I'm so happy for you! Last month, I had another kidney stone and had surgery to put a stent in. I found out I had pneumonia. I had an aweful time getting my oxygen back up after the surgery. I had to think about you quiet a bit. I even talked about you to the nurse and how you are on that medicine and how you are doing much better! I do indeed pray you will keep doing well!
Still waiting for approval for trikafta up in Canada but so happy for you and all CFers who are on it and, like you, have had a major improvement in their lives. P.S. I kept yelling "Plateau!" to Peter when he was struggling to find a word about Mary levelling off around the 3 month mark. Guess you didn't hear me. LOL. May God bless. You two bring hope, happiness and heart to so many.
It’s amazing how the different is now, I have followed you for over 2 years and seen nearly all you have put out on UA-cam.. When I saw you run down the stairs, I said WOW, that is amazing and all the other things you now can do. 👍👏👏👍😊
@@lizzieturbeville4089 Thank you Lizzie! & Sorry to hear about your other kidney stone & pneumonia! I'm glad we could be a source of encouragement & support for you during that hard season!
One of the wonderful things for me was when you were packing for the move, how Mary would be physically exhausted at the end of the day - from sheer work, and not from coughing. All of a sudden, going to bed early because she had worked so hard. And the move - oh my gosh, it made the move possible! So many huge effects. So happy to remember it all!
Happy you're doing so well on Trikafta. :) My hope is Vertex will eventually submit Trikafta for approval to Health Canada so Canadians with CF will have access to the drug.
What I love about watching these videos now you’re on Trikafta is not hearing coughing so much. The coughing was a reminder that your body was constantly fighting, but now, wow! That difference from the outside looking into your lives makes me so happy for you. Question for you, how has your morning routine changed since starting Trikafta? Would you be able to do an updated morning routine video soon? 😊
Congratulations!! I’m not a CF patient but I’m so encouraged by your video. There are so many causes I support financially and often we don’t really get to see the fruits. It’s inspiring to know breakthroughs do happen!! I adore you two and appreciate you sharing life with us. ☮️🙏🙌🏻💕
It was because of both of you that I was able to tell my adult nephew with CF, at Christmas, about Trikafta. He hadn't heard of it! The following week he contacted his doctor and was able to do his initial bloodwork to get started on it. P.S. I have a new appreciation of the Dollar Tree, thrift stores, food hauls, and iced coffee. P.S.S. Ollie and Harry are the cutest!
Congrats! I's been a reel pleasure to no see you suffering so much and being so limited in what you can do. Here's to continued stability and even improvement. Happy Trikaftanniversary!
We must remember that not all of those in the 90% have been able to go/stay on Trikafta. Battling2breathe on Instagram had a very severe adverse reaction to it that meant she couldn’t continue taking it. I hope that in the future this will improve and that the 10% will also be able to take this drug. Happy Trikaftaversary Mary! The difference is so plain to see! ❤️❤️
So thrilled for you and so many others. I just finished 2 months. My journey and experience have followed yours closely and I have so appreciated learning from your experience and perspective what i might have to look forward to. Household chores are fun now! I can laugh now! I don't cough now! I have adopted your "vertex-can" motto- it's so true. 👍😊💪
I check in on you a few times a year with trepidation. What joy today to see such a dramatic positive change. Wow. Peter looks so much better, too. I am so happy for you and for the entire C.F. population. Thank God and all the researchers who brought their talents to this discovery.
This is awesome news!! Congrats Mary!! You look so pretty and you have this new glow to you. I'm grateful that this is working for you and all the other CF patients. God is so good!
This makes me sooo happy for you guys! It really is mind blowing to think about how different your lives are now. What an awesome blessing! God is so good! Love you guys!
Mary and Peter I'm so excited for you! I have definitely observed a big difference in Mary's health. I am watching current vlogs and going back and watching the vlogs from oldest to newest. She was really struggling and talking about a new lower normal for her lungs. It's quite striking, the difference. Love that this is so life changing for you.
I only found your channel maybe 8 weeks ago, but I went back and wowsers what an incredible change. The best part of your journey is your love, gentleness, and commitment to joy in any circumstance. It is very sad that not all benefit, but what a wonderful thing for those it does help. And if you measure the cost of the medication against frequent hospitalizations, there might be evidence for paying for the medication ( for insurers).
I am so glad that you are doing so well! I have been on a combo of three cardiac medications due to issues with my congenital heart defects. The combo has started to work over the last year. My pediatric cardiologist said my heart function came up significantly and that I am at the most stable he has seen me in years! I am so grateful for pharmaceutical companies and my doctors for finding the right combination of medications to help me fight my congenital heart defects and the issues it causes.
Happy trikaftaversary!!! I still think back to a year ago and see how much your lives have changed for the better it seems. So happy for you all! Love to Ollie and hair man!
So grateful for these improvements. A big fan of yours and friend of mine just passed. A chronic overcomer times a thousand. So grateful you brought her joy. She had my Ollie boy doll and her own in her apartment. I hope I can find them to remember her.
You dont have to go to the hospital as much. To me thats a huge plus. Your not having to taking antibiotics.as much. Thats so great. So happy for you all on the drug.
This makes me SOOOOOOOOOO HAPPYYYYYYYYY!!! 🎉🎉🎉🎉🎉🎉 Happy 6 Month Trikaftaversary, Mary and Peter!!! I love seeing the others it is benefitting too, it's truly amazing! 🙌👏👏👏👏👏👏👏
Such a beautiful story!! Couldn’t be more happy for you and others affected with CF 🤗🙏🏻💗. The joy on your faces is heartwarming. It is a miracle to celebrate 🎉
One of my nurses when I was in hospital for J tube being blocked has a 7 yr old girl with cf and I told him about your vlogs when she is older she should be able to take Trikafta. Her cf team said several Year ago that there would be a miracle drug to help cf in miraculous ways and she'd have it when she was older....he was right
Y'all are such a blessing. I hope you never lose your smile. I'm glad your health is so much better on the trikafta. Please give lovings to Ollie and Harry for me. Thank you. Love and God Bless Y'all.
I have been watching your videos since the beginning and seeing how much trikafta has helped you brings tears to my eyes and so much joy. You guys are amazing. Happy 6 months! 💜
I am finally going to get it in a few weeks!!! I am so excited! But also being cautiously excited. The results most people are having is incredible. I am so happy it's been so good for you.
What a huge blessing! I'm so excited for you and the CF community! I often talk about you, the CF community, and the new medication to my Mom. She is excited too! One day I said "Mary Vertex can." She asked what that was and how I remembered that name since I have short-term memory. I use to hear you say it many times in videos. I have a friend with two young children with CF. I'm going to ask her if this is an option for them. I am so excited for you all! Have a great week! I have been watching you guys since you started and I I always look forward to seeing your videos. Now I need to buy something from the Frey Life store.
Hey it’s great that you’re doing well with the new medication. I i’ve been a respiratory therapist for the last 23 years and have seen how these new medications have impacted the lives of many CF patients. I’ve been following you for the last couple years and have seen how these medications have improved during your online presence. I share your story with many of my CF patients here at Cincinnati children’s hospital, it’s very inspiring to them. Unfortunately there still a lot of work to be done I have several patients that can’t get the medication because of their young age and this has to change soon- I will keep sharing your story so others may be inspired as much as I am. Thanks nick RBSRT
I don’t know if you have said this before but has your sister been able to go on Trikafta? I understand it maybe that your sister doesn’t wish to share that personal medical info but if she is okay with it then it would be interesting to hear about, like is Trikafta needed/effective/useful/safe for post transplant patients? A good friend of mine here in the UK started trikafta about 4 months ago, he has been having a really bad time before this,so much in patient time, he also had transplant evaluation and was unfortunately found to be unsuitable for transplant. We were really at the point of knowing our time with him was short. Since Trikafta he hasn’t been inpatient, he has even been back up riding again, he used to compete at a high level with his horses in Dressage but had got to the point that not only couldn’t he ride anymore but he couldn’t even manage to get to the stables to see his retired horse. It’s been amazing seeing him start to thrive again and be posting pictures from the stables, riding and living!
It brings my heart joy to see the night and day difference in your life since starting this medication! You vertex can!!!! Happy 6 month tricaftaversary!!!
Hi Guys , wow 6 months , I remember the last part of July when you were hoping , so glad it worked. I think the biggest most grateful change is not having to see Mary cough so hard in the AM. I really felt so bad to see her suffer like that , and then be able to find a smile. There have been other areas of improvement as well , but none that really hit you like the no-cough or very little cough mornings you have now. Thanks for the vlog / update , take care CU tomorrow on UR vlog !! Take care , Gary
I broke down more than once during this video. I remember praying for you Mary back when you were struggling and feeling so bad for all that you had to pass through. Today’s tears are happy tears. I was so excited the day you started Trikafta knowing there was something that could possibly help, and now even more just seeing how well it is working for you.
I see so much improvement in your health and energy compared with six months ago and it makes me so happy to see you and Peter so much happyer and having more fun together! Congrats with your 6 month Trikafta universery,ik hope you will have soooo many more to go...you go girl!!! X
It’s so fun to see how well you and others are doing. I had a good friend in high school with CF ( in the 80’s) he lived into his 30’s which was a long time. I’ve also watched some videos from other patients who are celebrating for sure but also kind of freaking out because now they have a future that they didn’t expect and need to plan for it.
Im so happy for you two. It is so wonderful to see you guys enjoying life and each other. Big hugs and always in my prayers. Goodnight Ollie boy and Harry.
People who never had to live with complex chronic illnesses often underestimate the importance of stability. Being able to reach that milestone is in itself such a huge accomplishment. So happy for you
I FOUND YOU GUYS!! I used to watch your videos and then after being away from the internet for a while for medical reasons and coming back and having to make a new account my foggy butt brain couldnt remember the channel name. The last time i seen you guys you had just got the news it was time to talk lung transplant and now i find you a million times better and on this miracle drug. It's amazing! I cried watching this.
New Zealand just got approval for Kalydeco to be funded by Vertex here! I don't have CF but know people who do, and I'm a lot more aware of it after finding your channel, but funding for CF treatments here is miles behind the rest of the world. Prayers and all my fingers crossed that more and more gets funded here so people can experience the incredible miracle that you guys have!
Can’t remember the last time we actually watched you cough. Looked back at older videos. Oh what a difference. I’m so happy this is working for you. God is so good. ❤️
I am sooo over the moon happy for both you!! God is so Good!! My husband was diagnosed with Hepatitis C which he was infected with while serving this country. They lied to him to avoid paying disability payments and said it was viral Hepatitis A which you do heal from. We fought for 6 years to get this straightened out. All of that to say they finally had to admit to the lie and do what was right. As soon as Jack found out what he had through a doctor I was working for we had to make certain lifestyle changes which were all positive. Because he took the initiative and did not just give up, when the miracle drug Harvoni was available through VA for free, he was cured!! Never did we think that a cure would come about in our lifetime. Because so many people, not just those who served were coming up positive for this, the powers that be had to sit up and take notice. This is why I love you both so much. We all struggle in different ways, whether it be health or numerous other difficulties but no matter what it is it all comes down to the Grace of God!! I am 67 and Jack is 72 and we have had 30 great years of marriage. Through our years our calling has been to adopt and rescue many fur babies, AKA dogs, that would have been euthanized just because they were not perfect. We just adopted another sweet baby a week ago. We were able to do this because his health was given back to him. What a blessing! Because of our lives and struggles it makes me pray you two also have the gift of years together and continued good health to fulfil all of your dreams! God Bless. Janet & Jack from Lake Placid, Florida.....our love to Ollie and the hair man!
Happy Trikaftaversary Mary & Peter!! It’s been absolutely beautiful to see the transformation!! Blessings absolutely everywhere!!! 1 thing I have noticed in particular, is u mentioning ur off to see.../ur going to.../...is coming over-something I very rarely heard u say prior to Trikafta-SO wonderful!
After watching y'all over the years my heart is bursting with joy for the both of you!!!! I keep telling people about Tricafta and what a miracle it is. God bless all those who worked on creating this wonderful drug. TFS and take care.................God bless.
What a beautiful testimony to the miraculous drug known as Trikafta. I love that you have predictability in your life now that allows you to plan activities more than a day (or even a few hours) in advance. And the difference in your mornings!! Truly a life-changing medication. And it expands beyond just you. Not only does Peter benefit, but your family, your friends, and friends that you haven't even met yet. The ripple effect is HUGE. Multiply that by all the CF patients who are experiencing similar health improvements....WOW.
I'm so happy you're doing so much better with Trikafta! It brings me so much joy to see you doing so well. I'd love an updated morning routine now to see how much better you're doing in the mornings. And I'm glad you've been able to welcome Harry into your family. You're bringing me round to the idea of having a hairless cat. I'm allergic to all other cats.
Watching the Trikafta change your life has made me cry so many tears of joy. This is AMAZING and beyond all expectations I’m so excited for this drug. Dare I say this without cursing anything, what’s next? A cure?
Happy Trikaftaversary! Just so happy and grateful for this medication's ability to significantly improved your quality of life, and that of others. ❤️❤️❤️🤗
I have been overjoyed that your health has improved so much, and, even when you felt your worst and had absolutely no reason to think you'd feel any other way, you still plugged along, many people in the best of health can't do that when they get sick. Just a little "housekeeping"; you know how people will abuse antibiotics for a virus, so I think a little clarity is called for. You took antibiotics because a cold left you open to a bacterial infection, which took hold, not because of the cold itself, right? Have a Blessed Week!
My heart swells with happiness that this medication has done what it has done for you, Mary. Thank you for being you for YOU are so very special to me. 💛
Yes, that 2019 in review vlog shows the major improvements in a way that words could not express!! Congratulations on your 6 month trikaftaversary! I am so thankful for the way you have benefited from this amazing drug. I also have enjoyed hearing of the benefits that others have received. I hope that over time the cost of this drug will decrease and be affordable for everyone who needs it.
We enjoy watching your vlogs so much! It's so amazing to see the changes this medication is making for you!! You guys have such a clear joy and love for life and it is literally infectious.
you guys should have a little celebration at the one year mark... with cake and balloons or something! So happy to see how this medicine is impacting your lives!
6 month Trikaftaversary!!!!! So. Beyond. Grateful
The Frey Life so so grateful 💪🏼
I'm so happy for you! Last month, I had another kidney stone and had surgery to put a stent in. I found out I had pneumonia. I had an aweful time getting my oxygen back up after the surgery. I had to think about you quiet a bit. I even talked about you to the nurse and how you are on that medicine and how you are doing much better! I do indeed pray you will keep doing well!
Still waiting for approval for trikafta up in Canada but so happy for you and all CFers who are on it and, like you, have had a major improvement in their lives. P.S. I kept yelling "Plateau!" to Peter when he was struggling to find a word about Mary levelling off around the 3 month mark. Guess you didn't hear me. LOL. May God bless. You two bring hope, happiness and heart to so many.
It’s amazing how the different is now, I have followed you for over 2 years and seen nearly all you have put out on UA-cam.. When I saw you run down the stairs, I said WOW, that is amazing and all the other things you now can do. 👍👏👏👍😊
@@lizzieturbeville4089 Thank you Lizzie! & Sorry to hear about your other kidney stone & pneumonia! I'm glad we could be a source of encouragement & support for you during that hard season!
One of the wonderful things for me was when you were packing for the move, how Mary would be physically exhausted at the end of the day - from sheer work, and not from coughing. All of a sudden, going to bed early because she had worked so hard. And the move - oh my gosh, it made the move possible! So many huge effects. So happy to remember it all!
That 2019 compilation clip video was so emotional i am so happy for her
I started trikafta 6 weeks ago! It's blown my mind with how much I've been feeling better. So happy to watch your journey, love you both!
Mckenzie Ripley YAY!! Congratulations!!!
Happy you're doing so well on Trikafta. :) My hope is Vertex will eventually submit Trikafta for approval to Health Canada so Canadians with CF will have access to the drug.
Thank you Arizzona Online & agreed!
Yes yes yes - another Canadian here
I think they are negotiating for the drugs that came before trikafta right now!
I love that Ollie can be seen peeking through your chairs. Congratulations on your continued health improvement. Blessings to the entire Frey family.
What I love about watching these videos now you’re on Trikafta is not hearing coughing so much. The coughing was a reminder that your body was constantly fighting, but now, wow! That difference from the outside looking into your lives makes me so happy for you. Question for you, how has your morning routine changed since starting Trikafta? Would you be able to do an updated morning routine video soon? 😊
Congratulations on your 6months on Trikafta. So glad it it is working for you.
Congratulations!! I’m not a CF patient but I’m so encouraged by your video. There are so many causes I support financially and often we don’t really get to see the fruits. It’s inspiring to know breakthroughs do happen!! I adore you two and appreciate you sharing life with us. ☮️🙏🙌🏻💕
Thank you Julie for all of your support & encouragement! :)
It was because of both of you that I was able to tell my adult nephew with CF, at Christmas, about Trikafta. He hadn't heard of it! The following week he contacted his doctor and was able to do his initial bloodwork to get started on it. P.S. I have a new appreciation of the Dollar Tree, thrift stores, food hauls, and iced coffee. P.S.S. Ollie and Harry are the cutest!
Tiffany Haro That's so exciting!
Congrats! I's been a reel pleasure to no see you suffering so much and being so limited in what you can do. Here's to continued stability and even improvement. Happy Trikaftanniversary!
Thank you Doreen! :)
Me and my family have been following your story and been rooting for you. Over joyed to hear its working. You are in our hearts always!
Awe thank you Melanie B (& family)! :)
We must remember that not all of those in the 90% have been able to go/stay on Trikafta. Battling2breathe on Instagram had a very severe adverse reaction to it that meant she couldn’t continue taking it. I hope that in the future this will improve and that the 10% will also be able to take this drug. Happy Trikaftaversary Mary! The difference is so plain to see! ❤️❤️
It's wonderful that there's a medication that is effective in treating CF. So happy for you, hugs and prayers.
Thank you Lynne Perg! :)
So thrilled for you and so many others. I just finished 2 months. My journey and experience have followed yours closely and I have so appreciated learning from your experience and perspective what i might have to look forward to. Household chores are fun now! I can laugh now! I don't cough now! I have adopted your "vertex-can" motto- it's so true. 👍😊💪
Joanne YAYAYAY! So happy and excited for you!! Keep on pressing on friend! :)
Mary I'm so happy to see you out and about enjoying yourself with Peter , your a strong person love and prayers always
Thank you Susan! :)
I check in on you a few times a year with trepidation. What joy today to see such a dramatic positive change. Wow. Peter looks so much better, too. I am so happy for you and for the entire C.F. population. Thank God and all the researchers who brought their talents to this discovery.
This is awesome news!! Congrats Mary!! You look so pretty and you have this new glow to you. I'm grateful that this is working for you and all the other CF patients. God is so good!
I just started tricaftia on Thursday
I hope it works for you!!! Keep us posted!
Good luck💙.
fingers and toes crossed for you
is this treatment covered by the health insurance? just curious.... I hear it's expensive....
Aurelia Oana yes it is covered by health insurance at least mine was
So happy that you are seeing improvement and feeling better - what a blessing to be able to have social commitments!
Happy vertex anniversary!! Girl, I've been so excited as a daily watcher to see the miraculous change in your health, even in that amount of time. 😇😇😇
This makes me sooo happy for you guys! It really is mind blowing to think about how different your lives are now. What an awesome blessing! God is so good! Love you guys!
Thanks Cheryl! God is good!
6 month Trikaftaversary!!!!! I am so happy for you and all the people that Trifakfta is helping!!
Thank you Jana Leonard! :)
Mary and Peter I'm so excited for you! I have definitely observed a big difference in Mary's health. I am watching current vlogs and going back and watching the vlogs from oldest to newest. She was really struggling and talking about a new lower normal for her lungs. It's quite striking, the difference. Love that this is so life changing for you.
I only found your channel maybe 8 weeks ago, but I went back and wowsers what an incredible change. The best part of your journey is your love, gentleness, and commitment to joy in any circumstance. It is very sad that not all benefit, but what a wonderful thing for those it does help. And if you measure the cost of the medication against frequent hospitalizations, there might be evidence for paying for the medication ( for insurers).
I am so glad that you are doing so well! I have been on a combo of three cardiac medications due to issues with my congenital heart defects. The combo has started to work over the last year. My pediatric cardiologist said my heart function came up significantly and that I am at the most stable he has seen me in years! I am so grateful for pharmaceutical companies and my doctors for finding the right combination of medications to help me fight my congenital heart defects and the issues it causes.
Praise be to God! You two are such an inspiration. Thank you for sharing your daily joys and challenges. Jane and David
Happy trikaftaversary!!! I still think back to a year ago and see how much your lives have changed for the better it seems. So happy for you all! Love to Ollie and hair man!
Thank you Tamber Grable!
So grateful for these improvements. A big fan of yours and friend of mine just passed. A chronic overcomer times a thousand. So grateful you brought her joy. She had my Ollie boy doll and her own in her apartment. I hope I can find them to remember her.
You dont have to go to the hospital as much. To me thats a huge plus. Your not having to taking antibiotics.as much. Thats so great. So happy for you all on the drug.
Words can not express my happiness for you two at this gift of Quality of life that you have recieved.
Thank you Pat Fluegel!
This makes me SOOOOOOOOOO HAPPYYYYYYYYY!!! 🎉🎉🎉🎉🎉🎉 Happy 6 Month Trikaftaversary, Mary and Peter!!! I love seeing the others it is benefitting too, it's truly amazing! 🙌👏👏👏👏👏👏👏
You look wonderful! Mary, you are such an inspiration to others. I hope they can somehow very soon get a cure.
Thank you Elizabeth smith! :)
Such a beautiful story!! Couldn’t be more happy for you and others affected with CF 🤗🙏🏻💗. The joy on your faces is heartwarming. It is a miracle to celebrate 🎉
Thank you G Laurent! :)
One of my nurses when I was in hospital for J tube being blocked has a 7 yr old girl with cf and I told him about your vlogs when she is older she should be able to take Trikafta. Her cf team said several Year ago that there would be a miracle drug to help cf in miraculous ways and she'd have it when she was older....he was right
It makes me so happy to see you doing better 💚 What a miracle!
Thank you Rachael! :)
Y'all are such a blessing. I hope you never lose your smile. I'm glad your health is so much better on the trikafta. Please give lovings to Ollie and Harry for me. Thank you. Love and God Bless Y'all.
I have been watching your videos since the beginning and seeing how much trikafta has helped you brings tears to my eyes and so much joy. You guys are amazing. Happy 6 months! 💜
Thank you Alicia Chenier! :)
its amazing how much it has helped you , i love this for you and so many others , its made a huge difference in your quality of life for sure
I am finally going to get it in a few weeks!!! I am so excited! But also being cautiously excited. The results most people are having is incredible. I am so happy it's been so good for you.
I am so thrilled for the both of you! So thankful for research and the good that comes from it!
I can’t wait till it’s available in Australia and I can dispense it for my patients!
Yay. 🙌 Happy 6 months trikafta versary. Hope things keeps improving.
What a huge blessing! I'm so excited for you and the CF community! I often talk about you, the CF community, and the new medication to my Mom. She is excited too! One day I said "Mary Vertex can." She asked what that was and how I remembered that name since I have short-term memory. I use to hear you say it many times in videos. I have a friend with two young children with CF. I'm going to ask her if this is an option for them. I am so excited for you all! Have a great week! I have been watching you guys since you started and I I always look forward to seeing your videos. Now I need to buy something from the Frey Life store.
Hey it’s great that you’re doing well with the new medication. I i’ve been a respiratory therapist for the last 23 years and have seen how these new medications have impacted the lives of many CF patients. I’ve been following you for the last couple years and have seen how these medications have improved during your online presence. I share your story with many of my CF patients here at Cincinnati children’s hospital, it’s very inspiring to them. Unfortunately there still a lot of work to be done I have several patients that can’t get the medication because of their young age and this has to change soon- I will keep sharing your story so others may be inspired as much as I am. Thanks nick RBSRT
Thankful that this medication is working so well for you. You guys are a blessing. God bless you both!
I don’t know if you have said this before but has your sister been able to go on Trikafta? I understand it maybe that your sister doesn’t wish to share that personal medical info but if she is okay with it then it would be interesting to hear about, like is Trikafta needed/effective/useful/safe for post transplant patients?
A good friend of mine here in the UK started trikafta about 4 months ago, he has been having a really bad time before this,so much in patient time, he also had transplant evaluation and was unfortunately found to be unsuitable for transplant. We were really at the point of knowing our time with him was short. Since Trikafta he hasn’t been inpatient, he has even been back up riding again, he used to compete at a high level with his horses in Dressage but had got to the point that not only couldn’t he ride anymore but he couldn’t even manage to get to the stables to see his retired horse. It’s been amazing seeing him start to thrive again and be posting pictures from the stables, riding and living!
Way to go girl. Onwards and upwards. So glad you are doing so well on the meds. X
Thanks Carolyn Walker! :)
It brings my heart joy to see the night and day difference in your life since starting this medication! You vertex can!!!! Happy 6 month tricaftaversary!!!
Hi Guys , wow 6 months , I remember the last part of July when you were hoping , so glad it worked. I think the biggest most grateful change is not having to see Mary cough so hard in the AM. I really felt so bad to see her suffer like that , and then be able to find a smile. There have been other areas of improvement as well , but none that really hit you like the no-cough or very little cough mornings you have now.
Thanks for the vlog / update , take care CU tomorrow on UR vlog !! Take care , Gary
Thank you Gary!
I broke down more than once during this video. I remember praying for you Mary back when you were struggling and feeling so bad for all that you had to pass through. Today’s tears are happy tears. I was so excited the day you started Trikafta knowing there was something that could possibly help, and now even more just seeing how well it is working for you.
Thank you so much Kimberley!
I see so much improvement in your health and energy compared with six months ago and it makes me so happy to see you and Peter
so much happyer and having more fun together! Congrats with your 6 month Trikafta universery,ik hope you will have soooo many more
to go...you go girl!!! X
Girl!!! Your voice is so much more clear!!! You guys are rockstars!
Yayyyyyy and yayyyyyy again!! Also, thankful for everyone who is fighting to make this available to even more people!
I am so happy for you and the CF community. This sounds like a miracle for many!
It’s so fun to see how well you and others are doing. I had a good friend in high school with CF ( in the 80’s) he lived into his 30’s which was a long time. I’ve also watched some videos from other patients who are celebrating for sure but also kind of freaking out because now they have a future that they didn’t expect and need to plan for it.
Im so happy for you two. It is so wonderful to see you guys enjoying life and each other. Big hugs and always in my prayers. Goodnight Ollie boy and Harry.
Thank you Linda! :)
I’m so happy for you! Happy Trikaftaversary! 🎉 Praise God!
Thank God for His blessings! So dang happy for you! I foresee a beautiful future ahead for you! 😘
People who never had to live with complex chronic illnesses often underestimate the importance of stability. Being able to reach that milestone is in itself such a huge accomplishment. So happy for you
Love you guys 💕 and my prayers are with you 💗😗💗💗💗💗 So thankful for you guys.
I FOUND YOU GUYS!! I used to watch your videos and then after being away from the internet for a while for medical reasons and coming back and having to make a new account my foggy butt brain couldnt remember the channel name. The last time i seen you guys you had just got the news it was time to talk lung transplant and now i find you a million times better and on this miracle drug. It's amazing! I cried watching this.
The difference Trikafta has made in your life is nothing short of miraculous. I'm so happy for you!
Thank you curly6509!
New Zealand just got approval for Kalydeco to be funded by Vertex here! I don't have CF but know people who do, and I'm a lot more aware of it after finding your channel, but funding for CF treatments here is miles behind the rest of the world. Prayers and all my fingers crossed that more and more gets funded here so people can experience the incredible miracle that you guys have!
My friend died before this was available. I wish this could have helped her.
Can’t remember the last time we actually watched you cough. Looked back at older videos. Oh what a difference. I’m so happy this is working for you. God is so good. ❤️
I’m sat here listening to you with the biggest smile on my face. Thank G-d for Vertex and Trikafta®️!! xxxxxxxxxxxx
So happy for you both! Happy six months on Trikafta!
I’m so so so so happy for you two!!! I’ve been following you for years and this made me cry seeing how much better you’re doing! Love you guys ❤️
I am sooo over the moon happy for both you!! God is so Good!! My husband was diagnosed with Hepatitis C which he was infected with while serving this country. They lied to him to avoid paying disability payments and said it was viral Hepatitis A which you do heal from. We fought for 6 years to get this straightened out. All of that to say they finally had to admit to the lie and do what was right. As soon as Jack found out what he had through a doctor I was working for we had to make certain lifestyle changes which were all positive. Because he took the initiative and did not just give up, when the miracle drug Harvoni was available through VA for free, he was cured!! Never did we think that a cure would come about in our lifetime. Because so many people, not just those who served were coming up positive for this, the powers that be had to sit up and take notice. This is why I love you both so much. We all struggle in different ways, whether it be health or numerous other difficulties but no matter what it is it all comes down to the Grace of God!! I am 67 and Jack is 72 and we have had 30 great years of marriage. Through our years our calling has been to adopt and rescue many fur babies, AKA dogs, that would have been euthanized just because they were not perfect. We just adopted another sweet baby a week ago. We were able to do this because his health was given back to him. What a blessing! Because of our lives and struggles it makes me pray you two also have the gift of years together and continued good health to fulfil all of your dreams! God Bless. Janet & Jack from Lake Placid, Florida.....our love to Ollie and the hair man!
Happy Trikaftaversary Mary & Peter!! It’s been absolutely beautiful to see the transformation!! Blessings absolutely everywhere!!! 1 thing I have noticed in particular, is u mentioning ur off to see.../ur going to.../...is coming over-something I very rarely heard u say prior to Trikafta-SO wonderful!
After watching y'all over the years my heart is bursting with joy for the both of you!!!! I keep telling people about Tricafta and what a miracle it is. God bless all those who worked on creating this wonderful drug. TFS and take care.................God bless.
What a beautiful testimony to the miraculous drug known as Trikafta.
I love that you have predictability in your life now that allows you to plan activities more than a day (or even a few hours) in advance.
And the difference in your mornings!! Truly a life-changing medication.
And it expands beyond just you.
Not only does Peter benefit, but your family, your friends, and friends that you haven't even met yet.
The ripple effect is HUGE.
Multiply that by all the CF patients who are experiencing similar health improvements....WOW.
This is the main reason I support Bernie , We need and deserve universal health care. So happy to see you doing so well Mary.
Favorite vlog since getting the triple combo! Happy Trfectaversary! You Vertex DID!!!
I'm so happy you're doing so much better with Trikafta! It brings me so much joy to see you doing so well. I'd love an updated morning routine now to see how much better you're doing in the mornings. And I'm glad you've been able to welcome Harry into your family. You're bringing me round to the idea of having a hairless cat. I'm allergic to all other cats.
I am so happy for you. What a blessing overall!!! You are blessed. Life is a blessing. Like waking up now is a blessing more than before!! Wow.
So happy for this AMAZING updates!!
Its so amazing how well your do so glad your dont cough that much hugs and prayers for a safe trip have fun
Watching the Trikafta change your life has made me cry so many tears of joy. This is AMAZING and beyond all expectations I’m so excited for this drug. Dare I say this without cursing anything, what’s next? A cure?
Happy Trikaftaversary!
Just so happy and grateful for this medication's ability to significantly improved your quality of life, and that of others. ❤️❤️❤️🤗
I have been overjoyed that your health has improved so much, and, even when you felt your worst and had absolutely no reason to think you'd feel any other way, you still plugged along, many people in the best of health can't do that when they get sick.
Just a little "housekeeping"; you know how people will abuse antibiotics for a virus, so I think a little clarity is called for. You took antibiotics because a cold left you open to a bacterial infection, which took hold, not because of the cold itself, right?
Have a Blessed Week!
So very happy for you Mary and Peter. God bless and prayers do get answered
My heart swells with happiness that this medication has done what it has done for you, Mary. Thank you for being you for YOU are so very special to me. 💛
Yes, that 2019 in review vlog shows the major improvements in a way that words could not express!! Congratulations on your 6 month trikaftaversary! I am so thankful for the way you have benefited from this amazing drug. I also have enjoyed hearing of the benefits that others have received. I hope that over time the cost of this drug will decrease and be affordable for everyone who needs it.
So happy for your little family. This is amazing!!
Thank you Lejla Letic! :)
HAPPY 6 MONTHS😁 I'm so happy for you both!
Thank you Amy Potts!
I remember being scared for you before you got it! Thank God for your miracle
Your smiles make me so happy!! I’m so glad your quality of life has gotten so much better!! ❤️
I'm so happy for the both of you that the quality of Mary's life has improved. :)
Thank you Lynn Rose! :)
Congratulations Mary!!! So very happy for you!!!
We enjoy watching your vlogs so much! It's so amazing to see the changes this medication is making for you!! You guys have such a clear joy and love for life and it is literally infectious.
Congratulations guys. God has blessed you and others with CF. There still Is good things happening in this life and the world.
So glad for you two. My daughter has the same mutations, but were in South Africa so dont think we we see anything like Trikafta for many years.
I am on TRIKAFTA going on 3 1/2 month
Brandi F. YAY! That's so exciting!!
I am so glad that you get to enjoy life more since starting Trikafta.
Thank you Elise Allen! :)
Happy 6 months Trikaftaversary Mary xx 👍😃💐
So happy for u. You look fantastic.
Thank you Sandy! :)
you guys should have a little celebration at the one year mark... with cake and balloons or something! So happy to see how this medicine is impacting your lives!
6 months already?? So happy for you ❤️
Thanks Hannah! :)
So happy your meds have given you a new life!