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Home-bound with Stabbing Pain -Sebrod's Hyperacusis Story
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- Опубліковано 20 лис 2022
- Sebrod has had Hyperacusis for about two years. At first, he was able to live life fairly normally as long as he wore plugs. However, after a night of clubbing his ears felt like they were on fire. Since that day he has been suffering from ear fullness, burning and especially stabbing pain.
“It’s horrendous pain that even when I’m not around any type of noise, it just lingers.”
He talks about how he suffers from noise, and lost his job and shows some of the types of hearing protection he uses.
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Bro,I am in tears...
I have similar phase in my life..
I have been suffering from hyperacusis since I was 37, now 44... I fully understand what you are going through... I had to leave everything... music was my life, 25 years as a music producer......
I have pain even without sound, delayed pain, burning etc...
I can only say that the one that has taken me longer is that you let it heal and that in most cases it improves slowly over time... a long time... it took me 1 year to be more stable... but not well ... but enough to do more things...
Time and precaution are our weapons... if you improve, don't trust yourself and always protect yourself in noisy environments....
A big hug and encouragement... We hope that videos like yours serve to raise awareness among more people and that they discover new treatments....
A hug.
Man, seven years...omg... Mine is 2 years also, pain also almost 24/7 even in silence. Did you improve? Can you drive, go to holidays or at least restaurants?
I'm at 12
Thank You!!! For making this video at times I feel so misunderstood…
I want to give you a big hug cause I soooo understand your pain. I'm 52 and suffering. It breaks my heart that you are so young going thru this. We have to be strong.
Sorry to hear that, i feel for him also because he is younger than us. How long do you have it?
@@tauicsicsics year and half. It's a nightmare. I think mine is jaw related so I'm exploring myotherapy now. I also have severe ringing in both ears.
@@vicvic1892 yep, mine also, i have TMJ for 10 years, then exposed to loud noise and it was over. Homebound, pain almost non stop, my own voice hurts...
@@tauicsicsics I still have hope that this shit will eventually sort itself out. I'm also housebound. My voice hurts at times as well. I suffer from severe anxiety and my doc insists it will subside when I tackle my issues. In the meantime my anxiety has escalated. Not sure how I developed this. Was wearing earbuds loud for a while. ENT says no. MRI brain scan clear, ears clear. It's an absolute torturous condition that noone understands only those suffering. It has destroyed my soul. Too scared to live at the moment. Hope we improve as time goes by. Best wishes
@@vicvic1892 fully agree, this disease takes everything from us. It's a deadly combination between excruciating pain, isolation, lack of holidays or social life. Where there is life, there is no noise, we cannot escape from it.
I learned to live with it, but this is not living.
Big hug
Ear researchers are studying tinnitus and hyperacusis... research is slow but it is advancing. There's hope
Two years, you're still learning what are the effects of the hyperacusis on your ears. Avoid any unnecessary noise, avoid setbacks (this is the most important), and stay calm. No exception. Even if it's a big change in your life. We understand you. Take care 🙂
Setbacks are part of the recovery. They will happen .If you just hide from normal environmental sound...you won't improve ...ever. Did you recover from hyperacusis?
@@lastcall170 lastcall170 : Completely FALSE. Setbacks are dangerous, less setback I have, better I feel. You don't know anything about the REAL pain hyperacusis. The REAL one. Expose to "normal" sound when you are a real "pain hyperacusis" case is the WORST advice EVER you can make. But this is yes a common medical advice, THE ONE that destroys my ears at the beginning of the illness.
@@lucbrugere2219 How are your ears now? You said the bad advice that destroyed your ears at the beginning of the illness. Have your ears recovered since then?
@@dianecelento4974 Diane, it depends on what you want me to tell you. I'm an extreme "pain" case, I live with it for more than 12 years now, 24h/24 7d/7 at home. I'm working (I'm an engineer), earning my living, I just have a complete different life than a normal person. I'm sure I will never recover completely from that illness, I will never have a normal life again. NEVER. I know that, I just live with it. What I can tell you is SILENCE allows me to recover a little, ALWAYS. Setbacks, on the contrary, deteriorate my condition, sometimes permanently. ALWAYS. Take care of you Diane.
My heart goes out to you. My son has hyperacusis and is struggling too. Hang in there, researchers are working hard to figure this out and find a way to bring you some relief. 💜
Hi, you should have your son reach out to Treblehealth and speak with an audiologist. They helped with my treatment for hyperacusis. I’m not cured but the treatment has helped a lot. I’m only reaching out because I know a lot of what you read on the internet says there is not treatment for this. They also are a UA-cam channel.
@@Stockies If you're talking about TRT, I know it's good for loudness hyperacusis, but how bout pain hyoeracusis? Can it do more harm than good? I'm stuck on that one.
@@dianecelento4974 yes, it can cause a setback - happened to me, but that only happens when to try to do too much. It’s a very slow process, and some days are better than others. Just find protocol that works for you.
I am a retired audiologist. My experience had taught me that everything about the human body changes over time. That you can depend on.
Thank you so much for sharing. I can understand you so deeply. All this despair and pain. We have gone to so dark places. And felt so alone. In this journey I found a strength in my heart. I didn’t want to stay in my body and I learned to love myself. Just by feeling my heart over and over again. Trusting that there is a higher intelligence moving so much my mind doesn’t know. I am learning to be willing to be were I am right now…..to give up resistance and find trust.
You will get better. The body can heal.
I really appreciate this one brotha,I wore head phones for over a year almost 60% of my day at home due to my neighbors dog barking all day just to get away from that,but they were always turned up super loud(huge mistake) then one day I went to a baby shower and they had live music as loud as I’ve ever heard it and it just destroyed me,I left with my ears absolutely killing me and I haven’t been the same since,I completely understand you brotha,my prayers go out to you and we gonna get right soon,keep your head up
Man I am so sorry. This ear shit is murdering me.
Damn sorry to hear that :/ How long did you have hyperacusis for and how are you doing now?
Son...hang in there. I'm in my 12th year of it and I felt the same way. 😢. I have bose sound canceling earphones and custom made ear plugs. I am also a woman 74, therefore i had to learn how to tune out and focus on what i am doing. Grocery shopping is a trip from hell...the first 4 years were not fun. No music,no t.v....unless you like reading caption. Gradually I was able to watch t.v. after my son hooked up my earphones to an amplifier so i could control my own sound. Now i use Bose Bluetooth. Don't forget, sound also comes through your bones. Wear protective gear and go outside and find a little quiet..which will be a challenge. I have spaced out enough that i think that i am a space cadet 😂. Take care sir..God bless you in your struggles.
Just stay strong
Thanks for sharing your story, really well done!
I know how difficult it is. Unfortunately no cure for that because of lack of research on it. I hope the best for you and thank you for sharing your story brother
Dude, I thought I was alone in this auditive issue, I am currently in the same page. I had a job, two cars a girlfriend, an apartment, etc. I lost my job because I hated the music, the voice of my coworkers, the people talk, I get irritable easily. I am now at my parents I lost everything. I am doing on line studies but deeply inside hating my guts for not be able to know how to deal with this situation. I just get tooo mad, from trivial noises. I used to smoke a lot in the past, and I also had a hardcore impact on my head that took me to the hospital. I had a next level concussion, and all my auditive senses are messed up. My psychiatric is just giving me anxiety pills, my psyco therapy been telling me to water all my plants, my parents are tired of having me home. Oh! and I have a terrible barking dog, that keeps barking from outside noises. Just like me.
I hope you doing alright bro!
You r not alone - Stay Strong! I have both ears Tinnitus , pain , pressure and hyperakusis. I dont want go outside. Everything is too Loud. I hope for a cure soon 🥺😢🥺😩
Was yours from a loud sound injury?
I feel your pain bro i just started feeling this about two weeks bro. I had a really bad sinus infection and this started out of no where. I hope you get better brother. I feel like no one understands.
Tremendous testimony, thank you for sharing
I’m still a minor, and I got it, last year. It hurts so much to be dealing with it so young as these comments have it they’re older. From someone else’s talking, I have to sometimes talk in a whisper. The stabbing pain is just constant with any slight sound.
The sadness I feel because I can’t seem to cooperate with people around me, I feel rather, useless. I’m also social, I love a good conversation but now it seems nearly impossible. I’m scared, it sucks so much.
I have been whispering for 5 months nows I understand exactly what you mean. Sometimes people cannot understand and choose to distance themselves. People treat pets better than they treat people with extreme Tinnitus and Hyperacusis that's severe. If they only knew
@@poneroneqb2066 For real. Hell sometimes my mom is loud purposely when I say something. I don’t get what’s so hard just being respectful. It truly sucks the way it’s treated by people.
Sound therapy is a option to help with this. It will take months and you won’t be back to normal, but you will be able to have a normal life gain. I reached out to Treblehealth for my treatment, but you may be able to find sound therapy somewhere else too. They also have a UA-cam channel.
Do you know what the exact cause or cause leading up to your pain hyperacusis?
@@leofrasionio5290 I think it could’ve been being next to my baby nephew almost everyday when he would cry, but I’m not sure. (Sorry I never saw this comment)
I have hiperacusis too but I have been paying attention to my diet and it has gone down …..you have to eat clean ! Pay attention to Liam stops tinnitus…..the same treatment for tinnitus works for hiperacusis
You are so strong! Big respect ❤ hang on 🙏
listen to pink noise with headphones i hear it really helps over time
Im sorry tot hear that story hyperacusis makes me miserable everyday
On God I can relate!!! 🤦🏾♂️ 🙏🏾🙏🏾🙏🏾
I jumped unfortunately in same condition for last 3 months I am not getting at home I go outside every where with lot of depression but even to stay at home doesn't help ..I just wach one UA-cam to get rid of mt notice to breathing all the time I'm this video she said some peapol have intentions how we are listening this single thought trigger at the time and threw me in the most worse condition that's why UA-cam sometime kill the people ,I was very brave to beat the sounds because my thought process was in positive mode but not single thought made it in really bad mode due to a single video.I just feel there was not any sound before buy this though combine my intention to sounds all the time ,I feel mostly life is over buy struggling I don't wear any ear plug because it is not solution we have to train the brain with courage and some imagination to stay it in calm gradually like when I listen any sound I say in mind I am sitting in train with friends it helps for some time then again struggle all the day I hope it would be alright but need to train the brain slowly and I would start homophobic treatment to boost will power and best cure as I listen.I pray for everyone to get rid of this unbearable condition.
I had severe hyperacusis as well. Lasted me 5 years . Did you try any kind of TRT...(tinnitus retraining therapy)? For me...the therapy offered more in respects of comfort from pain. I had to use constant soft sounds like gentle rain or my TRT sound gens. It took me a lot of times to find a sound suitable for my ears to handle. Being in silence made the pain only worse. I really would like,to help you buddy. You can get past this if I did. You have to crawl back very slowly. It doesn't have a straight line in recovery. You cannot live in silence unfortunately. Your brain will only accept that as a new norm.
I would love to hear more about your success story. Can you make a video on this site? Do you have pain hyperacusis (noxicusis) or loudness hyperacusis? Sometimes it's so hard to tell. Did you get your severe hyperacusis from an acoustic trauma? I'm glad your're doing well. I'm going to an audiologist next week. So far two other specialists I've gone to have been no help.
@dianecelento4974 I had hyperacusis from 2009 to 2014. It started off as 2 weeks of Loud tinnitus from sound exposure trauma. My life was listening to loud music with ear buds and playing loud video games with headphones non stop for 6 months. The hyperacusis was both pain and hearing everything way too loud.I made a list of what caused me pain. MOST Sounds perceived amplified by 10 times as well
Running water in shower, sink and in pipes as well. Air passing through ventilation systems ...
Refrigerator ...
Voices...especially female or very low voices The S consonant stabbed my ears far worse.
Automobiles
Television and radio
Squealing brakes
Birds
Silverware pots and pans
Crushing plastic bags sounded like a crackling fire
Fluorescent lights
Gas pipe lines
Shopping carriages sqeaking wheels
Etc...Etc..Etc...
What worked
Relaxation techniques...very soft sound therapies that I created for myself...I also used soft rain sound while sleeping. If I used anything too loud ...my tinnitus would spike.
I also had a very bad case of misophonoa which led me to hate every mouth sound including chewing food..gum snapping..lip smacking . I would get furious and or sick from these sounds.
Thankfully within 5 years I beat all of this . I sadly had no support from my own spouse with this. It angered me to think that she now had control over me. I said NO to this and took huge steps in sound exposure even if it caused me pain and relapses. There was no way this would beat me. Today...I'm enjoying life without pain and suffering. I find it hard to move on and forgive those who offered no support at home and at work. I almost lost job and marriage. God was my strength but the f8ght was all mine. Best of Luck or faith if you have it. It's easy to let this destroy you. I kept enjoying long walks and good food. I collected Invicta watches and spent most time alone. It was rewarding in a weird way because it taught me the value of caring and loving ones selve above all to heal.
The fact that he can even talk. I wonder if it is painful...because I can only talk without pain when I am medicated. I don't understand it. 4 years of Hyperacusis here.
Take it day by day. Hopefully your brain retrains itself to not hear so loudly.
Thank you for sharing, I am currently experiencing symptoms myself. How is your condition now?
I hope you read this - I wonder if multi-day inpatient k3tam!n3 treatment (like for CRPS) would have an effect on your pain?
I feel you
Your going about it wrong. You have to have noise exposures at low levels otherwise you will get worse. I know 30 years later. I couldnt even talk at that time. I tried to talk and exposed myself around noise, had hundreds of setback. Today i can talk out loud, still have setbacks from loud sounds. Now my tinnitus is getting worse. Exercise seems to help. If pverprotect ears you will be stuck
I’m 25 and a week ago I got hyperacusis let’s just say Im in deep depression and idk what to do with myself I trying my best but I can’t
Try amp'd up custom ear plugs. She's based in Arizona.
When you said you pushed your limit going to the bar, did you have ear plugs on that night?
Energy drinks, Pre workout, Caffeine in pill form, CAUSE hyperacusis for me. COFFEE does not! Coffee actual helps normalize my hearing somehow!
Hey there, have you seen, an audiologist? Did you try any sound therapies? There are treatments out there that could help you get a quality of life again. I was where you were 2 and a half years ago but my life is pretty much back to normal now. Please do not think that there is nothing that can be done because there is. There is help out there. I can help you out too and share with you everything I have done to get my life back if you're interested.
Keep strong
Hi Vlad, can you please let me know what you can do at the moment? Can you go to restaurants, walk on the streets etc? Did you have any pain, any sound distortion ?
Do you have noxicusis (pain hyperacusis)
Do you take any medications like Klonopin?
There's a doctor who has invented a new surgery for this. Dr. Silverstein in Florida.
Ya and it cost a few grand and only he can do it...also it doesn't work for everyone
This is though process no surgery can help out without thought process could be change .
There's a surgery for this. Ima doctor invented a surgery in Florida. Dr Silverstine
Highly experimental and expensive
Tienes tinitus?
Hi, same here. Have you tried Lenire?
Venire does not cure hyper-acusis
@@bmarlomanI don’t think any device can
@@bmarlomando you have problems with sleep?
No. I sleep ok. I am undergoing hyper acusis therapy with an Audiologist in Beverly Hills. At the 7 week timeline. I used to wear my custom earplugs 25 db a lot. I have cut back...had some setbacks of course. But I was not pushed into purchasing the Lenire device until I get the hyper acusis testing at a tolerable level.
@@bmarloman At my case I understand tinitus and hyperacusis as an outcome of a mixed condition. I do not have any diagnosed heart issues but in my sleep or whenever I let go, my heart does pulpitations that are felt to my head. The more intense the more the tinnitus and hyperacusis the next day. At the absense of these heart related symptoms both T and hyperacousis vanish. Strange
I have hyperacusis, and I’ve received treatment for this and it has helped a lot. I found Treblehealth on UA-cam and I reached out to them. The sound therapy they provide is pretty easy to follow.
Do you have tinnitus also? How much was Treblehealth helpful what treatment did they use and how much was it?
@@blancacasillas8226 Yes, I have tinnitus too but it does not affect my life. Hyperacusis is my main issue. They used sound therapy to help me get used to sound again. I think they specialize in tinnitus, so you should reach out to them to see what they can do for you. I bought the sound generators they offer, and it was a bit pricey, but it was worth it for me when I could hear the results. Watch success stories on UA-cam to get other ideas for treatment.