Uncut Ostomy Change - It Isn't as Simple as You Think! | Let's Talk IBD
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- Опубліковано 10 вер 2024
- Ostomy changes aren't always easy. There are often a number of steps involved and it can be messy, and I recognize I don't always show this side on my channel. This video is a single take shot - from getting the supplies prepared to throwing away my old appliance. I show the ENTIRE routine!
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ibd #crohnsdisease #ostomy
Thank you so much for the support on this video! I'm happy to answer any questions you may have about ostomies - that's why I'm here :)
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Are you able to go swimming?
I’ve had an Ostomy since 2012 for Diverticulitis (ER Surg for a blown colon) and still have it….have figured out much as you have but just discovered you today and watching all your videos….You are AMAZING and delightful. Thank you for such vital info and am so glad to have found you🙏🏼🇺🇸😇 Also I found Nexcare waterproof tape which molds to the skin is wonderful for reinforcing the sides of the flange to prevent possible leaking plus use Imodium to slow output on some days. Have been hospitalized for dehydration so going to try Elemental per your suggestion…been relying on Gatorade which is really too sweet…🤢anyway thanks for your great channel ❤
What happened to you? Which part of your gut is affected?
You should put a patent on the ostomy bag that you have to adjust before you can wear it. Just redesign and patent the thing if you can. I'm sure there are many other in your similar situation.
I dont know how I fell into this channel, but I must shout out, that You are a brave young Lady providing value on the Internet, that many afflicted can probably use! ❤
Agree ❤
hard ay. shes solid
😊 24:39
That is exactly what I was thinking. This dear lady is such a brave hero.
She is amazing!
For once a you-tuber who actually does good and provides a service for many who I am sure are navigating this issue. I commend you for being so frank about it all, and showing it all. God Bless you.
I’m glad I found your channel. It brings back memories when I had to help my daughter with her ostomy. My daughter was disabled and didn’t have fine motor skills in one hand. She got hers when she was about six years old. I took care of it until her passing at 33 years old. We used one we could empty. I co 0:02 uld almost change it in the dark. I’m sure you probably can too. She passed in 2009 and I’m really surprised the appliance has hardly changed. You haven’t lived until you are called during the night: Dad my bag came off. Sometimes it came off with no mess and other times stuff was all over the place. Thanks for bringing back memories of those days. I never got mad or upset I just joked with her. I do miss her.
I’m so sorry for your loss! I know it’s been many years but no parent should have to live through their child leaving this world before them! Much love & respect for being an amazing dad!
You have off the charts courage! Condolences🙏 Best wishes to your family 💛
Very best wishes to you, very sad to hear about your daughter
Thank you for sharing such a sweet memory. God Bless you, I’m so sorry for your loss ❤
I’m very sorry for your loss ❤
I'm a nurse and enjoy watching your videos. You do make it look easy to care for a stoma. Thank you for educating everyone on the care and the tips on what supplies that are helpful you, that might help others with their own stoma.
This was a learning moment for me, Thanks much I really appreciate this.
My friend was 92 and had to have a colostomy. I had never experienced one. They sent her home with out anyone there to help her. She had cateraracks and couldn't see what she was doing. She would cover her self, the floors, walls, and toilet. I did what I could to keep her and her surroundinga as clean as I could. Her family put her in an assisted living facility. No one there knew anymore it than I did. I had a friend who did know how to do this and she would help me. She lived to be 99 but had no quality of life. Her family did not care. They didn't try to help her. They were afaid they'd get contaminated or something. I tell everyone that if they ever have someone whom this happens to suck it up and do whatever it takes. If you can't find find someone who is compassionate to help them. My friend is gone but I would do anything I had to do to have her back. This time I would bring her home and find someone to help me take care of her. She was worth it to me😢
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Yep nursing facilities don't know how to take care of people with colostomies or similar appliances.. My Dad had a urostomy and the nurses didn't know to cut a hole in the flange. My Mom had to teach them, but they never figured it out. He would be wet constantly and would get infections all the time.
It's nice to know that someone as knowledgeable as you sometimes take almost a half hour to go through this process. Makes me think I didn't do so badly when I was changing my appliance.
she takes abt ten minutes besides her talking
I started watching your channel a year ago when my husband had emergency surgery for a perforated colon and received an ileostomy which he had for about 3 months, we were very nervous and scared about how to handle and live with an ostomy. Your videos helped ease some of the nervousness. It took almost the entire 3 months to find the right nurse how helped with a bag system that worked. We just didn’t know what we were doing. I continue to watch your videos because you talk about things most people don’t like to talk about. You bring a positive attitude to life’s hard problems.
I had a colostomy for a year, I had more explosions than I would like to admit! You have done a great job showing it and that it is NOT something to be afraid of! I am proud of you and your accomplishment!😊
Proud of you willing to share whole changing of ostomy
T
I love how she was trying to remember the town name whilst wearing a sweatshirt...with the town name on it. Very interesting and educational. Thank you for being brave enough to share something so personal.
I have always been curious about how ostomy bags work. Thank you for showing this so openly and honestly. ❤️
I have a colostomy and will star using closed bags next month. I also have two granulomas. My stoma is on a hernia. I think it happened while doing my surgery. I have a loop stoma which my surgeon felt it would be the safest way for me. I had an illeostomy on the other side during cancer for three months. I was terribly radiated which caused me to now have a permanent colostomy. Blessed to be alive!
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I have also had a hernia under my Illiostomy. My surgeon said that is unfortunately just something that is common and happens. I had my Illiostomy reversed and a Colostomy done. I think we share a lot of the same experience! All the best to you!
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I was ill of the same for 16 years but two years ago I went for a surgery that was successful. Can I talk to you please.
God Bless You! What a great attitude of acceptance and teaching, you are a rare light to many!
Hello there Maggie. I am an ostomate specifically ileostomy patient. Am from south Africa 🌍.
I like your confidence. You are taking good care of yourself. You my inspiration. And I like that you embrace your condition ❤😊
Gurl I'm from South Africa 🇿🇦🇿🇦🇿🇦
I feel a lot of people are sharing their stories on this video, so I'm compelled to (finally) share mine!
I started watching you in October of last year, 2023, because you popped up in ny algorithm. I found your positivity and personality so amazing and I was drawn to you (not in a creepy way like that sentence sounds hahaha). Little did I know that just a handful of months later, I would be in the emergency room for perforating diverticulitis.
After almost two weeks of refusing surgery and trying to heal on with antibiotics and bowel rest, it seemed surgery was the only thing I could do to save myself and get me healthy.
On March 19th, 2024, Stella the Stoma was born! While she may only be a temoprary sidekick, your videos have helped me so much before, during, and now after that time. I will continue to watch you no matter where I personally am at in my ostomy journey!! I appreciate you more than you know!
Cómo sigues
You have massive courage to live it & share it ! Thx Best wishes!🌞
If you don’t mind,could you please let me know how you ended up getting the stoma procedure. Thank you. You’re so young.
I had an illeostomy bag for several months after surgery for colorectal cancer. My stoma leaked, unlike yours. I had to plan my bag change around my food intake. You make it look so easy to attach the bag, I had to put it all together, then put the whole cover over my stoma. Gratefully, I was able to have a reversal surgery which was successful. I agree, the stoma is very WEIRD looking and feeling. I give you credit for showing this, a lot of people were very weirded out by my illeostomty bag and the care that come with it. Best wishes!
my best friend had her ileostomy for 5 years after she had colon cancer. She handled it brilliantly. i was so proud of her! 🥰💃🏻
Every comment I read here is about astounding courage & grace. Best wishes & thx to all for sharing🙏 Amazing, wonderful folks for sure.💛
You’re the reason why I wear closed-end pouches. Before I got my ostomy, I was incredibly worried about emptying in public because most public bathrooms in my area are DISGUSTING. I stumbled across your videos and I was so relieved; have been wearing closed pouches for 6 years and they are the best thing ever!
How many bags do you go through in a month and does your insurance pay for them all?
@@cyndiacuff2389 I use 1 large bag and maybe 1-2 mini bags per day. Yes, my insurance covers all of my supplies.
Hopefully a person who designs medical equipment is watching so they can build a product that actually works. Good on ya.
Kudos, more should be done on making stoma supplies.
The other day I had the worst public experience yet. Literally leaked twice on a date. Your videos helped me get to the level of confidence I’m at right now and so despite the stress of the situation, I calmly dealt with my bag quickly and cleanly with nobody the wiser. I told my best friends the next day and we celebrated LOL
Loved that you were so open you showed this. I have two sons with cecostomies. They are young, but I don’t want them to ever be ashamed. Thank you
that took a lots of mental courage and adjustment,,,,,thanks soo much for showing,,,,ive always wanted to know how it worked and how you managed to keep clean and not have accidents while away from home,,,,,hopeing for the best in your future,,,you educated lots of us,,,,
Thankyou so much having a lot of issues with my prolapsed stoma. Hollister disconued Kayara 5 paste, it was the only thing that worked. All the other pastes do not have the healing herbs that kayara 5 does. Finding something to replace it has been a nightmare. You are so good at describing and showing all the products and how to use them. I really appreciate you.😅
Thank you for sharing an incredibly personal procedure. I sure do wish I had known about that adhesive remover after my last hospitalization. The nurses had repeatedly put new patches on me for all the sensors I was hooked to, but never removed any of the old ones! I was really out of it most of the time and didn't realize how many of those suckers were plastered to me. It took ages to get rid of all the old goo.
Excellent. My only suggestion is put All your supplies for one change in a container. No running up & down stairs & no having to hunt for your supplies. I keep up with your amazing openness 😊
My mom had a colostomy for 5 years and in December of 2022 got an ileostomy. We do like Holister and she prefers the ones you can drain. She will be 85 and though she dumps herself, I change the bag for her. We had a spell of bags leaking after a few hours or a day. We visited the ostomy nurse (very few where we leave) and we have started using the paste with greater success. She is different for an ileostomy because her output is thicker. We change every 3 days - I like how you put the ring over the hole! Thanks for this video! And I have relatives in Pottsville. The ideas about the steroid spray is a good idea she sometimes has reactions to the adhesive!
I'm a retired home health nurse and have done a lot of ostomy teaching after people go home.
You doing these videos is such a fantastic thing for ostomy patients, good for you. You're a good teacher
Thank you! I was a bedside pediatric GI/endocrine nurse which helped a ton on the teaching side of things!
I found this very interesting and very educational. I had no idea how much time and prep work goes into changing an ostomy bag.
Thanks to you I got the Flonase trick. Literally saved me. I'm getting my ileostomy reversal tomorrow, it's been a real experience.
Thank you for showing this. I am having surgery soon which may result in a stoma so I am preparing myself, arming myself with information and going into this with more confidence. I have been watching you for years and I think this is the most honest, real, educational video I have seen. Love it.
Good luck with everything! ❤
@@yvonnemitchell3161 Aww thank you! ❤
You're so sweet. I don't have an ostomy bag, but a co-worker of mine had cancer and now has one. Because of your channel I understand what he is talking about and you can tell that means a lot to him
Your attitude and how you explain things are amazing!! My husband had colon cancer and had to have an osteomyelitis bag. When he was on chemo he would sometimes have diarrhea and we didn’t know when it would erupt. I did everything for him for 2 years before he was able to get reconnected. He was one of the lucky ones and lived 20 more years. I used the Hollister bag and once I got the flange prep down I felt pretty comfortable doing it for him. We were stuck in traffic one time and he decided to “burp” the bag!!! I was driving and boy he had a lot of air in it. Also one time he needed a change and his little old stoma decided to turn into the Macdonald’s Golden Arches!!! We both just looked at it in shock. That was fun!!! Thank you for showing others how it is done properly ❤
Im a WOCN and Im very happy to see you showing other ostomates that they can learn to care for their ostomy and continue living life!
Thank you for the work you do!!!
I am so proud of you cause there are people out there that doesn't understand I have had one for my urine since I was 12 hours old I am 52 know mine last 3 to 5 days I use everything you use but the bags
Awesome. Thank you.
This should be recommended to anyone who has to have a stoma operation. It's one of the best 'how to' I have ever seen.
Bless you.
Wow ! Such great advice. I had a j-tube for 5 years. Had such terrible breakdown of skin. Turned skeptic, in the ICU on life support for 2 weeks. Wish I would have known all of these tips. God Bless ❤
Well done for sharing the honest truth about living with a stoma. I lived with one for 18 months before having a reversal.
I have a colostomy bag myself. You know if you put a shoe rack on the back of that closet door on the inside, you can organize your supplies so much easier just a little tip that helps me.
Mom had an ostomy for a while and I recall she called me at work and she was hysterically laughing. She was changing her ostomy and it decided to miss behave and she said it went everywhere. Thankfully she had a positive attitude and just took it in stride. Mom passed two years ago and I sure do miss her!
Thanks Maggie. Awesome vid. That was so quick. I've had mine going into my 3rd year and I'm still at the 45 minute plus change time. I'll be adding to your view count to practice a couple of things you 'don't' do that I still do. I always have a couple of apple sauce snacks before I do mine. Slows the output down for me. You've been a great help in my journey since I found your channel in early 2023. Peace.
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You are simply a God send ❤ thank you as always for being open and helping so many ❤
I keep a few weeks worth of bag supplies in a small organizer tote under the bathroom sink. I use 1-piece bags, so in my bathroom tote I keep seals and adhesive remover wipes on one side, bags on the other, and in the outside pockets I keep adhesive remover spray, scissors, and a sharpie marker (to date the bag when I change it). The rest of my inventory I keep in 2 cube organizers. I take everything out of the boxes and store the small stuff in ziploc bags, bags in a cube of their own. I usually cut about 30 bags at a time, and I customize them: I cut off all the belt tabs, and cut off the tab at the top that's to help peel off the bag. Since I use adhesive remover spray this tab is just extra and it irritates me. I think we all find cool ways to customize our bags so that they're more comfortable for our own situation.
That sounds so organized and efficient!!
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Thanks for showing me how you do it. My sister in law has an ostomy and she had a tough time 30 years ago. God bless you got taking the mystery out of it.
Thank you for teaching and educating me. I always wondered how this is done. God bless you for sharing this Margie!
I just happened to stumble on your UA-cam.
I have subscribed and now I know what a stoma is, the process you go through. I love the fact that you share.
Immune illness is invisible to most people and unlike a missing limb.
I have a mild form of MS, I have mostly good days if managed and some bad days, that’s when I’m home and hide/ recover.
I love your moxey, and I understand the struggle days. We need more warriors like you.❤
I’ve been watching your channel for nearly a year now, since I became a stoma owner. I have a urostomy after bladder cancer. Similar hassles but different as my ‘output’ is urine and it doesn’t stop during bag changes. When I came home from hospital I had been instructed to change the bag every other day and it was a bind because getting a good seal wasn’t easy and I might have had 3 changes in quick succession some days if it leaked. A lovely lady in a Facebook group I joined sent me some seals to try and they are a game changer, now I get 4 days. Skin irritation is a big problem but the main reason for writing this is I found the brown steroid asthma inhaler puffed onto the skin works well and doesn’t add any film on the skin which would affect a good seal.
My husband had bladder cancer he used a bag called cymed micro skin, it has clear plastic sealing that looks almost like plastic wrap on the skin. It was the bag that he found didn’t irritate his skin , stayed sealed so no leaks and sealed well enough that he could use our hot tub without a problem. He just used water on a cloth to clean the area and towel dried and didn’t need to use anything but the bag.
I cannot thank you enough for this video (my first one).My grandma went thorugh this in her 90yrs. I know I'm headed this way, (IBS/ constipation). It's so comforting to know it could happen to an young person (unfortunely) But you make sound and feel like a morning routine involving skincare and make up. So grateful ! And I'll watch everything you post. Much Love and Peace from Upstate NY.. I'll watch everything you posted so that I can understand better your case. :)
Thank you for this video, Maggie. It has been nice spending the early hours of my surgery day with you
I hope everything goes well today! I'm sending you as many positive vibes and wishes as possible!! 🩷
I had no idea this was so much work but somehow you made it seem somewhat easy. Thank you for your content as I am sure it’s priceless for other people having similar situations.
Thank you for showing it real life. I struggle with output every bag change!! It's frustrating but you get good at it. I've had mine a year and still hate bag changes lol
You are amazing. I applaud you! 👏🏻👏🏻👏🏻. My best friend had an ileostomy that she handled very well. On occasion she attended seminars in northern Florida run by Coloplast. They manufacture your product in Denmark however i believe they have a division in Atlanta. Coloplast wanted feedback from medical staff and users of their products in order to improve their design. So when you mentioned your modifications that you do due to leaks i think this would be important feedback for the manufacturer. You go girl!! 😉💪🏻💖
I remember when my mom had to wear the bag. It looked different. I didn't really get to see much of the actual changing of it as she had assistance doing it. But I do remember the girl who helped out big time (and a great friend) use to use a baster to clean the stoma I guess? I'm not sure? Like I said it didn't look like yours. Hers was more inward from what I could see. I hate myself for not taking more interest with her health but I did live a long ways away. I do remember her getting embarrassed when the bag would start pulling apart when she was in public. Bless her. Love you mom. Wish you were here.
U should be proud to show everyone your mark and good luck with the other packs
I just want to say I'm so proud of you
I don’t want you to be in pain changing your bag! Thank you for sharing! You are very brave and strong!
Utter respect young lady.
Have so much admiration for you. Anyone who copes so well with this.hats off to you all. Youre an inspiration to others. 👍👍👍💕
Thank you for your bravery. You are helping so many people, like me, to be more confident about our bodies. You’re also showing people without a stoma what it’s like and how it affects us. As well as showing us all how to be more comfortable with ourselves no matter what our bodies look like, scars and all. You’re teaching acceptance, compassion and strength! Thank you also for helping me to feel less alone. Much love!!!!!
I'm so glad to see I'm not the only one who named mine! I had an Illiostomy and had to have it reversed and a colostomy done. I've named her Francine. Sorry to any Francines out there! Another trick to make the flange stick is also Ventolin, the blue Asthma puffer. My pharmacist told me about that one when my patches didn't stick but it works on flanges too .
Thank you so much. You have helped me so much.i thought my life was incorrect. Even Convotec know about you, appreciate you, and are thankful for you. So am I!!!😊
Yes, you help people understand what some people go through. Thank you so much!! ❤
I’m a PSW and have clients with ileostomies and colostomy’s that we help with changing or we are doing the change for them. Thank you for your very clean procedure and explanation! God Bless! 😃🙏🏼🇨🇦
I have IBS and have had ischemic colitis. But no colostomy. Mine is from fibromyalgia. Thank you for helping so many people with care compassion and encouragement. You are a treasure.
You’re a brave girl showing everyone this I am proud of you.
My 85 yr old dad has an ostomy (20 yrs now). I order all his supplies and cut his flanges to a specific size. Thankfully he takes very good care of his ostomy site but one day I may have to do this if he is unable. Being a creature of habit, this change is every Sunday morning. His doctor even commented on how clean and well prepped his surrounding area is. Than you for a visual on how to do this should it ever come to this. Dad has the drainable bags and uses a timer to wake him up (he sleeps a lot) to empty his bag. Thank you again.
I love you Maggie, Heaven bound. You are so Brave. Beautiful you are ❤
Wow very enlightening! We have a close friend with a stoma and I had no idea how very challenging and not straightforward this is. Much respect to you for your positivity and helpful info.
I wonder how many times a day you have to change this.
You are just so sweet and precious! May God bless you!
Used to use disposable bags……however……I needed a colonoscopy. Had the prep, and it started to work. However, no one advised me to use a drainable bag in that situation. It was a high pressure hose shooting out stool because it filled so fast the weight and liquid caused the flange to let loose.
So a word of advice. When I had to have another colonoscopy the drainable bag worked better I was😊 able to sit on toilet and empty the bag…….
You did an informative change
After being diagnosed with cancer, having surgery, I had to deal with this as part of my life for about 18 months until I was able to get it reversed. You are absolutely correct in saying that it's not as easy as you'd think. I was fortunate to have my family to help me during my most frustrating days. I applaud your willingness to show others what a daily routine is like. I hope you are blessed!
I just stumbled on your channel! Love your content, I am a new person with a colostomy and just learning to change it. Mine is supposed to be reversed in 3 months, but in the meantime I’m dealing with it. I never thought I’d be in this situation but I’ll keep watching your channel for info!
Hello and thank you for sharing this with us as nothing in life is easy as people think take care and enjoy your week
I don’t have an osteomy (sp?) I knew someone when I was a teenager and my baby almost needed one but responded to medical care that prevented it. I’ve said all of this to say… I found your channel and I found your personality and the way you explain everything so pleasant. I watch just because you are likable ❤
You are a brave young woman to do this video that I’m sure it’s been very helpful to many people. Its herb very educational and informative. Thank you.
WOW. YOU ARE VERY BRAVE SHOWING
HOW YOU TAKE CARE OF YOUR STOMA
AND THE "BAG". VERY THOUROUGH. I
WAS A CNA FOR 19 YEARS AND DID MANY,
MANY OF THESE. IT WOULD DRIVE ME MAD
WHEN SOMEONE CAME BEFORE ME WHO
DIDN'T KNOW WHAT THEY WERE DOING. JUST
UNNECESSARY ESPECIALLY FOR THE PATIENT.
It still amazes me every time I see you using a hairdryer in your bathroom! No plug sockets allowed for us in the UK. Thank you for this Maggie great video 😊
It's wild to me that you can't do that! Haha! :)
We have special plug sockets for in the bathroom that are designed to immediately cut off electrical power if there is any contact between electricity and water.
Thank you for sharing! I have learned so much from you as I am a new colostomy user. I had to learn by trial and error mostly . Thanks again!!
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Thank you for this, my granddaughter has an ostomy and this helps me understand what she has to go through in caring for herself.
My God...I almost screamed when you tucked your bag into your jeans. I NEVER wore jeans. It was always oversized sweats for me. Good for you!
You are an inspiration to others dealing with a similar situation, more power to you, and God Bless 🩷🩷
Love your positive attitude.. making the best out of a challenging situation… Your video is educational and inspiring for all involved with living with IBD… God bless you! ❤
Your videos inspire me so so much, I recently got diagnosed with Crohn's and watching your videos makes me feel like I'm prepped for whatever is about to come on my new journey. Thank you for the informative videos ❤
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Hi Maggie, I just happened upon your channel and watched your ostomy change. You have a beautiful attitude about everything. My husband who passed away 7 years ago had colorectal cancer and had to have a colostomy. He was overweight so I always changed his appliance for him. Like you we finally came to a good system. He did use the appliances that had a clip on the end. But the biggest things that were game changers were:
1. Preparing lots of small tissue wads ahead of time so they were ready to go
2. Washing the skin around his stoma with soap and water and rinsing and drying well
3. Then most importantly applying some triple antibiotic ointment to the area next to his stoma (about 1/8” wide) THIS KEPT HIM FROM EVER HAVING SKIN PAIN OR IRRITATION IN THE 16 YEARS HE HAD A COLOSTOMY. He had the surgery in 2001 and passed away in 2017. His skin only had problems one time in the very beginning before we started the triple antibiotic regime.
3. The Lord helped him. We prayed a lot when he got cancer. After his surgery he never went back for any checkups and his colostomy was trouble free for which I praise Jesus for helping him. He passed away not from cancer but he had lots of medical problems heart, bipolar, cancer. One of the medications he took for bipolar was lithium and he was on it for 44 years. Lithium affects your kidneys but without Lithium he would become severely manic. So he had to take it. Eventually he went into kidney failure after a heart surgery in 2017. We were married September 1, 1962 and he passed into the presence of the Lord July 31, 2017, just one month before our 55th wedding anniversary. I will be 82 on September 2.
This is my first visit to your channel, I am a health care provider, retired. Just wanted to commend you on your ability to let us see the care you provide your stoma and your procedure. I could tell you were a little nervous, but you provided an awesome tutorial.
You’ve reminded me of what my brother and I used to do for our mum with Home Dialysis, you are a wonderful and brave young woman, positive and inspiring for others in similar situations, God Bless you and your loved ones 🙏🇦🇺🦘🦘🦘
You are a brave lady. I have a urostomy bag for 3 years now after my bladder cancer. I never had any skin problems . I don't use any of those things that you use to clean my skin. Using just warm to hot water to remove adhesive. I also take vitamin E everyday. ❤ l change my flinch evey 8 or 9 days as soon as l get up in the morning before l eat or drink.
You are the bravest young woman I have ever seen. So very sorry you have to deal with this health issue. Please stay strong and well as possible. Will pray for you.
Thank you for your very honest blogs. I had colon cancer in 2005, got a bag, had it reversed. I had about 10 minutes of being showed how to do a bag. Of course there was a lot of trail and error and I was so glad when I had it reversed. But I never had a normal bowel movement after wards. Then in 2021 I had an infection caused by the radiation I had back in 2005. After several surgeries I ended up with another bag. Because I had already had a bag I got about five minutes of instructions. Now after having learned by trail and error I have gotten the hang of it. My husband actually cuts my bag and puts it on me. I take it off. I just could not cut the wafer because I have arthritis in my hands so bad. I’m 76 and my husband is 77. I would love to be able to do it by myself and am thinking of one that just clicks in place and does not need to be cut. My output is mostly solid. I don’t know which supplies I need to order. I get my supplies off of Amazon because it’s actually cheaper that using my insurance. I normally change once a week sometimes twice depending on how much I move or stretch. Could you tell me what type you use. Sorry this is so long.
i dont care about looks-LetsTalkIBD best line ever
I'm always in awe of how people don't use the clear bags to monitor output. Congrats on wearing jeans with your bag. I could never do it. It was baggy sweats for me for 6 months. God Bless you!❤
I've had mine for 14 years so have gotten pretty good at monitoring my output by it's consistency and how frequently it fills! It took awhile to get to this point however and clear pouches and measuring is a great way to keep an eye on things! 🩷
My bags have a peek a boo window I use to monitor if necessary
What an amazing brave young lady you are. Delighted to have “met” you. ❤❤
You're an angel 🙏🙏. Thank you for helping us all.❤
You are so calm and organised that I think you spread good vibes to us all.
Is there any chance you could do a food summary of the effects that certain food items have on you. It would be so helpful as we cant always figure out what makes output consistency good or bad. 😊
Thank you for sharing this! I’ve wanted to know how it works for a long time. You’re so open about it all which is wonderful to see. I know many people are encouraged and uplifted to see how you handle this. It’s a bodily function that EVERYONE has but some people have to go about it in different ways. I love love love your gorgeous smile! ❤️
Thank YOU so much!! I've always wondered, and can't thank you enough for being so brave and open 😊😊
Thank you so much for sharing such a personal procedure. You have my complete respect. Your video taught me so much and gave me much understanding. God bless you. Have a great week. Bruce
wow, I'm not sure how i found this video. it's so great you're sharing what your life is like. I watched every minute. You've got this down to a quick change. 😂😂😂
That was nice to see a whole uncut change. I was surprised that you used just toilet paper to remove the remnant of the barrier ring. Up until a month ago I've had so much barrier ring left on my skin that I usually used 6 wipes to get it all off. Recently I tried toilet paper and the paper just seemed to stick to the residue. I am now 8 months out from colostomy surgery (after having my ileostomy for 10 months) and the bags and barrier ring are now coming off more easily and I only need 2 adhesive remover wipes. I guess my skin is finally getting used to it. I'm glad things are going well with you and Hi to Zac! 💜
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Hi Maggie, interesting to watch you and Leroy, the only thing I do differently is to preheat my bags, i just pop it underneath my leg, before I start the removal process, helps the bag stick to my skin.❤
Thank you for sharing such a personal process. You have an amazing attitude about the whole thing. May God bless you and your family!
Thank you so much for sharing this with us ! Something that
sounds sooo terrible seemed not so terrible . It was very interesting !!!