Thanks for sharing all your adventures because it really helps others. My son is a quadriplegic too, so I sent this too him. Neither one of us had heard of this pump. Keep the faith, Zack! 🌷🌷🌷
I had an epidural with my daughter's birth and afterwards, I had the absolute worst headache I could ever imagine. Like it was indescribable. The only relief was laying completely flat. That wasn't possible with a newborn. Finally they took blood from my neck and put int into my back and that made it better. I would not wish that headache on my absolute worst enemy! So I surely feel your pain! Glad you got the patch!
As someone has experienced leaking Spinal Fluid, I can definitely relate to the horrible headaches and constant vomiting from it. I'm hoping things are better by now for you!
I got the trial and the medicine worked immediately. The next day I had extreme headaches, vomiting, nausea, light sensitivity for 3 days. I had to go to the ER too. I had an IV, but they didn’t do the blood patch, they gave me a pain relief injection. The baclofen trial was the worse experience after my initial injury as well.
@@tyreebrownart same for my brother who had this. He was very poorly with headaches and nausea after, he had to go back into the hospital because he was feeling that bad they kept monitoring him even tho they said it was a usual side effect. The symptoms subsided eventually
Zack your personality, strength, patience, and outlook is so inspiring to me. Thank you for sharing. Wishing you and Bree and your families the best! You are incredible, love and aloha from Hawaii!!
I’m sorry you had such a hard time with your trial. I hope you’re able to move forward and get relief from the spasms. Thanks for sharing this video with us
Same thing happened to my husband after a spinal tap. A leak caused nausea, headache, vomiting, etc. He was advised by doctor to lie flat on his back for 8 hours in order for leak to seal. You are quite an inspiration Zack! Love that smile!!
I do not envy your hospital visit!! I've basically lived in the hospital on and off for about a year due to chemo finished up right before covid happened.... I'd have so much anxiety if I had to go into the hospital right now.... Bless you! I hope this procedure works for you!! Your such an inspiration!!
@@gracieshepardtothemax1743 you are too sweet!! I did kick cancers butt I'm cancer free so far! And we are definitely warriors!!! But so are the amazing nurses who helped us through!!
I am from France, I have spasticity in my legs due to a neurological disease, I will probably have a pump, I was afraid and anxious about it, but after seeing your video I feel better about it and I think I will do it, thanks man, you’re a real warrior, you are not alone, keep fighting 💪
I personally love my baclofen pump! The trial much different then having the pump. Make sure to research it a lot though but in my opinion it helps so much
I’m so, so sorry you had difficulties with the spinal fluid leakage. I can only imagine how uncomfortable and frustrated you were. I’ll look forward to see if you decide to go further with the Baclofen pump. As I said in your previous video, it was a game changer for my husband.🤙
I'm so sorry the experience was so horrible! Thank you for making the video to spread awareness to others that may be thinking about doing this, so they know what could possibly happen. Thank you for your vulnerability and honesty! Your attitude towards life is very encouraging and inspiring, thank you for being such an inspiration for me to be more positive, keep going and adapting with my health issues. Thank you for being such an amazing human! All my best wishes and much love!
Hey Zack, I have had a baclofen pump when I was 17, I am 30. I am still very happy with my choice at the time. I have to say, and at the beginning I also had the same complications after my trial period.
Hey Zach...hope the pump works well. Please keep checking in with your dr if you just feel wrong. I've known too many quads where the pump had issues years later. For myself, I was too scared to get a pump so instead been taking pills forever but all quads are different!
Thank you for this very informational video! I’m sorry that the medication didn’t work as you’d hoped, i can’t imagine how you must feel with all those side effects): I always appreciate your positive outlook in life even when times are challenging! Prayers❤️
So sorry you had to go through this. My family and I have you in our prayers every night and know that God has a plan for you. Ypu are a very strong and inspirational person and I know that nothing but greatness will come from you. Thank you for your videos and stay safe.
Hi Zack Thank you for sharing all positive thoughts and your experiences. God bless you 🙏 I am caregiver or CNA and I am taking care of Someone like you spinal injury for the first time so I watched your videos learn what do to and how to do things? Thank you again for sharing videos and take care yourself.
I don’t know where you are now in your journey but 3 months ago I had an intrathecal pump implanted after my pump trial this past Aug. I too had the bad headaches but not the vomiting. I was diagnosed with end stage Multiple Myeloma and deal with chronic lytic bone lesion pain and Non- specific connective tissue disease- chronic muscle spasms. I have 4 medications including Baclofen in my pump. This pump has been an extremely positive change in my life ( after 38 years of very high opioid drugs). I hope you followed through and have been successful.
Zack, long time fan of your videos! I hope you get feeling better. The things that you have been through suck, however you prove that it is possible. Keep up all you do. I think it would be cool if you did a video on a "life update" you mentioned career and school.
Rest up and take it easy Zach........we're all wishing you the absolute best! Godspeed Zach......you've got a great family supporting you and you'll be OK, you're certainly a warrior!!
Zack, I have had a Baclofen pump since November 2005. I am on my 3rd pump. Sorry you had a spinal headache and had to go through a blood patch. I have been through this myself. I hope you get as much quality of life as I have. I keep you in my thoughts and prayers.
My doctor brought this up about 24 years ago when I was nine after having a TBI. The greatest risk was not showing up for some 'maintenance' because they had to keep things in order, otherwise it would jeopardize my health. My Dad and I both disagreed. It was a good decision considering the pandemic now and I don't get many spasms unless doing something really strenuous. I hope your spasms will reduce.
Hi Zack, I hope you’re continuing to feel better with the patch. You’re in my thoughts and prayers as I’m new to your channel and trying to get caught up on your journey. I read recently that UCLA has a group testing different things to try to help spinal chord injuries. Also, there’s a group in Australia searching for ways to help.
I just cam across your channel! I have spina bifida and I went though the same trials. I went through with the pump and the catheder was in the wrong position so a corrective surgery caused a CSF leak for me as well. I had a tennis ball sized lump on my back filled with CSF for weeks, yeah with the same symptoms. The doctor said to just wait it out for the body to clear it. It was a rough time but it sorted itself out eventually and the whole healed
I wish you the best of luck with your decision either way, and hope that this helps with the spasms, because I cannot even imagine how exhausting and frustrating that must be to deal with constantly. A friend of mine had a complication with her baclofen pump for ALS and it malfunctioned and created a very, very dangerous situation for her. That was back in 2007, though, so hopefully the technology has improved since then. She lived alone at the time, too, which complicated her situation. Basically, if you do end up getting the pump and you feel like something is not right, don't hesitate to go to the ER immediately. I think she was using a Medtronic device at the time, an intrathecal baclofen pump that she had to get refilled regularly, but it gave her a lot of problems in her specific circumstance and in hindsight I don't know that it was the best option for her, though she didn't have a lot of other options available to her. I really look forward to seeing if this works to help curb your spasms.
Zack you are so amazing man, so brave and so inspirational. Thank you for everything. Ive been watch all your video, you has such positive self!! May god always beside you bless your day. Also wish your mom stay healthy, shes so incredible
Baclofen didn't work for me at first but they adjusted it and go to a very high dose and had to have it removed bc I was on a max level. So for 6 months I got botox injured into my hip flexers so my legs didn't come up in the bed like yours did! Keep on rolling my friend!
My brother had one of these bacloflen pumps when they were pretty recent. His spams were the most crazy things I’ve ever seen, like yours even like you literally a bump I’m the road would trigger the spams. He was always so chill about it but it really was excruciating to watch as a loved one, they were terrifYing, yall are so strong. But yes he had the pump and after several bumps in the road and a few infections, it all came together well in the end he personally is happy he had it and it helped him a lot
hola!! saludos desde España, se lo que son los espasmos, los he tenido tres años desde mi operación, yo tengo comprimidos los cordones medulares, en la C5 C6 y C7, (cervicales) me operaron en hospital universitario de "TORRE CARDENAS" Almería, España. yo soy casi autosuficiente, puedo conducir coches automáticos, ando con dificultad, pero no puedo limpiar, no puedo hacer esfuerzos, no puedo coger peso, no puedo nadar, no puedo hacer cosas que necesiten precisión por temblor de manos, tengo descontrol de esfínter, tengo hiper sensibilidad y perdida de equilibrio. ZACK, te deseo toda la fuerza del mundo, ¡ni un paso atrás! siempre adelante¡¡¡
I take baclofen due to an incomplete spinal cord injury (C3-5). I was told with a pump you use a much lower dose so some of the side effects of stare less. My spasms aren't as bad as yours though.
I’m a c5/6 Quad got my Baclofen Pump in January this year and it changed my life for the better! Transfers are easier and I can ride over uneven ground without tie downs 😅 My legs have gotten really skinny though 🙃
That is awesome to hear. Thanks for sharing your experience. With how crazy my spasms are I know it will be a game changer for me. How many micrograms are you getting? I do worry able my legs atrophying once I get the pump.
Your a very inspirational young man I think it's great you are doing these videos to help other parents/partners with dealing with day to day care of someone with a spinal cord injury looking forward to your next video. What are you studying at school? Do you think you will get your licence? Love from Australia
I had a trial and thankfully it helped my spasms. I was supposed to get the pump tomorrow, but I have an infection. 😕 I've had deep brain stimulation for Tourette's but he mentioned possibly getting another probe in the GPI. I'm a medical mess haha. I was wondering if DBS would be considered for SCI related spasms!?
Also, the headaches I definitely had!! It was horrible. I hope you're feeling better man sorry it went wrong!! I have Gastroparesis so I'm not sure if it made my nausea worse or better. I'm on feeds!
hello greetings I have no idea how I got to your channel but I want to tell you to keep going I was involved in a car accident and I broke the third vertebra in my neck and now I can't open my hands and I can't 'Walk and honestly what bothers me the most are the spasms because they don't let me sleep I'm taking baclofen and valium, go ahead God bless your life.
Iam a c6-c7 quad from Lebanon. Spasticity control my life. I cannot work well, I cannot transfer alone, nor sleeping well at night. I tried pills and nothing work. Briefly, i went to my doctor and told me that the pump will work for short time only and then i will get use to it and you will never get the results you want. He said to achieve you problem you should do a surgery called SDR ( Selective Dorsal Rhizotomy). What do you think about it ?? Zack you are a strong man as seen, hope you are doing good and much better. Keep it up and nice meeting you. George Koreh
I just came across your videos. Im not a quad but a Para and my spasticity isn't as bad as yours especially since mine only involves my lower body. I also noticed you said you maintain sensation. I don't know many paras or quads and don't know any locally but I also maintain most sensations but can't control my movements. I also have Ehlers Danlos Syndrone and a lot of the comorbidities including full spinal I stability so instead of having. An actual injury to sever my cord my vertebrae continuously shift and sublux so they will collide with my spinal cord again and again. The more sudden the jerk for example getting in a car accident vs turning to reach so something the harder my vertebrae sublux and hit the cord so I have always been awkward. My gym teachers in school always knew something neuromuscular was wrong with me but we couldn't convince any doctors to look I to it I until I got a new car which everyone swears is curses. I bought it used and my friends started joking saying someone died in it and it's Haunted because I was never in an accident at all until I got this new car and I got rear ended three times by three different people, all while stopped at a red light and two of the times stopped behind two or more other cars at the light for someone to plow into the back of my car. Three accidents in a year but I went from the clumsy kid who couldn't run it throw a ball past the two point line and fell a lot to develing a limp after the first accident to losing the about to even use forearm crutches by my third accident when no one else ever seemed go get hurt in these accidents not I finally got a diagnosis and found out I should have never rode roller coasters because they jerk you around so much and I loved roller coasters and road a ton when I was younger and should have avoided any kind of high impact sports and stuff like that. I did Tae-Kwon-do as a kid but basically over the years I had hundreds of subluxions that caused micro tears up and down my spinal cord so my cord is basically covered on scar tissue resulting in the paralisys. It's different but I too maintain a lot of sensation but always hear paras and quads say they don't feel anything below their injury. My sensation isn't perfect. I struggle with heat and cold and sometimes can't tell exactly how hot or cold something like a hot plate of food is if I put it on my lap until I lift it up and realized my legs are brunt bit I always notice before the burn gets too bad. The worset I've burnt myself it's causes some blistering like a really bad sun burn and I was prescribed some cream to put on it but noting that's causes any fill thickness burns or any perminant damage. As far as touch goes I can feel it when someone touches my foot or my legs when they pick me with needles the sensation is a little stronger in my upper legs than my lower legs but I can totally feel it. I was only incontinance for about 8 months total. I did bladder retraining and was able to control my bladder to some extent within about 2 weeks and by about the 2.5 month point I had blader urgency during the day so war depends of I left the house just in case and tried to go to only places where I knew where the bathroom was since I had like 5 minutes to get there but that improved. My biggest struggle was at night. It took I months to get to the point where I felt line I didn't need to wear depends to bed but I still put a chux and a waterproof mattress cover on it but only wet the bed three of four times after that and quit using the chix after I went 9 months without wetting the bed. I still keep that waterproof cover on it and probably always will not can control my bladder and bowels but your the first one I've heard who isn't a partial who has said they still have sensation. My PT suspects I actually don't have as much sensation as I think since spasms don't cause me a ton of pain, their just annoying. Three weeks ago he had me laying on my back and lifted my left leg straight up at a 90 degree angle to my body and then said "what the heck? I said what? He said relax your leg. You can bend your knee. I said I am relaxed. He the. Pulled the hand beyond my able away aid my leg was straight on the air and as as he totally let go my leg basically went into a full blown seizure line yours. He then said "oh crap I know what this is now. I'm so sorry just try to relax and breathe and he basicslly had to massage my leg and try to press on it to force my knee to bend very slowely, the whole time with my leg in this total full blown convulsion. Finally he got my heal onto the bed and had to basicslly wrap his upper arm with my knee basically in his arm pit forcing my knee down I to the table and scooting against me so my foot was I sat his thigh to it couldnt go straight again and had to just massage my leg until it quit jerking. It took a good two minted for him to get my knee to totally bend and about five to get my leg to stop jerking all together then he apologized saying he knows it hurt a lot and I said "no not really" he seemed really surpired since I maintain sensation but the spasm didn't cause agonizing pain. Sore it was uncomfortable but felt stiff more than anything. He said he suspects that the nerves that control deaper sensations like muscle sensations are more damages than the nerves that go my outer legs like the skin so I think I can feel more than I really do since I can feel skin sensations line touch. I have nerve pain in my legs too but as far as spasticity goes I've had him and my home infusion nurse both with how bad my spasticity is when it sets in o should be on agonizing pain but in not I just feel stiff like when you sleep on one position too long. I was just curious if you knew how that worked and how common it is to be able to feel sensation but not have control of your legs. Also when you were laying on the bed and you pulled your knees up to your chest did you have any control over that or was it totally involuntary? Most the people I've met on support groups on Facebook and such are either Flasid paras or quads or partials and I feel like I don't really fit into any real category since my paralisys is ultimatly caused by a disease more than some catastrophic injury. With my spine the way it is someone could hit a pothole wrong and cause further injury to my spinal cord so it's like Im stick in this super fragile body.
Hello! I’ve had my Baclofen pump for 17 years of the 19 years I’ve been confined to a wheelchair. Initially I had the same sentiments that it wasn’t getting the job done. After a discussion with my doctor, a decision was made to increase the dosage level. With the increase I have been able to live a life of free of spasm, with the exception of minor spasm. I’m now able to work (full time) with no fear of my legs going ballistic. I highly recommend the pump. It’s without a doubt life changing. Moreover, it does not complicate your everyday activities. The only time I realize it’s there is when I wear a belt. They have evolved since my initial pump to a significantly smaller version. I wear my shirt tucked in for the most part and it’s hardly even noticeable. Skinny legs though😂😂 but hey, I’ll take the skinny legs over the spasms any day!
Thankyou for sharing your health journey with us im on bacfone tablets but has not stopped my spams im going to ask my dr about this pump Thankyou so much for sharing i have ms wheelchair bond I get spams in my arms legs and back there not nice at all I just click the join button so I can see your posts thankyou xx💕💕💕💕💕
I take baclofen for my spine after accident. Its hard to accept I am disabled and can no longer do pretty much any of the things I used to do, rec activities, sports. Hiking. Car Rolled like 5 times and I was ejected out the sunroof. Don’t text and drive and wear a seatbelt everyone. I wish I did. But to late now
This dude has such a positive spirit. I wish the people I hang around were as positive about life as he is.👍
Facts
Thank you! (:
This dude has such a positive spirt l wish the people l hang around were as positive about life as he is love Mach you you Mach
Thank you for saying such a positive message
just pray...God is good all the time!
Thanks for sharing all your adventures because it really helps others. My son is a quadriplegic too, so I sent this too him. Neither one of us had heard of this pump. Keep the faith, Zack! 🌷🌷🌷
Thank you Zack for sharing your life, your struggles, your positivity in the face of adversity. You are, without doubt, a hero!
You are one courageous and tough young man. Stay strong and I will wait for another video by you Zack.
I had an epidural with my daughter's birth and afterwards, I had the absolute worst headache I could ever imagine. Like it was indescribable. The only relief was laying completely flat. That wasn't possible with a newborn. Finally they took blood from my neck and put int into my back and that made it better. I would not wish that headache on my absolute worst enemy! So I surely feel your pain! Glad you got the patch!
Pp00
😅
As someone has experienced leaking Spinal Fluid, I can definitely relate to the horrible headaches and constant vomiting from it. I'm hoping things are better by now for you!
I got the trial and the medicine worked immediately. The next day I had extreme headaches, vomiting, nausea, light sensitivity for 3 days. I had to go to the ER too. I had an IV, but they didn’t do the blood patch, they gave me a pain relief injection. The baclofen trial was the worse experience after my initial injury as well.
@@tyreebrownart same for my brother who had this. He was very poorly with headaches and nausea after, he had to go back into the hospital because he was feeling that bad they kept monitoring him even tho they said it was a usual side effect. The symptoms subsided eventually
I really admire your commitment and dedication to vlogging. You continue even when you are seriously ill. Thanks for sharing.
Zack your personality, strength, patience, and outlook is so inspiring to me. Thank you for sharing. Wishing you and Bree and your families the best! You are incredible, love and aloha from Hawaii!!
Aloha!(: Thank you so much!
Zack you are such an amazing Being.. May God continue to be with U....
I’m sorry you had such a hard time with your trial. I hope you’re able to move forward and get relief from the spasms. Thanks for sharing this video with us
Same thing happened to my husband after a spinal tap. A leak caused nausea, headache, vomiting, etc. He was advised by doctor to lie flat on his back for 8 hours in order for leak to seal.
You are quite an inspiration Zack! Love that smile!!
I do not envy your hospital visit!! I've basically lived in the hospital on and off for about a year due to chemo finished up right before covid happened.... I'd have so much anxiety if I had to go into the hospital right now.... Bless you! I hope this procedure works for you!! Your such an inspiration!!
I hope your your healthy, happy and safe now. I hope you kicked cancers butt! I too have spent a portion of my life in hospital. Makes us warriors!
@@gracieshepardtothemax1743 you are too sweet!! I did kick cancers butt I'm cancer free so far! And we are definitely warriors!!! But so are the amazing nurses who helped us through!!
What an ordeal! I hope you’re completely better now!
Thank you for posting and being so real, I've had two pumps in my life and both failed so I got it taken out. Keep the positivity!!!
Zack, sempre torcendo por você.
Just want to say a big thank you for sharing your journey with us. Please take care! Hope you feel better soon Zack!! :) Will keep you in prayers!
I am from France, I have spasticity in my legs due to a neurological disease, I will probably have a pump, I was afraid and anxious about it, but after seeing your video I feel better about it and I think I will do it, thanks man, you’re a real warrior, you are not alone, keep fighting 💪
I hope you feel better soon. 🙏🏻
I personally love my baclofen pump! The trial much different then having the pump. Make sure to research it a lot though but in my opinion it helps so much
Your courage is amazing, man. God be with you.
I’m so, so sorry you had difficulties with the spinal fluid leakage. I can only imagine how uncomfortable and frustrated you were. I’ll look forward to see if you decide to go further with the Baclofen pump. As I said in your previous video, it was a game changer for my husband.🤙
H I 9y
Praying for you Zack that it all works well and you are soon feeling much better... Nam-Myoho-Renge-Kyo.
Скорішого виздоровлення, молодчинка що не падаєш духом.
You’re amazing. I’m so sorry you went through that. Take care. ❤️
I'm so sorry the experience was so horrible! Thank you for making the video to spread awareness to others that may be thinking about doing this, so they know what could possibly happen.
Thank you for your vulnerability and honesty! Your attitude towards life is very encouraging and inspiring, thank you for being such an inspiration for me to be more positive, keep going and adapting with my health issues. Thank you for being such an amazing human! All my best wishes and much love!
Hey Zack, I have had a baclofen pump when I was 17, I am 30. I am still very happy with my choice at the time. I have to say, and at the beginning I also had the same complications after my trial period.
Hey Zach...hope the pump works well. Please keep checking in with your dr if you just feel wrong. I've known too many quads where the pump had issues years later. For myself, I was too scared to get a pump so instead been taking pills forever but all quads are different!
Bless you and thank you for sharing and educating everyone! You're spirit is incredible :)
Thank you for this very informational video! I’m sorry that the medication didn’t work as you’d hoped, i can’t imagine how you must feel with all those side effects): I always appreciate your positive outlook in life even when times are challenging! Prayers❤️
اتمنى لك الشفاء ووالحياة السعيده
So sorry you had to go through this. My family and I have you in our prayers every night and know that God has a plan for you. Ypu are a very strong and inspirational person and I know that nothing but greatness will come from you. Thank you for your videos and stay safe.
Thank you so much!
Hi Zack Thank you for sharing all positive thoughts and your experiences. God bless you 🙏 I am caregiver or CNA and I am taking care of Someone like you spinal injury for the first time so I watched your videos learn what do to and how to do things?
Thank you again for sharing videos and take care yourself.
Excellent video Zack, thanks for posting, much appreciated. Love your channel bro. You rock the world. A+
Pray for you I hope you feel better 🙏
you are stronger than many . God bless you .
Hope you are feeling better....
Your are a brave young man, take care and keep up the good work!!!
Warrior! Keep on the path my friend. Feel horrible that you were feeling so bad.
Bro, ur a hero! May god bless u
I don’t know where you are now in your journey but 3 months ago I had an intrathecal pump implanted after my pump trial this past Aug. I too had the bad headaches but not the vomiting. I was diagnosed with end stage Multiple Myeloma and deal with chronic lytic bone lesion pain and Non- specific connective tissue disease- chronic muscle spasms. I have 4 medications including Baclofen in my pump. This pump has been an extremely positive change in my life ( after 38 years of very high opioid drugs). I hope you followed through and have been successful.
Zack, long time fan of your videos! I hope you get feeling better. The things that you have been through suck, however you prove that it is possible. Keep up all you do. I think it would be cool if you did a video on a "life update" you mentioned career and school.
Rest up and take it easy Zach........we're all wishing you the absolute best! Godspeed Zach......you've got a great family supporting you and you'll be OK, you're certainly a warrior!!
I appreciate that! Thank you. Feeling much better now
Thank you young man.i saw your video to watch .is verry difucult your inness.thank for sharing your life.
You are so positive glad you feel better hope everything works out for you really do
God bless always 🙏🏻
You’ve been thru so much and you’re such an inspiration to all 💕
You are a warrior Jack!
Zack, I have had a Baclofen pump since November 2005. I am on my 3rd pump. Sorry you had a spinal headache and had to go through a blood patch. I have been through this myself. I hope you get as much quality of life as I have. I keep you in my thoughts and prayers.
My doctor brought this up about 24 years ago when I was nine after having a TBI. The greatest risk was not showing up for some 'maintenance' because they had to keep things in order, otherwise it would jeopardize my health. My Dad and I both disagreed. It was a good decision considering the pandemic now and I don't get many spasms unless doing something really strenuous.
I hope your spasms will reduce.
Hi Zack, I hope you’re continuing to feel better with the patch. You’re in my thoughts and prayers as I’m new to your channel and trying to get caught up on your journey. I read recently that UCLA has a group testing different things to try to help spinal chord injuries. Also, there’s a group in Australia searching for ways to help.
I just cam across your channel! I have spina bifida and I went though the same trials. I went through with the pump and the catheder was in the wrong position so a corrective surgery caused a CSF leak for me as well. I had a tennis ball sized lump on my back filled with CSF for weeks, yeah with the same symptoms. The doctor said to just wait it out for the body to clear it. It was a rough time but it sorted itself out eventually and the whole healed
You're a trooper Zack! I'm hoping everything goes well with the Baclofen
He is a person with very high spirit
Hello Jack
Good job Zack u are so brave
I wish you the best of luck with your decision either way, and hope that this helps with the spasms, because I cannot even imagine how exhausting and frustrating that must be to deal with constantly. A friend of mine had a complication with her baclofen pump for ALS and it malfunctioned and created a very, very dangerous situation for her. That was back in 2007, though, so hopefully the technology has improved since then. She lived alone at the time, too, which complicated her situation. Basically, if you do end up getting the pump and you feel like something is not right, don't hesitate to go to the ER immediately. I think she was using a Medtronic device at the time, an intrathecal baclofen pump that she had to get refilled regularly, but it gave her a lot of problems in her specific circumstance and in hindsight I don't know that it was the best option for her, though she didn't have a lot of other options available to her. I really look forward to seeing if this works to help curb your spasms.
I'm sorry that you had side effects from the med hope that you can find something to help you better in life you are a true sport
Hey there 👋 👋 thanks for the update video. And please take care.
Good Luck to you Zack!🙏🏻🙏🏻❤️🙏🏻❤️❤️🙏🏻🙏🏻
Zack you are so amazing man, so brave and so inspirational. Thank you for everything. Ive been watch all your video, you has such positive self!! May god always beside you bless your day. Also wish your mom stay healthy, shes so incredible
Love your videos. Lots of love from Finland
You are amazing Zach.
Você. E. Maravilhoso. E. Tem. Muita. Força. De. Vontade. Parabéns.
Baclofen didn't work for me at first but they adjusted it and go to a very high dose and had to have it removed bc I was on a max level. So for 6 months I got botox injured into my hip flexers so my legs didn't come up in the bed like yours did! Keep on rolling my friend!
Stay strong! Good Vibes!
I pray you feel better!!🙏🏽😇
You are an amazing and smart young man. So inspiring.
Love from india say big hi to your mom shes very strong and kindfull person i hope yo will be heal soon god bless you bro keep going it
My brother had one of these bacloflen pumps when they were pretty recent. His spams were the most crazy things I’ve ever seen, like yours even like you literally a bump I’m the road would trigger the spams. He was always so chill about it but it really was excruciating to watch as a loved one, they were terrifYing, yall are so strong. But yes he had the pump and after several bumps in the road and a few infections, it all came together well in the end he personally is happy he had it and it helped him a lot
Those things hurt.........Thank you Zach so much for sharing..
hola!! saludos desde España, se lo que son los espasmos, los he tenido tres años desde mi operación, yo tengo comprimidos los cordones medulares, en la C5 C6 y C7, (cervicales) me operaron en hospital universitario de "TORRE CARDENAS" Almería, España. yo soy casi autosuficiente, puedo conducir coches automáticos, ando con dificultad, pero no puedo limpiar, no puedo hacer esfuerzos, no puedo coger peso, no puedo nadar, no puedo hacer cosas que necesiten precisión por temblor de manos, tengo descontrol de esfínter, tengo hiper sensibilidad y perdida de equilibrio. ZACK, te deseo toda la fuerza del mundo, ¡ni un paso atrás! siempre adelante¡¡¡
He is an amazing guy.
Good luck my man I hope youre doing well
I take baclofen due to an incomplete spinal cord injury (C3-5). I was told with a pump you use a much lower dose so some of the side effects of stare less. My spasms aren't as bad as yours though.
Hope all goes well..Thinking of you dude 👍
Zack I feel like I know you. You are Amazing 🤩 Happy your feeling better take care my friend 😴
Parabéns. Você. Merece. Tudo. De bom. Deus. Que. Te. Abençoe.
Hello from British Columbia,Canada 🇨🇦
Hi thanks for sharing. Wishing you the best💜
Hi...my friend was just injured in a motorcycle accident and I would like your expertise advice. Your spirit is very inspiring. Can I email you?
Glad you are ok!
I’m a c5/6 Quad
got my Baclofen Pump in January this year and it changed my life for the better! Transfers are easier and I can ride over uneven ground without tie downs 😅
My legs have gotten really skinny though 🙃
That is awesome to hear. Thanks for sharing your experience. With how crazy my spasms are I know it will be a game changer for me. How many micrograms are you getting? I do worry able my legs atrophying once I get the pump.
The legs getting skinny comes with being in a chair.. I have had the skinny legs for 25 yrs
77 uy y8i k j ou r er
Feel better soon.
Your a very inspirational young man I think it's great you are doing these videos to help other parents/partners with dealing with day to day care of someone with a spinal cord injury looking forward to your next video. What are you studying at school? Do you think you will get your licence? Love from Australia
Your a beast brother god bless
I had a trial and thankfully it helped my spasms. I was supposed to get the pump tomorrow, but I have an infection. 😕 I've had deep brain stimulation for Tourette's but he mentioned possibly getting another probe in the GPI. I'm a medical mess haha. I was wondering if DBS would be considered for SCI related spasms!?
Also, the headaches I definitely had!! It was horrible. I hope you're feeling better man sorry it went wrong!! I have Gastroparesis so I'm not sure if it made my nausea worse or better. I'm on feeds!
God bless zack you are a great warrior 👍🤗💖
Wow you are so positive
hello greetings I have no idea how I got to your channel but I want to tell you to keep going I was involved in a car accident and I broke the third vertebra in my neck and now I can't open my hands and I can't 'Walk and honestly what bothers me the most are the spasms because they don't let me sleep I'm taking baclofen and valium, go ahead God bless your life.
Iam a c6-c7 quad from Lebanon. Spasticity control my life. I cannot work well, I cannot transfer alone, nor sleeping well at night. I tried pills and nothing work. Briefly, i went to my doctor and told me that the pump will work for short time only and then i will get use to it and you will never get the results you want. He said to achieve you problem you should do a surgery called SDR ( Selective Dorsal Rhizotomy). What do you think about it ?? Zack you are a strong man as seen, hope you are doing good and much better. Keep it up and nice meeting you.
George Koreh
I just came across your videos. Im not a quad but a Para and my spasticity isn't as bad as yours especially since mine only involves my lower body. I also noticed you said you maintain sensation. I don't know many paras or quads and don't know any locally but I also maintain most sensations but can't control my movements. I also have Ehlers Danlos Syndrone and a lot of the comorbidities including full spinal I stability so instead of having. An actual injury to sever my cord my vertebrae continuously shift and sublux so they will collide with my spinal cord again and again. The more sudden the jerk for example getting in a car accident vs turning to reach so something the harder my vertebrae sublux and hit the cord so I have always been awkward. My gym teachers in school always knew something neuromuscular was wrong with me but we couldn't convince any doctors to look I to it I until I got a new car which everyone swears is curses. I bought it used and my friends started joking saying someone died in it and it's Haunted because I was never in an accident at all until I got this new car and I got rear ended three times by three different people, all while stopped at a red light and two of the times stopped behind two or more other cars at the light for someone to plow into the back of my car. Three accidents in a year but I went from the clumsy kid who couldn't run it throw a ball past the two point line and fell a lot to develing a limp after the first accident to losing the about to even use forearm crutches by my third accident when no one else ever seemed go get hurt in these accidents not I finally got a diagnosis and found out I should have never rode roller coasters because they jerk you around so much and I loved roller coasters and road a ton when I was younger and should have avoided any kind of high impact sports and stuff like that. I did Tae-Kwon-do as a kid but basically over the years I had hundreds of subluxions that caused micro tears up and down my spinal cord so my cord is basically covered on scar tissue resulting in the paralisys. It's different but I too maintain a lot of sensation but always hear paras and quads say they don't feel anything below their injury. My sensation isn't perfect. I struggle with heat and cold and sometimes can't tell exactly how hot or cold something like a hot plate of food is if I put it on my lap until I lift it up and realized my legs are brunt bit I always notice before the burn gets too bad. The worset I've burnt myself it's causes some blistering like a really bad sun burn and I was prescribed some cream to put on it but noting that's causes any fill thickness burns or any perminant damage. As far as touch goes I can feel it when someone touches my foot or my legs when they pick me with needles the sensation is a little stronger in my upper legs than my lower legs but I can totally feel it. I was only incontinance for about 8 months total. I did bladder retraining and was able to control my bladder to some extent within about 2 weeks and by about the 2.5 month point I had blader urgency during the day so war depends of I left the house just in case and tried to go to only places where I knew where the bathroom was since I had like 5 minutes to get there but that improved. My biggest struggle was at night. It took I months to get to the point where I felt line I didn't need to wear depends to bed but I still put a chux and a waterproof mattress cover on it but only wet the bed three of four times after that and quit using the chix after I went 9 months without wetting the bed. I still keep that waterproof cover on it and probably always will not can control my bladder and bowels but your the first one I've heard who isn't a partial who has said they still have sensation. My PT suspects I actually don't have as much sensation as I think since spasms don't cause me a ton of pain, their just annoying. Three weeks ago he had me laying on my back and lifted my left leg straight up at a 90 degree angle to my body and then said "what the heck? I said what? He said relax your leg. You can bend your knee. I said I am relaxed. He the. Pulled the hand beyond my able away aid my leg was straight on the air and as as he totally let go my leg basically went into a full blown seizure line yours. He then said "oh crap I know what this is now. I'm so sorry just try to relax and breathe and he basicslly had to massage my leg and try to press on it to force my knee to bend very slowely, the whole time with my leg in this total full blown convulsion. Finally he got my heal onto the bed and had to basicslly wrap his upper arm with my knee basically in his arm pit forcing my knee down I to the table and scooting against me so my foot was I sat his thigh to it couldnt go straight again and had to just massage my leg until it quit jerking. It took a good two minted for him to get my knee to totally bend and about five to get my leg to stop jerking all together then he apologized saying he knows it hurt a lot and I said "no not really" he seemed really surpired since I maintain sensation but the spasm didn't cause agonizing pain. Sore it was uncomfortable but felt stiff more than anything. He said he suspects that the nerves that control deaper sensations like muscle sensations are more damages than the nerves that go my outer legs like the skin so I think I can feel more than I really do since I can feel skin sensations line touch. I have nerve pain in my legs too but as far as spasticity goes I've had him and my home infusion nurse both with how bad my spasticity is when it sets in o should be on agonizing pain but in not I just feel stiff like when you sleep on one position too long. I was just curious if you knew how that worked and how common it is to be able to feel sensation but not have control of your legs. Also when you were laying on the bed and you pulled your knees up to your chest did you have any control over that or was it totally involuntary? Most the people I've met on support groups on Facebook and such are either Flasid paras or quads or partials and I feel like I don't really fit into any real category since my paralisys is ultimatly caused by a disease more than some catastrophic injury. With my spine the way it is someone could hit a pothole wrong and cause further injury to my spinal cord so it's like Im stick in this super fragile body.
Thanks for this!
😍❤Deus abençoe vocês sempre 😊
Hello! I’ve had my Baclofen pump for 17 years of the 19 years I’ve been confined to a wheelchair. Initially I had the same sentiments that it wasn’t getting the job done. After a discussion with my doctor, a decision was made to increase the dosage level. With the increase I have been able to live a life of free of spasm, with the exception of minor spasm.
I’m now able to work (full time) with no fear of my legs going ballistic. I highly recommend the pump. It’s without a doubt life changing. Moreover, it does not complicate your everyday activities. The only time I realize it’s there is when I wear a belt. They have evolved since my initial pump to a significantly smaller version. I wear my shirt tucked in for the most part and it’s hardly even noticeable.
Skinny legs though😂😂 but hey, I’ll take the skinny legs over the spasms any day!
Indeed I have had my skinny legs for 25 years and I am glad I have them...... I still get spasms but I live with them....
I hope your experience will improve or has improved already.
praying for u!
Thankyou for sharing your health journey with us im on bacfone tablets but has not stopped my spams im going to ask my dr about this pump Thankyou so much for sharing i have ms wheelchair bond I get spams in my arms legs and back there not nice at all I just click the join button so I can see your posts thankyou xx💕💕💕💕💕
I take baclofen for my spine after accident.
Its hard to accept I am disabled and can no longer do pretty much any of the things I used to do, rec activities, sports. Hiking.
Car Rolled like 5 times and I was ejected out the sunroof.
Don’t text and drive and wear a seatbelt everyone.
I wish I did. But to late now
God bless you ! 🙏
Yesterday I couldn’t get out of my moms bed and I could not sleep at all how are you feeling
How are you feeling merry Christmas
OMG I can believe it took them that long to do the blood patch. I knew right away what needed to be done. Who took you to the hospital? Bree?
Yeah she drove me
Tetap semangat zack collie..
Que Deus abençoe grandemente sua vida
Amo seus vídeos e torço muito por você 😍❤️