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Dr. Ira Lesser - The Emotional Impact of Graves' Disease
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- Опубліковано 17 сер 2024
- Dr. Ira Lesser
Chair, Department of Psychiatry, Harbor-UCLA Medical Center
"The Emotional Impact of Graves' Disease"
Presented on October 27, 2012
Graves' Disease & Thyroid Foundation Patient & Family Conference - A Bridge to Wellness XIX
San Diego, CA
Kona Kai Resort, Spa, & Marina
Connect with the Graves' Disease & Thyroid Foundation Online!
Home Page: www.gdatf.org
Facebook: / gdatf
Twitter: @GDATF
Thank you! I had horrible anxiety and personality changes. I was diagnosed with Graves, and once my thyroid levels got back on track with the help of Methimazole, I began to feel much, much better, and those emotional symptoms went away. However, in the process, I lost some family members. I feel this illness is not understood by others, and I discovered so many people can be so judgemental of you because of something they don't understand
I know the feeling of loosing family or friends, thank you showing g that there is some light at the end of this tunnel
TRUTH.💯
This is the same and only real video about the emotional impact of Graves and it came out in 2013!! There needs to be attention brought to this, Graves patients feel very unvalidated.
I had Graves about 15 years ago. You become not yourself, you don't know who you are. You lose friends.
Yeah, this is HELL. "Most become well" Such BS.
@@Vixinaful I got well, but just after I had two life changing events that changed the course of my life entirely. I walked away from my abusive family - mother, father and sister and I haven't looked back. It wasn't a mistake, I had to get away from those people. Watching videos on narcissism cured my of the emotional heartache. I was an engineer during 9-11. Rather than embrace pancake theory, I left, deciding to stay sane rather than force myself to believe untruths. No one escapes truth by ignorance. I've been speaking against the pedophiles, drug dealing and human sacrificing satanists. I educated myself and read tons of old pre-communist takeover books and I learned the sick world I describe in the last sentence is absolutely real. Read GK Chesterton or CS Lewis. (1913 and 1933 were the years of massive commie takeover)
How did you treat it I’ve got diagnosed 1 year ago and been on medication but it give me bad side effects. Did you go with radios iodine?
@@AdrienNov I had a great doc who prescribed meds, I took the meds then stopped when feeling better. It got bad again, I had to go for radiation. This was around yr 20000. Been finer ever since. a cheap medication- I was in bad shape, he asked if I wanted to go to the hospital and said he could have a bed that afternoon for me on my first visit. It really really affects your mind - makes you go sort of mad.
@@DouglasHPlumb i appreciate your reply. would you say you feel better after radiation or would you recommend something else?
Thank You explains most everything I currently experience. Spent Christmas in the Hospital with a thyroid storm. Didn't find out what is was till I asked my PCP to do a full blood panel. He said to me your fortunate and I am glad you asked for it because you have a hyperthyroid. I think I've had it for years.
I was suffering for years with over heating, the mood swings, and I lost everyone I had close to me in very little time. My Endocrinologist appointment couldn’t come any sooner!
Hopefully, your appointment has arrived, and your endocrinologist has gone over treatment options with you. Antithyroid drugs, RAI, and surgery can all help resolve hyperthyroidism due to Graves - all have risks and benefits.
Nice to hear a Dr talk about the disease and how it exists past RAI. Ive lost so many friends who don't get that there's really something wrong sometimes. Now there's also Fibromyalgia and primary progressive multiple sclerosis. Now things get really interesting.
Thank you for this! I am on my husband's account, but am so appreciative for this.
I had grave's disease since the age of 14 (during my development) until the age of 27. Horribles memories, frightening actions, lots of regrets, psychosis that last many years, wrong diagnosis, i was arrested, hospitalized in psychiatry etc... I'm focusing currently on the PTSD that my past has created. A terrible life suffered at the hand of this disease. Even if I was treated 4 years ago, I still feel incredibly bad today. Best wishes!
How did you handle it?
Geez, I hope you’re doing ok 8 years later.
Just recently diagnosed but I've been struggling with mental issues for years now. Nobody suggested thyroid when I started freaking out and going to different counselors and doctors. I think now after tons of research and looking back that I may sometimes have been misattributing beliefs and fears related to my thoughts because the adrenaline/panic physical feelings would happen and I thought one caused the other but now I will be totally relaxed and at peace mentally but have sudden heart rate and adrenaline spikes for no reason so I can stop myself from freaking out mentally because I can separate the physical sensation from any psychological cause - if that makes sense. Having said that though, I am solitary now so I don't have confusion or drama from people and situations anymore and I'm not working so my stress from external causes is reduced from the beginning of my mental and physical problems. It was so bad in 2015 I couldn't function at all, wasn't sleeping, crying or angry all the time, lost weight and lost most of the people in my life related to my state. I had so many blood tests in seven years and was prescribed a few different meds for anxiety and depression but it was never suggested that I might have a thyroid thing until recently I asked about my throat specifically and unrelated. That's an issue I think systemically. It would have made sense to test me for that because it's a physical thing. I'm actually shocked at how many different doctors I saw over this time typing to get help. I just have to forgive it no matter what happens to me now because I can see how complicated all this is. Very thankful for this video.
Sorry for the tardy reply - we were not getting notifications! I hope that you are getting treatment and feeling some relief. Graves' is a physical and emotional journey for sure.
This is a great video. I have received a diagnosis of Graves’ a month ago and just starting to feel better on the medication. But when I look back I think I may have had periods of thyrotoxicosis for more than 15 years. I didn’t realise stress could set it off and assumed I was just not able to cope with some major life events. It wasn’t until I had a baby for a friend (surrogacy) this year and the Graves’ set off that I got diagnosed. With other pregnancies I assumed it was the sleep deprivation and having three toddlers under 3 that was the reason I couldn’t sleep, was skinny and feeling crazy and irritable. I am so thankful to be receiving treatment, but feel the longevity of my anxiety makes me fear it is now part of my brain chemistry and I may struggle for the rest of my life :-(
ua-cam.com/video/kIaSbxJs5xA/v-deo.html
There is a solution
i was diagnosed with graves disease and had my thyroid radiated but have been unable to get my levels right due to lack of medical insurance. i have several of these symptoms and eye disfiguration. it has changed my life forever in so many ways. its a shame the average american can't afford medical treatment that could give them their life back. its very expensive to see a specialist. i am learning a lot from these videos and haven't given up hope yet
Stop eating gluten. Made my levels go back to normal within 2 weeks. :)
How are you doing now? I’ve been on medication but have bad side effects. Thinking about going the radioactive iodine route but afraid I’ll turn out worse than I am now
@@Vixinaful Not true!
I’ve been gluten free before I was diagnosed with graves, am still gluten free and it doesn’t do anything to help. My graves is genetic.
My wife suffers from this and I'm broken. She is good about taking meds but if her hormones are off or if I don't do exactly what she needs my life can be turn upside down..I haven't been a perfect husband but I have been there for her. I'm there supporting her while going even bankrupt trying to help. I hate going home..I hate off weekends..i hate to take days off when she is at that time. I see why at this point how those who have to deal with this succumb to leaving or worse things..I love her so much but I can't stand her like I use to. I avoid her more now because if we fight because of her irrational behavior I'm not going to find her to work it out because it turns out that it's my fault. I feel so sorry for her....injust don't know what to do. I'm not a guy you can yell at or try to talk down to - I just dish it right back..and I hate that about myself so I try to stay away from her at some points. Today I haven't even spoken to her because of this..im walking around Target at night and I hate coming to stores.
I’m really sorry you are going through this. I have this and it’s hard.
I would like to say Thank You for all this info. I live in a remote town in British Columbia....It took OVER A YEAR to be diagnosed properly - that said I have to travel to have tests done- which is very expensive- so I know how the people in the states must feel. This disease is not fun, When it first hit, I was sooo messed up and no clue as to why. I would wake up in random places but, never remembered falling down- or asleep. I lost 8.5 pounds in 2 days. Being in Fort Nelson BC makes it hard to get the proper help, I just take it day by day!
Melissa Valentine 2 years for me to get diagnosed and I was living in NY state, move to VA and a good Dr, plus symptoms even a resident would recognize.
1) Please consider adding ACE scores to your data to assess correlation to autoimmune diseases.
2) My symptoms began in highschool, but was neglected by HMO for years with multiple issues until a full blown thyroid storm. It would be ideal for helpful for such subtle diseases to be made known to freshman students along with A&P. What good is math and English if your health is falling apart.
Let's advocate for thyroid patients before the disease takes its toll.
I'm so sorry you had this experience - hopefully, you have a good care team now. Unfortunately, Graves' isn't as common in kids/teens, and too often, symptoms are wrongly attributed to ADHD or stress.
I am newly diagnosed. I had anger, panic, irritability and insomnia. My doctor thought I had bipolar. I think my thyroid had been over active for years
man where do i start . like 15 yrs ago i was diagnossed with Hypo. then i ended up losing 140 lbs. so slowly i hav been getting worse and worse. 13 yrs now not treated. my joints are locking up now ,i think it is the nerves. I have an appt with a doc but not until Dec. If you pray ,please say one for me.
did you get help?
@@j.m1563 yes been back on meds now. Got my career back. Got a divorce . then someone even better has come along and is really helping me gain my health back as well.
I'm praying that you are doing well. I was diagnosed with Graves disease two years ago. 🌻
@@emilyfarris3510 i am wonderfu;. much has happened in my life since i wrote that comment , divorce in 2020 , injury that forced me to use a walker for 2 months, then i had stage 3 cancer and i beat that too. 28 radiation treatments .I hope you are well and thank you for reaching out .
@@justice0748 You are tougher than you will ever know! Press on my friend! GOD has got you!🌻
I am sorry to hear about your lack of health insurance. Have you tried going to a county ran clinic? I remember a time when I did not have insurance and they based my fees on my income. I am so grateful to have good health insurance right now, but I take nothing for granted. You could be working and insured one day and unemployed and uninsured the next day.
I need your information I have this condition where are you guys located I need help
Sorry for the tardy reply - we're a very small organization located in the USA. You can email us at info@gdatf.org.
I was born with symptoms, bedridden with fatigue. They found Graves when I was 35, my life is destroyed, cant work, study, hardly even read. Yet they say you cant be born with it. Why is this?
There’s actually a high chance that is could be passed from parent to child, as my mother has Graves and I have it.
@@justinbullock681 Funny, my hairdresser just told me all of the family on one side of her husbands, have it. This IS genetic.
Hello - It's believed that there are both hereditary and environmental components of Graves' disease. Also, Graves' antibodies can be passed on to a fetus if the mother has a history of Graves'.
@@justinbullock681 there is hope!
If I received the iodine uptake dies that mean that the radioactive material in it is going to kill my thyroid?! No one explained it to me. I specifically said I don't want to kill my thyroid! I was also told not to do iodine before thyroid meds ? My TSH was 0.02 my T3 & T4 were 341 and 4.71. I'm extremely unregulated and I need surgery on my small intestine but the Dr said no way with severe hyperthyroidism and Graves unregulated it most likely will cause cardiac arrest from the anesthesia? I need help
Hello - This is an issue that your endocrinologist & gastroenterologist should discuss in order to determine how urgent the surgery on your small intestine is. The preference is to *not* do surgery while a patient is currently hyperthyroid - but obviously, if it's a life-threatening situation, that changes the calculus. The Radioactive Iodine Uptake & Scan does *not* destroy the thyroid - it just provides a picture of how the thyroid is taking up iodine. Not sure if you are asking about iodine supplements or something else - iodine supplements are *not* recommended if you are hyperthyroid, as they can make your condition worse.
I hope your okay today
would be nice to have the card not blurry when talking about eye problems thought i was having the issue
The text *should* be clear on theactual video - UA-cam gave us 3 choices for thumbnails, and they all looked like that. :-(
I feel like I'm dying
I have graves disease and I had radioactive iodine pill 💊
This is HELL. I was diagnosed at 35 years old but have had symptoms since birth, super tired, couldnt go to school, work, take classes, anything, I spend my life in bed pretty much. This disease has destroyed what should have been my life and I have all the psychiatric symptoms aswell. "Its rare to have continous cognitive problems"? Come on I cant function! Cant study, take a drivers license, think, focus, learn.. I was on antidepressants for 22 years, tried all kinds of sedatives, neither helped. It would be better had my nother been granted the abortion she seeked when carrying me than to be born like this.
So sorry to hear this. :'-( We are actually working on a program for later this month (Feb. 2021) that addresses neuropsychiatric complaints in Graves' disease. We don't have all the answers (wish we did), but it will at least start by raising awareness of what many patients are living with from day to day.
@@GravesAndThyroid Ooooooh, you are HEROES!
@@Vixinaful The link just went up if you'd like to submit a question! forms.gle/22migtdcWgWfUpyH9
@@GravesAndThyroid Thanks man!
You are not a mistake! You have a purpose in life. I was diagnosed with Graves disease two years ago. I lost everything but I am still here. I pray that you are doing well. Just know that GOD loves us!🌻
My doctor didn't believe me and it took the ER to find it. Even then my doctor barely acted. Extremely disappointing. I believe my Graves was set off by a moderate/severe allergic reaction.
Hello, do you know what caused the allergic reaction? Can you elaborate?
I'm a male in my late thirties. Just found out my TSH levels are low and T4 is high (About 29, don't remember the unit of measurement. It should be below 20 something). I'm not yet diagnosed with Graves' but I've had many of these symptoms for a long time. Very tired, sleeping problems, mood swings, anxiety, sweating, itches, and what not. Curiously, I have actually periodically gained a lot of weight. It's a bit harder for me to recognize the emotional symptoms since I have a long record of severe depression (since my youth). Still, it makes me wonder whether some of my mental problems might be due to hyperthyroidism. I hope it's not Graves', because that really sounds like a life sentence to me. Especially with my background. I have been fighting depression for such a long time, and now to consider that I have an another long fight (perhaps life-long) against Graves' just makes me so frustrated. Well, what can I do...
Hello - The good news is that most Graves' patients respond well to treatment. It's critical to get an accurate diagnosis, as Graves' disease is the most common cause of hyperthyroidism, but there are other causes as well, and the specific diagnosis will give you direction on which treatment options are (or are not) appropriate.
please take a look at GNM, it can be resolved
ua-cam.com/video/kIaSbxJs5xA/v-deo.html
I have graves desises / HYPERTHYROIDISM. I had for now 9mos.i lost lots of weight but then I gained 10 p and they checked my thyroid gland and found out I had graves desises / HYPERTHYROIDISM and I lost my nephew and dad in 26 hours apart and it got me stressed out then my head doctor got busted for child pernogerfie and he was my med doctor for 9 y so I got more ff stress doctor Israel stam got only 3y ears he should of got fff life ow well so now I'm living with graves desises / HYPERTHYROIDISM and survive incest and rape and my people close only my nephew dad was not a dad as you no figure it out ok well any one I can talk to has graves desises / HYPERTHYROIDISM let me no ow I have poler disorder and p.t.s.d but now theses all go together ok God bless you all ok
Are there any good doctors for Graves’ disease in nyc??? Preferably with more modern approaches ??? I don’t want to nuke my thyroid
Hello - A couple of docs that our team is familiar with are Terry F. Davies and Monica D. Schwarcz