Yep 🙋🏻♀️ I agree there are definitely links between EDS/HSD, Neurodiversity including ADHD and Autism, MCAS including histamine intolerance and Dysautonomia including orthostatic intolerance and POTS and the gut/leaky gut and brain inflammation including migraines. Please please give more support and validation to us patients who have lost our patience with dealing with so many different specialists looking at just one aspect and not the whole person.
Please watch Dr. Ross Hauser's UA-cam videos.EDS can lead to Craniocervical instability.He proves that Cervical instability leads to POTS,MCAS,Dysautonomia and all related issues. I am in the same situation like you ,maybe additional 15+ illness.And only his videos, his treatment method prolotheraphy and carnivore diet helped me to improve.Additionally you can have look Rachael Elizabeth UA-cam channel for get detailed information about carnivore diet and autonomic nervous system regulation.I hope all the patients like us get well soon🙏
I was just talking about this with my therapist. She asked if my ADHD was actually EDS. And it's a Yes-and-No answer. EDS causes our dopamine to be more drained, because we are constantly trying to hold our bodies together to keep pain at bay. I am new to EDS, but I have been diagnosed and treated for ADHD since 13. I am 41 now.
Thank you! This sums up my last 7 years of research. I've come to the same conclusions and I know others from the neurodiverse community that also have. You're on the right track, we just need to get this information better disseminated through the medical field so we can get professional support! Hard doing this alone without a medical background...
Thank you so much for this both to the EDS & Dr Kustow. This doctor is phenomenal 👏👏 he gets it and explains everything beautifully and straight to the point. I like how he has included all the up to date research (because brain fog has stolen my ability to learn and I was a post grad student). I’m only 12.46 mins in and he is explaining my life and no doubt everyone watching. I also have an explanation as to why I can’t think straight if there is too much stress triggers for me. Thank you again.
Yoga has helped me with a lot of these symptoms you have mentioned. For example. I noticed that when ya get up, yoga wants you to bring your arms over your head. (Mountain pose) It’s to deal with orthostatic intolerance OI. I’m always impressed with how yoga actually has actually already looked at that.
Omg. This is what I have I have Hypomobility my physical therapist just put it in her notes. I did have brain fog but Provigil seems to be helping with that. I also have Multiple Sclerosis and various other things but I have never been diagnosed with ADHD. I don't know what to do anymore my brain is like going at 50 mph doing 20 things at once then forgetting what I need to do. I am oblivious of time and I am just rambling I guess but It really affects me. Thank you for speaking about this and sharing various research.
Came to learn about possible correlations between my dysautonomia and ADHD - both late diagnosis I have POTS and Raynauds and I agree The root of MOST diseases is Inflammation . Great work
I wish i was hypermobile and had a sickpack. While i try to do insane amount of sport and clean diet and good sleep and social i dont thinkt those impact/cause/effect it much at all. The most is sport and that is a insanely minimal amount and only at insane amounts of effort/discomfort spent. many adhd people high overweight and little fittness associated with it. It look at it much more from a anhedonia/apathy (not cognitive but subcontious)/lack of motivation those have 2 major effects 1) Not blunting / hiding discomfort/pain/bad feelings 2) Not activating the subcontious/contious executive functioning/"brain-jarvis/assistant" that seem to be activated and help with problem solving, emotions, perfects timed things, visual and auditory remembering and so on. They especially activate automatically (differently in different people how much is subcontious/contious it seems) (and barely any people that are much aware, and of those that are only partially/confusely) in social interactions where they objectively influece tone of voice, sentence/word/strategy selection, and facial and bodily expressions that are subcontious and/or not changable/influencable by will. Like a very genuine and real smile coming from happyness/interesst/or a feeling fo sympathy. Those can be activated by some people contiously to a dregree but even those seem to have a limited capacity to do so. Mostly at the mercy of unknown subcountious brain regions. (We cant choose to influence pulse for example, but even that is easyer by actions than what im talking about. Its very complex not jet figured out and the DSM 5 only has "symtoms to identify" those sympthoms are not only superficial they are basically non isues. You can take all the dsm symthoms and you have done nothing or barely anything for my adhd. You mearly taken away externally verifiable corrolative minor symthoms. Like a person in extreme cold shaking, shaking is not the problem. The cure/treatment therefore should not be tape to immobilize them for the shaking but a warm fire or clothes for the cold temparature.)
Yes! This makes so much sense. For me and a few of my kids. I love how this Dr explains things, and how they link up. I’ve been misdiagnosed with various things, but mainly auto immune stuff (RA, PSA) hyper mobility, and recently ADHD, and going through the early diagnosis for POTS and SVT. My one daughter has Autism adhd and hyper mobility that might be pots, Eds etc.
OI orthostatic intolerance. Yoga says brings your hands above your head when you get up (mountain pose) to help ameliorate OI. (I have been impressed lately with how yoga really “has a pose for that.”) :)
I just started watching this, and straight away I had to google 'hypermobility' I thought, that sounds like me, being an adult with ADHD and being on the go non stop with unlimited energy. Nope I was wrong. But it does explain why I was very good at gymnastics as a child. Unfortunately I was only diagnosed in my mid 40's so that now in my 60's I'm only just finding out how all my other issues such as depression and anxiety are all connected to my ADHD and have been exacerbated over the last few years because of the covid-19 lockdowns and my immediate family not understanding why I'm feeling the way that I do.
I’m inattentive ADHD with EDS. My mind goes 100mph in 10 different directions sometimes, but EDS related pain causes me to be drained of energy, so I am just active enough to be healthy.
Peace be upon you. I have a rise in tryptophan 14 and sometimes a decrease in the temperature of 34My blood pressure drops to 80-40, especially when sitting and lying down and I have a pulse of up to 200 and the hands and feet are constantly cold even in the summer and sometimes very excessive activity and longevity with a greater percentage of lethargy and general fatigue and I did an atomic scan on the body and Magnetic resonance imaging of the brain, EEG, prolonged EEG, Holter 24 hours, tablet test, CT scan of the chest, Echo, EKG, blood picture, sodium, potassium, magnesium, cortisol stimulator, aldesterone, Free T3, Free T4, Parotheroid hormone, ACTH, TSH, and immunoassays for ANA, C3, C4, and IGe, and no one knows whether they are rare syndromes in the body of certain acids, neurotransmitters or enzymes. I do not know. Please help and thank you very much. And sometimes automatically I bring back my memories of 25 years ago and I am 28 and they come up with major events and when I remember that they come right after every two minutes and sometimes I arrange the events again and say this is the last time but I can't and I remember the same I apologize to you that I did not have the honor to meet you and wrote you. I accidentally saw your lecture on UA-cam because I am from Egypt and there is no doctor who knows me who can diagnose me and I do not leave the house at all except on an emergency basis and they cannot diagnose and only stress reasons and even at home I am sick and I do not sleep because of that When I sit or sleep in a lying position, the pressure drops suddenly 40 degrees frequently and every day I have been like this for 3 years and the first two years I used to work and resist, but now the fatigue has increased very much and I cannot sleep from the low pressure and 3 times I wake up more than 7 days and I do not know What's wrong with me, thank you and I'm sorry again, thank you
Still waiting on the autonomic causes of divergent thinking, hyperfocus on interests, and other "superpowers" of ADHD...🤔 Until you prove that, you don't have a valid argument that ADHD is just autonomic. It might be an exacerbator, but you have yet to prove that it's the whole cause. Just as a note, fexofenadine is OTC in the U.S.
Wow, that was disappointing. I forced myself to listen to your entire talk, hoping that you'd have some answers that might help me, unfortunately all I got was more possible connections to other disorders. Cheers
Yep 🙋🏻♀️ I agree there are definitely links between EDS/HSD, Neurodiversity including ADHD and Autism, MCAS including histamine intolerance and Dysautonomia including orthostatic intolerance and POTS and the gut/leaky gut and brain inflammation including migraines. Please please give more support and validation to us patients who have lost our patience with dealing with so many different specialists looking at just one aspect and not the whole person.
YES!!!
not to mentionan females specifically.
I’ve been diagnosed with EDS, ADHD, POTS, and ASD. Hmmmmn. Lots of family members too. Lots of overlaps!
Please watch Dr. Ross Hauser's UA-cam videos.EDS can lead to Craniocervical instability.He proves that Cervical instability leads to POTS,MCAS,Dysautonomia and all related issues. I am in the same situation like you ,maybe additional 15+ illness.And only his videos, his treatment method prolotheraphy and carnivore diet helped me to improve.Additionally you can have look Rachael Elizabeth UA-cam channel for get detailed information about carnivore diet and autonomic nervous system regulation.I hope all the patients like us get well soon🙏
I was just talking about this with my therapist. She asked if my ADHD was actually EDS. And it's a Yes-and-No answer. EDS causes our dopamine to be more drained, because we are constantly trying to hold our bodies together to keep pain at bay. I am new to EDS, but I have been diagnosed and treated for ADHD since 13. I am 41 now.
Your blessed to have a therapist that actually knows what hEDS. I’m 65 and struggling.
Thank you! This sums up my last 7 years of research. I've come to the same conclusions and I know others from the neurodiverse community that also have. You're on the right track, we just need to get this information better disseminated through the medical field so we can get professional support! Hard doing this alone without a medical background...
God yes, medical field is highly uneducated on ND and physical symptoms
Can you sum up what. You’ve found
Thank you so much for this both to the EDS & Dr Kustow. This doctor is phenomenal 👏👏 he gets it and explains everything beautifully and straight to the point. I like how he has included all the up to date research (because brain fog has stolen my ability to learn and I was a post grad student). I’m only 12.46 mins in and he is explaining my life and no doubt everyone watching. I also have an explanation as to why I can’t think straight if there is too much stress triggers for me. Thank you again.
Yoga has helped me with a lot of these symptoms you have mentioned.
For example. I noticed that when ya get up, yoga wants you to bring your arms over your head. (Mountain pose) It’s to deal with orthostatic intolerance OI.
I’m always impressed with how yoga actually has actually already looked at that.
Omg. This is what I have I have Hypomobility my physical therapist just put it in her notes. I did have brain fog but Provigil seems to be helping with that. I also have Multiple Sclerosis and various other things but I have never been diagnosed with ADHD. I don't know what to do anymore my brain is like going at 50 mph doing 20 things at once then forgetting what I need to do. I am oblivious of time and I am just rambling I guess but It really affects me. Thank you for speaking about this and sharing various research.
Amazing presentation!! Thank you so much! I have EDS and ADHD.
Fascinating video. Thank you
Thank you for your contribution to humanity. *Greetings and well wishes to you from Los Angeles.
Came to learn about possible correlations between my dysautonomia and ADHD - both late diagnosis
I have POTS and Raynauds and I agree
The root of MOST diseases is Inflammation . Great work
May also explain why unisom (doxylamine) is so helpful for my Insomnia
Btw, how does lower resting muscle tone affect all of this for us…..
🙏🙏🙏🙏 thank you! I knew in my heart that these were all connected!
So very validating. God bless 😇
I wish i was hypermobile and had a sickpack. While i try to do insane amount of sport and clean diet and good sleep and social i dont thinkt those impact/cause/effect it much at all. The most is sport and that is a insanely minimal amount and only at insane amounts of effort/discomfort spent.
many adhd people high overweight and little fittness associated with it. It look at it much more from a anhedonia/apathy (not cognitive but subcontious)/lack of motivation those have 2 major effects 1) Not blunting / hiding discomfort/pain/bad feelings 2) Not activating the subcontious/contious executive functioning/"brain-jarvis/assistant" that seem to be activated and help with problem solving, emotions, perfects timed things, visual and auditory remembering and so on. They especially activate automatically (differently in different people how much is subcontious/contious it seems) (and barely any people that are much aware, and of those that are only partially/confusely) in social interactions where they objectively influece tone of voice, sentence/word/strategy selection, and facial and bodily expressions that are subcontious and/or not changable/influencable by will. Like a very genuine and real smile coming from happyness/interesst/or a feeling fo sympathy. Those can be activated by some people contiously to a dregree but even those seem to have a limited capacity to do so. Mostly at the mercy of unknown subcountious brain regions.
(We cant choose to influence pulse for example, but even that is easyer by actions than what im talking about. Its very complex not jet figured out and the DSM 5 only has "symtoms to identify" those sympthoms are not only superficial they are basically non isues. You can take all the dsm symthoms and you have done nothing or barely anything for my adhd. You mearly taken away externally verifiable corrolative minor symthoms.
Like a person in extreme cold shaking, shaking is not the problem. The cure/treatment therefore should not be tape to immobilize them for the shaking but a warm fire or clothes for the cold temparature.)
12:20 to 12:40 Bit suspicious that no one correlates ADHD symptoms with standing up quickly then
Autonomic system seems to run literally everything in the body?
Yes! This makes so much sense. For me and a few of my kids. I love how this Dr explains things, and how they link up.
I’ve been misdiagnosed with various things, but mainly auto immune stuff (RA, PSA) hyper mobility, and recently ADHD, and going through the early diagnosis for POTS and SVT. My one daughter has Autism adhd and hyper mobility that might be pots, Eds etc.
OI orthostatic intolerance. Yoga says brings your hands above your head when you get up (mountain pose) to help ameliorate OI.
(I have been impressed lately with how yoga really “has a pose for that.”) :)
I also think there is a link with sarcoidosis
ADHD تشخيص و اعراض وعلاج مترجم ADHD Signs ,animation , treatment
I just started watching this, and straight away I had to google 'hypermobility' I thought, that sounds like me, being an adult with ADHD and being on the go non stop with unlimited energy. Nope I was wrong. But it does explain why I was very good at gymnastics as a child. Unfortunately I was only diagnosed in my mid 40's so that now in my 60's I'm only just finding out how all my other issues such as depression and anxiety are all connected to my ADHD and have been exacerbated over the last few years because of the covid-19 lockdowns and my immediate family not understanding why I'm feeling the way that I do.
I wonder though if the connection can be explained in many ways. ADHDers are more hyperactive - perhaps that has an effect on joints.
I’m inattentive ADHD with EDS. My mind goes 100mph in 10 different directions sometimes, but EDS related pain causes me to be drained of energy, so I am just active enough to be healthy.
I believe the title was the most misleading element of all. 'Managing ADHD'
I agree that there's got to be something going on here
Peace be upon you. I have a rise in tryptophan 14 and sometimes a decrease in the temperature of 34My blood pressure drops to 80-40, especially when sitting and lying down and I have a pulse of up to 200 and the hands and feet are constantly cold even in the summer and sometimes very excessive activity and longevity with a greater percentage of lethargy and general fatigue and I did an atomic scan on the body and Magnetic resonance imaging of the brain, EEG, prolonged EEG, Holter 24 hours, tablet test, CT scan of the chest, Echo, EKG, blood picture, sodium, potassium, magnesium, cortisol stimulator, aldesterone, Free T3, Free T4, Parotheroid hormone, ACTH, TSH, and immunoassays for ANA, C3, C4, and IGe, and no one knows whether they are rare syndromes in the body of certain acids, neurotransmitters or enzymes. I do not know. Please help and thank you very much.
And sometimes automatically I bring back my memories of 25 years ago and I am 28 and they come up with major events and when I remember that they come right after every two minutes and sometimes I arrange the events again and say this is the last time but I can't and I remember the same I apologize to you that I did not have the honor to meet you and wrote you. I accidentally saw your lecture on UA-cam because I am from Egypt and there is no doctor who knows me who can diagnose me and I do not leave the house at all except on an emergency basis and they cannot diagnose and only stress reasons and even at home I am sick and I do not sleep because of that When I sit or sleep in a lying position, the pressure drops suddenly 40 degrees frequently and every day I have been like this for 3 years and the first two years I used to work and resist, but now the fatigue has increased very much and I cannot sleep from the low pressure and 3 times I wake up more than 7 days and I do not know What's wrong with me, thank you and I'm sorry again, thank you
I like to add LiME juice to my water to help me hydrate better as well.
❤
Still waiting on the autonomic causes of divergent thinking, hyperfocus on interests, and other "superpowers" of ADHD...🤔 Until you prove that, you don't have a valid argument that ADHD is just autonomic. It might be an exacerbator, but you have yet to prove that it's the whole cause.
Just as a note, fexofenadine is OTC in the U.S.
Himalayan rock salt… 🦆
Wow, that was disappointing. I forced myself to listen to your entire talk, hoping that you'd have some answers that might help me, unfortunately all I got was more possible connections to other disorders. Cheers
🙏🙏🙏🙏 thank you! I knew in my heart that these were all connected!
So very validating. God bless 😇