That dude, Michiel, is killing it! He's just like, "Yeah, I'm 20, whatever," and seems really healthy. He's also just an awesome dude. So is his sister. She just seems so chill; I like her.
@@skyvader1238 Nope, from the province of Limburg in Belgium. Both Belgium and the Netherlands have a Limburg province. In the Netherlands, it is called Noord-Limburg. That may have gotten you confused.
hi, all, I am 67 now, and when I was 13, a boy in my class looked a lot like Amalia. He was the son of our mathteacher, and his only child. We NEVER bullied him. We respected him. We knew he was differend. He did was not with us every day, but when he was, we felt that it was special. The next schoolyear he did not show up, We heard he moved. I still remember him with great respect.!!
When I was about 9 or 10, I became friends with a girl with progeria. Her name was Sabrina and she was the same age as me. We were only together for an hour, as we met on a ferry (I live in Denmark, so ferries are a common transportation method over here), so we only had one hour to play together. The reason we got to play was because my dad and her parents (or one of them, i don't remember) started talking, so me and Sabrina got bored and decided to play together, even though we didn't know eachother. We played in this huge playroom, with a playhouse shaped like a ferry in the middle of a big ballpit that had a slide on top of the ferry that led you straight down into the ballpit. Me and Sabrina went to explore the ferry-playhouse, and sat down and started asking eachother questions, usually just typical questions kids would ask eachother: what's your favourite animal, what's your favourite colour, where in the country to you live, do you have pets, and so on. When I got to ask her "why do you look like that?", she answered she was born with a disease that made her look much older than she really was. And my literal response was just "okay", and we kept on talking, playing and having fun. She was friendly, full of energy and was adventurous, just like I was back then, and that was all I cared about in a friend. We had so much fun together that day, I don't even remember saying goodbye to her when the ferry got to shore. I sometimes remembered her growing up, wondering why we didn't meet again after that day on the ferry. Now I'm 28, and have been thinking about Sabrina again. I'm feeling a bit weird, thinking that she might be dead now. Wherever she is, I hope she's still being her friendly, energetic and adventurous self. I still remember you, Sabrina! - from Ida
I’m writing a comment in hopes that Sabrina sees this and comments… I love happy endings and friendships that are so powerful that an hour together can withstand 10 years of not seeing each other… great story thanks for sharing and I would hope most kids with strong family values and good parents would do the same… most kids that are mean and bully usually come from effed up homes and that’s how they feel like they have some power in their lives or they do to kids what gets done to them to try and understand why
@@kimberlyel82 Thank you so much for your kind message! And yes, even though almost 20 years (not just ten!) have since passed, I still remember her fondly, even though we only had one hour together, as that is the approximate time it takes for a ferry here in Denmark to reach another shore. I don't remember exactly what she looked like, sadly, as I only remember that she looked like a middle-aged woman even though we were both only 9 or 10 years old. My memories of her are strengthened by how full of life she was; she was energetic and fun, loved to talk and loved to explore the playground inside the ferry with me. I'm autistic myself, so I was really bad at making friends, and she was one of the very first kids that wanted to play with me, not once asking me why I was 'weird'. Maybe she just didn't notice; just like I didn't pay too much attention to what she looked like. I'm now 29, and still remember the sense of (too shortlived) adventure she brought me. She was really cool, and I'm still thankful to her for wanting to talk and play with me that day :) sorry for the super long comment lol, I got a bit emotional tbh
im so sad Adelia just recently passed away. It is so nice having come across her video as I followed her on FB for many years and just loved watching her grow up. May you rest in heaven princess. You are missed by millions.
saeed mookrey I’m talking about the young man that’s in the video 🤦🏽♀️ you clearly didn’t watch the whole thing. It’s a young man and he’s sister 🤨 HE’s name is Michiel and he said he’s goal was to reach 30.
No offence, but 95% of the comments are giving love ❤️ to Adalia.... but no love to the others ? This video isn’t just about her, we should be giving love ❤️ to all of them! They are all beautiful 💕
Adalia was an AMAZING, BRIGHT, ENERGETIC little soul! What I enjoyed most was she was her OWN PERSON, she knew her own mind and she let every one know it. She had a wonderful out look on life even when she knew what would eventually happen, STRONG, STRONG soul. She is in a place now that is BEYOND ALL comprehension to all left here on this planet and she is LOVING IT!!! So mom, dad, brothers, do not mourn to long for she is EXCELLENT hands and you WILL see her again, NEVER FRET!!! GOD BLESS ALL he children with Progeria!
wow Tiffany is 40 years old? that’s awesome not to mention she’s so active and successful running her own business, i love that. Best wishes for her i hope she’s able to carry on this lifestyle for the end of her days. what a great soul ❤️
I like Michiel a lot, he seems to be a rly chill dude and his sister Amber seems so intelligent for her young age. They are a powerful team. They both must be an enrichment for anyone who can call them their friend.
I really feel bad for their parents. I can't imagine how it would feel to love your children so much but know they won't be around as long as you. That is so heartbreaking.
I dont agree.Your saying that we should feel guilty because we were born "normal" We take our" normal" for "granted" thats not true at all.We are all born the way we're born and we live ours days.The ppl born with handicaps,their lives are their "normal"So everybodies "normal"in their own way.
sandi sandii definitely not saying we should feel guilty we should feel lucky any of us could have been born with a life altering disease or disability but we weren’t we’re normal we don’t have to go through the struggles they do and we complain about our lives. some people do take their perfectly healthy body for granted and don’t understand how some people just wish they could’ve been born that way. but no it’s true we’re born how were born and nothing can change that.
@@emylerauseo I dont complain about my life,i never have.If you talked to the not so "normal" ppl id bet alot of them would say that they're "lucky" as well.
Tiffany seems like she has a different degree of progeria than the others. William and his sister (I’m sorry I can’t remember her name) are so outgoing! I love their personalities! Sending lots of love to these incredibly strong people!
There have been a few documented cases where people with progeria have lived well into their late 20's, early 30's. So a lot of this depends on how hard their bodies are taking the hit. She is such a beautiful angel and such a inspiration! 💖❤️🙏💞💜
Tiffany is living my dreams. Dancing, recycling, candle making, yoga, and the most positive outlook in the world. The way she has moved on and learned from her brother’s passing is inspirational. The world would be a better place with more people like her.
I'm so sorry for your family's loss, your daughter Adelia was so precious and full of love for her beautiful family. I have enjoyed watching all of the videos threw the years. Yall need to continue with home videos. I adored you Amelia, you show those young teenagers in heaven how to be a diva, how to dance, and tweak. You will be missed darling. I'm praying for your amazing mom and dad, and your 3 brothers.
I will first start by saying I am so sorry for the loss of yet another loving child. I watched her & her mother & saw the energy...& love she had. God bless you all. For the others that have this in their family I too hope one day there will be a cure for this...or at least have a drug that can prolong their lives. God bless you all.
Adalia eating the chip in slow mo while her mom was talking...I literally laughed out loud ~ we all know true divas have a great sense of humor...Queen 👑
The Belgium siblings have such an amazing bond. I Love, love that they have each other, only people with the same diagnosis know what the others go through. Also, good on those kids who've befriended them. They look so happy! ❤
There are so many comments about Adalia so I decided to comment on everyone else. I found the brother and sister story to be very interesting. I can't imagine how it would be for the parents, because progeria is so rare as they mentioned. There are different forms of progeria but it seems like these siblings have a type that isn't as intense on the metabolism. The fact Amber's face is still very round and full is a really hopeful sign that she'll be able to live a longer life like Nikhil. I think their perspective that they shared is really positive but also very true, that for all of us (with progeria or without) life is already too short. They have had to come to terms with their mortality at a younger age and it seems to have had a positive effect on their ability to enjoy life. I also liked that they were really close despite being 8 years apart, even hanging out with the same group of friends. I wish I had that with my siblings when we were younger. I was really happy to see Tiffany, because we know that exercise can help with the aging process but it seems there are many limitations with progeria that can limit the ability to exercise. It was amazing to me that she was diagnosed as late as her 20's, despite having a brother with it. But their mother also has progeria, but a very mild case of it...so mild, that apparently others may not have noticed it. It made me wonder how many people actually have progeria but aren't diagnosed. I loved Challi's story. I think with progeria, we often focus on how different the person is...but this was just about how average Challi is. Not popular but still had friends in school, found love and got married, used her older looks to get alcohol for herself and her underage friends...I feel like that's just such a typical life and it was great to see this aspect of it...just a totally regular person enjoying their life without having to worry about dying before they were 20, or being go-go-go like Tiffany. I admire Tiffany and identify with them most, but it was still great to see Challi.
I'm just amazed at how positive, upbeat, loving and caring people with progeria are. They are a gift to the World who sadly don't spend the amount of time on this earth that they truly deserve :(
RIP Adalia Rose 🌹 Ride off to paradise on your colorful sparkly unicorn 🦄 and DANCE DANCE DANCE to all the music that you love so much. You will be ever so missed. The stamp you left on this Earth broke all barriers, crossed all countries and every ocean. Your life has had such meaning to so many of us who have watched you throughout the years. Great big hugs to your mommy and daddy especially and of course your brothers too. One day way too soon I will be in your mommy's shoes from the loss of my daughter who has a terminal genetic condition that has yet to be diagnosed. Having been so taken by you, the loss of you makes our fate feel so much more imminent. My heart is so broken for your family. You aren't sick anymore and you aren't in pain, you are at peace. What a precious soul you are and I hope you'll be there to greet my daughter when it's her time to join you. ❤️
I would have never guessed tiffany was 41. She seems much more like she's in her 20's! She might have an aging disease, but it seems like her energy and personality are 20!
You know, even IF you have progiria, I think it is really cool, stay yourself, and, no matter WHAT people say, you are amazing and, everyone has something that makes them special, consider your condition as what makes you different, and that's good! No matter what, no matter who or what you face, you ARE important
I support this couple 100% ! They found each other and found love between them. May you have a long and happy life together ! Bless you both , god is on your side !
As a mum who has lost her toddler to a genetic mutation causing brain cancer, I would tell these parents to enjoy every moment. Take tonnes of photos and videos and just love these beautiful kids every single moment ❤
This is a story of a true hero. God bless Adalia's parents for giving their gift from God a wonderful family life while she was on earth. Rest in peace little angel.
Parents who have children with a special need or condition are incredible because they have to be even stronger knowing all They know and giving their children the life they deserve ❤️ amazing parents God bless you all ❤️
These kids are so badass they are amazing and people with conditions like this teach people empathy on another level cuz they suffer a lot more than the “normal” bunch
Oh my god. She has 1000% confidence. Watching this in my dark days. Her sparkling energy have just infected me. My confidence is growing. Lovely girl just makes everything lovely.
Adalia is beautiful, incredible bubbly, and full of light. Her humour is unmatchable. She is a true God given gift to this world! God bless Adalia and her family!
My ex husband's cousin Greg had Progeria. He was also mentally affected. He lived to be 32 years old. He couldn't walk or talk but he loved girls and football. He had many, many seizures a day the last 5 months of his life. He was a joy to know and love.
TIFF! omg girl!!!! im so opposite of you and it makes me sad to think of how much i dislike myself and complain about my life when ive in reality had it so easy and you've endured so so much more! And yet you're still the smiling bright and beautiful person that you are!!! oh my gosh how you inspire me! thank you!
I was in first grade with a lil lady who I assume had this. She was scared of everything I wish her mom and dad had been this strong your giving her a beautiful life.
So many wonderful people with amazing,loving,caring families! They are so brave and have so much to give to this world. We all should learn something from all of these marvelous people.
So small in size but so so tall in every other way. They have more positivity, more determination, more passion than the 10’s of millions born without progeria put together! I pray for everyone in this doco that they may live as long as possible and continue to spread joy. This is 2 years old now. I know adalia is 14.5 years old now. Are the others still with us?
She is really hilarious! I know that video is on UA-cam and I think she really didn't want to talk about her eye so she entertained herself for a min and started to eat her chips. She is truly hilarious!! We love you Adalia and also everyone on this video living with progeria.🌼
@@alexiacutkelvin4881 how? The agony is losing her/having so little time with her. And lived past tense? She’s still alive and doing fine as far as I know
@@IceFox606 exactly the life expectancy of some kids is 13 but she lives passed that age so parents know that she is healthy and is still fighting but somehow lived passed the life expectancy so they know they won't have to worry about loosing their little gorl
That dude, Michiel, is killing it! He's just like, "Yeah, I'm 20, whatever," and seems really healthy. He's also just an awesome dude. So is his sister. She just seems so chill; I like her.
I thought I recognized Michiel before watching the video. Michiel and his sister Amber are very well known in Belgium.
@@Froggy1964 they are from Holland.
@@skyvader1238 Nope, from the province of Limburg in Belgium. Both Belgium and the Netherlands have a Limburg province. In the Netherlands, it is called Noord-Limburg. That may have gotten you confused.
💚💚💚💚
hi, all,
I am 67 now, and when I was 13, a boy in my class looked a lot like Amalia.
He was the son of our mathteacher, and his only child.
We NEVER bullied him. We respected him.
We knew he was differend.
He did was not with us every day, but when he was, we felt that it was special.
The next schoolyear he did not show up, We heard he moved.
I still remember him with great respect.!!
Beautiful story. You and your class made that boy's life a little bit easier by treating him with respect.
9eut
Respect to people like YOU"! 🙌
Ok boomer
"Moved"
She's 10 times more confident than I was when I was her age. Bless her parents
Lol she's 10x more confident than I EVER was.
RIP Adalia. A strong young girl.
You'll be missed always
This is very sad and she was a very great person and she will be miss
She was such a character. I miss her already.
@@luckyroxie157 i still miss her "shimmy" I used to watch her vids. I miss her too
She is the symbol of greatness and kindness
"Every little girl is a princess" -The Secret Garden (I think...correct me if I'm wrong)
I think people like this are the strongest...The parents especially.
Yes. They are a adorable family.
True
Yes you are correct
Yes
Exactly
When I was about 9 or 10, I became friends with a girl with progeria. Her name was Sabrina and she was the same age as me. We were only together for an hour, as we met on a ferry (I live in Denmark, so ferries are a common transportation method over here), so we only had one hour to play together.
The reason we got to play was because my dad and her parents (or one of them, i don't remember) started talking, so me and Sabrina got bored and decided to play together, even though we didn't know eachother.
We played in this huge playroom, with a playhouse shaped like a ferry in the middle of a big ballpit that had a slide on top of the ferry that led you straight down into the ballpit.
Me and Sabrina went to explore the ferry-playhouse, and sat down and started asking eachother questions, usually just typical questions kids would ask eachother: what's your favourite animal, what's your favourite colour, where in the country to you live, do you have pets, and so on.
When I got to ask her "why do you look like that?", she answered she was born with a disease that made her look much older than she really was. And my literal response was just "okay", and we kept on talking, playing and having fun. She was friendly, full of energy and was adventurous, just like I was back then, and that was all I cared about in a friend. We had so much fun together that day, I don't even remember saying goodbye to her when the ferry got to shore. I sometimes remembered her growing up, wondering why we didn't meet again after that day on the ferry.
Now I'm 28, and have been thinking about Sabrina again. I'm feeling a bit weird, thinking that she might be dead now. Wherever she is, I hope she's still being her friendly, energetic and adventurous self.
I still remember you, Sabrina! - from Ida
Awh :(
I’m writing a comment in hopes that Sabrina sees this and comments… I love happy endings and friendships that are so powerful that an hour together can withstand 10 years of not seeing each other… great story thanks for sharing and I would hope most kids with strong family values and good parents would do the same… most kids that are mean and bully usually come from effed up homes and that’s how they feel like they have some power in their lives or they do to kids what gets done to them to try and understand why
@@kimberlyel82 Thank you so much for your kind message! And yes, even though almost 20 years (not just ten!) have since passed, I still remember her fondly, even though we only had one hour together, as that is the approximate time it takes for a ferry here in Denmark to reach another shore.
I don't remember exactly what she looked like, sadly, as I only remember that she looked like a middle-aged woman even though we were both only 9 or 10 years old. My memories of her are strengthened by how full of life she was; she was energetic and fun, loved to talk and loved to explore the playground inside the ferry with me. I'm autistic myself, so I was really bad at making friends, and she was one of the very first kids that wanted to play with me, not once asking me why I was 'weird'. Maybe she just didn't notice; just like I didn't pay too much attention to what she looked like.
I'm now 29, and still remember the sense of (too shortlived) adventure she brought me. She was really cool, and I'm still thankful to her for wanting to talk and play with me that day :)
sorry for the super long comment lol, I got a bit emotional tbh
@@krystallvinter7438 xoxo I enjoyed reading it
I'm so sorry. I hope you find her soon. Good luck
That brother and sister duo is super sweet. 20 years old is amazing. Beating those odds and fighting so hard. Such incredible souls.
I would be honored to be a friend to each and every one of them!
Your such a good boy wee yin ❤️❤️❤️❤️❤️
@@lindahandley5267 .
The guy is now 23, so that's amazing
@@lindahandley5267 0
im so sad Adelia just recently passed away. It is so nice having come across her video as I followed her on FB for many years and just loved watching her grow up. May you rest in heaven princess. You are missed by millions.
Yeah...
People love people just the way they are
חמד
נויה
“Are you really gonna film me while I am blowing my nose?” Adalia is such a mood 😂
😂💕
She is so sassy. I have an 11 year old that would get along were her great
6:06
@Khaistah Rose Amin are u Iranian?
@Khaistah Rose Amin oh ok
When he said he’s goal was to reach 30 my heart broke 😥
It's a she not a he
saeed mookrey I’m talking about the young man that’s in the video 🤦🏽♀️ you clearly didn’t watch the whole thing. It’s a young man and he’s sister 🤨 HE’s name is Michiel and he said he’s goal was to reach 30.
@@mannequinn_made420 actually i had watched the whole video but sorry for the misunderstanding😬
@@mannequinn_made420 his not he's plz
The story after, she was in her 40's.
No offence, but 95% of the comments are giving love ❤️ to Adalia.... but no love to the others ? This video isn’t just about her, we should be giving love ❤️ to all of them! They are all beautiful 💕
You are kind you me happy😭
Exactly
No not really, there's comments about all of them. I love all of them, there so brave!!
That's not what I see.
No that’s not what I see there comments about all of them duhhhh
Adalia was an AMAZING, BRIGHT, ENERGETIC little soul! What I enjoyed most was she was her OWN PERSON, she knew her own mind and she let every one know it. She had a wonderful out look on life even when she knew what would eventually happen, STRONG, STRONG soul. She is in a place now that is BEYOND ALL comprehension to all left here on this planet and she is LOVING IT!!! So mom, dad, brothers, do not mourn to long for she is EXCELLENT hands and you WILL see her again, NEVER FRET!!! GOD BLESS ALL he children with Progeria!
The brother and sister love for each other is beautiful
delilah baxley I love my sister so much too
Can't relate 😅
It truly is
True
❤️❤️❤️❤️❤️🌟
wow Tiffany is 40 years old? that’s awesome not to mention she’s so active and successful running her own business, i love that. Best wishes for her i hope she’s able to carry on this lifestyle for the end of her days. what a great soul ❤️
63jr
I think she probably has Warner syndrome, there are 2 main kinds of progeria
She seems to have a mild case.
I've seen a russian teen who was 16 but looked 75.
Shed wear makeup and date like a teen, got married, and had a child
People with progeria are only supposed to live for like 12 years he's doing really good
I like Michiel a lot, he seems to be a rly chill dude and his sister Amber seems so intelligent for her young age. They are a powerful team. They both must be an enrichment for anyone who can call them their friend.
The siblings with progeria are so well behaved and have such a mature attitude to life. Best wishes and God bless you.
Attitude is everything ...
I really feel bad for their parents. I can't imagine how it would feel to love your children so much but know they won't be around as long as you. That is so heartbreaking.
Us people born able bodied don’t know how lucky we are and we take it for granted
I LIKE IT☺👍👍👍👍💞💟
Im born a little diffrent i was born double jointed (only 20 percent are double jointed)
I dont agree.Your saying that we should feel guilty because we were born "normal" We take our" normal" for "granted" thats not true at all.We are all born the way we're born and we live ours days.The ppl born with handicaps,their lives are their "normal"So everybodies "normal"in their own way.
sandi sandii definitely not saying we should feel guilty we should feel lucky any of us could have been born with a life altering disease or disability but we weren’t we’re normal we don’t have to go through the struggles they do and we complain about our lives. some people do take their perfectly healthy body for granted and don’t understand how some people just wish they could’ve been born that way. but no it’s true we’re born how were born and nothing can change that.
@@emylerauseo I dont complain about my life,i never have.If you talked to the not so "normal" ppl id bet alot of them would say that they're "lucky" as well.
Can’t imagine how difficult it was for Tiffany to be diagnosed in her late 20s
Michiel and Amber have the best sibling relationship I've ever seen!
Ιωάννα Ν. I ikr
I know it is so cute
Ever since I was a kid, watching documentaries with people with Progeria makes me emotional 🤦🏾♀️😩 Just wanna give them hugs! ❤️
Yea
Not too tight!
CircleOfSorrow But of course not 🤗 lol
Then you watched life according to Sam? My heart 💔
I cried when i watch this, no no, i mean I CRIED so bad. They’re such an inspiration, and i’m proud of them💖
Tiffany seems like she has a different degree of progeria than the others. William and his sister (I’m sorry I can’t remember her name) are so outgoing! I love their personalities! Sending lots of love to these incredibly strong people!
Yes
Sam who had progeria died couple years ago🙏🏽🙏🏽❤️he lived to age 17 so don’t listen to doctors when they give u a death date
Am I right they always mess that part up.
ehottie8979 sometimes u do though
Amen!!💙
There have been a few documented cases where people with progeria have lived well into their late 20's, early 30's. So a lot of this depends on how hard their bodies are taking the hit. She is such a beautiful angel and such a inspiration! 💖❤️🙏💞💜
@@purplestingstress amen!!!
Im so amazed because adalia is really smart even she is only 10
Now she is almost 13 this December!
@@laughable7438 huh? December? It's May 😐
@@apples2962 in December 2020 she turns 13 years old
Elizabeth Holmes yep
Ninda Chesteille what about the other people
Tiffany is living my dreams. Dancing, recycling, candle making, yoga, and the most positive outlook in the world. The way she has moved on and learned from her brother’s passing is inspirational. The world would be a better place with more people like her.
She even moves like a dancer...so graceful and feminine.
Which brother passed ?
@@Ieo2249 ❤️❤️❤️❤️❤️💕💕💕💕
@@lindahandley5267 ❤️❤️❤️💕💕
❤️❤️❤️❤️
I'm so sorry for your family's loss, your daughter Adelia was so precious and full of love for her beautiful family. I have enjoyed watching all of the videos threw the years. Yall need to continue with home videos. I adored you Amelia, you show those young teenagers in heaven how to be a diva, how to dance, and tweak.
You will be missed darling. I'm praying for your amazing mom and dad, and your 3 brothers.
The boy with his sister is so nice to his sister my brother be pillow fighting me and waking me up early
Me to
My brother and I don't even talk.
Sheryll Aba Damn that's too bad, I love my sister so much we would never fight
Do you like stranger things??
Im willow im using my moms phone sometimes i get grumpy coz my bro use my moms phone
The siblings are wonderful. I just love how they enjoy life and how they are surrounded by friends. May they fulfill all their dreams
That boy is 20, they say that people with progeria die around the age of 12
There are 2 girl and 1 boy in that video
What
These people how the surwer at age 20. This is very individually
Who?
Adalia is 13 in December
Hayley okines lived to about 17-19 years old
I will first start by saying I am so sorry for the loss of yet another loving child. I watched her & her mother & saw the energy...& love she had. God bless you all. For the others that have this in their family I too hope one day there will be a cure for this...or at least have a drug that can prolong their lives. God bless you all.
Adalia eating the chip in slow mo while her mom was talking...I literally laughed out loud ~ we all know true divas have a great sense of humor...Queen 👑
Yes, and so much smarter then her years.👍🏻👍🏻👍🏻🙏🙏🙏🙏💚💚💚💚😘
It made me laugh and next second I got up grabbed the packet of Pringles and started doing it and my bro just told me of
Yes, so funny … wouldn’t it have been awesome if Adalia could have met both brother and sister … think she may have had a crush ….💗
@@billiewilson4135 unfortunately she died a few days ago 😔
The Belgium siblings have such an amazing bond. I Love, love that they have each other, only people with the same diagnosis know what the others go through. Also, good on those kids who've befriended them. They look so happy! ❤
Hello Crystal 😊😊
Dawww! I love the Brother and sister! Such a rare thing to happen twice for a family! That's kind of magical that they have each other!
❤️❤️💕💕💕
I adore this brother, sister duo. What a loving family. 👍🏻👍🏻👍🏻🙏🙏🙏😘💚
There are so many comments about Adalia so I decided to comment on everyone else.
I found the brother and sister story to be very interesting. I can't imagine how it would be for the parents, because progeria is so rare as they mentioned. There are different forms of progeria but it seems like these siblings have a type that isn't as intense on the metabolism. The fact Amber's face is still very round and full is a really hopeful sign that she'll be able to live a longer life like Nikhil.
I think their perspective that they shared is really positive but also very true, that for all of us (with progeria or without) life is already too short. They have had to come to terms with their mortality at a younger age and it seems to have had a positive effect on their ability to enjoy life. I also liked that they were really close despite being 8 years apart, even hanging out with the same group of friends. I wish I had that with my siblings when we were younger.
I was really happy to see Tiffany, because we know that exercise can help with the aging process but it seems there are many limitations with progeria that can limit the ability to exercise. It was amazing to me that she was diagnosed as late as her 20's, despite having a brother with it. But their mother also has progeria, but a very mild case of it...so mild, that apparently others may not have noticed it. It made me wonder how many people actually have progeria but aren't diagnosed.
I loved Challi's story. I think with progeria, we often focus on how different the person is...but this was just about how average Challi is. Not popular but still had friends in school, found love and got married, used her older looks to get alcohol for herself and her underage friends...I feel like that's just such a typical life and it was great to see this aspect of it...just a totally regular person enjoying their life without having to worry about dying before they were 20, or being go-go-go like Tiffany. I admire Tiffany and identify with them most, but it was still great to see Challi.
These parent's are blessed with angels that God sends them.
I have never heard of someone like Tiffany and Chad to have this not be noticeable until your 20s is absolutely incredible!
Imagine being a parent of a child with progeria. This is so hard to think of.
I know. I really admire the strength they must have.
I'm just amazed at how positive, upbeat, loving and caring people with progeria are. They are a gift to the World who sadly don't spend the amount of time on this earth that they truly deserve :(
“She says, she thinks you’re cute”
that is the sweetest thing i’ve ever heard
Adalia is so cute!💜🥰
Btw her bed is so cute like her🥰😊
Aww your so kind
🤢
@@som3body749 ≥:v!!😒(^._.^)ノ🔪
@@coffeuvu9010 What are you trying to tell me?
Johnny Blaze shes trying to tell u that you're just a jerk,and youre mean to adalia😠
“Are you really gonna film me blowing my nose?”
😂😂😂😂
Rude
احاااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااااا
She is Cuter Than you
Like you Scream Like a Turkey
Mia Dulcely Martinez 😂😂😂 I just quote this and here I’m i seeing the same comment
RIP Adalia Rose 🌹 Ride off to paradise on your colorful sparkly unicorn 🦄 and DANCE DANCE DANCE to all the music that you love so much. You will be ever so missed. The stamp you left on this Earth broke all barriers, crossed all countries and every ocean. Your life has had such meaning to so many of us who have watched you throughout the years. Great big hugs to your mommy and daddy especially and of course your brothers too. One day way too soon I will be in your mommy's shoes from the loss of my daughter who has a terminal genetic condition that has yet to be diagnosed. Having been so taken by you, the loss of you makes our fate feel so much more imminent. My heart is so broken for your family. You aren't sick anymore and you aren't in pain, you are at peace. What a precious soul you are and I hope you'll be there to greet my daughter when it's her time to join you. ❤️
Every time a see her the(diva) I want to cry course of her cuteness, I feel so good seeing her. Lots of love from Africa.
I love you so much
What country ?
I would have never guessed tiffany was 41. She seems much more like she's in her 20's! She might have an aging disease, but it seems like her energy and personality are 20!
I knew she was in her 40s as soon as she made a soy candle out of a beer bottle. Lol.
@Bryanna B ye
To get to 40 with projeria is absolutely miraculously incredible!
Adalia: "Because I'm a diva".
Me: YESSSSSSSSS HONEY 🔥💞
YASSSSSS QUEEN WORK IT❤️❤️❤️❤️🦄🦄🦄🦄🌸🌼🌸🌼💐💐💐
You know, even IF you have progiria, I think it is really cool, stay yourself, and, no matter WHAT people say, you are amazing and, everyone has something that makes them special, consider your condition as what makes you different, and that's good! No matter what, no matter who or what you face, you ARE important
What O_O chill
So sad that she is gone she was a brave and precious girl and her family is amazing. ❤❤❤
Who else wants to see what the camera man looks like now? 😂😂😂
I know
I bet you he's cute
I was thinking that 😄
@@devinefletchermalcolm8952 she
Mehh
I support this couple 100% ! They found each other and found love between them. May you have a long and happy life together ! Bless you both , god is on your side !
That last story was so sweet. It made me feel so happy to hear that she's happy.
As a mum who has lost her toddler to a genetic mutation causing brain cancer, I would tell these parents to enjoy every moment. Take tonnes of photos and videos and just love these beautiful kids every single moment ❤
I am so sorry for your loss😢💕💕
Now I'm curious about the cameraman 😉
Lol. Me too.
Roxan Ss me too.
Elle XDD
Just how cute is he? ???????? Lol!!!!!
I'm not that curious tho :/
Adalia is such a precious girl, I seriously hope she lives for a while. She seems so sweet, stay strong girl!
Your an amazing child, and just because your different it doesn’t change how beautiful you are!
This is a story of a true hero. God bless Adalia's parents for giving their gift from God a wonderful family life while she was on earth. Rest in peace little angel.
"I like to play with my brothers 😁... But sometimes I get a little grumpy soooooo... I guess not"
Me: 😂
It'sTori •w•
Shes so cute 🥺💖
ya'll have been posting the same video every year since like 2016. Adalia is now 13 years old and very much alive
Adalia will be 13 this year, but she's still 12 now.
JamaicanRain my bad, for some reason i thought her birthday was in june
JamaicanRain yeah
honey Ikr she is strong ♥️
Parents who have children with a special need or condition are incredible because they have to be even stronger knowing all
They know and giving their children the life they deserve ❤️ amazing parents God bless you all ❤️
@Kaylie Hogan Well said 👏
I needed that today..Thank you doll
Adalia’s mom can be a bit much
RIP Amalia.. you are the brightest star in the sky now.. So sad for her family and friends.. My condolences to them!!! xxxx
Anyone else think there all so beautiful?❤️
Dilated Skittlez definitely some of the most beautiful people in the world
Because they are
She can be charming, that’s for sure.
And they have those tiny cute voices
@Sassy Queen yes
How can your heart not be warm with these little angels?
These kids are so badass they are amazing and people with conditions like this teach people empathy on another level cuz they suffer a lot more than the “normal” bunch
Awesome parents, to give unconditional love, R.I.P Adalia.
This vid made me cry, I just want yo crawl through the screen and give her a hug, for how brave she is
6:06 “are you really going to film me-blowing my nose”😂
🤣🤣🤣
😆
Of course-
Jk-
I remember when the oldest you could live with progeria was 13. Now it’s 26 that’s amazinf
RIP young Adalia. The world was so colorful with you in it!
Everyone is beautiful and has their own unique personality
I love you your BEAUTIFUL
Yeah plus prettys on th inside
Adalia Rose is one of the most free spirited, beautiful little girl in the whole world. She is humorous and lovely. How could anyone be scared of her?
The sister and brother are sweet for sharing their story also.. Very smart handsome young man. The sister is so adorable.
Best part when she thinks the camera man is cute
Ikr?? So adorablee.
Frr tho
PRINCE SHAMIYAH144 its cute it has nothing to do with what she has but with her age and that she is so honest and pure.
HIIIIIIIIII
Ik it’s so cute!!!
Oh my god. She has 1000% confidence. Watching this in my dark days. Her sparkling energy have just infected me. My confidence is growing. Lovely girl just makes everything lovely.
So inspirational!!! I adore people with beautiful souls that remind me just how great it is to be alive!
Tatum Hontz exactly👏👏👏, we’re all so quick to take life for granted.
부지방탄BoujeeBangtan we all do that, right. But then people come into our life when they do to put things in perspective.♥️
Tatum Hontz 100% agree💓
부지방탄BoujeeBangtan she is so precious
Adalia is beautiful, incredible bubbly, and full of light. Her humour is unmatchable. She is a true God given gift to this world! God bless Adalia and her family!
This was a great documentary, showing different levels of progeria.
My ex husband's cousin Greg had Progeria. He was also mentally affected. He lived to be 32 years old. He couldn't walk or talk but he loved girls and football. He had many, many seizures a day the last 5 months of his life. He was a joy to know and love.
I am so happy for that little girl cause she is not stopping herself ♡
Bless her little soul, she’s sooo strong 💪🏼💜
This girl is so inspiring she will go down in history i’m telling you 🥰
Adalia loves life!! So adorable and I just love her voice. She could do voices for movies!!!
She has such a sweet voice 😍 m crying now 😢
Yes
All those children are gifts from God sent to special parents. Love to all of you, you adorable darlings.
TIFF! omg girl!!!! im so opposite of you and it makes me sad to think of how much i dislike myself and complain about my life when ive in reality had it so easy and you've endured so so much more! And yet you're still the smiling bright and beautiful person that you are!!! oh my gosh how you inspire me! thank you!
Watching this after her passing feels so weird, she's pain free now and resting. Such a beautiful soul, left too soon.
I was in first grade with a lil lady who I assume had this. She was scared of everything I wish her mom and dad had been this strong your giving her a beautiful life.
So many wonderful people with amazing,loving,caring families! They are so brave and have so much to give to this world. We all should learn something from all of these marvelous people.
I want to hug her so bad,am in tears she's so amazing
they are truly beautiful people, SENDING LOTS OF LOVE!
I love their tenacity. What an inspiration every single one of them are.
It is so hard for the parents when she said when it's nighttime that could be her last day that hit me but I love her she is so cute.
I watched one of Adalia's videos a while back and literally fell in love with her. She is a natural born performer and so funny!
Adalia... You are such an Angel!
With a huge heart, spirit, etc!
You look so cute with wigs!!!
I love Unicorns too ❤❤
The siblings stole my heart ❤️
🤮💩
Probably most people watch the first part. There's more special people in this video. Love them all
What a wonderful girl with a lovely heart. Her parents are the best. I wish nothing but the best for her and her family
So small in size but so so tall in every other way. They have more positivity, more determination, more passion than the 10’s of millions born without progeria put together!
I pray for everyone in this doco that they may live as long as possible and continue to spread joy.
This is 2 years old now. I know adalia is 14.5 years old now. Are the others still with us?
I love her so much. She has a big huge personality not everybody does ....she's a very amazing beautiful baby girl
Her moms talking
And then she just starts eating a chip loudly
That cracked me up!!
Hilarious.
She's a MOOD
She is really hilarious! I know that video is on UA-cam and I think she really didn't want to talk about her eye so she entertained herself for a min and started to eat her chips. She is truly hilarious!! We love you Adalia and also everyone on this video living with progeria.🌼
I wish adalia could live forever like just a normal person ending her parents agony of losing her..😭
No one lives forever. We're all born dying. I'm sorry these kiddos have to known the pain of aging so soon though.
Well she lived till 14 so I gues she did end her parents agony
@@alexiacutkelvin4881 how? The agony is losing her/having so little time with her. And lived past tense? She’s still alive and doing fine as far as I know
@@IceFox606 exactly the life expectancy of some kids is 13 but she lives passed that age so parents know that she is healthy and is still fighting but somehow lived passed the life expectancy so they know they won't have to worry about loosing their little gorl
@Kelly Alexander i said she is still alive cant you read?
Great parents who raise them. Giving happines and self confidence through care and unlimited love