Teenager With Butterfly Skin Inspires Others | BORN DIFFERENT

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  • Опубліковано 22 лис 2024

КОМЕНТАРІ • 4,8 тис.

  • @xDigitalMonster
    @xDigitalMonster 6 років тому +5581

    She’s a damn good nurse and he’s a strong young man.

    • @reeses5212
      @reeses5212 6 років тому +13

      Noones ever been more right

    • @Pseudochick01
      @Pseudochick01 6 років тому +15

      xDigitalMonster You're so damn right! 💪🏻👍🏻

    • @dhamani
      @dhamani 6 років тому +6

      Ikr , I though he died , I remember when he was 11

    • @rntn7148
      @rntn7148 6 років тому +21

      I’m a potato
      I thought he passed away also.
      Edit: I was wrong. Just googled and the family is being given a new house this week!

    • @sopranomegs
      @sopranomegs 6 років тому +13

      Rn Tn You’re probably thinking of Jonathan Pitre from Ontario, Canada. He passed away of EB this past April.

  • @Christina-bm7np
    @Christina-bm7np 5 років тому +4496

    No child deserves to go through this. It breaks my heart. Bless this whole family, including the nurse.

    • @yetiboi8032
      @yetiboi8032 5 років тому +59

      No child? Not even any living being, not only child.

    • @EvolvedJewel
      @EvolvedJewel 5 років тому +35

      Your imaginary god sure blessed that boy all right.

    • @theasianpianoboy6750
      @theasianpianoboy6750 5 років тому +4

      *Looks at Mao Zedong as kid*

    • @vonschezar3356
      @vonschezar3356 5 років тому +8

      @@EvolvedJewel wth.

    • @egyokult
      @egyokult 5 років тому +2

      So true

  • @hal3yamazing
    @hal3yamazing 6 років тому +3403

    That nurse cried, she showed she cared for that young man on a level that not every nurse cares for their patient. She is what every nurse should strive to be as.

    • @cuppyrobertson7164
      @cuppyrobertson7164 6 років тому +29

      I think she's doing a good job but she needs to put up her hair. That very germy.

    • @madisonnorthrop52
      @madisonnorthrop52 6 років тому +10

      Cuppy Robertson have you ever worked in an ER? A lot of nurses wear their hair down.

    • @cuppyrobertson7164
      @cuppyrobertson7164 6 років тому +2

      @@madisonnorthrop52 What qualifies you to ask me?

    • @justme6781
      @justme6781 6 років тому +23

      Not really. To be a good nurse u need to be strong and not to be emotional too much:/

    • @floatingchimney
      @floatingchimney 6 років тому +22

      No, that's absolutely WRONG thing to strive to be. It's pretty obvious you're not a nurse or don't work in a medical field, or most most importantly - you don't work at all.
      A nurse is a professional, she has a job to do and needs to do it on a professional level, with precision and attentiveness. Crying and being emotional is not what ANY medical worker should strive to be. Her job is to do her job first and foremost.

  • @dovahkiink.7870
    @dovahkiink.7870 5 років тому +848

    I got in shock when I saw him with the bandages off, I cannot even imagine how painful having those wounds is, I wish all the best for him.

    • @arianacabrera9443
      @arianacabrera9443 4 роки тому +8

      Dovahkiin K. I think they compared it to like a burn dont know the degree but could you imagine?

    • @MrKrabs-zp7on
      @MrKrabs-zp7on 4 роки тому +2

      @@arianacabrera9443 They compared it to a 3rd degree burn i think, i'm a but late but yee

    • @andressaloiola8669
      @andressaloiola8669 3 роки тому +7

      Him in the shower.... I just broke down crying inside, my heart is in pieces

    • @andressaloiola8669
      @andressaloiola8669 3 роки тому +10

      @@MrKrabs-zp7on man... when your body is covered in 3rd degree burns the doctors put you in an induced coma because the pain is just unbearable... I can’t even imagine how he goes through this everyday

    • @Србомбоница86
      @Србомбоница86 3 роки тому +1

      @@andressaloiola8669 he is on strongest opiates Dilaudid ,but still it's not enough

  • @cassandraalaena1543
    @cassandraalaena1543 6 років тому +2116

    i’m not normally someone who finds these videos hard to watch but seeing him take his bath and the amount of dread and pain he was feeling was so hard to watch

    • @allisonrenae9615
      @allisonrenae9615 6 років тому +30

      it's just sad because you think about all the things he misses out on.

    • @adelina07
      @adelina07 6 років тому +4

      cassandra alaena don’t worry, he is ok, I really do know that

    • @nadaw1509
      @nadaw1509 6 років тому +9

      It's hard for me to watch kids suffer

    • @nadaw1509
      @nadaw1509 6 років тому +4

      Omg that looks so so painful I can't look at the blood skin and skinny arms and legs

    • @Givwthyrhrt
      @Givwthyrhrt 6 років тому +4

      Yes, it was very hard to watch. Poor sweet boy. God bless him.

  • @cccccccc549
    @cccccccc549 6 років тому +1781

    So sad....what an intelligent and well spoken young man

  • @marjoriesyoutube4530
    @marjoriesyoutube4530 6 років тому +4856

    My heart aches , I had to stop watching , I’m a nurse I know how much pain he is . God bless him , but he such a trooper , I pray they find a cure for him .

    • @korinantoinette8644
      @korinantoinette8644 6 років тому +10

      That is nice

    • @aya2722
      @aya2722 6 років тому +23

      Is there no cure for that disease till now? O my god

    • @jessw.6250
      @jessw.6250 6 років тому +8

      Marjorie’s UA-cam God! I feel the same & will pray the same 🙏

    • @adelina07
      @adelina07 6 років тому +6

      Marjorie’s UA-cam Everything is going to be fine

    • @rntn7148
      @rntn7148 6 років тому +10

      Carolyn Crouch
      This isn’t Jonathan Pitre. This Jonathan is still alive and their family is being given a new house this week. I was confused also.

  • @pkx5897
    @pkx5897 4 роки тому +163

    I can honestly say this boy has changed my views on life and showed me that everyone is going through something, but there’s people who are going though something 100x worse. John is absolutely beautiful and his outlooks on life is what keeps me going every single day. I love how kind hearted and passionate he is as well as having the sense of humor that he does. Everyone needs to see these videos of this amazing kid and how inspiring he is, especially these days in society!!!

    • @CupCake-sc9eb
      @CupCake-sc9eb 2 роки тому +5

      I'v got tinitus like 2 monhts ago and feeling suicidal and now i am a bit ashamed. Seeing that John Hudson can wake up every day with this kind of pain and still have a smile on his face was like a wake up call for me.

  • @memequeen9091
    @memequeen9091 6 років тому +585

    This boy is the definition of strength and courage.

    • @poisonrain7462
      @poisonrain7462 6 років тому

      ikr he has had that for 15 years!

    • @ashblade8685
      @ashblade8685 3 роки тому

      Yeah! He knows that it painful but he lso knows that he needs to be strong and work through this, I could never be a brave as him ❤️❤️

  • @vayneaurelius5238
    @vayneaurelius5238 6 років тому +1660

    95% of his body covered with open wounds?? i cant imagine everyday feel pain... this is so heavy

    • @iamkelisb
      @iamkelisb 6 років тому +5

      That's so true

    • @hiphopdagame
      @hiphopdagame 6 років тому +41

      i've had 80% of my body covered with open wounds before coz of a bad Eczema flare up... trust me, you just gotta be strong and have faith and pray for better days...

    • @iamkelisb
      @iamkelisb 6 років тому +40

      @ItzNuttellqKinq you need help

    • @hiphopdagame
      @hiphopdagame 6 років тому +9

      @@iamkelisb you know what's funny and truthful, someone like this teenager that has gone through ups and downs via his condition(or anything in life), will develop into a more compassionate, caring and understanding individual compared to peeps that took things(life especially) for granted and doesn't really react well to daily stresses.... i'm just telling it as it is as i don't think i'll be the individual that i am today without experiencing ups and downs with life and with having this skin condition...

    • @aaGirlification
      @aaGirlification 6 років тому +1

      exactly wat i was thinking n felt.

  • @gracieshepardtothemax1743
    @gracieshepardtothemax1743 6 років тому +1637

    John Hudson I wish I could take away all your pain. I wish you didn’t have to suffer. I’m glad you have a support system and as family who loves you! Love from Canada 🇨🇦

  • @her2607
    @her2607 2 роки тому +77

    when he apologised for not being able to get deeper into the water my heart sunk, god bless him and his family

    • @marilynwillett804
      @marilynwillett804 Рік тому

      God not god.

    • @TheTrueLadybug
      @TheTrueLadybug 7 місяців тому +5

      @@marilynwillett804hush

    • @jennabateman1500
      @jennabateman1500 6 місяців тому

      @@marilynwillett804 the fact that that’s what you care about that the g in god is capitalized….Your god gave this kid this life. He’s disgusting if he’s real

  • @miracole6469
    @miracole6469 5 років тому +904

    the fact that he's wearing avengers T-shirt is adorable. ure a strong fighter john. ure the real life hero

    • @dominickbanks3633
      @dominickbanks3633 5 років тому +18

      he loves superheroes, it’s a good thing. He love superheroes because it makes him feel courageous, and fight at the pain he goes through. He saves the day just like superman. He saves the world. I love him.

    • @hazmalfor162
      @hazmalfor162 5 років тому

      700 like

  • @raynekraven
    @raynekraven 5 років тому +907

    after watching this who can ever complain about a paper cut again?
    this kid has courage, I wouldn't be able to go through this

    • @Septembersend34
      @Septembersend34 5 років тому +25

      Because everyone's feelings are valid, including people who have paper cuts

    • @raynekraven
      @raynekraven 5 років тому +6

      @@Septembersend34 seriously? a paper cut is NOTHING compared to what this kid has to go through. paper cuts heal.

    • @Septembersend34
      @Septembersend34 5 років тому +20

      @@raynekraven I know. His condition is horrible and I'd do anything to change it, but we can't. I'm still gonna complain about a paper cut though honestly just because usually it happens in class and I'm so bored I could eat my own eyeballs and I could laugh over dropping a textbook

    • @skeetskeeh7070
      @skeetskeeh7070 5 років тому +4

      You would be able to if you were forced into it since birth

    • @raynekraven
      @raynekraven 5 років тому +1

      @@skeetskeeh7070 maybe maybe not it depends on one's personnality
      one headache knocks me down, not out, but almost

  • @Laura-ym2gs
    @Laura-ym2gs 5 років тому +1148

    That looks so damn painful. :(((

    • @User556q
      @User556q 5 років тому +38

      imagine living like this eryday , for the rest for your life , this is horrible

    • @muffinmonster2634
      @muffinmonster2634 5 років тому +4

      I bet it is

    • @vamppfreak
      @vamppfreak 5 років тому +5

      It definitely is

  • @karlajacome2802
    @karlajacome2802 5 років тому +264

    I’m crying 😭 This story broke my heart he’s warrior 🥺😍

  • @BicthBoy-r5q
    @BicthBoy-r5q 5 років тому +1152

    This is like being skinned alive, daily.
    Which, fun fact, is supposed to be one of the most painful things to experience. One of the most painful ways to die.
    So the fact that he’s still here, living, making the most of life and being so positive, is really great.

    • @Bizartspirit
      @Bizartspirit 5 років тому +7

      I though about something... What if this is hell? It's just an idea, but maybe in an other life he skinned someone?
      Maybe after this life his soul will be completely cleaned from all sins and in the next life he will be in heaven, in a lucky life?

    • @Arbitrary_Moniker
      @Arbitrary_Moniker 5 років тому +47

      @@Bizartspirit Delusional. An attempt to console yourself because reality is hard to accept. Not blaming you though. Humans have done it for millenia, and will continue to. Still, that doesn't add validity to these ideas.

    • @EvolvedJewel
      @EvolvedJewel 5 років тому +16

      @@Arbitrary_Moniker You are intellectually superior to all of these people, I've read your posts. Know that. And I totally agree with you on all points. They cannot see the contradiction of a benevolent deity who imposes suffering such as this on a child. They lack critical thought, education, and are brainwashed.

    • @dogewoge6580
      @dogewoge6580 5 років тому +11

      @@Bizartspirit You are the definition of delusional. Don't mix your made up beliefs with reality.

    • @katie_jeanes
      @katie_jeanes 5 років тому +16

      Doge Woge Who pissed in your cereal 🥣? Lol.. Leave him be, he’s aloud to believe in a higher power. Besides, he said it was just a thought.. Quit being a bully..lol

  • @Starqhi
    @Starqhi 5 років тому +809

    I feel so sorry for him 😭😭 NO ONE DESERVES TO GO THROUGH THIS PAIN 😭😭😭

  • @kathleengoss5974
    @kathleengoss5974 6 років тому +386

    He lives pretty close to me. I remember seeing his story on the news and having it really touch me. He just got a new house that was donated to him with no mortgage and it’s accessible to him and makes it easier to function. He’s such a sweet kid and I hope he has an amazing life

    • @tamikabarr6732
      @tamikabarr6732 6 років тому +5

      😊 awww good for him 👏

    • @liIdecky
      @liIdecky 5 років тому +1

      Did you ever talk to him?

    • @kathleengoss5974
      @kathleengoss5974 5 років тому +1

      Eragon Kvothe no, he loves in queens I think (?) And I live in upper westchester

    • @famousmidnight
      @famousmidnight 5 років тому

      That's amazing!!

  • @twocrazyboys4367
    @twocrazyboys4367 4 роки тому +240

    This is horrible can’t imagine that poor boys pain he is literally in pain every minute of his life 🙁

  • @Angel-pt2cf
    @Angel-pt2cf 6 років тому +650

    Theres no words to describe how sad is to see this. 😔

    • @adelina07
      @adelina07 6 років тому +3

      Angel it’s ok, I know that he is ok and his father is happy that he is a strong boy... (I really do know)

    • @rashadep9758
      @rashadep9758 6 років тому +1

      Bravery takes over sadness and he is for sure a brave young man

    • @robertleveen4380
      @robertleveen4380 6 років тому +1

      He is a really strong boy

  • @raforsomething
    @raforsomething 6 років тому +329

    I can't believe kids like this still find the courage to come in front of a camera a do what they do. Keep going and stay *STRONG*
    Edit: Also the parents and others are a key factor in this as well, so props to his mom, dad, and others who help.

    • @priscillaadomabadu2154
      @priscillaadomabadu2154 6 років тому +2

      SSJB his parents are really strong I keep pausing it cos it’s so hard to see the pain he has to go through just to take bath it’s such an ordeal, he’s very inspirational

  • @Mxer724
    @Mxer724 5 років тому +1007

    Wish i could give this young man a day without pain..

    • @user-bt7rz9pd2h
      @user-bt7rz9pd2h 5 років тому +24

      Mary Oden Why’d you think that was funny?

    • @1NewsNewZealand
      @1NewsNewZealand 5 років тому +1

      Stormi Webster it was

    • @SakMeibals
      @SakMeibals 5 років тому

      @@user-bt7rz9pd2h yes it was

    • @lenadengel2145
      @lenadengel2145 5 років тому +20

      @@user-bt7rz9pd2h i agree, this isn't funny at all. seeing in how much pain he is everyday, not beeing able to live life like everybody else is just sad and heartbreaking. and then making such stupid jokes is really not funny

    • @pandachan3223
      @pandachan3223 5 років тому +11

      @@lenadengel2145 these dumbasses live in another reality, to them stuff like this is nothing but a joke, other people's suffering means nothing to them, and it's sick

  • @JDRodriguez9
    @JDRodriguez9 4 роки тому +76

    I want to meet this kid and tell him how much he’s inspired me

  • @kingofmeatballs763
    @kingofmeatballs763 5 років тому +1511

    *I wanna be this guy's best friend and help him....I wish I could be there go hang out with him after he takes a bath so he isn't lonely....*

    • @syafirafa
      @syafirafa 5 років тому +14

      I wanna do it too

    • @orangeyes9888
      @orangeyes9888 5 років тому +15

      I feel the same way 100%

    • @elmoiscursed1692
      @elmoiscursed1692 5 років тому +8

      Me too THERE SHOULD BE A CURE FOR EB

    • @xxfarawolfxx
      @xxfarawolfxx 5 років тому +4

      King of Meatballs same I would be there to help him through the pain

    • @petitecontrebassiste
      @petitecontrebassiste 5 років тому +6

      I know I wish there were people who live close to him that would come over and just sit with him after baths and distract him. really sucks =(

  • @makkenziebeer214
    @makkenziebeer214 5 років тому +463

    he’s so strong. every day he struggles with physical pain and it hurts to live. but he carries on.
    i am a healthy limber person, and i can barely get through one day without wanting to die. i wish i was as strong as him. you’re in my prayers, u and ur family. 💗

    • @MadeleineHenderson
      @MadeleineHenderson 5 років тому +16

      Makkenzie you may be healthy physically but obviously not mentally and that doesn't make you less strong than someone with a physical condition lovely. He is an amazing strong kid, but you must be pretty strong too to make it to the end of each day if you are feeling so bad. I really hope you have a good support network xx

    • @efoxkitsune9493
      @efoxkitsune9493 5 років тому +12

      Hi, the fact you made it this far and are still here tells me you yourself are stronger than you know. I'm sorry you feel this way. You know, just because mental illness and suffering is not physically visible doesn't mean it's any easier to deal with - or that you're any less for struggling. I know that sometimes even getting out of bed is an impossible challenge. Some days it may even be too hard to overcome. But so far you've made it through 100 % of your days, that's quite an impressive score.
      I hope things get better soon. Hang in there. And remember that asking for help is never a weakness.
      Wishing you all the best and sending lots of love!

    • @kimkartrashianstopmakingst9060
      @kimkartrashianstopmakingst9060 5 років тому +9

      I know how you feel..and you ARE a strong person to keep going. I find what helps me is doing small things that make me happy....especially being outside grounds me, or being around my pets. They are very therapeutic for me. I also think watching uploads like these make me appreciate what I DO have even more. You are important and you do matter.
      I have struggled with depression since I was a kid. It never gets easier or really subsides, but learning small ways to take care of it make all the difference. I appreciate your comment and your honesty 💜

    • @kimkartrashianstopmakingst9060
      @kimkartrashianstopmakingst9060 5 років тому +1

      Reem Hassan very nicely said and true

    • @efoxkitsune9493
      @efoxkitsune9493 5 років тому

      Reem Hassan (idk where your comment went, but) I love what you said. "The key to happiness is letting each situation be what it is instead of what you think it should be-Mandy Hale" - that's something I'm gonna need to keep in mind myself.. :)

  • @gothicRomantic
    @gothicRomantic 5 років тому +553

    meanwhile on another part of the world, there are people who dont go bath in weekend, people who yelling back to their mom when she asked em to go to bath.
    be grateful to ur life if u watching this. and keep fighting john!

  • @rorus9530
    @rorus9530 5 років тому +70

    he’s such an intelligent, brave boy. Life can be so unfair.

    • @m3kbeatz
      @m3kbeatz 4 місяці тому +1

      Life is the worst thing ever existed cos it is not fair. I am disabled because others did to me and no justice in this world.

  • @pelumigbadamosi6819
    @pelumigbadamosi6819 6 років тому +365

    Who else was feeling bad as you were watching the shower part of the video,I definitely felt his pain

    • @FlipAndLand
      @FlipAndLand 5 років тому +4

      Yeah. You know exactly how it feels. Idiot.

    • @Idk-kg8gr
      @Idk-kg8gr 5 років тому +7

      @@FlipAndLand Not to be rude or anything, but I think what this person means, is by seeing this they can put themselves in that situation by using their imagination. Sometimes you don't really have to have the condition to able to imagine what it's like. So by calling this person an idiot isn't really the best choice of wording, and your comment at all isn't needed as well.

    • @alix6002
      @alix6002 5 років тому

      pelumi gbadamosi .... The thing is your pfp but no hate but just it’s distracting me XD

    • @Ash17030
      @Ash17030 5 років тому

      pelumi gbadamosi I almost cried

    • @doniay.210
      @doniay.210 5 років тому

      Yeah..
      Not to be rude but its a bath not a shower.

  • @jenniferhalf1650
    @jenniferhalf1650 6 років тому +476

    Such an incredible boy....but I'm not going to lie this truly breaks my heart....

  • @storyofmylife1550
    @storyofmylife1550 6 років тому +547

    Sorry sweetheart..can't stop crying...lord please do this family a miracle and heal their son....pls lord...this is too much

    • @savagefam5352
      @savagefam5352 6 років тому +3

      lana Ibin amen 🙏🏼

    • @storyofmylife1550
      @storyofmylife1550 6 років тому +3

      @@savagefam5352 yes.. God does wonders.. This sweetheart deserves one.. He is in pain..I just can't stop crying ..

    • @herutababalagasa1599
      @herutababalagasa1599 6 років тому +3

      Amen

    • @uhnothing1391
      @uhnothing1391 6 років тому +29

      if god exists then why did he give this kid this disease in the first place

    • @haithamlwar9781
      @haithamlwar9781 6 років тому +4

      @@uhnothing1391 if god doesnt exist there will be no life , god who create him and god who will give him wonderfull heaven

  • @brennangappy8360
    @brennangappy8360 5 років тому +36

    Also, the dad making the ice cream float just melted my heart. Such a supportive group he had around him. ♥️

    • @shinobiverse3068
      @shinobiverse3068 3 роки тому +2

      That same dad is my science teacher, I never knew why he always acted so nice and why he just looked burnt out. Now I know.

  • @bethrunkle76
    @bethrunkle76 5 років тому +358

    337 heartless people disliked this video. How could even one person dislike it. I live with pain every day but i can not even imagine what this brave boy goes thru.

    • @kenzie9231
      @kenzie9231 5 років тому +10

      It is probably because they don't like blood

    • @leahdavis8023
      @leahdavis8023 5 років тому +8

      It’s not them trying to be mean its because they’re sad for them

    • @ciennachelsie
      @ciennachelsie 5 років тому +8

      They were probably crying and their tear touched the dislike button

    • @janetmorehouse4665
      @janetmorehouse4665 5 років тому +9

      For some people, I think they pushed the dislike button because it was just so sad/hard to watch. It’s probably a mistake to assume they meant anything wrong by it. Honestly, I can’t click on the like button because my heart hurts for this beautiful boy and all involved. There is nothing to like.

    • @thisissarah815
      @thisissarah815 5 років тому +4

      I think maybe they disliked the video because they hate seeing such a young, beautiful soul suffering

  • @aririnrin2571
    @aririnrin2571 6 років тому +817

    There's nobody who could know or imagine his pain. It's terrible....He must be scared and desperated, because he's the only one who feel the pain.......It's hard to say, but I wouldn't let anybody to live such a painful life,...i feel just so sorry.

    • @aririnrin2571
      @aririnrin2571 6 років тому +7

      @Bookshelf That's true that there are people who suffer from the same condition. However, the pain is not the same, you can't say that they know each other's pain, because each of them is different people with different mind and body. Maybe, they can imagine each other's pain more than someybody who has no such condition, but they will never know each other's pain.

    • @skarlettcage3922
      @skarlettcage3922 6 років тому +10

      @Bookshelf They Don't feel the same pain. There are many different kinds of EB. I have EB but mine isn't as severe. I don't feel as much pain as he does

    • @skarlettcage3922
      @skarlettcage3922 6 років тому +5

      @Bookshelf You were literally wrong. I support educating the underprivileged

    • @skarlettcage3922
      @skarlettcage3922 6 років тому +5

      @Bookshelf You commented on a public domain. It doesn't matter if you were talking to me or not

    • @troxycat
      @troxycat 5 років тому +2

      @@skarlettcage3922 I have EB too...I very rarely meet anyone else with it. Mine is nowhere near as severe either, but it definitely causes problems.

  • @nettiewatkins6545
    @nettiewatkins6545 5 років тому +214

    Living with that kind of excruciating pain is not something others can understand who have not experienced pain at the same level that he does. Compassion and empathy are so important.

    • @dalejoseph9423
      @dalejoseph9423 5 років тому

      @Mary Oden what is wrong with you!! I don't see why you would say that!!!

    • @dalejoseph9423
      @dalejoseph9423 5 років тому

      @Mary Oden This is not a joke

    • @lochbessmonsta5348
      @lochbessmonsta5348 5 років тому

      @Mary Oden thats....a unique thing to say about his situation. Yes he needs pain medication and I'm sure he appreciates any means of escape from his pain but somehow I feel like your comment was a jab at him which is pretty insensitive. That kid is stronger than most and I adore him for his courage.

    • @Србомбоница86
      @Србомбоница86 4 роки тому

      @Mary O'Bear true but these types of wounds not even morphine can help entirely

  • @exclusive._dg9870
    @exclusive._dg9870 5 років тому +47

    THIS MADE ME CRYY 😭😢😞😪😩😫🤧☹️😔😢😢😭😭GOD BLESS THEM 🙏🏽🙏🏽

  • @mikaellaroberts6499
    @mikaellaroberts6499 5 років тому +603

    I pray he gets that special bath tub 😢🙏🏼

    • @kylie.jjohnson
      @kylie.jjohnson 5 років тому +38

      He got the bath! That is what the nurse was bathing him in.

    • @vanessastarks6486
      @vanessastarks6486 5 років тому +79

      They actually ended up getting a brand new house built for them for free! The kid was sooooo grateful for it that he cried! It was truly AMAZING!!!

    • @jaredsantos6457
      @jaredsantos6457 5 років тому +4

      @@vanessastarks6486 I swear he died last year

    • @MrandMrsPaper
      @MrandMrsPaper 5 років тому +2

      Instead of praying, donate!

    • @mikaellaroberts6499
      @mikaellaroberts6499 5 років тому +11

      MrandMrsPaper I pray because I do not have the financial means myself to donate. Trust me, I would be homeless if I donated to every person my heart felt for. 😕

  • @beear2363
    @beear2363 5 років тому +743

    The people who disliked were crying too much and just missed the like button

    • @yazzyxx
      @yazzyxx 5 років тому +27

      this actually happened l, and then I looked and I saw that I pressed dislike, and then I was like NUUUUUUU and pressed like.

    • @tessaknowlton41
      @tessaknowlton41 5 років тому +4

      I wish

    • @verenakelly1789
      @verenakelly1789 5 років тому +4

      Perhaps they think I don't like that this boy has so much suffer, so I dislike

    • @conservaserva5958
      @conservaserva5958 5 років тому +1

      This is just for watching...not for liking or disliking!

    • @crtx_wolf2252
      @crtx_wolf2252 5 років тому

      BEEAR I agree

  • @michaelb.tysonson3375
    @michaelb.tysonson3375 6 років тому +295

    I almost cried... how is this any way to live??? Life is just cruel...

    • @michaelmyersplays4992
      @michaelmyersplays4992 6 років тому +7

      That's how life is it's unfair
      It's not in god's hands
      It just happens bad luck

    • @michaelb.tysonson3375
      @michaelb.tysonson3375 6 років тому +7

      Ricardo Uribe
      That’s basically what I said...

    • @michaelmyersplays4992
      @michaelmyersplays4992 6 років тому

      @@michaelb.tysonson3375 yes sir

    • @hectorchavez1877
      @hectorchavez1877 6 років тому

      @@michaelmyersplays4992 I don't believe in bad luck though,I don't believe in any luck but I guess good luck to him

    • @michaelmyersplays4992
      @michaelmyersplays4992 6 років тому

      @@hectorchavez1877 if you dont believe in luck then why does he have to suffer?

  • @frowniebrown86
    @frowniebrown86 5 років тому +106

    “I don’t think I can I’m really sorry 😢” oh my goodness when he said that, I could feel how unbearable it is for him 😭😭😭

    • @ellaelliott4415
      @ellaelliott4415 3 роки тому +2

      It’s impossible to feel what he feels-I get what you mean but you can’t

  • @gabbys5867
    @gabbys5867 6 років тому +369

    I handle pain so awfully and seeing the pain he had to go through just for a bath makes me feel awful. I hope the best for him and his family.
    Edit: Thanks for all the likes ❤️❤️❤️❤️❤️

    • @alextatertots4395
      @alextatertots4395 6 років тому +1

      Gab S He sadly pasted away back in April due to complications...

    • @rntn7148
      @rntn7148 6 років тому +2

      Alex Tater Tots
      No I thought so also but that was another child that died in April. This family is actually being given a new house this week. The one that passed in April’s last name was Pitre I think. Someone helped me on another comment when I thought same.

    • @alextatertots4395
      @alextatertots4395 6 років тому +1

      Rn Tn Oh ok... my bad, sorry.

    • @rntn7148
      @rntn7148 6 років тому +2

      Alex Tater Tots
      No problem. I was confused, also!

  • @AwkwardlySilenced
    @AwkwardlySilenced 6 років тому +121

    I love this kid. He’s got mad wisdom and happily shares it, even though he has to make himself so vulnerable to the public. He helps a lot of folks. Be like John.

  • @Cath0505
    @Cath0505 6 років тому +333

    Instead of funding wars and many other atrocities is this world this is the kind of thing money should be used for, find the cure for horrible diseases like this.
    What a great kid, his parents and nurse are pretty awesome too

    • @personalpersonal9356
      @personalpersonal9356 6 років тому +4

      ... If we don't do that then everyone will die .. Well not everyone but many will die including more kids and resources will go . That was very stupid of you to comment . That's why it's a thing called donating so we give money to this too .

    • @Cath0505
      @Cath0505 6 років тому +9

      @@personalpersonal9356 Actually, the only stupid comment here is yours. Did I ask you to like my opinion? Get a life troll.

    • @personalpersonal9356
      @personalpersonal9356 6 років тому +1

      @Mandi W , War literally saves lives . How stupid are you ? Why else are you and whomever you love are alive ? Yes people die in war however it's to save idiots like you and other actually smart people . That's why people participate in war ... It's to protect the people even if they die . If a person that literally went through war had to see your freaking comment ... I'd pity him/her cause they literally risked their lives just to save an idiot like you however some will still say worth it somehow .

    • @personalpersonal9356
      @personalpersonal9356 6 років тому

      @Mandi W , Yes .. They do give money . Many rich people donate money either out of actual care or just to look good ... They still donate money at the end of the day and it's to actual organizations like to a kids health department and so on . Also , All you gotta donate is at least a dollar to any organization like for kids health or whatever ... It doesn't always have to be to the military cause that's why you pay taxes and where your tax money go but if you don't want to .. That's fine .

    • @personalpersonal9356
      @personalpersonal9356 6 років тому +1

      @Mandi W , The fact you know no common intelligence is worrying. We learn this in elementary school . We still learn it in middle and HS .. And college cause people are risking their lives to protect others . Why else do people go to war ? War happens to benefit the people and to protect the people and resources .

  • @tammyhenderson4663
    @tammyhenderson4663 3 місяці тому +3

    I have treated an EB patient who is now 26! He and his family are the strongest people I know.

  • @rickm7491
    @rickm7491 5 років тому +26

    John,
    I'm 60, and tough but after seeing your courage I am sorry that I can't be as tough as you.
    You are an inspiration in courage and endurance.
    You have motivated me as no one else ever has.
    Gladiators weren't as tough as you!
    Keep fighting and God bless you.

  • @queenjasmine7250
    @queenjasmine7250 5 років тому +514

    I loved the nurse 😭💯❣❣

    • @rozamiri8259
      @rozamiri8259 5 років тому

      على ما اضن اول عربي تحياتي

  • @krystallvinter7438
    @krystallvinter7438 5 років тому +92

    Just like his skin is being stripped away every day, so is his childhood. I can't even imagine how painful it must be, both physically and emotionally, to have your freedom taken away from you like that. I hope that he will one day be in a good enough condition to do all the things he ever dreamed of doing. Keep fighting, John.

  • @deloresm7494
    @deloresm7494 5 років тому +22

    I am so sad that he has to suffer like this. God bless you sweetheart.

  • @belisariocastillo8695
    @belisariocastillo8695 6 років тому +74

    That’s one strong kid, a strong 💪 mother, strong family

  • @Charlie-kt3tk
    @Charlie-kt3tk 5 років тому +161

    Owwwwww
    I wouldn’t deal with the pain
    He’s a fighter
    I know he’ll get through it

  • @fnizer
    @fnizer 5 років тому +31

    Been on youtube since it launched in 2005. Never written a comment. But this person impressed me. Courageous, strong willed. Even though times might be tough, he keeps going. Genuinely inspirational.
    *And I have to add, he's a cool dude!

  • @gapeach4u
    @gapeach4u 10 місяців тому +6

    Never in my life have I felt such shame at myself as I have now seeing this young child, this human, suffer so greatly when I complain that I have to even get up, make my coffee and work. At least I have a decent life, it’s not all rainbows mind ya but it’s damn great compared to his. The little things we take for granted and he faces that every single day! I just can’t stop my tears. I don’t know you John Hudson Jr but I am praying for you and thinking of you daily and I will live life better from now on bc you inspired me. You are handsome, brave, strong, determined, courageous, smart and inspiring and my love goes out to you, your family and nurse! They are all wonderful and I’m so very sorry for the loss of your father last year. With every tribulation you’ve faced you still are triumphant and deservingly so. 🩵🩵

  • @demithys6236
    @demithys6236 5 років тому +33

    I can see the pain in his eyes when he talks about taking the bath. I’m so sorry that he has to live like that. I hope one day they find a cure for him because he deserves a life beyond the bandages and baths.

  • @mncalapati415
    @mncalapati415 6 років тому +70

    Damn... I hate seeing kids in pain. My heart goes out to you John. You are a very strong person, stronger than most people. You are my motivation brotha. More power to you young man.

  • @NaturalNails4life
    @NaturalNails4life 6 років тому +67

    God bless this child. We take so much for granted and this kid is an angel and appreciates everything he gets . Life is never fair and i pray he inspires other kids to appreciate everything and everyone in their lives. Gratitude and praise to God!🙏🙏🙏

  • @nathalie7312
    @nathalie7312 4 роки тому +12

    I love how much his nurse cares about him. He needs someone like her and his parents to have patients and as much understanding as they can to what he is going through 💕

  • @totallysofte5548
    @totallysofte5548 6 років тому +142

    Trying to hard to cry. I don’t think I’ve really noticed how grateful I am until now. He’s so motivational and strong and deserves the whole entire world. This broke my heart, but trust me you’re one of God’s most special kids! He made you specifically the way you are and you’re unique for this ❤️

    • @SuperDarkdiver
      @SuperDarkdiver 5 років тому +2

      seems like god hated him from the start...

  • @iceice2010
    @iceice2010 6 років тому +215

    Awww sweetie u are awesome a beautiful child and your parents and nurse rocks!!🌷

    • @numpty7695
      @numpty7695 6 років тому +3

      RALEK lifestyle unfortunately he is dead right now :(

    • @some-one-else
      @some-one-else 6 років тому +5

      Numpty No he isn't, Jonathan pitre is.

    • @pautorr8629
      @pautorr8629 6 років тому

      Numpty lies! He didn’t die

  • @ashleythrash7387
    @ashleythrash7387 5 років тому +90

    Your a great kid dont let anybody tell u different, I'm praying good works a miracle for you!

  • @andread4595
    @andread4595 3 роки тому +10

    And to think about how many times I’ve winced because a little skin peeled off my finger and the way that hurts underwater… There are no words for how terrible I feel for what this child and his family go through. This nurse is also an angel and seeing her get so emotional was heart wrenching. John does definitely seem like a kind soul. Someone needs to find a cure for this. Bless this entire family and their providers.

  • @boldfaith765
    @boldfaith765 6 років тому +84

    Grown: check. Man: check. Crying: check.
    This young man is an inspiration to anyone with half a brain to understand the strength it takes to have such a great disposition and personality despite all this. Hoping and praying for a cure, thankful for the example he is setting.

    • @Robert-mu6qq
      @Robert-mu6qq 6 років тому +1

      He's a modern day stoic.

    • @Septembersend34
      @Septembersend34 6 років тому +1

      Just bc you're a man doesn't mean you can't cry bud

    • @boldfaith765
      @boldfaith765 6 років тому

      @@Septembersend34 I never said otherwise 🤜🤛👍

  • @jocelynbuck7297
    @jocelynbuck7297 5 років тому +48

    Just because this boy is born different doesn’t mean he can’t live his life to the fullest💓💓. And I give his mom a lot of credit for being a caring mother and nurse💜💜💜💜

    • @3mastiffsme
      @3mastiffsme 4 роки тому +1

      Jocelyn Buck - He can’t live his life to the fullest because of his severe health issues. Can u imagine all the “normal” things he wants to do but cannot. This is not a life fulfilled - this is a life of pain & torture. He is barley surviving- that’s not a life 2 me- the whole family is in pain. This is tragic!!!! In that situation u do what u Can to make other people feel comfortable around u & try ur best to find sum sort of “happiness”

  • @addydollar14
    @addydollar14 6 років тому +116

    This really is inspiring, i feel such deep gratitude to all of those who suffer from this disorder and as well as the families, God bless them

  • @luna_exe7753
    @luna_exe7753 5 років тому +64

    When he was taking a bath tears just rolled down me face....

  • @ryu7408
    @ryu7408 5 років тому +39

    I hope you see this message John. And know that I see you as a Hero. And you inspire me. I cry for you. You are good, strong, great boy! Be in your heart. I'm there.

  • @janesmith7274
    @janesmith7274 6 років тому +94

    this is so incredibly sad

  • @dadjokes1159
    @dadjokes1159 6 років тому +102

    Its hard to watch a video where a child is in this much pain. I hope they can find a cure one day.

  • @SpaceLife80
    @SpaceLife80 3 місяці тому +1

    Watching this young man be so brave and kind inspires me to my core! ❤️🙏🏼

  • @thatsevenfrogger
    @thatsevenfrogger 6 років тому +662

    any SBSK viewers here?

  • @mehkiedonaldson2991
    @mehkiedonaldson2991 6 років тому +54

    I wish I could be his friend he seems like such a cool guy honestly. I wish he wasn't in so much pain but I'm glad he's got a supportive family that loves him.

  • @luisestrada6657
    @luisestrada6657 6 років тому +102

    Barcroft tv thanks for showing us other inspiring stories of people that every day is worth it and thanks for showing us what we are lucky to have and we need to appreciate it. I wish the best of luck for this kid and I really hope he gets better. I'll pray for him. He is very positive and some people need to learn from him and others. I personally couldn't finish the video cause is kinda painful to watch. Thanks you barcroft tv. this is what makes this channel so damm good.

  • @lulua512
    @lulua512 5 років тому +7

    My heart is shattered completely. No one deserves to got through this. This boy is so strong I want to help him with everything. A literal inspiration.

  • @DeFaulty101
    @DeFaulty101 6 років тому +259

    Somebody, research this! Like, I know people are, but throw some more money at this!

    • @TheOnlyWil
      @TheOnlyWil 6 років тому +29

      Wolfgang Kenshin The problem is it’s so rare that not enough money is invested into it as it’s not seen as being as urgent as other more common conditions

    • @michaelb.tysonson3375
      @michaelb.tysonson3375 6 років тому +6

      Wolfgang Kenshin
      There needs to be more research, funding, implementation and practice of Gene Therapy, Genetic Engineering, and Eugenics.

    • @BurningFreesias
      @BurningFreesias 6 років тому +5

      Jonny Kennedy did up to the day he died. The charity he supported (DEBRA) even made a break-through a few years ago, where skin with EB was successfully treated in the labs! He suffered with the same condition for over 30 years! If you'd like, you can learn about him and his remarkable spirit from another video hosted on this channel: ua-cam.com/video/9wg8EtF5SJI/v-deo.html It's a pretty amazing documentary. Absolutely heart-breaking, but worth it.

    • @BossQueen
      @BossQueen 6 років тому +2

      This is urgent for research!

    • @wh1zkidd
      @wh1zkidd 6 років тому

      PenileFacial Surgery yah..says 'PENILE FACIAL SURGERY' ...

  • @heatherweath3r
    @heatherweath3r 5 років тому +131

    my heart hurts so much for him. please god help us find a cure or at least a treatment to help ease his pain. 😞❤️

  • @hundeliebhaberin8887
    @hundeliebhaberin8887 6 років тому +76

    I'm literally crying.... and can't stop....wish I can help him& stop his pain

  • @isabelletremblay6236
    @isabelletremblay6236 3 місяці тому +1

    When u think u are having a bad day.... Shame on me to complain about my little things. Look at this courageous boy now became a young adult 22 years old. Bravo! U are an inspiration person! 😊

  • @lhaicaparaisopolicarpio5460
    @lhaicaparaisopolicarpio5460 5 років тому +152

    My hearth is broken . Your so brave young man I pray for you

  • @-nikko.xxe-5114
    @-nikko.xxe-5114 5 років тому +68

    Yo! You know what! your a thousand times stronger than any other boys I had meet, no I'm serious! All of them are just saying how "strong" they are, but words don't show anything! YOU are showing what means to be strong)

  • @deaththekid3198
    @deaththekid3198 4 роки тому +9

    The fact that this boy is my science teachers son is amazing, I remember once my teacher couldn’t arrive to class because his son had to get a surgery. I miss you mr.dilgen!!

    • @brendalg4
      @brendalg4 3 місяці тому

      I think he passed away in 2024

  • @woof1028
    @woof1028 6 років тому +90

    I can’t imagine what it’s like.He is so strong.When I chip a nail it hurts so bad (for me), but to be him...that’s unimaginable.

    • @belalalalal363
      @belalalalal363 6 років тому

      It’s Madeline he died

    • @bencooper4058
      @bencooper4058 6 років тому

      Dreaming stop spreading lies 🙄

    • @pixelpurplegl6424
      @pixelpurplegl6424 6 років тому

      @@bencooper4058 Wait are they joking or for real? 😰

    • @vickysmith1996
      @vickysmith1996 6 років тому

      @@bencooper4058 it's actually not a lie. He really did die earlier this year I believe

    • @bencooper4058
      @bencooper4058 6 років тому

      He sure didn’t. I watched a video with him that was filmed 2 days ago on Facebook. His family have just been gifted a brand new smart house!

  • @mosstheaveragekid5331
    @mosstheaveragekid5331 6 років тому +14

    This made me very thankful that I was born very healthy and it made me realize people are not as lucky as I am and that we should be happy with what we have.

  • @derecmathewo1431
    @derecmathewo1431 6 років тому +11

    The pain he’s in no one would truly know, bless him lord 🙏🏽 heal our children please who are suffering, hear our prayers

  • @lespaul382
    @lespaul382 4 роки тому +4

    This warrior will be greatly rewarded in the next life. Bless his heart🙏❤️

  • @antonia_tnzr
    @antonia_tnzr 5 років тому +125

    Other people in his age (including me) worry about getting their first kiss and stuff and he can maybe never even go outside alone...I think everybody who is healthy and has a normal life should just be happy about it instead of always wanting more...By the way he is incredible and so strong (sorry for my english)

    • @jaykay1053
      @jaykay1053 5 років тому +5

      antonia_tnzr No need to apologize about your English. I didn't know it was not your first language until you apologized! ;) Good for you for trying something that you feel insecure about. I agree with you about John.

    • @mahz2582
      @mahz2582 5 років тому +1

      Your english isnt bad its better than a lot of people i know who have been speaking english and only english their whole life 🌟✨😊

    • @shaniaclinton8921
      @shaniaclinton8921 5 років тому

      amen! so true so many people are so ungrateful and worry about material things . that they don't take out the time to appreciate life and other around them . god bless this young man he's far stronger then me and anyone I know . 💗

  • @iheartquestionmark1313
    @iheartquestionmark1313 5 років тому +44

    Everytime I watch one of these videos I just can't stop thinking about how incredibly blessed I am. 😭🙏♥️

  • @lbo6050
    @lbo6050 6 років тому +23

    Bless his heart. These things just aren't even fair.. Makes you question a lot of things.

  • @Professorkenneth
    @Professorkenneth 2 роки тому +6

    This poor kid...I'm crying because I wish I could help him ..🙏🏻😩😢

  • @GamerStreamer-mh1up
    @GamerStreamer-mh1up 5 років тому +46

    Now we all know we have to be thankful for you and what you are

  • @masoomehkarimi4790
    @masoomehkarimi4790 5 років тому +67

    It made me cry for hours and hours. Allah please give shefa to all kids, it is very painful.
    Well done young brave man. You are inspiring.

    • @justforgetaboutit5987
      @justforgetaboutit5987 5 років тому +2

      Amen ya Allah🤲❤

    • @cole6388
      @cole6388 5 років тому

      What religion is that? This is nothing to be rude, I am just curious.

    • @spencerfrankclayton4348
      @spencerfrankclayton4348 5 років тому +1

      iAmCole Islam

    • @cole6388
      @cole6388 5 років тому +1

      Spencer Frank Clayton thanks!

    • @Zuyst
      @Zuyst 5 років тому

      Spencer Frank Clayton ye I was just learning about it a few days ago😂

  • @personalaccount7402
    @personalaccount7402 5 років тому +21

    such a beautiful soul god bless him..i hope he gets cured..your a champ buddy!

  • @Ennard_lolxd
    @Ennard_lolxd Місяць тому +1

    The way he just takes the pain shows how strong he is.
    He is a warrior.

  • @dayranavar
    @dayranavar 5 років тому +14

    my heart shattered into a million pieces 💔 may God bless this kid through everything 🙏🏼😢

  • @gianlucagrafton-clarke2615
    @gianlucagrafton-clarke2615 6 років тому +14

    What an inspiration he is, stay strong dude

  • @jaymieleech8978
    @jaymieleech8978 6 років тому +25

    I am balling my eyes out I’ve never cried so much he is an amazing person sweet hearted kind person I wish that I could make all the pain go away I would hate to go through that kind of pain 24/7 I hope they find a cure

  • @lucykanniard3635
    @lucykanniard3635 2 роки тому +3

    OMG! That poor little boy. Sending prayers to him and his family! I really hope they find a cure!

  • @chronicmenudo3653
    @chronicmenudo3653 5 років тому +78

    The dude loves Roman Atwood he needs to meet this amazing kid

    • @junkrat6112
      @junkrat6112 5 років тому +3

      Double A Gaming 61537 I’ve seen that too and I agree with u on that Roman Atwood should meet him u never know Roman could’ve

    • @amritokhan1694
      @amritokhan1694 5 років тому

      They did get to meet, it's John's cover pic on FB :)

  • @Helgaasik
    @Helgaasik Місяць тому +3

    Once I got a burn and the whole hand on my left hand was skinless, it was very painful when I had to change the bandage and wash the wound... Therefore, I can't even imagine what kind of torment this child is suffering.

  • @danturner3533
    @danturner3533 6 років тому +28

    Bless him😢😭I wish he could live forever without buttifly skin

  • @kayleighwaters3878
    @kayleighwaters3878 4 роки тому +64

    No kid, adult, or elderly human being should EVER have to go through this. Stay strong...

    • @techno05
      @techno05 3 роки тому

      yeah it is something that i hope calms down in my 40's

    • @brendalg4
      @brendalg4 3 місяці тому

      People with EB do not live long enough to become elderly. I could be wrong but I think John is going to be 22 in July 2024

  • @ughvall9875
    @ughvall9875 5 років тому +12

    I love you sweet baby, you’re so strong and I’m sending so much love!