Emma's Success Story: recovery from PPPD and vestibular migraine, 24/7 symptoms & health anxiety
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- Опубліковано 28 чер 2024
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We're back with Emma, who is here to share her story of recovery from PPPD, vestibular migraine, debilitating 24/7 symptoms. Emma tells us that she suffered from health anxiety for a long time, and when the dizziness symptoms hit, they quickly became debilitating and terrifying. At her worst Emma was experiencing many different symptoms, including dizziness, visual issues, visual snow, tingling, numbness, pressure, insomnia, brain jolts, vomiting, trouble speaking and more. Thankfully, Emma is feeling so much better nowadays. In this interview, she shares what she did to recover and where she is today. Enjoy!
This video was referenced in the conversation:
When VRT is and is not helpful - • Ask Dr. Yo: which vest...
Here is the workbook Emma used: The Health Anxiety Workbook by Taylor Ham
Learn more about me on my website thesteadycoach.com
Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk.
00:00:00 Intro & about Emma
00:05:38 How everything started: symptoms reappearing after brief dizziness in 2019, multiple ER visits
00:11:27 The worst of the symptoms and all the testing: ENT, specialized vestibular testing, MRI, jaw massage
00:16:37 Wellbutrin helped her bring down her anxiety enough to address the PPPD, and she found a therapist with mindbody experience
00:22:22 More tests- POTS, vision tests for vision issues and visual snow
00:25:42 Symptoms: dizziness, vision issues, visual snow, brain fog, insomnia, jolting awake, brain pain, dissociation, nausea, vomiting, grip weakness, tingling, numbness, trouble speaking and more
00:28:12 What things were like at her worst and how family and friends made a difference
00:34:39 Other things that helped: yoga for confidence, self-compassion, self talk, reminders of how much better she's doing, working with her anxiety
00:41:27 All the diagnoses she thought she had before realizing she had NCD: POTS, ALS, MdDS, VM, MS, breast cancer, Lyme, mold exposure
00:46:04 How anxiety and the symptoms are linked
00:49:27 Where Emma is at today- living a normal life, going to dance classes, and getting better all the time - Розваги
Hi, I'm Emma's Mom and I can't tell you all how proud I am of Emma right now. Her composure and grace while sharing this difficult journey with you makes my heart both ache but also swell with love and pride. I know just how supportive her husband and friends have been thru all this as well. I'm glad that Dr. Yo has a platform that has helped Emma to such an extent and she now in turn can help others. Luv u Em!!
Love you! Couldn’t have made it through without you❤
So much love to both of you!! And the love and support I see here explains why Emma had so many skills and resources to overcome this.
Watching and listening to your story is like looking in a mirror. I've had the ENT, Brain MRI, 72 hour ecg, blood tests (low iron and vitamin D). I'm on a waiting list for Neurology (March 2025), I have an appointment with a chiropractor next Wednesday. I've had 3 eye tests. I'm sat here in tears watching this. I just want to be better! I can't cope with the content dizziness and walking on marshmallows. Migraines. I want to enjoy my kids 😢
@@asherssandy9983 I hear you…you are not alone.
Emma started journaling and keeping track of her "good" periods. Even if only a few mins. I know it helped her looking thru it as well as keeping that check list, timeline. It helps to take a bit of control even in small ways.
As your Dad, I couldn’t be more proud of you. Sharing how challenging this long difficult journey has been, I know, will help so many others. Your mom and I love you so much!!
How beautiful
I promise, your love and support have helped her in this journey. My parents are not like this, and it has made it much harder having to prove I don’t feel right when I look fine just to get support.
I’m SOBBING listening to this. Thank you so much for sharing Emma! Lately my symptoms are so bad I do feel suicidal at times. I’ve had dizziness, panic, DPDR, and other POTS & vestibular migraine symptoms for almost 5 years. I have had to move back home, I only work part time (getting to work is a battle every single day), I have no social life. I feel like a prisoner. I’m so happy to have found this channel. Everything I’ve heard resonates. I’ve been in the mindbody world for quite some time and I KNOW that’s what’s going on with me it’s just not clicking enough to get better 😭 I desperately hope this is the year I recover ❤ thanks for all you do here Dr. Yo
I know it will get better, there have been so many people just like you and Emma viewing these videos, it will not always be like this. Hang in there.
Oh my... This is exactly what I've been dealing with for the past 9 months. I am a second grade teacher and when Emma started crying about what it was like for her to go to work I lost it and cried with her. I completely get it.
I have been dealing with these issues since December of 2018. My story sounds so much like Emma’s. I am now 65 years old. It all started right before my 60th B-Day. I have been to Hell and back. What a journey it has been! I had a set back this week. I have been battling a pretty serious sinus infection. So I was back on the “Cruise Ship” yesterday. I have anxiety, PTSD, and chronic neck and shoulder pain. I woke up this morning in a panic. Hate when that happens. It took me awhile to accept my diagnosis of PPPD. I have many good resources in place now. I feel so grateful for that. What I don’t have is a family or support system that gets how hard it is on a daily basis to live with PPPD. Like Emma said: “It’s invisible to all around you”. Dr. Yo, I listen to your podcast almost daily. It is beyond helpful. Thank you so much❤
Dr. Yonit I've found this channel early in my journey. I am almost 2 months in realizing that my symptoms are anxiety, stress, and burn out related. I'm learning not to fear my symptoms but to roll with them. Hopefully I'll be one of your success stories.
YES! Thank you for sharing your story! I’ve been dealing with neural circuit dizziness since May 2023. I am so much better now. I’m living my normal life again. I’d say I’m about 90% there. Like you, I still have the walking issues but I don’t let it stop me. God bless you!!!!
Wow. Out of all the stories so far. This one. Spot on for me . Absolutely unreal
Health anxiety sucks!
It causes all of this and more.
30 year sufferer of health anxiety here.
What a beautiful story , I’m 76 and at this time I m going through this exact problem, but I’m feeling a little better I have anxiety and nerve problems, the only thing I didn’t do was an MIR, which my doctor recommend. I’m always feeling dizzy and imbalance , so as I’m listening this gives me hope to get it over . I do my yoga and Read my Affiirmationson a daily base and notice it’s helping me a lot thank youall very much Allah’Blessings , Actually I am a Muslim and fasting at this moment Salaam to you both
Hi Judy I 62 and feel the age has to take longer but I don’t think it does! It’s been a year for me but it been a rough road my thing is exposure some days are harder then others and I keep going Do you have visual symptoms eg: looking at tv, iPhone, computers and moving cars ??? I listen to dr Yonit videos and exercises but this visual part doesn’t want to comply ! Any thoughts
Ramadan Mubarak! Extra prayer and connection to other people are wonderful medicines.
Can so much relate to this thing being invisible to others. It just makes it so much more difficult for others to understand how debilitating this thing is. Just because they can't physically see it or have anything positive in your test reports. And the health anxiety thing just makes it so much worse. Thanks so much for making such videos.
Hi Kaustav, sounds great! How’re you doing now? ❤
this is my story to a T. even just hearing this brought me to tears because i had the same thought - that i was the exception!! I believed awful things about myself and that i was doomed to be stuck in this vicious loop of dizziness. I am also diagnosed with POTS and MCAS (two other disorders that affect the immune response and the nervous system) and even ith treatment for those i never got the dizziness to subside. i am still stuck, unfortunately, and have been for almost 5 months now, but this gives me hope. thank you for this, TRULY!!
You can get better too.
Thank you so very much for sharing your story. My symptoms started in November 2023. Feelings of tilting, swaying and as if there is sand in my head that moves ever so slowly to catch up when I turn my head. Due to all the, hospitalizations, tests and appts and Dr's telling me I'm normalIe suffered with health anxiety too. My list was almost the same as yours and I was 100% convinced it was what I had. My neurologist actually told me to increase my anxiety meds and see a psychiatrist that all this was In my head. I did stop taking anxiety med and started to feel better. My ENT finally diagnosed me with PPPD and Im currently in VRT and see a psychologist who is helping. I know the feeling of giving up bc I thought that every day. The past 2 weeks have been much better but I'm looking forward to having my life back. So happy for you and how far you've come. Be proud of yourself!
The sand in the head feeling is so so true for me too.. its really hard to explain to anyone.. does it get better?
YES!!! 🙌
❤❤thank you so much. I’m so glad things are getting better for you.
@@uzmanausheen5475 for me it has. It used to be every day 24/7 and now it's on and off most days but not all. I notice when my neck gets sore the feeling is worse. Very bizarre feeling. I hope you feel better. At least now I know I am not alone or going crazy. ☺️
@@TheSteadyCoach Thank you. Your videos have helped me tremendously. I thought I was losing my mind and felt so isolated bc Noone knew what was wrong. Knowing there are others out there like me has been comforting. Thank you for giving us hope.
Thank you so much for sharing! I can totally relate to all of the symptoms you described. I can relate to the tears and feeling like "I can't do this". Thank you Emma so much for the encouragement! I am sobbing right now but I am sure you understand!
These recovery stories help me feel so much better … I totally have almost all her symptoms list … two weeks ago had panic attacks everyday
Been going through this since 2020
Wow, Emma's story is probably the closest to mine. When she was talking about her darkest times it felt as she was talking about my darkest times. I'm also one year in and I'm also doing a lot better and I know we're gonna be at 100% soon. All of us. Thank you Dr. Yo and Emma for this video.
Currently having this issue again or STILL,hearing Emma's story , gives me hope....I haven't even hit the 6 month mark....continuing this IS hard....😭 hope and prayer is what I'm holding on too💜
Dr Yo is an angel, she also looks like one by the way
Thanks for sharing Emma ❤ one day I’m going to share my success story, it will be me too 😢
Honestly so helpful. Probably the most honest recovery vid I've seen.. shocked me cos its real and that's what happens!
This is my story, five years in! Thank you Emma, this has helped me so much
Emma! Thank you for sharing your story. I relate so much to you and I too am a teacher. Your experience at work and toying with taking a leave of absence hit home and made me tear up. My goal is to get on the steady coach one day and share my story ❤ so happy for you
Very similar to my story. Brain fog, derealiseation, weird vision problems, testing this and that. Mine all started after taking anti inflammatory medication (Dr Yo, have you ever heard of anyone getting balance issues from anti inflammatory drugs?)
I felt “out of it” for a month, didn’t work, wasn’t super anxious, well I feel like I was less anxious that I thought I would be given all the symptoms, I also had chronic “paradoxical insomnia” and lucid dreams for a month straight.
One of the most annoying aspects was trying to get the doctors to listen and take me seriously. They just kept thinking it was anxiety but it became clear to me after a while none of them had ever heard of PPPD.
Sooooo many things can set off dizziness, what I get very interested in (more than what started things) is what keeps symptoms persistent. That is often not the original stressor/drug/illness but rather the nervous system becoming hypersensitive to the initial symptoms
thank you Emma, teared up with you.
last year I commented how going to the movie theater made everything worse, but now I'm enjoying IMAX (Dune part two!) several times✨
I'm still working on the mild ups&downs, and feeling on a boat a little, but things changed A LOT in a year!!
Amazing to hear this!!
It’s the little things you get back over time… they’re special… happy to hear it ❤
Emma, thank you for sharing. I cried so much. I have MDDS right now and you gave me so much hope. I have anxiety too and hearing you helps me tons ❤
Idk have problems with my eyes, but I got it chech and change the lens and I’m surprise I having trouble to see sometimes , it’s a year already so I’m thinking of getting it checked again. Hope to get some relief soon but my imbalancing isn’t ease up as yet I’m limbering at time and as though I’ll fall. I wish to hear from you again.
Hi Dr.
IMO…and 20 years of PPPD..all the brain does is its job. If we hyper focus on every scary s/s and we will then the brain turns up the volume on whatever we hyperfocus on. Hyper focus is basically a habit and the only way to counter that bad hyperfocus habit is to refocus on life and living. I certainly wore out my brain and developed bad Brain fog….
After a long time with hyper over focus on symptoms I just quit living.
Focus on life right now. Do it anyway! You are still here..Focus on that! Just my journey!
Refocusing on life and living is a really important part of getting better!
Visual snow, Nice to Hear others see the static
Does your head feel fuzzy too when you have that?
@@suzannemartin6817 Yes, kinda
i can see emma's parents have commented on this video and i really wanna make my parents as happy and proud as emma's parents. tgey have been suffering for 5 yrs alongside me....i'm 24 and i'm abt to graduate from veterinary school but i haven't veen able to work as a vet for more than a week and dont gave any experience in the field. i even barely passed the practical exams for the major i prayed and worked hard for...i didnt drop out hoping it would all end soon but it's still here...now i'm so close to getting my degree but im not a vet and becoming one feels like a dream to me now that i can barely move...
Wow, thank you so much Emma for your vulnerability and strength and giving us so much hope 🥺🩷 And thank you so much Dr. Yo for fighting for all of us every single day! 😭❤️
You are very strong Emma.
I have been on this journey for a few years now and I have come such a long way. Dr.Yo was a huge help.
Thank you so much for sharing your story. I have all of your symptoms plus some. The difference is that my health anxiety paralyzes me and I can’t bring myself to go have a complete check. I’m working on it everyday and it’s super hard so I’m glad to see that ppl do get through it! ❤❤❤
I’m actually right in the middle of this, I got my vestibular neuritis diagnosis in March 2024 it’s April 2024 and so far I’m just trying to walk as much as I can I’m back at work so it was a little bit of a roller coaster and still is. I’m hopeful and thank God for these testimonies that have been carrying me along.
Emma. I am so glad you found your way.
Congratulations on your recovery.
It not easy I have cry with this story I still have hope
Great video Dr Yo, also congrats to Emma on her tough journey. Very well spoken and great details to everything. Love hearing/watching these stories.
Omg, after my MRI, they said I had MS. I was so stressed, my symptoms got worse. After a year of feeling like hell did diagnose me with vestibular migraine in December 2023. Did doctor put me on this medicine for 9 weeks that did not work. I am going back to the neurologist on April 16th . I hope I find some answers. I am so happy for you I am hoping to get what you are soon
Needed this today, thank you for sharing and congrats Emma
Loooooove your interview
The entire interview resonated fully with me! WOW! Can't explain how your journey is similar to mine Emma! Thank you for your courage to share your story with us, Wish you all the best! Thanks, Dr.Yo for the success stories!
Emma, I don’t think I’ve related to someone’s story more. I’m currently dealing with quite the dip and have been feeling so low. Seeing how far you’ve come after saying you’ve been here too has really pushed me to keep reaching for the light. I hope you know just how special your story is and how being brave enough to share it has helped at least one person keep going.
Thank you so much for sharing. You are so strong Emma! I think I can relate to these symptoms at one point or another 😢it’s very hard
Thank you for this. Health anxiety absolutely sucks. I’m over the worst, but am relapsing a bit right now after a dizzy episode last week. I’ve also had MRIs and absolutely fear the worst, always looking out for other conditions I might have. I am absolutely petrified of lying flat on my back after having years of untreated bppv. (Treated now). My brain is so wired to expect dizziness. Hearing these positive stories really really helps, thanks for sharing, Emma.
Loved hearing the timeline! Please do keep sharing those in success stories . And just your whole story was So very well articulated. Gives much hope to all of us!
Thanks Emma for articulating your journey with such clarity and awareness. Your bravery is inspiring.
Well done Emma ❤
This was a beautiful story and i can resonate.
Definitely this is not just anxiety and in our heads, because our journeys are so similar. 💫💜
Oh Emma, I 100% identify with your journey!
I also needed to go through like a dozen of different doctors to make sure I am not dying, as I had (and still have) extreme health phobia.
So glad for your recovery, keep up the good work! ❤🎉
Oh Emma thank you for sharing your story. You inspire me to keep going
Oh emma:( we have such a similar story. you are such a light in my recovery process. I will definitely be coming back to this video often. sending so much love and appreciation for you and dr yo
Amazing ❤I’m currently in the same boat but hopefully one day I can share with you my recovery story as well 🥲♥️
These videos are my lifeline ...i watch them all and learn so much ..best part is knowing im not alone on this ..
More coming!!! Just wait!!!
Thanks Emma and Dr Yo, I do appreciate all this information
I have been diagnosed with VM and BPPD and severe anxiety
The light headedness dizziness and pit of body feeling is so bad I struggle to leave the house now. It’s so good to hear there is hope x
Research actually shows that when people have a lot of anxiety, they often respond to treatment BETTER - just need to work with that anxiety! There is so much hope for you.
Thank you so much , so inspiring. I really needed this , it’s been rough lately and it’s a day to day thing , like the idea of little things , and looking at the day ahead with anticipation and joy , again thank you and praying you keep moving ahead ….. thought I was good but this thing is a daily struggle 🙏🏼
Very relatable , thank you for sharing your story Emma. Stories like this can save a life. Thank you Dr. Yo ❤
I am a middle school teacher with five years and 8 months into MdDS. I leave at 7:05 am and after bus duty, I leave about 4:20 pm daily. I am really an actress at this point. Not one moment of stillness as I am still on the plane. I am very happy when people get better. The struggle is real, and it sucks.
YES! You said exactly what I feel a lot of the time: I’m an actress TOO!!!!! 9+ years of so much “fun.” Thank goodness I found this channel and Dan Buglio’s too. Maybe with some more time and focused-relaxed patience, I can start winning. You too!❤
Hearing your story will help bring bac my confident cause ever since i started having the same problem from last year may ,but i was able to live with it.Jan 2024 it become worse could"t walk i would fall ,panic attacks too At Hospital they found Inner Ear Infection. .Now ever since i started watching Dr Yo i'm much better doing Verstibular Exerises just scared to walk distances i'm scared but i know one day i'll overcome the fear.Thannk you Dr Yo for giving Us hope And you too Emma .Writting from South Africa
Dont be scared to walk, it is so good for our healing
Emma I live in Longview WA and deal with chronic dizziness since 2018 :)
Hi! I live in Everett. 😊
Dear Emma, Thank you for sharing your story that inspires hope and strength.
I've been having symptoms of mild dizziness for over a few years (and I told myself it's mental, I will just ignore it, it didn't bother much). But a year and a half ago the dizziness increased, I feel dizzy and unsteady 24/7. I went to countless tests and about a month ago I did the CVEMP test where they saw pathological asymmetry on the left side in 70%. And I was also diagnosed with vestibular migraine. They told me to start physical therapy and watch videos with moving elements. I haven't started treatment yet, I feel like I don't have the strength to be disappointed again after all the things I've tried. Although there is something physical here, I still believe it is based on something mental. I would be happy for help. I am a mother of 2 small boys and I do everything to go about my day normally, but it is a never-ending nightmare. Is there a chance to feel good again? Would love your help. from: zahava
@steady coach, thought it was good for you to see this post.❤️
Emma's story is super similar to mine and I'm also going to be a special education teacher soon! Thank you Emma and Dr. Yonit!
Thank you for your special heart! We will be so lucky to have you as a teacher.
Emma, thank you so much for sharing your vulnerability with us. First time I’ve gone to tears with the honesty that I’m living a quality that just doesn’t feel worth it. Not in making life go away of course but certainly less attached to what life is right now. Thanks Dr. Yo, you’ve been my greatest help and growth!❤️
Aw Karis.
I looked into each one of the symptoms you named
WOW!!!!! You are giving me so much hope!!! I have tried a few medications but they usually increase symptoms to be intolerable. I would love to find one that would take the edge off so I can get past the panic and derealization/depersonalization to make this a little easier.
Thank you for this Emma! I can relate so much with your story! In recovery now and doing so much better, I to ended up on an SSRI! Wanting to get off of it now that I know what’s going on! Just curious your experience with getting off as I’m still a little dizzy! Makes me nervous and don’t want to make it worse!
Hi I am John from Wales UK STRUGGLING with PPPD for three years. IAM 71 retired and should be happy and I am not. My balance is terrible and my dizziness is still horrible. I am doing all your exercises. Please can I get my life back.
🎉well done Emma there is hope for me
Please consider the free course, John! It's not just about exercises- we need to address stress and thoughts as well. thesteadycoach.com/free-course
@@JohnGobbi-jw6tw yes there is
Emma, I did an interview with Dr Yo a few months ago and this resonated with me SO much, especially the health anxiety, I just wanted to give you a hug! I see you, I've been there, I hope you are proud of yourself for all the work you've done, you're incredible! Thank you for sharing!
Rose
Omg I think I also think about having all those same diagnosis adding on Ciari malformation 😩
Hi Dr. Yonit, thank you again for this inspiring video. I recognize a lot of what Emma has been through. I do have one more question. I've been on this road for a few months and already notice improvements. I had an MRI done of my ears and head and everything was fine. Do you recommend more medical tests to rule out certain things? Or should this be enough to diagnose ncd? My neurologist had heard of PPPD, but I had not received an official diagnosis. I'd love to hear from you and thank you for your time again 😘
Así me siento cuando tengo esos sintomas, despersonalizada, hago mi vida lo más normal muy lenta y cuando veo las historias me renuevan. Casi 20 años padeciendo mareos recurrentes desde el 2022.
Tengo una familia que me entiende a veces me desespero por estos sintomas discapacitantes. Gracias dra. Yonyt.
Son muy dificil, yo tengo lo mismo
Congratulations on your recovery 🙏🏻🙏🏻
One question …
Is it normal that I feel this dizziness more when am just standing, rather than walking or running ?
Nice story happy for Emma!Im in my darkness rite now i miss my self! I have so much in my plate, i wish one day i could work with you Dr. Jo and see if i could have some relief 😢 sadly im just stuck because of my daily dizzeness and so much horrible symtoms i have not been able to work, i feel so powerless because everything is money and i always feel shamed because i cant even afford to have better health and get to feel joy again 😢 but honestly i feel so Drained for the last 8 years thats honestly im tired of pushing tru on my own with NO support! I been wanting to Give up! 😢
..... 😢
I know the feeling. Don’t give up. You’re still in there. We are all here for you.
You are not alone, Katherine. Please consider taking my free course on healing chronic dizziness. My techniques and recommendations are in this course and it is completely free thesteadycoach.com/free-course/. There is hope ❤
I also have the one pupil that is larger at random times. 😢 I have confirmed craniocervical instability, but so many of these symptoms are the same things I deal with.
Mine are caused from barometric pressure changes, so I feel like I am fighting a losing battle. It doesn’t matter what I do, it’s just always whatever the weather decides. Im so glad I saw this video though as it is validating. I am so happy for Emma.
This video explains why this happens: ua-cam.com/video/StYWlDFkFjM/v-deo.html
The something happened to me. I used to scuba diving and now I have this problem 24/7
Is it normal with Neuro circit dizziness to feel totally fine driving and when i get out of my car the dizziness starts? Even sitting in my car not moving i feel dizzy. Would this be a classic sign of a neuro circut problem?
Yes indeed
@cherieleigh10 Thank you so much, this is exactly what my symptoms are. Driving, I feel totally normal until I stop.
I experience this too
@frankianncavaliere3415 My anxiety is what keeps it going, I'm assuming.
this is exactly how I feel. hope she answers!!
oh my god your thoughts at around 00:30:49 really bought my own struggles to the surface where I had the same thoughts about ending my life, wanting to give up. But i'd so glad that you me and other people like us on this comment section didn't give up and have walked our paths. I'm happy to share that I have made roughly a 90% recovery and i'm trying harder to get to that 100% mark. I have tears down my eyes as I write this but there's hope, and I really hope that we continue to try and not give up. If you could share the contact details of your therapist and if they do counseling over zoom, because i'm based in Dubai.
Also Dr. Yo, if you're reading this do you think at this stage should I consider consulting you?
I will ask Emma to check the comments! The last ten percent can take the longest because the brain has to go through a recalibration process re: what’s normal and what’s not. You are doing it JUST RIGHT! Be kind to yourself. Be patient. Your brain knows how to balance. And be honest with yourself about what other stressors you might need to work through.
Hi Emma. What were your vision symptoms?
Blurry vision, couldn’t focus eyes when moving, visual snow and more
I’m tearing hearing her story. Im also a teacher and relate so much while being in the classroom and feeling so unwell.
I’m there right now and with so many symtoms. It’s so hard atm not knowing when it will end.
What do we do? What was her answer out of this? I hear success stories but I don’t understand what you do to start healing.
The free course goes over this in a lot of detail. Please take it :) thesteadycoach.com/free-course
Thankyou so much for responding I will check it out. ❤
Hi , one question is Emma fully recovered and what really helped her to get out of this ❤
good interview! very relatable to what i’m going through at this time. i just struggle with “what if something is missed” bc due to this i don’t have insurances or financial support to get more testing done… i would like to get all my boxes checked but i just can’t & that’s what i feel is holding me back sometimes 😢
when i was still working i was able to afford to get blood work done, MRI, vestibular testing & some VRT. everything was fine they stated, ENT diagnosed me with VM but also tried to refer me to a neurologist but i just can’t afford that.
anyone else recover with minimal testing? and how do i know if i need more?
😔
So many people have this question!! Maybe worth consulting with Dr. Gietzen, he is a neurologist and very accessible in terms of cost. ua-cam.com/video/RdWblpqA_h0/v-deo.html
Hello Dr. Yo. Do you have a list of DX and what they are. For example my dizziness has been diagnosed as cervogenic dizziness (I heard this is out of date). Anyhow I hear these acronyms like PPPD and do not know what they mean. Thank you. Lin
Yes! In the free course I have an entire section devoted to this- much more than I can say in a comment. thesteadycoach.com/free-course
Hi Dr.Yo. I am still waiting for when I will feel better and live my life again. I have gotten to the point where i cannot even lay flat at night because i am scared i might set something off so i sleep on 3 pillows every night and it is not comfortable and my neck does not feel nice and relaxed but still because of fear i do it. I recently found out about upcoming family events I need to attend and my stress has been high all over again each day i am feeling the sensations again even when i am not doing anything and i feel like im bringing things back and having a setback even though that is the last thing i want. i don't know how to move forward with this because i have trapped myself to my room again and just lay down all day and night and it feels horrible to be wasting life like this and i have been feeling visual sensations again and unbalanced and lightheaded which when that happens it increases my stress even more and i feel as im obsessing and constantly overanalyzing my body each day again and i dont understand how to get out of it it is very frustrating and i feel like such a disappointment to myself and my family i don't know what to do Dr.Yo
Hi Mindy, I am sorry it’s gotten so bad for you. You are not stuck this way- it sounds like you are trapped in a cycle of fear and avoidance right now. It is NOT YOUR FAULT!! It is your responsibility to get out of it, but that doesn’t mean you need to feel ashamed and guilty. Start small. Make your way through the course again (I just updated it so you’ll need to sign up again for the newest version.). One small step at a time. Emma was right where you are now. You are not alone.
❤
Hi Emma.. can i know the info of your therapist i been loking for one for so long😢 plus is so hard to find one that could understands us! Im in my darkness rite now no help no support and just feeling so Drained with no hope i cry alot because im so afraid i will never go back to myself.😢
I have had 24/7 lightheadedness/ derealization/ internal “swimmy” or off feeling ever since a 5 second visual vertigo episode. No more visual vertigo episodes, or no rocking/swaying sensations, just off. Had had vestibular work ups / blood work all come back normal and a “could be migraines or cervicogenic dizziness” answer. I think that pppd fits especially feeling worse in supermarkets and stores, but often see stories with rocking and swaying. Could I still have pppd without these types of symptoms?
Thank you!!!
Definitely could still have it. Lots of people have symptoms that are just "off" or triggered by certain environments.
How do i get into this ground ?
Did she start improving while on Wellbutrin? or after being off?
While on it!
In your videos, I think you mention the diagnosis doesn’t matter once you know it’s not structural. With vestibular migraine though, wouldn’t it matter because the dizziness could be recurring and medications would be needed to stop the migraines or dizziness episodes? I get confused with info being out there that vestibular migraines can be episodic dizziness or 24/7 dizziness.
Hello Dr yonit... I have a question I want to ask, I started doing vrt exercises for my symptoms and it has triggered my dizziness so so much. I wanted to ask that is this normal?? And would it settle or symptoms will subside if I continue the exercises?
Yes it's normal you don't worry just do this without any fear. Same issue with when I am doing but now it's normal
Totally normal, but if its amping them up for more than 29 mins just go a bit slower. This will pass. The best vrt is walking btw
@@cherieleigh10 ok thankyou👍❤️
@@cherieleigh10 walking? Really, how so?
You got great advice already! Yes it's normal! Keep going. B- student, don't try to be perfect at it.
Also do u have any online program that i can join
Free course!! Available to anyone anywhere. thesteadycoach.com/free-course
Hi.. i hope this message reaches you dr yonit.. i have had 2 episodes of vestibular neuritis in the last 6 months.. i know it is rare but i legit had it, my caloric tests confirm that.. i was recovering pretty well but then i had alot of anxiety bcoz of vn for which i started antidepressant.. bad decision.. i started having dizziness to the point where i had to taper the ssri in a week.. took it for a total of 6 weeks.. since after 2 days of stopping the ssri i am having vestibular dizziness,motion sensitivity,heavy headedness and visual disturbances along with other many symptoms.. other symptoms like vivid dreams temperature disturbances have almost gone.. but the vestibular symptoms are still there.. maybe just 20-30 percent improvement.. can u plz advise me.. do i have to wait for the symptoms to pass or shall i do something for it.. esp the motion sensitivity is very disturbing
Ugh, what an unlucky situation! That is sooooo rare. Your nervous system is likely still very hypersensitive because of what you went through. You should definitely do vestibular rehab but you should also work on calming your nervous system. You asked in your other comment if there is an online program, I would recommend starting with my free course. It goes through the entire process and most people get better just with that.
@@TheSteadyCoach thank u so much for replying.. ill definitely start ur free course.. i am a doctor myself.. an ophthalmologist.. but the place i live has no vestibular rehab centre or even proper therapists.. the practical knowledge is so low here.. no one and i stress no one understands or validates my symptoms.. dr yonit i also wanted to know if the withdrawal does cause such vestibular dizziness and related symptoms.. bcoz i fa sure started having them 2 days after stopping sertraline.. before that i had a different kind of dizziness when i was on sertraline.. wen i ask professionals they laugh it off saying dizziness is dizziness how r u xperiencing so many types in it
Also cherry on the cake is i just gave birth 4 months ago and since then ive been struggling with high blood pressure high heart rate.. anxiety.. 2 episodes of vestibular neuritis one before and one after delivery.. dizziness which changes every few days.. i most likely feel it is because of the drugs i was being given.. on amlodipine i had alot of lightheadedness.. on sertraline i had dizzy spells and spinning sensation.. after quitting i have lightheadedness then after that sand in the head kinda feeling, rocking on a boat kinda sensation.. does this happen dr yonit.. is the intolerance to drugs related to anxiety?.. i used to have wierd side effects of drugs before pregnancy as well.. like if i took perinorm i wud experience strange depressive and anxious feeling for half an hour.. my husband said he never had that side effect.. is it true that my dizziness could be related to the medicines
Also i just took sertraline for 6 weeks.. still its been a month after stopping the drug .. i still have symptoms.. maybe 20-30% decrease but still very much there
how did Emma find her therapist? like an online search only? is there a facility that therapist works in that may help others in other states?
It was just luck of the draw from online. She just had happened to have worked with other clients with neural circuit pain. Sorry that’s not as helpful! She had me listen to the podcast “tell me about your pain”. It’s not specific to dizziness though.
@@emmakuczeruk9741 thank you for the response. is there a specific episode for the podcast?
You mention dizziness being driven by tissue damage. Can you elaborate on this?
Chronic neurological issues like MS, tumors, or degenerative diseases can cause chronic dizziness that is not neural circuit.
I wanna believe I'm gonna get better but my vertigo is 24/7 nonstop some days is worse than others I haven't done much testing other than mri of brain which was fine how do I know I'm gonna get better it's been almost 1 year since this started
There is so much hope. Wait til you hear Sean's story, it's coming.
Does Emma have contact information that she's willing to talk to others or is she an Instagram Facebook UA-cam
I can ask her to reach out.
Omg yes. The spinning. The googling. Health anxiety...
Hi did Emma touch on the cause of why her health anxiety kicked up or why it all happened did I miss it ?
The health anxiety pre-existed and she had gone through a period of a lot of stress.
I don't have a support system, the health service never helps me just wants to give me medication, I have my parents that don't understand me, no friends no wife. I've had hypnotherapy, I do meditation. I get stressed very easily off balance panic disorder swaying headaches list goes on and I do have depression that's gone way beyond normal depression. I don't have my own life I'm not in control I live in a comfort zone and thus it's like a prison wasting away my years since covid only made me worst. No women will date me like this and no friends would understand since I can't do anything normal. Hell is in the mind.
Edit its up to me to keep looking for a way out of this since I'm here
The fact that you're here looking for help tells me there is a spark in you that is ready to fight.
Most of the success stories are women, I wonder why.
6:1 ratio women to men for chronic vestibular issues. But 1/3 of the stories are from men and just under half my viewers are men. There are many, many men dealing with this too.
@@TheSteadyCoach Interesting thx, I'll have to contact you for a success story hopefully soon when I'm living my own life doing what I want to..
Wow, wonderful interview so happy for you Emma and it was so refreshing when you were so honest about feeling like you couldn’t go on at the worst part of your journey. I was there too and for people at their worst right now it DOES get better ❤️🩹