Living With Progeria (30 Min Documentary) | BORN DIFFERENT

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  • Опубліковано 19 січ 2025

КОМЕНТАРІ • 4,5 тис.

  • @tubblebub
    @tubblebub 5 років тому +419

    That dude, Michiel, is killing it! He's just like, "Yeah, I'm 20, whatever," and seems really healthy. He's also just an awesome dude. So is his sister. She just seems so chill; I like her.

    • @Froggy1964
      @Froggy1964 5 років тому +10

      I thought I recognized Michiel before watching the video. Michiel and his sister Amber are very well known in Belgium.

    • @skyvader1238
      @skyvader1238 3 роки тому +1

      @@Froggy1964 they are from Holland.

    • @Froggy1964
      @Froggy1964 3 роки тому +5

      @@skyvader1238 Nope, from the province of Limburg in Belgium. Both Belgium and the Netherlands have a Limburg province. In the Netherlands, it is called Noord-Limburg. That may have gotten you confused.

    • @angh2008
      @angh2008 3 роки тому +2

      💚💚💚💚

  • @blakkamindri7267
    @blakkamindri7267 5 років тому +433

    hi, all,
    I am 67 now, and when I was 13, a boy in my class looked a lot like Amalia.
    He was the son of our mathteacher, and his only child.
    We NEVER bullied him. We respected him.
    We knew he was differend.
    He did was not with us every day, but when he was, we felt that it was special.
    The next schoolyear he did not show up, We heard he moved.
    I still remember him with great respect.!!

  • @rachelambereverleigh9308
    @rachelambereverleigh9308 5 років тому +539

    She's 10 times more confident than I was when I was her age. Bless her parents

    • @ambam90
      @ambam90 5 років тому +36

      Lol she's 10x more confident than I EVER was.

  • @hobispreciouseusmile
    @hobispreciouseusmile 3 роки тому +706

    RIP Adalia. A strong young girl.
    You'll be missed always

    • @benjaminmendenhall3104
      @benjaminmendenhall3104 3 роки тому +17

      This is very sad and she was a very great person and she will be miss

    • @luckyroxie157
      @luckyroxie157 3 роки тому +13

      She was such a character. I miss her already.

    • @hobispreciouseusmile
      @hobispreciouseusmile 3 роки тому +11

      @@luckyroxie157 i still miss her "shimmy" I used to watch her vids. I miss her too

    • @zk8n
      @zk8n 3 роки тому +5

      She is the symbol of greatness and kindness

    • @BubbleArcadia
      @BubbleArcadia 3 роки тому +7

      "Every little girl is a princess" -The Secret Garden (I think...correct me if I'm wrong)

  • @wbami2170
    @wbami2170 4 роки тому +492

    I think people like this are the strongest...The parents especially.

  • @krystallvinter7438
    @krystallvinter7438 3 роки тому +712

    When I was about 9 or 10, I became friends with a girl with progeria. Her name was Sabrina and she was the same age as me. We were only together for an hour, as we met on a ferry (I live in Denmark, so ferries are a common transportation method over here), so we only had one hour to play together.
    The reason we got to play was because my dad and her parents (or one of them, i don't remember) started talking, so me and Sabrina got bored and decided to play together, even though we didn't know eachother.
    We played in this huge playroom, with a playhouse shaped like a ferry in the middle of a big ballpit that had a slide on top of the ferry that led you straight down into the ballpit.
    Me and Sabrina went to explore the ferry-playhouse, and sat down and started asking eachother questions, usually just typical questions kids would ask eachother: what's your favourite animal, what's your favourite colour, where in the country to you live, do you have pets, and so on.
    When I got to ask her "why do you look like that?", she answered she was born with a disease that made her look much older than she really was. And my literal response was just "okay", and we kept on talking, playing and having fun. She was friendly, full of energy and was adventurous, just like I was back then, and that was all I cared about in a friend. We had so much fun together that day, I don't even remember saying goodbye to her when the ferry got to shore. I sometimes remembered her growing up, wondering why we didn't meet again after that day on the ferry.
    Now I'm 28, and have been thinking about Sabrina again. I'm feeling a bit weird, thinking that she might be dead now. Wherever she is, I hope she's still being her friendly, energetic and adventurous self.
    I still remember you, Sabrina! - from Ida

    • @asgyso13
      @asgyso13 3 роки тому +23

      Awh :(

    • @kimberlyel82
      @kimberlyel82 3 роки тому +40

      I’m writing a comment in hopes that Sabrina sees this and comments… I love happy endings and friendships that are so powerful that an hour together can withstand 10 years of not seeing each other… great story thanks for sharing and I would hope most kids with strong family values and good parents would do the same… most kids that are mean and bully usually come from effed up homes and that’s how they feel like they have some power in their lives or they do to kids what gets done to them to try and understand why

    • @krystallvinter7438
      @krystallvinter7438 3 роки тому +37

      @@kimberlyel82 Thank you so much for your kind message! And yes, even though almost 20 years (not just ten!) have since passed, I still remember her fondly, even though we only had one hour together, as that is the approximate time it takes for a ferry here in Denmark to reach another shore.
      I don't remember exactly what she looked like, sadly, as I only remember that she looked like a middle-aged woman even though we were both only 9 or 10 years old. My memories of her are strengthened by how full of life she was; she was energetic and fun, loved to talk and loved to explore the playground inside the ferry with me. I'm autistic myself, so I was really bad at making friends, and she was one of the very first kids that wanted to play with me, not once asking me why I was 'weird'. Maybe she just didn't notice; just like I didn't pay too much attention to what she looked like.
      I'm now 29, and still remember the sense of (too shortlived) adventure she brought me. She was really cool, and I'm still thankful to her for wanting to talk and play with me that day :)
      sorry for the super long comment lol, I got a bit emotional tbh

    • @kimberlyel82
      @kimberlyel82 3 роки тому +9

      @@krystallvinter7438 xoxo I enjoyed reading it

    • @Brooklyn2.0.
      @Brooklyn2.0. 3 роки тому +9

      I'm so sorry. I hope you find her soon. Good luck

  • @IntergalacticSpaceKitten
    @IntergalacticSpaceKitten 4 роки тому +543

    That brother and sister duo is super sweet. 20 years old is amazing. Beating those odds and fighting so hard. Such incredible souls.

    • @lindahandley5267
      @lindahandley5267 3 роки тому +7

      I would be honored to be a friend to each and every one of them!

    • @Annemariecompston
      @Annemariecompston 3 роки тому +1

      Your such a good boy wee yin ❤️❤️❤️❤️❤️

    • @natali4944
      @natali4944 3 роки тому

      @@lindahandley5267 .

    • @madisonx5624
      @madisonx5624 3 роки тому +10

      The guy is now 23, so that's amazing

    • @vivianhenson892
      @vivianhenson892 3 роки тому

      @@lindahandley5267 0

  • @paperpiecesandleftovers2766
    @paperpiecesandleftovers2766 3 роки тому +168

    im so sad Adelia just recently passed away. It is so nice having come across her video as I followed her on FB for many years and just loved watching her grow up. May you rest in heaven princess. You are missed by millions.

  • @mrsjbutcher06
    @mrsjbutcher06 4 роки тому +915

    “Are you really gonna film me while I am blowing my nose?” Adalia is such a mood 😂

  • @mannequinn_made420
    @mannequinn_made420 5 років тому +738

    When he said he’s goal was to reach 30 my heart broke 😥

    • @saeedmookrey8996
      @saeedmookrey8996 5 років тому +5

      It's a she not a he

    • @mannequinn_made420
      @mannequinn_made420 5 років тому +63

      saeed mookrey I’m talking about the young man that’s in the video 🤦🏽‍♀️ you clearly didn’t watch the whole thing. It’s a young man and he’s sister 🤨 HE’s name is Michiel and he said he’s goal was to reach 30.

    • @saeedmookrey8996
      @saeedmookrey8996 5 років тому +9

      @@mannequinn_made420 actually i had watched the whole video but sorry for the misunderstanding😬

    • @fiou8525
      @fiou8525 5 років тому +4

      @@mannequinn_made420 his not he's plz

    • @dyfcheer
      @dyfcheer 5 років тому +5

      The story after, she was in her 40's.

  • @michellemuskeyn329
    @michellemuskeyn329 5 років тому +4435

    No offence, but 95% of the comments are giving love ❤️ to Adalia.... but no love to the others ? This video isn’t just about her, we should be giving love ❤️ to all of them! They are all beautiful 💕

  • @lindataghon5712
    @lindataghon5712 3 роки тому +62

    Adalia was an AMAZING, BRIGHT, ENERGETIC little soul! What I enjoyed most was she was her OWN PERSON, she knew her own mind and she let every one know it. She had a wonderful out look on life even when she knew what would eventually happen, STRONG, STRONG soul. She is in a place now that is BEYOND ALL comprehension to all left here on this planet and she is LOVING IT!!! So mom, dad, brothers, do not mourn to long for she is EXCELLENT hands and you WILL see her again, NEVER FRET!!! GOD BLESS ALL he children with Progeria!

  • @delilahbaxley5880
    @delilahbaxley5880 4 роки тому +351

    The brother and sister love for each other is beautiful

  • @preetygurl2828
    @preetygurl2828 5 років тому +282

    wow Tiffany is 40 years old? that’s awesome not to mention she’s so active and successful running her own business, i love that. Best wishes for her i hope she’s able to carry on this lifestyle for the end of her days. what a great soul ❤️

    • @rosapichardo8239
      @rosapichardo8239 5 років тому +2

      63jr

    • @beebale1356
      @beebale1356 4 роки тому +5

      I think she probably has Warner syndrome, there are 2 main kinds of progeria

    • @kathleenking47
      @kathleenking47 3 роки тому +3

      She seems to have a mild case.
      I've seen a russian teen who was 16 but looked 75.
      Shed wear makeup and date like a teen, got married, and had a child

    • @Moobloom129
      @Moobloom129 2 роки тому +2

      People with progeria are only supposed to live for like 12 years he's doing really good

  • @maxi9091
    @maxi9091 3 роки тому +45

    I like Michiel a lot, he seems to be a rly chill dude and his sister Amber seems so intelligent for her young age. They are a powerful team. They both must be an enrichment for anyone who can call them their friend.

  • @trez3g
    @trez3g 5 років тому +117

    The siblings with progeria are so well behaved and have such a mature attitude to life. Best wishes and God bless you.

  • @brookebailey4330
    @brookebailey4330 5 років тому +115

    I really feel bad for their parents. I can't imagine how it would feel to love your children so much but know they won't be around as long as you. That is so heartbreaking.

  • @emylerauseo
    @emylerauseo 5 років тому +1288

    Us people born able bodied don’t know how lucky we are and we take it for granted

    • @hopepappan7916
      @hopepappan7916 5 років тому +13

      I LIKE IT☺👍👍👍👍💞💟

    • @fairyxx0
      @fairyxx0 4 роки тому +9

      Im born a little diffrent i was born double jointed (only 20 percent are double jointed)

    • @sandisandii2033
      @sandisandii2033 4 роки тому +33

      I dont agree.Your saying that we should feel guilty because we were born "normal" We take our" normal" for "granted" thats not true at all.We are all born the way we're born and we live ours days.The ppl born with handicaps,their lives are their "normal"So everybodies "normal"in their own way.

    • @emylerauseo
      @emylerauseo 4 роки тому +18

      sandi sandii definitely not saying we should feel guilty we should feel lucky any of us could have been born with a life altering disease or disability but we weren’t we’re normal we don’t have to go through the struggles they do and we complain about our lives. some people do take their perfectly healthy body for granted and don’t understand how some people just wish they could’ve been born that way. but no it’s true we’re born how were born and nothing can change that.

    • @sandisandii2033
      @sandisandii2033 4 роки тому +6

      @@emylerauseo I dont complain about my life,i never have.If you talked to the not so "normal" ppl id bet alot of them would say that they're "lucky" as well.

  • @UGAgradRN
    @UGAgradRN 3 роки тому +66

    Can’t imagine how difficult it was for Tiffany to be diagnosed in her late 20s

  • @ioanna1689
    @ioanna1689 5 років тому +101

    Michiel and Amber have the best sibling relationship I've ever seen!

  • @ItsLotus89
    @ItsLotus89 5 років тому +285

    Ever since I was a kid, watching documentaries with people with Progeria makes me emotional 🤦🏾‍♀️😩 Just wanna give them hugs! ❤️

  • @adilahatha6299
    @adilahatha6299 5 років тому +166

    I cried when i watch this, no no, i mean I CRIED so bad. They’re such an inspiration, and i’m proud of them💖

  • @TheSaltySiren
    @TheSaltySiren 3 роки тому +33

    Tiffany seems like she has a different degree of progeria than the others. William and his sister (I’m sorry I can’t remember her name) are so outgoing! I love their personalities! Sending lots of love to these incredibly strong people!

  • @ehottie8979
    @ehottie8979 5 років тому +574

    Sam who had progeria died couple years ago🙏🏽🙏🏽❤️he lived to age 17 so don’t listen to doctors when they give u a death date

    • @kaylanasir121
      @kaylanasir121 5 років тому +7

      Am I right they always mess that part up.

    • @graceemullin
      @graceemullin 5 років тому +6

      ehottie8979 sometimes u do though

    • @pguthrie222
      @pguthrie222 5 років тому +3

      Amen!!💙

    • @purplestingstress
      @purplestingstress 5 років тому +16

      There have been a few documented cases where people with progeria have lived well into their late 20's, early 30's. So a lot of this depends on how hard their bodies are taking the hit. She is such a beautiful angel and such a inspiration! 💖❤️🙏💞💜

    • @pguthrie222
      @pguthrie222 5 років тому +3

      @@purplestingstress amen!!!

  • @thejadegom
    @thejadegom 4 роки тому +830

    Im so amazed because adalia is really smart even she is only 10

    • @laughable7438
      @laughable7438 4 роки тому +52

      Now she is almost 13 this December!

    • @apples2962
      @apples2962 4 роки тому +3

      @@laughable7438 huh? December? It's May 😐

    • @RhonaMiller
      @RhonaMiller 4 роки тому +12

      @@apples2962 in December 2020 she turns 13 years old

    • @Emily_47
      @Emily_47 4 роки тому +3

      Elizabeth Holmes yep

    • @niniyt6740
      @niniyt6740 4 роки тому +3

      Ninda Chesteille what about the other people

  • @vah_artistry
    @vah_artistry 4 роки тому +265

    Tiffany is living my dreams. Dancing, recycling, candle making, yoga, and the most positive outlook in the world. The way she has moved on and learned from her brother’s passing is inspirational. The world would be a better place with more people like her.

    • @lindahandley5267
      @lindahandley5267 3 роки тому +6

      She even moves like a dancer...so graceful and feminine.

    • @Ieo2249
      @Ieo2249 3 роки тому

      Which brother passed ?

    • @angh2008
      @angh2008 3 роки тому

      @@Ieo2249 ❤️❤️❤️❤️❤️💕💕💕💕

    • @angh2008
      @angh2008 3 роки тому +1

      @@lindahandley5267 ❤️❤️❤️💕💕

    • @angh2008
      @angh2008 3 роки тому

      ❤️❤️❤️❤️

  • @tonyabrand8162
    @tonyabrand8162 3 роки тому +19

    I'm so sorry for your family's loss, your daughter Adelia was so precious and full of love for her beautiful family. I have enjoyed watching all of the videos threw the years. Yall need to continue with home videos. I adored you Amelia, you show those young teenagers in heaven how to be a diva, how to dance, and tweak.
    You will be missed darling. I'm praying for your amazing mom and dad, and your 3 brothers.

  • @nevy900
    @nevy900 4 роки тому +462

    The boy with his sister is so nice to his sister my brother be pillow fighting me and waking me up early

    • @aleshafarfus-shukaliak8457
      @aleshafarfus-shukaliak8457 4 роки тому +4

      Me to

    • @ImRyll
      @ImRyll 4 роки тому +7

      My brother and I don't even talk.

    • @scarletthecat632
      @scarletthecat632 4 роки тому +1

      Sheryll Aba Damn that's too bad, I love my sister so much we would never fight

    • @uks2010
      @uks2010 4 роки тому +2

      Do you like stranger things??

    • @joanalincaruana7810
      @joanalincaruana7810 4 роки тому +1

      Im willow im using my moms phone sometimes i get grumpy coz my bro use my moms phone

  • @evelina2363
    @evelina2363 5 років тому +61

    The siblings are wonderful. I just love how they enjoy life and how they are surrounded by friends. May they fulfill all their dreams

  • @rosa_9614
    @rosa_9614 4 роки тому +549

    That boy is 20, they say that people with progeria die around the age of 12

    • @rosa_9614
      @rosa_9614 4 роки тому +29

      There are 2 girl and 1 boy in that video

    • @_ocelotgaming_
      @_ocelotgaming_ 4 роки тому +1

      What

    • @luciauhrinova8187
      @luciauhrinova8187 4 роки тому +1

      These people how the surwer at age 20. This is very individually

    • @apples2962
      @apples2962 4 роки тому

      Who?

    • @RhonaMiller
      @RhonaMiller 4 роки тому +3

      Adalia is 13 in December
      Hayley okines lived to about 17-19 years old

  • @flowersflowers5070
    @flowersflowers5070 3 роки тому +24

    I will first start by saying I am so sorry for the loss of yet another loving child. I watched her & her mother & saw the energy...& love she had. God bless you all. For the others that have this in their family I too hope one day there will be a cure for this...or at least have a drug that can prolong their lives. God bless you all.

  • @hilary6481
    @hilary6481 4 роки тому +249

    Adalia eating the chip in slow mo while her mom was talking...I literally laughed out loud ~ we all know true divas have a great sense of humor...Queen 👑

    • @sheilagravely5621
      @sheilagravely5621 3 роки тому +9

      Yes, and so much smarter then her years.👍🏻👍🏻👍🏻🙏🙏🙏🙏💚💚💚💚😘

    • @caseyadams7489
      @caseyadams7489 3 роки тому +4

      It made me laugh and next second I got up grabbed the packet of Pringles and started doing it and my bro just told me of

    • @billiewilson4135
      @billiewilson4135 3 роки тому +2

      Yes, so funny … wouldn’t it have been awesome if Adalia could have met both brother and sister … think she may have had a crush ….💗

    • @lillylabong4101
      @lillylabong4101 3 роки тому +4

      @@billiewilson4135 unfortunately she died a few days ago 😔

  • @crystalmorris215
    @crystalmorris215 5 років тому +61

    The Belgium siblings have such an amazing bond. I Love, love that they have each other, only people with the same diagnosis know what the others go through. Also, good on those kids who've befriended them. They look so happy! ❤

  • @candeezymarie9827
    @candeezymarie9827 4 роки тому +153

    Dawww! I love the Brother and sister! Such a rare thing to happen twice for a family! That's kind of magical that they have each other!

    • @angh2008
      @angh2008 3 роки тому

      ❤️❤️💕💕💕

    • @sheilagravely5621
      @sheilagravely5621 3 роки тому

      I adore this brother, sister duo. What a loving family. 👍🏻👍🏻👍🏻🙏🙏🙏😘💚

  • @l.m.5947
    @l.m.5947 3 роки тому +15

    There are so many comments about Adalia so I decided to comment on everyone else.
    I found the brother and sister story to be very interesting. I can't imagine how it would be for the parents, because progeria is so rare as they mentioned. There are different forms of progeria but it seems like these siblings have a type that isn't as intense on the metabolism. The fact Amber's face is still very round and full is a really hopeful sign that she'll be able to live a longer life like Nikhil.
    I think their perspective that they shared is really positive but also very true, that for all of us (with progeria or without) life is already too short. They have had to come to terms with their mortality at a younger age and it seems to have had a positive effect on their ability to enjoy life. I also liked that they were really close despite being 8 years apart, even hanging out with the same group of friends. I wish I had that with my siblings when we were younger.
    I was really happy to see Tiffany, because we know that exercise can help with the aging process but it seems there are many limitations with progeria that can limit the ability to exercise. It was amazing to me that she was diagnosed as late as her 20's, despite having a brother with it. But their mother also has progeria, but a very mild case of it...so mild, that apparently others may not have noticed it. It made me wonder how many people actually have progeria but aren't diagnosed.
    I loved Challi's story. I think with progeria, we often focus on how different the person is...but this was just about how average Challi is. Not popular but still had friends in school, found love and got married, used her older looks to get alcohol for herself and her underage friends...I feel like that's just such a typical life and it was great to see this aspect of it...just a totally regular person enjoying their life without having to worry about dying before they were 20, or being go-go-go like Tiffany. I admire Tiffany and identify with them most, but it was still great to see Challi.

  • @marialenakokkala4643
    @marialenakokkala4643 4 роки тому +145

    These parent's are blessed with angels that God sends them.

  • @user-vd2jk7dl3p
    @user-vd2jk7dl3p 3 роки тому +51

    I have never heard of someone like Tiffany and Chad to have this not be noticeable until your 20s is absolutely incredible!

  • @lauryn4648
    @lauryn4648 5 років тому +119

    Imagine being a parent of a child with progeria. This is so hard to think of.

    • @raquel7675
      @raquel7675 4 роки тому +19

      I know. I really admire the strength they must have.

  • @trancemadmaz
    @trancemadmaz 3 роки тому +12

    I'm just amazed at how positive, upbeat, loving and caring people with progeria are. They are a gift to the World who sadly don't spend the amount of time on this earth that they truly deserve :(

  • @aubeeb6441
    @aubeeb6441 5 років тому +50

    “She says, she thinks you’re cute”
    that is the sweetest thing i’ve ever heard

  • @jtemangelaraie1195
    @jtemangelaraie1195 5 років тому +521

    Adalia is so cute!💜🥰
    Btw her bed is so cute like her🥰😊

    • @maryubaldo9287
      @maryubaldo9287 5 років тому +10

      Aww your so kind

    • @som3body749
      @som3body749 5 років тому +4

      🤢

    • @coffeuvu9010
      @coffeuvu9010 5 років тому +5

      @@som3body749 ≥:v!!😒(^._.^)ノ🔪

    • @som3body749
      @som3body749 5 років тому

      @@coffeuvu9010 What are you trying to tell me?

    • @jtemangelaraie1195
      @jtemangelaraie1195 5 років тому +9

      Johnny Blaze shes trying to tell u that you're just a jerk,and youre mean to adalia😠

  • @miadulcelymartinez8912
    @miadulcelymartinez8912 5 років тому +485

    “Are you really gonna film me blowing my nose?”
    😂😂😂😂

    • @starlightopps185
      @starlightopps185 5 років тому +2

      Rude

    • @محمدفتحى-ه3ت
      @محمدفتحى-ه3ت 5 років тому +3

      احاااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااا

    • @luvh8057
      @luvh8057 5 років тому

      She is Cuter Than you

    • @luvh8057
      @luvh8057 5 років тому

      Like you Scream Like a Turkey

    • @CraftyCosmopolitan
      @CraftyCosmopolitan 4 роки тому

      Mia Dulcely Martinez 😂😂😂 I just quote this and here I’m i seeing the same comment

  • @sixmercer2504
    @sixmercer2504 3 роки тому +28

    RIP Adalia Rose 🌹 Ride off to paradise on your colorful sparkly unicorn 🦄 and DANCE DANCE DANCE to all the music that you love so much. You will be ever so missed. The stamp you left on this Earth broke all barriers, crossed all countries and every ocean. Your life has had such meaning to so many of us who have watched you throughout the years. Great big hugs to your mommy and daddy especially and of course your brothers too. One day way too soon I will be in your mommy's shoes from the loss of my daughter who has a terminal genetic condition that has yet to be diagnosed. Having been so taken by you, the loss of you makes our fate feel so much more imminent. My heart is so broken for your family. You aren't sick anymore and you aren't in pain, you are at peace. What a precious soul you are and I hope you'll be there to greet my daughter when it's her time to join you. ❤️

  • @kenzie3734
    @kenzie3734 4 роки тому +48

    Every time a see her the(diva) I want to cry course of her cuteness, I feel so good seeing her. Lots of love from Africa.
    I love you so much

  • @roguelove807
    @roguelove807 5 років тому +138

    I would have never guessed tiffany was 41. She seems much more like she's in her 20's! She might have an aging disease, but it seems like her energy and personality are 20!

    • @bryannab7566
      @bryannab7566 5 років тому +7

      I knew she was in her 40s as soon as she made a soy candle out of a beer bottle. Lol.

    • @totally.syd.
      @totally.syd. 5 років тому +3

      @Bryanna B ye

    • @EmPurple
      @EmPurple 3 роки тому +1

      To get to 40 with projeria is absolutely miraculously incredible!

  • @ivanagonzalezs
    @ivanagonzalezs 4 роки тому +174

    Adalia: "Because I'm a diva".
    Me: YESSSSSSSSS HONEY 🔥💞

    • @avabrown3524
      @avabrown3524 3 роки тому

      YASSSSSS QUEEN WORK IT❤️❤️❤️❤️🦄🦄🦄🦄🌸🌼🌸🌼💐💐💐

    • @glyphonly3280
      @glyphonly3280 3 роки тому +1

      You know, even IF you have progiria, I think it is really cool, stay yourself, and, no matter WHAT people say, you are amazing and, everyone has something that makes them special, consider your condition as what makes you different, and that's good! No matter what, no matter who or what you face, you ARE important

    • @jademitchell6741
      @jademitchell6741 3 роки тому

      What O_O chill

  • @annalanzotti-venrick3989
    @annalanzotti-venrick3989 3 роки тому +85

    So sad that she is gone she was a brave and precious girl and her family is amazing. ❤❤❤

  • @davidjimenez5324
    @davidjimenez5324 5 років тому +787

    Who else wants to see what the camera man looks like now? 😂😂😂

  • @lindamulholland8512
    @lindamulholland8512 5 років тому +10

    I support this couple 100% ! They found each other and found love between them. May you have a long and happy life together ! Bless you both , god is on your side !

  • @Gr95dc
    @Gr95dc 5 років тому +31

    That last story was so sweet. It made me feel so happy to hear that she's happy.

  • @rubyrush3751
    @rubyrush3751 3 роки тому +11

    As a mum who has lost her toddler to a genetic mutation causing brain cancer, I would tell these parents to enjoy every moment. Take tonnes of photos and videos and just love these beautiful kids every single moment ❤

  • @giornatadeliziosa
    @giornatadeliziosa 5 років тому +708

    Now I'm curious about the cameraman 😉

  • @rent5729
    @rent5729 5 років тому +48

    Adalia is such a precious girl, I seriously hope she lives for a while. She seems so sweet, stay strong girl!

  • @tylerpage5128
    @tylerpage5128 4 роки тому +42

    Your an amazing child, and just because your different it doesn’t change how beautiful you are!

  • @andrewcarpenter3991
    @andrewcarpenter3991 3 роки тому +10

    This is a story of a true hero. God bless Adalia's parents for giving their gift from God a wonderful family life while she was on earth. Rest in peace little angel.

  • @Shira-s5t
    @Shira-s5t 5 років тому +174

    "I like to play with my brothers 😁... But sometimes I get a little grumpy soooooo... I guess not"
    Me: 😂

    • @rohaniali4980
      @rohaniali4980 5 років тому +6

      It'sTori •w•
      Shes so cute 🥺💖

  • @lovergirl5013
    @lovergirl5013 5 років тому +150

    ya'll have been posting the same video every year since like 2016. Adalia is now 13 years old and very much alive

    • @JamaicanRain
      @JamaicanRain 5 років тому +17

      Adalia will be 13 this year, but she's still 12 now.

    • @lovergirl5013
      @lovergirl5013 5 років тому +2

      JamaicanRain my bad, for some reason i thought her birthday was in june

    • @totally.syd.
      @totally.syd. 5 років тому +2

      JamaicanRain yeah

    • @yosoycotton6405
      @yosoycotton6405 5 років тому

      honey Ikr she is strong ♥️

  • @Allisonluv24
    @Allisonluv24 4 роки тому +108

    Parents who have children with a special need or condition are incredible because they have to be even stronger knowing all
    They know and giving their children the life they deserve ❤️ amazing parents God bless you all ❤️

  • @jetjegoesdutch7933
    @jetjegoesdutch7933 3 роки тому +4

    RIP Amalia.. you are the brightest star in the sky now.. So sad for her family and friends.. My condolences to them!!! xxxx

  • @soph3699
    @soph3699 4 роки тому +135

    Anyone else think there all so beautiful?❤️

    • @natashanagy1117
      @natashanagy1117 4 роки тому +6

      Dilated Skittlez definitely some of the most beautiful people in the world

    • @covid_1972
      @covid_1972 4 роки тому +1

      Because they are

    • @JaimeMesChiens
      @JaimeMesChiens 4 роки тому +2

      She can be charming, that’s for sure.

    • @armyshope
      @armyshope 4 роки тому +3

      And they have those tiny cute voices

    • @armyshope
      @armyshope 4 роки тому +1

      @Sassy Queen yes

  • @summerdowlig
    @summerdowlig 5 років тому +22

    How can your heart not be warm with these little angels?

  • @zakgm4148
    @zakgm4148 4 роки тому +41

    These kids are so badass they are amazing and people with conditions like this teach people empathy on another level cuz they suffer a lot more than the “normal” bunch

  • @rogueoneyt5156
    @rogueoneyt5156 2 роки тому +10

    Awesome parents, to give unconditional love, R.I.P Adalia.

  • @emmaskeens4005
    @emmaskeens4005 5 років тому +15

    This vid made me cry, I just want yo crawl through the screen and give her a hug, for how brave she is

  • @jaclynannbarnett
    @jaclynannbarnett 4 роки тому +189

    6:06 “are you really going to film me-blowing my nose”😂

  • @egomez1225
    @egomez1225 4 роки тому +50

    I remember when the oldest you could live with progeria was 13. Now it’s 26 that’s amazinf

  • @TheAntiqBoutiq
    @TheAntiqBoutiq 3 роки тому +4

    RIP young Adalia. The world was so colorful with you in it!

  • @michealwalsh2685
    @michealwalsh2685 5 років тому +94

    Everyone is beautiful and has their own unique personality
    I love you your BEAUTIFUL

  • @allieapricot9735
    @allieapricot9735 4 роки тому +29

    Adalia Rose is one of the most free spirited, beautiful little girl in the whole world. She is humorous and lovely. How could anyone be scared of her?

  • @raincoleman6305
    @raincoleman6305 5 років тому +13

    The sister and brother are sweet for sharing their story also.. Very smart handsome young man. The sister is so adorable.

  • @katrinamiller1491
    @katrinamiller1491 5 років тому +4082

    Best part when she thinks the camera man is cute

    • @roxans5853
      @roxans5853 5 років тому +82

      Ikr?? So adorablee.

    • @imlikett5293
      @imlikett5293 5 років тому +23

      Frr tho

    • @friedakiezebrink277
      @friedakiezebrink277 5 років тому +49

      PRINCE SHAMIYAH144 its cute it has nothing to do with what she has but with her age and that she is so honest and pure.

    • @Brooke-l8t
      @Brooke-l8t 5 років тому +2

      HIIIIIIIIII

    • @imogen6891
      @imogen6891 5 років тому +5

      Ik it’s so cute!!!

  • @nnjay6510
    @nnjay6510 2 роки тому +2

    Oh my god. She has 1000% confidence. Watching this in my dark days. Her sparkling energy have just infected me. My confidence is growing. Lovely girl just makes everything lovely.

  • @Uniquely-You
    @Uniquely-You 5 років тому +33

    So inspirational!!! I adore people with beautiful souls that remind me just how great it is to be alive!

    • @imlikett5293
      @imlikett5293 5 років тому +1

      Tatum Hontz exactly👏👏👏, we’re all so quick to take life for granted.

    • @Uniquely-You
      @Uniquely-You 5 років тому +1

      부지방탄BoujeeBangtan we all do that, right. But then people come into our life when they do to put things in perspective.♥️

    • @imlikett5293
      @imlikett5293 5 років тому +1

      Tatum Hontz 100% agree💓

    • @Uniquely-You
      @Uniquely-You 5 років тому

      부지방탄BoujeeBangtan she is so precious

  • @LizzyAlexis
    @LizzyAlexis 3 роки тому +36

    Adalia is beautiful, incredible bubbly, and full of light. Her humour is unmatchable. She is a true God given gift to this world! God bless Adalia and her family!

  • @cathyford6385
    @cathyford6385 5 років тому +68

    This was a great documentary, showing different levels of progeria.

  • @sharoncromer1910
    @sharoncromer1910 3 роки тому +2

    My ex husband's cousin Greg had Progeria. He was also mentally affected. He lived to be 32 years old. He couldn't walk or talk but he loved girls and football. He had many, many seizures a day the last 5 months of his life. He was a joy to know and love.

  • @sona-h2w
    @sona-h2w 4 роки тому +20

    I am so happy for that little girl cause she is not stopping herself ♡

  • @elifoz678
    @elifoz678 5 років тому +78

    Bless her little soul, she’s sooo strong 💪🏼💜

  • @kasynlassitter3094
    @kasynlassitter3094 4 роки тому +36

    This girl is so inspiring she will go down in history i’m telling you 🥰

  • @Mason-ci8gj
    @Mason-ci8gj 7 місяців тому +1

    Adalia loves life!! So adorable and I just love her voice. She could do voices for movies!!!

  • @xjess24
    @xjess24 4 роки тому +52

    She has such a sweet voice 😍 m crying now 😢

  • @freedomofspeech766
    @freedomofspeech766 4 роки тому +4

    All those children are gifts from God sent to special parents. Love to all of you, you adorable darlings.

  • @cindywyly9477
    @cindywyly9477 4 роки тому +9

    TIFF! omg girl!!!! im so opposite of you and it makes me sad to think of how much i dislike myself and complain about my life when ive in reality had it so easy and you've endured so so much more! And yet you're still the smiling bright and beautiful person that you are!!! oh my gosh how you inspire me! thank you!

  • @ladywiddi7403
    @ladywiddi7403 3 роки тому +4

    Watching this after her passing feels so weird, she's pain free now and resting. Such a beautiful soul, left too soon.

  • @parrotpirate9648
    @parrotpirate9648 4 роки тому +19

    I was in first grade with a lil lady who I assume had this. She was scared of everything I wish her mom and dad had been this strong your giving her a beautiful life.

  • @rebeccaperkins9638
    @rebeccaperkins9638 5 років тому +13

    So many wonderful people with amazing,loving,caring families! They are so brave and have so much to give to this world. We all should learn something from all of these marvelous people.

  • @joannahaynes5912
    @joannahaynes5912 4 роки тому +10

    I want to hug her so bad,am in tears she's so amazing

  • @Olivexxxx
    @Olivexxxx 7 місяців тому +2

    they are truly beautiful people, SENDING LOTS OF LOVE!

  • @diedraaschenbeck8876
    @diedraaschenbeck8876 4 роки тому +15

    I love their tenacity. What an inspiration every single one of them are.

  • @youtubelegend2253
    @youtubelegend2253 4 роки тому +28

    It is so hard for the parents when she said when it's nighttime that could be her last day that hit me but I love her she is so cute.

  • @jhales9208
    @jhales9208 5 років тому +15

    I watched one of Adalia's videos a while back and literally fell in love with her. She is a natural born performer and so funny!

  • @SarahAnaya-ox3tb
    @SarahAnaya-ox3tb 4 місяці тому +1

    Adalia... You are such an Angel!
    With a huge heart, spirit, etc!
    You look so cute with wigs!!!
    I love Unicorns too ❤❤

  • @mimixx1761
    @mimixx1761 4 роки тому +43

    The siblings stole my heart ❤️

  • @haaraa444
    @haaraa444 5 років тому +11

    Probably most people watch the first part. There's more special people in this video. Love them all

  • @linda86760
    @linda86760 5 років тому +8

    What a wonderful girl with a lovely heart. Her parents are the best. I wish nothing but the best for her and her family

  • @amybogaski9218
    @amybogaski9218 3 роки тому +4

    So small in size but so so tall in every other way. They have more positivity, more determination, more passion than the 10’s of millions born without progeria put together!
    I pray for everyone in this doco that they may live as long as possible and continue to spread joy.
    This is 2 years old now. I know adalia is 14.5 years old now. Are the others still with us?

  • @marielewis5424
    @marielewis5424 4 роки тому +13

    I love her so much. She has a big huge personality not everybody does ....she's a very amazing beautiful baby girl

  • @Sav2coolll5
    @Sav2coolll5 4 роки тому +116

    Her moms talking
    And then she just starts eating a chip loudly
    That cracked me up!!

    • @raccoonchronicles5134
      @raccoonchronicles5134 3 роки тому

      Hilarious.

    • @evalevy2909
      @evalevy2909 3 роки тому +2

      She's a MOOD

    • @merrybluegirl8930
      @merrybluegirl8930 3 роки тому

      She is really hilarious! I know that video is on UA-cam and I think she really didn't want to talk about her eye so she entertained herself for a min and started to eat her chips. She is truly hilarious!! We love you Adalia and also everyone on this video living with progeria.🌼

  • @brindan9383
    @brindan9383 4 роки тому +134

    I wish adalia could live forever like just a normal person ending her parents agony of losing her..😭

    • @magnificent6668
      @magnificent6668 3 роки тому +21

      No one lives forever. We're all born dying. I'm sorry these kiddos have to known the pain of aging so soon though.

    • @alexiacutkelvin4881
      @alexiacutkelvin4881 3 роки тому +3

      Well she lived till 14 so I gues she did end her parents agony

    • @IceFox606
      @IceFox606 3 роки тому +7

      @@alexiacutkelvin4881 how? The agony is losing her/having so little time with her. And lived past tense? She’s still alive and doing fine as far as I know

    • @alexiacutkelvin4881
      @alexiacutkelvin4881 3 роки тому +4

      @@IceFox606 exactly the life expectancy of some kids is 13 but she lives passed that age so parents know that she is healthy and is still fighting but somehow lived passed the life expectancy so they know they won't have to worry about loosing their little gorl

    • @alexiacutkelvin4881
      @alexiacutkelvin4881 3 роки тому

      @Kelly Alexander i said she is still alive cant you read?

  • @yuniretnowati5185
    @yuniretnowati5185 3 роки тому +9

    Great parents who raise them. Giving happines and self confidence through care and unlimited love