Julie’s Chronic Dizziness Success Story
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- Опубліковано 19 січ 2022
- Listen to this incredible interview with Julie, who not only has recovered from chronic dizziness but has also recovered from chronic pain. This interview is a gold mine of insights and advice that will help you on your healing journey. If you know someone who is suffering from chronic pain or you are suffering from chronic pain, you can reach Julie through her website at www.julieobriencoaching.com/.
Note regarding AEPs: I made a mistake in the video! AEPs are a specific type of electrophysiological test that is used to check the integrity of the auditory and vestibular systems. The last time I did one was in graduate school 😳 so I am not as familiar with them. Many balance centers do not use AEPs, but electrophysological tests in general are commonly used in the diagnosis of dizzness disorders. These include ABR, eCochG, cVEMP, oVEMP, EEG, VNG, OAEs and CHAMP. - Yonit - Розваги
You give me so much hope.. Cause your symptoms are like mine.. I get scared cause I feel like this is forever. But I see you and find hope..
Just found this video.. amazing I suffer the exact same down to every word.. heavy head.. depersonalised.. bad vision.. dizzy and way more wow 😢
You're in the right place, Emmey!
❤
Thanks both Yonit and Julie for doing this video. I can’t even begin to tell you how Julie’s symptoms are so similar to my own. I haven’t really heard anyone speak of the head rushes/tingling sensation before and I had this for a brief spell and when I finally got to see the neurologist (after over 6 months 😢) he didn’t really know what I meant.
My sensitivity to motion is slowly getting better but I think that’s been the most uncomfortable /awful thing out of it all.
All of these symptoms are so hard to describe!
Thank you for such a positive story, listening to things like this is SO helpful for me and probably everyone else too as I personally avoid any kind of forum or group on this subject.
Thanks again, it’s very much appreciated x
It helps SO MUCH to know we are not alone, AND that people with symptoms like ours can go back to living a normal, full life.
Literally started crying because every single symptom, even the looking down cutting veggies for dinner, is what I experience every single day
She got better, and so will you!!!
How are you now?
@@nancollins7775 When I posted that comment I was bedridden from symptoms, and now I'm probably 90% better.
@@mayhorseradish I'm so happy to hear that. It gives me hope. Thank you for replying💖
@@mayhorseradish amazing! How did you get well?
O my goodness Julie.
You mentioned one puzzling, and a bit scary symptom I had at the beginning of my own journey, similar to yours.
When you described how you felt that your blood sugar was off -even after eating-is what I experienced. It was a bit unsettling, scary and puzzling.
I was so glad when that diminished.
So glad you have shared your story.
It’s awful to feel that way but really important to hear that someone else went through it and recovered.
Hi! How are you ?
I experiencing this too
I really appreciate this video! Such great information here. I can relate so well to Julie’s story. I watched the second part of her video first last week so I appreciate this first part. I had recovered from pelvic pain and dizziness, so well that I felt like I could write a book about it and here I am eight weeks in to a relapse. But I am armed with so much more information now about TMS! I know it’s gonna take me a while to get my nervous system back online but for everyone out there who’s scared that they’ll never get better you will! I did and I didn’t even know about TMS or neural circuit or anything. I got well by taking care of myself living my life and having faith and gratitude. Now that I’m confident that my symptoms are all brain related, I know I’ll get well it’s just a matter of letting time pass and taking the next right steps. Thanks!
❤❤❤
I'm literally in tears!! I get emotional every time i watch your videos. I pretty much have every symptom that she had. I also struggle in the kitchen when I cook and I also struggle with taking showers. I had to start taking baths instead of showers because I feel like I'm going to fall when I shower... I just want to get better so bad!! Listening to these stories really gives me hope so thank you so much for doing these.
Deysi, hi! Yes, I am trying to interview as many people as I can! I think these interviews are the most important videos I make.
How are you ?
How are you now? I have all these too 😢
Omg the low blood sugar feeling and fatigue .. totally have that yesterday went to eat at a restaurant with hardly any symptoms… thank you 🙏 also two days so far having almost all symptoms reduced significantly
Julie I'm so happy you listed all your symptoms cause I have almost all of them.
This is such an important interview for me. Thank you so much Julie and Yonit ❤️
❤❤ You're welcome, Dee! It is truly our privilege to be able to help! I am so glad this resonated with you!
Bringing me to tears listening to her
I am so much the same ♥
She is better and you will be too.
Thank you. Just listened right now.
We're due for a follow up- she's 100% recovered now :)
Julie certainly knows her stuff! I was particularly affected by her emphasis on self compassion and patience in recovery. Fantastic interview.
She is wonderful!!
Thank you so much for your story Julie , I am recovering and really needed to hear that everyone moves at their own pace . This world of dizzy is terrible and I’ve had it so long , it had made me have a whole new perspective on life , so so grateful for dr Yo and her passion for us and helping us to recover . The utube channel is amazing , I’m getting my life back and it’s all due to dr Yo and her heart and knowledge of the mind body connection ♥️
You are doing great, Denise! ❤
Thank you so much for sharing this story. This truly helps one try and view their symptoms in a different way and not as a sentence since most if not all these symptoms occur with people experiencing chronic dizziness. Julie describes them perfectly and I'm glad to hear someone finally mention head rush, which is such a bizarre awful feeling. It's amazing how I've literally had every test she's had and even MORE by top specialists in Boston. With so many opinions on this subject, it is so difficult to truly believe one over the other especially when well respected doctors are followed by many and publishing many materials, for e.g. Vestibular Migraine being the cause when all medical workup is clear. I truly want to believe it is a neuro circuit issue and not that food is causing this. I wish she had expanded more on what helped her get better but just hearing her story was inspiring.
Stay tuned, I have a follow up interview with Julie coming soon in which she gives very concrete information on what she did to get better. I think it's very important to keep in mind that physicians, even the best, are trained in the BIOLOGICAL components of disease and do not understand or have training in the psychosocial elements of disease. When doctors give you a symptom-based diagnosis like vestibular migraine, it means they do not understand why you have it. They can explain the biological mechanisms and perhaps the genetic and epigenetic roots of it, and therefore they are only going to treat the biological mechanisms. Migraines and other neural circuit dizziness have ENORMOUS psychosocial components and most physicians do not address them. It's not because they're wrong; they just have an incomplete picture. In many cases, I am the FIRST person to ask my clients what was going on in their lives when the symptoms started.
Hi! How are you ?
Every single symptom that she mentioned I have it, except I did have vertigo episodes. Thank you so much for all this valuable information, specially for me that I don't have access to this type of information in Spanish. Thank you! 🙏
You are so welcome. I am going to have many more of these on my channel. People need time (once they feel better) to feel ready to talk about their experiences, but I have several in mind and I’ll be interviewing them as soon as they’re ready.
I too found hearing Julie’s story in this format very helpful. We have a few things besides PPPD in common, both living in MN, both going through the NDBC program, and a love of shopping (still somewhat challenging at this point) and painting. She mentions her balance is really good now and this is a main symptom for me. I have no doubt my brain is relying very heavily on my vision. I’d be interested in what exercises she has done for that. Thank you both ever so much for enlightening me in a way that so many doctors and PTs have been unable to.
Joan, I am so glad you saw yourself in Julie’s story! She was able to express her experience in such a thoughtful way and I know watching this has helped many people. The exercises she did were relatively basic vestibular rehabilitation exercises. There are some on my channel, especially on my video on visual vertigo. I don’t post many, because in most cases I want people to focus on the social-emotional stuff rather than exercises, but you’re welcome to take a look: ua-cam.com/video/MsWYyDWuu_s/v-deo.html
Hi How are you ?
Dr. Yo I am learning so much from your channel and because of you and your wonderful guests like Julie I still have hope of getting better one day. Your videos have helped me to have better communication with my health care providers. I can’t thank you enough! ❤
This is great and I am so glad this has helped! You're very welcome! I know that this hard, but I know you can get better too!
Como sigues ??
I am in the sort like situation. I am social worker and ashamed that I feel so dizzy and weak and I am at home sick. But accepting the situation and working healing my nervous system will be healing.Thank you!
You are going to be ok. And you are not the only mental health care provider here on my channel, either. We absorb the stress and traumas of people around us. But we can also absorb healing, courage and strength. You can do this.
Wow, I can relate almost to a tee to everything Julie was experiencing with regards to her dizziness symptoms and what she went through that let up to her dizziness. I had been seeing a vistibular Physical Therapist and she said they have seena huge uptick in diziness and vistibular disorders due to covid/pandemic. There is definitely a correlation, but not if is is due to covid itself or the stress and anxiety of the pandemic. Thank you for sharing her story as I have now been focusing on TMS and trying to figure that process out. Like Julie, I also live in Minnesota and went to the National Dizzy and Balance Center who was great.
Wow, what a coincidence! Yes, big uptick in chronic dizziness. My belief is that it is related to the stress of the pandemic. I say this because I have now worked with several “long Covid” sufferers who healed using TMS methods. Julie and I are actually planning a follow up interview because she is now fully recovered. She fully leaned into TMS methods and also worked with a psychotherapist.
Can’t wait for your follow up ❤
Omg I relate SO much to this!!! @jasodan72 - how are you now? ❤
Julie describes the symptoms I have had/have. I was interested to hear she had the blood sugar symptoms because I too had same, wouldnt go to bed without biscuits or juice on my bedside table in case it hit in the middle of the night, the head rushes and tingling that no dr had a clue about, the gravity force field which is a hard one, the feeling if being detached from onself, the vision, jaw, head and sinus pain etc...
When you start listing the symptoms it is mind blowing how out there they are.
Wouldve beennice to know what exactly her process was however in healing herself, but im glad she did.
Thankyou for the video ladies
Part 2 goes into more depth!
OMG!!!!! It's been several months that I am dealing with the same EXACT symptoms and the same story!! You don't know how I relieved I am right now after hearing this! Thanks a lot Julie for sharing, and thanks to the chanel!
It's so good to hear from someone who has been through it that you can recover!
How are you doing now? I have all these symptoms too - 2 years after COVID still a roller coaster
@@marlac.876 Honestly I have been a lot better recently (it has been 10 months since Covid), I think I can say I am 85% recovered, there are still some minor symptoms left. Hope it will go better for you too!
All that this lady spoke about is what I experienced from April 2021 after my first dose of the Astrozeneca up until now in 2023 .... glad to know other ppl are talking about their chronic dizziness
I am sorry you’re going through this. Many things can affect the inner ear and cause issues, but the brain can compensate even for total loss of function. When it does not compensate, my perspective is that the brain is stuck in danger mode and that needs to be addressed.
wow, so many of these symptoms are what I have. I feel like there's hope for me finally
Hello, how long have you had PPPD? Do you have any improvement? Are you doing VRT exercises? Are you taking medication?
Excellent
Thank you you just described me right now. Thank you
So glad I came across your channel and specifically this video gives me hope. I am a cancer survivor from when I was a teen that has left me with ptsd for all things medical yet my entire adult life has been in and out of Dr offices with chronic pain. I have also had migraines for many years, But the pandemic has triggered pppd and chronic dizziness (no actual spinning just weird unexplained sensations) that has pretty much ended life as I knew it. I didn’t leave my house for almost a year because I was afraid to feel this way when being around others. I accidentally found out about VRT while doing physical therapy for a frozen shoulder. They have been working with me ever since. I am now seeing how controlling my emotions can help as well thanks to your videos. I pray my body will soon adjust to these techniques. I’m ready to live my life again and stop living in fear. Thankful for what you are doing with this education.
❤❤ Thank you for trusting me with your healing. I am so glad that you are finding guidance through my videos. It is amazing what the mind and body can do together. It definitely sounds like you are on the right track!
How are you ?
Hi Julie , thank you so much for sharing this story of your recovery. I have so many similar symptoms and started VRT a month ago. Diagnosed with Pppd in February. I’m currently trying to calm my nervous system down and have to admit it is hard work. Your video has given me renewed hope. It’s fantastic to hear that you are 95% recovered. Can I ask you how long it took you to recover please? I know everyone is different, but I was curious to ask, thank you, Judith x
Hi Judith! Julie was at about 95% in about 3-4 months. But everyone is different! In Julie's case, she had some things working against her (history of trauma, for example) and a lot working for her (she was already a professional coach who knew how to handle neural circuit issues like chronic pain). She has since fully recovered and I will be interviewing her again in the next couple of months :)
@@TheSteadyCoach that’s great to know, thank you, and I’ll look forward to watching your next interview😊. Stories like Julie’s are invaluable to those still struggling with chronic dizziness, and all the other accompanying symptoms. Thank you again for sharing x
This was so powerful, Yonit. I thought it interesting that Julie mentions the strain and tension headache in eye area, as that has been my primary symptom after a bout of spinning vertigo. I also went to see a neuro ophthalmologist who said my eyes were fine. She is the first person I have heard mention the eye strain. My question is, I have had this for 17 yrs with a MAV diagnosis. No one, until recently mentioned going for VRT. Do you think gaze stabilization exercises would be effective since I have had this for so long?
Tricky question. Speaking from my experience, if someone has a lot of fear of movement or triggering positions, VRT can help. Julie had triggers and movements brought on her symptoms, even though she also had a baseline level of "ick." In general, that is not the case for many people with migraines. In those cases, my focus in treatment is usually on the stress/emotional stress factors. Those play a bigger role IMO.
Literally exact 😢😢😢. What’s Julie’s coaching info? Your recovery videos give huge help ❤
Hi Marla! Information about Julie's coaching can be found in the description for this video.
This has been my life since getting vaccinated every single symptom I have had I actually told my neurologist I felt like a walking bobblehead she diagnosed me with bppv months after my initial attack I am better but still feel the rocking and swaying daily 11 month in all test came back normal I started VRT at home but really have focus on decreasing stress and anxiety. As a teacher and mom I worked in person through the pandemic and other personal even I went through a combination of wtf sorry my language this video is me still healing and praying thanks for this don't feel so alone.
I am so sorry you are experiencing this, Iris. It sounds like you are definitely on the right track though! I am glad that these stories are resonating with you. You are definitely not alone ❤
I doubt with vaccination too. I am suffering from daily dizziness after my second dose vaccination. However symptoms are reducing slowly
I suffering since my first dose of astrazeneca... but doctors are just saying it's in my head.
@@nuageartstudio4193 It’s not in your head because about 53,000 people got dizziness and tinnitus from vaccines it’s on the government website
Wow, I've read both as well and have been helped from anxiety and pain but still have the dizziness and brainfog and movement
All the same symptoms as her as well - except that it would be difficult to keep my balance and I would often fall to the left side and bump into things.
Hi! How are you ?
I did the same with feeling like low blood sugar and thinking I needed to eat. It was like that feeling just before you sneeze where you feel light headed except it lasted all day long. But everything she had, I have now and have for years except the headaches
It is SO helpful to see yourself in someone else's story! I am collecting as many of these stories as I can.
Very inspiring
She's awesome!
Upon second listen, I realized she succeeded resolution after 4-5months. Although I'm really happy for Julie, it's hard to relate being now 2.5 years into it. Do you think there is still a chance for recovery eventhough the condition is well ingrained at this point? Also, I have been consuming a lot of your content, how can I financially encourage you to keep going.
@@philippegingras6282 Hi Philippe, I'm sure Yonit won't mind if I jump in to offer my perspective on your question. You can definitely still recover even if you've had symptoms for years. There are many who have after long durations of symptoms. Look into neuroplasticity and your brains ability to change.
@@julieobrien2831 I appreciate your response will trust in the process. The hardest part is dealing with set backs (bppv events happens once every now and then). Those tends to set me back. Let's be vulnerable but determined and have a vision, and carry on.
Dealing with the same thing 24/7 dizziness and lightheadedness it’s crazy but I’m trying my best
Exact same story for me !
I had an accident at work were I was exposed to a very load 1 event audible noise at first I had muffled hearing and ringing in the ears I was diagnosed with tinnitus,hyperacusis and BPPV and also sensory hearing loss then I had Numerous virtigo attacks, now months on I still have the tinnitus and my hyperacusis is settling down I am going to a clinic that is helping me to manage my tinnitus. My caloric tests showed I had some damage to my vestibular system to do with balance.
After watching this video I have most of the symptoms as described
i am doing VRT but I am struggling but now I’ve seen this video I’m going to approach it in a different way. Hopefully I can get my dizziness better or could it be I may suffer long term because of the damage to my balance system?
Hi Sean, there are many examples of people whose symptoms started from an injury. But psychosocial factors (stress, well being, support) play a huge role in the symptoms becoming chronic. In fact, in studies on chronic pain, it has been shown that the brain areas that are involved change over time- when something becomes chronic, the most involved areas are the emotional parts of the brain. There is a lot more info on my channel on how to address those emotional and stress factors. And then the symptoms can actually go away.
Hi ! How are you ?
How long do you give for a new treatment and/or new doctor before you decide to move on? An example or two would be great. Tx,
If it is exercise- or medication-based, it's reasonable to give it 3 months.
Me da esperanza ver las historias , y trato de tenerlas presentes. Ya que mi mareo es tofo el tiempo voy regresando de caminar y lo trato de disfrutar aún con mi desvalanse. Ver los videos me marea, pero me syudan. Ojala y alguien me conteste.
No estás sola, María. ¡Hay esperanza! ❤
SAme symptoms as her as well except that I would veer to the left and bump into things and have to walk funny in order to keep my balance
Experiencing same problem,I consult Physiatrist..Eye Specialist but no benefit... please suggest advice
Hi Chandra, please consider signing up for my free course on healing. All of my recommendations and techniques are condensed within this course and it is 100% free.thesteadycoach.com/free-course
Dr. I've had this for 12 years, I've tried everything, after I lost the fear of dizziness (many years ago) I do all the activities (shopping, gym, swimming, cleaning, restaurant) but TOGETHER with the dizziness, it dont leaves me, in any activity, even in those that relax me. It's very frustrating. I've even done therapy from my past, inner child, forgiveness acceptance hypnosis, etc. I don't know what else to do to 'get rid' of it.
I recently uploaded a video discussing more on this topic if you haven't already seen it ua-cam.com/video/9MWKH8XOoC8/v-deo.htmlsi=7C2kys_9fLGYU_iu
Have you ever read the book Brain Saver Protcols by Anthony William it may be helpful for longer term dizziness ❤
So how does VT really work? Because for the longest time suffering from vertigo I felt like I did so many more demanding activities that made me move around a lot more before I had my flare up but I always still had this left over dizziness that would never go away. How is VT…something that seems to be doing way less movement than I use to do…suppose to work and help me get over this chronic dizziness? This is a question I’ve had for awhile
Hi Gianni, great question. VRT is really, really good at helping people systematically work through positions and movements that are triggering to them. This is esepcially helpful when (a) someone has acute ear damage or (b) someone has a lot of fear of movement. It can also be helpful when someone has a specific weakness (e.g. can't keep their gaze stable when their head moves). It is not really good at helping people who have chronic dizziness and do not have fear of movement. For most of the clients I work with, VRT is not the centerpiece of their treatment. In fact, many of them do no VRT at all. If you're already doing more demanding things than VRT, it shouldn't be the focus of your healing.
@@gioyt3535 I don’t recommend it as a one size fits all solution. VRT is an option to get moving. But it’s not the only way to get moving. And in my opinion, it’s the least important part of treatment. I am looking forward to chatting with you about it tomorrow!
Difficult when we live alone .
I think the point is: nourish your nervous system. There is lots of ways to do this. And so i really recommend you to search for Ayurveda (Indian Medicine).
Hi Lucas, I am a firm believer in nourishing one’s body and mind- they are, after all, connected 100% of the time. I don’t believe that any one system holds the key to true health, but I support you and anyone else who finds a sense of mind-body integration and wholeness in Ayurvedic medicine.
I need help
If VRT head movement exercises make your ears feel very full or you are feeling more dizzy days following vrt should I continue to do it?
Ask Dr. Yo: Why have vestibular rehabilitation exercises made my dizziness WORSE? ua-cam.com/video/yLY7MG7HBt0/v-deo.htmlsi=hTA0stwUo8Zkwcsy
HELP! Do you know anyone that can help in Ontario Canada? I believe I have PPPD. Constant feeling of slight dizziness, eye issues, etc...with big vertigo events several times a month. I am 59 years old and have been having migraines since I was 15.
I'm so sorry to hear what you're going through! Unfortunately not very many people specialize in PPPD treatment. I don't know of anyone in Canada. A good place to start is with a vestibular therapist. Vestibular therapists vary in their ability to work with chronic dizziness so do not give up until you find someone who has that experience and believes in you!
Kevin/Kim, did you make any progress as to diagnosis or treatment? I am 55/male, same migraine history, same present frequency of vertigo events plus PPPD-like feeling. History of anxiety, recent heart valve replacement.
@@benkoning2241 Hi! How are you ?
Yes there is a phenomenal place in Burlington Ontario on upper middle road
Is it harmful to have thoughts like “my family must think I’m lazy” since I haven’t been working while having pppd (but now in recovery) or “people must think I’m weird for avoiding certain activities”
How can we address these thoughts or should they just be seen as thoughts and not worry about them?
You can’t stop thoughts, but you can not buy into them. This is where mindfulness meditation can really help - it teaches you to look at your thoughts curiously and then let them go. There may be something to why you’re having thoughts like these, such as low self esteem or a lack of self compassion. See the interview with Christie Uipi to learn all about this.
Julie and my story are so similar
It’s so important to see that you can also recover.
Hello Foxy, Do you have a big improvement? Have you been doing VRT exercises? Have you been taking medication? When did it start to improve?
I am mostly bedridden with many Autoimmune Disorders. My nervous system is shutting down to the point where my esophagus (among other organs) does not function and I am looking for a way to heal it (or make it better) naturally. Anyone heard of “Aperistalsis?” 🙏🏽
P.S. I also have “Myositis.”
Hi there, mindbody methods like these are actually quite helpful with autoimmune disease. They may not cure the tissue damage but they can greatly alleviate symptoms.
🙏🙏🙏🙏🙏🙏
As we are now prone to this...might it come back?
Hi Cynthia! In the same way that someone is prone to having a tension headache after a long day, someone might be prone to having a dizziness symptom during times of stress. But that doesn’t mean it will come back full force or last. People can make permanent recoveries and still have sensations here and there- because dizziness and pain are normal human sensations.
Hello Doctor,
I was doing really good from last 15 days and I had very mild dizziness and head heaviness.. I thought I am recovering finally and that's when my mom fell sick 2 days back and I've got workload and I'm stressed and that has got my dizziness back. I thought I'll be able to calm myself again just like I did earlier but this one thought keeps stressing me out that how am I supposed to deal with other life stresses that I might face in the future (eg. Exams). I think I'm more worried about the future than the present.
I was really doing well and this sudden dip in my recovery graph is demotivating.
Hi Nan, you hit the nail on the head, your brain is living in and worrying about the future and that is increasing your stress internally in respond to outside stress. Don’t be discouraged. You can get yourself out of the cycle. It just takes some time.
@@TheSteadyCoach Thank you so much for always helping me out. Your words really motivate me a lot. 🥺💜
Help me..can't read and need help
Have you seen this video, Brian? ua-cam.com/video/1bFcdKX5VAE/v-deo.htmlsi=dXQkLHwMhoyfdwto
Yessss derealization. 7 Years here
37:26
I know she says she only works with women but do you know anyone who works with men doing this.?
Johnny, yes, if you look at the directory on ppdassociation.org , you will find many providers who specialize in chronic pain. Chronic pelvic pain is not uncommon in men.
This describes me to a T!
Es wäre toll wenn man irgendwie ein deutschen Untertitel bekommen könnte für die Videos
Hallo Betty, wenn du die UA-cam-App auf deinem Telefon ansiehst und auf das Zahnradsymbol tippst, kannst du automatisch übersetzte Untertitel erhalten!
@@TheSteadyCoach leider nein sehe ihn nur in Englisch . Habe aber auch kein premium Account
Anybody hv dizzines along with acidity and gas
I do, every day I have excessive gas but haven’t found intolerances or allergies to anything. Did you figure it out?
Yes No allergy only acidity and gas