I was diagnosed with Fibromyalgia in 2013. Had allergic reaction to gabapentin and didn’t take the antidepressants. Then two years later I woke up with a huge goiter in my neck and was diagnosed with Hashimotos after bloodwork showed high levels of TPO but the TSH was normal. After suffering for years, I changed my diet by cutting out sugars and bread and ate more meat. I also eat beef liver and feel so much better. I’m off the opioids and I only have twinges of pain every once in awhile but the fatigue and panic attacks are gone, Hallelujah!
I fully agree!!! I was diagnosed FM, years ago & never took any meds. This year, on Sept 10th I went from SAD Diet to Carnivore & 7 wks later all pain was gone & so was my Hashimotos / 8.11 TSH to a 2.99 TSH. I refused to take meds & said; "Give me 90 days to fix this by food & not meds." Thanks to you, Doc!!!
I have an appointment with my Dr. On Monday morning. I'm going to listen to him, and then I'm going to fix my aches and pain with my diet. Lots of homemake beef broth and liver. This is what my grandparents did. Thank you, Dr. Berry.
Exactly ,many drs think it is all in your head, what a dreadful thing to say to a patient my dr doesn't believe that there is such a thing but her husband who is dr in the same clinic does believe it is a genuine illness.
There’s a difference between “it’s all in your head” and “your mind and body are connected trauma is stored in the body, and in the future psychotherapy could help the symptoms”
@@danias2214 Doctors does not believe me. All doctors keep sending me to psychiatrist,who prescribe me anti-depressants so I feel happier with all the pain... 5 years - no change and no hope either...
My mum was told she had Fibromyalgia when she had Polymyalgia Rheumatica. She lived her life for months in agony. Eventually she was referred to a specialist who looked at her properly, ran the right tests, re-diagnosed her and put her on a heavy course of steroids. In a few days she went from being completely debilitated to being able to walk around pain free again! The first doc who misdiagnosed her told her this was her new life now and to get used to the pain 😠 she was literally crippled.
Polymyalgia Rheumatica is so quickly and easily diagnosed by ordering a Sedimentation Rate or C-Reactive Protein (CRP). That should be a standard test for these symptoms. My husband was contemplating suicide when he got it. I took him to the Emergency Room and they diagnosed him within an hour. They gave him a steroid shot and it turned the pain off instantly. I feel bad your mum suffered so long.
I was experiencing extreme joint pain not only upon waking but throughout the day. I am barely turning 40 and knew it couldn’t be due to natural aging. Something was accelerating the aging process. The something was SUGAR. I was indeed a sugar fiend. I quit eating sugar and the pain is 90% better. It was literally a night and day difference. The very next morning following a day of being 100% sugar free, I felt zero joint pain. It was always the worst after I just got out of bed. But I feel so much better now. I hope this helps someone else!
For some people it's meat. Nobody is the same and people have to experiment with their diet. Meat heals some while it poisons others. Carbs destroy one person's gut while another person won't be able to function without carbs. I don't know anybody who benefits from a high animal fat diet. Cancer and heart disease show up everytime. Fats from plants, however, heal.
Going 100% sugar free is not going to help anybody. Eliminating all refined sugar and eating a small amount of unrefined sugar a moderate amount of other unrefined carbs is necessary for long term cure. Refined sugar is a major cause of inflammation. Raw honey on the other hand is anti inflammatory.
So true. Took me three weeks and pain was absolutely gone. . . . Fell of the wagon and I feel like junk now. Super pain!!!! I have restarted carnivore and am slowly healing. Stay away from the sugar.
I started Keto in February 2021. Lost 27 lbs. Twelve years of Fibromyalgia pain disappeared. I eventually progressed to Ketovore/Carnivore, and started walking for gentle exercise (took 25-minutes to walk a mile). Since then, I have walked over 1.6Million steps. Today, I completed a 5K Reindeer Run and was totally surprised that I completed 12-minute laps per mile and placed 4th in my age group (60-64 years). I never dreamed I could go from Fibro to 5K, but thanks to you, I did!!! Eating the Proper Human Diet has turned the clock back for me. I feel better at 60 than I did at 40. Inflammation was the cause of my Fibro. I had gestational diabetes (which eventually made me pre-diabetic) and a swollen belly (most likely NAFLD) even though I was TOFI. Twenty years ago, we were told that Fibromyalgia "was all in our head". Both of my sisters-in-laws and I kept this as a secret between us since there was a great deal of shame to admit you had it. Now I believe Fibromyalgia is a Red Flag symptom that points to toxins (sugar, vegetable oils, processed grains) inflaming our bodies and nervous system. I am glad to see that the stigma of having Fibromyalgia is finally being lifted as we are understanding more about Metabolic diseases. Thank you, Dr. Berry, for educating us to better health!
If I were to write a response, it would have been exactly what you said. I only hope at 60 I could start running again too. I'm on the real food diet now with no sugar and looking forward to finally feeling better.
This video is from two years ago but I hope You see my comment. I am a 63 year old female diagnosed with Ankylosing Spondylitis in my 20’s (father =Family history) I was experiencing considerable pain in my long bones of arms and legs. My Rheumatologist diagnosed me with secondary Fibromyalgia. In 2012 I was diagnosed with Polycythemia Vera-Blood Cancer of which the symptoms mimic Fibromyalgia! My PV has since progressed to Myelofibrosis and I will be getting a Stem Cell Transplant in a few weeks. My advice… if it doesn’t feel right in your gut, believe it! Get a second opinion. Thank you doctor for taking the truth about this Fibromyalgia blanket diagnosis. People are suffering and doctors need to be careful.
In my opinion fibromyalgia is all of those things... Thyroid problems, adrenal fatigue, multiple auto immune disorders, kidney problems, bladder problems, insomnia depression, rhuematid arthritis, dry skin, digestion issues, chronic migraines .... The ones who suffer have all of these things at once... When flare comes every single symptom of every disease all happens at once. You are same whether you take any medicine or not.. When no diet works... That's fibromyalgia! Been suffering from last eighteen years.
I was also diagnosed, and I agree with you, but I got it all fixed, by taking prescribed Hormone replacement, thyroid replacement, magnesium, taurine, and ashwaghanda to lower cortisol/stress response. it took a year and a half to get cured, but I saw results within 6 weeks. its a bunk diagnosis for sure. all hell broke loose at menopause for me. 14 years later and I am fixed...
@@loneranger7573 thanks for sharing your experience. Very reassuring to know never to give up hope. I am still trying. Hoping that someday something works for me too. May you never be sick again and only get healthier from this point. All the best ma'am. 🤗
I've had Fibromyalgia (FM) for 35 years, and agree that those who truly have FM , suffer a multitude of symptoms all at the same time. Being in pain 24/7, even while taking Hydrocodone/Acetaminophen 10-325 mg tablets 3 to 4 times per 24 hours daily, does not make one pain free. They only bring the pain down to a more tolerable level where I can feel like a Almost Normal human being. Of those 3 to 4 times a day dosage, I must take one when I go to bed along with the 150 mg of Amitriptyline each night so I can get to stage 4 restful, restorative sleep, (stage 4 sleep is called REM Sleep) a symptom all true FM cases have. If you do not have the sleep disorder, you do not have FM. I've had the sleep disorder since day 1. I also developed Insomnia 4 or 5 years ago, (where one cannot fall asleep) and I take 15 mg of Temazepam just as I go to bed. If I take the Temazepam and don't immediately go to bed, it will literally knock me out, and I will wake up in the chair I was sitting in when I took it, 6 hours later. I have had a multitude of different symptoms over these past 35 years, (like the TMJ pain and malfunction I once had, and Costochondritis, which is inflammation of the cartilage between the ribs and sternum. Some come and go, while others come and stay like the Insomnia has. Yes, FM has a lot of problems, with the most problematic being government agencies like the CDC and the DEA. It's bad enough there are doctors who misdiagnose patients with FM, rather than admit they have no idea what is wrong with you, and don't have the foggiest idea of what questions to ask their patients. If they know what questions to ask, they might be more accurate with a correct diagnosis and correctly treat their patients, or their patients as receiving the wrong treatment whereas there are better and appropriate treatments available for other disorders/diseases, and as always, it is the patients who suffer. Then there are still a lot of doctors who "do not believe in Fibromyalgia" and talk to you like you are a drug addict looking to score some drugs from them. I ran into one of those types of doctors myself 3 weeks ago, while I was looking to find a new doctor after my doctor of 33 years retired. That insulting doctor works in a pain management clinic!!
Absolutely. I have had constant pain and infections, inflammation and surgeries since I was I child. Was called a hypochondriac by my parents. Was finally diagnosed in my late 50’s with a rare genetic disease. Primary Immune Deficiency Disease. I don’t make sufficient antibodies and started on Sub-Q Hizentra at home. I go to an the Immunology & Allergy Clinic at Shands Hospital at UF in Florida. You sometimes have to push to be your own advocate and find a doctor who will take more that 20 minutes to hear your whole story. Mine took a lifetime to be heard. I’m almost 70. To bad all those years I could have worked and had a normal life. I was also diagnosed with EDS, a connective tissue disorder: Hyper mobility, and Gastroparesis.
It took 16 years for a doctor to figure out that my fibromyalgia is because of Joint Hypermobility. I even spent 3 weeks at the Mayo and they never once asked me about my joints or did any kind of physical test. They saw fibromyalgia in my chart and just went with that. All doctors do. Once they see fibro in the chart, they’re job is done. Just blame everything on fibro. I’m done with doctors.
Actually, everybody with FMS has abnormal joint flexibility. It IS one part of the diagnostic criteria. Pain, swelling, and hyperflexability of the joints. Fibromyalgia means pain of fibrous tissue. In example, I can turn my head WAY past what is considered normal. 😂
@@AshleySpeaks4U from US NIH "A patient fulfills the diagnostic criteria for fibromyalgia if the following three conditions are met: The widespread pain index (WPI) is greater than or equal to 7, the symptom severity (SS) scale score is greater than or equal to 5, the WPI equals 3 to 6, and the SS scale score is greater than or equal to 9."
I had fibromyalgia with chronic fatigue as a diagnosis for 11 years before I finally got a cervical MRI that showed and rectified the diagnosis to cervical myelopathy, I almost lost my mobility before this happened. Fibromyalgia is the laziest and worst diagnosis that a Doctor, who is not willing to dig deep for a proper diagnosis, can give to his suffering patients
I was diagnosed with fibromyalgia through a process of eliminating other conditions that might be causing my symptoms, also high blood pressure. That was over 15 years ago. I am completely symptom free now after 4 years of Keto/Carnivore way of eating -- including the high blood pressure. Thank you so much for sharing such valuable, life changing information.
My rheumatologist concluded after a 20 minute zoom appointment that I must have fibromyalgia, despite having a plethora of other symptoms of autoimmunity. I didn't agree with the diagnosis, so he gave me an information video to watch. The narrator was a morbidly obese doctor, attempting to explain that there is no known cause for fibromyalgia and that the only solution is antidepressants. I haven't gone back to that rheumatologist.
You were my MD when I temporarily lived in New Johnsonville for the DuPont project you helped me so much when I moved back to memphis I found out it was hashimotos, Lyme disease and now lupus but YOU helped me get to a better place!!! Thank you!!!!
I was medicated for fibromyalgia, arthritis, and eventually connective tissue disease. Found out my vitamin D level was 7. Stopped prescription Vitamin D when my number went up to 50, and I now supplement with OTC Vitamin D and am doing exceptionally well.
I received a “Diagnoses” in2006 of fibromyalgia without any tests!!! I’ve always questioned it but doctors here in the uk really have no real interest, once you have the label that’s it!!! Job done. I have looked in all my symptoms and I came up with thyroid problems, investigating further “ Hashimotos tyroiditis” I’ve been checked for thyroid a hundred times only to here your borderline ( I’ve been boarder line for over 30 years) I’m on my knees here! I’ve asked to be tested for Hashimotos but the dr has never heard of it , so I give up!! Thank you Dr Berry for your strait forward way without the bull, it’s so refreshing to have a doctor talk to you like a human being and not a label
There are places you can go online and order your own lab work. I just did this for my husband and my annuals, but we live in the USA. I think there is a UK equivalent. you would be looking for a full thyroid panel with the T3 and T4 with TSH & either add the TPO or wait to see how the results come out on the other one before adding it. These are done actual labs, your doctor's office should accept the results.
Watch Dr. Berry’s videos on low thyroid AND on the tests your doctor needs to prescribe to get a full read on thyroid problems. TSH, the go-to test, is pretty useless for diagnostic purposes.
Fibromyalgia is often used by doctors to get rid of difficult patients. Insurance companies also love this diagnose because further tests cost money and a diagnose like fibromyalgia helps with acceptance.
I got diagnosed with fibromyalgia after the neurologist, rheumatologist and even podiatrist couldn’t figure out what’s wrong with me. They just said they couldn’t see me anymore and sent me back to my primary. I’m currently struggling to stay awake during the day and fight my pain, when people touch me I get horrible throbbing pain. Oh well. I’m only 24 and just graduated grad school. This just sucks. I am glad there are some doctors like you that still care. Many blessings to you and your family.
Have you been checked for Sleep Apnea? Fibro can be a secondary disease or a companion disease, if you will. It can be the result of another trauma in the body. Fibro can also come on after ptsd or emotional trauma, so it can be from either physical or emotional traumatic injuries.
Further adding to a misdiagnosis,such as fibro,if you change gp's or are assigined a different gp,and you disclose your condition or your knew gp reviews your history,,they never question the prognoses..I have never had any tests done to confirm my fibro in 30 years of suffering fibro. I am shocked beyond belief after watching this vidio that not one doctor in western australia,who reviewed my file did not question the means of the original diagnosis or note i had never in 30 years undertaken any tests to confirm or denie my condition...Appreciate the posting of this presentation doctor,the frustration of 30 years of suffering has transformed into a rage of anger towards every doctor i've consulted and who treated me with distain and arrogance that i should question the original diagnoses..Gp's in my country are ambivalent and become afronted should one question or suggest an alternitive condition or knew approach to confirm the original diagnosis..
Tell me tell me tell please what do I have? I’m 60 years old. I can’t do this much longer. I have the diagnosis. Yet, yet, I’m a hypochondriac. For shame on the medical institutions. For shame. I’m here to put a voice to all the Fibro warriors. I hear you all!!!
@tammyhanson7843 I was diagnosed with Fibromyalgia several years ago. I have been dealing with issues for almost 30 years. I think it has something to do with the hormones...
I was diagnosed with MS in 2013 after numerous MRIs. my neurologist said that my Myofascial pain was not from multiple sclerosis. So I went to another doctor and he diagnosed me with fibromyalgia. Who knows.?! What I do know is that no disease will ever define me. Thank you for all your videos.
I’d been diagnosed with fibromyalgia. Once I significantly dropped carb intake to 20gm/day, the pain all over my body, particularly lower back, disappeared. Carbohydrates are thought to be pro- inflammatory. Lots of literature on it. In one sense you must be your own physician these days- do your research, from trusted sources only. This physiatrist asked nothing whatsoever about diet. Be your own advocate.
Thank you for making this video! I was diagnosed with fibromyalgia and chronic fatigue syndrome when I already have hashimotos thyroiditis and continued to have issues. I took it upon myself to go to an endocrinologist and found out I needed another thyroid med and I have Addisons disease. Not knowing this could have cost me my life. In my opinion that's malpractice. Listen to your common sense and if you feel like something else is going on then get it checked out.
Thank you Thank you Thank you!!! Finally a Doctor that recognizes the fact that Lyme Disease can mimic Fibromyalgia. My daughter and I both were diagnosed with Fibro and we actually have Lyme Disease which has Fibro type symptoms.
Did any of you two have a rash by any chance? The more I research the more I find that a lot of people get Lyme without a rash and it ends up "causing" things like Alzheimer's, Parkinson's, MS, Fibromyalgia and others. The estimate about 20% not getting a rash seems too low since all the others without a rash are simply diagnosed with something else or dismissed as being a hypochondriac. What's concerning is that the tests for Lyme aren't very accurate and doctors will rarely, if ever, even go via the test route if a rash isn't present.
This. All of this! It took 6 years for me to get a diagnosis of Rheumatoid Arthritis and Lupus. Made a huge difference once correctly diagnosed. What helps the most is KETO! ❤❤❤
As an occupational therapist, I find the diagnosis of fibromyalgia to be incredibly frustrating and confusing for my patients. If you break down the word fibromyalgia, it literally means “pain in muscle and connective tissue.” I consider fibromyalgia to be a description of a symptom, more than an actual disease diagnosis. Poor posture and an imbalance of muscle group strength causes an imbalance of muscle energy and force on our joints. With this imbalance of force, muscle groups fire to correct the imbalance to maintain posture and strength for weight bearing. Constant and or repeated firing of a muscle or group of muscles in this manner does not allow muscle fibers to relax. Muscle contraction without relaxation causes the development of the painful “knots” or trigger points associated with fibromyalgia. The constant requirement of energy for these “micro” contractions can lead to fatigue, joint pain due to unbalanced forces on our joints, and headaches due to imbalanced muscle force on postural muscles.
@@vickieschultz4065 it’s hard to give advice without knowing your history and seeing you in person to assess where the imbalances are. I would suggest you look in to very simple, beginner’s yoga IF you are physically able to do so. If you are severely compromised, ask your doctor first. I personally like to begin working on core muscles and low back flexibility moving in what is called phylogenetic order(the neuro-muscular order in which muscles develop en utero), mobility on stability is the premise. You can’t correct problems in your neck and shoulders if your pelvis is weak and not supporting your posture.
@@vickieschultz4065 one step at a time. It’s inflammation in the body. There is a woman who ended up in a wheelchair and at age 62 became a marathon runner and from my understanding is still one at 72. Look up information on Thaddeus Gala. It is his mother that he helped get out of the wheelchair, off her medicines and got her life back. It’s all about the foods we eat. Plants are truly toxins. Also check out Sally K Norton. She knows how toxic vegetables are and some can actually cripple you. The good thing is meat and good vegetables in low oxalates will help you. The first thing I recommend to the people in my health and nutrition class is to stop all grains and processed foods. Those who have done this is truly amazed how they start to feel and are so happy. Like I said one step at a time! God bless.
My diagnosis was spot on. My team of doctors did a wide variety of tests and extensive bloodwork to eliminate other conditions and what was left, plus, the symptoms I have/had made it very clear that it was fibro. I don't feel I am stuck with it all. I am totally relieved that I can now live my life knowing better what it is and what can and can't be done for my condition. I don't treat it with any pain meds unless it is a really bad flare. Then an ibuprofen for a day or two and that's it. We are only "stuck" if we decide we are.
Have literally yesterday been given a tenuous diagnosis of PMR and have been watching Dr Berry since Xmas, have had numerous tests and scans, ultrasounds etc and am waiting on another scan to try and hone in on my inflammation source. I went Keto after the first video and have kinda morphed onto Carnivore this past week, and am already seeing slight easing of symptoms and weight loss. I’m seeing these videos as something I can do to help myself, I’ve cut sugar, wheat etc found doing both very easy as I dont have a sweet tooth and I’m absolutely 100% up for starving my inflammation of sugar !! Love these videos and am suitably reassured my doctor has done everything she can diagnostically so far and continues to do to find out what my issues are. That’s the British NHS for you, and I consider myself grateful cos if I’d be living elsewhere on this earth I hate to think what it would have all cost. Dr Berry is worth his weight in gold because I’ve been able to educate and help myself to turn things around. 🙌 🇬🇧 ❤️ 🇺🇸
Physicians love to label with fibromyalgia and chronic fatigue syndrome…..much easier than finding the root cause. For me it was Hashimoto’s…. I had to do all the detective work, but well worth it. Eating clean ketovore and IF along with natural desiccated thyroid medicine and I’m a new person….
Doctors put a label on something and say there is no known cure. So they look good and get you hooked on drugs. But at least 95% of the time the cure just involves a change in diet and lifestyle.!
Well I feel so fortunate my doctor sent me to so many test & MRI's including brain scan before she diagnosed me with fibromyolgia. I had never even heard of this, but now I feel so much more confident in my doctor. Thank you!
I was diagnosed (19yrs old) with Fibro in 1999 after a 13 car pile on a 7 lane highway. I’m extremely lucky to be alive. But, it changed the course of my life forever. I was a normal healthy person before the accident. Tests showed my discs were all blown out in my lower back from L2, L3, L4, L5, S1….slowly over a few months developed alllll the FM symptoms. But, back then…I was crazy, it’s psychosomatic or I’m just exaggerating. But it was a massage therapist who figured it out. If I were to the tell you the last couple decades were/are very difficult, well, that would be an understatement. I had every test possible on me that could be done & nothing was found. And just 2 years ago I had a full blood work up with 8 pages of results for every condition & diseases known to man…all negative…accept for one. I diagnosed w Hashimoto’s (my entire maternal side has thyroid disease)…I’m not on synthyroid yet. I was the only one who seemed to not have thyroid disease & surgery in the family. Well, I have it now. And my disc ruptures (20+yrs later) have turned into full blown degenerative disc diseases. I’m 42 with the spine of an 80yr old. I’ve consulted w the top surgeon here at a NYC hospital & he says he can’t fix it w surgery. The odds are too risky, but I could have a percutaneous discectomy. Currently, I do yoga 6 days a week (& teach), always have eaten pretty healthy & see any docs needed. I haven’t been to PT in many many years. Any Fibro patients out there reading this, listen to me please, you MUST try yoga. It will be difficult the first few weeks or months…but once your body adjusts, it will change your life. And doc, if you have any thoughts or advice for me…it would be greatly appreciated. I’ve been through the ringer.
The scariest element of this for me is that once I received a FMS diagnosis, the VA has used this to ignore all presented symptoms regardless of origin.
I was fobbed off with fibromyalgia when I actually had hypermobile ehlers danlos, small fibre neuropathy ( diagnosed by ienfd nerve biopsy) and psoriatic arthritis amongst other things. I am now in the process of looking to sue my previous dr for misdiagnosis
There is no medication for fibromyalgia. There are some meds that Dr.'s will prescribe off label, don't take them. They may help very little, for a short time, but not long term like we need it. They cause worse side effects than they are worth. The only thing to helps is diet, some light exercise and therapy, to help deal with the depression, that being in pain, losing our mobility and social life, that fibromyalgia causes.
I am recently diagnosed with fibromyalgia. My doctor fortunately took alot of test, not once but twice with 3 months in between. Took all the blood test needed including blood sugar etc. Rheumatoid test as well. I was then refered to the rheumatologist and the rheumatologist took also alot of blood test needed and had ultrasound on my joints. He did not care if my regular doctor already took a lot of test. He wanted to get his own tests. The rheumatologist also gave me an assignment, he gave me information about fibro and asked me to read and research to see if all of my symptoms are the same with fibromyalgia symptoms. I have read alot about many differents diseases that can mimic fibromyalgia. No matter how many times I read its only fibromyalgia that fits my symptoms and I hate it! Went also to the neurologist. Checked the nerves and muscles.Took also MRI. All tests are normal. Then I got the diagnose. But I wish there is a test that can prove fibromyalgia. So people wont think that I am faking it or something. Im glad I have a good doctor. We have tried sarotex and gabapentin. They are not working. Im trying to exercise carefully atleast. Im also glad that my doctor does not push me to take opoids or other strong meds. She seems to be very careful and care and a good listener.
That’s awesome that you have great doctors! Do you work full time or part time? I’m 20 with really bad symptoms and I don’t have enough energy to work full time
You missed GLUTEN INTOLERANCE - I was diagnosed with FM back in the 90’s - yes - anemia from GLUTEN INTOLERANCE was there too - but once I got rid of the gluten, and other inflammatory foods, I was restored. I also had SEVERE DEPRESSION when I was eating gluten. I also had unresolved Candida albicans problems - and Lupus, MS diagnosis’. Dr. peter Osborne really lays all this out also in his book “No Grain, No Pain”. Thank you doctor Berry, you are a great doc.
Here's another issue related to Fibromyalgia that I have noticed with patients who come for medical imaging for various reasons and who mention they have Fibromyalgia . Despite being maxed out on virtually every painkiller you can think of - they still have pain issues . This is sad for me to see and terrible for them to live these lives dominated by chronic pain .
CONGRATULATIONS on the new Family addition on the way. I wish you and your Bride all the happiness and good health during this special time ! ! ! Love every minute with both of your children. You only have them for a moment until they are off to college and their own life ! !
I have reversed my "fibro" with PHD. I have found that if I eat anything with seed oils the pain starts up within 2hrs. If I miss it on the label my body tells me about it. The fatigue that I've had with it is cured and only comes back with a sugar binge. I also had anemia and severe abdominal adhesions from surgery that was causing a lot of pain. Surgery for adhesions helped but I wasn't cured until PHD.
I was diagnosed with fibromyalgia after being tested for RA as well as Lupis. Don't remember any test for thyroid. I suffered with waking up in pain. multiple times a night for nearly 20 years. Went to a naturopath doctor, she did all sorts of tests. Found gluten to be the culprit and eliminating that had me better in 6 weeks. She told me fibromyalgia was a "garbage" diagnosis given when they don't know what is wrong I believed her! Thanks for this helpful information and for all you do for people everywhere. We must be our own advocate in our health.
I was diagnosed with Fibromyalgie yesterday by my rheumatologist. I have been suffering for five years from cronic pain all over my body. I have also been suffering from PTSD and a cronic depression since my childhood due to severe abuse. And I have also autoimmunity skin disorder called litchi ruber.
Hi everyone I will add to this list primary hyperparathyroidism. This can be diagnosed by bloodwork of calcium level, vitamin D active form and parathyroid hormone level all with the same blood draw. Thanks!
I was diagnosed with FM until finally many years later another Dr tested for lyme disease because I was having dementia like symptoms in my late 30's, the tests showed I was positive for lyme and multiple co-infections.
No, I had pretty much all those things excluded when diagnosed 30 years ago, but then was stuck with the helplessness until I found keto 6+ years ago. When I stick to it properly (98% of the time), pain pretty much gone
I was first diagnosed with Lupus disease then almost immediately changed to fibromyalgia. Ten years I suffered at the hands of incompetent doctors and pharma. The antidepressants were cruel and debilitating to say the least. Dr. Berry and keto saved my life. I was so depressed and in pain. The pain meds were handed out freely then pulled from the public. Mad 😠😡
This is definitely true. I went through multiple blood tests and imaging before I was diagnosed with fibromyalgia- and I'm still taking blood tests every few years because Rheumatoid Arthritis runs in my family, but test positive for RA factor only about 20% of the time.
I was working with a doctor to try to sort out the cause behind my pain and inflammation a couple years ago. She ruled out a lot of things with various blood tests, but didn’t diagnose me with fibromyalgia because she still couldn’t fully rule out psoriatic arthritis. With her I started to change my diet and that combined with physical therapy the pain has decreased. She moved and the doctor who replaced her has been less than helpful in general so I have now focused more on improving my diet while working with a dietitian who works on sorting out food intolerances.
I was diagnosed with FM in 2010. After I had my son in 2015 at the age of 42, my FM became so severe that I actually considered trying to pursue disability because I was minimally functional. I look back and I have no idea how I made it through those days. I got amazing relief from low dose naltrexone but then I tried the carnivore diet. Honestly, it is life altering. Now, I take only one aleve per day and I am good. I feel like a normal human again. I still have some pain issues but they are manageable and I am so thankful.
I FORCED my doctors to do an MRI, spinal tap & tons of blood work done (over the past 6 years). Unfortunately, I do have Fibromyalgia, Raynauds, Erythromelalgia & Depression. Life ain't fair! BUT, the Keto diet has helped me a LOT, for all of my conditions 😊
I have been trying to do keto on and off for the last six months and I can’t stay there. I’m wondering if it has to do with parasites or worms. Do you have an opinion why I can’t do it when eating healthy is my favorite thing to do?
@@sandyk7611 I had to add electrolyte powder (I drink it once a day), probiotics, vitamin gummies, magnesium & potassium supplements. Once I added all of that to my keto diet, I started to feel amazing. We have to add all of those, since our bodies no longer naturally store them (like our ancestors once did), since the integration of the "modern diet".
@@myawallaceee yeah I take pre-and probiotics it’s in one actually and I don’t think I take the correct magnesium because I’m still getting muscle spasm I’m taking magnesium L-threonate. I take magnesium gluconate in the evening and I think I’m supposed to take the Malate version for the muscle cramping. Agreed on meeting of the supplements I take a methyl B folate with MTHF. Yeah our food isn’t really supplemental to our bodies any longer. Some say oh don’t rely on supplements. Ha! well we don’t rely., we add them because our soil has been turned so frequently because of the populations excessive growth. that the soil is no longer growing us even the organics is not growing us the nutrients and minerals we need.
@@sandyk7611 so true!! It's so sad, how poisoned our food has become. I had the muscle cramps, headaches and irritability for about 4 weeks, before it all subsided. What's the longest that you've been able to stay on keto?? For a while??
Oh yeah Dr. Berry. I was diagnosed with Fibromyalgia and I told my doctor that the majority of doctors do not believe such a condition even exists. What I did have was pretty bad depression.
I have 2 questions in relation to what you have said Dr Berry 1) when you say diagnosed on smyptoms & history ... what medical history are we talking about. 2) For the 35% who have a correct diagnosis of fybromyalgia .. what help is there?
I’ve just been diagnosed with fibromyalgia, all my blood tests were good, my cholesterol was a little high, I can get that down with diet. I’ve had awful pain, can’t sleep with the pain, fevers and hot flushes come over me a couple of times a day. My mother had Scleroderma and thyroid disease, my sister also has thyroid disease. Dr Berry has a very good point here, it gives me something to think about. 🤔 Thank you Dr Berry.
My diagnosis only came after 30 years of exclusion, re exclusion, re exclusion, depression depression depression... I'm sure, whatever it is, I have it, by whichever name. Praying for all coping and learning to cope 🙏🏻🙏🏻❤️
Dr berry i learn soooo much from u. Thank you / from the top of my head./ to the bottom of my feet. I've started with a new dr. ( very soon.) I hope i can address some of these issues I have been going through for a long time!!. Bless u & yur family. Keep on telling us what the drs don't want us to know. We r not doctors.... HAPPY HOLIDAYS..... TO U/ & ALL.
I was diagnosed with fibromyalgia in 1999 and have felt there's something else wrong. However, I have apparently very good doctors who tested repeatedly over the years for all those issues mentioned and more and I'm negative for all issues mentioned. Im hoping the ketotcarnivore helps my fibro pain and inflammation! I'm 49 and currently only on my asthma meds (lifelong) and 1 med for trigeminal neuralgia. Thank you, Dr. Berry!
Thanks for your honesty Dr. Berry. I believe most people just listen to their doctors. I don't. The way I see it is I need to take my own health into my hands get the needed tests and if a doctor throws drugs at me I go to the Health food store. Natural products.
I was told 15 years ago I had fibromyalgia, a year and a half ago I was diagnosed with hypothyroidism that had been telling my doctors for 20 years needed to have more tests done other than tsh, because my hair was falling out and not growing back in, half my eyebrows were gone and so on and so forth. They wouldn't listen. That said, I still have days that I get that pain back and I have found that it is usually when I have forgotten to take vitamin D3&K2 for a while.
Did you get your B-12 levels checked? Hair falling out can be a symptom of low B-12. If you have acid reflux or are taking antacids could be symptom/cause of low B-12 absorption.
Outstanding coverage of symptoms for proper diagnosis and treatment of maladies mentioned...a wake-up call to serious care and, recovery from multiple issues!
I was just diagnosed with fibromyalgia even though my labs came back as ANA positive and high anti-dsdna. I really feel like what I actually have is Lupus.
So far every rhuem I've seen goes straight to Fibro. No tests, no imaging, no physical exam (or a weird biased and uneven exam)....but "they know" I have no inflammation (even though I have chronic high crp and esr), damage, or anything else. If I hadn't pushed for tests I would be dx as "just ibs"....turns out I have celiac disease, gastroparesis, sibo, gerd, gastritis, esophagitis. I also would have been told "just allergies / eczema"...after pushing I confirmed polymorphous light eruption and chronic spontaneous urticaria (def prob something else...but xolair treatment is helping a lot). But gotta love that those bad rhuems put in fibro dx into my chart....and I can't get it removed. So every new doctor I see....who sees that treats me differently so my fight for medical care and tests is now that much harder!
That may be the case. But at least it is finally a diagnosis. Fibromialgia is often only diagnosed after many years, sometimes decades, after an odyssey through doctors' offices. So it's good to finally have a diagnosis that leads to the prescription of medication, which often provides relief. In this sense, it doesn't really matter whether the cause is actually something else. The main thing is to feel reasonably well again after a long period of suffering.
This is quite worry, and I had wondered about this more lately. I’ve more recently had many v bad leg and hand cramps, can’t get more tests here right now. Thanks for posting this.
I had all the symptoms of Fibro that ruined my life, then tried Keto and all symptoms gone. In the end i found that i have Celiac Disease that caused also to all the Fibro stuff
I thought I had fibromyalgia and went in had labs done and was diagnosed with Celiac Disease. Going gluten free wasn't enough to feel better. I went carnivor and finally felt better! Eggs seem to cause my joints to hurt so I limit them.
Hi I have fibromyalgia too many years along with interstitial cystitis, like many people with fibromyalgia I have been constipated since a kid did you ever have a problem with constipation? I am considering this diet but when I try to do just meat or even a lot of meat with veggies I get very constipated especially red meat. I’m just wondering if you had any constipation and how you deal with that when you are on a carnivore diet thanks so much I appreciate from hearing From you if I can deal with the constipation I’m hopeful I can get better like you. PS I know all the constipation tricks none of them work if I eat red meat.
@@lindapelle8738 yes I did have constipation before my diagnosis and it swung the complete other direction when I went carnivor but after 4-6 weeks that resolved.
That’s interesting, I’m celiac and have fibromyalgia, I’m in pain every day. I eat eggs every day, I love them. Maybe I’ll try cutting them out of my diet and see what happens 🤷♀️ I’m also going keto, trial and error I guess.
As someone who suffered from (heart issues) mis diagnosis and diagnostic assumptions videos like this are critical. Dr.s are too ready to write a script and rush you out the door.. Because of the knee jerk response to my Symptoms, I needlessly suffered for 10 years, dozens of hospitalizations and led to permanent damage. Thank you
I suffered with fibromyalgia for over 30 years. I also had interstitial cystitis ( chronic bladder pain). After I heard about oxalates from Dr Anthony Chaffee I went Carnivore and all my pain disappeared within a month.
I met someone who used to work at the drug company with the original fibromyalgia drug. She said they essentially took a drug that was originally slated to help with something else that didn’t have a good outcome, put together a list of the symptoms it did help with, and literally gave that cluster of symptoms the name of fibromyalgia. I don’t know if this is true or not, but it wouldn’t surprise me.
@@staceystrukel1917 of course prescription drugs don't heal anything. A cured patient is a patient never to be seen again. The prescription drugs manage some symptoms of the disease (while also giving side effects that are uncomfortable at best and fatal at worst).
@@Ethericrose i don'tt have the side effects and it works fine for me even though i don't have fibro but have small fiber polyneuropathy. with me i only take 900 mg a day. many doctors over load there patants with 1600mgg or more and this leads to the side effects.
Diagnosed with Fibromyalgia 3yrs ago, in fact I had Ehlers Danlos Syndrome. As others have said, not once did a doctor check for hyper mobility. Not once in 30yrs of symptoms. I had to do investigation work myself to land on a diagnosis of EDS, then pay a Rheumatologist privately to confirm the diagnosis. Soul destroying. As my EDS hasn’t been managed, I’m left in constant pain with constant subluxations. They don’t give a damn. 30yrs of medical gaslighting
Same thing with IBS. I think these two diagnoses are inhumane, very sicken diagnoses. Imagine a diagnoses that doesn't tell you what the problem is... What kind of frustration insult is that?
Sounds like I was probably correctly identified as having fibromyalgia since I was run through a ton of testing for 3+ years before being diagnosed. Still, it's good to know what can be mistaken for fibromyalgia. Thanks for the insight!
Sir, perhaps you missed one. All my symptoms of fibromyalgia disappeared when I reached a normal body weight. Being fat was never anything my doctor considered. Thank you for this short discussion!
I was diagnosed. Dairy was the root cause. Fecal Microbiota transplant cleared all out and I can consume dairy without reaction now, fibromyalgia, brain fog... whatever it can be called. It looks like all these conditions are named based on symptoms and not the root cause. The root cause is dysbiosis, why FMT has worked so well on many.
I had severe Fibromyalgia symptoms - I cured myself after years of pain, for me Fibromyalgia was caused by leaky gut and gut parasites, i did a gut cleanse, killed off gut parasites, healed my leaky gut. Then of course follow a Keto?Carnivore diet.
Thyroid fine, yes I do have RA , ankylosing spondylosis and herniated disc in my neck. Reversed diabetes ! Limited carbs and refined sugar. Neg for Lyme.
Something else to consider: read Dr. John Sarno's healing Back Pain or any one of his books. Severe emotional stress (including depression, as you say) can also masquerade as Fibromyalgia.
I was just going to post this. Fibromyalgia is a tough one, and many people here have found the cause of their pain, and often their pain is not really fibromyalgia. But indeed it can be TMS, which you and I know is very real. Dr. Berry's advice is straight on, you MUST be checked out for everything else it could be instead. After ruling everything else out, one could start thinking psychologically.
I was diagnosed with Fibromyalgia in 2013. Had allergic reaction to gabapentin and didn’t take the antidepressants. Then two years later I woke up with a huge goiter in my neck and was diagnosed with Hashimotos after bloodwork showed high levels of TPO but the TSH was normal. After suffering for years, I changed my diet by cutting out sugars and bread and ate more meat. I also eat beef liver and feel so much better. I’m off the opioids and I only have twinges of pain every once in awhile but the fatigue and panic attacks are gone, Hallelujah!
Well done, I’m happy for you. 👍
I fully agree!!! I was diagnosed FM, years ago & never took any meds. This year, on Sept 10th I went from SAD Diet to Carnivore & 7 wks later all pain was gone & so was my Hashimotos / 8.11 TSH to a 2.99 TSH. I refused to take meds & said; "Give me 90 days to fix this by food & not meds." Thanks to you, Doc!!!
wow congratulations x
RIP !
RIP !!!!!
I have an appointment with my Dr. On Monday morning. I'm going to listen to him, and then I'm going to fix my aches and pain with my diet. Lots of homemake beef broth and liver. This is what my grandparents did. Thank you, Dr. Berry.
That’s excellent Joan, good for you. Some times we have to take charge of our own health.
Fibromyalgia is under diagnosed. People are being told “its all in your head” delaying adequate diagnosis.
Exactly ,many drs think it is all in your head, what a dreadful thing to say to a patient my dr doesn't believe that there is such a thing but her husband who is dr in the same clinic does believe it is a genuine illness.
@@marleneholloway7775 because that’s exactly what my primary physician told me. And I had done all the bloodwork needed to exclude anything else.
There’s a difference between “it’s all in your head” and “your mind and body are connected trauma is stored in the body, and in the future psychotherapy could help the symptoms”
@@danias2214 Doctors does not believe me. All doctors keep sending me to psychiatrist,who prescribe me anti-depressants so I feel happier with all the pain... 5 years - no change and no hope either...
My mum was told she had Fibromyalgia when she had Polymyalgia Rheumatica. She lived her life for months in agony.
Eventually she was referred to a specialist who looked at her properly, ran the right tests, re-diagnosed her and put her on a heavy course of steroids. In a few days she went from being completely debilitated to being able to walk around pain free again!
The first doc who misdiagnosed her told her this was her new life now and to get used to the pain 😠 she was literally crippled.
Polymyalgia Rheumatica is so quickly and easily diagnosed by ordering a Sedimentation Rate or C-Reactive Protein (CRP). That should be a standard test for these symptoms.
My husband was contemplating suicide when he got it. I took him to the Emergency Room and they diagnosed him within an hour. They gave him a steroid shot and it turned the pain off instantly. I feel bad your mum suffered so long.
I was experiencing extreme joint pain not only upon waking but throughout the day. I am barely turning 40 and knew it couldn’t be due to natural aging. Something was accelerating the aging process. The something was SUGAR. I was indeed a sugar fiend. I quit eating sugar and the pain is 90% better. It was literally a night and day difference. The very next morning following a day of being 100% sugar free, I felt zero joint pain. It was always the worst after I just got out of bed. But I feel so much better now. I hope this helps someone else!
Same thing happened to me many years ago but the culprit was gluten
For some people it's meat. Nobody is the same and people have to experiment with their diet. Meat heals some while it poisons others. Carbs destroy one person's gut while another person won't be able to function without carbs. I don't know anybody who benefits from a high animal fat diet. Cancer and heart disease show up everytime. Fats from plants, however, heal.
Going 100% sugar free is not going to help anybody.
Eliminating all refined sugar and eating a small amount of unrefined sugar a moderate amount of other unrefined carbs is necessary for long term cure.
Refined sugar is a major cause of inflammation.
Raw honey on the other hand is anti inflammatory.
So true. Took me three weeks and pain was absolutely gone. . . . Fell of the wagon and I feel like junk now. Super pain!!!! I have restarted carnivore and am slowly healing.
Stay away from the sugar.
Fibromyalgia is not a joint pain. It's in your muscles all over your body. You are never without pain.
fibromyalgia=we don't know what you have
OR, we didn't test your blood and are clueless.
Exactly
So true unfortunately
we are lazy and are guessing
Exactly!
I started Keto in February 2021. Lost 27 lbs. Twelve years of Fibromyalgia pain disappeared. I eventually progressed to Ketovore/Carnivore, and started walking for gentle exercise (took 25-minutes to walk a mile). Since then, I have walked over 1.6Million steps.
Today, I completed a 5K Reindeer Run and was totally surprised that I completed 12-minute laps per mile and placed 4th in my age group (60-64 years). I never dreamed I could go from Fibro to 5K, but thanks to you, I did!!! Eating the Proper Human Diet has turned the clock back for me. I feel better at 60 than I did at 40.
Inflammation was the cause of my Fibro. I had gestational diabetes (which eventually made me pre-diabetic) and a swollen belly (most likely NAFLD) even though I was TOFI.
Twenty years ago, we were told that Fibromyalgia "was all in our head". Both of my sisters-in-laws and I kept this as a secret between us since there was a great deal of shame to admit you had it.
Now I believe Fibromyalgia is a Red Flag symptom that points to toxins (sugar, vegetable oils, processed grains) inflaming our bodies and nervous system. I am glad to see that the stigma of having Fibromyalgia is finally being lifted as we are understanding more about Metabolic diseases. Thank you, Dr. Berry, for educating us to better health!
If I were to write a response, it would have been exactly what you said. I only hope at 60 I could start running again too. I'm on the real food diet now with no sugar and looking forward to finally feeling better.
This video is from two years ago but I hope You see my comment.
I am a 63 year old female diagnosed with Ankylosing Spondylitis in my 20’s (father =Family history) I was experiencing considerable pain in my long bones of arms and legs. My Rheumatologist diagnosed me with secondary Fibromyalgia. In 2012 I was diagnosed with Polycythemia Vera-Blood Cancer of which the symptoms mimic Fibromyalgia! My PV has since progressed to Myelofibrosis and I will be getting a Stem Cell Transplant in a few weeks. My advice… if it doesn’t feel right in your gut, believe it! Get a second opinion. Thank you doctor for taking the truth about this Fibromyalgia blanket diagnosis. People are suffering and doctors need to be careful.
In my opinion fibromyalgia is all of those things... Thyroid problems, adrenal fatigue, multiple auto immune disorders, kidney problems, bladder problems, insomnia depression, rhuematid arthritis, dry skin, digestion issues, chronic migraines .... The ones who suffer have all of these things at once... When flare comes every single symptom of every disease all happens at once. You are same whether you take any medicine or not.. When no diet works... That's fibromyalgia! Been suffering from last eighteen years.
I was also diagnosed, and I agree with you, but I got it all fixed, by taking prescribed Hormone replacement, thyroid replacement, magnesium, taurine, and ashwaghanda to lower cortisol/stress response. it took a year and a half to get cured, but I saw results within 6 weeks. its a bunk diagnosis for sure. all hell broke loose at menopause for me. 14 years later and I am fixed...
@@loneranger7573 thanks for sharing your experience. Very reassuring to know never to give up hope. I am still trying. Hoping that someday something works for me too. May you never be sick again and only get healthier from this point. All the best ma'am. 🤗
I've had Fibromyalgia (FM) for 35 years, and agree that those who truly have FM , suffer a multitude of symptoms all at the same time. Being in pain 24/7, even while taking Hydrocodone/Acetaminophen 10-325 mg tablets 3 to 4 times per 24 hours daily, does not make one pain free. They only bring the pain down to a more tolerable level where I can feel like a Almost Normal human being. Of those 3 to 4 times a day dosage, I must take one when I go to bed along with the 150 mg of Amitriptyline each night so I can get to stage 4 restful, restorative sleep, (stage 4 sleep is called REM Sleep) a symptom all true FM cases have. If you do not have the sleep disorder, you do not have FM. I've had the sleep disorder since day 1. I also developed Insomnia 4 or 5 years ago, (where one cannot fall asleep) and I take 15 mg of Temazepam just as I go to bed. If I take the Temazepam and don't immediately go to bed, it will literally knock me out, and I will wake up in the chair I was sitting in when I took it, 6 hours later.
I have had a multitude of different symptoms over these past 35 years, (like the TMJ pain and malfunction I once had, and Costochondritis, which is inflammation of the cartilage between the ribs and sternum. Some come and go, while others come and stay like the Insomnia has.
Yes, FM has a lot of problems, with the most problematic being government agencies like the CDC and the DEA. It's bad enough there are doctors who misdiagnose patients with FM, rather than admit they have no idea what is wrong with you, and don't have the foggiest idea of what questions to ask their patients. If they know what questions to ask, they might be more accurate with a correct diagnosis and correctly treat their patients, or their patients as receiving the wrong treatment whereas there are better and appropriate treatments available for other disorders/diseases, and as always, it is the patients who suffer.
Then there are still a lot of doctors who "do not believe in Fibromyalgia" and talk to you like you are a drug addict looking to score some drugs from them. I ran into one of those types of doctors myself 3 weeks ago, while I was looking to find a new doctor after my doctor of 33 years retired. That insulting doctor works in a pain management clinic!!
your opinion is WRONG
Ditto! Me too
Absolutely. I have had constant pain and infections, inflammation and surgeries since I was I child. Was called a hypochondriac by my parents. Was finally diagnosed in my late 50’s with a rare genetic disease.
Primary Immune Deficiency Disease.
I don’t make sufficient antibodies and started on Sub-Q Hizentra at home. I go to an the Immunology & Allergy Clinic at Shands Hospital at UF in Florida. You sometimes have to push to be your own advocate and find a doctor who will take more that 20 minutes to hear your whole story.
Mine took a lifetime to be heard.
I’m almost 70.
To bad all those years I could have worked and had a normal life.
I was also diagnosed with EDS, a connective tissue disorder: Hyper mobility, and Gastroparesis.
So very sorry you not heard all those years ago...
On so sorry! Could you tell me your specific symptoms please idk what I have
It took 16 years for a doctor to figure out that my fibromyalgia is because of Joint Hypermobility. I even spent 3 weeks at the Mayo and they never once asked me about my joints or did any kind of physical test. They saw fibromyalgia in my chart and just went with that. All doctors do. Once they see fibro in the chart, they’re job is done. Just blame everything on fibro. I’m done with doctors.
then likely you do NOT have FMS, you have joint hypermobility
Actually, everybody with FMS has abnormal joint flexibility. It IS one part of the diagnostic criteria. Pain, swelling, and hyperflexability of the joints. Fibromyalgia means pain of fibrous tissue. In example, I can turn my head WAY past what is considered normal. 😂
@@AshleySpeaks4U actually NON _F_ING SENSE! NO IT IS NOT A PART OF DIAGNOSTIC CRITERIA
@@AshleySpeaks4U from US NIH "A patient fulfills the diagnostic criteria for fibromyalgia if the following three conditions are met: The widespread pain index (WPI) is greater than or equal to 7, the symptom severity (SS) scale score is greater than or equal to 5, the WPI equals 3 to 6, and the SS scale score is greater than or equal to 9."
I had fibromyalgia with chronic fatigue as a diagnosis for 11 years before I finally got a cervical MRI that showed and rectified the diagnosis to cervical myelopathy, I almost lost my mobility before this happened. Fibromyalgia is the laziest and worst diagnosis that a Doctor, who is not willing to dig deep for a proper diagnosis, can give to his suffering patients
I was diagnosed with fibromyalgia through a process of eliminating other conditions that might be causing my symptoms, also high blood pressure. That was over 15 years ago. I am completely symptom free now after 4 years of Keto/Carnivore way of eating -- including the high blood pressure. Thank you so much for sharing such valuable, life changing information.
My rheumatologist concluded after a 20 minute zoom appointment that I must have fibromyalgia, despite having a plethora of other symptoms of autoimmunity. I didn't agree with the diagnosis, so he gave me an information video to watch. The narrator was a morbidly obese doctor, attempting to explain that there is no known cause for fibromyalgia and that the only solution is antidepressants. I haven't gone back to that rheumatologist.
Run 🏃♀️
My veins swell and hurt along with joint and muscle pain as well as headache every day for 3 years now and idk what I have 😢 I’m so sorry!
@@noellealdi881 if you are menopausal its low hormones sweetie. get HRT.
There is always a cause for an illness, but they don't yet know the cause.
You were my MD when I temporarily lived in New Johnsonville for the DuPont project you helped me so much when I moved back to memphis I found out it was hashimotos, Lyme disease and now lupus but YOU helped me get to a better place!!! Thank you!!!!
I was medicated for fibromyalgia, arthritis, and eventually connective tissue disease. Found out my vitamin D level was 7. Stopped prescription Vitamin D when my number went up to 50, and I now supplement with OTC Vitamin D and am doing exceptionally well.
I was dx'd with psychosomatic maladies and fibromyalgia for years before a geneticist discovered that I actually have Ehlers-Danlos Syndrome.
@Island Man 😍 Thanks! Will be adding K2.
@Island Man K2 doesn't do anything to D3. See the webpage: "The Ultimate Vitamin K2 Resource | - Chris Masterjohn".
My vitamin D was at a 7 too in 2017! I make sure to supplement and get outside.
There is no difference between your otc and prescription. Vitamin d is vitamin d. You want it to come from a good source. I can get 50,000 iu otc.
I received a “Diagnoses” in2006 of fibromyalgia without any tests!!! I’ve always questioned it but doctors here in the uk really have no real interest, once you have the label that’s it!!! Job done. I have looked in all my symptoms and I came up with thyroid problems, investigating further “ Hashimotos tyroiditis” I’ve been checked for thyroid a hundred times only to here your borderline ( I’ve been boarder line for over 30 years) I’m on my knees here! I’ve asked to be tested for Hashimotos but the dr has never heard of it , so I give up!!
Thank you Dr Berry for your strait forward way without the bull, it’s so refreshing to have a doctor talk to you like a human being and not a label
There are places you can go online and order your own lab work. I just did this for my husband and my annuals, but we live in the USA. I think there is a UK equivalent.
you would be looking for a full thyroid panel with the T3 and T4 with TSH & either add the TPO or wait to see how the results come out on the other one before adding it. These are done actual labs, your doctor's office should accept the results.
If your Dr. does not know Hashimotos get a new doctor.
Brilliant and simply conveyed 👍
Your doctor does not know what it means. OMG
Watch Dr. Berry’s videos on low thyroid AND on the tests your doctor needs to prescribe to get a full read on thyroid problems. TSH, the go-to test, is pretty useless for diagnostic purposes.
Fibromyalgia is often used by doctors to get rid of difficult patients. Insurance companies also love this diagnose because further tests cost money and a diagnose like fibromyalgia helps with acceptance.
@@AntonioDal. It sure wasn't the case decades ago. They used to refuse to believe fm is even a real thing.
I was diagnosed with fibromyalgia when I was 16. I am 34 now and believe it's been autoimmune all this time, finally been referred to a rheumatologist
I got diagnosed with fibromyalgia after the neurologist, rheumatologist and even podiatrist couldn’t figure out what’s wrong with me. They just said they couldn’t see me anymore and sent me back to my primary. I’m currently struggling to stay awake during the day and fight my pain, when people touch me I get horrible throbbing pain. Oh well. I’m only 24 and just graduated grad school. This just sucks. I am glad there are some doctors like you that still care. Many blessings to you and your family.
Have you been checked for Sleep Apnea? Fibro can be a secondary disease or a companion disease, if you will. It can be the result of another trauma in the body. Fibro can also come on after ptsd or emotional trauma, so it can be from either physical or emotional traumatic injuries.
Further adding to a misdiagnosis,such as fibro,if you change gp's or are assigined a different gp,and you disclose your condition or your knew gp reviews your history,,they never question the prognoses..I have never had any tests done to confirm my fibro in 30 years of suffering fibro. I am shocked beyond belief after watching this vidio that not one doctor in western australia,who reviewed my file did not question the means of the original diagnosis or note i had never in 30 years undertaken any tests to confirm or denie my condition...Appreciate the posting of this presentation doctor,the frustration of 30 years of suffering has transformed into a rage of anger towards every doctor i've consulted and who treated me with distain and arrogance that i should question the original diagnoses..Gp's in my country are ambivalent and become afronted should one question or suggest an alternitive condition or knew approach to confirm the original diagnosis..
I am in Perth a dr told me it's all in the head and don't need to go to support groups ..
Same experience here in the USA. 30 years??!
I'm so very sorry for your suffering. I spent the last 10 trying to figure it out.
Tell me tell me tell please what do I have? I’m 60 years old. I can’t do this much longer. I have the diagnosis. Yet, yet, I’m a hypochondriac. For shame on the medical institutions. For shame. I’m here to put a voice to all the Fibro warriors. I hear you all!!!
@tammyhanson7843 I was diagnosed with Fibromyalgia several years ago. I have been dealing with issues for almost 30 years. I think it has something to do with the hormones...
My inflammation is off the charts..
I was diagnosed with MS in 2013 after numerous MRIs. my neurologist said that my Myofascial pain was not from multiple sclerosis. So I went to another doctor and he diagnosed me with fibromyalgia. Who knows.?! What I do know is that no disease will ever define me. Thank you for all your videos.
I’ve had an MRI and it said it was fine, did your neurologists say the same thing at first?
I would love a video on fatigue & chronic fatigue/ME
That would be an interesting topic to cover. I got Mononucleosis when I was younger and have subsequently suffered from chronic fatigue for years now.
I’d been diagnosed with fibromyalgia. Once I significantly dropped carb intake to 20gm/day, the pain all over my body, particularly lower back, disappeared. Carbohydrates are thought to be pro- inflammatory. Lots of literature on it. In one sense you must be your own physician these days- do your research, from trusted sources only. This physiatrist asked nothing whatsoever about diet. Be your own advocate.
Thank you for making this video! I was diagnosed with fibromyalgia and chronic fatigue syndrome when I already have hashimotos thyroiditis and continued to have issues. I took it upon myself to go to an endocrinologist and found out I needed another thyroid med and I have Addisons disease. Not knowing this could have cost me my life. In my opinion that's malpractice. Listen to your common sense and if you feel like something else is going on then get it checked out.
Very good advice, thank you .
I wish I had a doctor like you. Thank you Dr. Berry
Most structurally comprehensive explanation on this subject matter! Thank you very much doctor!
Thank you Thank you Thank you!!!
Finally a Doctor that recognizes the fact that Lyme Disease can mimic Fibromyalgia. My daughter and I both were diagnosed with Fibro and we actually have Lyme Disease which has Fibro type symptoms.
Did any of you two have a rash by any chance?
The more I research the more I find that a lot of people get Lyme without a rash and it ends up "causing" things like Alzheimer's, Parkinson's, MS, Fibromyalgia and others. The estimate about 20% not getting a rash seems too low since all the others without a rash are simply diagnosed with something else or dismissed as being a hypochondriac.
What's concerning is that the tests for Lyme aren't very accurate and doctors will rarely, if ever, even go via the test route if a rash isn't present.
Fibromyalgia has a pretty predominant root in childhood trauma. I’m all for a clean diet. But diet isn’t the only answer.
This. All of this! It took 6 years for me to get a diagnosis of Rheumatoid Arthritis and Lupus. Made a huge difference once correctly diagnosed. What helps the most is KETO! ❤❤❤
As an occupational therapist, I find the diagnosis of fibromyalgia to be incredibly frustrating and confusing for my patients. If you break down the word fibromyalgia, it literally means “pain in muscle and connective tissue.” I consider fibromyalgia to be a description of a symptom, more than an actual disease diagnosis.
Poor posture and an imbalance of muscle group strength causes an imbalance of muscle energy and force on our joints. With this imbalance of force, muscle groups fire to correct the imbalance to maintain posture and strength for weight bearing. Constant and or repeated firing of a muscle or group of muscles in this manner does not allow muscle fibers to relax. Muscle contraction without relaxation causes the development of the painful “knots” or trigger points associated with fibromyalgia. The constant requirement of energy for these “micro” contractions can lead to fatigue, joint pain due to unbalanced forces on our joints, and headaches due to imbalanced muscle force on postural muscles.
I was glad to find out about high Oxalates in foods. I listen to Sally K Norton!
How do you begin to fix this problem when you've had it for decades?
@@vickieschultz4065 it’s hard to give advice without knowing your history and seeing you in person to assess where the imbalances are. I would suggest you look in to very simple, beginner’s yoga IF you are physically able to do so. If you are severely compromised, ask your doctor first. I personally like to begin working on core muscles and low back flexibility moving in what is called phylogenetic order(the neuro-muscular order in which muscles develop en utero), mobility on stability is the premise. You can’t correct problems in your neck and shoulders if your pelvis is weak and not supporting your posture.
@@vickieschultz4065 one step at a time. It’s inflammation in the body. There is a woman who ended up in a wheelchair and at age 62 became a marathon runner and from my understanding is still one at 72. Look up information on Thaddeus Gala. It is his mother that he helped get out of the wheelchair, off her medicines and got her life back. It’s all about the foods we eat. Plants are truly toxins. Also check out Sally K Norton. She knows how toxic vegetables are and some can actually cripple you. The good thing is meat and good vegetables in low oxalates will help you. The first thing I recommend to the people in my health and nutrition class is to stop all grains and processed foods. Those who have done this is truly amazed how they start to feel and are so happy. Like I said one step at a time! God bless.
@@vickieschultz4065 It could be with light exercise and food.
You hit my two right on the head, under-treated hypothyroid and anemia. Thanks Doc, shared to my fb.
My diagnosis was spot on. My team of doctors did a wide variety of tests and extensive bloodwork to eliminate other conditions and what was left, plus, the symptoms I have/had made it very clear that it was fibro. I don't feel I am stuck with it all. I am totally relieved that I can now live my life knowing better what it is and what can and can't be done for my condition. I don't treat it with any pain meds unless it is a really bad flare. Then an ibuprofen for a day or two and that's it. We are only "stuck" if we decide we are.
Have literally yesterday been given a tenuous diagnosis of PMR and have been watching Dr Berry since Xmas, have had numerous tests and scans, ultrasounds etc and am waiting on another scan to try and hone in on my inflammation source. I went Keto after the first video and have kinda morphed onto Carnivore this past week, and am already seeing slight easing of symptoms and weight loss. I’m seeing these videos as something I can do to help myself, I’ve cut sugar, wheat etc found doing both very easy as I dont have a sweet tooth and I’m absolutely 100% up for starving my inflammation of sugar !! Love these videos and am suitably reassured my doctor has done everything she can diagnostically so far and continues to do to find out what my issues are. That’s the British NHS for you, and I consider myself grateful cos if I’d be living elsewhere on this earth I hate to think what it would have all cost. Dr Berry is worth his weight in gold because I’ve been able to educate and help myself to turn things around. 🙌 🇬🇧 ❤️ 🇺🇸
Physicians love to label with fibromyalgia and chronic fatigue syndrome…..much easier than finding the root cause.
For me it was Hashimoto’s…. I had to do all the detective work, but well worth it.
Eating clean ketovore and IF along with natural desiccated thyroid medicine and I’m a new person….
Are you hypermobile or was as a child? Hypermibile Ehlers danlos syndrome..took me 12 yrs to get tye diagnosis.
Doctors put a label on something and say there is no known cure. So they look good and get you hooked on drugs.
But at least 95% of the time the cure just involves a change in diet and lifestyle.!
Well I feel so fortunate my doctor sent me to so many test & MRI's including brain scan before she diagnosed me with fibromyolgia. I had never even heard of this, but now I feel so much more confident in my doctor. Thank you!
I was diagnosed (19yrs old) with Fibro in 1999 after a 13 car pile on a 7 lane highway. I’m extremely lucky to be alive. But, it changed the course of my life forever. I was a normal healthy person before the accident. Tests showed my discs were all blown out in my lower back from L2, L3, L4, L5, S1….slowly over a few months developed alllll the FM symptoms. But, back then…I was crazy, it’s psychosomatic or I’m just exaggerating. But it was a massage therapist who figured it out. If I were to the tell you the last couple decades were/are very difficult, well, that would be an understatement. I had every test possible on me that could be done & nothing was found. And just 2 years ago I had a full blood work up with 8 pages of results for every condition & diseases known to man…all negative…accept for one. I diagnosed w Hashimoto’s (my entire maternal side has thyroid disease)…I’m not on synthyroid yet. I was the only one who seemed to not have thyroid disease & surgery in the family. Well, I have it now. And my disc ruptures (20+yrs later) have turned into full blown degenerative disc diseases. I’m 42 with the spine of an 80yr old. I’ve consulted w the top surgeon here at a NYC hospital & he says he can’t fix it w surgery. The odds are too risky, but I could have a percutaneous discectomy.
Currently, I do yoga 6 days a week (& teach), always have eaten pretty healthy & see any docs needed. I haven’t been to PT in many many years.
Any Fibro patients out there reading this, listen to me please, you MUST try yoga. It will be difficult the first few weeks or months…but once your body adjusts, it will change your life.
And doc, if you have any thoughts or advice for me…it would be greatly appreciated. I’ve been through the ringer.
The scariest element of this for me is that once I received a FMS diagnosis, the VA has used this to ignore all presented symptoms regardless of origin.
Truly sad....but thank you for your service!!!
I was fobbed off with fibromyalgia when I actually had hypermobile ehlers danlos, small fibre neuropathy ( diagnosed by ienfd nerve biopsy) and psoriatic arthritis amongst other things. I am now in the process of looking to sue my previous dr for misdiagnosis
Thank you for including Lyme Disease in your comments.
There is no medication for fibromyalgia. There are some meds that Dr.'s will prescribe off label, don't take them. They may help very little, for a short time, but not long term like we need it. They cause worse side effects than they are worth.
The only thing to helps is diet, some light exercise and therapy, to help deal with the depression, that being in pain, losing our mobility and social life, that fibromyalgia causes.
I am recently diagnosed with fibromyalgia. My doctor fortunately took alot of test, not once but twice with 3 months in between. Took all the blood test needed including blood sugar etc. Rheumatoid test as well. I was then refered to the rheumatologist and the rheumatologist took also alot of blood test needed and had ultrasound on my joints. He did not care if my regular doctor already took a lot of test. He wanted to get his own tests. The rheumatologist also gave me an assignment, he gave me information about fibro and asked me to read and research to see if all of my symptoms are the same with fibromyalgia symptoms. I have read alot about many differents diseases that can mimic fibromyalgia. No matter how many times I read its only fibromyalgia that fits my symptoms and I hate it! Went also to the neurologist. Checked the nerves and muscles.Took also MRI. All tests are normal. Then I got the diagnose. But I wish there is a test that can prove fibromyalgia. So people wont think that I am faking it or something. Im glad I have a good doctor. We have tried sarotex and gabapentin. They are not working. Im trying to exercise carefully atleast. Im also glad that my doctor does not push me to take opoids or other strong meds. She seems to be very careful and care and a good listener.
That’s awesome that you have great doctors! Do you work full time or part time? I’m 20 with really bad symptoms and I don’t have enough energy to work full time
You missed GLUTEN INTOLERANCE - I was diagnosed with FM back in the 90’s - yes - anemia from GLUTEN INTOLERANCE was there too - but once I got rid of the gluten, and other inflammatory foods, I was restored. I also had SEVERE DEPRESSION when I was eating gluten. I also had unresolved Candida albicans problems - and Lupus, MS diagnosis’. Dr. peter Osborne really lays all this out also in his book “No Grain, No Pain”. Thank you doctor Berry, you are a great doc.
Here's another issue related to Fibromyalgia that I have noticed with patients who come for medical imaging for various reasons and who mention they have Fibromyalgia . Despite being maxed out on virtually every painkiller you can think of - they still have pain issues . This is sad for me to see and terrible for them to live these lives dominated by chronic pain .
CONGRATULATIONS on the new Family addition on the way. I wish you and your Bride all the happiness and good health during this special time ! ! ! Love every minute with both of your children. You only have them for a moment until they are off to college and their own life ! !
I have reversed my "fibro" with PHD. I have found that if I eat anything with seed oils the pain starts up within 2hrs. If I miss it on the label my body tells me about it. The fatigue that I've had with it is cured and only comes back with a sugar binge. I also had anemia and severe abdominal adhesions from surgery that was causing a lot of pain. Surgery for adhesions helped but I wasn't cured until PHD.
I don't eat any seed oils, no carbs or sugar and it does help for sure
What is PHD?
Jackie Morrison
PHD is the Proper Human Diet. Dr Berry talks about it a Lot.
@@jackiemorrison6024 As mentioned by Roberta PHD is proper human diet. It takes commitment but it has been worth it for me.
Processed seed oils are a mitochondrial toxin.
I was diagnosed with fibromyalgia after being tested for RA as well as Lupis. Don't remember any test for thyroid. I suffered with waking up in pain. multiple times a night for nearly 20 years. Went to a naturopath doctor, she did all sorts of tests. Found gluten to be the culprit and eliminating that had me better in 6 weeks. She told me fibromyalgia was a "garbage" diagnosis given when they don't know what is wrong I believed her! Thanks for this helpful information and for all you do for people everywhere. We must be our own advocate in our health.
Can i talk to your doctor somehow?
I don't believe it is garbage, i did read a book by a GP who had FM himself.
About to phone a friend with this video Dr Berry. Thanks so much!
I was diagnosed with Fibromyalgie yesterday by my rheumatologist. I have been suffering for five years from cronic pain all over my body. I have also been suffering from PTSD and a cronic depression since my childhood due to severe abuse. And I have also autoimmunity skin disorder called litchi ruber.
Hi everyone I will add to this list primary hyperparathyroidism. This can be diagnosed by bloodwork of calcium level, vitamin D active form and parathyroid hormone level all with the same blood draw. Thanks!
I was diagnosed with FM until finally many years later another Dr tested for lyme disease because I was having dementia like symptoms in my late 30's, the tests showed I was positive for lyme and multiple co-infections.
No, I had pretty much all those things excluded when diagnosed 30 years ago, but then was stuck with the helplessness until I found keto 6+ years ago. When I stick to it properly (98% of the time), pain pretty much gone
I was in a bad car accident and my pain only worsened so was told I had fibromyalgia but no testing or meds prescribed. 6 months of PT healed me.
PT combined with PHD is my daily routine. I am very disciplined. I am 70. God has richly blessed me.
I believe Fibromyalgia is secondary to a primary diagnosis. This is what I have always believed.
I was first diagnosed with Lupus disease then almost immediately changed to fibromyalgia. Ten years I suffered at the hands of incompetent doctors and pharma. The antidepressants were cruel and debilitating to say the least. Dr. Berry and keto saved my life. I was so depressed and in pain. The pain meds were handed out freely then pulled from the public. Mad 😠😡
Are you doing great
This is definitely true. I went through multiple blood tests and imaging before I was diagnosed with fibromyalgia- and I'm still taking blood tests every few years because Rheumatoid Arthritis runs in my family, but test positive for RA factor only about 20% of the time.
I was working with a doctor to try to sort out the cause behind my pain and inflammation a couple years ago. She ruled out a lot of things with various blood tests, but didn’t diagnose me with fibromyalgia because she still couldn’t fully rule out psoriatic arthritis. With her I started to change my diet and that combined with physical therapy the pain has decreased. She moved and the doctor who replaced her has been less than helpful in general so I have now focused more on improving my diet while working with a dietitian who works on sorting out food intolerances.
I was diagnosed with FM in 2010. After I had my son in 2015 at the age of 42, my FM became so severe that I actually considered trying to pursue disability because I was minimally functional. I look back and I have no idea how I made it through those days. I got amazing relief from low dose naltrexone but then I tried the carnivore diet. Honestly, it is life altering. Now, I take only one aleve per day and I am good. I feel like a normal human again. I still have some pain issues but they are manageable and I am so thankful.
When I maintain a keto/carnivore diet, yes! When I slack on it I am reminded of why it is so necessary. Thank you for asking :)
Taking an Aleve everyday is dangerous, I used to take an ibuprofen every too
Took 5 RA doc and 50 years to figure out. I have thyroid disease, psoriatic arthritis and psoriasis , neuropathy. Got off all meds working with diet.
I FORCED my doctors to do an MRI, spinal tap & tons of blood work done (over the past 6 years). Unfortunately, I do have Fibromyalgia, Raynauds, Erythromelalgia & Depression. Life ain't fair! BUT, the Keto diet has helped me a LOT, for all of my conditions 😊
I have been trying to do keto on and off for the last six months and I can’t stay there. I’m wondering if it has to do with parasites or worms. Do you have an opinion why I can’t do it when eating healthy is my favorite thing to do?
@@sandyk7611 I'm so sorry that it's been hard for you ❤ how does Keto make you feel?? Is it hard to stay on it, from the dreaded "keto flu" symptoms??
@@sandyk7611 I had to add electrolyte powder (I drink it once a day), probiotics, vitamin gummies, magnesium & potassium supplements. Once I added all of that to my keto diet, I started to feel amazing. We have to add all of those, since our bodies no longer naturally store them (like our ancestors once did), since the integration of the "modern diet".
@@myawallaceee yeah I take pre-and probiotics it’s in one actually and I don’t think I take the correct magnesium because I’m still getting muscle spasm I’m taking magnesium L-threonate. I take magnesium gluconate in the evening and I think I’m supposed to take the Malate version for the muscle cramping. Agreed on meeting of the supplements I take a methyl B folate with MTHF. Yeah our food isn’t really supplemental to our bodies any longer. Some say oh don’t rely on supplements. Ha! well we don’t rely., we add them because our soil has been turned so frequently because of the populations excessive growth. that the soil is no longer growing us even the organics is not growing us the nutrients and minerals we need.
@@sandyk7611 so true!! It's so sad, how poisoned our food has become. I had the muscle cramps, headaches and irritability for about 4 weeks, before it all subsided. What's the longest that you've been able to stay on keto?? For a while??
Oh yeah Dr. Berry. I was diagnosed with Fibromyalgia and I told my doctor that the majority of doctors do not believe such a condition even exists. What I did have was pretty bad depression.
What were your symptoms?
Please mention all of them?
I have 2 questions in relation to what you have said Dr Berry
1) when you say diagnosed on smyptoms & history ... what medical history are we talking about.
2) For the 35% who have a correct diagnosis of fybromyalgia .. what help is there?
I’ve just been diagnosed with fibromyalgia, all my blood tests were good, my cholesterol was a little high, I can get that down with diet. I’ve had awful pain, can’t sleep with the pain, fevers and hot flushes come over me a couple of times a day.
My mother had Scleroderma and thyroid disease, my sister also has thyroid disease.
Dr Berry has a very good point here, it gives me something to think about. 🤔 Thank you Dr Berry.
My diagnosis only came after 30 years of exclusion, re exclusion, re exclusion, depression depression depression... I'm sure, whatever it is, I have it, by whichever name. Praying for all coping and learning to cope 🙏🏻🙏🏻❤️
Correct, blood work, CT scan, MRI....many tests must be done before diagnosis.
Dr berry i learn soooo much from u. Thank you / from the top of my head./ to the bottom of my feet. I've started with a new dr. ( very soon.) I hope i can address some of these issues I have been going through for a long time!!. Bless u & yur family. Keep on telling us what the drs don't want us to know. We r not doctors.... HAPPY HOLIDAYS..... TO U/ & ALL.
I was diagnosed with fibromyalgia in 1999 and have felt there's something else wrong. However, I have apparently very good doctors who tested repeatedly over the years for all those issues mentioned and more and I'm negative for all issues mentioned. Im hoping the ketotcarnivore helps my fibro pain and inflammation! I'm 49 and currently only on my asthma meds (lifelong) and 1 med for trigeminal neuralgia. Thank you, Dr. Berry!
Thanks for your honesty Dr. Berry. I believe most people just listen to their doctors. I don't. The way I see it is I need to take my own health into my hands get the needed tests and if a doctor throws drugs at me I go to the Health food store. Natural products.
I absolutely do not trust doctors. I do always my own research.
I was damaged with Chronic Fatigue Syndrome and Fibromyalgia from the Hong Kong FluVac*cine in 1971.
I was told 15 years ago I had fibromyalgia, a year and a half ago I was diagnosed with hypothyroidism that had been telling my doctors for 20 years needed to have more tests done other than tsh, because my hair was falling out and not growing back in, half my eyebrows were gone and so on and so forth. They wouldn't listen.
That said, I still have days that I get that pain back and I have found that it is usually when I have forgotten to take vitamin D3&K2 for a while.
Did you get your B-12 levels checked? Hair falling out can be a symptom of low B-12. If you have acid reflux or are taking antacids could be symptom/cause of low B-12 absorption.
Doctors are stupid. Omg
Congratulations on new Baby. love 7/3
Outstanding coverage of symptoms for proper diagnosis and treatment of maladies mentioned...a wake-up call to serious care and, recovery from multiple issues!
I was just diagnosed with fibromyalgia even though my labs came back as ANA positive and high anti-dsdna. I really feel like what I actually have is Lupus.
I have been researching my diagnosis of fibromyalgia. Perimenopause also shares many of the symptoms.
So far every rhuem I've seen goes straight to Fibro. No tests, no imaging, no physical exam (or a weird biased and uneven exam)....but "they know" I have no inflammation (even though I have chronic high crp and esr), damage, or anything else. If I hadn't pushed for tests I would be dx as "just ibs"....turns out I have celiac disease, gastroparesis, sibo, gerd, gastritis, esophagitis. I also would have been told "just allergies / eczema"...after pushing I confirmed polymorphous light eruption and chronic spontaneous urticaria (def prob something else...but xolair treatment is helping a lot). But gotta love that those bad rhuems put in fibro dx into my chart....and I can't get it removed. So every new doctor I see....who sees that treats me differently so my fight for medical care and tests is now that much harder!
I have fibromyalgia, lupus, ra,sleep apnea, depression, but I was Diannosed with all theses before fibromyalgia.
That may be the case. But at least it is finally a diagnosis. Fibromialgia is often only diagnosed after many years, sometimes decades, after an odyssey through doctors' offices. So it's good to finally have a diagnosis that leads to the prescription of medication, which often provides relief. In this sense, it doesn't really matter whether the cause is actually something else. The main thing is to feel reasonably well again after a long period of suffering.
This is quite worry, and I had wondered about this more lately. I’ve more recently had many v bad leg and hand cramps, can’t get more tests here right now. Thanks for posting this.
Yep....later started D3 and magnesium which got rid of symptoms. D level was 16 ng.
I had all the symptoms of Fibro that ruined my life, then tried Keto and all symptoms gone. In the end i found that i have Celiac Disease that caused also to all the Fibro stuff
I thought I had fibromyalgia and went in had labs done and was diagnosed with Celiac Disease. Going gluten free wasn't enough to feel better. I went carnivor and finally felt better! Eggs seem to cause my joints to hurt so I limit them.
Hi I have fibromyalgia too many years along with interstitial cystitis, like many people with fibromyalgia I have been constipated since a kid did you ever have a problem with constipation? I am considering this diet but when I try to do just meat or even a lot of meat with veggies I get very constipated especially red meat. I’m just wondering if you had any constipation and how you deal with that when you are on a carnivore diet thanks so much I appreciate from hearing From you if I can deal with the constipation I’m hopeful I can get better like you. PS I know all the constipation tricks none of them work if I eat red meat.
@@lindapelle8738 yes I did have constipation before my diagnosis and it swung the complete other direction when I went carnivor but after 4-6 weeks that resolved.
That’s interesting, I’m celiac and have fibromyalgia, I’m in pain every day. I eat eggs every day, I love them. Maybe I’ll try cutting them out of my diet and see what happens 🤷♀️ I’m also going keto, trial and error I guess.
I found out I had an egg allergy a few years ago. It causes the glands in my neck to swell and then several hours later I get bad joint pains.
Dr Berry you are my GO TO MD....and I'm a nurse
As someone who suffered from (heart issues) mis diagnosis and diagnostic assumptions videos like this are critical. Dr.s are too ready to write a script and rush you out the door..
Because of the knee jerk response to my Symptoms, I needlessly suffered for 10 years, dozens of hospitalizations and led to permanent damage.
Thank you
Thank goodness thug is so try j
Why don't other doctors see this why dont they bother to check. I ha e been saying this for years thank you Dr. Ken 🥰
I suffered with fibromyalgia for over 30 years. I also had interstitial cystitis ( chronic bladder pain). After I heard about oxalates from Dr Anthony Chaffee I went Carnivore and all my pain disappeared within a month.
You are a great doctor.
I recommend your channel to a lot of my patients. So much good information for people to learn.
I met someone who used to work at the drug company with the original fibromyalgia drug. She said they essentially took a drug that was originally slated to help with something else that didn’t have a good outcome, put together a list of the symptoms it did help with, and literally gave that cluster of symptoms the name of fibromyalgia.
I don’t know if this is true or not, but it wouldn’t surprise me.
Lyrica? This is true about alot of drugs. Most don't heal.
It’s all smoke and mirrors
Gabapentin is used off label for nerve pain. It's used originally for Epilepsy. It's a horrific drug regarding side effects.
@@staceystrukel1917 of course prescription drugs don't heal anything. A cured patient is a patient never to be seen again. The prescription drugs manage some symptoms of the disease (while also giving side effects that are uncomfortable at best and fatal at worst).
@@Ethericrose i don'tt have the side effects and it works fine for me even though i don't have fibro but have small fiber polyneuropathy.
with me i only take 900 mg a day. many doctors over load there patants with 1600mgg or more and this leads to the side effects.
Diagnosed with Fibromyalgia 3yrs ago, in fact I had Ehlers Danlos Syndrome. As others have said, not once did a doctor check for hyper mobility. Not once in 30yrs of symptoms. I had to do investigation work myself to land on a diagnosis of EDS, then pay a Rheumatologist privately to confirm the diagnosis. Soul destroying. As my EDS hasn’t been managed, I’m left in constant pain with constant subluxations. They don’t give a damn. 30yrs of medical gaslighting
I was dx with Fibromyalgia then dx Parkinsons Disease 16 years later, symptoms very much alike
Same thing with IBS. I think these two diagnoses are inhumane, very sicken diagnoses. Imagine a diagnoses that doesn't tell you what the problem is... What kind of frustration insult is that?
Sounds like I was probably correctly identified as having fibromyalgia since I was run through a ton of testing for 3+ years before being diagnosed. Still, it's good to know what can be mistaken for fibromyalgia. Thanks for the insight!
Why do I get wiped out for days, like my body and mind are heavy if I do anything physical like a few hours of housework or take a 45m walk.
Sir, perhaps you missed one. All my symptoms of fibromyalgia disappeared when I reached a normal body weight. Being fat was never anything my doctor considered. Thank you for this short discussion!
I was diagnosed. Dairy was the root cause. Fecal Microbiota transplant cleared all out and I can consume dairy without reaction now, fibromyalgia, brain fog... whatever it can be called. It looks like all these conditions are named based on symptoms and not the root cause. The root cause is dysbiosis, why FMT has worked so well on many.
To late for us. You couldn't even imagine. But I do hope this can be a wake up call for others now.
God Bless you and your Family Always.
I had severe Fibromyalgia symptoms - I cured myself after years of pain, for me Fibromyalgia was caused by leaky gut and gut parasites, i did a gut cleanse, killed off gut parasites, healed my leaky gut.
Then of course follow a Keto?Carnivore diet.
Thyroid fine, yes I do have RA , ankylosing spondylosis and herniated disc in my neck. Reversed diabetes ! Limited carbs and refined sugar. Neg for Lyme.
Something else to consider: read Dr. John Sarno's healing Back Pain or any one of his books.
Severe emotional stress (including depression, as you say) can also masquerade as Fibromyalgia.
I was just going to post this. Fibromyalgia is a tough one, and many people here have found the cause of their pain, and often their pain is not really fibromyalgia. But indeed it can be TMS, which you and I know is very real. Dr. Berry's advice is straight on, you MUST be checked out for everything else it could be instead. After ruling everything else out, one could start thinking psychologically.