My Graves Disease (Hyperthyroidism) | Fear, Anxiety, & Bad Doctors
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- Опубліковано 20 гру 2018
- SHARE THIS VID WITH SOMEONE YOU KNOW WITH THYROID ISSUES!
I've been dealing with Graves Disease /Hyperthyroidism for the last 7 months. In this video, I talk all about my symptoms and the odd scenarios surrounding my diagnosis. This is just the beginning for me and I have so much more of my story to share in the near future.
In the comments, I would love to hear your stories with Graves or any other condition you're battling through. Let's support each other on our Journey to Health
Below I've provided quick links to know more about Hyperthyroidism and other thyroid related issues.
- Hyperthyroidism - www.mayoclinic.org/diseases-c...
- Graves Disease - www.mayoclinic.org/diseases-c...
- Hypothyroidism - www.mayoclinic.org/diseases-c...
- Thyroid Eye Disease - www.mayoclinic.org/medical-pr...
!!Disclaimer!! : I am not a health professional (yet! 😄). This is just my experience with my condition. If there is any information you feel is inaccurate please share in the comments section.
Thanks For Watching
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Music: Joakim Karud: Epiphany
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I've had hyperthyroidism since a teen. As I've gotten older, I'm now experiencing severe symptoms. Anxiety through the roof, extreme weight loss, aches and pains all over etc... I don't have health insurance, so the er visits for the Anxiety ( which I thought were heart attacks) I have to pay for. I'm going the natural route because I can afford it. I've found bugleweed and lemonbalm and it helps. I'm learning to.change my diet and limit stress. This is a roller-coaster of events, but God is with me. Praying for everyone going through this.
Prayers sis I would like to go the natural way also. Have you taken calcium and vitamin D?
Does your hospital have financial assistance? I applied for it and was accepted, they pay 100% of my bills because I can’t work.
@theroyalfamily1831 I have started Calcium and Vitamin D since the coleslaw pandemic but I'll be honest, haven't been consistent
Im so glad I found your page I was just diagnosed within the last 4 months and it helps to hear someone who you share common ground with. Many blessings to you.
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine.
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
Same here. It can be scary at times.
Thank God you got doctors that listens. You are very educated in this area. I had a poor excuse for a doctor at one point and I left...I went through everything that you mentioned, he never listened. Now I’m getting the treatment needed after so many emergency room visits. Got an appointment next week for large Thyroid Nodules FNA. Thank you so much for this video and your bravery
It is so important to listen to our bodies, you have really taught me this. You are so strong 💪🏾
Antoinique Bedward thank you so much Toni. Love you so much and thanks for supporting me through too❤️❤️❤️
You are so right about how people think you look fine, but are not fine on the inside. I have hyperthyroidism and have all the symptoms that you talked about. I took the nuclear iodine treatment and am now on Levoxyl but still having hair issues. Thanks for sharing!
Feel better and look forward to your videos on how you are coming along. Take care of
yourself. I will watch for any videos tht you may have coming up and look forward to hearing how you are doing.
Thank you the last yr hasn’t been easy for me but I’m in . Good place now and will be updating with some videos this month for sure. All the best with your health journey. Do as much research as you can on your body, and thyroid and don’t be afraid to challenge your doctor with the though questions. We’ll get there girl
Bless you you have been so brave. I too have Graves disease. I've just been diagnosed. Wishing you all the luck in the world x
I was diagnosed with hyperthyroidism in 2020. I've experienced every symptom you described. My levels were all over the place as well. I've gone from hyper to hypo. I had a thyroidectomy and bilateral mastectomy in 4/21. Thank you for sharing. Be Blessed.
started with hyper 4 months ago now I am Hypo 😪
@@TocaToastLillyI experienced the very same and had to be hospitalized twice for a week. I would definitely like to stay in contacts. Prayers for a blessed outcome.
Dr iyaremoses on UA-cam channel cured me completely from psoriasis I was battleing 3years with herbal medication
Doctors are no help especially these days, thank you so much this has really helped me. I've been having similar issues and symptoms and my doctor has been absolutely no help, won't even make an appointment to see me. So thank you ❤
Dear one
Thank you for this
I am a Graves’ disease survivor
From near storm patient to radical remission
They said impossible or three years
And I refused radiation
And did natural and western together
I am in remission now
I went through hell not every meeting another who could understand how hard it was
I’m so glad u made the channel
Blessings to you
How are you doing now
Leyla Barretto is your under control ?
Ebony !!!! I had no idea. Im happy to hear the doctors you have now have an interest and actually care. Not to worry love you just gained a prayer worrier😉. God is great he'll see you thru
Aww Thank you so much Avalyn. Yes I'm in good hands now thank God. 🙏🏾🙏🏾🙏🏾
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
Thankyou so much for sharing your story. You are right people don’t understand and come to their own conclusions.
Some doctors needs to resign permanently! omg...!! Glad you finally got the proper treatment you need and thank God for mum's 🥰
I am sorry that you had to go through such a difficult time. I was diagnosed with graves disease in my sixties. My advice to you is to change your diet, try to relax and have less stress in your life. Also read up on what foods to eat and what to avoid. Take care of yourself. God bless
thank you. This is now my norm and thankfully i beleive it is workign for me. Its not been easy and it will take some time for me to become totally healthy (especially when it comes to food) but i know it will be my new lifestyle.
So glad I found this video, I’m 23 years old and was just diagnosed with Graves’ disease as well about 2 weeks ago and experienced a lot of the same things you did, just started methmizole as of 2 weeks ago, wishing us both luck!
Yes I'm wishing you the best of luck. My best tip for you is to document EVERYTHING!. Date when and how much of the meds you are taking. And along side that note your symptoms like when specific symptoms stop/start happening. I did this and when I changed doctors or see new ones it gave them so much info to work with and to consider when moving forward with treatment. Good luck🙏🏾🙏🏾❤️❤️
hi. i discovered i have grave's desease after having lots of panic attacks. my endo didnt want to put me on methemazol because though my tsh were very low , my ft4 were normal.it is until i almost had a thyroid storm that my endo gave m methemazol. i was on 30 mg.then 20 then 10 then 5. after 5mg i feel my symptoms r back. i hate i hate it.
@@ItsBonnieAdams Have you heard about iodine fueling the thyroid hormone? I decided to cut way down on my dietary iodine, and I haven't done pills or surgery, and it works 100%, my bulging eyes got better the same day which sounds fake but it's true, some foods high in iodine are seaweed, potatoes, eggs, chicken, dairy, black peppercorn and iodized salt. Raw cruciferous vegetables like broccoli are good to eat with meals because they block iodine absorption. To season my food I use the smallest amount of non-iodized salt, maybe 30 small grains of salt. All salt has some iodine even when iodine is not added, so that is why I limit it. I hope this helps!
gremlins 347 gremlins 347 this is actually something I saw and looked into myself. I cut soooo many things out of my diet a i always look for food that don’t include much iodine, gluten, and dairy. And it transformed my body entirely. So I do believe this 100%
@@ItsBonnieAdams awesome!!
Thank you for watching and your continued interest. Maki g videos can be so time consuming but I hope to have one update video before the end of 2019 so stay tuned. I am doing well at the moment, thank god! So excited and hopeful to see how my health improves over the next year. Ill also be writing updates on my blog come the new year.
Thank you all! And please leave all the questions you may have below. I’ll be answering them all in my next video!
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
Worst thing, awful condition i got it through treatment for my ms . I'm glad others can relate and understand. Stay strong!
Wow I had to watch this because I am currently in the process of seeing doctors and specialist about some issues I’ve been having and nobody can figure it out yet. May also be autoimmune. I know it can be so frustrating and stressful to go through. I do hope that you will have the best treatment to help you get through this. Wishing you the best!
Thank you so much Remonia. yes It can be really stressful also scary not knowing what is going on. it took being tough with doctors and even changing them to find the answer. With faith and persistence, you will find out what going on and get the answers you need to be healthy again. Definitely keep me posted! I'm hoping for the best
Watch Dr. Jorge Flechas on UA-cam ( he has several about Iodine)
*Visit the site The Iodine Project
*Read (download free) the Iodine Crisis: What You Don't Know Can Wreck Your Life
* Watch: Everything You Need to Know About Iodine by Dr. Edward Group on UA-cam
I was diagnosed today, and I'm 41🙏🏿🙏🏿 I'm so glad I found your video I'm so you're explaining all your details I'm experiencing everything you have. I so believe this happening to me for a long time. Recently, I went to the doctor for swelling in my legs and they said my blood levels were sky high like 565 for my thyroid and went to endocrinologist and she's putting me on medication 💊 . I'm a health freak so I hate medication so this is a deal breaker for me. I pray your well very soon. Peace and blessings sis ✌🏾❤️💫✨️
Thanks for this. Just diagnosed. This was comforting, and oh my God you look like a Disney princess
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
Thank you for sharing your story. Hope you're doing better now. God bless.
Dr iyaremoses on UA-cam channel cured me completely from psoriasis I was battleing 3years with herbal medication
would love more updates and videos about this since it goes so unnoticed, the editing is so good too btw! how are you feeling now? hope it gets better
Thank you for watching and your continued interest. Maki g videos can be so time consuming but I hope to have one update video before the end of 2019 so stay tuned. I am doing well at the moment, thank god! So excited and hopeful to see how my health improves over the next year. Ill also be writing updates on my blog come the new year.
Although my mother and my aunt (her sister) both had Graves Disease; I never thought I'd have it: I just received my Graves Disease diagnosis 4 hours ago *sigh*. Nevertheless, IT IS WELL. Thank you for taking the time to share your experience...it helps.
I’m so glad I found this.. I now know that I’m not alone.. I jus recently got diagnosed with this & im experience the heart pain & anxiety & everything you said.. none of my doctors want to do anything! I went to the hospital yesterday because my heart & chest have been hurting so badly for over a week. I’m out of breathe jus laying down or making a bed smh. The nurses did all these test come back & say oh nothing wrong jus take ibuprofen. I’m waiting to get an ultrasound on my neck hopefully I get better help them.
Thank you for sharing your story.
Thank you for sharing. You are an angel. I am living this.
Dr iyaremoses on UA-cam channel cured me completely from psoriasis I was battleing 3years with herbal medication
Hi Bonnie - I know it's some years back but many thanks for making this brilliant video. I am one of the rare men diagnosed with Graves three months ago - so that's a bit of an exclusive club I didn't plan to join! I think mine was kicked off by an autoimmune reaction to Covid. Currently tapered to 10mg of carbimazole (UK) and just weaned myself off propranolol which is thankfully managing most symptoms but my eyes are sore so maybe developing TED as well :( Actually I loved the propranolol as a total chill pill but not so easy to wean off it. Glad to see you are making such great progress - you are an inspiration! Sending very best wishes.
I been diagnosed with Hashimoto 2 years ago now I have Graves. Very scary. I worry about my life span. I have a 5 year old boy. Its been a strugggle.
Thank you for sharing 😞😭 currently crying i believe this is my issue
Dr iyaremoses on UA-cam channel cured me completely from psoriasis I was battleing 3years with herbal medication
Thank you so much for your video. You literally described my life. I was diagnosed with T4. 20.6 hyperthyroidism few days ago.😪😪
Hi, I too been diagnosed with hyperthyroidism 3 weeks ago and feel so rough. I am still to go and see a endocrinologist.
omg! thank you for your story. i just got diagnosed and still trying to figure it out!
Angelika Sambegova you will get there! Trust me. Have faith and do your research. I’m still figuring things out but I’m in such a different space than I was last year.
Watch Dr. Jorge Flechas on UA-cam ( he has several about Iodine)
*Visit the site The Iodine Project
*Read (download free) the Iodine Crisis: What You Don't Know Can Wreck Your Life
* Watch: Everything You Need to Know About Iodine by Dr. Edward Group on UA-cam
Как вы?
Very good video , thank you
I was diagnosed in 2016 and had ALL the symptoms. I also have Thyroid Eye Disease (TED).The worst part to this day is bad doctor's. I've seen so many doctors who are so insensitive. :(
Same here
Oh my gawsshh girl Im sitting here listening this becuase I am currently awaiting test results for hyperthyroidism and you mention you re grenadian! I am Grenadian born and raised! So crazy and comforting to hear from a fellow island gyal 😊. It sounds crazy lol but you made my day.
HOw are thing going now for you? I hope you are doing well
@@ItsBonnieAdams Hey. Turns out it was fine. I am great now! Thanks for asking.
@@Ashley-bm9gc thanks so great to hear 🙏🏾
You are me that's alll I e got to say it's like I'm talking to myself.
I'm african carribean and 6mths gone still no proper info from the doctors. I'm researching how i can get well myself.
2mths in they were talking surgery I'm having none of it also
I can't get any answers I've cut my hair off because it was disappearing by the second and I've been up and down like a yo yo in weight i get conceived that i might not come back in weight.
Its great to listen to to you I'm 46 years young and have concluded i have to sort myself out
Mi ah fi reverse di ting
You have been great
Love and guidance sister
Mica Tee trust me it gets better. I am at a point where personally through my own research radio active iodine and thyroidectomy is not an option for me. I refuse to believe that's my only ultimatum. And since learning more about how my own body operates I know these procedures would not improve my quality of life.
I research all the time. I've made slight diet changes lately like cutting out dairy and some gluten (mainly bread). Including more greens and nutritional food overall. And I've been gaining weight steadily as well.
Also for me finding the right doctor was a great help in kick starting my treatment (and don't be aftraid to travel some for a good doc too) Even though I was on medications their focus was to get me to a point where I'd be on such tiny dose. This allowed me to implement more natural remedies to speed that process up too. When you have a background such as Caribbean or African you have no choice but to find healthy way to a cure. Good luck my friend
Omg, I have the same experience as you. I got diagnosed last May. Just found a new Endocronolist this Friday. God bless you
Mimi how are you?
Nshyka Shelton just did another thyroid uptake scan and now I have Hashimoto/ hypothyroidism and 2 of my nodules were hot and cold. Thank you for asking. I’m just trying to feel better
Changing your diet is the best advice ever, it saved my life. I had all the symptoms along with a goiter. I was on methimazole for 1 year and I weaned myself off. I started doing my own research and following other people on UA-cam with the same issues. Also, check out "What the health" on Netflix. Watching that really helped me change my diet. I let meat, soft drinks and many other sugars go. Let the junk go! I promise U, u will see a difference. These doctors do not care, all they do is push drug!! #2019gravesdiseasesurvivor
Do you need to talk I’m here I’m a survivor from storm
Joi Mac ❤️
I was diagnosed with Grave's after a friend noticed a bump in my neck. My endo also told me to get surgery after my thyroid level normalized, but I opted not to.
P. S. Glad I've found your channel! Stay healthy girl!
I was diagnosed August 2019 😔 this is hell !!!!
Hi I hope you see this comment. What has helped me is cutting out most of the iodine from my diet. Some foods high in iodine: Idoized salt, eggs, chicken, dairy, seaweed, and many more. Eating raw cruciferous vegetables with meals helps prevent iodine from being absorbed properly, which is a bonus. I hope this advice helps.
Thank you soooo much love
Ebony M just have faith and patience. Biggest tip is to do your research and fact check everything your doctor says. Ask all of the questions (that why you pay your doctor right?) and if they are reluctant to answer you find another and don’t be ashamed. My next video regarding graves will include how to take power over your body and treatment....providing all the tips that helped me so far In regards to getting/seeking treatment. Praying for you and hope youre feeling better
@@EbonyEyes00 💕👍👍
Yes!!! Changing your diet is the best advice ever, it saved my life. I had all the symptoms along with a goiter. I was on methimazole for 1 year and I weaned myself off. I started doing my own research and following other people on UA-cam with the same issues. Also, check out "What the health" on Netflix. Watching that really helped me change my diet. I let meat, soft drinks and many other sugars go. Let the junk go! I promise U, u will see a difference. These doctors do not care, all they do is push drug!! #2019gravesdiseasesurvivor
First off who sings the song at the end ? Secondly … I’m so glad I found you ! I’m going through this and I feel so alone!! I’m trying but this is so hard! Going the natural route .
Thank you for posting this!!! Is there an online support group? I was also diagnosed with Graves Disease last week. I also ended up in the ER and had symptoms before diagnosis. My friends and church have been a wonderful support. My doctors are great thankfully. I just started Tapazole to try to balance my thyroid hormones. I'm still struggling with my health issues. My family has not been empathetic. I feel pretty upset over how my family is reacting to me.
Because you probably look and sound fine. Autoimmune disorders are hidden, so outside observers have no idea. I could only sympathize with my husband, but now that I have Graves, I emphasize with him now. I hope you are doing well.
How are you? How is your health? Hope all is well
Hey Esther. I know it’s been quite a while. Apologies for not getting back to your comment earlier but I did respond to your story in my latest video. Hopefully my answer helps and you’ve been getting all the help and support you need over the last year. ua-cam.com/video/N2p-Mlbav0g/v-deo.html
@@ItsBonnieAdams Thank you! I"ll watch your video. Appreciate it. Sorry I don't check the comments section often so I missed this.
@@cljmcclain Doing much better. Thank you :)
I was diagnosed with Grave's Disease in December 2018. I'm still learning how to navigate this disease. I'm fortunate to have good doctors. However, I still do research and ask a lot of questions.
Oblong Polka Dots for sure thats the only way to do it. I found that a doctor for my care required me traveling a quite a bit but it's been worth it
Happy to see you doing airtight. Makes me happy, you have a very upbeat attitude, its wonderful. I have a cousin with Hyperthyroidism, what are some things nutritional wise that have helped you regulate your thyroid if any? Also do you know of any natural plants or foods to help balance the hyperthyroidism?
CameronCosmos thank you. Well I am in the same position finding out the best foods to eat and what to avoid. Along with my regular Endo. visits, I plan to have a consultation with a nutritionist and a holistic doctor to find first hand the best nutritional advice for my own body. There's so much info out there that I found myself getting overwhelmed with everything. But I'm taking one step at a time. I started cutting out processed and artificial foods, eating organic fruits, vegetables and grass fed meats, being aware of what I'm allergic to, taking vegan multivitamins, and eating more foods known to benefit the immune system. There's many more micro adjustments I've done in my life that I will definitely share in due time, but I'm giving them time to work.
Hey if you’re ever curious for an update on my Graves‘ disease journey, I also answered your question in my latest video. You should check it out. ua-cam.com/video/N2p-Mlbav0g/v-deo.html
I needed this thank you! I was diagnosed a few years ago, still trying to find a good doctor because I’ve gotten no relief STILL 😥
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
7:30 same thing happened to me. I got diagnosed with Grave’s Disease right before my 8 day cruise. It was ROUGH.
Never Lackin' omg the pressure right? 😩😩
Thank you for sharing. My daughter is going through this. The pediatric endo Dr. has never recommended nutritionist or getting labs for vitamins. Either methimazole, RIA, or surgery. Primary Dr attributes other symptoms. (She is now slightly hypo.) to anxiety. They aren't listening. Time get a nutritionist and a new endo that is more concerned about the other symptoms and labs besides the TSH, t4, t3.
Firstly I’m sorry that she is going through this, however she’s in good hands with your mindset. Always go with your gut instinct with a physician. Remember drs are people too and can sometimes come with their own bias and ignorance to your pain. You have all the right to request/suggest more labs or for them to dig a little deeper.
I am in search of nutritionist/naturopath atm so I wish you all the best and happy healing.
I have have Graves disease, diagnosed 3 or 4 years ago. The acid reflux, overheating, heart rate is all so familiar. I manage mine with meds, it has been a long journey.
Changing your diet is the best advice ever, it saved my life. I had all the symptoms along with a goiter. I was on methimazole for 1 year and I weaned myself off. I started doing my own research and following other people on UA-cam with the same issues. Also, check out "What the health" on Netflix. Watching that really helped me change my diet. I let meat, soft drinks and many other sugars go. Let the junk go! I promise U, u will see a difference. These doctors do not care, all they do is push drug!! #2019gravesdiseasesurvivor
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
I was diagnosed in 2017 with hyperthyroidism. Let me tell you Ebony omg'sh I had all these symptoms that you mentioned except for hair shedding and that is probably because I have locs. I also have itchy skin and have ZERO and I mean Zero sex drive! I was prescribed methimazol and have terrible reactions to it. My feet and hands get numb sometimes I have joint and body aches it is hard for me to get up in the morning I have very high stress levels. I also feel like my whole facial structure has changed. It is great to know that you are working through this issue successfully and you give me hope and inspiration.
All thanks to dr iyaremoses on UA-cam for curing me permanently from hypothyroidism/pcos doctor link#driyaremoses
Your story is identical to mines I was diagnosed in December 2018
thanks for this , I've. even dealing with this for over a year. doctors failed me. but I also now know not to take the medication they prescribed.
I've been in denial. I have graves disease. Mine was discovered right after cancer treatment for non Hodgkin's Lymphoma so I thought it was from having radiation to the chest. This has been my personal hell😞 Best wishes to all that suffer from this❤🙏🏽
@Gen I'm looking for it right now!!! Thank you so much!😊
Thank you for this I went through heart palpitations,anxiety ,panic attacks, tremors on my left side my husband even thought it was in my head am on clomapazam 2mg nocte I feel better but easily tired
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
Great video! Thank you for sharing.
Can you kindly provide me with your present doctor's information. I am presently searching for a good endocrinologist. Wishing you nothing but abundant health. Thank you in advance for your assistance. May you stay blessed.
Well I can provide the office. They are are the Endocrine associates group in Great Neck, NY ( basically on Queens).
Thank you so much for your well wishes. I am currently doing great with my health. Wishing you the best for your care too
Thank you ❤️
Guys I'm so scared. I have every symptom and more. I dont want this I just beat cancer in August 2019. I am so nervous and have felt in a state of panic forever now. I had my antibody test yesterday. Does anyone know how long it will take to get those blood results back in the US? Thank you so much for sharing your story. You are such a blessing 💘💘💘
Congrats on beating cancer it should not take long get blood test back
Girl I was diagnosed with hypothyroidism when I was 24. I’m Jamaican , now that I’m 31 and be having some weird symptoms like panic attacks. When to see an Endocrinologist, he did some blood work and I found out I’ve Hashimoto diseases smh for 7 years I didn’t know that. I’ve a lot of fear lately even though my levels are fine.
My mom have Graves’ disease also.
Did you experience you hair coming out ?
@@Jaydawayda2_0 Yes and hair thinness
I had this problem. Same condition. Heart palpitation trachacardia, anxiety, and fear.
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
I have a New Update Video dropping within the next few days. Please stay tuned and thanks for being patient with me. We are on this journey together.
Hi Bonnie, so glad you made this video. I have just been diagnosed around 3 weeks ago and its so helpful to hear your experience. Hope to hear how your doing now 🥰
I went through almost exactly the same thing. I’m off the methizamole, but I still have some pain, anxiety from time to time, and I stayed on the propranolol to stop the palpitations.
Thank you so much...
Girl I went through the same stuff ... i was horrified !
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
How are you now
I have the same evil illness, it controls my life.
I’ve been diagnosed for hyperthyroidism and graves and this is a hard situation just found out 2 months now
I just got diagnosed with graves disease today and I am feeling very depressed
Sylvia Cummings me too
Today for me
I hope that you all are okay.
Please God heal this lady because this is a serious disease
I was diagnosed 2 months ago and its so hard, but we have to move forward in life, when all things seems to go wrong, i just drop down, kneel and pray. Sometimes we dont know what Gods plan is in our life but, his plans is better that ours. Its hard but life Goes on. I started eating AIP Diet and 2 months after, the doctor said hormones are almost normal.
Congrats what's a Api diet i was diagnosed 2 months ago as well its very hard i cried to God as well
I meant Aip
Try on searching on google AIP diet its like an elimination diet.
Hey, I was diagnosed yesterday. Before knowing I thought it was postpartum related sine I have a 6 month old. I noticed I was using the washroom requently. I feel awful, at this moment and it's so scary. Trying to find a natural solution.
Me too I had a baby 11 months ago but always suffered from hair shedding after that until I had a thyroid storm!& found out it was because of that.
I was diagnosed 3yrs ago. I total nightmare! It was a lot of meds and going up and down .. a true roller coaster. I had RAI about 1 year ago and now my Graves has come back! It’s a true nightmare. I am considering surgery.
Also anyone on Methamizole, you have to make sure to get your blood tests every 5 weeks. This medication causes liver issues/ failure.
Firstly thank you for sharing your story. I’m so sorry you have to battle this and now a second time. How is it that your graves came back? Was your thyroid not completely inactive? Did you feel symptoms the second time now after RAI?
With suitable and careful management Methimazole can be taken for an extended period of times so far I’ve been slightly lucky to be on it still in in micro doses and regular blood checks Avery few months
@@ItsBonnieAdams so glad to hear Methamizole is working for you! In my case it was not doing much and it made me gain so much weight. It seemed that for 1 year radiation did it’s thing but in my recent blood it seems that my graves it’s back ( my thyroid is overproducing again). I noticed some symptoms such as hair thinning and shedding, muscle and joint pain ( sometimes extreme), stomach issues , tiredness and eye pressure… no palpitations this time so I thought it was just because of stress. Hopefully you continue doing well with your current health plan.
I was diagnosed too....I changed my diet and.lifestyle plus carbimasol and.heart blocker sometimes.
make sure you do take calcium pills though, because graves can cause bone density loss and that can increase your muscle/back pain:(
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
I just got diagnosed a few days ago after a year of stomach issues.
I got diagnosed with Graves disease last year February. I been on the medication for over a year. I don't want to do the surgery either. My doctor keeps pushing me to do the surgery. I live in NY, what are the group doctors that you are seeing now. I'm trying to find another doctor.
YukiBDeb if you can stick it through with out the surgery or RAI please do. From my research and conversations from those whos been through the procedures, I've concluded it is not an end all be all situation. It takes time for your body to adjust anything really and I've developed a great sense of patience because of it. I see the endocrine associates in great neck, NY 😁
i was dignosed with graves disease at 17, it was very bad in the beginning but now my body has adopted almost 10 years later. I still have trouble keeping weight on, and muscle loss:( but the other pains have went away after my body got used to it lol...im waiting for a natural method...I do not take the pills (tapozole) because it was so toic for liver/kidneys.
Nikole Ribeiro thanks for the tip about calcium pills I’ll definitely look into that... and great to hear you’re feeling better. I’m in a journey of taking myself off the meds too. Even though I’m not 100% I’m way better than I ever was.
L carnitine, Selenium, vitamin D , B 12. Change your diet, no sugar, no white bread,but I'm not a doctor so I'm not advising you to take it
girl, try PTU. I just switched, no side effects xx
Jessie I've definitely considered it in the past. I'll be sure to ask about it on my next doctor visit
Hi lovely
I hope you are feeling much better now. I have been struggling with all the symptoms for a while end up in hospital with chest pains, but was only diagnose in march this year. Can you send me the name of the clinic and the supplements you take please. My whole body hurts,
God bless 😘
I’m going through the same symptoms as you , how are you now?
Thanks for sharing. I am currently going to same but yet to meet a good Dr. Can you please recommend yours?
How long do stay with the symptoms before start the medication this’s my two months struggling with it and I am not on medication yet
ive had these issues for 3 years now still no diagnoses last visit she said my levels change too much
😭I just feel so unsupported with this illness nobody understands. I feel trapped inside my own body my heart feels so horrible atm I just want it to stop 😭
Hey if you’re ever curious for an update on my Graves‘ disease journey, I also answered your question in my latest video. You should check it out. ua-cam.com/video/N2p-Mlbav0g/v-deo.html
I would love to get onto the endocrinologists you are currently dealing with as I was scared to take the 60 mg per day took it twice got serious headaches and jitters ended up I. Emergency and haven’t been back to my doc
dont be afraid to seek a second endocrinologist for another opinion on treatment. You have a right to records at your current Endo so request for all your records ( you dont have to give them an explanation.. and if you must you can just say "i want to keep a track ofwhats happening")
then you take those records and set up a second opinion visit with another Endo if your insurance company allows it. I know its beena few months since you made this comment so hopefully things have balanced out but if not i definitly encourage you to try what i suggested above.. all the best
I’m going through the same thing. And information on diet is conflicting🤷🏾♂️
My 8 yr old just got diagnosed with hyperthyroidism. She has her 1st Endo appointment next week. Does everybody with hyperthyroidism get graves disease. And she is overweight.
Most of the time hyperthyroidism goes into grave disease i mean thats what ive read
Hi, I am 40 and have been living with Graves Disease for 4 years now. I know every journey is different and I am not telling anyone what to do, but please take some advice. Before you get surgery or radioactive iodine treatment research your gut health and learn about your immune system. Our bad gut health is what is causing this disease. Our thyroids are not the true, deep problem, they are just a symptom.
Also, for anyone who hasn't tried it yet Vitamin D is very helpful and important. Get a vitamin d test from your doctor and most likely it is very low.
Be strong, be smart, and know you are never alone.
If bad gut health causes graves as you say, then why are babies born with it? Why do 3 year olds have graves?
If gut health causes it how can you be genetically predisposed to it? Makes no sense whatsoever
I find it insane hearing people say gut health is the issue yet they're vegan, doing a strict AIP diet, no processed foods, gluten, dairy, soy, wheat etc....yet we have the same disease. 🤦♀️ haven't had processed sugar in how many years yet you developed the same dang autoimmune disease I have lol
@@jackiejohnson2666 I totally agree with you. I have been SOO good to my gut for 2 years. I eat soooo clean and yet here I am with this disease . I got it after going off birth control after being on it for 10 years.. I think the cause can be hormonal imbalance and ptsd/ overactive HPA axis . I took the gut approach and I am still here !Also the majority of people suffering are women..
I started on 5mg twice a day with primary doc. Then two months later with endocrinologist 10mg twice a day. They say if you take too much you get hypothyroidism. I guess my doctor taking it slow. I'm on 25mg beta blocker once a day. 3 months now heart rate is better.
I started all these problems after partial thyroidectomy
I'm really grateful to Dr Onyeneke on UA-cam who cured me from hyperthyroidism with his natural roots and herbs herbal medicine don't be scared of the unknown give it a try today and you will see the greatness in natural medicine
ua-cam.com/channels/5w6cJySjwsqevUmETSZoCg.html
Do you mind telling your tsh and t3 t4 levels from your blood test? I think I have this but caused from a car accident 😭
Me too
How can you get this from car accident
I took Athenolyl I think that’s what it’s called. It’s a tiny tablet. I don’t like taking pharmaceutical medicine, not used to it. I ended up throwing up after taking that one tiny pill. Hate the idea of taking all the meds they prescribe.
was that given for the thyroid or for the other health issues caused by it like the rapid heart beat?
@@ItsBonnieAdams rapid heart beat. I haven’t touched it since.
Hey, thanks for posting this. I've been dealing with some difficult symptoms for the last couple of months that have me worried about my thyroid. But I've had blood tests (the TSH, or thyroid stimulating hormone test) that came back normal. Just curious- have you ever gotten a false negative from that test? Have you had any experience with it being unreliable?
ColdsideRamrod I've had about 2 comprehensive blood tests about 6/7 months apart and both show markers for Graves from 2 different labs facilities. Plus I've been getting TSH, T3 and T4 blood testing every 3-4 weeks to accommodate my methimazole dosage. My levels were up and down a lot so my doses followed. Based on all that I would say I never really worried if it was inaccurate.
@@ItsBonnieAdams Thanks for the response, that's helpful. I guess I can cross hyperthyroidism off the list of possibilities, then.
@@ColdsideRamrod I hope you're well. Keep an eye on it. I developed symptoms pretty rapidly but my TSH numbers were on the border .29-.33. One time they even went up to.41. Then they dived to .1 and I have goiters now/had growths removed as a child. Things can change. I just started methimazole.
Hey if you’re ever curious for an update on my Graves‘ disease journey, I answered your question in my latest video. You should check it out. ua-cam.com/video/N2p-Mlbav0g/v-deo.html
Do you remember what your labs are? My T3 is 19.6 and my T4 is 6. I was diagnosed a month and a half ago. How are my #’s compared to the rest of you? Is anyone in the chat higher than me?
Those are very abnormal results. At my worse, my T4 Free was somewhere between 5 closer to 6. Now I’m about 1.09. My T3 total at my worst was at about 500, which steadily went between high 200s and normal 100s ranges. But now I’m at 95
Please note:
Sometimes the labs that are tested are specific to you so I would err on the side of caution when knowing other pueoples labs are in relation to how you feel.
One thing my doctor did do was evaluate more of my TSH and TSI levels and antibody levels. It’s not enough to just check your t4 and t3 when you have Graves because if you have hyperthyroid because of the autoimmune condition, your antibodies are what dictates the t4 and t3 levels. (as well as tyrottopin, cbc and hepatic levels, There can be many reasons your t4/t3 levels can be off, so sometimes not enough to evaluate your medication level.
Hopefully, that makes sense to you. And all the best with your healing.
@@ItsBonnieAdams It must be a different T3. I just got new labs after being on beta blockers. My T4 Free, Direct went from a 6 to 4.89, so that is good. The range should be between .82 - 1.77; My TSH still shows there is none…below 0.005; Triiodothyronine (T3) scores 447, the range should be between 71-180; My Thyroid Peroxidase (TPO) AB is 468, should be 0-64; Triiodothyronine (T3), free is 19.6, should be 2-4.4. Hope this helps. I’m new at understanding what this all is.
MY doctor but me on 40mg of Methimazole and 20mg of Propranolol. The Methimazole gave me Vertigo and hives so he lowered the dose to 20. I understand I have to take something because my resting heart rate has gone up to 138. He keeps pressuring me to take it out or get radiation. At this point I want to give my body what it needs to heal. But at what point is it too much on the heart?
Right now I am taking a lot of supplements, cutting out iodine and gluten/soy. Trying to eat lots of broccoli, kale, cabbage.
Hi there, how were you weaned off the beta blocker?
Now I know why I can't swallow pills.
Sis I'm 42 i now my doctor did the same thing to me like I don't understand
Do the doctors find this through blood test?
Yohana Teshome yes they do
Hey, can we have a update
Check out my Graves Disease Heath Update video here: ua-cam.com/video/R2o29Huke_Y/v-deo.html
Thanks again for your support!
What are you taking now?
I'm currently on 2.5 mg of methimazole a day. That's down from 5mg. Before that I was on 40 mg with my old Endo. Because of the higher doses I've been very very hypothyroid. They are currently trying to get me at a normal level without so much medication rubbing through my system
They can't seem to get mine under control. Do you have any information about financial resources. I can't work because of this disease. It is hard be when you can't do the things you used to. I was in ICU when they diagnosed me.
Hope things have got better for you
@@faithlovlet Thanks for caring, I am waiting for an approval for disability. I have AFIB now and my pulse drops in the 40's a lot.
@@kelisared72 what type of med do they have you on? The Antenol i take was making my pulse drop to the 60 but i was taking it twice a day i went down to once a day and i dont feel like im faint
How long have you been having graves
@@faithlovlet Sorry I didn't see your message until now, I am taking Tapozole, Inderal, Propanolol, and Eliquis. I was diagnosed in November 2019.
Salt fish !
My ft4 is 26 (normal -22)
Tsh is 2
Am I Hyperthyroid
@Tara King have appointment tomorrow. my vit d is also low
@Tara King thanks a lot
@Tara King if u don't mind what were ur lvls?
Did u experience headache like feeling around your eye whole day?
Oh yes I did. Especially when my thyroid eye condition started flaring up and my left eye got more protruding or bulgy
@@ItsBonnieAdams how did u cure it
@@ilqar887 there’s no cure per say but naturally you can try lessen the symptoms until it goes into remission usually after two years, since the eye condition is a diagnosis all in it’s own. At first I ate a few Brazil nuts which is rich in Selenium. It’s great for your thyroid as well as eyes. Then later I just took selenium supplements and that helped a bunch. Mention it to your Endo and they might refer you to see a ophthalmologist that specialises in TED. They’ll start to monitor and measure your eyes over the course of 2 years or so before suggesting something invasive to treat it
Dr iyaremoses on UA-cam channel cured me completely from psoriasis I was battleing 3years with herbal medication
I lost 75 pounds end gaming 30 pounds wen I got dignosedim 280 I go up 5 lose 2
9 pounds
Dr iyaremoses on UA-cam channel cured me completely from psoriasis I was battleing 3years with herbal medication