Key words here: Disintegration and Thick Skin. I haven't experienced the community as the embracing village at all. More like: not my problem, I gave birth to a healthy child. Jobs? The managers, supervisors, support, tend to be the abusers. It's a tough world for people with disabilities, no mercy. But I see my child as whole and more normal, tender and kind than the people I listed here. We laugh til the tears roll, we appreciate the little things as much as the big things. We have learned that "normal" people, are often the enemy to avoid. And I have learned more from being her mother, than I could in twenty lifetimes. She has made me a better person. If you see a person of disability and/or their family, STOP, don't look away, make eye contact, have a little lighthearted and inclusive conversation. Make them visible and valued, it makes a bigger difference than you can imagine.
I have 2 of my triplets, both boys, be diagnosed on the Autism Spectrum at age 2½. This was in the Fall of 2006. I had their pediatrician tell me "they're just slow because they're part of a set of triplets!" I pushed for an evaluation and was able to get one. All 3 triplets were evaluated, my daughter was advanced but my two boys were far behind. One was diagnosed with Aspergers (mild) and the other was diagnosed with Sensory Issues (PDD-NOS). In the state of Florida where we live, there is a special program for children with special needs. There were therapists who came out to the house multiple times a week, paid for by the state of Florida. Once they turned 3, the boys went to a special PreK-D program at the local elementary school. I volunteered in the classroom as often as I could, as well as, continuing the "lessons" or therapy from school at home. Being in that classroom with 10 little kids all on various points of the ASD spectrum was enlightening. While my two boys were able to successfully integrate into regular kindergarten with their sister, they still were provided therapy through the school. Eventually the therapies got less often until the boys didn't need it anymore (by middle school). Fast-forward to today, (the triplets are about to turn 20), my son with mild Aspergers is getting a double bachelors degree(s) in Psychology and History, while his brother is majoring in Finance to become a financial advisor (think Edward Jones or similar). I believe in the support system this speaker talks about in her TEDxTalk. Involved parents, teachers and therapies/therapists helps, especially when started young. I know both my boys still have little "quirky" things as part of their personality. But they are not defined by their diagnosis. Thank you for a great presentation!!
I didn't have triplets but both of my boys were diagnosed as High Functioning Autistic, which is now Aspergers. My one son is 22 and lives in LA going to act school and my other 23 graduates with PharmD (Doctorate of Pharmacy) this coming May. We were blessed the same way, with specialists and therapy in school. Bless you for being an amazing parent.
When my baby was diagnosed at 2 I was literally speechless lost for words and cried later that day. She’s almost 5 now and things have been going great so far I have a ton of patience with her I love my boo-boo so much
Most beautiful, genuine Ted Talk i have ever watched Thank you ❤ you are beautiful inside and out… i can watch this over and over… ive been waiting for this ❤ I love it from beginning to end, i didn’t want it to end actually 👏🏻
0:09 🌈 Developmental Pediatrician 20 years ago 1:32 🔄 Diagnosing autism in twin boys 2:13 🤔 Grandfather's concern about diagnosis 2:29 💬 Reassuring words: "It's going to be okay" 3:31 📈 Children's progress: sleep, eating, bathroom 5:33 🚫 Prejudice of low expectations for disabilities 6:01 💻 Importance of assuming competence in communication 8:02 🌟 Success stories of patients with disabilities 10:05 🏡 Building a supportive village around the child 11:09 🤝 Families navigating therapy, school, and societal expectations 11:50 💔 Dealing with judgment and societal misconceptions 14:02 🩺 Physician's journey: Autism controversies and alternative treatments 16:01 👩⚕ Physician's role: Partnering with families in their journey 17:11 🎁 Impact on the physician: Patience, communication, leadership 17:34 🌟 Families standing back up, finding hope, and being better
as an autistic person myself, it is important to me to share that a large majority of the autistic community prefers being refered to "autistic people" instead of "people with autism" because our autism is an intrinsic part of how we experience the world and not something people are "with" or "wothout"
Hi. I want to know more abt autism. My cousin is autistic. She can speak. Not non-verbal, but seldom uses any words. I want to know why does this occur. I have a friend too, who's autistic. He never speaks. I speak a lot, I can't but wonder how is there no urge to convey any message, or ask something. If I say "Hey I saw a great film today", he wouldn't ask which film, even if he wants to know about it. Or does he want to know? I don't understand what goes in his mind. How to understand them. If you have some videos related to this topic please tell me the names or share some info.
Very Amazing talks, I am starting this beautfil journey with my son he had been diagnosed with autism last year recently. And for me is too scarry, nervous, happiness, great! that shows me a different view from this society, sometimes we had people who dont understand why my son get excited looking a simple flower or even singin in the metro. Here in Panama coutry some people know what are those children but they get apart others know and get blessing saying your son will be a great profesional keep the faith. I am a teacher from public school and having a son neurodivergent taugh me to be more patient, enjoy the little things .
I have two boys on the Autism spectrum. High functioning, but still requiring a LOT of extra support. One loves Math, the other loves Computer Programming. We think they are going to be OK. I'd love to know why the prevalence of Autism is on the rise? Is it older parents? Is it more diagnosis? Is it some environmental toxin? I'd love to know. In the mean time, there is a LOT of benefit from good intervention. Accommodation, counseling, ABA's, sensory aids, fidgets, swings, heavy blankets, avoiding certain foods, some supplements... They help. A lot. But it takes a lot of trial and error and patience to find out what works. But parents role is critical. You can do it. It can be OK.
And get your kids out of the government schools. They are nearly all totally dysfunctional. Private schools and homeschooling are a LOT better. Imagine being treated as a valued customer and community member instead of as a trapped source of extra costs?
I think it’s just being diagnosed more as more is being learned about it. I’ve met plenty of people in the older generation that show clear signs of autism but never would never have got diagnosed as the diagnosis is actually fairly recent. They probably got on mostly fine though and never considered themselves autistic or anything just maybe a little different and to be honest I think that’s all autism is, is a little difference. I think autism being more diagnosed is a good thing as it can help autistic people understand themselves better but the stigma that can come along with it is a bit unnecessary in my opinion. Yes we face additional difficulties but many of us lead happy lives and are successful following our passions exactly because our autism can make us so passionate. So it just is what it is really we just learn to live with it and try to live a good life and with the right guidance i think we normally turn out alright 👍
@@Oscar-dv5sg I agree! There was no such thing as Autism Spectrum Disorders when I was growing up in the 70's and 80's. It took until my two boys (2 of triplets) were diagnosed with being on the spectrum, that I realized that I had mild Aspergers growing up too. It's a different world nowadays. Your response is spot on. Thank you!!
Actually premature births are a significant factor adding to the population. Obviously the survival rate for premature babies was way lower in the past. A lot of signs point to the brain changes associated with autism developing in the final trimester but premature babies are often born because moms had major medical complications so the mothers health is playing a role in that scenario. So that is why the number is getting higher but diagnosis is also a huge factor!
As a late diagnosed Autistic person, I found this talk patronizing. And I also found it very much “othering” Autistic people. It’s no wonder American people think ABA therapy is okay if even this health professional gives off the attitude that being Autistic is really ‘not’ okay - otherwise, why would there even have to be a Ted talk about it? The subtext seems to be that we need someone to actually give a talk about the fact that it’s okay to be and live life as an Autistic person. And from someone who is not Autistic. It’s disappointing, and harmful to Autistic people and kids.
There should be talks about it, there needs to be more awareness and you’re projecting a lot. She literally did the opposite of patronizing, how is “assume competency” And “talk to the child before the parents” patronizing?
@@Dashenic Do you know what the word patronizing means? I don't think so. Maybe get a dictionary and check it out. I also suspect that you're not Autistic, or if you are, you're drinking the kool aid. Surely by now we should be speaking about Autistic people as actual people, and not worrying so much about the impact on parents.
I am also late diagnosed, and I think this is not her fault but the culture that has been built around not fully understanding autism. I feel it is my duty as an autistic person to spread awareness, combat misinformation, and help future generations of autistic people. Neurodivergence is a difference, not a deficit. We can communicate with one another more easily.
This is not my experience with regards to Dads! I worked in a special school of children with autism. More than half of them are being taken care of their mom or their grandmom only because their Dads couldn’t accept their disability and abandoned them!! I can only count with my fingers who stayed. There are about 50 children in that school!
Thank you share and explain!But has a lot of family that have day most difficult as we can mind💔!Most care and help to grow up with healthy to❤😍 good and care in society🌍
i worry for my 9 year old autustic daughter's future & who will care for her .........i am not financially in a position to make arrangements for her care when i'm gone...........
I wanted to share a funny thing my 16 yr old autistic daughter did. She had been asking for a mother/daughter journal like her sisters have. She was so excited to fill in a page that asked “daughter, what do you love about your mother?” She wrote “ when she hugs me.” Suprised I said “ what?! Do you actually want me to hug you? I didn’t know that?!” She answers “ no way! Don’t hug me mom!” I have no idea why she wrote that except that she parrots and knows that people say those words about their mothers so she thought that’s what she was suppose to write.
I teach Pre-K ESE and have a 4 year old boy whose autistic His mom cannot leave his sight at home such as go to the bathroom shower etc otherwise he’ll have a huge meltdown In my classroom, I cannot leave the classroom otherwise he will have a huge meltdown and become extremely aggressive and hurt anyone in the room. If I sneak out the room and if he notices that I’ve left the room he’ll still have a huge meltdown. Nobody can figure out why the child reacts like that towards the mom and teacher. Anyone know why the child behaves that way?
Hi. I want to know more abt autism. My cousin is autistic. She can speak. Not non-verbal, but seldom uses any words. I want to know why does this occur. I have a friend too, who's autistic. He never speaks. I speak a lot, I can't but wonder how is there no urge to convey any message, or ask something. If I say "Hey I saw a great film today", he wouldn't ask which film, even if he wants to know about it. Or does he want to know? I don't understand what goes in his mind. How to understand them. If you have some videos related to this topic please tell me the names or share some info.
Yes there is hope. There are 13 year olds that become fluent. It's not as predictable as we imagine. If sensory issues affect your child you need to provide some ways to manage it. An indoor swing or time outside daily to do various stims to help relax their brain for learning/communication. Next you need to require communication for preferred items. My son is using the PECS right now and he is super successful. He will turn 2 in one month. He isn't talking but he wants to say words. It's obvious he has apraxia. I'm just going to set my expectations high and keep pushing him. If he has to communicate with an iPad instead of verbal words well that's still talking with words and we are lucky to live in this age!
I was diagnosed at 58. It explains so much of my life. My parents failed me. Don't fail your kids.
Key words here: Disintegration and Thick Skin. I haven't experienced the community as the embracing village at all. More like: not my problem, I gave birth to a healthy child. Jobs? The managers, supervisors, support, tend to be the abusers. It's a tough world for people with disabilities, no mercy. But I see my child as whole and more normal, tender and kind than the people I listed here. We laugh til the tears roll, we appreciate the little things as much as the big things. We have learned that "normal" people, are often the enemy to avoid. And I have learned more from being her mother, than I could in twenty lifetimes. She has made me a better person. If you see a person of disability and/or their family, STOP, don't look away, make eye contact, have a little lighthearted and inclusive conversation. Make them visible and valued, it makes a bigger difference than you can imagine.
“Assume competency” is such a huge thing in practice
I have 2 of my triplets, both boys, be diagnosed on the Autism Spectrum at age 2½. This was in the Fall of 2006. I had their pediatrician tell me "they're just slow because they're part of a set of triplets!" I pushed for an evaluation and was able to get one. All 3 triplets were evaluated, my daughter was advanced but my two boys were far behind. One was diagnosed with Aspergers (mild) and the other was diagnosed with Sensory Issues (PDD-NOS). In the state of Florida where we live, there is a special program for children with special needs. There were therapists who came out to the house multiple times a week, paid for by the state of Florida. Once they turned 3, the boys went to a special PreK-D program at the local elementary school. I volunteered in the classroom as often as I could, as well as, continuing the "lessons" or therapy from school at home. Being in that classroom with 10 little kids all on various points of the ASD spectrum was enlightening. While my two boys were able to successfully integrate into regular kindergarten with their sister, they still were provided therapy through the school. Eventually the therapies got less often until the boys didn't need it anymore (by middle school). Fast-forward to today, (the triplets are about to turn 20), my son with mild Aspergers is getting a double bachelors degree(s) in Psychology and History, while his brother is majoring in Finance to become a financial advisor (think Edward Jones or similar). I believe in the support system this speaker talks about in her TEDxTalk. Involved parents, teachers and therapies/therapists helps, especially when started young. I know both my boys still have little "quirky" things as part of their personality. But they are not defined by their diagnosis. Thank you for a great presentation!!
I didn't have triplets but both of my boys were diagnosed as High Functioning Autistic, which is now Aspergers. My one son is 22 and lives in LA going to act school and my other 23 graduates with PharmD (Doctorate of Pharmacy) this coming May. We were blessed the same way, with specialists and therapy in school. Bless you for being an amazing parent.
When my baby was diagnosed at 2 I was literally speechless lost for words and cried later that day. She’s almost 5 now and things have been going great so far I have a ton of patience with her I love my boo-boo so much
And she loves you!!!
Most beautiful, genuine Ted Talk i have ever watched
Thank you ❤ you are beautiful inside and out… i can watch this over and over… ive been waiting for this ❤
I love it from beginning to end, i didn’t want it to end actually 👏🏻
0:09 🌈 Developmental Pediatrician 20 years ago
1:32 🔄 Diagnosing autism in twin boys
2:13 🤔 Grandfather's concern about diagnosis
2:29 💬 Reassuring words: "It's going to be okay"
3:31 📈 Children's progress: sleep, eating, bathroom
5:33 🚫 Prejudice of low expectations for disabilities
6:01 💻 Importance of assuming competence in communication
8:02 🌟 Success stories of patients with disabilities
10:05 🏡 Building a supportive village around the child
11:09 🤝 Families navigating therapy, school, and societal expectations
11:50 💔 Dealing with judgment and societal misconceptions
14:02 🩺 Physician's journey: Autism controversies and alternative treatments
16:01 👩⚕ Physician's role: Partnering with families in their journey
17:11 🎁 Impact on the physician: Patience, communication, leadership
17:34 🌟 Families standing back up, finding hope, and being better
Fantastic TED talk! Dr. Manning has been a fantastic resource for families with special needs children. A positive influence on thousands of lives.
as an autistic person myself, it is important to me to share that a large majority of the autistic community prefers being refered to "autistic people" instead of "people with autism" because our autism is an intrinsic part of how we experience the world and not something people are "with" or "wothout"
Hi. I want to know more abt autism. My cousin is autistic. She can speak. Not non-verbal, but seldom uses any words. I want to know why does this occur. I have a friend too, who's autistic. He never speaks. I speak a lot, I can't but wonder how is there no urge to convey any message, or ask something. If I say "Hey I saw a great film today", he wouldn't ask which film, even if he wants to know about it. Or does he want to know? I don't understand what goes in his mind. How to understand them. If you have some videos related to this topic please tell me the names or share some info.
Very Amazing talks, I am starting this beautfil journey with my son he had been diagnosed with autism last year recently. And for me is too scarry, nervous, happiness, great! that shows me a different view from this society, sometimes we had people who dont understand why my son get excited looking a simple flower or even singin in the metro. Here in Panama coutry some people know what are those children but they get apart others know and get blessing saying your son will be a great profesional keep the faith. I am a teacher from public school and having a son neurodivergent taugh me to be more patient, enjoy the little things .
For those struggling to potty train try they no pants method. I can attest that it works and there is very little mess but it took 10 days.
This talk was greatly appreciated. Thank you!!
This was an amazing Ted Talk❤ thank you for helping me in my journey with my autistic daughter
I have two boys on the Autism spectrum. High functioning, but still requiring a LOT of extra support. One loves Math, the other loves Computer Programming. We think they are going to be OK. I'd love to know why the prevalence of Autism is on the rise? Is it older parents? Is it more diagnosis? Is it some environmental toxin? I'd love to know. In the mean time, there is a LOT of benefit from good intervention. Accommodation, counseling, ABA's, sensory aids, fidgets, swings, heavy blankets, avoiding certain foods, some supplements... They help. A lot. But it takes a lot of trial and error and patience to find out what works. But parents role is critical. You can do it. It can be OK.
And get your kids out of the government schools. They are nearly all totally dysfunctional. Private schools and homeschooling are a LOT better. Imagine being treated as a valued customer and community member instead of as a trapped source of extra costs?
I think it’s just being diagnosed more as more is being learned about it. I’ve met plenty of people in the older generation that show clear signs of autism but never would never have got diagnosed as the diagnosis is actually fairly recent. They probably got on mostly fine though and never considered themselves autistic or anything just maybe a little different and to be honest I think that’s all autism is, is a little difference. I think autism being more diagnosed is a good thing as it can help autistic people understand themselves better but the stigma that can come along with it is a bit unnecessary in my opinion. Yes we face additional difficulties but many of us lead happy lives and are successful following our passions exactly because our autism can make us so passionate. So it just is what it is really we just learn to live with it and try to live a good life and with the right guidance i think we normally turn out alright 👍
@@Oscar-dv5sg I agree! There was no such thing as Autism Spectrum Disorders when I was growing up in the 70's and 80's. It took until my two boys (2 of triplets) were diagnosed with being on the spectrum, that I realized that I had mild Aspergers growing up too. It's a different world nowadays. Your response is spot on. Thank you!!
Actually premature births are a significant factor adding to the population. Obviously the survival rate for premature babies was way lower in the past. A lot of signs point to the brain changes associated with autism developing in the final trimester but premature babies are often born because moms had major medical complications so the mothers health is playing a role in that scenario. So that is why the number is getting higher but diagnosis is also a huge factor!
As a late diagnosed Autistic person, I found this talk patronizing. And I also found it very much “othering” Autistic people. It’s no wonder American people think ABA therapy is okay if even this health professional gives off the attitude that being Autistic is really ‘not’ okay - otherwise, why would there even have to be a Ted talk about it? The subtext seems to be that we need someone to actually give a talk about the fact that it’s okay to be and live life as an Autistic person. And from someone who is not Autistic. It’s disappointing, and harmful to Autistic people and kids.
There should be talks about it, there needs to be more awareness and you’re projecting a lot. She literally did the opposite of patronizing, how is “assume competency” And “talk to the child before the parents” patronizing?
@@Dashenic Do you know what the word patronizing means? I don't think so. Maybe get a dictionary and check it out. I also suspect that you're not Autistic, or if you are, you're drinking the kool aid. Surely by now we should be speaking about Autistic people as actual people, and not worrying so much about the impact on parents.
I am also late diagnosed, and I think this is not her fault but the culture that has been built around not fully understanding autism. I feel it is my duty as an autistic person to spread awareness, combat misinformation, and help future generations of autistic people. Neurodivergence is a difference, not a deficit. We can communicate with one another more easily.
That was a beautiful talk
The great amount of encouragement is to be fallen whenever we have our tasks to get cut out👍
This is not my experience with regards to Dads! I worked in a special school of children with autism. More than half of them are being taken care of their mom or their grandmom only because their Dads couldn’t accept their disability and abandoned them!! I can only count with my fingers who stayed. There are about 50 children in that school!
Thank you share and explain!But has a lot of family that have day most difficult as we can mind💔!Most care and help to grow up with healthy to❤😍 good and care in society🌍
Loved this. We had to grow a thick skin for sure.
i worry for my 9 year old autustic daughter's future & who will care for her .........i am not financially in a position to make arrangements for her care when i'm gone...........
My family never want to know what kind of disability I have
I wanted to share a funny thing my 16 yr old autistic daughter did. She had been asking for a mother/daughter journal like her sisters have. She was so excited to fill in a page that asked “daughter, what do you love about your mother?” She wrote “ when she hugs me.”
Suprised I said “ what?! Do you actually want me to hug you? I didn’t know that?!”
She answers “ no way! Don’t hug me mom!”
I have no idea why she wrote that except that she parrots and knows that people say those words about their mothers so she thought that’s what she was suppose to write.
Bless you🙏🏻
I teach Pre-K ESE and have a 4 year old boy whose autistic
His mom cannot leave his sight at home such as go to the bathroom shower etc otherwise he’ll have a huge meltdown
In my classroom, I cannot leave the classroom otherwise he will have a huge meltdown and become extremely aggressive and hurt anyone in the room.
If I sneak out the room and if he notices that I’ve left the room he’ll still have a huge meltdown. Nobody can figure out why the child reacts like that towards the mom and teacher.
Anyone know why the child behaves that way?
I do type on a keyboard and I write ✏️ on paper
Hi. I want to know more abt autism. My cousin is autistic. She can speak. Not non-verbal, but seldom uses any words. I want to know why does this occur. I have a friend too, who's autistic. He never speaks. I speak a lot, I can't but wonder how is there no urge to convey any message, or ask something. If I say "Hey I saw a great film today", he wouldn't ask which film, even if he wants to know about it. Or does he want to know? I don't understand what goes in his mind. How to understand them. If you have some videos related to this topic please tell me the names or share some info.
My son is four and can say some words but not flow of conversation. He's in special pre k and speech therapy in school. Is their hope he will? 😢
Yes there is hope. There are 13 year olds that become fluent. It's not as predictable as we imagine. If sensory issues affect your child you need to provide some ways to manage it. An indoor swing or time outside daily to do various stims to help relax their brain for learning/communication. Next you need to require communication for preferred items. My son is using the PECS right now and he is super successful. He will turn 2 in one month. He isn't talking but he wants to say words. It's obvious he has apraxia. I'm just going to set my expectations high and keep pushing him. If he has to communicate with an iPad instead of verbal words well that's still talking with words and we are lucky to live in this age!
What therapy exactly is she referring to?
❤
Hola
This is fkng ridiculous, TED. A phkng commercial interruption every five minutes? What? Ted going broke? Wtaf? Start a GoFundMe?
Awesome. Teach them about the Autism Genocide Clock of 2006
Gilf😂😂
Trust the Scientism.
💉☠️