This video gives me HOPE! Four months ago I was diagnosed with EoE. It's been some work getting the strictures open and the eosinophil counts down with the SFED. On PPIs and working to avoid dupixent and other drugs if possible. And yes, there isn't much out there other than use this drug, stopping eating foods. Very little helpful works. I enjoy running, lifting, hiking, etc and it's been a challenge getting proteins, magnesium and other things to keep strong. Thank you for making these videos. I'll check out your website.
@@chelcceleste Bought your EoE health packet. An absolute heaven send!!! So much detail, research, information…I can’t say enough about how blown away I was with the resources. FAR, FAR MORE than any of the doctors could tell me. If you’re someone reading this and struggling with EoE, Celeste lays out nearly all you need to know about how to thrive with EoE, with delicious recipes and resources. It will give you the hope and guidance you’re looking for outside of medical exams, EGDs etc.
@@telestorypictures I'm BEYOND thrilled that my guide is able to help you! Luke and I made it hoping to give hope and guidance to those who were struggling like us. Seriously, I'm crying hearing that you are feeling hope and guidance 🥹 You've got this!
Great video and information! Really do appreciate your sharing all this and putting together the guides. I have struggled with EOE for a few years and it has been brutal as I bounce from doctor to doctor with no real solution. Hopefully these resources get it all fixed.
You're an absolute inspiration for me! I can't wait to get onto this! I'm just starting my EoE journey. I've just been diagnosed. Thank you so so much!
I agree with you. My point is the benefit you could provide to people is talking about how you identified what your trigger was. Everything I listened to in the video was in every other video online. People share recipes, diet eliminations, etc but never how they isolated what the trigger was without doing scopes. You can’t feel a day to day change when you eat a trigger food. So how did you identify what the food was?
According to the research I've read, the only way to identify the trigger food(s) is doing repeated endoscopies after 6-8 weeks of elimination diet adjustments. So, I'm not sure why you would believe there is another way? We simply don't have the technology to measure eosinophil levels in the esophagus any other way yet, and like you said, you can't accurately judge from the symptoms alone.
I just got diagnosed but I can eat anything and it dosent bother me. I just had an egd because my stomach feels bloated? How do i know what foods to reduce
I didn’t hear anything about how you identified what the trigger was…. That’s the key to fixing the issue and you can’t feel the symptoms until it’s hard to swallow. You’re just listing info that’s available online but nothing about how you identified the root cause.
Hi I’ve been looking at this video my son is 15 years old and has been diagnosed with eoe. The doctor put my son on a steroid and emeprazole. Is there a way that I can get in touch with you for question.
Did he try to eat lacto free product I am thinking to change dairy product to my daughter who is suffer in eoe as well did you try natural product like mastic gum and sleppery elm
This is the first time I've heard that EoE is caused by gut health... Not sure how you decided on that, because it doesn't seem to be taught or accepted widely by the medical community at this point (?)
i have eoe and i have some questions. How many esnophils was in lukes throat in his last endoscopy? How long ago was the last endoscopy? How much damage was in his throat did he have rings, furrows, strictures, etc. Also what is the size of his esophagus was it narrowed and how big is it now? I am 19 now was diagnosed at 18 will be 20 in july
Hi Mason! I am so sorry to hear about your diagnosis. At the end of 2020 his gastroenterologist said that his scope showed his EoE was completely gone. Luke's last endoscopy was in November 2021, where he still did not have any eosinophils in his throat and his esophagus, stomach, and duodenum appeared normal. When he first got diagnosed with EoE he had rings and furrows in his esophagus.
I'm not sure if I have this, i'm going to set up an appointment tomorrow. Was coughing gagging and excessive mucus one of the symptoms? I was diagnosed with esophageal dismality 8 years ago and I had another test and they said I did not have it. I am super sensitive toward dairy and wheat, it always makes me gag and create 1,000 times more mucus, i about gave up and then read manoluca honey helps. Thank goodness something helped all that itchiness . Are these some of the symptoms ?.
I have heard honey can help with these kinds of symptoms! I'm so happy to hear that it has helped you. I haven't heard of excessive mucus being a symptom but EoE is often characterized by trouble swallowing, which it sounds like the mucus may be doing to you. Did you get an appointment to find out a diagnosis?
Hi , I have EOE I’m so negative and I’m crying all the time I can’t do nothing I’m tired , I cut the 6 elemental and I’m still have like something in my neck bother me I don’t have problem with swollen or heart pain but this pain , can you tell me if your husband follow with dietitian , because I was 3 weeks so good from 2 days I feel this pain and I’m still eat the same food .
Luke has been taking an extremely small dose of PPIs, which have been very helpful. His gastroenterologist is weaning him off of them, which has been awesome
Hi Chelsea. I really like your positivity and guidance on EoE, as you say there isn’t a lot out there. I want to believe your story about your husband and I recognise you’ve got a business and have to earn a living - perfectly understandable. But as a sufferer of multiple conditions ive found some people are just trying to make cash from sick people. It hurts. Is everything you’ve said here the truth? Like I said I want to believe and if you are honest I will believe 👍🏻
Thank you so much for your words of encouragement. I completely know what you mean, there is very little information out there. I'm so sorry that that has been your experience. It hurts my heart that you have been hurt in that way. Everything I have shared is the truth. In all honestly, Luke and I created our guide to help people find everything we did to help heal him in one place. We felt soooo lost when he first got diagnosed because there was no information out there. Please please please do not feel like you have to purchase anything from me. I have a lot of free information out in my videos and will continue to post free information to help people. The guides are just there if you want everything in one place. Wishing you hope and blessings as you continue on your health journey. Please feel free to reach out if you have any questions!
@@chelccelesteThanks for replying Chelsea, im convinced you are legit and im 100% grateful for you putting this advice online for fellow EoE sufferers to see. Dont give up hope everyone, where there is a will there is a way....
while i like the information in this video - diagnosed early this year with EoE, you are only treating the case, it cannot be cured as this is a life long condition. So for me the title feels abit misleading. Again the info is great just for me there needs to be a clear explanation that its being treated and managed, not cured
This video gives me HOPE! Four months ago I was diagnosed with EoE. It's been some work getting the strictures open and the eosinophil counts down with the SFED. On PPIs and working to avoid dupixent and other drugs if possible. And yes, there isn't much out there other than use this drug, stopping eating foods. Very little helpful works. I enjoy running, lifting, hiking, etc and it's been a challenge getting proteins, magnesium and other things to keep strong. Thank you for making these videos. I'll check out your website.
💖💖💖💖
@@chelcceleste Bought your EoE health packet. An absolute heaven send!!! So much detail, research, information…I can’t say enough about how blown away I was with the resources. FAR, FAR MORE than any of the doctors could tell me. If you’re someone reading this and struggling with EoE, Celeste lays out nearly all you need to know about how to thrive with EoE, with delicious recipes and resources. It will give you the hope and guidance you’re looking for outside of medical exams, EGDs etc.
@@telestorypictures I'm BEYOND thrilled that my guide is able to help you! Luke and I made it hoping to give hope and guidance to those who were struggling like us. Seriously, I'm crying hearing that you are feeling hope and guidance 🥹 You've got this!
Thank you for making this video. I've been suffering with EoE symptoms and have found it hard to keep up my nutrition.
Great video and information! Really do appreciate your sharing all this and putting together the guides. I have struggled with EOE for a few years and it has been brutal as I bounce from doctor to doctor with no real solution. Hopefully these resources get it all fixed.
Thank you for all this great information.
I'm glad you found the information helpful!
Don’t forget seasonal allergies can give it to you as well
You're an absolute inspiration for me! I can't wait to get onto this! I'm just starting my EoE journey. I've just been diagnosed.
Thank you so so much!
You’ve got this! If you ever have questions ask away, I’d love to help in any way I can 🤍
How you doing now?
I agree with you. My point is the benefit you could provide to people is talking about how you identified what your trigger was. Everything I listened to in the video was in every other video online. People share recipes, diet eliminations, etc but never how they isolated what the trigger was without doing scopes. You can’t feel a day to day change when you eat a trigger food. So how did you identify what the food was?
According to the research I've read, the only way to identify the trigger food(s) is doing repeated endoscopies after 6-8 weeks of elimination diet adjustments. So, I'm not sure why you would believe there is another way? We simply don't have the technology to measure eosinophil levels in the esophagus any other way yet, and like you said, you can't accurately judge from the symptoms alone.
I just got diagnosed but I can eat anything and it dosent bother me. I just had an egd because my stomach feels bloated? How do i know what foods to reduce
Thanks! Was there a point he was only able to drink smoothies?
Ya, for about 6 months he only consumed smoothies and soups. It felt very long 😣
Im currently trying to cleanse my body of parasites. A lot of my symptoms seem to align with having a tapeworm
I didn’t hear anything about how you identified what the trigger was…. That’s the key to fixing the issue and you can’t feel the symptoms until it’s hard to swallow. You’re just listing info that’s available online but nothing about how you identified the root cause.
It's different for each individual it's an allergic problem so mine is different from yours mine could be wheat yours might be dairy
Hi I’ve been looking at this video my son is 15 years old and has been diagnosed with eoe. The doctor put my son on a steroid and emeprazole. Is there a way that I can get in touch with you for question.
Hi Isaac! I'm so sorry to hear about your son. Of course! Feel free to send me an email at chelcceleste@gmail.com
Did he try to eat lacto free product I am thinking to change dairy product to my daughter who is suffer in eoe as well
did you try natural product like mastic gum and sleppery elm
This is the first time I've heard that EoE is caused by gut health... Not sure how you decided on that, because it doesn't seem to be taught or accepted widely by the medical community at this point (?)
High fat carnivore did it for me 🎉 awesome!
i have eoe and i have some questions. How many esnophils was in lukes throat in his last endoscopy?
How long ago was the last endoscopy?
How much damage was in his throat did he have rings, furrows, strictures, etc.
Also what is the size of his esophagus was it narrowed and how big is it now?
I am 19 now was diagnosed at 18 will be 20 in july
Hi @Chelsea Celeste Nutrition wondering did you receive the comment?
Hi Mason! I am so sorry to hear about your diagnosis. At the end of 2020 his gastroenterologist said that his scope showed his EoE was completely gone. Luke's last endoscopy was in November 2021, where he still did not have any eosinophils in his throat and his esophagus, stomach, and duodenum appeared normal. When he first got diagnosed with EoE he had rings and furrows in his esophagus.
I'm not sure if I have this, i'm going to set up an appointment tomorrow.
Was coughing gagging and excessive mucus one of the symptoms?
I was diagnosed with esophageal dismality 8 years ago and I had another test and they said I did not have it. I am super sensitive toward dairy and wheat, it always makes me gag and create 1,000 times more mucus, i about gave up and then read manoluca honey helps.
Thank goodness something helped all that itchiness .
Are these some of the symptoms ?.
I have heard honey can help with these kinds of symptoms! I'm so happy to hear that it has helped you. I haven't heard of excessive mucus being a symptom but EoE is often characterized by trouble swallowing, which it sounds like the mucus may be doing to you. Did you get an appointment to find out a diagnosis?
Hi , I have EOE I’m so negative and I’m crying all the time I can’t do nothing I’m tired , I cut the 6 elemental and I’m still have like something in my neck bother me I don’t have problem with swollen or heart pain but this pain , can you tell me if your husband follow with dietitian , because I was 3 weeks so good from 2 days I feel this pain and I’m still eat the same food .
So you didn’t take Esomeprazole or anything?
Luke has been taking an extremely small dose of PPIs, which have been very helpful. His gastroenterologist is weaning him off of them, which has been awesome
Which ppi and dose please ??? Thanks @@chelcceleste
Hi Chelsea. I really like your positivity and guidance on EoE, as you say there isn’t a lot out there. I want to believe your story about your husband and I recognise you’ve got a business and have to earn a living - perfectly understandable. But as a sufferer of multiple conditions ive found some people are just trying to make cash from sick people. It hurts. Is everything you’ve said here the truth? Like I said I want to believe and if you are honest I will believe 👍🏻
Thank you so much for your words of encouragement. I completely know what you mean, there is very little information out there. I'm so sorry that that has been your experience. It hurts my heart that you have been hurt in that way. Everything I have shared is the truth. In all honestly, Luke and I created our guide to help people find everything we did to help heal him in one place. We felt soooo lost when he first got diagnosed because there was no information out there. Please please please do not feel like you have to purchase anything from me. I have a lot of free information out in my videos and will continue to post free information to help people. The guides are just there if you want everything in one place. Wishing you hope and blessings as you continue on your health journey. Please feel free to reach out if you have any questions!
@@chelccelesteThanks for replying Chelsea, im convinced you are legit and im 100% grateful for you putting this advice online for fellow EoE sufferers to see. Dont give up hope everyone, where there is a will there is a way....
while i like the information in this video - diagnosed early this year with EoE, you are only treating the case, it cannot be cured as this is a life long condition. So for me the title feels abit misleading. Again the info is great just for me there needs to be a clear explanation that its being treated and managed, not cured
Fiber is an anti-nutrient and spinach is extremely high in oxalates (another anti-nutrient)
Wrong and insane
literally objectively correct, anybody reading this debate can go confirm the facts that I have stated as true