My Long Term Chemo Side Effects
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- Опубліковано 16 сер 2024
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I just found your channel through Canuary. Thank you for sharing your journey, I’m a praying woman and you are now in my prayers. ❤
Thank you for being so truthful and open about what you are experiencing. Thank God you are in remission. Just wanted to let you know that I have an aunt who is now 93 y/o and was diagnosed with stage 4 colon cancer 23 years ago. She is tough as nails and still driving from Illinois to Florida and back every year with her 92 y/o husband. I will pray for you that you stay in remission for the rest of your very long life.
Thank you! Your message is exactly what I love to see! It really gives me hope that this was merely a part of my story...the side effects won't go away, but they're a good reminder to do things that are good for me!
So happy you're in remission! I had my colon cancer resection surgery on May 16, 2024 and am Stage 2. Waiting on call from oncologist to see if further treatment is needed.
Thank you! I hope you’re feeling better every day! Hoping you so t need further treatment, but stay vigilant. Praying for your 100% recovery!
What an amazing, articulate video. You are a blessing! Lifting you up.
Why, thank you. I hope you are well, and are in good health. 💕🙏🏼💕
I just found your channel, and I'm so thankful for you and what you have shared about your journey. I am also in my 50's and was diagnosed with stage 4 Colin cancer three months ago. Your videos have given me such valuable information as I have just started my journey. You have also given me hope. Thanks for sharing your story. God bless!
I’m so sorry to hear this news. Please know that you have lots of strength, and there are so many out here who will support you. I am humbled that you find comfort in my videos. Make sure you trust your medical team, and that they fight for you. No question is too silly, either. This is your journey, and you can do it. Hugs and prayers. Please stay in touch.
thankyou for your video's. I had radiation through my abdomen to tumors on my spine. Radiation caused so much tooth decay and still remains too. No cavities for 5 year yearly appts. to dentist prior. 4 months post radiation treatments and my regular dentist appt. I had 5 cavities. One year later (this past May), I had 4 cavities. Radiation was the gift that keeps on giving. Sad that people aren't aware of radiation long term effects and thank you for sharing yours. hugs
I so understand and relate to your situation! I try to find the silver lining. In my situation, there was no viable option to shrink or remove the cancerous tumor…so I sacrificed dental stability. I hope that despite the cavities, you have recovery from the cancer. Hugs to you, too.
Common sense should tell people what radiation does. Reminds me of radiation fall out
Had st 3b colon. In remission now. Oxaliplatin/ folfox 5-fu gave me perm neuropathy disability. I get it. Also lost 2 molors. Hugs to u!
Wow! Yup. Same treatment. I really appreciate you sharing this with me. You have no idea. Prayers to you. I’m hoping you are in remission?
My grandparents player word cames and never developed dementia. They all lived close to their 90s
Played
Michelle, I too suffer from Neuropathy in my feet from chemo. So sore and pain, toes all bent. I too always need something on my feet as often it feels like I'm walking on rocks on a bare floor. So grateful for the rare days my feet feel somewhat ok. I have edema also in my legs. I have lung cancer with top right lobe removed. To date I am 13 years friends with NED. I'm 77 going on 78. The steroids they give during chemo treatments made me blow up like a balloon. Never lost the weight. A cousin two years behind me had the same diagnosis, same srgery but her Dr. told her not to do chemo, just have a scan every six months. She is still friends with NED and got to carry on as before. I so feel for you that you have had so much to go through. The short term is real. I find I am having a hard time to remember what I did yesterday. I always have to make sure there is a washroom available wherever I go. A happy thought is there was a fellow in our Inspire group who has stage4 lung cancer, still smokes and 14 years still going. Myself if it comes back I will not do chemo again. Too old to keep strong through it. Rather go out on my own terms> Keep the positive as it is what will keep you going. Huge hugs. 🥰
I’m so sorry. The neuropathy is debilitating, for sure. I hope you have more good days than bad, and pray the cancer won’t return. I need to look into NED.
Michelle thank you for sharing your cancer journey . It is appreciated by those who are going through it! I’m sure it’s not easy for you.
Wendy, thank you so much. There weren’t a lot of people talking about it on UA-cam (real-life) in 2017-18, when I start my journey. Hopefully, this will give others a feeling of hope and community.
Bless you. I know that sharing your experiences with this devastating diagnosis. You are an extremely strong woman. I respect you greatly. I pray you continue to be in remission. God Bless❤
Thank you! It's just a way of life now. I hope someone will catch early signs and avoid some of the things that came my way by trying to be too brave.
Hello. I am a cancer survivor. Not Colin, but uterine. I too have many long term effects. I experienced a blood clot to my subclavian vein (upper left chest). The port was removed, and onto blood thinners. I am also unsteady in my feet. I walk carefully, trying to prevent the Webbe/wooble that I do . My GI issues are another matter… with radiation it just about killed my colon. I wear pads for those moments I’m not expecting. Another S/E is a neuropathy is to my head…it’s weird. When I eat I sweat down my neck & all over my head. I do have some ST memory loss on occasion , but I’m able to maintain my day by day… I am 5 years cancer free of this past January. The most difficult is the imbalance I have (affecting my mobility) and the GI oops! I can live and manage the DM and the rest… I just wish I could walk normally.
We are kindred spirits in the SE world. Nothing worse than GI distress and toddling like a toddler to the loo. If it wasn’t so scary, it would be hilarious. Prayers for you to have comfort, positivity, steady feet, emotional strength, and humor.
Thank you for your story. As a retired nurse, I'm impressed with your knowledge, self awareness and determination to embrace life in its fullest. Too many patients allow themselves to be taken care of instead of taking care of themselves. I pray for your improvement. I happened upon your site through Canuary & your recipe for canning marinated mushrooms.
Thank you so much! I didn’t ever see a different option, to be honest. I’m glad you liked the marinated mushrooms! We got into canning because of cancer, believe it or not.
I can see by the comments on your journey videos how much folks appreciate your intelligent discussion, your candor and your willingness to share your experiences. Thank you for helping and encouraging so many people.
When my eldest daughter had cancer, we found it helpful to get and keep our own hard copies of all her records, treatments, radiology info, x-rays, facilities visited etc. When she was transferred to different places or different medical providers, her records were not always immediately accessible and sometimes the costs for transferring them were between $200 and $300 for each transfer. Once they were lost entirely. Without our personal hard copies, valuable information would have been lost and no one would have known which treatments helped and which caused more problems. She would have had to go through all that again. Her cancer returned after 14 years but no hospital still had her records. We did! One oncologist told her this was valuable information. This memory came to mind when you mentioned changing providers if needed.
As you have mentioned, one of the most important things is being your own advocate and having someone else as your personal advocate for times you can’t ask the necessary questions or don’t remember exactly what you were told.
So many of us lift you up in prayer regularly. I just wanted to remind you of that. You and your family are not alone.
Thank you so much for your kind words. I have printed most of my records and keep them (in date order, by doctor) in a binder (two now) provided by the hospital. Obviously, by some of my discussions, I am missing sections. These blogs will help me to fill in the gaps.
I hope you and your family are doing well. To have had 14 years cancer free…wow.
I know that my videos tend to spark conversations in the comments section. Your advice will likely reach more people than you would imagine.
I’m not certain by your comments how your daughter fared the second time, but suffice it to say, she is indeed an incredibly lucky and loved person. Thank you so much for this. May God bless you and your family.
@@BigValleyLiving,
Please read me it could save soo many lives, or at least give more time:
Guy TENENBAUM's case about cancer and his protocol (he didn't use chemotherapy or radiotherapy):
- a low-carb diet outside the fasting period (total elimination of carbohydrates/sugars) and eating OMAD (One Meal A Day) crucifers, garlic, onions, avocados, walnuts/almonds, olive oil and oily fish to avoid losing too much weight (avoid meat and cheese)
- taking specific food supplements that Guy TENENBAUM has called TCC (The Cancer Cure) which correspond to his 5 essentials, with the dosage he took:
* High-dose melatonin 30 mgr before going to bed (Phycocyanine or Lithotamne, but the most powerful would be melatonin): inhibition of SCOT (to use pure phycocyanine and lithotamne to increase the volume of SCOT inhibitors in addition to melatonin)
* Allicin (either as a 2400 mg quality concentrated pill, or with crushed raw garlic): up/down stream of SCOT
* Matcha green tea (with turmeric and ginger): up/down stream of SCOT
* Metabolic treatment (metabloc): Alpha Lipoic Acid (or Sodium R Lipoate, 600mg 3 times a day, 1800mg in total) + Garcinia Cambodgia (Hydroxycitric Acid, 600mg 3 times a day, 1800mg in total) + CoQ10 (the transporter, 100mg morning noon evening)
* Omega 3 in a DHA - EPA ratio (500mg DHA/200mg EPA): to fight keto paradox during ketogenic diet or the fasting phase
* Bromelain (850mg to 5000 GDU) and Quercetin (500mg) for nodules
* Berberine and Curcumin to block additional metabolic pathways
- Alkalinise the body with a combination of baking soda and cider vinegar
- if the body allows it: long fasting then the following month by short fasting and intermittent fasting + taking nutrients and minerals to avoid deficiencies (vitamin D3, Magnesium Bisglycinate and multivitamins)
When I came to your channel from the Suttons Daze Canuary event, I had no idea you were dealing with this. Thank you so much for sharing and your honesty. I am sure is was a difficult decision to make, but I appreciate it so much. I'll be praying for you, your family and your medical team.
Well, thank you so much! Yeah, everyone has a story, right? I just don't want anyone to feel like they're alone in their own journeys. Thank you for watching.
Hi. Want to let you know I am watching your journey ❤
Just found you today.
💞🇺🇸💞
Well, thank you so very much. Once starting a journey like this, one can never let the guard down. I'm preparing to make videos about promoting a healthier diet, making time to move around, walk, ride bikes, and to make sure to do healthy things that bring joy and gratitude on a daily basis.
Thankyou sooo much for sharing these videos about you experience. You are the most encouraging person I have found on UA-cam, I am stage 4 colon cancer with a similar story and diagnosis like you. 58yrs old. I was so afraid it was a death sentence for sure. But so far.. not! I also love your cooking videos and collaborations, it raises my spirits to watch all the fun stuff you post ❤
Thank you, Juliet! I’m so sorry you’re going through a similar experience, but it seems that there are more of “us” out there than I ever considered. Keep me in the loop. I’d love for us to be having this conversation when we are in our 70s and even into our 80s! God bless, and stay in touch. Please. 🙏🏼
I I'm 58 with stage 4 rectal cancer wondering how your coping?
Thank you for sharing I shared your channel with a church member going through cancer
Wendy, thank you. I hope there are some helpful ideas and tips that help your friend through this crazy journey. Blessings to you and yours.
I just think the world of you! ❤
Theresa, same here. You are such a fun, intelligent, and caring woman!
Another great video, Michele ! I didn’t realize that the port would always be there!
Your openness is so valuable. You are not alone. ❤
Thank you for your kind words. I just saw a comment from a person who had the same treatment and they had almost the same side effects. I hope you are well.
Ugh, I am so sorry you are going through all this. In 2019 I was diagnosed with Triple Negative Breast Cancer. This shocked me, I never expected them to say this during my yearly exam. I did have to have Chemo and radiation. I did have a port also and I have to say I am super glad I had one. I also have to have it serviced every 4 weeks. I am cancer-free now, waiting 1 more year to be 5 years clean. I am praying for you, I know some of what you are going through. :( Praying you have MANY years and they get better, not worse!
Thank you! I’m so happy for you, and hope to be reporting the same in four years, myself!!!
@@BigValleyLiving Well, I am praying for you and that you do report that in even less than 4 years. Many blessings to you and your family, honey
Can you share what you are eating to prevent ?!and things you did?
@@joanneclark8256 To prevent what honey? I don't understand the question, Im sorry.
Bless you. Thank you for your openness. I was diagnosed with stage IV colorectal cancer last April. This week will be my 9th infusion.
Todd, God bless YOU. Just take care. Please keep me posted. I really hope your treatment goes well. Most of the short-term side effects will go away pretty quickly, if your journey is like mine. God Bless.
My mother had colon cancer. She didn't take treatment. She died peacefully in her sleep at age 80
After my treatments I went through diarrhea hell to the point where I only wore nightgown and barely left my bed. During my 5 year colonoscopy a dr said don't you know about Cholestyramine powder..saved my life. World shortage this year so now I am taking Colesevelam horse size pills i prefer the powder but at least I have my life back ❤
I have not heard about this. I will ask my doctor about it, for sure. Glad you got your life back!!!
Thank you for sharing this journey.
You are welcome. If you have anything from your own experiences or a loved one, I’d be happy to share. Prayers for your family. 💕
Thank You. I am CF of stage 3 Colorectal Cancer. Going through 7 weeks of a mixture of Radiation & Chemotherapy, I thought I was free and clear. My MRI showed ZERO cancer left. And this included "my friend" the 8 cm cancerous mass. I won't say where it was. in any case the problem now is the brain fog and the neuropathy. The latter is horrible, I am unable to walk without a walker and it is impossible to sleep I like you, couldn't touch my feet or my caves. What was the cream you recommended? I have been putting on Hemp Cream which is thick and my touchy skin doesn't like it. Sorry this is so long but you seem to be the only person with any idea. Thanks Michele
Oh, I'm so sorry. I find that sometimes hemp cream worked, but so did Arnicare did help a bit. I so understand the neuropathy. I still have it and fear it is never going away - but I'm not giving up hope. I find that vitamins b6, B12, and a multi-B vitamin helped. B-12 and 6, especially. Try the Arnicare cream, and I really hope you begin to feel better. You are a brave person fighting this, and I know you can do it. Please stay in touch, and know that eventually, some of the things you experience after the radiation and chemo will lessen in severity. Keep walking, even with the walker. Trust me, it is worth the effort. Blessings and good thoughts to you always. Michelle
Best wishes for your health.❤
Thank you so much! Prayers to you, too.
Hello thanks for sharing this very informative video.
You are so welcome. I hope it helps you or a loved one.
Hello Michelle 🙏 ❤
@DinkTank369, hello friend! 💕😍💕
DR. BERG ❤
I am subscribed to him. Thank you!
What you recommend foods? Eat?
Just to reiterate - if you have diabetes, take care of your feet! Taking care of your diet is part of that. Recently, my brother, who did not take care of things, had his foot amputated 6” below this knee.
Thank you, Rena! That just solidifies my resolve. I hope your brother has a positive outlook. Prayers for him, his strength, and everyone in your family as you help him adapt
to this change.
What diet is good??? Protein l hear is important
Did the chemo make you lose your hair?
No. It got very thin, but I didn’t lose it all and didn’t have any bald spots. I prepared myself, just in case.😊
Did you ever consider ? Parasites fenben and ivermectin?
No.
Evidently she prefers something more toxic than those
MILK THISTLE CAN ALLEVIATE SOME OF WHAT YOU ARE EXPERIENCING ❤
Thank you. I'll look into that! Must have missed it on Dr. Berg's videos.
Vut can you take daily???
Apparently she doesn't know about natural homeopathy