I have seizures and I do NOT know they are coming on. So I'm screwed. So people have to tell me that I am having a seizure or have had one. I have to show this video to my mom. I am considering having this. Then talk to my neurologist about it. She suggested it
Amazing!!!.. This video has basically answered so many of my concerns. Thank you so much. The one thing that I have an issue with is the length of time it would take the body to adjust to the stimulator. Overall , I have learned a lot of valuable information.
Have you experienced any problems with your VNS device? I have been suffering severe pain, more headaches and more seizures for years. I have asked for the device to be removed, now I am demanding that the neurologist refer me to a neurosurgeon to remove the device. The company technician J***, and several neurologists have documented the complications that they have had with my device. My settings are high and seizures have increased.
I got my vns implanted about 6 months ago and have been clear of a major seziure for 5 months I had one small one but used the magnet, my doctor said "You have made my day that you are the fastest patient iv had to respond so quickly" I did have to keep relearning how to talk when it went off all that happens is I feel a small tightening but Iv had it this long most of the time i wouldnt even remember its there
Publicly my 20 years seizure disgrace diagnosed disease including aneroxuia have be cured by a spiritual herbalist inshallah with his herbal root and leaf's mixtures ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
Imagine that VNS machine stopping a seizure before it starts. It’ll be great if I’m allowed to have it done. I feel my seizures coming on. It starts with my eyes moving fast, then my muscles tighten up then my face starts twitching. If it’s a bad one my whole body starts moving. I’m tired of having those stupid things and feeling depressed and tired after a bad one passes. Lately I’ve been having them about once a month something like that. I would give anything to go years without any seizures.
Publicly my 20 years seizure disgrace diagnosed disease including aneroxuia have be cured by a spiritual herbalist inshallah with his herbal root and leaf's mixtures ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
I had brain surgery and it didn't stop mine. Now I'm getting this offered again. It seems great but.... sometimes I think this is just me. But..those stupid seizures are awful! I feel mine coming also but I just want them gone!
Me too 😢 I have my VNS...its been about a month and I'm still having seizures...I guess me and my Dr. Are still trying to find the correct therapeutic dose for me. Hopefully they find it asap!! I'm ready to go back to work 😫
Depressed also, this is the only surgery I can get, because it's not isolated, it's all over my brain. IM more tired than you know. 30 years now, and no one to look after me. Great luck to you.
I had mine implanted back in 2016 and my battery died in 2021 it kinda worked . Now what I noticed I get my seizures every 4 months I don’t know if it’s because I’m not stressed don’t know . I haven’t changed my battery though
My parents have seen seizures for me almost every day. I have to write down for doctors when I have them. Almost every day in December of last year. Not cool. And I take my meds ON TIME CORRECTLY. I have an alarm set on my phone
I started having tonic-clonic seizures in college and ended up in the my local Milwaukee hospital hooked up to a EEG. I felt good and felt trapped in bed hook to this contraption. Being annoyed and bored I started reading the Wall Street Journal. Next thing I know I get attacked by doctors and nurses insisting my EEG says I am having a seizure. Is it possible that reading the Wall Street Journal while in college causes seizures?
I'm about to go to a neurosurgeon tomorrow to talk about getting a VNS implanted in my body 30 days from the day that I see him which is tomorrow and I'm really nervous extra nervous about it because I'm seeing all these comments all over the Internet about how people had it put in and then they died and it's making me so nervous that I just can't like I'm just so afraid can anybody help me?
Publicly my 20 years seizure disgrace diagnosed disease including aneroxuia have be cured by a spiritual herbalist inshallah with his herbal root and leaf's mixtures ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
I have had epilepsy since I was 13 and I'm 32 now. I have just had the vns surgery done on Thursday. I'm abit sore and my throat feels abit raspy. But after 2 weeks I will have the vns turned on, I'm nervous about it but so far so good. Just take pain killers for the discomfort after surgery in your kneck and chest.
Please be very careful with the VNS device. Always be sure to ask your doctor and company representative how many patients have they treated and how many patients have severe problems. I still take medication and this device doesn’t work.
I have seizures and I do NOT know they are coming on. So I'm screwed. So people have to tell me that I am having a seizure or have had one. I have to show this video to my mom. I am considering having this. Then talk to my neurologist about it. She suggested it
Thank you so much for the education on the VNS stimulator. It was a very informative and educational experience that I needed.
Amazing!!!.. This video has basically answered so many of my concerns. Thank you so much. The one thing that I have an issue with is the length of time it would take the body to adjust to the stimulator. Overall , I have learned a lot of valuable information.
I've got a VNS implant put in.
Have you experienced any problems with your VNS device?
I have been suffering severe pain, more headaches and more seizures for years.
I have asked for the device to be removed, now I am demanding that the neurologist refer me to a neurosurgeon to remove the device.
The company technician J***, and several neurologists have documented the complications that they have had with my device. My settings are high and seizures have increased.
I got my vns implanted about 6 months ago and have been clear of a major seziure for 5 months I had one small one but used the magnet, my doctor said "You have made my day that you are the fastest patient iv had to respond so quickly" I did have to keep relearning how to talk when it went off all that happens is I feel a small tightening but Iv had it this long most of the time i wouldnt even remember its there
Publicly my 20 years seizure disgrace diagnosed disease including aneroxuia have be cured by a spiritual herbalist inshallah with his herbal root and leaf's mixtures
ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
Imagine that VNS machine stopping a seizure before it starts. It’ll be great if I’m allowed to have it done. I feel my seizures coming on. It starts with my eyes moving fast, then my muscles tighten up then my face starts twitching. If it’s a bad one my whole body starts moving. I’m tired of having those stupid things and feeling depressed and tired after a bad one passes. Lately I’ve been having them about once a month something like that. I would give anything to go years without any seizures.
Publicly my 20 years seizure disgrace diagnosed disease including aneroxuia have be cured by a spiritual herbalist inshallah with his herbal root and leaf's mixtures
ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
I had brain surgery and it didn't stop mine. Now I'm getting this offered again. It seems great but.... sometimes I think this is just me. But..those stupid seizures are awful! I feel mine coming also but I just want them gone!
Me too 😢 I have my VNS...its been about a month and I'm still having seizures...I guess me and my Dr. Are still trying to find the correct therapeutic dose for me. Hopefully they find it asap!! I'm ready to go back to work 😫
@@kimberly6200 Can you tell me the side effects you’ve experienced after getting the implant?
Depressed also, this is the only surgery I can get, because it's not isolated, it's all over my brain. IM more tired than you know. 30 years now, and no one to look after me. Great luck to you.
I'm to find out about the battery change
have the docs ever had issues with it protruding from the chest muscle and Bruce's around the device.
I had one 20 years ago,but it didn’t help me with my seizures. I hope it will help you!
I don’t recommend anyone having the VNS implanted into their body.
The device hurts and doesn’t help.
I had mine implanted back in 2016 and my battery died in 2021 it kinda worked . Now what I noticed I get my seizures every 4 months I don’t know if it’s because I’m not stressed don’t know . I haven’t changed my battery though
My parents have seen seizures for me almost every day. I have to write down for doctors when I have them. Almost every day in December of last year. Not cool. And I take my meds ON TIME CORRECTLY. I have an alarm set on my phone
Does the patient constantly feel the energy when device is running, similar to being shocked?
You do for a couple days but it doesn't hurt at all feels like you tapping your neck then you get use to it and won't feel it at all
No lol
If I have an ICD can I have a VNS?
I started having tonic-clonic seizures in college and ended up in the my local Milwaukee hospital hooked up to a EEG. I felt good and felt trapped in bed hook to this contraption. Being annoyed and bored I started reading the Wall Street Journal. Next thing I know I get attacked by doctors and nurses insisting my EEG says I am having a seizure. Is it possible that reading the Wall Street Journal while in college causes seizures?
I'm about to go to a neurosurgeon tomorrow to talk about getting a VNS implanted in my body 30 days from the day that I see him which is tomorrow and I'm really nervous extra nervous about it because I'm seeing all these comments all over the Internet about how people had it put in and then they died and it's making me so nervous that I just can't like I'm just so afraid can anybody help me?
Publicly my 20 years seizure disgrace diagnosed disease including aneroxuia have be cured by a spiritual herbalist inshallah with his herbal root and leaf's mixtures
ua-cam.com/users/shortsD6UBT8lKYcw?feature=share
I have had epilepsy since I was 13 and I'm 32 now. I have just had the vns surgery done on Thursday. I'm abit sore and my throat feels abit raspy. But after 2 weeks I will have the vns turned on, I'm nervous about it but so far so good. Just take pain killers for the discomfort after surgery in your kneck and chest.
Please be very careful with the VNS device.
Always be sure to ask your doctor and company representative how many patients have they treated and how many patients have severe problems.
I still take medication and this device doesn’t work.
i am getting the vns but one thing i want to know is do you feel the vns go off when it sends the signal
Did you get the procedure yet? If so, how are you?
@@denisehayes2298 it is coming up soon but due to covid could be a delay, the hospital will call me when ready
@@colmcoleman6421 OK well prayers for you and I will you all the best.
@@denisehayes2298 i got my vns operation done about 6 months now and its been 5 months since my last major seziure I have my life back now
@@colmcoleman6421 I'm so happy for you. I am
Takiah is my next door neighbor