Two Concerts Cost Him Everything- Harrison's Hyperacusis Story
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- Опубліковано 11 чер 2023
- Harrison shares his compelling and sorrowful story of how his life was completely altered after experiencing acoustic shock from a concert that resulted in severe pain hyperacusis.
This condition has had a profound impact on every aspect of his life. Despite seeking assistance from various professionals, such as audiologists, ENTs, neurologists, and even surgeons, Harrison's relentless pursuit of relief has yielded no positive results.
The excruciating pain and reclusive lifestyle he endures are not his only challenges; he also faces discrimination and a lack of support from many of those around him, due to his disability.
Harrison hopes to use this video as a catalyst to enhance awareness, promote understanding, and reduce discrimination against individuals suffering from hyperacusis.
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I’m proud of you man. Keep your head up. 30 years almost with this condition and I’ve been on a roller coaster ride where I’ve been doing so well that I can drive with the windows down and play drums on the electronic drum set, and even laugh without worrying about the pain from laughter, and then I’ve had four or 5000 relapses. Keep your head up, do your best we all care about you, and are proud that you were man enough to make this video it means a lot to everyone! 👊 ❤
Appreciate the love thanks man!
@@harrison9074 👊
I'm so sorry to hear your really heartbreaking story Harrison. I know how it's difficult for others to understand but I cannot imagine how hard this is for you. Hopefully with this we can erach more awareness. Big hug from Colombia
Thanks so much, I watched your video too. We are all in this together for real!
I feel your pain. I have struggled with this on a low level for years, it has recently gotten worse after having Covid and being in a loud environment I couldn’t escape for about 30 minutes. I’ve also had family members act like I’m being dramatic or untruthful about the pain it causes. I am ready to rid my life of anyone who doesn’t support me within reason (speaking mostly of friends, I understand family must stay)
It improves over time, be patient, God bless you.
I feel for you bro! I hope you the best. Just know you're not alone and there's a light at the end of the tunnel.
Yessir, man a real medical treatment will be here before we know it. Just gotta stay tough till then. Appreciate you brotha!
Not really… good chance there won’t be… I’ve seen some progress but not much in 30 years. I’ve had tinnitus since 1990 and permanent tinnitus since 93, and I sold my drum set October 16 of 1997 from hyperacusis. EVERYONE is different. There is no 1 single treatment. I can say I’m always surprised when I hear people say they have no progress from Tinnitus retraining therapy (sound therapy) because I was so sensitive to sound that I couldn’t handle hearing my dog walk on the hardwood floors or even flush the toilet. Eating potato chips and nuts was hard, of course my own voice and other peoples voices, and yes even the sound of the wind blowing and birds chirping like we’ve all heard…. But! At least 3500 times 😂 I’ve gotten much better where I could actually play drums on a rubber practice pad or an electronic drum set with a small speaker, and drive with the windows down, only to relapse over four or 5000 times and not being able to handle my dogs tail hit the couch! 😢 this condition is extremely complicated and what I’ve learned in the past 26 years with hyperacusis is that you have to retrain your brain through sound therapy and not total isolation like many do, but also clearly be in a controlled sound environment and take baby steps, also you have to watch your sugar and foods that cause inflammation so we don’t speed up the nervous system and or cause inflammation in our inner ear. Our circulation has to be on point, are potassium magnesium and calcium levels and b 12 has to be good, and people with this condition just need to learn balance and stay as relaxed as possible. I’m a drummer and I’ll always be a drummer and I dream of playing drum set again but I’ve only left an acoustic drum set with earplugs and headphones two or three times in almost 30 years where I didn’t have a relapse or wanted to cry from the pain in my inner ear. Those times I was just in the correct setting and had a long enough of a break from sound. I’m not a medication person and never wise but I am considering medication again. I do fully believe in TRT or hypoacusis sound therapy. Definitely believe everybody with this condition should be on ginkgo biloba and magnesium, and consider doing yoga an inversion therapy. I am also considering Anafranil since many people are having success with it. The hyper Coosa surgery I wanted to get but I’m reluctant. There’s also a laser light therapy for the inner ear. It’s complicated but don’t just cross your fingers and think there’s a miracle cure right around the corner because it might not happen for 20 or 30 years. And trust me I don’t want to be pessimistic, or bring anybody down with negativity, but with this condition you need to be proactive. I am blown away about some of the people that are very well known in this community that can’t even leave their house. None of them had more sensitive ears than me at one point because there’s no human being on earth that had more sensitive ears than me. Maybe the same sensitivity, obviously but not more sensitive. I’m talking about a guy that didn’t want to hear the wind blow against my ears or his dogs tail wag and hit the couch and yet the same year I got this condition I was spending at least 6 to 8 months out of the house even getting on trains running through the streets away from ambulances and loud cars, but I was out there. Yeah, I was that guy that couldn’t take other peoples voices and my voice often, or the sound of a potato chip bag being opened. I remember my buddy opening up a canna soda and it sounded like a snare drum rim shot I almost wanted to pass out…. But I’m out here and on the road every single day and yeah I get on the highway and sometimes drive 3 to 500 miles. The earplugs will be in for 15 minutes to a half an hour and then out for 15 minutes to a half an hour and then I’ll go on for four or five hours straight. Never give up!
Keep in mind that was voice text so hopefully it was clear. I’ll check back later and edit it! 😂 sense of humor has helped me so much with this condition even if 3 to 6 months out of every year for almost 3 decades laughing hurt my ears.
@@williamperri3437 There's a difference between loudness hyperacusis and pain hyperacusis (Noxicusis) Sounds like you have loudness hyperacusis which does respond to sound therapy. I've heard that pain hyperacusis (noxicusis) doesn not respond to sound therapy and can make the condition worse.
@@dianecelento4974 I don’t have the energy to go back and read everything I wrote but either you’re very new to this or you must’ve missed something because I don’t know how I did not specify at some point that the pain from sound is devastating. The whole loud Hyperacusis/Pain Hyperacusis is more common I guess the past decade or so to specify between the two of them but there is no way in hell I don’t have both! 😂 😢 the past month and a half I’m having my worst relapse since 2016 and eating potato chips is painful, my dog was just dropping a tennis ball on the hardwood floors and I could feel like shaking and bothering my ears, my girlfriend coughing near me last night was extremely painful! So, when I first heard that there was people that I had loudness Hyperacusis but not pain, I only envied them! I am certain there are cases of hyperacusis with and without pain that have both responded very well to TRT. It’s a very complicated condition…
My son was just recently diagnosed with severe Hyperacusis by an audiologist. Thank you for making this video. It shows me what I shouldn't do now that I have the responsibility of caring for someone with hyperacusis. Thank you for speaking out.
I am not very religious. But I sincerely pray that more kindness enters your life. 🙏🙏🙏
Thank you. Im glad my experience could be of some help 😅
I'm really sorry about your condition, and i hope somehow you get into a better place.
Wish you the best
Appreciate the well wishes!
I have Hyperakusis with tinnitus. It changed my life.
You are so strong! Big respect!❤ hang on!
Thank you for sharing. I experienced this-trauma induced. It did heal after a year-somatic experiencing therapy is helping to heal my nervous system-I do believe your nervous system can heal. Don’t give up and again thank you-it is truly a horrible experience.
7:10 abusive family member is a major factor. i suspect my hyperacusis and tinnitus is from my nervous system being jacked from being in fight or flight mode 24/7 for years because of the abusive behaviour of family
Tru definitely doesn’t help they are not following my doctors physical guidelines either….. they literally don’t give me time or help from setbacks. Pretty crazy ikr…. Thanks for the kind words brother🙏🏻🙏🏻🙏🏻
@@harrison9074 Trust me, the 'family home' is the WORST place you can be, the subliminal CONSTANT agenda to undermine and USURP you at every step cannot be overcome and must not be underestimated.... being around a narcissistic mother will cause tinnitus and hyperacusis.... Read Peter Studenik's book, even if you don't have tinnitus, you must sever connection to abusive parents..... it's the only way to heal and recover.... I suffered abuse fro a narcissistic mother and at her direction also by my weak and depressive father who followed her lead. That evil monster has destroyed my life, i can best describe life in the family home as 'one flew over the cuckoos nest' with me being Murphey, the only sane one who should not be there.... my evil narcissist tyrant control freak mother as 'Nurse Ratchet' and my father as a depressive mental patient..... it was hell and i suffer Complex PTSD from the trauma.... it put me in fight or flight mode and after years of that my nerves broke..... hypervigilance, hyperacusis, hyper touch sensitivity..... you must get away from ANYONE who REFUSES to see who you really are .... they will take their COMPULSION to undermine and usurp you to their grave so don't wait until then as being able to continue abusing you gives them the energy to stay around longer
Totally disabled. I completely agree. We are told to watch the (negative) words that we use from the professional classes. They mean well, however how can they learn more about our condition unless they LISTEN to us. Therefore they can learn. Never be afraid or self conscious about the reality of how we feel.
Hey there fellow HyperQ from NZ 🇳🇿 yeah WAVE(s) 🌊🏄♀️- strength to you - stay positive your'll accelerate, expand an understanding to this space I call HyberQ in a very REAL way.
Heart - Neural Circuitry
Keep doing the YT video(s) bring a SELF practice true to HyberQ.
There are positive quality(s) to this... find that spark HyberQ - importantly connect with other(s) likekind as yourself...
Strength to you - HyberQ is very real - great your putting this out there. 👍🏻💯
Dont be embarrassed. I had this for 5 years and didnt get any understanding from 99 percent of people including my wife. Even she was angry at me for interfering with her comfortable life.She purposely yelled and screamed along with blasting her televison at high levels. It was hell for my marriage and my job. I got so angry that I went overboard getting myself back to normal. Constant sound enrichment and commitment to self. I healed in 5 years.I still find it hard to forgive those who only made my life difficult or called me crazy.
Did you take specific actions to heal or did it just happen naturally? Sorry to hear about how the people in your life treated you, that's horrible.
@@jasond4752Thanks for understanding my plight. I just held to using constant sound enrichment with nature sounds and many other sounds offensive to me...eg birds ..cicadas...music etc. I seldom used protection with the progression of time. Improvement was hard to notice unless I used my own sound therapies to focus on. I took a lot of notes and kept a journal of sorts to gage myself .
Good story Harrison , crazy your experience sounds so similar to mine when I got nox. Hang in there man thx for your story
Thanks man. I actually watched the way you did your video and it got me thinking too about doing mine. So thank you for that man! The more of us speak out the better tbh
How can you ppl even listen to this video with nox?? I can't...it hurts
@@harrison9074 Which ENT dr. do you go to that understands Nox so well? Having a hard time finding one.
@@harrison9074 How are you doing today? Have you ever healed at all from the car wash setback?
Oh hey wassup im doing well. I never healed fully from that stback since that happened like 6 years ago now, i basically just have a lower max tolerance now iftha tmakes any sense. but im doing as good as ican currently under the circumstances. How are you?
@@karenkramer3760
People at my work forget a lot, they pop huge bubble wraps or shout a lot and apologise afterwards…
Also I have two daughters, one is autistic who is prone to loud tantrums and the baby copies and screams so so loud that my ears feel like paper is tearing inside them. Breaks my heart to wear earplugs amongst them but needs must. It’s not their or my fault, it just is.
Got to do what you got to do! They'd be doing the exact same thing if they were in your shoes.
so sorry your dealing with this. Its a brave fight all of us deal with. sending plenty of love your way
I feel your pain and want to hug ypu.
I'm a musician and I have this...I feel like I'm being robbed of my identity
I am in the exact same situation. Don’t give up. And don’t give up on music. Even at low volumes. Much love.
@@Brian-xu5eh thx .Ive had it for ten years and every doctor looked at me like I'm crazy ...I finally can give this a name ...idk I just kinda ignored it then it got gradually worse...I mean i basically have earplugs in during the day all day
I understand all severities are different based on person to person. But try only using earplugs in situations when you can hurt your ears. Like unsafe decibels. For me Ive had multiple spikes since the onset of this condition when i was younger. had mine for about 5 years ish now.
@@bls8959
my ears never fully recovered but through like exosing my self to technically safe levels of sound my ears are at least tolerant.
So can you play your instrument
The bigger question is What sounds can you tolerate for Sound Therapy? I couldnt use anything at first. Pink noise was painful. I opted for TRT with wearable sound gens which gave me good leverage within months to graduate onto more challenging sounds. Baby steps. Set backs will happen and discourage you. What can you do but keep trying.? Its tough. I wish the best for all suffering with this. I guess i was a lucky one to overcome it in 5 years.
I have had hyperacusis for 30 years. Now my tinnitus is worse. I also have muscular issues. I have become very !one!y. I nolonger want to live. Keep fighting. I am finished
Mine started 8 months ago when I had the booster jab, tinnitus, vertigo and hyperacusis. I couldn't bear washing up and the cutlery was too noisy, supermarket fridges too loud, a blackbird singing was too loud. Terrible situation but I told myself these sounds won't harm me and gradually I got used to noisy drills people talking loudly etc. It will settle down in time, now I don't notice the tinnitus so much and vertigo is a lot better too. Life will improve for people even though you don't believe it at first.
Mine has recently gotten worse after having Covid 😩 it’s so painful
17 year I. House bound cannot workice in total isolation. Moved to flat now I'm catastrophe lould. Dear x9 catehome. Elders it dosnt HP here ultra lould no staf getit feel death isblesi g it ruind mi life just seem this to reasure me
So did you ever improve at all from the car wash incident?
I’m so sorry to hear of your story but am glad you’re hanging in there as best you can and not giving up.
I was at work in 2021 when the sound of the electric pallet jack fucked my life up forever. A sound I had heard for years. But that time I knew it did something to do although didn’t know what. Originally it only affected my left ear. Hyperacusis I mean. But within a month it was now effecting both ears and I had to quit my job and was basically stuck to my couch. Someone from the other room opening a jar would kill my ears so badly. I sat inside all day everyday feeling as tho nobody could understand what I was suddenly going through. Even doctors told me I was looney and making it all up.
Anyway after months of suffering I finally had found a doctor who knew what was wrong with me. I know it’s probably not like this for most people with hyperacusis because what I have is very rare but I was diagnosed with “superior semicircular canal dehiscence.” Basically meaning I had a huge hole in my left ear bone and a really thin one in my right side. I had my left side fixed and finally after over a year post surgery my hyperacusis is around 90% gone. I am so grateful for that but I know that what I have is really rare and most people with hyperacusis probably don’t have it.
Anyway I just wanted to say your story hit home for me and I’m so sorry you’re still struggling but hang in there! It’s good to know there’s others dealing with similar issues to us and we aren’t alone.
Wow, that's fascinating. Do the holes in the bones always exist or do the progressively form over time when people have that condition? And do they understand why the onset of hyperacusis is so sudden with that condition?
Sounds like you have a good ENT who suggests quiet during setbacks. Most don't understand noxicusis. Who is your ENT if you don't mind me asking. Where can people with noxicusis find Drs. who understand noxicusis?
My advice is to try and protect your ears all the time.. much as possible
yees this is also my doctor's advice for now seems this is all we can do until they have this hyperacusis stuff more figured out.
@@harrison9074 i have hyperacusis myself from listening with earphones but now we're more advanced and got speakers and smartphones etc
help us make life better
@@harrison9074 thanks for the video 🔥
@@mircoverhelst Those speakers and phones don't hurt your ears??
Yes it hurts but a little less than from headphones so my opinion goes tot using speaker or bluetooth ❤
Hmm I can't listen to the video cuz I have this ....
From what did u get your condition hyperacusis ? me using headphones on loud volumes..
click on the close caption / subtitle button under the video !
@@mircoverhelst I can't use headphones lol just thought of it makes me cringe....the loud noises hurt my ears and they swell up. I basically walk around in earplugs
@@mircoverhelst I think constant use of headphones over the years and playing guitar did me in
Sorry for your condition keep going until the end 🙃
Do you have tinnitus also?
Yes i Have tinnitus. I got it the same day i got the hyperacusis. At first it was bothersome but after awhile it became much less so. Still super loud, but it doesnt bother me if that makes any sense
@@harrison9074 i think i may have mild hyperacusis, i can tolerate some sounds but some sounds hurt. I got mine in april. I was vaccuming a carpet in my garage. When i stopped i also felt like a snap in my right ear. Then my ear felt like it was clogged and my hearing got muffled as if i had an ear plug in it. I have tinnitus in my right ear now. It progressively has quieted since then.
@@ernietorres182 Wow, this sounds exactly how I first got my tinnitus first time/ when it was just intermittent. Which was before I got my hyperacusis. I use the exact word snap to describe it too. To be honest dude if I was you I would be very careful from now on just in general. If you are gonna be in a loud place, where foam earplugs as simple as that. I initially had what you are describing. You don't want this to turn into severe hyperacusis. Not tryna be scary or anything. JUst tryna tell what i wish someone would've told me.
@@harrison9074 i am very careful when it comes to being around loud noises. I wear calmer ear plugs when i go out or drive. They help
Yah man other than the earplugs/calmers that’s all they got for us rn. Apparently they are working on a hyperacusis hearing aid type thing, that protects us from loud sounds. Looking forward to that for all of us. Until then just protect the hyperacusis level you have, keep it pushin my brotha!!
Its mostly physical pain
Not psychological
Unless people gaslight and drive you crazy saying things like "Ah youll be fine, its all in your head!"
To the point even medical professionals say this when youre paying them $$$ for diagnosis. Very VERY infuriating
As they sit you in a loud A/C filled room, yell and bang objects...yes WE are the strange ones...lmao.
One thing from hyperacusis, I sit back and watch how strange others behave.
It's hilarious how wasteful, hurtful, and inefficient others can be
while simultaneously hurting/slowing people around them...
my only advice is to focus on passions and build your life as positively upward as you can
Your experience is exactly why I have told almost no one. I'm surprised that you could be in a car at all without earplugs; it is almost impossible for me. I always have earplugs with me at all times. You must be more careful. Everyone seems to have a different trajectory, but your condition can definitely continue to worsen with repeated, unintentional and random noise exposures. As hard as it may seem, you should try to figure out something productive to do with your life. Many people work from home these days, and you should research and explore those opportunities.
Its important to protect your ears in any unsafe situation. But its also good to understand that overprotection can cause harm as well. Im very sorry your going through this. Its hard for me on many days
@@Brian-xu5eh I am not aware of any research that has demonstrated that too much protection is harmful. I have heard of one study of a small group that showed a very small and very temporary effect, but that is it. Such a study is insufficient to establish what has become the mantra of audiologists. Of course, if you can cite 5 studies by different researchers of large groups that consistently demonstrate a medium or long-term detrimental effect, then do please list them here. But I'm guessing that you don't.
No improvement whatsoever from the surgery? Did he suggest coming back for more reinforcement? I’m sorry, my earlier comment was done before you mentioned getting the surgery done. I know some people are very successful with it, some people get worse, and some people stay the same. I’m sorry you did not improve it all from the surgery