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Not remembering yourself in Photos | Rare Memory Disorder

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  • Опубліковано 8 сер 2024
  • Often I see a photo of myself and I don't remember what I was doing, where I was, or who else the people were in the photo. I have SDAM, severely deficient autobiographical memory, which is a memory disorder where you don't relive memories in first person. You may have facts about your past, but they aren't relived memories.
    This is not a medical channel, I am not giving out medical advice, just my personal experience. And everyone with these neurodivergencies will have their own unique experiences.
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    #raredisorders
    #sdam
    #memorydisorder

КОМЕНТАРІ • 14

  • @CherylHampton1
    @CherylHampton1 Рік тому +3

    Thanks for this, it describes me also. The same thing happens with a picture that I took so I know the fact that I was there but don't remember. Occasionally it will jog the fact that I was there as a 'memory' and I do remember being there and being part of what was going on. I've said all my life that I have 0 memories before 3rd grade and very very few after that. Mostly it is all facts that I've told as stories, as you said.

    • @i.am.mindblind
      @i.am.mindblind  Рік тому

      It can be a very strange experience, right? I'd look into more articles and videos about SDAM and see if you relate. I think it's a rare memory disorder, but because people don't tend to talk about these things openly or often, I do believe there are more of out there than researchers first believed.

  • @jpopelish
    @jpopelish Рік тому

    This video makes me want to accompany you on a memory field trip. Some low stress, no danger, no responsibility situation that is completely unrushed, entirely pleasant and unimportant sequence of sensory moments to discover, one after the next with no emphasis on listing what you are experiencing. And then, to later (and even later) talk about those moments as you recall them. I suspect there are some interesting patterns in what you would remember and what you would forget. Having an unobtrusive video record of the field trip, for eventual comparison might also be interesting to have, though it would only record some of visual and auditory parts of the experience, not what all the rest of your senses were experiencing.

    • @i.am.mindblind
      @i.am.mindblind  Рік тому

      Interesting concept. Because trying to figure out what I can remember and why has always fascinated me, especially once I realized my memory experience is not typical. I know everyone has various degrees of recall, but mine easily falls in the Severely Deficient category. But obviously not 100% no memory amnesia, ect.

    • @MandaMoo0462
      @MandaMoo0462 Місяць тому

      @@i.am.mindblindI can’t remember my childhood at all. And I was in a ten year relationship with my son’s dad I don’t really remember much. The next boyfriend four years don’t recall much. Raising my son is becoming a blur or forgotten most. It’s very upsetting. My brother who has been in severe accidents and has so much drug abuse and damage he still recalls so Much so easily and I just never have been able to. I don’t get it.

  • @shapeofsoup
    @shapeofsoup Рік тому

    You’re over 100 subs! Congrats!

    • @i.am.mindblind
      @i.am.mindblind  Рік тому +1

      Yep hit the milestone yesterday! So exciting to see the channel grow and have support from other people in the neurodivergent community. It is my desire to just help spread the word about neurodivergent is different not less than!

    • @shapeofsoup
      @shapeofsoup Рік тому

      @@i.am.mindblind I think you’re doing great! You’ve even got me thinking about starting my own autism focused channel.

  • @nicholaskoffler294
    @nicholaskoffler294 Рік тому

    just saw a video of myself with a friend from like 8 years ago that I have no memory of happening. I recognize the people involved and where I was but not the thing I was doing. Feels weird.

  • @martiwilliams4592
    @martiwilliams4592 9 місяців тому

    Thank you. Something to consider. I perhaps have somthing simil

  • @jvrock7
    @jvrock7 Рік тому

    Whoa. Very similar. Funny, my twin sister and I will both do this, one of us will randomly "remember" things and ask "hey do you remember when....?" And the other one of us goes... "😦💭💭💭uhh... nope." And then the asker: "Aw damn. Oh well." 😆 and it's not just the expected conversational prompt script. We're genuinely asking if the memory exsits in the other's brain. It's a fun treat when we both remember something 🤣.
    I don't think I have complete aphantasia, but I'm pretty sure it's probably somewhere in the hypo- range because I don't have narrative memories. I have vague and fleeting flashes along with the facts.
    I always thought it was my C-PTSD. Now I'm seriously wondering if it's this....
    I don't know how much you know about the brain or how about how memory is (typically) formed/stored, but the hippocampus plays an integral role in memory formation and storage, and I do know from my college psych classes as well as continuing special interest in neuropsychology, that those that have childhood trauma and cptsd have a smaller hippocampus. Cortisol, especially excessive and prolonged amounts, inhibits the growth and formation of new neurons and connections within the hippocampus (and also in contrast enlarges the amygdala(Firefly fan?? "She feels everything. She can't not." If you get it, you get it hehe. (If not I'll explain lol))). Anyway this has gotten long enough lol, I just meant to say, man, there has got to be some connection between SDAM and decreased hippocampus size and function. If you haven't found this kind of info already in what research there is, there's a new Google search rabbit hole to jump down 😆😁.

    • @i.am.mindblind
      @i.am.mindblind  Рік тому

      I a parent to twins! How fun when I meet other twins. My sister is 4 years younger than I am, but she has a great memory and she's always trying to jog mine.
      I haven't studied too much about the brain and particular parts and how they effect visualizing and memory. I'd actually really enjoy being part of some of the studies that researchers are performing. I've applied to a few, but the main researcher for aphantasia is in England and I think the main research for SDAM is in Canada, I believe... I'm sure others are studying it and I have filled out some online questionnaires on both subjects.

    • @SarahDale111
      @SarahDale111 Рік тому

      Hey...I'm a twin, too! My sister has an insanely good memory, and mine doesn't work at all. I also have aphantasia, asd and c-ptsd. I only discovered asd a few years ago at age 43, and suddenly my whole life made sense. Hallelujah! But the more I delved into things, the more I couldn't tell if it was actually asd, or if it was c-ptsd. They have a lot of common characteristics. And then it became clear to me that someone growing up with undiagnosed asd would inevitably develop c-ptsd. It's a both/and, not either/or situation. I call it traumautism. 🤪