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First Pelvic Floor Therapy Appointment | Let's Talk IBD
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- Опубліковано 16 сер 2024
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This video is NOT medical advice nor should what I am saying be taken as fact. Please remember I am a patient and am simply sharing my experiences and learning the more I go to this therapy. Thanks guys!
I’m a pelvic floor PT with an ostomy. I’m so excited to hear how your evaluation went!
I had PFT and it was awesome. Mine was just age and child bearing. It was invaluable. Keep up great faith and healing it’s all worth it...so brave....
Glad to hear you're having a good experience with PFT so far! I went last year for vaginismus and I'm super happy with the progress I have made this year. It's not as scary anymore and I feel much more confident about my upcoming annual exam. Thank you for sharing your experience with us and hopefully things continue to go well with your PFT! :)
Edit/Update: My annual pap smear was a success!
I have v vestibulitis. Always makes me feel hopeful when I hear of someone who is successfully overcoming pain in this area. I have been suffering for 20 years and it has definitely impacted my life.
@@An__- It's frustrating to deal with pain in that area. I'm very glad you haven't lost hope. Best wishes for your health and healing!
So excited to hear :) I’m a pelvic floor therapist out of Scranton.
I was so impressed with my PFT - so informative, I wish she had a class so I could learn everything! You'll have to correct me because I try to share what I was told, but have no idea what I am talking about haha!
Physical therapists are some of the nicest medical providers out there.
In high school I had to learn to belly breathe as a flute player. My teacher made me stand in front of a mirror with my hand on my stomach to watch my stomach expand rather than my shoulders move up. Within a couple days I noticed a huge improvement in my air intake and to this day I naturally belly breathe. Just focus on watching your stomach get bigger and hopefully your body adjusts quickly!
That is a fantastic tip! I'm trying to be more aware of my breathing so I just do it naturally - it definitely feels better breathing that way!
This was my experience with my Pelvic Floor PT as well. So knowledgeable, kind, gentle and just so willing to spend time with me and listen. I’ve never had such a great experience with a medical professional as I have with my Pelvic Floor PT. Looking forward to hearing how it goes for you. :)
You are so inspirational!! I am in awe of you!! You are a true leader!!
Looking forward to this-I was in pelvic floor PT for six months last year for hypertonic pelvic floor dysfunction (I struggled on and off for years and never found out what it was til it became acute last year). I learned so much! I still struggle with it at times but I have the tools now to tackle it on my own.
Saaammeeee! It’s like you always think you have a UTI or something. Pelvic floor physical therapy changed my life for sure.
I’m so glad your appointment went well! I see a pelvic floor physiotherapist as well and it’s made such a huge difference.
Very interesting video Maggie as well as so informative .. My abdominal muscles still feel stiff and when I cough or sneeze it actually still hurts a bit.. My midline scar is very similar to yours and yes.. that numb feeling surrounding it is kind of weird!! Good luck to you with your pelvic floor therapy! 👍
Very much looking forward to this. Thank you for sharing your journey Maggie. I am a Nurse as well and also 2 years in to breast cancer recovery. I think we are better practitioners because of our experience. My blessings to you & Zac💞
Hi Maggie❤so glad you had a nice experience, keep us posted, needing this kind of therapy myself
I'm so happy you posted this. I have been referred for pelvic floor therapy and am so nervous about it I haven't called to make an appointment. I'm going to call today. I love your videos, it makes me realize I am not alone in this IBD journey. I have a J pouch and my final surgery was in November. I'm still adjusting to my new plumbing.
This is an amazing and important series- thank you for everything you do
Maggie...so glad that was a positive experience.
Thanks so much for posting this informative video. Best wishes to your continued heath and happiness.
Hi Maggie, you are an inspiration, it doesn't matter what your IBD throws at you and what medical stuff you are advised to do, you just step by step deal with each issue/appointment. I know this must have it's stresses and frustrations but you always find a way to remain positive about it. I love your channel 💖 and you and Zak are just the most beautiful couple ever. Much Love & Greetings from Melbourne Australia
Pelvic floor PT has given me 10 years without intestinal surgery! Since I began, I have gotten off of TPN, gained 30#, and have decreased my need for pain meds. My PT does physical manipulation of my abdomen, laser therapy, Physio Touch (mechanical cupping) to break adhesions around my scar, internal release, and ultrasound. I'd previously had numerous small bowel resections, lysis of adhesions, and stricturoplasties for Crohn's. I hope that PFPT helps you too, Maggie!
Can't wait for this information - I have the exact same issue since 9/2019 with the pooling of mystery fluid from the lady area (not blood/menopause here) :(
Well done Maggie and thanks for sharing 🙌
I never even knew this was a thing. I'm 33 (waited until marriage for sex). I explained all the pain I was having when attempting to have sex but the ob/gyn just seemed to think I was a wimp I guess. Until January when I went to get a pap smear and the pain was unbearable and couldnt even be done. She FINALLY got me help and sent me to a Pelvic Floor Therapist... about a month in now to the appointments and they have CHANGED MY LIFE
I'm so happy to hear you had such a positive experience! I thoroughly enjoyed bone tracing therapy each time I had it done. One at physical therapy 3 1/2 years ago, and another time with my rheumatologist. I have EDS, and it was so incredibly relaxing. I hope each appointment goes as well as the first! Take care, and be careful (and warm) with the new snow coming!
Hi fellow EDS 😁
A fellow Zebra!! Howdy!
I heard about pelvic floor therapy in another video talking about post pregnancy. I really think that would benefit me post pregnancy. No babies yet, have to finish nursing school first lol :). But I really admire and appreciate all disciplines in healthcare. I will defiantly look forward to hear your pelvic floor therapy experience and learn so much! Love you and zac!
My friend had pelvic floor therapy after she gave birth to my brother and she said it helped a ton with her IBD & interstitial cystitis (a bladder pain condition that mimics symptoms of UTIs). She also said it made sex better lmfao
um guys.... heard on the radio going to PA today that there’s “ several more chances for snow.... BEFORE Valentine’s day😐🤦🏻♀️. 🙏 Praying that it helps you and so glad that she’s knowledgeable and i hope you feel comfortable ❤️
I didn't know about pelvic floor therapy till now so thank you!!!
my mom got pelvic floor therapy after she gave birth to my brother & she said it helped astronomically with her interstitial cystitis & IBD (though hers is much less severe than yours). i hope it works out for you too!
That is awesome. I'm hoping that this should help you a lot.
I went through IVF many, many years ago and was told at the time I had a retroverted uterus. I guess at the time I didn’t know if it was due to my surgeries but now I’m sure of it. Having everything removed it makes sense that organs might change positions. I had never heard of pelvic floor therapy and maybe it just wasn’t a thing at the time.....early to mid 90s. A few years ago I had a complete hysterectomy and my surgeon said everything was a complete mess as I had so much scar tissue which I know had affected my ovaries, Fallopian tubes and uterus.
So glad to hear that you had a good appointment. It sounds like they are really going to be able to help you. I have a scar in my midsection that I don't ever touch too. It would be interesting to see how they advise on massaging it. Also I have a hard time pulling in my stomach muscles. Maybe you can share what is advised for that. Thanks Maggie.
It is super invasive but it’s super helpful!
My boyfriend actually went to an appointment, he now helps me with the manual therapy at home.
So glad it was a good experience!
Happy Tuesday to you and hope everything is going well for you and you look so beautiful and God bless you and stay safe and healthy. Love 💘guys so much 💘❤
Thanks!! Really interesting...
Much love ❤
Thank you Maggie. I have similar scarring plus scarring where they did my ostomy reversal. I don't like touching the scars either and mine are numb as well.
Thank you for sharing this!! I'm wanting to go to a physio therapist or massage therapist to help with legs issues I'm having but I always worry about their experience with someone who has an ostomy or if they have any at all 😕
I was so happy to hear this. My Dr has suggested I go but things where I live (In Canada) are closed down. I am hoping to get in to see a PT as soon as possible. My pelvis is very tilted since my surgery. I went for an internal and it was so painful and my Dr had a very hard time doing it. Thanks Maggie, I'm so glad this was a positive experience-this is really encouraging!
Maggie, so glad your appointment went well! I've been referred for pelvic floor therapy but I've been so hesitant to go. I've never known anyone who has gone so it's been a little scary to think about. I'm encouraged by your experience, so thank you for sharing. BTW, I am a nurse, not an ostomy patient, but so grateful to have found you channel, the information you share is invaluable.
Go to the therapy. Pelvic Floor therapy is huge now. It can affect you at every stage of life. I'm older and had to go for prolapse. I'm so glad I went!
i did this and it helped so much hope it works for you
Just curious if you’ve had a salpingogram? When I was having trouble conceiving one of the first things my doctor wanted to check was my Fallopian tubes to see if they had been affected by any scar tissue. Unfortunately at the time I had major scarring on my tubes. It made it impossible for the eggs to enter the Fallopian tubes. Also I suffered with ovarian cysts. I’m sure your specialist will look into all of these possibilities to make sure you’re in great shape for a pregnancy.
I will have that done after 6 months of trying because I may have scarring on them :/
Teeny tiny weights? No, Maggie, I'm kidding. But I had to do some exercises. Be interested to see if yours are like mine.
I have been watching how you get on as I have to have my rectal stump removed and anus closed soon . You are amazing
Simple question: we know you were a nurse but, what your husband is doing? He studied in what at university?
( Maybe totally and absolutely “barking up the wrong tree “ here but anyway......) Apart from this Therapy You are undergoing, just wondering if maybe a Plastic Surgeon could help or offer advice about that very tight scar You have. That’s unless You’ve already been “down that route “........
I’ve never had a scar as big and complex as You have. And have never had any of the complications You’ve had to deal with but I have had scar tissue that eventually I had to do stretch exercises for. It was painful but eventually, with time my skin stretched out, became more flexible ( for want of a better word) and supple . It was years ago and was fixed years ago. And now today, apart from the appearance, I’m back to normal. I have full movement and use. ( The scar happened as a result of me trying to arrange some flowers to put in a vase. I was trying to diagonally cut a stem of a flower but ended up cutting the whole of my skin off a knuckle. And my knuckle bone was left exposed. I had to have stitches and antibiotics. )
Hope the Therapy goes well for You in the future. And that it brings the relief and “peace of mind “ You’re desperately looking for..... ⚛️☮️ 🌻 🌏
Quick note: saying that the pelvic floor therapy is to "take care of ladies parts" is kind of missleading. Both men and women have pelvic floor and may experience some health issues connected with its muscles weakness or disbalances.
I am learning as I go, please give me a little grace.
Where do you guys live? You sound southern?❤️
Do you have EDS also?
So superbowl tomorrow...I am for the chiefs...whose side are you on???
I haven't been paying attention to football this year, so I'll cheer on the chiefs for you!
@@LetsTalkIBD alright!!!
Can't wait!!!
💕💕💕💕
👍❤️
Just a thought maggie would a reiki practitioner be able to help with your healing it might help the process along, what do you think?
I think I'm going to need to live with a bag for the rest of my life... I really don't want to.
Its a tough thing to go through, but there is tons of support out there if you have a permanent ostomy! ♡
Looks like you need to learn some new habits and sit up straight.
There is quite a bit more to it then that...
@@LetsTalkIBD Yes, but you made it a point to say how you always hunch over and need to work on your posture among other things. BTW at 74 I hunch when playing my flute and clarinet and am always told to sit up straight.
Wear diapers girl! No problem with that!
That is not why I'm going