Why You Should Listen To Neurodivergent People Over The Self-Proclaimed "Specialist" Doctors

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  • Опубліковано 17 жов 2024

КОМЕНТАРІ • 15

  • @sacrilegiousboi978
    @sacrilegiousboi978 Рік тому

    Very Interesting you mentioned that hyper-mobility is common in the ASD/ND community.
    My friend does this cool thing where he can wrap his fingers round one another. His arms also hyperextend slightly. He definitely is ND, I also didn’t notice it before but he does have some mild tics eg. when playing the piano and he makes a wrong note, or he hears music he doesn’t like, his neck will slightly twitch involuntarily.
    When did you first realise you were hyper-mobile?

    • @Truerealism747
      @Truerealism747 5 місяців тому +1

      I have heds autism ADHD fybromyalgia CFS OCD causation autism seams to me threw mcas cci to

    • @sacrilegiousboi978
      @sacrilegiousboi978 5 місяців тому

      @@Truerealism747 mcas is what links all of these conditions from what i've read. mast cell activation releases inflammatory molecules called MMP's which break down collagen, hence why hypermobility is a common comorbidity

  • @Truerealism747
    @Truerealism747 5 місяців тому

    My grandfather was diagnosed 1930 s though wasnt called Asperger's then scxzoid personality disorders

  • @Truerealism747
    @Truerealism747 5 місяців тому

    Mostly only autistic folk i can get on with but alas took until 43 to get diagnosed my sins now diagnosed to

  • @61SGman
    @61SGman 7 місяців тому

    I Have Tourettic OCD but I’ve often wonder if I have a little bit of Austim as I have Autistic traits, I have heaps of Stims I do, similar to the way you rock back a forth, I twist my foot for hours without being consciously aware of it, I’m also obsessed with strange topics, British history for example, I do love Motorsport and music which is more neurotypical however, probably the big symptom is hyper sensitivety to touch and physical sensation in my body, which is also a symptom of TOCD, I dunno, curious to what your opinion would be? 😊

    • @ChronicAdvocate
      @ChronicAdvocate  7 місяців тому +1

      If you think you are Autistic then it is certainly worth looking into it further because people don't tend to suspect they're autistic unless they really are. Reading more about autism and taking online autism tests may help and if you are able to get one a formal autism assessment may be helpful - but do not let the doctors blame your Tourettic OCD on Autism as that leads to medical neglect (learnt that the hard way.)

    • @61SGman
      @61SGman 7 місяців тому

      @@ChronicAdvocateit doesn’t really effect me in a negative so I’m not to concerned about I just feel like I have traits that may suggest I have a little bit of it, I would love to DM you about Tourettic OCD, if you feel comfortable with that I feel like we could compare notes on a lot of different things, I posted a comment on this video about it also ua-cam.com/video/71C4SMBziFk/v-deo.htmlsi=WvQbr_f8tBn3UNcJ I did message you for advice on TOCD 18 months 2 years ago, but I’ve noticed you don’t have a Facebook page anymore as you’ve changed the name of your channel, let me know 🤷‍♂️ would love to talk to someone else that’s experienced TOCD their few and far between, thanks 😊

    • @Truerealism747
      @Truerealism747 5 місяців тому

      Sounds like spd

  • @Truerealism747
    @Truerealism747 5 місяців тому

    Ldn helps ocd and fatigue but not oain for me

  • @Truerealism747
    @Truerealism747 5 місяців тому

    Have you got fybromyalgia CFS in your family to lost my mum to severe ms obvously linked to autism heds as autism folk get more auto immune

    • @ChronicAdvocate
      @ChronicAdvocate  5 місяців тому

      You should look into Lyme - it can run in families (Congenital Lyme - Infection spread through placenta) and can cause symptoms identical to MS including brain lesions and is also often misdiagnosed as Fibromyalgia or ME. I have family members with traits of those things but it is all Lyme.

    • @Truerealism747
      @Truerealism747 5 місяців тому

      ​@@ChronicAdvocateArmen clinic the best? Some say it's all the autism causing neuroinflamtion do you have muscle pain it would have to be natural treatments for me as antibiotics make me highly depressed to