Nova: Our Girl With A Mystery Condition | BORN DIFFERENT

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  • Опубліковано 18 січ 2025

КОМЕНТАРІ • 3,2 тис.

  • @ŽỌỌŽṢ̌Z
    @ŽỌỌŽṢ̌Z 5 років тому +3387

    She's adorable and her mom puts her in the cutest outfits.

    • @Jade-5713
      @Jade-5713 5 років тому +8

      Agreed ❤️❤️

    • @jenniferc8213
      @jenniferc8213 5 років тому +5

      @@amandarios448 yes but maybe mixed with something else?????

    • @amandarios448
      @amandarios448 5 років тому +5

      @@jenniferc8213 I would nit know TC is a bit if a spectrum & you definitely have variations & it's possible she has a uncommon variation of TC or a combination of 2 mild conditions affecting similar genes, causing a TC like disorder with facial... Hmm... Deformities (not meant in a bad way, like lack of a nose duct, jaw , ear problems or lack of a windpipe, etc)

    • @lucreciamagdalenecarolisse8728
      @lucreciamagdalenecarolisse8728 5 років тому +3

      she beautiful

    • @lilrocc5664
      @lilrocc5664 4 роки тому +3

      She looks so pretty

  • @brookekennedy8734
    @brookekennedy8734 5 років тому +843

    I love how the dad is so committed to her even when she's not there hes doing sign language, I don't think he even noticed he was doing it
    Edit: the mum does it to I love it, it really shows how much they both love her

    • @email9207
      @email9207 5 років тому +12

      If a hearing person that signs is around deaf people, when the hearing person speaks verbally to someone else also there, its polite for the hearing person to sign along with their voice , so no one is left out basically.

  • @annapalmer8064
    @annapalmer8064 4 роки тому +358

    I see that I’m not the only one who thinks she is the cutest little girl ever! What a beautiful child and family. Nova seems to be very spunky and clever. I’m sure she will do great things in her future.

  • @strangely_amelien
    @strangely_amelien 5 років тому +515

    Protect this child at all costs, she's so pure!

    • @gigisoglamorousipeeglitter7466
      @gigisoglamorousipeeglitter7466 5 років тому +24

      Protect ALL children at all costs. One is no more special than another.

    • @Србомбоница86
      @Србомбоница86 4 роки тому +7

      @@gigisoglamorousipeeglitter7466 yes,all kids should be protected ,but this girl is VERY special

    • @mastroianni864
      @mastroianni864 4 роки тому +3

      @@gigisoglamorousipeeglitter7466 Bravo 👏

  • @namenam3
    @namenam3 5 років тому +2170

    I usually don’t comment on these things, but she is absolutely adorable

  • @lisakaye5763
    @lisakaye5763 4 роки тому +529

    Aww she's a doll! She just looks so cute! She looks like a little faerie princess!

  • @MsCripplex
    @MsCripplex 5 років тому +514

    I am facial disfigured and took a long time for me to accept myself, society can be very cruel and we need to ensure beautiful children like your daughter are treasured and accepted! I am also in a wheelchair and blind, the package we come in does not matter just what we do with it!, I would suggest you keep signing but also get her an iPad with a communications system it can give her a voice and increase her reading and expressing skills, it will also help with communication with children and others who may not sign. She is beautiful home keep up the good work!

    • @etherealone
      @etherealone 5 років тому +27

      Marcy Ryan I'm glad you accept yourself! We are all gods creation and each of us is wonderful and unique and there are no mistakes. That's a good suggestion about the iPad. I would think it world accelerate alot for her and like you said give a voice. Kids are more easily adaptable to technology than adults are. She would pick it up quickly. 😇

    • @ena-1717
      @ena-1717 5 років тому +8

      Stay strong 💓

    • @gothshower6693
      @gothshower6693 5 років тому +14

      Never ever let anyine say that ur not good enough or that ur ugly i may not know what u look like but i know in people who r miss understood in the disabled comunity they r all beautiful on the inside

    • @lalayatem3758
      @lalayatem3758 5 років тому +6

      God Bless you, you're so beautiful and amazing. So admirable truly, keep up the amazing work

    • @haniswahidah1760
      @haniswahidah1760 5 років тому +11

      How u type?
      Just wondering

  • @cyndyedwards9817
    @cyndyedwards9817 4 роки тому +1826

    She is so adorable. Maybe its her eyes but you really are drawn to how pretty she is.

    • @sarahmurphy8030
      @sarahmurphy8030 4 роки тому +24

      Beautiful 💕

    • @paulinerungurua4543
      @paulinerungurua4543 4 роки тому +13

      Yes, she is pretty

    • @cembri6543
      @cembri6543 4 роки тому +9

      Yes her eyes and rhe fact she doesn't speak

    • @absolutelyridiculous6743
      @absolutelyridiculous6743 4 роки тому +19

      She looks like a doll!! Her personality is pretty awesome, too :)

    • @DEATHWISH1991
      @DEATHWISH1991 4 роки тому +13

      It’s definitely her dark wide set eyes (very attractive feature in girls/women) and also her adorable quiet innocent demeanor that makes her very endearing.

  • @ilysm.6642
    @ilysm.6642 4 роки тому +810

    I’m not saying this just to be nice or anything, but honestly, She’s adorable, like, I wanna hug them TwT

    • @bubblesstudios3391
      @bubblesstudios3391 4 роки тому +2

      Same 🥺

    • @sophieamarant1536
      @sophieamarant1536 4 роки тому +4

      I was thinking the same.

    • @melbags9789
      @melbags9789 4 роки тому +5

      Yea, but it was still a nice thing to be & say 👍✌ She is adorable though 😍 Pardon my ignorance, but what does TwT mean?

    • @seli5310
      @seli5310 4 роки тому +7

      Mel Bags TwT is meant to look like a little face crying of joy :)

    • @comebackin30years87
      @comebackin30years87 4 роки тому +1

      We all do ʕ•ᴥ•ʔ ♡´・ᴗ・`♡

  • @uwpride
    @uwpride 5 років тому +406

    Her little style is everything

    • @moladhdodhia1580
      @moladhdodhia1580 5 років тому +16

      I want her little outfit in my size,so cute.

    • @laurac86
      @laurac86 5 років тому +8

      I thought the same thing!!! She dresses better then me lol

  • @glauvie
    @glauvie 5 років тому +424

    This is a child with a fantastic life ahead of her. With parents like that, she can’t fail.

    • @katieoreilly7846
      @katieoreilly7846 5 років тому +3

      💯 right , she has fantastic parents...

    • @kiyoponnn
      @kiyoponnn 5 років тому +1

      @@katieoreilly7846 Yeah, so fantastic of them to give her shitty genes👏

    • @kristinb8172
      @kristinb8172 5 років тому +23

      @@kiyoponnn Because they totally did it on purpose?

    • @jennbeth1
      @jennbeth1 5 років тому +2

      Fantastic life? Not one I would want for myself or anyone I cared about.

    • @maggiebeltaa5421
      @maggiebeltaa5421 4 роки тому +4

      Love & support is so important. They are all lucky to have eachother. To say this child won't struggle is to deny reality but she has some amazing tools that will help her along the way. Sure, we'd all want for her to not have her disability but that's also denying reality. My thoughts & prayers go out to this strong family! Stay safe out here everybody & be good to one another! 👊👊✌

  • @TheGingerNinjaKnitsandJournals
    @TheGingerNinjaKnitsandJournals 3 роки тому +85

    She was born to the perfect parents. What a sweet baby girl.

  • @starlightequestrian6729
    @starlightequestrian6729 4 роки тому +1864

    Aww, she straight up looks like a forest pixie or some other magical character.

    • @veganperson
      @veganperson 4 роки тому +74

      I couldn’t think of the resemblance she was triggering in me, but you put the resemblance into words for me, she’s a pixie!

    • @missylou725
      @missylou725 4 роки тому +8

      Yes!

    • @imsocool5845
      @imsocool5845 4 роки тому +3

      YES

    • @imsocool5845
      @imsocool5845 4 роки тому +22

      @@punsiemckale6690 >:0 a pretty troll then MeAnIe xD

    • @gracebeckish8131
      @gracebeckish8131 4 роки тому +34

      @@punsiemckale6690 That is so mean. She is so inspirational and courageous, yet you criticize and bring her down.

  • @julierk2281
    @julierk2281 5 років тому +364

    4:27 I love how she wants the cameraman to smell it too. She's so cute

    • @shawty2blu372
      @shawty2blu372 5 років тому +16

      I fell in love with her at that point

    • @TheKatKitten
      @TheKatKitten 5 років тому +9

      Shawty Blu me too ! My heart melted

    • @martha-hy7vq
      @martha-hy7vq 5 років тому +2

      AWWWWW!

    • @flj7
      @flj7 5 років тому +2

      So sweet!

  • @mortarandpestletshuajkhibt7791
    @mortarandpestletshuajkhibt7791 4 роки тому +44

    She’s got such a big personality! I love her bangs, her big sun shades and her dancing! So sweet!
    @4:13 She’s waving her magical wand and spreading her pixies of love and peace to the whole wide world.

  • @ginajones1003
    @ginajones1003 5 років тому +184

    Kudos to her parents for being so determined to change people’s view that looks are everything.

  • @maxime6093
    @maxime6093 5 років тому +209

    The way she interacts with her parents shows how smart she is. I have a strong feeling this girl is going to do very remarkable things when she grows up.

  • @lizzymint6705
    @lizzymint6705 4 роки тому +89

    She’s such a beautiful girl. Truly. She shines inside and out 🥰

  • @franbartling
    @franbartling 5 років тому +661

    Beautiful and adorable little girl. Don’t let anyone tell her different. ❤️

    • @grannysb.s.4209
      @grannysb.s.4209 5 років тому +7

      Took the words right out of my mouth.

    • @kalamitygame4195
      @kalamitygame4195 5 років тому +1

      Different!!!😎😎😎😎

    • @malakas211990
      @malakas211990 5 років тому

      But she's different... that's the point. We all are different from ones to another and this is what brought us together

    • @fuhue
      @fuhue 4 роки тому +1

      teamlight XSABER what they meant was “don’t let anyone tell her otherwise” lol

  • @jordanhawley1991
    @jordanhawley1991 5 років тому +292

    She's so cute and her parents are incredible.

  • @msswiper3019
    @msswiper3019 3 роки тому +69

    I was following them on instagram and they dropped off around the time of the pandemic really getting underway. I know they were particularly at risk and fearful because of Novas trach. I think of them often and hope they're all well and safe.

  • @tayor9251
    @tayor9251 5 років тому +280

    No matter her cranial facial differences, she is an adorable sweetheart.

    • @Tetodash
      @Tetodash 5 років тому +2

      T ä y łõ r• • Honestly she looks more like a cute puppy than most other people.

    • @meikaaa9042
      @meikaaa9042 4 роки тому

      @@Tetodash Yay insulting others to compliment someone!! Don't I love human beings who constantly contradict themselves.

    • @Tetodash
      @Tetodash 4 роки тому +1

      meikaaa What? I made this comment 8 months ago and don’t remember it at all but I don’t think it was meant to insult people in anyway.

    • @ManWithTheCow
      @ManWithTheCow 4 роки тому +2

      meikaa it's not an insult...

  • @user-bn6zw3sz6g
    @user-bn6zw3sz6g 5 років тому +377

    She's so precious , :(

  • @TaliaBSJ
    @TaliaBSJ 3 роки тому +13

    Omg Nova is absolutely adorable, spunky, and so full of life! I just adore her! The way she runs around with her little personality, she seems like she’s keeping mom and dad on their toes!

  • @saraieilat1068
    @saraieilat1068 5 років тому +287

    My daughter Alicia is the same way , she’s 21 years old. She’s an angel, just as your Nova is 😊💋💋 God bless them both.

  • @picklerick1403
    @picklerick1403 5 років тому +122

    When she walked to the camera man and made the person sniff I was going to cry, she’s so cute 😍

  • @conniewrightsman9122
    @conniewrightsman9122 4 роки тому +138

    She's a darling little elf and after all she's been thru it's wonderful how joyful she is.

    • @truthhurts63
      @truthhurts63 4 роки тому +11

      She's not an "elf". She's a little girl.

    • @conniewrightsman9122
      @conniewrightsman9122 4 роки тому +7

      @@truthhurts63 Thank you so much for pointing that out...whatever was I thinking? 😊

    • @melbags9789
      @melbags9789 4 роки тому

      Maybe that's what you call adorable little children. A term of endearment perhaps. That's all good and well, but maybe not so much in her case.

    • @banapotato6940
      @banapotato6940 4 роки тому +8

      Elves tend to be either beautiful or cute, what so offensive about that? Besides connie was using a metaphor they didnt really mean she WAS one

    • @melbags9789
      @melbags9789 4 роки тому

      @@banapotato6940 OMGOSH, really? R u sure bout that? Duh- eh!!

  • @xcrystalsunshine
    @xcrystalsunshine 5 років тому +235

    She looks like a little fairy 💜💜

  • @BucketCharlie
    @BucketCharlie 5 років тому +702

    My 2 year-old says "I love that baby! She a princess!"

    • @ummtulip
      @ummtulip 5 років тому +22

      Bucket, Charlie
      Your child is an angel

    • @judeinfante1447
      @judeinfante1447 4 роки тому +9

      She looks like tiny princess lea how adorable

    • @ps6474
      @ps6474 4 роки тому +11

      Bucket, Charlie...Best comment here. That´s a true unconditional comment pure from the heart. Your child is a gem.

    • @BucketCharlie
      @BucketCharlie 4 роки тому +5

      @@ps6474 she's a sweetheart. I've been blessed with 2 perfectly imperfect babies with huge hearts and it makes me proud.

    • @ps6474
      @ps6474 4 роки тому +5

      @@BucketCharlie So glad to hear that, I can only imagine :) Bless them both

  • @vickiemckie5681
    @vickiemckie5681 4 роки тому +42

    Shes so beautiful. She looks like a Precious Moments figurine. Her beauty seems to just flow out of her. Incredible

    • @avag1334
      @avag1334 3 роки тому +1

      She totally does

  • @cloudytea9394
    @cloudytea9394 5 років тому +458

    List of adorable things in life:
    1) Nova.
    End of list.

    • @ink3539
      @ink3539 5 років тому +2

      Totally right

    • @avrilvincent8229
      @avrilvincent8229 5 років тому +2

      Things?

    • @tammyshuttleworth4465
      @tammyshuttleworth4465 5 років тому +1

      Tommy The Great Your comment literally made me cry 😢. What a beautiful thing to say Tommy!! Your a sweetheart ❤️😉 hugs from Canada🇨🇦

    • @ayomiikx
      @ayomiikx 5 років тому

      Fax

    • @retropup
      @retropup 5 років тому

      What about me? :(

  • @xscorpiox4933
    @xscorpiox4933 5 років тому +259

    She looks like a doll so cute!🥺🥺

  • @darkswan80
    @darkswan80 2 роки тому +3

    I mean, can you see how intelligent Nova is? The way she interacts with her parents and with the environment, the way she plays with her toys.... this little girl is smart and with such caring and dedicated parents she'll be able to go very far in her life. Best wishes for your future, beautiful little girl!

  • @BanaNa-db5xf
    @BanaNa-db5xf 5 років тому +262

    So sweet! She looks like the baby from Ice Age!

  • @LatinButterfly
    @LatinButterfly 5 років тому +54

    Omg!!! Nova is so beautiful!!! I love the way her parents dress her. You can feel the love through the screen and thats amazing like Nova.

  • @bethewalt7385
    @bethewalt7385 4 роки тому +67

    I so hope physician's are able to diagnose what's going on for sweet , little Nova so they're able to help her the best and most they can, you seem to be terrific parents Raising a lovely, lively daughter, I wish you 3 the very best now and always ❤ 😊

    • @aandjay
      @aandjay 3 роки тому +1

      I think it's a condition similar to what the beauty blogger shown has they just don't have a name for it or it's very very rare I think in developing countries there are unfortunately many Conditions similar and even worse limited access to health care I'm sure that there will be someone there with the same condition maybe doctors can compare notes and figure it out

    • @JaimeMesChiens
      @JaimeMesChiens 9 місяців тому

      It appears that her problems are structural, and if structure either grows or is corrected, she will be fine.
      She is just totally adorable.

  • @danjarenier
    @danjarenier 5 років тому +448

    She is so cute she looks like boo from Monster Inc.

    • @Hudpix16
      @Hudpix16 5 років тому +10

      She looks more like from the Dark Crystal.

    • @jenniferc8213
      @jenniferc8213 5 років тому +15

      @@Hudpix16 no the baby from ice age

    • @squeakyb.7709
      @squeakyb.7709 5 років тому +1

      Danja Renier not really lol . . .

    • @em3iy
      @em3iy 5 років тому

      Omg ur so right

    • @ashworldtree1000
      @ashworldtree1000 5 років тому +2

      @@Hudpix16 Yes, so beautiful.

  • @Dorlinedainwen
    @Dorlinedainwen 4 роки тому +196

    She looks like those adorable gelflings from dark crystal! So beautiful!

  • @maleahw09
    @maleahw09 4 роки тому +30

    before i clicked on this i said “SHE IS SO ADORABLEEEEEEEEEE”. 🥺🥺she is so precious

  • @cherisewilson6895
    @cherisewilson6895 5 років тому +274

    she’s so pretty ! hope she’ll become successful .. really hope they find her diagnosis 💕💕!

    • @chloelizzz
      @chloelizzz 5 років тому +13

      Cherise Wilson I agree. She looks like the cutest little dolly in the world

    • @the3axolots491
      @the3axolots491 5 років тому +4

      Ik she looks so cute!

  • @sierra-x
    @sierra-x 5 років тому +74

    She’s so cute, I hope she lives a long healthy and happy life!

  • @CharGC123
    @CharGC123 4 роки тому +3

    I love that people now have an opportunity to become familiar with all our unique qualities and differences and eventually learn not to judge or make assumptions. I remember being frightened of physical differences as a child because of the way adults responded. I wish I had this opportunity way back then! Nova is a gorgeous little pixie who is obviously much loved, all the best to her family!

  • @BronzePhinex
    @BronzePhinex 5 років тому +16

    She's so precious at 4:28 when she even offers for the camera operator to smell the "flower"

  • @happinesshappens6631
    @happinesshappens6631 5 років тому +23

    I just love her! It’s like her “ differences” fit her if they makes sense………she’s extraordinarily beautiful!

  • @maryseflore7028
    @maryseflore7028 3 роки тому +7

    Seeing her go off to play with her backpack of "food" just made my day! She's so charming!

  • @jthor3097
    @jthor3097 5 років тому +22

    It seems as though her brain is making up for all of her deformities. She is so smart and sharp. She is so cute that it brought tears to my eyes.
    God bless her and her parents. ❤️

  • @tianncheers
    @tianncheers 4 роки тому +80

    She looks like a little star shining brighter than any other star seen and has an amazingly bright future, bless this small child💖

  • @crystaldixon6787
    @crystaldixon6787 4 роки тому +3

    She is so adorable. I love how she acts around the camera crew and she is going to be the most amazing adult. And the reason for that is she has the best parents in the world. I hope she stays this big-hearted and that people treat her with respect. Thank you for sharing her story She will always be in my thoughts and prayers.

  • @TalkToSamson
    @TalkToSamson 5 років тому +36

    I’m legit in tears over how precious she is. 😭😭

  • @patriciaroysdon9540
    @patriciaroysdon9540 5 років тому +100

    She looks like a magical woodland elf!

    • @leamay5134
      @leamay5134 5 років тому +5

      That's exactly why I clicked the video. I thought, "Is this for real?" She's so cute.

  • @Myserieden
    @Myserieden 4 роки тому +6

    Nova's got the brightest eyes. She's clearly happy and not letting her differences stop her. Hope she has a great future. I can't imagine the worry her parents have for her. I'm sure life will turn out well for her. Sure she looks a little different, but a bright personality goes a long way.

  • @saint7889
    @saint7889 5 років тому +91

    She is just so adorable
    I freaked out when I saw her because she looks like a actual doll

    • @hyenya2958
      @hyenya2958 5 років тому +6

      IKr?? she kinda reminds me of cabbage patch girls. Its adorable

    • @tegansmith9151
      @tegansmith9151 5 років тому +1

      Yes she’s adorable

    • @catherinehermansen4376
      @catherinehermansen4376 5 років тому +4

      She reminds me of Boo in Monsters inc. I can just see her first word being KITTY. ❤❤❤ So, so adorable.

  • @isthatyoursandwich
    @isthatyoursandwich 5 років тому +26

    Nova is so precious and beautiful.. She has amazing parents. . Reach for the stars baby girl

  • @susanmackie9718
    @susanmackie9718 Рік тому +1

    Nova is absolutely gorgeous. What a lovely family too. Wishing you all the very best for the future. xxx🩷🩷🩷🩷

  • @indigol9339
    @indigol9339 5 років тому +106

    She is so beautiful i hope she lives a long healthy life💖😍👍

  • @elliec7677
    @elliec7677 5 років тому +20

    Ahhh 😌 nova is such a little sweetie pie 💕 thank you for sharing your baby girl with us here on UA-cam. She is so blessed to have such wonderful parents 🥰

  • @carlyhenton3195
    @carlyhenton3195 4 роки тому +10

    Even though she has facial differences as her Mom puts it, she’s still so cute!! 😍 She’s still a doll! And she seems to be progressing very finely. I hope the best for her and her family!

  • @EadyBoy
    @EadyBoy 5 років тому +57

    I dont care what anyone say about her shes beautiful and her parents are doi g awesome

  • @Goldenskies98
    @Goldenskies98 5 років тому +20

    She's so cute and interested in the world, and I love how you can so clearly see how much her parents love her and want to find a way for her to experience a good life with her condition

  • @HelinOdison
    @HelinOdison 4 роки тому +6

    My daughter is named Nova as well.. I was so inspired by this beautiful, strong, amazing little girl ❤ I wish her the best ❤

  • @silvia-lv5ip
    @silvia-lv5ip 5 років тому +79

    shes so cute and I'm not just saying that like honestly INLOVE CUTIE

  • @diy_cat9817
    @diy_cat9817 4 роки тому +19

    Wow the doctors did an amazing job with her face, she's mega cute.
    These parents are really great. They aren't just taking care of their daughter, but themselves. Good job.

    • @laurac86
      @laurac86 4 роки тому

      Yes there a lot of parents that forget to take care of themselves when they have any sort of special needs child and it really is so incredibly important. The parents well being directly affects the child so if the parents aren’t taking care of themselves it’s going to affect the child negatively and vice versus

  • @marionarda2790
    @marionarda2790 4 роки тому +21

    When she gave the flower for the cameraman to smell ! So cute

  • @tubetools5627
    @tubetools5627 5 років тому +70

    She's an angel, and to all the thumbs down, grow up or at least go away...

    • @gigisoglamorousipeeglitter7466
      @gigisoglamorousipeeglitter7466 5 років тому +3

      Jean groff Oh, relax! People give a thumbs down for many reasons. Some don't understand how the system works. They'll often hit thumbs down, using this video as an example, when they see a child with a disability. They're giving the disability the thumbs down thinking the child suffers or struggles. So, it doesn't necessarily mean they don't like the video or like this little girl! It's often for a very benign reason.

  • @FS-gq1go
    @FS-gq1go 4 роки тому +192

    I was crying cause she's so cute😗😗😊

    • @kashawanawalton7213
      @kashawanawalton7213 4 роки тому +1

      I was just going to say the same thing she really is beautiful 🥰

    • @83reggieT
      @83reggieT 4 роки тому +3

      Except when she's an adult b what will you say then. Strange that most of the UA-cam videos with people with unique disabilities and deformities always tend to be young children.

  • @1231oreo
    @1231oreo 4 роки тому +4

    Oh my goodness, she is such a cutie. such great, loving parents. I love how she wanted the camera person to "smell" her toy also. Such a sweetheart. I pray she'll have a long healthy life ahead.

  • @sandyfaithbringer6072
    @sandyfaithbringer6072 5 років тому +51

    Such a cutie and so blessed to have wonderful parents like you.

  • @Maree301
    @Maree301 5 років тому +18

    She’s so beautiful. She’s so unique in her own way , I just love it ❤️

  • @caratsuji
    @caratsuji 4 роки тому +10

    When she went to hug her parents one by one.. my heart ♥️♥️

  • @winstonpoindexter8401
    @winstonpoindexter8401 4 роки тому +52

    Awe my god when you put her backpack on 😢 what a cutie 😭

  • @addisonn9162
    @addisonn9162 5 років тому +63

    How in the world can one kid be so heckin cute

    • @vp363
      @vp363 5 років тому +10

      Lavender Weeds ... because when God was giving out beautiful, He spilled the whole bag on her!!!! 😍😭 simply amazing 😉

    • @maggiebeltaa5421
      @maggiebeltaa5421 4 роки тому +2

      @@vp363 That's beautifully put! Stay safe everybody! 👊✌

  • @martahajduk
    @martahajduk 3 роки тому +3

    I love how the guy is turning his whole body to his partner. It's pretty small thing but feels like he loves her very much. I hope Nova will be surrounded by loving and supportive people. She's so precious

  • @Hana-sc9qx
    @Hana-sc9qx 5 років тому +41

    I'm physically disabled took first I1 years to get a diagnosis for my genetic disorder. Theres that many genetic & non genetic disorders that have so many similar symptoms especially if they are the rare type it is harder to get diagnosed.
    I hope you finally get answers. Luckily research & medicine are more advanced these days then when I was younger.
    Which I am happy about because these days more people are getting diagnosed with my genetic disorder which hopefully maybe one day if funding goes into the research find a cure. But you could say that about every rare illness.
    I hope she realizes she can accomplish anything in life no matter what is wrong with you.
    I've got 16 conditions altogether & since my genetic condition got worse I felt like giving up especially that I could no longer do my dream job. I have no bladder nor bowel control, I am blind in one eye, I have to use a wheelchair, only have 1 arm to use, paralysis etc could go on... i really felt like giving up.
    I started to notice all sorts of people around me with different disabilities doing all sorts with their life. Took a while but i had the courage to throw myself out there.
    I travel, I've learnt how to drive with one arm, i work, I found love who has been with me every step of the way for the last 10 years (even though he knows the future is uncertain).
    Never let anyone tell you cant do something. Prove everyone wrong.
    I really hope she has a long happy life. She is lucky to have such a loving & supportive family. They are lucky to have her also

    • @patriciajosiah977
      @patriciajosiah977 5 років тому

      God you are wonderful, and fearfully made in the image of God. You are indeed Prefect. Never give up. God bless you and loves you alot.

    • @umhi6197
      @umhi6197 5 років тому +1

      God bless you!

    • @mariasofola1878
      @mariasofola1878 5 років тому

      Warrior ❤️

  • @J4rii
    @J4rii 4 роки тому +68

    She’s so cute, and when she put those sunglasses on 🥺🥺🥺

  • @Ali-is2in
    @Ali-is2in 4 роки тому +26

    She is the cutest magical thing I’ve ever seen ❤️

  • @kei.pressure
    @kei.pressure 5 років тому +36

    She is soooo adorable... I hope she’s able to get a diagnosis soon ❤️

  • @lorrainetipping700
    @lorrainetipping700 4 роки тому +18

    She is so cute well done to her mum and dad for trying to change people's attitudes to what is normal love to you all

  • @ellenj.miller8694
    @ellenj.miller8694 4 роки тому +1

    What a loving family, that encourages their little girl so beautifully. I am in awe of their emotional support and strength! Thank you for this wonderful video.

  • @JamesandHarry
    @JamesandHarry 4 роки тому +64

    I think she’s cute. She looks like a doll 💗

  • @noneya2083
    @noneya2083 4 роки тому +15

    She is so precious! Oh my ❤️. When she was dancing! So much cuteness in a tiny sweet little girl. God bless her🙏🏼❤️🌷

  • @Diwondermum
    @Diwondermum 4 роки тому +2

    I absolutely admire Novas parents. They are truly inspirational! Nova is going to have an awesome life!
    Best wishes for you all. I know Nova is going to be a star! Big hugs!

  • @mpumephakathi6200
    @mpumephakathi6200 5 років тому +14

    When she was dancing and rocking them shades❤️❤️❤️... She's so adorable.

  • @queensalvatore6811
    @queensalvatore6811 5 років тому +51

    She’s so precious look at her little vans 🥺

  • @sean28061
    @sean28061 3 роки тому +1

    I really want to hug that girl!! She looks fine to me! Don't know why anyone would want to bully this girl when she's older

  • @alliefails9402
    @alliefails9402 4 роки тому +18

    a 1st grader in my school has this and he acts so normal and he's so sweet

  • @cherylsanford882
    @cherylsanford882 5 років тому +31

    what a beautiful babygirl a gift from heaven she is indeed

  • @monabrown5373
    @monabrown5373 3 роки тому +2

    Nova is the most beautiful child, she just makes you smile, I just want to hug her , you have such a special gift in that sweet little girl 💜💜💜

  • @KaeTalksaLot
    @KaeTalksaLot 5 років тому +16

    we must protect this child at all costs. She's too amazing

    • @gigisoglamorousipeeglitter7466
      @gigisoglamorousipeeglitter7466 5 років тому

      Kae is Dumb You sound like a cult leader! Good grief.
      Her mom and dad are quite capable of protecting their child, I'm most sure. I doubt they need David Koresh infiltrating their lives.
      By the way,
      All children deserve the same kind of protection. One is no more worthy than another.

  • @TrulyNaturallyCoiled
    @TrulyNaturallyCoiled 5 років тому +167

    She kind of looks like she might have Treacher-Collins. I hope y'all get a diagnosis soon! She is beautiful

    • @ticrific
      @ticrific 5 років тому +33

      My Thrifty Glam Life it does look very similar, but they said they had genetic tests come out inconclusive. She would probably be diagnosed by now if it were treacher Collins

    • @amynewberg
      @amynewberg 5 років тому +6

      It looks more severe than that.

    • @Squasheatspie
      @Squasheatspie 5 років тому +14

      With the hearing loss, palette issues, and the recessed jaw it seems ALOT like Treacher Collins

    • @MelodySharp.
      @MelodySharp. 5 років тому +20

      As someone with Treacher Collins. This is definitely something different. Though I do admit, it does look very similar.

    • @crystalortega2156
      @crystalortega2156 5 років тому +14

      All I can tell the parents to do is pray pray pray. I prayed for my daughter’s diagnosis for over 3 1/2 years. So many doctors told me all of her problems was “just because”. She ended up having 17q12 deletion syndrome. I was so happy to finally have the answer I was looking for. The neurologist was like I have bad news for you, and I’m like this is great news. I finally have answers. I pray that they get their hands on the right doctors to finally get an answer. I can so relate to these parents because my child was diagnosed as being deaf, nonverbal, and in a wheelchair. So when she took her first steps and started talking it was so overwhelming. Now with multiple surgeries and procedures. She can hear, even though she does have some hearing loss, she can walk, talk, and so much more. ❤️❤️ hang in there the answers will come!

  • @DiddytheDiaperSniper
    @DiddytheDiaperSniper 4 роки тому +19

    Man I’m so happy my daughter was born healthy. Even though this little girl is super adorable and happy my heart hurts for her.

  • @chaselome5885
    @chaselome5885 5 років тому +30

    Awww she’s soooooo cute . What a lovely family

  • @Enewt856
    @Enewt856 5 років тому +66

    She is the cutest little girl.

  • @jennifermorley6487
    @jennifermorley6487 4 роки тому

    Nova is absolutely adorable and her personality just shines through her. You can tell how much she loves life.
    You are amazing parents and Nova is blessed to have you walking this journey with her and advocating for her along the way.
    God bless you all!

  • @nickierainbow
    @nickierainbow 5 років тому +16

    She has amazimg loving parents that take the best care of her. She’s a very lucky baby girl!

  • @heidihokes7789
    @heidihokes7789 5 років тому +6

    Oh my goodness, she is absolutely adorable!!!! I wish her all of the blessings of life!!

  • @yahbina331
    @yahbina331 3 роки тому

    Your family is OUTSTANDING !!! Nova is very much like other children. She is reaching for the world. She is a very loved child and blessed to have such awesome wonderful parents. Keep up the good work guys.

  • @madaladasen
    @madaladasen 5 років тому +19

    My heart is EXPLODING❤️ she is so beautiful and those eyes of hers are just😍😍😍

  • @FlyWithTay68
    @FlyWithTay68 5 років тому +80

    What kind of terrible person would dislike this video?!

    • @kristinowens899
      @kristinowens899 5 років тому

      They just might not like the situation. That she has an undiagnosed condition.

    • @FlyWithTay68
      @FlyWithTay68 5 років тому +7

      So? It isnt there fault they shouldnt dislike the video.

    • @alezandradavila2581
      @alezandradavila2581 5 років тому

      Taylor Goodwin someone who is miserable !!!

    • @FlyWithTay68
      @FlyWithTay68 5 років тому

      Alezandera Davila that still doesn't answer the question of why they might dislike it?

    • @jenniferc8213
      @jenniferc8213 5 років тому

      @@FlyWithTay68 ummm u make no sense rn

  • @nathaliemay6937
    @nathaliemay6937 4 роки тому +8

    Nova is sooooo beautiful.. I wish her tons of blessing to a happy life ❤️

  • @isabelgrace711
    @isabelgrace711 5 років тому +78

    She’s soooooo CUTE i wish I was her friend