Chronic Illness and Disability Life Hacks
Вставка
- Опубліковано 25 чер 2024
- Hello! In today's video, I thought I would share some hacks that make my life easier with chronic illness and disability. As I mentioned in the video, obviously no two people are affected in the same way by chronic illness or disability, so these may not be suitable for everyone. Some are things I already do, while others are ideas I have found on places like Pinterest. Life with a chronic illness or disability can be difficult enough as it is, so I hope there might be something in here that could make things that little bit easier.
Please let me know what you think of the hacks I've shared, and also please do share in the comments any hacks that you have that make life a bit easier. I may even make another video if we get enough new suggestions! Also let me know if there are any other videos you would like to see me do!
In this video:
- Black and White Striped Jumper - Primark (Old)
- Emily Norris (who does hacks videos as well as others) - / emilynorrisloves
Where you can find me:
Blog - www.jaffacat.co.uk
Facebook - Ramblingsofa...
Twitter - @Jennycole04
Instagram - @Jennycole1988
Pinterest - Jennycole44
Google+ - plus.google.com/+JennyColeJaf...
Snapchat - Jennycole44
Anything marked with a * has been sent to me for review purposes, but all opinions are my own and I will only talk about products that I feel fit in with my channel/blog.
Music by Epidemic Sound (www.epidemicsound.com)
I'd love to hear your comments and will reply to as many as I can :)
I cook each ingredient by itself in bulk, then freeze per portion. Such a life saver because I can “build my meal” with all cooked ingredients but still have a lot of variety. I call those my little builder package (meals)
U like that too
Another excellent hack for keeping a shower clean is to keep one of those kitchen scrub brushes which you put dish soap in, in the shower so every time you get in the shower you can do a bit of scrubbing. This might not be best for people with limited mobility, but for autistic and adhd people it is a huge help!
Thank you for sharing that - I’m always looking for new tips for making cleaning and tidying a bit easier! I’ll definitely have to try this one xxx
Great tip. And you've given me another idea. I'm on my couch trying to find tips for washing dishes today when I can barely sit up, and I'm now picturing myself in the tub in my swimsuit sitting back washing dishes.
Unlikely I'll do that (would require too much work to get them there), but it's a funny image 😂
Also, here in the US, there's very little in terms of help for disabled or ill people. I went to the ER with a racing heart and shortness of breath....I was there from about 10pm to 3pm next day, they never made any diagnosis, just a couple of tests and an IV...they want $26,000 for that visit alone, and I have to follow up with Cardiology to see if they will actually try to find something. Who knows how much they're going to want for that.
Sorry for the late reply. I’m sorry to hear there’s so little help for Disabled or ill people in the US. I can only imagine what it must be like to be charged that much for healthcare. It must be so stressful for you. I really hope you’re able to see Cardiology and get some answers xx
Depending on your needs, air fryers and instant/crock pots are amazing to cook with low mess/effort. And pre-cut, pre-washed veggies are a lifesaver for me!
I went to a medical supply store, told them my limitations & asked what they had that might help me. It was like a candy store! I ended up with a bristled thong/flip flop thing with suction cups on the bottom, that you stick to the floor in the shower so you just rub your foot in back & forth to scrub tops and soles of your foot. It's great, no aggravating SI joint by lifting leg up, no POTS dizzyness from leaning down. Also, a long handled scrub brush is great for reaching legs & back.
that is a great idea. in the meantime im going to get that long grip thing for picking up trash but for picking things off of the floor
great ideas
I'm technically undiagnosed, (and twice misdiagnosed with depression). I have Fibromyalgia and CFS and it's been a really rough few years as my condition steadily grows worse and I can't find a doctor who cares enough to figure it out. Today I am semi bedridden and feeling really down about life right now. Trying to homeschool my kids and do the other normal house wife stuff without the help of my husband and greatest supporter during the day because he's obviously got to work yo put food on the table and such. Decided to find some fellow peeps with invisible illness to help motivate me a bit! Thank you for your channel.
I'm wrestling with the ready meal thing myself too. I've got two young kids and I've always tried to be a really good example for them of healthy eating, and you're right there is a stigma surrounding frozen dinners that kind of just reminds me of either a 50 year old lonely bachelor, or a single mom without a penny to her name. I'm trying to break that mental cycle! I love making things from scratch, too, I love that challenge. If I HAVE to cook, I would it to be high quality and nutritious. But if I'm honest it's the cooking and cleaning that I need to find solutions for.
Sorry for the late reply. Thank you for watching. It sounds like you’re having a really hard time at the moment. It must be so hard having a family to look after whilst also being chronically ill. Sorry you’re finding the ready meal thing hard. It’s definitely difficult with the stigma, but you need to do whatever makes life easiest for you. There’s some great ready meals around these days, which are a lot more nutritious than they used to be. I also think batch cooking can be really helpful if you still have days when you feel able to cook. Cooking double/triple amounts and then freezing some for another day means you still get those home cooked meals but you’re not having to cook from scratch every day. I know it’s hard, but try not to beat yourself up for using shortcuts. The most important thing is your health and making sure you’re feeling as good as possible to be able to spend time with your family. You’re doing brilliantly xxx
Hey sweetie, I can relate. May I suggest reading books by Anthony Williams in regards to fibro and CFS. He has helped hundreds of thousands who are also in your shoes.. including me. Sending love and blessings. You will improve.
Since I have poor proprioception & poor distance perception (double whammy!!!) I cut a bathtub grip mat to fit into my sinks, so I don't slam my vintage china into the bottom of the sink so hard. Also great for when I fumble crystal glassware!
A recent purchase of a benchtop dishwasher from a friend's garage sale is an absolute life saver. I actually have spoons left for other things, now!
If you're like me and can't have the boxes/baskets around because you live with lots of other people or just the boxes are too much clutter for you, something I've found is really helpful is just having a small backpack or waist bag for things you need frequently.
It's especially helpful for me as my bedroom on the second floor of my house and stairs are really hard for me.
Sorry for the late reply. Thank you that’s a really helpful tip. I live with my niece and nephew, so having boxes around the place isn’t always practical (unless I want things being taken out and carried round the house by little ones!) And my bedroom is also on the second floor, so this would be a helpful tip for me! xxx
I eat ready meals because I can't cook alot because I have heat sensitivity that causes heat exhaustion
Thanks. You make me feel normal and not a lazy person that so many times I was told I was.
I have EDS and ADHD and I use the basket system but I have a rolling cart for it since I don't need to be walking stairs. It helps a lot with both of my conditions !
I print out a sheet with pictures of all my medications & supplement labels (image search has them all) on one side, & my conditions list on the other, laminate it, & keep it in my handbag. So handy for both shopping, & talking with doctors/pharmacists to make sure I no negative interactions.
Also, the pill boxes with individual day containers are great, so I don't have to take the whole week out with me.
Also, I have an A4 lecture note book, & I write in each appointment at the top of a new page. I jot down questions IU want to ask the doctor, or symptoms I want them to note into my file, & take notes on that same page when at the appointment. I can flip through to see when an issue started, when my appointments were, & I don't forget anything.
Also, I do ask the doctor to note inconsequential symptoms as they arise, in my records. Often something that seems unimportant helps to form a larger picture later down the line. I say " it's not an issue that's a priority, but it seems a little weird...can you please note in my file in case it's important later?" so they don't think I am a hypochondriac!
Also, I wear no makeup to the doctor, so they can accurately gauge my state of blah. This is very hard to do.
Also, I have started doing my physio in the morning before I let myself have breakfast. It's the only way I can make myself do it without getting distracted. That way, if I get nothing else done that day, I can still feel like I achieved something.
These tips are great, thank you for sharing!
i love this. thank you for sharing
Wet n Forget Shower is the best! I never have to scrub. You don’t even need to start with a clean tub or anything!
Easiest way to clean shower/enclosure is to toss a bit id dawn around it. Then use a broom (cheap 1 from $ 🌴) that u use only for this n just swish it clean. The dish detergent gets everything off. It takes lesd than 3 MINITES n can be done from a wheelchair cause there is no scrubbing. Thank u for the post. Im nit sure but i never looked this topic up ive only recently become totally disabled 9 months ago. But id like to gain some independence back. At least as much as i can on the good days
For cooking I use my instant pot and slow cook meat for 20-30 hours on keep warm. Your body doesn't have to work nearly as hard to digest the meat. Undigested proteins are inflammatory so it's double important to make sure you're digesting it
I agree 100% slow cooker is amazing u can make so many different things in it
i guess Im asking the wrong place but does someone know of a method to get back into an Instagram account?
I was stupid forgot my login password. I would love any assistance you can give me
@Jack Morgan Instablaster :)
@Eden Ty thanks so much for your reply. I found the site through google and Im waiting for the hacking stuff now.
Seems to take quite some time so I will reply here later with my results.
@Eden Ty It did the trick and I finally got access to my account again. Im so happy:D
Thanks so much, you saved my ass !
I don't have a chonic illness, only ADHD and LD, anxiety. For me having a weekly planner that is like one sided A4 not closing with the days of the week without the hours helps me remember appointments. Laying in bed after lectures is also helpful =)
Sorry for the late reply. Thank you for sharing what helps you. It’s always good to exchange tips! xx
OMG I haven't heard of Dragon in forever! My mom actually worked on creating that. It was so creepy at first and seemed like science fiction
Oh wow that’s amazing that your Mom helped to create it! I know so many people that it has helped. I can imagine it being strange at first though! xxx
I wear a lot of Seasalt jersey dresses. They pull on and come in pretty patterns. I also like the footless tights from Snag.
I use a mini back pack or a hip pouch for meds, my phone and spare supports and it's so helpful! Small and light enough to wear all the time but easy to use :)
Thank you for your comment. Sorry this reply is so late - I've been struggling to keep on top of things with my health, but am getting there slowly! That sounds like a good idea - I always find my rucksack is so heavy with all the stuff I need! So perhaps I should try a smaller bag too that just has my absolute essentials in it! x
Thanks for sharing I was just diagnosed with POTS and MCAS along with celiac disease. I’m a stay at home mom to a toddler with autism and it’s the hardest thing I’ve ever done in my life trying to keep up and care for him by myself because my husband works 6 days a week for 12 hours and we are full time travelers for his career. I am barely functioning and I have got to get my health in order ASAP. Going to have to implement some of these tips.
As an autistic person with some kind of chronic illness that hasn’t been diagnosed yet, I rely on my mum a lot and it breaks my heart. I can’t do basic things for myself like get myself a glass of water or help with the housework, so my mum is constantly worn down by me. I desperately want to help but my body is so broken I can barely move most of the time. I also need a lot of emotional support because of my autism, and I am torn between not wanting to wear out my mum and needing help. My mum also has autism, dyslexia, and health problems. As you might expect, the house is a big mess. Just wanted to say your son might not be old enough to understand what you do for him, but I do.
Hi Aubrey,
Thank you for your comment - sorry it's taken me so long to reply - I've been struggling to get on top of things recently with my health not being great. But I really appreciate you taking the time to comment. It sounds like you've got a lot going on that you're having to contend with - I can only imagine how difficult it must be. I hope some of these tips might be able to help a little bit and that you've been able to get some support with your health to try and stabilise things a bit xx
Hi Eleanor,
Thank you for your comment - sorry it's taken me so long to reply - I've been struggling to get on top of things recently with my health not being great. But I really appreciate you taking the time to comment and for supporting Aubrey too :)
I can relate to having to rely on your Mum a lot, as I'm the same. I often feel very guilty for needing so much help, especially when I can see my Mum is struggling too. But it's important to remember that is isn't our fault we need this help. Have you looked into getting outside help from carers at all? It's something I'm currently investigating, although struggling to get my head around it a bit. But it might help give your Mum a bit of a break whilst making sure you are still getting the help that you need. I hope you're doing as well as possible today xx
I have a chronic illness as well. Everyone who has a chronic illness, isn’t weird or different, they are just special, and they have superpowers.
I hope everything is going ok for you. 💞
I love Rubbermaid Take Alongs for “making my own TV dinners”. A to-go bag is a great idea. Even if someone else has to bring your things to you, it’s much easier to say “Oh just grab this bag that’s in this place.” Than trying to make them a list. Great video! :)
Small can of fish, couple of slices of bread or bread roll; best convenience food you can have.
Sorry for the late reply - I haven’t been able to post/film for quite a while due to health. Thank you for your tip - I really enjoy a tuna sandwich/roll! xx
I like the idea of moving things to a week that's less hectic as an easier solution for low energy.
I embrace the frozen veg. It's already chopped & prepped, won't go to waste if I take time to get through it, & has been shown to have more nutrients than shelf veg, as vitamins start degrading when produce is picked, & flash freezing halts that process. Then I spoil it all by nuking it, but hey, we do what we can, right? I add a poached egg, some baked beans, or some meat & an easy lunch takes 5 mins with no pots & pans. I bulk cook meat (mince, mostly) & freeze loose in a ziplock bag, so I can grab a pinch or a handful & toss it on my veg. Also great for fresh stirfry veg, just toss in a handful per person a couple of minutes before serving. Add in some ready to go hokkien noodles & you have a good quick meal for bad days.
I also bulk cook boiled or poached eggs, so I can grab one from the fridge to reheat in a mug of boiling water from the kettle.
You can bulk cook poached eggs by greasing a steamer basket, (solid with holes, not wire!) crack as many eggs as will fit (I do 4 in a 20cm pot) & let the watery whites strain onto a plate (use later for scramble) Lower the basket into a pot/pan of vinegared boiling water & simmer until eggs are the firmness you like. You can lift the whole basket to drain . For reheating, cook 'til softer that you like, then immerse in boiling water to warm through. I've cooked a dozen in a large basket, in a deep large frying pan. Cheers!
I use a lot of these tips. I have Cerebral palsy and seizures and blind in my right eye.
Thank you for sharing with me that you use them. I hope you find them helpful. I’m always looking for hacks to make day-to-day tasks a bit easier! xx
Thanks for the shower cleaning idea it's really hard for me with my chronic pain to clean the shower
Sorry for the late reply. That’s OK I hope you might find it helpful 😊 xx
thanks for your hacks. i have sever scoliosis,fibramilga, walk now with a cane, hard to do certain things, i love my independence.
Sorry for the late reply - I haven’t been able to post/film for quite a while due to health. That’s OK - thank you for watching. I hope you’re able to find ways to still keep your independence whilst also helping your chronic illness symptoms xxx
Thank you for sharing. I felt smart to see that if tried a lot of your ideas. Accepting help is one of the biggest hurdles you worded your thoughts on it very well. Thank you 🙏🏼 I use a hand sponge that automatically spins with 2 top attachments to replace just a regular sponge, its hand held and helps with the tub and cleaning the sink as well as dishes. An automatic spin duster with a long reach adapter has helped me a lot as well 💓
Thank you for posting this. I'm trying as much as I can to keep my independence and this provided a lot of helpful tips. It was also nice that you included the bit about fashion as well. I love fashion but I'm finding each year it is getting harder and harder for me to wear anything and sometimes that is really upsetting so it's nice to know there are blogs to help people find fashionable but practical items.
4:08 I place reminders in my phone 📱
My phone reminders are the main reason I remember to take my medication!
Sorry for not replying sooner - I’ve been struggling with my health. I do the same - I don’t think I’d cope without my phone reminders! xx
Sorry for not replying sooner - I’ve been struggling with my health. I can relate to this! Without my phone reminders I’d be completely lost! xx
I've seen mops with sponge attachments on. I think that would be easier than a mop head, which I can imagine being heavy on the arms, and not as good as I could imagine a sponge being, with scrubbing x
The Koh mop is great, it has a microfibre mat that velcroes on & is machine washable, & the cleanser is in a spray bottle on the handle, & works upside down. great for walls & ceilings..
So useful! Thanks Jenny 💕
Thank You for this. So helpful
Excellent video. This was helpful. Thank you!
This was an amazing video, I’m definitely going to rewatch this to help me remember all the tips!
from the heart tyvm need more
So helpful! Thank you for making this! 💙✨
These are great hacks 💜 thank you x
Just now viewing this video, such great tips! Thank you for sharing. Using a cleaning aid for the tub and shower is so helpful, I will be implementing this ASAP! After multiple back surgeries, this will be so helpful!
Having a medication List and the app is a massive help to me and I can't live without it. Especially when I can't remember how to fill out my Dosage boxes. And I'm terrible for remembering what tablets I've taken so this helps prevent over dose as I did used to unintentionally over dose.
Excellent ideas. I'm very grateful you took the time to make chronic illness feel less miserable with your smart and clever ideas. 😇😊💕
Thank you so much, great useful hacks. I suffer from fibro and CFS and it becomes too much specially when you don't let it out, organisation helps me alot, thank you. Sending love and positivity ❤️
Thank you! I have M.E. / fibro / pots and waiting to find out if I might have EDS. These are really great tips, many I already do and agree they save me sometimes, especially the pills being sorted as I am sure brain fog would mean I didn't do my meds properly otherwise. I also have a nappy changing caddy which I use for all the things my family needs when outside the house (sun cream, masks etc etc) so that I only need to pick that up and not keep going in and out for things. The mop idea, there is actually a product that is for cleaning showers and baths with a telescopic pole. I have been known to just squirt some shower gel on the walls and use the pole while in the shower! It's really good as it has a pointed end to get into corners etc x
Thank you for posting this. All of this information is so helpful.
Sorry for the late reply. Thank you - I’m so glad you’ve found it helpful xx
I love the mop cleaning hack. Thank you for this video!
what a helpful video - thanks!
This is incredible, thank you so much.
Hi Elliot,
Thank you for your comment - sorry it's taken me so long to reply - I've been struggling to get on top of things recently with my health not being great. But I really appreciate you taking the time to comment. Thank you so much for watching the video - I'm really glad you enjoyed it!
Hey Jenny!
What a wonderful video and you are so contagfeously joyful!
I have been going through some hard times and am now officially disabled with chronic illnesses and am completely thrown out of my normal life as I used to know it. I feel I am having to learn how to do life all over again. I am very grateful for every help such as this video and hope to find more like it. God bless, Daniela
Thank you so much for making this video! :) The internet needs more of these! I didnt know i could put my medical ID on my phone or about the CEA card.
I have my medical ID on my phone so I can just show it to the nurse and the doctor. It also has my emergency contact people.
thank you for filming this it is really helpful :)
Sorry for not replying sooner - I’ve been struggling with my health. I’m so glad you found this video helpful. Thank you for watching! xx
thanks so much your awesome!!!!! and may god bless u always!!!
Hi Jenny, I just found your video, and it has helped me immensely with some brilliantly original ideas. I’m very pleased that you did so much research to be able to provide it. The only other hacks I can think of at the moment, are the long grabber handles which enable you to easily pick things up from the floor, long handled foot files for foot maintenance, and a long handled four way bath brush, with transferable body puff, lotion applicator, etc. Again, thanks so much, and good luck in all you do!
Ah I’m so glad you’ve found it helpful. Yes I agree the long grabbers are very helpful. I’ll have to try out the other things you’ve suggested! Thank you for watching and commenting xx
Thank you for doing these videos. I have hEds and ME And I do quite a few of your tips but learnt new ones too. I'm a new subscriber so I will be looking through them all!
Thank you for watching and subscribing! I’m so glad you found the tips helpful. I’m always looking for new ideas to make day-to-day tasks a little bit easier xx
You're such an inspiration
Sorry for not replying sooner - I’ve been struggling with my health. Ah that’s so sweet of you to say - thank you for watching my videos xx
I love your nails and I will definitely be checking out some of those apps. Thanks for sharing your hacks.
Thank you from a mum of 48 years recently diagnosed.
I love help and accommodations I also used to try to be strong and independent but the benefits help me perform better. Loved these tips thank you for sharing ! 😊
Sorry for the late reply. Yeah it can be hard to accept help and accommodations I think, but like you say, once you realise how much they can help, it’s great seeing how they can help us do more and be more independent! xxx
some of these tips are a great idea, i need to try them. i am currently undergoing testing for ibd and fibromyalgia. it’s really taking a toll on me as of late.
Some really good tips Thankyou Xxxlisaxxx
Steam cleaners on wheels helps me. I can pull it out.
Clean the room then done.
Also cute pencil cases can help organise your medical supplies on your handbag/backpack.
I have meds in one, I have things that help in one for pain another for my GI stuff ect so I know which bag I need for what issue.
Thank you for your suggestions. It’s always really interesting to hear what helps other people. That’s a good idea with the different pencil cases - I do similar with make-up pouches! Really helps to keep things in one place so they’re easy to find when you need them xx
Really good ideas - there’s a few I will adopt right away. Thanks for putting this together.
I'm so glad you found it helpful! xx
Good ideas. I had to stop your video and quick make my small purse medical bag.
We have my middle nephew take the basket of clothes to be washed down to the laundry room. I keep my purse where I can just grab it and then go, I write down things that I know I am going to need to do. I will do that for doctors appointments , I use a mop to clean my bathtub. I suffer for brain fog and low energy levels, pacing ourselves is always a good idea!!! I have two apps that help me with my medication, Medisafe is one of them and Epsy is another one because I have Epilepsy, too.
I enjoy Emily’s videos too, especially the life hack ones.
Sorry for the late reply. Emily does some great videos doesn’t she! xxx
Thank you for the water tip especially withe with covid atm x
My MTA Mobility card which is for my transportation I use it for the buses, and light rail system in my state in the USA. It makes my life so much easier.I live in leggings My leggings are the best and are so comfortable.I don't care what anyone says. I hate that my staff says things to me on the warm days that I am wearing leggings on the warm days where I live. It makes me frustrating. They don't understand life with chronic illness.
I have a couple hacks that I use a lot. I use baskets in shelves and drawers so that if i need to look for something i can just take the whole drawer to my bed without having to lean over it looking for my one pill bottle. I also carry around a collapsable shopping bag that I can use when I would have to take multiple trips up and down stairs or when I'm using my cane and I only have one hand. I used it all the time at fast-food restaurants when i got my meal and my drink so I could carry the meal in my bag and my cup in my hand. I also prep my meds for a month instead of a week but yes if you take more than one pill it's worth it to sort them.
that is a great idea. i do something similar. i bought a mens shaving bag and put my glucose meter in, my bp machine and my oxygen meter. In one drawer of the dresser next to my bed I dedicated one drawer to just meds. I also keep a water thermos next to my bed.
I use backpack style handbags or backpacks to put my groceries in and carry them that way as less strain on elbows and shoulders and useful if you use a cane as you have one hand free. Also pockets in clothes! Keys, phone especially or a 'fanny pack' as well for these.
Excellent ideas, a few I do already like the mop in my wetroom and the batch cooking. The fashion one really grates in me when TV shows don't have disabled models, we like fashion too.
So sorry for the late reply - my health hasn't been very good over the last year or so unfortunately. Thank you - that's great that you're already finding some of the tips helpful. Yes it's really frustrating not seeing Disabled models, as like you say, we like fashion too! I've found some great Disabled people to follow on Instagram who share the more amazing fashion posts! xxx
with cp I always have a basket on my bed with everything so I don't have to reach or climb. I use post-its ALOT. with my mom sadly gone my sister tried freezing meals for me but it just didn't work well for me time-wise or having different people help me. so we went back to just cooking. not as well as mom's but it works. one hack I use is using tongs to reach stuff on counters, plastic bowls in the fridge if I can't reach cupboards etc
Sorry for the late reply - I haven’t been able to post/film for quite a while due to health. Thank you for sharing some strategies you use - it’s always helpful to hear what other people do to try and cope and helps to pick up new tips! xx
I feel like this all of the time x
Thank you for your comment - I really appreciate you taking the time to leave one . Sorry it's taken me so long to reply - I've been struggling to keep on top of things with my health, but getting there slowly! Sorry to hear you feel like this all the time. I hope you're doing as well as possible today x
And small hand held steam cleaner!!! (with extension handle and long nozzle). I have not got one YET, but keeping eye on for one. Because scrubbing is something which hurts me and takes all my energy.
I saw one in Lidl offers for 22euros!
Sorry for not replying sooner - I’ve been struggling with my health. A small hand held steam cleaner sounds like a great idea! I hope you manage to get your hands on one soon! xx
Ive switched to a smaller cross over body hand bag and a tote for the car etc if needed...far easier with my stick
The Koh mop is great, it has a microfibre mat that velcroes on & is machine washable, & the cleanser is in a spray bottle on the handle, & works upside down. great for walls & ceilings..
i use that too and I love it. they sell a version of it at the Dollar Tree
Hello new subscriber here, thank you for this video so much great info really great hacks, my family and I have a disability awareness channel. Sending many blessings and support from one channel to another 💁🏼♀️🥰🙏🏻
Thank you for your comment. Sorry this reply is so late - I've been struggling to keep on top of things with my health, but am getting there slowly! Thank you so much for subscribing! I'm so glad you enjoyed this video and found the hacks helpful! I will have to check out your channel too :) xx
Could you do one on hacks for people who have Epilepsy? I also suffer from Epilepsy along with my EDS.
Thanks for the medical ID app idea
yas
You got a new subscriber
Thank you for your comment. I'm so sorry for the late reply - I've been terrible at replying to comments on my videos the last few months with my health being rubbish, but I'm trying to catch up now so I can then hopefully keep on top of them! Thank you so much for subscribing! I hope you enjoy my videos :) xxx
It took me a few months after my surgery to unpack my hospital bag lol it was like a camping rucksack for me and my dad and camp cot for him
So sorry for the late reply - my health hasn't been very good over the last year or so unfortunately. Ah I can relate to that - I'm terrible at unpacking! xx
Thanks for this Jenny. I'm going to give the dictation on my phone a try & you've reminded me that I need to update my medication list before my next medical appt.
I also have a disabled bus pass & an access card (for booking theatre & concert tickets) which I'd recommend.
Sorry I've been so terrible at replying to comments on my videos the last few months - I'm trying to catch up now so I can then hopefully keep on top of them! Thank you for watching - I'm glad you found it helpful. You'll have to let me know how you get on with using the dictation on your phone. I'm glad I reminded you about updating your medication list! It's something I always forget to do! I will look into getting a disabled bus pass. Where do you get the access card from, as that would be really useful? xxx
I use baskets and also a trolly
Thank you for sharing - that sounds like a good idea! x
@@JennyCole1988 I got my little trolly full of my meds, stims, snacks, water, SPD aids, small crafts comfort things etc then when I have moved to another area so much less fetching when it can be so hard or impossible! And I find it comforting too.
hEDs Zebra here, too. Thank you! 🤩🥰⚜️
I’d be lost without my frozen Gel’O Pillows from Amazon UK. I have 2, so that there’s always one in the freezer and they’re a godsend for dysautonomia symptoms and neck pain xxxxxxx
Sorry I've been so terrible at replying to comments on my videos the last few months - I'm trying to catch up now so I can then hopefully keep on top of them! Oo I'll have to look into the frozen Gel'O Pillows - anything that will help a bit with pain and other symptoms! xx
Yes, I use frozen "migraine caps". One on and the other in freezer and switch as needed when I get a migraine / neck pain
hey, just wanted to tell you they have electric spinning mops, so you could spray the cleaner, use the elecric brush, and then use a regular mop with water as a last step, or a dry Swifer.
Sorry for the late reply. Thank you for letting me know - that sounds really great! xx
I use the mop to clean my tub and shower. I need more cleaning hacks.
Using a mop definitely helps with not having to bend down all the time. I’ll have to have a think about some more cleaning hacks for another video! xx
I have medicine organizers that I fill every week. I have one ziplock bag with my night meds and meds I take every day, and then I have another ziplock bag with morning meds. This makes it a lot quicker for me to fill out my medicine container because I’m not searching through my meds!
Sorry for not replying sooner - I’ve been struggling with my health. Thank you for sharing some of your hacks - it’s interesting to hear what helps other people. Medicine organisers are a lifesaver for me too! xx
👍
Love and blessings and courage to the community of folks out there who are dealing with illness! I suggest reading a book/books by Anthony Williams! He has helped hundreds of thousands of ppl, and he answers many questions and shines light on gray areas that befuddle.
💗💗💗
So sorry for the delay in replying.Thank you so much - thank you for the recommendation, I will look into it xx
Google lens has text to voice , it selects the text from photos and then you can change the font or get it to read it
So sorry for the late reply - my health hasn't been very good over the last year or so unfortunately. Thank you for sharing that tip - it's great to see accessibility features becoming mainstream and easy to access :) xx
Can you do a what’s on my phone tag
Thank you for your comment. I'm so sorry for the late reply - I've been terrible at replying to comments on my videos the last few months with my health being rubbish, but I'm trying to catch up now so I can then hopefully keep on top of them! Yes I can certainly add that to my list of videos to film - I'll need to see if I can find the tag questions :) xx
Ooh. A mop for the tub.
I didn't know about the medical information app and I just took C.P.R. class
I love the basket idea. I was doing something similar until we got a puppy. He destroys everything within reach. For now. I’ll get back to the baskets once he’s grown and fully trained. *sigh*
how about using a makeup case or a toolbox, each of which would have a locking lid?
@@janeshipley6993 that’s a great idea! For the projects I’m working on I’ll need a giant tote with a lid. But yes!
Electric scrub brush might be more helpful for you
bookmark 3:30
Have you heard of DNRS by Annie Hopper? Look her up!
Extremely expensive 😔
So sorry for the late reply - my health hasn't been very good over the last year or so unfortunately. I haven't heard of that, so will do some investigation, thank you xx
What is that key in your emergency bag? I wonder if this issimilar to the key that gi es acess to toilet stalls in public.
Hi yes it’s just that and called a radar key in Uk they are so helpful !
Amazingly my hospital refused to use my phone for information at the ER and insisted I have to talk them through everything while I was hyperventilating and vomiting.
So sorry for the late reply - my health hasn't been great over the last year. How frustrating that your hospital wouldn't use the information on your phone. Although sadly I'm not surprised, as I had an experience the same last year, despite the fact I was having an asthma attack they still made me try to tell them rather than reading what I'd written. I hope you were able to communicate what you needed in the end - it's a shame they couldn't make it easier for you xxx
@@JennyCole1988 we got there, but I made my frustration very well known 😂
I'm sorry to hear about your health, mine's been similarly dismal. I live for the good health days😂😂 Stay strong ❤️
I use my phone as post its, think its called notes… aslo when I put alerts in my phone, I write what it is ringing for… also I have in My phone in Notes I have Medical info. In it is also my information contact people, heath insurance numbers etc, allergies for meds and food, meds I take and a history of operations and new diseases since birth. Only put in the BIG things. And at the bottom I have a medical diary. Yesterday I found out that all paper medical notes since 1970 were lost in the University Hospital Amsterdam. In the computer they only have the last 10 years. So operations that have a had an anaphalactic reaction, ALL LOST. Not for me its in my phone and in the cloud… very often at an ER they want me to email my dossier to them… clothing tip: dress in one colour ! Light, dark of one color counts as one color ! My buisiness used to be The Imagemaker. Is easiest to buy or determine 2 basic colors and 4 accent colors nothing else and everything matches. Personally I have grey, all shades as basic and white, pink and red as accent. Really easy and never bores because everything matches. Now adays I just buy cotton, polyamide and elastic(an) as fabrics. Easy to wash, comfortable materials and stay looking good for a long time. Everything with acrilyc stays in the shops, pills and looks bad quickly !
Sorry for the late reply - I haven’t been able to post/film for quite a while due to health. Thank you for sharing some of your tips - they sound really helpful xx