Protopic Withdrawal: A Personal Story | Dominika O'Sullivan

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  • Опубліковано 5 жов 2024
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    Complete Transcript: www.skinterrup...
    It can be helpful to hear from others going through the same struggle or journey as you. My guest today shares her powerful story of determination and never giving up on finding the root cause for her rashes which started in childhood.
    Today's guest is Dominika O'Sullivan, a former city girl thriving in the beautiful West of Ireland and transitioning to countryside living. She is a lifelong eczema warrior and Protopic withdrawal sufferer who was failed by several medical, skin and alternative medicine professionals and is currently discovering and addressing her root causes of the original condition while happily witnessing symptoms reduction and disappearance. Professionally, Dominika is a Human Resources and employment law consultant working with businesses and assisting employers in identifying simple solutions to complex people challenges.
    For those who are not familiar with Protopic - it's a non-steroidal immunosuppressant drug also called Tacrolimus.
    SHOW NOTES:
    • Dominika's journey of childhood to adulthood eczema + Protopic Withdrawal
    • The many treatments she tried (both natural + conventional)
    • What was the turning point for her?
    • Where Dominika applied Protopic
    • What has changed since working with Jen's practice
    • Dominika's advice to others struggling with Protopic Withdrawal
    LINKS DISCUSSED IN THIS EPISODE:
    • Follow Dominika on Instagram here- www.instagram....
    (Please note she can pick up messages but doesn't post.)
    • TSW Podcast with Jennifer Fugo, MS, CNS interview mentioned by Dominika- thetswpodcast....
    • Book an assessment session with Jen's clinical practice here- www.skinterrup...
    _________________
    ABOUT JENNIFER FUGO, MS, CNS:
    Jennifer Fugo, MS, LDN, CNS is a clinical nutritionist empowering women who’ve been failed by conventional medicine to beat chronic skin and unending gut challenges. Because she’s overcome a long history of gut issues and eczema, Jennifer has empathy and insight to help her clients discover missing pieces and create doable integrative plans.
    She holds a Master’s degree in Human Nutrition from the University of Bridgeport and is a Licensed Dietitian-Nutritionist and Certified Nutrition Specialist. Her work has been featured on Dr. Oz, Reuters, Yahoo!, CNN, and many podcasts and summits. Jennifer is a faculty member of the LearnSkin platform, an Amazon best-selling author, and the host of the Healthy Skin Show.
    FREE eGUIDE: Are you ready to identify the hidden root causes triggering your chronic skin rashes? Download my Skin Rash Root Cause Finder to get started: www.skinterrup...
    _________________
    Hang Out + Learn With Me...
    Instagram • / jenniferfugo
    Facebook • / glutenfreeschool
    Twitter • / jenniferfugo
    Tiktok • vm.tiktok.com/...
    Blog • www.skinterrup...
    Shop • www.quellshop.com
    Listen to The Healthy Skin Show podcast here:
    Direct link • www.skinterrup...
    iTunes • www.skinterrup...
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    DISCLAIMER: Jennifer Fugo is a clinical nutritionist who offers health, wellness and nutritional information for educational purposes only. You should not rely on this information as a substitute for, nor does it replace professional medical advice, diagnosis, or treatment. It also does not create a client-practitioner relationship between yourself + Jennifer. If you have any concerns or questions about your health, you should consult with a physician or other health care professional first before making any changes. Do not disregard, avoid, or delay obtaining medical or health-related advice because of something you may have seen in these videos.
    NOTE: This description may contain affiliate links that allow you to easily find the items discussed in this video that support my channel at no cost to you. While this channel may earn minimal sums when you use the links, you (the viewer) are in NO WAY obligated to use these links. Either way, I appreciate you for your support!
    #TSW #Tacrolimus #Protopic

КОМЕНТАРІ • 26

  • @jenfugo
    @jenfugo  Рік тому +3

    Hope you enjoyed this episode! I'd love to hear what you thought. Leave your comments + questions below :)
    And if you want more information on this topic, check this out →
    Biologics - www.skinterrupt.com/?s=biologics

  • @theresaavitabile2809
    @theresaavitabile2809 Рік тому +2

    Great episode which has hit so close to my heart and my life as I also am going through ProTopic withdrawal. Thank you!

    • @jenfugo
      @jenfugo  Рік тому

      I'm sorry to hear you're going through that. How long were you using protopic for?

    • @theresaavitabile2809
      @theresaavitabile2809 Рік тому

      @@jenfugo i used only for 9 months. 😫

  • @georgiajoeb
    @georgiajoeb Рік тому +2

    coming across this video has helped me so much mentally, i have all the symptoms of withdrawal from protopic/steroid after using both over the years and this video has brought me into to the light after being told my all over body rash was just eczema and to treat it with more steroids. thank you so much for this

    • @jenfugo
      @jenfugo  Рік тому

      You're welcome! I'm sorry to hear that you're going through this. How long were you using protopic for?

    • @georgiajoeb
      @georgiajoeb Рік тому

      @@jenfugo been using it since april but sparingly, however stopped as my eczema cleared up, then went into full blown red rash for a few months which has seemed to move around my body mixed with other symptoms of tsw, with no help and not much evidence online about protopic withdrawal its been a nightmare!

  • @angelajaramillo
    @angelajaramillo Рік тому +5

    I’ve stopped the use of Protopic and my face looks really terrible . I have pain around my mouth and eyes … so I feel really bad with this situation … particularly when I look in the mirror …. I just wanna have a solution for that and the doctors don’t really help much because they always want to prescribe me steroids …. I suppose I have to use protopic again , but I don’t wanna do it because l my skin is very dependent on this cream . Does anyone have a recommendation? cream ? Maybe a diet?

    • @Manginii
      @Manginii Рік тому +3

      Hey, are you still in the same situation now?
      So I wouldnt stop using the creme if you feel terrible about your whole appearance.
      What I would suggest is something like a absolut stop of eating sugar stuff... also everything that include sugars. fruits etc. something like a keto diet. Sugar is the best friend of inflamation. Also try to stop eating outside of you home. Cook your own stuff and maybe try something like a intermittent fasting. Eat one or 2 times a day. No snacking.
      I hope it gets better! I know how frustrating something like this can be. I can also recommend you some videos.

  • @HardiSomal
    @HardiSomal Рік тому +1

    I know exactly how she feels because I’m going through the same thing at the moment with my alopecia. I was prescribed topical steroids but they didn’t work for me they just caused my condition to worsen with little results. I’ve now been prescribed protopic but I’m very hesitant with this ointment but I’ve been using it. Causing my head to itch and burn again which my head wasn’t doing while I wasn’t on treatment i was just losing a lot of hair regularly and still am. The UK health system has gone to crap and I’m on a massive waiting list to see a dermatologist face to face - they said they could see me in September…well over a year from when this issue started. At the moment I’m seeing GPs and non of them are specialists with alopecia and they’re just prescribing me a whole bunch of nonsense at the moment I feel like. Also they’re not taking my condition seriously…I just feel messed about by all these people tbh

    • @jenfugo
      @jenfugo  Рік тому

      We are so sorry to hear this. Hang in there... we are sending a big virtual hug! Here's more on the topic if you're interested, too. www.skinterrupt.com/?s=alopecia
      -Team JF

  • @shanecorr1694
    @shanecorr1694 5 місяців тому +1

    I never had eczema in my life till age 23 tiny bit on my arms and feet after 6 months on and off protopic I quit and was left disabled do not touch it

    • @Feg1989
      @Feg1989 5 місяців тому

      How?! What happened?!

    • @shanecorr1694
      @shanecorr1694 4 місяці тому

      ​@@Feg1989 I used pro topic for a tiny bit of eczema on and off for 6 months then was left with severe eczema all over my body for 2 years after stopping

    • @Feg1989
      @Feg1989 4 місяці тому

      @@shanecorr1694 oh wow sorry that happened to you, wouldn't wish severe eczema on my worst enemy. sounds like you experienced TSW

  • @pikanoodle3410
    @pikanoodle3410 Рік тому +3

    Correct me if I’m wrong - it kinda sounds more like protopic is unable to mask the surface inflammation which is triggered by other underlying causes, other than actually making the rashes worse…?
    Because the same thing happened to me - protopic worked for me 8 years ago where I only have to use sparely and was clear for 8 whole years. Then this year when I flared out of the blue, protopic is not as helpful anymore due to more severe underlying health issues.
    In other words, uncontrolled symptoms are not simply caused by the use of protopic i suppose ?

    • @jenfugo
      @jenfugo  Рік тому +3

      That's certainly a possibility, but some of the issues people are dealing with could potentially be a side effect of the medication. As I said, there's a lot of unknowns here but there are enough people experiencing an issue at this point that I feel like the topic at least deserves consideration.

    • @pikanoodle3410
      @pikanoodle3410 Рік тому +7

      @@jenfugo I think it’s really important to mention that there’s a time and a place for these medication and so ppl won’t become too “drug phobia”, which I think, is just as bad as abusing the use of steroid or topical immunosuppressants. It’s sooo vital to have a derm who actually help investigating root causes and not abuse these medication & use them correctly!! Would be so helpful if you can have an episode to talk about how to find reliable medical help/what are red flags/ when do ppl HAVE to seek professional health when doing homeopathic remedies?

    • @pikanoodle3410
      @pikanoodle3410 Рік тому

      Also love all your interviews! So informative and helpful❤ love from Sweden

  • @kirstyleith5035
    @kirstyleith5035 2 місяці тому +1

    Yes Protopic withdrawal is real

    • @jenfugo
      @jenfugo  2 місяці тому

      Have you experienced this?

    • @kirstyleith5035
      @kirstyleith5035 2 місяці тому

      Yes I think so.
      I used it for only 10 days on my face.
      When I stopped, my skin became ten times worse than the original contact dermatitis for which I was using the Protopic to heal from in the first place!
      So my personal experience is that Protopic was horrendous for my skin (it did not even improve my dermatitis during the ten days that I used it) and certainly once I stopped using it my skin got very bad!
      I'm still really struggling but hoping in time it will heal.
      I will NEVER use Protopic again.

  • @JuniorLlamas
    @JuniorLlamas Рік тому

    So if I use it for my face around eyes and just face I will lose hair?

  • @othmaniraja3199
    @othmaniraja3199 Рік тому

    Hi so i am going to use the 0,03 for three week my dermatologist was scared from my atopic eczma i have it like 10 years it look bad but it have never hurt or bother me so i am not sur should i hear my dermatologist and jusg use protopic for those 3 week or should i not in my country it's expensive so I am not sure i payed for it and i have to use to give it a try but i am not going to use it again in my life i tried steroids bad memories for my mouth