Fibromyalgia: from fiction to fact and to the future - Andrea Nicol
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- Опубліковано 18 чер 2018
- In her keynote address at the inaugural Fibromyalgia Health & Wellbeing Summit (Dublin, 2018) Prof. Andrea Nicol provided historical perspectives on fibromyalgia and how recent rigorous and robust research methods have been used to determine what is felt to be the cause of fibromyalgia - central nervous system pain amplification.
She also discussed well-described treatment options for fibromyalgia in addition to exploring emerging concepts and treatments for this challenging and complex pain syndrome.
It’s good to know someone with a medical degree believes that fibromyalgia is real. It’s terrible to have no one believe you..:(
I got noravirus really, really bad to where I was bleeding from the gut. What it left me with was fibromyalgia and a bad case of it. Now this covid virus that gets in the gut and nerves, muscles can leave a person with fibro. Fibro is leftovers from a nasty virus.
So agree and so painfully true!!!!!
Agreed. It's harmful to your psyche, which is already traumatized from the chronic pain and illnesses accompanying fibro
Agreed. I Especially am annoyed w drs who wont admit they arent God.
@@cilandialane3084 so sorry for all you go thru
"you are not making this up and it is not because you have depression or anxiety"
she has me sobbing, no physician has ever validated me in such a firm way, bless her
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
Bri Bri
🙏🏻✨ ❤️
🕊
Bri Bri, interesting how you say that: I too was 😭 because Dr. Nicole validated me over a UA-cam video more than most doctors. I have Lyme disease 😔
@@Pauline_mrt The very latest theories in Chronic Pain are that trauma , including psychological, car accidents, surgeries, etc can bring on Fibro. If you go to the Curable page on FB and listen to interviews by Dr. John Stracks, you'll begin to see the mind-body connection. The Curable app, $5 a month, is extremely helpful. Just my 2 cents, but the Curable program has helped me immensely. Take good care.
I’m in tears watching this, I have just been diagnosed with fibromyalgia about a week ago after having the worst flare up in my life; I ended up being hospitalised. I have spent so many years seeing different doctors about my widespread pain but no one believed and thought that I was an attention seeking melancholic crazy woman. It’s really reassuring and hopeful that there exists a doctor like her who actually understand this terrible condition. Thank you for this and good luck to everyone going through this same struggle.
Have you tried Lyrica? This worked for me.
I was diagnosed around thirty. I am now seventy one. I have been on Lyrica on and off. The ins. Wouldn’t pay for it. I’m on it again and what a difference it has made.
Do you happen to have hypomobility.most if us do if you do your highly likely have Asperger's or add ADHD low dopamine receptors I have them.all.sidnt no
Please try prolotherapy
@@ashwininarkar9988 has it helped you
OMG... HOW I WISH SHE WAS MY DOCTOR! This is, by far, the best lecture i've heard on the subject. ❤👍👍
Fibromyalgia is the pain that keeps me up at night that leads to fibro fog, which leads to making dumb decisions, which leads to anxiety and depression, which leads me to more fibro pain. No one in my area treats fibromyalgia so these videos are a great help. Want my primary care doctor to see this video and treat me. Wish me luck!
Same here. No doctor seems to understand my condition. It feels like I can’t explain them either
I completely understand. Keep your head up ok. Ppl that HAVE Fibromyalgia, KNOW what you mean, feel, are saying, and sometimes probably even thinking.
I got better when I cut out candy and a terrible food additive called titanium dioxide which is in all kinds of things including toothpaste
@@puzzletherapy4u Thank you. I have cut out sugar, which helps but did not know about titanium dioxide. Will be checking labels closer
Me also. I want to show mine. I’ve never meet but one doctor that care enough took time to explain what they could
I'm only 25 and it feels like I'm in the body of an 80 year olds :'(
I used to be free and live life to the fullest , now I could never imagine what life was even like without being in pain 😢
I feel you 😔 It really takes a toll on you mentally just as much as physically 😭
I know what are talking about. Been suffering with this condition about 10 years. After I gave birth to my twins it got SO MUCH WORSE and I couldn’t function without medications. Praying for new researchers and meds
Same here 26 years old and I had pain all my life. It really sucks
jj i totally get you
Same 😔
May all who read this know that people are praying for You. God Bless.
Thank you
Thank you. God bless you
Amen xoxoxox prayers are needed all over the world
So appreciate all this information, and just to hear that you understand. God bless you Dr.
Thanks so much, God bless you.
I’m a British male of 79 years and have suffered from fibromyalgia since 1962 when in a crushing accident I broke my Back in 3 places fractured pelvis and multiple crushing in the stomach. That’s 57 years of pain and doctors think it is all in my head. I was diagnosed by a rheumatologist in 1995, but there is no pain relief. You are a pleasure to listen to and thank you for caring.
Plz give me ur email or fb id i want to take some tips frm u about life ahead with this beast on me..
Mike please look into kratom. It helps tremendously with chronic pain management and fatigue. It acts like opiates on the brain while being completely non addictive and nontoxic. Also cannibanoids cbd and thc. It helped me when I wasn't sure I could take the chronic pain any longer. I also have sciatic nerve damage along with severe joint pain. Kratora is a great vendor! Sending much light and love 😘💞🌈
Norm if you'd like to believe in the lies that the medical industries say about natural medicine then by all means continue with your ignorance. The benefits of plant medecine and the ability of our own minds to rewire our neuropathways are documented. Dont tell me not to share the truth because of your own ignorance. Stay stuck in the lies society tells you but I'm not going to deny people the validity of natural nontoxic plant medicine when people are living in pain. Dont bother answering because I don't exchange ideas with people with closed minds
@Norm Meunier diabetesinsider.com/kratom-and-diabetes/
Read. Research. Free your mind from the lies about natural plant medicine. It's the only way we can start to heal. Norm stay in your ignorance but dont ask me to spread your lies
@Norm Meunier sorry you don't want to hear the truth. But i won't deny ppl in pain natural medicines because you prefer to believe in lies. As i said remain in your ignorance but dont try to censor the truth PERIOD
It's so wonderful to see a physician who sympathizes with their patients and makes a big effort to show compassion.
She is adorable and respectable and a breath of fresh air.
No compassion blames it on President trump.
Shapiro's DEAD Cat she’s the best!!!!!
I finally feel validated!
@@samipearl9177 *Yes, she lost all authenticity when she did that. She needs to grow up and put her big girl pants on. But what do you expect? She is from a liberal college where they are brainwashed. Of course President Trump caused Fibromyalgia, even though it's been around for a long time. I suppose it's President Trump's fault that doctors misdiagnose it over and over again.* 🙄🙄🙄🙄
When a doctor asks where do you hurt and what is your pain level? I want to ask which part of my body? I want to say my shoulder is a 8, my back is a 7 , my neck is ...,
And I agree, just shopping for groceries is hard because of the bright lights, background noise, and over stimulation and too many choices to make decisions
i do home shopping but having to put it away takes me for ever and i ache so much doing it
This is all old bullshit information and nothing she has stated works for those of us with severe pain. Lip service!
So true! This is me everyday no one really understands
O my word you have me in tears I could not understand why I hate shopping and can't handle noise or lights and foggy mind can't remember things can't focus, I for years thought I was just stupid. 😭😭
totally
My goodness. An actual human doctor. I live in the Netherlands. Pains started at the age of eleven. Was researched by a reumatologist at 12 and 21 and again at 31 when I finally got the diagnosis. The doctor said: I'm sorry, there is nothing we can do for you. I could go to a rehibilitation centre. I went there. Never met such cruel doctors and after the talk they said: we cannot help you because you have a mental illness (PTSD). Obviously they didn't care about the fact that so many fibromyalgia patients have trauma's. So, here I am, trying to manage my life with no energy, pain everywhere, unable to concentrate. Good luck to everyone struggling out there.
Have you looked into Ph Miracle or Alkalize or Die?
Welcome to the club!
I’ve been sent to cardiologist, gastrointestinal, gynecologist, surgeons, and physical therapy. I believe I’ve have this long before I was diagnosed. I did the research and went to my doctor. 😫But God! 🙏 Thank you for this! This pain will make you think you are crazy!!
Nice to hear from someone who actually accepts that the pain is very real and actually wants to help
I have had fibromyalgia for over 20 years ago now. My doctor told me not to put myself in a wheelchair, to keep as mobile as possible. He said that fibromyalgics don't develop arthritis. Well guess what, I have developed osteoarthritis throughout my body and have to now use a wheelchair because I cannot walk very far. Most doctors do not understand this condition very well. Xxx
I have OA and fibro, too. You are correct that we can have both.
😞
I had my former rheumatologist diagnose me with Fibro, and in the same breath say "There's nothing I can do for you." Then he walked out of the room.
Unfortunately similarexperience
Same
Sad
Same happened with my rheumatologist, seriously after that I sank in depression
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
My Fibromyalgia is severe, chronic, completely debilitating, overwhelming and all consuming.
I struggle to function, I lost my job & hobbies & I no longer socialise.
Obviously this basic presentation doesn’t cover many/all symptoms.
Fibromyalgia instantly aged me 30-40 years (that’s what it feels like to me!)
Luckily more awareness is progressing, but this condition screams out for more research, understanding, therapies & treatments, especially a holistic approach.
I never have ‘good days’ only ‘slightly less horrendous/extreme days’!
I feel Fibromyalgia has robbed me of an active, sociable, productive, happy life.
Fibromyalgia is a cruel and hidden condition.
Some sufferers have very mild symptoms.
Other such as myself have overwhelmingly severe and chronic symptoms.
I am now disabled.
It has robbed you of a good life. I feel sorry for and believe you.
I'm in bed 24/7. Only when I'm hungry or need to pee enough so stomach or bladder ache overrides fibro pain, getting up doesn't seem like so much torture.
I’m watching this in tears! This wonderful, blessed doctor actually understands and SEE’s us! She sees ME! I wish she lived in Oklahoma or could train our ignorant practitioners here! It would be worth it to drive to Kansas for treatment! God bless you!
Me too. In tears and in desperate need of the individual to understand it.
Right Oklahoma needs people who understand us mine is so chronic and I’m so young it’s terrible
Doctors are not gods. They often don't know the cause, don't have cures, and don't understand what drugs do. Many over rate the medical professionals, and have false hopes for mitacles from pharma. But they do much research, and we hope that they know better than us about diseases.
TEXAS NEEDS doctors that will really diagnose and treat the disease. I have had it since I was little and I am 67 years old and hurt all over all day. Thank you for believing in us that have it.
Me too😢
Would travel from here, The Netherlands, to see here.
It hurts when people don't understand what your going through because you have no scars etc and they can't see anything wrong they just don't get it
it really hurts
This fkn sickness destroyed my life. Every second pain. 💔
Same.
My husband was just dx with Fibromyalgia :( I feel bad not believing his pain
@@vjcarter4657 trust issues? Or you understand now but didnt before? Ive had many people not understand and lost many friends. I realized i was the glue to my friendships. What people see and whats real are different things.
@@dana102083 I do struggle to trust my husband, because he has been a drama queen about stuff before and he hasn’t been honest with me at times. I have an autoimmune disease so I understand the invisible illness. I can see his pain is real.
@@vjcarter4657 maybe in illness you will bond more. I know it has for relationships for me too. Diet has really helped.me in my journey to more health. Have you tried the aip? I do ketogenic eating 3 yrs now and many people with autoimmune issues have been helped. I have a group to info share but feel its a disservice not to share. Be well 🙏🤗🖖
It’s so refreshing to see a medical professional who doesn’t try to make it “psychological”. No, feeling like I have been beaten with a baseball bat all over is NOT just “psychological”❤️❤️❤️ Love, light, and healing for all that suffer with this awful disease.
ecf.cofc.uscourts.gov/cgi-bin/show_public_doc?2014vv0898-141-0
I wish I had a Dr like her to treat me for my Fibro. What an understanding physician.
She's the best! I see her also for my nerve obligations!!
My GP is an absolute jerk. It's all in my head, he said. Can you believe that? This woman is a gift from God.
Sheri H Where is she located?
@@jodiosborne5056 Kansas USA.
@@jodiosborne5056 located at KU THE PAIN AND SPINE CENTER
I want to hug and thank this Doctor! Validation is everything!
Thank you. I am 78 and this is the first time that someone understands the problem. Sound, smell, and pain since I was a small child has made my life hell.
Plus not being able to.get a good night sleep. Sometimes not sleeping all.night.
Absolutely!
I hope you all know you are not alone. I have felt so alone since my diagnosis. Thank you to everyone who understands.
❤
❤️❤️🏴
Sending u a lot of love too Flowersformeezy
This doctor is a breath of fresh air. That is coming from an RN who feels similar motivation. The recognition of the support system collapse and the discouraging part of feeling hopeless.
as someone who have fibro and have a lot of battles with doctors telling me "you are too young to have fibro...." this woman is a blessing! it made me tear how she talks being so humble...
Children can have fibro. Parents think it is "growing pains"
@Eva Soliz how did you or rather your parents find out?
I had a hard childhood. Domestic violence. I was always scared. I had migraine all through my teens. I developed endometriosis in my 20s. Yes people never believe me.. my family...when I say I'm in chronic pain.
I had exactly the same. Abused as a child. Keep strong. You are beautifull.
Fybro is stress and food problem. The best you can do is in the beginning go on a very strick diet.
Not one heated fat product. So eat real butter, no margarine. A gallbladder diet.
Good oil like olive oil. Take good care. Make a long trip abroad. No vacation but workingtrip. You can.
@Dr David Kyler no herb helps.
Bull.
Only diet,love ,vcare. Good pure food.
❤️
@Dr David Kyler I had an operztion for it.
And an ovariosectomy.
Stress will do it and worse.
I am so tired of pain right now. Covid has isolated me and I am just miserable.
I hear you , I get it
Hugs
Me too
The pain is so bad in my legs night time is bad I am British I take sleeping tablets but I feel so bad now a diabetic alsoNASH liver cirrhosis the gets me down doctors say they don’t know enough to treat it I fall a lot because muscles get so stiff..
I feel your despair, Wicked Mutha. Keep on keeping on. If you can I can. Deal? ♡♡
a ketogenic or carnivore diet has helped some, you might want to check it out. being in ketosis can be healing for different inflammatory diseases.
I wish my doctor had a little of this doctor's compassion for fibromyalgia patients.
😔
It’s painful
I have what my Dr. calls total body fibromyalgia. I have had it 42 years. At one point I couldn't walk due to pain in my right hip. I had accupuncture for six months. It took the pain away. I sure learned a lot about Eastern medicine and how it helps. Cold weather really disables my pain. I feel burned are 67° or below everywhere.
Thank you Thank you, I’ve had Fibromyalgia since 1984 (I was 10 years old). Everything you have talked about has made me feel more human, then I ever had in the last 35years. People look and me and say you look so healthy, you don’t have fibromyalgia and your the guy that is just a junkie looking for pain meds.
I'm in tears. Finally I feel like someone hears us and believe in us and understand us. I really appreciate you. I now have a better understanding.
Who would dislike this? Very informative and I love her approach! I wish everyone with fibromyalgia could have such a compassionate, informed doctor.
Honestly.. probably trump supporters. 🙄 She made one comment so they probably lost their minds.
Probably the quacks who think this is all in our head!
It’s because she is wrong on some points. Especially LDN.
@@heyitsjustme.680 I'm a Trump supporter with Fibromyalgia. Must you DEMOCRATS politicise everything? I was feeling positive until I read your post. 🥺🥺 I thought all people with Fibromyalgia were in this together.
@@cubnation you were feeling positive when SHE HERSELF made it political by saying what a moron trumpty dump is?
I didnt politicize it bro. The actual person in the video does... 🙄😬😂
This is so on point. I’ve seen so many doctors and they don’t know what to do. It’s heartbreaking and I’ve lost faith in all doctors. I suffer everyday and it is slowly and painfully taking away “living” for me. In the sense that I’m alive but not living. I truly wish the DR. was in New Jersey. I need her help. She gets it. It makes me sad that I live this way and don’t receive proper treatment. It’s like doctors don’t care anymore. That’s all. Sorry for the rant and I pray it all gets better for all of you. 💜
Nicole hang in there! It may be a problem in your neck like it was for me. Check out the videos in my playlist about getting your atlas bone adjusted. It could change your life
Try, a small amount of Zoloft daily. I take 50 mg. It helps. Not a cure, but helps me 90% on pain.
Hello beautiful soul...we understand your struggle and how draining it is to have to become your own advocate in regards to the treatment of this at times debilitating and chronic illness. I just wanted to remind you that you are worth fighting for...pop online to find a Fibro support group page and draw from the experience of the Fibro community. That's what really helped me to get the best treatment methods for it and feel less isolation. The best thing for me was getting my sleep disorder reduced by medication and magnesium seems to help me too. Blessings ❤
Nicole Anne I feel the same way. I am an old soldier and I don’t deserve this. I served my country for 23 yrs with dignity and honor. I hurt everyday. I just want to quit this life.
I have something that cured it after 9 years of paain
I don’t even know you but I love you for understanding and trying your best to help us with this horrible chronic illness! 🤗🥰👍🙏
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
@@Pauline_mrt It is certainly a good point you make, and I also feel that, alongside the environmental toxins that have a big part, but also I think that an overload of stress can tip us over the edge.
I 1st experienced it when I moved from the countryside to the city. 25years ago.
However, the stress of an abusive relationship, and some other crap, put me into a wheelchair. I am still in.
Namaste. XxX.
I had a radical hysterectomy at the age of 38 and had never had pain issues before. Now just having the cat lay on me in certain places hurts. But the fatigue lately is even worse than the pain. I have so many of the symptoms and never knew that's what the cause was from. Now at 51 I'm learning more and more about it. It's nice to know I'm not crazy.
I've had doctors say. I look fine & healthy, so nothing wrong with me. I look great. I want to slug them!
I agree, Woman for Trump! Btw, I like your name😉
I had a dr. tell me, you are well on your way to recovery! NOT!!!
American I am with you.
I was told "oh well you have a lot of kids of course you're tired".
You just want to shake them scream at them especially when they say things like you just want drugs
What a sweet caring doctor she is! ❤️
It’s a real, sad condition, not been helped by caring physicians. It becomes a lonely painful existence.
It’s comforting to know it’s changing!
🙏🏻
So well said, it’s so hard getting help, or diagnosed. You can isolate your self, as it’s hard to make the effort to even get out the door at times. I’m so happy to hear this sweet Dr say, your not making it up. Sleeping 💤 is a real problem ,bright lights really get to me.
This is the first time, I’ve heard of these symptoms being related to fibromyalgia.
I’m only 25 and have been trying to figure out what was wrong with me for 4 years now. I’ve been tossed around from doctor to doctor without a correct diagnosis. I was finally diagnosed with fibromyalgia last week. It’s sad that I am now in severe pain everyday and had to apply for disability because I can’t function normally, let alone work. I worked so hard to get through nursing school and am a NICU at one of the top children’s hospitals in the country. The fact that I can’t work anymore due to the pain makes me feel like I worked so hard for nothing. After I got diagnosed, the rheumatologist said that there’s no cure for fibromyalgia and didn’t want to see me anymore because there was nothing she could do. I wish I could see this doctor but I live in South Jersey. I might fly to Kanas to see her if I can’t find anyone where I live. Living with this pain is unbearable and none of the numerous doctors I’ve seen seem to care.
Dr. Nicol is amazing . I am 66 and I have been in horrible pain for last 6 years. Please come to Lexington. I have MS for 12 years. Thank God for my husband. Keep us in your prayers. Fatigue is unbelievable.
I want to ask you if you made any progress since this comment a year ago. But since youtube doesnt notify me of people responding to me, i wont get to see it even if you do reply.
my pain seems to ease a little in warm weather but living in the u.k.its not very warm.i hate the chronic fatigue that goes with it. and tend to push people away as I can't be bothered and just need to sleep a lot.its so awful and depressing. I feel my life is slipping away as I always want to be alone..
I am the same way, Eileen! The fatigue and pain together makes me want to sleep all day. I don’t meet with friends bcz I know there is a chance I could cancel on them. So, I am right there with you.
Try living in New England and making it though a frigid winter. I live for summer! I'm sure you've done a lot for your condition but a simple one that a lot of people overlook is a simple warm/hot bath with epsom salts (great way to get Magnesium into the system.)
Hon try Dr Carolyn Dean Remag, it's liquid magnesium chloride. It really helped my CFS and B6,B12 methocobalamin.
Coenzyme Q 10.
Vitamin D3 and K2 . Iodine No oils carbs ,gluten sugar is in everything. Dairy has casien in it . I eat avocados. Specialist told me to stay away from foods that begin with CH.
Chicken
Cheese
Chocolate dark is ok.
Chinese food.
Chips
Cheese
Charcoal grill those black marks r carcinogens, so rub meat in rosemary and some olive oil if your going to have a treat.
No bounce sheets . They rob your energy and make your nose stuffy.
If it's from a plant eat it ,if it's made in a plant, don't.
Distilled water only because the chlorine and chemicals.
Intermittent fasting is important.
Gershon therapy, do it yourself save money.
So 90% of serotonin is made in your gut ,no depression.
Eat fermented foods, green cabbage is excellent, layer with veggies and onions peppers and a bit of white mozzarella cheese on top . No dyes in it .
This disease is really painful and soak in Epsom salts ,and watch funny shows ok .
Please watch It Theory Tom Bilyeu guest Naveeen Jain Making illness a choice ok.xo
I eat a lot of peppers red green orange fresh garlic in everything.
It Theory Tom Bilyeu guest Naveeen Jain Making illness a choice created VIOME. Our immune system is our our gut.
Stay away from ibuprofen, Tylenol.
Green matcha tea and fresh ginger, sliced in tea with manuka honey.
My heat pad does wonders
Oh wow. I need a perfect small range oftemp. Cold hurts. Too warm burns and hurts.
Had fibromyalgia for 40 years since I was 21. All of this makes so much sense to me. I now keep active, have stopped all my pain meds, eat healthy despite all this I am still in pain and fo not sleep. But I feel better on some days. Very interesting.
What do you consider a healthy diet? Grains are very harmful among other oxidizing foods..sugar, seed and nut oils.. Some people cannot tolerate high fiber or oxalates. Some need to avoid dairy. I didnt know I had a wheat problem until I stayed away and the rash on my limbs stopped. Look up dr paul mason on lectins; its pretty eye opening. Id highly suggest being in ketosis, whether vegan or carnivore.
@@dana102083 id stay of grains
i sleep all of the time but i am still always tired. It is like with all of that sleep i am still not getting any sleep. I can never sleep for longer then in 4 hour lots, so the sleep i get is never a truly deep sleep.
am the same woke up finally today at 1pm but i didnt fall asleep till 2,30 am then i was awake every 3hrs
am going thru this at the moment jsut sleep sleep sleep but still tired
@@tinamiles9328 its awful i dont know how much longer a person can take all this crap
My gp is a Fibro specialist. I’m so lucky. He is a pain specialist too.
You are very lucky, is that in usa?
You are so blessed, not lucky, IMHO! 😍🌷😍
@@annasenior6969 no. Uk. And it's all free.
I am so pleased to have found this, I'm suffering so badly with so little help being offered, this helps so much listening to you, you know how much we are suffering
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
What has helped me with the pains is cannabis oil I don't use other meds anymore only the oil. 🙏
@@rosahayward2698 Hi can you tell me how much oil you take and how often and the brand if possible...7 years with fibromyalgia every year is getting worse 😢
Hi Marilyn my husband gets it from a friend no name brand he makes it himself. When I started taking it I used 3 drops now every night if it's not a strong oil I take 5 drops. When I can't get the oil my husband buys weed I grind it fine than throw it over my food on my plate and that works as well and it helps with sleep. Blessings 🙏🙏🇿🇦
I've found that cutting out candy helps my pain go away. When I had pain and hadn't been eating candy I looked into the ingredients of candy and discovered an ingredient called titanium dioxide. Titanium dioxide is in many different things such as toothpaste and lotions and frosting, etc. Now I make sure I do not eat any titanium dioxide and I'm feeling much better
I don't remember the last time a doctor asked me how is your pain where does it hurt. I am crying as I am watching this. When I was told there was nothing anyone could do to stop the horrible pains in my legs and arms and to go get disability because working would make it worse. My family called me a con artist and drug addict.
Hi Larry. Thank you for responding to this talk about fibro. I’m so sorry you’ve suffered because of a lack of knowledge with your doctors. I too have had fibro for decades. I’ve always had pain but it got worse after my husband was killed in a forklift accident in 2005. It’s been a long journey but at 64, I haven’t given up yet. I pray you continue to seek help with a pain management doctor like this precious lady. I have a great one and am very thankful and blessed. I care! Feel free to text me anytime! 🤗✝️
I have fibromyalgia and has suffered for years. I am on Lyrica now and it is a miracle for me.
I have had FM for 26 years. I used to be healthy as a bull, but today what annoys me is the drainage of energy. At times I often sleep 3 hours. My day can be a roller coaster. Perfect upon waking up then from my plateau it is a rapid descend for a while or the entire day. Trying to be productive can be a struggle, concentration is so foggy, find trying to read a real effort, when I sit down to play the piano forget about that desire. One thing I loathe when asked are you depressed? As far as I am concerned there is a gigantic difference between mental illness and this reality. No way will I allow myself be depressed. Yes, some days it can be hell, but I still remain as possible cheerful to get on with life’s special gifts. As a very young boy I suffered a serious car accident, hit in the head, Mum and I landed up in a coma and remained in hospital for months. The medical doctors informed my parents I would amount to nothing. Boy did I suffer serious head pain, migraines. For decades! Then one day I received one pill, ever since then I never have anymore migraines. I swear by God Almighty, not a single pain since then. Mother is proud to say her disturbed worthless son by doctors in the 1960s landed 8 scholarships to study 10 languages, 2 music piano/organ, theatrical scholarships around the world with 3 degrees plus other qualifications to expand my world education. So I am to be more determine to improve my life despite the handicap of suffering FM daily. No way will I permit myself to slip into depression. One day a psychotherapist heard me use the word anxious, immediately she labelled me being depressed. Instantly I barked back not allowing her to paint me in a wrong way. like other people I certainly suffer, but my frame of mind must remain positive to make life worthwhile and promising with great excitements. No matter how many peaks and valleys in one’s life believe me there are inspirations hidden to promote a healthiness in regards to this disability. Always look at the brighter side of life.
I have just found this , I was diagnosed in 1993 , I am 53 now . I have been through a guinea pig of meds . I have learned that I do not do well on antidepressants , either they are too high of doses or I spiral in coma or just no quality of life . So they are not for me . Doctors that I had been to in past were mean and judging . It has been alone battle . There is NO WAY , I chose this ! Interstitial cystitis, irritable bowel . I never know , it can be. Beautiful day out and I will feel awful ! This frustrates me! I stay away from ppl because of their judging , u look ok on the outside and they think bad of you immediately . So it is just best to stay away from ppl . Would love a dr like u ! Support group !
I wish there were more compassionate Drs out there like this amazing woman!!! Thank you!
Kristie Angel Kristie, you are very pretty. I hope you get everything you want out of 2020.
There would be if people would quit going to these moronic doctors. Hell it'd probably change over night if everybody suddenly quit going to shitty doctors.
@@mcren6781 Amen!!! 👆🏼👍🏼 Agree 100%
@@mcren6781 And how do you know who is a shitty Dr. unless there are filed complaints against him/her? Referrals aren’t always good, what works for one person may not work for another. All we can do is learn by trial and error.
Hi Andrea, I am a guy who suffers from FM, I believe I got this after a Fatal RTA, I used to be a Trucker in UK, was diagnosed firstly with Spondylitis at 32 (1991), Doctor told me it was from driving with window down, then in 97 I was involved in Fatal RTA where two me coming from work dropped to sleep & hit me head on in my Truck, Both died, I left that job but went into another working mostly night shifts for a reefer company, I was doing great in my new job but kept jumping down out of cab, which started me off having low back pain, I then decided to climb in & out using step & was fine for a while then started jumping out & it brought on my low back pain again, I eventually had to finish working due to pain, I went to a hospital where I had a MRI, I was told it was Arthritis of spine & nothing could be done,
I was 46 at the time (2004) then a few years later started getting burning pains in both shoulders, I went to my doctor who sent me to a specialist, he asked what was wrong & after telling him was diagnosed with FM, I have never worked since, I did start managing it, but now it is taking over my life, due to bad head aches & pain in both shoulders, I do get pains in all my joints right down to my feet, I am at a loss now, but do my best to keep going.
This is very interesting. Considering some Rheumatologist 's completely deny the existence of Fibromyalgia.
In my country the doctors don't even know what is it
Atreyu Im on Mixer. My Rheumatologist acknowledged my fibromyalgia, but completely dismissed it.
When my neurologist doesn't find any problems after 3 course of meditation, my MD Doctor finds out my RA test is reactive finally but I was then referred back to this Neurologist but the medication for RA doesn't even work for me, instead he told me not to see him unless there is an evitable critical evidence .😅😥🙄
My rheumatologist diagnosed me then wanted me to take dangerous drugs. I passed and now I just suffer.
@@fred6059
What 'dangerous' drugs? The drugs used in Fibromyalgia treatment are trial tested & approved and well tolerated by the majority of those taking them - often for decades. It's not a one size fits all scenario - some drugs will work for you but not for others and vice versa.
Only you can decide if you want to spend the rest of your life suffering in debilitating pain. I'd suggest you to try the medication and if it doesn't work - move on.
Good luck whatever you decide
I'm honestly just starting to think someone has a voodoo doll of me
I thought that too when I was in my 30s. No warning just pain anywhere any time.
Oh my! If only there was an Andrea Nicol is every clinical setting, life would be so much easier to deal with, what an interesting seminar, I'm now going to look at some of the papers she has recommended to look at. Thank you Arthritis Ireland for airing.
I was diagnosed a few weeks back just after my 22nd birthday . I was a dancer and fitness instructor . Keeping positive has helped a lot, I hope everyone else can find comfort and solid medication to help!
I danced and was so very active once. It hurts but I have kept the hope and belief in a miracle to come. I pray it does as would love to get that ability back.
Shannon Sullivan what works for you, how severe would you say your fibromyalgia is?
This hurts me. I love dancing. I used to be active until pain started taking over my life slowly. And entering a professional course worsened my situation. I once went to a doc with an article cut out the first time I found out abt fibromyalgia and he brushed it off saying its all in my head. Only I know how it feels like being trapped in an old woman's body at the age of 23 almost like being being bed ridden. And worst is the mental pain to not be able to do what I love to do. I was once a dancer..it just hurts😭
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
Heal the gut . Change your diet avoid inflammation foods . Know your triggers
I shared this video on pinterest because I think more people like me with fibromialga need to see this.. I felt lost, in pain and confused at first when I finally found out I had it.. I get told all the time I don't look sick.. well because I'm really good at putting on a happy face but inside I'm dying.. I was told for many many years they didn't know what I had.. which in return made me more depressed and alone.. when I finally found out I had fibro after 8 years of the pain I still didn't know much.. I was given by my doctor a basic print out from the internet explaining what it is and the symptoms.. which I could have just done on my own.. I never received answers from my doctors but by only listening and watching videos of others who have it.. there are days I want to die from the pain not even counting when I have a flare up.. at this point I will take or do anything to help a little with the pain or to just have a small sliver of a life..growing up I had a really high pain tolerance and now as an adult just touching me hurts or gives me large bruises .. which makes it extremely hard to do anythingwith my kids or husband.. its crazy to say this and no one around me understands but even just having hair on my head hurts.. I am lost and don't even feel like I'm a quarter of the person I used to be.. my life is no longer mine.. my life is only pain, sadness, lonelyness ..but hopefully watching this video will help me better understand what fibromialga is and hopefully in the future I can better manage it.. I just want my life back 😪
I completely understand and agree with everything you’ve said and the phrase ‘I just want my life back’ almost finished me off… that is the one constant and persistent thought I have. I miss the ‘me’ I was and I know my family and friend miss that ‘me too ‘ 😢
I was diagnosed in 1994 and couldn’t believe what I was hearing. I already had degenerative disc disease and arthritis so another painful condition that is basically untreatable wasn’t what I wanted to live with. Here it is 2023 and still so many doctors don’t take you seriously. I hope you find a ray of hope in dealing with your health problems. My heart goes out to everyone suffering this unending pain. God Bless you.
Am 61finally it is crippling me
had lots of trauma, falling 3 floors at 16, then cheating husband of 14 yrs, hit by car while riding a bicycle, few rear ends including being hit by over 100 thousand tons of cargo at airport, abuse sexually and physically
but what truly did it was loosing the one person i truly cared about
So sorry hun ur story is like mine im so anxious and depressed with this ilness im giving up im pregnant to and its my 4th dont no wat to do... How do u cope...
One good thing about having fibromyalgia is that I don't really feel that much worse when I get a bad cold. It's like a bad flare-up day, which I'm used to!
Is that why when my husband gets sick he seems terrible and I'm just like...eh whatever?
I was actually looking for this comment in here lol. Same thing with me! I am already used to the pain so it's like... Oh! Okay! Nothing abnormal here! Lol!
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
@@Pauline_mrt hello...6
I thought I was a very informed fibro patient and *then* I watched this. Wow....the parts where she broke down links back to childhood. Yes! I had horrible “Charlie horse” cramps, horrible menstrual cramps that made me physically ill as a teen, etc. Always super sensitive to noise. Wow. Now I’m wondering about my oldest daughter...hadn’t even considered that she might have exactly what I do. I wish every doctor was like her! I do have a fabulous GP, and access to a great multidisciplinary fibro clinic but her attitude is contagious.
Thank you Dr. Nicol, for listening to us and seeing it in our eyes, in our words that we are indeed suffering, and wanting to help us. You are a brave doctor and we're forever thankful for that.
Fellow fibromyalgia sufferer ppl always thought me crazy insane but it’s truly debilitating .
My own ex-husband (while we were still married) accused me of faking my pain and "making up" my fibromyalgia. Nothing is more of an emotional blow than knowing the one person in your life you're supposed to be able to love and trust has so little faith in you as to accuse you of manufacturing an illness just for the sake of "being lazy and not wanting to work." Oh, and to get attention. Let's not forget that crucial little detail.
The exact same thing to me and even some of my friends. I went to a dr who was reaching fibromyalgia. That is where I got diagnosed when I was in my thirty’s and have a flare up now after 4 knee surgeries and my knee cap removed. I fell and shattered my whole knee cap.
@@maryshea6030, I am so very sorry! I was diagnosed at 15, and back then (in 1995), fibromyalgia was such a new thing, even my mother didn't believe it for years. I guess I shouldn't be surprised that no one believes me now in my 40's! :(
Thank you so much. Fibromyalgia is treated like a mythical beast that only exists in the sufferers head by a lot of Drs, fortunately they are getting fewer.
So true.
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I have Fibromyalgia when I was diagnosed I had to google it. I’ve never heard of it. It’s a freak’n nightmare. 😢
I also had RSD/CRPS and Hemicranial continua and myelomalacia!
FM is real and horrible. Sending my good vibes to you all! Love ❤️ this talk. I wish I had a doctor like her. Xo 😚
Ps. I also noticed that most or A LOT of people with FM were once athletes or major over achievers 🙋🏼♀️
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
Could be coming out of left field here,but your last comment about dancers,athletes getting this got me thinking. There's a doctor on here who claims potassium deficiency due to long term electrolyte imbalances, excessive sweating by athletes long term leads to early death could this result in Cfs fibromyalgia. I'm no doctor but try the pink salt tartare sauce remedy who knows.
@@welshdavy3558 thank you!
Have fibro but also sjorgrens syndrome and copd, was diagnosed with Hemicranea continua 5 years ago and recently Trigeminal neuralgia. Sending soft hugs to anyone suffering xx
Gerson therapy was largely built on the premise that there is a deficiency of potassium in the cells and often too much sodium. This salt free protocol works to restore this balance with lots of juices and I believe a potato soup was involved. It seems you are onto something noticing this.
I'm 23 and was diagnosed with fibromyalgia last month. This made me feel better about myself. It used to terrify me that just by holding a mic while singing hurts my arms so much and when i get stressed my whole neck and shoulders hurt. It's terrifying how i felt horrible for feeling pain when i shouldn't.
You are an honest doctor...that's what you are...God bless you for your work...greetings and love from Bombay India to Ireland 🇮🇳♥️🇮🇪
I'm so glad I found this. She knows exactly everything about this. 🙏😥💖
Thank God we have good people out there in the world that are actually helping people with fibro. Gives me hope
Did you have an MRI w/contrast prior to this
I have all the buckets of pain. I was fine until about 57 and now at 63 I just feel broken. I tell my friends to move on I’m done 😭😭😭 when she mentioned noise, handshakes and hugs even hurt it reminded me of people’s reactions when I reacted to those painful things.
Thanks Andrea, you rock!
I was diagnosed in 2002 I was in good job nursing and it became so so hard and I had one dr tell me what I was feeling was in my head so Cried when I had a heart attack and the dr asked what things are wrong with me and I told him fibromyalgia he put his hand gently on my shoulder and said oh I’m so sorry your going though this pain...we need more people like this lady bless her...to get more awareness...Thankyou for sharing your video x
“Circle the Body!” I love that. I’ve done that a dozen or 2 times. Result 100%: Blank stare. “Be specific.” I’ve even taken markers to basic human diagrams and done my best to color-code my pain by type and location, keeping it to 4 colors for simplicity, providing a key for doctors to decipher very simple pictures. Response 100%: “What am I supposed to do with this?”
That sounds like something I need to do. At my pain management appointments they always have you indicate your pain on a diagram. I gave up. I just circle the whole thing now 😂
Dearest Dr. Nicol, How can I become your patient ? If I need to move to Kansas I might just do that! Thank you from California! I will be 70 this year and have had fibromyalgia for the past 30 years. I am so very sorry for each and every one of you who suffer with this ailment and who feel as though there is no way out. This was wonderful and so appreciated. Thank you Dr Nicol and thank you all for your heartfelt comments . ❤️
The bad news is you'll be in pain for the rest of your life. The good news is it won't kill you. That's what my Dr told me.
Rubbish.... see my post up there ☝
I am a success story.
I concur: that is false information. As a functional medical nutritionist (RDN), most "Western" practitioners only know how to treat using a prescription, injection and/or surgery.
@@annetteyoutube742 I've got Anklyosis Spondilitis, P.O.T.S., and fibromyalgia. My life is done, glad I got to live a fun full life before it was destroyed 😥
My daughter went from being a vivacious, out going, beautiful young woman to being riddled with pain, unable to hold a cup of tea, not being able to talk without slurring her words, to the brain fog, to not being able to hold a pen. We've come to terms with her condition now and brought all the aids including a scooter for when she can't hardly put one foot in front of the other, we can get her out of her four walls and try to make her life a little more comfortable.
Talking about the incompetence of doctors, one doctor told my daughter, who was working still trying to stay in work at the time, to think of her employer and get back to work, my daughter felt like throwing herself under a bus, literally.
What a pleasure it is to listen to this doctor.
She has Lyme Disease - Get tested by IGeneX Labs - Western Blot test. Fibromyalgia is part of Lyme.
This is absolutely amazing! Thank you Dr. Nicol! I am too grateful for this. I am so tired of doctors and medications wrecking my body and everything. I was once a vibrant individual and I am so tired. Were it not for my faith, I would have ended it all. It's good to know that someone is out there trying to understand this thing. God bless you! It is not in my head!
Me too that and my kids.
Amazing talk! Thank you for this!! She's a breath of fresh air and hope!!
An aside: I wish clinicians would start acknowledging parental loss when they talk about childhood trauma in these types of talks where they reference childhood trauma as an risk factor for fibro. Sudden loss (my experience) of a parent is traumatic. And, it's rarely (never) mentioned when people do talks even though traumatic loss is considered just that (trauma) in the research and literature. I hope this validates someone else in the comments here. Childhood trauma isn't solely abuse/neglect. It can encompass so many other forms of trauma
I AGREE I LOST MY DAD TO CANCER I WAS 13 YEARS OLD YOU TALK ABOUT. PTSD..IT WAS AWFUL FOR ME AND IM A ONLY CHILD ALSO. AND IVE BEEN DIAGNOSED WITH FIBROMYALGIA AS WILL AS AUTOEMMUNE DISEASES TOO.I FEEL TIRED ALL THE TIME JUST EXSATED NEVER FEEL. RESTED NO. AND I LOST A SON 9 MONTHS TO TO PREMATURE BIRTH. THEN ANOTHER SON AT 35.TO DRINKING.HE JUST PASSED AWAY IN MARCH JUST AFTER HIS 35 🎂 BIRTHDAY IT JUST BREAKS MY ❤ HEART.ITS SO HARD.LOST A HUSBAND AND THEN ALSO A BOYFRIEND TOO OF FOUR YEARS HE DIED FROM DRINKING ALSO .SO I UNDERSTSND ABOUT TRAUMA ITD 👎 BAD.I CANT TAKE NOMORE.ITS TO MUCH. I HAVENT BEEN ABLE TO WORK IN ALMOST 6 YEARS CAUSE OF MY PAIN AND SUFFERING. GOD BLESS YOU FORVYOUR IMFO.I PRSY YOUR PAIN GETS BETTER IN SOME WAY .NORCO HELPS ALOT TRY IT JUST A SMALL DOSE NOT TO MUCH HELPS SOME .GOD BLESS🙏❤🌸😴🌻🌹🌸🌴🍒
Almost lost both my parents when I was around 10/11 years old due to one attempting to murder the other, didn't help that I had to live in some kind of limbo where I
knew nothing of the fate of either of my parents for months (my mom was recovering in ICU, my dad was in custody and later on sentenced to several years in prison
before being deported). Didn't help that nobody seemed to give a sh!1 about it, had to go to school despite the trauma, no one cared (neither the people I lived with,
neither the school, neither the effing social workers or the police that where there just after it happened). Yeah, that was fun.
@Ashley DM - from middle school through high school guidance counselors and two decades of on-and-off therapy, it was only two years ago that my newest counselor acknowledged that the loss of my mother when I was 2-1/2 years old is TRAUMA. I don’t recall “parental loss” being included on any psychological history checklist.
@Wario DS - my heart aches for the child you once were…and my heart bursts with admiration for your survival and your strength. Sending you positive, healing, energizing vibes across the miles!
Fibro for over 40 years, this is one of the best videos I have seen, thankfully things are changing!
She believes the patient. Some doctors think you just want time off from work.
This woman is my hero.
My mom told me that she had heard a term called roving arthritis. I told my doctor and he said that may have been what they termed it way back. I was diagnosed finally at 44. I know my dad had to have it too. When the puzzle pieces were finally put together I made the connection. He would come home from work with leg pain and always said at times I have the flu again. He never had a fever. I tapped him on the shoulder when I was a kid and he jumped and said ouch. He said I just hit his sore spot. I now know it was a trigger point. It’s awful. I think he drank a lot trying to kill the pain. Both doctors who diagnosed me said your not crazy, you have fibromyalgia. I told them both I already knew I wasn’t crazy. Just didn’t know why I hurt so bad.
That’s not always the case. In mine, I have no family history whatsoever of Fibro or any autoimmune disorders.
@@DulceN I agree it’s not always the case. I have been told by a physician it is not hereditary. I have had such a bad flare since last Friday I rescheduled getting the Covid vaccine. I can’t do it while I’m flared up. Weather changes seem to bring about flares for me other times it’s just out of nowhere. Take care!
Dr.’s treat me like I’m making this all up. It’s depressing.
I met my first patient with a fibromyalgia diagnosis back in 1992. Soon after, many more were showing up for help. All of them said their doctors wrote them off as having psychological problems, thus their physical symptoms were psychosomatic. This invalidation by their physician was more negatively impactful than the actual diagnosis for many of them. It did so much for them just to have listened and showed compassion, even if treatment protocols were not firmly established back then.
Of all the aspects of a necessary multi-disciplinary approach, aside from pharmacological interventions, it seems that diet and nutrition make the most substantial long-term impact concerning management of the condition. Recognizing food allergies and sensitivities, remedying metabolic dysfunctions, reducing obesity, achieving an ideal BMI and eating healthy while avoiding devitalized or junk foods seem to make the most dramatic difference from my experience.
It is a shame the anti-Trump derangement syndrome, her talking of "sides" and "which side someone is on" which is purely a political reference, the derogatory to gender, race and age comment "white old men doctors" even had to make their way into the "talk" which is supposed to be about health, medicine and this specific condition.
But leftist feminists (and because of her actions I would bet the smart money she identifies as a feminist) just can't seem to help themselves and have to inject this politicization and social justice raging against the white male patriarchy into everything these days. Which is a pity as it is a truly embarrassing repulsive social behavior. I apologize for this on the part of all Americans who seem to have become bigoted, overly-politically identified neurotics, cultists and zealots.
I think your rant is myopic and pretty much confirms what you're condescendingly apologizing/not apologizing for. Go away. And there obviously is a good reason for complaints against white privilege, mysogonistic, narcissistic aholes.
This is the best video I have watched. Thank u. Dr Nicol needs to come to educate South African doctors
Hi Dr Nicol , I live in ENGLAND , I am just watching your vidio , you mentioned about RHUMATOLAGISTS ,, well I once asked a GP I had about seeing a rhumatolalagist , but all he said was WHY DO you want to see a rhumatolagist ? so I did'nt take it any further . I was BORN with Spina Bifida/ Hydrocephalus , I USE TO be able to WALK with 2 Sticks but now I have to use my Wheelchair FULL TIME , by the way I am 61
It was a South African doctor, here in Australia who diagnosed me. After talking to her on and off for a few visits, she said I was most likely born with it. She has now retired and I'm now back to doctors who know nothing or almost nothing about it.
What a truly amazing lady! To give such support and hope to sufferers of what is often thought of by the uneducated as, the 'lazy person' syndrome. The way she became emotional at the end made me tear up too.
I am only just beginning my journey on my diagnosis and was already feeling dejected by the treatment I have received from various medical professionals. One GP even recently told me (and I quote):
"Fibromyalgia is just a term we use for people with unknown aches and pains"!
Thanks for all your info. I suffer from this disease and always in pain. I had a lot of childhood bad experiences that added to this disease. I had to take early retirement because of my pain. I was diagnosed with it in my early 40s. I live with this pain and it has kept me from doing a lot of things. God Bless u and thanks for explaining this disease.
The best herbal herbs to cure your fbiromyalgia is from Salami_healing_herbs. on instagram I just got cured.
Diagnosed at age 8. It's been 30 years with no change to extreme pain and overwhelming exhaustion everyday.
I have almost 100% relief from a life of misery, extreme fatigue and pain and any number of other symptoms, I came across bupropion. Ask your doctor about it. You can research it. Bupropion for fibromyalgia. I tried ALL the detox crap and natural remedies. Of all of those I found melatonin and d-ribose to be the best.
However, bupropion has been a miracle drug for me.
I use to be a free spirit,but now I am caged in this body I still don't know,or understand why me? I was always needed. But know I can't help myself.
im going through the same thing dont give up we will get through this
@@kevinosullivan6525 I hope so Kevin❣
Know -now
Oh my gawd me too!! I’ve never in my life felt more defeated my pure heart hurts to the point it’s so unexplainable. Just seeing your post gave me anxiety knowing that someone else feels the way I feel . I was always the social butterfly and now I’m the clam living in a shell that now experiences anxiety attacks as soon as I leave my home .
I totally understand that. I'm living with fibromyalgia as well.. Have been for over 15yrs.
Thank God for Drs like you! How blessed the world is with you in it 💜
loved your talk! Its very inspiring and gives us Fibro sufferers hope that someone out there cares and is working to advance treatment. Thank you
Yes, I have the sensitivity to smells and sounds. I become stressed when exposed to loud voices or repetetive sounds. I have MCS (Multiple Chemical Sensitivity) which seems like it may be related to fibromyalgia.
I am sensitive to lots of sounds too. Misophonia. Also have Trypaphobia
Fibromyalgia comes with IBS,severe back pain,&all over,that moves all over body and Interstitial cystitis and TMJ pain
What can be done for TMJ have you experience help????
It is a bit different for everyone. I don't have IBS. Nor brain fog. I do have my ribs inflamed and TMJ. Body pain all over. And insomnia. My body jerks awake, all night long.
Mary Ellen Lucero you have to find & treat the source or it only gets worse. I had fibromyalgia TMJ severe arthritis migraines etc. and tried EVERYTHING, w very limited success at best.
I reversed all those symptoms after exhausting every other option out there. After I started getting treated by Shiela Ring Reed.
U can find her online, and give her a call, if u search for her full name. She’ll talk to u directly b4 u become a patient, & she treats people all over the world- w consults over the phone & testing & treatments shipped to u.
She tests for all the toxins & pathogens that create all the issues w have, then treats them at their root. Mainstream medical isn’t trained to find t he root cause of chronic disease, & only manages symptoms that gradually get worse.
Her prices are incredibly low, especially for being able to help those heal when no one else could. Some of her methods sounded pretty out there, even w my background in natural medicine, but they were incredibly powerful. Everyone else I know of in my state is charging 10 times what she is to treat the same things, and get far less success w patients. And I work w the medical field and know dozens of doctors personally, & have far more resources & options than most.
I don’t get paid for referring people, and wouldn’t want to, just know the struggle from over 25 years of suffering w serious fibromyalgia that limited my life more and more the longer I had it . Once the source is treated , the body heals problems u didn’t even know u had, and feel better than u start feeling better than u thought possibly
Medical grade Ozone ear and RI treatments will also help w TMJ & fibromyalgia. I used it to help the process & it was totally worth the investment. For anyone reading this I can’t put into words how effective those 2 treatments are for almost anything u can think of. If nothing else is working, those 2 methods almost always do.
Hope this helps u find health!
Ava Leonard Ava Me too...all of that.
@@Brockt87 Hi. I've never treated my TMJ pain but only ever tried massage& it helps. I've never heard of medical grade ozone ear and RI treatments. What RI mean? & What's medical grade ozone? Looking forward to hearing from you
I complained to my physician all the pains in my body and always gets a shrug off response until I researched it myself and went back to my dr to tell her that I suffer from fibromyalgia, that’s when she agreed. I learn to live with chronic pain. Just accept it and if it’s worse then I take medication. Adding to my problem is my anxiety and depression. Sleep problem which almost got me killed with 2 auto accident. So now I take anxiety medication.
Does anxiety medication work?
You are very special doctor who truely cares.l'm Dr Nicholes pacient.Thank you for this video.l felt your big hug.😊God bless you 💜
I also get accused of being a drug seeker and that's why I am trying to get help
That sad and unfortunate!
I am actually on methadone. I did it after trying every pain pill and medication. I talked to my obgyn and my family physician. I went to a rheumatologist and she was giving me 4 Vicodin a day. It works.and I tried ablations and shots and everything. I was worn out. I get relief and I get counseling with people who deal w pain and not addiction for everyone. They just try for pain relief snd I feel normal not high or in a fog.
@@jddSton hi Jennifer-I’m so buprenorphine - it’s like a miracle- without it i can’t get out of bed
@@lisamarie4937 I tried the bup but it made me seriously sick that is why I am on the methadone. I feel so much better.
Same here!!I hope that this changes real soon!!
It is so depressing, to be treated like a drug seeking, work-shy, low life.
* (I do Not consider drug addicts as low life's! They have a lot of psychological pain.) *
So to hear this, where there is a very real empathy, is a revelation!!
And I love the way she uses humour and compassion.
Namaste. XxX.
I’ve found being a sufferer for a long time, the help in Europe is very little............I got sent to Rheumatologist who stick needles in my extremely painful legs or Neurological specialist who ask so many questions that the other Neurologist had already asked & they have worn me down. Exhausted me so much that I don’t return! I’m tired, so tired. After a night of no sleep I’m exhausted as usual but good to listen to a doctor who get’s us!
Did you have an MRI w/contrast prior to getting FM
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
@@frontlinemedia4270 Hi yes I have had about 3 MRI scans, I got cfs/me & thyroid problems whilst having 2 major lady operations! Then the fibromyalgia came on. I paid private & was told you are sick & unwell but not much more. I was sent back to our specialist when fibromyalgia was diagnosed several times by these doctor’s! It’s my 3rd decade of fibromyalgia. And I’m sick off it!
@@Pauline_mrt Thank you 🙏
@@florence1395 you're welcome 🤗🌷
She's down to earth and know how to explain in a simple way
I am tired of trying and the pain and trying ,are making me depressed
Fibro, CFS etc are caused by toxins overload. It can be virus, parasites, mycotoxins (mold), heavy metals... at some point our body can't deal with it anymore, our detox pathways are blocked. Have a look at the websites of Dr Jess Peatross, and Dr Jaban Moore.
@@Pauline_mrt flamin heck...5
The pain of my childhood manifested itself in my body and acts up in my body when im going through alot or doing too much. I never expressed my pain out loud when i was younger so it expresses itself inside my body now
I think that is what is linked to my fibromyalgia and neuropathy
I’m with you Marcelo sending lots of love and better days ahead ❤️
Yes it happens. Your past can cause this. I will pray for you to get better.
Oh so true
Wow!! What a uplifting and inspiring talk. So down-to-earth and sincere and what a reath of fresh air!!!
At point 27:15 I cried. Because this is exactly how it is. And yes it is HARD. thank you for validation
Even though I already know all of this, just knowing that there are such brilliant and wonderful Doctors like this lady, who are putting their all into knowing everything they can to help us, their patients, helps to lift my spirits on a bad day. Such a lovely, compassionate lady.
I agree .. I've been fighting fibromyalgia for over 20 years plus chronic migraines for many many years and it's hard to get people to truly understand if you have a broken foot and you have a cast on it they understand that's painful but to look at you the fibromyalgia you think they'd look deep into your eyes and see it but they don't they don't understand I like to stay in my room in the dark and I live with my brother who's very active and he doesn't understand he tries to but he doesn't and I don't like the lights I love the sunshine but it doesn't love me back so I like to stay in my room in the dark for the most part I get up and do things some days but some days I just don't feel like it and yesterday was one of them today is another so we'll see how it goes because I feel guilty that I'm not up doing things but the house is clean dishes are put away I mean laundry is done there's always things that can be done but it's not like we live in a garbage pit and very well cleaned sort of immaculate actually but there's just days you don't want to do anything I wish I could help him see that so I didn't have to feel so guilty for being sick
Thank you so much for being the “unicorn” of compassion. Doctor do want to try this med and than another and another as you said, but what they do not seem to realize is that with fibromyalgia most people are just barely getting through the week and some days are a complete write- off because of symptoms. So when meds are added the side effects can throw a fibromyalgia patient into a tail spin. Especially since being extremely sensitive to meds and even vitamins is one of the symptoms. I always ask my doctor if I can try a pediatric dose first.