--- That I actually wasn't a lazy, rude, stupid, or bad kid--- Makes me a little angry/resentful.
    It makes me cry to think about. I never want my nephew or any child to feel like that, like they are "less than" or there is something "wrong" with them.

    • @darlinspaces
      @darlinspaces Рік тому +1

      I work with kids like you and you sound pretty high functioning to get through the rough stages. I have a hard time understanding what kind of logic makes sense to kids ASD going through preteens...this is the hardest for me!

    • @amandafernandajulia
      @amandafernandajulia 11 місяців тому

      My child has improved full and acting up right with his social skill and improved from his speech delay since taking dr Oyalo herbal remedy. He has no major signs of autism like he was since I got the herbs

  • @mbbeautea6986
    @mbbeautea6986 10 місяців тому +1

    Thanks for this. I have a 3 year old son. He was just diagnosed with autism and these are so helpful for me as a mother. I really appreciate it

  • @dharmakaurkhalsa3923
    @dharmakaurkhalsa3923 Рік тому +9

    Humanity would benefit if we could follow these points with ALL children (even ALL living beings!) ❤

  • @edwardgrabczewski
    @edwardgrabczewski Рік тому +2

    This video made me want to be a better parent to my children. Thank you so much for this advice.

  • @notsotrendyautistic
    @notsotrendyautistic Рік тому +7

    I live in Canada, I am autistic and I'm pretty sure my children are too. People don't understand how I parent my kids and I get criticized all the time by family and whoever knows my children. I really want the best for them, I want no one to disrespect or yell at them. I have been severely traumatised by school and early adulthood because I was diagnosed at 30. I don't ever want my children to go through that. I am considering homeschooling or Montessori but it'll depend if they have adhd or not (I do). Thank you so much for the vidéo, there is not enough education on autism at all.

  • @bradn2326
    @bradn2326 4 місяці тому

    My son's undergoing assessment for autism at the moment. This is exactly the video I needed. Thank you for this video and for sharing your experiences.

  • @pauldupre2269
    @pauldupre2269 Рік тому +6

    Wow, just Wow!
    Epic Vid.
    Everything explained really well. I'm gonna share this with the Adults in my Family.
    Hopefully help everyone understand what my Boy is going through & the best way to help.
    Thank u 🤗

  • @ronelle.p1824
    @ronelle.p1824 Рік тому +2

    Thank you so much for your beautiful message. I have an autistic brother, and this gives me some great ideas of how to better communicate with him. ❤

  • @gzoechi
    @gzoechi Рік тому +3

    I also always found school the most horrible part of my life even though I'm 54 now and had some really bad experiences afterwards, but none of them took 12 years without much interruption or hope that it will be over anytime soon.

  • @manaltahir3609
    @manaltahir3609 5 місяців тому

    You are such a good person..both morally and ethically..
    You talked about your own experiences , it is truly a great help.
    I can't express more about this video. May be I was looking for someone like you to help.me better understand the condition .
    I hope people around the world get to know you about how you are helping others by this way.
    🎉🎉🎉🎉
    Keep up the good work
    Much praise for you !!!

  • @mariarooney6262
    @mariarooney6262 Рік тому +3

    Excellent. You covered so many wonderful areas of autism. There’s a possibility my 21 month old grandchild has autism. Im reading and watching videos much of the time. I appreciate your sharing your experience, it will definitely help me when I am with her. I will share this with my daughter. ❤️

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      Thank you ❤️❤️

    • @matealikhan5932
      @matealikhan5932 Рік тому

      Thank you for your excellent video thank you for everything what you told I have a grandchild he is 4 years old with autism your video help me allot

  • @celiacaparica5237
    @celiacaparica5237 Рік тому

    Thank you for your video. My 6 yo grandson is autistic and I am always trying to educate ourselves to make his life easier. That was very helpful!

  • @peytonvader882
    @peytonvader882 Рік тому +4

    As somebody who is on the spectrum, I really appreciate people like you calling attention to these things.

  • @normabarros3124
    @normabarros3124 Рік тому +1

    Thank you for these good tips. I pray you understand parents are learning because sometimes father's leave the home and single mothers are trying.

  • @adaywithaleks6556
    @adaywithaleks6556 2 роки тому +13

    This was very helpful to listen and learn and build an understanding from someone with first world experience. I work with an autistic and mostly non verbal kiddo that's 12. Has been a fun year with him already with lots of highs and lows and sometimes, not often I feel overwhelmed and like I'm not fit to work with him anymore after certain situations. This was very encouraging and helpful! Thank you!

    • @SagaJohanna
      @SagaJohanna  2 роки тому +1

      That means the world to me, thank you so much. That's a very interesting age because they've had a lot of impressions but adulthood and its pressures are not (hopefully) too present yet. For non verbal kids in my experience patience is a virtue. Patience and a willingness to apologize builds trust that then creates growth. It sounds like you got just that!

    • @adaywithaleks6556
      @adaywithaleks6556 2 роки тому

      @@SagaJohanna Yes! I agree and appreciate the reminder and encouragement. I definitely surprise myself at the patience I have grown and had even before with kids and adults like this compared to other people..I give it all up to God! He gave me natural abilities ( but even the best of us and I'm not saying I am anywhere near it at all) , can and do get overwhelmed and feel the pressures but we keep humbly seeking a line of understanding and communication with patience and accountability. 🙃

    • @SagaJohanna
      @SagaJohanna  2 роки тому

      @@adaywithaleks6556 Yes, that's so important. The importance of restoring ourselves when caring for others, especially when it's demanding, becomes more important than ever before. It's better to take breaks and be able to continue for a long time helping people, rather than not listening to our needs and end up not being able to continue. Love your thoughts!

  • @juliereeve6770
    @juliereeve6770 Рік тому +2

    I thank you for your bravery and your educating words.I love your passion.I have worked for many years with adults and children with additional needs.I believe you are right mankind does not always view the world through the eyes of an autistic child.I am the grandparent of an autistic 8yr old,who I love and worry for.However I would like to say how difficult it is to be a 24/7 parent or guardian of a child who needs extra support.If you hve never been this person it is easy to be judgemental.Making the decision to be this person was not an option and living with this condition that affects your child you love so much maybe a huge difficulty for many.Everyone has there own personality and abilities to cope and often limited resources.Some have more ability than others.There needs to be more support for autistic children but there also needs to be more support for families and parents who are trying their upmost best in less than perfect settings.I have the deepest love and respect for you all.Do not feel upset with yourselves if sometimes this road feels hard and you hve difficult days.Ask for help if you can access it.I hope the world becomes a more loving and excepting place for all parents, carers and children that are going through their own challenges.I hope more support will to come to you allxx

    • @SagaJohanna
      @SagaJohanna  Рік тому +1

      Yes, i agree. That's why I think all children need two parents, and lots of support from community ❤️

  • @ripleyshipman8368
    @ripleyshipman8368 2 роки тому +25

    Right now my daughter are having a very difficult time cuz I don't know how to deal with her and I get very overwhelmed. I found out that I was autistic a year ago around the same time we got her diagnosis.. so now in struggling cuz I don't know how to help my daughter when I don't know what to do with myself. My daughter is 5 years old and I'm 24.

    • @SagaJohanna
      @SagaJohanna  2 роки тому +6

      That sounds really difficult. I recommend reading "The Whole Brain Child" by Daniel J. Siegel MD and "The Concious Parent" by Shefali Tsabary. I think these books are so important to help your child thrive.
      Since she is only five it should be fairly easy to help her. If she's in school that might bring extra stress so I would remove all triggers from the house and focus on making you and her feel the best. Removing too much stimulus, removing phone and technology, and switch to reading books together or drawing. I think this would help a lot.
      And for you to be able to parent I think it is really important you take care of your self.

    • @dianathomas2674
      @dianathomas2674 2 роки тому +1

      My kid is usually having a hard time after school. It is simply too noisy for him. Could it be something like this, sensory stress in her environment?

    • @ripleyshipman8368
      @ripleyshipman8368 2 роки тому +1

      @@dianathomas2674 I definitely think it's sensory related.

    • @dianathomas2674
      @dianathomas2674 2 роки тому +1

      @@ripleyshipman8368 could this be addressed with noice canceling headphones, shades? Looking back, I should have had noise canceling headphones, too. It would have made those early years easier. Kindergarten btw. can be a downright hellish experience for kids on the autism spectrum, when it comes to sensory stress and social interaction between kids, who can be downright evil.

    • @briena8881
      @briena8881 2 роки тому +2

      My son is 4 and for him it's very important to keep the routines in the morning and in the evening. What helps our relationship very much is that I am very interested in his special interests. So I try to found out more about it with him in books, videos, etc. If he has a meltdown, I let him and offer a hug even if he was mean to me. I talk about my emotions, like "that you did ... made me very angry, because ..." "I am tired right now because I had a hard day at work", etc

  • @carollizc
    @carollizc 11 місяців тому +1

    Many of these tips are good for dealing with children with ADHD. My sister's two boys both have it, and I do as well. One of them had been relegated to "special education" classes because his ADHD was so severe that the school system had no other way of dealing with him.
    Sometimes I would argue with so-called professionals' assessments of him regarding his potential or recommended treatments. Often, they would tell us that he was not intelligent, and not to expect too much from him. We knew differently. He's proven that he is itelligent, and he is capable of thinking for himself.
    I think that our approach to dealing with neurodivergent children is to treat them as individuals, and not to pay so much attention to what youve learnt from books about what to expect from them.
    All in all, I think your video is great. It can be applied to any neurodivergent child.
    As a society, we needto realise that there is no "one size fits all" way of thinking or viewing the world around us. Expecting neurotypical behaviour from a neurodivergent child is always goingbto disappoint both the parent and the child. We need to be open to thenthings these children can teach us about the world that they can see and perhaps, even our ownnroles withinnit

  • @jonathanrunde1687
    @jonathanrunde1687 8 місяців тому +3

    Me, as an autistic child, all I ever needed was therapy, some sort of medication to stop meltdowns, and a loving environment. I got abused instead.

    • @SagaJohanna
      @SagaJohanna  7 місяців тому

      So sorry to hear that ❤️

  • @phantomvampyressshadowkiss4690

    Thank you for this video . I agree with you. I'm still learning my 4 yr old daughter is severely autistic. I believe taking her cues. Sometimes I don't know what triggers her melt downs she's non verbal but can say colors and Letters Sometimes says random things but it's not consistent. I was thinking of putting her in cyber school at home.

  • @violaineaudrey8841
    @violaineaudrey8841 2 роки тому +3

    Hello Johanna ! This video is extraordinary, thanks a lot for your sharing. I think it's a video for everyone, everywhere, parents of an autistic child or not, even not being a parent... Just for every human being ! I spend some years learning the person-centred listening by Carl Rogers, to put it in a nutshell, the idea is that each person can grow, develop, reinforce herself if she is surrounded by a facilitating climate which is based on inconditional acceptance, empathy and benevolence (sorry if I don't use the right words, english is not my mother tongue as you can tell ☺️)... and it's a climate I didn't and don't encounter very often !
    I really appreciate each and every of your content 😊🦋

    • @SagaJohanna
      @SagaJohanna  2 роки тому +1

      Wow thank you so much! Yes totally agree. I think all these tips can be helpful for all children ❤️❤️❤️

  • @eatsleepmanifest
    @eatsleepmanifest Рік тому

    My son was diagnosed today, I thank you for this video as I now know I have some adjustments to make. Thanks again

  • @WRCorner
    @WRCorner Рік тому +5

    This is a fantastic video! Thank you for taking the time to make a this helpful list and suggestions. Ill definitely keep this video saved.

  • @LivnLara
    @LivnLara Рік тому +1

    Thank you so much for this! This video was so helpful. My little brother has autism, and now I know exactly how to treat him, and fulfill his needs❤️ this video changed someone’s life,

  • @valeriegarner3897
    @valeriegarner3897 Рік тому +4

    Unconditional love is the key

  • @KetoChaos
    @KetoChaos Рік тому +1

    I have 9 kids and wish I had this information sooner. I am likely autistic myself and raising many undiagnosed autistic children. They were not diagnosed because I chose to homeschool. I did a lot of things right but i know I screamed too much. I'm much better with my youngest 2 kids and now with new knowledge.

  • @caminoalavirtud
    @caminoalavirtud Рік тому +3

    Thak you i love the way your aprouching this and your will too help autistic children and adults 😊😊😊 ❤❤❤

  • @candyhr4152
    @candyhr4152 Рік тому +2

    My teen son has autism, he has improved so much but ocd is a problem now. ❤

  • @BenLWolf
    @BenLWolf Рік тому +4

    Both my parents were autistic. So was I. I hated my father literally from birth. He was INTENSELY jealous of me in turn and hated me just as much. So instead of having the fun of a single parent home, I had one functioning parent and one that actively despised me. He retired from the army and retired pretty much from life. He was outside doing farm stuff all day every day. When he came back in, we were going to scream at each other for a while and then I would go to my room for hours. Mom had to actually do the work, career wise, so she was ALSO gone all day every day. So it's less single parent... and now "I see my parents 4 hours a day and one I wish I could see 0." Dad's melt downs translated into louder, more creative yelling and the occasional violent assault of walls. The criticism for being an utter failure of a mammal IS my internal voice now. All I hear is screaming and I shudder in horror for no reason sometimes. I always expect an imaginary blow that never comes.
    To top it all off, they thought I was gifted because I'm TECHNICALLY a genius, but I can't USE any of it. I'd fail over and over. I was put in REMEDIAL math. I have an IQ you can boil water with and I was next to people who set things on fire and can't stop twitching. The "gifted" program was just more work and stress when I didn't even want to suffer with REGULAR class work. I dropped out of that as fast as humanly possible. All my Mom ever wanted was good grades, but I couldn't ever GIVE Them to her. By highschool I was in deep, permanent depression that remains to this day and I'm mostly just waiting for my parents to die now so I can join them around 6 months later when all the savings run out.

    • @charrogate
      @charrogate Рік тому +3

      This experience is familiar. Hang in there. Compassion helps.

    • @SagaJohanna
      @SagaJohanna  Рік тому +8

      That sounds awful

    • @mareenalewis4241
      @mareenalewis4241 Рік тому +2

      It will get better. You just need to move at your pace, not what people expect of you. You may find something that brings you joy. ❤ I hope you find the path that is right for you.

    • @charrogate
      @charrogate Рік тому

      @@SagaJohanna
      You hit the nail on the head, Johanna.
      The autistic community to which Orion Kelly (fantastic guy) refers is so fresh that we (especially NTs) are still scratching around on the surface with so much talent being wasted and even abused.
      Genetic links appear to be so strong that when one family member (often the young child) becomes diagnosed, whole families including distant ones (cousins) reveal ASD traits and then their friends (and families) with whom they've successfully assimilated.
      Like a rolling snowball (increasingly more & more being diagnosed with ASD) against which the NTs. especially those in authority with hands on the public purse (top down forced financial austerity). are hitting back to the detriment of the talented autistic community.
      Becoming diagnosed with ASD late in life, it helps identify why my siblings and I had such challenging (often unhappy) upbringings with continual life experiences as did our parents and their ancestors have had in their own way totally unaware of ASD as a condition. This results in our (my) desire to support our offspring who are mostly identified as having ASD with having a better more suited life experience whilst building on their talents for the betterment of society.
      Hope this all makes sense Johanna. Coincidentally this is my late maternal gt. grandmother's name - murdered in 1945 in the War aged 37 whereby I feel ASD contributed; another story.
      Just a few thoughts based on recent observations & experiences impacting on my family members often regarded by NTs as dysfunctional with break-ups / multiple divorces prevalent. 🤔
      I'm quite willing to discuss this further with greetings from Yorkshire.

  • @Ashenicky2009
    @Ashenicky2009 Рік тому

    My 5 year old was diagnosed last year. I have felt so guilty because I thought back to when I would over react or end up snapping at her and she was struggling herself. I've been trying so hard before and since her diagnosis to do better. But I've never had an autistic family member and don't really have an example in my life for how parenting is when you have an autistic child. On top of that my husband doesn't understand nor seem like he wants to listen to me when I say that she doesn't understand and will not respond to being yelled at. This video is so helpful. I hope that we both will get better at it

    • @CarolR-hy9xu
      @CarolR-hy9xu Рік тому

      You hit on something very important. Your daughter was struggling herself. Parents of autistic children need to remember that. It's an emotional journey for both the child and parents. I wish your family the best.

  • @raysacapellan-fender
    @raysacapellan-fender Рік тому +81

    Wow… this great! Do you have like a list that we can print out by any chance?

    • @SagaJohanna
      @SagaJohanna  Рік тому +38

      So sorry for the late reply... BUT I finally have, you can download this free PDF here www.sagajohanna.com/blog/13-things-you-should-never-do-to-autistic-children-and-what-to-do-instead :)

    • @Coral_Forever
      @Coral_Forever Рік тому +9

      I have had a few possibly autistic students and I find your lists and videos helpful. I understand what you mean about schools. Such loud, at times harsh seeming environments. Not a lot of soft spaces. It is up to the parents here, though. One of my students rarely spoke. Do you have any additional suggestions for autistic teenagers who rarely speak but are told they are to go to a regular school?

    • @SagaJohanna
      @SagaJohanna  Рік тому +8

      @@alvarezfamily456 Here :) www.sagajohanna.com/blog/13-things-you-should-never-do-to-autistic-children-and-what-to-do-instead

    • @Coral_Forever
      @Coral_Forever Рік тому

      @@SagaJohanna thank you!

    • @redXgaming704
      @redXgaming704 Рік тому

      ​@@SagaJohanna Thank you so much..this is a real help..I've been teaching children of smaller age group who are dealing with ASD..want to do the best I can ..thanks