Brilliant vlog - lots of medical info but explained so well. For me it has to be all the long medical words.. Abridge sounds brilliant. I guess you need permission to record discussions but sometimes there are signs to not record so don't ask - at least in the UK recently Vlog emoji recap 📽️ 🏥😷🌉👨⚕️👩⚕️⚕️🙆♀️💊❓🚗🍛😷💊🌌🐱🐾👋
Yeah I think doctors do that jargon on purpose. Anyway I don't buy into just anything a doctor says as well. But that's me! 🤔😏Gotta go in on wed for a bone density and not happy about the germ possibilitys at the hospital. That bridge thing sounds like a good deal tho.
didn't watch your clips for a view month my lungs went down so quick i had only 11% lung capacity when my call came and i had my double lung transplant and i'm doing much better.I'm 46 so recovery was hard but i made it.Great to see you guys praying for you always much love to you both!
Chicki A glad to hear your transplant and recovery went well, even though hard! Way to go - the progress you're making is so exciting! Keep on pressing on friend! 💜
After a long talk with my Dr he was pretty reluctant to allow me to use that app during my appointment, but couldn’t give me a good reason why and I told him but it’s only logical that they document everything with my appointment why can I and it was at that moment he allowed me to use the app. I’ve been using the app for several months now and I was able to point out something that he contradicted himself on. I save myself a lot of pain and heartache through false promises with a treatment for my spine.
Michelle, we're glad to hear your doctor ended up agreeing to allow you to record! It can be so frustrating when they aren't open to it. Some tips to help make your case: - Offer to capture just specific parts of a conversation, like follow instructions or particular medical terminology - Explain that it's just for personal use - Show any prior examples you are comfortable sharing. Sometimes once doctors see the app's output, they understand the value to you! Anyway, we are always here for support -- feel free to reach out to us anytime at support@abridge.com.
I stopped my ivig 3 months ago and started the hizentra, it is great, my husband and I do it on Sunday nights in my stomach, I do not feel the needle or medication, do not have the headache as I did from the ivig. You can also do it in the legs or back of the arms. I had a nurse come to the house the first 3 times to show us how.
Mary do you also have allergies? Just a thought because this is your first spring in the South. Our pollen can fall like snow. The yellow covers everything. I wondered when you had your windows open the other day. Your surfaces in your home can turn yellow from pollen. It is crazy down here. Just a thought. Please stay safe 💗💕
Thank you, Mary, for telling us about the ABRIDGE app! I used it for the first time on Friday at my cardiologist appointment. Turns out there was a new diagnosis, new meds and lots of information I would have been hard pressed to remember without it. I have noticed that it doesn't always transcribe all words correctly. So I would recommend that you read the transcription through as soon as possible after the appointment, play back those questionable sections of the conversation and make any needed edits. It's easier to do when it's fresh in your mind. Also, know that in California, Delaware, Florida, Illinois, Maryland, Maine, Montana. Nevada, New Hampshire, Pennsylvania and Washington, you legally must get consent from the doctor before recording the conversation.
Thanks for your support -- we are glad the app was helpful to you, and sending many positive thoughts your way. The transcription works perfectly in ideal acoustic circumstances, but healthcare conditions are rarely perfect. Factors like quality of audio signal, overlapping voices, or heavy accents may skew the transcription output, but the technology will get smarter over time as people correct any erroneous transcriptions. Thanks again for your support! 🙏
Thank you! I just signed up for Abridge. Since I just moved to VIrginia I’m looking for a new pulmonologist and a hematologist oncologist. This will help a lot. ❤️❤️❤️
Oh wow! I can not believe who your sponsor is today. I had planned to ask in the comments about this app today and hope someone could tell me the name of it. I'm having cancer treatment and my memory is pathetic, even at the best of times. I really need this app. Thankyou so much for letting us know it exists.
I couldn’t recommended Abridge more highly!!! & yes, it is available outside the US (I can get it in Australia). My last appointment was immunology as well-my immunologist spent nearly an hour with me! Abridge handled it! (It did take a while to upload/process!)-she even asked more about Abridge & I told her about it!! Brilliant!! Such a blessing of a tool!! (I did see the app had a few issues with some immunological terms used-I didn’t know u could edit it!! I’ll have to go back & do that!!!! SO AWESOME!!!)
Aww, thanks Rachael -- your support means so much to us! If there's ever anything we could do to better serve you, please don't hesitate to let us know at support@abridge.com. We rely on our users' feedback to help us prioritize what we work on next. The editing feature is relatively new, but the technology will get smarter over time as people correct any erroneous transcriptions. Thanks again for your support! 🙏
Definately will be downloading and trying this app I have a consult with oncology at the end of the month. Please keep me in your prayers. y'all are in mine always. Stay safe out there
RolyPolyPanda Heads up: I wanted to use this app at my orthopedic surgeon’s post-op visit and he asked me not to. I had printed him explanation of app and he took that, but still did not want me to use it. Someone told me I had to check with my state laws about recording someone. I would be interested in hearing how you make out using it.
My experience with Abridge app: Six months ago I went to my orthopedic surgeon for post-op follow up visit. I had printed out explanation for Abridge for my surgeon. However, he asked me not to use it. I commented on this online( I think it was on “Roll With Cole & Charisma”- where I first heard about it). Someone messaged me and said I should check my state laws about recording someone. The doctor who created it also messaged me and asked if he could help. At this time, I decided to drop the subject. I would be interested to hear about other people’s experience with the Abridge App.
Charlotte German I was wondering about that as well, some doctors may not ant to be recorded and if you do it with out their knowledge that could leave you in hot water! I would be to shy to ask probably.
You're paying them for a service. You should be allowed to do what you need to do, to ensure you're able to properly comprehend the medical advice being given, so long as it isn't at the expense of other patients' privacy.
In California, Delaware, Florida, Illinois, Maryland, Maine, Montana. Nevada, New Hampshire, Pennsylvania and Washington, you legally must get consent from the doctor before recording the conversation. I didn't know this at my first appointment. I hit the record button before the doctor entered and slipped my phone into a pocket on my purse and left it unzipped. No one knew I was recording. I forgot about it myself until I was back in the car. It did a great job even hidden away. I was recording because I don't have very good recall anymore and it was important information I was getting that day. So I will continue to do it this way when needed. Just know that any conversation recorded without consent in these states cannot be used in court for any reason.
Im so glad ur appointment went well. I have a lot of different medical conditions which means I have to attend a hell of a lot of clinics and appointments. Because of all of my appointments I no I would benefit from an app like Abridge but sadly it’s not available in the UK. So I hope that as it gets more popular it is rolled out to other countries. If anyone no’s of any similar apps that I could use I would be really greatful. As always sending you loads of hugs and love from me over here in England. 💙💪🏻💜
WOW!! What an amazing piece of technology that has a huge potential to benefit so many patients and caregivers. Also, for Abridge to be a free phone app is a huge bonus!! 🤗❤️❤️😘🐕🐱
When I was going to the doctor frequently to figure out what was wrong with my body (I still don’t fully know or have a full diagnosis) I did a medical journal that I hand-made and organized. I do wish I would’ve know about the app when I was trying to manage everything. It honestly could’ve put many pieces together that still need to be put together.
YES! It's one reason I like my husband to come along, as so often I am thinking about one thing and the doctor is talking about another thing. My husband helps me with questions and everything... and we can talk about the appointment after. That allows me to call back if I find I have any questions still.
@@kittymervine6115 I agree, having another person & the abridge app is the way to go when it comes to appointments - so glad the app has been helpful for you as it has for us! Hope you have a great rest of your day! :)
Hello you two, glad to see you got somewhat good news at the doctor. I wish I could find a new doctor who was Great with allergies and asthma. I used to see a pediatrician for my allergies and asthma up until about 7 years ago. He was the best allergist and absolutely the best here in Cali where I live for Asthma. Now that I'm going from insurance to Medicare it's a little scary and I haven't had a good doctor for about 5 years now. I have a great doctor at the walking clinic who has done pretty good for me but after you turn 65 you can't go there anymore if you are retired from the school district since it is only a school district clinic. This asthma of mine hit me like a ton of bricks on Friday night and thank God I had meds for my nebulizer and my inhaler, 2 asthma pills I take every day. I don't know if my beautiful little 7 & 5 year old granddaughters gave me their virus they had which really reared their asthma, they were on inhalers and nebulizer also. Grandma is care taker when their mom has the and sometimes when their dad has them so they can work. I told my daughter if I feel this bad then just think how those girls must have felt. Mary I think about you a lot even though I'm not sick like you are I know what it feels like not to be able to breath. Very scary thing. I pray for you all the time. My two granddaughters love to watch you and Peter and also we can't leave out Oliver and I have shown them Harry also. Peter is an absolute Gem, I can't Commend him enough for being there for you and all he does for you. Prayers for you both. Take care.🌞👍💗
I tried Abridge today for the first time and it stopped recording when I accessed my notes that had questions for the doctor. My suggestion is to try playing with it before needing it for an appointment. I missed nearly an hour of conversation for an upcoming surgery that my husband now can’t listen to. 😢
twdobesh, oh no, we're really troubled to hear this. 😢 Would you mind emailing us directly at support@abridge.com with the name of your notes app so we can look into this further? We do extensive testing to make sure that the app works in different circumstances, and we'd love to learn more about what happened so we can fix any issues going forward. So sorry for any inconvenience this may have caused -- please do email us so we can work with you to make things right.
Great question actually! I have many doctors from other Countries and even I have to ask them to repeat something I didn't understand from time to time. NOT complaining at all, I LOVE my doctors!!! Maybe if the app can't pick it up, you have to type it in like a text?
My doctor has a pretty strong accent and it did a surprisingly good job overall. I would recommend that you review the transcription as soon as you can after the appointment. If you find anything questionable, you can play back that section of the conversation and edit the transcription while it's fresh in your mind.
One way to find out is to try it on a regular Doctor's appointment, which I am going to do as my GP is Philipino and you need to listen closely to what she says.
I’m also on subq ig 4 needle areas...once a week! it is easy but can be a bit tender. You will do it on your belly or back of the arms...I think your sister does subq right??? So happy you are doing better! You will have no problem dealing with that! Lots of love Marci in Mass and I miss you in Mass!
I agree the abridge app is great although I have not really used it yet. My hubby did already and while it got most of it right, there was a few funny mistakes. But once you started listening, you could see what was said. I didn't know you could edit it. Very cool. Keep up the great work.
Thank you for sharing the information about the abridge app. I have been meaning to look up your previous video on it. I have cancer now and soooo need this. My body likes to have rare reactions too. I know how you feel.
Thanks so much for the info about the App!!! Awesome as this is something that will be perfect for me! Love watching you both and sharing your lives with us all! I have Cf as well and can really relate and learn as well.... Thankyou!
I feel relieved. I have been feeling anxious about this for you. I really felt like it helped you before and I want you to have the benifit of both the new magical medicine, and IVIG. I hope the subcutaneous works as well as the intravenious did.
Wish I had that ap a few years ago it would have made my life so much easier just last week I meet a new Dr and the Dr told me things that no had no clue about and new words . Now I have it downloaded thank you
My sympathies! My B.S. is in Microbiology. I had to take 2 semesters of immunology. AKA the worst year of my life. How fitting that I end up being immunocompromised. Good joke, God! 😂
I might be starting SubQ too! I just talked to the rep about how much faster it would be for me and there's a trial I maybe can do. We will see. I'm so glad your prayers about this have been answered.
Huge need where I live (WA state) I am a nursing student and I feel like we as students have been left out of the consideration, my clinical rotation sites have withdrawn our welcome to study and we are blocked from ordering supplies to practice with 😵 hoping and praying this passes soon! Love you guys been following for many years!
I did my subq sites in my thighs it was more comfortable for me than my stomach. I did get itchy and small rashes from it at my sites but it disappeared within a few hours. Make sure you don’t prime the tubing too much so that the IG goes out the needle because then it will hurt going in!
I did subq for about 6 months but needed 4 sites but it caused so much scar tissue which is a problem bc i need space for my pump and sensor and all the stuff
I did subq ig for a couple of years. I used my outer thighs and belly. I had to have 5 needles each time. The first couple of times is pretty wild with the big red welts. I used Gamunex. Independent is the way to go. I got cut off from using my port alone as well. Sigh.
Still not available in Europe...how long does that take bc I just recognise you were talking about that app last year. I tried to contact the app but I never got an answer...that´s pretty sad, bc I have so much doctors appointments and in Denmark it´s ok with recording appointments. So I need something that works out and is safe from others to see or here what´s been talked about... But thanks for giving all these informations to us
I heard you talk about Bridge before. I did get the app and was going to use it on my next clinic visit. It was a no go, my Dr. Said it could be edited and used against the doctors and clinic. Hmm, so I wasn't expecting that at all. I thought this was a great tool to remember important information at the visit. But anyway, glad your physicians were not against it.
We're so sorry to hear about this! This is technically not true -- while we permit you to edit the transcript, the audio is always preserved as ground truth. It can be so frustrating when care providers aren't open to it. Some tips to help make your case: - Offer to capture just specific parts of a conversation, like follow instructions or particular medical terminology - Explain that it's just for personal use - Show any prior examples you are comfortable sharing. Sometimes once doctors see the app's output, they understand the value to you! We are always here for support -- feel free to reach out to us anytime at support@abridge.com and we'll do whatever we can to help!
I have the app and I used it a few months ago. I didn't know about the new features, which is great to know because there were some conversations I had that the computer really didn't get right lol. They were funny though.
Thanks so much for the feedback! We've had a few funny transcriptions in our own usage of the app, but sometimes it makes sense when you replay the audio and hear what was said. Transcription quality is also affected by the quality of audio signal, but the technology will get smarter over time as people correct any erroneous transcriptions. Thanks again for your support! 🙏
Mary Kowalski - don’t be scared... it’s just like the flu.... most people will only have mild symptoms and just like flu, people with underlying conditions COULD be affected more severely. The precautions for COVID 19 are the exact same as the precautions we should all be taking, all year round
@@kecrn4132 Actually, while I see you are an RN, I've been paying attention to what virologists say and it has a death rate much higher than the flu. It is on the verge of being a pandemic (Italy closing it's borders today)and since we don't have enough test kits in the U.S, and we are not handling it in a coherent way (as S. Korea is) I don't think it will be contained anytime soon. With Mary's vulnerable lungs I just wanted them to be extra careful.
Mary Kowalski - it actually doesn’t exactly have a higher death than the flu- CDC (I’m not American but keep abreast of both) says that “as of March 9, 2020, the flu is showing much more of an impact on Americans than COVID-19”. Influenza affects way more people and cause more hospitalizations..... for instance, say a total of 100,000 people get influenza, while only 100 people get COVID 19..... of those 100, 7 die and of the 100,000 flu people, “only” 70 people die.....so as a percentage, yes, COVID 19 has more deaths.... but, overall, we are much more likely to get influenza because the amount of those infected by influenza is much much higher. We DO need to be taking the exact same precautions ALL the time- particularly for those around us with suppressed immune systems (I am one of those people.... and I did get H1N1 in 2009 during that “epidemic”..... so I get the fear etc, but it has gone way overboard).... I have to go but I can send you an article I received yesterday when I get back
Hi Peter and Mary, I know this is an older video and you probably won't have time to reply but if you see this could you maybe answer this question in a future video: Now that Mary is doing SubQ IG, is there really a need for her port anymore? Like could she technically get her port removed?
I get needing treatments like ivig there's a 99% chance that I'm doing iv iron I was at like a 5 last time I find out my most recent blood result next week there is only a 1 present chance I won't need the treatment I apparently can't observe iron
The Frey Life thanks for the reply!!! Sub Q is another world of self care! But it’s pretty easy and lots of people do really well with it. Immonglobulin, girl you’re gonna be walking- running laps! 😉☺️ praise god for vertex and the doctors that are willing to let you do care at home and immonglobulin!
Lol! When you were talking about your body it made me smile because at my dialysis center it is well known among the technicians that I am that patient that all the weird stuff happens to! And my body is weird too! Lol! It's good we smile and laugh about it because otherwise we'd be scratching our heads all the time! Lol! I am very familiar with sentences that start with "I have never seen that before..."
Just the abridge app transcribe into text by chance? In other words, is this an app that would be helpful for hard-of-hearing people to better understand appointments?
For us who do not have insurance and need ivig, what to do? i'm going in to the circles like a nightmare. i have CVID and any advice would be helpful. Do you guys know what is the best option and afortable insurance for that.
Hi guys! I'm 18 but I've been doing SCIG for 5 years now (I have CVID) - so much better than IVIG which caused me a number of side effects and messed with my levels. If you ever have any questions don't hesitate to ask them:)
how you managing your CVID, im extrimly ill with pneumonia, alergies and lung issues from lack of igg, iga,igm without insurance iin PA, Me and my doctor are going in a circles for not having chance to get ivig, i got my last dose few months ago in emergency room and do you know nest option to get inshurance and what kind of insurance will cover
Hi Guy`s , Mary , thoughts and prayers all is well. Thanks for the app !! , now that I have a cell phone I can use it !! , but first I need a new doctor !! , ( it`s always something ) my doc. retired last Dec. Now there is that app , when I find a new doc I can use it !! Strange , last night and this AM I felt the exact way you described , I had to go out for a while , but all I wanted to do was go back to bed. I was not coughing , but congested and thought O__ great == blah. As of 3:10 pm , I am ok , slightly congested but I don`t feel as bad as I did. weird !! , good , but weird . Thanks for the video and the link , have a great evening , stay safe and take care , Gary
@@thefreylife Thanks guys , I am feeling better , it`s like everything slowed down , weird . It was like I was catching something but so far it decided to go somewhere else !! :) I was checking out the website for the app and up here we are required to ask the doctor first , kinda makes sense ;) Not too handy with a cell yet , just got it a few weeks ago , so I am still learning !! LOL , Glad all is well for you folks , so really scary out there with COVID-19 , I wonder if it would be this bad IF the media never mentioned it. The mind can make one as ill as the nastiest bug !! , have a GR8 night , take care , Gary
I believe that knowledge is powerful especially when it concerns your health. Thank you for sharing. Blessings from above to the TricaftaKid and her Sidekick!🙌👩🏼👨🏼🦱
I think I told you before that my primary care doctor would not allow me to use the Abridge app in his office because of the privacy act. I explained that a physician invented it and that it was a secure app, but he said no. Did you get permission from your doctor before starting the recording? Just wondering.
While recording is becoming more commonplace, it can be so frustrating when care providers aren't open to it. Some tips to help make your case: - Offer to capture just specific parts of a conversation, like follow instructions or particular medical terminology - Explain that it's just for personal use - Show any prior examples you are comfortable sharing. Sometimes once doctors see the app's output, they understand the value to you! We are always here for support -- feel free to reach out to us anytime at support@abridge.com and we'll do whatever we can to help! Our CEO & co-founder (also a cardiologist) is also happy to call on your behalf.
Abridge thank you so much for replying. If my disease gets more complicated, I will ask him again. Fortunately I can understand everything at this point.
If you know and don’t mind asking it, will getting the Immunoglobulin via sub q mean that it affects your body differently? Or is it the same as IVIG in how your body processes and uses it?
I am so sad abridge still isn’t available here. Have ‘illegally” downloaded it, but it isn’t working to great because it officially isn’t available here.
Welcome to Abridge! :) You can definitely have multiple people's visits there. When you are done recording, you will see a field to input who the conversation was about. Hope it's helpful to you, and don't hesitate to reach out to us at support@abridge.com with any questions or comments.
Mary, yes be glad you have masks. MY friend was diagnosed with Cov19 and so of course I was tested since I have cold symptoms. I'm negative by the grace of god. But my doctor says anyone who has a chronic illness need to stay close to home. So I may be binge watching your videos when I am bored.
Do you know that feeling of a medical appointment where most of the information goes over your head? So do I!!! You’re not alone ❤️
Brilliant vlog - lots of medical info but explained so well. For me it has to be all the long medical words.. Abridge sounds brilliant.
I guess you need permission to record discussions but sometimes there are signs to not record so don't ask - at least in the UK recently
Vlog emoji recap
📽️ 🏥😷🌉👨⚕️👩⚕️⚕️🙆♀️💊❓🚗🍛😷💊🌌🐱🐾👋
3:38 a hopsital? LOL. Love you guys. Dont forget to laugh every day.
The Frey Life Masks are like currency now because of everything going on if you all over and short of cash break into the Stash of masks and sell some
I LOVE Abridge!!! I have two procedures on Wednesday ... colonoscopy AND endoscopy 😱😔
Yeah I think doctors do that jargon on purpose. Anyway I don't buy into just anything a doctor says as well. But that's me! 🤔😏Gotta go in on wed for a bone density and not happy about the germ possibilitys at the hospital. That bridge thing sounds like a good deal tho.
didn't watch your clips for a view month my lungs went down so quick i had only 11% lung capacity when my call came and i had my double lung transplant and i'm doing much better.I'm 46 so recovery was hard but i made it.Great to see you guys praying for you always much love to you both!
Chicki A wishing you wellxx
@@karendeakin8861 Thank you so much
@@Csichicigirl God Bless you & I wish you well.
OH, God Bless you!!! This is fantastic news!!! I am so, so happy for you!
Chicki A glad to hear your transplant and recovery went well, even though hard! Way to go - the progress you're making is so exciting! Keep on pressing on friend! 💜
After a long talk with my Dr he was pretty reluctant to allow me to use that app during my appointment, but couldn’t give me a good reason why and I told him but it’s only logical that they document everything with my appointment why can I and it was at that moment he allowed me to use the app. I’ve been using the app for several months now and I was able to point out something that he contradicted himself on. I save myself a lot of pain and heartache through false promises with a treatment for my spine.
Michelle Frances Peterson-Arnone I'm glad you've been able to use the app & that it's helping avoid confusion and mix-ups! Yay!
Michelle, we're glad to hear your doctor ended up agreeing to allow you to record!
It can be so frustrating when they aren't open to it. Some tips to help make your case:
- Offer to capture just specific parts of a conversation, like follow instructions or particular medical terminology
- Explain that it's just for personal use
- Show any prior examples you are comfortable sharing. Sometimes once doctors see the app's output, they understand the value to you!
Anyway, we are always here for support -- feel free to reach out to us anytime at support@abridge.com.
I stopped my ivig 3 months ago and started the hizentra, it is great, my husband and I do it on Sunday nights in my stomach, I do not feel the needle or medication, do not have the headache as I did from the ivig. You can also do it in the legs or back of the arms. I had a nurse come to the house the first 3 times to show us how.
I’m a retired nurse and this app sounds wonderful! Everyone needs one. The older I get the more I need this 💞
Mary do you also have allergies? Just a thought because this is your first spring in the South. Our pollen can fall like snow. The yellow covers everything. I wondered when you had your windows open the other day. Your surfaces in your home can turn yellow from pollen. It is crazy down here. Just a thought. Please stay safe 💗💕
Thank you, Mary, for telling us about the ABRIDGE app! I used it for the first time on Friday at my cardiologist appointment. Turns out there was a new diagnosis, new meds and lots of information I would have been hard pressed to remember without it. I have noticed that it doesn't always transcribe all words correctly. So I would recommend that you read the transcription through as soon as possible after the appointment, play back those questionable sections of the conversation and make any needed edits. It's easier to do when it's fresh in your mind. Also, know that in California, Delaware, Florida, Illinois, Maryland, Maine, Montana. Nevada, New Hampshire, Pennsylvania and Washington, you legally must get consent from the doctor before recording the conversation.
Thanks for your support -- we are glad the app was helpful to you, and sending many positive thoughts your way. The transcription works perfectly in ideal acoustic circumstances, but healthcare conditions are rarely perfect. Factors like quality of audio signal, overlapping voices, or heavy accents may skew the transcription output, but the technology will get smarter over time as people correct any erroneous transcriptions. Thanks again for your support! 🙏
Thank you! I just signed up for Abridge. Since I just moved to VIrginia I’m looking for a new pulmonologist and a hematologist oncologist. This will help a lot. ❤️❤️❤️
Oh wow! I can not believe who your sponsor is today. I had planned to ask in the comments about this app today and hope someone could tell me the name of it. I'm having cancer treatment and my memory is pathetic, even at the best of times. I really need this app.
Thankyou so much for letting us know it exists.
I couldn’t recommended Abridge more highly!!! & yes, it is available outside the US (I can get it in Australia). My last appointment was immunology as well-my immunologist spent nearly an hour with me! Abridge handled it! (It did take a while to upload/process!)-she even asked more about Abridge & I told her about it!! Brilliant!! Such a blessing of a tool!! (I did see the app had a few issues with some immunological terms used-I didn’t know u could edit it!! I’ll have to go back & do that!!!! SO AWESOME!!!)
Aww, thanks Rachael -- your support means so much to us! If there's ever anything we could do to better serve you, please don't hesitate to let us know at support@abridge.com. We rely on our users' feedback to help us prioritize what we work on next. The editing feature is relatively new, but the technology will get smarter over time as people correct any erroneous transcriptions. Thanks again for your support! 🙏
Hi Mary and Peter, Please stay at home. Take care of yourselves. God bless you guys. I love you guys
Definately will be downloading and trying this app I have a consult with oncology at the end of the month. Please keep me in your prayers. y'all are in mine always. Stay safe out there
RolyPolyPanda Heads up: I wanted to use this app at my orthopedic surgeon’s post-op visit and he asked me not to. I had printed him explanation of app and he took that, but still did not want me to use it. Someone told me I had to check with my state laws about recording someone. I would be interested in hearing how you make out using it.
I'll keep you in my prayers! Wish you the best💜
RolyPolyPanda we hope the app can be helpful for you in that appointment & praying it goes well! Keep on pressing on!💜
Keeping you in my prayers RolyPolyPanda !
This couple is so special. Everyone needs to binge watch while we’re in quarantine!!
My experience with Abridge app: Six months ago I went to my orthopedic surgeon for post-op follow up visit. I had printed out explanation for Abridge for my surgeon. However, he asked me not to use it. I commented on this online( I think it was on “Roll With Cole & Charisma”- where I first heard about it). Someone messaged me and said I should check my state laws about recording someone. The doctor who created it also messaged me and asked if he could help. At this time, I decided to drop the subject. I would be interested to hear about other people’s experience with the Abridge App.
Good point! Thank you!
Beth Wade You’re welcome.
Charlotte German I was wondering about that as well, some doctors may not ant to be recorded and if you do it with out their knowledge that could leave you in hot water! I would be to shy to ask probably.
You're paying them for a service. You should be allowed to do what you need to do, to ensure you're able to properly comprehend the medical advice being given, so long as it isn't at the expense of other patients' privacy.
In California, Delaware, Florida, Illinois, Maryland, Maine, Montana. Nevada, New Hampshire, Pennsylvania and Washington, you legally must get consent from the doctor before recording the conversation. I didn't know this at my first appointment. I hit the record button before the doctor entered and slipped my phone into a pocket on my purse and left it unzipped. No one knew I was recording. I forgot about it myself until I was back in the car. It did a great job even hidden away. I was recording because I don't have very good recall anymore and it was important information I was getting that day. So I will continue to do it this way when needed. Just know that any conversation recorded without consent in these states cannot be used in court for any reason.
Im so glad ur appointment went well. I have a lot of different medical conditions which means I have to attend a hell of a lot of clinics and appointments. Because of all of my appointments I no I would benefit from an app like Abridge but sadly it’s not available in the UK. So I hope that as it gets more popular it is rolled out to other countries. If anyone no’s of any similar apps that I could use I would be really greatful. As always sending you loads of hugs and love from me over here in England. 💙💪🏻💜
WOW!! What an amazing piece of technology that has a huge potential to benefit so many patients and caregivers. Also, for Abridge to be a free phone app is a huge bonus!! 🤗❤️❤️😘🐕🐱
Holly Osgerby Agreed! :)
When I was going to the doctor frequently to figure out what was wrong with my body (I still don’t fully know or have a full diagnosis) I did a medical journal that I hand-made and organized. I do wish I would’ve know about the app when I was trying to manage everything.
It honestly could’ve put many pieces together that still need to be put together.
YES! It's one reason I like my husband to come along, as so often I am thinking about one thing and the doctor is talking about another thing. My husband helps me with questions and everything... and we can talk about the appointment after. That allows me to call back if I find I have any questions still.
also thank you to the BRIDGE app you suggested before. YES, it has helped !
@@kittymervine6115 I agree, having another person & the abridge app is the way to go when it comes to appointments - so glad the app has been helpful for you as it has for us! Hope you have a great rest of your day! :)
Hello you two, glad to see you got somewhat good news at the doctor. I wish I could find a new doctor who was Great with allergies and asthma. I used to see a pediatrician for my allergies and asthma up until about 7 years ago. He was the best allergist and absolutely the best here in Cali where I live for Asthma. Now that I'm going from insurance to Medicare it's a little scary and I haven't had a good doctor for about 5 years now. I have a great doctor at the walking clinic who has done pretty good for me but after you turn 65 you can't go there anymore if you are retired from the school district since it is only a school district clinic.
This asthma of mine hit me like a ton of bricks on Friday night and thank God I had meds for my nebulizer and my inhaler, 2 asthma pills I take every day. I don't know if my beautiful little 7 & 5 year old granddaughters gave me their virus they had which really reared their asthma, they were on inhalers and nebulizer also. Grandma is care taker when their mom has the and sometimes when their dad has them so they can work. I told my daughter if I feel this bad then just think how those girls must have felt.
Mary I think about you a lot even though I'm not sick like you are I know what it feels like not to be able to breath. Very scary thing.
I pray for you all the time. My two granddaughters love to watch you and Peter and also we can't leave out Oliver and I have shown them Harry also. Peter is an absolute Gem, I can't Commend him enough for being there for you and all he does for you. Prayers for you both. Take care.🌞👍💗
I tried Abridge today for the first time and it stopped recording when I accessed my notes that had questions for the doctor. My suggestion is to try playing with it before needing it for an appointment. I missed nearly an hour of conversation for an upcoming surgery that my husband now can’t listen to. 😢
twdobesh, oh no, we're really troubled to hear this. 😢 Would you mind emailing us directly at support@abridge.com with the name of your notes app so we can look into this further? We do extensive testing to make sure that the app works in different circumstances, and we'd love to learn more about what happened so we can fix any issues going forward. So sorry for any inconvenience this may have caused -- please do email us so we can work with you to make things right.
So grateful for this app info! Thank you for sharing! So glad your doing so good! Blessings!
Grace P you're welcome! Hope you have a great day! :)
I want to thank you for the App. I am seeing a new Doctor for my MS.. things are crazy this app will help. thanks again..
I do subq every day. I feel so much better without all the side effects. Good luck and prayers everything works out
My question about abridge is. Does it pickup on thick accents? Like doctors from other countries.
Great question actually! I have many doctors from other Countries and even I have to ask them to repeat something I didn't understand from time to time. NOT complaining at all, I LOVE my doctors!!! Maybe if the app can't pick it up, you have to type it in like a text?
My doctor has a pretty strong accent and it did a surprisingly good job overall. I would recommend that you review the transcription as soon as you can after the appointment. If you find anything questionable, you can play back that section of the conversation and edit the transcription while it's fresh in your mind.
One way to find out is to try it on a regular Doctor's appointment, which I am going to do as my GP is Philipino and you need to listen closely to what she says.
Okay, so I bring a notebook to all my cardiology appointments and try to “decode” at home. This app sounds AWESOME!
I wish this app was available in the UK, guys, but so far no joy. I hope and pray that the oral antibiotics are working for you xxxxxxxxxxx
love the feeling of taking off a hospital mask, I hate wearing them when I am admitted or at a hospital appointment.
I’m also on subq ig 4 needle areas...once a week! it is easy but can be a bit tender. You will do it on your belly or back of the arms...I think your sister does subq right??? So happy you are doing better! You will have no problem dealing with that! Lots of love Marci in Mass and I miss you in Mass!
Thanks Marci!!
Hi Mary and Peter Frey
I just downloaded the abridge app for my Pumologist appnts and doctor appnts Thank You
I agree the abridge app is great although I have not really used it yet. My hubby did already and while it got most of it right, there was a few funny mistakes. But once you started listening, you could see what was said. I didn't know you could edit it. Very cool. Keep up the great work.
Lizzie Turbeville so glad that the app has been helpful for you & your husband! :)
Thanks for your support, Lizzie! If there's ever anything we can do to better serve you, don't hesitate to let us know at support@abridge.com.
Thank you for sharing the information about the abridge app. I have been meaning to look up your previous video on it. I have cancer now and soooo need this.
My body likes to have rare reactions too. I know how you feel.
Hope you feel better, Mary!
Thanks so much for the info about the App!!! Awesome as this is something that will be perfect for me! Love watching you both and sharing your lives with us all! I have Cf as well and can really relate and learn as well.... Thankyou!
steves723 so glad that we could help by sharing this app with you! It's so great! Thanks for coming with us on this journey! :)
I feel relieved. I have been feeling anxious about this for you. I really felt like it helped you before and I want you to have the benifit of both the new magical medicine, and IVIG. I hope the subcutaneous works as well as the intravenious did.
Wish I had that ap a few years ago it would have made my life so much easier just last week I meet a new Dr and the Dr told me things that no had no clue about and new words . Now I have it downloaded thank you
bara moln we're so glad we can share this app with you and hope it helps you with your future appointments - it is so helpful!
My sympathies! My B.S. is in Microbiology. I had to take 2 semesters of immunology. AKA the worst year of my life. How fitting that I end up being immunocompromised. Good joke, God! 😂
Tracey Watson haha you could impart some immunology wisdom to me! :)
I hope you're feeling better today Mary ♥️
Thank you Jamie! :)
Oh Mary I hope you are ok thinking about you feel better soon xxx❤️❤️
Thank you Karen!
I soooo wish that I knew about this app earlier today. Thanks for the information!
Aw, I am so sad this app is not availible in the UK 😣
I might be starting SubQ too! I just talked to the rep about how much faster it would be for me and there's a trial I maybe can do. We will see. I'm so glad your prayers about this have been answered.
Huge need where I live (WA state) I am a nursing student and I feel like we as students have been left out of the consideration, my clinical rotation sites have withdrawn our welcome to study and we are blocked from ordering supplies to practice with 😵 hoping and praying this passes soon! Love you guys been following for many years!
Victoria Lehman oh no! Hope that changes soon for you & your fellow students!
I’m going to start using this app. And for my aging parents too. That have smart phones. Just have to show them how to turn it on while at doc.
I had my subcutaneous IG today. It has helped me so much!
I did my subq sites in my thighs it was more comfortable for me than my stomach. I did get itchy and small rashes from it at my sites but it disappeared within a few hours. Make sure you don’t prime the tubing too much so that the IG goes out the needle because then it will hurt going in!
Hope your feeling better soon, Mary.
Abridge was a Silver sponsor at our last SEPPA PANDAS''s Awareness Walk! I love how supportive they are, and it really is a helpful app!
FreebirdTMH agreed, it's be SO helpful!
So glad to have been able to support the great work you're doing, too! ♥️
I have recommended your app to many PANDAS Families!!
Abridge is finally available in Australia. Thanks for reminding me about the App.
I did subq for about 6 months but needed 4 sites but it caused so much scar tissue which is a problem bc i need space for my pump and sensor and all the stuff
Excellent app. Hope you are feeling better Mary ❤️
I did subq ig for a couple of years. I used my outer thighs and belly. I had to have 5 needles each time. The first couple of times is pretty wild with the big red welts. I used Gamunex.
Independent is the way to go. I got cut off from using my port alone as well. Sigh.
callyflower thanks for sharing!
Still not available in Europe...how long does that take bc I just recognise you were talking about that app last year. I tried to contact the app but I never got an answer...that´s pretty sad, bc I have so much doctors appointments and in Denmark it´s ok with recording appointments. So I need something that works out and is safe from others to see or here what´s been talked about... But thanks for giving all these informations to us
Really hope that you feel better today too Mary ❤️
Thank you Phoebe! :)
I heard you talk about Bridge before. I did get the app and was going to use it on my next clinic visit. It was a no go, my Dr. Said it could be edited and used against the doctors and clinic. Hmm, so I wasn't expecting that at all. I thought this was a great tool to remember important information at the visit. But anyway, glad your physicians were not against it.
We're so sorry to hear about this! This is technically not true -- while we permit you to edit the transcript, the audio is always preserved as ground truth.
It can be so frustrating when care providers aren't open to it. Some tips to help make your case:
- Offer to capture just specific parts of a conversation, like follow instructions or particular medical terminology
- Explain that it's just for personal use
- Show any prior examples you are comfortable sharing. Sometimes once doctors see the app's output, they understand the value to you!
We are always here for support -- feel free to reach out to us anytime at support@abridge.com and we'll do whatever we can to help!
I have the app and I used it a few months ago. I didn't know about the new features, which is great to know because there were some conversations I had that the computer really didn't get right lol. They were funny though.
Thanks so much for the feedback! We've had a few funny transcriptions in our own usage of the app, but sometimes it makes sense when you replay the audio and hear what was said. Transcription quality is also affected by the quality of audio signal, but the technology will get smarter over time as people correct any erroneous transcriptions. Thanks again for your support! 🙏
Be sure to wash your hands, Peter and Mary. We love you and we ALL touch our faces a lot..... Corona Virus scares me.
Mary Kowalski - don’t be scared... it’s just like the flu.... most people will only have mild symptoms and just like flu, people with underlying conditions COULD be affected more severely. The precautions for COVID 19 are the exact same as the precautions we should all be taking, all year round
@@kecrn4132 Actually, while I see you are an RN, I've been paying attention to what virologists say and it has a death rate much higher than the flu. It is on the verge of being a pandemic (Italy closing it's borders today)and since we don't have enough test kits in the U.S, and we are not handling it in a coherent way (as S. Korea is) I don't think it will be contained anytime soon. With Mary's vulnerable lungs I just wanted them to be extra careful.
Mary Kowalski - it actually doesn’t exactly have a higher death than the flu- CDC (I’m not American but keep abreast of both) says that “as of March 9, 2020, the flu is showing much more of an impact on Americans than COVID-19”. Influenza affects way more people and cause more hospitalizations..... for instance, say a total of 100,000 people get influenza, while only 100 people get COVID 19..... of those 100, 7 die and of the 100,000 flu people, “only” 70 people die.....so as a percentage, yes, COVID 19 has more deaths.... but, overall, we are much more likely to get influenza because the amount of those infected by influenza is much much higher. We DO need to be taking the exact same precautions ALL the time- particularly for those around us with suppressed immune systems (I am one of those people.... and I did get H1N1 in 2009 during that “epidemic”..... so I get the fear etc, but it has gone way overboard).... I have to go but I can send you an article I received yesterday when I get back
I really appreciate your immunology insight. My son is about to start ivig very soon.
Mary hope You are ok You two are amazing
Thank you Paula!
Praying for you Mary. Hope your ok.
Hi Peter and Mary,
I know this is an older video and you probably won't have time to reply but if you see this could you maybe answer this question in a future video:
Now that Mary is doing SubQ IG, is there really a need for her port anymore? Like could she technically get her port removed?
Loving the vlogs keep it up Mary and Peter
I get needing treatments like ivig there's a 99% chance that I'm doing iv iron I was at like a 5 last time I find out my most recent blood result next week there is only a 1 present chance I won't need the treatment I apparently can't observe iron
I hated sub Q but with your dexcom you do well already so really hopefully you do great with it!
Thanks hey it's imme!
The Frey Life thanks for the reply!!! Sub Q is another world of self care! But it’s pretty easy and lots of people do really well with it. Immonglobulin, girl you’re gonna be walking- running laps! 😉☺️ praise god for vertex and the doctors that are willing to let you do care at home and immonglobulin!
You might want to correct HOPSITAL to read HOSPITAL....at 3:42
Is Abridge even available outside of the US cos it keeps coming up as not available in "your country" on my phone (I'm in the UK).
Lol! When you were talking about your body it made me smile because at my dialysis center it is well known among the technicians that I am that patient that all the weird stuff happens to! And my body is weird too! Lol! It's good we smile and laugh about it because otherwise we'd be scratching our heads all the time! Lol! I am very familiar with sentences that start with "I have never seen that before..."
Monica B I'm glad to know we're not alone in the "I have never seen that before..." group 😂
Poor Mary, Her body is always getting all puncture up!
Just the abridge app transcribe into text by chance? In other words, is this an app that would be helpful for hard-of-hearing people to better understand appointments?
For us who do not have insurance and need ivig, what to do? i'm going in to the circles like a nightmare. i have CVID and any advice would be helpful. Do you guys know what is the best option and afortable insurance for that.
Isn't sub-qig the way your sister gets hers? I remember watching a video with her setting up her pump and putting in the two needles.
Jezebel von Tex yes her sister does do it that way :)
Hi guys! I'm 18 but I've been doing SCIG for 5 years now (I have CVID) - so much better than IVIG which caused me a number of side effects and messed with my levels. If you ever have any questions don't hesitate to ask them:)
how you managing your CVID, im extrimly ill with pneumonia, alergies and lung issues from lack of igg, iga,igm without insurance iin PA, Me and my doctor are going in a circles for not having chance to get ivig, i got my last dose few months ago in emergency room and do you know nest option to get inshurance and what kind of insurance will cover
Looks like I'm first ! Yay I think that's the first time ever ! Love y'all ! Love your vlogs they brighten my day !!
Cindy Herschberg I know right! They're awesome !
Cindy Herschberg so glad you are enjoying the vlogs & that they bring joy into your day! :)
Thank you for that abridge app.
Sadly the app isn't available in the netherlands.
Is your port still a necessity of you're not using it for ivig anymore? Or could you just use a picc line when antibiotics are used?
Can you guys talk about Coronavirus and any extra precautions you may be taking?
the app is not available in the uk :(
Just a question about Olly. Is he retired now?
We dont have that app in the UK
In wich video is mary making chicken pot pie ? I can’t remember ?
Really wish that app worked in the UK
Lots of prayers for you
Hi Guy`s , Mary , thoughts and prayers all is well. Thanks for the app !! , now that I have a cell phone I can use it !! , but first I need a new doctor !! , ( it`s always something ) my doc. retired last Dec. Now there is that app , when I find a new doc I can use it !! Strange , last night and this AM I felt the exact way you described , I had to go out for a while , but all I wanted to do was go back to bed. I was not coughing , but congested and thought O__ great == blah. As of 3:10 pm , I am ok , slightly congested but I don`t feel as bad as I did. weird !! , good , but weird .
Thanks for the video and the link , have a great evening , stay safe and take care , Gary
Hi Gary, glad we could share the app with you, we hope your process of finding a new doctor goes well! :) Hope you feel better soon!
@@thefreylife Thanks guys , I am feeling better , it`s like everything slowed down , weird . It was like I was catching something but so far it decided to go somewhere else !! :) I was checking out the website for the app and up here we are required to ask the doctor first , kinda makes sense ;) Not too handy with a cell yet , just got it a few weeks ago , so I am still learning !! LOL , Glad all is well for you folks , so really scary out there with COVID-19 , I wonder if it would be this bad IF the media never mentioned it. The mind can make one as ill as the nastiest bug !! , have a GR8 night , take care , Gary
I believe that knowledge is powerful especially when it concerns your health. Thank you for sharing. Blessings from above to the TricaftaKid and her Sidekick!🙌👩🏼👨🏼🦱
The app don't work in my country ( don't really need it through ) but it's a nice discovery
do you have any advice for me since I'll be new to the service dog community?
I think I told you before that my primary care doctor would not allow me to use the Abridge app in his office because of the privacy act. I explained that a physician invented it and that it was a secure app, but he said no. Did you get permission from your doctor before starting the recording? Just wondering.
While recording is becoming more commonplace, it can be so frustrating when care providers aren't open to it. Some tips to help make your case:
- Offer to capture just specific parts of a conversation, like follow instructions or particular medical terminology
- Explain that it's just for personal use
- Show any prior examples you are comfortable sharing. Sometimes once doctors see the app's output, they understand the value to you!
We are always here for support -- feel free to reach out to us anytime at support@abridge.com and we'll do whatever we can to help! Our CEO & co-founder (also a cardiologist) is also happy to call on your behalf.
Abridge thank you so much for replying. If my disease gets more complicated, I will ask him again. Fortunately I can understand everything at this point.
If you know and don’t mind asking it, will getting the Immunoglobulin via sub q mean that it affects your body differently? Or is it the same as IVIG in how your body processes and uses it?
I meant don’t mind answering it 🤦♀️
Hope your ok Mary and don't need antibiotics xx
I recently got my IVIG out in the snow! No joke! I made a video about it on my channel! Where is the craziest place you've gotten your treatment!?
My Asterisk Life haha that's amazing!!!
I love watching Your videos and blogs
I am so sad abridge still isn’t available here. Have ‘illegally” downloaded it, but it isn’t working to great because it officially isn’t available here.
:(
Is your sister on Vertex too?
I don’t hav CF and my body reacts strange to meds .
most stores are out ofhand sanitizer also and gloves
I just downloaded the abridge app I hope it works for me! I am thinking about using it for my mom can I do 2 people’s files on there or is it just 1??
Welcome to Abridge! :) You can definitely have multiple people's visits there. When you are done recording, you will see a field to input who the conversation was about. Hope it's helpful to you, and don't hesitate to reach out to us at support@abridge.com with any questions or comments.
Is This application allowed in all states? Some states do not allow you to record a doctor appointment without their knowledge
Abridge has some helpful answers on their FAQ page: www.abridge.com/faq
Doesn’t your sister do subcutaneous IG?
Everyone stay safe out there.
Why can’t you do ivig independently that’s crazy they should be encouraging you to do it by yourself
Mary, yes be glad you have masks. MY friend was diagnosed with Cov19 and so of course I was tested since I have cold symptoms. I'm negative by the grace of god. But my doctor says anyone who has a chronic illness need to stay close to home. So I may be binge watching your videos when I am bored.