T1D 32 years. It has become most of my life. Some days I'm exhausted from it. Some days I'm ready to take it on. My family thinks they understand....but they always come back to how they have to deal with it. I really want to keep it all to myself. Although I do need help sometimes. Thank you I needed your words today.
Hi! I’ve had Type1 D for almost 57 years. I totally get this. Thanks for being so real. Hidden illnesses are so hard. You look fine but some days you’re struggling and frustrated and mad. I don’t complain very often but I let myself when I need to. I truly hate this disease. It’s horrible and frustrating but I’m also thankful I was born after insulin was discovered. I’m alive. I have lots of good things in my life. I do the best I can to MANAGE not control this disease. The world control needs to go. Anyway, thanks again for being so honest about how frustrating this disease can be.
Hello, I am a new nurse. This is my first year of nursing and I am caring for a child with Type 1 Diabetes. It has only been a few months in being a part of her care team and I am learning what a balance it is daily to help manage her blood sugar levels. I really appreciate videos like this. Thank you!! You and others who are in this community that make honest content are making a positive impact! Thanks a bunch.
This diabetes thing is hard. Thank you for telling it like it is and showing your vulnerability. I love to see genuine people with an earnest desire to spread light. You do that for this community!
I’ve been a type 1 for 53 years! God has blessed me because I have two children and no blindness, CKD or heart issues. I do struggle with depression and trying to be joyful and deal with a disease that is so hard to manage. But managing it to me is so much easier with insulin pumps and CGM’s. But my blood sugar spikes almost anytime I eat anything. I take a fair amount of insulin, And my A1C is 6.2. That is much better than 12.0 which is what it was before I started pumping. It will always be a challenge as long as I live. But living is where I want to be! God bless you all and just keep swimming as Dory says!
Once again, another 'bolus' that proves to me that "Shesdiabetic" is my favorite Type-1 Diabetes UA-cam channel. Top notch, as always! Greetings from BKLYN, NY.
I have been diabetic for 38 years come up to 39 years I have never celebrated world diabetes day. Thank Andrea for remembering us that there is two sides to being diabetic the awesome days and not so great days. I have been enjoying watching your videos for sometime now keep up the great work on the videos
Hay. I have been a type 1 diabetic for about 2 and a half years now, I am 18 now. I just got my first cgm (long term) and so far so good, I stopped drawing blood from my fingers a few days ago. There are days when I feel like I can't go a day without this "sickness" and then there are days when I can't believe what I've accomplished. Your the first person ive watched 2 years back when i got diagnosed. You've helped me so much. I will continue watching your videos and you should continue posting them 😁
Thank you!!! I seldom feel like celebrating that I have diabetes. This video is real life. Thanks to you and all who commented bc all I see on utube is happy, happy, happy. Lots of time, I not happy and struggle. It nice to hear the real real.
Thank you so much - this comment means more to me than I can possibly express. We ALL struggle and yet it's so easy to feel alone in that which is such a weird feeling of dissonance. Thank you!! ❤️
Thank you for this video today. I am coming up on 44 years being a Type 1 and have been on a pump for 22-1/2 years, matter of fact I am changing my site while watching this video 😊. (It did bring me to tears, cause I can completely understand how you felt) Things have definitely improved with the way we can treat our disease, back in 1980 I had to test my urine in test tubes in the bathroom, I felt like a scientist at 13 years old doing this, and blood glucose meters were not available to me yet. Even with better resources and supplies there are days that it’s so hard to do it yet again . Trust me I have reacted and done far worse things when I have been at my wits end. Thank you for posting this and I hope you and all the Diabetics in the world are having a great day today ❤.
I have learned, being a diabetic for 51 years, that I just tell my wife or whoever I’m with that today will be a day that I’m going to struggle with blood sugars or not feeling up to par. They understand and either help me out or know to just leave me alone. Thanks again for everything you share with your channel!
OH I love this!! That honesty is so freeing - but also your vulnerability in willingness to share that takes courage and is SO INSPIRING to me! Thank you for sharing this with us here. Thank you for being her! Thank you for making me feel less alone and inspired by your comment. Thank! You!! 🥹
Personally I do not have diabetes. I subscribe to all channels I see which are there to help people with mental and physical issues. As I do have degenerative disc disc disease (DDD) along with the mental health issues that have come from that. You showing the thrown tablets is often better than showing just the bright side. As it shows the frustrations we all go through but tend to hide from others. Keep up the good work.
One thing that I discovered recently is that lows sometimes get me in a very depressive mood. However, while recovering from a low, it's pretty much impossible for me to feel down. It feels like my gut is being welded back together 👼 It goes to show that we shouldn't take our emotions very seriously with T1D 😉.
I totally get your feelings. When I was diagnosed as a child, my blood sugars were all over the place. My parents were told by the doctors that it's called "brittle diabetes" and that I would grow out of it. 50 years later, I can say that I never did, and tight control has always been nearly impossible. Seeing people post about having awesome control and A1c results in the low 5s, and I felt awful for a long time. no matter what I tried and how hard i tried to deprive myself of good food and joy in life, I just could never get there. I finally got to a point where I realized that doctors say that an a1c under 7 is good and maybe goof enough to protect against complications. I've come to accept my condition and learned to live with hope and joy, allowing myself to live a happy life and accept my mid-6 A1c tests. Most of all, we all need to know that we are NOT our numbers; blood sugar numbers are data points to use to help us control our disease... keep testing, keep trying to adjust, and keep living!
Ive been on this rollercoaster ride for the last 24 years. Im not ashamed of the fact that i am Diabetic and i let people around me know that i am. For myself personally if i drop i get cranky at first and then disorientated BUT the thing i learned (which was the best advise i got) is that when i drop i must REMAIN calm. You know what to do and now its just executing it. I take a deep breath and do what i have to do. I dont apologize for having diabetes. And neither should you. Things like this happen, Its not like we asked for this to happen. Thank you for all you do within these videos. You are truly a wonderful representative for us Diabetics around the world. Stay Strong.
Thanks for all the videos, and I want to echo the comments below, you have inspired me and my two type one kids to live well with our diabetes. I have had type 1 for 42 years now. I also shared this video on my channel, "Home in the Range". Thank you for being so authentic and look forward to your next video. Take care!
Ah thank you so so so so much for being here and sharing all these extremely kind words!! My goodness I am so grateful!!! Sending lots and lots of gratitude and love to you and all your family for the holidays and beyond!!!! Thank you again!
Andrea, I've had LADA for 9 years and my honeymoon's about to end. I found your channel at exactly the right time in my journey as I'm navigating the swirl of practical and emotional implications of the next "forever" phase. I'm grateful for your perspectives and honesty, and love the incredible support throughout this community. THANK YOU!
Good day, I never ever comment on any type of video but you showing what low looks like is so so honest and real. I've lived with type 1 for 39 years now (diagnosis at age of 4) and I have had many lows in my life but really nobody understands what having a low means and what it does to us. After geting a low I always feel guilty and horrible afterward. Thank you for sharing this video. It really feels like I'm not alone.
Happy world diabetes day Andrea ! Thank you for sharing the vulnerable side of being a diabetic that most of the time gets unnoticed ! It's been two years now since the diagnosis and whenever i am feeling lonely i always come back to your channel ! Thank you from the bottom of my heart. Sending a big hug ❤
What you've said here means beyond the world to me...BEYOND. Thank you ❤️ Thank you for making me feel less lonely too - because it definitely works both ways. We're in this together...and I can say without a shadow of a doubt that you're doing great ❤️❤️❤️😘😘😘
I'm so glad to hear another has gotten so frustrated about the disease. At times the wild blood sugar swings triggers it, some times it's just the emotional exhaustion. The word "crap" does sum it up. The physical exhaustion can't be explained to another who hasn't experienced the low blood sugar crash or the general physical exhaustion of being high. Augh. I'm grateful for your share and willingness to be open and share that "throwing of glucose tablets". No I'm not alone and it was super nice to hear that from another who truly gets how I feel.
You are far, far from a failure, Andrea and you inspire all of your followers, including me! We know that you have some bad days - like the rest of us. I attended a function yesterday at which I was presented with a Kellion Victory Medal, along with 22 other Australians in the state of Victoria who have lived with diabetes for 50 years. But - what inspired me was that 12 people received a 60 year medal, 7 received a 70 year medal and one received a 75 year medal. Some of them had contracted Type 1 diabetes as small children. We had all survived form the days when there were no test meters, no insulin pumps and no CGM. We all remembered using huge glass syringes and large needles that had to be stored in methylated spirits (alcohol) and boiled once a week. All except one were able to walk to the presentation area unassisted. So, my take away from the day was that with the great technology today and barring other illnesses or accidents, I can keep going happily for some time yet. I'm 79 years old at present, fit and healthy. I hope some of your viewers can also take some inspiration from these statistics and the number of less than young survivors.
I've been having a number of bad days as well. 3 infusion sites that failed early in a row. I thought I was just experiencing the late pizza spike, but no, it was a failed set. 20mins after changing it, I started going back down to normal. But really, it's been a heap of those situations in the last few weeks and I'm exhausted. I miss the times of not thinking about food or blood sugars. I feel you with the frustration of it all. Sometimes there are just times when it sucks. A lot.
33 year T1D diagnosed at just over 2 years old. Changing my pump site right now. It certainly can be a frustrating thing, though I do count myself grateful that I don't remember anything ever being another way. I work as a pharmacy technician, and while there are many aspects of this job I dislike, I always find joy in being able to help newly diagnosed individuals or parents of these individuals navigate the process. It has been extremely rewarding to have people who have come back and let me know that the suggestions I have given have had significant impacts. One father of a boy who was recently diagnosed as a 9 year old comes by and lets me know how well his son is doing because of what I have been able to share, even when he isn't picking things up. Not only does it keep me going in a job that is increasingly difficult, but it helps me to keep going as a T1D. Your channel has a similar, and likely greater effect on so many people. Keep on keepin' on.
Always good to see you! I read you loud and clear: My DBLG1 controller receives quite a few very angry punches several times per week, especially when it finds it ok to keep my glucose levels at 9.8 mmol..., or stops basal rate at 15, just because the glucose trend is just slightly downward. Just because it is "in range" - I dont feel well being that high. If pumps were not that expensive we would organise pump sling competitions to see who can throw it the longest or highest distance. So yes, I hear you. I wish medical device manufacturers hear us too...: we need more flexibility in controlling our algorithms, alarms and have direct access via Bluetooth to OUR glucose and pump data, including machine readable formats. See you next time! Peter
I have never celebrated world diabetes day even though I have been diabetic for 32 years. Diabetes life is not perfect and like you said there is no escape, no vacation. However knowing that I'm not alone with this helps me and your channel helps me too. Those bad days, loosing almost mind and feeling hopeless are part of T1D journey. I know how you have felt but do not give up. Smiles & Big hug to you ♥ We can do it so you can do it. 🙌❣
Hello Andrea, Thank you very much for your sincerity. 😊 Most of social media is an illusion. I know that. 😬 What's important to me is that people like you try to guide us. Not commercials, demonstrations or imaginary heroics. I know you're real. Because when I look at my little girl, I see what I see in your eyes. I understand very well that words get stuck in our throats. 😐 You know, I am not diabetic, but I am a father. And this motivates me even more. Thanks to heroes like you. I appreciate that you don't hold back and try to guide people. 🧿 I wish you healthy and happy days, "blue circle" warrior princess.🔵
Thank you for sharing this. I just love your honesty and transparency. I was diagnosed 5 years ago and started insulin 3 years ago, there have been more times that i care to admit that I was just “I’m done!!!” Crap is a great word! But there are other times when I realize that a lot of my healthy self care is because of T1D. A curse and a blessing (occasionally) rolled into one.
Oh oh oh I am right there with you! Even since posting this and even though I know it's all just a snapshot I do just feel low today. Thank you for sharing your vulnerability. We'll get through these moments together. I'm elated to be on this Earth with you too 🥹❤️
I Just love your honesty! This is exact the post about diabetes that I needed. Greetings from the Netherlands, a mother of a 4 year old diabetic (diagnosed just six week ago)
Thank you!! And greetings to you in the Netherlands (my Mom was born in Gryp and we have lots of family there! So I'm half Dutch!!) Thank you for your kind words. I am so so so sorry to hear that your 4 year old was diagnosed with type 1 diabetes. Oh my goodness my heart goes out to you. You no doubt are an incredible caretaker and mother. I hope you're doing ok (or as best as you can) and that your little one is too. I'll continue making content and we'll all get through this together 🥹❤️
Thank you, thank you , thank you ! I don’t celebrate national diabetes day. To me there’s nothing to celebrate about diabetes. Most days things are fine but I do have what I call my “Pity Pat party day “ . When it all goes wrong. I now have Parkinson’s and diabetes has gotten in the way to many times when I’m signed up for my Rock steady exercise program and I have to cancel because my blood sugar is to low to exercise at that time. It’s so frustrating!!😢. Your channel lifts me up ! 😊
Thank you sooo much Andrea, for sharing this topic with such heartfelt honesty 💖 I am living with T1D for 53yrs now and despite my best efforts...no two days are ever the same. I wish you well, you are an inspiration. Greetings from Dublin, Ireland 🇮🇪
I have come to believe that only the strongest people become diabetics. Most people could not handle what we do daily. Sometimes we just have so much more than just everyday stress that anger just pops out. We are superhuman to live the way we do but at the end of the we are still just human. Thanks for this video. I took my pump off yesterday and silenced it in the dresser drawer so I could deal with normal people stress without the constant alerts which were due to the normal people stress driving my bg up too high. I'm glad to be with others who get me. T1D 43 years+
Hi Andrea, Thankyou so much for being so honest and sharing. I have been feeling very frustrated too, at the moment, so sick of diabetes, have had days of hypos and highs, one of those hard to control times, don't feel like going out, feel safer at home. As you say, if most of us are honest , it's not fun, never a holiday from it . Thank you so much for the not alone message , I once told you of the blessing of having lunch at work with two other type 1's, but in retirement, none. I am sure your David and my Sharron do their best, but it's hard on them too. Take care, Rex
Thank you for posting this. It’s nice to know someone else feels like this sometimes and I don’t think people understand the emotional aspect of diabetes because it’s 24-7 so I appreciate you posting this ❤ hope you are feeling better xx I know I am because I’m not alone with my feelings xxx it’s hard work ❤ and sometimes you can do the same thing and have different outcomes x there lies the frustration xxx keep going xx keep posting take care xxx
Thank you for providing a forum concerning the ups and downs of having diabetes. Personally, I have had horrific incidents with low blood sugar. I passed out once and woke up to paramedics drilling a hole in my leg to run an iv since they couldn't find a vein in my arms, and they proceeded to take me to the er. Diabetes is a rough disease. The medical community has come a long way with treatment plans, pumps, and dietary recommendations. You're absolutely right. There are good days and bad with this disease. We need to continue the good fight daily to stay within range and healthy. Thank you again for sharing your insight. Your community looks up to you and respects your feedback. Keep up your great work!
Thank you so much for the video, I can’t tell you how much I appreciate it and how much that meant❤️ I have two amazing sons and they both are type 1 diabetics. Although the big accomplishments are wonderful, to me it’s their everyday struggles and their perseverance through that that makes them incredible. The things no one else sees or thinks about. Thank you for bringing awareness that most of the time, it’s a very difficult disease. Much love and appreciation💕
Thank you for sharing, especially the snippet of footage with the glucose tablets. It brought me to tears. This is exactly how I feel, have felt multiple times in my 30 + year journey with type one. People don’t understand, so thank you for reminding us all we are NOT alone. Keep up all your good works!!
Thank you so so much for saying that ❤️ I'm also so sorry for your frustrations - you know I can relate so completely and utterly - we are not alone, never alone 🥹❤️😘
For me it's the stubborn highs that reduce me to tears. I'm grateful for social media because after so many years of feeling alone, I can see & share the journey of others with type 1 diabetes. 41 years in on Feb. 28th ✌️🫂😎
I've been there before too Andrea so please don't feel bad AT ALL about throwing the glucose tablets. Dealing with this condition on a daily basis gets incredibly frustrating sometimes. I'm glad you showed that clip to us because it makes me feel less alone.
Thank you thank you thank you for saying that. That does also make me feel less alone too, you know!! You are the best and always so kind and supportive - thank you, from the bottom of my heart, thank you for being here ❤️
I’ve had type one diabetes since 1978 I have been through almost everything beginning with urine testing and then blood glucose testing and for the past 20 years have been on a pump. I’ve had good days and I’ve had bad days yesterday morning on a Monday to boot, I woke up to find, my infusion site had come off my leg so it’s 6:30 in the morning with my eyes barely opened I had to change. My sight didn’t start out to be a good day. I’ve had hospital stays as a teenager. I’ve also been able to have a child and watch him grow up, so just like life they were good days and they were bad days.
Thank you for this vulnerable and real video! I’m type one and in my second trimester of pregnancy right now! It can be sooooo frustrating trying to manage diabetes while pregnant and it really really causes so much stress and anxiety when I wish I could just be carefree and free to enjoy pregnancy even more fully. But I’m grateful for all the tools, support, and community we have to help us through!!
Oh my goodness! Firstly, congratulations on your pregnancy!!! I know the pressure to keep numbers tightly controlled during pregnancy is such a lot for women to deal with. I'm sure you're doing amazing!!!! But you raise such a great point - it would be so nice to enjoy these life moments more freely. I totally get it. But like you said - the tools and community are such a blessing! Such a mixed bag of feelings!! I wish you so much love and health for your pregnancy and you new family member to come!!! Such an exciting time!!! Big big big love and joy to you!!!
Oh I hear you...I have two adult children with type 1 diabetes, My son was diagnosed when he was 3. My daughter got it at 14. There is NOTHING to celebrate about diabetes...it feels like 90% of the time you are guessing what to do, how to eat, what to not eat, wht to follow, what not to follow, how to treat this, how to reat that yada yada yada...its all .B.S and the truth is you just have to take each day at a time, drag yourself through it and try your very best to live witha disease that is life threatening, dibilitating, and makes you feel like sh--t mor 80% of the time. I get sick to death of all the " I dont let this stop me doing anything, I can lead a normal life" crap...yes some people do that but boy does it take a lot of really hard work, denial of lots of foods and sometimes - for no apparrent reason - non of it works and that is the worst feeling ever.
I feel the same with my type 1 son!!! He’s coming up on his 3 yrs of having this and all we feel like we’ve been doing lately is treating highs and lows and this is WITH a Dexcom and Omnipod!!! It’s so crazy! I am going on my 3rd night of barely any sleep because I’m just trying to keep him alive while he sleeps. In this house we HATE Diabetes! 😢
Thanks for the real snapshot. I have T2 and all of a sudden one day my body just worked, light switch on, body working, in range 98% of the time. Confirmed on my CGM and another meter. It was bizarre. Then I got my period, my body went wack, and I still have not recovered. High all the time, no matter what I do. Such a bummer to feel out of control and like your choices don’t matter or make a difference (because I know they do long term, even if I’m not seeing them this week). 😢
Thank you Andrea! Your videos have helped me a lot, and I can’t tell you how much these words have affected me: you’re not alone. And yah, I’ve had moments like that when I had some explosive rage due to an oncoming low episode…like you said, we’re human.
I completely hear you with this. As a type 1 diabetic I have definitely got to times where I just want to scream and feel like giving up everything diabetes related. Especially since I'm trying my hardest to better my A1c because I want to get pregnant very soon
I was never a person that got angry and when I was hit with Diabetes, I became someone that would have temper tantrums...with lows, at times. I hate this aspect because others judge you and they don't understand that it isn't the real me. Anyways, thanks for your videos. All the best!
Thanks for this Andrea...my little son is the one carrying the burden but he rarely complaints. Watching your video today made remind me that this condition is a bit of a roller coaster and it´s OK not to be OK . Please hang in there an keep on sharing because you are helping a lot
Oh your son sounds amazing…and also sound like an incredible Mom…sometimes I think because we have no choice the desire to complain just isn’t there because there’s no escaping it, but when someone else reminds you how difficult what you’re doing is it can be pretty affirming and make a hugely positive impact. Basically - Mama - you da bomb!!!! I’m sending you and your son big big hugs and joy!!!
Hello Andrea You really touched a nerve there!! Thank you so much for sharing what happened with the scattering of glucose tabs, I can really relate to that. My family are great but having someone who really gets it is fantastic too. The fact you take time to help us all is amazing!!!please don’t stop. Your an inspiration Thank you so much Phil
Thanks for your videos!!! Yes I’ve been there myself getting upset & feeling all alone with this disease too. But overall I feel that I’m doing good with circumstances! Keep videos coming!!!
Hi Andrea, thanks for sharing! As mentioned earlier I have been a type 1 for over 50 yrs and I am very positive with the control I have, and the state that I am in after this many year's with the disability. I do have those days which you have described, and at times, I too feel like just giving up, but luckily I always get over it. All my life I kept hoping for a cure, and if there was one in the near future, I would sooner see the younger generation get it first. Hang in there as advancements are occurring so rapidly that things will get much easier in the near future.
Soo true. Thanks for posting. Remember at 3.9 you’re not able to drive, so your emotions are drug induced!! We all suffer from drug induced collapses and it’s not our fault. Join together in the reality of living with this cruel disease. Best wishes x.
Hi Andrea, i am Type 1 LADA and even though we have new technology now it is still very challenging disease. People say i can eat what i want with insulin but this certainly isnt true and you dont just take insulin and away you go, its not that easy, its very hard to match what the pancreas once did, it can be so frustrating. It can be exhausting and unpredictible thats why its challenging you can eat the same foods with different results each day thats how challenging it is, no two days are the same, it is a 24/7 disease people who are non diabetic dont understand it can keep you awake at night its very intrusive in your life what ever you do, its a selfish disease that needs your attention all the time it can be very hard to fully relax. It is hard. We desperately need a cure , insulin was discovered over 100 years ago which is a long time, surely its about time we need a cure or something to help us through this wretched autoimmune disease by now 😢.
Love this video, as always! I am definitely in the "Diabetes is crap" phase right now. I'm conscious that all my posts for Diabetes Awareness month on my Facebook page have been negative - even the ones I hoped would be neutral. But that's how I feel right now - Diabetes has just not been playing ball and I'm over it! 🙈
While it is common on social media to only post the wins, everyone has struggle days/ weeks/ months/ years with diabetes. Sometimes it feels like no matter what happens, you're doing it all wrong. We've all been there. I got some good news from my eye doctor (no complications in that area) today, so I"ll celebrate that, but a few days ago, it felt like my insulin was water.
Thank you so much for that Andrea :) I know exactly how you feel when I saw your glucose tables over the floor :) I get so many days when I feel so fed up with being diabetic that I could scream with frustration. I have saved the video you made about the positives of being diabetic, and when I feel very down I look at it and it and does have a very calming effect on me. so thank you for that x
I was diagnosed with LADA on 9/6/23. I'm 66 years old. I lost my brother to diabetic complications when he was 20. I'm grateful for the technology that is available to me at this point in time. However, this has been HARD, and I'm mourning the "before times". Thank you for your words. Take care and I'm grateful for your channel because it has been very helpful to me knowing I'm not alone.
I'm so so so so so sorry to hear about the loss of your brother. My husband lost his brother when he was young (not from t1d, but from Hypertrophic cardiomyopathy (HCM)) and that loss in and of itself is so overwhelming and shapes who you are in so many ways. I'm just so sorry. And I hear you on the gratitude for the tech - but also it's SO UNDERSTANDABLE that you'd mourn the before times. I can't even imagine such a shift happening 66 years into your life. That's a lot to deal with and change to implement. You have my respect and my empathy, in every area. I can say without a doubt that you're doing great...keep going...and thank you for letting me know that I'm not alone as well, because that definitely works both ways!!! Big big love and joy, and gratitude ❤️❤️❤️
I was diagnosed as LADA almost exactly a year before you, after 2 years of misdiagnosis as Type 2. Stick at it, it gets easier, I promise. It's never EASY per se, but easiER. As my doctor said, the fact that you're diagnosed later in life makes the learning curve harder, but is also a plus, as complications are so much less likely/severe.
@@ShesDiabetic Thank you so much for your kind words about my brother. It happened a long time ago but it definitely affected my family's lives. Thank you for the words of encouragement! Getting the Omnipod 5 soon and I'm hopeful for the future.
@@lozetchells9164 Thank you! I was lucky to have been diagnosed right away. I definitely did not fit the mold of Type 2 (thin, healthy eater, exercise every day.). With my family history my endo did the autoimmune blood tests and it was very clearly LADA. Thankfully I'm an anomaly, I'm very good with tech even though 'm older. I got it under control right away, but as the disease advances it's more challenging. So glad that it has gotten easier for you! Bless!
Thank you. I find all the achievement stuff does most people with T1 a disservice. All the pro sports people, those running marathons and in high flying jobs, great for them but the outside world often sees the endpoint not the reality of the struggle. New tech has improved the physical for most of use but with the trade off of mental fatigue. Just like social media is always giving a benchmark, now we are see the failure of control minute by minute when things go wrong. I seen somewhere that T1 takes 10-15 hours a week to manage. Thats 1.5-2 hours every day. A second job basically
Wow. This comment articulates EXACTLY what I have been feeling - in fact - what you’ve articulated here has actually made me feel like I understand my own reactions to these things. Thank you thank you thank you. So well put. And that figure about the hours it takes to manage is so interesting (and shocking!) but very accurate I feel like. Thank you for your smart, and articulate comment!
@ShesDiabetic Thanks, I went through therapy over diabetes anxiety and stress, culminating in leaving a stressful job where I was working 60-70 hours a week. Therapist helped me see I needed to cut back and not only find time to manage diabetes but have some family time as well. Thanks for the open sharing. I found your post on the US health system particularly helpful as an Anglo-American family.
Uncontrollable anger is caused by wild swings in BG usually including low blood sugar, and a part of having diabetes. Someone should create a place for diabetics to upload pics/vids of this. It's a real part that maybe we can all laugh at afterwards. Its okay to be angry sometimes. Thanks for the video!
I celebrated world diabetes day by calling my insurance company to ask what short acting and long acting insulin they WILL cover or how to get a prior authorization for the same meds I've been taking for years and then relaying the phone number to call to my endo who confirmed that I was again, denied a dexcom r any cgm. Been type one 22 years now.
OMG I am so sorry. Reading your message hit me so hard. It’s like…on top of ALL of this we have to navigate a completely strange and frustrating healthcare system to get what we need, and it’s never ending…!!! I’m sending you a big hug and hope that all gets sorted out once and for all. 💙🙏
I'd never heard of World Diabetes Day--but the things you said here did resonate with me. On days where it seems nothing is going right with my sugars it feels like I've got a little gremlin living inside my body that wants to kill me and if I could just get my hands on it then I could drop kick that little gremlin out somewhere in the middle of Lake Superior (I live in the Upper Peninsula of Michigan so Superior is the sea for me) There have been many (maybe a majority of) days where I was so sick of my T-Slim alarm going off that I wanted to take the pump out and smash it with a hammer. Sometimes I think one of the most excellent therapy devices possible would be a box of diabetic devices that are ok to smash. There is so much helpless frustration with this disease that the inability to step away from it even for a moment can result in some amazing moments of adult temper tantrums (at least for me) The satisfaction of flinging a tube of glucose tablets across the room may seem childish but mentally it feels like a measure of defiance against the disease. I don't know why, but sometimes it is necessary to let out one's anger against the situation. I know there are many situations worse than mine and many diseases I'd rather not have, so I am grateful for my health that I do have and for the amazing advancements in the treatment of our disease. However the amount of obsession we are supposed to have over our numbers would not be healthy if we held the same obsession for something like say our weight. There are just mental consequences that come as a result of living every day as a sort of science experiment where the results of the experimentation manifest themselves into whether or not you're going to feel awful that day. Dependency on devices and keeping on top of insurance payouts and agreements is a constant level of frustration that We'd rather not deal with. So with all of that weighing on us--and knowing that we are going to have bad days, cutting ourselves some slack is important. It is ok when some streak ends where we were above 80% in range for x number of days. Its ok when we have a bad streak where we can't seem to stop the roller coaster cycle. We do the best we can--which is pretty good just by managing to exist at all with how badly our body seems to want to kill us... :) Happy Thanksgiving everyone!
I already commented but I have to add, one of my lowest diabetes moments was last year, my blood sugar was so low I just got annoyed and frustrated so I sat on my kitchen floor crying until my husband brought me juice and picked me up. I looked like a toddler having a tantrum 🙃
Happy WDD i had a great Weekend with my friends but yesterday before my endo appointment a firmwareupdate crashed my dexcom device After recieiving 4 substitut sensors because of problems I want to smash someting but i cannot i always get relived when you post
"this insulin" you are referring to is not an annoying medication, it is an essential hormone. You will die without it. Insulin does not make you weak, high blood sugar does. If anything insulin makes you stronger, it transports energy (glucose) to muscle tissue and also promotes muscle hypertrophy.
Thanks for your response here Timmy! I would talk to your doctor right away if anything they've given you is making you feel weak. That's a terrible feeling and certainly not what insulin is meant to do - please talk to your doctor asap. ❤️❤️❤️
Greetings , Have done the same thing you did many times before Do not worry For example high numbers for no reason preictally starving myself And the past while have not done videos for my diabetes channel in a month Thanks to my viewers checking up on me and asking where I have been I stated making video's again HUGHS HUGS HUGS YES I KNOW WERE YOURE ATE SO I EAT A COOKIE LLOL JUST JOKING HUGHS Anthony From Toronto
I've been a type 1 diabetic since 1985. Everything you spoke about is "dead on" about diabetes. First of all you do need to keep it "top of mind" all the time. It's not fun however diabetes, the disease, is always active and unless you keep an eye on things it can creep up on you and ruin your day. Fortunately, you have at your disposal two awesome tools that will help. That is your real time glucometer and your insulin pump. This is going to sound nasty, however I would not necessarily count you friends for good advice and help. That is unless they are type 1 Diabetics. Frankly we are the ones that know our disease the best. Ask any experienced Endocrinologist and they will tell you that. Before these tools were around managing diabetes was largely guesswork. I'm glad to see you are becoming aware of and enrolled in "work life balancchallenges Take care, a type 1 friend Steve.
Wow, you really are a psycho! No, just kidding!!! Welcome to the land of normal and thank you for giving us all a reality check. It is important to see human beings on social media as human beings and not paragons.
T1D 32 years. It has become most of my life. Some days I'm exhausted from it. Some days I'm ready to take it on. My family thinks they understand....but they always come back to how they have to deal with it. I really want to keep it all to myself. Although I do need help sometimes. Thank you I needed your words today.
Hi! I’ve had Type1 D for almost 57 years. I totally get this. Thanks for being so real. Hidden illnesses are so hard. You look fine but some days you’re struggling and frustrated and mad. I don’t complain very often but I let myself when I need to. I truly hate this disease. It’s horrible and frustrating but I’m also thankful I was born after insulin was discovered. I’m alive. I have lots of good things in my life. I do the best I can to MANAGE not control this disease. The world control needs to go. Anyway, thanks again for being so honest about how frustrating this disease can be.
Hello, I am a new nurse. This is my first year of nursing and I am caring for a child with Type 1 Diabetes. It has only been a few months in being a part of her care team and I am learning what a balance it is daily to help manage her blood sugar levels. I really appreciate videos like this. Thank you!! You and others who are in this community that make honest content are making a positive impact! Thanks a bunch.
This diabetes thing is hard.
Thank you for telling it like it is and showing your vulnerability. I love to see genuine people with an earnest desire to spread light. You do that for this community!
I’ve been a type 1 for 53 years! God has blessed me because I have two children and no blindness, CKD or heart issues. I do struggle with depression and trying to be joyful and deal with a disease that is so hard to manage. But managing it to me is so much easier with insulin pumps and CGM’s. But my blood sugar spikes almost anytime I eat anything. I take a fair amount of insulin, And my A1C is 6.2. That is much better than 12.0 which is what it was before I started pumping. It will always be a challenge as long as I live. But living is where I want to be! God bless you all and just keep swimming as Dory says!
Once again, another 'bolus' that proves to me that "Shesdiabetic" is my favorite Type-1 Diabetes UA-cam channel. Top notch, as always!
Greetings from BKLYN, NY.
I have been diabetic for 38 years come up to 39 years I have never celebrated world diabetes day. Thank Andrea for remembering us that there is two sides to being diabetic the awesome days and not so great days. I have been enjoying watching your videos for sometime now keep up the great work on the videos
Been a T1D for 47 years. Your post was very touching, as many of us had similar thoughts yesterday.
Thank you thank you thank you, so so so much for saying that 🥹❤️
I have Diabetes for 11 years and I want to say thank you for making me feel less alone 😢 you are very tough person here ❤
Hay. I have been a type 1 diabetic for about 2 and a half years now, I am 18 now. I just got my first cgm (long term) and so far so good, I stopped drawing blood from my fingers a few days ago. There are days when I feel like I can't go a day without this "sickness" and then there are days when I can't believe what I've accomplished. Your the first person ive watched 2 years back when i got diagnosed. You've helped me so much. I will continue watching your videos and you should continue posting them 😁
Thank you!!! I seldom feel like celebrating that I have diabetes. This video is real life. Thanks to you and all who commented bc all I see on utube is happy, happy, happy. Lots of time, I not happy and struggle. It nice to hear the real real.
Thank you so much - this comment means more to me than I can possibly express. We ALL struggle and yet it's so easy to feel alone in that which is such a weird feeling of dissonance. Thank you!! ❤️
Thank you for this video today. I am coming up on 44 years being a Type 1 and have been on a pump for 22-1/2 years, matter of fact I am changing my site while watching this video 😊. (It did bring me to tears, cause I can completely understand how you felt) Things have definitely improved with the way we can treat our disease, back in 1980 I had to test my urine in test tubes in the bathroom, I felt like a scientist at 13 years old doing this, and blood glucose meters were not available to me yet. Even with better resources and supplies there are days that it’s so hard to do it yet again . Trust me I have reacted and done far worse things when I have been at my wits end. Thank you for posting this and I hope you and all the Diabetics in the world are having a great day today ❤.
I have learned, being a diabetic for 51 years, that I just tell my wife or whoever I’m with that today will be a day that I’m going to struggle with blood sugars or not feeling up to par. They understand and either help me out or know to just leave me alone. Thanks again for everything you share with your channel!
OH I love this!! That honesty is so freeing - but also your vulnerability in willingness to share that takes courage and is SO INSPIRING to me! Thank you for sharing this with us here. Thank you for being her! Thank you for making me feel less alone and inspired by your comment. Thank! You!! 🥹
I know it’s hard, but try not to think of yourself as a failure!🙂
Personally I do not have diabetes. I subscribe to all channels I see which are there to help people with mental and physical issues. As I do have degenerative disc disc disease (DDD) along with the mental health issues that have come from that.
You showing the thrown tablets is often better than showing just the bright side. As it shows the frustrations we all go through but tend to hide from others. Keep up the good work.
One thing that I discovered recently is that lows sometimes get me in a very depressive mood.
However, while recovering from a low, it's pretty much impossible for me to feel down. It feels like my gut is being welded back together 👼
It goes to show that we shouldn't take our emotions very seriously with T1D 😉.
I totally get your feelings. When I was diagnosed as a child, my blood sugars were all over the place. My parents were told by the doctors that it's called "brittle diabetes" and that I would grow out of it. 50 years later, I can say that I never did, and tight control has always been nearly impossible. Seeing people post about having awesome control and A1c results in the low 5s, and I felt awful for a long time. no matter what I tried and how hard i tried to deprive myself of good food and joy in life, I just could never get there. I finally got to a point where I realized that doctors say that an a1c under 7 is good and maybe goof enough to protect against complications. I've come to accept my condition and learned to live with hope and joy, allowing myself to live a happy life and accept my mid-6 A1c tests. Most of all, we all need to know that we are NOT our numbers; blood sugar numbers are data points to use to help us control our disease... keep testing, keep trying to adjust, and keep living!
Ive been on this rollercoaster ride for the last 24 years. Im not ashamed of the fact that i am Diabetic and i let people around me know that i am. For myself personally if i drop i get cranky at first and then disorientated BUT the thing i learned (which was the best advise i got) is that when i drop i must REMAIN calm. You know what to do and now its just executing it. I take a deep breath and do what i have to do. I dont apologize for having diabetes. And neither should you. Things like this happen, Its not like we asked for this to happen. Thank you for all you do within these videos. You are truly a wonderful representative for us Diabetics around the world. Stay Strong.
Thanks for all the videos, and I want to echo the comments below, you have inspired me and my two type one kids to live well with our diabetes. I have had type 1 for 42 years now. I also shared this video on my channel, "Home in the Range". Thank you for being so authentic and look forward to your next video. Take care!
Ah thank you so so so so much for being here and sharing all these extremely kind words!! My goodness I am so grateful!!! Sending lots and lots of gratitude and love to you and all your family for the holidays and beyond!!!! Thank you again!
Andrea, I've had LADA for 9 years and my honeymoon's about to end. I found your channel at exactly the right time in my journey as I'm navigating the swirl of practical and emotional implications of the next "forever" phase. I'm grateful for your perspectives and honesty, and love the incredible support throughout this community. THANK YOU!
Good day, I never ever comment on any type of video but you showing what low looks like is so so honest and real. I've lived with type 1 for 39 years now (diagnosis at age of 4) and I have had many lows in my life but really nobody understands what having a low means and what it does to us. After geting a low I always feel guilty and horrible afterward. Thank you for sharing this video. It really feels like I'm not alone.
Happy world diabetes day Andrea ! Thank you for sharing the vulnerable side of being a diabetic that most of the time gets unnoticed ! It's been two years now since the diagnosis and whenever i am feeling lonely i always come back to your channel ! Thank you from the bottom of my heart. Sending a big hug ❤
What you've said here means beyond the world to me...BEYOND. Thank you ❤️ Thank you for making me feel less lonely too - because it definitely works both ways. We're in this together...and I can say without a shadow of a doubt that you're doing great ❤️❤️❤️😘😘😘
I'm so glad to hear another has gotten so frustrated about the disease. At times the wild blood sugar swings triggers it, some times it's just the emotional exhaustion. The word "crap" does sum it up. The physical exhaustion can't be explained to another who hasn't experienced the low blood sugar crash or the general physical exhaustion of being high. Augh. I'm grateful for your share and willingness to be open and share that "throwing of glucose tablets". No I'm not alone and it was super nice to hear that from another who truly gets how I feel.
You are far, far from a failure, Andrea and you inspire all of your followers, including me! We know that you have some bad days - like the rest of us. I attended a function yesterday at which I was presented with a Kellion Victory Medal, along with 22 other Australians in the state of Victoria who have lived with diabetes for 50 years. But - what inspired me was that 12 people received a 60 year medal, 7 received a 70 year medal and one received a 75 year medal. Some of them had contracted Type 1 diabetes as small children. We had all survived form the days when there were no test meters, no insulin pumps and no CGM. We all remembered using huge glass syringes and large needles that had to be stored in methylated spirits (alcohol) and boiled once a week. All except one were able to walk to the presentation area unassisted. So, my take away from the day was that with the great technology today and barring other illnesses or accidents, I can keep going happily for some time yet. I'm 79 years old at present, fit and healthy. I hope some of your viewers can also take some inspiration from these statistics and the number of less than young survivors.
I've been having a number of bad days as well. 3 infusion sites that failed early in a row. I thought I was just experiencing the late pizza spike, but no, it was a failed set. 20mins after changing it, I started going back down to normal. But really, it's been a heap of those situations in the last few weeks and I'm exhausted.
I miss the times of not thinking about food or blood sugars.
I feel you with the frustration of it all. Sometimes there are just times when it sucks. A lot.
33 year T1D diagnosed at just over 2 years old. Changing my pump site right now. It certainly can be a frustrating thing, though I do count myself grateful that I don't remember anything ever being another way. I work as a pharmacy technician, and while there are many aspects of this job I dislike, I always find joy in being able to help newly diagnosed individuals or parents of these individuals navigate the process. It has been extremely rewarding to have people who have come back and let me know that the suggestions I have given have had significant impacts. One father of a boy who was recently diagnosed as a 9 year old comes by and lets me know how well his son is doing because of what I have been able to share, even when he isn't picking things up. Not only does it keep me going in a job that is increasingly difficult, but it helps me to keep going as a T1D. Your channel has a similar, and likely greater effect on so many people. Keep on keepin' on.
This is wonderful. Maybe you manage to do counseling your full time job one day? Thank you for helping others navigate their new challenges!
Always good to see you!
I read you loud and clear: My DBLG1 controller receives quite a few very angry punches several times per week, especially when it finds it ok to keep my glucose levels at 9.8 mmol..., or stops basal rate at 15, just because the glucose trend is just slightly downward. Just because it is "in range" - I dont feel well being that high. If pumps were not that expensive we would organise pump sling competitions to see who can throw it the longest or highest distance.
So yes, I hear you. I wish medical device manufacturers hear us too...: we need more flexibility in controlling our algorithms, alarms and have direct access via Bluetooth to OUR glucose and pump data, including machine readable formats.
See you next time! Peter
I have never celebrated world diabetes day even though I have been diabetic for 32 years. Diabetes life is not perfect and like you said there is no escape, no vacation. However knowing that I'm not alone with this helps me and your channel helps me too. Those bad days, loosing almost mind and feeling hopeless are part of T1D journey. I know how you have felt but do not give up. Smiles & Big hug to you ♥ We can do it so you can do it. 🙌❣
I have never celebrated it. For most people celebrating it, they are in the context of Type 2. Type 1 is only 5% of all cases.
Hello Andrea,
Thank you very much for your sincerity. 😊
Most of social media is an illusion. I know that. 😬
What's important to me is that people like you try to guide us. Not commercials, demonstrations or imaginary heroics.
I know you're real. Because when I look at my little girl, I see what I see in your eyes. I understand very well that words get stuck in our throats. 😐
You know, I am not diabetic, but I am a father. And this motivates me even more.
Thanks to heroes like you. I appreciate that you don't hold back and try to guide people. 🧿
I wish you healthy and happy days, "blue circle" warrior princess.🔵
Thank you for this Andrea. Not everyone has a perfectly flat line on that CGM.
Certainly not I!!! 🤪
Thank you for sharing this. I just love your honesty and transparency. I was diagnosed 5 years ago and started insulin 3 years ago, there have been more times that i care to admit that I was just “I’m done!!!” Crap is a great word! But there are other times when I realize that a lot of my healthy self care is because of T1D. A curse and a blessing (occasionally) rolled into one.
Andrea, this means so much to me. I was feeling down today and didn't really know why. & along you come. I am elated to be on this earth with you
Oh oh oh I am right there with you! Even since posting this and even though I know it's all just a snapshot I do just feel low today. Thank you for sharing your vulnerability. We'll get through these moments together. I'm elated to be on this Earth with you too 🥹❤️
I Just love your honesty! This is exact the post about diabetes that I needed. Greetings from the Netherlands, a mother of a 4 year old diabetic (diagnosed just six week ago)
Thank you!! And greetings to you in the Netherlands (my Mom was born in Gryp and we have lots of family there! So I'm half Dutch!!) Thank you for your kind words. I am so so so sorry to hear that your 4 year old was diagnosed with type 1 diabetes. Oh my goodness my heart goes out to you. You no doubt are an incredible caretaker and mother. I hope you're doing ok (or as best as you can) and that your little one is too. I'll continue making content and we'll all get through this together 🥹❤️
HUGE HUGS MOMMA!!! ❤
Thank you, thank you , thank you ! I don’t celebrate national diabetes day. To me there’s nothing to celebrate about diabetes. Most days things are fine but I do have what I call my “Pity Pat party day “ . When it all goes wrong. I now have Parkinson’s and diabetes has gotten in the way to many times when I’m signed up for my Rock steady exercise program and I have to cancel because my blood sugar is to low to exercise at that time. It’s so frustrating!!😢. Your channel lifts me up ! 😊
Thank you sooo much
Andrea, for sharing this topic with such heartfelt honesty 💖
I am living with T1D for 53yrs now and despite my best efforts...no two days are ever the same. I wish you well, you are an inspiration.
Greetings from Dublin, Ireland 🇮🇪
I have come to believe that only the strongest people become diabetics. Most people could not handle what we do daily. Sometimes we just have so much more than just everyday stress that anger just pops out. We are superhuman to live the way we do but at the end of the we are still just human. Thanks for this video. I took my pump off yesterday and silenced it in the dresser drawer so I could deal with normal people stress without the constant alerts which were due to the normal people stress driving my bg up too high. I'm glad to be with others who get me. T1D 43 years+
Hi Andrea,
Thankyou so much for being so honest and sharing.
I have been feeling very frustrated too, at the moment, so sick of diabetes, have had days of hypos and highs, one of those hard to control times, don't feel like going out, feel safer at home. As you say, if most of us are honest , it's not fun, never a holiday from it . Thank you so much for the not alone message , I once told you of the blessing of having lunch at work with two other type 1's, but in retirement, none. I am sure your David and my Sharron do their best, but it's hard on them too. Take care, Rex
Thank you for posting this. It’s nice to know someone else feels like this sometimes and I don’t think people understand the emotional aspect of diabetes because it’s 24-7 so I appreciate you posting this ❤ hope you are feeling better xx I know I am because I’m not alone with my feelings xxx it’s hard work ❤ and sometimes you can do the same thing and have different outcomes x there lies the frustration xxx keep going xx keep posting take care xxx
Thank you for providing a forum concerning the ups and downs of having diabetes. Personally, I have had horrific incidents with low blood sugar. I passed out once and woke up to paramedics drilling a hole in my leg to run an iv since they couldn't find a vein in my arms, and they proceeded to take me to the er. Diabetes is a rough disease. The medical community has come a long way with treatment plans, pumps, and dietary recommendations. You're absolutely right. There are good days and bad with this disease. We need to continue the good fight daily to stay within range and healthy. Thank you again for sharing your insight. Your community looks up to you and respects your feedback. Keep up your great work!
Thank you so much for the video, I can’t tell you how much I appreciate it and how much that meant❤️ I have two amazing sons and they both are type 1 diabetics. Although the big accomplishments are wonderful, to me it’s their everyday struggles and their perseverance through that that makes them incredible. The things no one else sees or thinks about. Thank you for bringing awareness that most of the time, it’s a very difficult disease. Much love and appreciation💕
Thank you for sharing, especially the snippet of footage with the glucose tablets. It brought me to tears. This is exactly how I feel, have felt multiple times in my 30 + year journey with type one. People don’t understand, so thank you for reminding us all we are NOT alone. Keep up all your good works!!
Thank you so so much for saying that ❤️ I'm also so sorry for your frustrations - you know I can relate so completely and utterly - we are not alone, never alone 🥹❤️😘
For me it's the stubborn highs that reduce me to tears. I'm grateful for social media because after so many years of feeling alone, I can see & share the journey of others with type 1 diabetes. 41 years in on Feb. 28th ✌️🫂😎
Love your closing - such a beautiful smile and an important issue to address. Thanks.
Thank you so much your very very kind comment - and thank you for watching! 🥹🙏❤️
I've been there before too Andrea so please don't feel bad AT ALL about throwing the glucose tablets. Dealing with this condition on a daily basis gets incredibly frustrating sometimes. I'm glad you showed that clip to us because it makes me feel less alone.
Thank you thank you thank you for saying that. That does also make me feel less alone too, you know!! You are the best and always so kind and supportive - thank you, from the bottom of my heart, thank you for being here ❤️
I’ve had type one diabetes since 1978 I have been through almost everything beginning with urine testing and then blood glucose testing and for the past 20 years have been on a pump. I’ve had good days and I’ve had bad days yesterday morning on a Monday to boot, I woke up to find, my infusion site had come off my leg so it’s 6:30 in the morning with my eyes barely opened I had to change. My sight didn’t start out to be a good day. I’ve had hospital stays as a teenager. I’ve also been able to have a child and watch him grow up, so just like life they were good days and they were bad days.
You were great on All the Light We Cannot See. 🎈
Oh thank you!!! 😄
Thank you for this vulnerable and real video! I’m type one and in my second trimester of pregnancy right now! It can be sooooo frustrating trying to manage diabetes while pregnant and it really really causes so much stress and anxiety when I wish I could just be carefree and free to enjoy pregnancy even more fully.
But I’m grateful for all the tools, support, and community we have to help us through!!
Oh my goodness! Firstly, congratulations on your pregnancy!!! I know the pressure to keep numbers tightly controlled during pregnancy is such a lot for women to deal with. I'm sure you're doing amazing!!!! But you raise such a great point - it would be so nice to enjoy these life moments more freely. I totally get it. But like you said - the tools and community are such a blessing! Such a mixed bag of feelings!! I wish you so much love and health for your pregnancy and you new family member to come!!! Such an exciting time!!! Big big big love and joy to you!!!
@@ShesDiabetic Aw thank you so so much♥️♥️ I couldn’t be happier🥰 and thank you for spreading so much love and encouragement!!
Oh I hear you...I have two adult children with type 1 diabetes, My son was diagnosed when he was 3. My daughter got it at 14. There is NOTHING to celebrate about diabetes...it feels like 90% of the time you are guessing what to do, how to eat, what to not eat, wht to follow, what not to follow, how to treat this, how to reat that yada yada yada...its all .B.S and the truth is you just have to take each day at a time, drag yourself through it and try your very best to live witha disease that is life threatening, dibilitating, and makes you feel like sh--t mor 80% of the time. I get sick to death of all the " I dont let this stop me doing anything, I can lead a normal life" crap...yes some people do that but boy does it take a lot of really hard work, denial of lots of foods and sometimes - for no apparrent reason - non of it works and that is the worst feeling ever.
I feel the same with my type 1 son!!! He’s coming up on his 3 yrs of having this and all we feel like we’ve been doing lately is treating highs and lows and this is WITH a Dexcom and Omnipod!!! It’s so crazy! I am going on my 3rd night of barely any sleep because I’m just trying to keep him alive while he sleeps. In this house we HATE Diabetes! 😢
@@celestebrockell6438 Yep and I really hate to say this but it does not get any easier...so sorry
You’re a great educator Andrea and seem so sweet and kind. ❤
Thanks for the real snapshot. I have T2 and all of a sudden one day my body just worked, light switch on, body working, in range 98% of the time. Confirmed on my CGM and another meter. It was bizarre. Then I got my period, my body went wack, and I still have not recovered. High all the time, no matter what I do. Such a bummer to feel out of control and like your choices don’t matter or make a difference (because I know they do long term, even if I’m not seeing them this week). 😢
Thank you Andrea! Your videos have helped me a lot, and I can’t tell you how much these words have affected me: you’re not alone.
And yah, I’ve had moments like that when I had some explosive rage due to an oncoming low episode…like you said, we’re human.
I completely hear you with this. As a type 1 diabetic I have definitely got to times where I just want to scream and feel like giving up everything diabetes related. Especially since I'm trying my hardest to better my A1c because I want to get pregnant very soon
I was never a person that got angry and when I was hit with Diabetes, I became someone that would have temper tantrums...with lows, at times. I hate this aspect because others judge you and they don't understand that it isn't the real me. Anyways, thanks for your videos. All the best!
My granddaughter has type 1 and I have been able to understand partly thanks to you❤
Thanks for this Andrea...my little son is the one carrying the burden but he rarely complaints. Watching your video today made remind me that this condition is a bit of a roller coaster and it´s OK not to be OK . Please hang in there an keep on sharing because you are helping a lot
Oh your son sounds amazing…and also sound like an incredible Mom…sometimes I think because we have no choice the desire to complain just isn’t there because there’s no escaping it, but when someone else reminds you how difficult what you’re doing is it can be pretty affirming and make a hugely positive impact. Basically - Mama - you da bomb!!!! I’m sending you and your son big big hugs and joy!!!
Thank you for this video. It’s right on how type I diabetics fell. I don’t feel alone.
Oh and your providing a very useful service to you fellow Diabetics and as a retired Network Television Producer your doing a great job! :)
Hello Andrea
You really touched a nerve there!! Thank you so much for sharing what happened with the scattering of glucose tabs, I can really relate to that. My family are great but having someone who really gets it is fantastic too.
The fact you take time to help us all is amazing!!!please don’t stop.
Your an inspiration
Thank you so much
Phil
Thanks for your videos!!! Yes I’ve been there myself getting upset & feeling all alone with this disease too. But overall I feel that I’m doing good with circumstances!
Keep videos coming!!!
Andrea I cannot agree more with you. Thanks for this video.💙💙💙
Hi Andrea, thanks for sharing! As mentioned earlier I have been a type 1 for over 50 yrs and I am very positive with the control I have, and the state that I am in after this many year's with the disability. I do have those days which you have described, and at times, I too feel like just giving up, but luckily I always get over it. All my life I kept hoping for a cure, and if there was one in the near future, I would sooner see the younger generation get it first. Hang in there as advancements are occurring so rapidly that things will get much easier in the near future.
thank you. had an awful day with cgm misreadings and 2 lows and 2 highs.
I also a diabetic I am learn so much from all the videos
I have a shirt that I found on Amazon they says…. I’m sorry for what I said when my blood sugar was low 😂
Ohhhh that is perfection!!! 😂 *starts typing in amazon.com...* 😂🥹😘
Soo true. Thanks for posting. Remember at 3.9 you’re not able to drive, so your emotions are drug induced!! We all suffer from drug induced collapses and it’s not our fault. Join together in the reality of living with this cruel disease. Best wishes x.
Good to see you back and great to see you looking so well Andrea!
Thank you for sharing this…just keeping it real…
Hi Andrea, i am Type 1 LADA and even though we have new technology now it is still very challenging disease. People say i can eat what i want with insulin but this certainly isnt true and you dont just take insulin and away you go, its not that easy, its very hard to match what the pancreas once did, it can be so frustrating. It can be exhausting and unpredictible thats why its challenging you can eat the same foods with different results each day thats how challenging it is, no two days are the same, it is a 24/7 disease people who are non diabetic dont understand it can keep you awake at night its very intrusive in your life what ever you do, its a selfish disease that needs your attention all the time it can be very hard to fully relax. It is hard. We desperately need a cure , insulin was discovered over 100 years ago which is a long time, surely its about time we need a cure or something to help us through this wretched autoimmune disease by now 😢.
thank you for your honesty! going on 60 years wrestling this gorilla. I celebrate that Im still here!
Thank you Andrea! This is how I feel as well, and I feel less alone.
Thank you for this! ❤
TRUE!!!
Thank you
Love this video, as always! I am definitely in the "Diabetes is crap" phase right now. I'm conscious that all my posts for Diabetes Awareness month on my Facebook page have been negative - even the ones I hoped would be neutral. But that's how I feel right now - Diabetes has just not been playing ball and I'm over it! 🙈
While it is common on social media to only post the wins, everyone has struggle days/ weeks/ months/ years with diabetes. Sometimes it feels like no matter what happens, you're doing it all wrong. We've all been there. I got some good news from my eye doctor (no complications in that area) today, so I"ll celebrate that, but a few days ago, it felt like my insulin was water.
Thank you so much for that Andrea :) I know exactly how you feel when I saw your glucose tables over the floor :) I get so many days when I feel so fed up with being diabetic that I could scream with frustration. I have saved the video you made about the positives of being diabetic, and when I feel very down I look at it and it and does have a very calming effect on me. so thank you for that x
I was diagnosed with LADA on 9/6/23. I'm 66 years old. I lost my brother to diabetic complications when he was 20. I'm grateful for the technology that is available to me at this point in time. However, this has been HARD, and I'm mourning the "before times". Thank you for your words. Take care and I'm grateful for your channel because it has been very helpful to me knowing I'm not alone.
I'm so so so so so sorry to hear about the loss of your brother. My husband lost his brother when he was young (not from t1d, but from Hypertrophic cardiomyopathy (HCM)) and that loss in and of itself is so overwhelming and shapes who you are in so many ways. I'm just so sorry. And I hear you on the gratitude for the tech - but also it's SO UNDERSTANDABLE that you'd mourn the before times. I can't even imagine such a shift happening 66 years into your life. That's a lot to deal with and change to implement. You have my respect and my empathy, in every area. I can say without a doubt that you're doing great...keep going...and thank you for letting me know that I'm not alone as well, because that definitely works both ways!!! Big big love and joy, and gratitude ❤️❤️❤️
I was diagnosed as LADA almost exactly a year before you, after 2 years of misdiagnosis as Type 2. Stick at it, it gets easier, I promise. It's never EASY per se, but easiER. As my doctor said, the fact that you're diagnosed later in life makes the learning curve harder, but is also a plus, as complications are so much less likely/severe.
@@ShesDiabetic Thank you so much for your kind words about my brother. It happened a long time ago but it definitely affected my family's lives. Thank you for the words of encouragement! Getting the Omnipod 5 soon and I'm hopeful for the future.
@@lozetchells9164 Thank you! I was lucky to have been diagnosed right away. I definitely did not fit the mold of Type 2 (thin, healthy eater, exercise every day.). With my family history my endo did the autoimmune blood tests and it was very clearly LADA. Thankfully I'm an anomaly, I'm very good with tech even though 'm older. I got it under control right away, but as the disease advances it's more challenging. So glad that it has gotten easier for you! Bless!
@@lozetchells9164your story sounds a lot like mine. Thank you for sharing!
what are you talking about, girl. T1D is so fun and convenient :) I love it
Thank you. I find all the achievement stuff does most people with T1 a disservice. All the pro sports people, those running marathons and in high flying jobs, great for them but the outside world often sees the endpoint not the reality of the struggle.
New tech has improved the physical for most of use but with the trade off of mental fatigue. Just like social media is always giving a benchmark, now we are see the failure of control minute by minute when things go wrong.
I seen somewhere that T1 takes 10-15 hours a week to manage. Thats 1.5-2 hours every day. A second job basically
Wow. This comment articulates EXACTLY what I have been feeling - in fact - what you’ve articulated here has actually made me feel like I understand my own reactions to these things. Thank you thank you thank you. So well put. And that figure about the hours it takes to manage is so interesting (and shocking!) but very accurate I feel like. Thank you for your smart, and articulate comment!
@ShesDiabetic Thanks, I went through therapy over diabetes anxiety and stress, culminating in leaving a stressful job where I was working 60-70 hours a week. Therapist helped me see I needed to cut back and not only find time to manage diabetes but have some family time as well.
Thanks for the open sharing. I found your post on the US health system particularly helpful as an Anglo-American family.
When will we see fully Automated Insulin Delivery pumps by Omnipod and Tandem? Similar to iAPS
Well we can celebrate that we have a Cross to carry. No Cross, No Crown.
I like this 🥹
What a stupid day, who would want to celebrate an illness? Certainly not me.
I know...it's so complicated isn't it...I certainly get you and hear where you're coming from ❤️
I always took it as a diabetes awareness day rather than a diabetes celebration day.
Good point!!
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"We must imagine Sisyphus happy."
I've been diagnosed on the 8th november this year, 6 days before world diabetes day lol
Uncontrollable anger is caused by wild swings in BG usually including low blood sugar, and a part of having diabetes. Someone should create a place for diabetics to upload pics/vids of this. It's a real part that maybe we can all laugh at afterwards. Its okay to be angry sometimes. Thanks for the video!
I celebrated world diabetes day by calling my insurance company to ask what short acting and long acting insulin they WILL cover or how to get a prior authorization for the same meds I've been taking for years and then relaying the phone number to call to my endo who confirmed that I was again, denied a dexcom r any cgm. Been type one 22 years now.
OMG I am so sorry. Reading your message hit me so hard. It’s like…on top of ALL of this we have to navigate a completely strange and frustrating healthcare system to get what we need, and it’s never ending…!!! I’m sending you a big hug and hope that all gets sorted out once and for all. 💙🙏
Thanks for sharing this! Diabetes truly does suck hahaha
Indeed!!!! 🤪💙
I'd never heard of World Diabetes Day--but the things you said here did resonate with me. On days where it seems nothing is going right with my sugars it feels like I've got a little gremlin living inside my body that wants to kill me and if I could just get my hands on it then I could drop kick that little gremlin out somewhere in the middle of Lake Superior (I live in the Upper Peninsula of Michigan so Superior is the sea for me) There have been many (maybe a majority of) days where I was so sick of my T-Slim alarm going off that I wanted to take the pump out and smash it with a hammer. Sometimes I think one of the most excellent therapy devices possible would be a box of diabetic devices that are ok to smash. There is so much helpless frustration with this disease that the inability to step away from it even for a moment can result in some amazing moments of adult temper tantrums (at least for me) The satisfaction of flinging a tube of glucose tablets across the room may seem childish but mentally it feels like a measure of defiance against the disease. I don't know why, but sometimes it is necessary to let out one's anger against the situation. I know there are many situations worse than mine and many diseases I'd rather not have, so I am grateful for my health that I do have and for the amazing advancements in the treatment of our disease. However the amount of obsession we are supposed to have over our numbers would not be healthy if we held the same obsession for something like say our weight. There are just mental consequences that come as a result of living every day as a sort of science experiment where the results of the experimentation manifest themselves into whether or not you're going to feel awful that day. Dependency on devices and keeping on top of insurance payouts and agreements is a constant level of frustration that We'd rather not deal with. So with all of that weighing on us--and knowing that we are going to have bad days, cutting ourselves some slack is important. It is ok when some streak ends where we were above 80% in range for x number of days. Its ok when we have a bad streak where we can't seem to stop the roller coaster cycle. We do the best we can--which is pretty good just by managing to exist at all with how badly our body seems to want to kill us... :) Happy Thanksgiving everyone!
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Already knew
b4 u popped in this video 😉
P.S. Glad u returned to dark hair
Already knew what? Thanks Marina!
@@ShesDiabetic what 11/14 is 😉
@@marinakiell1069 oh yes yes! I see!! I Gottcha! 😜
I already commented but I have to add, one of my lowest diabetes moments was last year, my blood sugar was so low I just got annoyed and frustrated so I sat on my kitchen floor crying until my husband brought me juice and picked me up. I looked like a toddler having a tantrum 🙃
Happy WDD i had a great Weekend with my friends but yesterday before my endo appointment a firmwareupdate crashed my dexcom device After recieiving 4 substitut sensors because of problems
I want to smash someting but i cannot i always get relived when you post
Hi I need your opinion since my doctor put me to this insulin my body so weak everyday.
"this insulin" you are referring to is not an annoying medication, it is an essential hormone. You will die without it. Insulin does not make you weak, high blood sugar does. If anything insulin makes you stronger, it transports energy (glucose) to muscle tissue and also promotes muscle hypertrophy.
Thanks for your response here Timmy! I would talk to your doctor right away if anything they've given you is making you feel weak. That's a terrible feeling and certainly not what insulin is meant to do - please talk to your doctor asap. ❤️❤️❤️
HUGHS HUGS HUGHS Cheers From Anthony
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💙💙💙 Why do I just love that turtle so much!!! 🐢🥹
Greetings ,
Have done the same thing you did many times before Do not worry For example high numbers for no reason preictally starving myself And the past while have not done videos for my diabetes channel in a month Thanks to my viewers checking up on me and asking where I have been I stated making video's again HUGHS HUGS HUGS YES I KNOW WERE YOURE ATE SO I EAT A COOKIE LLOL JUST JOKING HUGHS Anthony From Toronto
I've been a type 1 diabetic since 1985. Everything you spoke about is "dead on" about diabetes. First of all you do need to keep it "top of mind" all the time. It's not fun however diabetes, the disease, is always active and unless you keep an eye on things it can creep up on you and ruin your day. Fortunately, you have at your disposal two awesome tools that will help. That is your real time glucometer and your insulin pump. This is going to sound nasty, however I would not necessarily count you friends for good advice and help. That is unless they are type 1 Diabetics. Frankly we are the ones that know our disease the best. Ask any experienced Endocrinologist and they will tell you that. Before these tools were around managing diabetes was largely guesswork.
I'm glad to see you are becoming aware of and enrolled in "work life balancchallenges
Take care, a type 1 friend Steve.
It's a everyday challenge, not many people quite understand the disease. Maybe a cure is in the future?
Wow, you really are a psycho! No, just kidding!!! Welcome to the land of normal and thank you for giving us all a reality check. It is important to see human beings on social media as human beings and not paragons.
You made me cry. TY
Oh my friend!! Thank you!!🥹❤️