Відео

Thank you! Yes yes yes!!! Tube placement tomorrow . Food network is like porn and even liquids cause pain. Epi and I had my Gastro Paresis tell me I just had sore muscles for the long time. Now GP is happening and only one antiemetic works but could cause dyskinesia, as well as gabapentine and hyoscyamine. Possibly also diabetes type 3c. Nerve damage caused diabetes. So sick and scared. Exhausted and no glucagon. So much to learn. Do you worry about Barrett’s esophagus?

Thank you for your informative video! I just wanted to ask: I support a couple young adults who do not eat at all. They are permanently on their own feeding tubes that are set to a schedule that provides their liquid nutrients. These young people also have cognitive variabilities so whether they intently recognise that some of the other YA I support can and do eat - I don’t know. Normally they do different things during lunch such as listening to music or stretching out on soft mats for their physical needs and recreation. But I’ve been wondering whether during these times it would be a good idea to use lunchtimes as an occasion for sensory smell interactions? Such as smelling fragrances and scents, maybe akin to food or not, to give them a similar yet different sensory experience as eating does for those who eat. We enjoy the taste of food, which relies on smell, so would creating that kind of space for them be beneficial? Or do you think it would be a bit condescending and insulting, even with good intentions? Genuinely would appreciate some insight! ^^ God bless you

Thank you Ga.U.S.A

Beth you are so strong I have just been diagnosis with Gastroparesis they are trying to get a treatment started for me.i am so happy you found out your good news and are gaining weight . Please keep me in your prayers I will have you in mine too.

Why do u need all of these things medically speaking??

I have had a picc line for over 1 & 1/2 years with TPN. I am going to talk with my physician tomorrow about getting a Hickman put in. Do you still like the Hickman better than the Picc line?

One time I had to get a feeding tube because my stomach was like really bad and I wanted to eat so bad But I can’t eat because of my feeding tube it’s different for me(by the way, I love your channel) and also I had to go back to the hospital again for the feeding tube. My stomach comes back😢

Can you eat rice

Oh, gosh, i totally understand. I have pots, etc. And live in a place that reaches 116* Fahrenheit in the height of summer. Im miserable and usless.

My poor sweet girl. You are so strong carrying on the way you do. How are you feeling today?

I’m getting one tomorrow and this truly calmed my nerves so much-thank you!!

How is ur pots

I’ve been thinking about you alot recently, I really hope you’re okay. My thoughts are with you Beth!

Ik how u feel 😢

I hope one day soon, there's an answer to EDS, I see the many struggles faced by those who have this condition. And I praise and I pray that you hold strong and triumph over your endeavors. You are beautiful, and I Believe it's from the inside, out. I don't know you, just see your story and it makes me realize how trivial the things I whine about, thank you for being a ray of light, you inspire me

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Inspirational ❤

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Pls tell me I have digestive malabsorption issues so my vili is flattening so I have to cure it...can we take tpn for bowel resting

The only way to cure gastroparesis is I guess surgery or exercise. The only way you can survive is by having liquid foods, Don't eat anything solid or heavy like cheese, meat, beef for now. try to eat starch based foods like mashed rice. But there have been a lot of videos on gastroparesis where people have recovered through surgery and lifestyle changes. I m sorry to hear that but its almost similar to mitochondrial diseases like cyclic vomiting syndrome wherein whatever you eat will be emptied from your stomach. I dont want to compare but in asian countries gastrointestinal diseases are least common because we eat good food like rice, pickles, sea food, vegetables which keeps our gut healthy and strong while people in the west eat lot of processed food, wheat

Get BP machine ❤

Thinking of you ❤️ hope all is well love!

I’m so sorry they didn’t sedate you! I’ve had my Hickman for quite some time and it’s been such a great thing for me. I just had to have the lined exchanged and get seated me for that so I’m not understanding why they didn’t give you anything! I’ll keep you in my thoughts. I’m on TPN for 16 hours a day and I’m on LR fluids I get 2 bags of fluids every day plus I get 50mg off IV Benadryl every 6 hours and I get Entyvio every two months but infusion. I have Chrons severely and I only have just about 2 feet of small intestine ( I have no colon, no rectum, almost half of my stomach was removed and only the two feet of small intestine and my bottom is sewn shut). I have a duel lumen Hickman as am and my lines are both rather long as well. I wish you all the best! I hope things get better for you and that you begin to heal. Stay positive and remember this is very important DO NOT SUBMERGE IN WATER! Taking a bath or shower is ok but do not go swimming nor get into water above your waist for it will cause some severe problems, talk to your physician about this! You look great and I’m looking forward to hearing good things about your recovery.

Hi Beth my name is Melinda Nelson and I have CIPO. I have been on TPN over 40 yrs have had PICC Lines, My 14 yr old daughter has CIPO and is TPN too. We both have Hickman central lines. You mentioned you get the shakes for 1/2 hr after TPN infusions. Do you taper the rate slower the last 1hr of TPN If not this can cause a drop in your blood sugar and the "shakes" . Try tapering down the rate last hour and it will help .❤😊 my family ( my daughter and I) traveled with TPN. We saw you went to Wales 😊 good for you not letting TPN slow you down.

I am so sorry you have to go through this

I always have fainting when I'm pregnant or on the pill

I need tube I can't eat teeth pulled wrongly pain unbearable. I miss food so bad. I'm going unconscious and scared.

UA-cam recommend me your video and I am soo soo thankful, really great stuff mam. btw, I was wondering do you need an editor for editing your videos mam?

I totally understand what you are feeling , I am nauseous everyday . Not being able to do anything but be in bed, I have air conditioner on through the house plus the one in my bedroom . I feel so rotten my husband had to help me bath 🛀 I feel like you & all the other millions who are suffering like we are , it just makes me cry 😢 😢😢 sending you love & blessings 💕💝💕

Just diagnosed its so bad

Thank you for sharing your experiences with Pots.

I am sending all my love to you ❤ you have been through so much. You really are amazing. I’m so so sorry to hear about your dad, sending him lots of love too! Your videos have massively helped me feel so much less alone with things I am struggling with health wise. I am awaiting my tilt table test next week as well as gastro referral for ongoing stomach issues and watching you videos makes me feel like I’m not alone as being unwell has been so isolating. Please know you make such a difference in and are so loved! Xxx

ua-cam.com/video/3-J4IW8xu0c/v-deo.html sent with Love

I think you are amazingly brave, and I send you and all your family all my love.

Its good to see you again. I completely understand about having PTSD..dreams n thoughts of still being in the hospital. I too was in the hospital due to a cancer diagnosis. I had surgery n 2 weeks later was having complications n had another surgery n longer hospital stay. Its been 5months n i still keep thinking about that cancer n hospital stay n my brother passing from cancer in 2020. Unfortunately i haven't found a therapist but im glad you have talked to someone about your current issues. I'll pray for your dad, sorry about your friend. Thank you for sharing cause now i know im not crazy n your long hospital stay was enough to have PTSD. I hope you can work through this. Take care❤

Said a prayer for you, your father & friend...keep the faith Beth 🙏

❤❤❤

I’m so sorry you’ve been going through such a tough time 😢 always here for you ❤ I lost my dad 16 years ago (I was 18 at the time). You’re right, parents are just always there and you can’t fathom a time when they won’t be. Wishing your dad stays symptom free for as long as possible xx

Edmr really hard but so worth it. I few thing pstd. It my life. And one relive a lot it so hard. But edmr kick butt and tired no feel good. But so worth it sorry happened to you sorry your dad got so hard. It hard loss you love in a 11 mouth I loss 3 family members. And it hard and it time have surgery and same day one. But despite being meds in my for uti. The end mouth surgery I loss mind uti. And didn't know dog was. I could die. And on may thing pstd. Hang in there things get better

Glad to have you back and glad you are getting help. I have some medical ptsd from my gastroparesis journey also, it’s been over a year since my last admission so slowly working through that. In some positive news, I got married in March, our first dance was to the best is get to come from Tom walker after you shared it on TikTok. My husband resonated with it much like James did in relation to supporting us through these horrific health struggles but having hope that the best is yet to come 💕