My Brain Disease

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  • Опубліковано 14 січ 2025

КОМЕНТАРІ • 14 тис.

  • @snoozygirl468
    @snoozygirl468 9 місяців тому +7512

    The fact that in the midst of all this you are committed to educating and helping others speaks volumes about your character and values.

    • @trishf2184
      @trishf2184 9 місяців тому +241

      Outstanding explanation of something so intangible for so many. Intensively introspective.

    • @MissStarbudz2325
      @MissStarbudz2325 9 місяців тому +65

      Agreed

    • @ksineasttexas
      @ksineasttexas 9 місяців тому +55

      I couldn't have said it better.

    • @paolaashe2474
      @paolaashe2474 9 місяців тому +39

      I completely agree!

    • @lorietetzlaff1437
      @lorietetzlaff1437 9 місяців тому +40

      Perfectly said.

  • @rossdavies-hooper3602
    @rossdavies-hooper3602 9 місяців тому +4433

    "Courage is not the absence of fear, but the ability to act in spite of it." S. Clemens. This is you Chase.

    • @andrewmoss3681
      @andrewmoss3681 9 місяців тому +42

      Well said

    • @jesandnafe
      @jesandnafe 9 місяців тому +61

      This!
      Makes me teary to be in the presence of someone who has such a level of courage and duty to humans he doesn’t even know… for science.
      What an utter legend and champion and living angel…. I hope this study/ documentary is commended and valued and catalogued as it deserves.
      What a gift to humanity.
      I hope his family spend the rest of their lives without needing for anything… this gift will no doubt be a heavy weight for all of them.

    • @ruthhallcummings2039
      @ruthhallcummings2039 9 місяців тому +69

      “We rise by lifting others”. Chase, know that we will be lifting you up and supporting you in this unknown journey, Thank you so much for sharing this in such a clear and descriptive way. Take each day one at a time.

    • @talk2wendyolsen
      @talk2wendyolsen 9 місяців тому +33

      Wow! Thank you for your vulnerability. I’m grateful for having the opportunity to discover you and the work you do. I’m grateful for the opportunity to meet you and Michelle. Much love to you and your family as you all learn to navigate this path. There are so many of us holding you all close in our thoughts and willing you down a path of healing.

    • @sophieh9387
      @sophieh9387 9 місяців тому +15

      Beautifully said..❤

  • @nivonne
    @nivonne 6 місяців тому +947

    Chase,
    I am a neuropsychologist who works primarily with veterans. That you are able to speak so openly and candidly about your condition speaks to the selflessness most of you embody. I watch the behavior panel videos regularly and stumbled upon this one. I would never in a million years have expected this struggle behind your insights and what you have taught me I never learned in grad school or many years of practice. Thank you for your generosity of knowledge, wisdom and spirit. People like you make the world a better place.

    • @LindaNash-d2l
      @LindaNash-d2l 6 місяців тому +30

      You are an amazing person.

    • @jackiebragg7865
      @jackiebragg7865 6 місяців тому +7

      Is there any medical help at all a aulavle?

    • @sylviaseeto5039
      @sylviaseeto5039 5 місяців тому +21

      Totally agree. Chase, you are so brave firstly to go through this journey with such courage and resilience. And then to share this with the world. Your selflessness to your work and to share your personal health is absolutely commendable. Pray there will be some peace and understanding going forward. Thank you for sharing🙏🏼.

    • @carolbiberstein5815
      @carolbiberstein5815 5 місяців тому +7

      Every soul in the entire world is unique. There is no such thing as normal and abnormal. Embrace and accept yourself exactly as you are. You are special. You are uniquely loved by God as his child. You don't have to be the same as anyone else. This is not a brain disease. It's your uniqueness. We have all had multiple births behind us and there are consequences for our actions and we live with those consequences. I also have traits that are my own unique qualities. God is not a part of religion. You can connect with that Supreme soul based on who you are, not based on your family background. Actually you are much more ok than most of the people around you and your family. You need to practice detachment and faith in yourself and positivity. I wish you all the best.

    • @alenaadamkova5322
      @alenaadamkova5322 5 місяців тому +8

      Maybe avoid sugar.....
      I once eat 70 percent of 250 ml "sugar milk"
      I felt like my brain was somehow "sugar overdose"...some strange feeling so I decided to drink a bit of water
      because I thought the sugar caused it.
      try healthy organic food, and exercise.

  • @kevinvannlipe
    @kevinvannlipe 5 місяців тому +253

    I'm not sure you'll even read this my friend, but I truly want you to know, that many others, as well as myself, will be praying for your recovery. I'm so sorry that you and your family are hurting and going through so much. May God bless you with His Peace, Joy and Rest through it all, in Christ Yeshua-Jesus.

    • @edielawrence97
      @edielawrence97 5 місяців тому +5

      Amen 🙏🙏🙏 .

    • @pattih7
      @pattih7 4 місяці тому +5

      Amen! 🙏🧡🙏🧡🙏

    • @margaretlynch4767
      @margaretlynch4767 3 місяці тому +2

      Amen

    • @IntegrityMeansAll
      @IntegrityMeansAll 3 місяці тому +2

      Yes 🙏this sounds like such heartbreaking and intense experience, I felt every word he described ..😔

    • @awakegrandma9839
      @awakegrandma9839 28 днів тому +1

      I know it may sound crazy but It honestly sounds like a spiritual attack.
      Praying for healing from this truly scary condition. In the name of Jesus 🙏 Amen

  • @helenelee2119
    @helenelee2119 9 місяців тому +728

    I was diagnosed with temporal lobe epilepsy in my early 30s. The symptoms were horrible, almost indescribable. But after eight years of being on an epilepsy medication, I made a full recovery 🎉

    • @sarahtorres3990
      @sarahtorres3990 9 місяців тому +24

      Congratulations 🎉❤🎉🎉🎉🎉

    • @PhyllisBrode-ho7ps
      @PhyllisBrode-ho7ps 9 місяців тому +19

      What kind of meds were you prescribed? And BTW so happy you are recovering. I have never heard of this syndrome even though I am a nurse.

    • @Altered4n892t
      @Altered4n892t 9 місяців тому +13

      God bless you and I’m so happy for your recovery and you can share to help others❤❤❤

    • @helenelee2119
      @helenelee2119 9 місяців тому +11

      @@PhyllisBrode-ho7ps Normal anti-epilepsy meds

    • @gheewhiz
      @gheewhiz 9 місяців тому

      ​@@helenelee2119there are dozens available...which do you take? also, while they can help us function, seizure meds don't heal epilepsy, they suppress symptoms.

  • @kellywilson2147
    @kellywilson2147 9 місяців тому +2268

    This man has more courage and grace in his pinky finger than most people have in their entire being. I'm praying for your healing, Chase!

    • @dianerose121
      @dianerose121 9 місяців тому +27

      Well said!

    • @dianalinscome5830
      @dianalinscome5830 9 місяців тому +21

      ❤ Ain't that the truth ❤

    • @jennyg3937
      @jennyg3937 9 місяців тому +23

      As above well said that hit hard ..Chase left me speechless

    • @angelathompson6871
      @angelathompson6871 9 місяців тому +11

      I concur those sentiments.

    • @bettybrooks6555
      @bettybrooks6555 9 місяців тому +28

      Chase is my hero. Such a caring & compassionate human being in the midst of a terrible disease. My prayer is that you will experience a healing miracle. 🙏

  • @TheMandyM
    @TheMandyM 9 місяців тому +2327

    For the last 20 years of my life, struggling with the very same condition, I've never been able to put into words what im going through. As the years go by, I'm struggling to form proper sentences most of the time. My memory is fading fast. My neurologist has me on a medication that helps the seizures. But the side effects are awful. Ive always tried to explain to my doctors and family that its like I'm behind a veil. Like I'm here, but not connected to anything on a real level. Again, I struggle to find words the more this has progressed for me. But I'll tell you right now, I began crying while showing this to my husband and telling him "This is what it's like for me!"... for the first time I saw real sadness and empathy from him, regarding my condition. I will never ever be able to put into words how thankful I am that you posted this! It is beyond any measure I can explain. THANK YOU!

    • @andreaarhelger8622
      @andreaarhelger8622 9 місяців тому +66

      Love to you Mandy🫶🙏😔 I can feel you!

    • @jackbassford3576
      @jackbassford3576 9 місяців тому +17

      Lifewave X39 patches

    • @nikkiangeliquenicole
      @nikkiangeliquenicole 9 місяців тому +26

      ❤❤❤

    • @joyceleentvaar
      @joyceleentvaar 9 місяців тому +82

      The dissociation, I have the same symptom but it has a different reason. It always makes me ‘happy’ to see people who find others who can relate to both the symptom and the frustration of trying to explain the unexplainable. Life can be rough but it’s the unity which makes it more bearable 🙏🏻

    • @denisescott34
      @denisescott34 9 місяців тому +24

      😢❤️🙏

  • @shelly2536
    @shelly2536 5 місяців тому +89

    My father was diagnosed with something very similar a few years ago. It is very frightening. He kept it to himself for a long time. He had a total memory wipe on a family vacation. That's when he couldn't hide it anymore. Our family is praying for you Chase. Godspeed.

    • @hsk2909
      @hsk2909 4 місяці тому +1

      This kind of condition may explain some mysterious missing persons cases. Maybe there's an even "deeper" condition within this syndrome that wipes out someones memory long term? It's terrifying really what kind of illnesses can affect us that we have no clue about their existence. I myself suffer from such a condition, a degenerative heart muscle gene that took the medical world nearly 14 yrs to figure out while i kept getting more crippled by the year. I fell ill at 39, now i am 59 and i think i'm still alive simply due to total stubbornness.

  • @jeanettehasley7054
    @jeanettehasley7054 9 місяців тому +3020

    At the hospital, you were trying to protect your wife who was at that moment a stranger. Now you are reaching out to protect other strangers from this unfamiliar disease. Says everything about your incredible integrity.
    Thinking of others. Wanting to protect and educate. Even when it's hard to be brave you are sincere.

    • @marymorgan8209
      @marymorgan8209 9 місяців тому +53

      This is such a brave thought by to doChase, in sharing your story I’m sure you are helping lots of people to may be going through this or the families of these people to understand a little bit more.
      I have never heard of this disease but will follow your journey, and send positive thoughts for you. One of the things that stuck me was the love you have for your wife, while you were going through your scary symptoms your first choice was the protect your wife at a vulnerable time for her.
      I have loved watching you and the rest of the behaviour panel, while you were all sharing with us the public even a tiny bit of your knowledge.
      Good luck for the future and sending positive thoughts and I will include you in my prayers x

    • @conniebrantley3943
      @conniebrantley3943 9 місяців тому +59

      God bless you Chase. I pray for your full recovery and thank you for sharing such a personal thing for the benefit of others. ❤

    • @jodyrebeljohnsoncacciatore4791
      @jodyrebeljohnsoncacciatore4791 9 місяців тому +37

      Damn man... This blows, and I'm so sorry .

    • @sautee
      @sautee 9 місяців тому +20

      I know your pain. Migraines since age 10 and having aphasia while having them has given me a permanent form that I have all the time now.

    • @MarthaCardiel-mf7xk
      @MarthaCardiel-mf7xk 9 місяців тому +36

      Sending you and your family love and prayers🙏🏼. Sending you positive thoughts, May god bless you and protect you. I have so much respect for you and I am grateful to you for sharing your gifts. You have a beautiful soul and a beautiful mind. Hope you feel the love and energy being sent your way, stay positive 🙏🏼❤️.

  • @andrewmoss3681
    @andrewmoss3681 9 місяців тому +2032

    We're ALL here for you Chase. I've been going through this for nearly 30 years. The disorientation can be a true nightmare. My family described my "vacancies" (I have a few types of seizure) as me looking almost dead. No moving or my eyes registering ANYTHING. I also struggle BADLY with talking afterwards. Just trying to say "Hi my name is Andrew" is impossible.
    You aren't alone. There are many of us out there who know your fears & worries. & we are here for you if you EVER need someone to talk to, discuss stuff with, or even vent those frustrations at. We look after our own. Thank you for having the strength to share these fears & worries with us. Just helps us love you all the more.
    MUCH love & support from here in the UK

    • @swimfor1000yrs
      @swimfor1000yrs 9 місяців тому +167

      Praying for you too Andrew!

    • @andrewmoss3681
      @andrewmoss3681 9 місяців тому +79

      @@swimfor1000yrs Thank you & greatly appreciated

    • @swimfor1000yrs
      @swimfor1000yrs 9 місяців тому

      @@andrewmoss3681 ❤️

    • @MissBeeeBeee
      @MissBeeeBeee 9 місяців тому +121

      Thank you, Chase and Andrew. I have tears in my eyes and in my heart. Your bravery is humbling.

    • @andrewmoss3681
      @andrewmoss3681 9 місяців тому +106

      @@MissBeeeBeee thank you. But Chase is the hero here. I grew up with this. I'm so used to it that it's my norm. Chase is the one with the courage to share himself & his fears with the world. THAT is heroism

  • @samvincent603
    @samvincent603 9 місяців тому +543

    The fact you were helping your pregnant wife into the hospital not knowing her but doing it regardless with a forced smile tells me your an incredibly brave, genuine person

  • @tammiegorman7300
    @tammiegorman7300 4 місяці тому +52

    Yesterday, my husband and I watched the Behavior Panel regarding Trump vs Harris Debate. While watching, I said to my husband "There is a deep sadness in Chase's eyes; an almost far away look. Something is seriously wrong." This morning, while randomly skipping through UA-cam channels we are not subscribed. I watched your "Two Biggest Lies in History" episode that displayed this episode. The heavy saddness I felt yesterday watching you now makes sense. I'm so very sorry.
    I will be praying for you to experience a miraculous healing. Until then, I pray you and your family rest in the grace of the Lord, who's peace surpasses all human understanding regardless of the circumstances we face.
    You are very much appreciated for your wisdom, knowledge, compassion, integrity, dedication to educate the rest of us with invaluable insights we might otherwise never understand.
    May the Lord bless you and keep you, to make His face shine upon you.

    • @juliedaniels5594
      @juliedaniels5594 4 місяці тому

      Yeah. All the god stuff helps no one. Praying is what you do when you’re doing nothing

    • @juliedaniels5594
      @juliedaniels5594 4 місяці тому +1

      You’re a hero Chase!

    • @capicolaspicy
      @capicolaspicy 3 місяці тому

      @@juliedaniels5594 I don't believe I'm willing to trust your seeming expertise in this regard. Praying is part of what I do when I'm in the midst of doing almost everything. Simply realizing that I'm really not driving the bus, even though my ego likes to think it is LOL. I have both experienced and witnessed miracles that would make your statement about God stuff helping no one completely incorrect. I would totally agree however that doing nothing and praying are not the answer.

    • @DannyDarker4
      @DannyDarker4 3 місяці тому

      @@juliedaniels5594what doesn’t help is attacking people and creating arguments when someone is using what they know and care about to show how much they care or are wishing the best for someone.
      Praying for you, for chase, and his family and fans🖤

    • @juliedaniels5594
      @juliedaniels5594 3 місяці тому

      @@DannyDarker4 maybe you’re right. But maybe you’re wrong too. I lost someone and a person said they’d pray. My loss was so great and here they were pressing their religion on to me because it made THEM feel better. That’s not right either

  • @jacquelinearmstrong5744
    @jacquelinearmstrong5744 9 місяців тому +68

    Chase, amidst all this never forget how BRILLIANT you are. Praying for a full recovery for you. Well done.

  • @ofohsh0
    @ofohsh0 9 місяців тому +703

    "you'll either watch my recovery or you'll watch my decline" - this line is beautiful and harrowing and hit me like a ton of bricks. so many of us have our approximation of this dichotomy in our own lives. thank you for being so forthcoming, clear, and vulnerable.

    • @stephm4349
      @stephm4349 9 місяців тому +9

      Well said!!!!

    • @Miami7
      @Miami7 9 місяців тому +16

      That affected me the same way. The strength you have, Chase, is phenomenal, and I pray it will take you down that road to recovery. ❤️🙏

    • @trevormiller3097
      @trevormiller3097 9 місяців тому +9

      That brought a tear to my eye. Touching and so insightful.

    • @I.Grow.Multiples
      @I.Grow.Multiples 9 місяців тому +5

      Yeah, that part. 🥺😢

  • @CindyBear914
    @CindyBear914 9 місяців тому +1086

    Chase, I was diagnosed with temporal lobe seizures when I was 19. I have lived with them for almost 50 years. Thank you so much for sharing your story and for explaining them. I am so glad that you have finally been diagnosed and that you are getting treatment. God Bless❤

    • @valerielock2374
      @valerielock2374 9 місяців тому +30

      🙏🙏🙏

    • @jeansalzman2.012
      @jeansalzman2.012 9 місяців тому +35

      God bless you, Cin923. Your words bring encouragement to all of us and especially to our friend, Chase.

    • @sherrillsturm7240
      @sherrillsturm7240 9 місяців тому +18

      Wondering what you do for a Dx and what you do to manage/treat it. I recently experienced what I would call a "fugue" in front of a group of people. It has concerned me, along with wondering if some experiences are real or if I dreamt them.

    • @chasehughesofficial
      @chasehughesofficial  9 місяців тому +341

      God bless you. What I'm working on might be a life-changer for you. I'll share it all very soon. ❤

    • @elaineellis3780
      @elaineellis3780 9 місяців тому +21

      Lots of love to you, your children and family, my mother has dementia and has moments of nothing and believes her dreams are real, I know this has got nothing to do with what you have but dementia has some of your symptoms. I will cross my fingers and everything else I can that the disease you have gets better not worse. Uk

  • @happymouse8426
    @happymouse8426 5 місяців тому +19

    My husband reminds me "I complained that I had no shoes, till I saw a man with no feet" and gives me a hug. Thank you for sharing. Was feeling sorry for myself, my cancer may be back but you put it in perspective. May God bless you and keep you and family in loving arms.

    • @smartmarketing173
      @smartmarketing173 4 місяці тому +2

      Sending loving, healing thoughts❤️‍🩹We must keep things in perspective, to your point. My sister/best friend has stage 4 and it’s a daily struggle, but one that’s always worth it.

  • @steevenooll1950
    @steevenooll1950 9 місяців тому +608

    From a soul to another soul: that's what a real man looks like, you are an example to all of us. We are by your side.

    • @JuliusDecimusMeridius
      @JuliusDecimusMeridius 9 місяців тому +16

      We are. Real men are practically impossible to find. An exceptionally special courageous gentleman who will always live amongst us. How lucky we are. 💔

    • @gwenb.4000
      @gwenb.4000 9 місяців тому +9

      beautifully said -

    • @ElsieDee001
      @ElsieDee001 9 місяців тому +4

      Well said.

    • @Renzy-LuLu
      @Renzy-LuLu 9 місяців тому +2

      YES😊😊😊

    • @Whisky_Warrior
      @Whisky_Warrior 8 місяців тому +1

      So well said! It is not easy at times being a man who lives from a Soul place. Always a good reminder that others exist.

  • @rebeccarodriguezkeogh4388
    @rebeccarodriguezkeogh4388 9 місяців тому +407

    Rarely in my 62-plus years of life has anybody's calmly delivered statement of fact left me feeling a need to remind myself to inhale, as though I had just taken a blow to the solar plexus. I am so grateful for your incredible generosity and grace as you invite us to learn, and allow us to support your vulnerable journey, come what may. Thank you, from the core of my soul.

    • @triciapeever
      @triciapeever 9 місяців тому +8

      Me too

    • @patriciahamilton6256
      @patriciahamilton6256 9 місяців тому +13

      And me, the above message is what I want to say but couldn't find the words for myself. I just want to cry now.. my love please get better. Blessings to you and your family.

    • @joannegaughan6132
      @joannegaughan6132 9 місяців тому +9

      Me as well. I'm a nurse and never heard anyone explain exactly what a temporal lobe seizure "felt" like. Thank you so much Chase for sharing what you have experienced and educating all of us.

    • @ellencook1658
      @ellencook1658 9 місяців тому +1

      Best description of my reaction.

    • @rebeccarodriguezkeogh4388
      @rebeccarodriguezkeogh4388 9 місяців тому

      @@ellencook1658 Thank you very much. It still feels inadequate to me. Chase humbles me on so many levels, but never fails to inspire me.

  • @MarineAlli
    @MarineAlli 9 місяців тому +603

    Hey, so I’m a Marine vet who has a TBI from Iraq and have seizures. Watching your videos has made me more concerned about my condition. I have some of the same issues you have and I have not never really brought them up with my doctor before, like super intense Deja vu. Some of the other issues I just blamed on PTSD. So, I just called the VA, and got an appointment with neuro. So, thank you.

    • @Tatti2202
      @Tatti2202 9 місяців тому +60

      Thankyou for your service and for sharing your story. Please come back and update us on how you are doing. Sending ❤ and prayers 🙏

    • @yesterdayitrained
      @yesterdayitrained 8 місяців тому +30

      Yes, please, let us know how it all goes. We may not know you, but we still care! Sending you strength.

    • @maryfranke7515
      @maryfranke7515 8 місяців тому +24

      This is beautiful. Thank you for your service, and I hope you make a full recovery.

    • @paulatobler8354
      @paulatobler8354 8 місяців тому +16

      I have a TBI and went through a program with others. Temporal lobe seizures were fairly common among the students. Glad you are getting it checked out. I can’t remember any of the people I know not being able to control the seizures with medication, so hopefully if that’s what’s going on with you, you will be able to stop the seizures.

    • @badnrad
      @badnrad 8 місяців тому +12

      Do you mind sharing which symptoms you experience that are like what he described? I also have many of these symptoms and I’ve been trying to find others who have them so I can figure out wtf is going on. I felt like ptsd or undiagnosed tbi could be the cause but I hadn’t heard of these seizures or symptoms aside from my own experience.

  • @ambermuth
    @ambermuth 5 місяців тому +24

    You recently became one of my fave people. My childhood epilepsy ended at 10. At 45, I just learned/realized how bad and often my memory still fails me. The terror and humiliation...I get that. Your living legacy is already helping thousands and saving lives in the process. I've never cried like this for someone I didn't know before, but few have ever inspired me so much. Statistically, I shouldn't be alive or have an above average IQ. Same with you and your professional history. We've both already beaten the odds, so odds are we will continue to. Thank you for your service to this country, and thank you for your continued service to people!

  • @mstines
    @mstines 9 місяців тому +477

    As a neurologist I have heard many descriptions of temporal lobe epilepsy, but this is by far the most detailed and most insightful!
    I have heard many patients struggle for years without knowing what was happening to them, scared of sharing their experiences to their loved ones or healthcare professionals.
    Thank you so much for sharing your story, I hope to be able to see your recovery, for your, for your wife, your children and all of us' sake ❤
    Best wishes!!

    • @modemarose4497
      @modemarose4497 9 місяців тому +10

      YES!!! It was a stunning description indeed ✨

    • @colleenmahony8803
      @colleenmahony8803 9 місяців тому +28

      I'm not a neurologist, but I was struck by the almost poetic descriptions of impressions, thoughts and feelings. Chase, you may be a scientist, but you have the heart of a poet.

    • @mstines
      @mstines 9 місяців тому

      @@colleenmahony8803 Agreed!!

    • @mstines
      @mstines 9 місяців тому

      @@colleenmahony8803 Agreed! Very poetic.

    • @mstines
      @mstines 9 місяців тому

      @@colleenmahony8803 Very poetic indeed!

  • @DebiQ1830
    @DebiQ1830 9 місяців тому +389

    Wow. This is such a stark reminder that we have no idea what is going on with people . Please, people, always show grace and mercy and kindness and patience because you don't want to be the person that sends someone over the edge. Massive respect to you, Chase

    • @Renzy-LuLu
      @Renzy-LuLu 9 місяців тому +8

      RIGHT 😊

    • @chanelv5373
      @chanelv5373 9 місяців тому +11

      Very well said.

    • @TessA-es3if
      @TessA-es3if 9 місяців тому +8

      YES! This goes for the person shopping with you in the same store...The person taking your money at the drive thru...The person on the other end of s customer service phone number. If you (we as a whole) treat everyone with love and respect, then nobody has to worry about hurting someone else.

    • @Selenite_Moon
      @Selenite_Moon 9 місяців тому +3

      💯

    • @beverlyb4256
      @beverlyb4256 9 місяців тому +4

      Also with his military background, and the type of work he does, I hope it's not something targeted, like the Havana syndrome. Even regular people often are victims of such targeting. (Google gang stalking/targeted individuals) . Personally I love Chase and have always thought he's the most compassionate on TBP. Now we know why...❤

  • @chlhehe
    @chlhehe 9 місяців тому +641

    You have spoken with clarity and eloquence. It will be an honor to follow you on this journey.

    • @leemorris8723
      @leemorris8723 9 місяців тому +9

      Amen.

    • @gloriahoulne
      @gloriahoulne 9 місяців тому +8

      Amen, blessings and love! ❤

    • @faith-dwoods
      @faith-dwoods 9 місяців тому +8

      I am with you doll
      Grma Woods is praying for your clarity and soundness of mind
      As a retired VAMC Chaplain, I've seen many Veterans suffer with brokeness
      I have also, seen many miracles if healing for their body, soul, and spirit.
      I believe for you

    • @melissakeller2644
      @melissakeller2644 9 місяців тому +3

      Prayers for you and your family. Thank you for trusting us with this struggle. Your strength is inspirational.

  • @brotheraugustine
    @brotheraugustine 28 днів тому +5

    Hey Chase, this is Michael Witcoff. I’ve known you since we both started looking into marketing together, more than a decade ago, and wrote one of the first reviews for your Ellipsis Manual (my name is still in it as far as I know). Just wanted to say I’m praying for you, I’m glad you’ve had so much success and that I’m really impressed by the bravery it took for you to put this out for the world to see.

  • @keiththorp6165
    @keiththorp6165 9 місяців тому +390

    I have temporal lobe epilepsy. Sometimes my family knows I don't remember them. I showed this to my father tonight as I have never explained it as clearly to them as this. Thank you so much. I have lived in my head with this for so long. Doctors have given me medication to help so no more seizures but I can't trust my memories

    • @face1257
      @face1257 9 місяців тому +17

      Have you considered a journal?

    • @orlajanereddy1312
      @orlajanereddy1312 9 місяців тому +24

      You are so brave for opening up. It must be terrifying. I hope Chase has giving you some comfort in knowing you’re not alone. Wishing you both good health ❤

    • @thatswhatisaidCA
      @thatswhatisaidCA 9 місяців тому +8

      @@face1257 What a good idea. Perhaps on a laptop, like Notes.

    • @barbarakrusen7777
      @barbarakrusen7777 9 місяців тому +15

      I used to be the family storyteller. I spent the majority of my adult life researching the family history, the individuals in it where they lived, etc. etc. and now that I’m older part of that’s gone and fortunately for me I have a younger cousin and Denise who picked up where I left off and have asked me to work with them and I’m thrilled because this has breathed new life into my reality of memory. I realize that I didn’t forget everything and he didn’t imagine everything. I truly understand how you feel. Temporal lobe epilepsy can be the harbinger of an awful reality and it can give birth to the most beautiful, creative thoughts. The most difficult part, though is when we try to separate the two. I’m going to be showing this to my son just showed it to your father, I wish my father and mother were alive so that they could see this.

    • @chasehughesofficial
      @chasehughesofficial  9 місяців тому +45

      Please google the crap out of methylene blue. I’ve even published medical papers on it.

  • @susanfrancois1821
    @susanfrancois1821 8 місяців тому +238

    I have lived with mine for 58 yrs, I was told I wouldn't see my teens, I'm 66 now & I have learnt to live with it. Pills are controlling it. Best wishes xx

    • @marleneeisnor9719
      @marleneeisnor9719 6 місяців тому +10

      Is this very common? I hope you’re doing okay

  • @SgtAndrewC
    @SgtAndrewC 9 місяців тому +2526

    I'm not the type of person to comment on videos, but I feel like this is important to say.
    Most of us will not have an opportunity to get to know you personally, but the connection is real. My biggest takeaway from getting to "know" you over the past year is that caring for yourself and for other people is just about the most important thing in life. All the data and science are just means to an end.
    A lot of us feel cared for by you even though we'll likely never meet. It's real. And there are a lot more people out there who, like me, rarely speak up. We're pulling for you.
    Thanks for being such a thoughtful person. It continues to change my life.

    • @christinerussell1132
      @christinerussell1132 9 місяців тому +229

      Thank you for putting in words what I'm pretty sure LOTS of us feel ❤🙏🏻🙏🏻🙏🏻

    • @jacquiet6040
      @jacquiet6040 9 місяців тому +64

      UA-camrs feel like they've become extended family. I feel for you.
      Research coconut products.

    • @chasehughesofficial
      @chasehughesofficial  9 місяців тому +650

      Michelle and I read this together and I'm teary-eyed. Thanks so much for saying this.

    • @CKOfreedom
      @CKOfreedom 9 місяців тому +79

      This was so relatable, you voiced so much of what I felt. Thank you.

    • @KY_CPA
      @KY_CPA 9 місяців тому +92

      ​@@chasehughesofficial Agreed that so many of us feel this way, even if we didn't have the way to put it into words as well as this post❣️

  • @hlwillson
    @hlwillson 27 днів тому +4

    I have never seen an explanation of what I call my "episodes" as clear and concise as this. I have been to neurologists and through tests with no conclusive outcome. This video gives me hope that I can learn how to help them find a way to help me. Thank you for sharing this ... thank you SO much!

  • @andreadifabrizio1705
    @andreadifabrizio1705 6 місяців тому +410

    😢 I pray for you
    Let's all pray for him, please

    • @jr.6199
      @jr.6199 6 місяців тому +5

      Chase is a man of science, and needs a medical- physiological solution through education action. Help support teachers/students of STEM academics, for the development of tomorrow's neuroscience lab researchers.

    • @jr.6199
      @jr.6199 6 місяців тому +2

      In short, Support STEM students for neuro science researchers.

    • @Dawglaw7362
      @Dawglaw7362 6 місяців тому +15

      ⁠​⁠@@jr.6199 I respect your position and even agree with your suggestion. But I also know that science and research isn’t not and never will be dispositive of effective prayer. Do both.

    • @TraciDoering-hw8hu
      @TraciDoering-hw8hu 5 місяців тому +9

      I’ll be praying for Chase. I pray daily.

    • @dorothy135
      @dorothy135 5 місяців тому +4

      Done

  • @ammo793
    @ammo793 9 місяців тому +258

    If the average human being had half of your wisdom and integrity the world would be a wonderful place. You will get through this, the world needs you, man

  • @kjeans
    @kjeans 9 місяців тому +288

    I'm a behavior channel panelist, I noticed it when it happened. I've always had so much respect and admiration for you as a person. The fact that you're giving up your privacy to help other people sends my respect sky high. We really do need you in this world. You've done so much for so many people, I know the knowledge and the bread crumb trails you've passed on to me as a panelist has led me to find answers to questions that I have had since I was a child. Thank you. You have our love, thoughts and prayers! If anyone can beat this or wrestle it down to the ground and make it say uncle you can.

    • @naty_b
      @naty_b 9 місяців тому +9

      I thought I saw something too but I can't remember which episode it was. And sometimes Ive noticed it takes him an extra 5 seconds to start speaking when it's his turn. Really wish him all the best.

    • @kjeans
      @kjeans 9 місяців тому +7

      I'm praying for the best for him and his family too. The people I respect are few and far between. Chase, Greg, Scott and Mark have my respect. They're amazingly talented people with good hearts. The stars and planets lined up when the four of them got together.

    • @Jaznthree
      @Jaznthree 9 місяців тому +3

      Thank you! Your ability to share with so many such a tough path your own is honabale as a mum with a son who has epilepsy (due to his brain malformation) I never knew he was as having them for 6-12 months because they didn’t look like what you see on tv. He was having absent seizures now he has a ray of them from absent to tonic clonic. He forgets things words and if it’s an absent he shakes his head like he is clearing cobwebs out. To hear your experiences from having them has helped me understand a little of what he maybe experiencing as he can’t express this due to his pachygyriea. So again thank you. The more people know about epilepsy and all times the better. I wish you a sucessful recovery

    • @kjeans
      @kjeans 9 місяців тому +2

      💐❤️ Thank you for sharing your knowledge and kindness. You are an amazingly talented person.

    • @zirkiesmit7987
      @zirkiesmit7987 9 місяців тому +4

      Praying for a miracle for you

  • @stumbling_buddhist2255
    @stumbling_buddhist2255 4 місяці тому +5

    I was today years old when I learned about temporal lobe epilepsy. Thank you, Chase. To you and everyone here dealing with it, I wish you love and strength.

  • @kurtnlisalewis
    @kurtnlisalewis 9 місяців тому +298

    Oh Chase I’m so sorry

  • @caylinbronwynscharffenorth8583
    @caylinbronwynscharffenorth8583 9 місяців тому +138

    I was diagnosed with Temporal Lobe Epilepsy when I was 17 and I'm turning 32 in a couple months. There isn't a one size fits all protocol with this but rather a journey of discovery of what works for you. Wishing you well on this journey and I sincerely hope and pray you discover what works for you in each leg of tge journey.

    • @beverlyb4256
      @beverlyb4256 6 місяців тому +2

      I recently heard a researcher talk about metabolic treatments for cancer, and also complete control and elimination of seizures in children with diet however just a sip of coke could bring on the seizure again. It's the sugar controversy, conventional medicine calls it a myth, but there are many success stories. I too will pray that you will find what works for you! I heard of a woman who eliminated all foods except one for a while, and her Parkinson went away. Then slowly reintroduce. To find out the culprit. If the medications help you, great! And I pray no side effects 🙏 ❤

  • @trenamccloud3213
    @trenamccloud3213 9 місяців тому +185

    My husband was struck by lightning while holding a cell phone. The shock went into his temperol lobe. He now has temporal lobe (absence) seizures. He has described a lot of what you spoke about, not knowing me or our kids, and it's been tough. I was told that for him, it will be neurological degeneration and will never get better. I will follow and hope that you find solutions for yourself and maybe help us as well. Best of luck, my prayers are with you and your family.

    • @chasehughesofficial
      @chasehughesofficial  9 місяців тому +24

      Please google the crap out of Methylene Blue. I’ve even published papers on it.

    • @andydufresne5297
      @andydufresne5297 9 місяців тому +4

      @@chasehughesofficial First heard about MB within the last 2 years, while listening to discussions of effective medical treatments for those who were injured by the "safe and effective" 💉. Makes me wonder if some of those doctors (like Malone, McCollough, and/or Mercola) know of _additional_ brain-supporting treatments that would work well with the Methylene Blue.
      Another question: Might be "woo-woo", but have you considered that maybe past lives/alternate realities/simultaneous multiple lives actually exist, and that the epilepsy you are having allows multiple lives and experiences to bleed over into this life?

    • @katgirlblue
      @katgirlblue 9 місяців тому

      @@andydufresne5297 well I guess it's easy to figure out your favourite movie.

    • @andydufresne5297
      @andydufresne5297 9 місяців тому +1

      @@katgirlblue Excellent movie

  • @CoachSarahNicoleB
    @CoachSarahNicoleB 21 день тому +2

    I have been watching The Behavior Panel for years and I only recently discovered your channel - not sure what took me so long! I know I speak for many others when I say we love you Chase😭😭😭the part about being with your wife at the hospital as she was about to give birth and the reality of you having to pretend to know who she was until you came back brought me to tears. Thank you for sharing your story with all of us. You are so brave and you continue to help others as you go through this. We are here with you! 💝

  • @christastow4097
    @christastow4097 9 місяців тому +202

    Circumstances doesn't make a man, it reveals him to himself. I salute you sir.

  • @mimmierieves4440
    @mimmierieves4440 9 місяців тому +297

    Dear Chase, I've been watching TBP for years with interest. When this UA-cam video first came up on my screen I thought it must be clickbait. An hour after finally watching it I still can't fathom it's a real issue. I'm a Doctor and also caring for my son with schizophrenia. Struggling with acceptance and looking for answers on a daily basis. Brain disease is hard on the loved ones too. It's a lonely trip. Lots of love and strength to you and your loved ones. I'll be following your journey

    • @trouble9862
      @trouble9862 9 місяців тому

      If you’re open to it I would encourage you to watch ‘The optimal diet for mental health’ Dr Chris palmer & dr Anthony Chaffee on UA-cam. There is a growing theory that schizophrenia could be an autoimmune disease. I do not have schizophrenia but I do have severe autoimmune issues and diet transformed me from bed bound to being independent again. Dr Chaffee is a great source of information for this dietary change. Other trusted sources are Dr Georgia Ede (incredible resource on mental health & nutrition), Dr Ken Berry (great resource for tips to dietary changes) I wish you and your family well

    • @fionahamilton2472
      @fionahamilton2472 9 місяців тому +7

      Very moving and helpful for others .

  • @leahcostellomusic
    @leahcostellomusic 9 місяців тому +1146

    "We are troubled on every side, yet not distressed; we are perplexed, but not in despair; persecuted, but not forsaken; cast down, but not destroyed.." (2 Corinthians 4:8-10) You're a picture of courage and strength in adversity.

  • @michellelalonde5318
    @michellelalonde5318 5 місяців тому +12

    I've bought and read all of your books, which are so informative. I'm a big fan of your life's work.
    But this video, by far, is what you should be most proud of and what your fans will admire you for...your courage, transparency, and authenticity.
    Thank you for trusting us enough to share your journey. You and your family will be included in my daily prayers.

  • @savage_optimist
    @savage_optimist 9 місяців тому +493

    💔 I can't imagine the specific pain of being a brilliant intellectual with a brain disease. All of us use our brains but for you it's such a source of good in the world and I'm sure a big part of your identity! And of your family's identity. There must be a special anxiety and grief that comes along with being disabled in this way.
    I hope you have a lot of emotional support and that healing can be achieved! Prayers for you and yours ❤❤❤. Thank you for all the good you've done in the world.

    • @jarrettfinney4882
      @jarrettfinney4882 9 місяців тому +40

      It’s hell on earth. No one believes you for a very long time. And by that time it’s almost too late. People often think you’re lying to get out of stuff. They look at you like the biggest waste on earth because God has given you all of these gifts and abilities and you can never really figure out how to use them for your benefit or anyone else’s. You don’t know where anyone’s coming from and the moment you don’t fall into the vision they already had of you, their done. The worst is people you love not believing you. My specific problem is brain injuries from football. No idea how this happened, but the part of our brains where the most activity at, I have less than half, closer to a third of the activity, but other parts that are only supposed to have a little here and there, there’s way too much, like a hundred times as much in some areas. It feels like my brain is stuck in fast forward. It was a strength at first, still is in some ways, but I feel like a tired old man, and I’m only 31. But the science is wrong saying “we only use ten percent of our brains.” The average person uses his whole brain how it was meant to be used. But thank you for taking the time to comment!! Most people don’t even know we exist, and dealing with these childish, disrespectful young women today, it’s a nightmare. Especially when Gods already shown you what’s happening. The ships going down, and we have more than enough lifeboats for everyone, but the men in the boiler room are the only ones getting off. The party goers refuse to listen because the captain and crew are telling them the ship is fine. But they don’t know that they’re intentionally being lied to.

    • @jarrettfinney4882
      @jarrettfinney4882 9 місяців тому +15

      Sry for writing a book btw

    • @nanceb4him
      @nanceb4him 9 місяців тому

      ​@@jarrettfinney4882So sorry for these circumstances ans struggles. Prayers...

    • @dl7562
      @dl7562 9 місяців тому +12

      Well said savage, and Jarrett I'm so sorry. I pray things get better❤️

    • @sharondrury5676
      @sharondrury5676 9 місяців тому +2

      @@jarrettfinney4882your book is helpful and I will be praying for you.

  • @heatguillen
    @heatguillen 9 місяців тому +526

    The paragraph to his family had me in tears. Love you, Chase! ❤ We will always be here to remind you of who you are!

    • @evelynmonrad
      @evelynmonrad 9 місяців тому +23

      Now this brought tears! Yes, we will.

    • @Princesspetty32
      @Princesspetty32 9 місяців тому +3

      He should have had sympathy for the Princess of Wales

    • @EleonorS
      @EleonorS 9 місяців тому +3

      @@Princesspetty32 How do you know he hasn't? He said he was sorry to hear about the diagnosis and that they're thrilled that there was was hope for her, when analyzing Princess Katherine's video. When was he unsympathetic? When he said that something about the video felt off? Or that her eyebrow was up? Well, although her eyebrow WAS up and I agree with Chase that the video DID feel off, I also have sympathy for her situation. I also, like Chase, wish her well. Where's YOUR sympathy?

  • @marikotrue3488
    @marikotrue3488 9 місяців тому +214

    That phrase, "watch my recovery or watch my decline", hit me hard. After watching Chase Hughes for quite a while on The Behavior Panel, I see him as a man who goes straight to the point without the use of euphemisms, sugar coating or false deference. Watching him explain his diagnosis with those same skills, gives me hope that perhaps there is a way for him to live with this condition rather than to have it consume him. I have face blindness so in a quite a small way I have experienced that out of body feelings of: who the heck is this person who stopped me at the grocery store. I do not know if this is a salesperson or my next door neighbor. So I have also played that smile game, while talking in generalities or faking an appointment to make my get-away. THANK YOU Chase Hughes. I have just subscribed to this channel. I feel honored to be educated on this journey by a person that I trust, even if I could not ever recognize him at my local grocery store.

    • @deblarosa1703
      @deblarosa1703 9 місяців тому +4

      Looks like you've added a sense of humor as a daily medicine! Boy, oh Boy, am I EVER a believer. I'd be dead or crazy without mine! My best to you!

  • @CaroWeenink
    @CaroWeenink 3 місяці тому +5

    Dear, dear Chase, we will watch you recover. As a fan of the behavior panel for YEARS (as a psychologist and behavioral scientist) in the Netherlands). I really feel for you and your family, this must be so hard. When a new vid comes up, it makes me happy, finally some nerdy community where I totally feel “at home”. And even I know it sounds weird, but we, as watchers of your channels, become, in a way, close to you (and the panel) so this made me so sad and I’m, from the bottom of my heart and very sincerely, so sorry for especially you, but also your family… I think I speak for not only myself when I say that some things really aren’t “fair”, that you are such an authentic person with so much potential and intelligents trough the roof but yet so humble and sympathetic. I’ve gotten to “know you” because of the BP, but read your books and saw every clip of you that popped up on my feed here. I’ve have learned SO MUCH from you. You’re already a legacy as far as I am concerned. The 4 of you are a great couple, every one of you with your own personality and “gifts” or “specialisms”, but you are -and I have proof in the comments under more than one of your BP vids- the one I find so intriguing and really look up to. I’m not religious, yet I’ll pray for you, your wife and children. I know, even though it might be degenerative, you WILL continue to strive and I am so thankful we all can be a part of your journey. Thank you for sharing this, it’s speaks beyond volumes about who you are as a person and it tells what a great person you are and you might not even know/or share that opinion because of your integrity and humbleness. Stay safe Chase, we love you in every way, form and shape. 🙏🏼🫶

  • @STORMDAME
    @STORMDAME 9 місяців тому +231

    My husband has a similar condition. He sometimes forgets my name and our precise relationship but he ALWAYS knows I'm someone he loves and trusts. You did exactly that during your child's birth and you need to know that it counted. I'm always amazed by my partners ability to fall in love with me over and over again. It's a beautiful thing.

    • @celestestedham2454
      @celestestedham2454 9 місяців тому +20

      Beautiful

    • @bevp7838
      @bevp7838 9 місяців тому

      I went through a horrible experience years ago with “brain fog”. I knew that I was supposed to know or remember things, but I couldn’t get them into my consciousness. Turns out that it was caused by meds given to me for a diagnosis that never fit diagnostic criteria. In the meantime, I left my work as a labor and delivery nurse when I realized that I was not safe. It was a very long and painful journey to accept that I would not be able to do lots of things with my grandchildren. There have been bouts of depression, but none as severe as the first round. The doctor who gave me a better diagnosis, and a pathway to a more functional life left town. Since then, I’ve had the feeling that I understand what this is better than any medical provider I have seen since she left town. God bless you as you continue through this difficult process. (I was 56 when it began, 57 when I applied for disability. But I started to realize at about the 10 year mark that I could look back and see evidence that this process had been going on for a long time and I had basically ignored a whole lot of pain to be able get my job done, and maybe I could stop calling myself a wienie!)

    • @SuperAnnieq
      @SuperAnnieq 9 місяців тому +5

      Blessings to you and your hubby ❤🙏

    • @KhetheloNKhumalo
      @KhetheloNKhumalo 6 місяців тому +2

      It counted 😍😍

    • @TexasTornado66
      @TexasTornado66 5 місяців тому +1

      Wow! I balled (cried) reading your story. Ty for sharing.

  • @mgw1206
    @mgw1206 8 місяців тому +237

    I've worked in neuro rehab for over 30 years and have never heard anyone describe the experience of going through seizures so eloquently. Thank you not only for your bravery in talking about all this, but for your ability to help us all understand the complexity of what it feels to go through this type of experience. I've been a fan of Behavior Panel for a very long time, and my heart goes out to you and your family. Praying for treatment that will bring you full recovery.

    • @sunshineproductions4122
      @sunshineproductions4122 8 місяців тому +3

      I'm so confused please tell me what causes this- is it a breakdown in the brain tissue? Plaque blockage? Please let me know

    • @dawnmcdermott8029
      @dawnmcdermott8029 8 місяців тому +5

      Thank you for sharing. I will pray for full healing so that you may be able to resume a normal life, and that God will use this in whatever format in His plan. Just curiou,though...if you received the covid vaccine and the timing of this disease presenting? Praying for you and your family! 🙏🏼

    • @020Dutchy
      @020Dutchy 8 місяців тому

      @@sunshineproductions4122there can be many causes, you can look them up on internet, for me it was brain injury caused by temporary lack of blood flow into the area during a surgery I had some 30 yrs ago
      Some examples: Infections, brain injury, a tumor, genetic mutations, or changes in brain structure all can cause temporal lobe epilepsy.

    • @EasyEnglishPROF
      @EasyEnglishPROF 8 місяців тому +4

      You and your family are amazing. Thank you for this open-hearted "confession" that brings you so close to us.

    • @chasehughesofficial
      @chasehughesofficial  7 місяців тому +17

      @@dawnmcdermott8029 I have not gotten the vaccine.

  • @janetroberts6249
    @janetroberts6249 8 місяців тому +289

    Chase, as a nurse, I know this has to be a difficult story to tell. For you to have the inner strength and willingness to share this part of your life is tremendous. As a nurse, now retired, I've seen people struggle with the frustration of brain disorders rarely discussed. You are doing such a service for so many.

    • @ericwright2101
      @ericwright2101 7 місяців тому +7

      We have your six. We are praying supernatural healing over you.

  • @MissMal92
    @MissMal92 8 днів тому +2

    9:56 I can no longer hold back the tears 😢 I'm sorry this is happening to you. Big fan. Prayers

  • @crystalpieper3533
    @crystalpieper3533 9 місяців тому +206

    Chase, I am a former Correction Officer because of my own temporal lobe seizures. They have gotten bad enough that I was more fearful of my co-workers safety than anything else. Right now my short term memory is fried, and even though I try daily I am still finding it difficult to remember new things. I explained to my therapist that I can understand why epileptics where once thought to be demon possessed, you have no control and only weird disjointed perceptions of what happened. I pray you find your answers and blessed be to you and your family.

    • @youseriosclark
      @youseriosclark 9 місяців тому +3

      Prayers for a cure.

    • @annajosullivan
      @annajosullivan 9 місяців тому +4

      I’m so sorry! I used to be a respiratory therapist and then I got brain cancer. It was found because I had tonic clonic seizures and I continue to have them even being on 4 anti seizure meds. My memory is also shot but I’ve had brain surgery, a butt load of chemo because I had a recurrence 7 years after my first tumor, and then of course the seizures. It’s definitely not fun how they can just change our lives so much. I haven’t been able to drive for 19 years.

    • @chasehughesofficial
      @chasehughesofficial  9 місяців тому +9

      Stay tuned! I have some incredible stuff to share that might change your life.

  • @sleepinggipsy
    @sleepinggipsy 9 місяців тому +233

    Omg! My son was diagnosed with this in 2022. I am speechless at finding your video today! I feel like I have found a long sought-after message in a bottle. This condition is so foreign to me and so little information is to be had. Thank you so much! I will be watching !

    • @kimalonzo3363
      @kimalonzo3363 9 місяців тому +6

      ❤😢

    • @Linda-uy8ly
      @Linda-uy8ly 9 місяців тому +13

      God Bless you and your son. 🙏

    • @adimartinez_realtor
      @adimartinez_realtor 9 місяців тому +3

    • @katelyn3997
      @katelyn3997 9 місяців тому +22

      My daughter also has this type of seizure. Totally know how you felt seeing this video. I’m so grateful Chase posted this as my daughter doesn’t have the vocabulary to express how she feels. Just seeing that footage from the Behaviour Panel when Chase was having a seizure made me emotional as I’ve never seen anyone else have this type of seizure.

    • @ginachiarelli8254
      @ginachiarelli8254 9 місяців тому +6

      The first word that comes to mind is brave. Brave to be so honest and transparent with the hope and intention of helping others. In the midst of your condition your altruism is remarkable, yet should come as no surprise since you have served and sacrificed for your country. I’ve marveled at your intelligence, insight, and dedication (along with your fellow Panel members), and now I can include in that list your courage, determination, and extraordinary capacity to love those who know and love you, as well as those of us who only wish we did. May God continue to bless you so that you may continue to bless others. Thank you thank you thank you.

  • @kamhart
    @kamhart 9 місяців тому +513

    What a gift to mankind! I've been a Critical care provider for 43 yrs... neuro diseases my first love & passion! ... your video...amazing, fascinating & my heart breaks for you & your family.BUT.. your gift of your story... your journey, how you feel!! Will touch so many!! Life mocks us when we think we have a "plan"! 4 months ago I was working 2 ER's ( to retire) ... today I watch you sitting in a wheelchair, fighting a pity party like none other! I found your new post! I had just seen Merit video & was thrilled! I hoe your journey makes beautiful memories & ANSWERS!! My husband of 31 yrs was hit head on 9 months ago... I lost him... my rock, my brother retired in July, Aug they found 2 brain tumors... this month he lost his vision... he was an Ophthalmologist... life doesn't play nice. So we take life up a notch!! I will follow your journey faithfully & May we ALL RISE UP!! ❤

    • @Avatar-h8o
      @Avatar-h8o 9 місяців тому +10

      ❣❣🙏🙏🙏

    • @louiseholly
      @louiseholly 9 місяців тому +10

      ❤❤❤❤❤

    • @RMBlake007
      @RMBlake007 9 місяців тому +24

      @kamhart I will be here to see the unfolding of this rare disease; along with you. Sharing your recent tragedies is brave; I/we can learn from you. I have also been hit with health issues & recent family death & illness...I'm still here for a purpose; as you are. Let's be here not only for Chase - an amazing human being, but for each other. Connections with like-minded people, (no pun intended Chase), is vital to the human experience. Peace....

    • @bronwenbakare9936
      @bronwenbakare9936 9 місяців тому +5

      🙏 ❤

    • @Princesspetty32
      @Princesspetty32 9 місяців тому

      Oh please 2 weeks ago he was judging the princess of wales🙄

  • @kimbirkhimer7365
    @kimbirkhimer7365 5 місяців тому +17

    I believe I can help you to reintegrate the disregulation that follows your episodes. I'm care giver to a man with a life time of these siezures following TBI as a 4 year old. He's now 65 and I've been caring for him for 15 years. Together we've found a handful of therapies that have significantly improved his life, speech, emotions, resilience and have slowed and eased his decline. I'd be happy to have a zoom with you to share experiences and solutions we have found.

    • @gonindunit
      @gonindunit 4 місяці тому +3

      Email him.

    • @kimbirkhimer7365
      @kimbirkhimer7365 4 місяці тому

      @gonindunit can you give me his email address?

    • @ezlow1065
      @ezlow1065 4 місяці тому

      Beautiful soul 💚🌺

  • @benjaminhawthorne1969
    @benjaminhawthorne1969 9 місяців тому +209

    Thank you for sharing, Chase. I also have epilepsy. My last "Grand Mal Seizure" occurred in Nov. 2018, while I was raking leaves in my yard. This directly led to traumatic brain injury, which required six (6) craniotomy brain surgeries to repair. I suffered a paralytic stroke during the 2nd procedure.
    I have been hospitalized or living in Skilled Nursing facilities ever since. I hope to transition to my own "Independent Living" apartment this June. I lost my house, truck, motorcycle and EVERY material thing that I had. But, I have my body and my mind and for those things, I am grateful to God! 😊
    Good luck to you, Sir! 🤠

    • @mccauley2023
      @mccauley2023 9 місяців тому +14

      god be with you benjaminhawthorne

    • @BrendaSpringer-b7m
      @BrendaSpringer-b7m 9 місяців тому +10

      I'm praying for you 🙏 ❤️.

    • @youseriosclark
      @youseriosclark 9 місяців тому +10

      May God Bless, heal and give you strength.

    • @benjaminhawthorne1969
      @benjaminhawthorne1969 9 місяців тому

      ​@@BrendaSpringer-b7mThank you. By the grace of God I AM restored! 🤗

    • @benjaminhawthorne1969
      @benjaminhawthorne1969 9 місяців тому +12

      ​@@jamyDodgerGod Bless You, Dear! 🤗
      We are certainly kindred spirits. I still speak Spanish, my 2nd language fluently, so my "old memories" are still there. The thing is that when my brother asked me what I had for lunch, I did NOT know! 😮 I have lost the ability to make NEW memories. The bright side of that is that if someone is rude to me, I can't hold a grudge against them! 😅

  • @njones2005
    @njones2005 9 місяців тому +191

    As a nurse I believe your ability to articulate your experiences so specifically, will definitely help health care providers to provide better care. I am sure with your military background that it was very hard to be that vulnerable, but i am sure so much good will come from this. You have always been my favorite on TBP, and I'm sure with your resilience, perseverance, determination, and positive attitude that this will not defeat you. I will definitely be following your journey, not only to educate myself and hopefully others, but also for personal reasons from some similar neuro changes from covid. I will be 🙏🙏🙏 for you and your family.

    • @KarenDean-s1b
      @KarenDean-s1b 9 місяців тому +7

      Here here...well said❤️

    • @jojobtrcook1808
      @jojobtrcook1808 9 місяців тому +5

      I am so sorry to hear this about you. But, your actions are positive and can only help your recovery. You are an outstanding man on the Behavior Panel that I have always admired. I wish you all of the best care and positivity as you are on your journey to get well. I look forward to your updates, whenever you would like to share them with us.

    • @Pylypczak
      @Pylypczak 9 місяців тому +5

      Yes Im a nurse too , priceless education hes courageously giving us.

    • @braeutchen41
      @braeutchen41 9 місяців тому +3

      ​@@Pylypczakanother nurse, Chas.....er/icu for 40 years.....spent the last 7 yrs caring for my friend who has cancer and end stage Alzheimers......my heart goes out to you and your dear ones and I will be keeping you in prayer......🙏🏼💝

    • @Portia620
      @Portia620 9 місяців тому +4

      @@braeutchen41thank God for people like you. ❤️🙏 light and love to you and your friend. 😢

  • @christiemcbaine2805
    @christiemcbaine2805 9 місяців тому +160

    I had to sit with this news for three days before I could post.
    So many questions. All of them so personal that I dare not ask.
    That you thought so much of us mere voyeurs to share such intimate information is an honor.

    • @mardyross2838
      @mardyross2838 9 місяців тому +11

      Profound comment ... glad I'm reading....

  • @mariajac1224
    @mariajac1224 5 місяців тому +8

    I’m grateful to you for having the courage to be so honest and transparent with the world! Because of your choice to be so open, others will be more patient with loved ones and those who have similar issues will go for help earlier! My prayers are with you and everyone who loves you as you walk this very difficult journey. Your experiences simply break my heart as I can’t imagine anything more frightening. Please know that you touched many people with your story and your truths! May your journey bring blessings that are as pure and surprising to you as the tremendous loss and fears are that you all are facing. God bless you for sharing this with the world for learning purposes and for your children to see what an amazing human being you are! Where there is faith and love, there is always HOPE! Keep your positive attitude and focus on your health and those closest to you as the rest of the world can only know you from afar, but they have your back, they love you, and they will go through this difficult journey with you. The people who have supported you, loved you, and been your inspiration are your greatest strength for this battle and journey. I don’t know how the story will turn out for you and your family, but I pray the small things in life that really matter continue to bring you joys, laughter, happiness, and that your memories bring you peace and not the chaos you have endured. In short, I pray you are able to put the puzzle pieces back together, making sense of the memories that are reality and separating the “memories” that aren’t. Best wishes for a long, happy, healthy future!

  • @IvoTichelaar
    @IvoTichelaar 9 місяців тому +124

    I'm a biologist who became a social worker. It is very rare for individuals with neurological issues to be so open about this. It is frightening when your reality becomes strange. And it's even more frightening when others find out, because they may start treating you differently, or not understand etc. But I have seen in practice that deciding to be open, deciding to inform the workd at large, makes it easier for others to recognize and accept channges in behaviour, accomodate treatment etc. Also, the active confrontation with internal "demons" makes the process of reconnecting with the world and reality a lot faster. I wish you well and just remember you are doing the best that you can. It shows.

    • @Threadbow
      @Threadbow 9 місяців тому +1

      I open up and get abused
      Never show yr vulnerable as woman.
      Men smell abuse

    • @johnleebass
      @johnleebass 9 місяців тому +1

      ​@@Threadbow open up about a medical disorder, not your cptsd childhood or other abuse 🤦

    • @Threadbow
      @Threadbow 9 місяців тому

      @@johnleebass you know nothing and clearly understand nothing either.

    • @Threadbow
      @Threadbow 9 місяців тому +1

      @@johnleebass your comment shows I'm right too.

  • @Andariegita
    @Andariegita 9 місяців тому +175

    Maybe because I’ve watched the Behavior Panel from the beginning, I feel stricken by this news; terribly sad for you and your family, your friends. But the sincere, deep humanity you offer in this video is uplifting and this is the part of you that will be with your family and friends (and us here who are farther out from your inner circle) forever.
    I feel grief for you and those around you who will intimately go through this journey with you, but their compassion, capacity to love and care for others will grow through knowing you.
    The future is unwritten - I pray for your recovery - I pray for insight, strength and endurance and that the love between you and yours prevails -

  • @nancyinoregon809
    @nancyinoregon809 5 місяців тому +178

    I'm a former neurolingustics researcher and find your account fascinating, while fully understanding how devastating it is and how unfair that you don't get a choice in how it develops. In spite of that, you DO get a ringside seat and you have a superlative analytical mind, so your ongoing insights will be invaluable.

    • @colleendeborah1581
      @colleendeborah1581 5 місяців тому +4

    • @patandemy
      @patandemy 5 місяців тому +2

      I wonder if vocal printing, voice spectrum analysis, voice mapping, BioAcoustic Biology could help. (Using frequencies) I know it still experimental but it has been successful

    • @KAC-uj7lk
      @KAC-uj7lk 5 місяців тому +11

      We walk this world in purpose. I have been introduced recently to your expertise and I wondered about the decision-making process behind publishing the OPS manual. It all makes perfect sense now. To be an expert eyewitness to such an extraordinary neurological event seems to me to be your purpose...Thank you for being willing to share your intellect, your experience, and your special talent in so humble and vulnerable way as you grapple with the role of researcher and subject simultaneously. May your insights open doors to help in ways beyond your imagination. God Bless you and your family as you traverse this unknown.

  • @TheGaredbug
    @TheGaredbug 5 місяців тому +7

    I feel incredibly honored to be a part of this journey of yours!!! Thank you for documenting and thank you for being real and raw because that really takes so much courage! I had no idea you were dealing with this diagnosis. I watch The Behavior Panel videos and today this is the one that appeared in my feed. The knowledge inside your head, and how well you have been able to help the general public and to educate us is truly amazing. I appreciate it so much as it really helps me in my job (counseling). I with there was something I could say or do to help with this neurological issue that you and others have. One thing I can do is pray for you, and i commit to doing that for you. Keep up the good work that you are doing and remember to never give up. You are truly an amazing human being. And brilliant I might add.

  • @julief8777
    @julief8777 9 місяців тому +91

    My best friend started experiencing what she called “the feeling” when we were 12. Over the last 36 years there has been a diagnosis, dozens of medications and brain surgery all leading back to the same results. Her eyes glaze over, she is transported somewhere beyond the present, and then returns to earth scared and confused. I am the keeper of the memories lost over the years, reminding her of the life she has led. Sending strength to you and your family ❤ We are all here for you!

    • @melraelee
      @melraelee 9 місяців тому +8

      Wow! What an incredible friend you are! My goodness - she is deeply blessed to have you, who label yourself the keeper of memories in order to help her maintain stability. May you know one another forever, and may God bless you.
      [I feel like you could write a book about your life with her, and everyone would want to read it.]

    • @Renzy-LuLu
      @Renzy-LuLu 9 місяців тому +6

      It's SO awful. It hurts my heart and waters my eyes to hear about everyone's experience of this awful thing 😢

    • @shirleypryor5092
      @shirleypryor5092 4 місяці тому

      Thank you for taking us on your journey with such grace. I love watching the Behavior Panel. Thank you for continuing to teach us. Sending prayers to you and your family. 🙏

  • @sjuts1
    @sjuts1 9 місяців тому +164

    Chase, I already had great respect and affection for you. And now even more so. I will keep you in my prayers. You are clearly a brilliant man and if anyone can overcome this, it is you. If not, you are still giving the rest of us an immeasurable gift. My love to you and your precious family.

  • @renaissancelady9938
    @renaissancelady9938 9 місяців тому +200

    God bless you Chase. I too have suffered with temporal lobe epilepsy and it is one of the most frightening and life-changing/devastating things that has ever happened to me. I don't think anybody can truly grasp what it is like when you can no longer trust your brain or your own reality. You and your family will be in our prayers!

  • @jochildress5003
    @jochildress5003 5 місяців тому +2

    My late husband had seizures for over 50 years without his family ever recognizing what was happening. It was only after he married me late in life that we learned what was happening because I was able to observe him more constantly than anyone had. All he knew was that in his earlier life, sleeping in a bed alone, he would sometimes wake tired and with his sheets and blankets inexplicably all bunched up. He also worked hard and served society all his adult life, and I applaud you for all your service.

  • @bluehawaiiansky
    @bluehawaiiansky 9 місяців тому +275

    Chase, I have an autistic brain. And I just wanted to let you know that your behavior analysis training has helped me TREMENDOUSLY. I can’t thank you enough. I had no idea how much I was lacking in that area of being able to read body language. It has changed my life. I am indebted to you and I’m deeply saddened to hear of what you’re going through. I can’t even imagine how horrifying it must be. You have shown such strength and courage though and resilience. You are a truly amazing human being, one who is worthy of all our love and support. I will gladly and proudly walk this journey with you. Thank you for your humbleness and openness. I am praying for you and your sweet family. God bless. Remember Jesus is a friend. Cry out to Him. He is the best friend, closer than a brother, that you could have to walk through this with you. Not sure if you’re a Christian but the Bible says if you believe in your heart and confess with your mouth that Jesus is Lord then you will be saved. Cry out to Him in your times of distress and He will be there for you. No one will be to understand as much as He does what you’re going through. He can calm your fears and give you His peace. Just ask Him.

    • @junehawkins6178
      @junehawkins6178 9 місяців тому +10

      Amen!

    • @JeanneRicotta
      @JeanneRicotta 9 місяців тому +5

      Chase watched you many times I think you are so cute, I’m praying for you honey….

    • @pateresekeating1709
      @pateresekeating1709 9 місяців тому +9

      I’ll add to this thread…
      Chase, I was so shocked to see this video! My jaw just dropped as my heart did. But the reason I am commenting on this thread is because this person gave you the path to Jesus, the ultimate Healer. As the Bible says, draw near to God & He will draw near to you. As you are promising to be real & raw to us, be the same to Him, because He knows everything about you anyway.
      Don’t ever give up. You are battling an enemy - & on both levels: physical & spiritual - & emotional. But don’t battle it alone, & I don’t mean family necessarily.
      Does sound like positive things are happening because you are still with us in every way. May this journey be toward absolute healing.
      But KEY! I can’t stress it enough: it’s God. And the good news is He is about to show up in such a way that will blow your mind / but in a good way. And I know healing & health is coming. And I am talking THIS YEAR. I’m serious.
      You might look into Med-Beds. It’s a technology (?) that I would love all military veterans be first to use them. They heal & replace all missing parts. I’m talking missing limbs coming back. Serious. So you need healing in your brain cells? No problem. Need new cells? No problem.
      Keep seeing yourself healed. Too many people need you.

    • @smrtars8018
      @smrtars8018 9 місяців тому +5

      Same here. Gives you a feeling of strength being able to read people and their signals and understanding their wording x

    • @elizabethburrell5151
      @elizabethburrell5151 9 місяців тому +5

      Well said, blue Hawaii!

  • @lindamcginnis2342
    @lindamcginnis2342 8 місяців тому +149

    Chase, I am a 77 year old mother and right now I just want to give you a hug with mom love. I wish the best for you and admire your bravery in sharing your experience.

  • @myartprocess6003
    @myartprocess6003 9 місяців тому +84

    Dearest Chase, I will keep you and your family in my prayers as you recover. I thank Christ Jesus for the honor of knowing what is going on and your bravery to share it with all of us who care so much about you. Godspeed. Peace be with you.

  • @Voltzy70
    @Voltzy70 5 місяців тому +2

    Man, I'm sitting here choking back tears because I was diagnosed with Temporal Lobe Epilepsy 19 years ago and know exactly what you're going through. 2 brain surgeries later and 1 simple medication and I'm now seizure free. The Deja Vu experience was always creepy. I was lucky because where I live I have access to 1 of the best Neurology Departments in the country and my Brain Surgeon is 1 of the best. My saving grace is my wife, she's a Nurse and she's the 1 who recognized what was going on with me because like you stated, these aren't fall down and shake seizures, you just zone out so they can be hard to recognize without medical training. I'm always trying to stay busy with work, I'm a Real Estate developer/investor so it's really easy to stay busy. I was incredibly lucky to be blessed with the family I have and receive the support I needed dealing with this. I feel you Chase and I'm praying for you.

  • @shirleytaft9337
    @shirleytaft9337 9 місяців тому +132

    Chase I’m a 69 year old woman who watches your show with your friends, and I love how informative you all are. My heart goes out to you for what you’re going through. You are a brave soul to still want to help others even though you are going through so much. God bless you and God bless your family!! You are a treasure to us all. You are a good man!! ❤

  • @darlenepowell4038
    @darlenepowell4038 9 місяців тому +136

    Thank you for trusting us. You will be in my prayers. Before my father died he had dementia, and I know it’s not the same thing, but my mother got in the habit of leaving him notes on the table. Sometimes they were the plans for the day and sometimes they were encouragement. At a particularly difficult time when he felt terrible about himself, she left him a note with the things I like about my husband. It disappeared from the table and after his death, she found it in his Bible. I share that story with anyone that I meet who has memory problems because it was so encouraging to my father. Again, you are in my prayers.

    • @Sarahh185
      @Sarahh185 9 місяців тому +6

      thank you for sharing, love is unmeasurable.

    • @massagegirlmary
      @massagegirlmary 9 місяців тому +7

      Thank you for sharing. My mom is in her last moments with dementia. It's a horrific disease. I'm so afraid to have it. I hope we can find the reasons for it.

    • @_sowhat_
      @_sowhat_ 9 місяців тому +4

      Thank you, Sister --|---- ♡

  • @margaretgrace5902
    @margaretgrace5902 9 місяців тому +159

    God bless you Chase. Thank you for sharing. I am a MD and have never heard such an eloquent description of the firsthand experience of temporal lobe seizures. The irony of the neuroscience expert possibly having MTS is palpably tragic and sad. That you are preserving your vast knowledge for others and exploring your own science based treatment speaks volumes to your courage and character. I have followed TBP since your first episodes during Covid lockdown. I will continue to follow your journey and am rooting for your recovery.❤

    • @nikkiangeliquenicole
      @nikkiangeliquenicole 9 місяців тому +7

      "seismic tremors in the bedrock of my existence" this says so much about your journey. Thank you for sharing, baring all, and at the same time, providing information about this condition. God bless you and your beautiful family. We are here for you and will take this journey with you, be it on the panel or on your channel. I know how scary the brain can be as I do suffer from something that I can't really share on here. Take care Chase. Sending love .❤

  • @jamiechristoffersen1879
    @jamiechristoffersen1879 4 місяці тому +1

    My dad had temporal lobe seizures my whole life, starting when he was 12. Thank you for this education. I could feel my dad trying to act “normal” afterward and I wanted to help but didn’t know how. He’s gone now. I miss him every single day. A special man gone too soon. Thanks again! So helpful.

  • @kathleensheridan9401
    @kathleensheridan9401 9 місяців тому +193

    Chase, I'll be praying for you. Very brave of you to share.

    • @littlebird8837
      @littlebird8837 9 місяців тому +1

      Adding my prayers for your recovery, dear Chase. I love watching you and the guys on the panel. ❤🙏

  • @k-cera
    @k-cera 9 місяців тому +219

    This was a diagnosis I received when I was 36 I am now 73. My experiences are slightly different but exacerbated by Complex Post Traumatic Stress Disorder. Its so important to do what you are doing, share as much as possible to educate others, because it will also help you. 🙏 With therapy, medication, time and a close relationship with the Lord, my sanity is 100 % managable and I pray that will be your experience also. 🙏

    • @the_19_22
      @the_19_22 9 місяців тому +9

      🙏🙏🙏🙏❤

    • @pinkpyjamas-ey6rw
      @pinkpyjamas-ey6rw 9 місяців тому +11

      A message of hope if ever there was one.

    • @mauraboland6842
      @mauraboland6842 9 місяців тому +3

      ME TOO!

    • @rejanedesevigne
      @rejanedesevigne 9 місяців тому +5

      ❤ what a beautiful and hope filled comment.
      😊 @k-cera

    • @k-cera
      @k-cera 9 місяців тому +1

      @@rejanedesevigne ❤️🙏

  • @LucaC2626
    @LucaC2626 6 місяців тому +119

    What a brilliant, courageous, compassionate, articulate man. In a class of his own. So very sorry for your suffering. We are all with you and praying for you Chase.

  • @Chauncey89898
    @Chauncey89898 4 місяці тому +2

    Chase! I had a TBI January 2020. I started having seizures within days. I am living exactly what you’re talking about! I live alone (so I don’t have anyone to look out for me) My diagnosis is Mild Cognitive Impairment secondary to TBI. The brain damage is left temporal. My short term memory continues to decrease. Long term memory seems to be unaffected. Before coming upon your posts, I haven’t had anyone who could relate to me. Thank you.

    • @myriamluzeka5788
      @myriamluzeka5788 3 місяці тому

      I hope you will find the best medical treatment. You can get better. Do not give up.

  • @mikkiduf
    @mikkiduf 9 місяців тому +114

    I’m praying for you Chase, the fact that you were protecting your wife during a seizure says so much about your bravery and your love for her

  • @AvaR-pk5np
    @AvaR-pk5np 9 місяців тому +194

    Hi Chase!
    My name is Ava, I live in Sweden and I have been a fan and supporter of your channel since the beginning. This is gonna a be a long message and hopefully you’ll be able to read it. If not, just know that I admire you greatly!
    I want to thank you for sharing this extremely sensitive and personal information, as I know the stigma that surrounds these neurological conditions. Your video made me tear up for a few reasons.
    Firstly, I’m so very sorry to hear about your diagnosis and the pain that it has caused you and your family. Second, it made me sad because I too was diagnosed a year ago, with (generalized) tonic-clonic epilepsy and temporal lobe/nocturnal seizures. I know exactly how you feel, with the dissociative feelings that leave you empty, hollow and confused. It feels like the joy, the warmth and the colors of life is being sucked out of you, piece by piece. The worst part is the aftermath, not only the confusion but when you’re back to “normal” and realize what has happened, it makes it even more sad and painful. I wouldn’t wish it upon anybody.
    I’m on Lamotrigine for a year and haven’t had any big seizures but I still suffer from nocturnal seizures. I will read more in depth about Mesial temporal sclerosis, hopefully you get a medication that works for you and you can continue to live a normal life because it is possible! I never thought I would become normal again yet here I am, thriving and not letting this disease stop me.
    I want you to know that you’re an incredible human, and you have truly changed the way I view myself, my personality/way of thinking and my sensitivity. Watching you and your advice, your intelligence, your strength has truly inspired me. I always knew you had a great sensitivity, because the way you viewed people and analyzed them, and understood them on such a deep level was not ordinary. You have an amazing brain! Your brain is different and beautiful!
    I’m so thankful that you shared this, as it made me feel less alone and connected to you and your channel on a deeper level. I know you will get through this, I know you will conquer this too! Thank you thank you thank you. Sending love, prayers and positive energy to you and your family!

    • @happyplace345
      @happyplace345 9 місяців тому +40

      Your message to Chase is wonderfully supportive and echoes the sentiments of many others who have watched him. Thank you for your loving message. You have worded everything beautifully.

    • @juniornico-2867
      @juniornico-2867 9 місяців тому +5

      Admiro a coragem e esforço para divulgar uma doença que muitos não conhecem. É uma luta diária mas que penso a força que demonstra o vai ajudar a ultrapassar esta situação. As melhoras e espero que consiga criar procedimentos e formas que permitam diminuir esses períodos de demasiada informação e incapacidade de a processar toda ao mesmo tempo. Força, motivação, amizade, família e muita sorte(vai sempre ajudar). Estarei por cá para ajudar se for preciso

    • @winifredjanevowler8360
      @winifredjanevowler8360 9 місяців тому +10

      Words of encouragement Ava, good on you!

    • @ravanohong4907
      @ravanohong4907 9 місяців тому +7

      Hi Ava, I'm so touched to hear you sharing your incredible journey! I thank God you're thriving and have found the way to live normally. You said exactly what's in my mind about Chase. I've learned so much from listening to chase's channel on human behaviour. I'm shocked to hear chase's battle tonight. He's a real hero as he's been a great help to a lot of people and at the same time has been at war with his illness. May God bless you both, find the right treatment for this illness.

    • @JustDiane71
      @JustDiane71 9 місяців тому +3

  • @AmataJo
    @AmataJo 9 місяців тому +77

    The years passing in your mind during a seizure is one of the most terrifying experiences I have ever heard of.

    • @chasehughesofficial
      @chasehughesofficial  9 місяців тому +46

      It’s definitely super weird. I specialized in neuroendocrinology and still don’t have words for it.

    • @devyn7853
      @devyn7853 9 місяців тому +1

      Indeed, this was the most mind-blowing thing to me in the video. Some near death experiencers have described this passage of time, Betty Eadie in her book Embraced by the Light is one. There was also an episode of ST:Next Gen where a man travels between two different worlds/different families, spending years in one, then suddenly waking up in the other. Possible some sci-fi writers are having this same thing happen to them.

    • @devyn7853
      @devyn7853 9 місяців тому +2

      The TNG episode was called The Inner Light. Picard is knocked unconscious and during that time of 25 minutes, decades pass in another life. From Wikipedia: Picard speaks of his life on the Enterprise but Eline and their close friend Batai try to convince Picard that his memories were only feverish dream. God bless 🙏💕

  • @jessiwhite7790
    @jessiwhite7790 4 місяці тому +3

    Prayers to you and your family. The Lord never leaves, we will never go through anything that he don’t walk right beside us. 🙏🙏🙏🙏

  • @rainbowzebraunicornpegasus2962
    @rainbowzebraunicornpegasus2962 9 місяців тому +87

    My eldest daughter was diagnosed with temporal lobe epilepsy at age 6. Unless, she was talking, walking, or doing a task that required moving or talking, we wouldn't know she was seizing. She has "lost" much of her childhood memories as they worsened. She even lost custody of her baby boys because "professionals" thought she was using illegal substances. They never once cared about her diagnosis not the fact her tox screens were clean. She has expressed many of the same symptoms. Gentle hugs! I can only imagine what you, Kearstin (now 29), and anyone else who suffers from this condition feel. I feel for your family and friends as well. I well understand how they feel. Thank you, Chase, for sharing your experience. Knowledge is power. Your sharing knowledge gives everyone power.

  • @roxanne2268
    @roxanne2268 9 місяців тому +101

    Oh my gosh. I'm blown away. Me too. You are describing me. I had no idea. Thank you, Chase. Thank you for sharing. I'm blown away. It's like living multiple lives at the same time. I will be praying for you and your family and am so grateful that you are sharing your experience and journey.

  • @youcancallmesteph
    @youcancallmesteph 9 місяців тому +104

    I came back to watch this a second time.. it really affected me. As someone with a progressive neurodegenerative disease; when I was diagnosed, I never thought I would make it to 2024.. our bodies are so much stronger than we give them credit for. You and I are both here, fighting. I didn’t know this, but you added me on Instagram after I shared me story.. little did I know; you were suffering with something similar. Being vulnerable allows you to help people you never could have imagined. While behaviour in the military was your first act - this is your second act; helping the medical field and patients who are similar to you. I find so many parallels with you. I’m so grateful you had the courage and bravery to let us in.. I know how hard that can be.

    • @scrubjay93
      @scrubjay93 9 місяців тому

      "Being vulnerable allows you to help people you never could have imagined." So well said. This is something I have believed my entire life.

    • @grapegoober8278
      @grapegoober8278 9 місяців тому

      Praying for you too! 🙏

  • @elizabethround2401
    @elizabethround2401 5 місяців тому +3

    I have been transfixed by the behaviour panel and have only just summoned up the courage to watch this video. Chase, you are a remarkable human being and your bravery will help not only you but the many people you are hoping to reach by going public with this. My thoughts and prayers go with you, your wife and your children as you negotiate this extra path in your lives. You already know how lucky you are to have their support and now you know that many others are supporting you all too. Sending you a big hug

  • @MeOhMyOh75
    @MeOhMyOh75 9 місяців тому +184

    Wow Chase, thank you so much. My daughter tried explaining her de ja vu with her neurologist and he loooked at her like she was stupid. I’m sharing this with an epilepsy fb page here in Australia - it is so rare to have such an eloquent description of what it feels like and rarer still to have someone brave enough to share their experience so honestly and with so much humility. You are truely remarkable, thank you ❤

    • @michelefitzmaurice4610
      @michelefitzmaurice4610 9 місяців тому

      @JL-ob3me ~ I recently brought up “de ja vu” w/my stepdtr & husband & they’d heard of it but neither have ever experienced it. I was shocked, I thought everyone had experienced this at one time or another! I’ve experienced it off & on since I was a child.
      I’m making a point now to ask lots people if they’ve ever experienced a de ja vu, lol!
      I’m sorry your daughter was treated like that by her neurologist. 😢

  • @stacieschmidt8658
    @stacieschmidt8658 9 місяців тому +90

    I have been an avid watcher and fan of TBP. I was 100% transfixed by this video. It’s the best, most courageous, and detailed description of a medical condition I have ever heard. What a brave and admirable mission to make your personal journey a journey of education and learning. Your transparency is amazing and we stand in support of your future. You are truly an inspiration.

    • @KathyHussey063
      @KathyHussey063 9 місяців тому +2

      really refreshing for him to be so open and to see that him being in his situation might be used to somehow help others (in various ways) is unbelievably generous of spirit right now. May we observe his journey and be able to witness a discovery he made/makes that will treat his condition and make it less reality challenging for him and others.

    • @LindaCapra
      @LindaCapra 9 місяців тому +5

      I was going to say something similar to your comment, but you said it so eloquently that there is nothing to add other than a thumbs up

    • @mimimutti8760
      @mimimutti8760 9 місяців тому +1

      ​@@LindaCapra so true !! 💚

    • @terri6723
      @terri6723 9 місяців тому +2

      Beautifully stated.

  • @dianastannard9515
    @dianastannard9515 9 місяців тому +116

    My eldest Son was diagnosed with Temparal Lope Epilespy at the age if 2. This was a terrible time for both my Son and us as parents, he suffered so much and his seizures were terrifying, he was put on medication and it seemed to help a little, it's very hard to explain when your child cannot tell you how he is feeling and you are helpless to take the pain away. My Son passed away from a Pulmonary Embolism at the age of 36 I miss him so much, but I would like to offer my support in any way I can, even going through the seizures themselves as children cannot verbalise what is happening to them. Sending all my live and support to you and your family.

    • @margaretwhittaker2291
      @margaretwhittaker2291 9 місяців тому +7

      sending you deepest condolences on the loss of your beloved Son. You have a very big heart and a loving soul. God bless

    • @Jeanie32
      @Jeanie32 9 місяців тому +1

    • @marij3219
      @marij3219 9 місяців тому

      💔

    • @creative2716
      @creative2716 9 місяців тому

      Blessings to you, may your son rest in love.

  • @Ana-db4km
    @Ana-db4km Місяць тому +2

    We raise by lifting others.
    Sr. First video I see, stopped it midway to subscribe and activate notifications... While I'm in tears.

  • @mspenelope6874
    @mspenelope6874 9 місяців тому +73

    Dear Chase, I am a doctor going through a very similar thing, due to complex post traumatic syndrome. Repressed memories of trauma usually arise in the 50s, and combine with flashback and blackout phenomena, causing cognitive and emotional dissociation. I love your show and this video is a Godsend. May God bless you and grant you a long and happy life, so that you can continue to be a wonderful husband and father and perform your service role in your chosen profession and more personally. ✨🙏🌹🙏

    • @Chasing70
      @Chasing70 9 місяців тому +4

      This has happened to me also about repressed memories from childhood. ( I have has CPTSD for the last nine years, but slowly getting well. No one told me this info about happening in our fifties. Thank you.

    • @ritzyroo353
      @ritzyroo353 9 місяців тому +5

      I totally agree. I am a mental health professional snd this is common at this age. Whatever happens in formative years gets you in the 50’s. Seen it many many times. Low dose antipsychotic really helps. Can stop seizures too. Trauma based illness. Good therapy will help. EMDR. I had a patient who had a major break psychosis when her brother had a baby girl. Turns out she locked in that he was “SA” to her all through her youth. Chase is awesome.

    • @chasehughesofficial
      @chasehughesofficial  9 місяців тому +5

      Thanks, Doc!

    • @fionaewen6231
      @fionaewen6231 9 місяців тому +1

      ​@@ritzyroo353 lm not a health professional in any way, but reading your post sounds like there is an experiential element to this. There was a fascinating tv series by a British hypnotist about healing all sorts of maladies with hypnotism, he even surprised himself at the outcomes. Ive been wondering ever since about this method of treatment ... Sorry if im way off. Just my thoughts.

    • @cindyhixson9891
      @cindyhixson9891 9 місяців тому +1

      Raising my hand as a CPTSD survivor in my 50's, experiencing the physical pain of stored trauma in the body. I had my first breakthrough session with my new Somatic Therapist just days ago. I now feel hopeful seeing just how very common this condition is and that treatment has been developed and is being successfully used today. We're a big community and help is available. God bless all who suffer!

  • @Itshellonheels
    @Itshellonheels 9 місяців тому +98

    Omg, my 35yo son was diagnosed with this at age 18. He progressively now..has very different “memories” about his childhood, family, friends, vacations. 😔
    He’s very intelligent and articulate, educated..
    But ever since he married 8 years ago, he’s now distant towards me , his dad & brother. It’s heartbreaking. He confided in his brother several times practically everything as you described it, plus the childhood memories are waay “out there”. The way you described how you’ve felt & experienced the “fugue” state is practically word for word how he was describing it to me when it first started.
    Being a nurse, I recognized the blank “not there” stares & other signs.
    The fact that you have various types of memories.. helps me further understand , his distancing himself… & what he’s “remembering” really is due to his condition.
    Thank you for being brave and posting this. I wish you and your family the best of luck and peace, understanding & love.

    • @janeferguson4455
      @janeferguson4455 9 місяців тому +1

      My immediate response to your note is the feeling that his wife Might be taking advantage of his brain disorder to isolate him from his family. THAT is abuse. I have NO recommendations but I DO share this idea of mine.

    • @sammnew
      @sammnew 9 місяців тому +4

      My eldest son has a TBI which has given him false memories which he has told his wife. Consequently we are estranged and I have no interaction with them or their children. I’m heartbroken and angry. I’m sorry that you’re suffering too ❤️💔❤️

    • @argusfleibeit1165
      @argusfleibeit1165 9 місяців тому +4

      @@janeferguson4455 OR, maybe he feels safest in his relationship to his wife. Can you imagine how hard it must be, to attempt to act normal to his entire family, when his reality is so fragmented and shattered ? How does he keep filling everyone in on how complicated his interior life is from one day to the next? He may find it impossible to deal with so many people, and wish to hide as much as possible. So can you just keep your alarmist thinking to yourself? It's really not OK to start accusing people you don't know of having evil intentions. She's probably doing the best she can to keep him calm, positive, and able to cope.

  • @spiralflash6169
    @spiralflash6169 9 місяців тому +99

    As a somewhat neurodivergent retired optometrist who has worked with tbi and stroke patients, I find this poignant and fascinating. You are in a unique position to document your experience. It reminds me of the book “My Stroke of Insight” by Dr. Jill Bolte Taylor, a neuroscientist who documented many of the nuances of her severe stroke and road to recovery. Aside from my interest as a scientist and clinician, I am a fan of you and TBP, typing through tears. I will pray for you and your lovely family as you navigate this frightening terrain.

    • @jodie672
      @jodie672 9 місяців тому +3

      I still have that book by Jill! It was amazing

  • @suefila6699
    @suefila6699 4 місяці тому +2

    Dear Chase, your description of your experiences will, without doubt, be a help to so many others. The brain is such a complex, wonderful, little understood, organ. Know that the love felt for you by so many of your online friends, is huge and you should be assured that we are all with you on your journey.

  • @SweepDailyWin
    @SweepDailyWin 9 місяців тому +188

    I'm shaken to my core as I watch this!
    I'm sooo sorry Chase.
    I am sending love and support and prayers to you and your beautiful family!
    God will take care of you!
    🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

  • @RebeccaSmith-c7f
    @RebeccaSmith-c7f 9 місяців тому +100

    I'm actually crying right now, what an amazing video, I've got temperol lobe epilepsy and for years I've been trying to explain to doctors, consultants, family etc that I've got this thing I read one day called Jamais vu, and it's the eeriest and vilest feeling. I've had grandmals, absences, hours of hysterical laughing, disassociation, blackouts, and above any of those moments, it's the recovery which I struggle with. The fatigue is horrendous, I forget people's names and where I'm going, but I carry photos and note pads everywhere I go. Chase, I can't thank you enough for your bravery for sharing your story and I suddenly feel less alone. I don't know anyone with epilepsy. I think you are achieving amazing things in life and I'm sending you, Michelle, baby Hanna and kids lots of love ❤️

  • @tatchley3049
    @tatchley3049 9 місяців тому +76

    That sounds quite terrifying. Those pictures are revealing. All of your knowledge and skills, add up to this purpose!

  • @Lee-cf2vp
    @Lee-cf2vp Місяць тому +1

    I can't imagine what it's like to go through all this and the courage it takes to move forward. You're a great inspiration and testiment of the human spirit. Thank you for sharing your miraculous journey.

  • @GaliSinatra
    @GaliSinatra 9 місяців тому +89

    You're still trying to help and teach people in the face of your challenge. You're an amazing man with a brilliant mind. Thank you for sharing Chase.

  • @CabinFever52
    @CabinFever52 9 місяців тому +84

    I'm pressing the "like" button for the algorithms. I'm pushing for your full recovery.

  • @chinavee
    @chinavee 9 місяців тому +73

    Like the Beatles, everyone has a favorite Behavior Panelist and you have always been mine because of your calm, rational, logical demeanor, your eloquence and your humility. Prayers for you and your family as you face this mysterious illness. Your documenting of it is a gift to the world.

  • @genetobin7403
    @genetobin7403 29 днів тому +2

    Thank you for sharing your story. I’m now part of your channel and will journey with you and your family. You are a very courageous man which will bode well for your future! Be blessed and know that I’m praying for you and family 👍🙏❤❤❤