What is Visual Snow? Symptoms and Treatments
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- Опубліковано 9 лип 2024
- Visual snow is one of the most misunderstood visual conditions. This video takes an in depth look at visual snow syndrome, the symptoms, the diagnosis and the treatments.
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Visual Snow symptoms people typically experience:
Seeing Static
- Photophobia (light sensitivity)
- Palinopsia (after images and visual trailing)
- Entoptic phenomenon (blue field entoptic phenomenon, eye floaters etc)
- Nyctalopia (poor night vision)
Common bodily symptoms include
- Migraine
- Tinnitus (Buzzing or ringing in the ears)
- Vertigo (feeling dizzy)
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About this video:
Ever heard of visual snow syndrome? Perhaps you have been seeing static or floaters in your vision? If your eyesight appears to be covered in what looks like tv static then you may have experience visual snow. In this video, Joseph J. Allen, OD FAAO, from doctor eye health reviews visual snow, shows a visual snow simulation and shares some of the common visual symptoms. If your are looking for visual snow relief, Dr. Allen also reviews a few visual snow treatments.
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💥 Question of the Day: Do you have visual snow or do you see other visual symptoms?
Yes I do!
Yes! I see it especially in the dark and i thought it's because somehow the poor light signal sent to the brain is boosted, kinda like when you go to a higher ISO on your camera. Because in the dark it looks more grainy than when I look at a white wall or bright sky. On the bright sky I see some tiny bright dots that move randomly. It's very mild though. I can easily ignore them.
I'd like to ask you a question. Why when I look up, without moving my head, but only my eyes, and there's a bright light source coming from above (in the dark), I can see something like branches in my field of view? They appear briefly, only when bright light hits my eyes at a certain angle in darker places. It looks like the image of the veins in the back of the eye.
I have some shadows near the vision center of each eye and since I am good with photoshop I draw them precisely, here is the image of what I see www.dropbox.com/s/xkwfy3h1deswz5m/sight-problem.jpg?dl=0. This is diagnosed as DRIL (disorganization of the retinal inner layers). I got it because of my diabetes so I did everything to bring my glucose level to the normal range but I still have a slow progression and I am really afraid of losing my vision.
A few years ago I had the moving dots, but it was only when I wore my prescription glasses, so I put it down to small crays of the UV lens coating causing a reflection--does that sound plausible?
Once I got new glasses and at the same time had debilitating dietary problems, after tests and doctors gave up, I self-diagnosed it to be caused by commercial food additives/flavor enhancers.
Anyway, I have been on a whole-food, plant-based diet since 2018 now, sticking fairly close to Dr. John McDougall's Starch diet, and have had no moving dots or health problem since. Hope that helps someone.
Just in case anyone needs to hear this, you aren’t going blind!!❤️
thank you 🤧
Hi humble truth hi i get like these flashing streaks its like a zap of light that passes through visin sometimes its is black is that normal is visual snow ....please has this ever happened to anyone ...ive been cleared by all kind of doctors...im just so scared of losing my vision .
@@lucymunoz3479 yes that’s completely normal I get flickering lights in my vision and all kinds of crazy things I can promise you that you won’t lose your vision!
i really did need to hear that🥺 thankyou
Ty bro I was lowkey freaking iut
Omg! I thought everyone has it! I mostly see it on surfaces like sky and walls, and in the dark especially. It's also very mild and I don't notice it mostly.
Dia Hervey do you have ghosting vision?
I KNOW! end of school year last year I was like "dang, guys that static we see is annoying sometimes" And everyone was like what? And I explained and NO ONE UNDERSTOOD and called me crazy. Then someone told me they had it and said it's name
I think everyone does have it to some degree as we had a discussion at work about it, 10 of us, and all experience it.
@@BamBam-me8sf exactly. But there are people who almost don´t notice it and then theres us. :/
@@ttmusicchannel013 I can actually hear the snow, as well as see it.
I wish I had this video back in 2014, would of saved me from a lot of eye doctor trips and many anxiety attacks, to all the people who just developed this I promise the anxiety and fear gets a lot better it just takes time, you are not going blind. I promise.
Thank you for your comforting words 💜
I started developing VSS symptoms a few months ago and they literally keep on increasing, I was never that much depressed in my life 😢
I also have tons of eyefloaters and I just don't know how to deal with all of this 😪
Could I ask you how long it took until your symptoms stopped increasing ❓
For me it had been 4 months but they are still increasing
@@lili-777 of course❤️ honestly for me it took like 2 years to actually get use to it, I noticed things like stress and anxiety make it worse, also not getting enough sleep affects it as well. The good news is humans are adaptable so we have the ability to adapt to our situations, sometimes it just takes a little longer than we’d like but it will happen!
It could honestly be that the stress and anxiety from the visual snow is causing it to increase for you, just drink plenty of water and gets lots of sleep and exercise, I think you will start to see an improvement!
Thanks for this comment, I get migraines and I had the worst one I’ve ever had back in Oct. and I’ve had visual snow ever since. I thought I was going blind for like 3 weeks and I’m still struggling with the anxiety/depression and depersonalization from it. Comments like these make me feel not alone and I really appreciate them.
@@lili-777 I think you would be fine,just don't get stressed.I have experienced floaters for 4 years,and some mild VSS.But yeet my eyes is all okay until now
@@danieldaniell7313 how are you nowww? What did you do to minimize the symptoms?
I refuse to believe it's rare, under every video on the topic the comment section is filled with people claiming to have it...
I believe I have visual snow. This is the reason I don’t enjoy stargazing as much, the stars kinda blend in with the static, it’s hard to fully enjoy a starry night sky.
This is me but during the day ! I actually have a lot of anxiety about going outside and sunlight, but for some reason being in nature helps, specifically when I see green things, like grass & trees
Don’t need to stargaze just look at a black wall lmao
Same for me! I get sad when I try to really look at the stars. Also, I have gone to presentations at planetarium and I always end up feeling super anxious because I can't properly see the stars even there!
I have the same problem
Oh wow,this is such a mood.. I never really consciously realised this is why I don't like stargazing as much as others until reading this comment. I can't really see the stars.
Best way I can put it is, it’s like seeing what my leg feels like when it’s asleep
Hahahahaha this is so accurate for me
That is such a great way to describe it!
Underrated comment
Lmao so accurate and funny!
YES THIS IS HOW I EXPLAIN IT HAHA
I get visual snow pretty badly at night or when I unfocused my eyes. I also get the tinnitus, and really nasty migraines with visual aura, vertigo, nausea and trouble speaking. It's good to know I'm not the only person who struggles with this.
Same here after i got covid, is it better?
same night is very bad for me
same, my night vison is bad
I started having it when I was 16 years old (I'm 41 now) & it has dramatically lower my quality of Life. I absolutely loved reading before & now it is extremely frustrating to read. I usually get so irritated that I stop. Searching for paperwork around my home is a nightmare. I love the beautiful colors of the World, but it's annoying to try to enjoy looking at something for too long. I wanted to be an artist, writer, cartoonist, or pursue a film production career, but the frustration discourages me.
The Emotional scaring has took its toll. When I try to explain it to some that I have a vision probllem they immediately say something like "you need glass". I explain it's not that kind of blindness. If I am doing a task at work, it appears that I am just really dumb, because I have to keep staring at something to fully see it. I look like a jerk to other people because I have move in front of them oddly to see something. so I have to ether tell everyone I am closely interacting with about it beforehand or try not to act too strangely. but then I feel like some people think I am lying or making excuses, because it isn't well known.
I know there is nothing I can do about it, but it is amazing to know that people care about this issue & are supporting each other with there battle dealing with it. It was really helpful to be able to vent about this to this UA-cam group that understands.
I've had VS my whole life, tried reaching out to find other people who have it. So glad to see it's finally being recognized by professionals.
I hope you have not lost a half century before you found a crumb of an answer.
I have it too! It's so nice to see I'm not insane 😭
I have it to and when I found out it wasn’t normal I thought I was going crazy lol
You had it for whole life means for how many years how old are ypu you ?
This is the first I've ever searched for something on it. Never knew what to call it! 🤷♂️ Lmao
Though, I did at one point get nerdy with maths, and came across "pixelated reality". Einstein was against this, but Heisenberg believed reality is pixelated. Long story short, we have came to the "Planck length".
For some reason, I always imagined these film grains or static we're seeing are bits of these "pixels". 🤷♂️ Most likely not, but it was a fun thought lol
It sure is really trippy to see em move sometimes. I hope there's more discovered about this.
I see colors when I close my eyes lol, one of my favorite things is to look at the interesting patterns it makes.
TheSiblings cool
TheSiblings mine also untill i got VS
Do you ever see this hyper shape thing? I call it the tesseract lotus.( Tesseract Lotus of the Mind's Eye.) It rotates in all directions and as I try to focus on it, it always opens up, lotus like then resets back into a swirling mass. Sometimes these long snake like things are around it and they to are somehow rotating in multiple directions but as ropy structures. People was telling me it was light from the room dissipating or something but even hours later the imagery actually gets stronger and more intense in the dark.
jason bowman do you have visual snow?
@@jasonbowman9521 yes I see it but it disturbs me and I had anxiety I constantly see it though
I've had this my whole life. It's pretty mild, but i do notice it every once in a while, especially in dark rooms. As a kid, i used to think of it like looking through a TV screen because it looked like static. I have pretty bad light sensitivity, blue field phenomenon, migraines (without auras, strangely enough), and I always see a bunch of colorful squiggly things in my vision when i close my eyes (I sometimes entertain myself by watching the squiggles move around and stuff, lol). I also do have tinnitus sometimes, but I'm not sure if that's related or due to something else. Never knew there was a name for this until i found this channel. Thank you for taking the time to explain all this!
I thought everyone had those squiggles when I was a kid, then I realized not everyone does and instead thought only I had them lol
Its fascinating, I experience visual snow, tinnitus, and vertigo and from what i've heard all of these go hand in hand. I'm glad more professionals are taking this stuff seriously I remember when I first developed these symptoms no doctor would listen to me and thought I was making it up. I'm glad people are making these videos it helps people feel less alone and helps everyone better understand what they're experiencing.
I’m 46 years old, & remember as a little girl telling my mother about static snow, & her dismissing me as having a big imagination...and me leaving that conversation as feeling confused (to put it mildly) about what I knew I was seeing...was I just super focused on seeing it, vs other people? Was this just another thing that was unusual or weird about me? I say all of this to let you know how grateful I am for your channel, for discussing these ‘odd’ topics, because you are giving the gift of peace of mind. Between this, my super annoying floaters & ringing of ears, I don’t feel so ridiculous anymore, after having an extensive eye exam & getting the brush off when describing what I see. I cannot thank you enough for validating what I, and I’m sure so many others experience.
Thank you so much Lisa! I know in clinic it is tough to find time to explain or teach things (which is what I really love doing) so I am fortunate enough to have the opportunity to make these types of videos. It really means a lot to hear how these videos have helped you and I like to think if a video helps even 1 person then it is 100% worth it. With that being said, it is still very much a work in progress and I hope I can continue to improve the channel/videos to better help you and others. Thank you again, I think your comment made my night. 😁
Same here! I remember telling my mom that I couldn't sleep because of the "dots" and she dismissed it and said that everyone sees that way. So I went through the next twenty-something years believing that everyone saw that way, and I was the only one paying it any attention
maybememory1 Thanks for sharing that! I really wish I could see the way others see things (literally) because I wonder how much different it would be. I also think that people aren’t always as aware as you or I of these things, or dismiss them as nothing (which I hope this is)...the issue with that, though, is it won’t be studied or understood as much, I think. I’m just so grateful for this channel.
I am a male 23 years old and experiencing everything that you are. I have constant tinnitus, visual snow, and gray eye floaters flying throughout my eyesight.
Jeffrey cardoza me too
wow i’ve been having anxiety about this for months, this makes me feel a lot better. thank you
Lexi Goldsmith me too babe!! you’re not alone!
Ditto!!
Yup you aint alone im currently having one and every morning i get worried aboit my vision,i like see floaters visual snow and phosphenes,i think i have a brain tumor or something but the doctors think that it is just anxiety so yeh dont google your symptoms because you end up regretting it
I also have it. Mine is not to bad, I mostly don't notice it anymore.
@@swartkat4218 do you get muscle twitching?
I have VS, was diagnosed in July, It's not talked about enough, so I love that you expressed the importance of talking about it.
Not that I wish visual issues on anyone but your videos where you say that you have these conditions like visual snow or floaters (I have floaters, too) calms me down SO much. I have spent the last year thinking I was going blind because of my floaters and hearing a medical professional so calmly and scientifically share this information and be able to relate to his audience makes SUCH a difference. Not sure if you will see this comment since this is an old video but THANK YOU. I am so glad I found this channel.
I sware each day im finding something wrong with my eyes
Me too.
me too
my hypochondria wont stop
Same bro all started once I noticed floaters the first time, you have really got to try and ignore it or it will consume you.
@@nuggetz9380 do you have eye floater ? I was really normal but few months ago when i got my first floater i became so anxious and hypocondriac about my eyes
@@hectorbaculard7467 yes i do but i had them since i was a kid and also my doc told me its nothing to worry about so my anxiety is calmed
I recommend yoga. I remember leaving the yoga session feeling so relaxed that I didn’t see any static. I realised it gets worse when I’m tired or anxious. So I definitely recommend exercising and meditating
I just notice it when I notice it
Nicky h225 I agree
Tholid Thnake really? Omg. It’s crazy how doctors don’t know much about this. It should be looked into
@@Sara-wq3pb Yeah, it's annoying because I really want to do yoga but I'm definitely going to leave it for a while. That was about 11 months ago that it happened. At the time I started seeing bright swirling colours and I had tunnel vision, I was freaking out. After about an hour it stopped and ever since I've just had visual snow and also sometimes floaters. Another thing is if I'm reading words on a computer screen or even a book, and then look at a wall, I see lines of light all over the wall as if it's been imprinted into my eyes. Meditation helps me accept it and not stress over it but I would like to be able to find something to actually make it go away a little so I can enjoy nature and things like that. I'll maybe try yoga in the future when I'm feeling confident about it haha
Tholid Thnake it’s definitely quite a disturbing situation to experience. It’s super weird that it happened when you were doing yoga. It’s quite a relaxing exercise. What type of yoga did you do? When I did it it was a candle lit yoga. I was mainly focusing on the breathing and the energy and not so much the positions. Meditation is definitely very helpful. I was reading some comments and apparently a change in the diet helps with the visual snow. I also suffer from anxiety and a lot of stress and one thing that helps me is listening to the ocean waves. One phrase I can recommend you to live by is “relax your way through life”. Remember you won’t be feeling this way in a few hours. Focus on the positive things in your life and learn to accept the ones that aren’t so positive. Take everything as a learning experience and grow from it!
After years of anxiety I finally was told today by a neuro ophthalmologist that I'm experiencing blue field entoptic phenomenon and after further research also found I have VS as well. Thank you for this video. So glad (but sad) to see im not the only one. Huge anxiety relief!
Do you have eye floaters too?
Were u given any treatment?
@@haqsach4147 I have floaters and little spider webs ton of them and little blob floating around.
did they give you any way to treat it???
I’ve had migraines with aura since I was 13. I’m 65 now. Recently, I was under a great deal of stress after my husband was hit by a semi. He spent 3+ months in the hospital and now, 20 months later is just starting to recover his strength. When he was discharged from the hospital, I started noticing visual disturbances. I was diagnosed with migraine aura by an optometrist. I wasn’t satisfied with that diagnosis so I insisted on being worked into an ophthalmologist’s schedule. He sent me for an MRI, diagnosing a stroke in my occipital lobe. Shortly after that, I started the VSS. Dots everywhere, all the time. I mentioned it to the ophthalmologist at my last appointment, he said it is floaters. No, I know the difference, because I have a large floater, too. My only other symptoms are double vision, tinnitus, and a blind spot on the left center of my visual field. I have prisms in my glasses, which helps. I’m learning to live with everything else. Just knowing my condition is real and shared by others is very helpful. Now, to educate my ophthalmologist…..
For the past week or so if been trying to explain this to my family but no one understood. I'm so glad I found this video and now know I'm not crazy and people will finally understand what is happening in my eyes. thank you so much!
I have visual snow, I've only dropped acid a handful of times, swear! 😂 But seriously, I've had it my whole life. I remember when I was a kid, I'd lay in bed and look at all the static in my room as that when it was most apparent. I tried to talk to other people about it like "you know at night when..." But no one ever knew what the hell I was talking about it.
I can't see shit at night, its crazy how it's almost like a switch is flipped when the sun goes down, I just can't see! And I have both ringing in my ears and vertigo. I also get migraines including ocular migraines.
I've been an optician for about 3 years but I've worked in the eye field for over 10 and not one of the doctors I work with at my current office have ever mentioned visual snow, ever. You're the first Doctor I've heard talk about it. Its refreshing to know I'm not the only one.
It is unforunately just not a condition reviewed in school. Like I said in the video...its not in any formal textbooks. If a doctor doesn't specialize in neuro-optometry or ophthalmology...they may have never heard of it.
@@DoctorEyeHealth I've had visual snow since as long as I could remember as a little boy, probably 6 or younger. When you're on psychedelics, you hallucinate geometric patterns that are only close to replicated by the highly skilled artists of the Visionary Style discipline. Something that I found fascinating was how much extra color and patterns are born from the snow. In a dark room, it's very similar to closed eye visuals, which are extremely often more extreme and take a different nature than open-eye visuals in well-light rooms. Especially during the come up, you can very closely observe the intervals of intensity as the trip slowly becomes more and more intense. LSD and mushrooms have relatively slow come ups, at least compared to most drugs. The visual snow gives cues and you observe the linear initial climb and the slow parabolic curve of the comedown. It's a gift in that way but it is a detriment to natural night vision.
Omg I have all of this the ringing in my ears and the visual snow has gotten worse over the years and the last two years I feel like I have developed vertigo. It give me anxiety and sometimes you feel crazy. It makes it so hard to read things on a white background and my eyes get so tired. I see it more at night and against walls and when I look in the sky. At least now I feel less crazy.
My cousin and I both have VS so when we play hide and seek in a dark area it’s hard to see
omg i experience all this as well... so glad im not alone!!
I’ve always had that experience when in a darker room and especially when I go to bed. I also have tinnitus. It doesn’t bother me and I just thought everyone had it. Here’s the funny part: I’m the office manager in an ophthalmology practice. 🤣
Patricia Snoddy does it cause headache?
@@furqanahmed5221 mine does😭😭😭😭
Te Kaha Ohlson oh sorry
LOL I have visual snow, tinnitus and I'm only 17
@@s000sdas how long?
I learned about this today!!! I developed it after I was assaulted and sustained an mTBI, and it's a constant reminder of what happened. I wish I could make it stop but thank you for this video! It feels like a huge step forward just to know it's not just me. 💪
I have visual snow all day and go almost blind at night time, and have tinnitus. When I saw my optometrist in the fall, he told me that I have visual snow; and that there is almost nothing that I can do about it. Thank you so much Dr. Allen, for encouraging me that I am not alone, and that I am not going blind! Please continue to keep us updated with this topic. 😊🙏
omg i finally found it , im not alone ! :D i was trying to find this since i was small , now im 19 and not even the doctors could understand the symptoms i was trying to explain , every eye doctor said i was fine and that was frustrating :D
Same. My eye doctor also tells me that this is normal or will pass. Also afterimages, he says it’s normal, everyone has it. I feel so misunderstood. But I know it’s not bad and I won’t die of it 😂 and I got used to it. I am not even noticing it really
@@leonlanger8715 yeah , im just glad its nothing serious :D
This is exactly me I've tried to search for 11 years only finding out now what's happening to me and I'm not alone
Leon Langer your whole life? Or developed?
@@rodytalks3989 i noticed it a few years ago, i dont konw if i had it before
Never felt so validated in my life. I told my psychologist and she sent me to a spiritual/medium church & my psychiatrist just asked me questions about it and never told me what it was. I can’t believe I am not alone ♥️✨
Yup they called me crazy
@@734le same ;-;
What kind of a shit psychologist is that
ive had neurologists look at me crazy 🙄 ur not alone. ive learned to live with it i hope you can too.
She sent you to a ... what? That's ridiculous. I've had it my whole life and I'm assuming it was due to having a rather traumatic birth. No need to get the supernatural involved. ...In fact I think a psychologist should have their license questioned if they recommend that...
Thank you for this video. I have had visual snow since I was a kid (not so much now), and I always thought it was just me. I am in my 60s now and very glad that you have shared the information. I have never spoken about it, basically because I thought I was crazy. It is so reassuring to know there are others in my situation.
hey! how are you now? did the visual snow get worse or just stayed the same all your life?
YES! I am so happy to have found this video. I literally saw a retina specialist yesterday and he discounted what I was saying/seeing, several times, saying it wasn’t happening. It is so hard to explain what is going on. I tried explaining what I was seeing to my husband last night , how it was similar to an untuned tv and he said, like snow? Afterward I googled ‘visual snow.’ I was blown away to see it’s a real thing and others are experiencing it. Thanks for this video!
what if everyone has it, and some people just have it a little stronger and that makes them actually notice it?
I think so... Especially after waking up from a nap I notice it more
Everyone has some degree of visual noise, but very few people probably have visual snow syndrome, which includes intense static, afterimages, night blinding, palinopsia, floaters, light sensitivity, etc.
pretty sure it is the case. I think we are actually seeing the neurons piecing the puzzle together, but maybe we have a few more pieces that are missing than others
@@BudderB0y2222 VSS is often accompanied by non-visual symptoms like:
Ringing, humming, or buzzing sounds (Tinnitus)
Feeling detached from yourself (Depersonalization)
Symptoms of anxiety and/or depression
Frequent migraines, brain fog, and confusion
Dizziness and nausea
Insomnia and other sleep-related issues
Tingling sensations in legs and arms, accompanied by general pain throughout body
Tinnitus seems to be the most common physical symptom attached to VSS
Seeing some static and your neurons is nowhere near the same as having these kind of symptoms everyday
@@biscuffer2518 I have most of those as well. What's your point
I read all comments and I just realized thousands of people have it. So it is more common than we thought. Just dont worry about it guys.
After 20 years of wondering I finally got diagnosed with visual snow. And as of lately it’s been so so bad. I’m actually really scared at this point. I have pretty much every symptom that comes with it and I can only hope that somebody finds a treatment or cure for it soon. My depression and anxiety have gotten much worse from it and I don’t know if I can go on like this. It’s extremely debilitating. Thank you for sharing this video and bringing some awareness to it. I appreciate your passion and your want to help.
You got this man I have it just know your fine and not alone and can have a happy life with jt I
This explains how I feel. I have it this bad as well. Desperately needing help. And no doctors can
I've tried to explain this to various opticians for years! None of them knew what I was talking about. Hearing this is so refreshing. It's not in my imagination, it's a real thing!! Thanks for covering this 🙏
Glad it was helpful!
This condition causes me so much anxiety.. I just wish I could see like used to again..
Same 😔
same
Do you see normally now?
@@pj4690 How is it for you right now?
How did you gain it?
I found when I close my eyes or in complete darkness, its like i see stars in the sky, thousands of them, Also have tinnitus for many years.
Thats normal
U also see blur sometimes????
I have all that too
@@jakobmelo4898 u also see blur sometimes??? Or needle type pain in eye for some seconds, heavyness in eyes???
@@purohit_manisha yes. Last night i had blur in right eye. Anf as well felt a sharp pain in a needle sized surface area for a split second
THANK YOU for making this video! I’ve struggled with this for years. Every eye doctor I’ve gone to has looked at me like I’m crazy even when I mention visual snow and all the other symptoms.
Grateful to see there’s more attention to VSS. When I first told my doctor about it he never heard about it and there were only a couple videos on UA-cam, this was approximately 9 years ago.
I had this all my life.. its relatively mild usually, getting more extreme in dark rooms, and I was always so frustrated from it but calmed myself down with saying: everyone got this, its normal. Welp. A few days I learned that its not :/ But I can live with it very well nonetheless.
The older I get the more I realize just how strange my brain and nervous system is, and while much of it can be very annoying or make certain situations difficult I'm lucky in that none of these things are actually impeding me from living a full life.
Visual snow is something I've had all my life, more so in darkness, but generally any time I'm looking at something dark.. So even in bright daylight if I'm looking at a piece of black velvet there will still be static all over it. This makes it hard to read without the words being brightly lit, but I've also found that inverting colour (white text on black background, or even better cyan text on black) greatly helps with being able to read easily.
My night vision in general I would consider to be quite good, though the static did always make me think I was seeing movement as a kid.. I was terrified of the dark because it felt like the shadows/closets/plants were all moving around once the lights were out.
Photophobia on the other hand, probably not too bad but I can't be outside in the sun without glasses on as just the reflection off the ground near midday, no matter where I look is blinding to the point I can't keep my eyes open without intense pain.
And then blue field entoptic phenomenon - discovered that one when I was about 5 years old, just sitting around following all the floaty bits as they wandered through the sky. If I concentrate I can also see them on any flat single coloured surface, but it's hard to ignore against the sky.
Tinnitus I get very faintly, where most of the time it's barely perceptible but maybe once or twice a day it will suddenly appear again for 20 minutes, especially noticeable if I'm somewhere that doesn't have any background noise.
Then onto other things,
I was formally diagnosed with Social Pragmatic Communication Disorder, which under the old DSM would be high functioning autism, but is now separated as being mainly the social aspects of autism without so much the behavioural.
Recently discovered I have aphantasia where I lack the ability to visualize things in my mind. I never realized that people could actually form pictures in their head with their eyes closed and always thought it was just metaphorical.
Similarly, I lack an internal monologue for most of the day, only having that voice in my head when actively reading or writing words but otherwise it isn't there at all.
I've also had some strange issues with my central nervous system and many things which people do which are unconscious I have to somewhat concentrate on. Like I often forget to breathe or blink, can hold my breath to the point I actually pass out.. sometimes forget to eat/drink so long that I become light headed and nauseous as the usual hunger and thirst queues aren't there. This also extended to athletic ability as I would never be 'out of breath' when running, and found it strange that everyone else was. I would consciously breathe deeper to avoid feeling dizzy and still got sore muscles but never like my friends. I also don't have the same safety limits on my muscles that most people have. You know those stories of people with adrenaline rushes doing crazy things? With no real strength training at all I, in all my skinny 60kg glory, could lift a 150kg motorbike into the bed of a pickup without a ramp or anyone to help. I'd still tear my muscles a little and be sore for 2 weeks though so it has drawbacks. Some of these things could be attributed to the fact I seem to have a very small amount of adrenaline in my blood stream at all times.
I have respiratory sinus arrhythmia where I can speed up and slow down my heart rate by up to 50% just with carefully timed breathing. For example breathing in deeply while at rest I can raise my heart up to around 90bpm, then as I breathe out it will pause for over a second, have 1 big thump then slowly come back to around 60bpm at the end of exhaling.
Postural tachycardia is another heart related one, where I can be laying down watching tv with a bpm of 60-70, then stand up and suddenly my heart rate registers 140bpm and takes a few minutes to re-normalize.
I'm glad none of these things are really dangerous in any way, but it certainly is interesting every time I find out something else which I thought was totally normal, doesn't happen for most people.
Oh and if you made it this far, sorry for the wall of text.. you're a champ for reading to the end though :)
I got some questions for you
@@nealhilton3635 Ask away..
Also update: been seeing a psychologist recently who was confident enough to give an official diagnosis of ADHD-PI (inattentive type, like the old ADD) and she thinks I have narcolepsy too, but will be seeing a different specialist for that soon.
On the plus side, these are both problems that I can potentially fix (or at least partially fix) and improve my daily life somewhat, whereas most of what I mentioned in the first post is just 'interesting quirks' that either can't or don't need to be fixed.
I've had VS and migrane with aura for ten years now and I just found out about the visual snow after the neurologist told me about it. This video helps to understand the details. Thank you!
One thing I noticed is how happy you seem telling about wich symptoms you experience yourself. I felt that kind of joy too after this exhausting journey of finding out what is wrong with my eyes. But you seem to almost brag about it. Everyone who has a serious vs condition or/and migrane with aura will certainly not enjoy it and wish it would go away more than anything.
I’m so glad to have a name for what I experience. I’ve gone to so many doctors (optometrists, ophthalmologists, and neurologists) and none of them have ever heard of it. I really hope there’s a remedy in my lifetime. I have also read that it can signal other brain conditions which makes sense because I was recently diagnosed with epilepsy.
I've suffered with this my entire life or since a very young age. Went to the doctor in my country a few times and he always blamed it on random things, like iron deficiency or my tinnitus on ear wax. It's kind of relieving to find out that other people experience this but it really sucks that it's so rare and misunderstood. I just found out about this condition at the age of 21 and just assumed that it was just a "normal" thing that everyone experienced... Normally i don't mind the static unless it's in a completely white or dark room. But the tinnitus man.. I can't sleep without the window open or some background noise because it's just so depressing...
For my tinnitus, I tell a Google Echo to play "Rain Sounds" and it helps it disappear. Also, I run a fan close to my head, so it mutes out the sound. I sleep like a baby with those things.
Same here 😢
@@PoeLemic Do you have other diagnosis?
@@Xiviaidan123 You also have and visual snow and tinniyus?
Ty jsi Češka? :)
I have the light sensitivity, have difficulty seeing/driving at night, and swirls in my vision - I didn’t know this was an actual combined syndrome! Very interesting. Thanks for sharing!
I think that your point about it being something we need to talk about more is really important. I have had vs all my life (mild version). I have a neurologist (for chronic migraine and hemisensory migraine) and kept meaning to mention the vs to her but forgetting. It turned out to be a really helpful conversation when I finally had it.
I have visual snow syndrome. Thank you for help spreading awareness.
First two minutes of the video and I was like, “Wow! This has been my life and finally someone understands”. I always tried to explain that what I see is like the static of the TV but no one wouldn’t understand me. It’s not that severe, I can ignore it, but I know is there from the moment I wake up till I go back to bed. Thank you for such educational information.
I’m so glad there’s people out there with it. Never tought I would meet others with same problems that get me
Thanks so much for making this. I was worried about my eyes. Nothing came up on the internet. Now I feel safer
hearing that you suffer from this, albeit mild, makes me feel at ease, as you actually share what you're talking about.
My visual snow at night be like 🕺🏼💃🕺🏼💃🕺🏼💃🕺🏼💃
Lmaooo fr
Woah I have this! It is nonstop. I thought everyone saw things like this?? So what do normal people see????
Clear signal
I see it at night only
@@ziqrsx
I'm pretty sure that is normal. I would confer with an optometrist.
@@ravenwda007 phew, thought i had vs for a second. Thank you.
It might actually be normal! I randomly asked my friends if they saw “static” at night and 2/3 answered with they know what I’m talking about
I get this periodically and just in the center of my vision. It used to happen a lot when I worked in a strip mall and there was lots of glare off of cars in the parking lot coming through the window. While it's happening, I can't focus to read or drive. My opthalomologist was stumped!
It started after a TBI that affected my cerebellum and brain stem, so there was lots of other eye stuff that happened afterward too (torsional nystagmus, double vision, in the ICU my eyes were pointing completely different directions, and now at times I don't completely close one of my eyes when I'm sleeping). Your channel is awesome in helping me learn more about all of this stuff!
Man this is mind blowing. I’ve had this since a child, similar symptoms to you doc. I guess I’ll keep on tuning it out.
My 12 year old daughter keeps telling me about the static in her eyes.
I feel sorry for her, I’m 18 and I have had it my entire life and thought everyone had it. If I’m driving fast, I’m also able to see objects in slow motion in high detail and when I stop my vision zooms back out. It’s a strange thing, but it does go away when I smoke cigarettes so I think it’s anxiety based.
@@aseems7611 ,are you from India?
I am 12 and I see it too
@@aseems7611 ok
@@aseems7611 I see colors too, I thought I had a brain tumor
i’ve had this my whole life and every time i try to explain it my my parents they think i’m just making it up
I know how you feel! Even my professors in school were not super familiar with it
My parents never took me seriously had no idea what I was talking about, it wasn't till last year when I showed them a example picture from online that finally gave me a name for what I was seeing
I think this is what my 17 year old daughter has been describing. She had normal mri and blood tests. Ophthalmologist and Neuro ophthalmologist thought there was nothing wrong with her eyes themselves. We are seeing her neurologist soon for follow up on the MRI and I’m going to mention this. Hopefully, he is familiar. She has also been getting migraines the last for years before she started talking about this. She has all the symptoms and also feels like she’s unreal sometimes which I saw on the initiative website as a symptom. She’s also started to have anxiety at from it. I don’t know how long she’s had it. It really didn’t start to come up in conversation until she started driving. Also, she has trouble focusing on words on a page and floaters. Happy to have found this, but also sad that this might be something she always has to deal with.
I cried watching this video! I couldn’t find the right words to explain my Dr. and I am getting treatment for migraines.
I’ve had visual snow my whole life. It’s something no one would believe me growing up.
Same unfortunately
same
I believe that I have had visual snow for as long as I can remember. However, I recently discovered that it is actually a medical condition. I am terrified that the symptoms will worsen as I get older. Is that likely to happen?
I have visual snow I’m 14 yrs old and have had this since I was like 9 and I’ve always been anxious about this. Thanks for relieving me from that anxiety 😊.
hey wanna be freinds i felt alne with this and finnaly i have someone kinda of my age and has the same thing and i heard theres a treat ment a natural one and its working !!
@@rashaaljanabi5535 hi I have snow I see it in the dark when I was 14 before some months I checked with the doctor and he told me there is nothing I have eye floaters also and I was sure that there was something and I was afraid and I searched What's wrong We get to know each other just a question are you arab because your name is رشا الجنابي
Yea same I’m 14 and I have this, it’s not too bad tho
@@rashaaljanabi5535 can you show how??
im 15 and i had it since 9 years old as well
I started with floaters a few years ago. They never went away but my eyes got used to it. I also had a few episodes of visual migraine. One time I woke up with vertigo, and the doctor told me it was related to my inner ear. I also observe this snow when I look at black surfaces. After watching this video I can connect all the dots 😅. Next time I experience one of these symptoms I won't get so stressed. Thank you for sharing this! 🙏🏻
I believe that I have had visual snow for as long as I can remember. However, I recently discovered that it is actually a medical condition. I am terrified that the symptoms will worsen as I get older. Is that likely to happen?
Thank you so much! Ive been watching all your videos trying to find what's happening in my eyes and found out that theyre actually visual snow. I have been seeing them since last year but I cant explain to others what it actually is. This is a great help, now I just have to go back to my doctor.
I've had it all my life. I thought when I was a kid that I could see atoms. I have the tinnitus and entoptic phenomena, too. It has never been terribly bothersome to me, but the connection to tinnitus really fascinates me, and suggests to me that there is likely some underlying neurological basis. VS is basically the visual equivalent of tinnitus.
agreed! That astute observation.
Ah tinnitus for 2 years and a few months, snow for a couple weeks now. Maybe a couple years down the line we'll get the touching or tasting cousin of tinnitus as well :P.
I have it. There are so many symptoms that even though I live with it, I always forget one symptom when describing the condition to others. - thanks for bringing awareness to it.
Have had a slightly higher than mild case my whole life, never knew what it was up till 6 years ago. Its amazing how rare this is and how little is known about it!
6 years ago I started to see those dots and it freaked me out so much. I always thought i was going to be blind or even going to die. No one believed me and always told me its related to my migraine aura. I kind of learned to live with it and not think about it. But when I found this video today tears were rolling down my eyes cause i dont feel like I’m crazy anymore. I feel understood
I’ve had it ever since I can remember. I remember telling my eye doctor about it with them having no idea what I was talking about.
This is the BEST video on visual snow. Hearing from a doctor with all the disturbances I have made me feel lot more normal. Sometimes I think everyone has some degree of visual snow,, and the problem is losing the ability to block it out constantly.
I also think that. The big problem is focusing on it all the time. It drives me crazy and i have it very mildly.
Thank you so much for good explanation. I can't see at night, my eyes are sensitive on light and my ears are ringing. I hope that somebody will find treatment.
I have always been incredibly sensitive to light. I remember watching TV as a kid and having to cover my eyes when things got too bright on screen. I remember first describing it to my friends when I was 12, who thought I was crazy. I am 37 now. It's most noticable when looking at plain walls or blue sky or at night, but yeah, ever present. Also was recently diagnosed with multiple sclerosis. Itd be great if there was an existing treatment out there for visual snow, but it just my accepted reality now and it doesn't really impair me from any kind of capitalistic contributions, which is the golden measure of whether a health issue warrants effective treatments/cures.
I was born with visual snow syndrome!
I'm excited to see more research as more and more people find out about it!
Yeah i’m also born with it (or at least I think so; don’t remember being an infant)
Ya same
Same I always thought everyone sees like this
Hey! Same!!
Never really talked about it. Just kinda tripped out/spaced out sometimes trying to figure out wth I was experiencing lol!
Didn't want adults thinking I was nuts!!
Any chance we could all set up a discord or some sort chat to perhaps discuss these experiences???
Since there isn't a lot of info to begin with, seems like a decent starting point!
I've always had it. The visual disturbances and constant ear ringing is a real drag to say the least.
The ear ringing is literally just in your head, everyone has it it doesn’t come from your ears it’s literally in your head so your alright
I can't remember having ear ringing as a child. I have it now but I'm pretty sure that's from the military. I've been seeing visual snow my whole life
@@BloodyKnives66 you only hear the ringing once you start paying attention to it, and I’m pretty sure everyone’s got visual snow it just depends on how bad you got it.
@@user-gj5eu1tm5m you are so wrong my friend, you should look into the breakthroughs they are having with pills and injections for tinnitus. Some of them are almost at phase 3 with the fda and are having very positive outcomes with plenty of tinnitus sufferers. You don’t get to phase 3 with the FDA with nonsense
Wow. Important video for me. Thank you. I've had visual snow all my life. I see the color swirls. I've also got tinnitus. About 40 years ago I described what I was seeing to an Eye Doctor. He had no idea what it was. Really glad the syndrome has been identified. Nice to realize I'm not alone in having this. Reassuring that you have the same thing. I think my tinnitus bothers me more than the VS.
I'm glad it was helpful, Tim!
i have mild visual snow and all that comes with it, its cool to see an eye doc with it as well!! wonderful vid :)
When I was a kid I thought I had superpowers and could see all the molecules around me
OMG I think a lot of people have that thought! Me too!
Same! I pretended that to cope with no one taking me seriously.
It's so good to hear from a medical professional who actually takes our symptoms seriously. It's very unfortunate that this is the case only because he can empathize with us through his own experience and this shouldn't be the case when bringing our concerns to our healthcare provider.
Thank you for bringing further awareness and education on this visual phenomenon.
I believe I have this. It started last year when I got inflammation in my eye. Doctors couldn’t tell me why it happened. Every time I tell my eye doctors she tells me my eyes are normal. Thanks for sharing this video.
Wow...
Never heard of this....
I have nearly everything you have listed...
I just thought these were issues from all the seizures I had throughout my life...
I see this will be my new study obsession...
I have been such a nerd studying health since no doctor has been able to understand my "unique" symptoms... they have just misdiagnosed me my whole life... so once I took my own health in my own hands I have been sooooo much healthier...
Thank you so much for this video...
I will need to learn more...
I've had migraines as well as convergence insufficiency since I was young, in my early 20's, something kinda "clicked" one day and I began seeing visual snow, I didn't have a healthy perspective so I hope this helps raise awareness, thank you!
I’m so glad you’re talking about this in your profession. I’m in my thirties and just learned I have this- and my first memory of asking people about this was at three. I wonder how many people with this over the years have been misdiagnosed with incorrect vision issues, or otherwise
Did you live well now? I've this my whole life. But now that I've discovered that is a disease I'm freaking out.
I've been trying to describe this for past 3 months because I found out not everyone saw things this way. I at best compared it to watching chowder after rubbing your eyes. This video has been so helpful as I also have migraines with aura, tinnitus, and bad night vision.
Wow.. I have tried to explain this for years. The worst part of all is being in the dark for me. I can not sleep in dark. I keep UA-cam on my phone all night long because of it. Thank you for helping me to figure out what i have.
I’m so glad you addressed this! As a kid back in the 90’s I went to sooo many eye doctors who just claimed I was a child seeking attention and my eyes are perfect. It wasn’t until roughly ten years ago thanks to the internet that I came across and article with pictures and finally put a name to my problem! Luckily mine is more mild, with just light sensitivity, but it’s there all the time :/
I believe that I have had visual snow for as long as I can remember. However, I recently discovered that it is actually a medical condition. I am terrified that the symptoms will worsen as I get older. Is that likely to happen?
Have had visual snow for almost 10 years and I have almost all of the symptoms: recurring migraine with aura (3-4 times a year), tinnitus, trailing or prolonged afterimages, pretty bad light sensitivity and vertigo (which I just learned from this video is possibly a symptom of VS). I’ve learned to deal with it over the years, but it is sometimes difficult and has certainly caused me anxiety periodically. Nice to see it is getting a little more attention. During my next eye appt, I will probably show my doctor this video to help raise awareness. Thanks for the info doc!
It’s not a eye problem it’s a brain disorder so it really sucks
Can you still see ?
@@dustbunny10111 I can still see, yes. The snow is always there, but if I ignore it I don’t really see it. It’s really just become something I have learned to live with, and successfully. It does not bother me all that much, even when I focus on it and realize it’s actually still there.
@@robbyq769 is it easy to ignore afterimages and all the other symptoms over time
@@LinuxRecipe yes, mostly. The afterimages for me are probably the most difficult to ignore. If it’s dark out and I catch some headlights direct on, that’s the worst and takes the longest to recover from, but even during the day I get sunlight reflecting off cars, etc, and those stick for a bit too. I have just learned to deal with them. Other symptoms are better managed over time though. Overall, my quality of life is not severely impacted, so I am grateful for that
I've had this my whole life and was mind blown when I found out this wasn't how humans are supposed to see the world. I also suffer from migraines, and a couple of the other symptoms like the blue field one and the afterimages. My snow is sort of easy for me to tune out, unless I'm in a dark room and then it's very intense. It's so validating to see this being recognized and talked about more. It helps me feel like I'm not crazy.
Dude I love you. You saved me from so much anxiety. I thought it was phycosis or something. Thanks you earned a sub
I have had visual snow my entire life too! As a kid I remember trying to ask my mum why everything was made of moving dots and she had no idea what I was talking about. I assumed everyone saw the world this way! When I found out this was a condition my mind was blown! I am also susceptible to migraine with aura and have very mild tinnitus.
I can't imagine not perceiving the world this way. Hopefully one day medical advances will mean visual snow sufferers like us will be able to see the world clearly.
Thank you so much for this video, it was so informative and reassuring. Love your videos! (I have severe myopia and am currently recovering from a scleral buckle operation, so I've watched a lot of your videos recently! Great to see another one which I can relate to!)
Thanks again and keep up the good work!
I was scared that I might be going blind but this saves my life ;-; thank you
Sameeee
Been there back in 2014 when I literally just woke up to static everywhere I pretty much lost my shit and developed an anxiety disorder because my fear of going blind was so strong
So does it mean we might go blind or no?
@@bratzzbratzz2507 no you will not go blind. Visual snow doesn’t make people go blind. I’ve had it for about 7 years now and you just learn to live with it, it takes some time to adjust but you’ll get there! I can promise you that you won’t go blind:)
@@bratzzbratzz2507 no
Thank you so much for talking about it. have almost the same symptoms dr allen has plus the entoptic phenomenon. After watching the video and comments makes me feel better now.
This makes me so happy!!!
I have an extreme case of VS, Photophobia, Palinopsia, Entoptic phenomenon, and Nyctalopia. It's been really really hard confronting this condition. Especially when I thought I was going blind. My symptoms have not gotten worse but, like I said, it is an extreme case of all these symptoms.
Wow!!! I just discovered what this is last year and I’ve had it my whole life! Glad I’m not alone!
Im 17 year old & i have visiusal snow from 2 to 3 years ago started ! Wht about u ?
Just discovered the name for this also. Always described it as static
Wow, I think I have finally found what it is that I am experiencing. I have been suffering from something like this for many years now, it literally happened to me from one day to the next. I was about 12 years old and remember going outside with family and then coming back into my house and I started to notice these visual hatched line/swirls just moving all throughout the surface of everything. It NEVER went away since and I see it 24/7. I have been to many doctors, ophthalmologist, neurologist and they could never diagnose me, they would simply say it could be some sort of migraine variant. At around 17 I had to start taking anxiety medication because I was constantly afraid and didn't understand what was wrong with my vision. Its been a rough journey, but I'm glad there are people out there who I can relate to and people who actually understand my symptoms and not just dismiss them.
How are you now ?? How old are you ?
Nice man, i recommend using tinted glasses as it helps.
I developed visual snow the same age as you!
I absolutely believe it is neurological based. My daughter is on the autism spectrum and has has the visual snow her entire life. NEVER any drugs involved with her or any trauma to her head. She does have flashes in her vision as well if she sits up to fast, and floaters. Thank you for the information provided in this video.
Dr. Joseph, thank you for sharing this information! I have always had Visual Snow Syndrome and didn’t know it wasn’t normal till last year. I just shared your video with my neurologist at the Baylor College of Medicine.
For context I was diagnosed with Tourette’s syndrome at 14yo after a series of painful sharp headaches, mostly in the back of my head. Last year I had the headaches again and have had an array of cognitive and psychological problems since, luckily most of which are improving with time. All the tests they’ve done have come back normal. I have been back and forth from Neurologists and Psychiatrists about whether I had an episode of Encephalitis or sudden onset of Schizophrenia. (Which preliminary research suggests could be caused by mild inflammation in addition to many other factors such as genetics) I think my case might be valuable in the research of where visual snow originates, because it might have something to do with your inflammation or schizophrenia perhaps.
The message I sent was:
“This is a great video that basically perfectly describes what I see concerning visual snow. I’m basically in the same boat he’s in. I’ve had it for as long as I can remember and didn’t know it wasn’t normal till like last year. The visual snow is worse when my symptoms are worse or about to be worse. The snow turned into that green digital mist I told ya about. My closed eye hallucinations, sometimes when my eyes are open, images or tetrahedron shapes can “form” out of the graininess, or all the dots congregate into “paths” or “streams”.
I thought it was especially interesting at the at the 4:20 mark in the video. He talks about problems with the thalamus and visual cortex, migraine auras, and links to multiple sclerosis and inflammation.”
Thank you for sharing this! I'm glad the video has been helpful in communicating with your own doctor.
@@DoctorEyeHealth Hey so it turns out I have Hallucinogen Persisting Perception Disorder (HPPD) without any drug use. Doesn’t explain all of my symptoms but it covers a lot of them.
Your video was a big step in towards finding that diagnosis, which even led to some treatment (Topamax) that has helped with the headaches and reduce the symptoms a little bit. Thank you!
Thank you very much for relieving me of my frustration, over 40 years of tying to describe this to doctors, friends and family to no avail. I recently described it to a friend and my daughter (who was also present) stated she had it as well. I will make sure she sees this. I feel fortunate that my symptoms are mild.
It's so fit that you are an eye doctor because you're such an eye candy!
Thanks for the info; I just found out today that this isnt normal.
YOOOOO!! I have it too, but to a minimal degree so most most of the time i can just ignore it, but it is definitely present in my vision and i came looking for answers and I stumbled across your video! Great explanation man!
I got diagnosed in the eighties as having lazy eye in my right eye. I always described it as a fuzzy tv. This is so gratifying to know I’m not crazy.
I honestly told my doctor about how things look like “TV sparkles” when I was young and he just said it was because I have low blood pressure what the heck
I've had it all my life (along with tinnitus), so I've never seen pitch black or heard complete silence, quite poetic. Only within the last 5 years I realised it was a thing and I've been on a journey breaking it down internally. One prevalent aspect I've been orbiting is VS and its causation of depersonalisation disorder (also a recently categorised condition), and the way VS creates this meta layer of disconnect with the real world and leads to this disorder. It's a wild ride, but when you don't know any different it takes time to fully articulate around it.
I am super intrigued by this...now to ask my wife about denationalization disorder...
I've just realised I had this yesterday ! A friend of mine talked about this rare visual anomaly and I replied "Isn't it normal ? Doesn't everybody have it" ? I thought this happened because it is pretty much like how a camera works : on low light conditions, you'll see more noise. But I indeed see it all the time, no matter the light conditions, and I feel like I've had this my whole life. This also explained some other symptoms you mentioned in the video. The Visual Snow Foundation website has some very interesting depictions of it which I personally relate to. Thanks for bringing awareness to Visual Snow !
Wow ..... everything he has said about symptoms I have every one!
Thank you for this I am definitely talking to my doc next visit!
I never knew how exactly to explain it before.