🏥 MY FIRST DOSE OF THE NEW VERTEX MEDICATION | THIS COULD BE LIFE CHANGING 💊
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- Опубліковано 4 жов 2024
- Vlog 8.2.19 - We've been looking forward to this day for years. I took the first dose of VX-445 Elexacaftor, a new Cystic Fibrosis treatment.
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I can hardly believe this day is here!
The Frey Life I am so happy for you!
Love you!❤🤗🌹
Please pray🙏 for me because tomorrow I have a lower lumbar MRI with contrast at Lower Umpqua Hospital and see an Orthopedic Surgeon on Tuesday in Portland at OHSU!🏨😘
So excited for you!!
We are all rooting for you both! One step at a time....!
The very best of luck, Mary!
"I've gotten through 100% of my bad days so far." -Mary. Love that!
This needs to be put on a shirt!!
I actually said something similar to this when someone i knew was suicidal, and they realized they could get through it. Seems obvious, but it is poweful
@@lexiwagner4541 Totally agree. It's a good reminder.
I need that on a shirt
Getting through 100% is better than the alternative.
I've asked my husband to come watch this because we've been praying for you each evening and he prays without having ever been "introduced" to you, but this vlog gives us clear prayer points-- an easier morning, no discernible side effects, less mucous, fewer IV sessions, and most importantly-- feeling better. May it be so.
I love that
Yes, in Jesus's Name, Amen!
Wendy Lawton Amen
Amen.
May it be so.
Mary: *swallows pill*
Peter: "Do you feel better?"
Above all else, you two have taught me to smile and laugh through tears. I love and appreciate you, you are in my prayers. 💖
SCJ7100 thank you for your continued prayers!
The tears came to my eyes when you took that first pill! Feeling better in 72 hours! Oh Mary, I sure hope you experience that miracle! 💜
Thanks Ann!! :)
My Mom's best friend, she had a son who had cf. This was back in the 70s and 80s, he lived until the age of 12. He, at his young age, said he wanted to help do what could for the cure of cf.
As he lived, he did trials and then he said he wanted to donate from his body whatever scientists needed to see what could help the research of potential helpful means for cf patients then and in the future.
I pray for you, Mary and all of those who have cf, that this pill will help you and many others.
Do you know if he ended up donating his body for research?
No, he didnt. I believe his liver and lungs but I was very young when he passed away and don't know if other organs were donated to science.
Rebecca what a brave and generous little boy! And thank you for your continued prayers!
He truly was! I only remember bits and pieces then of course I was about him as he was in life; my fave memory, he put me on his shoulders (I was 3 or 4 and he was 9 or 10) and took my brother's hand to take us to the park. It sticks with me to this day.
I appreciate that memory and him giving it to me so much because I now know he did something that would eventually stress out his body.
I never saw much of him because he was in the hospital a lot. But he wash a blessing and I will never forget him.
Just started watching and I'm already tearing up. This is incredible ❤️
Same😭
Me too.
Betta...Me Too!!!
This is so motivating to see - I graduated this week and am starting my PhD at Oxford's Medical Sciences division on one of the teams that's related to this new medication, and seeing how much of an impact this can have really helps to make all that I went through to get my undergrad done (I'm a wheelchair user from some chronic illnesses and so it took a while...) really worth it
Hannah Smith Congratulations! God bless you!
Hannah that's so exciting!! Way to go!
We're hoping and praying my daughter when she turns 12 can start this medication. I've heard such good things about the results of the study. We're hopeful.
Trekkifulshay just said a prayer for your daughter. God bless you.
I’ll pray too!! How old is she now?
And here you are, two years later- running towards parenthood!
😍
How GREAT is OUR God????!!!
Cried when I watched 2 yrs ago... And crying rewatching today knowing the miracle that has occurred 💜
Right?!?
I wish I could give this video a million likes! My eyes are filled with tears, I have goosebumps, I just am so happy for you. AHHHHH!! Mary, we love you here and I know everyone is sharing in this VERY joyful moment.
Me two
Seeing the new vlogs with getting the babies room together makes this episode THAT MUCH MORE EMOTIONAL!! God had continued to bless you two!!
Congratulations Mary go into this with an open mind and know that God has you I can't think of a more deserving person
This is incredible!
I'm a high school student, and I had work experience just a few weeks ago at vertex pharmaceuticals, where they mentioned this therapy
It's so amazing to see this for me, as I've followed you lovely people for many years!
So ispiring for me in my studies and career
Prayers for you two and Mary's health as ever :)
Prayers for you, Peter and Ollie. Best wishes for this medication.
We're all in this life together. 💖
Thank you Lin!! :)
This medication has helped my sister (she was on trial) so so so much and I’m praying it does the same for you!💓💓💓
Thanks Natalie! And I'm so glad to hear it helped your sister so much!!
Today we celebrate God, Mary, Peter and the gift of Hope. 🙏🏻❤️🙏🏻
The title really surprised me!! Praying for you guys, can't believe this day finally came. Crying hopeful tears 💜
I screamed out loud, "Oh my goodness, she got her medication!!" Everyone looked at me.
We are all in that open palm, together, with you and we will trust and pray.
2 seconds in and I thought my video was tripping. 😂😂😂 I’m so excited for you Mary.
Peter must be the best man and husband in the world. He completely supports her in everything, he is so unselfish and kind.
Just the title of this video made my heart skip a beat! Love you Mary and Peter!
how are mary's eyes so good at crying? she is just so beautiful even with the tears! it's so sweet
so if it slows down mucus production, it could potentially allow for longer periods between antibiotics and less frequent sinus surgeries.
“I’ve gotten through 100% percent of my bad days.” Simple but powerful sentence. Blessings.
What a monumental day for "The Frey Life"!! So excited that you have the opportunity to use this drug and can certainly empathize with your mixed feelings!! God's will be done. Hugs and prayers!!
Omg that "you're crying too?" Was so sweet sounding yet so simple .
We're In it together Cyster! I'm waiting until the FDA approved it then when I turn twelve in January
Best of luck! I hope you'll be eligible and that it will work really well for you 😊❤️
Prayers for you! Keep us posted!
Oh my goodness. My mom and I are both sitting here crying in front of our TV, overjoyed that this day has finally come, a day you so deserve Mary!
I am so excited for you!! I cannot wait for my team to call me that they have it as well for me to finally give it a try. Prayers for little if any side effects 💜💜💜💜
God bless you 🙏. Annette is my sister's middle name.
Prayers for you too!
Here we are 3years in and your life has changed so very much. What a beautiful blessing!
Makes me so happy to watch this now ❤️
Oh Mary, I haven't even finished the video - got to the part about the 72 hours could feel better and I just teared up and asked the Lord "please have mercy and do this Father!". Praying friend!
I wish you the best of luck. Back in 2017 I got a life saving treatment for myself. I am thankful for it every day.
Jo Ann I'm so glad to hear you got that treatment!
I add my faith with all of The Frey Life Family who is praying with you.
Well... there is not a dry eye in my house this evening. You are an inspiration. Im waiting for drugs to help me that are in the final testing stage so I totally get where you are at . God bless you . xxx
Hi Mary, I am crying with you and sending love and prayers all the way from the UK. I am a cancer Survivor and i am with you every step of the way. The lord is with you and won't let you down. X
I'm so happy, you're amazing. You're hard work is unbelievable.
Thanks Service Dog Sylvia!
Praying for you Mary. Thank you Jesus for letting Mary be part of this trial. I know God is able to go beyond what that medication can even do. Praying your Life improves 100%.
This is so exciting to see you finally you get to try this medication. I cried when you cried Mary. Send hugs and lots of prayers to you and peter and Ollie boy. Love you all!!!🙏🙏🙏🙏❤️❤️❤️❤️
Mary, 7 years later you got your first dose, and 3 years later... You have a child!! Lung functions up and up, your health is doing amazing, you did it!!! The odds weren't all in your favor but all is well now 🥰 I'm so happy!! It is 04/10/2022 today for me and I'm crying with you right now
Love you guys . I have to mention something . My dad has serious heat disease . It all started at 49 yrs. he is 90 now.Due to the effectiveness of new medications. I don't need to go into detail . His life expectantly initially wasn't all that great.
Due to all the changes in medicine my dad is a very active 90 year old man . He is going on vacation tomorrow to visit family in Maine .
My dad still has the same heart condition but the changes in medicine have left him a heathy 90 year old😀
Carolyn that's so great to hear about your dad!!
@@thefreylife It is amazing what medicine can do . My dad also did everything he could do to help . I never dreamed he would live to be ninety . He is very active . I have so much hope for you guys . When my dad was 49 he couldn't walk from the car into a store . He had so much heart pain . At ninety he exercises everyday . My dad is a practicing Christened . Reads scripture daily . I have said this before . You guys are in GOD's hands and HE won't drop you .
First they move to North Carolina and now 2 or 3 years later they are adopting a baby . Peter is one of the most amazing people I have ever met . He's a pastor which I respect so much, and the love he has for Mary is unconditionally literally. Wish them all the best with the new life they have been given by christ and they deserve every bit of it. God bless the frey family
I’m crying too. I pray it works. I love you guys so much. Keep up the good fight. 🙏🏻💟
Goose bumps on goose bumps, so happy for you that you were approved for this new med. How great is our God? Beautiful home, beautiful marriage, beautiful people and beautiful Ollie!!
Oh mary sweetheart I’m crying with you. This is super awesome, I wish you all the very best with this new trial. And can i just say peter has got to be the best husband and career of all time. He’s just amazing; your both amazing. All my love from the uk 🇬🇧❤️🙏🏻
Big hugs to Ollie too 💙💙🐾 🐕
so true, such a precious couple and Ollie boy too :-)
Praying for good results. As a retired nurse, I worked with many CF patients in my early nursing days. You are very inspirational and you are in God's hands, but in all of our prayers!
I am so flipping happy for you. Im paying it works not just for you but for everyone with cystic fibrosis. I cant wait to watch your progress
There are so many different CF mutations and each requires a different type of this kind of medication. So this will only work for her type or maybe a small group of types. The drugs Orkambi and Kalydeco already exist for certain other types and have been so helpful for many people. It's great to see these drugs being developed but for people with rarer mutations of CF, there's far less chance of drugs being developed but I do hope there is miraculous treatment available suitable for everyone with CF some day! 😊❤️
Thank you Jasmin!!
So happy for you Mary! My family and I continually pray for you and your family. It is wonderful to see you be given a beam of hope, as you are definitely a beacon of hope for many of us.
OH MY GOD!!! I'm so happy for you!!
I've been wathing you guys for 3 years now and I was sooo looking forward for this!
God bless you Mary!!
What a happy surprise I got when seeing the title of your vlog. Thank you for sharing this incredible event!
Finally , I'm in tears I know what it's like to have an illness praying for positive vibes, ur a woman who is so strong thank u for helping me not feel alone
So HAPPY that you have one more tool in your tool box, and God willing it could be a tool that lessens your need for some of your other tools!!!!!! We are so blessed to live during a time where science is making great gains in treating major chronic medical conditions!!!!!!🤗🥰
Watching this again 3+ months later, after seeing the incredible transformation that you have experienced Mary, has been so uplifting and encouraging to my heart. I feel so blessed by Jesus to watch this journey unfold and to know that changes are coming and improvements are happening. Wowowowowowowow. What a cool thing to see.
I cannot believe how much unconventional love I have for all 3 of these people. (Yes, ollie is a people) I've been with this family since their plane ride to Scotland.
My heart is singing rejoice in the Lord. And I love you all, so so much.
Yup, I'm balllllling♡
Happy Sabbath everyone!♡
Mary, good luck my love, I'm praying hard with intercession prayer.
Do you mean Scotland? I don't think they've ever been to my country.
Praying hard too! 😊🙏🙏❤️❤️
@@sorchaoreilly2633 yup, Scotland ♡
I’m so sad that your leaving Massachusetts mary. You and peter have been my strength all of these years. You’ve helped me through the loss of my mother.
Praying this is a life changer in a GREAT and AMAZING way! ❤️❤️❤️
All I can think of is how beautiful this hope is. We've watched you health decline for a while and with the reality of transplant in your near future, I'm sure you were desperately needing this dose of hope. Especially today, with the two terrible shootings that just happened, I see this and it gives me hope. Mary, I will keep you in my prayers. 💗💗💗 Wishing you both all the best!
Tears of joy for you! Prayers definitely being said. I wish you the best possible outcome from this new medicine. Power of prayer never ceases to amaze me.
The pure hope in your eyes. Its wonderful ❤
Congratulations Mary and Peter! You got this Mary!
Thanks Michaela!
Prayers that your medication exceeds your expectations!
hi mary peter and olie i am so happy to hear you are allowed to take this med i hope your lungs behave aw peter you were crying too i am crossing my fingers and toes
Oh Mary, I am so hopeful that this new medication is helpful and provides you with relief and a more comfortable life quality. I am praying. Love you all in the Grey Life!!!💝
Dumb autocorrect 😡 Frey Life!!!!! LOL
Thank you so much for sharing your journey and allowing people to get a glimpse of your life. What a gift. Praying for this new season and the joy in the midst of it all. There is light in every day!
crzyswmr thank you for your continued prayers!
So happy for you! Praying!
Oh my goodness this is such a beautiful surprise !!!!😊 I have been reading about this for the last week and was just hoping and praying you would be able to take this medication!!! Ohhh I'm crying with you !!! 😭
Brought tears to my eyes and joy in my heart. So happy for you. I love the comment Mary made, “I have survived 100% of the days so far” God bless
I’m so excited for you, happy hopeful tears right along with you! Here’s to seeing where this new journey takes you, praying for the absolute best and sending so much love ♥️♥️♥️
When I was in high school I had a friend with CF. She passed away when she was 17 (in 1987) Back then the life expectancy for CF was around 17 years. You have already lived more than twice that long, and you have had a much higher quality of life than she could ever hope for.
They are making advances all the time. With luck they can keep extending the life expectancy for CF and you'll be the energizer bunny.
I’ve heard so many amazing statistics on that medicine. I am praying 🙏🏻 hard that this pill gives you amazing results too. ❤️
Thank you Kimberly!!
My son began Kalydeco at age 2 (he was approved on his 2nd birthday). A year in, he had normal liver function for the first time in his life. Two years after beginning it he has begun to have mild to moderate production of pancreatic enzymes. I am anxious to see if in another year he will no longer need pancreatic enzymes! I'm so happy for you, Mary. I am praying this medication will have no side effects and will do a miracle in your body! Praise God from Whom all blessings flow...
I started 2 new-to-me meds today too. Fingers crossed for the both of us! 🤞🤞
I’m so excited you, Mary! My grandma used to say when those thoughts about getting worse and not being able to control it, she used to say don’t borrow trouble. Regardless where your at, you’re a fighter and a survivor. Don’t forget how strong you.
I am crying for you Mary...omg
Sending LOTS and LOTS of prayers that this works for you...
LOTS and LOTS of love to BOTH of you from New York💕
Prayers for positive results and you feel better in 72 hours
💜 praying your fevers subside Mary Frey with all your might and heart pray hard to God in Jesus name that you do start feeling better that will work God knows your heart but pray with all your faith 💜
Thank you Glendora Living positive with Lupus!
Re-watching this Feb 7th 2022. So surreal how far you have come and that you've now been blessed with a beautiful baby boy! God bless The Frey Life!
You have helped so many others with your positivity through chronic illness and your ability to love the Lord & spread his word always.
This sounds so wrong but you guys crying is so precious 😭😭💕♥️ best of luck to the both of you, from all the way in Minnesota ♥️💕💜💗
Laniyah Thornton Best state ever.
@@rheagalarneau1366 when me and my family moved from a place that wasn't so nice (Cleveland Ohio) we were so confused on why everyone was being so nice😂 it's also very pretty here 🤗
I cried when you said “am I gonna feel better?” Oh Mary I pray that this works and things start to improve for you. The idea that you will eventually need a lung transplant scares me beyond belief. 😪May God’s blessings continue to shine down on you now and forever. Lots of love and hugs.
Thank God you’ve been given this opportunity! I’m so grateful 💜.
Oh Mary, I pray that this works way better than any doctor could even imagine!! I pray for no negative side effects and so much health and happiness for you and Peter! You deserve all the happiness in the world and so many good days!
So excited for you! I'm crying within a few minutes of watching this!❤❤
DONT CRY!!!!! you make me cry EVER TIME you start crying!! Always praying for you ❤❤ God has your path paved, just keep following it with Him by your side to a brighter future. ☀️🌈 I'm proud of you guys.
CONGRATULATIONS Mary!!!
Can't wait to see what happens. Prayers for you my darling. So happy for you both.
MARY I have finished watching now and I am BAWLING 😭 I am praying that this new med makes a huge improvement for your health and quality of life. My best friend died of CF four years ago. Shortly after that I found your channel and I have been watching ever since. My friend Anna never got her chance to try these treatments, I am so glad you have got this chance. It could very well change your life and I am praying and keeping everything crossed❤️
Thank you Sarah! And I'm so sorry to hear about your loss!
I'm not a prayer person but my thoughts are with you both. This med is very important to both of you with it's potential life changing quality.
I am surprised at how attached to both of you i have become and to your journey. So, here is to hoping for minor or no side effects and to the improvements you hope for and for those beyond your wildest dreams.
Thank you Doreen!
So happy for you!!
I am so happy for you guys, I'm tearing up like mad. I will be thinking of you and sending positive thoughts your way xxx
Mary, I could listen to you all day. My only hope is that you can see yourself the way the world sees you, you are truly amazing. Big prayers coming your way.
Oh my GOSH Mary!!! I'm so happy for you! I thought you weren't going to get it until September at the earliest!! :D
This popped up in my feed in 2021 and just noting....it did totally change the trajectory of your health! What a miracle.
I really hope this medication helps you lead a more normal life. I’ll be praying for you. Love and hugs from the U.K. xxxx
Thank you Geraldine!
Its incredible🥳 I'm so happy for you guys 😊
I’m sitting here crying happy tears for you. One of my best friends has CF and watching her fight daily is heart wrenching. Prayers that this new drug helps you.
I hope so very much that this works for you both. The live you both have for each other is incredible.
Don't cry Mary you are going to make us cry. We are all keeping our fingers crossed that your body loves it. The new house is awesome.
God's got this Mary girl!!!
I started crying the minute you started talking. I am praying this saves your life. I look forward to your videos and when I have an Asthma attack, I can here your theme song and I am reminded about faith and perservering. God be with you as you embark on this new drug. Praying no side affecks, no allergies.
I hope✌ to praise God🙏 soon after this pill makes you feel better!❤ Love to you, Peter and Ollie Boy🐶 #davesandersstepdaughter 🐞
Journey to the Quiet With Cindy just subbed to your Channel
Journey to the Quiet With Cindy I just subscribed as well