Girl With Real Tourettes Reacts To TikToker Baylen Dupree
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- Опубліковано 8 лип 2022
- Hey everyone! Today I wanted to react to Baylen Dupree - an influencer on TikTok who also has Tourette Syndrome. I wanted to talk about my opinions surrounding her tics, as well as provide some education in the process! This is formatted like my Tics and Roses videos, but with a different outcome! (:
As a girl with Tourette's, I would love to spread awareness and education about my disorder, as I feel it is quite misunderstood in today's society. The media has made it out to be a swearing disorder only, which is far from true. I hope this video will educate you on Tourette Syndrome and tic disorders! Life with Tourettes can be difficult, but just know that we're the same as everyone else...except for the fact we tic like clocks! (:
Thanks for watching!
Follow me on Instagram! @ticcingclock
TikTok: @ticcingtogether - Розваги
when she said “hello “hello” & you replied “hi” at the perfect moment!!! That was so cute. Ik how hard this can be. But you are so strong & not alone!!
Haha thank you 💜
I love when peoples tics set off others peoples tics like that. My dad and my brother are both on the spectrum and they recite lines from videos they watch. Whenever theyre in the same room they just set each other off and recite a whole bunch of lines from random things lol.
She actually talked about the origin of the "ello ello ello" tic. She was watching another Tiktoker, and that lady did it. It was something she picked up. She also has a seasonal Christmas tic that was triggered by Christmas music. I'm still looking for what Hunter did!
Good catch!!!! 👍🏻🫶🏻❣️
By the way... The fear of being fakeclaimed is pretty much why i dont do any tiktoks about it. Or youtubevideos. I have just mentioned it but nothing more. :/
1000000% being fakeclaimed is so brutal & hurtful. It definitely affects my mental health so negatively
I have made a video or 2 on tik tok, but I don't talk more about it, for the same reason, I've had tics & body movements my whole life... I am 40 so back then nobody talked about it for they thought that Tourette tics were only for ppl who were severe & my family always picked on me, asking me why my face made weird movements & how I looked so peculiar, & they would copy me when I did it.. I was soooo embarrassed my whole life until Loren from 90 day Fiance was ticking through the first season. I immediately recognized it & season 2 came out & she started talking about it, & it gave me courage to come out & talk about it.. & that is when I realized I WASN'T WEIRD!!!! I can't control it, I try to mange in public, but that doesn't work. My husband will come up & wrap his arms around me & give me a bear hug to calm me down & my tics have changed as I've gotten older.. anyways I finally felt comfortable with it, my 13 yr old Autistic son also has tics also but then all of sudden "Catching tics & faking them" became popular so I went back in hiding.. That makes me so mad, ppl have nooo idea what we go through in life... & pretending like they have it, IS NOT CUTE...
I have Autism and ADHD (as well as a couple of mental health conditions) and I'm afraid of being fake claimed too. I don't post just because I already deal with imposters syndrome, and all forms of mental, neurological, even physical conditions are being faked so much that I'm afraid of making the imposters syndrome worse
@@awkwardlyamy3765 I’m so sorry you were made fun of by your own family growing up for a distressing condition you couldn’t control. You are so strong to have made it out of that house and into the arms of a man who sounds like he supports and loves you very much. Your son will do well to see the strength in you in travelling his road ahead. My boy is on the spectrum also. Best wishes for a brighter future!
I'm straight up afraid to go on video/mic chats because I don't wanna be fakeclaimed. My tourettes is very mild, I just tic a few times a day, but it does get worse when I have to talk a lot, and some people think my shrill beeps are "cute" (despite them hurting my throat...) so I avoid it at all costs.
Thank you. I saw so many people saying she's faking and I just kept telling them, no she's not. You say you're not a big creator, but you're a lot bigger than me, and people listen to your voice! Keep doing what you're doing!! I appreciate your channel so much.
Thank you!! I appreciate you too 💜
@@dootdoot94xo44 it's insane fucking 😓
There are a lot of kids out there faking x,y,z for tiktok clout these days tho, INCLUDING tics and other mental health things. People who have been caught and called out. So thats why people question it, people will do anything for internet fame these days.
@@lessthanahome true
@@lessthanahome I'm sorry to ask but what's xyz on tiktok im kinda stupid so..
For the breaking the egg bit- as someone who doesn't have tourettes, I get intrusive thoughts about breaking/throwing eggs or other fragile/glass objects and im pretty sure thats something almost everyone experiences. The difference is I dont have tourettes so I can control that impulse
I do as well with stuff like that. I don't know why but with some fragile stuff, especially like eggs, I get the urge to just crush it in my hand. Sometimes I have but it's always a conscious decision I've made
@@DestinyKiller what does it feel like lol
@@rebeccashores2306 sharp, egg shell can get very jagged and stick in your hands if you're not careful and very very gooey. Egg is also a pain in the ass to clean up so if you do want to give it a whirl I'd do it over a bowl or the sink or something. But be warned that you can cut yourself on the shell, some are thicker than others and will break more jaggedly rather than crush
Yeah same I don't have Tourette's but I get the urge to throw eggs across the room or drop glass things but I don't do it.
@@navareeves8976 gets pretty dangerous when you get the urge to just stop in the middle of the highway
I think it is so sweet that you seem to be ticcing less when you interact with Daisy. It is like your brain is able to focus on something else and have better control.
Daisy definitely helps me out!! 🥰🐾
I noticed that too. It's like the dog is truly comforting and relaxing for her it's so sweet ❤️ 😍 💖
I just commented thinking the same thing! I love that for her
Her dog is so cute it’s unreal
Thank you for validating her. I've seen her shorts on UA-cam a few times and everything she did never came off as fake to me. I've seen her baking video and that video alone is enough to seem legit
Yeah she’s 100% legit imo
I know every since I like new her I saw her like a month ago on tik tok I always knew depree tics were 100 percent real
@@TiccingTogether
So she can barely bake, but she can be still enough for a full face makeup, fake eyes lashes, fake tan, done up hair, and nails? There's quite a bit of makeup and it doesn't look messed up in the slightest.
You cant pick and choose, right?
@@ProlIy i saw another streamer with tourettes talk about how tic can change with factors like anxiety and level of focus on the task
@@ProlIyyou can do makeup and have Tourette’s moron, the video OP is wearing makeup, you’re not constantly ticking. And tics can be suppressed
Also, watching, I guess it’s her mom, in the baking video, that is genuine seriousness she has trying to help Baylen do something “normal” but also helping her navigate baking with Tourette’s. I 100% agree she’s legit.
Definitely! I also noticed after she smacked the egg on her head that she puts her hair back - so there are clearly bits of time in between the video & she’s clearly trying to accomplish baking with tics that are preventing her from doing so
My neighbor had this disorder. I'm talking 80s. Lots of jerky movements, barking and f**k embedded in everything. It was severe, yet he was so nice. Always helping my mom and offering to help the neighbors. We all got used to it, and saw past his condition. Yes, the tics can cause people to laugh. That's a normal reaction. But that soon ends, and you see past the tics. Thank you for making people aware. ❤
I love how much awareness this channel shows and how much I’ve learned about Tourette’s
Same!!
Literally, she gives so much insight and it's so educational!!!!
I’m so glad you guys are learning 💜
@@TiccingTogether i was feeling sorry for myself earlier my eye has been stinging and sore and then i see someone like you and it blows me away how strong you must be. very brave and courageous and i feel ashamed of myself now for whining.
Not to mention she looks so pained as you do when you tic. You can see the frustrations
That was so interesting and very important. Thank you!
I haven't seen much from Baylen Dupree. There was maybe one video of her putting on make up in some of these compilations, so I haven't seen many tics and I didn't think much about it.
It's like you said: She has repetitive tics, she's not laughing after every tic and there is more force behind her tics (don't know how to describe, but her yelling is very strong and her movements and punches, too) than in other videos from fakers. Fakers are always careful to not hurt themselves and they laugh after every single tic. Sure, there can be a funny situation, but that's rare. You can actually see her concern in the baking video and she asks for help, because she clearly knows she can't handle that. Fakers would have messed up their kitchen and laughed. She is open about the fact, that she can't drive. Fakers have the most severe tics while driving.
I'm so glad that I've seen your video and more about her to form an opinion.
I definitely agree! 💜
One of the best things with dog (or well, any pet) is that they dont care one bit about what you say or look like. My four pets are an excellent outlet for all weird vocal ticcs and OCD-stuff :) Your pup is soooooo adorable!
Thank you! I LOVE pets 💜
"Fuzzies" are awesome. My cat wants food, attention, and company.
The main difference that makes me believe she's legit compared to Tics & Roses is her tic attacks are a bunch of different ones that she goes through one immediately after the other instead of one, a video cut, another specific tic, a video cut, etc. And to what you said about the building impulsivity, you could see it building and she insisted the other person take the first egg because she wanted to prevent exactly what happened with the second egg. Also, in that baking video, instead of someone just sitting back and filming to frame the "funny moments" she had someone there who clearly knows her struggles and can help when needed so she could still accomplish her tasks.
Also all of Tics and Roses tics are all “quirky” and never repeat, at least as far as I’m aware.
@@RB-vo4gi some do repeat, but not many or often.
Yeah and the fakers never have unflattering tics
So refreshing to see you spread positive vibes... & shame on anybody who make "faking a disorder" of any kind an actual thing!
I’m glad you addressed and talked about her. I was so confused when I saw people saying she was faking it but you can just tell when someone is faking or not. Thank you 🙏🏼
Tourettes mom here.
So many of your ticks look so painful.
This is my first video of yours, and you have my admiration, and thanks for sharing your story and educating.
I'm subbing because you deserve all the subs!
The way her mom reacts seem very genuine, she's not over barring but she knows her daughter and is there to help her, thank you for calling out the fakers and helping people who actually have this syndrome and making a safe community for them
my gym teacher's son has it , hed do the smacking his head and neck tics, he always would scream and clap for 3 minutes straight .exactly like Baylen did...she was very supportive she would hold his hand once school was out he went to he same school as me and she would let him smack on her cause she knew it was tourettes
Even as someone with no experience with Tourette's-- I can't help but be alarmed by how eager people on the internet are to accuse people with disabilities or neurological disorders (people they've never met and don't know at all) of faking. Obviously there are occasional cases of this actually happening like with Ticsandroses, but the way a lot of people's first impulse when they see someone with a disability online is to assume they're making it up for attention is pretty depressing.
I honestly think it's a result of that anti tumblr crusade back in 2014-2016 where the "cringe disorder" pages were exposed
It's sad. But don't let it depress you honey.. those are just people that have been hurt and are not yet healed by therapy or Jesus. Whatever they need. You just keep on keeping on paying attention to those that love you fr because those people have the truth about you! ❤️
What's worse, the people who do actually make it up for money and clout or those who are suspicious because of past known frauds? It's healthy to be skeptical of anything you see on the internet.
I got introduced to tourettes because of Sweet Anita. I don't have it, but I appreciate and love people like you who help and inspire others despite how debilitating it can be. Thank you for what you do😊💚
My husband introduced me to Baylen Dupree’s tik tok videos and we laugh or smile at her videos, while having compassion for her. I had to step away from watching her because i wanted to make sure that I was watching to support her and understand and not just find it humorous. I don’t think there is a way “not to find humor” in some of her videos and I think (as someone also having a disability) she would want to humanize, entertain, and educate what she goes through. I am visually impaired and have recently started using public transportation in Pittsburgh. I use my cane but I am amazed how many people look at me and think I am faking or they look at me like they might “catch” what I have. I see parents pull their kids away from me instead of educating them to be aware of visually impaired people. I don’t have the “blind look” I have my central vision (very little,very very little) and absolutely no peripheral, no depth perception, I am color blind and have night blindness. IT SUCKS. But I live, I do everything that I can to be a part of society and if I am getting looks and comments from people just carrying a cane I can not even fathom what Braylen goes through when she has a tic out in public. People are rude and feel like they have the right to say something. We need to go back to the “if you can’t say something nice, don’t say anything at all. Your video was great and glad to “see” it pop up in my suggestions. Take care
Thank you for sharing your story!! Sending you so much love ❤️
I love this concept because there truly is enough hate and there are enough people jumping on hate bandwagons. That is much easier than standing up for people. It's always been hard for me to be open about my disorders because of that fear of not being believed.
I have a huge fear of not being believed, even after I got a diagnosis of Tourettes I still experience imposter syndrome
I love all of your videos and how open minded you are. You seem like one of the most genuinely kind you tubers I’ve watched and you’ve taught me so much about Tourette’s
Your dog is so cute! Also, thank you for doing this video! It’s really sad that some people fake claim everybody because they just think that everybody is faking it when they aren’t. People do have it. But some people also just want attention. I’m glad you make this video. I love your channel! ❤️❤️
You can absolutely get on Dr. Phil and be lying. It's never a good idea to believe that something is true because you saw that thing on tv. That can be a dangerous assumption to make. (I'm just speaking generally here, not specifically in regards to Baylen. Baylen seems very genuine.)
yeah but he tends to call people out for lying tho
@@leoheartstrings4720 he totally is
As she said, surely she would need to show her diagnostic papers to go on the show?
@@kristalann5151 bro the show is fake. They just care about views. They don't care about "diagnostic papers"
@@ridnateliblade1022 He's also lying, tho.
He's not a licensed and practicing clinician or doctor in California; his title is honorary because he has a doctorate.
He went from practicing (badly) to being a corporate shill. You can look up his history and find loads of problematic behavior and scammy tactics.
His show isn't for helping people, it's a platform for exploitation.
I think you both are great. I’ve learned a lot of good/bad/ugly. You both have beautiful heart and souls. Thanks for sharing bits of your life with all of us. 💜🙏🏻
My sister, and students, have autism spectrum disorders. My classroom sometimes is a room of echos. I adore my little echos but understand how frustrating it can be on their end. 🖤🖤🖤
Not sure if you’ve discussed this specifically, but I’d be interested in hearing you discuss vocal tics. I know you’ve discussed the “wow” tic and how other people’s vocal tics can influence your own.
Anyway, I’m glad UA-cam’s algorithm suggested your channel, great work! 😊
First video of yours I've watched (I accidentally stumbled onto it... don't even recall how), but you're right. My 14-year-old daughter has Tourette's and her tics are very similar to both yours and Baylen's. She's also had the echoing tics, where she'd repeat movements and/or sounds. There have also been once or twice that she'd have a weird one-off tic and we'd be like, "what was that?" because of how uniform and "regular" her "normal" tics are.
But she also despises people faking Tourette's (or any other disorder... her brother, my son, is autistic and she's very protective) because she tries so hard to control hers. And no medication is really helping; her only other option is to go on some really strong antipsychotics which neither, I, she, nor her doctor, think is a good idea.
People should really stop faking illnesses. It makes it so much more difficult for those of us who really do suffer. Our children having mental diagnoses, and myself being physically disabled, I've been exposed to people either faking or - because of the fakers out there - accuse you of faking your real diagnosed illness. It's not fun being accused of faking being in pain and disabled, and I imagine it's not fun to be accused of faking Tourette's or autism (and from what I witness with my children, it's not).
People go to ridiculous lengths to not look stupid when they're shown the legitimacy of what they called out as fraud. I've been accused of faking blindness way too many times because I'm tech savvy and can walk while using my phone in one hand and a cane in the other, or doing things they'd expect of someone they consider normal. like smoking, dating, partying. Holding down a job. The worst case of really stupid I've ever heard of though was when someone accused this girl of faking blindness, when she literally had no eyes. I wish I could've seen the look on their face when she popped out her prosthetic and handed it out to them lol.
Oh my gosh I watched this in my tics were going nuts the whole time wonderful content as always Carly
Sorry about your tics!! Sending you love 💜
i agree with you! her tics are like mine on a normal day. i think that the people who say that she’s faking are people who have never actually researched tourettes and watched or talked to people who have it. for me, it’s pretty easy to tell
also side note, doctor phil is absolutely not a reputable source. he’s known to have absolutely anybody on the show if he thinks it can get views. he doesn’t really do much in the way of helping the people on the show, and when he does, they go to questionable people for help. the ranch is a great example of that. the ranch is known for its questionable practices. i highly suggest looking into it! not your fault for thinking that he was a good guy, he’s done everything in his power to fool people into thinking that
Thank you so much for the video. I found Baylen about 9 months ago and I genuinely have learned so much. You're an amazing brave person ❤️🥰
I saw one of your videos on Tics and Roses a few months or so ago, and I’ve been looking for your videos ever since. I’m glad I found your video. A lot of videos about fake disorders and Tourettes have been showing up in my UA-cam recommended ans even with fake tics it makes me tic sometimes, but I’m so glad to see that you are going through ans taking the time to show real people with real Tourettes.
I only have a couple of tics and I’m always trying to learn more about Tics and neurodivergency so I can not only look for signs of such in myself but I wanna be able to educate people as well. One of my friends has recently asked about Tourettes and I find you to be a reliable resource so thank you ❤️
You have a real gift in what you do. You are doing such a great job educating all of us. Bravo!👏👏❤
Thank you for showing this. I honestly didn't know a lot about this syndrome. Thank you for showing us more validity of people that live with this condition. Love 💘 from Canada
She didn’t say that. She said that she would have had to show proof to be on tv. (Big difference)
“Dr” Phil is a JOKE to me too (I can not stand him!) … but what Carly said is true. It would have been a big scandal if his team allowed someone to come on saying they had Tourettes and they didn’t show proof.
@@rachel-in-the-208 i should have re worded that but however I agree.
I meant no ill matter in saying that, it was a thought that I just depise him.
@@JinxMarie1985 Well, I certainly CAN NOT fault you for despising the man!! (He makes it very easy!)
Thank you for bringing awareness and lifting others up who need it
I’ve been following Baylen Dupree for a while on TikTok. I never thought she was faking, so I’m glad another person with Tourette’s is validating her. She gets a lot of negativity and called fake. Although I like saying “you’re done” and “wind it up” because it’s valid in some situations and funny. But I am in no way pretending to have tics. Thanks for sharing and educating us about Tourette’s 💜
When I get stressed out, or have anxiety, I blink my eyes. I mean a LOT. I have done it as long as I can remember, and honestly don't even notice it anymore but is isn't something I can control. Thank you for bringing awareness and education to everyone.
I have the exact same problem with the eye blinking and rubbing of the eyes, uncontrollable yes definitely!
omg this is amazing you've done this for Baylen!! I have seen people try to fakeclaim her, and with all the creators that use their fake disorders for clout, it's becoming more and more difficult to sort the real from the fraudulent. good on u carly!!
Fakeclaiming is so harmful 💔
@@TiccingTogether hi I'm mckennzie
Thanks for making these videos, I like them, but I also want to say that even though I haven't finished watching the video, I really love this video idea of validating people instead of tearing them down. Lots of people want to tear down because it's easy to do, sometimes it's necessary, but I also think public validation is great!
I just found your channel on my Suggestions page. I've seen some of Baylen Dupree's videos and I felt that she truly did have tourettes. Her Tics were very random and you could sometimes see the frustration in her face. I saw your video exposing Tics and Roses and I had seen one or two of her videos before too. She to me did not have "tics" because it was random stupid stuff she did. (Like putting the bag on her head).
Thank you for being here and talking about this disease. I've learned quite a bit. I know it is difficult at times for you and you have my admiration.
Dr. Phil has had guest related scandals and he’s really not a proper clinician anymore. But yes, there is a stark difference between her and T&R.
I love this video some much! Thank you for spreading awareness about people who aren’t faking and being really nice about it and providing evidence!❤️ Thank you for educating me and everyone about Tourette’s and how tics work! ☺️💓
Hi Carly!! It's wonderful that you educate people on tourettes. You are such a blessing to many. ❤
Your videos have educated me so much. thank you for spreading knowledge and kindness!!!
Okay so why did she say she didn’t have the cursing tics and wasn’t the 10% but then couple months later says she does
Thank you for bringing awareness I never thought she was lying. I have seen how it affects someone when they are told that they are faking. My dear friend couldn't take all the hate and being made fun over and over even her family would do it. Sadly my friend took her life and it is hard to see ppl being made fun of for their disorder.
That is so awful.. I'm so sorry this happened. 😢
thank you so much for validating! :) one thing that i find interesting about vocal tics is that the phrases are very unique to each person!! everybody is different and unique from one another!! Tourette's or not, everybody is beautiful & special. :)
I always appreciate your videos, and even though watching them always kinda activates my tics, It's always nice to know I'm not alone ^-^
Thank you, she’s one of my favorite tik tokers because hers are real and it hurts my heart that people keep faking mental or neurological issues and this is coming from someone who is psychologically diagnosed with adhd, anxiety, depression and ptsd. Too many people keep making mental/biological issues clout and it pisses me off.
I love watching your videos! You seem like such a sweet and genuine person. Please don’t stop spreading awareness, it’s helping so much. I’ve learned a lot about Tourette’s Syndrome and you’ve set straight a few misconceptions I’ve heard about it.
Also, you’re super cute!! I love your hair like that
Thank you so much! I love spreading awareness the best I can 💜
Thank you for your very informational response to the haters. I am so proud of you for actually putting yourself through the tics of watching Baylene's tics, to make your point. I do not have tourette's, but I work in Special Education with a wife variety of diagnoses and I am interested in learning all I can about what makes my students "tic" no pun intended!!! Again, thank you for teaching us and giving us the information we need to be well informed!!!!
I've seen the channel Ablaze say that Baylen is faking, and I always thought she was being genuine, so thanks for doing this video! ❤️❤️
You’re welcome! Honestly fakeclaiming is so harmful
@@TiccingTogether yeah, it just reinforces a lot of harmful stereotypes, and ends up hurting people with the conditions being fake claimed. I'm so sorry you have to deal with that, I can't even imagine how that must feel. All the hugs❤️❤️ Thank you again for all you do🙌🙌
I really wish she'd watch this video
@God is a Critter Oops, I got Ablaze and another person mixed up...
I do too, I wonder if people could get the word to her somehow, she seems very open to being corrected.
@@MadeOfConfusion who is she?
You guys make me feel so much more comfortable. I am still made fun of and people say I am an “attention seeker” and “fake”. It hurts my feelings but what hurts my feelings more is the fakers online who just sort of, to me, belittles the importance of the disorder. It hurts and makes me so frustrated. But this just makes me know that this pain is shared. Of course I wish it wasn’t, but I don’t feel alone now.
When you mentioned echopraxia(sp?), It kind of made me wonder if it's like that feeling when you see or hear a yawn and have to do so too. I know it's different and having to mimic tics against your will must be so difficult. Also I love your channel and you educating us all from your personal experiences!
I'm proud of you for calling bullshit where you see it while also defending legit patients. BIG kudos to you! Mad respect! Videos like this may not get as many views because you aren't "calling her out" but they are so unbelievably important. Thank you!
Thank you for this, so many calling her out as fake I needed to hear someone 100% legit like you to explain the truth. Thank you for educating myself and the public. Subbed!
I don’t have tourettes nor do I know anyone with it. Also no idea how I found this channel, but I’m so happy I did. Yes for awareness and teaching us something new. ❤️
Same. To all of that. I have no idea how I ended up here but I'm glad I did.
You might have found her if you watch tiktok review on UA-cam or watch other people with disorders because I do and I just found her today
Hi Carly! I also like Baylen and I don't think she's faking. Thank you for this video and all of your other ones. It's important to get facts out! I have ADHD and there are so many misconceptions about it as well, it's vital that we do our best to educate!
Thank you for being so nice to Balen! All of you who have to deal with these debilitating tics each and every second of every day are sooo strong! I pray someday the damn doctors come up with "something" to fix, or at least help limit the pain y'all go through. Breaks my heart, and my prayers are with y'all always.
❤🧡💛💚💙💜🤎
Awww your pup patiently waiting to give you a kiss! That was the cutest thing ever 🥰 whenever your dog’s around, it seems to help them :)
Not sure how the algorithm brought me here, but glad it did. Visibility and positive promotion is seriously lacking… and it is so refreshing to see someone so candid and honest helping people understand. I know you made a comment about not having as many views or subscribers as the young lady you were reviewing… but your voice is just as strong… and if only one set of ears hears your story, you have made a difference for the better. Beautiful person, big heart, and an important message - thank you. ❤️
The neck tension is so real. I haven’t had tics for very long (almost two years) and my neck is like, permanently stiff. I can’t go a few minutes without needing to crack my neck or shift it around to relieve tension. Just because of neck tics. And a slight bit of bad neck posture
I love the new background and you look really good in the video, like a friendly teacher!
Yes, she looks beautiful in this video!
Thank you guys 🥹
Daisy is delightful and it looks like she makes you tic less when you hug her. Yea, Daisy! It is very cool of you to stick up for that lady. Being told you are faking, or depending, that you don’t really have anything wrong with you, is very painful and sometimes it’s infuriating.
It’s late here, NYC, so good night to both of you. 🌻🐾💜
Ooooo I’ve been waiting for you to react to this one! Thanks for sharing your thoughts. ❤
Thank you so much for this. When it comes to accounts of people with disabilities, whether they are or are not faking, All we should do, is not say anything about if they are or arent faking it. Its none of our business. And people shouldnt have to prove whether they are or arent fake. It should never have to come to that in the first place. Its not fair to those with disabilities who just want to live there life and post content without having to argue with people everyday about whether or not theyre legit. Just let people live there lives, let the ones who are faking it get called out for it, so that they can get banned or just loose all their views all together. Thank you for helping people see who are the real deal.
Btw im saying its perfectly fine for content creators to call out the people who are lying, and praise the ones who are telling the truth. We need to help the general audience to know which is which. So that we can just ignore the fakers and not agg them on. And we can support the ones who are telling the truth and hype them up and praise them. And never give the fakers attention again. There is a difference between content creators calling these fakers out, and then just regular people with an account sh*t talking these people in their comment section. Dont give them the time of day. Just watch these videos so you know who not to give the views too.
13:40
In your tics and roses videos you mentioned how tics and roses stopped before anything bad happened. Baylen didn’t (because she couldn’t)
She even had to ask the person near her to help her with certain things which makes sense
1000%
I love that hair style!!! Your so beautiful!!! Keep doing what you’re doing girl!
Thank you for making this video, while i wasnt denying she had tics, i was definitely questioning it because all the comments on her videos would be people saying shes faking, so thank you
the first video is so telling. you can tell she's in pain and exhausted. that's so hard to fake.
When you talked about echoplaxia (probably botched spelling, sorry) and mentioned it was also common with ASD, it really got me thinking. I only have an ADHD diagnosis but previously wondered about ASD.
In the past, I've noticed that I sort of hyperfocus (¿?) on certain behavior and mimick them later on for a little while until I find something else to focus on. For instance, I've been watching your videos lately and have found myself making faces at random or randomly flinching so I'm not sure if this is the same sort of phenomenon or not
ADHDer here- I have severe combined presentation- echopraxia and echolalia can both occur within ADHD too… not trying to be invasive, but when did you get your diagnosis & start your treatment? I have noticed more people diagnosed later &/or don’t get treatment until later or only get behavioral modification focused treatment tend to have similar difficulties & I wonder if it is tied to our drive to brain trying to assimilate & mask
I have aspergers and I tend to repeat songs or melodies a lot, sometimes the sounds of animals around me, or certain short phrases like "Hi!", things that help me calm down in stressful situations.
@@Potato_Bug I only recently got my diagnosis (within the past year) and my only form of medication for it has been Wellbutrin to help with "impulse control" 😵💫
@@ivonas5172 I used to do this when I was younger, certain sections of songs would bring me comfort when I was anxious or upset!
Late to the party here. But thank you. I do not have any neurological disorders but I support Baylen, I don't know enough about it to say that anyone is faking but I see Baylen's pain and I think she's amazing. I'll be watching your channel from now on so that I can learn more about this, thank you.
Great video explaining the condition. What a lot of people don’t know is that isn’t the only condition that causes tics. I have functional neurological disorder and get tics as well. Mine come on when I’m tired, too much mental input into my brain and sometimes for nothing at all, otherwise I twitch a lot which gets worse as I try to sleep. Just for those who are finding themselves doing tics but not as obvious as mine started quite mild and are looking for answers.
I'm glad you were able to validate Baylen. Tics and Roses drove me nuts!
she even has a snapchat/yt segment in “born different” called “people think i’m faking my tourette’s” and it makes me so sad that people fake claim her.
100%
That really is sad.
I love how educational your vids are.
Not that I claim to be able to tell for sure, but after watching a lot of videos of real Tourette's and fake Tourette's, I am noticing a different vibe between the two.
@erin The fake Tourette's videos are generally more fluid, the real ones are jerky in a way that would be difficult to fake. Again, I don't think I'm in any position to say definitively whether someone really has Tourette's or not, but I have noticed patterns.
Also her family knows and I feel like to fake it around her family members 24h/7 would be way to exhausted... the dedication it'll take to fake that level of Tourettes for so long ... just seems impossible
I noticed, right off the bat, that her "Up top, girl-scout!" tic immediately triggered your "I got rice!" tic.
I just wanted to mention that when you were talking to your pup, it seemed like you were able to control your ticcs more, or maybe were just able to focus on soemthing else. If thats true i think its so wonderful that she can help you ❤
I feel even more valid bc she also said that people with autism spectrum disorder have to deal with echolalia and echopraxia
I literally stimmed out of excitement when she mentioned autism 😄
Thank you and those with a diagnosis or are about to get diagnosed you are all accepted and valid 🌈♾️
Especially Carly 😊
Whenever I make rice… but rice… eat rice… in the back of my mind I hear “I got rice”
Thank you for that.
It’s been a thing for me ever since I first started watching your videos lol.
LOL IM SORRY 😅
I love your hair and makeup. You are beautiful. And okay, seriously, Daisy is ADORABLE!!
The video I've been waiting for!!! I'll be back when I'm done watching the whole thing cuz I follow her on tiktok.
EDIT
YAY!!!!!!!!!!! THIS VIDEO WAS GREAT AND INFORMATIVE!!!!!❤️❤️❤️❤️❤️❤️
I don’t know if you remember but I asked you if being in an unusual situation can create new tic for that situation. It was because of her baking video due to the eggs and flour, they won’t be repetitive tics and we’re isolated for the situation. They also seem enhanced at times for comedic effect. I’m in no way calling her a fake or fraud as I’m far from a medical expert, I was just after more understanding. I've since seen other UA-camrs that their entire channel is trying to call her out which was very very uncomfortable as it was someone with zero understanding who was 'exposing her'.
When is Daisy getting her own channel.
Out of curiosity, and I hope this question isn’t weird. Do you notice if your monthly cycle affects your tics? Is there a time of the month when your tics are worse than other times. I know it might be a weird thing to talk about, and I totally respect if you don’t want to do a video on it. I love your videos. And also, your dog is so cute!
This is a great question & I think I will address it in a future video!! 💕
I used to work with someone with Tourette's and at the time I didn't know with Tourette's that there was different vocal tics, I only thought it was uncontrollable swearing but thanks to your videos its helped me educate myself and if I had known then what I know now I think I would have tried to be better friends with him
You are an awesome woman. You are real. I don’t have Tourette’s syndrome but I do have a movement disorder and I pretty much stay home because of the looks I get. I feel embarrassed when people see me.
the reason i never believed it was because i went to high school with baylen, and she never had tics. we had two classes together and we actually sat next to each other in psychology, and she just never had a tic so it was hard for me to believe. she didn’t start making videos about having tics until a couple months after we graduated, so i think it was just hard for me to grasp to be honest. in no way am i saying that she doesn’t have tourettes, but it was just really hard for me to believe only because i did know her outside of the internet.
According to Cedars-Sinai, signs of Tourette syndrome can show up as late as 18 years old, however unusual.
In one of her videos she explained that the effects of the pandemic really spiked her tics
Awww I was just about to say how pretty you look again in this one!! And then you made my day and showed me a pretty pupppppppy too! ❤️
Because I've been watching your channel I've been getting more recommended videos about tourrettes and I keep wanting to correct people that call it a mental disorder because you taught me it's a neurological disorder. I am again super proud of you for spreading the right educational information.
Thank you so much for your support 💜
I did come across her once and not for a second did I think that wasn’t real.
And for all the reasons you said.
To repeat those tics so exact just isn’t gonna happen with someone faking it. Keep being brave -all of you being public with your disorder.
I have tics and tourettes are no joke and some people find it amusing I don't... I appreciate you're videos. 💕
DAISY MUST BE PROTECTED AT ALL COSTS! 🐶
Seeing the baking video is enough for me to not think shes faking. No hesitation on breaking the egg, straight muscle jolting, no thinking
Yessss !!! She fakes a lot ... She may have it .. but she's running with it ! Someone commented that she watches videos to to copy tics ! So they stopped hanging with her ! You just have to watch more ! The video of her singing Victoria secrets with her mom 🤦🏻♀️ obvious faking !
Why are you saying yessss when you're disagreeing with the OP? She's not faking.
@@chelseapoet3664 i guess I read it wrong , I absolutely do not believe all her tics are real ! No way ! She seems attention and several have made videos comparing her own contradictions ! She can't keep her lies straight !
It's called acting
Just discovered your channel new sub I have Tourette’s too with ADHD and there very hard too control I take medication for mine and it helped so much but I will say this people with Tourette’s especially with me is you tic but you don’t remember doing it and people ask you what you just did and you have no clue I haven’t had vocal tics since 2016 and I don’t remember any of them except my family members do I still have Tourette’s too this day and your a brave girl as well for making UA-cam videos about people who have Tourette’s, no doubt that Baylen has Tourette’s❤❤❤
I am a 60 year old man who did not realize my weirdness was autism, until my mid 40's. I was attracted to Baylen because I can empathize easily, and it is fascinating to watch her struggle through her tics and try to rationalize neurological causes, in an attempt to understand my own manner of brain function. I wonder if she has experimented with CBD oil or cannabis in other forms, as it does a lot for me
I also found that after having Covid, it seems like I have migratory pains, popping up in different joints where I normally only have arthritic discomforts, so I also wonder if Baylen caught Covid and it exacerbated her condition
Honestly im 15 and i really want to get diagnosed with a tic disorder and I genuinely hate that my body does the tics, i feel embarrassed as hell and i have to hold them back when i do and my parents refuse to help me get help with it I’ve genuinely hit myself due to them and they can be painful its so annoying i wish i could trade with someone who fakes it so they can deal with what i deal on a bad day
Also yes i have ticed infront of my parents ivr had a few vocals and motor but they nrver reslly heard or payed sttention to them lol
@@pgcthedemon I am sorry to hear that your parents refuse to get you help! I hope that they come around and take you seriously! I hope everything works out for you!
@@enigma2224 thank you! They think im faking because i watch videos like this and I couldn’t explain my tics to them
@@pgcthedemon Have you tried going to the school nurse? When school was in session? Maybe she/he can help you talk to your parents so that they know its not just you faking. I feel terrible about your situation 😥 I know its summer break, but maybe when you return? I cannot think of anything else right now. You don't have to answer this next question as its very personal, do you know if maybe they don't want to take you to the Drs is because of financial reasons? I do not know what else you can do. I am drawing a blank😕
@@enigma2224 we are in a financial issue atm with my grandma dying but before they could have taken me to get help, also i never went to get help from my school nurse cuz idk where one is but their are counselors at my school that next yesr i can try to go to
love ur channel
Thank you! Sending you love 💜
FIRST also love u so much 🥰🥰
On the baking video There WERE SOOOOO MANY FAKE CLAIMS
Ugh I know so many fake claims 😭
My heart watching your ticcs act up watching hers.🥺💛
Haha Daisy 🐾 she looks so soft!
She’s so fuzzy 🥰