I Thought I Was Going Blind - Visual Snow Syndrome (VSS)
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- Опубліковано 9 вер 2024
- Hey all.
Today I'm sharing a part of my life I never thought I'd share: suffering from a rare condition called visual snow syndrome, where the experiencer sees thousands of dots in their visual field like TV static. To all of those out there suffering from this condition or suffering from any other rare condition, I know how it feels to be absolutely alone and I love you.
For more information, visit: visualsnowinitiative.org
And if you need to talk about what you’re going through, please feel free to contact me here:
Email: bradetter@gmail.com
Instagram: brad_etter
Make sure to subscribe for more videos, friends! Love you.
Shot & edited by Brad Etter
My VSS is different than yours. I'm not gonna lie, your sounds terrifying. I was born with Visusl Snow Syndrome. I've never lived without it so hearing about someone getting VSS later in life is very interesting to say the least
I have visual snow I was born with it, I found out last year that I was seeing different than others. My friends were talking about vision and I made a comment about seeing dots everywhere, no one else was seeing dots.
I think I was born with it too. Did yours get any better?? I'm kinda scared... (I founf out the name of my condition today)
no one I was told if you’re born with it, it doesn’t get worse. I have neurologist who follow me for other reasons. So the neurologist said I would be find and not worry about it. I had a stroke in utero that’s why I have visual snow.
You will be ok.
@@sammydrumm omg thanks... I was very creeped out. Now I'm kinda better 😅❤️
my Vss shows as static everywhere. also images follow when I focus on anything. I've felt so detached for so long and spent so many days crying. it really takes so much emotional energy from you. it feels a lot better knowing other people are experiencing the same thing as me.
You're definitely not alone! I'm 23 now and have had VSS since I was 18. I thought I was the only one for so long, and half accepted that I would never be able to fully explain or articulate the experience to anyone else. I think the feeling of being the only person going through it is part of what makes it so surreal and detached, like you're in two places at once but not really present in either. I hope you've been coping okay!
@@zoeburton7638 Thank you! I'm holding up! I'm glad we are able to relate. I just turned 24.
brother is static consist of all colours. and is it visible after closing eyes.. i see white tiny sparkles when i look at white colour or sky.plus when i close my eyes...is it vss
Dont worry i got it aswell
@@mochixmochi2417 hey does it also.. Experience unclear vision like whatever you see like images and videos over . UA-cam is not clear seems blurry??
I have visual snow. As the years go by we get used to it! Hugs! 💕💕💕
so it doesn’t make u blind mine isn’t really bad tbh just at night?
@@trizku I’ve been seeing it and I have depression every single day idk how ima adapt
I am 13 and it has gotten worst resently and I want to die
I’m 37 now and was born with it.
@@thekongman6828 Same, i remember having it as a kid. Since its so normal to me I've gone years without thinking about it.
I'm also a photographer and not being able to look at the sky is making feel like my life is ruined, I'm so miserable right now
i dont really mind my visual snow. i try to see past it but i cant. i rely on my ears and using my hands for balance and to feel around anyway. at least im not blind.
If you suspect you may have Visual Snow Syndrome, please print this out and/or show it to your doctor.
A. Dynamic, continuous, tiny dots across the entire visual field, persisting for more than three months
B. Additional visual symptoms of at least two of the following four types:
Palinopsia (persistent recurrence of a visual image and/or trailing images after the stimulus has been removed)
Enhanced entoptic phenomena*
Photophobia (sensitivity or intolerance of light, which can cause some people to avoid sunlight, computers, fluorescent lights and car headlights)
Nyctalopia (impaired night vision)
C. Symptoms are not consistent with typical migraine visual aura
D. Symptoms are not better accounted for by another disorder
*excessive floaters in both eyes, excessive blue field entoptic phenomenon (uncountable little grey/white/black dots or rings shooting over the visual field of both eyes when looking at homogeneous bright surfaces such as the blue sky), self-lighting of the eye (colored waves or clouds perceived when closing the eyes in the dark) and spontaneous photopsia (bright flashes of light).
Non-Visual Symptoms:
Ringing, humming, or buzzing sounds (Tinnitus)
Feeling detached from yourself (Depersonalization)
Symptoms of anxiety and/or depression
Frequent migraines, brain fog, and confusion
Dizziness and nausea
Insomnia and other sleep-related issues
Tingling sensations in legs and arms, accompanied by general pain throughout body
i have after images , tinnitus i see bad and night i see floaters , i have depersenalisetion and derealasetion and im sensetive to bright light but ithink i have vs but i dont have a paper of a docter that i got vs srry for bad english =/
and yes when i see in the sky i see vs but also white dots dancings it freaks me out
@@lil_weezy-weeez me too bro and I have depersonalization
Mathced nearly all the symptoms
Although I was already sure before
Coloured dots like static
Too much blue field entoptic phenomenon
Floaters
Tinnitus
Derealization and depersonalisatyion
Anxiety
Tinnitus
Tingling in both feet
Thank you so much for sharing your story about visual snow. It is so important that those of us affected help get the word out to increase research and knowledge, hopefully resulting in some treatment. I’ve had visual snow ( and its associated non-visual symptoms) for over 15 years and its severity changes almost daily. Wishing you the best.
Hi Brad! You have to know that everything what you said in your movie sounds like all of the thoughts in my head. I'm really moved by your words and I honestly understand what you had to deal with. I have VS since I was a kid but real problems started when I got an anxiety neurosis when I was 19 and since that time (3 years ago) my VS went more intensive because of strong,constant headaches. Now I'm trying to deal with it and sometimes it's really hard. I'm happy that I found you and other people with VS because I don't feel that lonely anymore. We're all in this together! We must fight for our dreams and appreciate every moment. I love you too!
Alex
Hi Alexandra. Has your headaches gone away?
I got VS a month ago and have been having headaches basically since then.
I have visual snow too!!! I’ve never seen anyone who had this condition too. It makes me feel so much better. Mine also just started one day and never stopped. It’s a crazy feeling.
Hey im from Germany and have visual snow too. Nice video, I understand you completely. My biggest fear is that it's getting worse by the time. Sry for my bad English
Same haha. Ich hab das schon seit ich denken kann und wusste bis ich 8 war nicht, dass das nicht normal war. Jetzt habe ich heute mit 16 1/3 zum ersten Mal gegoogelt was das ist und habe rausgefunden, dass ich das habe. Was anderes kann es nicht sein
I've had Visual Snow Syndrome all my life. My symptoms started deteriorating in my teens, and I was diagnosed in 2015. Some aspects of your experience sound very different to mine, but I can relate to a lot of what you talked about.
... Although I havn't been formally diagnosed I believe I also suffer from VSS. As far as I noticed I suffer from every symptom and that made me teffified. I understand what you're going through, I've been living in constant fear for thr last 6 months because of VSS. I'm also an artist trying to pursue a degree in art/animation. At times, VSS would be so bad that sometimes I wonder if I shoudl continue pursuing my career. After seeing this, it brought comfort to my mind. I'm going through the same thing you are, you're not alone.
I used to have HPPD after a few times of taking Acid. I had a bad time with it and At one time I thought I was going schizoid. Now its gone After a few long years. Now in hindsight I had a super power that I wish never went away.
What an awesome perspective! I used to regard my VSS as an anomaly, too. Now I tell myself I’m a the newest member of the X-Men 😁
I lived the exact same, drawing have always been my passion and when I developped this shit I was like so freacked out, every day waking up was hard for me because I was like "I'm only 16 ans already have this, I'm going blind my life has no point now" this was terrible
Now I'm trying to live with it ! It will take some times but hey, I can do it
Thanks for sharing your experience
How are you doing gary
Thank you for this video, I’m glad other people have it because I can relate to you and I know how hard this sucks you know, having amazing vision and then you’re like wtf man what ?? but you learn to really appreciate stuff more
I have VSS for 3 years now, it’s really annoying sometimes.
My symptoms are: VS, palinopsia which includes afterimages as well, nyctalopia, photopsias, flashes, ghosting, dizziness, DP/DR when I feel too much anxious, really mild floaters, BFEP, apparent movement in objects, kind of bugs on vision (like on videogamed) and sometimes shaking vision on line patterns. VS, palinopsia and flashes are really annoying me lately too much!
I made all the brain and eye tests and all is normal, so it frustrates me too much as here in Spain the condition is almost unknown, and doctors don’t know what it is😔
I’ve been taking Antidepressants and benzos for 3 years now and I am on withadrawl because of my vision, I need to get meds free.
Hello, do you see a black and transparent "ball" ?
I have all that vs symptoms, but this worries me.
It appears in the vision edges, when I look at the corner of the vision, or touches my eye in the sides.
@@sergiohenrique591 hay i have it top, it is really make me worry
@@iketutarimbawa155 hi buddy, Ive find out that this is called pressure phosphene, and it's natural.
I was very worried too, but as soon as I relief my anxiety this symptoms get better, so I started to stop worrying.
@@sergiohenrique591 Thank you ☺️☺️ i have visual snow as well and retinal decatchment in my right eye i can't see things well so im very worry if there's something wrong with my normal eye . Im so glad to find many people who has the same problem and people that i can share with. I went to doctor few times and they said my left eye 100% well. I thought im the only one who has anxienty
Did this start while on medications or from coming off of them?
I left so much behind because of this snow vision, gaming, social media, driving, TV, and reading. I'm praying not to lose my job. I have both floaters and snow
how are you now
Hey how r u now I'm also in the situation 😢
I live with the same phenomena that you are describing....I believe the root is indeed a spiritual meaning that we don't understand...
It's frightening I know....but I think if we would really know what it is we would feel blessed
Today I learned that seeing static is not normal.
I am so so sorry that this has happened to you. I am in the same boat, but yours is more intense. I see static and can’t focus on anything visually. I have brain fog CONSTANTLY, even though I’m highly intelligent, I just...can’t? If that makes sense.
I feel so much less alone. Thank you so much. I hope the static goes away from me and I hope one day you just wake up and it’s gone.
I have this!! and i thought it was just how people see!!
Im crying right now as speak, im so glad to finally find out im not alone in this, When i first started noticing something strange in my eyes i was worried because it ws a thing that happened every day, constantly. But Luckily this condition isnt like others, theres no physical pain to the body unlike cancer and other diseases. Im so glad that all the people here understand where i personally am coming from, i am 13 and am currently not being treated for VSS as there is no reason to be currently. My fear is that ill go blind as i grow older. As every individual is different and every case is similar but still different. I have every symptom, and see exactly what it described and shows in some images online. Im so glad to be so open about this but the scary thing is , because they dont have much information or treatment for this diagnosis is that in someones case out there they will go blind and doctors wont have information to describe why. I have been diagnosed with depression because of this diagnosis, but i will live to remember that i might be different from others. but that does not mean i cant be like others. Im the only known person in my whole Town - High wycombe to have been diagnosed with this. And hope that it gets better at some point in the future
Hey, i know this is late but I also suffer from VS. I first noticed them a couple years ago but didn’t put much thought but over the years I’ve noticed them more and more and it seems like I increasingly get flashes of light that really freak me out and sometimes they look extremely scary and random to the point I wake up in fear that that day could be the day I go blind and I freak out so much whenever I see flashes. I also see an extreme blue phenomenon at anything white I see and I get a lot of after images. I know exactly your frustration because seeing is the part of us that lets us function according to the world around us and without what can we really be? It’s so scary to think one day it could take a turn for the worse and just go blind but here’s to hoping one day something could change and a cure or a treatment, a real one, could be found.
best of luck.
Brother, I’m new to your channel....like literally “15 mins ago new”, lol
I had done a random search for Sleep Paralysis and the lower astral plane and voila, there you were. So much to talk about with you if you ever get a free 15 mins.
You shed some light on what I’m currently going through in that first video, but it’s this video that I feel compelled to return the favor.
Light Workers, Light Warriors, Family of Light, etc., we go by many names.
I can tell you that as the Light Worker starts to awaken for the first time, there are forces that are either stuck in lower vibrational spaces who see your ascension potential and latch on (this is what I’m dealing with now).
Then there are situations where those forces can’t ascend no matter what but want to do whatever they can to prevent someone from reaching an enlightened state of consciousness.
That’s what sounds like is happening with you. I don’t know your whole story yet and not sure when you started to realize your potential, but you clearly have some adversaries hiding in the lower realms (more explanation on where they reside towards the end). These beings can either eff with you at night (which is similar to my current story) or they can invoke an illness or “rare” disease just by injecting something gray, murky and nasty into your astral body.
This is usually done out of jealousy, because they can’t ascend themselves so they try to sabotage someone else’s journey. Most Light Workers or Family of Light (as the Pleidians call us), have some sort of health issue. It’s part of the gig, believe it or not. It won’t be forever though, because once we’ve done what we came here to do, we will ascend to a better realm of consciousness (what you call 5D). Trust that this issue with your eye, will not make you blind or do anything to stop you from ascending and helping others from ascending. It’s just a deterrent set forth by the forces of the Nebula in an effort to thwart this great shift humanity is undergoing currently. It’s meant to confuse you, have you throw in the towel, etc.
***Matter of fact, if you WEREN’T suffering with some sort of ailment, I would be suspect, LOL***
JK of course, point I was trying to make with that last comment was that most, if not all, LightWorkers have some sort of health challenge (not related to diabetes, cholesterol, Crap American food, etc.)
Regarding these adversaries and where they reside; I can say with utmost certainty that beings inhabiting the 6th through the 9th dimension are made of pure Love and Light. No lower vibrational being could ever penetrate that level of pure white atomic brightness.
The 5th dimension is also inhabited by beings made of unconditional Love and Crystallized DNA, however this plane can, on occasion, be stained by lower 3rd and 4th density beings. I will say that it’s not easy for them to stay in that crystallized form very long as it’s too bright for any children of the Nebula to penetrate for long periods of time. What you have to remember is, due to the the Earth being bombarded with Light Wave Harmonics and Ultra-Incandescent Photonic Light, the veil between the 3rd and 4th dimension has thinned. They are literally superimposed on top of each other right now and I warn anyone seeing this that wants to start meditating but is new to the practice, to please ground yourself first. Set protection circles, get a Wisteria plant and control your breathing. I was a novice back in March of 2021 and this is how I think I let these parasites in.
Where they come from specifically; each dimension has multiple layers to them (think Inception’s “Dream within a Dream” layering). Since the 5th through the 9th dimension are inhabited and watched over by unconditional Love from the Source of Radiant Essence, there technically aren’t any low vibrational energies within those layers. However, the same cannot be said about the 2nd, 3rd and 4th.
Since the 2nd dimension is flat, baron and.....well.....flat, these lower vibrational beings can pop down to the 2nd dimension and affect this 3rd density through other 2D means like Mirrors, Photos, etc. They mostly reside in 4D though.
The 3rd dimension (Space), over time, have been negatively affected by the Children of the Nebula in order to maintain a Master-Slave type hierarchy over humanity as well as keeping humans in a docile, compliant and ultra-ignorant state of being.
The 4th dimension (Time) does have sweet ethereal beings living there as well but they are at the mercy of the keepers of that density (The Alpha Draconis)
Anyway man, I’m clearly babbling and have take up much of your time. I felt compelled to reach out to you in the Lower Astral video (probably still will) but this one auto-played right after and I was like “I have to let this dude know what I suspect is going on”
I hope you find some of this information useful and hope to chat with you more in-depth.
Cheers,
DB
the after images, the missing pixels, the visual snow, tinnitus, and floaters....
I only wish I had been educated on HPPD.........
shit is so annoying
going on almost a year now
Hello, Brad, I have a lot of issues with my eyes mostly stemming from congenital cataracts meaning I was born with them in my natural lenses. I had the cataracts/lenses removed at 16 near 17 and then had secondary cataracts blown away with a laser procedure. Lastly I had I guitar string hit me in my right eye. I have been seeing an Ophthalmologist for more than half my life due to the cataracts and now in place of the lenses are acrylic lenses. I wear glasses also. Anyways I believe I have visual snow also, maybe not to the same level as you, but I do see things jumping around sometimes, as if my eyes are shivering. I see some holes in my vision, but they usually will go away, they can also appear as bright spots which go away. I think my heartbeat changes the way my eyes see things, such as I will see a lamp shade go from a normal /\ sort of shape to an almost ( ) kind of shape, almost looks like it gets fat like a balloon. I have palinopsia and sensitivity to light. really sucks lol. I woke up one night to go to the washroom, and everything looked sort like looking through heat from a bar-b-que or a fire. Don't exactly remember when certain symptoms came because I knew I was going to see a bit differently with the artificial lenses in and the laser procedure. I look at text in a word document on the computer and there is grey between the lines. It's crazy, I am looking to get an appointment with another ophthalmologist, maybe they can see something that my longtime ophthalmologist can't, or maybe they do more research than my current one.
Wish you luck with yours, and to everyone.
This can be explained spiritually. I never had static snow until I became woke. I am partially enlightened but the “gifts “ of Holy Spirit went away due to decrease in body vibrational speed through poor diet and around negative people hearing bad things. Increase body vibes to receive Holy Spirit. We are told to keep our body our temple clean and away from sin (low frequency). Everything vibrates including food, hygiene products, water etc energy only transfers
im pretty sure ive always had it. i cant remember not having it but i seem to have noticed it more and more within the last two years. i dont know if its getting worse or if im just getting bored but it is a very strange thing. everyone experiences it to some extent mostly at night. but some people have it constantly like us. mine is like im living in an old tv with the thick static and tinnitus too. its just so weird.
@Cecile Niamh yesssssss also if someone is standing and then mves do you see like a weird amost negative outline of them for the next two minutes or sommet? also YOURE ACE TOO YESSSSSS!!!!!
Yes
Same here since I was born
@@Eli-yr3rs hey does it also.. Experience unclear vision like whatever you see like images and videos over . UA-cam is not clear seems blurry??
You went to sleep with bleached photoreceptors during stage 2 of non-rem sleep, strengthening the synaptic plasticity of the neurons that consolidate new memories. AKA, you left your visual pathways in a state of hyper excitation during a stage of sleep that is crucial for them to be shut down. Naturally, you've made your symptoms worse by detecting it as a threat and becoming fixated on it, which then exacerbates the sensory issue.
Thank you for sharing your experience with us.
Very interesting.
Hope you're doing well.
I am 14 now I got visual snow before 2 months I need to become a Film maker and a VFX artist all my dreams are not filled with sand there is no cure for my visual snow 😞
But mine is much more none visible, if u know what i mean
I've had visual snow since I was a kid, and the ONLY reason I know that is because as a kid I would "play" with it in dark rooms and let my imagination go wild with it. But I've actually gone years and possibly a decade without even really thinking about it at all, just ignoring it. The only reason it was brought to my attention was a documentary I watched where someone described HPPD (which I don't have), and I realized that that static-y TV noise isn't "normal." I also don't have headaches and I dont think my VS is overbearing to the point I can't see things. I'm sorry that yours is so strong.
Since I've had it since I was a kid, I think its just genetics for me. I read that it could be part of the brain is oversensitive to visual information.
I have visual snow but they’re not rlly noticeable, don’t worry we will all get through this!
Mine keeps fucking getting worse, i can't deal with this shit, i wanted a normal fucking life, but it's getting worse everyday, if this keeps on I'm literally going to go blind
@@decisive2242 I suggest to stop looking at the screen and drink carrot juice It kinda works for me
@@bumblegumble idk if that's a joke but if it is thanks it made me laugh
@@decisive2242 u didn’t have to give a rude response tho I was tryna help you lmao but alright
@@bumblegumble i didn't mean to be rude
Is it normal that when (in the darkness) I focus on something, all of my visual camp is going to be black and I can t see anything. When I close and reopen my eyes I see normal
i have vs tho sind 10 months ago but sinds a moths its getting worse again my vs started with saw a floaters and after that i saw more and 2 days later i was at home and i saw at the wall and it was all millions of dots and i freaks out i when to all hospital all eyedocter but they didnt find nothing i was from a month in a institution/hospital for therapie because i was so crazy and no one belieft me and then i found a video of vs i it relieft me that im not the only one that hase vs but it was kinda hard expecting it because there is no cure yet but now its worse again but i know what it is butt its still hard again going trough this
Omg, thank you for sharing sweetie, this makes you even more special, the fact that you struggle with your sight, yet make amazing videos, is amazing!! Thank you for sharing and opening up about this, I love you ssssooo much, your the sweetest!
Actually my heart at times feels like it stops, I've gone to many Drs and they say my heart is really healthy and that nothing is wrong with it, many testings done and I've been told I'm just imagining it, but I know what I feel and I've been shown by the devine it's a sign for me to stop what I'm doing and meditate or pray, for someone or something, it's the only way they can get my attention, because I go, go, go, so they make it feel like my heart stops, so I can pause what I'm doing and connect spiritually, I've actually never shared this before either! :)
I've noticed this since I was a kid I've noticed it's getting worse and worse as I get older. In 24 now The static is so thick I can hardly even see in dim light anymore it really is getting scary .. and of I go blind from this no one's going to believe me it scares me
Don't worry you won't go blind from this
How have you been lately ?
You won't. I've had this since I was a kid, I'm 37 now. I can still see :)
@@TheFilipinaWifeLife what are your symptoms ? I’m so scared of the unknown
@@gracie31233 static, eye floaters. It'll be OK. Of you stress out over it, it'll just get worse - trust me. I was going through extreme stress and anxiety for about 3 weeks and it got worse for me, but I think it was because my brain just became more hyperaware of everything. Felt so sensitive to light, static more profound. Finally starting to calm down and it's slowly going back to normal. So no, I don't believe it gets worse - I've had it for 37 years. For as long as I can remember. You'll get used to it. Don't focus on it, as hard as that may be. I suggest stop going on UA-cam lol. Reading all our comments, especially those who are just as scared, will affirm whatever fears you may have. It doesn't help at all. Now that you know you have it, get off UA-cam and start living again. trust me. It gets better if you let it.
Do you guys see halos also ?around eyes i have visual snow i see some dots going herr and there in sky at night i see halos please answer me it will be a good help
I also thought I was going blind, I got so scared and depressed. I’ve had it for 4 months and I really wish it could go away but I’ve just accepted that this is apart of me
@Clarisse Yes, I am curious too. Also, did you experiment with any drugs or hallucinogenics? I'm curious. A friend did and is having same experience.
I have vss too. Do you also have ringing in your ear? I've been doing research and heard that some people got help for it. Was just wondering what's going on a few years later.
I've had v.s. all my life. Your simulation is pretty much what I see but v.s. can appear differently for everyone. I am 54. As I age my v.s. gets worse.
Your description of getting "holes" in your vision sounds terrifying. I hope you get answers!
And i sometimes, have a bit of a crisis.
I calm myself down by playing games and i almost ussually, not finish my homework cause of it.
I totally understand what you’re going through. I had to learn how to master the chronic and debilitating distraction of VSS by trying to “see past it,” so to speak, and stop fixating on it. It used to be such a burden of anxiety on my life but it does get better if you try to let go of all anxiety connected to its presence. Sorry you are suffering like this but you can get through it! And the community is expanding every day. So hopefully we will soon be getting to the bottom of this!
@@BradEtter I sometimes really scared of it.. Is there a comunity for us? Where we can support eachother? (likee Facebook, reddit group)
I've had tinnitus for 7 years the visual snow is new
Thank you so much for this video, I've been trying to understand what's going on with my vision since 2016, with no luck. I thought at first that it was hallucinogen persistent perception disorder (HPPD), but that didn't feel right. The people with HPPD I've spoken to don't experience the specific static filter over everything, and until now I've struggled to even describe what I'm seeing. But you've hit the nail on the head- thanks for pointing me in the right direction!
Oh my goodness Brad I had no idea. 😢 I’ve been with you many times while you’re operating a camera and editing and noticed your eyes twitching a lot. Is that also part of it? This is sort of like how some singers who identify their entire lives around their singing careers and get nodes and have to stay silent and don’t even know who they are anymore without their voice. Or athletes who get injured, etc. I love how strong you are and your determination to keep creating visuals. You will get through this and be a voice and source of inspiration and hope for others on this same rare journey.
Love you & miss you so much. Hope we can catch up soon! ❤️
Thank you so much Alicia! Yeah, I’m always trying to compensate for my wacky way of seeing the world. I used to think of it as a curse to try to ignore but have since (recently) learned to love it as part of me. There is a lot more research being conducted on VSS than when it started for me 11 years ago, so definitely grateful for that and looking forward to hopeful progress for those of us with the condition. Love you and appreciate the kind sentiment 🙂
Hi Brad, An ophtalmologist just told me that I have VSS without telling me anything else. It is so scary. Thank you for talking about it.
Melanie how are you?
I've had visual snow and tinnidus since my birth, one day when I was 18 I found that when I smoke weed my visual snow disappears for hours
Can someone please help it a cry out I have this for 2 months now can look at a beautiful blue shy without white like little stats moving all over alongside with lots of floaters and tinnitus that does not go txt on phone looks not right in low lit room but in natal light out side it’s clear I get goat like flashers of a image happens on blue pink yellow with black txt am so sorry I tried to take my life because I can’t cope had 2 ct scans all clear eye tests all clear they look at me gone out when I try to explain but feel trapped in my own mind straight lines also shimmer it is ruining my life on a lot of depression tablets and sick a doctor saying it will go it’s anxiety it’s not the case am so down can someone please help me
Thanks for the video! Now i,m relaxed for a first time since 6 months, when i noticed the first (strange and frightening) symptoms. I even cant believe that. All my visual disturbances completed in one condition. More than 10 ophtamologists and neurologists told me this is "only in your head". I was sure that im goin blind. I was so depressed. Now i have only one question - does the VS syndrome leads to blindness. I know that is individual case, but i need to know what is a chance to serious progression. Everything was started with one retinal detachment and 2 laser photocoagulations after that. Now i know that the problem is in my brain, not in my eyes, because it affect the "healthy" eye in addiction.
No visual snow doesn't lead to blindness.
Hi we have the same problem, my life was completely changed since i had retinal decatchment in one of my eye. I thought that my left eye (the nomal one) is going to blind because i noticed that i have dots moving and after i watch this video i realize that i have vs and im not alone . I know what you feel it's extremely frustating, sometimes i wanna end myself because i really afraid tht im going to lose my vision.
Have u been checked for cervical misalignment ? Its has help many people with Visual snow.
I have not, but I will. Thank you for the help!
I have tinnitus and visual snow I just feel lucky I don't have headaches
aw, you are so strong for growing through all that. i was born with vss (broadband type) so im used to it but your story is very inspiring. 💕
mine is real confusing. I am completely blind in the dark, because everything moves. My static is finely placed with excessive movement, bug-like dots sporadically placed, random brighter lines in static, with occasional floaters, cross hatching falling, mild tinnitus, etc. The intensity fluctuates depending on my mood, and amount of pain i’m feeling. This may not be related, but I cannot imagine the face/body of anyone i know even though i can see them clearly. I can barely recognize what people look like, and rely solely on their posture and voice. I’ve had vss since birth, and only recognized it 2 or so years ago. I get headaches when i focus on it too long, and when i close my eyes i see all of the above plus the flower-like patterns and colourful milk-like static-y substances swirling around. Luckily, I can daydream so intensely that i can ignore the vss when i close my eyes. The weirdest part is, i don’t see it on live things. Not as in ‘moving’, but animals and people. I see it on their clothes and such, but their hair, skin, and eyes are completely clear. This really confuses me. It makes it seem like when the background is all fuzzed out in a camera and it’s only focused on the face. Luckily, I have some relief. I have orange tinted glasses that decrease the static and replace it with a much calmer one, but i get frequent headaches probably due to the sudden change. I am fortunate to not have it as bad as you do, because it seems your vss is combining with other syndromes like ‘alice in wonderland syndrome’ or some other rendition of it. It’s really an anomaly for all of us about why we have it, and it would be really cool if it were connected to some type of spiritual idea. Although, not a fun thing in general.
Hello friend, do you see a black and transparent "ball" when looks to the edges?
I learned to live with vs, but this symptom is scaring me.
I have that
I ve seen your video with your twin brother. Out of curiosity does he also have VSS ? Trying to figure out if it has something to do with genetics
I have all the stuff you said you have , but lighter, since i was 6
Really wish I could just talk to you one on one, my vision has been effecting me and nobody understands.
I know its bad to self diagnose but i believe that i have visual snow. Honestly its annoying me a lot because it causes me headaches
I kinda curious to see what it’s like to not have snow
If I focus in a object or the eye I can see auras or visual snow I though I had a power ot felt like I was making a black hole in the sky
I have this desease. I know what you mean, I have been through all the same fears and emotions... I will have to be brave, like you. Thanks for sharing, hope soon there's a cure for all of us with VSS.
I also went the my eye doctor and prescribed me glasses but still nothing... maybe worked with blur but that's about it.
By chance, did you do any hallucinogenics? Did you smoke weed, LSD, Molly, etc.? I'm just curious, because some people who use harder LSD-like drugs will get the Visual Snow experience.
I've had visual snow since my birth, one day when I was 18 I found that when I smoke weed my visual snow disappears for hours
I went to school for film too. I have this now almost all of my vision. But what I'm interested in is your experiences with energetic entities as well. I theorize we're seeing radiowaves. Maybe even the make up of reality itself. I see waves and particles.... let's talk
I have come to the same conclusion. Email me bradetter@gmail.com?
I have vss . I had been being this since 4years
I’m 37 now and was born with. Always thought it was normal.
I am 20 yearsold from philippines and i am now suffering from visual snow and floaters. I have that thought everyday when i wake up that this could get worse im afraid of what it be like 10years from now. am so depressed right now and i lose my hope to live like normal people.
Don't worry bro just relax and accept it it is what it is , don't let this problem affect you ,and try to not focus on it it's all about you the most you think about the more it's appear more .just chill bro
@@larbiwiran3888 thank you for giving me hope
Hey I'm from the PH too. I've had since I was a kid. I'm 37 now, I can still see so don't worry.
Dose visual snow make you see ur nose in ur vision?
U can normally see your nose. Depends on the your face structure. It's nothing to worry
I have severe visual snow syndrome which I understand is linked to ADHD somehow.. or migraines.
You guys like blind in you’re dreams too? Well sometimes it’s just all blur but sometimes I have normal eyes In my dreams
I am just 15 and I am feeling there's nothing in life due to VSS
Not sure if i have visual snow, i remember like end of march going on april. I had a weird pain shooting in my head while i was watching a streamer on twitch playing VR chat going to really trippy visual worlds. Well anyways that head pain was like a pinch nerve or something... don't know what it was the worse part of the pain last a week and was like a 6/7 maybe even 8 on a scale to 1 - 10. And then some random eye problem and through out the whole 6 months i had eye problems and head pain that was atleast a 5 sometimes shoots to like a 6 or even to a 7 pain went doctors plenty of times put me on like naproxen for my head but it was making feel anxious. My eye problem idk if its computer syndrome from constantly watching a bright TV, computer, phone or what. My visual looks like static and like black and regular light color from probaly something to do with my nerves. Also not to mention i've went to massage lady see what was wrong with my head/back. She does my back every few weeks but nothing really helped.
The worst thing about this is no eye Dr. Or specialist knows what we are taking about. Do you suffer from migraines ?
Is it go blind from visual snow?
No
Yo dude, i have that.
at first i thought i had floaters but eye doctors kept saying my eyes where 100% healthy and told me about this ;x going blind is also my biggest fear.... iknow how you feel on this, stay strong ;x
I'm too suffering from this
So how it started for me i was 13 and i smoked weed for the first time and i started seeing the snow me thinking omg this is what is like to hallucinate from weed bluh bluh then I ended up getting this massive fucking headache like all the blood was rushing to my head almost a feeling of my brain about to explode I also heard loud explosions but I was in my room alone but anyway I woke up in the morning like what the fuck I'm still seeing those dots from the high another day passed I woke up still saw them I freaked the fuck out with mad anxiety and panic attacks like fuck theirs something wrong I ended up getting ct scans etc because simultaneously I ended up having this constant feeling of something in the back left of my hear wanting to explode like just something in their constantly I still have it to this day but recently my vs has gotten worse now (I'm so fucking stupid I decided to smoke weed again due to all my friends doing it thinking surely everything will be ok now cause I was quite content about the level of vs I was experiencing it was like I learnt to deal with it but I was totally wrong I ended getting that same headache and my vs is now twice as bad the pressure in my head is twice as bad now I have new vision problems aswell now cause I'm am idiot just had been so long I thought it would be ok) im seeing random shiny blue dots or shiny bright starts with a black orah around it and a black dot that behaves like normal floaters now they only last for a split sec but are frequent from every few weeks to now every few minutes😭😭 it fuels my anxiety so badly. I also had it for 11 years I'm 24 now only finding out 2 months ago what I was experiencing was vs and that I wasnt alone I cant believe that's the way you got it that must have freaked you the fuck out honestly and the fact that some people are actually born with it baffles me
Are you still using hallucinogenics? If so, I have heard that if you lay off of them completely, then it will improve. But, it will take time for the toxicity to get removed from your body.
I have the same !!!
I have not been diagnosed, but I strongly think that I have Visual Snow Syndrome because I constantly see static in my vision, I know I saw it 5 years ago and I still see it now. It has always been in my vision although it is not severe, it is more on the mild side, but when I went to the eye doctor and explained it, I kinda explained it in a way that it sounded like I was in the process of going blind, at least in one eye. It is definitely worse in my right eye, it is there when I close my eyes and when I open them, it is mild enough that I can tune it out and it doesn’t bother me that much, but knowing that I will most likely never see the world without the static, it just makes me wonder what other people see, since I always thought that the static in my vision was normal, I thought everybody saw static in their vision, since it was mild I was able to think that it was normal because I could see perfectly fine, my vision isn’t blurry at all. I just want to know what the world looks like without the static in the way.
Did you try xanax ?