I’m 23 and have been on oral baclofen since I was 14, I’ve suffered with serve leg spasms all my life and they where getting progressively worse where a spasms would last 2 weeks and make me unable to move. I’m 3 weeks post op and cannot begin to tell you how grateful I am that I had the pump fitted. My legs no longer constantly want to spasm and I have not had one spasm since having the pump. Cannot recommend enough! Ask any questions
@@IAMKPEACE I have suffered with really bad leg spasms since I was 2 1/2 years old. Due to being born premature. My leg spasms would last upto two weeks and would make me unable to move. Now I’m not on any of the medications I was in previously, just the pump. Best wishes, Alex
I have a pump. It changed my Life, I have had 3 pump failures that were nightmares and always a worry that it can happen again. I still would hate to be without my pump. I have chronic pain due to a spinal injury. Thanks to Doctor Perry at Cedar Sinai who did a 5 level lower lumbar fusion, ALIF, PLIF 360 removed my disk and put spacers in. I can walk now. I am Unable to use Baclofen due to side effects, but get my pain meds through my pump. If you are considering getting a pump, I would highly recommend that you do.
@@andreyyakunin3114 The first failure, the line that goes into my back came out somehow. In the second failure, the pump just stopped working. In the third failure, the battery had died faster than expected. It had been in for over five years. When a pump stops working, I become very sick with withdrawals. It is horrible horrible feeling with extreme pain. I have Fentanyl and Bupivacaine at a very high dosage in my pump. When a pump fails, there is an alarm that goes off every few minutes. The first time this happened, my wife and I would hear this chirp, thinking it was a dead battery in one of the fire alarms. We checked all the fire alarm batteries, and they were good. I then realized the noise was coming from inside me. I don't remember the Medtronic rep telling me about the alarm. This alarm sounds until the pump is replaced. You are not only feeling horrible, you have this alarm to remind you every few minutes. The only good thing as a result of these failures, is I can lower my medication. You build up a tolerance to opiates over time. Over time, the medication can be raised again over time. Medtronic has supposedly fixed the problems. The pump I have now has been in for about four and half years. I don't want to dissuade anyone from getting an intrathecal pump. It has made life tolerable in helping with the chronic pain. I hope this helps answer your questions, and you find help with your pain.
I am on oral Baclofen. While it lessens my spasms it does not eliminate them. My doctor suggested I try THC. My spasm are only bad at night. I take THC oil 2 hours before bedtime. I initially I was scared to take it. You know the just say no campaign. But it as a godsend. You do get stoned but I go to bed and I sleep until morning. I was initially sceptical but I talked to other doctors and they agree that it was a legitimate approach. Travel is a bit of a problem
@@JDMvids1105 Indica, but they tell me most oils are now hybrids. I take baclofen at night (9:00). I take oil at (10:00). Strange but it is cheaper to buy it at a Canabis store than buy the medical oil at a Pharmacy. My doctor says that it is the same product. My health car coverage will not pay for it. I don’t take baclofen in the daytime. It would just make me a zombie all day.
The pump can be life changing for some and a complete hassle for others. It’s important to talk about the pros and cons with your doctor. Very important to ask what can go wrong, sometimes they don’t tell you everything unless you ask. Best of luck my friend!
I’m 23 and have been on oral baclofen since I was 14, I’ve suffered with serve leg spasms all my life and they where getting progressively worse where a spasms would last 2 weeks and make me unable to move. I’m 3 weeks post op and cannot begin to tell you how grateful I am that I had the pump fitted. My legs no longer constantly want to spasm and I have not had one spasm since having the pump. Cannot recommend enough! Ask any questions
I’m 23 and have been on oral baclofen since I was 14, I’ve suffered with serve leg spasms all my life and they where getting progressively worse where a spasms would last 2 weeks and make me unable to move. I’m 3 weeks post op and cannot begin to tell you how grateful I am that I had the pump fitted. My legs no longer constantly want to spasm and I have not had one spasm since having the pump. Cannot recommend enough! Ask any questions
Hi please help me by answering what pump?
@@daphnepierre6246 Intrathecal Baclofen Pump. Has changed my life ❤️
@@alexopinionchannel9783 Thanks for sharing this information
What's up glad the pump is working for you but why did you start using baclofen at 14 in the first place
@@IAMKPEACE I have suffered with really bad leg spasms since I was 2 1/2 years old. Due to being born premature. My leg spasms would last upto two weeks and would make me unable to move. Now I’m not on any of the medications I was in previously, just the pump.
Best wishes,
Alex
I have a pump. It changed my Life, I have had 3 pump failures that were nightmares and always a worry that it can happen again. I still would hate to be without my pump. I have chronic pain due to a spinal injury. Thanks to Doctor Perry at Cedar Sinai who did a 5 level lower lumbar fusion, ALIF, PLIF 360 removed my disk and put spacers in. I can walk now. I am Unable to use Baclofen due to side effects, but get my pain meds through my pump. If you are considering getting a pump, I would highly recommend that you do.
When you said you have three pump failures, what do you mean?
@@andreyyakunin3114 The first failure, the line that goes into my back came out somehow. In the second failure, the pump just stopped working. In the third failure, the battery had died faster than expected. It had been in for over five years. When a pump stops working, I become very sick with withdrawals. It is horrible horrible feeling with extreme pain. I have Fentanyl and Bupivacaine at a very high dosage in my pump. When a pump fails, there is an alarm that goes off every few minutes. The first time this happened, my wife and I would hear this chirp, thinking it was a dead battery in one of the fire alarms. We checked all the fire alarm batteries, and they were good. I then realized the noise was coming from inside me. I don't remember the Medtronic rep telling me about the alarm. This alarm sounds until the pump is replaced. You are not only feeling horrible, you have this alarm to remind you every few minutes. The only good thing as a result of these failures, is I can lower my medication. You build up a tolerance to opiates over time. Over time, the medication can be raised again over time. Medtronic has supposedly fixed the problems. The pump I have now has been in for about four and half years. I don't want to dissuade anyone from getting an intrathecal pump. It has made life tolerable in helping with the chronic pain. I hope this helps answer your questions, and you find help with your pain.
KEEP DOING THE GOOD WORK... CHEERS!!!
Thanks so much for posting this 🖤 deff sounds like a less scary medication after watching this 🖤🖤
I am on oral Baclofen. While it lessens my spasms it does not eliminate them. My doctor suggested I try THC. My spasm are only bad at night. I take THC oil 2 hours before bedtime. I initially I was scared to take it. You know the just say no campaign. But it as a godsend. You do get stoned but I go to bed and I sleep until morning. I was initially sceptical but I talked to other doctors and they agree that it was a legitimate approach. Travel is a bit of a problem
Is it an Indica or sativa strain that helps? Do you use baclofen during the day and the thc at night?
@@JDMvids1105 Indica, but they tell me most oils are now hybrids. I take baclofen at night (9:00). I take oil at (10:00). Strange but it is cheaper to buy it at a Canabis store than buy the medical oil at a Pharmacy. My doctor says that it is the same product. My health car coverage will not pay for it. I don’t take baclofen in the daytime. It would just make me a zombie all day.
Thanks for this video❤
Thank you
Plz give me answer in my question? Is baclofen infusion can give I.V or I.M ...or not.
I'm a quadriplegic on 50mg of baclofen and I still get spasms. I'm scared to get the pump. As well as having to go get a refill every 6 months.
The pump can be life changing for some and a complete hassle for others. It’s important to talk about the pros and cons with your doctor. Very important to ask what can go wrong, sometimes they don’t tell you everything unless you ask. Best of luck my friend!
I’m 23 and have been on oral baclofen since I was 14, I’ve suffered with serve leg spasms all my life and they where getting progressively worse where a spasms would last 2 weeks and make me unable to move. I’m 3 weeks post op and cannot begin to tell you how grateful I am that I had the pump fitted. My legs no longer constantly want to spasm and I have not had one spasm since having the pump. Cannot recommend enough! Ask any questions
Any one here getting benefit of this medication in parkinson disease?