Visual Snow Syndrome: What we see
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- Опубліковано 9 вер 2024
- PLEASE SEE UPDATED VERSION: • Visual Snow Syndrome: ...
The Visual Snow Syndrome (VSS) is a rare condition that mostly affects our visual perception. The symptoms are varied, strange and can be hard to describe. It can feel like hallucinations and make us doubt our sanity, especially when doctors can't find anything wrong with our eyes.
It has now been shown that it is a neurological condition. Research is ongoing to hopefully uncover ways to diagnose it and treat it. In the meantime, diagnosis relies on our description of symptoms, which can be difficult.
This is why I made this video. Based on my own experience, I attempt to show some of the most common visual symptoms of this debilitating condition.
WARNING: Some images can be triggering for light-sensitive people.
Useful links on VSS:
-Visual Snow Initiative: www.visualsnow...
-Visual Snow Foundation: visualsnowsynd...
-About Visual Stress: www.opticalm.c...
-Article for medical professionals: n.neurology.or...
THIS IS AMAZING! I've never seen anyone show the symptoms so well in a video before!! Thank you!! You are making a difference! You even taught me something and I've been living with VSS for well over a decade!
This almost brought tears to my eyes! It’s so difficult to explain these sensations to someone else and I’ve experienced EVERY SINGLE ONE of them! Just having the validation that others experience all of these too is such a relief.
I haven’t been diagnosed but I strongly believe that I have this. I have 11 of the symptoms listed in this video. I also have what I believe to be tinnitus.
bro, is snow syndrome dangerous?
Are you okay?
@@Syahdankarel it’s not dangerous to most. I went my whole life feeling like it was normal to see this way. You shouldn’t worry too much about it :)
As long as you see static 100% of the time, you do have it, whether if you have all the symptoms or not
@@nahhhhhhhhhhhhhhhhhhhhhhhh777 oh okay so i do havr it bcz i would describe it to doctors and no one would get me but then i started researching and found this so as long as i see static i have it
These are all my symptoms!!!! Thank you for making this video 😭
i have most of these at a minor level, the blue field entoptic phenomenon is quite strong and constant whenever i look at the sky, it covers almost my entire vision that can see the sky.
this video also made me realise that i experience pattern distortions occasionally. most commonly i've seen it when im on hills or driving and i stop the car at an angle or on a slope, i see the road becoming longer as if the car is rolling backwards, but no one else sees it
That last phenomenon you described is the same thing is when the world keeps spinning after you stop. Your eyes are still subconsciously tracking as though you’re moving even though you’re standing still.
This was really accurate on representing all the visual snow symptoms!
Each and every one for me
Except ghosting.
But I had feeling of derealization.
And movements can be hectic when im tired and watching tv its like my brain has less fps looks really wierd.
I do feel like I have less depth in my vision too!
Thank you for the video
i think the derealization part is the worst, at least for me
Im in tears. I've tried to explain to my family what im going through after covid and finally i can show to my moms how i see world today.
Much love ❤
what did she say and is there treatment for you?
@@JamieReynolds89 i don't think there's treatment for visual snow, sadly, but it's nice to know other people understand you
It is even difficult to explain it to doctor. It is bothersome and very least people can understand the agony it entails.
Thank you so much for this amazing summary. It helps to know I’m not the only one with this strange disorder.🙏
Woah thank god I found this. When my vss gets bad I see really weird stuff in the dark. I thought I was nuts until it turns out it’s just self light projection.
It's the same for me. There are times when it gets bad, and very few times when I don't notice it much. Strange how it works. I started seeing in December 2021. I am 28 years old. Got Covid in April 2021. Life hasn't been the same ever since
This is the best and most complete representation of VSS symptoms I've seen.
Hello. I have visual snow, floaters and tinnitus.
I'm never gonna hear complete silence. But I've learned to ignore my tinnitus.
I will never see the beauty of a night sky using my own eyes. I've made my peace with it.
That's just the way it is. Nothing we can do about it.
I feel so comforted to know I’m not alone seeing these things. Have been to neurologists, numerous eye doctors and this is what I have!!
I have most of the symptoms described here and tinnitus since I was born (now I'm 27 and I grew up with the idea that both this and tinnitus were normal). I did both hearing and eye tests and they were perfect.
I also just found out that I have tinnitus and visual snow lol I’m 16 but I’ve had it ever since I could remember which is odd because the only reason I ~should~ have them is apparently because of old age but I haven’t gotten it formally checked out yet
I have all of these! I am shocked very few eye doctors know about this. I never heard about it till recently when a nurse was telling me about it. I thought "finally! Now i know what i have" i was treated like I was imagining it for years
Youe have eye floaters?
I want to share my experience of how I mistakenly believed that I had Visual Snow. My vision decreased after stress and I began to see poorly in the dark, especially there were ripples (pixels like 240p video quality). I thought I was suffering from VSS and saw flickering dots on the wall and other similar objects in the dark, but not in the entire field of view, but only on certain objects. I asked my friends, relatives and other acquaintances. It turned out that they all saw it that way, some even explained it in detail. I calmed down and my symptoms decreased. And one day I met a girl who really suffered from VSS and shared her experience. It turns out that the difference between a healthy person is that he sees small dots and ripples, but only under certain conditions and with a weak intensity, while a person suffering from VSS sees constantly and throughout the entire field of vision.
Dude I too got this thing after getting anxious of my heart and health. One day all of a sudden these small dots appeared ( not in bright day but at dark or dark objects) I don't know what i am suffering from but I think we both are in the same boat. I get trailing,flash and small moving dots at night or in dark places. Can you say how you overcame this
@@balaji8781 Oh yes, I understand you very much. I can tell you that we 100% do not suffer from VSS, but most likely as a symptom of severe stress and anxiety that has affected our vision and perhaps the presence of OCD, which also makes us think about it and pay attention. In the dark, most likely we see ordinary internal noise, like all other people, we just became paranoid and paid attention to everything. I've heard a lot of stories about how Antidepressants restored mental health and everything went away
@@NoName-oh9fhI have static in dark and when one eye closed what can I do for finish it?
@@tusci lol, everyone sees this and is absolutely normal. This is definitely not VSS. Try flagging a psychiatrist because your experience is not related to a VSS diagnosis.
@@NoName-oh9fhhello i have lots of floters and suddenly i see sparking dots in walls they are moving Everytime what it this
Wow I’ve lived my whole life till 21 thinking this was normal until I took a strong medication which made me hyper aware and anxious about everything which lead me to question all these symptoms, which lead me to find out I have visual snow.
You’ve had all the symptoms? How are you now?
@@MissChris001 the first 6-12 months were hard because I was always hyper fixated on the symptoms, but now I have almost forgotten about VSS
@@xFrxsty bro some tips to reduce this , it has fucked up my life badly
@@mrsamurai7508 in all honestly the only thing you can do is forget about it, it doesn’t interfere with my life anymore in terms of making me depressed. I stopped researching, watching videos, looking at forums and just tried to adapt and move on and since I have succeeded. The only thing that can be bothersome is the tinnitus but even then I forget I have it. Best of luck to you, the fish 6-12 months are the hardest to get adjusted too.
THANK YOU for listing the last one, no one in the VSS community talks about it i really felt alone
I get that too. Especiallyof wood grain and floors with coloured difference like a carpet made of different coloured fibres next to each other. It's like the floor is breathing
only video that includes reading problems so thankful
1:09 "sensitivity to bright lights, flashing lights, etc" *shows bright light*
Danke dafür. Mich macht das pulsierende sehr fertig und macht es schwer ein Objekt anzuvisieren. Mit dem Rest hab ich mich nach 10 Jahren angefreundet.
I went to so many eye doctors and even a neurologist with these symptoms and none of them even mentioned this condition, I had no idea it existed, they just told me I was fine.. Now I know I have this and I'm not crazy.
Thanks, I can show this video to some people who just don’t get it. This is my life, the only one of these symptoms that I don’t have is the trailing.
Good luck with that, i discovered i only have static since i have DP/DR and make some research sadly and phosphenes which is normal and not others symptoms except tinnitus but since a long time due to music, so i'm not very much impacted but clearly enough ^^ And just thinking about having all theses symptoms is over my force, good luck with yours symptoms, hope it will get better and that we could find a treatment in some times !
This is the best representation of VSS ever thank you so much :) VSI website should use this video as a guideline. Coming from someone who has a VSS diagnosis this is my vision.
THIS IS WHAT I CALL AMAZING, i can relate to this so muchh!!!
Thank you for posing this. Had been wanting to find someone with this experience and glad to know this disease is known finally 😊
Hi priyanka , hiw r u , i m also suffeeing from this rare disease
I was diagnosed yesterday and also have hemiplegic migraine with aura. I’m relieved to know I’m not alone in this.
This is at the top of my list for video's for VS. Im sorry you also have to live like this and thank you for making this video!
I've had all of these issues since I was a kid but didnt know it was an actual thing. I'd ask people growing up "do you see images after you look away" and theyd always say "yeah after I look at the sun" but that is never what I meant. I even would ask about the floaters and seeing weird things and it'd still be met with "everyone has floaters". So glad I'm not crazy, and this makes me want to ask about the ringing I hear in my ears whenever it's silent. Truly validating.
I have all of them, although I can still see and drive at night quite well.
Never seen a video so accurately represent what I see, nice to know I’m
not crazy 😂
@@jakerademaker5288 It's crazy how we all see the same crazy things!!!
best comparison i've ever seen
Ive had this for years. Always wondered what the heck it was. Thought i was going crazy, its good to start getting answers. I just wish there was a cure.
Thank you so much for putting this together 💜
I’ve been having static in my vision for years and my eye doctor simply described it as migraine aura. It never went away and even recently feel like it’s gotten worse. It’s been really stressful thinking there’s something really wrong with me that even a doctor can’t diagnose. Finding out about visual snow has been really helpful cause now I know that my condition isn’t undiagnosable and I’m not crazy for noticing something wrong with my vision
Blue Field Entoptic Phenomenon - In addition to the tiny dots that I always thought I was going to pass out until I recently discovered my condition. I also see pulsating tunnels when looking at the sky or when I'm in water.
Irlen syndrome lenses greatly reduced my symptoms, The static is still there but the everything else is much better & the head aches from bright lights has stopped to!
Wow crazy to see what I see and it’s hard to explain to my wife and the people around me when this first started I thought I was going crazy thank you for the amazing content
Strange for ghosting if put my head down and look up the ghosting goes away or if I look through a tiny hole it's gone
I had some type of palinopsia when I was little? I remember looking away from the TV because it had a scary ghost on it and I still saw it and it terrified me
Yeah, I get the blue field entoptic phenomenon. That and floaters are the only symptoms I really get, although I do notice in low-light conditions there's a faint, very fine, grainy static effect. The blue field entoptic phenomenon is also something I notice with other plain surfaces, like a white wall or flat cloudy sky.
That's the extent of the visual snow stuff for me. I normally don't notice the entoptic phenomenon unless I'm looking at a blank surface or the sky. Same with floaters.
I have something I can't find, I think it may just be part of my visual snow; in recent years if I close either eye, instead of the noise-static patterns, I'll see what looks like random shapes, lines, etc, like some kind of confetti, that has no actual color other than making things randomly brighter and darker where they are.
AMAZING VIDEO! Thank you. Very validating.
colour ribbons!!!! i had no clue this was an actual thing! i kind of assumed mine was a result of my synaesthesia so it's interesting to know it has a name. mine are multicoloured, mainly yellow, light green, light blue, pinks and light purples, and they dance about underneath the letters :)
I also have synaesthesia! And I experience every above symptom in a single cluster. Thank you for sharing!
I get most of these symptoms but not sure that I have it I definitely see floaters and my eyes are sensitive to bright lights idk
I have all of this
A lot of those symptoms also happen while on lsd. I've always had the static, but I acquired trailing from lsd.
I'm crying.... I had no idea anyone else had this in the severity AND in the symptom-clusters like that. I say cluster"S", but in my personal experience I perceive the phenomena to be singular, "a cluster" but No-one REALLY believes it's real and not just "my need for attention" and they can't even truly comprehend. I experience reality in a way completely alien to 90% of fellow mankind. That by itself is not a bad thing, the trouble I find is that there are not even WORDs that accurately and adequately describe the subject matter. It is true ESP. EXTRA Sensory Perception. Not telepathy. Nor telekinesis. Just experiencing sensory stimuli in a manner outside of it's "chain of command"... Idk if that made at sense It's so hard to try to make sense... Like experiencing sharp pains from a location that's 2 ft in front of ur head and slightly to the right. The pain has a radius and if you split the pain into 3rds, not like a pie chart but much like a bull's-eye with concentric circles, like the layers of Earth. Crust, Mantle, Core. The crust and core are normal neighboring spacial locations with no physical location in between. Yet I feel stimuli in the mantle, which would logically be between crust and core, instead I feel it externally out in the empty area out in front of me. Much like feeling the phantom pain of an amputated limb... Brains are so bizarre and consciousness is unnerving....I think I have been blessed with a myriad of different understandings of every day solutions and their problems.i get to see "the dark side of the moon" if you will pardon my .. I understand so much more than most because I get to learn from the mistakes of normal people and then I compare what I see and BAM, I understand it deeply...
I'm pretty sure I have VSS with the visual ribbons when I'm stressed, but more like VHS because mine is a constant colorful static (yes, even with eyes closed. doesn't help with my dissociation either)
2:03 i have this but i see them in like, everything that is too bright. Going outside in daylight without my glasses is hell
Ghosting and light streaking are common.
Ghosting is NOT common…
I have almost all the symptoms but the ophthalmologists who examined me told me that they are caused by detachment of the vitreous...
Well I don’t match any of these symptoms which is good, but how do I explain the constant static-like appearance of moving specs on top of my vision, which can get annoying when i notice it’s there.
If I stare at one spot for a while my entire vision darkens and goes a weird shade of green and purple, any idea as to what this is?
Same!!!!!!! What is it?! 😮
I have the same thing, how are you now?
@@s130z. good thanks! I think it’s just something to do with the brain interacting with the pupils in a slightly different way due to lack of stimulus, similar to when you stare into your reflection and it starts looking weird
I also have the same symptom 🤚🏻😢
Sameeee it gets colored with the same colour the object we looking at has
So I have the floaters that happen to me during the day but specifically only if I look at the sky whilst in a car and I also have the multiple dots that appear only at night when I close my eyes. Should I be concerned?
Lucky guy. I see dark eye floaters everywhere 24 hours a day.
@@waynepayne9875 that’s actually horrible bro 🥲
Help me out because I think I’ve had this my entire life.
Best way to describe the symptoms is (particularly at night) I feel like I can see the world in static. But it’s not just static, I also see a single line of light brighter than the rest of the static. Always used to say as a kid that I could see the speed of light.
Also used to suffer a lot (but less as I got older) with green circles in my vision, especially when waking up.
I feel like i do have that objects appearing even when they’re no longer there thing, but I thought everyone had that.
And text sometimes gets random flashes on it, but words rarely jumble around.
I have been diagnosed with Kereteconis in both eyes so not saying I haven’t already cracked what’s wrong with my eyes, but does any of the symptoms here sound like anyone else diagnosed who could tell me if this is adding up
this a good vid =), you did well with the visual representation of them
I can't tell what's the issue in the visual snow example 0:19, is it because its too subtle or because I have it so I can't compare it with normal vision? 😭
Thank You Very Much 🙏🔥
so i have
-the static thingy
-photophobia
-the opposite of nyctolopia (i see pretty well in darkness i think) but still staticy as fuck lol
-halos
-self light
-color ribbons
so abt 5 of these. mainly the static thingy tho
@@OfficialGulag sure whats ur discord
@@tristantheoofer2 man I always ask my self why me 😭😭😭
i just woke up and got It🙂
I see good at dark , , but in the dark street with street lights , car lights terrible 😫😫 wtf
@@onichn2233 bro same , but i didnt see this stuff tht seriously till now but almost a month now the things have got worse , m cooked
I see static vision, though it doesn't hassle me. But have you ever experienced staring at one point, especially in the dark, and then those small dots, like glitters, gather around into a big lump? It looks like a portal, and it feels like you are getting sucked into it. Also, if I keep on staring, it will block my vision. It also happens even when I close my eyes. I can stop it by changing my eye perspective, I mean, looking at a different point. If I close my eyes, then those glitters merge, and when I open my eyes, I can see them blocking my vision.
-Ghosting: When I was a child, I thought I could see their spirits, lol, but mine is not that dense.
-Starbursts: I really hate this, especially at night. I have astigmatism, so that's why.
-Pulsating vision: This happens only when I'm stressed out, and I can feel my eyes beating and flickering.
-Floaters: They didn't really concern me, as I think everyone has them. Although, I was afraid because I started to develop a black one.
-Self-light of the eye: This is what I talk about when I look at one point, especially closing my eyes. It looks like this, but mine is circular and moving outward, usually in colors like purple, green, or maroon.
-Pattern distortions: I don't know if it's considered one, as it only happens on escalators. Seeing the pattern of the escalator makes me dizzy, as it looks like it's moving up and down, making me nauseous.
I can live whit static but the ghosting on text and Halos ans starburst are so annoying 💔
Isn‘t a little visual snow normal? I experience „static“ when i look at blank objects like a wall, especially in the dark. It’s a very mild black or transparent „flickering“ more like a shadow. And in the dark i also don’t see perfectly black and objects perfectly sharp, i see it flickering a little bit. Not when closing my eyes though.
I try to tell people what I'm seeing but they just deny that i am seeing anything like that
ok so i dont have any static issue
the only 2 issues i have from this video are blue entoptic phenomenon(severe) and inabitility to ignore floaters. could i have vss?
When i am driving in my car and the car on front of me brakes and I look into the red lights, i still see them 10 Minutes after when I close my eyes or blink.
When i close my Eyes I begin to see this purple/blue fog coming, and when I focus i see faces and things forming out of them, sometimes my own face, i am not joking.
When I am walking on paved floor it is if like the lines move in and out, like a glitching video game
For a wile I thought I hade dyslexia because of the color ribbons
i only have visual snow and light sensitivity
Nobody seems to understand. People make you feel crazy when you describe the static everywhere.
fr
I only have that static vision and i literally had no clue there is something wrong with my eyesight i thought everyone sees those yellow doots
Any one have
blury vision
For me the dots are rgb
Someone tell me is vss peraon can see purkanje image in vision field
This is the best representation of it, I have almost all of those symptoms, it started a few months ago. The only one that I like is the blue field entoptic phenomenon, I enjoy looking at them, looks like the sky is magical hahaha
Did you start/stop taking any medications during the time it started?
@@zigzag8162 I started taking some vitamins and a medication that increases blood flow, improving oxygenation in cells. But nothing changed. I couldn't do all the tests the doctor asked yet. I've heard about a medication that it was used in a pacient with VSS and improved symptoms sigficantly, Lamotrigine.
r u dumb , dont look at them , they will get stronger
I have albinism and I have photophobia due to my albinism. I have this condition too. I noticed it several years ago. I saw tiny white dots in front of me while I was walking!!! I often wondered what it was and what it’s called.
I thought that the little things in the ski was oxygen lol
Anybody tried meds for this. Lamotrigine is supposed to help
Brain stroke! which cannot be picked by scans.
I have 14 of those🙁
BFEP is so accurate!
If anyone knows another name for the color ribbons in the visual stress section please let me know
Visual stress is also called Irlen syndrome
Anyine from Hyderabad
Can you make one that adds all these into one perception?
Cool & thanks. Music a bit distracting :/
ive been diagnosed with visual snow by a doctor and i literally have all of these except for trailing.
Eye floaters?
@@haqsach4147 yep
@@fatimaccore not dangerous, and no it can not be helped. thanks for asking and yes im doing well.
I thought these were all normal though. I thought I was over reacting
2:24 personally I'd describe it like moving ti dye
I suffer from pattern distortions. I think it's getting worse in specific light. It's scary but I see that I'm not alone. Can it somehow be related to neurosis? I suffer from this for years.
How about your eyes condition now?
@@meisiam367 Hello, nothing changed. It is exactly the same.
@@1ndy642 you went to the doctor?
Most people with hallucinogen persistent perception disorder gets this as well. Many believes that they have VSS when they in fact have HPPD, they just haven't seen the connection to the use of cannabis, antidepressants or psychedelics.
I've had it since I was 3. So, no, not from those.
Does anyone here have floaters? If yes, they fade with time ? I have tons, tons of floaters :(
Your brain will eventually filter them out. If you see a LOT of them, though, you should consult an ophthalmologist, as it could be a sign of Retinal Detachment, in the worst cases. It's probably not your case, but you should consult just to make sure.
Any cure plzzz help😭😭😭
Hi
Look on the bright side! When you close your eyes at night, there's a light show, an increase in visual memory with afterimages. Lastly, sometimes I associate this disease with space and the universe. Stars and the big bang, it's funny, but it reminds me of that. Maybe we're in the matrix universe, and there's a problem with our perception cables, what do you think? :D
0:31 holy shit i have that too!!!!!!! i was so confused
Damn I thought I just had irlen syndrome but now everything makes dense
You missed out the main feature of visual snow syndrome, others are unrelated. Go to wiki and see.. it also includes the actual illustration of what we see. Not what you showed. 🤷
If you're talking about the static, the video might not be showing it as strong as I wanted, sorry about that.
As far as the other symptoms, it's actually what defines the Syndrome.
Some people only see the snow, which is an issue in itself, but the VS Syndrome combines neurological symptoms on top of the static. Please see the current diagnostic criteria here: www.visualsnowinitiative.org/diagnostic-criteria/
@snowvision4531 outside of the static this video is almost spot on. My static is much better in daylight but much worse in dim settings personally.
Thanks for this its nice to be able to show people, otherwise they can't comprehend it at all
oh damn I have visual snow
OH DAMN
are we f*c*ed ?@@tree427
*purkinje image
Anyone from Hyderabad
Huh, im pretty sure i have this
i got this after taking shrooms lol i dont rly mind it though. feels like being on a low dose of shrooms at all times but without the head high
i have 💀😩