I was told by 2 of the best doctors for Fibromyalgia. They both said it was the worse case they have seen. I have a milk allergy and the lactose was getting in my muscles why I ached all over. I switched to Lactose free and I haven’t been having all those symptoms. I also discovered I was an Empath, I would take on or feel others pain. I learned how to deal with that. It’s hard around crowds, so I put my hat on as a sign, closed for business
I have EOE after being hospitalized with aspiration pneumonia and was in the hospital for 5 days and aspirated into the wrong lung. I'm lactose intolerant amongst other things
Oh those fruits look sooooo good!!! I hv a procedure in July with the Gastrointestinal Specialist to see if I have EoE. I hv so many of the symptoms. Most days I feel so bad. And with Asthma and Sleep Apnea, it makes it worse.😢
Even without having asthma, maybe the medication could be standard treatment for this condition for someone like Lori, so she can have a more varied diet
I have had Sjogrens and swallowing problems for years. Coughing constantly when trying to eat. Dry throat & constant friction of food going down & now I have a narrowing in my gullet. I have been told liquid diet only henceforth. I have lost 10kg in 3 months because I cannot take in enough food. I have had a gastroscopy & 3 endoscopies.
Very difficult to deal with dry eyes and throat I have had a tiny amount of success with broths, tender foods, powdered Bone broth (ancient nutrition) mixed with kefir and yogurt. Eggs. Soft food s I have to be careful not to inhale my foods which can be really bad. Interesting success stories Jordan Peterson and his daughter Mikhalia I hope to try their meat diet. Even with baby food for a time 🙏❤️
Perhaps someday Lori could share recipes & other things that help her along in the journey. Being a chef is there a way for you to show us our enjoyment for food through her creations while on this journey?
Hi Lori , My son has EoE he is very frustrated and doesn’t know what to do . He is starting the elimination diet but doesn’t have a plan . Could you PLEASE help him by talking to him . He is 36 years old and has little boy 6 years old . PLEASE help him with your experience. How can we contact you . We live in Maui . My name is Marisela
first place to start is to remove all dairy from the diet. that means butter, yogurt, cheese, everything. you have to inspect every single label of food you eat. no dairy. for the majority of people, dairy is the main trigger. the other common triggers are the ones listed in the elimination diet like wheat, soy, eggs, fish, and tree nuts. tree nuts are actually the least common trigger according to the data. cutting dairy either solves the problem or gives tremendous benefit in like 90% of people with the disease. good luck
@@Sunsets247breathing isn’t affected. It’s a feeling that something is putting pressure on your throat muscle and a bit of soreness in the muscle deep down where you clear your throat afterwards, like the muscle is a bit worn out there
I can’t swallow or eat haven’t after I had stomach surgery because I had a hole in it… I have a feeding tube…then on Halloween I was in horrible pain i went to the hosp the next day I had to have 2 emergency surgeries one was kidney full of stone blocked my tube so had surgery on it. Then 5 days later I had to have colon surgery 3 blockage….so that’s why my feeding tube kept throwing it out I couldn’t get but one formula in I lost a lot weight we tried getting a a iv feeding tube but the insurance turned us down till this last surgery.. these doctors got it for me so now hooked up all day to feeding pump… but I’m getting food not staving… putting back on some weight. My daughter has the same thing but she on special diet…. I dion ‘tenant her to end up like me.. at one time I weighed 300 no then I went to 113 not with feeding machine I am 118 😊 i also have 2 stomach medical problems… but PTL I’m still here!
Has anyone tried Liposomal Taurine? It is a major anti-aging supplement and it is a major anti-inflammatory that promptly changes conditions for the better. This problem would be a major bummer. My heart goes out to them.
I was diagnosed 7 to 10 years ago. It took 3 years of testing to diagnosing. A routine of medication and double premedication before food type events and finding out my triggers of carbonation and cinnamon helps keep it a bay. It always feels like a lump in my throat and trouble swallowing at times. I now know when it starts to acts up and and can stop it from happening about 75% of the time. Frustrating disease.
are you saying carbonation triggers it for you? how is that possible? are you sure its not the corn syrup in the soda or something else?@@paigepoinsett8939
@@paigepoinsett8939 Gee how did you get diagnosed so long ago. It took 10 plus years for me to finally be diagnosed. Started with the feeling of a lump in my throat all the time and at the end couldn't swallow even water.
I was told by 2 of the best doctors for Fibromyalgia. They both said it was the worse case they have seen. I have a milk allergy and the lactose was getting in my muscles why I ached all over. I switched to Lactose free and I haven’t been having all those symptoms. I also discovered I was an Empath, I would take on or feel others pain. I learned how to deal with that. It’s hard around crowds, so I put my hat on as a sign, closed for business
I have EOE after being hospitalized with aspiration pneumonia and was in the hospital for 5 days and aspirated into the wrong lung. I'm lactose intolerant amongst other things
The jar with all the crazing is a gorgeous find! Really enjoyed the tour at the end as well.
Oh those fruits look sooooo good!!!
I hv a procedure in July with the Gastrointestinal Specialist to see if I have EoE. I hv so many of the symptoms. Most days I feel so bad. And with Asthma and Sleep Apnea, it makes it worse.😢
Sensation of lump in the throat? Is that a symptom?
Yes, among other things also. Hard to figure out because it has the same symptoms of other conditions.
Even without having asthma, maybe the medication could be standard treatment for this condition for someone like Lori, so she can have a more varied diet
I am having a hard time finding knowledgeable doctors. Diagnosed by GI EGD one week ago. Pathologist actually diagnosed it.
Agreed!
@@JorgeVidel-hk3yswhat's the technic
Sjorgren’s syndrome have similar characteristics. I wonder if pilocarpine would benefit?
I have had Sjogrens and swallowing problems for years. Coughing constantly when trying to eat. Dry throat & constant friction of food going down & now I have a narrowing in my gullet. I have been told liquid diet only henceforth. I have lost 10kg in 3 months because I cannot take in enough food. I have had a gastroscopy & 3 endoscopies.
Very difficult to deal with dry eyes and throat
I have had a tiny amount of success with broths, tender foods, powdered Bone broth (ancient nutrition) mixed with kefir and yogurt. Eggs. Soft food s
I have to be careful not to inhale my foods which can be really bad.
Interesting success stories Jordan Peterson and his daughter Mikhalia
I hope to try their meat diet. Even with baby food for a time 🙏❤️
Perhaps someday Lori could share recipes & other things that help her along in the journey. Being a chef is there a way for you to show us our enjoyment for food through her creations while on this journey?
Hi Lori , My son has EoE he is very frustrated and doesn’t know what to do .
He is starting the elimination diet but doesn’t have a plan .
Could you PLEASE help him by talking to him .
He is 36 years old and has little boy 6 years old .
PLEASE help him with your experience.
How can we contact you .
We live in Maui .
My name is Marisela
Ask About biologics... most of the time if you make less than 100k /year, you can qualify for free medication.
If you look through the comments another patient recommended starting carnivore and slow adding other things in
first place to start is to remove all dairy from the diet. that means butter, yogurt, cheese, everything. you have to inspect every single label of food you eat. no dairy. for the majority of people, dairy is the main trigger. the other common triggers are the ones listed in the elimination diet like wheat, soy, eggs, fish, and tree nuts. tree nuts are actually the least common trigger according to the data. cutting dairy either solves the problem or gives tremendous benefit in like 90% of people with the disease. good luck
That’s some house she has!
The feeling of pressure in the throat like something pressing on your neck, doesn’t affect breathing at all??
The oesophagus and air way are two entirely different pipes so no it won’t affect your breathing unless it goes into the airway (chocking)
It can feel like it’s harder to breathe but normally it’s not actually blocking your airway
@@Sunsets247breathing isn’t affected. It’s a feeling that something is putting pressure on your throat muscle and a bit of soreness in the muscle deep down where you clear your throat afterwards, like the muscle is a bit worn out there
@@Sunsets247 does it feel like there’s a lightbulb shaped bump in your throat)
@@redredred8408 if you eat triggers and then eat like meat or pasta yes
I can’t swallow or eat haven’t after I had stomach surgery because I had a hole in it… I have a feeding tube…then on Halloween I was in horrible pain i went to the hosp the next day I had to have 2 emergency surgeries one was kidney full of stone blocked my tube so had surgery on it. Then 5 days later I had to have colon surgery 3 blockage….so that’s why my feeding tube kept throwing it out I couldn’t get but one formula in I lost a lot weight we tried getting a a iv feeding tube but the insurance turned us down till this last surgery.. these doctors got it for me so now hooked up all day to feeding pump… but I’m getting food not staving… putting back on some weight. My daughter has the same thing but she on special diet…. I dion ‘tenant her to end up like me.. at one time I weighed 300 no then I went to 113 not with feeding machine I am 118 😊 i also have 2 stomach medical problems… but PTL I’m still here!
Im almost through the video and maybe they talk about at end but what about biologics?
@ 9:24 You can hear the "Bitch I told you!" in bro's voice.
Has anyone tried Liposomal Taurine? It is a major anti-aging supplement and
it is a major anti-inflammatory that promptly changes conditions for the better.
This problem would be a major bummer. My heart goes out to them.
How far can you go in i forty to west coast we got as far as Asheville no ti visit ever. Inlaws
Check with dr robert morse at Florida. He has good herb that may help. Also fruits diet might help
I was diagnosed 7 to 10 years ago. It took 3 years of testing to diagnosing. A routine of medication and double premedication before food type events and finding out my triggers of carbonation and cinnamon helps keep it a bay. It always feels like a lump in my throat and trouble swallowing at times. I now know when it starts to acts up and and can stop it from happening about 75% of the time. Frustrating disease.
are you saying carbonation triggers it for you? how is that possible? are you sure its not the corn syrup in the soda or something else?@@paigepoinsett8939
@@paigepoinsett8939 Gee how did you get diagnosed so long ago. It took 10 plus years for me to finally be diagnosed. Started with the feeling of a lump in my throat all the time and at the end couldn't swallow even water.
Sounds like going carnivore/ keto would be an option...😊