I've had the symptoms you describe for 18 months, I've been diagnosed recently with vestibular migraine by a neurologist, before this i was so depressed i thought i was losing my mind, some days not getting out of bed, i have never felt so unwell in my entire life. And i was told by people its just stress you need a holiday, not understanding at all what i was feeling or going through. Now after diagnosis, i know what it is i hope to get help. Thanks for sharing your story It's good to know I'm not alone.
I don't know. I've been to a functional Doctor recently who's running some tests, a neurotransmitter test being one, and I'm Waiting to do specialist balance testing. The neurologist prescribed amitriptyline which is horrible! I had to stop after 2 weeks.
That's how I feel now and for the last 6 weeks. Start it off as vertigo but now it's non-stop migraines as well. Have seen different doctors but I think I need to see a neurologist. The last doctor I saw said that I should see a neurologist. I have no life and I'm in pain all the time. I'm going to try to get a referral to help get an appointment at the Mayo clinic. I live an hour from there. Right now I'm just laying here in misery. Thank you for sharing.
you basically just described me. I get panic attacks from them, i get scared its a stroke, no one ever mentioned vestibular migraine to me until now! ive had it for 8 years
Thank you for making this video. This has just come up for me. I have been having anxiety and panic attacks too because I just haven’t felt right and then everything started spinning I went to the ER on Tuesday and when they asked me what was wrong I said maybe an ear infection, maybe a stroke! I honestly thought a stroke at one point. The ER said Meniers disease, but I have a wonderful OD who knows me and she said vestibular migraine. So now we are on the path to officially diagnose and treat. Just as a funny side note, we literally live across the street from the hospital, I was yelling at my husband because I felt like he was driving in reverse the entire way (1 block) there. Then I was vomiting 🤮 in the ER waiting room and they still made we wait... well that’s not the funny, the driving in reverse was funny. Thanks again for making this.
@@TheDizzyCook hi hun could u help me i have this n have had constant DPDR for five months, what do u recommend for me too get rid off this DPDR to feel nornal again it's really affecting my life
You described my journey exactly! I was misdiagnosed many times from my 'crystals' being misaligned to vestibular therapy to PTSD. Eventually an endocrinologist diagnosed me with vestibular migraines. I have been a life long sufferer of migraines, so vestibular migraine was something I considered early in my journey, but I was told that this wasn't it by many doctors and specialists. I am now menopausal and my symptoms have reduced to the original background dizziness and brain fog. It is good to know I am not alone.
Thank you for posting this! I know it's a few years old, but I just heard this term today and I am looking for answers to my dizziness. I suffer from migraines, but this wasn't a migraine. I was just dizzy. Its amazing to now know that it is a migraine! They are sending me to vestibular therapy. Here's hoping 🎉
I would just like to say that your channel completely changed my life. For five miserable years I felt utterly hopeless and was grappling with severe vestibular migraines to the point where I couldn't even walk. It had me teetering on the edge of suicide. Endless doctor visits left me frustrated and angry with no answers, but your approach and experiences resonated deeply with my struggles. For five grueling years, I was trapped in a cycle of despair, barely mobile, and lost in a haze of perpetual sleep. Then I stumbled upon your site. Your extensive knowledge and suggestions on supplements were what changed my life. -1000 mg of Riboflavin, 500 mg of magnesium, and 500 mg of CoQ10-became my daily lifeline.Over three months of taking them religiously, I gradually noticed my migraines were disappearing. It's been almost a year and I have not had a dizzy spell since.. Your recipes, though not followed religiously, added a delightful touch to my recovery journey. The impact may be hard to quantify, but your contribution to my well-being is immeasurable. I'm overflowing with gratitude for the profound difference you've made in my life.
Thanks for sharing. I was diagnosed with vestibular miragrains. For months, I could not figure out why I felt this bad sensation in my body. Just simply trying to focus on someone speaking was hard because I'd feel like I would pass out. I was extremely frustrated because I was not getting painful headaches most of the times, and yet they would call it migraines. I'm still trying to figure out the best way to cope with it. When I'm walking, it feels like I'm floating and of balance. This video was helpful.
I was diagnosed with vestibular migraines in 2019 and lost my job. I had vertigo attack after vertigo attack terrible depression/anxiety. 3 years later, I still feel some fullness in my ear and slight dizziness at certain moments but for the most part, I've gotten my life back. Praying for anyone who has to go through this. It's a tough condition to handle. Thank you for sharing your story. It's comforting to hear from someone else who went through this too..
@@loretta5330 Remember, we did not come to this world because we have chosen but because the almighty creator wished. So, at the end he is the one who has the full power to heal and our return is to him alone. I am not referring to Jesus or any other messengers of God but the true and only creator, the ower of the Universe.
I was just diagnosed with this today. After 2 years of different doctors I hope this is it. Every symptom you mentioned I have. I’m crying happy tears and also sad ones ❤️😢
Literally have had these symptoms for 5 years..... Every time they say its anxiety it's anxiety..... And I finally got refeerd to a neurogist and today finally they have told me they think it's vestibular migraines
Glad you're finally getting some answers. It's like, of course I have anxiety dummies....I feel like I'm losing my mind all the time. That would give anyone anxiety!
Thank you so much for uploading this. My entire family suffers from normal migraines, especially during puberty. I've recently had a couple of really bad episodes, but they came with this overwhelming dizziness and inability to really walk or move. I'd had spells of dizziness before, but I put it up to anxiety. I tried to learn to drive a few years ago, but I kept having this weird feeling that I was moving backwards when the car was stopped. It was very distracting and distressing. When you said you'd had a similar feeling, it blew my mind. It seems like I was having vestibular migraine symptoms before these recent spells, but I didn't recognise them as symptoms. I know that hearing from first hand sufferers is always better that reading medical journals, because they don't really understand the entire picture. I was pretty sure that I have vestibular migraines, but after watching this video I'm even more convinced. Thank you so much. You've done me a great service :)
Sorry to hear you went/are going through this. I’m currently dealing with those symptoms and I was just referred to a neurologist with a potential diagnosis of vestibular migraines. It’s quite scary.
I've just found this trying to look up more information on the condition. I've been suffering with vertigo episodes for 5+ years and just got told yesterday that they think it has been Vestibular Migraines and that some of the symptoms have been masked by other conditions I have. Thank you so much for posting this, it's the first video I've found of someone talking about their experience rather than a doctor talking about it in some kind of medical PSA. I'm looking forward to watching part 2 later so I have some idea what to expect going forward in my own treatment.
I was diagnosed yesterday, my ENT was the only one that could diagnose me, I'm so glad that I know what this affliction finally is. Thank you for sharing your story
I was diagnosed with Vestibular Migranes by Johns Hopkins in 2019 after suffering with bad vertigo for a year. Treatment prescribed was dancing and ping pong. I started taking Zumba regularly at my gym and it worked! Whenever I feel a flare up I take a zumba class and I feel much better. During the pandemic that has meant Zumba on UA-cam in my house. It has been an absolute miracle. I hope my story helps other sufferers who might read this.
My story is similar.. I've always had migraines since I was a teen but a few years ago I started having ringing in my ears. I had a hearing test and saw an ENT, everything was normal. Then the vertigo hit and I saw neuro and they said it was BPPV I did the exercises, and it seemed to help for a little while but the dizziness comes back occasionally. Now I'm having visual lights flashes and achy numbness in my hands and arms has increased. I saw my doctor again and they continue to say everything is fine. They wanted to send me to physical therapy for carpal tunnel. I've done that before with no improvement. Im tired of feeling and being treated like a hypochondriac. Something is wrong but no one can fix it. This might be my hope.. Thank you.
This is me also. Normal migraines until gradually over months started losing my balances and getting dizzy. Hands and sometimes feet start tingling. I’m so extremely sensitive to lights and sounds and I am so dizzy most of the time. I can’t read or think properly or retain information. My whole life has fallen apart. Worst part is I read comments and people just say they have been like this for years and haven’t been fixed. I just keep thinking I’m so so scared.
@@jadeyardentraining4165 me too 😢😢, I’m studying abroad in few days , but I am so terrified, because the dizziness is getting worse. I don’t know how I’ll manage things , leaving my family & staying all alone. I am having severe anxiety.
just saw this. i'm 19 and i have seemingly pressure in my head and lightheadedness. i get dizzy a lot and it's especially bad when i quickly move my head. i want to get scanned to absolutely rule out anything serious. but i'm so glad i found this, thank you for making this. vestibular migraine has crossed my mind since i can be rather obsessive to research when it comes to health, but i'm glad that you gave such a detailed, yet concise video about your journey. wishing you the best!
I been dealing with similar symptoms and my family doctor just can’t seem help. I’m so glad I found this video! I get extreme dizziness, pain in my neck, migraine, sensitive hearing and brain fog
I have exactly the same symptoms, I read somewhere that neck issues can cause migraines but for me is otherwise, for example if I look at computer screen or bright lights i get dizzy and my neck tightens up and when I sit in very dark room my neck pain gets better, so i think is is symptom of migraine.
Your symptoms sound exactly like mine! Thank you for sharing! I have seen Doctor after Doctor trying to determine what is wrong with me! Meclizine made me violently ill! I will never take that again. I just saw another Doctor yesterday who suggested that this may be Vestibular Migraines. So, here I am watching UA-cam videos. After months of tests and no answers, I thank you for sharing your story! I just bought your book and look forward to making some migraine healthy meals soon. Hopefully, I can find a Doctor who can help me with a proper diagnosis, whether it is finally determined that this is the appropriate diagnosis for me or something else is. While I have only had the vertigo/vestibular migraine issues since early April, I have had a whole lifetime of migraines. It's the new vertigo symptoms that threw me.
I just got diagnosed with this last year after Covid. I am on the way to hopefully getting recovered. Glad I found you. Every symptom and your story and symptoms describe me!
I have that car experience all the time and never feel grounded. Always motion issues even when still. So glad you covered this as I will be talking to my doctor!
Alicia, thank you SO MUCH for posting your videos part 1 & part 2. I was also newly married, age 31, and wanting to start a family when I got VM. Now a year on I'm soooo much better, but I'm still mildly dizzy 24/7 and just seeing you doing well reminds me that this will end. My husband has made some of your recipies for us and we have the HYH diet info pinned to our fridge. X
This could be my story! I'm so glad I found you. Thank you for sharing your story and all your resources. I have had every test under the sun, including at Mayo AZ. The crazy thing is that the "headache neurologist" only asked me abut "headache days" per month. I haven't had a severe (classic) migraine in several years so I don't have that characteristic symptom. She didn't recognize that all the symptoms I have, neurological and otherwise, were VM. One of my attacks was so scary, as if I was having a stroke. I was ready to give up on finding answers until I found you! Thank you so much!!
Thank you for sharing! I was just diagnosed yesterday with atyptical VM (or possible MD if hearing loss presents). It’s nice to have a name to the problem and be able to learn more about what worked for everyone else. Until now it was called vestibular neuritis and I never felt that fit my problem
I’m dealing with similar issues. I get so scared now for even trying to new meds because I’m afraid it’ll make it worse. I’ve had this for 2 plus years. Maybe this is something I need to look into. It’s hard so very hard to deal with because people see you and think your just fine. Or say your faking it. It’s almost like you feel alone dealing with this. Thanks for this video. I’m definitely going to look into this.
I was diagnosed yesterday along with recommendation of your channel from my new doctor. THANK YOU 🙏 I feel so relieved and overwhelmed and relieved it’s wild and I’m ready to begin my recovery. I felt completely helpless when doctors were convincing me this was all in my head. I am blessed to have this information. Thank you
Mine started with a migraine which lasted two weeks. Like nothing would cure it. Then it manifested in eye twitching ( which is constant!) And then the dizziness attacks with what feels like full blown panic attacks. It's very scary and then the anxiety makes my overall nerves feel frayed and sensitive. 🥺
My doctor understood, because he actually had it himself. Lucky me I guess. :), good on you for keep going! Totally understand how you were feeling! Wishing you all the best. x
I’m in bed with dizziness, nausea, & ringing in my ears now. Sunday had someone call an ambulance because I was at Walmart and barely made it back to my car. The world was spinning so fast I had to keep shutting my eyes and thought I was going to pass out. Started throwing up and cold sweats. They diagnosed me with vertigo. I had a spell a week before that lasted a couple days but wasn’t as bad. I have tried the exercises on UA-cam, but only helps a little. I have suffered from headaches daily for years & occasionally migraines. Lately started having dizzy spells when I’d stand, ringing in my ears, & brain fog. Idk how to deal with this trying to raise 5 grandchildren this is debilitating.
I was very sceptical that the neurologist I saw today would give any kind of diagnosis, thought he would just dismiss my symptoms. He diagnosed me within minutes,,, had never heard of vastibular migraines till today. All my symptoms matched, I was so relieved to get a diagnosis that I actually cried!!
My neurologist keeps telling me it's not vestibular migraines because I don't have headaches all the time he keeps telling me it's anxiety which is starting to really piss me off
@@lucascervantes1338 maybe you can show him some of the most recent posts from Migraine World Summit about it, but a new neurologist might be best - or a neurotologist. You should watch some of Dr. Beh's videos I have uploaded here for validation!
@@mistyrodriguez2476 ringing in the ears and I guess it's lightheadedness 24/7 for the past year-and-a-half, headaches come and go all around my head and I feel a lot of pressure in the back of my head to my neck. I get episodes of vertigo every once in awhile everything is completely spinning and I can't get out of bed. More recently I'm starting to see strobe lights at night and I get these earthquake feelings inside my head It gets very intense but only lasts a short time. O and my anxiety skyrocketed the past five months.
I'm at 7 months and also find it hard to believe the diagnosis suspected by my Neurologist (Vestibular Migraine). Your story made me more confident that it might be correct. My symptoms: For me it's also 24/7 with some hours or days off. I do get pain but it's short lived, mild and sometimes wanders, nothing like a true headache. One day an eye might feel a bit blurry or "dimmed", next one is the other. Muffled hearing that comes and goes, tinnitus, short deafness, exhaustion, brain fog (I already have ADHD and this is way worse now), a constant sour taste in my mouth which changed for a couple of days and was more like wood, trouble falling asleep, numb feeling inside one side of the head, odd emotion / sensation feelings that are short lived and quite hard to describe, low pressure in the ear, pulsing whooshing sound in the ear, also visuals but not quite like migraine and usually when i turn my head and just for an instant (deformed faces, points of light, blue light blobs). Some days I felt odd and confused, quite disoriented but still functional. And of course vertigo, terrible spinning attacks where I couldn't walk and would go away very slowly in the course of weeks, a constant light headedness on my side. It never went away smoothly. I actually did notice some stuff has been there for a while like wandering paint in my body, I started to have trouble balancing when going downstairs only, I knew my verbal fluidity was quite off on some day for some reason, I'd lose some balance when I wouldn't go to bed and was tired and I always had some tinnitus seasons years ago. I also have trouble not believing it could be: MS, Diabetes, an Aneurysm, a Tumor, Vestibular Neuritis, a genetic condition, a slipped disc, spinal stenosis, fibromyalgia, a virus infected ganglion, etc. I'm still fighting it, it started with a spinning attack that lasted two days, then one month later the bad bad attack that lasted 6 weeks (got slowly better during that time) and now it this 3rd one has lasted 2 months, it's mild but very annoying and constant. I sometimes get a bit of a break from it. What has helped? Daily regular movement (specially walking outside), A bit of sun 0 SUGAR 0 Dairy 0 Bread, Wheat, Starch or Starchy foods (Potatoes, rice) Sleeping with earplugs, I'm not sure if it's the pressure they apply or the fact that they let your ears take a break from hearing 24/7 (I mean, we listen in our sleep in case there's danger). What might have helped: Not overstretching my neck forward B12 / Folate / Iron I just felt like being quite detailed because I know it might help someone else. When I searched for vestibular migraine I often read it comes in attacks of 3 days at most with aura before during or after and for me it was more of a constant mess of everything together, mostly mild and annoying but tolerable, sometimes very bad and sometimes gone magically. I wish everyone a nice recovery and be patient, these vestibular disorders don't seem to get better fast but always do what you can to either improve or find your triggers.
This is exactly what I have been going through for the last three years. And I have been through thousands of dollars of testing. I even just had an MRI to check for a Brain Tumor (which luckily I don't). I get attacks where everything spin so much that I can't even move from my spot. I even thought I was having a stroke at certain points. Thank you for this. I now have something to push my doctor's to test.
I am so grateful for this story…. I am struggling with this same symptoms since 6 months ago…. Just this week a Dr told me that I may have vestibular migraine…. I am waiting on my MRI results to confirm something…. Wow …. Thanks so much
I have this rocking/floating feeling 24/7. Plus I have bad headaches. A constant head pressure, every single day is a struggle, I feel super depressed. I am studying abroad, idk I feel so scared & worried when I think how will I manage everything by myself. When I am travelling in a car, my dizziness is almost gone, but when I am standing, sitting, or sleeping, it gets worse. Is anyone feeling like this ?? Please someone reply to me ? I feel like I am on this alone 😭😭😭
I wanted to reply to this. I’ve been having episodes of head pressure/buzzing. One minute I’m fine the next is an hour of my brain swirling in my head. Goes away completely when driving, worse when sat still or standing still. I didn’t have headaches to start with but I am now. I also have tinnitus, worse in one ear. I’ve got an mri coming up to check things there. But it does sound like vm at the moment.
I'm doing the carnivore diet, taking 80mg propanolol a day and 50mg sertraline for 3 weeks and attacks have practically stopped completely. I have had ibs for 19 years now and can't eat fruit or much vegetables but I also don't want to stay on the carnivore diet for long as it's incredibly boring and anti social and I don't know what foods I can live on and not trigger migraines but I do want to figure it out soon because I own a busy bar and have a good social life.
Hey - I hear you! I believe working with a dietitian could be your best bet. They can help you reintroduce some of the fruits and vegetables that are helpful for managing migraine and get you a better quality of life. I have some I can recommend.
I been having similar of a mild migraine with dizzy feelings, light headed for a few years off and on. My blood pressure most of the times of these spells was normal ranges and my blood sugars as well as I am a diabetic 2. Light sensitivity at times with this mild headaches. Now 2 weeks ago I started seeing like branches in my left eye for about 15 mins than faded to tiny dots that also faded in less than 30 mins. Went to eye Dr. the next day for eye photos. No tears or bleeding vessels in both eyes but slight elevated pressures. Now on a different eye drop meds. Seen my primary Dr. the day after my follow up with eye Dr. still no changes but was referred to see my primary Dr. of neurological evaluation. Primary Dr. suggested an CT scan of the brain in 2 sections which I go on a few weeks to get done. I read online about vestibular migraine and I have most of those symptoms when the attack starts for 15 mins or so then all is calm. The small dots start then the sensation on top of head and ears tingling happens. I hope there is a solution to this.
I'm 6 months in same thing happened to me I went to work one day and started feeling dizzy brushed it off as feeling dehydrated. Weeks later I still had it so I went to an outpatient clinic where they just sent me home with meclizine which did absolutely nothing. All summer long I fought this while working finally the vertigo got so I couldn't walk and had to go out ambulance to the hospital. ER Dr referred me to an ENT where I finally figured out what was wrong and now I'm finally seeing a neurologist things are now finally improving.
Oh my goodness. I was just diagnosed by the neurologist that I had this exact same condition. I had the quickest most comprehensive vocabulary and I totally have brain fog and forgot the word for ''salad and hiking stick!" Most of the times I cant even describe the thoughts I was going to say, its like someone wiped by mind blank, it was extremely frustrating. With my balance issues, I have been walking more towards my left as if someone is pushing me forward and then left. I had to use a walking stick just to walk, I am just 34 and Im supposed to be in the fittest stage in my life. I also have experienced double vision for 6 days straight and would have an eye appointment to see if this symptom is associated with vestibular migraines. I am very fortunate to see that Im not the only one experiencing this, and that others are also managing to cope with their symptoms. All the best!
After seeing other peoples stories, I feel fortunate to know that I was diagnosed with this at 3 weeks. My first episode I went to the ER because it was so bad where I vomited and was falling. I couldn’t get up without assistance or falling down. In there I got admitted and saw a neurologist that was at the hospital. The neurologist said he had Two suspicions and gave me anxiety medication, antibiotics and meclizine with some physical therapy sessions to see if the calcium crystal could be place back into my ears. After 14 days of not been able to drive, thousands of dollars from the hospital visit (MRIS, cat scans, multiples tests,) crying everyday, feeling helpless, not been able to work 50% of the time, the medicine not helping and the sessions not helping, I went to the same neurologist again and he told me he was sure I had vestibular migraines. He prescribed me topiramate and that has helped me soooo much. I can relate to so many of the comments here of “feeling like a stroke” or having a “panic attack” because I had a panic attack myself from loosing control of my body, loosing balance and feeling like I am drunk without the happy effect.
Man you gave me tears just watching your video. I’ve been the most healthiest guy since I was born never ever had any issues with any headaches or Migraines. Till 2 years ago and my life went south. Exactly everything you said. I lost 2 great careers and I can’t even play with my own son or can’t even enjoy life and hang out w friends cus of this stupid Vestibular migraine. I live in San Antonio Texas. I went all over San Antonio and Austin to every ENT and Neurologist and Vestibular therapist. And no help!!! 2 years in and still dealing with it as I’m writing this comment. Can you please share what helped you please. I need to live 😩😩😩
AMBIKA R I’m sorry to hear that. You definitely not alone. This is absolutely crazy disease and worse thing bout it is there are no cures or none I found yet. I’ve taken every pill out there every. I’ve tried every diet , cut out caffeine and alcohol and anything you can think of I’ve done. It helps lil bit but never taken it away. I’m on my 3rd year now. What do you do ? And have you found any help ?
I just shared my part two video but heres also what helped me. I really hope you find some relief soon. thedizzycook.com/vestibular-migraine-treatment-plan/
Folks watching this should also consider CSF Leak and look into Ian Carroll’s video on UA-cam here. It’s uttterly frustrating to get a clear diagnosis for neurological symptoms. Don’t self-diagnose- start with intracranial hypotension if symptoms came on suddenly out of blue with no Hx of previous migraines.
I am 16 and have had this for over a year. It started after a plane ride and it feels like i’ve been on a roller coaster everyday since then. I never leave my house and some days can’t even walk into the next room. I’m scared for how it effects my school life, it seems like it’s never going to get better!
You just described every symptom I've been experiencing for about a month now. I haven't been diagnosed with vestibular migraines but some days I feel so dizzy I feel like I can't even get up.
Thank you from the bottom of my heart for making these videos Alicia. Can I ask, did your symptoms follow you to bed? Laying still in the dark is probably my most anxiety-provoking symptom because I feel as though I'm 'dropping' through the bed and this is accompanied by a wave of nausea making it impossible to sleep.
Just been diagnosed with this. I have been constantly dizzy for 3 years. Mine also started after a long flight from Melbourne to London. I had a throbbing pain in my ears for about 3 weeks after the flight and then once it stopped the dizziness started and hasnt stopped. My vision is sometimes temporarily impaired due to seeing bright white lights in my vision (aura). I feel like I'm constantly walking on a boat in rough seas however I have had physiotherapy for this and there has been a 99% improvement with my balance but the dizzyness/lightheadedness just wont subside.
So glad I have found you. I have been suffering with ‘vertigo’ for 4 years now. I think the ENT people have misdiagnosed me. I’m going to watch the rest of your videos, buy your cook book and hope I’ve found a way out of this nightmare. Thank you, you must be helping so many people.
My 11 year is son is suffering from hemiplegic migraines and now VESTIBULAR migraines. Your s and others videos mailed down the diagnosis. He already feels like he gets on a dreamlike state.
Oh my goodness you described me. I came back from cruise 6 weeks ago and have been constantly dizzy. I’ve been to so many doctors. I’m watching part 2 now. Thank you for sharing this.
Hey! Make sure you don't miss MDDS too. Sometimes that can happen after a cruise or events with movement. It can have some overlap with VM symptoms too. A good doctor can help you navigate! thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
@@TheDizzyCook thank you! finding a doctor has been so hard. My appointment with a neurologist is not until June. I will watch this video. Thank you so much.
My ENT prescribed me this Medicine for my Vestibular Migraine. He said it would take 2 weeks for my Vertigo that I had had for 6 month's to go away. I took one pill at 10am. By Noon it was 80% gone. Cool......At 2am the next morning I woke up with a blinding headache. Since I don't suffer from Headaches I thought..I better check my Blood Pressure. Yeah 197/121. Off to the ER I went. Just a heads up if you don't want to stroke out.
Hello ,thats terrible what are we going throgh this ,have anyone of you have neck pain and chronic dizziness i mean everyday 24/7 dizziness ? I have this dizziness 7 years now . I hope we get our lives back
Thank you so much for sharing this. I recently was diagnosed with Vestibular Migraines. Super hesitant to get on medication but Neuro said I could start with Magnesium Glycinate to see if it helps. I will be watching your content to see if I can get ideas on how to approach this holistically. So glad I found you! ❤
I get similar but less severe version of symptoms during and after my menstrual cycle. Therefore no one could actually told me there is a version of migraine without headache. After having these episodes for ten years, I got the diagnosis yesterday. I always thought I am having extreme and weird menstrual symptoms. I’m writing here maybe there are people who are like me, not always but periodically experiencing vestibular migraine. Thanks for sharing your story and may you all get better soon.
One thing I'd recommend is having your ferritin and hemoglobin checked. I have my VM pretty under control now but was having odd symptoms especially around that time that I figured were migraine. It turned out to be extremely low ferritin and iron infusions have helped with a lot of those symptoms. If it is a VM issue, I recommend Dr Beh's book Victory over Vestibular Migraine. He has a vitamin e protocol in there that also seems to be helpful, along with pre-treating.
Nobody ever posts that they have fully recovered from VM. Why? Because it’s for life. Some may say today they are fully recovered but they are always one trigger away from another attack. It really doesn’t help to subscribe or follow a fellow sufferer. VM at the end of the day is a mental illness however it’s one that you can manage and manage it well. First step, avoid watching and reading about other people with VM. You are bringing it into your world when you should be learning to ignore it. When the attacks come, tell yourself and your brain it’s only a sensation. Keep doing it, your brain will respond and it will always only ever be, a sensation. Take peace from what I am saying. Ignorance can be bliss.
Literally my exact story 1. Doctors not wanting to sign my fmla because no diagnosis 2. Same symptoms 3. Was told it was anxiety but it was the reason I was having anxiety 4. I made a list of what I thought it could of been but never wrote I had vestibular migraine because I don’t get headaches often
For over a year My past symptoms: dizzyness,(vertigo)strange vision almost like a white snake slithers into my vision start to see almost like a blur or white spotted hole with contusion,tierd alotmwant to always sleep.sometimes driving is scary.balance feels off.I will wake up dizzy almost feeling paralyzed in my head 🗣️ stuck! Lost in conversation.loss of fime.anxiety,feeling moving like the ground under me as if im falling when im standing.lour ear 👂 noises like a beep.pressure in my head nose area,ears will feel full.times id feel warm like im coming down with a flu or something.see things like ppl walking around shadow ppl i will call them ... praying for healing for everyone! Even Myself...
It took my consultant about 2 years to diagnose this it’s a lot better now but it’s very stressful there is a constant worry it can get worse again. Thanks for sharing your experience
Hello from the UK! I’m liv and i work in a very fast paced pub while also doing 10hr placement twice a week in a hospital for my study’s (which has been very hard lately). I have been diagnosed with vestibular migraine today! It’s been A long time coming I think l, but definitely happy to just have a diagnosis after the doctor thinking I had POTS! I feel as you feel! When walking sometimes it feels like I have one high heel on and one off! Sitting in the car I feel like the car is moving forward or backwards when it’s stationary. I see flashes and dots in my vision or zigzags. I have to wear sunglasses most the day due to light sensitivity. Even watching the TV is hard. Brain fog is one of the scary parts as I feel I can just sit there for hours with someone talking to me and I wouldn’t be in the room. Plus feeling like you don’t know the name of simple things is scary! And the dizziness omg i wouldn’t wish it on my worst enemy! Sounds mad but I even get nervous to go to the toilet in the middle of the night cos I feel as if I’m going to fall off of it! After my ‘attacks’ I feel so lethargic dazed and exhausted it’s horrible! But it’s a different kind of exhaustion, I can’t move my arms or legs, it almost hurts to speak and I feel like I’m carrying 10 pints of milk on my back! I’m on tablets but they haven’t helped as of yet. I know it’s going to be a long healing process mentally and physically! I want to thank you for sharing your story helping others around the world! You are truly amazing and i wish you and your family the best health!💖
I have just been diagnoses and I am 3 weeks in. Again did not believe it. I am really impatient for this to go away and worry about my job. You symptoms are right on with mine. The movement issues, light sensitivity, etc. Scrolling tablet, etc. It is like you are moving but it take the rest of you to catch up!
I have an exact same story and timeline of events from going to ER getting meclazine, vertigo attacks , physical vestibular therapy that helped until it didn’t ! Now I’m trying to get back to work but can’t shake the vestibular migraines . !
Prednisone was bad a idea. The ENT should have referred you to an otoneurologist right away. Vestibular migraine can be treated with Riboflavin, and GABA, Magnesium and regular sleep cycles. Also, stay away from chocolate and coffee. Stay hydrated.
thank you for sharing! I went from doctor to doctor with no answers for 7 yrs until I finally was able to go to Johns Hopkins in Baltimore and got my VM diagnosis. Just moved to FL and now searching again for a doctor with treatment plan. No headache pain either, just a heavy head dizzy feeling in the back of my head...lasts for a week at a time. Also get vertigo attacks. So tough to live this way but your reports give me hope! think my "trigger" is lack of sleep. Thank you!!!
I remember I was about 5 years old, live in Pakistan a small town. I suffer this experience, my parents took me to the local government hospital and they treated me for iron deficiency. Now I am 39 I have come to know that what I suffered was vestibular migraine. I have faced it time by time like whenever I take kidney beans and coffee in high quantities. Thank you for your explanation and awareness ☺️... Stay blessed 🙏
I've had a few vertigo episodes in my lifetime, but over the past 2 years, the severity of them has increased. I am 36 years old, almost 37. Recently I had 2 non headache vertigo episodes that lasted hours and made me sick to my stomach. The last one I had a couple weeks ago left me in bed nearly all day. I have also been complaining of headaches, head pressure, and eye socket pain in the past few months to my PCP, in addition, this May I also developed a weird sensation in my right ear, like a pitch on the right side of my brain area, and now my left too. Everything has piled up. The ENT PA thinks it sounds like vestibular migraine. Considering how many have taken years to get diagnosed with VB I guess I should feel "lucky" to have a possible answer to my symptoms. I don't have a treatment plan (meaning no medications). I just got a referral to physical therapy and was told to take Excedrin for vertigo episodes ( I read that could be a bad idea) and then to follow up with PCP if these don't work. In short, the ENT PA is not taking me seriously. I really wish this could just be a temporary bad break in my life. My anxiety isn't helping and sometimes I am not sure if I am making up my symptoms or if they really are there.
Have just found you and it’s a relief to know that there is possibly a permanent light at the end of the dizzy tunnel. Feeling dizzy all the time is just horrid. I also don’t get headaches with VM just a tightness in my head on the left side with internal pressure and loud ringing tinnitus right before it get an attack. I don’t get the vertigo but am very light and sound sensitive and need to get out of the area I am in asap. I have been told this is my brain kicking into fight or flight mode. I have not panicked and am usually quiet practical about conditions so thought I was turning into a an anxious and worried person which is so not me. I was lucky to go private - UK based - and quickly saw ENT specialist who sent me onto a balance professional. I’ll watch your second video to see what treatment you were recommended
This sounds like me. Onset was last week. My period was coming on so I figured it was just regular period flu. Ended up in ER diagnosed with Vertigo. Meclizine did nothing. About 50% better now but lights, loud noises, and turning while driving gets me
I am going through another about much like the one that you talk about here. Did you ever make a connection between your trip to Japan and the vestibular migraines? I have not been on a plane in years for fear of it triggering more of the sensations, especially because I know about maldebarcment syndrome
Thank you for your video. I can relate. I’m going through similar situations for the past year. It all started when I got off a ride at Centre Island (the tea cup ride) I was diagnosed with Vertigo. I get Vestibular migraines. Huh Vertigo is a symptom not a diagnosis! I get triggered mostly when I am stressed, tired, motion, loud noises, bright lights, change of weather, moving my head side to side quickly.
Does your heart rate also go high and arrythmia? Ive had this for 3 years and feels like presyncope and bad headaches in back of head = vestibullar migraines. Almost daily. What helps?
I had this constantly for months. Felt like I was on a turbulent boat. One day I got a really bad migraine and went to urgent care where they gave me a shot of imitrex and BAM, dizziness went away. After months of seeing different doctors I realized it was migraine related. Why don’t neurologists look into this as being the cause?! So frustrating!
I had an episode of this about 4 years ago lasting about 6 months. 3 doctors dismissed me as being a malingerer. I could only safely walk with a wheely walker as I was falling all the time. Walking on sponges, turning and losing balance, all your symptoms. It was awful. I have recently had an MRI after insisting because of headaches for the last 3 years. I have been found to have periventricular white matter lesions. Probably causing my severe R sided head/neck migraines up to 10 days a month. I want to now visit a neurosurgeon. My GP is not very proactive. I feel like she hasn't believe me. The MRI has shown something but I I am not sure she knows what to do. Except wait and see. I want a plan if possible. Thankyou for your video. The symptoms were so accurate to lots of mine. 🧸
On day 2 of a VM, had to call out of work yesterday, again. I work with screens for 12 hours a day, and I don't know how much longer I can do this job, which is something I love to do. How did you cope with that change and figuring out what to do?
Hey there, I live in the Dallas area and have been battling this for 7-8 months now. I’m a 36yo male that’s healthy and works out daily. I own a roofing company and has drastically affected my confidence of climbing steep roofs due to the fear of falling off. Everything you described is literally what I’ve been experiencing. I’ve been to a physician and had blood work done, been to an ENT and also had a cat scan on my head and everything checked out good. I feel like my head is disconnected from my body at times and literally walking on clouds. I get the random rollercoaster feeling a few times a day. It’s ongoing non stop. Is there any recommendations you can give for possibly solutions towards correcting this issue?
I just got diagnosed with vestibular migraine today. And i have all the symtoms that you discussed about especially as u said u had trouble following and felt like an idiot exactly the same as i feel now. But then again no loosing hope atleast not something as life threatening like a brain tumor o something.. thanks for sharing 👍..
I have vestibular migraine and I'm also dealing with a weird issue now with my vision. My right eye just refuses to focus and has awful pain and eye strain. I've went to THREE eye doctors who tell me there's nothing wrong with me and that my prescription is correct. I just started a new job and can barely work, I can barely do things like grocery shopping. I'm getting depressed because of it. I have an appointment with a neuroopthamologist in a month and I'm trying to be hopeful without getting my hopes up.
Update to this comment: I was finally diagnosed with Hemicrania continua and that was the cause of the pain on my right side and eye. I take boswellia for it and am in remission. As for migraine, still struggling with chronic migraine. Nurtec greatly reduces it. I was taking Ajovy and it made my vestibular issues basically completely go away but I had to go off it this month due to wear off time and side effects. I'm struggling with a bad vestibular attack this week but hanging in there.
Wow! This video is very helpful. Haven’t got diagnosed yet but sounds very similar of what been happening to me for over a year now. At first it was me just getting dizzy twice a day to where now I get dizzy while I’m asleep or sitting down and it’ll happen like 4 times a day and to where I lose taste, body feels numb for couple of days and also have brain fog/confusion.
Have had regular migraines for years. Got back from long drive to Texas to see eclipse and had first vertigo attack that lasted hours and it was awful. Nausea, and some pressure in head but no real pain. Started topamax a couple of months ago--small dose--but neurologist relative over phone says that's probably not it--it's 2 weeks now and I still get profound vertigo if I move my head wrong. Haven't gone to doc yet--may next week. Last night I almost fell backwards doing nothing. Putting eye drops in makes me dizzy too. Thank you for your video--what makes it hard, besides being a woman, is that now I'm a senior citizen so I will have to cope with ageism and the "it's just old age". But I don't think it is.
Hey - FWIW I had a lot of followers who struggled after the eclipse. I live in Dallas and I even felt off for the rest of the day. And I've been feeling really good lately. A good rescue plan can help for the vertigo: thedizzycook.com/acute-treatments-for-vestibular-migraine/
My wife starts out with a headache, then the room starts spinning , she loses touch with reality, her eyes get real glasses then she will back out. when she wakes up she will twitch 3 times then wakes up. Year and a half later we still can't get a doctor tell us whats going on. Please help!
I wanted did you often get dizzy/lightheaded at night while driving? I was diagnosed with VM and given very low dose of Nortriptyline. It hasn’t helped but maybe decrease the intensity of the eye pain, neck pain and the dizziness hasn’t decreased by much. The worse for me is if I am out at night it just triggers me
Your video came up after searching this. I just had a vertigo attack while playing with a dog in a field. Stumbled to the house and am battling with it. I feel horrible but gotta get through this. Thanks for the video!
I've had the symptoms you describe for 18 months, I've been diagnosed recently with vestibular migraine by a neurologist, before this i was so depressed i thought i was losing my mind, some days not getting out of bed, i have never felt so unwell in my entire life. And i was told by people its just stress you need a holiday, not understanding at all what i was feeling or going through. Now after diagnosis, i know what it is i hope to get help. Thanks for sharing your story It's good to know I'm not alone.
You're definitely not! Here for you!
How do you treat it
I don't know. I've been to a functional Doctor recently who's running some tests, a neurotransmitter test being one, and I'm Waiting to do specialist balance testing. The neurologist prescribed amitriptyline which is horrible! I had to stop after 2 weeks.
@@Ka-hl2je it’s really hard to see someone you love suffering so much, there needs to be more research
That's how I feel now and for the last 6 weeks. Start it off as vertigo but now it's non-stop migraines as well. Have seen different doctors but I think I need to see a neurologist. The last doctor I saw said that I should see a neurologist. I have no life and I'm in pain all the time. I'm going to try to get a referral to help get an appointment at the Mayo clinic. I live an hour from there. Right now I'm just laying here in misery. Thank you for sharing.
you basically just described me. I get panic attacks from them, i get scared its a stroke, no one ever mentioned vestibular migraine to me until now! ive had it for 8 years
Wow!! So glad you finally got a diagnosis too. How can we not be panicked with symptoms like this?
Thank you for making this video. This has just come up for me. I have been having anxiety and panic attacks too because I just haven’t felt right and then everything started spinning I went to the ER on Tuesday and when they asked me what was wrong I said maybe an ear infection, maybe a stroke! I honestly thought a stroke at one point. The ER said
Meniers disease, but I have a wonderful OD who knows me and she said vestibular migraine. So now we are on the path to officially diagnose and treat. Just as a funny side note, we literally live across the street from the hospital, I was yelling at my husband because I felt like he was driving in reverse the entire way (1 block) there. Then I was vomiting 🤮 in the ER waiting room and they still made we wait... well that’s not the funny, the driving in reverse was funny. Thanks again for making this.
I finally got diagnose after 1 year and half almost
@@TheDizzyCook hi hun could u help me i have this n have had constant DPDR for five months, what do u recommend for me too get rid off this DPDR to feel nornal again it's really affecting my life
@@laurenbaldwin6068 Hey - I would recommend reviewing my website thedizzycook.com. Tons of free helpful tips.
15 years now... you've have described nearly EVERY symptom I have.
I think that's the most surprising thing to people who find me. But after the years I've realized it's very common!
Both happy and saddened to know I'm not alone. 👥❤
Me too
Me also😢
You described my journey exactly! I was misdiagnosed many times from my 'crystals' being misaligned to vestibular therapy to PTSD. Eventually an endocrinologist diagnosed me with vestibular migraines. I have been a life long sufferer of migraines, so vestibular migraine was something I considered early in my journey, but I was told that this wasn't it by many doctors and specialists. I am now menopausal and my symptoms have reduced to the original background dizziness and brain fog. It is good to know I am not alone.
Thank you for posting this! I know it's a few years old, but I just heard this term today and I am looking for answers to my dizziness. I suffer from migraines, but this wasn't a migraine. I was just dizzy. Its amazing to now know that it is a migraine! They are sending me to vestibular therapy. Here's hoping 🎉
I would just like to say that your channel completely changed my life. For five miserable years I felt utterly hopeless and was grappling with severe vestibular migraines to the point where I couldn't even walk. It had me teetering on the edge of suicide. Endless doctor visits left me frustrated and angry with no answers, but your approach and experiences resonated deeply with my struggles. For five grueling years, I was trapped in a cycle of despair, barely mobile, and lost in a haze of perpetual sleep. Then I stumbled upon your site. Your extensive knowledge and suggestions on supplements were what changed my life. -1000 mg of Riboflavin, 500 mg of magnesium, and 500 mg of CoQ10-became my daily lifeline.Over three months of taking them religiously, I gradually noticed my migraines were disappearing. It's been almost a year and I have not had a dizzy spell since.. Your recipes, though not followed religiously, added a delightful touch to my recovery journey. The impact may be hard to quantify, but your contribution to my well-being is immeasurable. I'm overflowing with gratitude for the profound difference you've made in my life.
Your message made my week!! Thank you so much for this!
I'm also thrilled you're doing much better now!
@@TheDizzyCook Well your channel made my life. LOL
I feel your pain. Your an inspiration
My ent told me about your blog, reading the heal your headache as well. Thank you
Thanks for sharing. I was diagnosed with vestibular miragrains. For months, I could not figure out why I felt this bad sensation in my body. Just simply trying to focus on someone speaking was hard because I'd feel like I would pass out. I was extremely frustrated because I was not getting painful headaches most of the times, and yet they would call it migraines. I'm still trying to figure out the best way to cope with it. When I'm walking, it feels like I'm floating and of balance. This video was helpful.
I hope you’re better now? Have you noticed an improvement and how so? 🙏🏼
The worst for me is the dizziness the fullness in my ear and the faint feeling
i get the faint feeling too.do you also feel weak?
@@Withcare111 i do it’s like a whole body weakness right?
@@VeronicaGomez-ot1wg yes- like you are about to faint. But I also get a fatigue which a overall tiredness.
@@Withcare111 yeah i get that almost everyday, the feeling is horrible especially since laying down doesn’t help
I get weakness and tingling too, how are you all now?
I was diagnosed with vestibular migraines in 2019 and lost my job. I had vertigo attack after vertigo attack terrible depression/anxiety. 3 years later, I still feel some fullness in my ear and slight dizziness at certain moments but for the most part, I've gotten my life back. Praying for anyone who has to go through this. It's a tough condition to handle. Thank you for sharing your story. It's comforting to hear from someone else who went through this too..
Its so hard😭 at times I feel im dying
Hi, what medication did you take? I'm on venlafaxine 75mg which has worked for over a year but now the attacks are back on a weekly basis 😔
Thanks for the your story, it really is the most depressing thing ever. Never in my life had dark thoughts untill this.
@@loretta5330 Remember, we did not come to this world because we have chosen but because the almighty creator wished. So, at the end he is the one who has the full power to heal and our return is to him alone. I am not referring to Jesus or any other messengers of God but the true and only creator, the ower of the Universe.
What did you do to get better? Medication, vestibular rehabilitation? Thank you.
I was just diagnosed with this today. After 2 years of different doctors I hope this is it. Every symptom you mentioned I have. I’m crying happy tears and also sad ones ❤️😢
How do u feel now? Hope is gone 🙏🏼
Literally have had these symptoms for 5 years..... Every time they say its anxiety it's anxiety..... And I finally got refeerd to a neurogist and today finally they have told me they think it's vestibular migraines
Glad you're finally getting some answers. It's like, of course I have anxiety dummies....I feel like I'm losing my mind all the time. That would give anyone anxiety!
Thank you! After several neurologist telling me nothings wrong, I feel better knowing there are other people who understand what this is like.
Thank you for sharing and explaining this like you did. You put words to the dizziness that is often so hard to explain!
Thank you so much for uploading this. My entire family suffers from normal migraines, especially during puberty. I've recently had a couple of really bad episodes, but they came with this overwhelming dizziness and inability to really walk or move. I'd had spells of dizziness before, but I put it up to anxiety. I tried to learn to drive a few years ago, but I kept having this weird feeling that I was moving backwards when the car was stopped. It was very distracting and distressing. When you said you'd had a similar feeling, it blew my mind. It seems like I was having vestibular migraine symptoms before these recent spells, but I didn't recognise them as symptoms.
I know that hearing from first hand sufferers is always better that reading medical journals, because they don't really understand the entire picture. I was pretty sure that I have vestibular migraines, but after watching this video I'm even more convinced. Thank you so much. You've done me a great service :)
Sorry to hear you went/are going through this. I’m currently dealing with those symptoms and I was just referred to a neurologist with a potential diagnosis of vestibular migraines. It’s quite scary.
I've just found this trying to look up more information on the condition. I've been suffering with vertigo episodes for 5+ years and just got told yesterday that they think it has been Vestibular Migraines and that some of the symptoms have been masked by other conditions I have.
Thank you so much for posting this, it's the first video I've found of someone talking about their experience rather than a doctor talking about it in some kind of medical PSA. I'm looking forward to watching part 2 later so I have some idea what to expect going forward in my own treatment.
I was diagnosed yesterday, my ENT was the only one that could diagnose me, I'm so glad that I know what this affliction finally is. Thank you for sharing your story
I was diagnosed with Vestibular Migranes by Johns Hopkins in 2019 after suffering with bad vertigo for a year. Treatment prescribed was dancing and ping pong. I started taking Zumba regularly at my gym and it worked! Whenever I feel a flare up I take a zumba class and I feel much better. During the pandemic that has meant Zumba on UA-cam in my house. It has been an absolute miracle. I hope my story helps other sufferers who might read this.
How are you doing now?
What was his reasoning for telling you to do Zumba and play ping pong.
That sounds incredible I can barely stand without falling let alone Zumba
Exercise triggers my migraines- I loved going to the gym so I am so sad it's now a knife edge for me
My story is similar.. I've always had migraines since I was a teen but a few years ago I started having ringing in my ears. I had a hearing test and saw an ENT, everything was normal. Then the vertigo hit and I saw neuro and they said it was BPPV I did the exercises, and it seemed to help for a little while but the dizziness comes back occasionally. Now I'm having visual lights flashes and achy numbness in my hands and arms has increased. I saw my doctor again and they continue to say everything is fine. They wanted to send me to physical therapy for carpal tunnel. I've done that before with no improvement. Im tired of feeling and being treated like a hypochondriac. Something is wrong but no one can fix it. This might be my hope.. Thank you.
I hope you can find some good resources to help on my site!
How are you now?
This is me also. Normal migraines until gradually over months started losing my balances and getting dizzy. Hands and sometimes feet start tingling. I’m so extremely sensitive to lights and sounds and I am so dizzy most of the time. I can’t read or think properly or retain information. My whole life has fallen apart. Worst part is I read comments and people just say they have been like this for years and haven’t been fixed. I just keep thinking I’m so so scared.
@@jadeyardentraining4165 me too 😢😢, I’m studying abroad in few days , but I am so terrified, because the dizziness is getting worse. I don’t know how I’ll manage things , leaving my family & staying all alone. I am having severe anxiety.
@@ayushighosh22how are you doing?
just saw this. i'm 19 and i have seemingly pressure in my head and lightheadedness. i get dizzy a lot and it's especially bad when i quickly move my head. i want to get scanned to absolutely rule out anything serious. but i'm so glad i found this, thank you for making this. vestibular migraine has crossed my mind since i can be rather obsessive to research when it comes to health, but i'm glad that you gave such a detailed, yet concise video about your journey. wishing you the best!
How do you feel now?
I been dealing with similar symptoms and my family doctor just can’t seem help. I’m so glad I found this video! I get extreme dizziness, pain in my neck, migraine, sensitive hearing and brain fog
I have exactly the same symptoms, I read somewhere that neck issues can cause migraines but for me is otherwise, for example if I look at computer screen or bright lights i get dizzy and my neck tightens up and when I sit in very dark room my neck pain gets better, so i think is is symptom of migraine.
@@memetpajaziti3434 currently
temboral mandibular dysfunction can cause all these bro
Your symptoms sound exactly like mine! Thank you for sharing! I have seen Doctor after Doctor trying to determine what is wrong with me! Meclizine made me violently ill! I will never take that again. I just saw another Doctor yesterday who suggested that this may be Vestibular Migraines. So, here I am watching UA-cam videos. After months of tests and no answers, I thank you for sharing your story! I just bought your book and look forward to making some migraine healthy meals soon. Hopefully, I can find a Doctor who can help me with a proper diagnosis, whether it is finally determined that this is the appropriate diagnosis for me or something else is. While I have only had the vertigo/vestibular migraine issues since early April, I have had a whole lifetime of migraines. It's the new vertigo symptoms that threw me.
I just got diagnosed with this last year after Covid. I am on the way to hopefully getting recovered. Glad I found you. Every symptom and your story and symptoms describe me!
I have that car experience all the time and never feel grounded. Always motion issues even when still. So glad you covered this as I will be talking to my doctor!
Alicia, thank you SO MUCH for posting your videos part 1 & part 2. I was also newly married, age 31, and wanting to start a family when I got VM. Now a year on I'm soooo much better, but I'm still mildly dizzy 24/7 and just seeing you doing well reminds me that this will end. My husband has made some of your recipies for us and we have the HYH diet info pinned to our fridge. X
Really helpful hearing this - helps me know what to notice in myself for my doctors appointment
Im fully crying, this is such a relief, i was going crazy not understanding whats happening to me. Thank you for sharing your story!
This could be my story! I'm so glad I found you. Thank you for sharing your story and all your resources. I have had every test under the sun, including at Mayo AZ. The crazy thing is that the "headache neurologist" only asked me abut "headache days" per month. I haven't had a severe (classic) migraine in several years so I don't have that characteristic symptom. She didn't recognize that all the symptoms I have, neurological and otherwise, were VM. One of my attacks was so scary, as if I was having a stroke. I was ready to give up on finding answers until I found you! Thank you so much!!
Thank you for sharing! I was just diagnosed yesterday with atyptical VM (or possible MD if hearing loss presents). It’s nice to have a name to the problem and be able to learn more about what worked for everyone else. Until now it was called vestibular neuritis and I never felt that fit my problem
I’m dealing with similar issues. I get so scared now for even trying to new meds because I’m afraid it’ll make it worse. I’ve had this for 2 plus years. Maybe this is something I need to look into. It’s hard so very hard to deal with because people see you and think your just fine. Or say your faking it. It’s almost like you feel alone dealing with this. Thanks for this video. I’m definitely going to look into this.
You're definitely not alone but I know the feeling!!
How are you ?
I was diagnosed yesterday along with recommendation of your channel from my new doctor. THANK YOU 🙏 I feel so relieved and overwhelmed and relieved it’s wild and I’m ready to begin my recovery. I felt completely helpless when doctors were convincing me this was all in my head. I am blessed to have this information. Thank you
Wow so cool!!! Glad they recommended me. Make sure you check out the website...so much good info there!
this was the most validating story- thank you so much for sharing it!! So helpful.
Anyone get dizzy after they eat with the rest of these symptoms?
Every time I eat about 5 to 10 minutes after, I'm spinning. :(
Yeah I get dizzy almost every time I eat usually worse at night
I used to. The diet really helped with this.
Molly MCgee that's me. I always feel fainty and extremely dizzy after food.
Yes!
Mine started with a migraine which lasted two weeks. Like nothing would cure it. Then it manifested in eye twitching ( which is constant!)
And then the dizziness attacks with what feels like full blown panic attacks. It's very scary and then the anxiety makes my overall nerves feel frayed and sensitive. 🥺
Did you find any thing that worked for you that’s exactly how mine started I’m so scared
My doctor understood, because he actually had it himself. Lucky me I guess. :), good on you for keep going! Totally understand how you were feeling! Wishing you all the best. x
How did you cure them
I’m in bed with dizziness, nausea, & ringing in my ears now. Sunday had someone call an ambulance because I was at Walmart and barely made it back to my car. The world was spinning so fast I had to keep shutting my eyes and thought I was going to pass out. Started throwing up and cold sweats. They diagnosed me with vertigo. I had a spell a week before that lasted a couple days but wasn’t as bad. I have tried the exercises on UA-cam, but only helps a little. I have suffered from headaches daily for years & occasionally migraines. Lately started having dizzy spells when I’d stand, ringing in my ears, & brain fog. Idk how to deal with this trying to raise 5 grandchildren this is debilitating.
I was very sceptical that the neurologist I saw today would give any kind of diagnosis, thought he would just dismiss my symptoms.
He diagnosed me within minutes,,, had never heard of vastibular migraines till today. All my symptoms matched, I was so relieved to get a diagnosis that I actually cried!!
I know exactly how that feels!! Such a good feeling to be validated
My neurologist keeps telling me it's not vestibular migraines because I don't have headaches all the time he keeps telling me it's anxiety which is starting to really piss me off
@@lucascervantes1338 maybe you can show him some of the most recent posts from Migraine World Summit about it, but a new neurologist might be best - or a neurotologist. You should watch some of Dr. Beh's videos I have uploaded here for validation!
What were your symptoms and what was the treatment the doctors gave you
@@mistyrodriguez2476 ringing in the ears and I guess it's lightheadedness 24/7 for the past year-and-a-half, headaches come and go all around my head and I feel a lot of pressure in the back of my head to my neck. I get episodes of vertigo every once in awhile everything is completely spinning and I can't get out of bed. More recently I'm starting to see strobe lights at night and I get these earthquake feelings inside my head It gets very intense but only lasts a short time. O and my anxiety skyrocketed the past five months.
I'm at 7 months and also find it hard to believe the diagnosis suspected by my Neurologist (Vestibular Migraine).
Your story made me more confident that it might be correct.
My symptoms:
For me it's also 24/7 with some hours or days off. I do get pain but it's short lived, mild and sometimes wanders, nothing like a true headache. One day an eye might feel a bit blurry or "dimmed", next one is the other. Muffled hearing that comes and goes, tinnitus, short deafness, exhaustion, brain fog (I already have ADHD and this is way worse now), a constant sour taste in my mouth which changed for a couple of days and was more like wood, trouble falling asleep, numb feeling inside one side of the head, odd emotion / sensation feelings that are short lived and quite hard to describe, low pressure in the ear, pulsing whooshing sound in the ear, also visuals but not quite like migraine and usually when i turn my head and just for an instant (deformed faces, points of light, blue light blobs). Some days I felt odd and confused, quite disoriented but still functional. And of course vertigo, terrible spinning attacks where I couldn't walk and would go away very slowly in the course of weeks, a constant light headedness on my side. It never went away smoothly.
I actually did notice some stuff has been there for a while like wandering paint in my body, I started to have trouble balancing when going downstairs only, I knew my verbal fluidity was quite off on some day for some reason, I'd lose some balance when I wouldn't go to bed and was tired and I always had some tinnitus seasons years ago.
I also have trouble not believing it could be: MS, Diabetes, an Aneurysm, a Tumor, Vestibular Neuritis, a genetic condition, a slipped disc, spinal stenosis, fibromyalgia, a virus infected ganglion, etc.
I'm still fighting it, it started with a spinning attack that lasted two days, then one month later the bad bad attack that lasted 6 weeks (got slowly better during that time) and now it this 3rd one has lasted 2 months, it's mild but very annoying and constant. I sometimes get a bit of a break from it.
What has helped?
Daily regular movement (specially walking outside),
A bit of sun
0 SUGAR
0 Dairy
0 Bread, Wheat, Starch or Starchy foods (Potatoes, rice)
Sleeping with earplugs, I'm not sure if it's the pressure they apply or the fact that they let your ears take a break from hearing 24/7 (I mean, we listen in our sleep in case there's danger).
What might have helped:
Not overstretching my neck forward
B12 / Folate / Iron
I just felt like being quite detailed because I know it might help someone else. When I searched for vestibular migraine I often read it comes in attacks of 3 days at most with aura before during or after and for me it was more of a constant mess of everything together, mostly mild and annoying but tolerable, sometimes very bad and sometimes gone magically.
I wish everyone a nice recovery and be patient, these vestibular disorders don't seem to get better fast but always do what you can to either improve or find your triggers.
This is exactly what I have been going through for the last three years. And I have been through thousands of dollars of testing. I even just had an MRI to check for a Brain Tumor (which luckily I don't). I get attacks where everything spin so much that I can't even move from my spot. I even thought I was having a stroke at certain points.
Thank you for this. I now have something to push my doctor's to test.
I am so grateful for this story…. I am struggling with this same symptoms since 6 months ago…. Just this week a Dr told me that I may have vestibular migraine…. I am waiting on my MRI results to confirm something…. Wow …. Thanks so much
I have this rocking/floating feeling 24/7. Plus I have bad headaches. A constant head pressure, every single day is a struggle, I feel super depressed. I am studying abroad, idk I feel so scared & worried when I think how will I manage everything by myself. When I am travelling in a car, my dizziness is almost gone, but when I am standing, sitting, or sleeping, it gets worse. Is anyone feeling like this ?? Please someone reply to me ? I feel like I am on this alone 😭😭😭
I wanted to reply to this. I’ve been having episodes of head pressure/buzzing. One minute I’m fine the next is an hour of my brain swirling in my head. Goes away completely when driving, worse when sat still or standing still. I didn’t have headaches to start with but I am now. I also have tinnitus, worse in one ear. I’ve got an mri coming up to check things there. But it does sound like vm at the moment.
how r u doing?
I'm doing the carnivore diet, taking 80mg propanolol a day and 50mg sertraline for 3 weeks and attacks have practically stopped completely. I have had ibs for 19 years now and can't eat fruit or much vegetables but I also don't want to stay on the carnivore diet for long as it's incredibly boring and anti social and I don't know what foods I can live on and not trigger migraines but I do want to figure it out soon because I own a busy bar and have a good social life.
Hey - I hear you! I believe working with a dietitian could be your best bet. They can help you reintroduce some of the fruits and vegetables that are helpful for managing migraine and get you a better quality of life. I have some I can recommend.
@@TheDizzyCook thanks for your reply. I have tried ginger and turmeric and they didn't sit well.
I been having similar of a mild migraine with dizzy feelings, light headed for a few years off and on. My blood pressure most of the times of these spells was normal ranges and my blood sugars as well as I am a diabetic 2. Light sensitivity at times with this mild headaches. Now 2 weeks ago I started seeing like branches in my left eye for about 15 mins than faded to tiny dots that also faded in less than 30 mins. Went to eye Dr. the next day for eye photos. No tears or bleeding vessels in both eyes but slight elevated pressures. Now on a different eye drop meds. Seen my primary Dr. the day after my follow up with eye Dr. still no changes but was referred to see my primary Dr. of neurological evaluation. Primary Dr. suggested an CT scan of the brain in 2 sections which I go on a few weeks to get done. I read online about vestibular migraine and I have most of those symptoms when the attack starts for 15 mins or so then all is calm. The small dots start then the sensation on top of head and ears tingling happens. I hope there is a solution to this.
I'm 6 months in same thing happened to me I went to work one day and started feeling dizzy brushed it off as feeling dehydrated. Weeks later I still had it so I went to an outpatient clinic where they just sent me home with meclizine which did absolutely nothing. All summer long I fought this while working finally the vertigo got so I couldn't walk and had to go out ambulance to the hospital. ER Dr referred me to an ENT where I finally figured out what was wrong and now I'm finally seeing a neurologist things are now finally improving.
Oh my goodness. I was just diagnosed by the neurologist that I had this exact same condition. I had the quickest most comprehensive vocabulary and I totally have brain fog and forgot the word for ''salad and hiking stick!" Most of the times I cant even describe the thoughts I was going to say, its like someone wiped by mind blank, it was extremely frustrating.
With my balance issues, I have been walking more towards my left as if someone is pushing me forward and then left. I had to use a walking stick just to walk, I am just 34 and Im supposed to be in the fittest stage in my life. I also have experienced double vision for 6 days straight and would have an eye appointment to see if this symptom is associated with vestibular migraines.
I am very fortunate to see that Im not the only one experiencing this, and that others are also managing to cope with their symptoms. All the best!
After seeing other peoples stories, I feel fortunate to know that I was diagnosed with this at 3 weeks. My first episode I went to the ER because it was so bad where I vomited and was falling. I couldn’t get up without assistance or falling down. In there I got admitted and saw a neurologist that was at the hospital. The neurologist said he had Two suspicions and gave me anxiety medication, antibiotics and meclizine with some physical therapy sessions to see if the calcium crystal could be place back into my ears. After 14 days of not been able to drive, thousands of dollars from the hospital visit (MRIS, cat scans, multiples tests,) crying everyday, feeling helpless, not been able to work 50% of the time, the medicine not helping and the sessions not helping, I went to the same neurologist again and he told me he was sure I had vestibular migraines. He prescribed me topiramate and that has helped me soooo much. I can relate to so many of the comments here of “feeling like a stroke” or having a “panic attack” because I had a panic attack myself from loosing control of my body, loosing balance and feeling like I am drunk without the happy effect.
how are you now?
Man you gave me tears just watching your video. I’ve been the most healthiest guy since I was born never ever had any issues with any headaches or Migraines. Till 2 years ago and my life went south. Exactly everything you said. I lost 2 great careers and I can’t even play with my own son or can’t even enjoy life and hang out w friends cus of this stupid Vestibular migraine. I live in San Antonio Texas. I went all over San Antonio and Austin to every ENT and Neurologist and Vestibular therapist. And no help!!! 2 years in and still dealing with it as I’m writing this comment. Can you please share what helped you please. I need to live 😩😩😩
Iam also suffering with VM my life went in he'll
AMBIKA R I’m sorry to hear that. You definitely not alone. This is absolutely crazy disease and worse thing bout it is there are no cures or none I found yet. I’ve taken every pill out there every. I’ve tried every diet , cut out caffeine and alcohol and anything you can think of I’ve done. It helps lil bit but never taken it away. I’m on my 3rd year now. What do you do ? And have you found any help ?
I just shared my part two video but heres also what helped me. I really hope you find some relief soon. thedizzycook.com/vestibular-migraine-treatment-plan/
Folks watching this should also consider CSF Leak and look into Ian Carroll’s video on UA-cam here. It’s uttterly frustrating to get a clear diagnosis for neurological symptoms. Don’t self-diagnose- start with intracranial hypotension if symptoms came on suddenly out of blue with no Hx of previous migraines.
@@jayhannon7422 im the same way😭 ive done everything I could and no help
I am 16 and have had this for over a year. It started after a plane ride and it feels like i’ve been on a roller coaster everyday since then. I never leave my house and some days can’t even walk into the next room. I’m scared for how it effects my school life, it seems like it’s never going to get better!
same :(
How are u doing now?
Thank you for sharing your experience. It mirrors mine in so many ways.
You just described every symptom I've been experiencing for about a month now. I haven't been diagnosed with vestibular migraines but some days I feel so dizzy I feel like I can't even get up.
Thank you from the bottom of my heart for making these videos Alicia. Can I ask, did your symptoms follow you to bed? Laying still in the dark is probably my most anxiety-provoking symptom because I feel as though I'm 'dropping' through the bed and this is accompanied by a wave of nausea making it impossible to sleep.
Yes I felt same .. falling through the bed , nausea n all. N finally I am diagnosed with this problem..
@@ektadahiya5535 Yes I'd get horribly nauseous in bed too. Thankfully the lying down symptoms abated and I'm sure they will for you too.
Just been diagnosed with this. I have been constantly dizzy for 3 years. Mine also started after a long flight from Melbourne to London. I had a throbbing pain in my ears for about 3 weeks after the flight and then once it stopped the dizziness started and hasnt stopped. My vision is sometimes temporarily impaired due to seeing bright white lights in my vision (aura). I feel like I'm constantly walking on a boat in rough seas however I have had physiotherapy for this and there has been a 99% improvement with my balance but the dizzyness/lightheadedness just wont subside.
Do you still feel boat like sensation??
So glad I have found you. I have been suffering with ‘vertigo’ for 4 years now. I think the ENT people have misdiagnosed me. I’m going to watch the rest of your videos, buy your cook book and hope I’ve found a way out of this nightmare. Thank you, you must be helping so many people.
I’ve been dealing with all of this too can’t wait for it to all be over
My 11 year is son is suffering from hemiplegic migraines and now VESTIBULAR migraines. Your s and others videos mailed down the diagnosis. He already feels like he gets on a dreamlike state.
Unable to watch the video right now but it's lovely to see other people coming out with their stories ❤ keep it up and take care mate
Oh my goodness you described me. I came back from cruise 6 weeks ago and have been constantly dizzy. I’ve been to so many doctors. I’m watching part 2 now. Thank you for sharing this.
Hey! Make sure you don't miss MDDS too. Sometimes that can happen after a cruise or events with movement. It can have some overlap with VM symptoms too. A good doctor can help you navigate! thedizzycook.com/the-vestibular-migraine-guide-for-dummies/
@@TheDizzyCook thank you! finding a doctor has been so hard. My appointment with a neurologist is not until June. I will watch this video. Thank you so much.
My ENT prescribed me this Medicine for my Vestibular Migraine. He said it would take 2 weeks for my Vertigo that I had had for 6 month's to go away. I took one pill at 10am. By Noon it was 80% gone. Cool......At 2am the next morning I woke up with a blinding headache. Since I don't suffer from Headaches I thought..I better check my Blood Pressure. Yeah 197/121. Off to the ER I went. Just a heads up if you don't want to stroke out.
Hello ,thats terrible what are we going throgh this ,have anyone of you have neck pain and chronic dizziness i mean everyday 24/7 dizziness ?
I have this dizziness 7 years now .
I hope we get our lives back
Thank you so much for sharing this. I recently was diagnosed with Vestibular Migraines. Super hesitant to get on medication but Neuro said I could start with Magnesium Glycinate to see if it helps. I will be watching your content to see if I can get ideas on how to approach this holistically. So glad I found you! ❤
I get similar but less severe version of symptoms during and after my menstrual cycle. Therefore no one could actually told me there is a version of migraine without headache. After having these episodes for ten years, I got the diagnosis yesterday. I always thought I am having extreme and weird menstrual symptoms. I’m writing here maybe there are people who are like me, not always but periodically experiencing vestibular migraine. Thanks for sharing your story and may you all get better soon.
One thing I'd recommend is having your ferritin and hemoglobin checked. I have my VM pretty under control now but was having odd symptoms especially around that time that I figured were migraine. It turned out to be extremely low ferritin and iron infusions have helped with a lot of those symptoms. If it is a VM issue, I recommend Dr Beh's book Victory over Vestibular Migraine. He has a vitamin e protocol in there that also seems to be helpful, along with pre-treating.
@@TheDizzyCook I can’t believe you actually replied 🥹 thanks so much! I’ll check your recommendations 🌱✌🏼
Nobody ever posts that they have fully recovered from VM. Why? Because it’s for life. Some may say today they are fully recovered but they are always one trigger away from another attack. It really doesn’t help to subscribe or follow a fellow sufferer. VM at the end of the day is a mental illness however it’s one that you can manage and manage it well. First step, avoid watching and reading about other people with VM. You are bringing it into your world when you should be learning to ignore it.
When the attacks come, tell yourself and your brain it’s only a sensation. Keep doing it, your brain will respond and it will always only ever be, a sensation.
Take peace from what I am saying. Ignorance can be bliss.
Literally my exact story 1. Doctors not wanting to sign my fmla because no diagnosis 2. Same symptoms 3. Was told it was anxiety but it was the reason I was having anxiety 4. I made a list of what I thought it could of been but never wrote I had vestibular migraine because I don’t get headaches often
For over a year My past symptoms: dizzyness,(vertigo)strange vision almost like a white snake slithers into my vision start to see almost like a blur or white spotted hole with contusion,tierd alotmwant to always sleep.sometimes driving is scary.balance feels off.I will wake up dizzy almost feeling paralyzed in my head 🗣️ stuck! Lost in conversation.loss of fime.anxiety,feeling moving like the ground under me as if im falling when im standing.lour ear 👂 noises like a beep.pressure in my head nose area,ears will feel full.times id feel warm like im coming down with a flu or something.see things like ppl walking around shadow ppl i will call them ... praying for healing for everyone! Even Myself...
It took my consultant about 2 years to diagnose this it’s a lot better now but it’s very stressful there is a constant worry it can get worse again. Thanks for sharing your experience
Hello from the UK! I’m liv and i work in a very fast paced pub while also doing 10hr placement twice a week in a hospital for my study’s (which has been very hard lately). I have been diagnosed with vestibular migraine today! It’s been A long time coming I think l, but definitely happy to just have a diagnosis after the doctor thinking I had POTS! I feel as you feel! When walking sometimes it feels like I have one high heel on and one off! Sitting in the car I feel like the car is moving forward or backwards when it’s stationary. I see flashes and dots in my vision or zigzags. I have to wear sunglasses most the day due to light sensitivity. Even watching the TV is hard. Brain fog is one of the scary parts as I feel I can just sit there for hours with someone talking to me and I wouldn’t be in the room. Plus feeling like you don’t know the name of simple things is scary! And the dizziness omg i wouldn’t wish it on my worst enemy! Sounds mad but I even get nervous to go to the toilet in the middle of the night cos I feel as if I’m going to fall off of it! After my ‘attacks’ I feel so lethargic dazed and exhausted it’s horrible! But it’s a different kind of exhaustion, I can’t move my arms or legs, it almost hurts to speak and I feel like I’m carrying 10 pints of milk on my back! I’m on tablets but they haven’t helped as of yet. I know it’s going to be a long healing process mentally and physically! I want to thank you for sharing your story helping others around the world! You are truly amazing and i wish you and your family the best health!💖
Any relief? Also in the UK had this for 7 years everyday
I have just been diagnoses and I am 3 weeks in. Again did not believe it. I am really impatient for this to go away and worry about my job. You symptoms are right on with mine. The movement issues, light sensitivity, etc. Scrolling tablet, etc. It is like you are moving but it take the rest of you to catch up!
Unfortunately it’s a life long disease, but follow her she is right your diet affects your symptoms. It can be manageable.
Been going through this I’m dizzy I have odd visual disturbances anxiety depression I also get headaches from time to time
I have an exact same story and timeline of events from going to ER getting meclazine, vertigo attacks , physical vestibular therapy that helped until it didn’t ! Now I’m trying to get back to work but can’t shake the vestibular migraines . !
Prednisone was bad a idea. The ENT should have referred you to an otoneurologist right away. Vestibular migraine can be treated with Riboflavin, and GABA, Magnesium and regular sleep cycles. Also, stay away from chocolate and coffee. Stay hydrated.
Chocolate and coffee, even decaf make me feel almost drunk and like I'm going to fall. Very scary.
thank you for sharing! I went from doctor to doctor with no answers for 7 yrs until I finally was able to go to Johns Hopkins in Baltimore and got my VM diagnosis. Just moved to FL and now searching again for a doctor with treatment plan. No headache pain either, just a heavy head dizzy feeling in the back of my head...lasts for a week at a time. Also get vertigo attacks. So tough to live this way but your reports give me hope! think my "trigger" is lack of sleep. Thank you!!!
Exactly this is me! How did u manage it?
You helped me and I know your gonna help a lot of people! Thank you so much!
I remember I was about 5 years old, live in Pakistan a small town. I suffer this experience, my parents took me to the local government hospital and they treated me for iron deficiency. Now I am 39 I have come to know that what I suffered was vestibular migraine. I have faced it time by time like whenever I take kidney beans and coffee in high quantities. Thank you for your explanation and awareness ☺️... Stay blessed 🙏
Anxiety can do a lot of damage, I really hope you will overcome this. Have a wonderful day:-)
I have! Thank you!
I've had a few vertigo episodes in my lifetime, but over the past 2 years, the severity of them has increased. I am 36 years old, almost 37. Recently I had 2 non headache vertigo episodes that lasted hours and made me sick to my stomach. The last one I had a couple weeks ago left me in bed nearly all day. I have also been complaining of headaches, head pressure, and eye socket pain in the past few months to my PCP, in addition, this May I also developed a weird sensation in my right ear, like a pitch on the right side of my brain area, and now my left too. Everything has piled up. The ENT PA thinks it sounds like vestibular migraine. Considering how many have taken years to get diagnosed with VB I guess I should feel "lucky" to have a possible answer to my symptoms. I don't have a treatment plan (meaning no medications). I just got a referral to physical therapy and was told to take Excedrin for vertigo episodes ( I read that could be a bad idea) and then to follow up with PCP if these don't work. In short, the ENT PA is not taking me seriously. I really wish this could just be a temporary bad break in my life. My anxiety isn't helping and sometimes I am not sure if I am making up my symptoms or if they really are there.
Have just found you and it’s a relief to know that there is possibly a permanent light at the end of the dizzy tunnel. Feeling dizzy all the time is just horrid. I also don’t get headaches with VM just a tightness in my head on the left side with internal pressure and loud ringing tinnitus right before it get an attack. I don’t get the vertigo but am very light and sound sensitive and need to get out of the area I am in asap. I have been told this is my brain kicking into fight or flight mode. I have not panicked and am usually quiet practical about conditions so thought I was turning into a an anxious and worried person which is so not me. I was lucky to go private - UK based - and quickly saw ENT specialist who sent me onto a balance professional. I’ll watch your second video to see what treatment you were recommended
This sounds like me. Onset was last week. My period was coming on so I figured it was just regular period flu. Ended up in ER diagnosed with Vertigo. Meclizine did nothing. About 50% better now but lights, loud noises, and turning while driving gets me
Can u pls tell if you had shaky vision also??pls reply
I am going through another about much like the one that you talk about here. Did you ever make a connection between your trip to Japan and the vestibular migraines? I have not been on a plane in years for fear of it triggering more of the sensations, especially because I know about maldebarcment syndrome
Thank you for your video. I can relate. I’m going through similar situations for the past year. It all started when I got off a ride at Centre Island (the tea cup ride) I was diagnosed with Vertigo. I get Vestibular migraines. Huh Vertigo is a symptom not a diagnosis! I get triggered mostly when I am stressed, tired, motion, loud noises, bright lights, change of weather, moving my head side to side quickly.
Does your heart rate also go high and arrythmia? Ive had this for 3 years and feels like presyncope and bad headaches in back of head = vestibullar migraines. Almost daily. What helps?
Really looking forward to part 2
It's finally posted!
I had this constantly for months. Felt like I was on a turbulent boat. One day I got a really bad migraine and went to urgent care where they gave me a shot of imitrex and BAM, dizziness went away. After months of seeing different doctors I realized it was migraine related. Why don’t neurologists look into this as being the cause?! So frustrating!
Doing dishes when I clack the coffee cups and plates together it hurts
I had an episode of this about 4 years ago lasting about 6 months. 3 doctors dismissed me as being a malingerer. I could only safely walk with a wheely walker as I was falling all the time. Walking on sponges, turning and losing balance, all your symptoms. It was awful. I have recently had an MRI after insisting because of headaches for the last 3 years. I have been found to have periventricular white matter lesions. Probably causing my severe R sided head/neck migraines up to 10 days a month. I want to now visit a neurosurgeon. My GP is not very proactive. I feel like she hasn't believe me. The MRI has shown something but I I am not sure she knows what to do. Except wait and see. I want a plan if possible.
Thankyou for your video. The symptoms were so accurate to lots of mine. 🧸
On day 2 of a VM, had to call out of work yesterday, again. I work with screens for 12 hours a day, and I don't know how much longer I can do this job, which is something I love to do. How did you cope with that change and figuring out what to do?
Hey there, I live in the Dallas area and have been battling this for 7-8 months now. I’m a 36yo male that’s healthy and works out daily. I own a roofing company and has drastically affected my confidence of climbing steep roofs due to the fear of falling off. Everything you described is literally what I’ve been experiencing. I’ve been to a physician and had blood work done, been to an ENT and also had a cat scan on my head and everything checked out good. I feel like my head is disconnected from my body at times and literally walking on clouds. I get the random rollercoaster feeling a few times a day. It’s ongoing non stop. Is there any recommendations you can give for possibly solutions towards correcting this issue?
Possible* solutions
Hi...i have also a symptoms like you, vertigo while eating food
I just got diagnosed with vestibular migraine today. And i have all the symtoms that you discussed about especially as u said u had trouble following and felt like an idiot exactly the same as i feel now. But then again no loosing hope atleast not something as life threatening like a brain tumor o something.. thanks for sharing 👍..
I have vestibular migraine and I'm also dealing with a weird issue now with my vision. My right eye just refuses to focus and has awful pain and eye strain. I've went to THREE eye doctors who tell me there's nothing wrong with me and that my prescription is correct. I just started a new job and can barely work, I can barely do things like grocery shopping. I'm getting depressed because of it. I have an appointment with a neuroopthamologist in a month and I'm trying to be hopeful without getting my hopes up.
you need to go with a otonerologist
Update to this comment: I was finally diagnosed with Hemicrania continua and that was the cause of the pain on my right side and eye. I take boswellia for it and am in remission. As for migraine, still struggling with chronic migraine. Nurtec greatly reduces it. I was taking Ajovy and it made my vestibular issues basically completely go away but I had to go off it this month due to wear off time and side effects. I'm struggling with a bad vestibular attack this week but hanging in there.
Wow! This video is very helpful. Haven’t got diagnosed yet but sounds very similar of what been happening to me for over a year now. At first it was me just getting dizzy twice a day to where now I get dizzy while I’m asleep or sitting down and it’ll happen like 4 times a day and to where I lose taste, body feels numb for couple of days and also have brain fog/confusion.
Have had regular migraines for years. Got back from long drive to Texas to see eclipse and had first vertigo attack that lasted hours and it was awful. Nausea, and some pressure in head but no real pain. Started topamax a couple of months ago--small dose--but neurologist relative over phone says that's probably not it--it's 2 weeks now and I still get profound vertigo if I move my head wrong. Haven't gone to doc yet--may next week. Last night I almost fell backwards doing nothing. Putting eye drops in makes me dizzy too. Thank you for your video--what makes it hard, besides being a woman, is that now I'm a senior citizen so I will have to cope with ageism and the "it's just old age". But I don't think it is.
Hey - FWIW I had a lot of followers who struggled after the eclipse. I live in Dallas and I even felt off for the rest of the day. And I've been feeling really good lately. A good rescue plan can help for the vertigo: thedizzycook.com/acute-treatments-for-vestibular-migraine/
My wife starts out with a headache, then the room starts spinning , she loses touch with reality, her eyes get real glasses then she will back out. when she wakes up she will twitch 3 times then wakes up. Year and a half later we still can't get a doctor tell us whats going on. Please help!
You have given so many like myself hope! I have been seeking help for 2 years now and will be seeing my 6th new Dr. the end of this month!
I really hope this one is the one. If you haven't gotten Dr. Beh's new book yet I highly encourage it!
His Book was just delivered!!! I am so happy to have this resource as well!
I wanted did you often get dizzy/lightheaded at night while driving? I was diagnosed with VM and given very low dose of Nortriptyline. It hasn’t helped but maybe decrease the intensity of the eye pain, neck pain and the dizziness hasn’t decreased by much. The worse for me is if I am out at night it just triggers me
I was diagnosed 2 years ago. I’m having an attack today. Terrible condition.
So sorry to hear that. Hope you're feeling better. I have some tips here: thedizzycook.com/5-tips-to-relieve-a-migrainous-vertigo-attack/
Your video came up after searching this. I just had a vertigo attack while playing with a dog in a field. Stumbled to the house and am battling with it. I feel horrible but gotta get through this. Thanks for the video!
I hope you were able to feel better soon. I have some tips here if it happens again.
thedizzycook.com/5-tips-to-relieve-a-migrainous-vertigo-attack/
That's my story too! I'm stilling trying to find a Dr that will take me seriously!
Hello from the Middle East now I know I’m not the only one 💕thank you for sharing