I relate to so much of Joelle’s story, the symptoms, the anxiety, not crying at my mothers funeral. I’m working with a therapist on self compassion which I think is the missing piece for me.
Another fantastic interview - congratulations Joella - I can relate even though I have PPPD - the neck pain and headaches, ear fullness, brain zaps sound all too familiar to me. I am getting better all the time.
Another fab success story.. I seak out these to watch and when I'm having bad symptoms I know my go to videos that help me. I will say Dr. Yo that you explain things in a way no other video ever has like for me "accept and allow" really meant me saying it to myself but still feeling scared whereas you taught me to "not react" and it hit me different and I'm hopeful I can get better.. your amazing ❤
Thank you for sharing your story, Joella. I'm filled with hope after listening. I had a rough day yesterday and was babysitting my 2 yr old nephew and I thought about how I wish he could know the real me, healed from my vestibular issues because they steal my joy. I really resonated with what you said about not being able to be you. What an incredible journey to healing you went on.
This thing just takes so much of us, it can be hard to reconcile the life we had with who we are with vestibular issues. It took me time even after I was better to remember joy again. I was almost afraid of letting myself go there for fear the fall would be that much worse if I had a setback, but slowly I regained that trust again in my body. My joy did return and yours can too. He can still get to know his uncle - don't lose heart. Healing is possible! Hold on to that when those dark thoughts invade your mind. You're not alone! There are lots of us who have gone through this and come back to ourselves again. ❤️
I had the exact thing happen when i did the stripes. It switched from side to side swaying to front to back after doing it. Unfortunately I cant get the front to back to stop though (I tried up and down). The sensation feels more subtle and im able to tolerate more...but its been 1 year now for me living with this. Its good to hear a success story with such similar symptoms to me! Thankyou❤
Interesting how that works. I know another person that the OKN stripes took the side to side and made it front to back as well. I agree the front to back sway was more tolerable than the side to side one. You said you tried up and down, but did you tip your head up (looking at the ceiling with the tablet/device above your face) with the stripes going forward or back depending on your sway? That's what me and this other person did. As Dr. Yo mentioned, there's no study on this so she can't officially recommend it, but anecdotally that's what helped me.
@@Dizzyland_Mom No I havent, but I will try that! Although I cant really tell which is more forceful (rocking front or back feels about the same) so I'm not sure which way to watch the stripes first. Also did you move your head or just looked straight up and kept your head still while following with eyes? I also get an occasional sway to the left. Also did you feel really off or worse after driving and getting out of the car to walk? I'm fine while driving, but feel way worse after stopping the car and then getting out to walk. And did your symptoms get worse before/during your menstrual cycle? Thanks so much for your sharing your journey with everyone! It gives me hope!
Today in my recovering journey… what I actually needed was someone to hold my hand… hold my heart in a sacred and safe space … give me encouragement and hope… and understand my struggle. All this , while I’m still climbing up the hill, I can see the light, and on my own strength. Thank You, With ALL my heart.
Once you can see the light, don't let go! You're mostly there! Sometimes that light can flicker with setbacks and intrusive thoughts (mind did), but once you have it, I truly believe it's only a matter of time to be fully walking in that light.
Thank you so much for your story Joella. At the moment I’m struggling with my brains pre predictions of symptoms - like oh no your standing still your going to feel this and then I do. I don’t know if anyone else has experienced this and how they combated it.
I definitely had something similar to this as well! After I started getting better, I'd be in a grocery store (or some other triggering place) and think to myself, "oh my gosh, I'm actually not dizzy," and immediately find myself dizzy. It's moments like this that would help reaffirm my belief it was NCD (because if it wasn't, a thought couldn't make me dizzy), and I would feel reassured that the work I was doing was going to make a difference. So I guess for me, I tried to spin the frustration of it into a mental confirmation that this was in fact my brain, and because my brain is plastic, I CAN and WILL get better. Similar to what I mention in the video thinking, "I'm never going to get better" and immediately being sick, use these moments where the correlation is undeniable as your proof. Not sure if that exactly answers how to combat it, but maybe gives you a different way to think about it. Eventually, as my dizziness became less and less, those intrusive thoughts became less and less as well. It's a process. It didn't happen overnight. Give yourself time and grace.
I came back to this video after watching the group discussion that's recently posted. Thank you Joella for sharing your journey to recovery. It might seem obvious to many, but for me the steps to self compassion exercise was very moving and personally helpful. Really appreciate this success story, thank you to both Joella and Dr. Yo
Dr.Yo you are such an incredible person to have on any social media platform . You instill hope in so many struggling please never stop! These success stories help me so much when I’m down with these symptoms . Lots to work on (diagnosed with MDDS/Vestib migraine / and PPPD) but just seems to be a really big nervous system issue that I want to help so badly . Thank you for this story I resonate a lot with it
What a beautiful recovery story!! You give so many of us so much hope and the way you articulate your recovery process is so helpful. Especially how you describe the ups and downs of recovery once you have made initial progress. The best I’ve heard!
Great interview and very relateable ...maybe future interviews could talk about sharing what a detailed day in the life of a recovery journey day looks like that was effective ...
After years and years, I stayed from December 2022 to May 2023 without feeling practically any dizziness, but I don't know why, unfortunately this came back and here I am, watching these videos for a solution
When you said this is cathartic for me, I realized it is for me as well listening to these interviews. I am in the up and down stage right now and these interviews seriously give me so much hope and help more than you’ll ever know!!! Thanks ☺️
Very helpful, loved saying "i love you brain", not easy. Im suffring from dizzness over 6 months, after my second birth . When i go on somthing that moves, i get off and im rocking and hold on not to fall. I hope its truly my brsin and emotions. Because i belive in healing. What can i do to help? Dr.yonit i will like to contact you for help.
It is awful, but you are in the right place! Please consider taking my free course on healing chronic dizziness thesteadycoach.com/free-course. If you are interested in working with me, please feel free to check out my services on my website thesteadycoach.com/
Hello! Great interview! Have you ever interviewed anyone with spontaneous mdds? Are the recommendations the same? I have been dizzy for three years and a doctor recently suggested spontaneous mdds.
Wonderful interview. Inspiring. I know I will watch it again Dr. Yo, without you I would be in total despair. You were the only person who gave me hope. All others told me to learn to live with it. My fear was over the moon. Thank you from the bottom of my heart.
Thank you for your vulnerable sharing of the emotional process -it was truly the same for me. You inspire me as I’m doing much better and need these stories to keep going!
You're welcome - it was such a part of my story. The emotional rollercoaster was almost as hard as the physical one. I'm glad it resonated with you and I'm so happy to hear you're improving. Keep going. You've got this!
Quick question: If dizziness comes from irregular nervous system or stress, why do movements and exercises help the dizziness and symptoms? Wouldn’t symptoms be unchanging if it was only cns and stress?
There is not an immediate cause and effect relationship between a stressful event and symptoms. Environmental triggers still exist when the brain is predicting danger in general. This video clarifies more. ua-cam.com/video/StYWlDFkFjM/v-deo.htmlsi=OGhp9HzfH9JgWUdG as does this one ua-cam.com/video/6mPKiOa7VQ8/v-deo.htmlsi=h-9CKkKQg0jHvz0u
@@TheSteadyCoach there is not an immediate effect between stressful event and symptoms? Then why is it that when someone is driving in a rush and stressed , they start getting dizzy? One of the ladies in your interview had that experience. She started getting visual dizziness. But why do exercises work for that if the stress was underlying… I will watch the video but still would be good to know that.
Thedymptoms eas wuit few yesrs slready but fiziness come a yr already i fell dizzy dtiil sfter going yo s diabetologist nuerologist optalmologist 3hosp already my lab results was sll normal just a wk i vsited my optalmologist and my nuerologist my optal daid my check up was normal and my nuerologist eas looking for my lab result thst it eas normal lsb results were normal nut sm still dizzy. How can i cope dizziness?
Thank you so much for sharing - my symptoms started after running a marathon and then traveling across the world and boating (talk about creating danger in the brain haha). And similarly I lost my dad about a year and a half ago very suddenly. It’s been very up and down recovery wise but really needed to hear about your amazing recovery. Thanks again for sharing! ❤
I'm so glad I found this recovery story. I've had all those symptoms plus others. Shakes, sweats, constant pulsatile tinnitus and physical thumping in my head with pressure I Haven't heard anyone talk of this particular symptom but assuming it's all part of it. 🙏
The brain can do some crazy things. The symptom drift is very frustrating but also a little fascinating that our minds can create all these things. I actually had some head pressure...almost felt like sinus pressure but not quite and I know a few people who had what they describe as body trembles so you're definitely not alone.
Dear Dr.Yo! Thanks for your marvelous job Can you please advise if you have a plan to film a success story with a people after Superior Canal Dehiscence syndrome?
thank you Dr.Yo and joella for this. I would love to hear more about when they feel or realized they've "recovered". How does the symptoms fade away, and how does it feel?? how do we know it's not just one of the better days? because one person said he had a really bad day, but suddenly the symptoms were all gone the next day. I think that's unusual. I know I'm asking for too much since you're already saving our lives.
Ask Dr. Yo: what does recovery from chronic dizziness (PPPD, MdDS-type symptoms, VM) look like? ua-cam.com/video/zJcWEn19W3g/v-deo.htmlsi=lfGVzMPVhSij0uon
This was honestly something I really struggled with. After I was better physically, it took quite awhile to let the joy back in and truly believe that it was more than just an "up." I think I mention it in the video but there was this sense of living in black and white. If I let myself truly believe I'm better, the fall in the next setback will only be that much farther. Eventually with time, I began to trust myself again. To your point about being better after a setback, sometimes I would find that was true as well - maybe not 100% better, but often my new baseline was often better than before I had the setback. It was the silver lining of taking a step back. As far as knowing when you're recovered, for me it was a slow progression of better, with lots of dips in between (it was always two steps forward, one step back), but I would try to look at improvement month to month instead of day to day or week to week. It was too hard to see progression in small time frames because there are so many ups and downs. If I looked month to month, I was able to recognize things I was able to do that I wasn't able to do before, or things I wasn't afraid of doing any longer (e.g. going into a grocery store).
Thank you Joella for replying!! People on the success story say, the symptoms start to get less intense, and eventually it faded away in a few months. You talking about the ups and down being one of the hardest is so real. Last month I was doing so well, and I told myself, "let this lead to the whole recovery" I truly felt I could do it, but like you said, the brain just suddenly says "NO" and it's so disappointing. Like, how many times do I have to do the ups and downs. But looking at the improvement month to month is actually so important, Thank you for the advice. Did you ride the roller coaster after you recovered 100%??
I am sorry you are going through this. Please check out my free course on my recommendations and techniques on how to heal neural circuit dizziness. thesteadycoach.com/free-course. You may also be interested in this video if you have not already seen it on how to tell if your dizziness in neural circuit dizziness ua-cam.com/video/rtwNNaw7dqA/v-deo.htmlsi=9VjwgeGOGmPbXXDJ
This has been positive. I had it n 2019 lasted for about 2months and returned in august same month in 2019! thought that may have meant something? my first time have no clue how it appeared i was in a van and the ride was a little rough! this last time i went up 1 floor on elevator was fine until i came down!!! this is a feeling of despair...my biggest concerns are also how to live a normal life to go out on a boat,plane,elevator,etc... is this just all fear in the brain? no one knows unless they have lived with it! very hopeless feeling. thank you for your story. any answers are appreciated.
Awesome interview! I tried IFS once some time ago and the therapist just had me lie down, close my eyes, and say if anything came to mind (mostly darkness)...I guess I didn't get the right practitioner?
I've watched a ton of the success stories on here, but this was one that came exactly at the right time for me and said exactly the things I needed to hear! I've been dizzy + other symptoms since February, started recovering in June, found your videos shortly afterwards which really gave my recovery its momentum, and now I'd say I'm in the 70-80% better stage that Joella described. But this afternoon I was slammed with a new wave of intense dizziness, flu-like symptoms, etc, and I was feeling so distraught about it :( So hearing her say that this period can be one of the hardest, most confusing periods felt so so validating. Just in the course of watching this interview, my symptoms aren't necessarily going away but the distress IS melting back a bit, which is so big. Thank you Dr Yo and thank you Joella!! Stories are everything
@TheSteadyCoach thank you! 🙏❤️ I love your work too - thank you 💖🌹 Is it your opinion that MdDS is always connected to/related to trauma or anxiety of some kind? I had already torn my MCL & ACL back in 2017 and doing the exercise bike for rehab on my knee created the up & down on the ocean motion/sensation - and hence the mdds. My partner was still alive at the time and I had Crohn's, a peri abscess & fistula, CFS, Sarcopenia, a really awful perimenopause & then the mdds - just to top it all off. We were seeing doctors together, trying desperately to find out what was going so wrong with me to cause all of those things! ^ My partner was my caregiver (as much as he could be anyway, he didn't drive & I still went walking & tried to do as much as I could), he was 18 years younger than me (he'd only just turned 30) and he died suddenly on my bed and my mum found him the next day - because I had stayed over at her house the night before because I wasn't feeling or doing very well. The added shock & grief of that didn't help my situation any (of course), and now the lack of support and help from him too is really hard as well if I'm honest 😞 How do I cope with addressing the mdds now - with even more trauma and anxiety added to the situation from his sudden death? Talk about complicated?! x
Sorry for the way delayed response. I did it once the first time and thought it didn't do anything, woke up the next day rocking front to back. I did it a couple times the next day working on the front to back sway and woke up the next day fairly steady. Note, this only helped my physical sway not the internal motion I was feeling. A few weeks later it started to creep back in so I did the more prescribed method in Dr. Yo's videos which was I think 5 times a day for several days and that is when it finally took away the sway for good. I was still dizzy for several months after that and did a lot of nervous system and emotional work to heal, but it was a tactic that helped.
@Joella84 thank you so much for taking the time to write all of that to me Joella. I'm so happy for you 🤗 🙏💝 Any chance you could tell me what sort of nervous system/emotional work that you did? Is there anything (really good) that you could recommend to me? It's a pretty tough gig when you go & tear your ACL & meniscus and then your 30 year old partner/caregiver dies suddenly and totally unexpectedly on you. It feels like I have a million years of - and a million layers of, trauma to deal with now. And tbvh, what I just mentioned ^ is only just the tip of the iceberg... xo
@@143LoveConquersAll I'm so sorry! That sounds like an incredible amount of stress and trauma to endure. I did a combination of EMDR and IFS (internal family systems). I also did a lot of calming work so meditation, somatic work, exercise, and the curable app. Once I turned down the anxiety and the negative voice/catastrophising my nervous system started to relax. I had a decent initial decrease in symptoms but took quite awhile to fully let go enough to heal the dizziness. It doesn't mean I'm "fixed"...I still go to therapy and work on myself, but I'm healed enough that my nervous system was able to release the dizziness it was using as an alarm signal. I still have to be conscious of how my day-to -day stressors are building and continue with the things I know calm me (meditation, exercise, etc.). Im learning recovery is an ongoing process and I need to maintain that sense of peace and healing in order to maintain my steadiness.
I can’t wait till I’m out of this maybe that’s what’s keeping me that way is the lack of patience I felt her pain I hate when I wake up in the morning I gotta put my warrior suit on an get on with it every day
When she says about her son saying “Mommy, I miss you.” That’s amazing, he saw it. I say I miss me. Most people don’t see it. The eye twitch, the vomiting. The non voluntary isolation. The sciatic pain on the left side. A right shoulder break. My husband passed away suddenly and unexpected and the MdDS got huge. Chronic stress and lists of things to do. I went to a balance and dizziness vestibular institute that won’t admit to MdDS or PPPD being a diagnosis. They give deadlines. They say a person is healed in 12 to 32 sessions. They have the large equipment and instructors who have made this their career. They told me to figure it out myself, but they would continue to treat me after cutting off my treatment for 5 months. I found Dr. Yo’s UA-cam I live close to Disneyland and have a pass, so I go there late at night when there are smaller crowds and practice walking Listening to this has me crying
I'm so sorry you're going through this. I completely understand that. I know how hard it is to not recognize yourself anymore but I promise you can feel at home in your own body again. And yes, my kiddos definitely felt it - I went from vibrant and playful to survival mode. As I got a little more used to being dizzy and the intensity subsided a bit, it became more of that invisible illness where I would fake it and put on a smile for others. I bet Disneyland is great vestibular exercise for you! Maybe take a play from my playbook and listen to Dr. Yo talking you through a somatic audio track so you can create that exposure but couple it with messages of calm and safety.
Hello, how long did Joella have these symptoms before fully recovering? I've watched this a few times because it seems exactly like my situation but I couldnt seem to find this answer. Thank you!
I had it for about a year before fully recovering. At the time of the interview I thought I was fully recovered (only having seconds of dizziness here and there a few times a month), but then the following three months it slowly just kept getting better and better. Now I really don't have any to speak of. I would say the first 3-4 months were heavy and then I did the yo-yo and symptom drift thing, slowly improving for the next 4-6 months. And the last 3 months were going from very minimal to none.
@Dizzyland_Mom omg, thank you for responding. I watch your success story all the time and it gives me so much hope. I have been only dealing with this for 5 weeks but its been tough mentally. It has gotten better but still feel the dizzy when I'm on the computer for work and throughout the day in high stimulus areas. I also can't be on my phone anymore. I think I am in the symptom drift stage since now my left eye doesn't see as clear as it used to. Some days are harder than others. I am so glad you are still doing great! My concern is that I commute to work everyday by car 2hr round trip. I am not sure if this would delay or prevent me to get better. Like yourself, I don't get bothered by being in the car.
Hi Dr. Yo, I have been subscribed for about a month but new to your membership community. I’m struggling lots but really trying to find my way to recovery. A lot of my story is similar to Joella’s, do you k ow if she would be willing to be contacted. I saw that she’s spoken to some folks on the membership but not sure how I can reach out to her. Thank you for all that you’re doing.
@Joella84 just listened to this video and I feel I have Mdds with 24/7 gravitational swaying fir 40 years. I heard you say you have done some VRT and sematic tracking which I don't think I will be able to do as my condition is so debilitating. Should I take Dr. Yo's free course and then sign up for the Curable app and membership. Any information is greatly appreciated. Thank you.
The worst part is my Mom doesnt seem to be able to acknowledge Im really ill. Now trying pysciblin capsules. But I thought i was going to have to end my life
Please, please find someone you can speak with about this. Those dark intrusive thoughts can get so loud, but it can get better and healing is possible. Hold on to that. It is incredibly isolating and it's one of those invisible illnesses that the people around you can't possibly comprehend without going through it. Dr. Yo has a video for families to help them better understand. Is it something you could possibly share with her or that she'd be open to listening to?
Hi Dr. Yo I hope you are doing well. I am looking to work with a IFS therapist - I have worked with one in the past and it was really helpful. Any way you can tell me where Joella found her therapist? she mentioned a site?
Vanuit Nederland heb ik een vraag hoe vaak per dag heb je die oefeningen gedaan,, ik ben ervoor naar België geweest en daar deden ze het 3x per dag helaas heeft dat niet geholpen, ik heb nu 7 maanden mdds na een boottocht boottocht. En dan nog 1 vraag het gebeurt mij dat het spontaan 1 dag weg is en de volgende dag is het er weer,, hoop op een antwoord . Zou er heel graag vanaf willen. Groetjes Wendy uit Nederland.
Hi Joella, your story gives me so much hope. I had emergency heart surgery 3 months ago and nearly passed away. Ever since I have been experiencing constant symptoms, I've been told my body is in disequilibrium because of the trauma of the event and Surgery. I feel constant bobbing and sometimes that things are bending/ rebounding towards me. I don't know if you ever experienced this and what helped
How scary! And with that trauma it sounds very plausible this is NCD. I'm assuming you're working with your physician to rule out physical things? I don't know if I would describe it as bobbing. Mine was definitely more rocking - just like it feels like you do when you're on a boat. I had some visual stuff but it was more of a lagging/visual delay processing sensation. And I'm unsure whether the OKN stripes would help with bobbing. That would probably be a question for Dr. Yo if there's any research on that.
Joella, thank you for sharing your story. I felt like I was listening to my own story (also a mother of twins and if I heard your sons name correctly, it’s the same as my son). I’m recovering from my 3rd bout. First was in 2010 after a cruise and second two were just a day on a pontoon boat. This one has been the longest, but your story has given me the push I need to get through this last 10 percent. Thank you! Happy to hear you are healed!
1:20:39 Oh my goodness how close my story is to yours Joella. I had 3 weeks of insomnia and the lightening rushes in the middle of the night. I also did not cry at my Mother’s funeral aged 18. I cried for half an hour after hearing your VT We are ‘ONE’ your success is all of our success. Hearing your path has inspired me no end 🙏
I'm so happy this gave you inspiration to keep going! We are all one in this battle because the pain, fear, emotions and loss are a common thread through all of our stories. But it sounds like our stories have some pretty specific commonalities so if I can do it, you can do it too!
Please consider taking my free course on healing chronic dizziness. All of my techniques and recommendations are condensed within this course. thesteadycoach.com/free-course
Ive been watching/listening and you have helped me out so much! Cant thanks you enough :)..I want to go aboard (8 hour flight) i'll be good to go right?
You've got this! I've taken a few flights now (across the country so 6+ hours) and everything was just fine. You can try graded exposure to the flight, and then mentally see yourself on the flight with no impact on symptoms. It's what I did to help me prepare.
@@Dizzyland_Mom Thank you, I was wondering whether I should do shorter connecting flights. I'm not really scared of the flight or going. It's a slight fear that I'll get worse. it probably the only thing im scared of now because I haven't got on a plane in three years! That also plays a big part in it. But we all no the fear will make it worse!
@@Kezza27 I think you should do what makes you feel most comfortable and gives the most reassurance and calm to your nervous system. If you're worried about the long flight time, then go for a flight with a layover and put your feet in terra firma for a couple hours between legs. Once you've built that confidence go for the nonstop on your next flight. Or if you feel good now then go for the non-stop. I'm not the expert but I believe the comfort level I felt going into my vestibular challenges and that sense of knowing I mentioned that I'd be okay was what also drove the outcome. A self-fulfilling prophecy if you will. So if you don't have that sense of knowing yet and are more comfortable with a stop, do what you feel ready for.
@@Dizzyland_Mom Yeh I think I'll jut do the 8 hours. its night flight so I can close my eyes.. I think the fear thing is just hurdle I have to deal with. i'm not 100% out of it yet. but the whole point in going away is so I can spend 3 month, zero stress, and focus on me! I really think its what I need to get over the last hurdle. focus on me and not everybody else for once 😇 3 months in the sun and on the beach loving life, yoga, mediation, exercise :)
1:13:55 I disagree here: It's a combination of high stress/danger mode together with being in passive motion for a prolonged time (boat, plane, elevator etc.) these are unnatural movements we humans aren't created to be in. Why do people instantly feel better while they are being in passive motion? The thing/part in the brain/body as are in charge of the balance has adapted itself to be in this unnatural state. A reason why people doesn't recover quicker is because they're still being exposed to passive motion event's during their daily life, the "program" in the brain as are in charge of balance, still thinks it should be in that dizzy state. Joella' said she felt better while she started running too (running is a natural movement which is good for mdds recovery): that's because the program in the brain as she had before she were exposed to this cruisetrip is starting to go back to it's state it was before the trip, it isn't hard to get back in this state, because that's the most natural state the brain has been in it's whole life, you just have to help the brain a little bit on the way and the brain will switch back to it's old balance program as it should be in.
@@seeyouonthefly2024 Yes, I've been fine for over a year now. I can use a elevator, but only if I doesn't feel stressful or anxious and don't use it too many times the same day. My MDDS started when I helped my brother moving from his apartment, it took some days and it was stressful and I used the elevator many times the same day. My dizziness lasted for 2 weeks, and I didn't use my car under this time because it was broken, and I run everyday, which helped speed up my recovery process.
@@kitkatwozny We're all different with different brains and ages and we all have different lifestyles; some people can handle stress/anxiety faster/better than others, which have a impact on speed recovery. I didn't start taking any meds under the recovery period, that's a mistake people do, it will only make it worse. If the brain wasn't under any influence when it changed and adapted to a passive motion event, then it shouldn't need any meds to switch back to normal again. And people as say things like this: "my brain must be damaged or that something must be broken" now when they got mdds, NO, nothing is damged or broken in the brain, the switch it did to activate MDDS in the brain is just a proof that everything works as it should in the circuit in the brain as are in charge of balance. If my brain can change so can yours!
So glad to hear about your recovery! Absolutely wonderful! I agree with the mechanism you're proposing but don't know that I agree with avoiding passive motion. I think it probably depends on the person. Unfortunately many people I work with have pre-existing anxiety and OCD tendencies, but even for people who are just overwhelmed with fear at the symptoms, avoidance can increase the fear and anticipation dramatically.
@@TheSteadyCoach Thank you Dr. Yo! The avoidance of passive motion should be in the beginning of mdds, for a month or two. After the mdds is gone, then you can get exposed to passive motion, just not to much of it the same day, and definitely not if you feel stressed or anxiety. These are my theories of all this madness.
I am still testing your theory out currently. I am trying to leave driving alone for awhile now to see if it helps calm down the rocking front/back. I am not fearful of driving and am not avoiding it out of fear but to see if it is contributing to keeping the rocking going. The rocking definitely is worse after stopping at a light or when finished driving etc. Trying to walk after getting out of the car is a really awful feeling. I have had this for 1 year now...however I was driving weekly, using a rocking chair, and a treadmill for about 8 of those months. I haven't used the rocking chair or treadmill in months and that seemed to help it decrease (from a 4 down to a 2.5). But I was still driving up until a few weeks ago. So now I'm hoping that it helps in addition to keeping my stress down. I also exercise frequently but have to find the right balance daily...because too much exercise can sometimes aggravate the symptoms.
I consider myself 100% recovered. Every once in awhile (maybe once or twice a month), I'll have a day that I have a few of those "swoons." So to be clear, in total, this accounts for less than 10 seconds of my day on a "bad day." But I'm still fairly early in my recovery. I believe those days will go away entirely in the next few months as my brain completes the letting go process. It's also important to remember that this thing has a form of PTSD with it and right now my brain is still sensitive/hyper-vigilant to any vestibular sensations. Having moments of dizziness, like being woozy when you're groggy, or feeling a little off after standing up too fast, is completely normal, it's just right now my brain is paying extra attention to those moments. But I can say I've "tested" my healing, without any symptoms - so things like head colds, falling down my stairs and hitting my head (yes this happened), going on a plane or boat, entering a shopping center, etc. - things that would normally affect symptoms, have had no effect since recovering. Hope that helps!
@@ThePurpleElephantt hmm that's a good question. Honest answer - I don't know. As of right now, no. I have zero desire to do that, but as this becomes more of a distant memory, maybe. It even took me awhile to be able to look at photos from my cruise without feeling sad and/or resentful. The want just isn't there - it's less about fear but after months of "being on the boat" it doesn't even sound fun to feel like I'm on a large ship constantly rocking. But I have been on day trips on our pontoon so I haven't sworn off boats entirely.
Hi joella. You talk about IFS here. I am currently reading “no bad parts”. I want to know how did you put them into practice. Did you self learn or were you told by your therapist? I want to practice these. But I need some assistance. Btw I am like 80-85 % better. It’s just the last bit. I live normally doing all the things. But I still feel some sensations some days which is kinda frustrating. Hope I am not bothering you. Thanks again
@@vijaydhalani9958 I mostly self taught IFS. It was only after I mentioned it to my therapist that I was reading the book and enjoyed it, did she start incorporating it into our sessions. I just did the exercises in the book. Dr. Yo has a self compassion guid that can help with question too. I'm so happy to hear you're almost there! That last little bit takes so long to get through that it's easy to wonder if 80/85% is as good as it gets but it does get there it just takes time.
Your talk came at the perfect time as I am experiencing a relapse after seeing such improvement and thinking, just like you, that in just a couple of weeks or a month, this will all be behind me. I think that the EMDR and IFS therapies are the missing link and so excited to hear that you found a therapist who combined them both. Is she available online or does it have to be in person? Would love to get her name if it's possible to see her online!! Thank you so much for sharing. It gave me so much hope again as I was struggling back into a depression.
Oh I'm so sorry you're in a relapse/setback. As annoying as it is, it's a completely normal part of the healing process for so many of us with this. I can't tell you how many of those setbacks I had...the constant two steps forward, one step back tested my belief in healing, resilience and sanity. For what it's worth, if it's of any hope to you, often when I would come out of the dip, my baseline would be just a little better than before. And we're not the only ones who think that "just a little more time;" I know of so many who have had similar thoughts and been devastated by the symptom whiplash that follows. It's like your brain wants to test you just when you start to have hope. So, if you're there, I get it. You're not alone in all the fear, frustration, and depression that comes with it. I can ask if she sees clients online, but if she can't there are resources out there to work on this. EMDR therapists are fairly easy to find, and you can absolutely do the IFS work yourself. Most of my IFS work was done solo; it was a relatively small integration into my therapy sessions. If it's helpful my weekly routine consisted of daily meditations/affirmations, daily movement, 1x Dr. Yo's weekly Q&A for her membership community, 2-3x membership community checkins, 1x EMDR therapy session (in-person with my therapist), and 1x self-led IFS session at home, and then mini IFS sessions as needed throughout the week if I felt a part really pushing through/needing attention.
I'm having a setback as well, after doing so much better for about 2 months.😅 when I come out of the dips, it's usually when I have that "ah haa" moment, and something clicks. Is it like that for you? or does the better days come naturally??
Thank you so much for your encouragement. In retrospect, I have, indeed, come a long way in the last 2 years from clinging to walls & walking with a cane to long walks with an impatient dog. I think that an in-person EMDR session would be more effective so will look for someone local. I did, also, find a IFS workbook on Amazon and will begin seeking out those distressed parts. I really appreciate you sharing the compassionate way to talk to your dizziness and have started those steps instead of lashing out at it in anger and frustration. You are such a great inspiration, giving so many renewed hope. Thank you for sharing!!!
@@MonaBryant-d1g you're very welcome! And holy wow! That is amazing progress! Remember that! Hold onto how far you've come. I just tried to remember my brain found my new baseline before, it will find it again!
@@mal-nx6xs im so sorry you're in a dip! You can and will get it back! I know how frustrating it is! Give yourself time and keep doing the work and you'll get there again! I'm not sure what causes me to come out of it. I don't recall aha moments necessarily, because if I'm being honest in those dips I would spin out emotionally and there wasn't much logic or "aha-ing." 🤪 I think it more just felt like it slowly got back to my baseline. But something that did happen after a dip, my baseline would sometimes improve. It was my silver lining of taking a step back - I took an even bigger step forward.
@Joella84 This was so encouraging. Thank you very much for sharing your story :)) And Dr Yo for making this possible ❤ You said you do scuba diving? I got MdDS from the boat ride of a dive safari. I came across some alarming info that indicated I might need to give up this hobby from which I get so much joy I understand it hopefully correctly you're doing it again?
Im sorry you got this from a dive excursion! I'm actually diving for the first time next weekend! I'll be sure to report back. But as I said there's a sense of knowing that it will be okay. I'm not anticipating any change in my symptoms. This thing has taken enough from me, I won't let it continue take away the things I love.
Hey Joella, hey Dr Yo, Thank you so much for your encouraging words that mean a lot to me! I hope you'll have an amazing time with diving and yes happy to hear how that went! I'm not entirely sure but I think I got mine from the boating itself as it was quite wavy especially during sleep on the boat. I look so much forward to go diving again after this :)
@Joella84 thank you very much for your response and happy to hear that you had a great time with no symptoms. That gives me hope to do it soon again as well :)
I relate to so much of Joelle’s story, the symptoms, the anxiety, not crying at my mothers funeral. I’m working with a therapist on self compassion which I think is the missing piece for me.
Another fantastic interview - congratulations Joella - I can relate even though I have PPPD - the neck pain and headaches, ear fullness, brain zaps sound all too familiar to me. I am getting better all the time.
Another fab success story.. I seak out these to watch and when I'm having bad symptoms I know my go to videos that help me. I will say Dr. Yo that you explain things in a way no other video ever has like for me "accept and allow" really meant me saying it to myself but still feeling scared whereas you taught me to "not react" and it hit me different and I'm hopeful I can get better.. your amazing ❤
Thank you for your trust Emmey and for you kind words! ❤
I relate to when i open my eyes wish i wouldnt. Feeli g electrocuted. 😢
Thank you for sharing your story, Joella. I'm filled with hope after listening. I had a rough day yesterday and was babysitting my 2 yr old nephew and I thought about how I wish he could know the real me, healed from my vestibular issues because they steal my joy. I really resonated with what you said about not being able to be you. What an incredible journey to healing you went on.
This thing just takes so much of us, it can be hard to reconcile the life we had with who we are with vestibular issues. It took me time even after I was better to remember joy again. I was almost afraid of letting myself go there for fear the fall would be that much worse if I had a setback, but slowly I regained that trust again in my body. My joy did return and yours can too. He can still get to know his uncle - don't lose heart. Healing is possible! Hold on to that when those dark thoughts invade your mind. You're not alone! There are lots of us who have gone through this and come back to ourselves again. ❤️
I had the exact thing happen when i did the stripes. It switched from side to side swaying to front to back after doing it. Unfortunately I cant get the front to back to stop though (I tried up and down). The sensation feels more subtle and im able to tolerate more...but its been 1 year now for me living with this. Its good to hear a success story with such similar symptoms to me! Thankyou❤
Interesting how that works. I know another person that the OKN stripes took the side to side and made it front to back as well. I agree the front to back sway was more tolerable than the side to side one. You said you tried up and down, but did you tip your head up (looking at the ceiling with the tablet/device above your face) with the stripes going forward or back depending on your sway? That's what me and this other person did. As Dr. Yo mentioned, there's no study on this so she can't officially recommend it, but anecdotally that's what helped me.
@@Dizzyland_Mom No I havent, but I will try that! Although I cant really tell which is more forceful (rocking front or back feels about the same) so I'm not sure which way to watch the stripes first. Also did you move your head or just looked straight up and kept your head still while following with eyes? I also get an occasional sway to the left. Also did you feel really off or worse after driving and getting out of the car to walk? I'm fine while driving, but feel way worse after stopping the car and then getting out to walk. And did your symptoms get worse before/during your menstrual cycle? Thanks so much for your sharing your journey with everyone! It gives me hope!
I never tire of success stories. ❤ and I’m always taken by the fact that each one has some personalized, unique nuggets of wisdom.
Beautiful ❤️
I had to quit my job today due to Mdds. I’ve been wondering if anyone else has had that experience
I haven’t been to work in two weeks due to this. I’m worried
@@keelyjohnson I’m currently in my 5th month of being unemployed due to this. I wish you a speedy recovery! 🖤
@@soupphantom no improvement? :(
Today in my recovering journey…
what I actually needed was someone to hold my hand… hold my heart in a sacred and safe space … give me encouragement and hope… and understand my struggle. All this , while I’m still climbing up the hill, I can see the light, and on my own strength.
Thank You,
With ALL my heart.
I get It. My parents actually became angry. Im struggling to forgive. Im home now, but cettain friends dont understand. ❤🙏✨
Once you can see the light, don't let go! You're mostly there! Sometimes that light can flicker with setbacks and intrusive thoughts (mind did), but once you have it, I truly believe it's only a matter of time to be fully walking in that light.
This was so encouraging 💜. It gives me hope that one day I will be sharing my success story. I’m so ready for that.
We are ready for your success story too, Jennifer!
Yes, girl! You will! I know I've already told you this, but you've got this!
@@Dizzyland_Mom 😊💜
She talks about what kept her moving forward and you have been such an integral part of that for me. I’m so grateful.
❤❤❤
Thank you so much for your story Joella. At the moment I’m struggling with my brains pre predictions of symptoms - like oh no your standing still your going to feel this and then I do. I don’t know if anyone else has experienced this and how they combated it.
I definitely had something similar to this as well! After I started getting better, I'd be in a grocery store (or some other triggering place) and think to myself, "oh my gosh, I'm actually not dizzy," and immediately find myself dizzy. It's moments like this that would help reaffirm my belief it was NCD (because if it wasn't, a thought couldn't make me dizzy), and I would feel reassured that the work I was doing was going to make a difference. So I guess for me, I tried to spin the frustration of it into a mental confirmation that this was in fact my brain, and because my brain is plastic, I CAN and WILL get better. Similar to what I mention in the video thinking, "I'm never going to get better" and immediately being sick, use these moments where the correlation is undeniable as your proof. Not sure if that exactly answers how to combat it, but maybe gives you a different way to think about it. Eventually, as my dizziness became less and less, those intrusive thoughts became less and less as well. It's a process. It didn't happen overnight. Give yourself time and grace.
I came back to this video after watching the group discussion that's recently posted. Thank you Joella for sharing your journey to recovery. It might seem obvious to many, but for me the steps to self compassion exercise was very moving and personally helpful. Really appreciate this success story, thank you to both Joella and Dr. Yo
Dr.Yo you are such an incredible person to have on any social media platform . You instill hope in so many struggling please never stop! These success stories help me so much when I’m down with these symptoms . Lots to work on (diagnosed with MDDS/Vestib migraine / and PPPD) but just seems to be a really big nervous system issue that I want to help so badly . Thank you for this story I resonate a lot with it
You're very welcome, Gabrielle! Thank you for these kind words and your trust. You can do this!
What a beautiful recovery story!! You give so many of us so much hope and the way you articulate your recovery process is so helpful. Especially how you describe the ups and downs of recovery once you have made initial progress. The best I’ve heard!
Great interview and very relateable ...maybe future interviews could talk about sharing what a detailed day in the life of a recovery journey day looks like that was effective ...
Omg this is the same for me! So much angery so many tears. So much loss of self.
❤
So much hope in this success story ❤
She could describe my MdDS! She tells my story.
After years and years, I stayed from December 2022 to May 2023 without feeling practically any dizziness, but I don't know why, unfortunately this came back and here I am, watching these videos for a solution
ua-cam.com/video/v6f-gFy2VxA/v-deo.html
When you said this is cathartic for me, I realized it is for me as well listening to these interviews. I am in the up and down stage right now and these interviews seriously give me so much hope and help more than you’ll ever know!!! Thanks ☺️
I am so glad that these are helping you on your healing journey, Rachel!
So grateful to have found this channel early on. Just knowing that the symptoms do get better helped me so much. I'm grateful.
You're welcome, Christopher! I'm glad that you found this channel too!
Thank you for sharing .
Joellas story of recovery is awesome abd hopeful.
Beautiful interview. Well done Joella, I'm so incredibly happy for you❤
Very helpful, loved saying "i love you brain", not easy.
Im suffring from dizzness over 6 months, after my second birth . When i go on somthing that moves, i get off and im rocking and hold on not to fall. I hope its truly my brsin and emotions. Because i belive in healing. What can i do to help? Dr.yonit i will like to contact you for help.
It is awful, but you are in the right place! Please consider taking my free course on healing chronic dizziness thesteadycoach.com/free-course. If you are interested in working with me, please feel free to check out my services on my website thesteadycoach.com/
Hello! Great interview! Have you ever interviewed anyone with spontaneous mdds? Are the recommendations the same? I have been dizzy for three years and a doctor recently suggested spontaneous mdds.
Yes! Just recorded one and it’ll be out in a few weeks. Sneak peek- fully recovered.
Oh, yesss!!! Thank you!!!! Happy Thanksgiving to you and your family!
Wonderful interview. Inspiring. I know I will watch it again Dr. Yo, without you I would be in total despair. You were the only person who gave me hope. All others told me to learn to live with it. My fear was over the moon. Thank you from the bottom of my heart.
Thank you for your kind words, Brenda. It is truly my privilege to be able to help others with this information.❤
Thank you for your vulnerable sharing of the emotional process -it was truly the same for me. You inspire me as I’m doing much better and need these stories to keep going!
You're welcome - it was such a part of my story. The emotional rollercoaster was almost as hard as the physical one. I'm glad it resonated with you and I'm so happy to hear you're improving. Keep going. You've got this!
Quick question: If dizziness comes from irregular nervous system or stress, why do movements and exercises help the dizziness and symptoms? Wouldn’t symptoms be unchanging if it was only cns and stress?
There is not an immediate cause and effect relationship between a stressful event and symptoms. Environmental triggers still exist when the brain is predicting danger in general. This video clarifies more. ua-cam.com/video/StYWlDFkFjM/v-deo.htmlsi=OGhp9HzfH9JgWUdG as does this one ua-cam.com/video/6mPKiOa7VQ8/v-deo.htmlsi=h-9CKkKQg0jHvz0u
@@TheSteadyCoach there is not an immediate effect between stressful event and symptoms? Then why is it that when someone is driving in a rush and stressed , they start getting dizzy? One of the ladies in your interview had that experience. She started getting visual dizziness. But why do exercises work for that if the stress was underlying… I will watch the video but still would be good to know that.
Thedymptoms eas wuit few yesrs slready but fiziness come a yr already i fell dizzy dtiil sfter going yo s diabetologist nuerologist optalmologist 3hosp already my lab results was sll normal just a wk i vsited my optalmologist and my nuerologist my optal daid my check up was normal and my nuerologist eas looking for my lab result thst it eas normal lsb results were normal nut sm still dizzy. How can i cope dizziness?
Thank you so much for sharing - my symptoms started after running a marathon and then traveling across the world and boating (talk about creating danger in the brain haha). And similarly I lost my dad about a year and a half ago very suddenly. It’s been very up and down recovery wise but really needed to hear about your amazing recovery. Thanks again for sharing! ❤
I think I got tears in my eyes 5 times during this interview…. Thank you for sharing Joella!
Now how do I find IFS therapy here? 😂❤
There are directories online and AEDP is another wonderful method that helps people with these issues!
Aww, you're welcome. My only wish is to give others hope in this thing!
I'm so glad I found this recovery story.
I've had all those symptoms plus others. Shakes, sweats, constant pulsatile tinnitus and physical thumping in my head with pressure I Haven't heard anyone talk of this particular symptom but assuming it's all part of it.
🙏
The brain can do some crazy things. The symptom drift is very frustrating but also a little fascinating that our minds can create all these things. I actually had some head pressure...almost felt like sinus pressure but not quite and I know a few people who had what they describe as body trembles so you're definitely not alone.
Yes, head pressure is a common symptom that I see in my clients
I am dizzy sd often i exercise even just yo keep myself away from dizziness i just Fall with out knowing d reason.
Dear Dr.Yo! Thanks for your marvelous job
Can you please advise if you have a plan to film a success story with a people after Superior Canal Dehiscence syndrome?
I love these recovery stories , thank you for sharing , I get so much from each one ❤
I am so glad, Denise!
thank you Dr.Yo and joella for this.
I would love to hear more about when they feel or realized they've "recovered". How does the symptoms fade away, and how does it feel??
how do we know it's not just one of the better days?
because one person said he had a really bad day, but suddenly the symptoms were all gone the next day.
I think that's unusual.
I know I'm asking for too much since you're already saving our lives.
Ask Dr. Yo: what does recovery from chronic dizziness (PPPD, MdDS-type symptoms, VM) look like? ua-cam.com/video/zJcWEn19W3g/v-deo.htmlsi=lfGVzMPVhSij0uon
This was honestly something I really struggled with. After I was better physically, it took quite awhile to let the joy back in and truly believe that it was more than just an "up." I think I mention it in the video but there was this sense of living in black and white. If I let myself truly believe I'm better, the fall in the next setback will only be that much farther. Eventually with time, I began to trust myself again. To your point about being better after a setback, sometimes I would find that was true as well - maybe not 100% better, but often my new baseline was often better than before I had the setback. It was the silver lining of taking a step back.
As far as knowing when you're recovered, for me it was a slow progression of better, with lots of dips in between (it was always two steps forward, one step back), but I would try to look at improvement month to month instead of day to day or week to week. It was too hard to see progression in small time frames because there are so many ups and downs. If I looked month to month, I was able to recognize things I was able to do that I wasn't able to do before, or things I wasn't afraid of doing any longer (e.g. going into a grocery store).
Thank you Joella for replying!!
People on the success story say, the symptoms start to get less intense, and eventually it faded away in a few months.
You talking about the ups and down being one of the hardest is so real.
Last month I was doing so well, and I told myself, "let this lead to the whole recovery"
I truly felt I could do it, but like you said, the brain just suddenly says "NO" and it's so disappointing. Like, how many times do I have to do the ups and downs.
But looking at the improvement month to month is actually so important, Thank you for the advice.
Did you ride the roller coaster after you recovered 100%??
How do you join the community?
community.thesteadycoach.com
I feel swaying only what to do please say
I am sorry you are going through this. Please check out my free course on my recommendations and techniques on how to heal neural circuit dizziness. thesteadycoach.com/free-course. You may also be interested in this video if you have not already seen it on how to tell if your dizziness in neural circuit dizziness ua-cam.com/video/rtwNNaw7dqA/v-deo.htmlsi=9VjwgeGOGmPbXXDJ
This has been positive. I had it n 2019 lasted for about 2months and returned in august same month in 2019! thought that may have meant something? my first time have no clue how it appeared i was in a van and the ride was a little rough! this last time i went up 1 floor on elevator was fine until i came down!!! this is a feeling of despair...my biggest concerns are also how to live a normal life to go out on a boat,plane,elevator,etc... is this just all fear in the brain? no one knows unless they have lived with it! very hopeless feeling. thank you for your story. any answers are appreciated.
This video explains the basics! ua-cam.com/video/4QDFGvHGURc/v-deo.html
How long did she have this?
Awesome interview! I tried IFS once some time ago and the therapist just had me lie down, close my eyes, and say if anything came to mind (mostly darkness)...I guess I didn't get the right practitioner?
Yes, it sounds like it. You have to find the one that is a right fit for you.
I've watched a ton of the success stories on here, but this was one that came exactly at the right time for me and said exactly the things I needed to hear! I've been dizzy + other symptoms since February, started recovering in June, found your videos shortly afterwards which really gave my recovery its momentum, and now I'd say I'm in the 70-80% better stage that Joella described. But this afternoon I was slammed with a new wave of intense dizziness, flu-like symptoms, etc, and I was feeling so distraught about it :( So hearing her say that this period can be one of the hardest, most confusing periods felt so so validating. Just in the course of watching this interview, my symptoms aren't necessarily going away but the distress IS melting back a bit, which is so big. Thank you Dr Yo and thank you Joella!! Stories are everything
You're very welcome! I am so glad this interview resonated with you!
Very encouraging! One day, I will be the one to share the success story!
I cannot wait to hear you success story!
So Joella did the OKN stripes THREE times only then...?
Not sure, I'll ask her to respond.
@TheSteadyCoach thank you! 🙏❤️ I love your work too - thank you 💖🌹 Is it your opinion that MdDS is always connected to/related to trauma or anxiety of some kind?
I had already torn my MCL & ACL back in 2017 and doing the exercise bike for rehab on my knee created the up & down on the ocean motion/sensation - and hence the mdds. My partner was still alive at the time and I had Crohn's, a peri abscess & fistula, CFS, Sarcopenia, a really awful perimenopause & then the mdds - just to top it all off. We were seeing doctors together, trying desperately to find out what was going so wrong with me to cause all of those things! ^ My partner was my caregiver (as much as he could be anyway, he didn't drive & I still went walking & tried to do as much as I could), he was 18 years younger than me (he'd only just turned 30) and he died suddenly on my bed and my mum found him the next day - because I had stayed over at her house the night before because I wasn't feeling or doing very well. The added shock & grief of that didn't help my situation any (of course), and now the lack of support and help from him too is really hard as well if I'm honest 😞 How do I cope with addressing the mdds now - with even more trauma and anxiety added to the situation from his sudden death?
Talk about complicated?! x
Sorry for the way delayed response. I did it once the first time and thought it didn't do anything, woke up the next day rocking front to back. I did it a couple times the next day working on the front to back sway and woke up the next day fairly steady. Note, this only helped my physical sway not the internal motion I was feeling. A few weeks later it started to creep back in so I did the more prescribed method in Dr. Yo's videos which was I think 5 times a day for several days and that is when it finally took away the sway for good. I was still dizzy for several months after that and did a lot of nervous system and emotional work to heal, but it was a tactic that helped.
@Joella84 thank you so much for taking the time to write all of that to me Joella. I'm so happy for you 🤗 🙏💝
Any chance you could tell me what sort of nervous system/emotional work that you did? Is there anything (really good) that you could recommend to me? It's a pretty tough gig when you go & tear your ACL & meniscus and then your 30 year old partner/caregiver dies suddenly and totally unexpectedly on you. It feels like I have a million years of - and a million layers of, trauma to deal with now. And tbvh, what I just mentioned ^ is only just the tip of the iceberg... xo
@@143LoveConquersAll I'm so sorry! That sounds like an incredible amount of stress and trauma to endure. I did a combination of EMDR and IFS (internal family systems). I also did a lot of calming work so meditation, somatic work, exercise, and the curable app. Once I turned down the anxiety and the negative voice/catastrophising my nervous system started to relax. I had a decent initial decrease in symptoms but took quite awhile to fully let go enough to heal the dizziness. It doesn't mean I'm "fixed"...I still go to therapy and work on myself, but I'm healed enough that my nervous system was able to release the dizziness it was using as an alarm signal. I still have to be conscious of how my day-to
-day stressors are building and continue with the things I know calm me (meditation, exercise, etc.). Im learning recovery is an ongoing process and I need to maintain that sense of peace and healing in order to maintain my steadiness.
I can’t wait till I’m out of this maybe that’s what’s keeping me that way is the lack of patience I felt her pain I hate when I wake up in the morning I gotta put my warrior suit on an get on with it every day
I know it's so hard.
When she says about her son saying “Mommy, I miss you.” That’s amazing, he saw it. I say I miss me. Most people don’t see it. The eye twitch, the vomiting. The non voluntary isolation. The sciatic pain on the left side. A right shoulder break. My husband passed away suddenly and unexpected and the MdDS got huge. Chronic stress and lists of things to do.
I went to a balance and dizziness vestibular institute that won’t admit to MdDS or PPPD being a diagnosis. They give deadlines. They say a person is healed in 12 to 32 sessions. They have the large equipment and instructors who have made this their career. They told me to figure it out myself, but they would continue to treat me after cutting off my treatment for 5 months. I found Dr. Yo’s UA-cam
I live close to Disneyland and have a pass, so I go there late at night when there are smaller crowds and practice walking
Listening to this has me crying
I'm so sorry you're going through this. I completely understand that. I know how hard it is to not recognize yourself anymore but I promise you can feel at home in your own body again. And yes, my kiddos definitely felt it - I went from vibrant and playful to survival mode. As I got a little more used to being dizzy and the intensity subsided a bit, it became more of that invisible illness where I would fake it and put on a smile for others. I bet Disneyland is great vestibular exercise for you! Maybe take a play from my playbook and listen to Dr. Yo talking you through a somatic audio track so you can create that exposure but couple it with messages of calm and safety.
❤❤❤
Hello, how long did Joella have these symptoms before fully recovering? I've watched this a few times because it seems exactly like my situation but I couldnt seem to find this answer. Thank you!
I had it for about a year before fully recovering. At the time of the interview I thought I was fully recovered (only having seconds of dizziness here and there a few times a month), but then the following three months it slowly just kept getting better and better. Now I really don't have any to speak of. I would say the first 3-4 months were heavy and then I did the yo-yo and symptom drift thing, slowly improving for the next 4-6 months. And the last 3 months were going from very minimal to none.
@Dizzyland_Mom omg, thank you for responding. I watch your success story all the time and it gives me so much hope. I have been only dealing with this for 5 weeks but its been tough mentally. It has gotten better but still feel the dizzy when I'm on the computer for work and throughout the day in high stimulus areas. I also can't be on my phone anymore. I think I am in the symptom drift stage since now my left eye doesn't see as clear as it used to. Some days are harder than others. I am so glad you are still doing great! My concern is that I commute to work everyday by car 2hr round trip. I am not sure if this would delay or prevent me to get better. Like yourself, I don't get bothered by being in the car.
Hi Dr. Yo, I have been subscribed for about a month but new to your membership community. I’m struggling lots but really trying to find my way to recovery. A lot of my story is similar to Joella’s, do you k ow if she would be willing to be contacted. I saw that she’s spoken to some folks on the membership but not sure how I can reach out to her. Thank you for all that you’re doing.
Hi! I check back in once every few weeks and so our timing worked out well! Happy to answer questions!
@Joella84 just listened to this video and I feel I have Mdds with 24/7 gravitational swaying fir 40 years. I heard you say you have done some VRT and sematic tracking which I don't think I will be able to do as my condition is so debilitating. Should I take Dr. Yo's free course and then sign up for the Curable app and membership. Any information is greatly appreciated. Thank you.
The worst part is my Mom doesnt seem to be able to acknowledge Im really ill. Now trying pysciblin capsules. But I thought i was going to have to end my life
Please, please find someone you can speak with about this. Those dark intrusive thoughts can get so loud, but it can get better and healing is possible. Hold on to that. It is incredibly isolating and it's one of those invisible illnesses that the people around you can't possibly comprehend without going through it. Dr. Yo has a video for families to help them better understand. Is it something you could possibly share with her or that she'd be open to listening to?
@@Dizzyland_Momthanks for responding. But she really doesnt care
Hi Dr. Yo I hope you are doing well. I am looking to work with a IFS therapist - I have worked with one in the past and it was really helpful. Any way you can tell me where Joella found her therapist? she mentioned a site?
The IFS directory is a great place search ifs-institute.com/practitioners
@@TheSteadyCoach Thank you!! I love watching your videos. Gives me so much hope.
Vanuit Nederland heb ik een vraag hoe vaak per dag heb je die oefeningen gedaan,, ik ben ervoor naar België geweest en daar deden ze het 3x per dag helaas heeft dat niet geholpen, ik heb nu 7 maanden mdds na een boottocht boottocht. En dan nog 1 vraag het gebeurt mij dat het spontaan 1 dag weg is en de volgende dag is het er weer,, hoop op een antwoord . Zou er heel graag vanaf willen. Groetjes Wendy uit Nederland.
Ze raden aan om ze 8 keer per dag gedurende 5 dagen te doen. Beste wensen! En ik heb hier andere nuttige inhoud over MdDS als het niet helpt.
@@TheSteadyCoach dankjewel voor je antwoord
Hi is headaches from time to time also symptoms of pppd?
Yes they can be
Hi Joella, your story gives me so much hope. I had emergency heart surgery 3 months ago and nearly passed away. Ever since I have been experiencing constant symptoms, I've been told my body is in disequilibrium because of the trauma of the event and Surgery. I feel constant bobbing and sometimes that things are bending/ rebounding towards me. I don't know if you ever experienced this and what helped
Also Sorry did the optic head rolls work for a bobbing sensation
How scary! And with that trauma it sounds very plausible this is NCD. I'm assuming you're working with your physician to rule out physical things? I don't know if I would describe it as bobbing. Mine was definitely more rocking - just like it feels like you do when you're on a boat. I had some visual stuff but it was more of a lagging/visual delay processing sensation. And I'm unsure whether the OKN stripes would help with bobbing. That would probably be a question for Dr. Yo if there's any research on that.
Hi Katy! Knowing what I know about you- I would not worry about this exercise!
Joella, thank you for sharing your story. I felt like I was listening to my own story (also a mother of twins and if I heard your sons name correctly, it’s the same as my son). I’m recovering from my 3rd bout. First was in 2010 after a cruise and second two were just a day on a pontoon boat. This one has been the longest, but your story has given me the push I need to get through this last 10 percent. Thank you! Happy to hear you are healed!
May I ask how long did it take to recover from your first one and what age was it?
I was 34 and it took about 2 to 3 months.
@@JoannaBrown-nb4xm thank you!!!
1:20:39
Oh my goodness how close my story is to yours Joella. I had 3 weeks of insomnia and the lightening rushes in the middle of the night. I also did not cry at my Mother’s funeral
aged 18. I cried for half an hour after hearing your VT
We are ‘ONE’ your success is all of our success. Hearing your path has inspired me no end 🙏
I'm so happy this gave you inspiration to keep going! We are all one in this battle because the pain, fear, emotions and loss are a common thread through all of our stories. But it sounds like our stories have some pretty specific commonalities so if I can do it, you can do it too!
Need help
Please consider taking my free course on healing chronic dizziness. All of my techniques and recommendations are condensed within this course. thesteadycoach.com/free-course
Ive been watching/listening and you have helped me out so much! Cant thanks you enough :)..I want to go aboard (8 hour flight) i'll be good to go right?
YES!
You've got this! I've taken a few flights now (across the country so 6+ hours) and everything was just fine. You can try graded exposure to the flight, and then mentally see yourself on the flight with no impact on symptoms. It's what I did to help me prepare.
@@Dizzyland_Mom Thank you, I was wondering whether I should do shorter connecting flights. I'm not really scared of the flight or going. It's a slight fear that I'll get worse. it probably the only thing im scared of now because I haven't got on a plane in three years! That also plays a big part in it. But we all no the fear will make it worse!
@@Kezza27 I think you should do what makes you feel most comfortable and gives the most reassurance and calm to your nervous system. If you're worried about the long flight time, then go for a flight with a layover and put your feet in terra firma for a couple hours between legs. Once you've built that confidence go for the nonstop on your next flight. Or if you feel good now then go for the non-stop. I'm not the expert but I believe the comfort level I felt going into my vestibular challenges and that sense of knowing I mentioned that I'd be okay was what also drove the outcome. A self-fulfilling prophecy if you will. So if you don't have that sense of knowing yet and are more comfortable with a stop, do what you feel ready for.
@@Dizzyland_Mom Yeh I think I'll jut do the 8 hours. its night flight so I can close my eyes.. I think the fear thing is just hurdle I have to deal with. i'm not 100% out of it yet. but the whole point in going away is so I can spend 3 month, zero stress, and focus on me! I really think its what I need to get over the last hurdle. focus on me and not everybody else for once 😇 3 months in the sun and on the beach loving life, yoga, mediation, exercise :)
1:13:55 I disagree here: It's a combination of high stress/danger mode together with being in passive motion for a prolonged time (boat, plane, elevator etc.) these are unnatural movements we humans aren't created to be in. Why do people instantly feel better while they are being in passive motion? The thing/part in the brain/body as are in charge of the balance has adapted itself to be in this unnatural state. A reason why people doesn't recover quicker is because they're still being exposed to passive motion event's during their daily life, the "program" in the brain as are in charge of balance, still thinks it should be in that dizzy state.
Joella' said she felt better while she started running too (running is a natural movement which is good for mdds recovery): that's because the program in the brain as she had before she were exposed to this cruisetrip is starting to go back to it's state it was before the trip, it isn't hard to get back in this state, because that's the most natural state the brain has been in it's whole life, you just have to help the brain a little bit on the way and the brain will switch back to it's old balance program as it should be in.
@@seeyouonthefly2024 Yes, I've been fine for over a year now. I can use a elevator, but only if I doesn't feel stressful or anxious and don't use it too many times the same day.
My MDDS started when I helped my brother moving from his apartment, it took some days and it was stressful and I used the elevator many times the same day. My dizziness lasted for 2 weeks, and I didn't use my car under this time because it was broken, and I run everyday, which helped speed up my recovery process.
@@kitkatwozny We're all different with different brains and ages and we all have different lifestyles; some people can handle stress/anxiety faster/better than others, which have a impact on speed recovery. I didn't start taking any meds under the recovery period, that's a mistake people do, it will only make it worse. If the brain wasn't under any influence when it changed and adapted to a passive motion event, then it shouldn't need any meds to switch back to normal again.
And people as say things like this: "my brain must be damaged or that something must be broken" now when they got mdds, NO, nothing is damged or broken in the brain, the switch it did to activate MDDS in the brain is just a proof that everything works as it should in the circuit in the brain as are in charge of balance. If my brain can change so can yours!
So glad to hear about your recovery! Absolutely wonderful! I agree with the mechanism you're proposing but don't know that I agree with avoiding passive motion. I think it probably depends on the person. Unfortunately many people I work with have pre-existing anxiety and OCD tendencies, but even for people who are just overwhelmed with fear at the symptoms, avoidance can increase the fear and anticipation dramatically.
@@TheSteadyCoach Thank you Dr. Yo! The avoidance of passive motion should be in the beginning of mdds, for a month or two. After the mdds is gone, then you can get exposed to passive motion, just not to much of it the same day, and definitely not if you feel stressed or anxiety. These are my theories of all this madness.
I am still testing your theory out currently. I am trying to leave driving alone for awhile now to see if it helps calm down the rocking front/back. I am not fearful of driving and am not avoiding it out of fear but to see if it is contributing to keeping the rocking going. The rocking definitely is worse after stopping at a light or when finished driving etc. Trying to walk after getting out of the car is a really awful feeling. I have had this for 1 year now...however I was driving weekly, using a rocking chair, and a treadmill for about 8 of those months. I haven't used the rocking chair or treadmill in months and that seemed to help it decrease (from a 4 down to a 2.5). But I was still driving up until a few weeks ago. So now I'm hoping that it helps in addition to keeping my stress down. I also exercise frequently but have to find the right balance daily...because too much exercise can sometimes aggravate the symptoms.
Hi joella.
Really happy to hear your recovery.
Just a couple of things I wanna know.
Are you like at 100% recovered. Like absolutely no setbacks.
I consider myself 100% recovered. Every once in awhile (maybe once or twice a month), I'll have a day that I have a few of those "swoons." So to be clear, in total, this accounts for less than 10 seconds of my day on a "bad day." But I'm still fairly early in my recovery. I believe those days will go away entirely in the next few months as my brain completes the letting go process. It's also important to remember that this thing has a form of PTSD with it and right now my brain is still sensitive/hyper-vigilant to any vestibular sensations. Having moments of dizziness, like being woozy when you're groggy, or feeling a little off after standing up too fast, is completely normal, it's just right now my brain is paying extra attention to those moments. But I can say I've "tested" my healing, without any symptoms - so things like head colds, falling down my stairs and hitting my head (yes this happened), going on a plane or boat, entering a shopping center, etc. - things that would normally affect symptoms, have had no effect since recovering. Hope that helps!
@@Dizzyland_Mom That’s so awesome to hear! Would you go on another cruise?
@@ThePurpleElephantt hmm that's a good question. Honest answer - I don't know. As of right now, no. I have zero desire to do that, but as this becomes more of a distant memory, maybe. It even took me awhile to be able to look at photos from my cruise without feeling sad and/or resentful. The want just isn't there - it's less about fear but after months of "being on the boat" it doesn't even sound fun to feel like I'm on a large ship constantly rocking. But I have been on day trips on our pontoon so I haven't sworn off boats entirely.
Hi joella.
You talk about IFS here. I am currently reading “no bad parts”.
I want to know how did you put them into practice. Did you self learn or were you told by your therapist?
I want to practice these. But I need some assistance.
Btw I am like 80-85 % better. It’s just the last bit. I live normally doing all the things. But I still feel some sensations some days which is kinda frustrating.
Hope I am not bothering you.
Thanks again
@@vijaydhalani9958 I mostly self taught IFS. It was only after I mentioned it to my therapist that I was reading the book and enjoyed it, did she start incorporating it into our sessions. I just did the exercises in the book. Dr. Yo has a self compassion guid that can help with question too.
I'm so happy to hear you're almost there! That last little bit takes so long to get through that it's easy to wonder if 80/85% is as good as it gets but it does get there it just takes time.
Your talk came at the perfect time as I am experiencing a relapse after seeing such improvement and thinking, just like you, that in just a couple of weeks or a month, this will all be behind me. I think that the EMDR and IFS therapies are the missing link and so excited to hear that you found a therapist who combined them both. Is she available online or does it have to be in person? Would love to get her name if it's possible to see her online!! Thank you so much for sharing. It gave me so much hope again as I was struggling back into a depression.
Oh I'm so sorry you're in a relapse/setback. As annoying as it is, it's a completely normal part of the healing process for so many of us with this. I can't tell you how many of those setbacks I had...the constant two steps forward, one step back tested my belief in healing, resilience and sanity. For what it's worth, if it's of any hope to you, often when I would come out of the dip, my baseline would be just a little better than before.
And we're not the only ones who think that "just a little more time;" I know of so many who have had similar thoughts and been devastated by the symptom whiplash that follows. It's like your brain wants to test you just when you start to have hope. So, if you're there, I get it. You're not alone in all the fear, frustration, and depression that comes with it. I can ask if she sees clients online, but if she can't there are resources out there to work on this. EMDR therapists are fairly easy to find, and you can absolutely do the IFS work yourself. Most of my IFS work was done solo; it was a relatively small integration into my therapy sessions. If it's helpful my weekly routine consisted of daily meditations/affirmations, daily movement, 1x Dr. Yo's weekly Q&A for her membership community, 2-3x membership community checkins, 1x EMDR therapy session (in-person with my therapist), and 1x self-led IFS session at home, and then mini IFS sessions as needed throughout the week if I felt a part really pushing through/needing attention.
I'm having a setback as well, after doing so much better for about 2 months.😅
when I come out of the dips, it's usually when I have that "ah haa" moment, and something clicks.
Is it like that for you? or does the better days come naturally??
Thank you so much for your encouragement. In retrospect, I have, indeed, come a long way in the last 2 years from clinging to walls & walking with a cane to long walks with an impatient dog. I think that an in-person EMDR session would be more effective so will look for someone local. I did, also, find a IFS workbook on Amazon and will begin seeking out those distressed parts. I really appreciate you sharing the compassionate way to talk to your dizziness and have started those steps instead of lashing out at it in anger and frustration. You are such a great inspiration, giving so many renewed hope. Thank you for sharing!!!
@@MonaBryant-d1g you're very welcome! And holy wow! That is amazing progress! Remember that! Hold onto how far you've come. I just tried to remember my brain found my new baseline before, it will find it again!
@@mal-nx6xs im so sorry you're in a dip! You can and will get it back! I know how frustrating it is! Give yourself time and keep doing the work and you'll get there again!
I'm not sure what causes me to come out of it. I don't recall aha moments necessarily, because if I'm being honest in those dips I would spin out emotionally and there wasn't much logic or "aha-ing." 🤪 I think it more just felt like it slowly got back to my baseline. But something that did happen after a dip, my baseline would sometimes improve. It was my silver lining of taking a step back - I took an even bigger step forward.
@Joella84 This was so encouraging. Thank you very much for sharing your story :)) And Dr Yo for making this possible ❤
You said you do scuba diving? I got MdDS from the boat ride of a dive safari. I came across some alarming info that indicated I might need to give up this hobby from which I get so much joy
I understand it hopefully correctly you're doing it again?
Im sorry you got this from a dive excursion! I'm actually diving for the first time next weekend! I'll be sure to report back. But as I said there's a sense of knowing that it will be okay. I'm not anticipating any change in my symptoms. This thing has taken enough from me, I won't let it continue take away the things I love.
Hey Joella, hey Dr Yo,
Thank you so much for your encouraging words that mean a lot to me! I hope you'll have an amazing time with diving and yes happy to hear how that went!
I'm not entirely sure but I think I got mine from the boating itself as it was quite wavy especially during sleep on the boat. I look so much forward to go diving again after this :)
@Joella84 Hey Joella, hope you're doing well :) I was wondering how did your diving trip go?
@@manuelschrenk4856 we just went this weekend and happy to report no symptoms during or after!
@Joella84 thank you very much for your response and happy to hear that you had a great time with no symptoms. That gives me hope to do it soon again as well :)