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So I Have a VERY RARE Condition Called Visual Snow 👀
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- Опубліковано 12 сер 2024
- DON'T WORRY I'M NOT DYING
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Visual Snow Initiative ⇨ www.visualsnowinitiative.org/
Visual Snow Foundation ⇨ visualsnowsyndrome.com/
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So I recently discovered I have a condition called "visual snow", which is not new for me, but I didn't know it had a name, or was even different from what other people see. I seem to have a mild case that doesn't interfere with my life at all, but basically my entire field of vision has a kind of low-level static noise. Apparently it's very rare, and many people and even doctors have never heard of it. I only happened to find it by chance after randomly googling 'visual static' out of curiosity, and read more into it. But some people have much more severe cases of it that are very debilitating, so I figured I'd make a video talking about it.
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The reason everybody in the comment section has it is because his video was shared in our group for ppl with visual snow(over 8000 members),it is rare,educate urself.
What is your name? :D
@@sickd5148 I recognise your name from the visual snow initiative livestreams haha :)
I didn't know visual snow existed but I do notice its symptoms. I can make it resemble images/objects sometimes, though I cannot really control what. Also, it gets worse the more unconscious I become (when sleepy), or when not using my eyes.
It is not rare. EVERYONE has this.
Bojkez it is not rare. EVERYONE has this. You got played by Thio Joe buddy.
Wait so seeing static isn’t normal !!?
yeah I thought everyone had that.
A'right same.
Yeah that’s what I thought too
Same lol I see it like everywere I’m walls
I thought everyone saw blue and red pixels
I have this very mildly, I didn't even realise this was a condition. I thought everyone had it.
Same - is yours worse in dark places? Cause mine gets a lot more vivid at night when the lights are out
@@sweetyfri I'm sorry you have to deal with this so severely - hopefully science comes through and there'll be way to make things less difficult for you and other people suffering as well :)
Madzie 2000 i think i have it (or something like it) because when i look around in any light condition if i focus on it it gets super bad where i see patterns in green/red overlaying my vision where i get so indulged in it i end up missing 5 mins of class. I also seem to get distracted easily so when i start noticing the visual snow i end up staring off into space for long period of time without noticing what i’m doing.
Madzie 2000 also in the dark my vision looks black but with a dull white QR code overlaying everything
@@emisthem6562 dou have any idea what to avoid to make it less??
My eyesight needs to come out with a new update
Eyyy have it too 😂 I was just like oh, dots all the time. It's so bad in the dark, though ;0;
I think that's what I have but only in the dark
Yes. The dark makes it worse.
Ive only turned 14 and its gotten really worse to the point where i look at some letters that are which normally seeable i cant tell them apart due to the static images even typing this is quite hard
I have it too and do you hear white noise when it is quiet
When I was younger, my eyes used to be able to gradually adjust to darkness, but now it looks like the darkness is blank black. No silhouettes. No idea of where objects are. No idea of where the wall and ceiling meet.
Thank you Joe, the Visual Snow Initiative and the entire VS community is grateful for your support and shout-out.
Thank you.
Hi 😊
This sounds alot like HPPD or Hallucinogenic Persisting Perception disorder
Visual Snow Initiative as of recent mine is off the charts. Thank you Joe!!!! 🙏🏼❤️
I’m so glad people are trying to spread awareness of this as it may be annoying for a lot of people. I have the (disorder?) where I just see static it’s like what he showed but slightly less mild and I just thought it was normal till I for some reason thought it wasn’t, mostly because I don’t think your vision is supposed to look like an early 2000s live tv show. I can see it better when I focus on it and even have this floater (If floaters are supposed to go away then I’m screwed cause this thing’s never gone away) and I never knew it was so rare to the point most eye doctors don’t even know the (disorder thingy) if it isn’t going to get worse or if it isn’t going to kill me or something I kinda wanna keep it (even though it makes me highly sensitive to light, usually takes me a good 20/30 minutes just to stop squinting and car lights are way to bright for me (I HATE high beams) but a lot of my family tell me I can see very well in the dark compared to them like I was able the see a sign that said 60 mph maybe like 130 feet away before my mom could read it. Long story short thanks for giving your time for a incurable maybe soon to be curable (disorder thingy... I’m not sure if it’s a disorder, a disease or what)
that was very eye opening
i SEE what you did there.
@@e4r281 You missed a trick there man. Should have gone with with "Eye see what you did there"
Bu dum tiss
*Slaps roof of comment section
This bad boy can fit so many eye puns in it
Daniel Chapman eye can see that
"I'll switch to the normal image now." *everything remains the same*
same. I couldn't tell the difference
I couldn't either
Same
lololol
Omggg sameee I didn't see any difference
I have visual snow syndrome and tinnitus... I thought everyone saw things like this and I also thought everyone was supposed to get occasional ringing in their ears when I was younger.
How long have u get tinnitus snow falling? For me its been 7months and i miss silence so much
@@explorenara i've had visual snow syndrome all my life.
right like I have never heard silence its kinda sad
Same
Visual snow and tinnitus
I remember having visual snow when I was 6 years old (10 years ago) but now I have developed tinnitus too.
Ur eyes isnt 4k hdr
I also have visual snow, I didn't know how to describe it to my parents, and the doctor has never heard of anything like it so they said it was just my imagination.
Same!
Same
SomeOne they probably have it too but they never noticed it :)
Same
That make me so fckng mad because no one understand me
I always thought it was normal. I've had it since I can remember so it doesn't bother me.
It is, when it gets much more severe is when it's called "Visual Snow Syndrome"
Joel Crooky so static is normal?
I have had it since i was like 3 or 2 years old
Same, I’ve had it all my life, I can just phase it out thankfully.
@@whatRUtalkinaboutXD wdym? how? ive recently gotten it like last month and i just can't live life
omg, I thought it was air particles when I was little
SAME
I thought I could see atoms
Same
It's a glitch in the Maxtrix
Exactly
The Hunter true that
red pilled
A really fucking annoying one
So your saying my eyes are a glitch in the matrix?
the real reason this needs awareness. is because eye doctors are uneducated on this. they always run it off as floaters and rarely bring attention to u. for my expirence when I was 5 I woke up with it I thought I had a superpower lol. but as I got older. the symptoms like after images in darkness. got worse. the visual snow never got worse
They don't know what to do with it. I suggest bring this case to scholars
I told my eye doctor a while ago and he just tried to pin it on "eye migraines" saying I was lucky I didn't get the headaches too. I wish lmao
Lmao I also thought I had a superpower, when I was really little I used to tell people that I could see air😂my parents and teacher thought I was crazy and up until the age of 14 I lived on thinking I had the useless superpower of seeing air, until I looked it up and was like “oh..”
that’s cool and all but did any buddy ask It’s not just an optical issue, it’s a neurological issue, sadly. :(
@@frumpadump es triste.. de noche no veo bien T_T alguien esta asi.. empezo a los 16 ahora tengo 32.. y ah empeorado...alguien hace algo para poder ayudarme
I have this. I was 18 years old. Just woke up with it, I also have anxiety and sever migraine from time to time. Trailing lights, ton of floaters. I personally think anxiety and panic Attacks have a lot to do with it. I’m 38 now it never got worse or better.
i’m sure that’s the case. i’ve been suffering from panic disorder since i was 8 years old. i’m also wondering if some of the medications given to people with panic attacks has any effect on the brain, since i was taking antidepressants since i was 10 (18 now) and don’t remember having it all my life, but for all my teen years.
I too suffer from visual snow and anxiety
Yep I think panick attack bad one triggered mine too.. I came off my med Incase it was antidepressant side effect still there. The vs is mild but those floaters outside oh my gah. They are terrible.
I’ve had it all my life and I have a lot of anxiety
Me too!!!
I have visual snow. I’ve had it for about 5 years now from what I can remember. I’ve noticed that it gets more severe when I don’t sleep well and when I don’t take care of myself the way I should with eating and stress relieving habits. I have a sudden and random ringing in my ears and I’ve anxiety for ever. The more research I do the more I start believing that these are all connected. Visual snow does affect my daily life, I hope that one day it goes away as randomly as it came.
This man has had RTX ON since he was born
blender?
@@patemathic Octane.
Hi neoqueto, remember me? I am GHPL.
Wish I can turn rtx on with my eyes everything's looks like aids for me with this disorder.
I am a astrologer by proffesion
I was doing research on rare diseases through astrology.
It will be very helpfull i u provide me your
Date of birth with year and time of birth and country and state u were born.
I just found this video and it's true! My mother, sister, and I all have visual snow and as he said, it's always been there. It doesn't make me blind or anything at all! Sometimes, I'll see strange horizontal lines that sort of blend in with the static and it's a bit weird?? Nonetheless, this is a great video! >v
Same hopefully it doesn't get worst
same. I hate the random lines. it always happens when I'm reading things
Same :/
Those lines you’re seeing are probably afterimages from an object you were looking at a few moments ago. Everyone had them, but people with VS usually have more pronounced ones that appear quicker.
Alex Dansbyy Yes! The ones when you’re reading ARE afterimages for sure. They’re the afterimages of the lines of text, and since we stare at text a lot when reading, they take their sweet time going away.
Wow, we almost have very similar severity. I literally always thought everybody saw like this too.
I have this too.
When I was younger I used to think they were atoms lol.
I found out it was a thing and had a name around year ago.
same lol
atoms... damn thats good vision
me too, its really suttle though and i only notice it late at night ang when looking at white surfaces like papers
Me too lol
Ludvig Velta everybody has that, but like 99,9% only see it at night
I have the same lol. I always assumed that it‘s normal, but one day I decided to google it and found out that it‘s very rare. It‘s basically like you say, it doesn‘t disrupt my vision or anything, but if I look at something white, like a wall, I can see red and blue dots everywhere. I would‘ve never thought that it‘s such a rare condition. I also remeber having it forever. I had it since I was a child.
same lol
I’m starting to think I might have this. I always assumed everybody has this like overlay of static in their vision so I never thought anything of it. It never affected my vision or anything and my brain usually ignores it, for lack of better words. But if I want to see it I can. Learning that not everyone has this is very weird for me. I’m still somewhat convinced that I’m overreacting and assuming I have a disorder that actually don’t have and that what I’m experiencing is something everyone has. I don’t know
Me too
I have it too :D
mojabaka everyone sees it in dark and on white walls
Literally just figured out I had this an hour ago and have been searching for more information on it when I found your video. Thank you for sharing this, it helps to know I'm not alone.
Well same.. But i found it's name today
You perfectly described what I have been trying to explain to my family and friends! You almost said the same exact things I have, it’s so weird!! I thought it had been normal also...wow never thought it was different. I’ve never met anyone with it or anyone that has any idea what I’m talking about...will definitely show them this video now
THANK YOU!
Omg he's dying
am dead
@@ThioJoe we'll miss you and your tutorials on how to get free wifi
@@ThioJoe RIP in peace in peace in peace
No joke, I might have it aswell. I always see static at all times but it's so little
same
Me too
Yeah, it looks like pixels everywhere. I thought it looked like this for everyone.
sorry kid but everyone see's it; this video is just a joke
@@arthurs1459 i told my mother, she thought I was drunk or high... And she is a doctor
Omg, thank you so much for making this video. I have this exact condition. I actually thought that I was seeing energy or the fabric of our reality. Lol
But anyway it's like static or like you said snow. Its moving as well. I can't really tell if there is color to it or if it's clear. It's really annoying when I look up at a blue sky. All my life I've had it and even thought that maybe I had a detached retina or something. But now I know I'm not the only one who experiences this.
Missouri SkyWatcher I have this as well.
Wat we are sensing is the electromagnetic field.
So is seeing visual snow, seeing energy or are they different. I still dont know how to tell :/
Pug because it’s not understood yet (like so many other things), doctors can only speculate on Wtf VS is. there may even be various causes.. in diff cases for diff people. I know a few people who developed VS after a spiritual experience. While some say it’s just a medical condition they have. You gotta figure out why you have it in your own case.
When I was a kid I thought I was seeing ghosts lol
Josh's SkyWatching Channel «energy or the fabric of our reality» that’s what i thought too, great written though. But i once read that the white dots we see flickering is actually white bloodcells. I don’t know if this is true or not, but IT makes kind of sense.
"huh, how 'bout that" my exact response when I finally thought to Google what I assumed everyone had.
I got it at age 13 after being hit by a car. Also visual trailing (palinopsia).
I got palinopsia too. It's actually not trailing specifically, although that is an unfortunate symptom of having palinopsia. Palinopsia itself refers to an increased frequency/exposure of afterimages, which under certain lighting conditions can result in some serious trailing. Especially in low light.
Palinopsia = irl motion blur?
@@Yrenne when I was younger I used to play in the dark and then I just turned on the lights and it never could be seen. visual snow to me never got worse itself. the symptoms got more and more extreme as I got older.
I have Palinopsia with Visual Snow, and I'm only 13 years old. I got this last summer.
@Himanshu I have myopia, and I've seen these dots in only some surfaces but one day I was very anxious for something and felt a bit depressed, I've never felt like that in my life, and after that day was even worse and I can see the dots almost anywhere specially in the dark
I have a mild version of this too, and I just thought everyone sees like this
RepellentSpy me too, thought it was normal
Dam I have the same problem ! It always gave me somekind of a perk because it helped me see in the dark.
Same here
Me too.
Same
One of the best videos out there on Visual Snow! Thanks so much for doing this!
I had this thing since the age of 13... And now at the age of 20 I am dying every single day...this thing ruined everything in my life....(vs, high BP, derealization, memory loss...specs, migraine, tinnitus etc.)
I even don't know how much I will live...🙏😞😞
(Indian)
Sounds like hppd bro, u took psychadelik drugs?
Hi mai bhe India sa hu
Same bro
@Himanshu 10th i,14 pretty much okk..
Since it's been a long time, now I have strength to fight...other visual symptoms are same ,,but after regular exercise and Omega 3 supplements etc. I'm now better
So im 40 and I've had static vision come and go for years (quiet possibly due to random old injuries I was always the type to) but they are Def different then normal vision as I get that also and I get a few more ocular issues .. but with me they often signify a potential migraine. Not all migraines hurt BTW ou guys could have silent migraines with ocular disturbances if it comes and goes like w me and isn't all the time. (I have alot of the other symptoms as well.) Anycase. Back to the point. Most of these snow symptoms and others like it happened when I damaged the very upper area of the spine. From shoulders up into the skull, my disks slip in and out alot you see after that. ... when slipped out... alot of these symptoms show. Get your necks looked at for alignments and goto a neurologist
My screen has this syndrome
I believe I have the same condition. But like yours it's so mild most times I don't even notice it.
John Smith sane I’m beginning to think it’s not so rare
@@teetehi hmm same here
Yeah it’s very mild. I can forget about mine for months at a time. I really doesn’t effect anything for me. My Tinnitus on the other hand is up and down because of my anxiety. If I’m well mentally then I won’t have a problem. However, as soon as I’m depressed or my anxiety is high, I can’t stop thinking about it and it becomes very annoying. Mind you I’ve had the same visual snow and tinnitus since before I can even remember. This is how I know anxiety worsens things by a mile.
I live in South Africa and the eye docter knew exactly what I was talking aboat
I just cried of joy because i finally found out the root of all my problems 😭
I get that when I close my eyes
who else, like if so
I have this condition......it is very stressfull
Same bud
i like it, i think i have it really bad but it always makes me distracted in class because i like watching the patterns all over the white board and cabbits
It really painful to look at the sky tho
Now I’m aware of it, I can’t stop thinking about what people without it see
Same
Thank you for making this video! I recently realized that this was different from what other people see, and I also have mild cases of other symptoms of visual snow. But to know that someone else has a mild case of it like me instead of the severe cases I usually read about is pretty cool!
It feels so amazing to hear someone else having an extremely similar experience to me. I’ve had this visual static my whole life but it’s becoming hard to concentrate in the big white rooms at university. I’m 20 and only just reaching out to my doctor who had no clue what I was on about haha
This relates to me so much!!! So glad to see I’m not alone. I have visual snow normally when I open my eyes first thing in the morning and then it’s not so bad the rest of the day. I have constant after images and trailing lights and hate driving at night because of my vision. I get migraines and have anxiety daily so it’s made me feel better watching this video and reading the comments to know I’m not the only one and it’s actually “kind of” normal ❤️
It’s strange because I asked my mom and dad if they see static in there vision and they said “yes, but it’s quite annoying” I even asked my brother if he sees this and he said a little bit to, and I also even asked my friends at school if they see a little bit of static in there vision and they said yes to... I’m pretty sure it’s more common then we think lmao
Woah! This has been eye opening, haha literally. I've been having most of these symptoms for my whole life and either not noticed or thought there was something was seriously wrong because I'm kinda a worrier. Thank you for posting this video, it's help me discover my truth and hopefully helps others as well.
Thank you for this I’ve lived my whole life and didn’t know my vision was different
Conspiracy theorists: it’s a glitch in the matrixxxxxxxx
I thought I had bad WiFi
This is awesome to hear someone like you has a condition like this. Thank you so much for sharing.
Thank you for talking about this! It's so relieving to see how many other people have this!
I’m so happy that I’m not the only one with this! I just discovered that this condition has a name yesterday. I have all the symptoms that you’ve listed (and the symptoms on the visual snow foundation page) and I’m honestly just super happy that I’ve discovered this. I have multiple health issues and it’s interesting that a lot of the health issues I have are linked to visual snow (migraines, nausea, brain fog, etc.)
OMG. it's actually a thing. I've had this all my life so finally I UA-camd it and low and behold your video appears
I finally told my optometrist about this and I’ve gone through a lot of testing this past two months but nothing has actually been discovered. I’ve had an MRI which turned out fine and multiple eye exams which showed no deviation from normal. I had a lumbar puncture today and I’m waiting for results. Every single time I took a test or had an exam, the person giving the exam would ask why, then I would tell them and they looked at me like I was crazy.
My sister said she saw it too, but she took it back after she saw that I had to go take these tests. She changed her experience to just seeing it when she stands up really fast.
Been through that road. Multiple eye checks, MRI, all fine. I get the sense that in the dark is way worse, but, don't we all see some static / grainy vision in the dark? (like a dark room, very barely lit) ?
@@alankennedy6606 yea it is worse in the dark for me as well. sometimes i would turn the lights off and i would be unable to see anything but black grain for like ten minutes. even after nightvision has sort of kicked in, i can barely see with the grain over my vision still. it was horrible for childhood me and my vivid imagination. but apparently people don’t see any static in the dark? i’ve heard of people seeing starbursts or phosphenes in the dark but no explicit mention of it being staticky.
@@livent7514 Yeah i have no idea what's going on. I was suspicions about my rods failing but i think in that case we wouldn't see in the dark at all, not even in nightime on the streets and i see pretty ok. But yeah, dark and indoors, static / grainy stuff, noise basically on top of the vision. I close my eyes and i see the same static so cannot be occular. Did you ever do an EEG?
@@alankennedy6606 yea i’ve done an eeg and it all came back normal. at that point i was hoping something was wrong so they could have given me a diagnosis or try some treatment. i stopped pursuing a diagnosis last year and i just decided to deal with it. if i’m being honest it probably wouldn’t have a treatment in my lifetime and i don’t wanna have to be tested for the rest of my life for a disease that they won’t cure me of. i’m 18 im going to college and this is the least of my worries so ://
@@livent7514 Thanks for the reply bro. I'm 40, and i have a visit to the neurologist this week but i'm about to give up also, and just accomodate myself to the new reality, i'm just tired of the diagnosis pursue also, it's been 2 months already non-stop. Best wishes on college!.
thx man for the video hope people will contribute its very terrefing seeing it all day long in mine case its not mild some times when i get tired some black dots apper in my vision it get worse when i get tired really thx to vssi they are contributing a lot
it's like someone turned the ISO way up, man
Yea bro, only photography enthusiast understand this.
Our eyes work like camera. Or the other way round lol
When I was about 5, I told my mom that I could see the air
The Greek word for this condition is “seeing air”
Is dying valid in India?
What?
No it's not smh
No, thats why they have such high population!
Yes if you're still subscribed to T-Series.
Ffs 😅
Hi man! Thanks for using your platform for good and spreading awareness for this condition. Ive visual snow too for my entire life. The main factors in my case are extreme sensitivity to light, so I gotta wear sunglasses all the time, and after images which make it hard to read or see things in general. Also migraines but I’m medication for that. I got diagnosed by a neurologist around a year ago so that was a shock. I have that ringing in my ears and floaters and I had an aura once.
Anyway I thought I’d share my story seeing as you’ve shared yours, I’m glad that VS isn’t that bad in terms of other syndromes and I’m really thankful for the work of VSI and people like you spreading the word, so thank you ❤️
Thank you so much for talking about it.
I got it 2 years ago (I was 22) and when that first happened, no doctors knew what’s wrong, and I was going insane.. one of them even told me to see psychiatrist. I also have it accompanied by tinnitus that came at the same time. Also migraines for many years, but no visual aura. Basically just exactly how you just described your symptoms.
Then I just found a video on UA-cam (another one) and in the comment section were all the people who share the same experience as me and that’s such a relief.
From horror it became just something a little special about me. It’s important to talk about it so others like us can find it. Doctors really don’t know about it and I always just show them the Wikipedia page haha
I randomly woke up with this in September, and have been dealing with it for 9 months now. I have days where it’s very severe and other days where it’s barely noticeable. Thanks for sharing this so I know I’m not alone! It sucks not many doctors are educated on this, it took me 5 eye doctors and 3 neurologists later. I thought I was going blind for the first week and here I am months later. I also have light sensitivity especially driving at night. And seeing photo trailing.
Thanks again!
Thank you so much for this video! All of a sudden I just woke up with it... but I’ve been dealing with anxiety and panic attacks for over than 5 years already, so probably it has to do with that.. I thought I was going crazy
I have had this my whole life and always thought it was normal, just found out today its not and started crying, after years of confusion my years have been answered ❤
I learned today that I actually have this because I’ve wondered about this my whole life and now I finally know what’s going on. I don’t feel crazy anymore.
I always thought I saw static in my vision. mostly in the dark tho. I feel like everybody has it. maybe just diff levels.
Thank you so much for making this video. About two years ago I went out with my uncle to fly a drone. About 3 months before that my science teacher talked about how the sun is very damaging to the eye and can blind you in seconds. Of course this is not true (the seconds part) but I was scared out of my wits. I have a tendency to overthink things. So i had already been scared of going blind. I can even say it is the thing I am most scared of. So when I was looking up at that drone I saw an eye floater. This led to me doing a lot of research and noticing other things. I was hypersensitive about all of the things about my vision. It has been 2 years (ish) now and i don’t know that i have gone a day without thinking about it. I try to forget but it is hard to when you always see them. I have gone to the eye doctor twice and both times they said i was fine. I also started being sensitive to light. I started bringing my sunglasses everywhere i went. To a point i dreaded going outside because i would see the floaters and it would be unpleasant. Of course i also noticed the static but i could remember seeing it as a kid before i saw my first floater. So i kind of just brushed that off. I am very grateful for you for this video. I have been tormented by this for two years without any explanation. On a deeper note, i have been praying for it to get better. This is Gods way of helping because now I know I am not alone. Thank you from the bottom of my heart.
Wow this was long i just needed to talk about it somewhere and i figured other people with the same thing can not feel alone and also spread awareness.
Hey Joe,
I haven't caught up with a lot of visual snow groups recently but I came across this video in one when scrolling through news recently. Thanks a lot for sharing your story, since it helps spread awareness.
Ok but um I HAVE THIS- not very extreme but literally I thought everyone had it. It mostly bothered me during the night because I'd see it more when it's dark and it would be hard to sleep.
For me it's debilitating, I hope one day there will be some treatments
Me too!
Honestly the more you think about it & focus on it, the more trapped you feel by it. I forgot it’s there when I just don’t think of it. I think it’s definitely anxiety-related.
@@dietcokezeros942 I think it depends on the individual. Certainly thinking too much about any chronic medical condition is going to make you more anxious about it, and that's going to make everything feel worse. But some people are more affected by anxiety than others. I'm kind of aware of my visual snow all the time, but usually not thinking about it much. It feels a bit of an exaggeration in my case to say I forget about it as such, but it's just like this is just how my life is, it's not a big deal kind of thing, from a psychological perspective anyway, although it does affect my physical ability. I think it is easier to live with when you're focusing on whatever it is you're doing rather than how your VS is affecting whatever it is you're doing
Try Piracetam or Lamotrigine, for some, this meds help or even cure the visual snow
Ikr
I have it, when you have OCD/anxiety its worse
I get auras before migraines, I’ve had 3 in my life, the first time I threw up. The centre of my vision is a constantly changing aura and then I know I have a migraine coming, I never knew this was because of visual snow!
Thanks for vid
Wow! You’ve literally just explained everything I’ve dealt with. I used to tell my dad I used to see the tv when it was going funny. Mine is very mild and I resonated with you so much when you said it’s more noticeable on a blank wall, and you need to be looking for it in day to day life.
Dark rooms absolutely, in the evening I’m swarmed by it. I have a genetic rare disease I was born with (septo optic dysplasia) and I thought that could be this, but I always thought it was normal - absolutely normal. Until I was diagnosed with Hemiplegic migraines recently and joined a few support groups online to help me deal with what I’m going through - and someone randomly posted about this visual snow... what the heck is that and why has someone posted about it in a migraine support group?? So I did a google and WHOAH!! Explained everything in one hit. It’s NOT normal at all. It’s comfort knowing it’s not normal and I’m not crazy at the same time.
Seems like it’s all linked for me, from crazy weekly HMs to my brain malformation (again that’s mild too), and this visual snow. Wonder what I’ll discover next about myself and my health!
Woah! I said the exact same thing as a kid to my grandmother! I think I referred to them at first by saying that the dots keep me company in the dark, which really confused her. It's just literally millions of dots everywhere around me in the dark, but mine is about as mild and ignorable as yours.
I also have to added layer of a slosh of vitreous fluid that swishes around when I look around, but that's probably from all of my eye surgeries.
EDIT: WAH! I also have tinnitus, and apparently that vitreous fluid slosh I was talking about was the enhanced entopic phenomena you were talking about. now I don't know what's related to my document eye diseases (cataracts, glaucoma, etc.) and what's related to my minor neurological things (ADD, misophonia, exploding head syndrome, GD, tinnitus, etc.)
Neat!
Adahop You have everything as a disease dude, good luck with that.
@@bcepni00 Haha thanks. Everything I listed is pretty minor honestly - on the flip side I have better color vision than the vast majority of people (I have perfect color vision and can also see more UV than most people as a result of my diseases), I've never broken a bone, etc.
Yea me to my pshycologists thaught i was insane i have red lines and dots around my vision
@@ryan_plays-fullchannelrebu3666 Doctors would do better to say "I don't know" instead of "It's all in your head."
Adahop I was not expecting you here my guy
I’ve had this as long as I can remember as well I always thought it was normal but it’s so annoying :/
I hate it :(
@@Krqptic 12? I never noticed it at that age, mine maybe just appeared because I noticed it 4 years ago
I got the same condition. Had it since my 20’s. It’s crazy, i felt like i was losing my mind at first. But i found some information on it and I wasn’t going crazy.
I have a mild case too. It sucks because it messes with my anxiety.
Lol sameee
Dude I have been thinking exactly like you and I have same symptoms. I think this condition isn't super rare, people just ignore it.
Nice vid
The famous French painter Georges Seurat must have had this condition as well. He used it to his advantage by creating visual masterpieces. Monet's severe myopia was the genesis of his astounding Impressionistic paintings. The condition is very likely caused by some neurological idiosyncrasy and not by a mechanical flaw in vision. And you are correct in assuming that this condition is just another phenomenon in your basket of unique characteristics that makes you so special. Very interesting video ♥
I have the exact same thing myself with some occasional tinnitus and migraines.
It’s great that it’s finally got a name it can be identified as. Great video!
this describes exactly how I see it. i didn’t notice it much in the morning before I knew this was a condition; but in the night it was vivid. i used to think I could see atoms. worst thing about it is, now you know some people can’t see it, now it’s very much there. you can’t unnotice it
Whoo hoo! We now have our own initiative. Visual snow lives matter! :-)
The fact that we all describe it the same way and have the exact same situation since we were kids " telling our parents then they brush it off like " what are you talking about " then thinking this is what everyone has, having it for as long as we can remember... Everything you just said in the exact same order is what I've been hearing from everyone in this community and that's how I also used to describe it before hearing about it online...
its kinda creepy how all of us did the exact same "my vision looks staticy" or "i see so many dots in my eyes" and no one believed us, just in these comments its hundreds of people saying the exact same thing, and then everyone saying they only ever found out it existed after randomly researching it, i havent seen a single person with VS say a doctor diagnosed them without them having to bring it up and explain it
I've also had Visual Snow since I can remember, with about the same severity as you. Only today did I discover the condition has a name and community! Thanks for explaining the condition so well - will be using this video to share as a reference for others!
I had mild visual snow since i was a kid and now im 18... could realate so much to this.
Who else after watching this video realized that they have visual snow....???
Geminii what about when looking at a white wall?
Geminii dont understand.. i never see them in daylight, but do when staring at walls
Geminii doctor said its normal to see dots on walls aswell
NoLimitDennis what about the sky?
OMG I didn't now it was a thing but I have it! Thank you for this video!
I have VS and I feel that this REALLY needs to be focused on more. I only recently looked it up and Im annoyed that no one else is really aware about this. I didnt really notice it being a problem until recently. I do plan on seeing a doctor about it but Idk if anything will help it.
I just found out about this, and i had it all my life, i cant believe not everybody dos have this
Now everybody from comments section have this condition. Nice
yeah LOL
You know some people didn't even know about this. Like he said they thought it was just normal. Rare does mean that some people have it. Comments like this piss me off. Yeah lets just call everyone fake. Grow up.
My case is really severe, i cant be on computer anymore. My eyes hurts due to photophobia. and iam only 16yo
A H
just get new eyes
One of my best friends also has this condition.
She wrote a computer program that created static effect to give me an idea of what it looked like, and it’s wild.
Why write a program when you can just use the iso static
AdamasDragon We didn’t actually think of using iso static at the time. We had just finished up our classwork for a programming class so she used the extra time to whip something up really quick. Not to mention it seems like the visual snow is much more severe for her than the iso static appeared to be.
@@ayansi Mhm
Had first big panic attack at 19 is what triggered my visual and audial tinnitus. Crazy but it has stayed at a resonably bearable state since then I'm 24 now
I have a very very severe case of visual snow, I was diagnosed when I was 14! I have full visual, colorized visual snow. I have almost all the side effects, tinnitus, blue field entoptic phenomenon, migraines, etc. I'm so excited that you made this video! Its a really unresearched "disease" with no cure. You're awesome!
I think it goes for some people because I had this(I was seeing like molecules things) when I was (6-7)but they disappeared for about 7 years and now I got them again at 14.
Thank you for doing this video! I've had this all my life and my Visual Snow is Not mild. I have all the common symptoms associated with the whole syndrome. Luckily I can drive a car fine and I have a good sense of humor. Your video will do a whole lot to spread awareness!
Timothy Salthouse Do you feel vibrations around light source(oscillopsia), or see after images or ghost images?
Timothy Salthouse This has been happening to me for more than 2 years. I went to eye specialists and neurologists, all my medical reports are normal. They referred me to psychiatrist.
It feels like the situation getting out of hand. I am scared. My family don't understand it.
how are u nnow?
@@SanjaySharma-tm7mu
Thanks for this video. Been suffering this a lot for a long while and couldn't figure out what it is or how to describe it to people without them thinking it's just floaters. Comforting to know theres others out there with this to share frustrations and anxieties.
Thanks for the video, it was recommended to me on UA-cam since I follow vs initiative.. I’ve had it since birth as well and googled the same thing in my 20s.
I've had this since I was a kid. I thought everyone sees the world like we do. Sometimes electro magnetic field appear on my vision too. Not floaters, just clear electro wavelengths or something like that.
Trish Alvarez same here! Things will look almost electrified.
Same.
I have this all the time
Aura migraine maybe?
I will miss you Thio ;-;
RIP
😂
im one of the people who woke up one day and its been months and it still drives me crazy, mine isnt as mild though
i have the same visual snow condition as you. i didnt know i had it until u talked about it. i also thought it was a normal thing everyone has
This only happens when I get up, not even getting up too fast, and it gets so severe to the point I feel dizzy and weak so I have to sit down before I pass out.
Happens to me when I decide to focus the "air" and it is easier when there is light. And the little particules always move and I seem to see the Color Red/Yellow/Blue.
Right on, when I think of them they gather and glow brighter.
Thanks it good to know someone else has it and has had it. I have Tinnitus but my tinnitus is actually really bad and I’ve just been complaining about my tinnitus and just finally look it up and found it and i just really hope it doesn’t get worse or maybe even better.
So relieved to find this video! I developed the static effect, floaters and light sensitivity three years ago - knowing that I'm not alone (and not going mad) has made me feel better. I just have to wear sunglasses much more now and am learning to ignore all the stuff in my vision. I have tinnitus as well and I have heard that most people with snowy vision have tinnitus. Oh well, there are worse things to have!